Sharing Recovery Stories

Hope for Recovery from Fluoroquinolone Toxicity

Several people have asked me why there aren’t more recovery stories on www.floxiehope.com. Perhaps I’m reading into the question too much, but I sense some disappointment in the question—as if the questioner believes that since there are only 37 (as of 4/23/15) stories of healing on Floxie Hope, there must only be 37 people who have recovered and everyone else must still be sick and suffering, and that’s really not very many stories and therefore most people must still be sick, and recovery is rare and everything is horrible.

I encourage you not to think those things, mainly because I don’t think they’re true.

There are many, probably thousands, of reasons why some people don’t want to share their recovery stories on Floxie Hope. Some people are too private to share things about their health on the internet. Some people feel guilty and ashamed about what they went through and don’t want their friends, family or co-workers to know that they have been dealing with health problems. Some don’t want to jinx their recovery. Some may not think that recovery from FQ toxicity is a big enough deal to write about. Some people don’t like to write. A lot of people recover from FQ toxicity without fully knowing that they were floxed – they were sick, they didn’t know why, then they got better – c’est la vie. Some people just want to forget their time of sickness and move on with their life. Some people don’t know about Floxie Hope. Some people don’t think that anyone else would be interested in their story. Some people neither like nor trust me and don’t want to contribute to my site. Some people would rather forget their time of being poisoned, and writing about it is too hard and traumatic. And there are many, many other reasons why many people who are recovered from fluoroquinolone toxicity don’t put their story up on Floxie Hope.

Please try not to read into the quantity of stories on the site, or the frequency at which recovery stories are published, as a data point about rates of recovery. I don’t think that it’s a very accurate or reliable one.

Any recovered floxies who want to write their story for Floxie Hope—I would LOVE to publish your story! Recovery stories help those who are suffering. I have received countless messages from people saying that they read the stories on Floxie Hope over and over again and that the stories of hope and recovery are what keep them going. If you can/want to give that gift to your fellow floxies, it will be greatly appreciated! Please email me any recovery stories through the Contact link on this site. Thank you!

A lot of people who have recovered from fluoroquinolone toxicity post a note about their recovery on one of the floxie facebook support groups (The Fluoroquinolone Toxicity Group – https://www.facebook.com/groups/floxies/ – is currently the biggest and most active group). Facebook is great, and there’s nothing wrong with posting a recovery story on facebook per se, my only objection to that method of conveying recovery stories is that they get lost. After a day or two, no one can find or refer back to the recovery story. The recovery post on facebook gives the people who see it hope, but it’s not available to help other people weeks, months or years down the road. Stories on web sites (Floxie Hope, or elsewhere – if you want to put it on another site, that’s cool) are stored in a single location, they’re easy for people to find, people can learn and gain from them for a long time, and the search engines can index them, raising the profile of FQ toxicity on the internet.

There’s no length or detail requirements for stories on Floxie Hope. If you want to copy your recovery blurb from facebook into an email for me to put up on the site, that can be your recovery story – no problem.

All recovery stories are GREATLY appreciated! I appreciate them and thank you in advance for your contribution to the site! Recovery stories aren’t about maintaining this site though, they’re about giving hope to your fellow floxies. Recovery stories truly do give hope, strength, and ideas for how to go about recovering to fellow floxies. Hope is immeasurably important. It’s a beautiful gift to give to others and I thank everyone who has contributed their story of hope and healing to those who are hurting – you are appreciated!

Stories about fluoroquinolone toxicity are not all recovery stories. Fluoroquinolone toxicity involves neither puppy-dogs nor sunshine. There is genuine suffering that comes before the recovery stories are possible. There are people who don’t recover. Stories of pain caused by fluoroquinolones are important and they should be shared too. I’ll write another post about the importance of sharing stories of pain caused by fluoroquinolones shortly.

Thank you to all my floxie friends who have given support, advice, and hope to their fellow floxies – especially those who have contributed (stories and comments) to this site. You are appreciated!

 

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16 thoughts on “Sharing Recovery Stories

  1. Emily April 24, 2015 at 7:26 am Reply

    Great post! Thank you.

  2. Jean Hooper April 24, 2015 at 8:13 am Reply

    Thanks for this. I agree with the contents.Also other antibiotics are detrimental as I am sure that you know.Other drugs cause neuro muscular conditions and also SLE. Kind regards Jean

    Date: Fri, 24 Apr 2015 13:45:54 +0000 To: jean_hooper95@msn.com

  3. Melanie kemp April 24, 2015 at 8:23 am Reply

    Lisa. I could write a story. Am I fully healed. No! But I’ve been through this once where I did fully heal. My relapse has been difficult because who wants to go through this twice but I’m recovering again be it slower. I think had I known I was floxed back then I would have taken more care of myself but I was one of those that didn’t know. I also think had I know what could cause relapses I wouldn’t be going through it again. So its a good idea to make people aware of what could or might happen. I was severely hit both times but got better and getting better again. Let me know if this is in anyway a story you would want posted. Xxx. Hope you’re doing better.

    • Lisa Bloomquist April 25, 2015 at 6:08 pm Reply

      Whenever you’re ready to share your story, Melanie, I’d love to read and share it! I’m so glad that you’re improving! Hugs!

    • Wendy December 19, 2015 at 8:03 am Reply

      Melanie, what causes a relapse? Thanks!!!

  4. Fernando B April 24, 2015 at 8:49 am Reply

    Hello. My case is similar to that of Melanie. I was recovered las year, I returned to live life fully (100% – better than pre-flox!). And had a relapse, with which I am still fighting (4 months now).

    In my first time I was improving slowly, cyclical and could only realize that was leading to normal life at 13 months (doing what I wanted and eating / drinking without restrictions). I decided to wait for the 18 months mark to write my story and send to Lisa (left annotated on my personal agenda). Unfortunately, one week before the date I suffered a relapse and I am in the fight again.

    So this proves what Lisa said: many improve and do not come back for N reasons, or wait some time to do it. In almost two years on facebook I realized some people that began to improve and disappeared (I was’n enter into the groups in my normal 5-6 months).

    My story, ultin now, also serve to show that it is possible to return to a normal life – and, unfortunately, that for some people caution should be maintained to avoid the return to suffering.

    When I win this second battle, the promise to write here will be fulfilled.

    Hugs

    • holofcb April 24, 2015 at 8:52 am Reply

      Just wanna add that the cause of the relapse is identifiable, it’s something I did – so do not enter the mysterious cycles that I had during my recovery.

    • Lisa Bloomquist April 25, 2015 at 6:10 pm Reply

      I hope that this relapse passes soon! Whenever you’re ready to share your story, I’d love to post it! Please be patient and kind toward yourself as you go through this. I really do think that it helps.

      Hugs,
      Lisa

  5. Linda Livingston April 24, 2015 at 9:32 am Reply

    Thank you Lisa. Again.

  6. Linda Livingston April 24, 2015 at 9:35 am Reply

    Those who have relapsed…it would be good to know what the cause of the relapse was (if known.)

  7. holofcb April 24, 2015 at 10:39 am Reply

    In my case was because I exceeded my new tolerance for alcohol. I was consuming a glass of wine or a beer on Saturdays and Sundays, without any problems. I even did a trip to wine tastings, all ok.

    But at Christmas I ended up drinking a little more than that (thinking I can keep up with the others – and this is something I’ve done about 3 times in life … bad time to repeat). Since then, many symptoms returned (tendons and GI issues mainly). If I had stayed in my normal two bottles/glasses, everything would be normal until today… My anger come from knowing that I was able to maintain, in my recovery, my passion for wine and foods. I was lucky and thrown it away… Now is a mess again, worse than the first time (GI issues).

    The lesson learned was to recognize that my body has new limits for toxic substances and that even feeling 100% back, we should be cautious about exposing our bodies to them – it´s not worth the price to discover the limits that way.

    • Melanie kemp April 24, 2015 at 11:13 am Reply

      In my case it was working out, floxing changed my metabolism and I gained an enormous amount of weight so started working out and 6 weeks in relapsed, also have a floxy friend that relapsed after 6 years due to the same

    • Linda Livingston April 24, 2015 at 11:30 am Reply

      Thanks holofcb…I used to have a glass of wine or two with dinner every night—and the ocassional scotch. Have not had a drink, a cup of coffee (two cups prior) or tea since this happened almost 3 months ago. Unfortunately, two of my worst symptoms keep me a virtual shut in other than going for IV drips. One is hyperosmia where all scents are grotesquely exaggerated, even making me unable to tolerate someone’s handlotion (had to change out all lotions, shampoos, conditioners, etc to fragrance free.) The smell of food cooking chokes me as do scents I used to love like jasmine and orange blossom. And the worst is it has effected the nerves that control breathing as well as others that produce chest pressure, so I am constantly struggling to just breathe at this point. Anyhow, thanks or your answer. I hope I get to the point someday where breathing and scents are normal, and I could actually enjoy a meal or a glass of wine.

  8. Linda Livingston April 24, 2015 at 11:33 am Reply

    and thank you Melanie too. Before cipro I could beat most 20-somthings in planks, chinups and pushups. (I am in my 60s) I worked out 3 times a week. Now, esp because of the breathing, I can barely cross the floor. It also ravaged my GI system and I went from a healthy 148, to 118. Just struggling to put the weight back on. I appreciate that both you and holofcb responded so quickly. Much appreciated.

  9. Kerry November 3, 2015 at 4:38 pm Reply

    Please include a link whenever you mention the success stories. I have been unable to find them.

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