Most people don’t understand fluoroquinolone toxicity. They don’t understand the complexity or severity of chronic illness brought on by fluoroquinolone antibiotics. They don’t understand the pain. They don’t understand the timeline – that it takes a long time to heal from getting “floxed,” and that some people don’t heal at all. They don’t understand delayed reactions, or continuing decline. They don’t understand the mechanisms of fluoroquinolone toxicity. They don’t understand how a pharmaceutical, an antibiotic no less, can cause multi-symptom, chronic illness.
The only people who really, truly, completely understand, are the people who have been through it themselves.
That, more than anything else (in my opinion), is what makes these two medical practitioners (one D.O. functional medicine practitioner, and one pharmacist functional medicine practitioner) uniquely qualified to treat fluoroquinolone toxicity patients.
They have been floxed themselves. They know what it’s like. They understand the pain, the fear, the complexity, the lack of resources available, the horror of a bomb going off in their body, etc. They know what it’s like to go from healthy and active, to being in a wheelchair because of a disabling reaction to Cipro, Levaquin, Avelox, or Floxin. They understand because they have been there. They truly have empathy for victims of fluoroquinolones because they too are victims of these drugs.
The two featured medical practitioners have also healed. Their healing journeys are different, but their results are the same–recovery.
After they healed, they decided to so something to help the “floxie” community, and devoted their practices (or at least a portion of their practices) to helping people to overcome fluoroquinolone toxicity. I am hopeful that their services will help hundreds, if not thousands, of people to heal from fluoroquinolone toxicity.
Here is some information about each of them.
Dr. Mark Ghalili, D.O. of Regenerative Medicine LA:
Most people in the fluoroquinolone toxicity community have seen the feature of Dr. Ghalili’s story on CBS Los Angeles:
On the Regenerative Medicine LA web site, Dr. Ghalili’s bio states:
Dr. Ghalili’s passion lies in teaching his patients about chronic disease, prevention, and finding the underlying reasons for an illness. At an early stage in his career, he noticed the future of medicine becoming a medication cure-all for all patient’s ailments. Dr. Ghalili realized that the traditional methods and ideologies used in Western Medicine that were taught to him failed to provide any insight into functional and regenerative medicine. He realized millions of American’s are suffering from chronic disease and need a whole body approach taken in order to heal. Dr. Ghalili has dedicated his life towards offering care to people living with medical conditions that are not being improved by traditional medicine; his own personal journey will allow him to positively impact patient’s lives.
I have spoken extensively with Dr. Ghalili, and I know that his ordeal with fluoroquinolone toxicity was harrowing and traumatic, and that he has made a remarkable recovery. Dr. Ghalili has agreed to write a recovery story to be published on Floxie Hope, and he will also be featured in a podcast episode (both to be published at a later date).
You can read about Sujata’s journey through fluoroquinolone toxicity on Sujata’s Story – Cipro Poisoning and Recovery. In her story, Sujata describes how active and healthy she was before she took Cipro, and how she ended up in a wheelchair after getting “floxed.” She describes how Western Medicine let her down, by both failing to have answers and failing to give her acknowledgement. She tells us what things she has done, and continues to do, to heal her body, mind, and spirit. It’s a wonderful story, and I encourage you to read it.
You can read more about Sujata, and her journey through fluoroquinolone toxicity, on Journey with Sujata. Here are some highlights:
My name is Sujata, and I am excited to share my story and journey through fluoroquinolone toxicity, fibromyalgia, hope, recovery, and ultimately reclaiming my life. My hope is that through my journey and the results of my research and development, I will be able to offer you that same hope so that you can reclaim a joyful, hopeful, vibrant and healthy life.
Given my age and my excellent health, I had no idea this could impact my life so drastically. I started noticing tendonitis in various areas of my body, which progressed to all of my tendons. Over the course of a week, it began impacting my nervous system, all of my muscles, my joints, and my cognitive (brain) function.
This is when my quest for information began. I was determined to figure out what the root cause of this side effect was and how I could treat and reverse it. So many of the symptoms of fluoroquinolone and fibromyalgia overlap, and I started finding the congruencies between each. I had nothing to lose and everything to gain. This was my inspiration to find anything and everything I could to reverse this life altering condition. I had to think outside of the box, using my pharmacy background, my knowledge of biochemistry and medicinal chemistry, and really thinking about what was happening at a cellular level. It was not as simple as searching “cure for fibromyalgia” or “reverse fluoroquinolone toxicity” on the internet. I wanted to understand how to stop the progression of this illness, rid the toxins that contribute to the progression of the illness, and how to rebuild healthy cells to regain health and vitality.
I could have kept my findings to myself. But as I read through message boards and blogs of no hope and lives of devastation, it literally brought me to tears. I simply must share my findings, insights and products with anyone who could possibly benefit. It is my mission to educate and help as many people as I can who are suffering from fibromyalgia and fluoroquinolone toxicity. It is my mission to offer hope, clarity, and an avenue to recover and heal.
I have regained my mental clarity, my vitality and thirst of adventure in my life. I have come out of a two and a half year long depression, I have re-ignited the spark within me that makes me want to experience everything life has to offer, and I know that if I can do it, so can you. I want that for you. I want you to feel the hope, I want you to walk the steps of healing yourself, and I want you to live again. I want you to feel empowered within yourself and KNOW that you too, can live the life you are meant to and WANT to live! Journey with Sujata is here to support you, guide you, and walk with you as you journey to health.
I have corresponded with Sujata extensively, and, in addition to her story, she has written a guest-post for Floxie Hope (that, as of the publishing of this post, I have yet to publish–but will soon).
Both Dr. Ghalili and Sujata Patel practice medicine in ways that are outside of the norm. They are not typical medical practitioners who approach the world in a typical way. This is probably a good thing, seeing as most “floxies” have not been able to find help or answers from typical mainstream doctors (though some have – there are good and bad medical practitioners of all types). They are both Functional Medicine Practitioners, which, according to Dr. Mark Hyman, means that:
Functional medicine addresses the underlying causes of disease, using a systems-oriented approach and engaging both patient and practitioner in a therapeutic partnership. It is an evolution in the practice of medicine that better addresses the healthcare needs of the 21st century. By shifting the traditional disease-centered focus of medical practice to a more patient-centered approach, functional medicine addresses the whole person, not just an isolated set of symptoms. Functional medicine practitioners spend time with their patients, listening to their histories and looking at the interactions among genetic, environmental, and lifestyle factors that can influence long-term health and complex, chronic disease. In this way, functional medicine supports the unique expression of health and vitality for each individual.
It should be acknowledged that consultations and treatments from both Dr. Ghalili and Sujata are more expensive than most traditional doctor visit co-pays. Medical providers who practice outside of the traditional system tend to be more expensive for consumers (in part because none of their business expenses are covered by insurance payments/reimbursements). The hefty price-tag that comes with their services does not make them greedy, and it does not mean that they are praying on people. I’m sure that they both have good reasons for the amounts that they charge, and, from what I’ve heard, their fees are in-line with those of other Functional Medicine Practitioners.
Both Dr. Ghalili and Sujata Patel saw that there was a need for medical practitioners who understood fluoroquinolone toxicity, and they did something about it–they became Functional Medicine Practitioners who specialize in fluoroquinolone toxicity. They are using their extensive medical training to help “floxies” and their help is appreciated!
Hopefully more medical practitioners will start recognizing, and even treating, fluoroquinolone toxicity. I don’t hope for anyone to get “floxed,” and I hope that the desire of other medical practitioners to help people heal from fluoroquinolone toxicity stems from our collective advocacy efforts, rather than the horrifying experience of going through fluoroquinolone toxicity themselves. But, with that noted, medical practitioners who have personally been through fluoroquinolone toxicity can empathize with “floxed” patients, and they have a perspective that is unique and valuable. I appreciate both Dr. Mark Ghalili and Sujata Patel, and I hope that both of their practices are successful and that they help many people to recover from fluoroquinolone toxicity.
End note – I am not affiliated with either Dr. Mark Ghalili/Regenerative Medicine LA, or Sujata Patel/Wellness with Sujata/Journey with Sujata in any way. I’m not receiving any money from either of them. I have corresponded with both of them, but neither I (Lisa Bloomquist Palmer) nor Floxie Hope, are monetarily involved with either of them in any way.