Warning Signs of Fluoroquinolone Toxicity

Almost every time I mention how Cipro messed me up, I get the response, “Oh yeah, I’ve taken that – it doesn’t affect me.”  To which I respond, “I took it several times before I reacted to it too. My body went completely hay-wire the second time I took Cipro. Don’t take it again.”

Adverse reactions to fluoroquinolones aren’t allergic reactions, they’re something else. The pathology of adverse reactions to fluoroquinolones is unknown – to anyone (or, if someone knows, they’re not publishing research papers about it). My guesses to the pathology can be found at https://floxiehope.com/2013/06/20/what-is-fluoroquinolone-toxicity/.

Unlike allergic reactions, adverse reactions to fluoroquinolones often occur long after the fluoroquinolone use has stopped. Antihistamines do nothing to stop an adverse reaction to a fluoroquinolone (though they may be able to help with some of the inflammation symptoms and they don’t seem to hurt most Floxies).

Though some people react to their first dose of a fluoroquinolone, many don’t, which leads them to falsely believe that these drugs are safe and that they won’t react to them in the future. Unfortunately, an adverse reaction to a fluoroquinolone can occur even if (maybe especially if – because there is (anecdotal) evidence that fluoroquinolones accumulate in the body and that there is a “tipping point” at which the body overloads) they have been taken with no adverse reaction in the past.

Looking back, I had some of these warning signs after I took Cipro the first time, in 2010. My eyelid twitched and I developed strange, but passing, abdominal cramping.  I experienced a “weak bladder” that I attributed to genetics and age. I had itchy legs at times and just thought it was dry skin. I didn’t connect any of these things to the prescription antibiotics that I took to treat a urinary tract infection.

If I had connected those symptoms to the fluoroquinolones, I may have been able to avoid taking Cipro again, and I may have avoided the pain and suffering that I went through starting in December, 2011.  (https://floxiehope.com/lisas-story/). I hope that this list of minor symptoms serves as a warning to you.  Please don’t take any fluoroquinolone antibiotics no matter what, but especially if you are experiencing any of the following, heed your body’s warnings and stay away from these drugs!

What FQ can do (HINTS AND CLUES THAT MIGHT SAVE YOUR LIFE)

Perhaps you have taken quinolones in the past and you think that they worked well and that you did not react negatively to them. Check the following subtle symptoms of the beginning stages of a quinolone intoxication from an earlier treatment and the normal interpretations that people make of them.

* You had a strange bout of tendinitis, for instance in the outer tip of the hip, normally diagnosed as trochanteric bursitis caused by tight belts or resting on you side at night. The same applies to other areas of the body, like the elbow (epicondylitis) diagnosed as an overuse of your tennis racquet or gardening practices, but you remember that you had never had it before.

* It takes you longer to recover after exercise. It is not alarming and you have not paid much attention to it.

* You sleep worse than before; it seems normal as you have a lot of pressure at work.

* From time to time you have some small throbbing pains in different parts of the body. They last only for a few seconds, so there is nothing to worry about it.

* It is strange- but you have occasional twitching in an eyelid, or any other part of the body. It is not painful.

* Some nights you feel some mild itching migrating along your body. One brief itch here, and another there. It is more intense in the scrotum or groin. Instead of identifying it as a peripheral neuropathy, you conclude that your clothes, your perspiration or the new brand of soap that is more irritating must be causing it.

* You feel some stiffness, and your range of movement is not as full as before, especially in one or both legs, but it is normal because you are getting older.

* You do not tolerate coffee as well as before. Now you have to reduce the amount of coffee that you used to drink.

* Your memory is not as good as it used to be. The cause may be too many things to think about and too much stress. And you are no longer a young person.

* There is an urge to urinate when the bladder is partially full. When you feel the need to urinate you have to rush for the toilet. Most urologists think that it is due to a dysfunction associated with a benign enlarged prostate but in reality it is a neurological deficit caused by the prescriptions of quinolones that they gave you.

* You cannot flex fully, or strongly, your big toe (one or both), or sustain the flexion for more than a few seconds. This is an indication that your large nerves (anterior tibialis) have started to fail due to the toxicity. This sign is a strong warning that your body will not tolerate more quinolones.

* Sometimes, you have nightmares while falling asleep that scare you. How strange you think. They are toxic panic attacks that reflect toxic damage to your brain.

If you have experienced some of these symptoms since you took your first quinolone, perhaps you have reached your first threshold of tolerance, that -once surpassed- can result in the destruction of your life soon thereafter if you take more quinolones.

 

 

Tagged: , , , , , , , , , ,

48 thoughts on “Warning Signs of Fluoroquinolone Toxicity

  1. Mazieta Júnior July 10, 2013 at 11:02 am Reply

    I wouldn’t want even my enemy took fluroquinolonas (Ciprofloxacin, Levaquin and Avelox), are true poisons!

    Cipro brought down my life, but din´t kill me!
    Thank you Lisa for everything!

    Many people have stories of healing, (one of them is Lisa) and I also have faith that my healing will come!

    Thank you Lisa for everything!

    NEVER TAKE CIPRO!

    Faith, Faith,Faith, Faith,Faith, Faith,Faith, Faith

  2. kateekat July 10, 2013 at 6:10 pm Reply

    I’ve someone in my life i WISH i could share this with, but she doesn’t want to hear it. Thank you so much.

  3. Debs July 29, 2013 at 4:58 pm Reply

    The delayed severe adverse reactions and the the fact fluoroquinolones have a cumulative effect in the body is the most insidious way this poison does its damage . I see time after time people commenting that they were fine and did not have any side effects , or maybe they just had a twinge here or there,don’t be fooled people, the damage is being done, it is just at present occurring ” under the radar ” , you just do not notice it yet, because you
    have not exceeded your own tolerance level. I took levaquin and norfloxacin in the past, and it was only when I was prescribed cipro (unfortunately along with an NSAID) that I exceeded mine, this was three years ago, Some things have improved for me, the balance coordination, twitching, so their is a light at the end of my very long tunnel, any improvement Is a blessing, so things can get better. Thank you Lisa, It is so nice to find a site that lifts you with positive vibes , we sure need it !

    • Leanne November 10, 2013 at 4:31 pm Reply

      I took Avelox (2 pills) in June & had panic attacks after each pill (didn’t associate it with the 1st pill). Fast forward September & I now have body wide muscle twitching & burning sensation in face. It has to be the Avelox–I was normal before.

      • Lisa Bloomquist November 11, 2013 at 10:19 am Reply

        Yes, you’re right, Leanne. It’s the Avelox. Lots of people heal in lots of different ways (as you can see from the stories on this site). I hope that you feel better soon! Please be sure to stay away from NSAIDs and Steroids. If you need anything, please feel free to contact me through the “contact me” link on this site.

  4. Lisa Rolins August 16, 2013 at 7:01 am Reply

    Thank you Lisa for this post. I took Cipro for the 1st time back in July 2013 and sever nerve pain in my neck and head started within 24 hours. My Dr. keeps telling me Cipro isn’t the cause and that I just sleep wrong. Saw a neurologist yesterday and he is almost certain it’s from the Cipro. Going for an MRI today to see how much nerve damage has been done in my head and neck. Pain is better since I stopped Cipro, but I can tell my neck still isn’t anywhere near what it used to be. Plus I am shaking all the time now. I will NEVER take this class of drug again

    • Amy March 22, 2014 at 2:23 pm Reply

      Lisa, How are you feeling now? I had the same thing happen after Levaquin.

  5. Greg Spooner June 20, 2014 at 7:51 pm Reply

    I developed dry eyes and mild insomnia after my first few rounds of fqs (in addition to a couple of the symptoms you mentioned above). Several other floxies I know also had these 2 symptoms before the “last straw” dose that pushed them into acute FTS… I think they’re definite harbingers.

    • Victoria May 24, 2018 at 9:51 pm Reply

      I developed dry eyes (no saliva or tears) after the pins & needles hit my face. It happened in 1 night after weeks of pins & needles spreading. I can no longer cry. It caused my blood pressure to drop severely ( like 70 over 48). It has been 9 yrs. since my floxing from Cipro (for bladder infection). No improvement. I do not have Sjogrens or Lupus or any other autoimmune disease that causes total loss of saliva & tears. I’ve been tested dozens of times. Besides, if I did ……it would have been gradual; not overnight! Thanks Cipro for ruining my life.

  6. Sue June 23, 2014 at 9:03 am Reply

    You all can be helped. I am recovering quickly. I am seeking help from a Classical Homeopath, who btw is 80 years old, no aches and pains and going strong. I have also found out my blood type and eating the diet that works well with my type. I am seeing an amazing difference already in just a week or 2. WOW! I was about to give up hope, when God sent someone to me, to tell me to seek this particular Homeopath. I have a cleaning business so can’t afford to go down. I have always been an active person and I am now 58 years old, back to exercising and walking the dog, cleaning and carrying on with my day. Now I won’t say I am 100% but the journey has just begun and it’s working and I am praising God every step of the way! My symptoms were muscle pain, bone pain, burning in tops of feet, all the symptoms of neuropathy. I have (not gone yet) but improving) floaters in my eyes, and noises in my head,urinary problems, including leaking, horrible groin, bladder and pelvic pain and too many symptoms to list but I was getting so sick of it, I was asking God to heal me or take me home. Life is NOT fun spent feeling this way. It is not an overnight journey, but my journey with God. He took me on the journey with Inflammatory Breast Cancer, and I beat it, without chemo, radiation or drugs. He never gives me a quick healing but chose me to show me the way, because he knows I will speak out and speak truth. Don’t give up, there is always hope. 🙂

    • Nikki Page August 23, 2016 at 11:10 am Reply

      Hi I know this comment was a while ago But would you mind speaking to my husband about your health now and who was your homeopath? How you found your body type diet.

    • Amanda April 2, 2017 at 8:50 pm Reply

      Can you please share the exact homeopathic remedies that you are taking? I know that this is the only route to go, and I need help!! .. Thanks!!

    • Dion Schwulst September 16, 2017 at 3:52 am Reply

      What worked for your actual healing?

  7. Patty Alexander Sr. March 30, 2015 at 10:31 pm Reply

    Sue, what state are you in? I’m asking to see if he is anywhere near me. I am in Pa

  8. Sunny July 12, 2015 at 5:37 pm Reply

    Do cipro ear drops do damage? I have been so dizzy and sick since 2009, and yes I’ve been on a steady supply of cipro pills and drops for chronic ear issues. Now I have migraines ” fibromyalgia” neck pain. Every joint in my body hurts, as well as some embarrassing other stuff. Could this be associated?

  9. […] are all Warning Signs of fluoroquinolone toxicity. After the first time I took ciprofloxacin I had a twitchy eyelid and […]

  10. Susan Higgins May 19, 2016 at 8:39 pm Reply

    I have opted not to take this drug for Lyme (bartonella). I took a sulfa drug recently and had the most awful reaction to it and this sounds exactly the same. The fact that it might happen again is more than I can endure. I’m going to have to try something else.

  11. Miss Riley August 11, 2016 at 12:28 am Reply

    I have also experienced fluoroquinolone toxicity. About 8 years ago, after just a few doses, I went to bed one afternoon feeling exhausted. I woke up after having horrific vivid nightmares, and found myself sweating, shaking, and literally having auditory hallucinations, anxiety, tachycardia, and a strange prickly sensation covering my entire face. I started vomiting profusely. I felt like I’d been given really bad LSD.
    I stopped taking them and my synptoms went away after a few days, luckily.
    To this day I can’t find anything that describes the kind of CNS effects I experienced while taking the fluoroquinolones, and I’ve had several doctors act like I’m just crazy, or insist that it must have been triggered by something else. But I know these antibiotics definitely were the cause.

    • Ruth Young August 7, 2017 at 1:35 pm Reply

      It was the quinolones. I had some very wild and weird stuff happen both times I took Cipro. The first time I was young and did not know a medication could cause hallucinations. I thought that either my parents’ house was haunted or I was crazy. An inner voice told me the demon was in the bottle of pills so I got up and threw them away, hallucinating the whole time. It took several days after stopping it for me to stop seeing crazy stuff at night when I would try to sleep. These were not dreams. I was awake. It was like being in a waking terrifying dream.

      I think if I had known for sure it was the Cipro I never would have taken it again. I really thought it was just me. It changed how I perceived myself. After that I went on to struggle with horrible depression for decades, which I now suspect was due to functional mineral deficiencies caused by the Cipro. I’ve been taking a gram a day of magnesium (sometimes a little less) every day for three and half years. No depression. I just feel a lot more stable. I do still take Idebenone (something I discovered post flox) because it gives a serotonin boost and is a good antioxidant, but I usually stop it for a month every year since it is only proven safe in studies for up to a year. I manage just fine without it, but slightly better with it.

      I think I naturally am a little low on serotonin, but I think my main problems with depression in my twenties and thirties were due to a huge loss of functional minerals from the chelating properties from the Cipro I took in my youth. I thought less of myself for all those years– bought into every stigma about mental illness and carried a lot of anger and resentment over it for years. The psychological effects of quinolones are real and they are horrible. Recovery is possible if you know what happened. I didn’t. No internet back then.

  12. David A. Faiello August 22, 2016 at 1:52 pm Reply

    Permanent CNS damage: Shingles (active mild), Sjogren’s, Reynaud’s, plaque psoriasis, drug-induced lupus for over six years following a course of Cipro. None of these will ever completely resolve. The molars on the right side of my jaw are now all crowned or cracked from clenching my teeth in my sleep from the pain. I have awakened several times with a mouth full of broken tooth fragments. Sleep deprivation and continuous neuropathy are the norm. Pain management drugs such as dilaudid, Neurontin, and tramadol made me even sicker, so I have learned to tolerate more than I would ever have believed possible. Thank you VA and thank you Bayer! This will no doubt eventually kill me. I’ll ignore the wrong pain and pay the price. Things hurt that shouldn’t and don’t that should. I’ve had shingles in my eyes and heart more times than I can count. If I went to the ER for every pain I would soon be the “boy who cried wolf” with no credibility and mountains of bills. What is worse is that I’d be giving the doctors that did this to me a chance to do more! No thank you! I take special forms of magnesium and vitamin C which helps with symptoms without being laxative. I take 1 tbsp. of magnesium solution daily in a monoatomic form that is nearly 100% absorbable. This helps with both the neuropathy and especially with sleep. Now instead of waking up every hour to hour and a half, I only wake up every three to four hours most nights. Sometimes I even sleep for five straight hours. What a blessing! When the pain index is up even the Mg doesn’t help much. The vitamin C I take is lipospheric and also highly absorbable. I take 10 grams of it per day which helps control the shingles. It limits the amount of new vesicles to about a third of what I would normally have. I also limit the amount and severity of shingles with a low arginine/high lysine diet. Permanent CNS damage is exactly that. The flouroquinolones cross the blood/brain barrier to directly attack the brain which cannot heal itself. The worst part of this is that one year after this all started I went to my doctor for another problem. I shared my suspicions about a Cipro cause of my symptoms and syndromes with my doctor, and he not only ignored me but referred me to another doctor who put me on another course of Cipro which made it all even worse. Silly me for listening to doctors. I don’t do that anymore. Either they listen to me or I fire them. The sad thing about this is that the people who read it likely have already taken a flouroquinolone. The people that need to read it are the ones who haven’t taken it yet!

  13. Geoffrey Madewo November 29, 2016 at 4:57 am Reply

    True I have seen many patients who have got ciprofloxacin toxicity especially the adverse effects on tendon and joints. Some patients get copying tendonitis and arthritis like symptoms.

  14. Gail February 5, 2017 at 8:42 pm Reply

    That’s it! You are absolutely right! I will never ever take them again. They are causing most everything you named. I can add that it moves around from elbow to wrist to thumb joint. It’s crazy! I know it was the Cipro. I don’t take any meds so when I took this one I was left with these lingering effects. Two years now….

    • David Faiello February 6, 2017 at 9:39 am Reply

      Among the symptoms that are more ominous for us floxy sufferers are bladder/urinary difficulties which may be an indication of a collagen defect. And yes, I have suffered from the spontaneous total failure of a tendon. (The peroneus brevis in my right leg failed while on a field trip several years ago, and this also relates to collagen problems.) While the bladder aspect is very annoying, what is scary is that it is a fair predictor of aortic enlargement as the aorta and bladder are similar in composition. If you are on speaking terms with a doctor get an echocardiogram to rule out this more serious condition. The real difficulty we all face is physician skepticism and denial. They don’t want to admit that they or any of theirs had any responsibility for what we have, and will go to great lengths to avoid admitting what it is that we have. My own VA doctor who wrote the initial RX for Cipro has conceded to all of the related syndromes ( Reynaud’s, Sjogren’s, plaque psoriasis, neuropathy and symptoms but refuses to call it what it is: flouroquinolone toxicity syndrome. Instead he refused to see me anymore. The reason I ended up with this “rare” syndrome is twofold. First it isn’t as rare as Bayer would like you to believe. Second, my Viet Nam exposure to harmful chemicals (agent orange and DEET) had already damaged my CNS and brain. I was particularly vulnerable to Cipro’s harmful effects. Monsanto and the VA fought the agent orange battle and now have a rather narrow list of illnesses that they reluctantly concede to be possibly agent orange connected. You can bet that they will never admit to contributing to floxy with DEET. Isn’t it special that Bayer and Monsanto are now expected to be joined at the hip? I live from day-to-day with more good days than bad days and continue to manage my symptoms with magnesium and vitamin C, taking valcyclovir PRN when the shingles get in my heart muscle (myocarditis) or eyes. As to the VA: I use them to get the acyclovir and Restasis for my Sjogren’s related dry eyes and otherwise try to limit my contact with them to them minimum. They’ve done enough damage. When I visited this site and figured out what all of my symptoms and syndromes meant, it was the worst day I can remember in a long time, and yet a relief. I finally had an answer….but nobody wants to see the words “permanent brain and CNS damage”! My heart aches for all who visit this website. I am an experienced combat medic coupled with over 25 years as a medical paraprofessional and have been able to both do the research and even figure out a lot on my own and am comfortable telling a doctor or nurse where to get off. Most of you don’t have that background, and I know how frightening this must be. My prayers are with you.

      • Lisa February 6, 2017 at 9:54 am Reply

        Thank you very much for your service, David. I’m so sorry for the damage that these criminal companies (Monsanto and Bayer) have done to you, and I am also sorry for the corroboration of the military and VA in hurting you.

        These delayed adverse effects are tricky, and they make it difficult to connect the cause (endocrine disrupting chemicals) to the effect (illness and disability). I’m glad that you made the connections, and I’m sorry that you had to.

        Thank you for your thoughtful comment. We’re in this together.

        Best regards,
        Lisa

  15. Emily March 22, 2017 at 2:03 pm Reply

    I had a 4 month sinus infection last year and within days of taking Levaquin last March, I developed tendonitis in my elbow (non-dominant arm). I had my first surgery in November and am getting ready for my 2nd one. All of my lateral tendons will need to be removed. It wasn’t until a friend shared the blog post from Mountains and Mustard Seeds with me today that I realized there might be a connection between my sinus infection and my elbow injury. So scary. Thanks for all of the info on your website. I look forward to learning more and am grateful I haven’t had worse issues.

  16. Amanda April 2, 2017 at 8:37 pm Reply

    First, I want to say..WOW!! I’m very impressed with the amount of time, and research, that went into the site, cause, articles, posts, etc. Very informative!! After reading the overwhelming evidence regarding the potential theories, especially at the molecular level, I would like to add a strange question and/or thought. Yes. Unfortunately, no answers, although it seems like you guys are practically there. Of all of the facts stated, it seems we know that it must be one, or several in combination, that are doing this to our bodies. So, we know the cause, more or less. But because all of us experience it differently and for an undesignated amount of time, it seems that we are looking for the different variables among the affected group? If so, my curiosity wonders if blood type would play a vital role in the adverse effects/longevity? For example, I’m Rh-, which means that I do not have the “monkey” gene. The study done on animals showed positive relief of symptoms after given…”blank”?? Would this mean people with Rh+ blood have a better chance at recovering​more quickly, or at least a treatment for the symptoms become available? Also, if blood plays a significant role, how do they compare in terms of reacting to Quinolones during and after poisoning? If this does have any importance, MAYBE… One day, this specific drug class would only be used on a specific target group..? Sorry, I wish I had more. I hope my crazy mind/thoughts helped in some way. Thanks again for letting me share. Keep up the good work!!

  17. Dodi July 7, 2017 at 5:28 pm Reply

    So what do we do now? Suffered for 20 years, just getting worse and worse.

    • Dion Schwulst September 16, 2017 at 4:02 am Reply

      The $64,000 question and no one seems to really know. Hit and miss. 😦

  18. Laura August 4, 2017 at 6:05 pm Reply

    Yes, I have lived this nightmare. Avelox permanantly blurred my vision. It boiled my blood as a chemical reaction when it hit my. Bloodstream. I have tendon ruptures in hip and pain in elbow and Neck. I had taken Cipro, levequin in the past. Six (6) months after my 4th FluroQuinolone RX I had tendon damage all over my body.

  19. alison November 9, 2017 at 6:33 pm Reply

    Wow…I am completely amazed at the amount of suffering that has been caused by these antibiotics. I am a 35 year old female, mother of 4, and I have been on a search for the past 8 years to figure out what has been causing pain in my pelvis and legs. This year the symptoms have gotten a lot worse including CNS symptoms (twitching, decreased sensation in legs, pain, blurred vision), and it led me to seek out a neurologist, one of the only of many, many specialist I hadn’t seen yet. After MRI and CT scans he couldnt find any evidence of MS, which is what he thought it was, but concluded that there was something attacking my spinal cord; however, he hasn’t been able to come to any conclusion following several lab tests. I stumbled on this information after being prescribed Levaquin by a new urologist, after being diagnosed with a UTI a couple of days ago. I had been prescribed Cipro by a urologist in the US (Im now living overseas) about 8 years ago for chronic UTIs and had been taking it 2-3 times a year for the past 8 years. I am realizing now that more than likely my symptoms are from the very drug that was supposed to be helping me. I am very grateful that the Lord has sustained me this well, especially after taking it about 20 times! I am praying for more answers and ways to advocate for the safety of patients. Blessings to you all and I am so sorry for your pain.

    • Don Mowers February 20, 2018 at 7:52 pm Reply

      You are saying 20 times. I have no idea how many times over 30+ years that I have taken Cipro. Chronic urinary tract infection caused by a lousy urologist. I mean lousy because he had the wrong approach and I trusted him. I was (unsuspectingly a guinea pig) in the clinical trials when Cipro first came out in the mid 80’s. I always wondered (with no help from a doctor) why I was developing the various symptoms. Since I am 83 it was always attributed to old age. Not until I recently found this site has it all begun to make sense. Enough said.
      I hope that some of what I am learning here will change things for me.

      • Don M September 2, 2018 at 12:30 pm Reply

        84 now and symptoms, symptoms, symptoms. Some subtle and some bold. What do you say to ignorant people when they ask what is bothering you? May I amend that to ignorant doctors.

  20. Bob Smith January 16, 2018 at 11:10 am Reply

    I was given cipro in 2002 for a UTI and ran a fever of 103. Within a day temp went to normal and returned to work. I am a carpenter and was in the middle of building a wall when I got sick and when I returned to complete it I drew A TOTAL blank on the order to complete a half framed wall but felt phyically fine. I leftt work early telling my boss I was feeling ill again.Went home felt fine and when I woke the next day felt great then it got really strange. Been working at this project for a year and was a ride that was easy/simple. After turning off the highway couldnt remember if there was a stop or yeild sign coming up from that point I have no idea how I made it to work. The moment I stepped out of my car I went into a seizure and guys at work brought me to the hospital. Got CAT scan and hey told me to continue cipro. At this point it was as though I had full blown parkinsons…shuffle stepping, extreme shaking throughout entire body to top it off with massive depression. I was totally non functional physically. My father picked me up at hospital and hrew the cipro out. I was unable to work, drive or take care of myself or home for 6 months. My GP was shocked when I informed him of what happened and the neurologist also had no expaination. Since then I dont have the severity of the effects but some remain like short term memory loss, massive amounts of widespread chronic pain primarily in my back and only get 1 or 2 hours of sleep at a time from being woke in agony.It feels like my joints are litterally being torn apart. I was always in great shape and extremely active now I just try to go to work(ofcourse I am not a carpenter any longer because I am not phyically capable)and survive. Doctors just keep trying arthritus meds and they do nothing at all. Its been a long time since I looked up info on cipro and ALOT more info is available now to warn people about the life changing effects this drug is capble of.

    • Don Mowers February 20, 2018 at 8:02 pm Reply

      Now that you have found this site don’t listen to the doctors. Strong statement but it seems that very few of them will admit to what is happening to people after they take a Fluoroquinolone. As I read through all the things that people have done to aid their recovery I keep seeing magnesium. It also appears that the liquid (small particle) magnesium is more effective than pills. I am going to try Dr. Carolyn Dean’s ReMag. We shall see.

  21. Sara Allen January 16, 2018 at 2:24 pm Reply

    I was diagnosed with fibromyalgia/ME about 10 years ago….but I just read the symptoms on this page and I have every single one! Now I’m wondering if I could be suffering from this instead. I’m not sure what I would have taken FQs for, thoughts on that??

  22. greendingy January 26, 2018 at 2:05 pm Reply

    I have FINALLY found a doctor who knows all about fluoroquinolone poisoning, he had it himself: Look on Youtube for Dr. Gahlili, or ROXBURY INSTITUTE. He is in Los Angeles. Knows what to do to get better, has all the IVs necessary. He changed his practice after taking Cipro and being in a wheelchair for half a year and thinking he was going to die.
    I won’t go into my own story…..as it mimics some of the others. I just want to give helpful info to those who want a doctor who actually treats this specifically. Whats the point of making comments on how you healed without sharing the who and hows. Hope this helps others.Even if you don’t live in Los Angeles, call them. They might have referrals.

  23. greendingy January 26, 2018 at 2:12 pm Reply

    Also, I believe that fibromyalgia started popping up in the nineties, around the same time these drugs were first introduced. It’s not a coincidence.

    I truly believe that fibromyalgia was created as a reaction to this toxicity and why so many people always thought it was “all in your head”.
    Because we never put the antibiotic with the symptoms: it never occurred to us, nor were we warned of the side effects, coupled with the fact that reactions don’t always happen right away but often weeks and months after taking the antibiotic.

    I once took Cipro, six years ago, and also had a bad ankle soon after…did not know why. It didn’t rupture until seven months later. This time, both of my legs and feet are affected and I went online and saw Tendon Rupture and realized that my rupture was caused by the Cipro.

    It’s a very frightening thing to go online and learn on your own why you are in so much unexpected pain, going crazy, and there is no answer…only to learn why via the internet, and then, even though the info is all there, most doctors haven’t a clue how to treat it.

  24. Don Mowers March 3, 2018 at 3:08 am Reply

    Why doesn’t someone compile a list of things that help to eliminate the symptoms of this insidious toxicity? Do it with the understanding and warning that “IT IS NOT MEDICAL ADVICE”. All through the postings I see snippets of things that “MAY” help. Please, someone put them all together in one l place so the interested can try them.

  25. Dion March 3, 2018 at 8:21 pm Reply

    CONCUR!

  26. P McIntosh March 23, 2018 at 7:15 pm Reply

    Took Cipro from 1989 to March of 1992, 1500 msg daily. I
    Had the top of my kidney removed, suffered torn rotator cuffs both arms, weakness in legs, extreme fatigue and shooting pains through my body………anyone else with similar problems? I have been diagnosed at Cipro Toxcity…..

    • David A. Faiello March 23, 2018 at 9:56 pm Reply

      I have had many serious problems since taking a course of Cipro 8 years ago and they got worse after another course seven years ago. I pretty much know what set me up for this My CNS and brain were already damaged from DEET overexposure in Viet Nam in 1969 and 1970 where I served as a combat medic. The hypoalgesia experienced after Viet Nam has gotten much worse since taking Cipro. In addition to neuropathies and fibromyalgia, I have permanent shingles, Sjogren’s syndrome, Reynaud’s syndrome, and a few auto-immune disorders brought on by two years of shingles pain management drugs ( Dilaudid, Neurontin, and Tramadol). I now have a very irregular pulse from several bouts of shingles myocarditis. My shingles onset occurred exactly two weeks after finishing a course of Cipro. My increased symptoms got worse exactly two weeks after the second course. My greatest frustration is the skepticism of the idiot doctors who caused all of this and even disregarded my suspicions that Cipro had caused my problems. Like a fool I trusted them and took the second course of Cipro. The doctors have successfully cured me of one very dangerous condition…trusting doctors. I will never trust them again. I take magnesium solution to help with pain control in order to sleep and a lot of vitamin C ( lipospheric) We are not alone in this but big pharma will never own up to this nightmare. We can manage many of our symptoms but beware of charlatans who prey on us promising a cure! Good luck.

      • Naina June 29, 2018 at 10:39 am Reply

        I am suffering from taking 5 ..250 cipro for bladder Infection..it started with neck pain and gave me dry mouth also the worse vertigo now feeling like I’m going crazy..trying magnesium..cq10..fish oil..iron..lecithin..alsi flip flopping heart..havent found a doctor that understand yet..l live in Canada.. very few doctors here that will listen.

        • Naina June 29, 2018 at 10:42 am

          Lisa helped a lot with supplements and many others on the site
          If anyone have an idea please leave the message! Thank U.

      • Don M September 2, 2018 at 12:46 pm Reply

        You are so right.!!!! “My greatest frustration is the skepticism of the idiot doctors who caused all of this and even disregarded my suspicions that Cipro had caused my problems. Like a fool I trusted them and took the second course of Cipro. The doctors have successfully cured me of one very dangerous condition…trusting doctors. I will never trust them again”. I like my Primary Care doctor. Have been with him for over 20 years. Being in a medicare HMO “I MUST” have a PC. I recently made comments about some common “natural” things and the PC admitted he had never heard of them. My faith in and trust of him and others has diminished big time.
        PC doctors approved of refills on my Cipro for 31 years and never once tried to warn me of any consequences.
        Now that I am floxed and know it. I know better but it is too late.

        • Dion Schwulst September 2, 2018 at 2:29 pm

          So hear you out here! This so sucks!

          I have given up on being ‘fixed’ for the time being and just running with what it is the best I can. Life is still happening and one cannot go backwards, sadly. 😦

  27. […] Warning Signs of Fluoroquinolone Toxicity | Floxie Hope […]

  28. Dion Schwulst September 2, 2018 at 2:32 pm Reply

    I so hear you on all of this. FQ poisoning sucks!

    Given up in getting ‘fixed’ and just rolling with it for now. Life goes on too quickly, sadly. I so miss the old me. 😦

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.

%d bloggers like this: