Recovered Life – Lisa’s Update

A few things have happened since I last posted. Here are some thoughts on the events that have occurred in my life and in the world, and how they relate to FQ toxicity.

I went on a big hike in the middle of July. I hiked 75 miles of The Colorado Trail from Molas Pass to my hometown, Durango. I hiked ten miles a day for the first three days, and 15 miles a day for the following three days. It was beautiful and I enjoyed it and I am glad I did it, but it was also really hard. Everything hurt while I was hiking, and it took me longer than I expected to recover.

I hiked the entire ~500 mile Colorado Trail (from Denver to Durango) in 2010, a couple years pre-flox. I was 30 at the time. It was great, and even though I remember parts of it being really difficult, I also remember feeling really strong while doing it and after I finished.

The 75 miles I hiked this year (2020), at age 40, felt hard and exhausting. I’m ten years older, and I was floxed in the last decade – and I think both of those factors led to the pain and exhaustion I experienced.

BUT, I fully realize that I shouldn’t complain about pain or exhaustion from hiking 75 miles. I was, after all, ABLE to hike 75 miles in 6 days, and for that I am incredibly grateful. I couldn’t have done that through most of my thirties because of fluoroquinolone toxicity. For a long time my body was too weak to do a major multi-day backpacking trip. I have considered myself to be recovered for a while, and now my body is able to do really difficult physical activities again. It’s good, and I am grateful for the recovery I have experienced. I also hope that stories like this help those reading this to imagine the possibility of doing physically difficult things post-flox. Hiking 75 miles was hard, but my post-flox body was able to do it.

Here are some pics from my trip:

After returning from my Colorado Trail journey I adopted a couple kittens from the local Humane Society. Their names are Johnny and Bobby and they’re adorable and I love them to pieces already.

There’s a lot of angst in the world right now. I feel angsty and fearful and I am quite certain that I am not alone in those feelings. Kittens help. Not that I got them because of stress or politics or general angst – I got them because I love cats and my beloved Rickie-cat passed away at the age of 17.5 in late-June and I wanted/needed some kitty-love in my home. With that said, kittens are making my world a lot happier. I also think that the love of a pet is healing, and that it may even help with getting through fluoroquinolone toxicity (as it did for Gigi – you can read her story of healing with the love of a pet HERE).

Here are Johnny (tabby) and Bobby (black):

Of course, the big thing going on in the world right now is COVID-19. It sucks. Everything about it sucks. That’s my in-depth analysis on COVID (and probably all global pandemics).

I have posted a few things about hydroxychloroquine on my facebook page – some pro, some anti. My main opinion on it at this point is that everyone – EVERYONE – is subject to confirmation bias. The doctors who have used hydroxychloroquine “successfully” are subject to confirmation bias (even the non-crazy ones). Of course doctors are biased just like everyone else – that’s why double blind randomized controlled studies are necessary. The “peer reviewers” and editors at the Lancet, one of the oldest and most respected journals, are also subject to confirmation bias, as shown by the fact that they were quick to unquestioningly publish a study full of fraudulent data that showed that hydroxychloroquine was not effective and that it actually caused harm. Their confirmation bias made them unable to see obvious flaws in the study (“A first-year statistics major could tell you about major flaws in the design of the analysis”). The WHO halted all studies of hydroxychloroquine for treatment of COVID-19 based on the Lancet-published (fraud-filled) study – and the WHO decision-makers should have known better and checked their bias too. No one at the Lancet or the WHO bothered to check their bias against the drug, and every single one of them should have known better. The job of peer reviewers and journal editors is to question what they are given, and the Lancet reviewers and editors failed miserably at doing so. The article that I’m referring to has been retracted by the Lancet, and you can read all about the scandal around it by searching “lancet hydroxychloroquine article retracted.” Anyhow… double-blind randomized controlled studies are necessary to eliminate confirmation bias. The randomized controlled studies of hydroxychloroquine have shown that it is not an effective treatment against COVID-19. This will probably come as a relief to many floxies because many people who have had a disastrously awful reaction to fluoroquinolones are understandably hesitant to take a drug that has a similar chemical structure. Hopefully alternative treatments will be available to most floxies (and everyone else) who end up getting COVID-19.

Many of you already know this from the comments on the floxiehope home-page, but I should mention to those who just read the posts that our friend Henk Noordhuizen passed away on June 10, 2020. His loss is grieved by the Floxie Hope community as well as his friends and family. Henk was an outspoken advocate for victims of fluoroquinolones, and his advocacy and friendship are missed.

I am assuming that most of you would rather read posts that contain helpful information about fluoroquinolone toxicity rather than posts that update you about my life. I am sorry for not having the time, energy, or inclination to write those in a while. I encourage all my floxie friends who have something to say about fluoroquinolones to submit a post for publication on this site. I’m happy to put up posts written by other people. Also, this site was originally intended to be a place where people could share their stories of hope and healing from fluoroquinolone toxicity, not a blog for me. But it morphed into a bit of both, and I think that both have been good. As I get slower on the blogging bit (out of laziness, forgetting the pain of fluoroquinolone toxicity, other things going on in my life, etc.) I hope that this site is still a place where people can share their stories of healing from fluoroquinolone toxicity. I’m still publishing inspirational stories from brave and wonderful people who have recovered from fluoroquinolone toxicity. If you have a story of hope and healing, please reach out. Thank you!

I wish all my floxie community hope and healing! xoxoxo

*****

 

 

 

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27 thoughts on “Recovered Life – Lisa’s Update

  1. Tracy Whiteside August 14, 2020 at 8:04 am Reply

    I’m soooo happy for you, bless your heart, I have double DNA strand breaks, so, I feel rather hopeless, God Bless, glad your healed, much love to you, and, all floxxed people.

    • Lisa August 14, 2020 at 5:04 pm Reply

      Thank you, Tracy!!

    • CAWS September 5, 2020 at 3:02 pm Reply

      Tracey,
      Many of us do but there are workarounds. Check out what Amy Yasko PHD is doing up in Maine. I use her Black Bear Hydroxy B-12 to control my peripheral neuropathy & plantar fascitis. She has a book called Genetic Bypass and sells some cutting edge supplements.

      • TruthTime September 5, 2020 at 5:45 pm Reply

        What is double DNA strand breaks? Symptoms please and how did you know?

  2. L Livingston August 14, 2020 at 8:38 am Reply

    I love hearing about your adventures! And sadly, medical journals (like the FDA, CDC) have been corrupted by pharma. Here is one of many peces about that https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1126057/ L

    • Lisa August 14, 2020 at 5:05 pm Reply

      It is so sad – tragic, really.

  3. Joyce Gardner August 14, 2020 at 8:44 am Reply

    We all appreciate the great work you have done in support of the Floxie community. Your kittens are adorable & give great cuddles when needed. Please remember to take time for yourself. Wishing you health & happiness!

    • Lisa August 14, 2020 at 5:06 pm Reply

      Thank you so much, Joyce! Wishing you health and happiness too!

  4. sandra duvall August 14, 2020 at 8:15 pm Reply

    Interesting that hydroxychloroquine an chloroquine have been used against malaria,lupus, rhematoid arthritis should be painted as dangerous when in use for 50+ years. sandu5Documented, significant heart issues appear with long term use, but not for a week of treatment as has been used successfully in early treatment of covid by a number of doctors in Texas and one (that I know of ) in Monroe New York..as well as in France. What astouonds me is that the drug was taken off the market by pharmacists or governors….I believe a lot of people died because there was “no” treatment early enough to save them.

    • Lisa August 16, 2020 at 5:37 pm Reply

      Thanks for your input, Sandra. We shall see how this evolves.

  5. Chris Sharp August 14, 2020 at 10:38 pm Reply

    Well done Lisa, you are an inspiration to what is possible to recover from FQAT. Keep it up !! I went to my doctor yesterday, to show him the astonishing symptoms of recovery I am now experiencing like standing up, walking, and the incredible changes in sleeping well. For me the most incredible change has been the effect of my blood sugars which I monitor 4 times a day fo type 2 Diabetes. As an experiment, I stopped taking the go to Diabetes drug “Metformin” in February 2020 because I was worried that Metformin was adversely affecting my liver. Astonishingly instead of increasing my blood sugars, I discovered they reduced by 50% so they are now in the normal range. The notion of a chicken/egg scenario has long been a suspicion the FQAT caused Type 2 Diabetes was suggested in another FB FQ group, do, I decided to try this experiment. Standing back from this problem you realise that FQ can cause Diabetes and then the drugs they give you keep you knee deep in diabetes drug therapy for the rest of your lives. How corrupt is that Big Pharma?

    • Lisa August 16, 2020 at 6:07 pm Reply

      Thank you for your insight and input, Chris! Others could certainly learn a lot from your experience, and I welcome reading your story whenever you write it. No pressure though. 🙂

      We’ve been friends for a while so I’m assuming that you have seen this post (we may have even discussed it – if so, sorry for the lapse in memory), but in case you haven’t, here’s a post with connections between diabetes and FQs – https://www.hormonesmatter.com/fluoroquinolone-antibiotics-diabetes-risk/

      Whether it was their intent or not, pharma certainly has created a situation where they cause the problems they are supposed to fix. It’s awful and will not be viewed kindly by history.

  6. Azz August 15, 2020 at 1:01 am Reply

    I remember doing the overland track in Tasmania when I was only 12 years old, 8 hour walks a day without concern. Now I can’t walk for longer then 15 minutes without intense pain, that’s at the age of 36 and being poisoned for 3 years. I hope I can be like most and recover from this life of suffering.

    • Lisa August 16, 2020 at 6:08 pm Reply

      I hope so for you too, Azz! Hugs, my friend.

  7. Barbara Arnold August 15, 2020 at 4:26 am Reply

    Hi Lisa,
    Thanks for your post/blog. Firstly it’s ‘your’ site, so blog away as much as you want. You’ve done more for us ‘floxies’ than I can say. It’s always great to hear from you. Always interesting. I think your flippin amazing to do all that climb/hike. God knows how you do it, but you are a massive inspiration to us all. Congratulations and very well done.

    I love the editions to your family, so cute. I had two cats for 17 and 18 years 15 years ago. I still miss them today.

    After all the publicity, FDA EMA warnings etc, this poison is STILL being dished out on a daily basis by Doctors. It makes me so mad that peoples lives are still being devastated. I’m sure many of us have made a little difference in our own ways of getting the message out there. I know my local health centre no longer prescribes fluroquinolones, but my local hospital still does. All each of us can do is warn others at every opportunity, at least then people will have an informed choice, unlike the rest of us who have suffered for years.

    Your analysis of covid19 just about sums up what I feel about it. It sucks, everything around it sucks. However I’m one of the lucky ones, because I live in a small Spanish town and apart from mask wearing, things ‘seem’ pretty normal. I don’t go out as much as I used to, but again, I’m lucky, I have a house with a pool, so all my needs are met here. The rest of the world seems mental to me. 2020 will be the year of crap.

    To finnish on a positive note, I am doing pretty well for my age 77yrs, in my subjective analysis I would say I’m 90% better. I get to that percentage by comparing what I was like nearly 6 years ago. A ton of horrendous symptoms and wheelchair bound to swimming 50 lengths every day in summer, walking for at least half to an hour when out grocerie shopping. I’ve done 3 long haul vacations, and yes it wasn’t easy, painful and tireing, but worth it. I do get regular flares, but I’ve learn’t how to manage them, so most of the time they don’t get to me to much. I’ve been to hell, but came back, and on the way my husband had cancer and we got through that even though they were some of the darkest days of my life. So to all my lovely floxie friends, remember, you CAN improve immensly even if you don’t fully recover. You can get to a point where life is good. Just don’t ever give up.

    And another Big Thankyou to you Lisa for everything you have done for us fellow floxies.
    Hugs and love,
    Barbara xxxxxx

    • Lisa August 16, 2020 at 7:41 pm Reply

      You’re 90% better??? Congratulations! I’m so happy for you, Barbara! Are you interested in writing a recovery story? I think that the process of writing a recovery story is healing and cathartic and I recommend it to all (though I am, admittedly, biased). I am so glad that you have gotten to where life is good again! xoxoxoxoox and huge hugs!

      Thank you too for all your support and your friendship!

  8. Madge Hirsch August 15, 2020 at 2:23 pm Reply

    It is good to have news of how you are doing Lisa. Congratulations on your 75 mile hike. You have made amazing progress. This site is important for many of us and helps keep the hope for recovery alive. This month I am now five years out . I am still having relapses and need a hip replacement .I have not given up hope of healing yet but don’t think it will be any time soon! But thanks to this site I know what is wrong with me ,I recognise that I was floxed before and I did improve so this time I just have to be patient.

    • Lisa August 16, 2020 at 7:44 pm Reply

      Thank you, Madge! I know it sounds trite, but hang in there. Patience and hope are key. xoxo

  9. Bonnie August 16, 2020 at 9:25 am Reply

    The last time I had fluoroquinolones was in 2011 and was gaslighted by my doctors and my now ex-husband. I didn’t have any fq verification or support until I found your site in 2014. So thankful for your hard work and research because suffering and not knowing why is horrible whereas knowledge really does help get you through. Congrats on your growing household and your personal activities and achievements shows you can add good experiences to your life story!

    • Lisa August 16, 2020 at 7:45 pm Reply

      Thank you, Bonnie! I’m so sorry for all that you have been through! I’m glad that the site has helped. You are not alone. xoxo

  10. Adriana M August 17, 2020 at 5:36 am Reply

    Does anybody know about allergens causing a relapse of symptoms ? I’ve been experiencing allergic rhinitis since May and taking allergy pills only seemed to help some symptoms, so I did allergy testing and now I’ve started some allergy drops (the biggest culprits are dust , mold and German cockroaches ) I’ve only been on them a few days but I’m having knee and ankle pain. I had a relapse a few weeks ago so I’m not sure if has anything to do with the allergy drops and I can’t find anything on the Internet. Any advice is appreciated , I’m trying to get off of allergy pills but I don’t want to continue treatment if it’s going to cause long lasting pain.

  11. Clara August 17, 2020 at 5:42 am Reply

    Way to go Lisa! What an incredible hike! Thanks for sharing!

  12. Bj August 17, 2020 at 8:34 am Reply

    Adriana, you can get air filters and air purifiers to clean your environment perhaps instead of meds with side effects? I did a search and what do you know about this? https://www.jbbardot.com/detox-with-diatomaceous-earth-to-remove-allergies-mercury-chemicals-gmos-parasites/

  13. hslusher August 18, 2020 at 5:23 pm Reply

    Your posts are always appreciated. I believe it is more important than ever that we continue to offer hope to one another during these challenging times. I was blessed to spend last weekend in Minnesota at the 2nd Fluoroquinolone Toxicity Summit surrounded by likeminded medical professionals who are passionate about helping floxies and increasing awareness of the dangers of these drugs. I will continue to fight every day for all Floxies and spread hope whenever I can. God bless you on your journey! Heather

  14. TruthTime September 5, 2020 at 5:46 pm Reply

    Tracy Whiteside, What is double DNA strand breaks? Symptoms please and how did you know?

  15. Garrett September 15, 2020 at 11:59 am Reply

    Hi Lisa, so glad to hear about your hike!

    Just curious, how long did it take you to recover? (as you mentioned it took longer than you expected).

    Thanks!

  16. TBR October 4, 2020 at 5:35 pm Reply

    Can you please tell what you did to recover? Newly floxed in Seattle where they’re prescribing it like candy for minor ear infections.

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