My name is Lisa. I was born and raised, and currently reside in Denver, Colorado. I was born in 1979 so as of writing this, I’m in my early 30s (update – I’m 40).
I have always been an active and healthy person. I was raised in the mountains where I hiked and camped regularly. I even hiked the entire 500 mile Colorado Trail in 2010. (The photo above is from my finish line.) I grew up skiing but I stopped in my mid-20s. Post floxing, my physical activities have changed. Now I like swimming, pilates and walking. Both pre- and post-floxing, being physically active has always been important to me.
I have a Masters in Public Administration and I currently work at a Community Development Financial Institution (CDFI) providing financing to developers of affordable housing.
I have a wonderfully supportive family and great friends who believed in me and believed that I would get better even when I didn’t believe it myself. They have all been great through this ordeal.
My intention is to help anyone who is adversely affected by fluoroquinolones as much as I can. If you need anything at all from me, please don’t hesitate to contact me. Thank you and I hope that you are feeling well!
Here are some posts about my journey through FQ toxicity:
- Lisa’s Recovery Story – Cipro Toxicity
- A Journey Through Pharmaceutical Induced Illness
- Lisa’s Update
- A Full Recovery
I hope that my story and healing journey bring hope to those who read about it!
Hugs,
Lisa
Hi, My name is Jason and I am a "Floxie" too. My mission is to help others, share knowledge and awareness with Floxie Hope. Join me in my mission to spread hope for those affected.
Hi Lisa
Your website has been a great help in my recovery.
After multiple exposures and some hit and trial, I figured the following help a lot too
1. C NAC (N acetylcarnosine) antioxidant eye drops several times a day for eye symptoms
2. Empty some coenzyme Q10 capsules in some oil and rub coenzyme Q10 directly on the joints and tendons. I did this 3 or 4 times a day using upto 2000mg daily.
3. Magnesium hot water foot soaks with MgSO4 or MgCl If you can buy a blood pressure monitor online thar helps with making sure you are doing the right amount. Do the soaks until your BP and pulse stabilise. It is definitely worth it and relaxing as well.We need much more than the normally recommended dose.
Fluridated gases in AC units and older refrigerators also can cause ciplox like symptoms and we need to be wary of any gas leaks.
Lisa I can’t seem to get an answer to my comments on this site. Please respond. I’ve been floxed for a little over a week. I feel like I’m being tortured the neuropathy is so bad. What are your thoughts on stem cell therapy for this, specifically MSC? I was going to do that and vitamin and antioxidant IV’s, as well as ozone treatments. What do you think?
Hello Lisa, I posted this message under few posts on your facebook (floxie hope) and on floxie hope messenger.
I was floxed 5 years ago and since than did few stem cells treatments and improved. But yesterday due the tooth extraction I was prescribed antibiotic metronidazol and had severe reacion, couldn’t sleep whole night and my neuropathy through out whole body increased. I found out in the morning this antibiotic is also very dangerous, I took only 125mg one tablet but since my cells are damaged from a very difficult high level poisoning with cipro and levaquin from 5 years ago, my body is very sensitive to everything. I’m in Spain right now and did another stem cells month ago, and was improving and now this happened. And the doctor who prescribed me this works in holistic clinic and knows my case and she prescribed me three day of this antibiotic after I extracted my tooth. Now I’m in total shock and scared what is going to happen and how this
one tablet of 125mg of metronidazol is going to effect me. I had instant reaction yesterday but I didn’t believe it is because of it, after a sleepless night I saw in the morning how dangerous this antibiotic is. I was shocked when I saw on floxie hope website that he is one of four antibiotics to avoid because they have similar side effects as fluoroquinolones. If anyone can give me respons today it would mean a lot to me, I will post this comment bellow some other posts in hope someone will reach out to me.
Thank you in advance.
Thank you for your quick and thoughtful response. I emailed Dr. Charles Bennett last Friday, and am hoping he will respond.
The statute of limitations in Pennsylvania is two years for medical malpractice and for wrongful death.
My initial approach was, why was I able to figure out that this was a neurodegenerative disease, but no doctor did? (He’d been seen at least four dozen times, and hospitalized three times.) Hence, he did not receive the treatment that he should/could have had, which contributed to his death.
Then, as I learned (finally) that Levaquin HAS been linked to Parkinson-like neurodegenerative disease, I became fixated on that. I can’t help but wonder, how many people follow this same course, unbeknownst to the medical community? MSA is supposedly rare. But who knows, if no one’s looking? And, why aren’t they looking? Does big Pharma dictate where the emphasis on medical training is directed, and re-direct if it goes against their interests?
After my husband began to get sick, I became aware of others that had similar symptoms, and realized that there must be many others out there. I am certain I encountered at least 2 patients that had the same “rare” and undiagnosed disease.
Dr. Joseph King was able to qualify the damage to his own DNA, based on adducts that were identified that had altered his cells; he proved scientifically that fluoroquinolones had caused the damage. I don’t know if my husband’s DNA has been preserved well enough to run those tests, but I am compelled to seek some sort of justice and vindication.
HI, yeah that was from me, L (Lisa is the one who hosts this site. She posts as Lisa.) AS for joseph king, I would not quote him. Lisa can fill you in more, but apparently he was a fraud.
Damaged gut microbiome (something that happens in spades with flqs) has been linked to pretty much every disease you can think of including cancer, ALS, Alzheimers’ and as you pointed out Parkinsons…so it is certainly no stretch to believe that Levaquin was the cause…esp since the decline came so quickly after that. But doctors not making the connection come either from ignorance or to protect their backs. After I was severely damaged by cipro, every doctor I saw in this community kept saying “oh, couldn’t be the cipro!” I think they were a) uninformed b) protecting the other doctor c) protecting themselves since they have themselves prescribed these toxins. And flqs have a warning about possible permanent nerve damage, which I am sure would include the brain. I had such strange things going on nerve-wise, in addition to myriad other side effects.
I looked at PA law and unfortunately the statute of limitations goes directly to the event and has nothing to do with date of discovery, so unless it has been under two years, you are out of luck. IF it is not quite two years yet, I would try like hell to get an attorney. If you are very close to that date an can’t find one, see if you can get a paralegal to help you file the complaint, until you can find one.
I’m trying to locate the studies/data that led to the FDA’s internal memo re. a link between (mitochondrial damage due to oxidative stress from) Fluoroquinolones, and Neurodegenerative Disease.
My story is my husband’s. It began with a week-long hospital stay and concluded after a subsequent 39 month neurologic decline. His symptoms had closely resembled Multiple System Atrophy. Immediately after his death, I hired a Medical Examiner, and I relayed my suspicions to him. He contacted a neuropathologist, who ultimately did make a diagnosis of Multiple System Atrophy post-mortem, based on the pathology (a finding of alpha-synuclein inclusions in the oligodendrocytes within the cortex, basal ganglia, and pons). Had the autopsy and neuropathology consult not been done, as is probably often the case, his diagnosis would remain unknown.
My husband had been admitted to a hospital in August 2015, for treatment of an infection. He was medicated with IV Levaquin, Flagyl, Zosyn, Vancomycin, and Gentamicin, pending cultures. Tests revealed that his very enlarged prostate had caused urine outlet obstruction, resulting in a urinary tract infection and hydronephrosis. Prior to this, his only medical issue was hypertension, which was controlled. He was catheterized, with a plan to have a laser de-bulking of the prostate after being discharged from the hospital. He was continued on oral Levaquin post-discharge.
Changes were already evident prior to him leaving the hospital. His voice had become hoarse, and it continually sounded like he needed to clear his throat. His calves and ankles were painful, making ambulation stiff and slow. His posture changed, too, with his head and neck now bent forward at shoulder level. His previously quick, expressive, and animated responses had dulled slightly; I reasoned that he was preoccupied, and just didn’t feel well. He had strolled in to the hospital, and a week later, he slowly hobbled out of the hospital.
He immediately needed to stop taking his prescribed anti-hypertensives – his blood pressure had dropped significantly, particularly on standing and in the morning, to as low as 40/20 – although he had previously been taking Norvasc, hydrochlorothiazide, Metoprolol, and lisinopril, or some combination of these, daily, for the two decades prior, just to bring his blood pressure down to about 140/80. He complained of loss of strength in his arms. His voice remained hoarse and quavering. Excruciating calf pain sent him to the doctor’s office. Hypotension sent him to the ED. Generalized slowness and extremity weakness also sent him to the doctor’s office. His prostate had been “de-bulked” by a laser. But, nothing else had been solved or resolved or identified; his blood pressure fluctuated and it was usually too low for him to feel well, his voice was usually hoarse, like he had a “frog in his throat”, and he had generalized weakness and severe back and buttock pain. He yelled aloud during sleep. We had (ultimately) been to two general practitioners, a nephrologist, a urologist, and a pulmonologist regularly, as well as a cardiologist, an ENT, a neurologist, a neurosurgeon, a rheumatologist, a chiropractor, and a physical therapist. He had lab work done regularly, as well as multiple diagnostic tests.
By mid-2017, he had to self-catheterize at least twice daily. By early 2018, his extremity weakness and slowed mobility was such that, for the first time in his life, he felt that he could not continue working at a physically demanding job. He became short of breath with activity. According to pulmonary function tests, he had – suddenly – developed moderate COPD. In mid-2018, following multiple episodes of unconsciousness from orthostatic hypotension, it became necessary to monitor and raise or lower his blood pressure according to need, with medication. Unable to stand without passing out for 2 weeks while hospitalized, he was subsequently sent to a rehab for re-conditioning. Following that, our cardiologist then urged us to go to a city hospital, clearly disapproving of using the maximum dose of Florinef (to cause fluid retention), and of Midodrine to raise blood pressure, with Hydralazine to lower the blood pressure…We went to Hospital of University of Pennsylvania, with our cardiologist’s data and progress notes and recommendations in hand. My husband spent nearly 2 weeks at HUP. They gave him diuretics, and did not investigate what had been happening to him. His extremely low blood pressure didn’t reveal itself again until after the Florinef wore off, after he returned home. No doctor or facility acknowledged or recognized what was happening to him.
He had gotten pneumonia in December 2018, and was receiving antibiotics (NOT Levaquin) and a steroid taper. He was slow (always, now) but he was active and motivated to do as much as he could; he felt that he would soon die from this disease. He vacuumed, went shopping, drove several places, and visited several people, just prior to expiring, sitting up in a chair.
He had been the most active person I’ve ever known, up early and out the door in 5 minutes, flat. He always worked, and often kept busy with various building and repair projects, either at our house or those of friends. He built decks, bathrooms, and additions. He repaired and diligently maintained multiple vehicles. He operated backhoes, track hoes, front-end loaders, and snow plows. He had a CDL and drove, and previously owned, tractor-trailers and motorcycles. He had flown planes and helicopters. He was able to fix just about anything that was mechanical or electrical; he was a problem-solver. He was friendly, funny, and engaging, and seemed to know everyone. He related well to animals and children, and they to him. He was strong, graceful, quick-witted, and multi-talented. His interests were numerous and varied. Yet, he had quickly been reduced to a man without independence, with hardly a voice, crippled by poor mobility and weakness, random fainting, and urinary retention and lack of control. Additionally, health care providers had little or no help to offer, and often dismissed our observations, as though it were a perfectly normal development!
The timing of the disease and the very rapid progression seems more than coincidental. My husband was certain that it was linked to something that he’d been given while hospitalized. I had been careful to mention to subsequent doctors, the origin of his symptoms, and the use of Levaquin during that first encounter. I have no doubt that MSA is misdiagnosed, or simply not diagnosed. The cause is supposedly not known. I hoped that blood samples could reveal DNA damage or adducts and, if so, the source. Can you offer me any suggestions regarding actions I can take, or do you know anyone who could? Thank you for reading this, and for listening to our story.
Catherine, I am so sorry for everything your husband had to go through (and you of course as well.) My suggestion would be to contact Dr. Charles Bennett at the U of So Carolina. He is a drug safety researcher and has been instrumental in pushing the FDA to place warnings on these poisons. He also recently tried to get them to put a warning on regarding mitochondrial damage. (They refused. 🙁 )
As for any action, it really depends on the statute of limitations in your state. Yours is the kind of case that attorneys are actually interested in. That’s not to say that you will find one quickly but they are more likely to take a case like yours over most of us because, sadly, there is more money involved when the malpractice leads to death. The problem is, judging from the dates you have posted, it may already be too late. But again, depending on the state you live in, the statute of limitations may be extended if you did not become aware of the connection until much later. For example, in CA the statute is one year from the date or injury OR from the day you became aware of the origin of the injury. So perhaps that would be the date of the autopsy result.
You also need to find an attorney that deals with medical malpractice and specifically one who has worked in medical malpractice regarding prescription medication. If you want to sue the manufacturer of levaquin, unless he was given the original and not a generic, you will likely be out of luck. if you plan on suing the hospital, it will depend on other factors…can they say it was warranted because of his condition? Was he given other drugs at the same time for which there was a contraindication/black box warning (like steroids?) Was he over 60?
But again, the first thing to do is to look at the statute of limitations for medical malpractice in your state.
Hi Lisa,
I was floxed by Cipro in June of 2019 and
Have been having severe symptoms. I have very painful peripheral neuropathy in my feet and ankles and tendinitis all over my body.
Do you know of any good treatments for these symptoms? I am 63 years old and have been having side effects to most medications now since the Cipro. I also just started having blurred and double vision, maybe a side effect of the Ativan I took to help me sleep.
Thanks for all you do.
Wendy
I am sure Lisa will respond, but meantime…what in the hell were you given Cipro for at age 63????
I was floxed in June 2019 also. I’m 41. Currently peripheral neuropathy is my main almost only symptom but it is pretty painful at times. Things I believed helped are:
Q10
Alpha lipoic acid
Magnesium
Good luck.
Michael
Wrong email address typed in last comment
Hi Lisa, I was prescribed floroquinolones for 20 years and was diagnosed with fibromyalgia. I never believed that diagnosis but until October of 2017 when I had a musculoskeletal ultrasound I didn’t know what was wrong g with me. I have widespread tendonosis. My pain has gotten to a point where it is unbearable. I’ve read about iv infusions and stem cell treatments and was hoping I could get legal representation so that I could get the treatments that seem to be the only thing that will help me. I’ve been on disability and my income is modest. I’ve called lawyers but have been told they will only take cases of people with aortic aneurysms. I’m hoping you can help me. I don’t think I can go on like this. The tendonosis is in my hamstrings, my gluteal Maximus and minimus as well as around my right rib cage. Sitting and trying to sleep are so painful. In addition I have damage around my right rib cage which caused a pneumothorax in 2010 and frequent pneumonia. Over the past two weeks my left side of my chest has started to hurt too. Last year I stood up from a sitting position to fall on my face from a partial and total ligament tear in my right ankle. My toxicity is getting worse all the time. It feels like someone is taking picks from a fire and twisting them all over the inside of my body. I was hoping you could help me find a lawyer that might help me. I don’t know that I can last until Medicare will cover the treatments I need to keep this from progressing and I’m scared. Over the years I had no idea that Cipro and levaquin were causing my problems. I was on these antibiotics and steroids together for every sinus or respiratory infection I ever had. I have my medical records from the pharmacy from 2000 til 2013 and I took these antibiotics about 60 times. I was prescribed it originally by my allergist in the 90’s and was told it was the best class of antibiotics for sinus infections. I took it for weeks at a time along with prednisone. I even took it when I was pregnant with my daughter who was born in January of 1995. I didn’t know to be afraid of antibiotics. I’m afraid now. I don’t know how much longer I can live with this kind of pain that is constant. I’ve tried supplements, eating organic. Please help me. I’m 63 and have two sons who got married this year. I want to be Around to be a grandmother. My own mother passed away from cancer at 56 so my children never knew her. Please help me to find a lawyer that will help me. I’m getting worse everyday and I don’t know what to do. I cannot sleep withou trazadone, clonazepam and ambien. For pain I’ve tried tramadol 50 mgs and Vicodin 5 mgs. I’ve had many ultrasound guided steroid injections Prior to knowing my diagnosis but even now I’ve recently had to get trigger point injections and oral steroids so that I was able to attend my so s wedding g as new problems had me unable to get out of bed for 3 weeks. I know I shouldn’t take steroids. I feel like I’m going out of my mind with the pain. I also have ibs constipation and require 8 sennA plus and a dulcilax every night in order to have a bowel movement. I have peripheral neuropathy and my fingers and toes go into pain ful spasms where the outer three fingers and toes go into spasms and the fingers and part of my hands and feet drop. I’ve been approved for medical marijuana. I can’t smoke or vape anything because it causes coughing. I tried a brownie which relaxed everything except the painful areas of my body. I’m going back for an appointment to see if I can try another type that may help me. I feel so alone and scared.
Assuming you are in the US, in order to file a medical malpractice case you need to do so within the statute of limitations for your state. If this has been going on for decades, then you have surely passed that date. Which state do you live in? (and yes, it is quite difficult to get an attorney to take these cases, especially if you do not have substantial amounts in lost wages)
I live in NJ but had no idea that I had floroquinolone toxicity or tendonisis and peripheral neuropathy until I saw my primary doctor in 2017 after a musculoskeletal the end of sept 2017. Prior to that I was told I had fibromyalgia and I was having flares. At times I was unable to walk and was in bed for days. I would probably have to go to Philadelphia for a lawyer.
Do you know of any integrated MD’s in my area that would accept Medicare and treat me. Regular Md’s rheumatologist etc have offered me no hope.
Not sure why you mentioned Philadelphia if you are in NJ. Were you treated in PA with the fluoroquinolones? Anyhow, they both have similar requirements. You need to file the complaint (first step in a suit) within two years from the date of injury OR two years from when you first became aware of the damages stemming from the incident. Both states also have an added burden of something called an “affidavit of merit” whereby you need to have another doctor provide a statement confirming that the acts of the physician in question led to the injury. Pa. R. Civ. P. 1042.3 “(a) A plaintiff must file a certificate of merit that states that either (1) an appropriate licensed professional has supplied a written statement that there exists a reasonable probability that the care, skill or knowledge exercised or exhibited in the treatment, practice or work that is the subject of the complaint, fell outside acceptable professional standards…” Many states require expert witnesses at trial, but this is in the early stages, soon after the defendant has responded to the complaint.
I won’t sugarcoat it…it is VERY difficult to get an attorney to handle these cases. Most states have caps on what can be recovered for pain and suffering, and while hundreds of thousands of dollars may sound like a lot, it is very costly to try these cases. For one thing, the expert witnesses required by most states costs tens of thousands of dollars. Then there is all the work itself, often over a period of a year or more. Then the attorney only gets a percentage (usually about a third) of what is won. If you were unemployed, or not making a lot of money, there is little to collect in that area, so all in all, it is just not attractive to most attorneys.
That is not to say you definitely will not find one to take your case, just that it will be a challenge, Especially if other doctors agree that giving you a fluroquinolone for your condition was an acceptable thing to do. “Medical negligence occurs when the healthcare professional breaches, or violates, the standard of care.
A standard of care is the generally accepted medical practices used by a group of medical professionals in the same geographic area for patients suffering from a particular disorder or illness. This standard can change depending on a number of factors, including the patient’s prior medical history and age.”
I have called many with no success. It seems that the things that will help me are not offered through MD’s only naturopathic medicine. Even my primary MD told me stem cells but I don’t know how people can afford the treatment. Are there others like me that were misdiagnosed and took these medicines for many years. I don’t know if anyone can help me. If I’m too damaged to recover. I don’t know where to turn. My children tell me I should do physical therapy. I’m in so much pain. I can’t handle the pain these last few weeks. Do you think I can still be helped? I feel like I should have known. My doctor kept telling me fibromyalgia and I was divorced raising three children alone. I would never have taken meds if I knew they were harming me. I desperately want my life back.
Unfortunately pretty much all of us are in the same boat. yes, the treatments that help are normally not covered by insurance. I have spent tens of thousands (that I did not have.) You do what you have to do. Perhaps you might consider putting up a go fund me site.
Thank you Lisa. This is a disgrace that so many people have been hurt by these medicines and are left to figure it out on their own. Thank you for all you do to help people. There have been days I’ve considered moving to a state with assisted euthanasia as I’m sobbing in pain and feel I can’t tolerate it any longer. The only naturopathic doctor I know I’m the South Jersey area is Dr. Magaziner. I would hate to choose a doctor that is not reputable when I feel so vulnerable. I’m also close to Philadelphia. If you or anybody in the group knows of someone that is reputable in my area please let me know. I don’t have tens of thousands of dollars but hopefully anything would be a help. Thanks again and stay well.
I’m not Lisa, we just share the same initial. And yes, she has done so much to help so many people. But since you mentioned Lisa, let me do a little plug here (since she won’t.)
Lisa has spent countless hours administrating this site (the resources tab is beyond impressive!) ); responding to posters; researching and writing articles; and helping SO many people. More than she will likely ever know. And she does this because she is a caring, compassionate person. So, I would like to ask, if you can do so, please consider making a donation to Floxie Hope. https://www.paypal.com/webapps/shoppingcart?flowlogging_id=67cf4dc23b640&mfid=1562635947835_67cf4dc23b640#/checkout/openButton
If for some reason the above link does not “take” the donation button is on the right side, towards the bottom of the home page.
I just figured out how to get these emails today I don’t have a paypal account. Would need help from my children to figure that out. Not sure what you mean by your home page but if you could just give me an address or explain how I can get to home page I’d be happy to make or mail a donation. I don’t have a lot of money but every little bit helps. I Don’t own my home and I’m living on social security and a small amount I receive from child support arrears. I wouldn’t feel comfortable doing a go fund me. It’s hard for me to ask for money from others. I would be happy to send a donation if you could give me the info to do it. I will have to charge any treatments I get from naturopathic doctors. I really thought I was too late with receiving my diagnosis and most people were able to receive compensation from the drug companies. It breaks my heart that so many are feeling alone and so scared like I am. Nobody should have to live like this. I’ve told everyone I know about floroquinolones and asked them to research and pass the word around. I also just figured out how to join your Facebook group and I’m sharing those posts as well. Is there some Way I can ask people that live in the Philadelphia / south jersey area for dr recommendations on this site ?
I was just referring to the home page of floxie hope. If you are having financial problems, then don’t feel compelled to donate. That was for everyone on this site.
As for go fund me. I completely understand how you feel. Someone had mentioned it to me early on and I was mortified at the thought. But later on I relented, and it did help some. Just give it some thought. Perhaps someone you know could do it for you, if that would make you more comfortable.
I hope someone on the site can help you find a health practitioner in your area. I have no idea. I am not in your state.
I was able to find the donation link on the home page. It went through.
Lisa,
This site has been integral to my understanding of how this happened to me and what I am doing to recover. I had one 500mg Levaquin pill three weeks ago. I can put in a few miles a day walking, working, etc., so I consider myself lucky in that regard (and knowing to flush the evil medication after the first pill). My muscles ache a little and right now it’s more the fog and CNS symptoms. Everything is rather mild, but it’s scary.
I guess at this point, after only one pill, and that I can walk and get 10,000 steps in a day, etc., is this mild? What – on average – does a trajectory of healing look like for someone who has experienced “mild” floxing?
My darling you are so lucky. I had IV. Levaquin plus three 500mg pils before I realised I was floxed. That was 10 years ago this week. I was a daily swimmer and walker. Now can do neither. I have an automatic car otherwise I would be houseboind.
Where can we buy MitoQ? I am in Canada
https://www.mitoq.com/
Are you the “Lisa” that had a blog on the net in 2012? I was floxxed in Feb 2012 when in my early 50s. I never fully recovered. While I’m better, I’d say I got 50% better. I was on the road to recovery from the 2nd half of 2012 thru all of 2015. Ten I started regressing. It was terrifying losing all of my progress I’m worse now with the muscle weakness, and horrible debilitating fatigue and brain fog. So here I am pushing 60 and it’s 2019. I’m sedentary most of the time to avoid pain.
Having read all of your testimonies on Lisa’s page, I feel as though I am looking into a mirror.
I can relate to every single one of you. Having been hammered with 60,000mg of Cipro in 1996 and being crushed into severe headache and nausea, I have endured for just over 8600 days. Brushed aside by every doctor at every institution I have attended, attempting to end my life in 2010, being counseled by at least 100 counselors and chaplains. Having watched what this has done to my wife of 47 years, my 36 year old son, blaming myself, feeling ashamed, being a burden, managing thoughts of suicide every day and needing to use Xanax to get ANY sleep whatsoever I have had to surrender and realize that with the limited energy currency I still have, I must reconstruct a life with meaning. Going to bed every night thinking about a possible breakthrough to return to being myself again, wishing to be able to be silly again, knowing that I could be a different person if not for my hardship. Wishing to be remembered laughing, not wanting to be thought of as a coward, suppressing anger toward the doctor who overprescribed me while wanting to outlive about 10 doctors who have ignored believing that I was poisoned is not how I thought I would live my gifted life. I am now 69 years old, skied for 42 years, have been cycling all my life, and somehow even though I struggle committing myself to get on my bicycle, I actually do keep up with friends who are 10-15 years younger than me and after at least an hour of nausea, being burdened by headache while going anaerobic many times on a mountain trail ascent I actually have a remarkable breakthrough by squeezing a few more endorphins from my adrenal glands. I call it “being in elastic time” (instead of linear time) and it is REAL but it always fades that evening or by the next day. Trying to hold on to that breakthrough has empowered me to not give up my fortitude and will to live.
I encourage all of us to try to fully engage to the limit of our ability into what brings us the greatest JOY and experience “elastic time” and do whatever we can to stay in that moment as long as possible because healing occurs in the present moment.
My warmest respect and love to all of us for managing the life we live inside of a cage with what seems to have no escape.
Truly your partner, Dan Jervis
Wow, Dan your cycling is impressive! If you have seen my posts, you know I struggled with over 30 side effects, and several, effecting my breathing, my vision and olfactory damage to where the entire world literally asphyxiated me, I prayed for death for a year, and spent every day contemplating how I might take myself out. I was always afraid of not doing it completely, and only compounding my misery, so (obviously!) I never did. I too share your anger at the medical establishment. I was thrown under the bus by 12 doctors of different specialties, and was saved by a naturopath, never having been to one in my life prior to this. I wish Dr Jay Cohen’s book was still available in print. It’s great to give to those skeptics who are close to us. Anyhow, keep cycling!
Why isn’t DrJay Cohens book available. I tried to find it but only found one used copy on amazon for $1600.00. I don’t understand why you can’t find it in book stores. Did the pharmaceutical companies buy them all out?
Dr Cohen died a few years ago, and he had self-published. I contacted someone at his old website and they said they didn’t have any info on the publication. It’s a shame. It should be must-reading for all doctors and it is so helpful for floxies. He does have another book out but it’s not this final reporting from him.
Hello,
I am wondering if anybody has experience with sauna or ion footbath being able to pull these toxins out of the body, or is in any way been helpful?
Thank you
Anne
Hi Lisa
I have been floxed for about 18 months. I feel better but still have pain. I exercise 3 to 4 times weekly. Just recently I took an advanced class and it seems that I had a relapse (my entire body is in severe pain). Could it be that I over extended myself? Also I am presently taking Vit. Mag 600-800mg. B12. Co10. Turmeric and Curamin for pain. I have taken blood test in my doctors office for deficiencies all is normal. What is the name of the more in-depth blood test I can have done to see if I have deficiencies? What else can I do? Help
Dear Lisa ive been floxed for 4yrs at the end if july would you be kind enough to email me so i can write to you my name is deb im in England thanks so much my email is lperrysmusic@hotmail.co.uk
I am currently in my tenth month of dealing with this and it’s been the worst experience in my life thus far. I am so anxious. If I knew it was going to
go away in the next six months I wouldn’t be so worried. But i see so many stories on the internet of people who it never went away for that it terrifies me. Unfortunate it also affects my hands so typing it south. Would there be anyone I can speak to by phone? It could be nice to even set up a buddy system . Thank you for all you do to help people!!!
Hi Lisa, thanks so much for putting this website together! You have helped so many people. I was floxed about 10 months ago. Although I have only the musculoskeletal symptoms,(extreme stiffness when walking, texting and typing)
this has been the hardest thing I’ve ever dealt with in my life. If I knew I was going to get better in the near future, I think I could handle this pretty smoothly. But reading about people who took 3 to 6 years to recover and those who never recovered terrifies me. Being anxious doesn’t help the recovery process. One question for you is would there be anyone I can speak to by phone?I think it would really help to talk to someone who’s been through this, but I find that my arms hurt the more I type a text, so I’d prefer to call someone. Maybe someone could even implement a buddy system so that everyone would have someone to call who understands. I was also wondering if you knew anything about stem cell therapy for flocking?Dr. Ghalilii in California offers stem cell therapy for a lot of money. Does it work? I think there are also cheaper places and I wonder if they do the same thing
Hi Lisa,
I took my last dose of Cipro a little more than 4-weeks ago. My symptoms of Cipro side effects have progressed and changed during that time. To be honest, I’m extremely worried and concerned this will continue to progress in a negative direction and potentially never end. I’m only 29-years old and have been healthy until this point. My doctors say there’s nothing I can do but wait, and many physicians seem to downplay the prevalence of these side effects. Could I email you directly to talk about my symptoms, compare stories, and ask you some questions? I would be more grateful than I can express.
All the best,
Joe