Pelvic Pain

Pelvic Pain and Ciprofloxacin

I’m going through a rough period health-wise.  I am not going to say that it’s a relapse of my FQ toxicity symptoms, because it may not be related to my floxing.  But I am going to say that I am in a lot of pain right now and I’m struggling.

I’ve been experiencing pelvic (toward the back door) pain for a while.  It started a few months ago but it was on and off and I was able to ignore it.  A few weeks ago it got so bad that it kept me up all night for a few nights.  Then, a week ago, it became constant.  Constant, horrible, tightness and spasming in my pelvis.  It’s excruciating.  Truly, it’s the most horrible pain I’ve ever experienced.  On a 1 to 10 pain scale, I’ll give the pain a 9.  I’ve never felt pain this horrible, but I’ve never passed a kidney stone or gotten severely burned, so I’ll reserve a 10 for those things.  It’s consuming pain though and it really, really, really sucks.

I am pretty sure that the cause of my pain is Levator Ani Syndrome.  Basically, it’s a spasming of the deep muscles in my pelvis.  All of my symptoms fit Levator Ani Syndrome.  My doctor is checking me for other possibilities, but because Levator Ani Syndrome is a diagnosis of elimination I suspect that she won’t find anything wrong with me.  (I hope there is nothing else wrong.  If this is a sign of colon cancer, or even IBS, both of those are very bad things.)

My pain may or may not have anything to do with fluoroquinolone toxicity.  It may be caused by neuropathy of my pudendal nerve, in which case, it may be caused by getting floxed 3 years ago.  But it also may be caused by something that has nothing to do with FQ toxicity – like maybe I was doing Pilates wrong and it caused tension and cramping in those muscles.  The causes of Levator Ani Syndrome, and most other causes of pelvic pain, are unknown, so it’s impossible to tell whether or not the pain that I’m in has to do with the damage that Cipro did to me.

I was fine.  I truly was fine.  I was doing really well and living a normal life.  This is a bit of a set-back and I’m feeling pretty lousy about it.

This really sucks.  Pain sucks.  There is nothing okay about constant, horrible pain in my pelvis.

I’m hoping that chiropractic, acupuncture, neurosculpting and mind-body alignment therapy will heal me and get rid of this pain entirely.  I’ve just started each of those things.  I really, really, really hope they help.

Until I can go through some sessions of chiropractic, acupuncture, neurosculpting and mind-body alignment therapy, I’ve had to figure out how to deal with the pain.  The following things have helped me through the pain:

1.  Kratom – This painkilling herb has been a life-saver.  It gets rid of my pain better than vicodin but without any side-effects.  I hate vicodin and other prescription painkillers.  Kratom has been wonderful and I am sorry for ever doubting its greatness.

2.  Corydalis – Corydalis isn’t as strong of a painkiller as kratom, but it has still helped immensely.  It’s on par with the OTC painkillers like ibuprofen and tylenol, but without some of the nasty effects of those drugs.

3.  Kava – I’m in a horrible cycle of pain-tension-anxiety-pain-tension-anxiety that spirals and makes every one of those things worse.  Kava helps to break that cycle.  It has been a life-saver.

4.  Sitting on a tennis ball – It helps to relax the muscles that are spasming.  It’s uncomfortable, but discomfort is better than pain.

5.  Massage – All of the muscles in my lower body have tensed up.  Getting a massage helped.

6.  Breathing exercises – Breathing deeply, into my pelvis, has helped.

7.  Cannabis based pain lotion – The lotion that I got is pretty low in both CBD and THC, but rubbing it on the affected area seems to help none-the-less.

8.  Hot baths – With epsom salt – they help.

I’ve tried tart cherry juice, herbal muscle relaxers, meditation and a few other things too.  They are good in their own right, but they haven’t been able to touch the pain that I’m currently dealing with.

Other than sitting on a tennis ball, the things that have helped me through this painful time may be able to help others through pain.  People have asked me what to do about pain and I’ve always said, “drink tart cherry juice and meditate.”  Now I know that sometimes that doesn’t cut it.  My pain was severe (and still is).  Painkilling herbs have helped.  I’m not a doctor and everyone’s situation is different, but kratom, corydalis, kava and the other things listed sure helped me a lot.

I don’t know how I would have gotten through this last week, or faced this next week, without kratom, kava and corydalis.  I am thankful for them.  But I don’t want to be on them long-term.  I want this pain to just go away.  I’m hoping that my multi-pronged alt-therapy approach helps.  It has to.  This current situation is not okay.

If anyone has any other suggestions as to how to get through this, I’d love to hear them.

And to all those who can empathize with my pain – I’m so sorry!  It sucks.  I hope that you find relief!

I hope that I can get through this quickly and get back to being hopeful, well and fully recovered.

 

flu tox get help you need banner click lisa

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68 thoughts on “Pelvic Pain

  1. Rose Casanova March 7, 2015 at 9:10 am Reply

    Lisa,
    I am so sorry you’re going through this. I am very familiar with pelvic pain. I had PID many years ago and was treated with 2 weeks of IV antibiotics. I swear it never truly went away and I would periodically go through times where the only thing that helped was an icepack on my pelvic area. When I was floxed it seemed like there was a flare-up of the PID. There were days when my pelvic area was in excruciating pain, just thinking about it is bringing up ghost pains. I hope you can resolve this issue, and in the meantime I wish you felt better.

    • Lisa Bloomquist March 7, 2015 at 12:27 pm Reply

      Thank you so much for the sympathy and support, Rose! I’m so sorry about the empathy! It’s really brutal. Ice packs have helped me too. xoxoxo

  2. Ian Harvey March 7, 2015 at 9:14 am Reply

    Hello Lisa,
    I am sorry to hear about this!
    In addition to the “normal” lower leg and biceps tendon in shoulder pain associated with being floxed I have had some crazy ones that I also attribute to levaquin.
    However, there are also issues indirectly caused by having had been floxed. I am not nearly as active as I used to be (because my tendons won’t let me). This means my life is somewhat sedentary meaning I sit and lie a lot creating back problems etc.
    Anyway, I have had sciatica for 6 years now in addition to tight and sometimes spasming pirifirmis and glute medius. This then causes back problems etc.
    in general I can say that my tendons and joints (vertebrae too) are easily strained (massive neck problems due computer and phone work – never would have happened a couple of years ago)
    Anyway, I empathize with you and hope that you can figure it out. If the tennis ball helps (I use a lacrosse ball), I think there is hope for immediate relief (not recovery perhaps but relief). I take a hot bath and then do ball and roller work which helps both shirt term and, with regular use, long term.
    You are so informed, I doubt any if this is helpful except for me to say, I understand and feel for you.
    Hang in there!
    Ian

    • Lisa Bloomquist March 7, 2015 at 12:34 pm Reply

      Thank you for the kind message of support, Ian! I’ve been dealing with some sciatica as well. It comes and goes, but you never know, maybe it’s what set this pelvic pain off. My sciatica is likely from sitting too much. Desk jobs aren’t good for anyone. I miss the healing I got from being as active as I was before I got floxed. I have been more active than the average American in the years after I got floxed, but I certainly don’t exercise like I used to. I sit too much and it’s not good. Now that it’s painful to sit, I’ll take the pain as a message that I should sit less. Maybe I’ll get a standing desk or something. TBD. Hot baths are helping me too. I’ll roll out the muscles too. Thank you again for your kind words and advice!

  3. Troy Fichter March 7, 2015 at 9:21 am Reply

    Hi Lisa,
    I have had that pain about once a month since being floxed. Sometimes more sometimes less. My doctor told me it was “proctalgia fugax” and not related to being floxed. It happens mostly at night sometimes day. He told me the best thing is do is relax and maybe massage the muscles. Hang in there and God bless.
    Troy

    • Lisa Bloomquist March 7, 2015 at 12:36 pm Reply

      Thanks, Troy! What I’m going through could be proctalgia fugax too. I believe that there isn’t much difference between levator ani syndrome and proctalgia fugax. Both involve muscle/nerve pain in the pelvis that is just brutal. Thanks for passing on the advice that your doc gave you! Massage does seem to help. Relaxing is easier said than done, but I’ll do my best.

  4. Charles tooraen March 7, 2015 at 9:32 am Reply

    Hope you feel better soon! . 🙂 sounds a bit like cpps.

    • Lisa Bloomquist March 7, 2015 at 12:39 pm Reply

      Thank you, Charles! I hope that I feel better soon too! I’m working on it. Chronic pain = no bueno. I hope that it’s transient.

  5. Staveren March 7, 2015 at 9:51 am Reply

    I am so so sorry for you Lisa. Hope you will have a quick healing! Don’t forget you got better from floxing. I think a floxie can truly overcome anything! Hugs, XX

    • Lisa Bloomquist March 7, 2015 at 12:42 pm Reply

      Thank you! I’m trying to tell myself the things that I tell our floxie friends – it will get better, it will pass, breathe, etc. I hope that it does get better. It will. Floxing did. This will too. Hugs!

  6. Peggy Rolfes March 7, 2015 at 10:07 am Reply

    So sorry to hear of your recent setback. I would urge you to try weekly massage. Before being floxed, I suffered from recurring back spasms which were extremely painful. In fact, once the spasms would set in, they would be nearly impossible to release unless I took a strong narcotic & xanax “cocktail”–dangerous stuff. After the floxing, my back was the least of my worries! Having said that, what I have found to be true for me over the last three years is that having massage on a regular basis has taught my back (and other body parts) how to relax again. It is rare for me to resort to the “cocktail” because the massage, over time, has really allowed me to relax in a way that I had long since forgotten. Since you are in an acute stage of pain these days, additional emphasis on massage may just help your muscles to re-learn relaxation. You do so much for others and I am just really, really sorry to hear of this most recent challenge. Sending healing thoughts your way!

    • Lisa Bloomquist March 7, 2015 at 12:49 pm Reply

      Thank you, Peggy! I think that getting regular massages will help and I plan on getting them, for sure! The tension in my pelvic muscles tightens my hips, which tightens my glutes, which tightens my legs and lower back and I end up a tense mess without help. Getting massages has definitely helped to stop that cycle. I think that anything that will help me to relax will help. And hopefully loosening the muscles that can be massaged at a Massage Envy will help to loosen my pelvic muscles. If I get desperate I’ll look into internal massage too. I hear really good things about it, but there is some discomfort involved in the process, to say the least.

      Thanks for the healing thoughts! Back at ya!

  7. Melanie kemp March 7, 2015 at 10:13 am Reply

    Lisa
    I’m so sorry to hear about you’re pain. I hope it’s not a relapse and more of a “just because”
    I was 3.5 yrs out doing great when my relapse hit. Just never thought I’d ever be in this place again. I felt like I was improving until last week I tried magnesium flakes. It’s really set me back.
    I will be praying for you Lisa. That it has nothing to do with fqs and you’re pain will pass soon.xxxxxx hugs

    • Lisa Bloomquist March 7, 2015 at 12:53 pm Reply

      Thank you, Melanie! I hope that it’s not a relapse too! I don’t have other floxing symptoms right now, so I’m hopeful that it’s just a pelvic issue.

      I feel like there’s a certain amount of PTSD that comes up with any illness post-flox. It’s like I’m bracing myself for another year of feeling lousy after a week of pain. I probably shouldn’t think like that.

      I hope that you feel better and hugs back at ya!

      • Melanie kemp March 7, 2015 at 3:29 pm Reply

        Definitely PTSD.. how can we not. But everything isn’t because of floxing . It’s just life. It’s just we get stressed because we know it can get bad. So just think of it as a “just because” ♡♡♡

  8. Emily March 7, 2015 at 10:29 am Reply

    I had bad pelvic pain with my pregnancy for a few weeks. I was resolved to wait it out since the Internet said there was not too much to do. However, I bought a big pregnancy body pillow and started sleeping with it between my legs. The pain that kept me from walking normally to the kitchen went away in two days. I had already slept with a pillow prior to this, but I’m guessing it wasn’t big enough.

    I imagine your pain is very different, and certainly from a different cause. But maybe try sleeping with two pillows between your legs for a couple nights. You never know.

    • Lisa Bloomquist March 7, 2015 at 12:58 pm Reply

      Thanks, Emily! I’ll try that! I had been sleeping with a pillow between my knees but then I stopped when this got bad thinking that maybe the pillow between my knees had triggered the pain. Maybe I went the wrong direction with that thinking though and I actually needed a bigger pillow. I’ll give it a try, for sure.

      Speaking of pregnancy pelvic pain, my doc ran a pregnancy test on me when I came in with this pain. My boyfriend has a vasectomy and I was on my period at the time so the chances of me being pregnant are aproximately zero, but apparently pregnancy is the first thing that is thought of when women come in with pelvic pain. I’m glad that your pelvis is feeling better and congrats again on the baby!

      • Emily March 7, 2015 at 6:19 pm Reply

        My bolster has my leg at what is essentially a 90 degree angle. Hope that (or something) helps you soon!

  9. Linda March 7, 2015 at 10:32 am Reply

    Lisa, I just read your post …I am so sorry you are experiencing such pelvic pain…Hopefully you will find some answers as to why, and some of the treatments you mentioned will help you to heal…Thank you for sharing your tips on what you were doing and what you have found helpful for your pain….I am glad to hear you were able to get some pain relief from Kratom…It also continues to help me a lot more than other things I have tried, and for that I am grateful…I hope you start feeling better and soon on the healing road to a full recovery…..

    • Lisa Bloomquist March 7, 2015 at 12:59 pm Reply

      Thank you, Linda! I appreciate your kind words and support! I’m so glad that kratom has helped you too! I’m really thankful that you and several other floxies mentioned kratom to me before this happened. It truly has been a life-saver.

  10. rene March 7, 2015 at 12:42 pm Reply

    Dear Lisa,
    Very sorry to hear that you have been enduring this pain. I realize that this suggestion may appear futile but I sincerely think you should take a “Magnesium Chloride Bath”. The bath flakes (not magnesium sulfate, as it will not absorb as well as the chloride” Pain and inflammation are often the absence of adequate intracellular magnesium needs. Oral supplementation will not address those needs either. I have posted a lot about this lately, and you may not have read those…but in case you have not….Ancient Minerals is the brand that I have used successfully, it is free from heavy metals, pure, and they also have Magnesium Oil which is more concentrated, for topical trans dermal use as well. It is very easy to become deficient in magnesium if not receiving daily replenishment. The area that are an issue in our bodies will become very evident when the deficiency exist. You have nothing to lose and much to gain by replenishing this mineral. The pain/anxiety….stress cycle also speaks to the low intracellular magnesium. The nervous system, ATP energy of in the cells, calcium calcifies without adequate magnesium all over the place. There are literally so many processes and enzymes that are reliant on this mineral….and we all know how these drugs have effected magnesium…..the most recent studies show that magnesium is tied to 700 processes in the body. Significant player in the electrical system.

    Ancient Minerals is great for buying the flakes, and oil…..I eventually made my own spray which has been a Godsend. When i had stopped using it….eventually I did worsen after several months and did not see the connection till a year later….and than instinctively returned to daily usage along with my oral intake of ” Natural Calm” magnesium citrate…which is also helpful….but did not and cannot address the intracellular needs.

    God Bless,
    Rene

    • Lisa Bloomquist March 7, 2015 at 1:05 pm Reply

      Thank you, Rene! I will get some magnesium flakes right away. I have actually been pouring some of the mag chloride “oil” into my epsom salt baths. Hopefully it’s getting into my system through my skin. I’ve also been taking mag citrate Natural Calm. I think that both have been helping. I had stopped being so regular with my supplements right before this pain got bad. Maybe it’s a reminder that I need to stick with them – especially the minerals – especially magnesium.

  11. Angie March 7, 2015 at 12:59 pm Reply

    Lisa, so sorry to hear this! You will get through this as well, I have no doubt. Please consider looking for someone that offers Somatics in your area. I saw a Somatics teacher for my neck and she ended up re-aligning me in all areas of my spine and hip. If you can release those muscles in that area, it may help with relief. Praying for you to get through the pain and find healing!

    • Lisa Bloomquist March 7, 2015 at 1:07 pm Reply

      Thank you, Angie! I will look up a somatics teacher, for sure! I appreciate the suggestion!

  12. Ruth Young March 7, 2015 at 1:18 pm Reply

    Lisa,
    I am so sorry to hear that you are going through this. It might not be flox related at all, but if it is, I second everything Rene said. I have always been a big believer in magnesium being the key to the whole flox thing. I know chelation of magnesium is not the only way FQ’s damage us, but if you don’t deal with the intracellular magnesium deficits nothing else can really heal, and we risk relapsing. Since you aren’t having any other flox symptoms, it should be easy to increase your magnesium intake, both topically and orally. I do think early in our floxing tolerating magnesium can be difficult, since a damaged CNS will give a paradoxical response to anything but the tiniest amount of supplemental magnesium.

    Work with a good physical therapist and push the magnesium, and I think you’ll overcome this in no time. Getting more active (as you are able) and standing more are probably not bad ideas either. If it is related to floxing at all I would guess it’s a lack of magnesium issue. In that case, it could be a blessing in disguise, because you have been alerted to something your body needs. There are many problems that can arise from intracellular magnesium deficiency.

    I know we hate it when people say it, but sometimes our aches and pains are just related to getting older. It was in my mid thirties that I noticed I would get very, very stiff in my hips if I wasn’t active enough. I was in a significant amount of pain while going through the PTA program until I got to my last clinical rotation and started pushing people in wheel chairs around a nursing home, running around getting patients, ambulating patients, demonstrating exercises, lifting people– suddenly I was pain free. I went from being in such significant pain that it was a constant distraction while trying to study, to being pain free in a matter of a weeks. I think when we’ve been very active our bodies don’t take well to being sedentary. I know I could never do a desk job.

    Hang in there,
    Ruth

    • Lisa Bloomquist March 7, 2015 at 7:03 pm Reply

      Thank you, Ruth! I have been loading up on the magnesium and I think that it’s helping. I have also been loading up on B vitamins and I started taking iron again. I had slacked off on taking supplements, thinking that I didn’t need them any more because I had recovered so much. Maybe this is a sign that I can’t do that. I need magnesium and iron in order to feel decent.

      I honestly don’t know what triggered this pain. I’m working on figuring it out so that I can get beyond it.

      This certainly is a reminder that as I get older I need to remember to stretch and take good care of myself. The pain from sitting certainly tells me that I need to sit less too.

      I’ve been meaning to re-listen to your episode of the podcast to find out what supplement you said made you feel really relaxed and stoned. Was it mag threonate?

      Hugs,
      Lisa

      • Ruth Young March 8, 2015 at 3:41 am Reply

        Lisa,
        CalmPRT, from a company called Neuroscience, is the one that makes me feel stoned. It has Rhodiola Rosea in it as well as some precursors for GABA. I read some posts by people trying to get off benzodiazepines who said Rhodiola Rosea is as good for anxiety as a benzo. It probably is, and it’s not addictive. It’s actually an adaptagen. Higher doses are better for producing that calm feeling.

        L-Theanine also makes me very mellow. It raises dopamine so it makes whatever you do after taking it seem pleasant and fun.

        • Lisa Bloomquist March 8, 2015 at 7:33 am

          Thank you! As always, you’re wonderful!

  13. Annette March 7, 2015 at 2:41 pm Reply

    I am sorry to hear you are having this issue, Lisa. I have had pains similar to what you describe since being floxed (though my pain ranges from a 5/10 – 7/10). Magnesium soaks seem to help a bit as does a bit of yoga when I can manage it. I also think short, daily walks help, too.
    I understand that you cannot necessarily connect this pain to being floxed, but seeing as it is a muscle-related issue it is hard not to. I bring on tremendous pain in my muscles when I exercise any muscle I haven’t used in a while or if I hurt myself. I am also in a great deal of pain if I “overdo” exercise (which doesn’t take much).

    I hope regardless of what is causing it, you find something that cures you of the pain and you start feeling better soon. You are in my prayers.

    • Lisa Bloomquist March 7, 2015 at 7:06 pm Reply

      Thank you so much, Annette! I’m sorry to hear of your similar pain too! Stretching and walking are certainly things that make me feel better that I need to do.

      Prayers in your direction too!

  14. Didi March 7, 2015 at 4:12 pm Reply

    Hi Lisa:
    Sorry to hear about your setback. In my mind, your pelvic pain is undoubtedly related to your floxing, in one way or another. You mentioned that you were doing pilates. I suspect that your exercise regimen, whatever it was, is as least partly the cause of your pain. I have found that doing any kind of strenuous exercise sets me back with pain for days and sometimes weeks, and I have been unable to truly maintain an exercise regimen since being floxed. My advice to you would be to be less active, to do less and to rest more. And lots and lots of soaking in hot water baths and epsom salt.
    Hang in there. I’m sure your pain will subside in time.
    Didi

    • Lisa Bloomquist March 7, 2015 at 7:10 pm Reply

      Thanks, Didi! At three years out from floxing, it’s impossible to tell how related getting floxed is to my current pain. However, I agree that it is likely related. Even if it didn’t cause the pain, and something else did, it certainly shaped my reaction to the pain. I think that your advice of resting, hot baths, and I’ll add getting proper nutrition and loading up on supplements, is very good advice.

  15. Mark March 7, 2015 at 4:27 pm Reply

    I’m very sorry to hear this Lisa. Could be a relapse who knows? Spasmic muscles are definitely on the possible fluoroquinolone side effect spectrum.

    Are you still taking magnesium apart from the epson salt baths? Maybe you could try spraying your whole body with mag oil twice a day to see if it’s related to Cipro? Jimmy and Mel also stopped taking magnesium before their relapses I think. Just a thought.

    Hope it goes away quickly. :/

    Mark

    • Lisa Bloomquist March 7, 2015 at 7:24 pm Reply

      Thanks, Mark – I hope that it goes away quickly too! I had gotten less diligent about all of my supplements just before this pain started. It’s certainly possible that I got low on magnesium, iron, B vitamins and antioxidants and that’s a big part of what triggered my current situation. It’s a bit of a bummer. I thought that I could just eat healthily for my vitamins and minerals. I guess that my floxed body needs more support than that though.

  16. faith March 7, 2015 at 4:28 pm Reply

    You’ve mentioned Kratom in a couple of articles, but where do we find it?
    Is there a reputable place online to buy it?

    • Lisa Bloomquist March 7, 2015 at 7:29 pm Reply

      I bought a brand called Urban Ice Organics from a local “head shop” (smoking paraphernalia shop). They had several brands and strains of kratom and the gal who sold it to me was helpful. A floxed friend has posted this site on facebook as a recommended source of kratom – http://www.mtlotz.com/. I haven’t ordered from them, but their site is worth looking around.

      • Jackie March 8, 2015 at 5:40 am Reply

        I hope you don’t mind my jumping in on this. Here is another online source. I have ordered from this site and been very pleased. http://www.sagewisdom.com

      • Angel May 26, 2015 at 11:43 pm Reply

        What head shop? I really want to get some Kratom too. My pelvic pain right now really sucks. I’m in Denver too.

  17. Jackie March 7, 2015 at 4:39 pm Reply

    I’m so sorry this is happening to you! What you’re going through is not easy. Try and hang in there as best as you can. Chronic pain sucks!!! 😦

    • Lisa Bloomquist March 7, 2015 at 7:30 pm Reply

      Thank you, Jackie! It does suck! I’m hoping and praying that this pain is transient. I’m working on getting rid of it. I really, really, really hope that I’m successful!

  18. Ms. A March 7, 2015 at 5:19 pm Reply

    Possibly, when the DC does xrays, you may be able to see what is going on, if it’s structural. My last child dislocated my pelvic plates (can’t remember the technical terms) and one of them was facing the wrong direction. Another issue I have, that causes pain, is my tailbone. It angles so far in that it can be felt with a pelvic exam.

    Good luck, Lisa!

    • Ruth Young March 7, 2015 at 6:34 pm Reply

      I thought of that too– that half of your pelvis is tilted either posteriorly or anteriorly. That can be really debilitating. It happened to me while cleaning my bathroom (before being floxed) but I remembered some muscle energy techniques a PT had used to treat a patient with that in a clinic where I had worked as a PTA. I had to figure out if it was anteriorly or posteriorly shifted and select the right exercise and figure out a way to do it on myself. (I don’t want to say what I did because you could make it worse if it’s the wrong technique for what has happened to you.) I managed to get it right. It took two days of muscle energy techniques, exercises and stretching to really get it back and have it stay where it belonged. It was a bitch, but I was lucky in that I’d been working in outpatient PT quite a bit and I remenbered what I needed to be able to treat myself. That’s why I think you need a good PT, the sooner the better. Relief may be possible a lot sooner than you’d think depending on what is going on.

    • Lisa Bloomquist March 7, 2015 at 7:32 pm Reply

      Thanks for the suggestion, Ms. A! I’m working with a chiropractor. Hopefully he’ll be able to tell if something structural is off. I’ll mention the possibility to my doctor too, and get a referral for some PT if necessary.

  19. Kel March 7, 2015 at 6:23 pm Reply

    People who sit a lot and(I’ve done my fair share) cannot move those parts of the body are going to be vulnerable. Without activity I think a cushioned rest has been my primary relief. I get a tightness that will not go away. Feels like all the pelvic muscles are being going through a tug of war. I find a bed for a month will usually help. If the most gentle of stretches, leg exercises, floor exercises..the kind that involve blood flow or anything gentle relocation of all the pelvic gear after a good deal of healing can take place.

    You imagine the hot baths help due I think to the blood flow increase. I have had multiple pelvic issues due to inactivity and “stress” is worse than inactivity. That has to be eliminated.

    I did research about retraining the pelvic muscles with floor exercises and PT along with some various diseases it can be. It seems as mentioned hard to diagnose and even harder to treat. If a person in this situation could just jog and do healthy exercises and get stress free as I think if you notice one person puts their stress in their shoulders, some in their neck and others in their pelvic regions. If anyone is pushed not be unable to exercise issues arise. At around 14 I began with my first tailbone issues which is not very pelvic but boy it killed. I took 1000 MG Motrins and that did nothing but hide it. They X-rayed only to see tiny fragments broke off. All this returned a few years back with what I thought was a Hernia…didn’t turn out accurate and I ended up on Cipro which would cause whatever it was to persist and be worse. I sympathize with you and had a bout again about two weeks ago. Laying off siting and getting up as much as possible as much as it hurts being the only real relief.

    Those ‘natural painkillers’ mentioned sound good. Isn’t Kava the stuff the Islanders chew? They outlawed that in one Island and the Islanders went to war, they put them back on it promptly…

    • Lisa Bloomquist March 8, 2015 at 7:54 am Reply

      Thank you so much for the wonderful advice, Kel! I completely agree that sitting is a huge culprit. It probably is a big part of the cause of my pain, and it certainly exacerbates the pain that I’m in. Rest, gentle exercise and stretching are definitely on my agenda.

      This really stinks! It seems like there are a lot of people who have gone through it. I wonder if it’s under-acknowledged on the internet or if I just didn’t find many sites about it. I appreciate the empathy from my floxie community friends, for sure. I wish that none of us had to go through this though.

      Yes, kava is the stuff from the Pacific islands. My mom actually brought me back a bag from a trip she made to a Pacific island. It definitely chills me out. I like your story about the islanders going to war after it was outlawed… sounds about right. 🙂

  20. Patricia March 7, 2015 at 7:57 pm Reply

    Dearest Lisa;

    I am so deeply sorry for your pain. I am certainly familiar with constant, high level pain and wouldn’t wish it for anyone. While I cannot offer any suggestions that you haven’t already broached, know that I, and many others are sending you positive energy and every wish for a quick and full recovery. We will be here to support you, just as you have done for us.

    • Lisa Bloomquist March 8, 2015 at 7:56 am Reply

      Thank you so much, Patricia! I am really touched by the support and sympathy that I have been given. I appreciate both very much! Huge hugs!

  21. Scott Rose March 7, 2015 at 7:57 pm Reply

    Hi Lisa,
    Have you tried John Barnes myofascial release? That has helped me a ton with pain relief. Hope you feel excellent again soon!
    Best,
    Scott

    • Lisa Bloomquist March 8, 2015 at 7:57 am Reply

      Thanks, Scott! I haven’t looked into it yet, but I certainly will. Gracias!

  22. impossibleadversity March 9, 2015 at 3:35 pm Reply

    I’ve had some extreme pains of that kind with no real idea of what caused them or why they left, but they didn’t last near as long as tendon pain. Some were clearly triggered by an odd physical movement while my body was vulnerable. I threw a lot of protein at them in case there was damage, but I was taking just about everything. For tendons the pain comes on after change in electrolyte balance, notably potassium/sodium/magnesium/calcium, and cholinergic/nmda activation of some sort, but I don’t know if that has any bearing on this type of injury. Hope you fix it soon.

    • Lisa Bloomquist March 10, 2015 at 9:12 am Reply

      I had gotten lazy about taking my supplements for a while before this pain started. There is certainly a possibility that a mineral deficiency / change in electrolyte balance is at the root of it. I’m not sure if that’s a good or bad thing. I’m doing my best to get my mineral and B vitamin levels up. Thanks for the message and I hope that I fix it soon too!

      • Mark March 10, 2015 at 10:04 am Reply

        Lisa can you list the supps by brandnames you were taking last before your relapse and are currently taking?

        Mark

        • Lisa Bloomquist March 18, 2015 at 7:35 am

          I’ve been thinking about your question, Mark, and I am going to give you a frustrating answer – I’m not going to answer your question. Here’s the thing–I’m not sure about any of the supplements that I’m taking. I haven’t gotten my cellular vitamin or mineral levels tested and every time I feel an ache or a pain I freak out and spend too much money on every supplement I think might help me. I know that this isn’t the healthiest thing to do, and I don’t recommend it to anyone. I would probably do better spending that money on tests than on bunches of supplements. I do think that some supplements have helped me immensely. Others haven’t and it’s even possible that some have hurt me (insignificantly). In my latest health journey – described above – I think that transdermal magnesium (mag oil), epsom salt baths, and methylated B vitamins have helped me. I am taking some other things too, but I’m not sure if they’re helping or not. I had a long visit with my chiropractor yesterday and today I feel better than I have in weeks. That’s progress. Acupuncture, chiropractic, yoga, meditation, breathing exercises and things like that are what I think will bring me in line. Getting my B vitamin and mineral levels optimized is probably good too, and I’m working on it, but I’m doing it by feel rather than getting tested, and that’s my choice, but it’s not something I’d recommend. Sorry for being vague. If I knew of some supplements that worked for everyone, I’d shout the names of them. I don’t have that info though. Sorry.

          Lisa

        • Mark March 19, 2015 at 5:05 am

          Hi Lisa,

          In a way I’m same same but completely different.

          I get new symptoms, freak out and order and then don’t take the supps. lol There are 2 especially I’m thinking about taking. NAC and Prescript Assist.

          Mark

  23. Laura March 10, 2015 at 12:55 am Reply

    Lisa I am so sorry to hear you are having problems. I owe so much to you for all the advice you gave to me when I was first floxed. I wish you a quick recovery. If not for you and the people on this website I don’t know what I would have done. I hope you are pain free and back to normal soon.

    • Lisa Bloomquist March 10, 2015 at 9:39 am Reply

      Thank you! I hope so too, Laura! I am so glad that I could help you! I hope to have a recovery story from pelvic pain sooner rather than later. Fingers crossed.

  24. Christine Owens March 17, 2015 at 4:21 pm Reply

    Lisa, I am so sorry you are in pain. Just remember that this too shall pass. Bodies do strange things sometimes, floxed or not. Thank you for the wonderful service you do for the floxies out there, with your website, podcast, and advocacy!

    • Lisa Bloomquist March 18, 2015 at 7:37 am Reply

      Thank you so much, Christine! You are entirely correct. I recently read something that noted that pain isn’t near as bad as the meaning that we attach to pain. I think that’s correct and the more I tell myself that this will pass and that bodies do strange things sometimes, the better off I’ll be.

      Thank you for the kind note of support!

      Regards,
      Lisa

  25. Angie March 18, 2015 at 8:53 am Reply

    Lisa,

    Out of nowhere my knees started bothering me all of a sudden. I had a suspicion that Levaquin damaged them(knees were popping) so I babied them for 2 months after taking the drug and after 5 months I started exercising again…doing lunges, squats, etc with no problems. Then All of a sudden last Monday, BAM! Both knees hurting at the top where the thigh muscle meets the kneecap. Essential oils and Epsom salt baths have helped. It’s been 10 days and getting better. I too have no idea if it floxed related but I can tell you I’ve never had knee problems before so I have to believe it is. I was VERY down about my knee troubles cause I am a super active person. Regardless, who wants knee troubles, right? However after reading a floxie story you Recently shared by Phillip I realized that our minds do have a lot of control over how we feel and I decided to start believing again that this too will pass and I will heal. I’ve also found a supplement that has everything I’ve been looking for in one powder mix, joint Vibrance. Reviews have been great so I decided to try it…glucosamine chondroitin, msm, hydrauloronic acid, and collagen.
    You are so right in that it is sometimes hard to distinguish between a flox related symptom and something that would have happened regardless. I’ve been having aches and tightness all over since my knees started hurting but if I think back, I had those before being floxed from time to time. I keep a daily log of my symptoms since being floxed…helps me remember how far I’ve come and to also see any setbacks.
    Hang in there and I hope you and all of us find relief!! Please let us know how you are doing as you continue with your chiro and acupuncture visits!!

  26. Franko May 8, 2015 at 6:15 pm Reply

    Find a Physical Therapist that specializes in Pelvic Pain issues. A lot of pelvic pain in Women and Men is as you mentioned Levator Ani Syndrome and can do Myfacial trigger point release both external and internal.

    • Lisa Bloomquist May 8, 2015 at 6:55 pm Reply

      Thanks, Franko! I read about Myfacial trigger point release techniques in a great book about pelvic pain called A Headache in the Pelvis. I didn’t try it before the pain alleviated. I will write a post about the things that helped me to get through my pelvic pain. I should do that soon. Knock on wood – the pain does seem to be gone. I’m very thankful for that! I hope that you are well too!

  27. Jon July 22, 2015 at 3:26 pm Reply

    Lisa, I had pelvic pain like this ironically just before being floxed. It was this that caused docs to think I had prostatitis, which despite no evidence of infection made them give me cipro. I am certain that I never had an infection and what happened was my pelvic floor muscles went into lock. I absolutely understand how incredibly horrible this is. In case you are still experiencing it, I just wanted to share that my pain ended when I learned to stretch out my pelvic floor muscles in a particular way. Basically, I learned that if I did a splits-like stretch and just held it for a good few minutes, I would feel my pelvic floor muscles around the back door just drop, relax, and the pain would slowly stop (the cramping, spasming and locking would release). I know different people have different bodies and potential issues with this, but just in case this is helpful I had to share. I’ve been there.

  28. ryanmkenyon October 22, 2015 at 7:55 pm Reply

    How can I buy some Kratom?

  29. Megan Hrusecky April 23, 2016 at 11:36 am Reply

    What really helped me was taking Magnesium Tautrate 1000 mg in the morning, and Magnesium Maltate in the evening. It really works it relacxes the muscles in my pelvic floor area. I tried sitting on a tennis ball, and that didn’t work forme. Give it time, but it really does work.

  30. Fried Speer October 9, 2016 at 2:26 pm Reply

    Dr sarno healing back pain will save you

  31. Jen May 7, 2017 at 5:11 am Reply

    I’m sorry to hear about your set back. I to was floxed from taking Cipro for what turned out not to be a UTI. For me I experienced pelvic and rectal pain towards the beginning of being floxed. One of the first doctors I saw was a women doctor who herself was floxed years ago and experienced pelvic pain for months, so I knew I wasn’t the only one. My pelvic and rectal pain was only one of the numerous symptoms I was experiencing (central nervous system issues, connective tissue issues), but it was one of the worst. My doctor explained that the pelvic area is a very complex bowl like structure of ligaments, tendons, muscles, and nerves, that need to work together and if any of them are damaged it can set off a series of problems that can cause chronic pelvic pain. I suffered with it for years, and by that I mean I would wake up with pain and go to sleep with the pain for days, weeks, or months, until, for no apparent reason, I would wake up one day and the pain would be gone. Then come back with no warning. I kept track of my activities, diet, m cycle, but no clear correlation was observable. After spending thousands of dollars on CT scans, ultrasounds, internal and external, being told matter of factly by my ex male Gyno that my only option was a hysterectomy, and trying supplements, yoga, etc. I finally found a doctor who listened and thought it was nerve related, perhaps triggered by muscle spasms in the pelvis. She prescribed a muscle relaxer. I hated taking any medication after Cipro but decided I needed to try something because it was severely affecting my quality of life, and it worked! I only take one pill before bed and I wake up and the pain is gone. Only a few times in a 6 months have I needed to take a second pill the next day. I then can go weeks, months before I feel the pain come back. I hope that as my body heals from the Cipro, I will have fewer episodes of pain. Good luck, and know your not alone!

    • Lisa May 8, 2017 at 5:37 pm Reply

      Thank you so much for sharing your story, and for the empathy, Jen! I’m so glad that you have found some things that help this painful problem! Luckily, my pelvic pain went away not too long after I made this post. It has been in remission for the last 2 years. I say “remission” because it feels like it’s lurking in the background, and it could re-emerge. Hopefully it won’t though. Worrying about it certainly isn’t helpful – especially since it seems to be related to stress (for me).

      Since my pelvic pain came about so long after I got floxed, and even a while after I recovered, I was always hesitant to connect it to the cipro. It probably is connected though. The stupid drugs damage connective tissues – maybe permanently. Sigh.

      Do you think that pelvic floor exercises help or make things worse? I have been avoiding them.

      Regards,
      Lisa

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