Brian’s Recovery Story – Cipro Side-Effects

Brian Flower

*The following is an individual’s story of surviving fluoroquinolone toxicity. It is not medical advice. Please see the disclaimer at the bottom of the story. Thank you, and please be cautious with all treatments. 

I became a “floxie” in November of 2012.  At the end of October, I began to have symptoms of a UTI.  I had never had one before, but I was familiar with the symptoms. Unfortunately, hurricane Sandy hit just as my symptoms peaked and I couldn’t be seen by my doctor for a couple of days since no one had power. When I finally did get in to see a doctor, she listened to my symptoms, took a urine sample and started me on 250 mg of Cipro daily.  I had never heard of Cipro, but didn’t think twice about taking this antiobiotic since I’d taken other antibiotics before and prided myself on the fact that I never had any adverse reactions.  Not even an upset stomach.

The urine culture came back negative a few days later.  I was told to finish the 7-day course of Cipro and an appointment was made for me to see a urologist in two weeks.  By the time I saw the urologist my symptoms had subsided somewhat, but not completely. I wasn’t feeling any side-effects from the Cipro at that point. The urologist decided a had prostatitis based on my symptoms and prescribed another course of Cipro.  He said, “Your GP had the right idea, but wasn’t aggressive enough.” This time I was to take 500mg twice a day for 6 weeks!  By the time Thanksgiving rolled around I was starting to have mild flu-like symptoms which gradually got worse. By mid-December, I was having trouble walking, all my muscles and tendons ached, and my joints were freezing up.  When I started having difficulty typing (I’m a software engineer so this was a big problem), I knew something was wrong and went to see my doctor who (looking very nervous) told me to stop taking the Cipro immediately.

For about 2 months thereafter these symptoms remained and new ones appeared: gut-wrenching heart palpitations and “inner vibrations” that constantly woke me up, confusion, anxiety, hypochondria, breathing difficulties.  At it’s worst, my wife found me curled up on the bed in the fetal position crying. Even though my doctor acknowledged that these issues at least stemmed from “an allergic reaction to Cipro”, he wasn’t convinced that my continuing condition was due to the Cipro.  Why?  Well there’s a parallel story here which is a topic for another “medical victims” blog.  The short story is that some time before my floxing, I had had a sinus infection that was also causing me severe insomnia and some anxiety.  My doctor prescribed Clonazepam (a benzodiazepine) and over time I had inadvertently become dependent on it.  I didn’t realize until many months later that fluoroquinolones are contraindicated when taking benzodiazepines. This is something I found out through a benzo support forum only recently. Unfortunately, my doctor doesn’t quite acknowledge that these symptoms could be due to long-term withdrawal from clonazepam either.  He ascribes my remaining symptoms to “general stress.”

Most of the significant physical symptoms abated after 2-3 months.  It is now about 1 year since my “floxing”  and I’m mostly healed except for a pretty terrible case of insomnia, some cognitive deficits, mild tinnitus,  and the “inner body vibrations” that come on during the multiple times I wake up during the night.  I also have periodic heart palpitations and anxiety although those symptoms have lessened considerably. I also became aware of the perils of getting addicted to benzodiazepines and tapered off the Clonazepam. I’ve been benzo-free for about 8 months.

Are my remaining symptoms due to the Clonazepam, the Cipro, or neither?. Benzodiazepine withdrawal can produce many of the same long-term neurological symptoms as fluoroquinolones.  Of course, I’m not sure it’s important that I get an answer to that question. It is what it is and I just have to deal with these conditions the best I can. There is no specific treatment for fluoroquinolone toxicity or protracted benzodiazepine withdrawal.

I have to admit that I’ve become pretty disillusioned with the medical profession.  I’m currently 52 years old and up until my late 40s, I was as healthy as an ox.  I’ve never had a childhood disease.  Never been admitted to the hospital.   So I had little reason to see a doctor and I didn’t even have yearly checkups until my wife started getting on my case in my mid-40s.  I ended up finding a GP I liked and with whom I established a good relationship. But after failing to warn me about how addictive Clonazepam was and not really dealing with my Cipro reaction very well, I’m thinking about finding a new doctor.  But are any of them any better?  Maybe this is just the way medicine is practiced now. At one point, my doctor told me that back in December he thought I was having a “psychotic episode.”  He said that almost jokingly.  Some time after that I learned that psychosis is common during benzodiazapine tolerance withdrawal and can also present in severe reactions to fluoroquinolones.  So I didn’t really see the humor…

Like many, I’ve found magnesium glycinate to be helpful.  I take as much as I can until I experience too much of the laxative effect and back off a bit.  I find it calming and I also believe it helps me sleep.  It was instrumental back in December through February when I was suffering from severe myoclonic jerks and muscle cramps.  I can’t really give you an estimate as to how much I’ve healed because I find the insomnia to be so debilitating.  Despite that, I exercise 5 times a week.  Not too strenuously because I find that overdoing it exacerbates some of my symptoms.  I’m able to work although not the 50+ hours/week I was used to (that’s probably a good thing). Like many others, I’ve cleaned up my dietary act.  I no longer eat/drink gluten, dairy, sugar, caffeine, or alchohol. So by some measures (as my doctor is quick to remind me), I’m the healthiest I’ve been in 20 years.  I’m certainly MUCH better than I was 9-10 months ago.  I’m planning to see an acupuncturist to see if that will help with my insomnia.  Once I lick that I’ll be golden!

My most sincere best wishes and positive energy to all those reading this who are suffering or who have suffered because of this drug.

October, 2014 Update –

I still have some remaining issues and it’s hard at this point to know for certain whether or not they’re flox-related. I was doing pretty well for quite a while. My remaining issues were sleep-maintenance insomnia and some muscle fatigue. But I was (and still am) doing much better than many. Then about 6 months ago I started experiencing increased fatigue. Not sleepiness which could be explained by the little sleep I get, but major down-into-your-bones fatigue. Because of the number of floxies who also seem to test positive for Lyme, I found an LLMD who bills himself as a “Holistic MD” who ran some tests. I was encouraged to see that many of the tests were not the usual ones ordered by standard MDs. Those tests came back just barely positive for Lyme. The LLMD told me that there was no way to say for sure whether I currrently had an active Lyme infection or whether I had just been exposed to the Lyme bacteria at some point in the past. He also told me that my symptoms were pretty minor as compared to most Lyme patients he treats. He was familiar with FQs and how nasty they are and does not prescribe them. However, he wasn’t that familiar with FQT.

After some additional tests and some soul-searching, I decided to let him treat me for Lyme. This included at least 2 months of heavy doses of Azithromycin and Rifampin. I tolerated these relatively well although I think they caused some reflux and other GI problems and increased my anxiety. After about 3 1/2 weeks of this, I got scared off and stopped the treatment. I was never really convinced that I had Lyme in the first place. And the Holistic MD was kind of “eccentric” and didn’t inspire a lot of confidence.

Over the last month my fatigue has increased and I had what seemed like a sinus infection. It started off with pain behind my eyes when I moved them up/down or right/left. That stopped after 1 week and then I got the full nasal congestion/head fullness. I treated that naturally with colloidal silver, neti pot, and lots of steam. Most of the symptoms seemed to resolve after a week. However, the fatigue remains. In addition, I still have some head pain that occurs if I move my head quickly from side to side. The pain is only on my left side and seems to go from my neck through my lower jaw, behind the eye, and to the top of my head. And I guess I still have some soreness when I move eyes as well. This could be a chronic sinus infection, or maybe not. My GP so far wants to try a trial of antibiotics (no FQs!), and I think I might need to do that before anyone will order a head CT or MRI which is what I really think needs to be done. Not sure what I’m going to do yet.

In the meantime, I’ve decided to take some other steps to address my ongoing fatigue issues.. Despite what I and the rest of the floxie community have been through, I don’t believe that all doctors are idiots. And maybe some of them can actually help me. I’ve read a lot about Functional Medicine and I like that approach. I found a couple of Functional Medicine practitioners locally, but it’s hard to determine whether they really practice functional medicine and how good they are. Typical problem when trying to find a new doctor. So I decided to go to the source. I made an appointment at the Ultra Wellness Center in Lenox, MA. This is the clinic founded by Dr Mark Hyman who some of you may have seen on TV. I’m not seeing him personally (he’s not accepting new patients), but I am seeing Dr Todd LePine.

This is not for everyone. It’s very expensive and most of it will not be covered by insurance. But I’m lucky in that at least for now, I’m still working and can afford this. What better use for my money than my health after all?  I doubt they know anything about FQT and I’ll try to educate them although that’s not my primary goal. I’m just hoping that they’ll dig a bit deeper than a traditional doctor can or is willing to do to get to the root of my problems.

My appointment is in November and I’ll keep folks here informed.

** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with Floxie Hope, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.

58 thoughts on “Brian’s Recovery Story – Cipro Side-Effects

  1. Roberta Mary Ladieu November 28, 2013 at 11:10 pm Reply

    Dear Brian, Thank you for your story, I’m so sorry to hear you have gone through so much misery .I was so depressed I told my family I wanted to die, They took me to the emergency room, when I told them I just didn’t want to live, they had me admitted to a mental hospital and I was there 6 days. I’m home now and I’m hoping and praying I don’t go through what you did. I had a U.T.I. also , and like you she put me on anti-biotics that I took for the prescribed 10 days, A day later I had all my teeth extracted and the Dentist put me on these pills again, took them for the 10 days, went back to my Dr. she put me on a different kind of anti-bioctics, took them for 10 more days, and I was on pain pills also, so I don’t know what made me have these panic attacks. I’m hoping you feel your old healthy self again soon. A friend in misery, Roberta Mary Ladieu

  2. Ester schulkin November 29, 2013 at 4:57 pm Reply

    brian, I was also on benzos when i was floxed-I find myself needing to take more and more for the anxiety and insomnia. What helped you get off of the benzos?

  3. brian December 4, 2013 at 1:25 pm Reply

    Hi Ester,

    Nothing helped me get off the benzos. After a few months of having to increase my dosage (due to tolerance), I decided that I had had enough. By this time I only needed them for sleep. So I tapered off of them. I probably did that too fast. At this point, I can’t tell whether my lasting symptoms (insomnia, body vibrations, tinnitus) are due to my floxing, the benzos, both, or neither. But even when my symptoms are at their worst, I refuse to take any more benzos. Benzodiazepines are another class of drug that I (and many others) feel are overprescribed. Just like FQs. If you want more info on benzos and getting off of them, I’d suggest you visit

    Good luck to you.


  4. Dan February 28, 2014 at 2:11 pm Reply

    Hey Brain,
    I’m also floxed, and a software guy.. I would like to talk off site. What is your email?

  5. Josh March 16, 2014 at 12:28 pm Reply

    Hey Brian,

    I had almost the exact same experience as you and came to know cipro in the same way. I too took cipro for an extended period of time for prostatitis and the onset of the adverse reaction took quite a while. Similar to you I was also prescribed benzos and have been tapering off of them for the last week or two. I am two and a half months post reaction and struggle with the daily leg pain/tendon pain and have recently been having some trouble getting a full breath. I’ve been told it’s a sinus infection and the Dr. prescribed prednisone which only exacerbates the leg pain. How did you over come the sinus infection and did the breathing issues subside on their own? How long was it until your tendon pain began subsiding and did you do anything that you think helped it along? I cannot believe how similar our stories are and I look forward to your reply.

  6. brian March 18, 2014 at 5:09 am Reply

    Hi Josh,

    The sinus infection resolved after a course of antibiotics (not CIPRO) and I haven’t had one in a while. I’m not sure why. The breathing issues still come and go, but when they do come around they’re not as bad as they were. Breathing issues like this are VERY common when you’re tapering off of benzos and you’re only in the very beginning of your taper. Sometimes, these types of breathing problems can be a sign of stress (which most floxies and people withdrawing from benzos are under to one degree or another). I found that doing concentrated deep-breathing exercises helped. Have you visited Lots of great information and support there for people withdrawing from benzos.

    My tendon pain subsided after a couple of months. I still get some twinges though, especially if I overdo it. I’ve limited my exercise and I’m careful to stop exercising if I start to feel anything getting tight in my tendons or muscles. The good news there is that I can exercise…

    Hope this information helps. Good luck to you.


  7. Ms. A August 20, 2014 at 11:37 am Reply

    I’ve never been on benzos and I had those same reactions after Levaquin. The extreme pounding, elevated heart rate, panic and anxiety that would practically knock me out of bed and wouldn’t let me sleep. They happened during the day, too, but not being able to sleep is dreadful.

  8. RICARDO August 20, 2014 at 1:33 pm Reply

    i have the same symptoms ater 2 500 m of levaquin , im a year in . most of my symptoms are gone i have every single one . r now i dealing with just joint pain and ibs , good diet , and antioxidants , i have 2 set backs . short ones , and everyday less intense . it will get better . the mental was the worse part . god will help us

    • Ricardo Besil October 5, 2014 at 2:18 pm Reply

      Update . I have two more relapses they last only 2 weeks and the last one only 4 days . Still deal with fatige .but my ibs is i lot better . Im taking d.limonene . Ubiquinol. Reduced gluthione . Still have minor pains on my legs arms and neck . I found stress make everything worse . When i was floxed they did all can of test on me . Everything was fine .they want me to take xanax and paxil i say nope . I think those are worse and prolonge your symtoms . I take epson salt baths every other day . And magnesium oil . This cycles come and go every 3 months but they are less and less and they go away faster

  9. rich January 9, 2015 at 5:57 am Reply

    how you doing ricardo

    • ricardo April 5, 2015 at 5:32 am Reply

      Hi im sorry . Im 20 months out now . Still have this pains on my joints and ligaments . I sleep better . I cant workout yet . My gi improve about 70%. Dizzy some days .weird heart palpitations . Strees kills me or any stronge emotions like anger or saddness . Weather . My teeths hurts . But mainly the pains i hope one day they all go away . Still with some suplements .

  10. rich January 9, 2015 at 5:58 am Reply

    and you josh

  11. Linda Livingston April 4, 2015 at 8:54 pm Reply

    I have had vision problems, severe pain, numb fingers and toes (and nerve damage) bladder pressure, GI issues–lost 30 pounds from a healthy weight. Now I am having horrendous chest pain and breathing problems. CHecked out ok with cardiologist and pulmonologist. PLEASE anyone—any help with how to deal with the breathing problem? If I hadn’t taken Cipro I’d be going to the ER–but I won’t because I know they will just give me something to exacerbate. Been to every specialist, had every blood test–of course they all come back negative and no MD will help or believe me. Seeing ND next week but I almost feel like I may not make it…breathing is so so hard and the chest hurts so much. PLEASE does anyone have something they take for this that works?

  12. Linda Livingston April 4, 2015 at 8:54 pm Reply

    sorry forgot to check box about email notification

    • ricardo April 5, 2015 at 5:37 am Reply

      Lisa do you think the chest pain is gi related . The first 6 or 8 months it was very bad . The doctors say was acid reflux and the put me on zantac . Not help . If you think is gi related . I did some d limonene . Dgl licorice . Marshmellow root ,lots of avocados and red cabbage . Hope you feel better soon .

  13. Linda Livingston April 5, 2015 at 10:43 am Reply

    MY teeth hurt too, along with several other parts. The hardest to deal with other than the vision and grossly hyper sense of smell, is the breathing and chest heaviness. It’s all the time now

    • kumarie dayal November 11, 2020 at 4:15 pm Reply

      are you any better now. please let me know if your out there

  14. Beth Annathia May 20, 2015 at 11:22 am Reply

    TY ! For sharing your story. I had already floxed years before Hurricane Sandy. But because of floxing was put on anxiety, anti depressant meds. Which caused another set of issues. Hurricane Sandy sent me into a tail spin big time. Just thinking of it makes me crazy. You are a strong person. I can’t imagine being floxed in the aftermath of it.

  15. Susan Holloway May 23, 2015 at 10:31 am Reply

    I am pretty sure cipro = rifampin. I got nailed twice on cipro myself. I am also on a low dose of benzo or I don’t sleep. I have several lingering side effects, including severe tinnitus. I already had vertigo, and I also was given the Lyme dx and was assured cipro would cure both vertigo and tinnitus. The withdrawal from cipro can be brutal.

    • Brian May 23, 2015 at 12:55 pm Reply

      No. Cipro and rifampin are completely different drugs.

  16. Linda Livingston May 23, 2015 at 11:28 am Reply

    Brian, my too started with a UTI…and I was given prednisone at the same time as cipro, also contraindicated. I also had been strong as an ox..worked out regularly, 1 1/2 minute planks, three chinups. It has now been almost 4 months and still not strong enough to exercise, but I have put back 10 of the 30 pounds I lost, and am at least walking upright now. The breathing is still a problem, but a bit better. It is a weird combination of things—chest pressure and neck pressure and possibly mitochondrial damage to the heart muscle and /or autonomic nerve damage. I had total insomnia for about a month, then about 2-3 hours sleep a night and now about 7, but only with zolpidem (ambien, which acts like a benzo but is not) I have even been able to cut it in half, and once the breathing hopefully improves and I will try to wean off altogether. It is insane that this class of drugs, which were meant for life and death situations, are handed out so freely for simple infections.

    What has helped me is twice weekly IVs from a naturopath…the numbness in my fingers is mostly gone and starting to go away in my toes. My hyperosmia (this is a truly horrendous side effect where all scents are so grossly exaggerated that it has kept me a shut in. Everything smells as strong a bleach) has improved some, my excruciating mid-back pain is less painful and occurs far less often, and the insomnia, again has improved. I have color back in my face for the first time in months. The IVs I get are high-dose vitamin C, phosphatidylcholine, Myer’s Cocktail and H2o2 (primarly for my asthma, since now my asthma meds are also contraindicated!).

  17. Tom October 8, 2015 at 3:47 am Reply

    Interesting tale. I stopped taking a prescribed benzo after 10 (!) years of daily use. I don’t have to tell anyone who’s been through this hell just how bad and frightening withdrawal is.
    I have a bladder infection and was prescribed Cipro a couple of weeks ago. After one dose I was cramping,nauseous and altogether uncomfortable. Even though I told my Dr. I was in Benzo withdrawal she prescribed the Cipro because she saw no connection….there’s a connection alright. Until doctors educate themselves and start listening to their patients more people will suffer needlessly.

  18. L October 8, 2015 at 8:57 am Reply

    yes! It is astounding how few doctors are aware of those connections, and even MORE astounding how few are aware of ANY cipro side effects. FYI, I got another UTI after I was floxed and was terrified of taking ANY antibiotic. An ND had me taking D-mannose, herb pharm urinary system support, and tapering doses of A and C and it took several weeks, but went away completely as confirmed by a blood test. I don’t have the exact numbers/tapering doses I used, but I imagine any ND would be able to tell you.

  19. Jennifer October 26, 2015 at 9:36 pm Reply

    Linda, I got floxed from taking Cipro for what they thought was a UTI. It has affected my breathing as you described, shortness of breath, a tight feeling across chest, sometimes with shaky feeling, heart racing and/or fluttering. I also get a thick throat feeling. I never had any anxiety issues and I had my thyroid tested but that was negative. I also get dull to sharp pain below my breastbone depending on the day it can also feel like it is going through to my mid back. I’ve read extensively and I too came to the conclusion that this is nerve damage to the automatic nervous system which according to my cardiologist (who determined after testing that my heart structure looked good, but that my heart was beating very fast) can also cause heartburn and indigestion. I’m almost a year out now, the first 4 months were the worst. I continue to have joint and tendon pain, (snap crackle pop when I move) a lot of eye pain, and a sensitivity to smells that never bothered me before. I walked down a candle isle and was overwhelmed with nausea. I’ve had several relapses but without a doubt the hardest part of this has been the pelvic pain, it is a deep gnawing pain that can last for weeks or months. The pelvic pain usually comes with urinary pressure, rectal pressure, pinching sensations, and low back pain. I think this is also a nerve issue. I have had 2 cat scans, multiple trans vaginal ultrasounds, but nothing shows up. Then I wake up one morning and the pelvic pain is gone. So far, the longest it has stayed gone is 3 months, each time I pray it never comes back. I won’t go into all my symptoms, because it is a long list that many others have already discussed but I will add an extremely odd one in case someother floxed person is looking for their symptom. At night, just when I am about to drift off to sleep I would get what I can only describe as a wave of nerve sensation that would crash over me, starting at my head and continuing to my toes, like a mild electric shock. It would happen multiple times a night, this only happened for the first few months thank god. To all those who are reading this in those first few months, it will get better, it takes time, and patience. Try not to freak out – everyone’s story is their own, you may be someone who gets better in 2 months…stay calm and focused on your own health. Good luck and God bless.

    • Erin July 25, 2016 at 2:32 pm Reply

      Jennifer, I know this is an old comment but if you see this could I ask you some questions about your pelvic pain through e-mail? I’m dealing with something similar and you’re the only person I’ve heard about who has the same type of pelvic pain as me. Thanks

    • Rich August 15, 2019 at 6:33 am Reply

      Thank you for your words. I was recently flowed this week. Please pray for me

  20. Linda October 26, 2015 at 10:30 pm Reply

    wow—Jennifer, we have a LOT of the same side effects. My breathing for a couple months was absolutely terrifying—literally gasping for each one. It is better but still not normal. The reason I figured it was the heart or autonomic nervous system was that my lungs checked out ok—and it just didn’t feel like it was the lungs. I also was very sensitive to any touch around my chest and back. I would have to hold a seat belt off and away from me (still do sometimes) and I was wearing the loosest bra I could find and it was so uncomfortable. I also had/have nerve stuff around my neck. sometimes it feels numb and other times like it is choking me. I too had a pressure/pain right in the center of the breastbone and sometimes it would migrate up a few inches. That has only just recently “left,” in the last few weeks (I am b/t 8 and 9 months.)

    I had the hyper-sensitivty to scents that was so bad I was literally a shut in. I can go in stores now, but it is not comfortable. Esp if there are candles, or walking down the detergent isle. If I walk past a burger place, whereas before I would think “ooh, I want a burger,” now it is “what is that disgusting smell?”

    The pelvic pain and pressure makes me feel like I ALWAYS have a UTI! One time I did, but just recently I was sure I did—pain, pressure, burning—and the test came back negative. I keep hoping this isn’t one of those “permanent” nerve damages (ditto the breathing and vision).

    thanks for sharing….I was wondering if anyone else was experiencing these things.

  21. dan December 27, 2015 at 5:33 am Reply

    jennifer, how are you doing now? dan.

  22. Mary Hop January 3, 2016 at 8:56 pm Reply

    hello Brian, I hope you have continued to heal. Did you get any help from the Ultra Wellness Center? I was interested in your symptoms of pain on the left side of your face and in your eye. Has that gone away? I have the exact same symptoms as well as tinnitus. I took levaquin because of a sinus infection which caused pain and swelling mainly on the left side almost a year ago. Ended up with a multitude of symptoms I won’t go into here but the first 6 months I had constant facial, eye, sinus and ear pain as well as severe tinnitus. My dr thought the tinnitus and anxiety were due to damage to 8th cranial nerve. Pain in jaw, eye, face, nose teeth etc can be due to trigeminal neuralgia which is damage to 5th cranial nerve. I am guessing if my 8th cranial nerve was damaged the 5th cranial one could be too. The last few months it has improved except when I get a cold and nasal congestion so am confused if the pain is due to nerve issues or unresolved sinus issues. I would appreciate any input or suggestions you have. God bless.

  23. Mary January 6, 2016 at 11:47 pm Reply

    Hi Brian,
    I have an appointment with an ENT next week to talk about sinus surgery so would really like to hear from you before that about your facial and eye pain. See my post above. Hope you are checking your email and not out of the country or something.

  24. Jeff beckett January 20, 2016 at 2:35 pm Reply


    Are you still having palpitations? I had an occasional pvc or pac, but now, about two weeks after my last dose, I am having sometimes one a minute. Sometimes one an hour. Had an ekg and blood work and all was good. Pretty scared still at this point, because I feel my palpitations from my stomach to my neck.


    • Linda January 20, 2016 at 4:20 pm Reply

      You will find that most tests do come back negative because, as Dr Todd Plumb says, the problem is functional, not structural. I had palpitations for a couple months. They finally went away. (wish everything had gone that quickly) As alarming as it feels, it is likely not serious. I did however have a stress echo and discovered I had pericardial effusion (fluid around the heart) so that might be something to check out. (If you do, standard treatment is NSAIDs which I refused.)

      • Lizzie July 12, 2019 at 12:53 pm Reply

        Hi Linda, I saw your earlier comment about the bladder pressure and the breathing, I’m going through both those symptoms now, please would it be possible to talk by email or anything? I’m so desperate for help and I’m so scared. X

        • Linda July 12, 2019 at 4:05 pm

          Hi Lizzie. All I can tell you is that both went away for me. For the bladder pressure, what helped most was acunpuncture and Chinese herbal medicine. Not sure what helped with the breathing…mostly time, maybe IVs like high dose C. I wish I could be more helpful, but I honestly don’t know what helped.

        • Lizzie July 12, 2019 at 9:13 pm

          Thank you, I’m in the UK so I’m not sure how IV high dose C would be available but it’s worth a shot. Also, how are you feeling these days? I’m newly floxed. Something like 3 weeks in. I don’t know where to turn for help. I’ll definitely be looking at acupuncture as well. X

        • Linda July 12, 2019 at 9:31 pm

          Doing much better. I believe there are other on this site in the UK. Perhaps they can steer you towards good NDs or integrative MDs…

  25. eddie May 11, 2016 at 4:15 pm Reply


    Your story is similar to mine. Diagnosed with prostatitis (and also have pelvic floor dysfunction) I was prescribed cipro and started getting hypnic jerks at night. There are times when I can sleep just fine but lately find myself waking up at night. Any supplements that has helped get better rest at night for any of you? Email me


  26. Jill July 11, 2016 at 10:00 pm Reply

    I would really like to have a phone conversation with you. I hoping this is not weird but I need someone who understands to talk to

  27. Jill July 11, 2016 at 10:21 pm Reply

    Please email me Brian I want to actually talk with someone on the phone who has gone through this it seems all I can do is read stories but no one will talk I feel very alone

  28. Ricardo Besil July 12, 2016 at 5:01 am Reply

    Hi jill i talk to other people on facebook lots of us. Here just look or add me

  29. L July 25, 2016 at 3:57 pm Reply

    Saw you post. I have had pelvic pressure and sometimes pain. (Lisa also had the pressure I believe.) I think it is more nerve damage. What helped me was accupuncture and chinese herbal medicine. IT comes and goes for me now, but not constant like before.

  30. ll February 23, 2017 at 1:09 am Reply

    I took 500mgx2 for 2 days and 1 500mg another day for scrotum infection from injury.will i get dna damage

  31. ll February 23, 2017 at 1:10 am Reply

    corection for above 1x500mg not 1 500mg

  32. Mark J. Medley March 24, 2017 at 7:20 pm Reply

    So your saying that being on benzos for sleep after being floxed is counterproductive?

    My dr put me on Ativan 2 weeks ago and it worked well for a week then failed

  33. Amy Regutti April 23, 2017 at 6:57 am Reply

    Hi Brian. Glad to hear you have recovered from the worst of it. I just wanted to say that I weaned myself off benzos for severe facial pain with of all things, benedryl. Just one tablet every night. It took about three months. I also had breathing difficulty. After I recovered I was severely floxed by Cipro. I had every symptom plus insomnia and vibrations at night. I took a herbal formula called “Deep Sleep” which was super helpful and also reduced my neuropathy. Good luck to you.

    • Anne Leenders April 23, 2019 at 6:17 am Reply

      Can you tell me how you tapered off benzos. ? I want to taper and get off
      Thank you

  34. Postal canary January 9, 2018 at 12:28 am Reply

    This is the first I’ve read of other people that got internal body vibrations when taking cipro or levequin. I also got the neuropathy. This was way before the law suit opened up.
    Now I seem to react to everything. Still have AFIB. At the time this happened, they hadn’t put the black box warning label on levequin yet, and cipro wasn’t even part of the convo.
    I learned about watching 20/20 or 60 minutes. One of those documentaries.i also got a treat in the traynor tendon in the side of my foot. It was spontaneous. I wasn’t doing anything to make it happen. Tho the neuropathy I got from these drugs, mostly is back to normal, I still have the AFIB and internal vibrations. It’s been about 4-5 yrs?
    So thankful for internet to validate.
    Thank u to all of u for ur levequin/ cipro stories. I hope u heal.

  35. Michelle June 16, 2018 at 9:41 am Reply

    Any luck with the new clinic in Lenox?

  36. Anna September 16, 2018 at 10:55 am Reply

    How are your eyes now? When my eye reaction first happened it was the most intense, with horrible light sensitivity and eye tightness that led to an emergency room visit. Now, 2 months later, I have slight aching behind the eye, and noticeable swelling around the eye. Eye doctor determined the eye itself is healthy, so something is occurring with tendons, muscles or sinus cavity maybe. I feel movement or pressure around the eye in sinus cavity areas. Any ideas what the aching is about? Did anyone have swelling around the eye, causing dramatically puffy lower lids? What in the world is going on? What is being affected? ( it’s not the retina or eye, it’s the orbital area or something far back in behind the eye)

    • Mary September 16, 2018 at 4:39 pm Reply

      Anna, I had pain around my eyes and swelling around one of them. It had to do with my sinus problems which is why I took the Levaquin to start with. I used alternating hot and cold packs ending with the cold around my eyes. Be careful not to freeeze your eyeball. It helped me , I hope it will help you.

      • Anna September 16, 2018 at 4:58 pm Reply

        Hi Mary, thanks for your reply. I never had sinus issues and I was prescribed Cipro for a UTI, so I’m not sure it is sinuses. Maybe, Cipro damages sinuses though, I am not sure. Thanks for the suggestion, I will try that!

        • Mary September 18, 2018 at 8:02 am

          Anna, yes the Levaquin actually made my sinuses and bronchitis worse so I guess it could possibly give you problems you did not have before. It causes nerve damage in my nose.

    • marie wheeler December 2, 2020 at 7:57 pm Reply

      did your eyes ever get better? I am having the same eye issues seen the eye doctor and everything is ok. I have puffiness in upper and lower lids. Just want to know if yours ever resolved and if it did what helped you.

  37. Dan Jervis March 2, 2019 at 4:21 pm Reply

    Dear Brian, I am Dan Jervis, the last one on the long list. Would you please consider sharing your story to CBS 60 Minutes?

  38. Diana Andriola March 16, 2019 at 8:48 am Reply

    Your story sadly sounds a lot like mine and what I’ve been through the past two decades until just last week after seeing an excellent neurologist I was diagnosed with cidp or a chronic version of Guillain-Barre syndrome and now I’m in the hospital they getting my 1 week of IV treatments started three decades ago when I was bitten by a Lyme disease tick in New Hampshire and it went undetected for almost 20 years I went through dozens of doctors and Specialists overtime nobody could pinpoint what it was until I had a neurologist give me an electrical conduction nerve test and other tests including MRIs CAT scans and now 2 spinal taps this past year you have to rule out many many other autoimmune diseases to come to this conclusion so if I were you I would just seek out a really good neurologist and internal medicine doctor and have them compare notes or have somebody order a MRI of your brain and one of your spine as well along with scans and x-rays gather everything up together and then rule out certain other auto immune deficiencies one by one good luck, Diana

  39. Elle McKenna March 26, 2019 at 6:14 pm Reply

    Thank you for sharing your story. I had a terrible experience with Cipro. Never has an antibiotic made me hurt so bad physically and mentally. It did clear up my UTI but left me in pain day and night with the worst stomach pains and also confusion and a racing heart and feelings that I could not express well. I felt like I just had to deal with it, but this left me feeling alone and scared. I did not sleep for days and was crying all the time. I am sorry to all the people that had it far worse than me, but thank you for helping me feel less alone and less like I was just being a cry baby. I have struggled with how I feel about this and fell upon this page as I have searched for answers about how a treatment could make me feel worse than the illness it was being used to cure.

    • marie wheeler December 2, 2020 at 7:59 pm Reply

      how are you doing? Did you recovered.

  40. jmhp April 23, 2019 at 8:33 am Reply

    hello Brian,
    May I ask how you tapered of the benzo drug?
    I like to taper of mine.

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