About Lisa

Lisa's Fluoroquinolone Antibiotic Side Effects Recovery Story

My name is Lisa.  I was born and raised, and currently reside in Denver, Colorado.  I was born in 1979 so as of writing this, I’m in my early 30s.

I have always been an active and healthy person.  I was raised in the mountains where I hiked and camped regularly.  I even hiked the entire 500 mile Colorado Trail in 2010.  (The photo above is from my finish line.)  I grew up skiing but I stopped in my mid-20s.  Post floxing, my physical activities have changed.  Now I like swimming, pilates and walking.  Both pre- and post-floxing, being physically active has always been important to me.

I have a Masters in Public Administration and I currently work at a Community Development Financial Institution (CDFI) providing financing to developers of affordable housing.

I have a wonderfully supportive family and great friends who believed in me and believed that I would get better even when I didn’t believe it myself.  They have all been great through this ordeal.

My intention is to help anyone who is adversely affected by fluoroquinolones as much as I can.  If you need anything at all from me, please don’t hesitate to contact me.  Thank you and I hope that you are feeling well!

42 thoughts on “About Lisa

  1. oceanboundjude August 1, 2013 at 8:25 pm Reply

    Done. Thank you for helping me. I`m still looking for the glue for that copy and paste thingy. lol All the success in the world…Judith

  2. Mary Patrice Kinnavane August 8, 2013 at 9:20 am Reply

    Hi LIsa, My brain is so fogged up at the moment that I am not sure if you are Lisa Bloomquist or not. are you my friend on Facebook? are you one and the same??? I wrote you a long mail about getting floxed with Levaquin about five weeks ago. I live in the west coast of Ireland about 14 miles from Shannon International Airport in a nice little town called Ennis. I am a widow and am 69 years old. I was floxed in May 2009 and would never have known what happened to me,as I have spent 3 years trying to find out, only for you and Janet Murray of New Jersey. Only for the internet I would never have found out until I found you both. You talk lot about healing Lisa. Am I too old to ever get over this poison Levaquin and what it did to me. All the people in the USA who have been floxed seem to be very young. Is this because the old like me are not too familiar with the “IT” generation. I read everything you write as you are so full of hope and you are also pragmatic. You are an amazing help to people and an inspiration. If you know any oldies like me that were floxed please let me know I beg of you as I am in a dreadful way. I need to find out about how they are coping. Thanks again for all your good work Lisa.
    Regards and best wishes ,
    Mary Patrice Kinnavane.

  3. bisa1979 August 8, 2013 at 10:19 am Reply

    Hi Mary,

    Yes, I’m the same Lisa Bloomquist that is on facebook. 🙂

    Thank you so much for your kind words! I am so glad that I can help you! I honestly do believe that most people do recover with time. Time heals. Sometimes it takes a lot of time, and that’s frustrating, I know.

    As for your age, I don’t think that you’re ever too old to have hope. Or too old to try. Or too old to do healing things for yourself. Or too old to be kind and compassionate toward yourself. ALL of those things will help you to recover and to heal.

    I think that everything that helped me can help you. Meditation, acupuncture, a mix of supplements that seems to help, minimizing your anxiety, gentle movement (pilates and swimming are my favorites), a diet that doesn’t have a lot of junk in it, etc. You can do those things. You can.

    More than anything, believing that YOU WILL GET BETTER is important. And trying. Anything that you can do that makes you feel a little better – do it.

    Thank you for reading my site! I appreciate hearing from you! I hope for healing for you. Hang in there. You can do this.

    • sarah July 15, 2018 at 3:55 pm Reply

      Hi Lisa, can you please contact me via my email you would have through this link. I would like to talk to you about posting something on here to help people with the legal side of it and lawsuits. Thanks, Sarah

  4. frankthetank831 February 13, 2014 at 12:53 am Reply

    Hey Lisa it’s Feb 12 and and was floxed Jan 8, from just two pills of cipro, I started the second day with pain in my two knees, then the next week with anxiety attacks, last week started pressure in my two sides of my head, and mild bone popping, should I expect note symptoms along the way, or did you experience everything in a short time span?

    • Lisa Bloomquist February 13, 2014 at 9:46 am Reply

      Hi Frank,

      I wish that I had some answers for you, but I don’t. I don’t know how hard you are going to get hit. I don’t know if you’ve already seen the worst of it and are going to get better quickly, or if you are going to stay as you are now for a while, or if you are going to get worse. I just don’t know. Everyone is different.

      What I do know is that what you are going through is scary – and that there are people who are happy to support you through this scary time. The support people can be accessed through this facebook group – https://www.facebook.com/groups/46690244194/ I also know that most people get better with time. It’s true, though sometimes it’s hard to believe as you’re going through the journey. It is true though. I know that hope is helpful. I know that these “attitude tips” helped me and I hope that they will help you –

      Try not to compare yourself to how you used to be. I used to hike 20 miles in a day. I can’t do that anymore, but I can hike 3 miles today and I couldn’t do that when I first got floxed. Compare yourself to how you were yesterday, not to how you were before you got floxed.

      Do something – anything – to work toward healing, every day. Walk a little further than you did yesterday. Meditate. Take an Epsom Salt bath. Get an acupuncture treatment. Do a puzzle. Whatever makes you feel good – do it. Every little step helps.

      Don’t kill yourself. Have hope. You will get better.

      You’re not crazy. You’re sick. Have hope. You will get better.

      You’re not stupid. You’re sick. Have hope. You will get better.

      Try not to identify yourself as sick. The mind is a powerful thing so try to stay positive. It’s hard, I know. But try, because it’s worth it.

      You will have bad days. They will pass. This all will pass. It is not permanent. You are strong – present tense. You were knocked down, but you weren’t killed. You will get better.

      Don’t quit your job. Try to maintain as much normalcy in your life as you can.

      It is not your fault. Even if you knew better, even if you demanded the most powerful drug possible from your doctor, even if you self-medicated, even if you coerced your doctor into giving you the fluoroquinolone antibiotic, even if the infection that you were treating was something that you got because of doing something stupid, or from sex, even if you continued to take it after you started to get sick, even if you floxed your child/parent or other loved one – IT IS NOT YOUR FAULT. You are sick. You are poisoned. You are not to blame for your sickness or for the fact that you are poisoned. Who to blame is a discussion that I don’t want to get into because I want this to be positive, but it is not you. You are not to blame. You are a victim. It is not your fault.

      I know that what happened to you is wrong.

      And I hope that you will be okay.

      Please let me know if you need anything.

      Regards,
      Lisa

      • ChristmasCarla February 16, 2016 at 2:23 pm Reply

        Lisa, is it okay to share your “attitude tips” on my Facebook page?

        • Lisa Bloomquist February 16, 2016 at 3:18 pm

          Absolutely! You are welcome to share anything that I write anywhere. (Though sometimes I look back at the stuff I wrote a few years ago and think, “I wonder what I was thinking.” But I don’t think I’ve said anything too embarrassing. 🙂 )

  5. Christina Landis May 9, 2014 at 2:39 pm Reply

    Hi Lisa,
    I had took 2 500mg Levaquin in 2010. It’s still affecting me greatly.
    I would very much want to tell my story ,my strength and hope of how I deal with my condition .
    English is my second language , can you help me to write my story…..

    • Lisa Bloomquist May 9, 2014 at 5:10 pm Reply

      Hi Christina,

      I am happy to help you! Are you recovered to the point that you think you can write a recovery story? If you would like to share your pain, The Fluoroquinolone Wall of Pain is a good place to share that – https://www.facebook.com/pages/The-Fluoroquinolone-Wall-of-Pain/209182505773463 If you are recovered, I can share your story here on floxie hope. Either way, I am happy to help you with writing your story. If you want to email it to me at floxiehope@gmail.com, I can look over it and help you with your English.

      Best regards,
      Lisa

  6. Chris C May 17, 2014 at 8:58 am Reply

    Hi Lisa,
    Thank you so much for this website and support group. You give hope to so many people. I am so thankful to have found this, as I have been trying to understand what’s going on with my body and my mind after taking Levaquin over 3 months ago, and having been an extremely active person who once was so in-tune with my body, I believe that I can get that person back…with help and support, that is. I’m wondering if you have any advice as to where to begin. I’ve felt pretty hopeless after appointments with doctors, but I’m thinking acupuncturist, functional medicine doctor…just not sure. Also, I tried to join the Facebook group you list above, but I see that it is a closed group and don’t think I was able to. Thank you again for what you are doing!

    • Lisa Bloomquist May 17, 2014 at 11:37 am Reply

      Hi Chris,

      Thank you so much for your lovely note! I’m so sorry for what you are going through!

      As for where to start, well, that’s not an easy question. I think that most of us find our way through trial and error. Here are some suggestions:

      1. Ask people who you trust, preferably ones with complex medical issues, if there are any naturopaths, chiropractors, acupunctors, nutritionists or M.D.s that they recommend. Then check those people out. There are doctors, and alternative medical practitioners, listed here – https://floxiehope.com/2013/12/11/doctor-referral-list/
      2. The facebook group is full of people with good suggestions. Here is the link to it – https://www.facebook.com/groups/46690244194/ Even though it’s a closed group (for the privacy of the people in it), you will be let in if you send a request to be let in.
      3. Read the stories on here. There is lots of good advice noted in all of the stories.

      I hope that you are able to find a good path and help along the way!

      Regards,
      Lisa

  7. Josh Gibson October 4, 2014 at 4:52 pm Reply

    Hi Lisa,
    I have been going through quite a ordeal, I had 2 rounds of levaquin for sinus infections early this year, 4 days after the 2nd round of levaquin I went to ER with ringing ears, dizzy and massive head ache, I had sore ankles, cracking joints and weakness the whole time taking levaquin, ER docs said I was fine. ENT doc said I needed sinus surgery. I had the surgery 4 days after I went to the ER. When I got home after the surgery I started to bleed and went into a panic attack that cause more bleeding when paramedics got to me my blood pressure was 185/126. A couple weeks after this I was prescribed avelox and a Predizone for lingering infection, had to stop after 2 days due to side effects. In the last few months I have been very fatigued, pain in shoulders, elbows, hip, lower back, bottom of feet, tingling on top of head, ringing in ears, light headed when standing, mild headaches that come and go, I have been to several doctors trying to find out what is wrong with me and the last doctor I went to diagnosed me with Lyme disease because my symptoms and because western blot test came back with banding for p41. He wants to prescribe long term antibiotics for Lyme, I have read that the p41 band is not a sure indicator that someone has Lyme. I told him I need more concrete evidence for Lyme. I feel that maybe what I am experiencing is toxicity from levaquin, and wish I could find out? Please let me know if there is anyway to be tested. I was a healthy 42 year old male that loved spending time with my family, riding motorcycles, hunting, fishing, and exercising before all this happened now I am afraid to leave my house. Sucks Bad!

    • Lisa Bloomquist October 4, 2014 at 6:46 pm Reply

      Hi Josh,

      Thanks for reaching out and I’m glad that you found this site! What you’re going through certainly sounds like an adverse reaction to levaquin and/or avelox. Unfortunately, there is no test for fluoroquinolone toxicity at this time. For most people, myself included, all of the standard tests come back in the normal ranges. My doctor said that I was healthy when I was most definitely struggling. It made me realize how unreliable the tests that they give are. As for confirmation though, take a look through the levaquin and avelox warning labels (they’re on the links & resources page). Most of your symptoms are probably on those warning labels. Most of mine were. Also, the FDA acknowledges that fluoroquinolones are mito-toxic and that they can lead to multi-symptom illness – http://www.hormonesmatter.com/fluoroquinolone-antibiotics-damage-mitochondria-fda-adds-warning/. Too bad they haven’t bothered to tell the public or even doctors this.

      Take a look through this site for advice on how to heal. There are lots of good stories on here. I hope that they’re helpful! Also, the facebook group linked to on the home page is a good resource.

      Hang in there. It will get better.

      Regards,
      Lisa

      • Amir January 1, 2015 at 6:27 am Reply

        Hi Lisa,

        i am a 47 yrs old male in UK.
        I am so happy i found your site.
        I was prescribed around 12 courses of Cipro between 2010-2014 for recurring UTI’s.
        I am still feeling the effects today.
        Been to ER many times with pains /numbness and digestion and bowel problems.
        Do you know of anywhere in UK where i can get any information/help etc?

        Regards,
        Amir

  8. seager May 25, 2015 at 10:58 am Reply

    Hi LIsa,
    My most major complaint now is shortness of breath. Like I’m suffocating constantly. I am on an anti candida diet and have been AIP for 6 months. I am juicing and taking magnesium, turmeric and vitamin c. Please tell me that this is all just a part of the illness. Because mostly I’m reading of people with pain. I do have pain, stiffness, neuropathy, twitching muscles but shortness of breath I cannot handle. Will there be improvement soon in your opinion?

  9. radish September 11, 2015 at 1:28 pm Reply

    Hey Lisa, do you have any recommendations for doctors in the Denver/Boulder area?

  10. Jesiel cruz December 20, 2016 at 7:52 pm Reply

    Hello liza my mame is jesiel cruz, i am 40 years old and i live in brazil.i hád been floxed, i took 28 pills of cloridrato de ciprofloxacino two months ago. I am having trouble w my body now….i have some question , please e mail me if You could.

  11. Alecia Pike June 11, 2017 at 12:06 am Reply

    Hi Lisa!
    For the past three years I’ve been dealing with what I believe to be the adverse affects of taking fluoroquinolones for over two decades. I’ve been in denial. Even though I’ve spent countless hours reading mind-bending technical articles and countless personal stories, which completely described my life, I just wanted it to be something different.

    My story is long and arduous. All that matters now though is that I can’t get out of bed and I feel like every ligiment and tendon in my body is failing. I’m in excruciating pain, exhausted and cloudy. I still want to pretend it’s something else but I know what it is and I’m afraid it’s killing me – I’m afraid I’m going to die.

    I’ve been wanting to reach out to you for months – but my denial and fear and pride wouldn’t let me. I can’t live in denial anymore.

    My husband is burnt out from taking care of me, I’m a stranger to my kids and I don’t have the energy or mind to keep pushing, and researching, and advocating for myself. I feel like this eveil is finally taking my grit and sass and tenacity and that’s what scares me the most.

    I want to start a blog for so many reasons – to give me meaning and purpose since I can’t work, to teach through my story, but It’s unbelieveably difficult for me to even write this to you. I’m worried that I can’t go on. It’s my desperation that finally contacted you. I don’t even know what I am looking for from you. I just know that you understand and that is something certainly missing in my world.

    Thank you for doing what you do. You are truly a pioneer who is changing the world!

    With love and gratitude,
    Alecia

    • Lisa June 11, 2017 at 6:32 am Reply

      Hi Alecia,

      Thank you so much for your note! I’m so sorry for everything that you’re going through though! It truly is criminal what these drugs do to people. They have taken so much from you and your loved ones, and I am so sorry for all the losses. 😦

      I encourage you to start a blog. This site has been cathartic and healing for me. Being able to tell my story, to help others through this difficult and horrible time, and change the perception of fluoroquinolone safety, has been really helpful and even healing. Also, it seems that people are more open to believing things that they read than things that they hear. I have gotten a lot of acknowledgement of the pain and illness that fluoroquinolones bring from writing about it on this site. If you start a site please let me know and I will link to it on the Links & Resources page of floxiehope.com.

      I know that facing the fact that you have been poisoned (by an antibiotic no less) is difficult. Any emotions that you feel are warranted and appropriate. Know that there is a community of people who are willing and (hopefully) able to support you.

      Huge hugs,
      Lisa

  12. Amanda Awayda August 3, 2017 at 2:06 am Reply

    Hi my name is Amanda. I am floxie victim who is experiencing neuropsychiatric and physical issues, I have hope but am still struggling to believe that I will return to my full of life happy 20 year old self, your words have given me hope and acknowledgement of what I am experiencing, thank you so much!

  13. Jackie Rainbird October 21, 2017 at 1:17 am Reply

    I have left a comment after your interesting read. Thank you for sharing such indepth information. It may help my boy!?

    I am looking to fly my son to Mayo Clinic for help regarding his serious conditions. Unfortunately no Consultant/Doctor in the UK will sign him fit to fly, presently he is too unstable.

    We are also in contact with Panama Stem Cell Clinic Institution for stem cell treatment/mesenchymel cell which is imminent .

    My son aged 31, is bedbound 15 months with agonising and torturous conditions. Reading your information on floxy – it has given me a new direction in finding some help…but I don’t know where to start, other than to give everything we have on file from all the Consultants at all hospitals in the UK who have reviewed him (10 in all) and are “at a loss” as what is happening to him, to the Mayo Clinic USA with your findings on floxy. Perhaps this is the beginning of something that, can be proven, and possibly help Brookin and .. go viral.

    I’m aware of mitochondrial damage / fibromyalgia / peripheral neuropathy etc but never imagined a link with antibiotics/floxy that has kicked off these and other diah debilitating conditions, pertaining to suicidal thoughts and intollerable PAIN.

    Thank you for sharing your knowledge and understanding. You are an inspiration to us all.
    May you stay healthy and keep well lovely lady.

    Jackie Rainbird
    jackierainbird@hotmail.com
    Facebook UK

  14. reesa guarino November 12, 2017 at 8:44 pm Reply

    Jackie, I am so sorry to hear about your son. I can’t imagine what it is like for you and him. There is a woman named Sujata who posted her story in the Recover Stories section and maybe you can take away from her Recovery some ideas on healing your son. It appears that she is also consulting with folks through her website. I believe I healed so quickly because within a week of being floxed I found this site and was able to start acupuncture and many of the supplements that were recommended by those who have healed themselves. Best, Reesa

  15. Charlene Ans December 2, 2017 at 9:30 am Reply

    Was I floxed? In 2012 I was given Cipro twice in two months for a UTI. About a month later I noticed my feet and hands felt like they were asleep. Went to doctor, tested positive for Peripheral Neuropathy with borderline diabetes as cause. No mention of Cipro. Shortly afterwards I began experiencing unexplained shortness of breath lasting for 2-6 mo.then going away. Have had 4 bouts of this unexplained breathing problem in past 5 years and after all tests were normal I was told it was “stress.” Since 2012 the PN has been 100% asymptomatic and breathlessness comes and goes. I have been otherwise healthy and have not taken any antibiotics since the Cipro in 2012, until recently in August 2017 with three back to back prescriptions of antibiotics. My nightmare began in August 2017 with a misdiagnoses of BV and Flagyl for 10 days, after no relief finally diagnosed correctly with Urethritis and put on Doxycyclene for 7 days which helped alot but not 100% so then 7 more days on Bactrim. After all of this I still had urethral pain and also began very suddenly having horrific Peripheral Neuropathy pain like I had never experienced before. After being bedridden for 4 months I was recently told I have very high Zoster Varicella Virus. I have no rash. I am currently on 3 mo of Valacyclovir and after 10 days have seen a “little” relief of both PN and Urethra pain. I have also been suffering with severe anxiety and constant crying, not sure if attributed to “floxing” or emotions resulting of health situation. I am 66 year old female finally retired and looking forward to senior years and traveling but now my life has stopped cold with pain no doctor has answer for (have seen 8 of them). Please tell me there is help to end this pain and get my life back!

  16. Rosanne Moore January 31, 2018 at 8:45 am Reply

    I really need someone to talk to. I’m 61 and was given floroquinolones for years for sinus and respiratory infections. Have been suffering with terrible pain that they diagnosed as fibromyalgia in 2006. Recently I had ultra sound of my hamstrings and gluteals. I have bilateral tendonosis in all as well as pirigormid syndrome. I have had pneumonia 3 times with very bad chest pain. Sick for 3months each time. Went to new pulmonologist who gave me a breathing test that measured muscle not lung. He said there is s problem with the muscles around my lungs. I’ve had to fight for so many years to get proper diagnosis. I’m very scared and don’t know what to do. It’s been a struggle with drs. Do you know f anyone who has had tendons in muscles around lungs damaged? I tool floroquinolones from the 90’s until 2013 when I developed an allergic reaction to them with hives from head to toe and wound up in er for 8 hours. You be tried to join fb page but can’t seem to pull it up now. I don’t know if a person can live with muscles around lungs damaged and I don’t know where to turn. New dr said he will most likely refer me to temple lung center in Philadelphia. Don’t know if anyone will believe floroquinolones did this. My two sons are getting married next year. I want so much to be able to attend their weddings in December and April but I get pneumonia so much and I’m sick for two months at a time. Please help me and let me know if anyone else is dealing with this. Thank you.

    • roe1956@aol.com February 1, 2018 at 11:45 am Reply

      I don’t know how to do this. I’ve never used wordpress before and I”m not that computer savvy with computers. I really need to know if anyone has had this toxicity affect the muscles around their lungs I went to another pulmonologist and he did muscle breathing test that was not good. He said he is taking time to look over all my past records but feels this is out of his league and will probably be sending me to the Temple lung center at the hospital in Philadelphia. I am scared and I really don’t know who to talk to about this. Trying so hard to find a support group. He believes this is muscular disease and I have a lot of tendonosis in my body which I believe is from years of taking floroquinolones and I’m wondering if it could be in the muscles around my lungs. Please help me.

      • Lisa February 1, 2018 at 8:53 pm Reply

        Hi Rosanne,

        I’m so, so, so sorry for the pain that you are experiencing! I know of several people who have had horrible problems breathing, and suffering from “air hunger” post-flox, but I don’t know of anyone who has had damaged muscles around her (or his) lungs. Fluoroquinolones damage all connective tissue though, so it’s certainly possible that what you’re going through is because of the fluoroquinolones. Here is a good article about the musculoskeletal effects of fluoroquinolones – http://www.levaquinadversesideeffect.com/wp-content/uploads/Documents/Hall-2011.pdf.

        L, who comments often on the home page of http://www.floxiehope.com, has struggled with horrible breathing problems after taking fluoroquinolones. She was helped greatly by IV treatments administered by her naturopath. She responded well to H2O2 treatments. Other people have responded well to other IV treatments. Please discuss any sort of treatment that you are considering with your doctor, as they can have negative as well as positive effects.

        Here is some basic advice for approaching this toxicity – https://floxiehope.com/2015/10/12/im-floxed-now-what/. Know that you are not alone. There are a lot of people who are going through similar things, and many of them will be happy to help you. Please comment on the home page of floxiehope.com for more support, or try The Fluoroquinolone Toxicity Group on Facebook. Also, feel free to email me through the “contact” link above.

        Hugs,
        Lisa

      • L February 1, 2018 at 11:10 pm Reply

        Hey Roe, I just wrote a very long response and now I don’t see it, so here I go again. NO sure I will remember everything I said.

        I did have horrific breathing issues post Cipro. Of the 30 plus side effects, several terrifying, that was the worst. I literally gasped for every breath. When it first started I didn’t know how I would last ten minutes. At the worst I was like that for 3 months. It gradually started getting better at that point and it was about a year until it subsided. I have had asthma, and it was different. With asthma I could still breathe but my lungs felt tight and it was difficult. With this it just ‘stopped.” I would start to take a breath and it was like a door slid shut and stopped completion.

        I had head to toe nerve damage, including peripheral neuropathy, aural nerve damage, olfactory nerve damage, ocular nerve damage…so I assumed this was autonomic nerve damage. And it may have been. Another suggestion from a researcher was mitochondrial damage to the heart muscle. So perhaps your doctor was on the right track, but I don’t know that I would relate it to disease.

        You will find that most—nearly ALL—allopaths are completely unprepared to either recognize the flq damage or help treat it. I was thrown under the bus by a dozen allopaths and only started my turn around after I began seeing an ND that did IVs. I was on so many supplements and got so many IVs it is difficult to zero on which ones helped which side effects. What I would suggest though are supplements that help mitochondria and nerves. A couple companies put out a kind of all-in-one for mitochondrial health. One is KPAX and antoher is by Life Extension. There are others too I imagine. You can begin by doubling up on CoQ 1o (or Ubiquinol if you are over 40); EPA fish oil, Alpha Lipoic Acid and lots of magnesium. (You need to find which works best without giving you diahrrhea. Orotate I find is a good one, or taurate.) Also resveratrol is good—there are others. For nerves, also the B vitamins, magnesium, also ALA.

        I had a LOT of IVs.Phosphatidylcholine is supposed to be good for both nerves and mito. I also did Myers, high dose C and H2O2. At the time I was floxed I had been on prophylactic inhaled steroids for asthma…twice a day. Now I was already gasping for breath, and the very thought of having an asthma attack ON TOP of this suffocating like breathing was unimaginable. On the other hand, I knew if I continued taking steroids I was only causing further damage. So when my ND suggested H2O2 IVs, (which I doctor told me was dangerous) I really didn’t cared. I was down 1/3 of my body weight, shuffling, blurry eyed, in pain, and I just didn’t care what happened. So I said “yeah, do it.” After a half dozen of those IVs I weaned off my asthma meds. And surprise. NO asthma for the next almost three years….

        In addition to the supplements I would urge you to find a respected ND or integrative MD, especially one that does IVs. If you can’t find one who has dealt with floxies, find one that has treated Lyme patients, because we have many side effects that overlap. I will also see if I can find a name for you from someone else in the area.. If you have a specific question, ask away.

      • L February 2, 2018 at 12:27 pm Reply

        Hi again. I don’t know where in PA you are, but here is an integrative doctor who has treated floxies. (I don’t know if he would take your insurance, and it can be pricey, but what choices do we have?) https://www.dradrianmd.com/store/pc

  17. Kathy Gaines February 21, 2018 at 3:49 pm Reply

    I would love to know if anyone out there has had balance related problems after taking a fluoroquinolone, (Floxin) and still suffering? If not suffering what has helped to make your balance problems improve?

    • Janet March 18, 2018 at 8:21 am Reply

      Kathy, my husband has, not falling or anything, just unsteady. He was actually diagnosed with Parkinson’s in September and again in February by a different doctor. But after going through his medical history the last two weeks and reviewing the timeline since 2010, he had taken flox abx 4 times!!!! And about 4-6 months later his back would go out, irritability sets in, confusion, memory, the works. Dang medical profession! Bunch of idiots!

      • Mary Patrice Kinnavane March 18, 2018 at 10:25 am Reply

        Janet my dear, has your husband been floxed ????. I guess properly, !!!! he has been. Are you sure of his being diagnosed was correct with Parkinson’s. I was floxed after one dose of Levaquin for pneumonia in 2009 I am staggering all over the place since my GP put me on Lycria by PFIZER and told me I HAD FIBROMYLGIA. no. no no. I am in a shocking state I cannot believe the medical people any more. I have had enough of their lies and cover up. My friend Jim has Parkinsons for 15 years and he is falling all over the place. He is quite ill. He was never floxed that I am aware of, I know him 9 years .I am falling all over the place for the past 9 years. It is not the fault of Lyrica though I think it is lethal rubbish. It keeps the pain at bay and I can sleep. I think it is a conspiracy between the medical profession and Big Pharma to keep us in ignorance.

  18. Mary Patrice Kinnavane March 18, 2018 at 10:38 am Reply

    I have said all I can about being floxed and there is no cure. I have been to so many consultants and neuros all lies that is what I hear from these doctors and consultants. I met one honest female nuero she told me the truth 4 years ago no cure just take antidepressants AMYTRIPTALINE!!!!! no good, and painkillers. I am in bits at the moment as I had my cataracts done in both eyes in the last month. I have to put steroids and antibiotics in to both eyes and I am going crazy with pain all over my body . Mind you I can see.!!!!

    • L March 18, 2018 at 10:51 am Reply

      You need to start going to either NDs or integrative MDs. Allopaths are mostly worthless for anything related to this

  19. Troll March 26, 2018 at 8:08 pm Reply

    Trolly troll troll BS, but if I delete the comment, I’ll delete L’s lovely response. 🙂

    • L March 26, 2018 at 8:21 pm Reply

      Mr Green,

      I do not know who you are or what your agenda is but I will tell you that Lisa does NOT offer medical advice. She makes suggestions. She is also responsible for thousands of people finding help when they were ready to throw in the towel. Thanks to her generosity of spirit and time (untold hours/days/weeks/years) she has spent with no other goal than the altruistic one of trying to help people through this incredible nightmare, she has helped people from across the country and around the world, find hope and resources to fight this crime against humanity.

      I imagine you have some petty grievance or maybe you’re just a sad, lonely troll, but you will not find any allies here in your diatribe against Lisa. I am one of many who owe her a debt of gratitude I can never repay. Go peddle your hate, lies and innuendo elsewhere.

  20. wendy April 4, 2018 at 8:21 am Reply

    lisa, i took cipri for 2 days last month. i started reading all the horror stories and started taking liquid magnesium everyday. last few days headahce on top of head pressure behind eyes. have had this way before cipro, and have been getting prolotherapy shots for last 5 years, has been a miracle. now they came back, im hoping its not the cipro. also been naseaus last few days. I cant go online anymore its making me physically sick- please can you suggest anything?? ive taken cipro i think about 8 yers ago, i think i did. Never had a reaction. Any help please!

  21. Joe T June 12, 2018 at 1:00 pm Reply

    Hi Lisa,

    I took my last dose of Cipro a little more than 4-weeks ago. My symptoms of Cipro side effects have progressed and changed during that time. To be honest, I’m extremely worried and concerned this will continue to progress in a negative direction and potentially never end. I’m only 29-years old and have been healthy until this point. My doctors say there’s nothing I can do but wait, and many physicians seem to downplay the prevalence of these side effects. Could I email you directly to talk about my symptoms, compare stories, and ask you some questions? I would be more grateful than I can express.

    All the best,

    Joe

  22. Jayne June 20, 2018 at 5:10 pm Reply

    Hi Lisa, thanks so much for putting this website together! You have helped so many people. I was floxed about 10 months ago. Although I have only the musculoskeletal symptoms,(extreme stiffness when walking, texting and typing)
    this has been the hardest thing I’ve ever dealt with in my life. If I knew I was going to get better in the near future, I think I could handle this pretty smoothly. But reading about people who took 3 to 6 years to recover and those who never recovered terrifies me. Being anxious doesn’t help the recovery process. One question for you is would there be anyone I can speak to by phone?I think it would really help to talk to someone who’s been through this, but I find that my arms hurt the more I type a text, so I’d prefer to call someone. Maybe someone could even implement a buddy system so that everyone would have someone to call who understands. I was also wondering if you knew anything about stem cell therapy for flocking?Dr. Ghalilii in California offers stem cell therapy for a lot of money. Does it work? I think there are also cheaper places and I wonder if they do the same thing

  23. Jayne July 1, 2018 at 4:11 pm Reply

    I am currently in my tenth month of dealing with this and it’s been the worst experience in my life thus far. I am so anxious. If I knew it was going to
    go away in the next six months I wouldn’t be so worried. But i see so many stories on the internet of people who it never went away for that it terrifies me. Unfortunate it also affects my hands so typing it south. Would there be anyone I can speak to by phone? It could be nice to even set up a buddy system . Thank you for all you do to help people!!!

  24. Debbie July 11, 2018 at 2:00 pm Reply

    Dear Lisa ive been floxed for 4yrs at the end if july would you be kind enough to email me so i can write to you my name is deb im in England thanks so much my email is lperrysmusic@hotmail.co.uk

  25. A Johnson November 8, 2018 at 6:08 am Reply

    Hi Lisa

    I have been floxed for about 18 months. I feel better but still have pain. I exercise 3 to 4 times weekly. Just recently I took an advanced class and it seems that I had a relapse (my entire body is in severe pain). Could it be that I over extended myself? Also I am presently taking Vit. Mag 600-800mg. B12. Co10. Turmeric and Curamin for pain. I have taken blood test in my doctors office for deficiencies all is normal. What is the name of the more in-depth blood test I can have done to see if I have deficiencies? What else can I do? Help

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