A Full Recovery

Several of the recovery stories on floxiehope.com describe people who are mostly, but not fully, recovered. A lot of the recovery stories are from people who can see the light at the end of the fluoroquinolone toxicity tunnel, but they’re not completely out of the tunnel yet. Even though these recovery stories are not of complete recoveries, I think that they’re still valuable. The show that life can go on through and after fluoroquinolone toxicity, and they describe the physical, emotional, mental, and spiritual journey while it is still vivid and raw. Many of the people with partial recovery stories on floxiehope.com continue to improve. Life goes on–sometimes with bumps in the road/setbacks–but often toward continued recovery.

Some people who have read these partial recovery stories have asked, quite reasonably, if there are any people who FULLY recover, and return to their pre-flox capabilities. To this, I answer, “YES, I have fully recovered.” Me – Lisa – the author of the majority of the posts on this site. I have fully recovered.

When I wrote my recovery story in 2013 I was 90-something-percent recovered. I still had some autonomic nervous system issues and the fear and anger that came with getting poisoned by ciprofloxacin lingered. I wrote an update in 2014 that noted some features of my continued recovery.

Since 2014, I have continued to improve. I was physically completely healed in 2014, but the emotional journey has continued. I have worked through a lot of fear and anger since 2014. Both the fear, and most of the anger, have largely gone away.

I have healed.

I write this not to brag, or to diminish the experiences of those who don’t recover (there are some people who don’t recover, and they deserve our sympathy and support), but, as always, to give others hope. A full recovery is possible. I have fully recovered. I hope for the same for all who read this.

I recently (I got home day before yesterday at the time of writing this) visited Australia on vacation and was able to do all the things that I wanted to with ease. I went on a tour of Tasmania with a bunch of 20-something year olds and was able to keep up with them. We hiked to waterfalls and jumped off sand-dunes. It was fun! My feet didn’t hurt and I had plenty of energy to keep up with them. I was able to eat whatever I wanted. I slept decently–even on couches and in hostels. It was a good vacation. It was exactly what it would have been if I had never gotten floxed. I have recovered.

I hope that my recovery, and these pics of my vacation, give you hope that recovery, and a life that is full of activity and adventure, are possible. I posted these pictures, and others, on my facebook wall as I was touring Sydney, Melbourne and Tasmania. Several people thanked me for sharing the photos because they gave them hope that this type of travel is possible post-flox. It is possible. I had a fantastic time, and I hope that you are each able to take a similar journey, or whatever else you desire that indicates a full recovery.

All aspects of my journey through fluoroquinolone toxicity took time. I encourage you all to be patient with yourselves. I couldn’t have traveled through Australia like I did earlier this month when I was first floxed. I can do it now though, and that feels really, really, really good.

Cradle Mountain Tasmania Harbor Bridge Sydney Melbourne Montezuma Falls Tasmaia Sand Dunes Tasmania

 

flu tox get help you need banner click lisa

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51 thoughts on “A Full Recovery

  1. Felice Tannen April 20, 2016 at 9:20 am Reply

    great!! so happy for you- good inspiration

  2. Linda April 20, 2016 at 10:29 am Reply

    That’s wonderful Lisa. Glad you had such a great time.

  3. Kevin Stritzinger April 20, 2016 at 11:27 am Reply

    Thank you so much for sharing your full recovery story and pics of your vacation. I am just recently floxed(going into my fourth month). I am having a rough time but remain optimistic that, one day, I will be able to climb Enchanted Rock to celebrate my full recovery. Peace!

  4. Debbie Snyder April 20, 2016 at 11:58 am Reply

    Lisa, thanks so much for sharing your story. I’m trying hard to focus on the recovery stories like yours. I appreciate you taking the time to show us that we should not give up hope.
    You are truly an inspiration!

  5. Lukasz April 20, 2016 at 12:25 pm Reply

    From day 1 when I stumbled upon your website and read your recovery story right through to today’s article on your full recovery, I am still on this planet thanks to you and your unbreakable perseverance. Super stoked that you had a great trip. Congrats on your full recovery and thank you for all you have done and continue to do for us.

  6. Melanie Kemp April 20, 2016 at 1:21 pm Reply

    Recovery is absolutely possible. I recovered. I was great for 3.5 yrs. I had a relapse in 2014 and thought my life was over. Bedridden for almost a year. I was at 0% as far as functionality.
    Now I’m around 85-90%. Back working. I’m a groomer. It’s very physical, but I’m keeping up.
    I truly believe I’ll get back to full health. I can do everything I want to do, I just have some Nueropothy lingering and tinnitus. I tire a little more easily but I am almost 58.
    When I say tire more easily I mean I might have a down day every 4 or 5 months.
    I can only groom 6 dogs max…which is still quite a good amount in any one day.
    I push myself and don’t often talk about floxing to anyone around me.
    Life goes on. We have to stay positive 😀
    This is my second go around on this ride and I won’t let it beat me.
    Hope you had a great vacation Lisa. It looks like you did !!!

    • Eileen OBrien February 27, 2017 at 7:19 pm Reply

      So how is that RECOVERY if you relapse???? How about cured? fixed back to normal???? That’s MY idea of recovery and NO ONE has seen that!!! We are permanently damaged!! Some of us are DEAD!! I for one will NEVER accept that as ok!!! NEVER!!!

  7. ChicagoGuy April 20, 2016 at 7:35 pm Reply

    This is so great to read. I too will be writing my fully recovered story sooner than later. I pray God heals us all.

  8. Charles Tooraen April 20, 2016 at 9:58 pm Reply

    Great to hear Lisa! I am up to 85%. I think in have another year to go to get back to 100% 🙂

  9. chris harris April 21, 2016 at 2:31 am Reply

    This is the kind of inspirational story that drives me to push forward. I have to believe that I can recover, whether that be 80%, 90% or 100% time will tell. You can’t just sit and complain about being floxed and expect that you will suddenly be recovered. Being angry at the system doesn’t fix anything it only weakens your motivation to move forward and get your life back. Sure, I’m angry that a supposed safe medication pretty much turned my life upside down after just a few days and a handful of pills but I can’t change that now. I like many hope that the long term effects of this will be minimal and that the short to medium term issues I now face will eventually decrease and become a memory.

    I am already improved in many areas, my PN symptoms are currently 90% better, my sleep is generally 60% improved as I do manage to get some sleep most nights (except now as I have a pesky gout attack going on.. possibly flox related). My main on-going problem is my muscles, tendons and joints which are probably 20% improved. All I can hope is that a gradual increase in light exercise starting with swimming will slowly encourage my body to repair those and strengthen them. I hope I can go from the 15 or so minutes walking I can manage now to walking up the hills in Scotland again. I hope I get to ride my motorcycle from England to the Arctic Circle in Norway again… so many hopes that I am not willing to give up on. I’m almost 12 months out from being floxed and as much as I hate the wait I have to try and realise that I’ve still a way to go but heading in the right direction. I’ll continue to record my fight to health at my blog https://chriscwharris.wordpress.com/ and I hope one day to write my recovery story for Floxiehope!

    • tarkonis April 21, 2016 at 5:22 am Reply

      Hi Chris,

      Glad to hear you are slowly recovering. Keep on trucking man.

      Im 8 months out and I still have full body burning and tingling in my entire body. Did you have anything like this? I only took 2 pills. My eyes burn, my legs burn my arms and legs tingle, my back tingles its torture. How long did it take for your PN symptoms to go and did you do anything in particular to address this issue?

      Thanks a lot.

      Dave.

      • Anna April 21, 2016 at 8:31 am Reply

        Dave I have exactly the same thing. Hope some
        one writes about the burning, tingling problem. Anna

      • Mai December 11, 2016 at 6:04 pm Reply

        Dave, I have the same problem, burning all over my body and pain all over my body too, joint and tendun pain too. Have you done anything to get rid of the burning. Please reply. Thanks

  10. Dani April 21, 2016 at 5:05 am Reply

    Thank you so much Lisa for your story! I wish everyone will heal with time!

  11. Teri CiproVictim April 23, 2016 at 5:38 pm Reply

    Congrats!!!

    Thanks for giving hope to others… I’ve recovered 80% todate, and I hope 100% … patients, time and finding what works for you. Everyone is different I realize. I am still in search of some other natural products besides the active (live) collagen and lemon and water I did (14 treatments for 2 years)… But of course, the few dozens of many serious damages that Cipro XL the live collagen can’t help all of them, so I am looking for another treatment that can heal the rest of my (hope, minor damages left). 🙂

    I will go through what helped you Lisa to consider it too for myself. Thx you so much.
    Teri CiproVictim now know as Teri CiproSurvivor 🙂
    Your Floxie Canadian Sister

  12. Lisa April 25, 2016 at 8:13 am Reply

    Thank you all for your wonderfully supportive comments! I appreciate each and every one of you! 🙂

  13. Erika April 27, 2016 at 9:47 pm Reply

    Thank you Lisa for you story of a full recovery. I am so thrilled that you are back 100%. I myself am almost there, but hesitate yet to say that I am 100% recovered as I am still fighting to get my ferritin and Vitamin D3 levels up to parr. Have found some new supplements in that regard that I am tolerating really well, and I am full of hope. For those of you who asked about the burning, yes, I had that full body burning sensation for 3 months after I took cipro and flagyl. I think it was 4 doses. The burning sensation would hit most intensely at night and it was the most horrible thing I had ever experienced in my life. It came in waves and was incredibly painful and along with that the insomnia and anxiety was indescribable. I am now able to say the I am now completely free of any of those things which has been a great relief by itself (am 10 months out now). So in that capacity, I feel I have fully recovered, thanks be to God. The only symptoms that I suffer from now are occasional shooting pains in various tendons and cartilage. I just visited my dentist and received a totally clean bill of health. I was also having extreme tooth achiness, sore gums and tooth sensitivity to temperature. I started using a totally organic remineralizing toothpaste that also contains bentonite clay. Two weeks after starting to use that, sensitivity had remarkably decreased along with the tooth achiness. All that is totally gone now. No damage done. Just had a blood test done and my ferritin (stored iron) and Vit D3 and B12 are still really low. I am making sure to take those supplements faithfully now which before I was not. I finally found an iron (iron bisglycinate, aka gentle iron) that I could tolerate and find that some of the lingering fatigue, depression, dry mouth, dry eyes and burning tongue are getting better now. I have also survived a recent bad cold really well. I recovered completely within two weeks which is really good. Before it would have been 3-4 weeks. So there it is. I truly feel that in another months I will be able to say that I am fully healed. If not, I really am ok with where I am now. I am able to exercise, go for long walks etc..again with no problems. I realize that in all likelihood there will be some flare ups, but that they will hopefully be short lived. I am even more careful about eating organic, non gmo, and excluding added flourides whenever possible (I even told my dental hygienist, no flouride). I do however go out to eat at restaurants without worrying too much about it and now problems yet. I am also drinking wine again which I enjoy, and I believe it also helps. Other than that, the probiotics took a while to fully take effect, but I feel that is now balanced as well. There is hope!! I will say at this point, I am 99.5% recovered and I am not afraid of the future anymore. Health and Healing to everyone and God bless you all.

    • Linda April 27, 2016 at 10:05 pm Reply

      Smiled to hear about the wine. After a year of no wine, I have been enjoying a glass now and then. I try to get organic, but more importantly (I think) I get wine from Italy, Spain, France—somewhere where they don’t fluoridate. It does help relax me so it’s good for that!

    • Briana July 2, 2016 at 6:53 pm Reply

      Thanks for your post, Erika. Just knowing that healing is possible within 10 months is still a relief to me. Did you have any muscle or tendon issues?

    • Mai December 11, 2016 at 6:09 pm Reply

      H Erika, you said that you got rid of your burning sensaction too. Can you tell me please what to take for the burning. I am horroble right now don’t know what to do. Please reply. Thank you

  14. Erika April 27, 2016 at 9:50 pm Reply

    P. S. sorry about the typos. Can’t seem to post anything without those!! LOL!!

  15. moharebusa April 29, 2016 at 7:31 am Reply

    Awesome..
    I took 50 Cipro..for prostatities..lower back pain was the only symptoms..did MRI for lower back 6month after finishing Cipro took Back injection Esteroid ..and got tons of pain symptoms foot burning knees burning joints..ear noise..not sleeping .. Pravin fog ..especially after Gluten and suger .. All tests came normal negative so they diagnosed me Fibromyalgia!!! Did u hear this kind of story before??do u think all my symptoms from cipro!! I am in pain and do not want to move from bed ..Doctor do not understand..

    • Linda April 29, 2016 at 9:29 am Reply

      Doctors do NOT understand. Many who have been floxed have been misdiagnosed as having fibromyalgia. Steroids are known to exacerbate fluoroquinolones. And tests quite often do come back negative, because as Dr Todd Plumb points out, the damage is functional and not structural. I would find a good naturopath if you can.

      • moharebusa April 29, 2016 at 9:59 am Reply

        Thank you for your quick reply..I am so confused about my case .. Do u think it is Cipro after 6 month can spread in my legs and arms .. Also one doctor told me it may effects tendons only but not lower back .. Did u c that before ..

        • Linda April 29, 2016 at 10:40 am

          This stuff has crazy timelines. I am over a year out and still have some side effects. I got different side effects after a week, two months, four months. And your doctor is 100% wrong. It can affect all areas of your body. Check out the resources tab on this site. If you read some of the news articles you will find people talking about pain, PN, tendon issues, GI issues, heart/vision/ respiratory issues, all from flqs. I had horrific pain midback that I never had before. Excruciating deep in the bone feeling. Most doctors are either completely unaware of any side effects or they only know about ruptured tendons because they were the few who actually read the black box warnings.

  16. moharebusa April 29, 2016 at 10:47 am Reply

    Thank you Linda, the thing is the fibromyalgia symptoms almost same as floxc symptoms..ear noise, brain fog, pain burn in muscles..problem staing sleep..and in top the lower back pain ..
    Also bad memory I am going crazy..

    • Linda April 29, 2016 at 11:04 am Reply

      yep….that’s why so many get misdiagnosed

  17. poisoned from poland May 1, 2016 at 11:57 am Reply

    Im poisoned by cipropol+NSAID (prescribed for chronic bacterial prostatitis)

    by old doctor wchich was not aware of fluoroquinolone toxity.

    I had eaten 14 days of cipro 2x500mg per day.

    The fq symptoms was triggered by bactrim 6 monts after.

    First 3 months I was dying, now Im 9 months out,

    and Im not sure going to be alive now, im only20% recovered now 😦

    Lost health, job, housebound, and cipro and bactrim

    not helped my prostate problem.

    I deal with prostate pain medical lamp lightmed (without any meds),

    few people completly cured using it.

    For bacterial chronic prostatitis there is a treatment in Odessa (auto vaccines)

    and in Georgia bacteriophages, but doctors knows nothing about this treatment, only antybiotics. Antybiotics doesnt help in chronic bacterial

    prostatitis, symptoms will return in most cases.

    However there is one doctor in tirana albania and use abx into anus

    with anal heater, find him google.

    abx into anus is safer than eat abx.

    Im very very angry, why?

    Because people from USA are poisoned about 30 years,

    money big farma are more important than people health???

    In europa, poland we treat diseases like in USA,

    because we think USA is very progressive country…but

    using quinolones is not progressive, its a CRIME.

    How is that possible in USA … 30 years of big pharma fq poisoning…unbelievable. its not real.

    If fda corrupted, ama/amsa corrupted, government corrupted, … xxx corrupted

    please collect 100000 votes and write directly to new president

    (donald trump i heard in polish news is a leader).

    we are in fq agony, but in the future many people will be in fq agony also.

    health is priceless!

    • Linda May 1, 2016 at 12:26 pm Reply

      So sorry, and you are right. It IS a crime. A crime against humanity. These companies should be put out of business and those responsible should be jailed. I don’t know if this is available to you there (I am in U.S.) but nutrient IVs really helped me. Also broke me. Like you, I have lost everything. Hope you continue to recover.

  18. poisoned from poland May 1, 2016 at 5:38 pm Reply

    When I was in agony I visited many doctors (reumathologists, neurologists, my family doctor, Traditional Chinese Medicine).
    I was so weak, I could barely walk, all muscle pain like fire, fasciculities, neuropathy…, long laundry of symptoms, horror. I felt like 100 years old man dying. Now 9 months out I fell like 60years old man, but i have 36.
    Most doctors said that that I “imaginate symptoms” and should go to psychiatrist. Doctors were stupid ignorants in my case.
    They said cipropol is widely descripted, safe cheap and effective drug!
    Im first patient claims cipro side effects…
    I had done blood tests against borella (lyme disase), chlamydia trachomatis, pneumunae, ureplasma, mycoplasma and all tests were negative.
    Third neurologists prescribed me thiogamma600 (this is ALA acid) and I thinks this helps me, I still eat ala acid 600mg daily.
    TCM doctor help me at most, prescribed me Liposomal C vitamin, k2mk7 vitamin, D, b12 and other B complex multivitamin and Milgamma100 (b1+b6) and diet with lots of vegetables and … chicken (natural chicken without abx) soup.
    0 sugar, 0 alkohol, 0 coffe by the end of my life.
    I had my blood labolatory tests – thyroid hormones were ok but b12 vitamin in blood was very very low, but now its only low.
    I eat magnezium also.
    Everything (doctors visits, labolatory blood tests) paid from my own money, unfortunaltely not covered by polish national medical service.

    I have a dream, we have a dream we will be like before fq floxed some day.

    Lisa is doing great job, In my opinion 100 000 votes collected
    for this important case and letter to president is good idea.
    When USA stop this fq epidemic other countries do the same.

    • Linda May 1, 2016 at 5:49 pm Reply

      I get SO mad when I hear doctors say it is all in your head! It is their ignorance, not our imagination. You would do better sticking with naturopathic healers.

      • tony May 6, 2016 at 7:45 pm Reply

        i took 2 500MG cipro pills in late december and 3 flagyl for diverticulitis and i had an immediate reaction 1 hour after ingesting the 2nd pill and my symptoms were all neurological symptoms,an hour after i took the 2nd pill i felt like my brain was on fire and swelling in my skull, i had chest pains and racing heart palpitations,a SEVERE metallic taste in my mouth (it lasted for over 2 months straight and still comes back now and then) SEVERE tinnitus(still has not gone away ,24/7 my ears ring,day and night worse at night, some times it gets less intense but never goes away) my jaw clenched and locked up and i had convulsions and violent uncontrollable shaking all that night till the next night and profuse sweating,extreme cognitive disruption for weeks after i could not concentrate even to watch TV for 2 minutes .For over a month ,i did not sleep AT ALL , over 30 days straight,every time i tried to sleep it was like getting an electric shock in my brain ,if i tried to sleep i got heart palpitations and convulsions and violent shaking and horrible confused racing thought like someone was beaming jumbled up tv signals directly into my brain. i could not control my thoughts or my brain at all ,it was the worst thing that has has ever happened to me, this happened every night for about 5 1/2 and weeks finally went away, then it came back about 5 other times each time it was a little less severe and for a shorter duration usually about 2 weeks to 10 days on average,I went on organic diet shortly after being “floxed” especially avoiding fluoridated(which inever drank before anyways) water and MSG and any free glutamaic acids and i noticed that changing my diet would trigger the symptoms again and they would last for 2 weeks to 10 nights after one time ingesting a different food not on my diet,i still get sick if i eat anyhting different ,not organic and not on my diet all ieat are organic chicked potatoes borcoli and swiss chard for months ,i also got floaters in my eyes which i had mildly before but now they are 5 times worse since the cipro ,about 2 1/2 month out i started to get bad joint pain in my knees and elbows ,2 months out i got sever TMJ for about 3 weeks,i could not even chew my food and there was a clicking and popping, but it went away, once i started to be able to sleep again i noticed that whenever i sleep even if i fall asleep or 2 minutes and wake up or if i sleep through the night i wake up with a painful erection , at 1st accompanied by racing heart , the racing heart when i wake up in the middle of the night comes and goes now becoming more rare but the painful erections come every time i sleep 100% of the time,for awhile iwas sleeping through the nite not now i wake up 3 to 5 times int he night
        this is not normal “morning wood” i do believe that this is attributable to some kind of autonomic nervous system damage cause by ,my floxing
        as the symptoms include ” sexual dysfunction” ,i know that means impotence but i am sure it could also go the other way, i also have other autonomic nervous system damage symptoms such as racing heart ,tachycardia ,and 2 months after i was floxed i had a temp of 103 and i went to hospital , i was hospitalized for 4 days ,when i went in my HR was over 130 between 130- 140 BPM , they never found what caused the fever after doing every test imaginable including a full CT with contrast , i understand that temp regulation is another symptom of autonomic nervous system damage, also for the 1st month i had burning sensations like my skin was in a furnace on my face hands arms and legs and pins and needle feeling in my hands, mostly at night when i tries to sleep
        i went to a neurologist and she just ignored all my symptoms and dismissed my concerns about the cipro, i told her the reaction was immediate occurring only an hour after the 2nd dose, she just sat there with a blank expressionless stare in silence just like my PCP and about 12 other ER docs and about 50 nurses i described my symptoms to and told me to go to a psych doctor
        nobody will listen to me or help me and i am in agony
        how many people have you herd about that have similar type of symptoms, mostly all neurological and with an immediate onset and what have their prognosis’s been like?
        i am really scared and i have been to the doc and ER about 12 times since it happened

        • Linda May 6, 2016 at 8:43 pm

          Hey Tony, almost all of mine were neurological. Mine started after the 2nd or 3rd pill. I also had/have the big floaters. I had tinnitis, horrible olfactory nerve damage where everything in the world asphyxiated me. I can’t tell you how nightmarish that was. Even unscented products choked me. I also had severe suffocating breathing problems which I believe were related to autonomic nervous system dysfunction or mitochondrial damage to the heart muscle. I was bedridden for a while, and felt like I was dying for months. Also had horrible midback pain—felt deep in the bone which I think was also nerve-related. It has been 15 months and I am much better in all areas. Still have floaters, fatigue, numb toes and a couple wonky fingers as well as a choking sensation around my neck that comes and goes…again, I think either nerve or mitochondria related. And I have pressure/pain in the pelvic area that comes and goes. There have been a couple incidences of really horrific internal pain. My insomnia was nonstop for months, and even with a sleeping pill I got only 1-5 hours for another couple months.

          My suggestion would be—skip the regular allopathic doctors. I went to about a dozen and only one even understood about the link to PN, but none of the other stuff. The other doctors were adamant that Cipro could not possibly do all this. They don’t want to believe that something they have been prescribing like candy could be so poisonous. You’re not crazy. The problem is them, not you. So, I would suggest either finding an integrative or functional medicine doctor, or a naturopath that does IVs, IVs were what helped me the most. I went from needing help walking, to now finally going back to some physical activities and getting a semblance of my life back. You might also want to get the book by Dr Jay Cohen “How We Can Halt the Cipro and Levaquin Catastrophe: The Worst Medication Disaster in US History” (buy online) and take that to your doctor and/or at least take a copy of the Dear Doctor letter that Lisa has in the resource section of this site. If you let us know what area you live in, perhaps someone can offer a referral of a dr that helped them. You’re gonna be OK, scary as it is now.

    • Nelio November 20, 2016 at 12:41 pm Reply

      Hi poisined from poland, i had the same problems with cipro and the doctor suspect that i have prostatitis, i have 36 years too and if u wanna we can keep contact to share experience. I did the test stamey and mers and the doctor found the bacteria. if u wanna send me one msg by email altinelio@msn.com

  19. tony May 7, 2016 at 8:20 am Reply

    thanks Lisa ,i am in the boston area if you know any docs around here you could suggest that would help
    i have got some liposomal glutathione but i have it in the fridge and have not used it yet ,i am afraid to commit to it right now since you have to use it once you open it it says, and i am kind of scared that it may make things worse for awhile,isn’t it a detox as well as an antioxidant? would it start moving around the toxins sometimes?
    also i have had what i feel is bad colitis since i got floxed at 1st i could not have a BM it was awful ,my stools are thin as spaghetti or look like the inflammation picture on the stool chart
    i went to a gastroenterologist who wants me to get a colonoscopy which i am very reluctant to do because i will not take any more drugs and do not want anesthesia or sedation
    and do not want to be awake either , when i went to the ER with the fever i thought it was the diverticulitis again , they did blood and CT but nobody has ever done a stool sample test since this happened these doctors are horrible, i did some research and read the cipro is the number one cause of pseudomembrenous colitis ,but nobody , not my PCP nor the gastro nor any of the ER docs have ever suggested it or suggested i get a stool sample
    i swear they are only interested in making money and just want to do the colonoscopy you think when i told them no they would have suggest all other non invasive tests
    i have tried some probiotics but there are so many to chose from i have no idea what i am doing i took one 15 billion units one for a month and it did absolutely nothing ,then i tried one that was 50 billion and i took one and had a not so great reaction to it and the next day got a bad nosebleed ,which i never get ,now i am taking some dairy free drink probiotic but i feel like these are too weak and not helping me, but the strong one was too strong
    this stuff is not cheap either ,i fell like maybe i would have been helped with treatment for pseudomembraneous colitis ,they treat you with stool from a healthy donor, like a super extreme probiotic, really gross to think of it, but i am willing to try anything at this point

    for the insomnia i have tried theanine which helped at 1st but makes my head feel worse in the day, uridine , did not seem to help that much ,and magenese citrate natural calm , helped with BM’s and helped me to sleep for a few weeks but then i noticed it was having a reverse effect so i stopped , i was also taking mag citrate pills in the day too, about 600mg a day and one night i panicked and went to the ER after having palpatation at night thinking i over did it with the mag(also was starting to get watery diarheaa) but my levels were low ,one point over the min range number
    i really do not know what i am doing and just trying thing out of desperation i really do need some guidance because i can;t tell what is causing what, what is helping and what is not

    • Linda May 7, 2016 at 9:43 am Reply

      I would take probiotics with a LOT of different strains, and two a day. Make sure to get the kind that need to be refrigerated. All this stuff is not cheap, but there is no alternative. DOn’t be afraid of the glutathione. It is the mother of all antioxidants. I started out with the liposomal and really not sure if it did anything ,but started getting a “push” (like a shot) of it with all my IVs. As for the colonoscopy there is actually a stool test they can do for that now. Drs like to do the colonoscopy because if there is a problem they can take care of it while they are in there, but I had very bad experience with the last one and will only do the noninvasive test now. Almost all of us who have been floxed have had MAJOR Gi issues, and you likely now have leaky gut. I suggest avoiding all GMOS, all gluten, and make sure you are adding magnesium to your diet. I looked up NDs in your area that do IVs and here is a link. I notice the 2nd one mentions Lyme disease, and I know from when I got my IVs, people there that were getting treated for Lyme were getting some of the same IVs. If I were you I would download the dear doctor letter an head over to one of the NDs that does IVs with it. It is usually not covered by insurance, and can get expensive (I ended up gettiin around 50, but was also getting one to get off my asthma meds) But like I said, what is the alternative if you want to get well? https://naturopaths.healthprofs.com/cam/prof_results.php?&city=Boston&state=MA&spec=3673

    • Anna July 19, 2016 at 3:37 am Reply

      Tony, did you end up using the liposomal glutathione? If so, any side effects or new flare ups? I also have it, but still have not opened the bottle. Currently have a flare up of symptoms: various tendon pains, dizziness and loss of balance is unfortunately back again, so a bit afraid to make things worse. Thx

    • Mike September 12, 2016 at 5:42 pm Reply

      Tony , how are you doing ?

  20. Lynda Smith May 28, 2016 at 12:00 am Reply

    The non-invasive test for colon cancer is called Cologuard. I am 74; it is completely covered by Medicare. The test is ordered by the doctor who takes care of all the paperwork. The kit is mailed to you, you provide a stool sample, and drop it off in the original box at any UPS location. As a result of having been floxed and still suffering from the adverse effects and widespread body pain caused by the ciprofloxacin (5 -500 mg pills taken March 13-16, 2015), I am hesitant to have any medical procedure done or take any prescribed pharmaceutical. In short, I will take my chances; nothing could be worse than this. This might seem like a dumb question, Lisa, but as fluoroquinolones alter DNA at the cellular level, does this invalidate the results of the Cologuard (from the DNA)? Would that also mean that ordering ’23 and Me’ or any test dependent on DNA sampling be invalid as well? If there has been anything good that has come of all this, it is this: when people see me struggling to walk with a cane or any evidence of my disability, they smile and offer to help. Seeing this goodness in humanity is very uplifting.

    • L May 28, 2016 at 8:29 am Reply

      I’m with you, Lynda! I want to avoid all western medicine if possible, since being floxed. But I also will NEVER get a colonoscopy again. Before I was floxed, I went to have one. They gave me a list of stuff like gatorade and enemas and stuff to buy and the day before was miserable. Beyond just uncomfortable. Then the morning of, the person driving me actually had to stop a couple times because I still “had to go.” Then I got there and they hooked me up to the IV HOURS before the procdure. THere were several of us in one hospital room and relatives of the others were in there. When I had to get up to go the bathroom I had to hold my gown shut with one hand and the IV pole with the other. The sink was on the outside, so without a third hand I was kind of screwed as far as washing up afterwards. AT one point one of the nurses or aides took my dirty shoes and put them up on the gurney with me. And then, the tube that was supposed to go inside me fell on the floor and they just picked it up and put it back on the gurney. As I was being wheeled in I had to ask a nurse for a new one. Meanwhile, the drug they supposedly gave me to sedate me was doing NOTHING. I could feel the thing going in and after a few minutes the doctor said “I can’t complete this. You will have to come back.” My response was “No way in hell.”

      I had heard about this other test. Thanks for the name.

  21. Lynda Smith May 28, 2016 at 6:16 pm Reply

    You are so right, Lisa – ‘No way in hell’; one good thing that has come about after having been floxed is our sharpened senses to the lies perpetrated by the medical community and our refusal to no longer be vulnerable to the dictates of the medical profession. I wish everyone who is considering having a colonoscopy could read about your horrific experience as you presented it here. More horror would have certainly followed if you hadn’t gotten out of there. People should know that there are alternatives: Cologuard, Fecal Occult Blood Test, and Flexible Sigmoidoscopy. Furthermore, the Colonoscopy cannot detect any cancers on the right side of the colon, it can only detect and clip the precancerous polyps that protrude out, not the flat ones, 15,000 people a year die from this procedure (1 in 1,000), the chance of colon perforation is greater than they would have you believe, the equipment in 85% of the procedures is not properly sterilized (Cidex is used because it is pennies cheaper, not peracetic acid). Therefore, contaminants and infection can easily be passed from one patient to another. More often than not, you are left with gastrointestinal problems for the rest of your life, etc. As long as the lunacy of animal testing persists, these toxic drugs put out there to an unsuspecting public will continue to kill 300,000 people a year and permanently damage and cripple more than two million. Fluoroquinolones head the list. Your recovery and success is so very inspiring, Lisa – it gives us hope that we too will get better.

  22. Ned June 16, 2016 at 12:56 pm Reply

    Hi and thank you all for your comments. I took cipro 500mg 2x a day, July, 2015. Coming up on 1 year and I am still dealing with CNS stuff, anxiety attacks, morning hallucinations, depression and brain fog…and I’m recycling again as I write. I take paxil, a fluoride based anti depressant and Mirtazapine which I need for ocd. Every time I get upset, the anxiety is exaccerbated by s/e. I have had a lot of anger which I think is partially a result of my brain being poisoned. It is difficult to have a conversation on the phone. Listening to someone for more than a few minutes upsets me. I was never like this before. Could this be the cipro? Would appreciate any response. Thanks.

    • L June 16, 2016 at 1:31 pm Reply

      Absolutely, Ned. And I want to tell you that studies have shown anti-depressants to be no more effective than placebos. I spent most of my life on them, until I read about another study where turmeric outperformed prozac. That was it for me. I weaned off my antidepressants, while starting on turmeric and was doing GREAT until I was floxed.

      So many drugs have fluoride which of course exacerbate FLQ toxicity. I had them in my asthma inhalers (as well as steroids) so I got H2O2 IVS for my lungs while I weaned off of those.

      I was on Paxil about 15 years ago, and decided to stop, and wasn’t aware at the time, but got little electrical like jolts in my head and body, from coming off too fast. When I figured out what it was, I went back to low dosages and then SLOWLY weaned myself off. IMO, the best thing you could do for yourself is wean off of the Paxil, and start taking turmeric (standardized to 95% curcumin) 1000 mg a day. It has the added benefit of being antiinflammatory, helps with gut issues and may offer some pain relief. Plus, the last thing you need right now is any fluoride.

  23. Manu June 21, 2016 at 10:23 pm Reply

    Hey lisa.. m so happy for you and you are doing a great job.. i was floxed exacty 1 year ago and i am 70 prcnt better now and plan to write a complete recovery story in the coming year.. i havnt tried intense workout but m able to walk for 2-3 miles without any problem and do around 100 pushups.. my job requires me to be on my feet for 10 hours a day wich i am able to manage sometimes with ease and sometimes i have to push it hard but i manage it pretty well.. all this seames to b impossible for the first few months.. i did go for many supplements early on like b12 shots and vitamin d shots.. but nw i only try to eat clean without any supplements.. the only thing that bothers me now is if a need to take an antibiotic or if i fall ill will it bring me down to the same level.. i have read your comments about safer antibiotics but just want to know have you experieced any difficulty by taking any medicine post floxing after you have recovered.. also please advice me can i take alcohol again as i havnt touched it post floxing.. awaiting you response.. cheers

    • Lisa June 22, 2016 at 7:44 am Reply

      Hi Manu,

      I am so glad to hear that you are recovering and that you are 70% better! I’m also glad that you have been able to maintain your job. It can be really hard. Good job getting through the first difficult months! I hope that you’ll continue to get better and better.

      I have taken very few medications post-flox. I have taken a couple of over-the-counter antihistamines to help with cold/allergy symptoms. I tolerated those well. I have also taken a couple of Tylenol which I also handled well.

      I have gotten rid of mild UTIs by using supplements and foods to flush them out of my system.

      If I ever have to take antibiotics again, I will be scared too. It’s a frightening prospect post-flox.

      I am able to drink alcohol. I suggest that you start slow, and don’t drink excessively, but, other than that, I think that most people tolerate a little alcohol fine. My tolerance is lower than it used to be, and drinking feels different, but I am able to do it. Of course, it’s hard on your liver, so take that into consideration too.

      I look forward to reading your recovery story when you are ready for me to publish it!

      Regards,
      Lisa

  24. ali June 26, 2016 at 1:16 pm Reply

    How nice to see there are others ,not nice but a weird comfort I guess!

  25. Kasia July 2, 2016 at 9:32 am Reply

    Hello Lisa, I was floxed about 4 months ago, aftes 5 days x 2 pills of Cipronex, I had swollen and aching joints and muscles in legs and hands and burning skin. After two weeks I was able to walking and working 11 hours for a day in pain and with swollen legs, it was improving. Now I’m having a relapse, maybe because of very big stress. Unfortunately with cipro problems came back my anxiety disorders and I have to quit my job. I should have an laparoscopy but I didn’t sign consent because of many drugs that they wanted to use during operation. Have you heard about floxie having operation without cross-reactivity drugs with cipro? (I’m talking about anesthetics, opioids, etc)
    Your history and tips for life gave me hope and helped me with side effects, I’m very grateful, thank you!

  26. Briana July 2, 2016 at 5:35 pm Reply

    I’ll be honest, I usually try to avoid websites like these, because I always end up crying. I am a hypochondriac, so reading stories that are worse than mine send me into a panic attack.

    I am 19, just about to start college, and took 3 750 mg pills of Levaquin almost 2 months ago. Within hours of my first dose, I felt stiffness in my knees, but I tried to ignore it in case I was imagining it.
    By the third day, I felt soreness in both of my Achilles, and still had aching knees. I immediately stopped the antibiotic.

    These problems are still with me (thankfully the only problems, so far) and now I have minor tendon pains all over my body (Achilles tendons being the worst), along with muscle cramps, and twitches.

    I will say that I am not in major pain, but definitely sore enough/uncomfortable to take 2 ibuprofen every day. Is this okay? I find that it takes the edge off, but I don’t want it to hinder my recovery.

    What are the odds of me rupturing my Achilles tendon? (A major fear of mine.) I currently work on my feet for 4-8 hours everyday. Surprisingly, I find that it does not make me hurt any worse, if anything maybe better, but I don’t understand how that makes sense for tendinitis, they tell you to REST as much as possible to heal.

    When would you guess that I will recover by? I find that my case is thankfully, better than most, but I don’t know if that guarantees me to recover quicker, or if at all.

    I understand that everyone is different, but I would love if anyone could give me some advice/insight. Its really difficult for me to research this online as it really gets me down.

    • L July 2, 2016 at 5:40 pm Reply

      HI Briana–I would urge you to not take Ibuprofin. NSAIDs as well as steroids are to be avoided. They can exacerbate the side effects. I think it is a very positive sign that it has been two months and your experience is limited to this. Tendon ruptures can occur for some months, even up to a year or more after, so I would just be aware of any changes you feel. Also make sure you are getting a fair amount of magnesium and avoid fluoride. There are a lot of good suggestions on this site for what has helped people with various side effects, and I imagine Lisa will have some good advice too.

  27. Briana July 2, 2016 at 5:46 pm Reply

    L, thanks for replying! I recently started Prozac for anxiety, and I know this is made of fluoride. Yikes. I guess I should come off of that.

    I also started supplementing with Magnesium Citrate, but I swear it makes everything worse; the muscle pain, spasms, tendinitis, everything. But this goes against everything I’ve read about Magnesium..hmm.

    • L July 2, 2016 at 5:58 pm Reply

      Yeah, sadly fluoride is in a LOT of meds, including the asthma meds I was on and had to ween off (successfully with H2O2 IVs.) I read several years ago that a study showed turmeric was better than prozac for treating depression. I was on a different antidepressant, but I went off it while I started on turmeric and was doing great until the cipro hit me. (Now studies show NO difference between antidepressants and placebos! Another big money maker for big pharma.)

      Magnesium really gets depleted from FLQs. The trouble with mag citrate is usually just that it can cause diarrhea. It is usually very helpful for most who have been floxed, but I think I may recall one other person who said they had trouble with it. If you want to give it another shot, I would take a different form like magnesium taurate, or orotate. There is also a really good book published by a doctor who studied FLQs, called “How We Can Halt the Cipro and Levaquin Catastrophe: The Worst Medication Disaster in U.S. History,” by Dr Jay Cohen. He offers a lot of suggestions at the end, as far as treatment.

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