Deciding Which Treatments to Try

The following is a guest post from Stephanie. If you are interested in writing a guest post for, please let me know


I really get bombarded all the time with, “go get stem cells how could you not?” I get so anxiety ridden from it. I know people mean well but it’s so hard on me. It feels like harassment and not love at certain points–like they can’t handle me being sick so I have to heal for them to be okay.

I just want people to know that whatever they do to heal is their own decision.

I’m constantly deciding–how much do I want to be tested on, and what treatments do I want to try?

I’ve been floxed for almost five years and it’s a 5 steps forward and 4 steps backwards dance where I hold onto the one step forward as best I can–because it’s better than the times where it’s 6 steps backwards and I fight just to get back to where I was.

The crazy part is that it all becomes a matter of how much I want to be tested and treated, AND how much I want to pay for it.

There still isn’t enough data to answer one simple question: Will this procedure help me or hurt me?

Because these side effects feel like a bomb went off inside my body that made things crazy, it feels like it’s impossible for any doctor–western or natural–to give me a straight answer of, Will this treatment help or hurt?

People can list out what helps but no one can know for each person. How I look at it is we are all being tested on to get more data and to pay for it.

So, I constantly have to weigh out, do I want to risk what I have for an unknown promise of healing?

That carrot is so tempting and so hard to answer.

For me, I weigh everything on what happens if it goes wrong how much will it mess up my life. How much can I afford this to mess up things?

My husband has medical issues too and he needs to be made to take care of things too.

So, it’s a dance that is never ending.

When people ask me why don’t I try this or that it’s because I don’t like to be poked and prodded and tested like a guinea pig.

I have to feel like the odds are somehow going to be in my favor because I’ve seen various experimental treatments make people so much worse, and I often think that it’s not worth the risk.

It’s easy to talk when it’s not your life and you are not the test bunny.

Why we have to pay for everything is beyond me.

Why we have to constantly be told yes these are side effects and you get to pay to maybe get your health back is beyond me.

So, for anyone out there that is pressuring someone like me to try something, please understand it’s really easy when you are not the one being poked, prodded, and tested–when it’s not your body and your life that may come crashing down if the treatment doesn’t work as-anticipated.

It’s not easy to pick what to do and how much you are willing to spend to go through treatments that haven’t been proven to work for everyone, much less everyone.


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8 thoughts on “Deciding Which Treatments to Try

  1. Don M October 1, 2019 at 9:00 am Reply

    Fluoroquinolone Toxicity is kind of like a hurricane. It appears that the medical community thinks that the Fluoroquinolones do not stay in the body therefore the affects should dissipate after secession of the antibiotic. Well! I am here to tell you it doesn’t work that way. Lets compare Fluoroquinolone Toxicity to a hurricane. The hurricane passes. It’s over but there is the destruction left. Unless that destruction is cleaned up and repaired the affects of the hurricane will last a long time or maybe permanently. So it is with Fluoroquinolone Toxicity Syndrome. The difference is that with a hurricane people know what to do to repair the damage and return the place to it’s originality. With Fluoroquinolone Toxicity Syndrome no one has yet figured out how to fully restore one to their original state. Fair comparison?

    • Lukasz October 3, 2019 at 8:49 am Reply

      Excellent analogy, Don.

    • Remus Piricsi November 13, 2019 at 2:10 pm Reply

      I would ad to that analogy that if they stay in your body , which is my case you can repair everything and the huricane can come and destroy it all again.They stay in the body for a long time for some of us it must have to do with impaired detoxification.

  2. Paula Nelson October 9, 2019 at 8:47 am Reply

    There are two new drugs folks should try – Vascepa, a super fish oil extract that is a prescription drugs. To my knowledge the only side effects would be those with fish allergies. The second drug is Anavex 2-73. It isn’t approved yet but it restores cellular homeostasis and treats the inflammatory process. It may be available in Australia this year, hopefully world wide after that. This is a curated post about Anavex 2-73 MOA:

    • Kenneth October 12, 2019 at 7:49 pm Reply

      Hi Lukasz. How are you making out these days?

      • Lukasz October 17, 2019 at 9:11 am Reply

        Hey Ken. Doing better than before but still far from where I’d like to be. How are you getting on?

    • Po October 24, 2019 at 7:37 pm Reply

      Hi – Do you know anyone in New York for the treatment?

    • Barbara Arnold May 18, 2020 at 5:27 am Reply

      This is interesting, but is in direct conflict with what the poster originally wrote. No one ‘should’ try anything they are not comfortable with, or take without researching the product. We are all different and re act differently to different suppliments, treatments etc. It’s only the individual that can decide for themselves. There is no ‘known’ cure, but suggestions on what may help can be useful, may or could are the operative words here. Not ‘should’

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