Thanks for the Fluoroquinolone Toxicity Rally!

many-thanks

The second annual Fluoroquinolone Toxicity Awareness Rally occurred on May 8th and 9th, 2014. A group of people went to Washington D.C. to stand up and say, “I was poisoned by a fluoroquinolone antibiotic and IT IS NOT OKAY.” We gave that message to our congressional representatives and anyone else who would listen. People listened. They heard what we had to say and they responded with empathy and compassion. Many people shared their own stories of harm done to them by fluoroquinolones with us. We connected with people. We warned people. We tried to make a step toward changing this absurd situation of a chronic, multi-symptom illness being induced by taking an overly strong prescription antibiotic.

So many people made the rally possible that I cannot possibly list them all individually, so I will list them categorically.

Thank you to the people who organized the rally. A huge amount of work was put into organizing meetings, hotels, presentation materials, transportation, permits for the demonstration, the materials given to the congressional representatives that we met with, etc.

One of the materials presented to the congressional representatives was a book of stories of pain and suffering inflicted by fluoroquinolones. Thank you to all of the people who took the time to write their stories, and thank you to the people who organized and edited the book. A lot of hard work went into the book and it is appreciated!

Presentations were given and I am thankful to all of the people who put work into making the presentations possible. The analysis, synthesis, logistics, presentation, etc. all took time and energy and I appreciate everyone who helped with them.

Thank you to everyone who attended the rally! People flew to D.C. from all over the country and one person even came in from Canada. People who are sick spent their time, money and energy to get to D.C. in order to advocate. All of you – your efforts are greatly appreciated!

Thank you to all of the people who met with Floxies. Senators, Representatives, their aides and interns all took the time to meet with us and listen to our stories. I am grateful for their time and attention.

Thank you to the people who listened to us and engaged with us as we handed them FQ Toxicity Awareness cards as they walked by. Your openness and receptiveness are appreciated!

Everyone who was involved in the rally, either directly or indirectly, made it possible and I greatly appreciate all their efforts.

A lot of hard work went into the rally. Whether it results in change is still to be determined. Whether or not the rally was a success is to be determined – assuming that you base success on outputs (change) not inputs (time, money, effort spent).

In order for change to come about, the ball has to start rolling somewhere. All of the effort that was put into the rally may result in change. I hope so. It certainly resulted in some lessons learned. We will get more and more effective as time goes on. Maybe someday legislation will be enacted that stops this absurd situation from occurring. I hope that the ball is rolling in that direction.

Thank you for reading Floxie Hope!  I hope that all who read Floxie Hope gain insight, support, understanding and, most of all, HOPE.  If you would like to support Floxie Hope, all contributions will be greatly appreciated!  Click HERE to contribute to Floxie Hope.  Thank you!

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3 thoughts on “Thanks for the Fluoroquinolone Toxicity Rally!

  1. Jan Bush May 12, 2014 at 2:48 pm Reply

    Even though the ball rolls slowly, it is heading in the right direction. Good work, Lisa and fellow floxies and advocates!

  2. Lois Deisher May 13, 2014 at 12:13 pm Reply

    Thank you Lisa! You do amazing dedicated hard work for all of us to hopefully stop this horrible situation. Everyone write your representatives!

    Lois Deisher

  3. Boo Radly May 15, 2014 at 7:55 pm Reply

    Read the next entry if you want to experience a neck breaking 180 degree change…..

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