The Quinolone Vigilance Foundation (QVF)

QVF_logo_high_res

There is a non-profit, charitable foundation devoted to funding research and raising awareness about the dangers of fluoroquinolones and fluoroquinolone toxixity.  It is called The Quinolone Vigilance Foundation (the QVF) –  www.saferpills.org.

Following is some information about the QVF:

History and Purpose

The QVF was founded by 4 floxies in 2009. Their goals were to review the existing scientific literature that addressed adverse reactions to fluoroquinolones, recruit and network medical researchers, and stimulate new research into fluoroquinolone toxicity.  It became apparent that a national non-profit was necessary to establish the professional credibility of the QVF and so that the QVF could act as a vehicle to raise the funds needed to drive scientific research.  The QVF exists to stimulate and fund university-level peer-reviewed research that will inform the medical community about severe adverse reactions to quinolones/fluoroquinolones.

Since April, 2012, the QVF has been registered as a charitable organization, it has received its EIN from the IRS, registered with the State of New Jersey (where the QVF is headquartered), registered with the proper federal agencies, and written up and filed Articles of Incorporation.  In April 2013, the QVF filed for 501(c)(3) status with the Internal Revenue Service, where its status as of 01/29/14 is pending.  The QVF can operate as a non-profit while its 501(c)(3) status is pending.   It is anticipated that receipt of the QVF’s 501(c)(3) status will be received in 2014.

While the QVF does do advocacy, the main focus of the foundation is research.  When research contracts are entered into by the QVF, the QVF officers sign confidentiality agreements, which note that the research cannot be discussed publically.  For this reason, much of what the QVF does is behind closed doors.  The officers of the QVF ask for understanding among floxies in realizing that even though much of what goes on in the QVF cannot be public, much is going on.  Per Rachel Brummert, Executive Director for the QVF:

“My day includes talking to the medical community, soliciting other major universities to do studies, reaching out to other agencies, making phone calls and doing e-mails.  We give up our weekends, evenings, holidays, etc. to do our jobs, and we do not get paid for what we do.  In everything we do, we keep in mind that the floxie community relies on us, and we are passionate about what we do for that very reason.  We understand that it is frustrating that we cannot share more about what we do. We share that frustration, however, we do it to protect the community and the people we work closely with. Unfortunately, research is slow, and expensive. We are fully committed to doing what is necessary to fully fund the studies we initiate so that we can answer the questions of “why did this happen” and “how can we fix it”. The floxie community deserves those answers.”

As a research organization, QVF’s mission is to:

•    Network medical professionals and researchers regarding adverse reactions to quinolone antibiotics.

•    Foster, initiate, and direct fundamental research to discover underlying toxicity mechanisms.

•    Fund research that will produce the most promising results.

•    Translate new discoveries into effective medical practices and therapies to help alleviate individual suffering.

•    Develop and apply discovered knowledge to educate the medical community and inform best practices for public health.

 

Information about some of the research that the QVF is involved in can be found through the following links:

Rochester Study: http://www.saferpills.org/analysis-of-fluoroquinolone-toxicity-in-the-central-nervous-system-cns/

Dr. Mark Noble site: http://www.urmc.rochester.edu/people/23095977-mark-david-noble

UCSD Study: http://www.fqstudy.info/Fluoroquinolone_Effects_Study/Welcome.html

Dr. Beatrice A. Golomb’s C.V.: http://www.fqstudy.info/Fluoroquinolone_Effects_Study/About_Dr._Golomb.html

 

Advocacy and Outreach

Though the QVF is primarily focused on research, some advocacy and outreach activities have been conducted.

In November, 2012, the QVF partnered with another foundation to do a 5k walk/run, where awareness materials such as rack cards, wrist bands, awareness cards, etc. were distributed.

In November, 2013, Matt Sorrell, husband of QVF Treasurer Christina Mathos-Sorrell, ran the NYC marathon on behalf of the QVF.  Matt was able to raise money for the QVF and increase awareness about fluoroquinolone toxicity through running the marathon and collecting donations.

In December, 2013, The QVF did an online auction, put together by Executive Director Rachel Brummert and QVF fundraising director Michelle Fewer.

The QVF plans to hold the events listed above annually, and discussions are being conducted about other ways to raise funds.

TheQVF also sells merchandise.  The QVF store can be found at www.cafepress.com/quinvigil.

 

QVF Staff/Volunteers

The founders of QVF reached out to fellow victims of fluoroquinolone toxicity to establish a presence in the online community. The board of directors was created, and ambassadors/advocates from all over the world began volunteering to help. Currently, the QVF is an international organization represented in six countries: the United States, Canada, Ireland, the United Kingdom, Belgium, and Australia.

The current volunteer staff positions are as follows:

Board

Rachel Brummert – Executive Director and President of QVF

Matthew Arnold – Vice President

Alice Broussard – Corporate Secretary

Christina Manthos -Sorrell- Treasurer

Michelle Fewer – Fundraising Director

Dr. Deanna Minkler – General Board Member

 

Non-board

Donna Schutz- Ambassador Coordinator

Lisa Bloomquist – Communications Director

Lori Boz- Consultant

 

More information about the QVF can be found on www.saferpills.org.

 

flu tox get help you need banner click lisa

 

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9 thoughts on “The Quinolone Vigilance Foundation (QVF)

  1. Mark A Girard January 29, 2014 at 3:02 pm Reply

    FANTASTIC! This is what I was hoping to see, or striving to accomplish while I was there, but for whatever reasons was not able to accomplish. My niche is with the many different Facebook groups for victims, their supporters and loved ones and for anyone who is curious about what FQ’s are, what they do to people and steps to take towards healing.

    Here are some links:

    Fluoroquinolone Toxicity Group is the busiest of the bunch (only for victims/family/etc.)

    https://www.facebook.com/groups/46690244194/

    Fluoroquinolone Research & Discussion Group (anyone can join)

    https://www.facebook.com/groups/115966251889165/

    The Fluoroquinolone Wall of Pain, a collection of our stories (anyone can read them)

    https://www.facebook.com/pages/The-Fluoroquinolone-Wall-of-Pain/209182505773463

    There are many other groups as well with new ones forming all the time for many different reasons including small regional groups, groups that focus on a specific problem, or groups that arise simply because the biggest groups are so busy and overwhelming at times.

    Thanks so much for all you are doing! I look forward to working closely with you to share information and to make as many people as possible aware of the good things you are making happen!

    Mark Girard

    • Lisa Bloomquist January 29, 2014 at 3:09 pm Reply

      Mark, you are excellent at your niche – providing support and friendship to the community of Floxies. You, and your work, are very much appreciated! You set the tone for the facebook groups and it is a tone of support, helpfulness and, most importantly, love. You are doing good things. Your work is important and it is appreciated! Thank you!

  2. Rachel Brummert January 30, 2014 at 8:10 pm Reply

    On behalf of QVF, thank you for this article Lisa. We are very proud of the work we do and we have grown tremendously. We have a great, solid team and we are honored and pleased to have you on it. You’re doing a great job! We’re working on rebuilding and adding new programs, more information to put on our website, awareness and advocacy, fundraising for ongoing and new research projects, and other exciting things in the works. Thank you for all you do for us.

    • Lisa Bloomquist January 30, 2014 at 8:20 pm Reply

      Thank you for your kind words, Rachel! I appreciate all that you and the QVF have done and I look forward to working with you!

  3. rabbithorns January 31, 2014 at 12:52 am Reply

    My 25 yo son was crippled by Cipro almost a year ago. He told me of a head of pharmacology department in Indiana, maybe Univ. of Indiana(?) who has been trying to get funding for research for years to no avail. He was the only person who helped my son at first. Are you familiar with him? I don’t have a name. I’m also living in Australia and looking for possible research already done outside the US. Is anyone familiar with any done other than the US? Thanks.

    • Lisa Bloomquist January 31, 2014 at 11:29 am Reply

      I believe that Dr. Flockhart is the doctor that you are referring to. Several floxies have consulted with Dr. Flockhart. If you, or your son, want to inquire about him, or anything else, the people in the facebook support groups are very helpful. Here is a link to the biggest group – https://www.facebook.com/groups/46690244194/

      I am so sorry about your son’s pain! Please let me know if there is anything that I can do to be of assistance.

      Best regards,
      Lisa

  4. Rachel Brummert January 31, 2014 at 11:14 am Reply

    Quinolone Vigilance Foundation can look into that ‘rabbithorns’. If you could send me any information you have, we would be happy to look into it and see if we can work with them. My e-mail is rachel@saferpills.org.

    I am very sorry to hear that this happened to your son.

  5. Donna Schutz February 1, 2014 at 6:08 am Reply

    As QVF Ambassador Coordinator ,i would like to say a big Thankyou to Lisa for this great article.
    in the past few weeks the Ambassador program has been revamped and working well with a good number of Ambassadors ,volunteering their time helping Victims and Educating the Medical profession.and promoting by spreading awareness about QVF. if you have taken a Fluoroquinolone and are suffering from the adverse reactions you can contact me on qvfdonnaschutz@outlook.com and i can help support you and put you in contact with your closest state Ambassador .

    Donna Schutz.
    QVF Ambassador Coordinator and
    Ambassador for Sth Australia and Georgia USA .

  6. […] popular antibiotic killed her husband” aired and was shared more than 135k times on social media. The Quinolone Vigilance Foundation (QVF) works with scientists researching fluoroquinolones. Many people have written letters to their […]

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