Writer’s Block, Advocacy Works, Getting Stronger, and Rivers Full of Antibiotics

I am having horrible writer’s block, and I haven’t thought of a thing to write for floxiehope.com in a while. I apologize for the neglect, but I’m really struggling with finding the time, energy, and motivation to write about this very important topic.

This post consists of the few FQ-related thoughts that have been running through my brain lately, but it’s not a very fluid or comprehensive post, and I apologize for that.

If you are interested in helping me to keep this site active and relevant by writing a guest-post, I would greatly appreciate your help! Here is a link with info about writing for Floxie Hope:

https://floxiehope.com/2017/12/07/write-for-floxie-hope/

If you have topic requests that you would like me to write about, I am open to suggestions. Please don’t hesitate to contact me.

*****

I have been meaning to write a post about the recent finding that most of the planet’s rivers are polluted with antibiotics. This is a topic that deserves its own post, but I haven’t gotten around to it yet. Anyhow, here are some articles about this awful travesty:

  1. The Guardian, “World’s rivers ‘awash with dangerous levels of antibiotics: Largest global study finds the drugs in two-thirds of test sites in 72 countries
  2. CNN, “The world’s rivers are contaminated with antibiotics, new study shows
  3. National Geographic, “First global look finds most rivers awash with antibiotics: Almost two-thirds of the rivers studied contained enough antibiotics to contribute to the growing problem of antibiotic-resistant bacteria.

Nothing about this is okay. Rivers have microbial communities that need to be alive for the health of the river and all the life within it. Killing bacteria throughout a river ecosystem is wrongheaded and likely horribly consequential for all the life in the river. As people ingest the water from the river, they are getting dosed with antibiotics, some of which are fluoroquinolones, and thus increasing their risk of suffering from fluoroquinolone toxicity and other adverse-reactions to antibiotics. Constant low-level ingestion of antibiotics is horrible for the human microbiome too, and microbiome destruction and imbalance is linked to many diseases. And, of course, low-level constant dosing of antibiotics leads to antibiotic resistance (the main problem that these articles focused on). It’s awful and tragic and depressing.

*****

On a happier note:

I went on a hike this weekend with my Dad and a couple of his friends. One of his friends mentioned that her 90-year-old father was saved from getting floxed because she was aware of the dangers of fluoroquinolones and told the doctors in no uncertain terms that they were not to give her elderly father these dangerous drugs. She was aware of the dangers of fluoroquinolones because of my advocacy efforts, and it felt really good to hear that from her. We know each other through my dad, not through any of my patient-advocacy work. Still, she heard and she listened, and she kept her father away from these dangerous drugs. One person at a time – the word is getting out and people are listening. Keep posting about the dangers of fluoroquinolones. Keep screaming about the damage these drugs have done to you or your loved ones. People are listening.

Here are some posts on both spreading the word about fluoroquinolone toxicity, and people listening:

  1. Friends Don’t Let Friends Take Fluoroquinolones: Four Stories
  2. Keep Banging That Drum

*****

I have been hiking a lot lately. Though I have been on dozens of hikes post-flox, something has shifted recently. I am strong again, and I’m capable of getting stronger quickly. Strong and capable of building muscle easily and quickly was how I described myself before I got floxed. Cipro made me feel weak and incapable, and I certainly didn’t describe myself as strong post-flox. After I recovered from the acute phase, I could move and exercise moderately, but I never felt like I was increasing my capacity or getting stronger. Lately, I have returned to feeling strong. I went on two pretty intense hikes this weekend (both about 5 miles, with a significant amount of elevation gain), and I felt strong during and after both of them. I have been doing after-work 50-minute hikes lately that have been getting easier and easier. It feels really good to not only be capable, but to be strong and fit. I didn’t feel that way for a very long time.

As always, I mention these gains not to brag or to make light of the horror of fluoroquinolone toxicity, but in hope that my recovery gives you hope for your recovery.

Love and hope for recovery for all of you!

Hugs,

Lisa

*****

 

 

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11 thoughts on “Writer’s Block, Advocacy Works, Getting Stronger, and Rivers Full of Antibiotics

  1. heath June 19, 2019 at 11:46 am Reply

    Thank you for all that you’re sharing. In particular, thanks for sharing your improving fitness.

    I have, hanging by my front door, a pair of Nordic walking poles, waiting for me to be fit enough to used them. Seeing you with your trekking poles makes me feel like maybe I will get there one day.

    About the writer’s block, I know that for me, when I’m doing a significant amount of healing, I can’t divert energy from that, into communicating with others about this condition, or the dangers of fluoroquinolones, despite the importance of these issues. At those times, it is right to be focused on self-care.

    And so kudos to you, for giving yourself enough emotional grace to not force your writing, so you can keep your energy where it belongs, on your continued healing.

    • Lisa June 19, 2019 at 12:17 pm Reply

      Thank you! <3!

  2. Patrick Jordan June 19, 2019 at 2:54 pm Reply

    When you mentioned elevation, my first thought was:
    I wonder what pH and redox responses FQs have in vivo?
    The gurusphere is all about oxygen but then there is some recent pushback that good oxygen exchange and controlling asthma is more about the carbon dioxide than it is the over-hyped oxygen. I’m not a personal fan of rarified air but it may have its place in restoring health. There might have been more than sunlight going on in TB sanitoriums.

    • Lisa June 19, 2019 at 8:24 pm Reply

      Managing CO2 levels is as important an aspect of breathing exercises as managing oxygen levels. Some “floxies” have experienced alleviation of symptoms when they go down in altitude. I have healed living above 5k feet above sea level, but perhaps being at lower altitudes may help others. Or are you saying the opposite?

      • Patrick Jordan June 19, 2019 at 11:50 pm Reply

        You just confirmed for me that the personal redox status of each person will dictate what they need. There can be no one-altitude-fits-all, but we now have a clearer understanding of oxygen/CO2 + acid/base + free radical/quench status. I think one of your earlier posters on a different thread was convinced that free radicals were at the heart of this. I will have to pull those old posts up. The gurusphere is all about getting everyone on antioxidants. What if it puts you in reductive stress and destroys your thyroid? Bad idea. Individuals require individual solutions. I can’t get out of my head that the official literature for glyphosate (for famers making tank mixes to spray it) admit that it is a weak acid that can be neutralized by lime water (calcium carbonate). This is acid/base chemistry. Plus/Minus. Simple stuff. So whereas there are those out there pushing apple cider vinegar like used cars trying to get people to alkalize; there might be those out there who need acid. This is just at their basic physiological level. Then you toss in FQ for grins and our task is to sort out what its role in this simple +/- chemistry reaction might be. In order to get rid of calcium, phosphorus and magnesium stones in the body you need lemon juice (acid). In order to not be admitted to the hospital for uric acid stones you need baking soda. Not knowing the difference will put you in the ER. I’ve got this creepy feeling that at least palliating FQ toxicity might have an answer in simple chemistry. Not a cure, but just like taking baking soda keeps the urate crystals from precipitating from solution in the body, there might be a simple intervention. I’m sorry if you all have talked about hyperbaric oxygen before, but it would be nice to know if anyone found any relief or setbacks from it.

  3. Lukasz June 19, 2019 at 4:21 pm Reply

    Hearing about antibiotics in the world’s rivers makes me sick to the stomach. It’s bad enough that they’re poisoning humans and animals with antibiotics but now they’re dumping them into the rivers? What’s next? These anti-life psychopaths are stopping at nothing in their quest to wipe out life.

    On a happier note, I’m glad you’re active and living life to the fullest, Lisa. We all have varying degrees of damage but that doesn’t mean we should let these drugs stop us from making progress. Progress is about taking little steps, not big leaps. We’re all capable of it, we simply have to believe.

    Also, I’m super happy to hear that this 90 year old man was saved from these poisons. I can only imagine how many people have been spared thanks to your website and on-going advocacy work. If you ask me, you deserve the Noble Prize for the outstanding work you’ve put in over the years.

    I’ve said it before and I’ll say it again, thanks for all that you do.

    • Lisa June 19, 2019 at 8:27 pm Reply

      Thank you, Lukasz! I’ve said it privately, so I’ll say it publicly – you are a wonderful person and though I am sorry that you joined this community through getting poisoned, I am thankful for all that you have done for and given to us. You are so appreciated! xoxo

  4. Lukasz June 21, 2019 at 12:11 pm Reply

    🙂

  5. Mariaan June 23, 2019 at 11:49 am Reply

    Be blessed Lisa

  6. Jodi June 23, 2019 at 6:28 pm Reply

    Thank you for all of your excellent work! Glad to hear you are still doing so well! Do you still take supplements? To what do you attribute your recovery?

  7. Marie - Sweden June 24, 2019 at 12:46 am Reply

    Thanks Lisa
    for your interesting site which I have been following although I am not a “floxie”.
    I became interested because a person near me was given ciprofloxacin. This was in 2005, I guess. Thanks to Internet I found Stephen Fried`s book – “Bitter Pills” and http://www.fqresearch.org (the “old” one). Later on I discovered your site and others.

    When I read your text about water pollution I remembered writing to a Swedish researcher in 2011. By then he had made several trips to India to investigate the environment around pharmaceutical plants, particularly the water. I sent him an email telling him about my friend and also about the floxie-stories that I had read.

    He answered – told me to google this: ”killer pharma industry” and “State of community health at medak district”

    I am sure you will also find some information if you google “Joakim Larsson + ciprofloxacin.

    You can also google “Pharmaceuticals sold in Sweden can cause serious environmental harm in India” (12 pages). I think it`s equally relevant in USA.

    Please read Katherine Ebans new book.

    Glad to hear that you are still improving and hoping your writer´s block will disappear.
    Dr. Malcolm Kendrick in the U.K. is suffering from something similar. In spite of it he has written a very funny/interesting text with the title “Writer`s block” on June 4th, 2019 (www.drmalcolmkendrick.org)

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