Acknowledgement of Fluoroquinolone Antibiotic Toxicity

It is important to get acknowledgement from the doctors you are working with.

Though fluoroquinolone toxicity is not near as acknowledged as it should be, it’s not completely unheard of.  After all, most of the symptoms that people experience are listed on the warning labels.  Fluoroquinolone toxicity has also gotten some attention over the years, from Stephen Fried’s 1998 book, “Bitter Pills: Inside the Hazardous World of Legal Drugs,” to Nancy Edwards’ documentary, “Certain Adverse Events,” to the PBS Frontline special, “Certain Antibiotics Spur Widening Reports of Severe Side Effects,” to the dozen+ news stories about fluoroquinolone dangers done in the last month (linked to here).  Hundreds of media, blog, and peer-reviewed journal articles have also been written about the deleterious effects of fluoroquinolones (linked to here).

So, when a healthcare worker says, “I’ve never heard of reactions like that,” it makes me wonder, are they ignoring the warning labels, not paying attention to the media, or both?  (Yes, I know that my perspective is a bit biased and not everyone sees FQ toxicity everywhere, but it has been getting some genuine mainstream attention lately, and any doctor who prescribes these drugs should at least have his/her interest piqued by the stories and/or the existing journal articles.)

I suggest to everyone that they find doctors (or other health-care personnel) who, at the very least, acknowledge that fluoroquinolone toxicity is possible.  You can find a list of positively reviewed doctors here.

Fighting with your doctor for anything, much less a baseline of acknowledgement, is counterproductive to healing.  You don’t want to have that tension with the person who is supposed to be helping you.

Many Floxies have reported the relief they have felt when gaining acknowledgement of fluoroquinolone toxicity from a doctor.  In Diego’s Story, he noted that, “My doctors validating that LEVAQUIN did this to me” was one of the things that has helped him to heal.

Mike, a frequent commenter on this site, told me how great it was to hear from a doctor, “you are definitely floxed.”  And I appreciated hearing from him that his doctors told him that they read Floxie Hope.  🙂

Josh sent me this message:

“So, as I was telling you before, I had to schedule a root canal and was nervous about the procedure. When I went in to the dentists office, I filled everything out about my allergies to fluroquinolones and that I was under no circumstances to be exposed to them. Then, the doctor comes in and first thing she says is…

‘So I see you’re allergic to that poison that I would never dream of prescribing anyway.’

Can you imagine my relief? For about 5 minutes we talked about the adverse effects of quinolones and she assured me she would have never used them in the first place. As for the procedure itself, the first phase went very well (I have to get it finished in two weeks). I was given a lot of novacaine and she used eugenol (clove oil) to pack and seal the cavity temporarily and to bring down the swelling from a small infection in my tooth. I did experience a small flare (some mild muscle ache, nothing serious) for about 36-48 hours after the procedure. But 2 week out from the first phase, and 2 weeks until the second, my floxie symptoms are fine.

Please feel free to share the good news with the community that there ARE more and more medical professionals seeing things from the right perspective here! This woman is a very well respected endodontist in the Philadelphia area and she was just as adamant as I was about staying away from these drugs. Definitely encouraging news, and I felt like God really sent me her way to calm my nerves about the procedure and show that there are some doctors who know what’s up.”

It is noted regularly in The Fluoroquinolone Toxicity Group, a facebook support group for Floxies, that a doctor or other medical professional has acknowledged fluoroquinolone toxicity.  (Frustration with doctors not acknowledging fluoroquinolone toxicity is also noted often, and I suggest that everyone who experiences that try to find a new, more empathetic and educated doctor, if possible.)

Life is too short and precious to fight for the baseline of acknowledgement.

There is a lot of information about fluoroquinolone toxicity available.  Curiosity isn’t too much to ask for either.

The words, “I believe you,” are healing.  I hope that you all get that.  It’s more healing than any medication I can think of.

I’m really glad that more and more doctors are acknowledging fluoroquinolone toxicity, and how dangerous and destructive fluoroquinolones are.  To every doctor who acknowledges the pain and suffering of their patients going through fluoroquinolone toxicity, and especially to those doctors who don’t prescribe these drugs because of the devastation they bring – THANK YOU!

Acknowledgement, curiosity, knowledge, and caring will bring change.  When doctors bring those traits to their practice, they can change the lives of all of their patients.  The more doctors who see and acknowledge fluoroquinolone toxicity, and care about the patients who are suffering from it, the more quickly change will happen and the better the world will be.


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14 thoughts on “Acknowledgement of Fluoroquinolone Antibiotic Toxicity

  1. Ms. A March 22, 2015 at 11:48 am Reply

    I can’t wait for the day this becomes “common knowledge”.

  2. bjacob131 March 22, 2015 at 3:34 pm Reply

    What are the fluoroquinolone drugs used in dentistry to avoid, and what are they for?

    • Lisa Bloomquist March 22, 2015 at 6:45 pm Reply

      I don’t think that they are used very commonly in dentistry, but all fluoroquinolones – cipro/ciprofloxacin, levaquin/levofloxacin, avelox/moxifloxacin, floxin/ofloxacin and others, should be avoided–they are dangerous drugs.

    • kevinf September 18, 2016 at 6:28 pm Reply

      you should also avoid the fluoride they use, its the metal used in FQ.

      • Lorna November 4, 2016 at 2:41 pm Reply

        Do you know what alternatives there are to fluoride they use? I’m looking into this as I need a crown in the next few weeks and my dentist said he was planning to use a ‘fluoride pack’ as part of the treatment? Ive ben careful to avoid fluoride and am obviously worried…

  3. bjacob131 March 22, 2015 at 3:36 pm Reply

    Reblogged this on yoursaymatters and commented:
    Please be informed of the damaging effects of fluoroquinolones and remember support makes all the difference when someone is suffering.

  4. BSSKCMO March 22, 2015 at 3:52 pm Reply

    I almost felt like crying when I read this article. Acknowledgement truly is healing. It’s difficult enough for the floxed to try to deal with the often bizarre myriad of symptoms and pain, but trying to get others to understand or just believe you only adds to the feelings of hopelessness. I know true acknowledgement will come in time, but it seems so terrible that more people have to be floxed in the meantime.

    • Lisa Bloomquist March 22, 2015 at 6:46 pm Reply

      I agree completely! It truly adds insult to injury when people don’t get the acknowledgement that they deserve.

  5. Mark November 23, 2015 at 10:00 pm Reply

    Lisa great article! I would add though that it is worth fighting for, against ignorant doctors. Maybe not in person but definitely in front of court if a treatment error has happened.


  6. JoAnn November 24, 2015 at 5:46 am Reply

    I have just realized I have been floxed about a year ago, after almost immediately experiencing tendonitis in my elbow, then shoulder pain, my arms felt like I had only 40% use of them, and way too many cortisone shots. And now I have Achilles Tendonitis in both ankles! I was given anti-inflamatories and a boot for the worst ankle and told to stay off my feet, its been weeks and its not getting any better. How many times do I have to be told “I’m not floxed, it’s because I’m a diabetic.”
    Thank you for your informing site I can’t believe after all these years this is still happening to people and the doctors act like they know nothing about this.

  7. Steven W. April 19, 2016 at 2:46 pm Reply

    I agree, and my boy just made me a picture after I told Him about medicines to help me. It had a picture of Him saying I have enough money, a little scene of Him and I playing with rocks and fishing. If my wife didn’t have to work for us, I would take the time to hobble my but around for extreme awareness. For now, we will work on a puzzle. Take care, all. Pain shall have no hold, but to push us into a greater residing of resolve.

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