Keep Banging that Drum

I wrote a post last night that I was frustrated with upon completion. It’s not that it isn’t good. It is good, and it will be published – probably next week – on Hormones Matter. It’s that I was saying a lot of the same stuff that I’ve said before – Fluoroquinolones are dangerous drugs that damage mitochondria, lead to massive amounts of oxidative stress and contribute to all sorts of multi-symptom, chronic, mysterious diseases. I’ve said it before. I’ve said it in multiple ways. I’ve been as loud and as clear as I can be.

I was annoyed with myself because I don’t particularly want to be repetitive.

I wonder though, other than annoying myself, is repetition really a problem? For most people, it takes multiple times of hearing a message for it to sink in.

The first time they hear about the dangers of fluoroquinolones they resist the message. They think something along the lines of, “What are you talking about???? Antibiotics don’t do that. There’s no way cipro, levaquin or avelox hurts people like that. You must be mistaken.”

The second time they hear about the dangers of fluoroquinolones they start to make sense of what you are telling them. They think something along the lines of, “I’ve heard about how destruction of the microbiome wreaks havoc on many areas of human health – does that have anything to do with this?”

The third time they hear it, they may start to make a connection between what you say and something that they’ve seen or heard. They may think or say something like, “My friend’s son had something similar happen to him, I wonder if he’s taken one of those drugs.”

The fourth time they hear it, they start to understand. They may think or say something like, “Mitochondria are the energy centers of cells. OF COURSE when you damage mitochondria with fluoroquinolones the result is a shut-down of multiple bodily systems and chronic disease. And did you know that mitochondria are ancient descendents of bacteria? The damage done to human mitochondria is the same as the damage done to bacteria – it totally makes sense!”

The fifth time they hear it, they think that fluoroquinolone toxicity is common knowledge and common sense. They say things like, “Everyone knows that ciprofloxacin is a dangerous drug that should only be used in life or death situations.” Or, “Mito-toxic drugs are leading to all sorts of chronic illnesses – I wouldn’t touch a fluoroquinolone with a ten-foot pole.”

At that point, you can consider them to be won over.

Changing minds. Informing people. Changing the world. Those things are what all this screaming is about. I don’t spend 40+ hours per week researching and writing about the dangers of fluoroquinolones because I don’t have anything else going on in my life (I do have a job, a few hobbies and friends). I spend time and energy working on this BECAUSE IT’S IMPORTANT! People are being needlessly hurt by these drugs that have been shown, over and over again, to be damaging to human cells. It’s something that is worth screaming about. So I’ll scream, over and over again, until people hear me.

To change the world, perhaps a bit of repetition is needed. Annoying myself is a necessary sacrifice. I’m pretty sure I can do that.

Help in spreading the word about how dangerous fluoroquinolones – cipro/ciprofloxacin, levaquin/levofloxacin, avelox/moxifloxacin, floxin/ofloxacin – are, is greatly appreciated! I know that it feels like your friends and family members think that you’re a kook when they’re in the phase of disbelief and resistance. But if you keep letting them know about how dangerous fluoroquinolones are, and how cipro, levaquin and/or avelox hurt you, eventually they’ll come around. Eventually they’ll believe you. Because you’re telling the truth. You have plenty of scientific studies on your side.

Keep screaming. I’ll keep writing. Eventually, we will get this changed.

Never doubt that a small group of committed people can change the world. Indeed it is the only thing that ever has.”—Margaret Mead


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17 thoughts on “Keep Banging that Drum

  1. Ms. A September 23, 2014 at 3:12 pm Reply

    Lisa, if I had your brain, I’d scream even louder than I’m screaming now. I hope to someday be able to put together more coherent posts, even if people get sick of hearing it. Praying that day comes sooner, rather than later. Bless you for all you do!

    • Lisa Bloomquist September 23, 2014 at 7:19 pm Reply

      Thank you, Ms. A! I hope that you get all of your writing mojo back soon too!

  2. Ruth Young September 23, 2014 at 3:21 pm Reply

    I stopped at a pharmacy to pick up some Floragen and Epsom salt, and I mentioned to the pharmacist there that I had had a bad reaction to Cipro. He didn’t believe me at first that I could have had anything more than a rash or a stomach ache from it. (Those things were the tip of the iceberg!) When he finally grudgingly acknowledged that I really could have had nearly every side effect listed and a few that aren’t he had to give me the usual line about how Cipro is very safe and what happened to me is rare.

    How is a drug with two boxed warnings from the FDA very safe? How is a drug that had multiples of its fellows pulled from the market because of problems very safe? Why the fight to protect these dangerous and harmful drugs?

    I think they all need to be pulled. There are fates worse than death. The psychological effects of a very severe ADR to an FQ are simply too horrible for the human mind to bear. As one Floxie put it, “If I were a dog I’d be put down.” If someone has a severe reaction there is absolutely no help for him or her. None, but to ride it out and hope that the acute phase doesn’t last.

    Of course, there are some things that help, that might even be close to a cure, but doctors don’t know about them. They just stand there repeating the mantra that Cipro is very safe while their patient suffers unimaginable torment.

    If there is a cure I think it might be MitoQ, magnesium threonate and any other supplements that target the mitochondria. My reaction was horribly severe initially, but I think I’m close to 100%. (Hard to tell– I have a nasty cold and I can’t tell what’s a Floxie symptom and what’s the virus right now.) Why was I lucky? It wasn’t just magnesium. Everybody does that. I think it was the MitoQ.

    When medical science can cure being floxed 100% of the time, then maybe they can use FQ’s. Until then I say no way.

    • Lisa Bloomquist September 23, 2014 at 7:28 pm Reply

      It truly boggles my mind that pharmacists and doctors don’t know how dangerous these drugs are. Aren’t they supposed to learn about this in school??? The warning label – almost all of the symptoms of FQ toxicity are RIGHT THERE on the warning label. Do they think that the labels are jokes? It’s bizarre when they’re in the early denial stage. I think that it’s to protect their egos. It’s hard to admit that drugs that you give out are harming people. No one wants to think that of themselves. So they refuse to admit it. Anyhow…. a post on that topic is coming.

      Whenever people ask about mitochondrial support supplements, I always refer them to your story, Ruth. You are definitely the expert.

      The article that noted that diabetes rates track with fluoroquinolone rates – and made me think that even more chronic diseases than I had originally thought are connected to fluoroquinolones. Maybe you’re right. Maybe they should just be banned until we know how to fix those diseases, and fix cells (especially the mitochondria). If rates of all sorts of chronic diseases went down along with decreasing FQ Rx rates, well, that would be compelling. We shall see if the experiment is ever done.

  3. Pauline September 23, 2014 at 3:27 pm Reply

    Lisa, you are just brilliant. I’m a professional writer AND my life was permanently hijacked by taking Cipro… yet still, I could not do such a fine job of expression as you are doing. You’re just a wonderful gift to our community (of floxies). Thank you for your dedication to the cause of enlightenment. You are making a real difference and we need your voice desperately. Thank you.

    • Lisa Bloomquist September 23, 2014 at 7:36 pm Reply

      Thank you so much, Pauline! That really means a lot to me! I wish that I had found my voice as a writer in a way that was less painful and traumatic, but I am strangely thankful that I found my voice at all. Fluoroquinolones steal too many people’s voices – their confidence, their ability to think, their ability to communicate, etc. I gained those things back and I now appreciate them. I figure I should use them. 🙂

  4. Brian September 23, 2014 at 7:41 pm Reply

    I hope you realize you much you are appreciated Lisa.

    • Brian September 23, 2014 at 7:42 pm Reply

      Ummm… That was supposed to read “…how much you are appreciated…”

      • Lisa Bloomquist September 23, 2014 at 7:46 pm Reply

        Thank you so much, Brian! 🙂 🙂 That means a lot to me!

  5. Marie September 24, 2014 at 12:38 am Reply

    Thanks from Sweden

    Thanks Lisa – your texts are always interesting and informative.

    A frirend of mine was given Cipro (2004-2005) and became confused.

    He had other medications as well so it was difficult to understand what was happening to him. Since then I have learnt that he also had medications that could interact and make side effects more likely and worse (cortisone, anti-inflammatory etc.).

    I started to look for information and was very surprised when I found people in America who called themselves floxies. I also discovered Stephen Fried´s book – Bitter Pills.

    When X left the infectious ward, I gave the book to a nurse and told her to pass it on to the doctors. I doub´t anyone has read it.

    Now, 10 years later, I am thinking of writing a letter to remind them of the book and will enclose your article.

    . .

    • Lisa Bloomquist September 24, 2014 at 7:13 am Reply

      Thank you for all that you do, Marie! Please feel free to include anything that I have written in the book. The more people who are writing about this, the better.

  6. tepidarium September 24, 2014 at 8:06 pm Reply

    I tell everyone I meet about my floxxing and how it has changed my life. Very few doubt me. They see the effects. I think there is more awareness. I have even met doctors who say they’d never prescribe it. It just goes to show that we can raise awareness. But, it has to happen bit by bit. There’s a lot of work to be done.

    • Lisa Bloomquist September 25, 2014 at 8:45 am Reply

      I wish that everything had a “like” button. I think that everything that you wrote in this comment is awesome! Yep, there’s a lot of work to be done, but how do you do it? One step at a time and one mind at a time.

  7. Marie September 24, 2014 at 10:41 pm Reply

    C i p r o

    My daughter´s best friend had some problems with her stomach during the summer.
    It was not the first time. She was x-rayed 3 years ago and they found some diverticulities (hope it`s the correct word).

    During this summer I visited my daugther who lives in a different part of Sweden.
    Then her friend X phoned and complained that she had stomach problems again.
    I heard the word Cipro and told my daughter to tell X that it could cause serious problems and that she should ask if there was a less risky medication.
    But X had already began the treatment.
    They both laughed at my warnings (they had heard them during the years……)

    The next day X phoned again.
    She was feeling terrible, She had pains/cramps in her legs, knees, shoulders and she could hardly walk. My daughter told her to go to the Emergency Room at once.
    The staff could not understand what was wrong with her. Several doctors were involved.

    Because I had talked about the package insert, she read it and suggested to the medical staff that maybe it could be a reaction to the Cipro. They didn´t think so, but changed their minds when she read it loud. The medication was stopped, immediately, and when I saw her a few days later she had improved, but not fully.

    Earlier on, my daughter had told me that X had suffered from one health issue after the other during the past years. It was just too much.
    I suggested that she should tell X to get hold of her medical records in order to investigate what medications/antibiotics she had received earlier on. There might be a connection.

    X should also avoid Cipro – and its relatives – if it was not absolutely necessary, a matter of life and death.

    • Lisa Bloomquist September 25, 2014 at 8:51 am Reply

      Good job, Marie! It’s not the kind of “I told you so” that you want to give – because it means that someone got hurt. But still, these drugs are dangerous, and people should know how dangerous they are. It’s often difficult to make the connections between the cause – the fluoroquinolones – and the effects – multiple strange symptoms. But once it is understood that fluoroquinolones damage mitochondria, the delayed reactions, tolerance thresholds and systemic symptoms make sense.

      I hope that your daughter’s friend gets well soon! And knowledge truly is power.

      Best regards,

  8. john wilkinson August 17, 2015 at 7:43 am Reply

    Lisa I just want to say two things, 1. You are much appreciated. 2. I wish you lived in England.

  9. Barbara March 6, 2016 at 2:58 am Reply

    Hey John wilkinson, I second the appreciation, and I wish Lisa lived in Spain. After 17 months with every test possible, except the one I really want “an MRI” which the medical profession here wont give me as “there is no justification” I have finally found a rehabilitation specialist who has LISTENED to me and is investigating what I have told her about cipro. She found no reflex action in my leg that had a torn tendon not long after being floxed. The difficulty I have here is the language barrier, which causes me so much frustration. I am doing my best to spread the word. Although my local pharmacist is in agreement with me, he told me that he is prescibing about 35 prescriptions of fluoroquinolone’s a month, multyply that with all the other pharmacies in Spain how many people are suffering out there and don’t know or suspect the connection with fluroqjinolones. It’s frightening.
    Lisa I understand what you mean by repeating yourself I do it all the time, but your so right it’s the only way to get change.
    You are an amazing person and so intelligent, I wish I had half your brain and energy. Thankyou so much for all you do xx

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