Angela’s Recovery Story – Cipro Toxicity

MLK Quote Angela

*The following is an individual’s story of surviving fluoroquinolone toxicity. It is not medical advice. Please see the disclaimer at the bottom of the story. Thank you, and please be cautious with all treatments. 

Angela’s Story, written by Angela –

I am finally writing this and it has been ages that I’ve thought about doing so.  It was last year this month that my world was turned upside down for similar reasons as everyone else reading this; took five days of 500mg of Cipro twice a day for what was believed to be a UTI, even though a urinalysis was never done.  I was a 27 year old full-time college student and single mother of a beautiful 2-year old.  I wanted to be rid of the UTI so badly, since I’d had UTIs in the past and I thought I knew what I was doing, I kept taking the medication even when I began having pains in my foot, which traveled up to my leg on the third day.  I was ignorant and naive about the true possibility that an antibiotic could cause any harm past the usual side-effects.  I was OK enough to do all of my usual activities and still mentally clear for a couple of weeks after taking the medication, until the severe anxiety took hold.  I experienced depersonalization for the first time in my life driving to school.  I got through my test somehow and drove home in fear.  I took it easy for a couple of days, then went and tried to make it to a movie, but I’d already been traumatized and was still so in fear of what my physical body was still experiencing.  Something I could not control; this new pain I never felt before in all my 27 years of living.  I could not stop it, whatever was happening to my body, I could not stop it.  I told my boyfriend I couldn’t make it through the movie, so we went to my brother’s house and stopped off at Walgreens for some supplements I read might help me.  There, I experienced one of the most terrifying moments of my life, where suddenly every sound around became amplified ten-fold and my brain literally felt like it was going to explode.  I was shaking and ended up at my brother’s house, completely in-shock and petrified.  This was the beginning of my experience with Cipro.

What I have failed to mention, however, is that between the time that I experienced the severe anxiety and the time I was OK, I took the time to research what I’d done to myself.  I saw a video of a man literally going insane, which always one of my biggest fears as a person with anxiety since childhood.  I also read stories about people becoming disabled, losing everything, becoming bed-ridden…the worst possible things one could imagine were now running through my mind and embedded in my sub-conscious.  Before I experienced the depersonalization, I was remembering the video I’d watched of that poor man crying uncontrollably.  The worst part of all of this, was it was something I felt I did to myself.  Sure, the doctor never mentioned these horrible side-effects, but I could have stopped taking the medicine once I began feeling the pain.  I even asked my boyfriend if I should, to which he asserted I should stop.  I then asked another friend and he asked me to weigh the pain the meds were causing, between the pain from the UTI, and thinking the UTI was the worst thing to me (at the time), I continued the medication.  I truly did not believe that such a common antibiotic could do something as terrible as what those websites claimed it did.

I was at a loss…physically, mentally, emotionally…everything was now foreign.  My symptoms varied for months from TMJ, mysterious pubic bone and tailbone pain, tendonitis all over my body, strange burning sensations in my right ear, loss of appetite resulting in weighing 86 lbs where I was previously 106 lbs, feeling like I could not get enough air, sudden swelling of left arm, lower back pain, severe muscle weakness, shakiness, fast heart-rate, palpitations, severe anxiety resulting in depression, vertigo-like sensations, feeling of body rocking back and forth, and more. My world was now full of uncertainty and terror.  Terror half brought on by my own viewing and reading of the worst possible outcomes of the situation I was now in.  I found a website that boasted survival stories, however…it the only website that offered a possible positive outcome.  It was difficult for me to think it was possible that I would be one of what I thought to be the “few” lucky ones, but I had to believe somewhere deep inside me that I would be, just to continue.  I would go on like this for the next few months, in a literal mental fog.  During this time, I tried to go for a walk to the park with my friend, and ended up sitting on the bench in tears because, as I said to my friend, “I feel like I’m looking at a painting of my life instead of living it.”

At one point I needed him to sit in the bathroom with me.  To just sit there and look away, nothing else, while I showered…because I was terrified of even showering.  I was terrified of existing.  I remember looking at the world and it even looked different, it looked blurry and foggy.  I read up on every single thing I could, and read this was a mode the brain took when it was traumatized by severe anxiety.  It slowed down for the sufferer, and the only way to get beyond that guise, was to ignore it and continue living despite the disturbing, yet harmless, symptoms.  So, I did just that.  I fought, to get back to driving, grocery shopping, taking care of my daughter, going to school; all of these things were my goal.

I had setbacks…there was a time I was feeling a bit better physically and went to get a full-body massage.  The masseuse was rough, and that very night I truly thought I was going to die.  I had the worst nightmares I’d ever had in my life, as well as the most pain.  From my teeth to my toes I was in severe pain with my muscles twitching one right after the other sporadically throughout my body.  I was kicking myself for setting my recovery back unnecessarily.  I was also still accepting that I was now different…that my body could suddenly not even handle a massage.  When before, I passed the time by spending an hour burning 1,000 calories in a Krav Maga class and beating the punching bag past the point of blood on my knuckles.  I danced hours on end, without consequence.  I loved those feelings, and now I couldn’t get past a rough massage.  But I knew I had to look forward to get through this.  And one night, when what people call the “third eye” was suddenly tingling (while laying in bed with my mother and daughter ’cause I was too scared to sleep alone), God told me that I needed to show him how badly I wanted to recover, not just say it.  I’d spent the last three months barely walking, acting and feeling like the most fragile elderly person.  My 89 year old grandmother was leaving me in the dust.  I even looked different, painful acne all over my face, possibly in part to not using Pro Active anymore since I was afraid of the chemicals that everyone said would be harmful to me.  So, after all this, I finally listened to God.

He told me he would take care of me, if I showed him I trusted him by pushing myself.  And I began to.  I began to train myself to walk regularly again.  I also stopped going onto the internet so much, relying on other people, to heal myself.  I trusted in him and myself.  I had a bean and cheese taco from Taco Bell which sounds pretty funny to the average person, but to me, it was trusting in God and letting go of all those things I’d read that other people said would hurt me more.  I started living my life, regardless of how odd it now was.  All of these varying symptoms, I simply looked at as another sign that I was still alive.  The pain wasn’t debilitating, so I stopped acting like I was debilitated.  I began to give my daughter baths again (my family helped me so much with my daughter during this since I was a single parent), going grocery shopping, lifting light things, opening things, going outside, and finally…driving.  This was not without help, however.  I did not have health insurance, but I was able to go to therapy through a program at my college.  Although I was formally too frightened to do nearly anything, I went through the process to get into therapy because I knew I absolutely needed it.  My sister-in-law, brother, mother, and friend helped to take me to and from therapy, until I began driving on my own.  In therapy, we practiced exposure therapy.  My therapist brought in regular foods that others on the internet said would bring in more symptoms and be bad for me.  These small things were keeping me from living my normal life, not being able to enjoy regular dinners or lunches with my family, and our goal was to resume a sense of normalcy.  I went through with the therapy, even to the last of our sessions where I ate conventional meats (chicken and pork) which I was the most scared of.  It was difficult for me to even tell if I had a reaction because I was still feeling strange most of the time, but the important thing was that I did it and it was no longer a source of intense mystery and fear for me.

So now, I was driving, able to enjoy regular foods, going to school, and taking care of my daughter.  I realized at certain points that the fog was no longer there, or was substantially decreased.  The pain had also extremely decreased.  During this time, I moved into my own apartment with my daughter because on top of the Cipro event, the environment at my home was extremely stressful.  I lived with my mother and grandmother at the time, whom both were terribly invasive in my raising my daughter, and my mother wasn’t exactly the greatest supporter of my new health problems.  She didn’t understand and to her; you simply deal with it and get over it.  But I, I was falling apart.  I threatened to move to a shelter with my daughter as I felt I had no choice.  I was broken down and ready to give up but couldn’t for my daughter, so my mother gave in and got us our own little apartment.  I had to learn to be alone again too.  After therapy ended (because it’s a program where we see psychiatry students, when they graduate they move on) I was on my way to much better health.  Then my daughter gave me hand foot and mouth disease and I felt a lot similar symptoms as I had before.  By this point, I’d accepted many of the strange symptoms one feels after Cipro, however, and just dealt with them, mostly attempting to ignore them as usual.  Everyone around me saw me appearing “normal” so I could no longer really talk about the strange and troubling symptoms I was experiencing.  There were no tests indicating anything was wrong with me so I had no validation, and therefore, simply kept quiet about it.

Since I was still feeling better overall though (in comparison), I finally went to the clinic and got on a payment program my Mom’s hospital offers, which serves to act as a way to actually see a primary doctor.  The very next day I had women’s issues which concerned me, and so put the payment program to use and went to the GYNO ER.  I found out I had an under-active thyroid and now had to be properly diagnosed, and so got an appointment with my new primary.  Eventually she would find my thyroid was still under-active and prescribe me medication.

Though I was excited to be diagnosed, have some validation, and possibly resolve some of the troubling symptoms I’d trained myself to overlook, I was dealing with the fact that I was never going to be the old healthy me I used to be.  I still had to let that version of myself go.  This new me had to take medication every day.  I’d reveled so deeply in being physically strong and healthy, not reliant on any medications or anything, and that was no longer who I was.  I still have trouble dealing with looking forward and not being stuck on my old self.  But, I’m slowly getting better.  This was the first time I revisited the same time of year the trauma began last year.  It brought back so many memories and feelings I was not expecting.  I live with some of these memories every day, but without triggering smells or sensations.

I am still not back to the healthy person I was before this experience, but I am so very close.  I am world’s away from when this began, and for the first time, even before the Cipro, I feel happy.  I am grateful for everything I have, and have so much to look forward to since I feel as if I am beginning my life again.  I am the single mother I was before, the college student, the daughter, the sister, the girlfriend, and the friend.  My face is even clear and I have gained all my weight back and more. One big change is that I am also so much more empathetic toward those who have health problems.  I’d only lived one way my entire life; healthy and mostly happy.  I was extremely lucky.  I still am lucky, but now I have insight into the personal struggles that people go through on a daily basis, struggles that they don’t tell anyone about.  Those people are so strong and I feel a true closeness with them that I never felt before.  I will continue to empathize with others on a much deeper level than I could have ever done had I not experienced what I have.  I still have so much more to go for myself, and so much more work to do as I am still living with the mental and emotional trauma, but the difference is that I no longer give my future to others to make for me.  I make my own future, and whatever that brings, I know I will make it through.  And if I don’t, I gave it a damn good fight till the end.

This is a side-note that goes into more detail on the anxiety I experienced around food:

I have struggled with whether or not to say anything about this, but I really think I need to, regardless of any negative responses I may receive.

I’ve always had anxiety, since I was a little girl. I was able to live my life despite it, but it had its times where it controlled me way more than I wanted it to. Anyway, I’m saying this because my reaction to Cipro triggered the anxiety like nothing else before. Not only was I having a genuine physical reaction, but the anxiety was off the charts, probably as a mixture of the chemical reaction and pre-existing anxiety. This anxiety fed on the supremely intense fear from what was going on with me. And what was I doing at the time? I was researching and corresponding in this group and other Cipro support sites. It became sort of an obsession. And anything I read to stay away from that could cause me MORE harm became nearly a phobia without me realizing it.

After the worst of my reaction, I wanted to try my best to get my life back. I had to go to therapy just to start eating regular foods again. My therapist literally brought in Cheetos, cupcakes, potato chips with soy, tea (caffeine) and even regular meats. I was terrified this whole time. I didn’t eat them all at once, of course, but this was what my life had become. Not only did I have the true reaction to Cipro, but I was now dealing with this…separation between my old life and my new life. One that included all sorts of fears, from caffeine, to fluoridated water, to sugar, to dairy, to soy, to gluten, to shampoos, conditioners, conventional meats, and many other formally daily foods and items.   I lost nearly 20 lbs in the beginning of my ordeal and I do believe some of it was from fear of eating ANYTHING. And truly, in the end, I do believe that the stress and anxiety from what I was eating caused me MORE harm than any of those things I was avoiding would have.

I am NOT saying this is the same for everyone. I am sure some people truly have reactions to these foods, and maybe some people don’t have the anxiety I have and can control their diet without it becoming a full-on phobia like mine did, but if there’s ANYONE out there like me, you have a really good chance at being normal again. And you may be more normal now than you realize. I realized that I was feeling like crap at the time all the time anyhow, and some Cheetos and Kit-Kats weren’t going to kill me. They weren’t the Cipro.

I eat regularly now, but I’m still working on non-organic meats and alcohol. I am still too scared to try them, but plan on trying after the holidays. All I was fighting for after my reaction was my “normal” life back…and I am SO much closer to that now. During Turkey-Day, I will be able to sit and enjoy that big meal with my family, (just taking my own organic turkey). I still eat mostly organic and even healthier than before, and for that I am thankful. This group truly can be helpful at times, but I only write this as a warning to some who may fall as deeply as I did and not even be aware of it. Do not live your life based on how someone else’s life is. We are not all the same. Please, take care of yourselves and enjoy the little things;  we’re here for such a short time. I wish everyone healing and happiness. Take care and thanks for reading.

I apologize if this offends anyone, this is truly not my intention.

 

** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with Floxie Hope, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.

51 thoughts on “Angela’s Recovery Story – Cipro Toxicity

  1. Lorraine November 12, 2013 at 10:48 am Reply

    Oh Angela, my heart cries out to you, I am crying now. I too took Cipro back in January 2011, the doctors didn’t know what was wrong with me and tried ever increasing amounts of antibiotics and anti nausea drugs. It ended up I had Parathyroid disease and was operated on. But nor before Cipro wreaked havoc on my body. One doctor who saw me said who prescribed these for you, stop taking them. My symptoms were the same as yours except for the severe pain. mine was a general body ache, I too lost weight, at the start I was at 118 pounds and dropped to 84 pounds in 2 months, couldn’t eat, very tired, couldn’t talk, just sat staring. I was always alive and outgoing and in a mater of weeks I was a shell of a person, took just over a year to start to feel I could actually go out of the house, like you I was terrified or everything. Then I got Cervical cancer exactly a year later….Oh god what a journey this has been, still suffer from anxiety and debilitating headaches and general vision and light headedness. But also my parents both died within the last year and that has made my recovery difficult. My family and my own daughter were not supportive either, and it took my husband a long time to be more understanding. I am still in some sort of hell most days, but I am sure some of this is through my worry that the cancer will return and the loss of my parents. I just hope with time I will recover. Sending you much love and peace. Lorraine x

  2. Sherri Johnson November 12, 2013 at 10:55 am Reply

    Great recovery story. I am so very happy for you, and for your daughter.

    • angeladahlia March 6, 2015 at 3:13 am Reply

      Thank you, Sherri!

  3. Kim November 13, 2013 at 9:33 am Reply

    Thank you for the great stour .I can certainly relate to a lot of your experiences
    ,Thank you!!!!!

  4. angeladahlia December 18, 2013 at 5:25 pm Reply

    Thank you ladies for your responses and taking the time to read my story. =]

  5. angeladahlia December 18, 2013 at 5:26 pm Reply

    Thanks so much ladies for taking the time to ready my story, and for your support. I wish you all health and happiness also.

    • frankthetank831 February 21, 2014 at 1:40 pm Reply

      Hey Angela I’ve been floxed since jan 8 I believe I have overcome the tendon and joint issues, and anxiety I got..but now I have tmj like symptoms and headaches every now and then..what helped u get thru those and how long?

      • angeladahlia March 9, 2014 at 7:18 pm Reply

        Hi Frank, glad to hear you’re improving. I actually sprung the money to go see a TMJ specialist since I knew that jaw problems can affect so many other things in the body. The most important part of this, was attaining a quality and well fitted night guard to stop grinding at night. The specialist also made me a day time appliance but it’s not as important as the night guard if you’re worried about price. Also, if you find a dentist familiar with TMJ, they are usually much more adorable than the specialists.

        One more thing–try a light TMJ massage. It was affordable and helped me very much in the beginning. But just be sure to mention that you can’t take much muscle manipulation right now and would like it be light to medium application. Just want you to avoid what I went through, but that was with an all over massage. You should be fine with just the TMJ massage. It really helped loosen up the area and release pressure from my temples/ears.

      • angeladahlia March 9, 2014 at 7:20 pm Reply

        *affordable not adorable!

        I’m not aware of how the dentists are looking in your area! Hahah.

      • frankthetank831 March 9, 2014 at 9:50 pm Reply

        Excellent, so as of today to u still suffer from tmj ..and how weird was it to tell your dentist antibiotics was the causes lol, did u also have lots of headaches?

      • angeladahlia March 19, 2014 at 2:38 pm Reply

        Yes! It was strange to discuss what happened with all of my doctors, really. Lol. But most of them heard me out OK. I definitely had headaches and strange pressure sensations on my scalp. But those have decreased substantially. Still get headaches from time to time, but I don’t think that is Cipro related. We have to remember we aren’t ONLY a product of Cipro and some of the feelings we experience are fairly normal even for an unfloxed person.

        Anyhow, I still have TMJ, I think I always will grind my teeth at night; especially when stressed. But I wear my nightguard each night and it the effects of the TMJ are greatly diminished, especially in comparison with having my jaw completely locked in such a painful way it brought me to tears.

        So, I’m hoping yours is much better as well. =]

  6. Keri Ellington January 28, 2014 at 10:46 pm Reply

    Angela, I’m new to the world of flox, but I’ve been suffering with the jerky movements for a few years now and desperately looking for a cause. I read in your story that you have them too. I’d love to connect with you and find out more. I’ve never been able to find anyone else who has them. here is a video of me in an episode. Are your movements anything like this? http://kiwikeri.blogspot.com/2013/06/video-update-of-symptoms.html

  7. ana March 14, 2014 at 12:12 pm Reply

    You’re story is so touching. Its been almost a year for me since taking Cipro and I experienced very much the same symptoms as you. I began Acupuncture, most specifically something called cupping mixed with needling and it has helped me tremendously. Also, people say this is a hoax but I do “Ionic foot detoxes” and this has helped. It almost seems like I’m flushing out anxiety. I try to Meditate, And LOTS AND LOTS Of Magnesium as a Supplement helped tremendously with my anxiety.

  8. Charles Tooraen June 15, 2014 at 12:06 pm Reply

    Angela, nice to hear another recovery story. did you take any supplements or meds that helped, or hurt your recovery?

  9. Amy June 25, 2014 at 5:39 pm Reply

    Hii Angela! Thank you for your amazing story! When did you first take Cipro and how are you feeling now? Did most of the anxiety and pains go away? How long did it take? So glad you are doing better!

    • angeladahlia March 6, 2015 at 3:02 am Reply

      Yes, they did Amy, thank you! It took about two years honestly, to see a nearly full recovery, but I am much better now and back to living a very “normal” life as we all knew it before Cipro. =]

  10. debbie November 14, 2014 at 6:05 am Reply

    Hi Angela, I took Cipro and I had the worst anxiety I have ever had. I too, had slight anxiety through my life but not like this. It got better after stopping the drug then it came back a week later. I’m wondering how long it took for the anxiety to cease? It’s been all most a month since I took one pill of Cipro. Unbelievable, one pill could do such damage.

    • angeladahlia March 6, 2015 at 3:10 am Reply

      For me, the worst of it took just under a year, but about two years to see a true rebound back to normalcy. How have you been since your last comment? Well, I hope.

  11. Daniela November 22, 2014 at 5:32 pm Reply

    You don’t have to become anxious or fearful about eating antibiotic-laden foods; you are perfectly right and justified not to eat those things! I think you are very smart to demand proper, good, healthy, non-antibiotic treated meat. If Cipro sets off your anxiety, you would get better avoiding it, and buying organic meat is much, much cheaper than therapy!!!!! Be strong, love yourself, and set a good example!

    • angeladahlia March 6, 2015 at 3:07 am Reply

      The anxiety I experienced wasn’t a choice. So although you say I didn’t “have” to be anxious or fearful, my body and brain chose differently for me. I chose not to be a slave to that fear and fight for what I wanted, which was to live without it. I now choose to eat organic when possible because I WANT to, not because I’m fearful for my health and well-being if I don’t. It’s difficult to understand if you never experienced the extreme fear I did, but I hope any of those who may have are helped by my experience.

      Thank you for your comment and I wish you wellness and happiness. =]

  12. Traci February 14, 2015 at 9:51 pm Reply

    This is one of the most touching & heartbreaking stories I’ve read so far. I could not imagine going through this as a single mother. I’m not sure if I would’ve been able to cope is well. I hope it ends for you & your family soon and admire your courage & honesty.

    • AngelaDahlia March 6, 2015 at 3:00 am Reply

      Thank you, Traci. I really, truly appreciate that. I’m happy to report I’ve been living a very active and much normal life since this time. I should really write yet another update to this story, but I just wanted to thank you for your thoughtful comment.

      Take care and I wish you wellness and happiness!

    • angeladahlia March 6, 2015 at 3:08 am Reply

      The last response was me, just wasn’t logged in yet, sorry! Just wanted to clarify =p

  13. Karla April 15, 2015 at 12:26 pm Reply

    Angela,

    I’ve been very cautious about the food thing because of everything I had read. In fact I lost 7 pounds because I was not sure what to eat and also not taking care of myself. You said you eat regular foods now and as organic as possible.

    How long did it take for you to incorporate regular foods? I have tried a few things to see how I react with regular food. Not sure if some of it has been bringing up some of the pain that I’m experiencing which hadn’t really been there. I have bought organic fruits, veggies and meats. Before all this I ate really healthy and exercised. Can the food cause you to feel more aches and pains?

    I was treated for a UTI three weeks ago and given Cipro 250 mg 2x a day for three days. Don’t believe I even had a UTI after my doctor reviewed the urinalysis. I was given medication at an urgent care- so regret that decision. I knew by the third day that the medication was causing the tingly sensations on my right leg down to my foot. Carried over to arms. Now its’s pain in both legs, arms, elbows, fingers, ankles, and on and on.

    Thanks for sharing your story Angela. I can relate so much to it. I’m 34 with a soon to be active 4 year old.

    • angeladahlia September 30, 2015 at 1:57 pm Reply

      I apologize for not replying sooner, how have you been since you commented? I hope you had a quick recovery. I began incorporating more regular foods around the 8 month mark, I believe. It really sped up once I started counseling, as she used those foods as exposure therapy. Once I saw that I could eat the food and still felt more or less the same, I thought, why not? Eventually, the mental, spiritual, and physical healing all caught up with one another thankfully and I was able to get on with my life as normally as possible. I’m happy to say I now eat non-organic chicken and beef on occasion with no noticeable difference. I have even eaten non-organic fish and crab legs with no difference in anything and would consider myself fully recovered with only very minor differences that remind me of what I went through. I am left with hypothyroidism but my life is full, I exercise often, and I am sooo grateful for the life I am able to carry on now. Because I know what my life was like without my health and well-being.

      Please update me on how you’re doing and I wish you all the best.

  14. Gina April 22, 2015 at 12:26 am Reply

    Wonderful story Angela! Did you take anything for the anxiety? Did that improve over time? Also how long did your brain fog last? What would you say was the best thing that helped you through this? I am newly floxed and would appreciate any advice you could give me!! I am also a mom and need to find a way to beat this!! Thank you for a wonderful recovery story!! I am so happy for you!! Gods Blessings…

    • angeladahlia September 30, 2015 at 2:00 pm Reply

      I apologize for my late response. I did not end up taking anything for anxiety and if anything, quit the B vitamins I was taking as my counselor suggested it may be contributing since I am already overly-anxious and aware and it provides even more energy. I am lucky that I recovered from the anxiety, but I always was an anxious person…so what I experience now is largely the anxiety I always had. The best thing that helped me through this was therapy and pushing myself, hands down. Thank you for reading my story and I hope you are doing well and either recovered or well on your way. Take care!

  15. Victoria Turrentine May 20, 2015 at 12:14 am Reply

    Thank you for sharing your story. It gives me so much hope that you got better. I am a 22 year old who is also 7 months pregnant. I took cipro for a uti that would not go away at about 4 months pregnant. Doctor said it was safe to take after first trimester. I told her I didn’t feel comfortable with it, but she insisted that it was better than having the infection. Had no idea that it could cause these problems. While taking cipro my urinary frequency had increased to where i was feeling the urge to go about every 20 seconds. It was excessive and I assumed the uti didn’t go away but after more cultures the bacteria was gone and these bladder symptoms remain. The urge is intense and frequent. It is better with bladder training now. Two and half months later I am getting sharp shooting pain in my feet, legs, ankles, hands, arms, back, and shoulder. I am extremely weak and anxious. I would be very hopeless and would just stay in bed all day if it wasn’t for my unborn baby. I am worried I’ve gotten cipro poisoning, and am praying I don’t get much worse, but most of all that the baby is alright. I’m going to start taking magnesium and am also going to take a trip to the Progressive Medical Center here in Dallas. Hopefully they can help.

    • angeladahlia September 30, 2015 at 1:51 pm Reply

      Hi Victoria, I truly hope that you didn’t end up experiencing a true Cipro reaction, please updated me on how you’re doing now. I apologize for not getting back to everyone sooner, I’m going to turn on the notifications to my email now so I can get these comments send directly to my email. I can’t believe they gave you Cipro while pregnant…that is so disheartening…wow. You’re a very strong woman…please let me know how your delivery went.

  16. kris t May 30, 2015 at 12:46 pm Reply

    I just can’t believe with all these stories that the FDA has not pulled Cipro off the market! I, too have the symptoms you describe in your story, including the pain in the tailbone. The only thing my urologist asked before prescribing this med, was if I had something wrong with my central nervous system! Nothing about tendonitius which I do have in my left leg. I should have said yes! But he would not put me on Doxycycline which is the only other antibiotic I can take, he said it is not used for UTI’s. I finally got over the UTI with Ceftin which is another horrible drug, but immediately after stopping it, all my Cipro side effects were intensified. The brain fog, muscle pain in back and shoulder, and that tailbone pain. Of course, it doesn’t help that I lay around most of the day. I try to get out but then I get this feeling like I have injested poison and have to come home for the rest of the day. Kris

    • angeladahlia September 30, 2015 at 1:41 pm Reply

      I’m sorry to hear that, Kris. Sounds like you’ve been through quite a bit…have the side-effects lessened since you left your comment? I understand the laying around aspect. I did that for quite a while too, out of fear and discomfort with my own body…but the sooner I started pushing myself to get out more and move, the sooner I recovered. I really hope you’re doing well.

  17. Lisa Cermelj June 13, 2015 at 6:04 pm Reply

    Angela,
    If you still see these comments/posts I would love to get in touch with you! I am almost 7 weeks out from my Cipro reaction and reading your story is like telling my own. I have developed terrifying food phobias. I have lost almost 30 lbs in 4 weeks and have severely limited my diet due to fear. If you don’t mind, could you please contact me through my email address lisa.cermelj@neomin.org. thank you!!!!

  18. kris t June 14, 2015 at 12:24 pm Reply

    Angela, are you still commenting on your post? I wanted to know if you think massage is OK if you have an injury and doing PT along with it. Although I have been to two massage therapists and didn’t care for either one. I think the muscles in my back were affected by this whole Cipro thing. Kris

    • angeladahlia September 30, 2015 at 1:37 pm Reply

      Hi Kris, I know it’s been a while since you asked, but I think massage is fine as long as it is not too intensive for you. It really depends on how far out you are and what kind of massage you’re getting. In my case, a deep tissue massage was the worst thing for me and I wish I would’ve known that ahead of time.

  19. irin September 8, 2015 at 6:42 am Reply

    Angela please tell me how are you now does Dp fade away completly cause i am suffering from derealuzation n depersonalization for cipro im too scared if it wont go away im just going insane everything is just like a movie please help me :(((

    • irin September 10, 2015 at 1:31 am Reply

      angela please i need help please reply :((((

    • angeladahlia September 30, 2015 at 1:36 pm Reply

      Hi Irin, I’m sorry I haven’t responded. I don’t check this blog as often as I should. I didn’t realize people were reaching out. When did you get floxed and how has it been since then? I no longer suffer for the DP. I understand your concern as that was even worse than the physical symptoms for me. Or at least, scarier. I know it’s been a couple weeks since you left this comment. How are you now?

      • irin October 10, 2015 at 3:12 am Reply

        i got a really bad derealization and depersonalization now for 3 months i just took one cipro and one factive after the ab surgery im suffering too bad on hell

        • angeladahlia October 13, 2015 at 5:47 pm

          I understand completely. One of the things that helped me the most with the DP and DR was going to therapy. Althought the DP and DR were triggered by the Cipro, they were their own isolated symptoms which had to be treated on their own. I began to research DP and DR and realized they were a symptom of severe stress/anxiety. The best way to recover from DP and DR is to continue living your life despite the extreme uncomfortable feelings you’re experiencing. Your brain will begin to normalize as you do this…the various situations will bring on less fear and anxiety as they become normal to you again. Stress and anxiety feed the feelings, or at least, help them to continue. The change won’t be immediate. It’s key to understand that this a lengthy process and that the feelings, no matter how scary or uncomfortable, WILL NOT HURT YOU. DP and DR are nothing to be afraid…and once you stop being afraid of them and afraid of living, that’s when they begin to fade. The fear feeds them…let them starve, if you will.

          I wish you luck on your arduous journey, but understand that you will get better no matter what. Feel free to contact me with any further questions. Take care.

  20. kris t September 30, 2015 at 2:03 pm Reply

    Angela, I am doing better since I left you the message on your blog. The brain fog has cleared quite a bit, but still in a lot of back pain. Mainly lower back and the upper neck area, and rhomboid muscle. I have been to three chiropractors and two sessions of PT. Plus have this weird double vision going on. But as far as the weird droopy feeling, that is gone. Lasted about five months. I too find that if I eat crappy stuff, get that weird feeling the next day. Chiropractor is doing the deep tissue massage which really puts pain on that one muscle. I am not sure what to do next. I am thinking home exercises and maybe a light massage once a week. Chiropractor does have a physical therapist who is doing strengthening exercises for me and lower back exercises. Ortho dr wants to do an epidural in my neck and even though we are not to have sterioids, I may go ahead with it as I am in terrible pain and neck is so very stiff and crackles when I move it. Kris T

    • angeladahlia October 13, 2015 at 5:51 pm Reply

      Glad to hear you’re doing better. It sounds like you’re very committed to healing and I believe that you will. However, I did state that I felt crappy regardless of what I ate so I just decided to start to eat more normally. It really sounds like you’re on a good course, though as that is considerable progress in just a few months. If you think that the steroids will help you, I would support that decision if you have exhausted all other avenues. Have you tried liquid magnesium on your neck or stiff joints?

      When I had my first symptom of jaw clenching shut (extremely painful), the magnesium oil helped unclench it the next day. Hope you’re doing well—

  21. kris t October 10, 2015 at 6:24 am Reply

    Irin, it took me five months to get over the brain thing. Hang on. Like everyone says it comes in cycles and I could go back to the dark days, but I am hoping not. Are you taking any of the supplements recommended on this web site? Please be sure to write also on Ruth’s page as she will get back to you right away. I am not sure Angela is very active on her blog. Kris

    • angeladahlia October 13, 2015 at 5:53 pm Reply

      As I’ve stated, I am nearly completely healed and thus would rather not spend most of my time in the blogs or in the chat room anymore. As a single, working parent I’d rather spend most of my time being active and with my daughter…since Cipro, that is my priority because I am more grateful than ever to be able to do so.

      I am as active as I can though and hope to help when possible. =]

      • irin October 17, 2015 at 1:45 am Reply

        abgela tell me how dp and dr were keje fir you? what symptoms did you have ???

  22. AJ November 12, 2015 at 6:52 am Reply

    Thank you for your story. I also took Cipro (The devils poison) for 4 days for a UTI. The headache was excruciating, severe lower back pain, numbness in my hands, vertigo, nausea, constipation, muscle cramps, (especially in my biceps and left hamstring), the list is long. I contacted my doc who told me to continue, but I didn’t. I am better, because of people like you. I read these post and immediately went and purchased Magnesium, Vitamin E, George’s Aloe Vera Juice, garlinasse, oxylent and flaxseed oil. I am improving, but I am terrified.

    How you found any studies that show a recovery rate, long term effects, ect? I am hunting information. I am not sure when to start exercising or how much.

    Happy to hear about your recovery.

  23. dan December 27, 2015 at 1:22 pm Reply

    aj you still out there? dan.

  24. dan December 27, 2015 at 1:25 pm Reply

    irin you stil out there? dan

  25. Tricia W. May 18, 2016 at 5:11 am Reply

    Thank you SO much for writing this. I am currently going through spreading peripheral neuropathy that has greatly affected my vision amongst other things. My obsession with reversing this because has created a lot of phobias to everything that I read could exacerbate the condition in addition to past food allergies I have. Reading this really gives me hope and courage to keep pushing towards recovery. Thanks again!!!

  26. Ruth Young July 5, 2016 at 12:14 pm Reply

    Angela,
    Thank you for writing this because I think many need to hear it– that our bodies can be ok again even if we don’t do everything perfectly to guard our health every minute of every day. Because, who can do that? Who, floxed or not, can guarantee that never in their life again will they have a sip of wine, or a handful of Cheetos or a cupcake or a cup of coffee or get exposed to a little fluoride through tap water?

    We cannot isolate ourselves and live in a bubble because no one can do that. And things that aren’t good for us now were not good for us before we got floxed but the difference is we were not obsessed about avoiding them. We tried to avoid them to a certain point, or like, me realize now we should have been. My overconsumption of sugar had weakened my health preflox and made my reaction to Cipro more severe than it needed to be because eating too much sugar can delete magnesium levels in your body. Oops. I screwed up. But I have managed to learn to be more sensible about sugar. And I healed to nearly 100% from what Cipro did to me.

    But I agree that being obsessive about avoiding things not good for our health is in itself unhealthy, since no one can do that perfectly. Sometimes it felt as if I was worshipping a false god, an idol of perfect health, instead of trusting in God and seeking His kingdom first. So I completely see where you are coming from and sometimes remind myself that the God of love who is my Good Shepherd will take care of me and lead me through this valley of sorrow to Himself in heaven and He is going to do that for me even though I do not always care for this mortal body perfectly. He does not expect me to be able to. There is no eleventh commandment: “Thou shalt not drink fluoridated tap water.” But God does say that He will preserve my life for as long as He has work for me to do on this earth.
    Thank you for your example of courage and faith and for taking the time to write about it.
    Ruth

  27. DM August 1, 2016 at 3:58 pm Reply

    Ruth,

    I want to thank you for writing that. As I drove in my car today I thought, you can’t live your life in a bubble. Then out of nowhere, I decided to re-read Angela’s story again (for the 100th time) and I then I read your last reply.

    I was floxed a year ago, and I haven’t been the same since. I don’t have debilitating issues, but nonetheless I’ve developed a total fear of fluoride, fluoridinated water, non-organic meats, processed foods etc. Thank you so much for your words. We are not perfect, therefore I cannot expect to live perfectly. This is too much. My world, my life has been consumed for the past year trying to feel normal again. I just don’t know what I can do to achieve that. My biggest floxie symptomsto date are 1) insomnia and 2) no taste.

    I haven’t slept the same since I took Cipro (500 mg 2x day) over a year ago. I use to sleep and take naps whenever I felt like it. Now I fall asleep, wake up two hours later and struggle to fall asleep again until morning. Sometimes I fall back asleep for an hour, sometimes not.

    Also, I don’t taste anything when I eat. I mean, I know when I’m eating chicken or potatoes or fish, but the food doesn’t have meaning anymore. It feels meaningless. Food doesn’t bear the same taste as it always did. Sound crazy? It feels like a death almost, yet I’m alive.

    Could you or anyone suggest what I could take to alleviate these 2 symptoms? My body needs real sleep so badly and I need to be able to eat and really taste and enjoy food. I’m at my witts end.

    Thank you again for your words. You have strengthened my faith in God.
    DM

  28. Megan w. July 5, 2017 at 8:46 am Reply

    Angela-
    You made me cry! I’m in the beginnings of this storm. I need to fight thanks for encouraging me today. I don’t know what to do where to go next I’m praying that I get answers. Appreciate your heart. If you have further advice email me. Thanks so much.
    -Megan W.

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