Floxie Hope

Floxie.Hope.1800.72.dpi

This site is to give HOPE to those who are suffering from Fluoroquinolone Toxicity Syndrome as a result of being poisoned by fluoroquinolone antibiotics – Cipro, Levaquin, Avelox, Floxin, etc.  It contains stories of healing.

Cipro, Levaquin, Avelox and all other fluoroquinolones are dangerous drugs that can have devastating effects that cumulatively I’ll refer to as Fluoroquinolone Toxicity Syndrome or Floxing.  Fluoroquinolone Toxicity Syndrome/Floxing includes damage to connective tissue (tendons, ligaments, cartilage, fascia, etc.) throughout the body, damage to the nervous systems (central, peripheral and autonomic), and more. The damage done by fluoroquinolone antibiotics can destroy a person’s quality of life or even kill them. Certainly, there is a time and a place for drugs with dangerous side effects. If you find yourself in a septic shock induced coma, fluoroquinolones may save your life. Unfortunately, these drugs are not being reserved for life or death situations. People are being prescribed them for urinary tract infections, suspected prostate infections, upper respiratory infections, as a prophylactic for travelers’ diarrhea, ear infections, pink eye, etc. Thousands of people have suffered needlessly from the devastating effects of fluoroquinolone antibiotics, when another, safer antibiotic could have, and should have, been used.

The damage done by fluoroquinolones is largely unacknowledged by the medical establishment and an accurate diagnosis, compensation and relief are difficult to come by. There is no known cure for Fluoroquinolone Toxicity Syndrome/Floxing.  However, many people continue to LIVE after being poisoned by fluroquinolones.  They find healing, recovery, perseverance, compassion and hope.  These are their stories.

This site is meant to give hope for healing to those who are adversely effected by fluoroquinolones.  It is no way meant to disregard the pain of those who are chronically suffering from the horrifying effects of Cipro, Levaquin, Avelox or the other fluoroquinolones.  There are people who don’t recover.  Their stories are real and they matter.  There are also people who are able to recover and I share their stories with the hope that they inspire others, or at least give hope that recovery is possible.

Here is a New York Times article about the dangers of fluoroquinolone antibiotics – http://well.blogs.nytimes.com/2012/09/10/popular-antibiotics-may-carry-serious-side-effects/?_r=0 – more news stories, research papers and other resources can be found on the “Links and Resources” page.

Here is a Facebook group that is a great resource for those going through Fluoroquinolone Toxicity – https://www.facebook.com/groups/floxies/

Featured post – I’m floxed. Now what?

The Fluoroquinolone Toxicity Solution Ebook has helped many Floxies to recover, including DanielCindy and Ruth.  As a bonus, you will also receive The Floxie Food Guide – a book of diet guidelines to help you through fluoroquinolone toxicity:

flu tox get help you need banner click lisa

 

 

 

25,649 thoughts on “Floxie Hope

  1. Daniela November 6, 2015 at 11:42 am Reply

    Hey Lisa, Have you noticed the new study about increased death rates among middle-aged Americans by Drs Deaton and Case due to pain medicine and alcohol poisoning?

    “Recent reports of illness and disability might provide some clues. More middle-aged whites report that their general health is not good; and, more report chronic pain — neck pain, face pain, joint pain, sciatica. More report mental distress or mental illness. More say they have trouble walking a quarter mile or climbing stairs. More say they have trouble shopping or socializing with friends. More say they can no longer work.”

    You need money and insurance to be able to “report” and get the prescriptions, which might explain the race bias.

  2. Lucy Sky November 6, 2015 at 1:42 pm Reply

    Does anyone know what the contra indications are of chamolile please?

  3. Lucero Rojas November 6, 2015 at 2:01 pm Reply

    Hi everyone! Hope each of you are doing good. Just want to mentioned this here. I started seeing a doctor who has the same theory as Jason, that many Floxies got this way because they have Methylation issues and it could be key to some peoples recovery. Genes have alot to do with things like this. The way we detox, why he got sick when others never had a reaction with this drugs.

    • Jason November 6, 2015 at 5:14 pm Reply

      Hi Lucero. For sure Methylation is tied to many things (DNA repair and detoxing 2 big ones for Floxies IMO, but there are others like Gut Health, Myelination etc), and many experts like Yasko and many more are finding that by testing and then treating people accordingly, many find relief from serious multi-year Malaises. Actually we should list some of these here again, Amy’s work and Methylation is so important to finding good health for many people, here are some reasons why (I don’t think this is even the full list):

      – Repairing and Building DNA & RNA
      – Glutathione synthesis and Detoxification
      – Controlling Inflammation
      – Myelination (VERY important in nerve health)
      – Metal Detoxification
      – DNA Silencing
      – Energy Production
      – Immune function
      – Digestive issues
      – Membrane fluidity
      – Homocysteine metabolism
      – Gene expression,
      – Cardiovascular health
      – Protein Activity
      – Cancer prevention
      – Neurotransmitter balance

      It has long been thought by many experts that Autism and similar Mental Ailments, Dementia, Alzheimer’s, and even things like Chronic Fatigue, etc can all be caused by Metal toxicity. In the cause of Autism in children, where the heck is all the Metals coming from, these are only small children in many cases? Vaccines! Many point out the increase in the child vaccination schedules and the increase in Autism does not look like a coincidence at all, especially considering many vaccines still contain Mercury, Aluminum, and more nasty stuff, which is right on the CDC website for everyone to see.

      • Jason November 7, 2015 at 6:58 am Reply

        One more point I want to bring up again about this because I think it could be of vital importance to some Floxies out there. It is very clear to me, when you look at the above and relate it to Fluoroquinolone Toxicity, and after doing a lot of research about it in many different places, that Floxies who have had a severe reaction and who are not healing after many years very likely have their Methylation pathway significantly impaired. (and I do think many Floxies in general likely have it impaired as well, and carefully addressing it could likely help many heal, maybe even faster in some cases). It is just a theory of course, but it is one based on logic, science and research that I hope can bring these people some hope and a chance at healing.

        • SM November 7, 2015 at 4:27 pm

          I think you have something there, Jason.

        • Jason November 7, 2015 at 10:20 pm

          Hi SM. Sure seems like some hope for those not healing right?

          Take someone with PN for example, like maybe you. 🙂 I did some quick searching and several sites noted chemo drugs can damage the Myelin Sheath. (There is one rat study that says 2 of the drugs don’t, so it might not be conclusive). I also found several sites saying damaged Myelin Sheath can be the “cause” of PN.

          Now take someone with an impaired Methylation cycle, such as yourself again. You can take supplements til the cows come home, 50 different ones, but if they don’t address your impaired Methylation Cycle, Myelination is likely also impaired and the Sheath will still have trouble healing.

          Genetics are just one more reason why not all supplements work for all people, and some may not help at all, as you know there are a whole bunch of other reasons too we went over in the past.

          Of course that is all just a theory again. Hopefully we can start putting together some anecdotal evidence that it does help people, just on this page and last page we have many Floxies with Methylation issues, yourself and Mike last page are both over 2 years, Mike is 3 years I believe has not seen much improvement unfortunately IIRC.

        • Lucy Sky November 8, 2015 at 10:28 am

          Hi Jason
          Briefly what can be done about this.
          Any tips on safe supplements for adrenal fatigue.
          Lucy

        • Jason November 8, 2015 at 8:45 pm

          Hi Lucy. Someone can have their Genetics tested, like through a service called 23andme, which operates in the UK as well (test is about 150 pounds I think).

          With this test, someone can do some of the reports below (again I think the MTHFRsupport one is said to be the best by most people, and one I know some Doctors recommend, they all have their advantages though, like free in some cases etc). Once someone has these reports, they can consult a Doctor who has studied the Methylation Cycle and determine if they are having problems, and what they can do about it.

          AF is a tricky business as I mentioned below, and without knowing the root cause supplementing can go no where or even make things worse, so the Hair Analysis and the Cortisol/Dhea test can be paramount here.

          Once you have explored the other website linked below, this guy is an expert on AF and goes over how Nutritional Balancing is KEY to recovery, and can only be done AFTER the Hair Analysis test http://drlwilson.com/articles/adrenal_burnout.htm

          After I did the Hair test, and started balancing my Minerals/Electrolytes, only then did I add a couple other specific things that I wasn’t already taking, otherwise it might have been a waste of time as I stressed. So I was already taking Magnesium, high quality Vitamin C in a few forms (liposomal vitamin C & Ascorbyl Palmitate best forms) and Ashwaghanda to help with Cipro crap and these also support the Adrenals, I also use Himalayan Sea Salt in my water which also helps support good sodium levels and provides a lot of other Minerals. Then after getting my Toxic Copper levels down I added Pantethine (best form) and P5P (best form), Other B Vitamins, Licorice, Adrenal Glandular and other Minerals. I also took some natural Pregnenolone the bodies master Hormone, no one should ever do this without having their Hormone levels tested. Note diet, and controlling Sugar levels, are critical here as well.

          Note again which supplements someone takes, and when, depends on the root cause and which stage of AF someone is in, a plan needs to be tailored to the individual, and what their imbalances are. Also some things are Stimulants and some are more supportive or even relaxing agents like Mag, again depends on the stage of AF which are needed when. And of course, the rest of someone’s Health picture ALWAYS has to be considered before supplementing with anything, as you found out with the Chamomile I guess 😦

  4. Lucy Sky November 6, 2015 at 4:27 pm Reply

    Sensitivity to noise, light , to smells, cramps, spasms of muscles esp the Achilles tendons, burning of legs. I hope that these people get put in prison. I have to see the out of hours drs in the morning to be checked over due to the chamolile drops given to me yesterday.

    On a point of interest the camolile increased the burning and spasms. I wanted to know if anyone else had ever tried camolile and what their experience of it was.

    I have just found out that garlic is contraindicated with warfarin!!!

    What a night mare. Before being floxed I could eat anything.

    • Terry November 6, 2015 at 4:38 pm Reply

      Really pisses one off doesn’t it? Also, the doctors know better. And why isn’t there a protocol for the injured to be treated.

      • Lucy Sky November 7, 2015 at 6:59 am Reply

        Hi Terry
        It certainly does.
        If there was a protocol that would be tantamount to admitting that there was a problem in the first place. That would never do!!

  5. Jason November 6, 2015 at 4:42 pm Reply

    Hi Lucy. These questions you asked last page about Adrenal Fatigue and Thyroid are pretty complex questions and issues, and all these things have once again many causes, please do not jump to any conclusions, proper testing is important before trying to discern the what and the why etc. Without testing, someone can have 15 or so symptoms of 15 or more different ailments, which all share many of the same symptoms, this is one reason why there is so much misdiagnosis out there everyday. You mentioned your Cortisol was only “slightly” elevated, it can fluctuate a lot as I mentioned before, and I am not sure how that was tested for you but let’s remember here the Hyperthyroidism, Insomnia, etc these things that you are struggling with are known causes of exhaustion yet again.

    Having said all that, yes, IMO, Cipro “can” affect the Adrenals in many ways, there are numerous causes of AF, just plain old stress/anxiety is one of them, I know there are a lot of stressed out Floxies out there physically and otherwise, eventually this can take its toll on the Glands. There are other things that can happen here too related to Cipro (and others still that are not), Hormonal imbalances, Mineral/Electrolyte imbalances like Copper Toxicity which often shows up with AF (<=ME), Neural Transmitter imbalances, maybe more that's just off top of my head. Note also there are several "stages" of Adrenal Fatigue, and someone's symptoms vary depending on where they are at if they are going through it. What I eventually did was get a Hair Analysis test, this tests someone for Toxic Metals and many important Mineral/Electrolytes (the one I did was about 40 or so things tested. The other test I mentioned before is important too. I also had a Cortisol suppression test done but note this uses a fluoridated drug!

    Does Cipro damage the Adrenals directly? I don't know, and I don't think anyone else does either as far as I know but I could be wrong on this, I don't recall seeing this anywhere however, and even if there is no info we have to remember no one knows the full extent of damage this drug does. Also note, I "don't think" AF itself is going to affect someone's Thyroid, I could be wrong on this too but really don't think so.

    Treatment depends on the cause, what stage someone is in, etc again a good Naturopath will know these things, otherwise they wouldn't be that good IMO. If your Sodium is sky high and you take things to bring down your Copper, you can see how this won't be helpful, root causes! M.D.'s are the turkeys who treat symptoms, which is the WRONG way to treat patients! Without testing, if someone just starts taking supplements first off they might be wasting time and money since they may not have AF at all, 2nd they might make it worse by causing worse imbalances. I hope you see how important these 2 points are, and they apply to a whole lot of ailments, maybe all of them.

    AF itself is actually just another symptom, not a root cause. First you can exhaustion for example as a first symptom noted, from there with testing someone might discover they AF, however they still need to know why, some of the causes are above but there are others still like too much stimulant use, essential Nutrition missing etc. In my case I am quite sure there were several causes, and this can get tricky; stress was eliminated long ago yet I still had AF, being stressed too long in "fight/flight" mode will drain your system, once your system is drained your body can start accumulating Copper as you may not be "using it" properly anymore, in my case I was at toxic levels which can then keep the Adrenals down as the Copper is then thought to be "unavailable", so I needed to bring this back into balance which I did (yes I treated myself to answer your other question). Here is the rub for me, the "root cause" was still not revealed until after all this, once my Adrenals started "functioning" properly again, now they are working TOO MUCH! I feel this through having "butterfly" feelings in my gut, which I am sure is excess adrenaline, and when it really gets excessive I can crash again. Here again there are several causes on why, it could be things are not yet fully balanced, an issue with the gland itself, others, or the most probable cause to me when I look back on my last 30 of almost 50 years of not feeling right, I have COMT/MAO Genetic SNP issues which basically means I often have excess Adrenaline and can get stressed out easily. I can tell you that now that they are working again, there have been several recent instances where Adrenaline went overboard and I crashed, and it was for something simple like a Tennis Match which is nothing stressful, you can see how important something like this is. I have not tested this last part yet to confirm this suspicion, but it makes the most sense.

    This is not the best website but it is more basic than some of the others where things are more complicated, so its a good starting point.

    http://www.adrenalfatigue.org/what-is-adrenal-fatigue#what-causes-adrenal-fatigue

    As for the Thyroid questions, I replied to one of your messages 2 pages ago which I suspect you did not see. I will make another more detailed post for you about it soon.

    Of course these are all my unlicensed opinions as usual.

    • Jason November 6, 2015 at 5:56 pm Reply

      Here is a neat little article written in layman terms that shows the importance of just 2 or 3 Gene SNP’s like the ones I mentioned, how they affect Adrenaline, Inflammation, & more, how these things can affect a Floxie if they have them (like Insomnia can be even worse than usual), and how they can just be difficult to live with in general, as I know too well

      http://redmountainclinic.com/a-genetic-cause-of-pain-and-anxiety-comt-mao-and-mthfr/

      Also lists a few basic do’s and don’ts. This article nails many points for me, and I’m sure some others will identify with things in there as well. I used to be a HUGE worry wort, could not shut my mind off, etc etc

      • Lucy Sky November 9, 2015 at 6:48 pm Reply

        Hi Jason et al
        I did a small amount of research into the company that Jason kindly provided the details about namely 23andme who do genetic testing. I plan to use them, I think it is crucial that everyone should be screened for any potential adverse reactions to drugs.

        Thank you Jason.

        Lucy

        • Terry November 9, 2015 at 7:59 pm

          I ordered my kit a week ago. $199.00.

    • Jason November 6, 2015 at 6:38 pm Reply

      Since we are on this subject of Adrenal Fatigue, and now how Genetics can tie into it here is one more good looking article on it, 1 part of a 10 part series that ties many things together:

      https://doctordoni.com/2015/04/mthfr-adrenal-fatigue-and-burnout.html

      The whole thing looks good, part 5 also ties in quite well to this.

      Are you sorry you asked yet Lucy? Hehe, this is enough to give anyone a headache…

      One thing if for sure, nothing says “root cause” like Genetics, the buck stops right there.

    • Lucy Sky November 9, 2015 at 6:00 am Reply

      Hi Jason
      Thank you for the info and for the time and patience in compiling it.

      My plan now is to enquire about genetic testing.
      I have searched for your posting on the thyroid but am unable to locate it. I am sure that it is there somewhere but I am struggling to locate it, so sorry to have to ask you to re send it please if you don’t mind.

      CHAMOMILE.
      I would just like to say that I was told by this person who gave me a glass of water then when I was halfway thru drinking it informed e that he had added some rescue drops to it .

      When I rang this clinic up the following day I was told that the Rescue drops contained chamomile plus essences of scented flowers.
      I other words I only have his word for it that they were Rescue drops. I feel so silly I have felt worse since.

      I feel that I cannot take any more abuse.

      Lucy

      • Jason November 9, 2015 at 10:31 am Reply

        Hi Lucy. My Thyroid post was submitted but has several links in it and has to be approved by Lisa, and I guess she is away from her computer, it should show up somewhere on this page soon.

        Indeed with your conditions and such everything has to be scrutinized, even foods and natural substances as you noticed, nevermind chemical Rx stuff. Hope you feel better soon.

        • Lucy Sky November 9, 2015 at 11:15 am

          Thanks Jason. Lucy

    • Lucy Sky November 10, 2015 at 3:13 pm Reply

      Do you have the thyroid post handy Jason as I am still unable to find it. Thanks Lucy.

    • Lucy Sky November 11, 2015 at 4:20 am Reply

      Jason What’s the name of the drug containing fluoride etc please. Lucy

      • Jason November 11, 2015 at 12:38 pm Reply

        Hi Lucy. Here are a bunch of the Fluoridated drugs included Cipro etc, click on each category and you will see the list.

        http://www.slweb.org/ftrcfluorinatedpharm.html

        To answer your question below, Fluoride/Fluorine has been proven to be very toxic and damaging to the body, including robbing the body of minerals, DNA damage and many other ways. Fluroquinolones have also been proven to be very toxic and damaging to the body, incl. DNA etc. Fluroquinolones also contain Fluorine, but have other mechanisms of damage as well. Bottomline IMO is it is a double whammy taking a FQ drug.

        Lucy I hope you seen my reply to your post below. The post from Lisa was actually my Thyroid post to you, but she posted it for me. You replied to “her”, then I replied to that post. Hope that helps.

        • Lucy Sky November 13, 2015 at 9:50 am

          Thank you Jason yes it does help. had another e mail from someone who has been floxed . She is only 23. I have given her this website address etc.
          She wrote back thanking me and saying that I have made a difference to her life, I could not have known where to start without floxiehope.

          The main feature that I have noticed with us all is the burning, the stiff and painful muscles and joints emotional impact of depression and extreme anxiety caused by these horrific drugs.

          May I ask you Jason people suggest Vit C as a detox. The problem with me is I can only have small amounts, what are the alternatives

          We do not have Naturopath doctors in the UK.

          Is it safe to use zeolite ?

          Will get back to you.

          Lucy

  6. Leslie November 6, 2015 at 9:37 pm Reply

    Hi everyone- I’m sure this has been discussed to death but I just got my 23 and me results and wondering what program I should put them through so that I can understand this information. BTW I am 7 months out. Starting improving at 5 months out. Still have a long way to go. Thanks in advance!

    • Jason November 6, 2015 at 10:05 pm Reply

      Hi Leslie, very glad to hear you are improving. I believe this one is considered of the best, I think it is about $30:

      http://mthfrsupport.com/order-reports/

      This one is Amy Yasko’s own website, and I think is free, I would also recommend this one:

      https://www.knowyourgenetics.com/

      Here is a link to another one and some ideas on what else to do, I have heard this one mentioned several times but don’t know the cost and how good it is:

      http://resqua.com/100005927200207/tips-on-sharing-your-23andme-gene-report-with-your-doctor

      Here is one more thread I have saved with many people discussing options/ideas:

      http://forums.phoenixrising.me/index.php?threads/is-23andme-still-worth-it.29424/

      There is also Genetic Genie, it might be free or cheap not sure, I don’t think considered one of the better ones but might still be worth doing, not sure http://geneticgenie.org/

      Let us know what you come back with I might be able to offer some help. Also you might be able to help me I want to try and confirm which SNP’s I think are missing from Yasko’s Methylation test on 23andme, I am quite sure there are 10 or 11 missing but have had anyone who has done recently testing confirm this.

      • Leslie November 7, 2015 at 10:01 pm Reply

        Thanks Jason! I will report back for sure. Hoping this will shed some light on my remaining problems. Appreciate your help.

    • Jason November 6, 2015 at 10:33 pm Reply

      Hi Leslie, very glad to hear you are improving. I think this one is considered the best by many people and I think it is around $30: https://mthfrsupport.com/

      This one is Amy Yasko’s site and I think free I would recommend it as well:

      https://www.knowyourgenetics.com/

      There are some other options as well though probably not as good as those two, “Genetic Genie” is one and I think free. “Livewello” is another, I think it is $20 I see it get mentioned now and again.

      Let us know what you come back with and I might be able to give a little initial guidance. Also you might be able to help me by confirming which SNP’s are missing from Amy Yasko’s Genetic test, I am pretty sure 10 or so are missing but have not had anyone who has done the test recently confirm.

      • Leslie November 8, 2015 at 2:08 pm Reply

        OK I did Livewello and Amy Yasko’s and I have no idea what I am looking at…still. Jason would you be interested in looking at them? No pressure at all. I’m sure if I put in some time I could figure it out. I know nothing about genetics or pathways or MHTFR – feels daunting.

        • Jason November 8, 2015 at 3:01 pm

          Hi Leslie. It is very complex, and most people are going to need to find a Doctor to help guide them on what to do. There are dangers here also. I am not a Doctor, but I do have a fair bit of knowledge on this now, and I will look at your results and help you make some sense of them if you wish, and recommended a Doctor in your area and where else to go for info depending on how this looks. Please go to the top of the page and click the “contact” button and send an email to Lisa to ask for “Jason’s” email address as he said this was okay if you would like me to do this.

    • Liz November 8, 2015 at 5:18 am Reply

      I used most of the apps out there for my 23andMe and I particularly liked Livewello the most ($20). It’s the only one I go back to repeatedly, mostly because it gives reports for all the SNPs and not just a limited number. I like their Gene library which has thousands of reports that are free to users. Their customer service is impressive too. I am currently exploring their subscription drug reports tool which sends me reports weekly. So far, it’s appealed to me too.

      • Leslie November 8, 2015 at 12:45 pm Reply

        Thanks Liz!

      • Lucy Sky November 11, 2015 at 10:13 am Reply

        Hi Liz
        Pardon my ignorance but what is an SNP

        Lucy

  7. Agats November 7, 2015 at 6:49 am Reply

    Hello
    My name is Agata and I 36 years old. In year 2013 I had back surgery…..herniated disc. Since the anasthesia my problems began. Al my joint are afected. The main simptom is that ligaments strech so easy and the joint is than unstable. I am living with a lot of pain and disabilities. It looks like I have connective tissue disease but I dont. It all started after general anasthesia, and the anasthetic was Sevoflourane wich is highly fluorinated. Could this be a reason? What test to be done? It is 2.5 years from surgery and it is still progressing.

    Sory for mistakes in language. I from Slovenia ..Europe.

    • Daniela November 7, 2015 at 10:08 am Reply

      Hi Agata, I ❤ Slovenija !
      I also became very sick from anaesthesia, with extreme vertigo and the symptoms you describe. In my case it was dental surgery ( possibly articaine plus epinephrine). I was already suffering from too much Cipro.

      • Agata November 7, 2015 at 12:14 pm Reply

        Hi Daniela
        Thanks for reply. I have one more question did you get better and how? Or are you still sufering? And did you get any official diagnose.
        Thanks again!

        • Daniela November 7, 2015 at 1:23 pm

          I was given a lot, you won’t be as bad as me! Many thinks have gotten much better. I do not eat any grains (no wheat, no rice), or dairy (no cheese or milk). I eat a lot of vegetables with a little protein. I try to do hatha yoga every day. I get acupuncture for kidney yang deficiency.
          dr danica radulovic portoroz ona je dobra 🙂

        • lucy sky November 7, 2015 at 1:59 pm

          Hi AgataI too have been floxed.Acute effects occurred Decembe e years. I have tendonitis plus stiffening of the muscles, peripheral neuropathy due to medication such as statins, phenytoin, pantoprazole, cardicor etc, ejI was wondering what you have to eat . I am struggling with diet. I am not supposed to have gluten, wheat, soy, yeast , amaranth . I would be grateful if you could possibly compile a menu for me because I absolutely detest cooking, even thinking about food stresses me out. I have to watch my diet anyway because of being on warfarin. I can have a moderate amount each day. I also have Long qt syndrome, epilepsy. I am unable to take herbal teas etc.  I also have adrenal fatigue and a thyroid problem.

          Lucy

        • Agata November 7, 2015 at 1:50 pm

          Hi Daniela
          Are from Slovenia?

        • Daniela November 7, 2015 at 2:14 pm

          She’s in Piran. No, I am not from Slovenia but it’s a beautiful country.

    • Debs November 8, 2015 at 11:17 am Reply

      Hi Agata

      Do you know in regards to your surgery whether you were prescribed antibiotics prophylactically ? just as a ‘ precaution’ . Many times this is done as a matter of course & you would of course no nothing about this.
      I would strongly recommend obtaining your pre- op post- op reports,as If an antibiotic was prescribed you might well have been prescribed a Fluoroquinolone.They are often used in these circumstances , & people can also often be floxed this way .

    • Lucy Sky November 9, 2015 at 4:23 pm Reply

      Hi Agata
      I agree with Debs. Lucy

  8. Lucy Sky November 7, 2015 at 8:26 am Reply

    Does anyone know if there is any fluoride in clexane, marcain and or chamomile. BTW Chamomile is not recommended for various reasons, it is not tested thoroughly etc, etc.
    Does chamomile adversely affect the heart?

    • Daniela November 7, 2015 at 10:13 am Reply

      Hi Lucy, Check that the “chamomile” is not mixed with black or green tea. A friend of mine was complaining that chamomile tea was keeping her up at night and upon examination of the box, we discovered that it was really “tea” with a bit of chamomile.

      I have had reverse reactions (insomnia) from valerian capsules and melatonin capsules that felt exactly like having had coffee before bed. It’s hard to know exactly what is in the pre-packaged stuff we buy.

      • Lucy Sky November 7, 2015 at 11:20 am Reply

        Daniela
        It was rescue drops. Lucy

        • Daniela November 7, 2015 at 1:05 pm

          Use the actual flower. They sell it by the bag. Grandmothers used to know where to find it in the fields. The wild flower is actually a bit bitter, but probably works better.

      • Lucy Sky November 8, 2015 at 9:10 am Reply

        Hi Daniela
        I have written this as this is about avoiding or trying to avoid drugs that may damage us.
        CHAMOMILE.

        Thanks for your response it is much appreciated. The problem is that I am not allowed chamomile -period.Ugggghhhh.

        The reasons are because I am taking warfarin and phenytoin. Chamomile is contraindicated in both. It thins the blood and also enhances and perpetuates the effects of phenytoin which in turn enhances the interaction between warfarin and phenytoin. Viscious circle time.

        It can increase and/or decrease the anti coagulant effect or the blood thinning effect. It can go either way and there is no means of telling which way it could go.

        Antibiotics are the same.
        Pineapple and grapefruit, garlic are also off the agenda due to their blood thinning ‘qualities’ and effect on the 450 liver enzyme system so are cranberries as they also can affect the INR.

        If I may I would like to comment on anaesthetics , local and general.

        Both are potentially damaging and must be checked out by anaesthetists, dr and patient prior to administration as should contrast media used when doing certain CT and MRI scans.

        If possible I find it best to know in advance which contrast medium is planning on being used so I can check it out for its components, for contraindications, interactions and any adverse side effects.

        . If it is not possible to do so I find that when attending hospital it is useful to have immediate access to the internet so taking laptop or its equivalent in is quite useful for checking out things such as drugs, interactions etc on the internet as well as using the laptop etc to keep in touch with ones family and friends etc.

        DANGERS OF MARCAIN. Local anaesthetic drug.

        I refused marcain recently because of previous bad experience with it two years ago. The dr was not pleased but could hardly force me into having this local anaesthetic in the knowledge that it had caused me to suffer extreme breathlessness, fast heart rate and chest pains for several hours for which I had to be hospitalised overnight.

        Hope the above info is useful. Lucy

      • Lucy Sky November 9, 2015 at 4:34 pm Reply

        Hi Jason, Daniela et al
        Found out today that I was given Nelsons Rescue drops which do NOT contain chamomile. However the flowers are preserved in neat peach brandy! I do not drink alcohol due to medication .
        I cannot even bear the smell of it.
        Anyway the side effects of Nelsons Rescue drops include palpitations, agitation and anxiety. I have had plenty of that since having two drops in a glass of water last week.

        I read on the net today that pharmacists refer to Cipro as Domestos .

        The tendonitis and stiffness of my muscles and the peripheral neuropathy is gruesome. Sorry if I sound sorry for myself.

        This is hell on earth.
        Please please someone out there prosecute the people responsible for this terrible situation. A pharmacist told me that aspartame was first investigated asa possible cancer drug. Don’t know if that is true or not.
        Perhaps Jason could research it.

        Hope it is ok to write this.
        Lucy

  9. Agata November 7, 2015 at 2:55 pm Reply

    Hi lucy
    I am sorry for you but I can’t give you any advice because I am new in this. My simptoms began in year 2013 but I just now realised that must be fluor. Soo I can’t give you any advice because I am looking for advice too. But I am asking you, did you get any offical conformation from doctor that is fluor causing you this. Any lab test? Here in Slovenia they have no clue abaut that, or I am just so unlucky and the doctors I see are not the right one.

    • Lucy Sky November 8, 2015 at 7:16 am Reply

      Hi Agata
      Meant to say that as far as I know there aren’t any lab tests to confirm the diagnosis. It is based on the signs and symptoms which are becoming more and more well known thanks to Floxiehope and people spreading the word that the fluoroquins are damaging to the mitochondria in the cells.

      However in my case the diagnosis is more obvious due to the acute onset of signs and symptoms following four/five days of being heavily floxed in December 2013.

      As Lisa has stated previously there are over 200 Peer reviewed articles/publications on the dangers of the fluoroquinolones and the detrimental effect on the body.

      These drugs have just got to be withdrawn. I do not care how much time and/or money has gone into researching these drugs or how long it is alleged to have taken. I just want them banning before someone else suffers from taking them.

      Why is it that doctors refuse to take them themselves and also whilst on the subject how come doctors wives refuse to take the oral contraceptive pills!

      One nurse who I knew who had completed her family and who was married to a doctor , a Pathologist, refused to take the Pill. He refused to have a vasectomy so my friend refused his sexual demands. Enough said.

      I rest my case.
      Lucy

  10. Lucy Sky November 7, 2015 at 3:38 pm Reply

    Hi Agata
    Nice to meet you.

    Yes I have a medical report stating the cause is due to antibiotics. I have had cipro on a few occasions but it was only 19 months ago following the prescribing of three antibiotics at ONCE when I was struck down with an acute attack.

    Chamomile made things worse . It is under researched and under tested. it is contraindicated in people on warfarin and with epilepsy etc, etc.No doubt people will say the same about drugs as well. Just because something is ‘natural’ does not mean it is safe.

    Sorry but I am going through a very rough time at the moment.

    • Agata November 7, 2015 at 4:34 pm Reply

      Hi lucy
      My mind is with you so hang on, wish you all the best. I am in a lot of pain now too, I sleep only few hours a night because my whole spine is afected and just hoping the day will bring some improvement.
      Soo just hang on ok.

      • Daniela November 7, 2015 at 4:57 pm Reply

        HI Agata, I am sorry to hear that Slovenia is also using these chemical drugs. I don’t think too many people are getting diagnosed with pharmaceutical adverse reactions. Only joint pain or digestive problems or anxiety or insomnia or vision, separately.

        But I think you are lucky your diet is probably better, with more organic and local produce, meats, etc.

        • lucy sky November 7, 2015 at 5:47 pm

          Hi AgataI am sorry to hear that.I am hbad few days but hope tomorrow will be better.Hang on in there. Hope your food is better than here.

        • Jason November 7, 2015 at 11:01 pm

          HI Agata & Daniela. Daniela I don’t remember you saying you were floxed by anaesthesia. I looked up the drug that Agata was given and found it interesting there was NO Quin nucleus to be found anywhere if I am correct, so it is not a Fluoroquinolone and possibly only related by the Fluorine (maybe I missed something).

          Sevoflurane has SEVEN Fluorine atoms. I am thinking this is why you were so dried out, cold, and with creaky bones/joints etc where many other Floxies have the joint issues but not the others and even the opposite (a bunch of the Fluorine can end up in the bones).

          http://www.slweb.org/ftrcpossiblesymptoms.html (this is not a full list but good one)

          Agata I agree with Daniela it is almost impossible to find Doctors who will admit these drugs damage people, there are some but very very few. All Fluoride sources and all its hidden sources are critical to avoid for healing, I have to shower everyday in Fluoridated water (along with 7 other chemicals) hopefully you two do not, the skin is the bodies largest organ, I can tell you showers lower my Magnesium levels. Fluoride robs the body of Magnesium and other things, many people find some relief with Ancient Minerals Magnesium Oil, it helped me too and I still use it.

  11. Jason November 7, 2015 at 11:09 pm Reply

    Debs & Lisa. Is there a list somewhere of all the Quin & Fluoridated & other closely related drugs somewhere? And a large list of what “might” be safe, including bluddy anaesthesia options? Lisa did you make an article before compiling them?

    I have to admit I am a little bit terrified of getting into an accident of some kind, and being brought to the Hospital for surgery unconscious or debilitated, and then being given Fluoridated anaesthesia & quin related drug, good God.

    The website above has a pretty comprehensive list of “F” drugs, but what about the Quin and closely related ones, and any other ones we know interact badly like Steroids etc. TIA

    • Lucy Sky November 8, 2015 at 4:37 am Reply

      Jason
      Have you got a medi alert bracelet or chain to wear explaining your ‘allergic response to fluoroquins, fluorinated anaesthetic drugs, local anaesthetics used in many situations with or without steroid.

      Marcain , has another name which I will send as a separate issue if you do not mind is described in the literature on it as the MOST CARDIO TOXIC OF THE LOCAL ANAESTHETIC DRUGS.

      The PIL states that Marcain should not be given to people who have cardiac disease esp heart block.
      Marcain can cause breathlessness, tachycardia-very fast heart rate, cardiac arrhythmias,chest pain ,collapse.

      Please note that this is stated in research into this drug, the info is in the Public domain.
      Also if Marcain is given there has to be adequate STANDBY resuscitation equipment to hand plus sufficient number of staff to assist. This is also laid down on the PIL. Please google Marcain and adverse reactions and precautions to confirm what I am writing.

      Yet it is the most widely used local anaesthetic!It beggars belief that it is allowed to be used!

      Lucy

      • Jason November 8, 2015 at 10:39 am Reply

        Lucy thank you for this idea. This is what I am pushing the envelope for, I want a HUGE list of ALL the bad sh*t out there especially things for Floxie like Steroids, NSAIDS, everything, and then hopefully a “somewhat” safe list too, like which anaesthetics and other things are hopefully less dangerous. This all has to be complied somewhere, and then linked to each Floxie somehow, not sure if a medi alert bracelet will fit this purpose as we are talking at least 200+ things on this list, but we need something to alert the Hospital to look at this list probably on Internet.

        • Lucy Sky November 8, 2015 at 11:24 am

          Hi Daniela, Jason, Agata
          Jason you are welcome. Medi alert bracelet.

          Perhaps we could write to the Royal College of Anaesthetists for ‘advice’ about alerting drs, hospital staff about the angers of the cipros and other nasties and how when one is allergic to drugs through various factors including genetic factors it is a constant fear in case one gets injected, infused with a drug that is seriously contra indicated.

          We need to raise awareness of this at all levels.

          I stumbled across this whilst googling anaesthetic drugs containing flourines and fluorides.

          Other drugs, which enhance neuromuscular blockers are aminoglycosides, local anesthetics, cardiac antidysrhythmics, diuretics, magnesium and lithium.

          Perhaps Jason would like to research this further?

          It may be useful to research anaesthetics UK as well.

          Drs often ignore me or object most strongly when I ask them to use the internet to look up drugs.
          I have a letter with me from a senior dr supporting me and some still object.
          Lucy

    • Daniela November 8, 2015 at 10:20 am Reply

      I was refloxed by anesthesia a year or two later. Already floxed by cipro 😦

      • Lucy Sky November 8, 2015 at 10:49 am Reply

        Hi Brian
        Large bulky greasy clay coloured, stools are usually an indication of gall bladder disease but usually there is epi gastric pain which you would certainly know about!
        Are they more frequent than usual?

        It is best to get your liver and pancreatic enzymes checked however this has already been done according to your previous posting. Also best to avoid alcohol that is if you don’t already do so. No offence intended.

        So in this instance the clay colour may well be due to the magnesium or too much fat in one’s diet.
        As long as the dr has been informed and carried out the appropriate tests and is not worried then it sounds as though you are right in thinking that it may be the magnesium that is responsible for the lighter coloured stool . Another possibility is too much fat in ones diet.

        I don’t know how you feel about omitting the magnesium for a day or two just to see if it makes a difference. I think that you should check that it is OK to do this with the doctor first because we do not know why the magnesium was prescribed in the first place.
        Hope this helps.
        Lucy

  12. Agata November 8, 2015 at 1:25 am Reply

    Hi Lucy, Daniela, Jason
    I am very confused abaut my condition. Because here in Slovenia we don’t fluorinate our water, I have healthy diet because my brother has a farm and I am eating healthy home vegetabel, meat and other stuff, grown withaut any cemicals, pesticides and I was healthy befor with the same diet I have now. It all started after surgery and still progressing. My only simptom is ligament laxity, or I woud call it ligament strech syndrome and hyperrefleksia. And if I am thinking right that fluor in my body should be getting out and the symptoms would slowly stoped..but they are progressing. Why? If I am not getting any fluor in my body by the water or other stuff. They tested me for genetic diseases of connective tissue, and autouimmune and inflamatory. What the hell is going on?

    • Jason November 8, 2015 at 10:27 am Reply

      Hi Agata. Please note I am not a Doctor of any kind so anything I say is only an opinion.

      That is great news about the Fluoride and your diet, these can be 2 big factors in someone’s healing, but of course there are many more factors. I believe another important one is Methylation as you can see discussed on this page, which can determine how fast/slow toxins are released from the body, some people have a LOT of trouble with this and tend to store the toxins, even children.

      I had a hard time determining exactly what other chemicals/elements are in Sevoflourane so I am not sure what other Mechanisms and toxins could be in play other than the Fluorine (pretty sure I ruled out the Quin nucleus though).

      IF Fluoride is the root cause here, IF, it is widely known to disrupt collagen synthesis/metabolism, and can result in calcification of ligaments tendons muscle and thyroid cartilage and thus break down of the collagen, bone, tendons, skin, cartilage, lungs, trachea, and kidney etc. Many people here have reported loose joints and ligaments, tendon issues etc.

      Here is what one website says about this: Quote “When collagen breaks down, tissues simply lose their substance, their framework. Fluoride dissolves the body’s glue simply by preventing new collagen from being formed. DR Y gives a masterful explanation of fluoride’s disruption of collagen. Not only is the collagen incorrectly formed, it is wrongly mineralized. Some collagen, like bones and teeth, should be mineralized in order to give it hardness. Other collagen structures, like ligaments, tendons and, and muscles, should not be mineralized, in order to keep them flexible and resilient. Fluoride mineralizes the tendons, and muscles and ligaments, making them crackly and painful and inflexible. At the same time fluoride interferes with mineralization of bones and teeth, causing osteoporosis and mottling or dental fluorosis.”

      I have posted a LOT on info on this website about Fluoride, I will look for my old posts and share them again here in an effort to help you and others.

      Of course there are other possibilities too, Lucy points out one in Lupus, and I’m sure there are others as well. Please note testing for inflammation may not be very reliable, like the CRP test I have found not to be entirely indicative.

      I also found this website while looking around and find it interesting but don’t know anything else about it. It is initiating an inflammatory response, which in some cases I know can help healing and increase circulation, however I think the root cause of the injury is important, and someone needs to be careful they are already not full of inflammation already like many people who are Floxed are. http://www.caringmedical.com/treatment/ligament-laxity/

      • Jason November 8, 2015 at 10:47 am Reply

        This is one I just found today when looking about Collagen, some info here
        https://chansonalkalinewater.com/report-on-chlorine-and-fluoride/

        • Lucy Sky November 11, 2015 at 6:22 am

          Hi Jason
          Thought this may be useful research material for the forum.

          STATINS.

          The name of the UK GP who suffered muscle damage etc due to statins is Dr Kailish Chand.
          As we know Big Pharma don’t publicise every side effect on the Patient Information Leaflet but if you ask for a data sheet they are obliged to provide one under British Health and Safety Legislation. There you should find a full list of all the side effects including the rare side effects.

          MHRA. This is the British equivalent to the FDA for reporting adverse reactions to drugs.

          People can report adverse reactions directly to the MHRA without going through a dr.

          Lucy

      • Jason November 8, 2015 at 10:49 am Reply
      • Jason November 8, 2015 at 10:52 am Reply

        And last one, this was just a quick search from today, I have posted a lot of past info in prior months not just on its destructive mechanisms but also what can possibly be done to help, which I will look for now.
        http://www.whale.to/a/fluoride_the_aging_factor.html

    • Daniela November 8, 2015 at 10:30 am Reply

      Can I go live with you !!!????
      Gentle exercise like hatha yoga to keep the blood and breath circulating, support your body to heal itself, have patience. That is the best advice I can give.

    • Debs November 9, 2015 at 3:51 pm Reply

      Hi Agata

      Please look into your medical records to see if you were prescribed an antibiotic when you had your surgery . You actually would know nothing about this, so If you can, try to obtain your pre op post op reports to try to rule this possibility out . Many people are prescribed antibiotics prophylactically as a ‘precaution ‘ before surgery , & this is often as a single dose. Unfortunately a fluoroquinolone is very often used, & it can only take one dose to do the damage . As someone who has been around for a long time , alarm bells are ringing for me here, I have seen this happen way too often , & although of course I could well be wrong, I am highly suspicious here, that you could have possibly been floxed .

  13. Lucy Sky November 8, 2015 at 4:05 am Reply

    Hi Agata Have you been tested for lupus? Some drugs can give you lupus, for example phenytoin, the ppi’s statins, antibiotics, have your anti nuclear antibodies and ebv -for glandular fever been tested? Have you had a double stranded DNA test done?

    Are your temperature and heart rate normal?
    What meds if any are you or have you recently taken.

    Lucy

  14. Lucy Sky November 8, 2015 at 6:04 am Reply

    Dear Lisa
    You may want to modify this .I don’t mind.

    Please google local anaesthetic drugs and adverse reactions. Note marcain, inexpensive local anaesthetic drug et most cardio toxic LA as stated previously.
    You may also wish to google anaesthetic agents with fluorines.

    Think about dry cleaning agents that contain solvents too.

    Anaesthetic gases contain solvents. For example Trilene.
    HALOTHANE – this causes liver damage. Then we have entonox which can cause seizures and peripheral neuropathy.
    Scary so may not wish to look it up. Sorry gang.

    Lucy.

  15. Brian November 8, 2015 at 7:47 am Reply

    Has anyone else experienced their bowel movements being a bit “off” in terms of its color? I don’t have any pain and I’m pretty regular but it’s a very light brown to almost yellow hue every time. This has been pretty consistent since I stopped taking Cipro. I told my doctor but he didn’t seem at all concerns. Ran a bunch of tests and all my blood work came back normal. Liver functioning very normally/kidneys fine/etc. Is this sinply due to the bad bacteria being killed off? Or perhaps stress/anxiety?

    • Brian November 8, 2015 at 8:21 am Reply

      Or maybe from the supplements I’ve been taking like magnesium?

  16. Agata November 8, 2015 at 11:14 am Reply

    Hi Lucy
    I have been tested for lupus, They did ANA test, abaut glandular fever as far as I was reading abaut symptoms I don’t have them.My meds are the same as befor surgery. I am vitamin D deficience but my calcium levels are fine. My hormones are fine, MRI of a whole spine and brain is ok. Despite all the test I am still ill and still progressing. I am taking vitamin D, but not the one
    that we get here in Slovenia, but I go for it in Austria our neighbour country. Because it is pure with no E. Our vitamin D has a lot of E and I had alergic reaction…., the same reaction my daughter had….she was swalling around the mouth and difficult swalloving. Sorry for mistakes in my gramar.

    • Lucy Sky November 8, 2015 at 11:42 am Reply

      Agata
      You can still have been exposed to the virus that causes glandular fever even without signs and symptoms.
      Have yu had a DEXA scan to exclude osteoporosis? Please try to get treated for your vitamin D deficiency. The calcium may be fine now but not later. lack of vit D can cause bone, muscle and joint pain. However it is treatable so things can improve. Low Vit D can affect the thyroid so it is important to get iit up to the correct level. Thus will require monitoring as Vit D is also a pro hormone.
      I am prescribed D3 and calcium. My minimum optimal target level is 75 nnomols.
      Need magnesium to absorb Vit d and calcium.

      Nb This requires medical supervision and in out plus monitoring to avoid Vit d toxicity.

      • Debs November 9, 2015 at 5:32 am Reply

        For anyone here who is thinking of getting scanned for Osteoporosis be aware that so called ‘ Osteopenia ‘ is in fact a fake diagnosis, & actually part of what is known as disease mongering.

        I have done in depth research on various drugs for a very long time, & the bionophosphates, allopathic drugs prescribed for Osteoporosis & so called ‘ Osteopenia ‘ are very risky indeed, imo they are extremely dangerous
        For anyone considering taking these drugs, please make sure that you get you OWN full as possible informed consent on them before you let them anywhere near you .

        http://www.npr.org/2009/12/21/121609815/how-a-bone-disease-grew-to-fit-the-prescription

        • Lucy Sky November 9, 2015 at 6:18 am

          Hi Debs
          I agree with you.

          The treatment is dangerous.

          When I was told that I had osteopenia and that means pains in the bones, please correct me if I am wrong, I was suspicious. How can the hospital tell.

          A Dexa scan done this year shows significant osteoporosis.

          The hospital is proposing to inject me with Danusabub. Spelt incorrectly but u know the drug I mean! The nurse from the hospital rang me to ask me if I was allergic to latex because the ampoule of this crap drug has a latex bung. Well she didn’t say crap drug obviously. LOL!

          My instinct tells me not to have this drug which I understand is a vaccine that builds the bone density up.

          Also just found out that these Rescue drops referred to in previous posting I made contain alcohol, I do not drink alcohol and am on a beta blocker for Long QT. That explains why following these so called Rescue drops my heart was racing. It still is this morning.

          I had to ring the OOHs drs up over the weekend about these drops. Sorry if I sound upset, I bloody well am.

          Lucy

        • Debs November 9, 2015 at 3:14 pm

          In my opinion your instinct is actually spot on Lucy . It is not my place to dictate whether someone should or should not take a drug, however I would urge you to make sure you do your homework in DEPTH re this one.
          Please please make sure that you have done in depth research & you have obtained your OWN formed consent before deciding whether or not to go down this route, particularly in respect of your already existing health issues before deciding whether or not to let Denosumab ( Prolia) anywhere near you .

          I personally would not want to have an injection of something so potentially dangerous, in fact I would be VERY wary of allowing a delayed release / long lasting injection to be given to me of ANY allopathic drug. I try very hard to avoid this form of administration unless I literally have no other choice, as once you have had an injection of course, unlike a pill you cannot just stop taking the drug, you cannot remove it . If you are allergic to it start to experience adverse effects from it what do you do ?

          Denosumab is a twice yearly injection, we are talking about the potential for adverse effects, if they do occur, & some can be delayed the potential to then stop this by stopping the treatment is actually not there, as you cannot remove it from the body once administered, & this particular drug is imho very bad news indeed.

          http://www.examiner.com/article/osteoporosis-drugs-destroy-bones-they-are-allegedly-designed-to-help

        • Debs November 9, 2015 at 3:18 pm

          I would suggest for any drug you are prescribed to check out the site askapatient you can actually learn a lot about how dodgy drugs are there . please also feel free to leave a comments on the FQs while you are visiting .

          http://www.askapatient.com/viewrating.asp?drug=125320&name=PROLIA

        • Debs November 9, 2015 at 3:20 pm

          This site is actually very informative If you ignore the ‘ in your face ‘ presentation of it . It has a lot of useful information on the subject .

          http://saveourbones.com

    • Lucy Sky November 8, 2015 at 12:03 pm Reply

      Hi Agata
      Whoops. Sorry about typos.

      Should read. This requires medical supervision and input…plus monitoring to avoid Vitamin d toxicity.

  17. Agata November 8, 2015 at 11:26 am Reply

    Hi Jason
    Thanks for all the information. As I sad to Lucy…no inflamation….or rheumatological diseases, not genetic. I also tried prolotheraphy for ligament laxity….I did get inflamtion but no new tissue, someth8ng is simply wrong. It all looks to me the anasthesia never go out, but is in my tissue….maybe crayzy or not. When I asked alternative medicine…..they say the toxins go to connective tissue if there are too many of them. I read that tamarind is helping the body to flush fluor out. Or another product….natural one….vulcano dust….called Zeolit. I have tried zeolit but get upset stomac. I will try it again. Maybe too many toxins…i don,t know.

    • Lucy Sky November 8, 2015 at 1:10 pm Reply

      Hi Agata et al
      I have researched chelation therapy and according to medical reports it is very dangerous because it depletes he body of essential minerals etc.

      It can stress the kidneys causing coma, death. Please google chelation therapy for treatment of fluoroquinolones toxicity.

      Lucy

    • Lucy Sky November 8, 2015 at 1:14 pm Reply

      Please , please do not use this again. You are taking serious risks with your life according to research I have just done.
      Chelation is dangerous because you are depleting the body of essential minerals. Please I beg of you do not do this again. Lucy

      • Jason November 8, 2015 at 2:49 pm Reply

        Hi Lucy. Please be very careful with these kinds of statements. Chelation therapy has been around for many many years and many experts use it successfully ALL the time, and when done properly is very safe, and sometimes the ONLY option for people to get back their health.

        There are many different kinds of Chelation, some are safer than others, some can deplete the body of minerals so they need to be replaced, there are hundreds of factors at work here, this is very VERY complicated and not something that can be researched in one day, one week or even one month. I have done many YEARS of research on this. I hope you see how important this is, Chleation therapy might be Agata’s main hope back to Health, and you have just told her definitively NOT to do it.

        The internet is also full of misinformation, lies, and a lot of uninformed people, research is not an easy thing to do, its actually quite difficult. Please try to only give advice on subjects you know very well, and even then no “direct” instructions, we can provide info on things we know about only, then it is up to the person to do their own research and decide what they should do. No one, should tell someone what to do, or diagnose them, this is the safest way to not harm people.

        • Lucy Sky November 8, 2015 at 3:23 pm

          Jason
          Sorry. However Agata did specify that she had had a bad reaction to chelation. Lucy

        • Lucy Sky November 8, 2015 at 3:35 pm

          JASON I made a mistake. I thought Agata said she had had side effects. I am sorry.
          Thank you for putting the record straight.
          kind regards

          Lucy

  18. Lucy Sky November 8, 2015 at 12:06 pm Reply

    Hi Agata Just saw your posting about Tamarind and volcano dust . I will make some enquiries and get back to you.

    Hang on in there.
    Big Pharma can go and whistle.
    Lucy

  19. Agata November 8, 2015 at 12:16 pm Reply

    Hi
    Thanks to all of you. My plane is also to go to other countries to get diagnosis. I am now waiting for second opinion from my insurance company. They will send all my medical records to best doctors…they say to Boston.

  20. Lucy Sky November 8, 2015 at 12:39 pm Reply

    Hi Jason, Agata, Daniela, Debs, Lisa, Terri, Lucero, et al.

    Just come across all this. Sorry but feel too upset to wade thru it all. Hope you can make sense of it all. I am sorry but I feel too upset .
    When will the nightmare end?
    I would gladly give evidence to get justice and see those individuals who are responsible for hiding the truth then continuing to push this terrible drug onto unsuspecting innocent people in prison for a long, long time.

    Lucy.

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    Fluoroquinolones: interaction profile during enteral absorption.
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  21. Agata November 8, 2015 at 3:18 pm Reply

    Hi Lucy and Jason
    Chelation with zeolit has no side effects, I got it from a doctor who is now practicing alternative medicine..but he was a dr. before. The zeolit is safe. It does not depletes you of goo stuff but just the bad. It has no side effects but you must drink plenty of water to flush toxins out. It has some kind of structure to bind toxins in a chain and the body flushes them out. I was reading here our posts about zeolit and there are no people that are saying its bad. I don’t know. As far I was reading a lot of vitamin C….is also good to flush fluor out. Vitamin C is safe. But this is just my reserch.

    • Lucy Sky November 11, 2015 at 5:34 am Reply

      Thanks Agata
      As Lisa said in a posting , Hi including Hackers. May I also add Hi including trolls and BIG PHARMA

      I think that as Jason et al has indicated chelation is safe provided it is done by people who know what they are doing and also if done very slowly to prevent the body from being detoxed too quickly leading to further damage.

      I hope that justice will be served and those at Big Pharma who caused all the damage with their toxic so called medications known as Fluoroquinolones/Domestos are prosecuted and sent to prison for a long time.

      STRAIGHT FROM THE HORSES MOUTH.

      I spoke to a pharmacist recently who said that he knows someone whose muscles wasted away and who is now in a wheelchair as a direct result of statins.

      I know of at least two drs who have had bad experiences of statins personally one is called Dr Chandra .

      I will send the link. Sorry not available at the moment.

      Metformin anti diabetic drug causes peripheral neuropathy. A hospital dr told me in March 2015 he is a diabetic and has numbness in his leg due to peripheral neuropathy pain due to metformin.He said to me that he will take amytryptiline if it worsens!

      However he later said he has been prescribed a different drug for his diabetes.

    • Lucy Sky November 14, 2015 at 3:34 pm Reply

      Hi Agata If you read Natural news it says that Zeolites contain lead and aluminium. I really do not know if there is any truth in that or not.
      I cannot comment.
      Lucy.

  22. Lucy Sky November 8, 2015 at 3:30 pm Reply

    Agata

    Sorry I misread your msg. I thought that you had written that you have had side effects from chelation. sorry I have had terrible day again following being given chamomile on Thursday. I do apologise. I might go for the chelation therapy myself as Jason has said it is safe.
    I felt despondent too when I read that chelation is unsafe but Jason has restored my hope. Thank you Jason.

    Kind regards Lucy.

  23. Agata November 8, 2015 at 3:32 pm Reply

    Hi Lucy Jason
    Here is something abaut zeoli from our internet sides….
    The special structure of the zeolite provides a very high specific internal surface area, up to 1000 m2 per gram of zeolite. Many parts tunnels, channels and caves make for zeolite as a sponge that absorbs your heavy metals such as lead, mercury, cadmium, cesium, as well as residues of medicines or pathogenic bacteria and viruses before they enter the bloodstream. This deadly cocktail with secretion normally eliminated from the body within 24 hours. Simultaneously, volcanic soil cast body is necessary and highly desirable ions, such as magnesium, calcium, potassium and sodium. Ion exchange operates therefore as good, whereas the pollutant a high affinity for the crystal lattice of the zeolite Clinoptilolite. Cations contained in the crystal lattice are highly dependent on the organic material in the organism. Very interesting it is that the body is able to absorb only so much of ions and only those minerals it really needs. Excess minerals are excreted from the body. Therefore, there is no risk that it would lead to overdosing. Chronic diseases may be taking zeolites prevented in time because it is self-healing system of the body positively active. In addition, the liver is greatly relieved because the zeolite binds ammonia. Due to the ability of neutralization to minimize the formation of free radicals in the gastro intestinal tract for up to 50%. By taking zeolite organism is relieved, then more power to build cells and regenerative processes, defensive strength of the body is increased.

    I translated with google translator hope its ok.

    • Lucy Sky November 8, 2015 at 4:06 pm Reply

      Hi Agata and Jason Please would you send me a list of drs in the UK who are willing to do chelation therapy. Lisa has my e mail address.
      Many thanks Lucy.

      • Jason November 8, 2015 at 5:38 pm Reply

        Hi Lucy. I do not have such a list unfortunately. I would also note in your specific case that trying to Detox/Chelate toxins may come with a much higher risk than usual for a few reasons; like currently taking drugs, past history of drugs, Thyroid issues, Epilepsy and possibly even other factors. There are many MANY factors that have to be considered, on a case by case basis, hopefully you can find a good Naturopath in UK to discuss all these things I am sure there will be some there. You can check the list Lisa made here to see if there are any there: https://floxiehope.com/2013/12/11/doctor-referral-list/

        • Lucy Sky November 8, 2015 at 5:51 pm

          Jason
          I have done a search and found several local to where I live. I am sure that a dr will advise me.

          Not quite sure what you mean by drug history, just to clarify I have not got any drug history. Any medication that I have taken was prescribed by qualified medical practitioners.

          I have only taken legal medication.

          How about you?

          Lucy

        • Jason November 8, 2015 at 6:00 pm

          Well I have taken illicit drugs and Medical drugs. Sorry for the confusion, I usually call Rx Meds “drugs”, and in your case that is what I was referring to. Great news on finding some Doctors 🙂

        • Lucy Sky November 9, 2015 at 4:55 am

          Jason
          I accept your apology but I think that you have to be careful how you personally couch your wording to people sometimes.

          I am sorry to hear that you have taken illicit drugs. Fortunately I have never been in that position. As stated previously the only medication that I have taken has been prescribed by a doctor . On occasions I have bought paracetamol otc but tend to take it very sparingly as it can damage the liver.

          How does one know and test that the methylation damage that you write about so often has occurred?

          Lucy.

        • Debs November 9, 2015 at 5:49 am

          I also use the term drugs. In my opinion this is the term by which they should be known. Medicine is thought of as curative, & as big Pharma does not actually have curing on their agenda, the term drugs to describe these various toxic substances, imo is a FAR more accurate one
          in fact after researching them, I would prefer the term poisons myself.

        • lucy sky November 9, 2015 at 6:35 am

          I agree. In fact the cupboards where these toxic substances were stored used to have the word POISONS clearly painted on the cupboard door. The purpose of my posting was to clarify for others who may have got the wrong idea that I  do not have a drug history nor taken any illicit drugs.Usually legal ‘drugs’ are categorised as medication whilst people who are said to have a drug history are people who are drug abusers.  NB. I am trying to recover and relax following being given rescue drops by a Homeopath who I had not even gone to see but gave me a glass of water whilst I sat waiting to see a dr xxxxxxxxxxxx  who specialises in thyroid issues.   I have Long QT as stated previously and alcohol is the last thing I want as it causes tachycardia. Why do ‘natural ‘ products contain alcohol anyway I wonder?

        • lucy sky November 9, 2015 at 6:37 am

          Debs

          You are quite right. All medications are potentially  poisonous.

        • Lucy Sky November 14, 2015 at 3:39 pm

          Hi Jason
          i read today in the Natural news that the zeolites contain and aluminium. I do not know if it is true or not or what the percentages are so am unable to comment. Lucy..

    • Jason November 8, 2015 at 4:58 pm Reply

      Hi Lucy and Agata. As I mentioned in a post further up, there are many types of Chelation, some are more safe than others, there are risks in each case however, and especially when not done properly, a lot of damage CAN occur. It is a very important and delicate process, and can NOT be taken lightly at all, especially in cases of severe poisonings, such as Fluoroquinolone poisoning and Fluoride poisoning. This is something that someone should work with an experienced Alternative Doctor on, because of the dangers.

      I have done fair bit of research on Zeolite and got in contact with someone who had researched it for 3 years who forwarded me her research. There is some conflicting info out there on it, like many natural things that can help. Zeolite itself is actually made up of TOXIC materials, Arsenic, Aluminum, Lead and more, also because of the structure it does attract more toxins, and so the manufacturing process and supplier is critical here because some of them “cheap out” and don’t clean the Clinoptilolite properly, so you can be ingesting toxins with the wrong brand. As for the good brands, the argument the manufacturers put forward is those materials do not break down in digestion or the blood and do not get absorbed by the body, but not everyone agrees. There have now been studies on both sides of the fence, though most of them are in the “for” Zeolite category. My conclusion after everything that I learned, is that I don’t think the info out there is conclusive enough, and it is fairly hard to prove the truth one way or the other which does not help. I did actually buy some, and used it a few times, did not get upset stomach from the one I bought, for what that is worth, but I am skeptical about it even though hundreds if not thousands of people swear it works for them. (Anecdotal evidence)

      Agata Debs brings up an interesting point that you could have been given Antibiotics also at the time of your Surgery and it might be something you want to check for your own records. I don’t think it is going to change what you need to do very much though, as “IF” you are suffering from Fluoride poisoning through Sevoflourane or Fluoroquionlones I think you will need to address that one way or another. Fluoroquionlones do have other VERY bad chemicals included in them (Sevoflourane might too) that with the FQ’s essentially act like Chemo drugs and do a LOT of damage to different parts of the body, however in my opinion the chelation strategy for this is essentially the same. Other than Chelation and avoiding more exposure in either case, there are not a lot of other “strategies” other than clean diet and obvious other health stuff like that. Then other than those things and just “waiting it out”, someone can check their Methylation Cycle with a Genetic test, and they can try to take supplements to help with various symptoms and damages done and to support the body and protect it from more damage, which in your case you say is only one very specific thing, as far as you know.

      Testing for Fluoride poisoning in either case might be something to consider, I don’t recall the best way to do this at the moment, and note after 2.5 years from exposure I am not sure if it would be an accurate reflection either though. My suspicion is this is what happened but it is only that, a suspicion, and there are other possibilities. At any rate, I will make a separate post on what people have done in the past to successfully heal from Fluoride poisoning, and what can be done to try and slow the Collagen damage and even try to help it build again.

      • Lucy Sky November 9, 2015 at 5:12 pm Reply

        Jason Isn’t the damage done by fluroquinolones the same as fluoride ?
        Isn’t it the fluoride in the quin nucleus that causes this stripping of the body? The Domestos effect as is the term that pharmacists aptly use in reference to the damage done by the fluorooquinolones?
        Lucy

    • Jason November 8, 2015 at 10:37 pm Reply

      Hi Agata. There is just too much relevant info on Fluorine/Fluoride for me to re-post it all here and I have not had a chance to compile it yet. What I would recommend is go to this link: https://floxiehope.com/comment-page-25/#comments and then use your Internet Browsers “search the page” feature, and search the page for “Fluori” (not the whole word, sometimes I have used one, or the other). I recommend reading all posts you come to find searching that way, I probably made most of them, and then read that page and then the next 4 pages at least (page 25 to 29) by clicking “newer comments” on the bottom of each page to go to the next page. This might take a few hours at least, lots to digest too.

      Generally what you will find is a whole bunch of info about Fluoride, and what some people have done to heal from Fluoride poisoning in the posts I made there, with links to more info on different websites and users comments on what they did, studies, and more. Iodine, Borax and Tamarind are all reported to help the body get rid of it by displacing it, Calcium and Magnesium too as they can bind to it. Note that I did not mention IV’s anywhere, because I have never done them or researched them, but they do help many people and I’m thinking something like a “Myer’s Cocktail” (IV with Magnesium, Vit C, Vit B and some other things) could be helpful. There are some people here on Floxiehope it has helped, and their Doctor’s are giving it to them to Detox them, and they are improving a lot from being in VERY bad shape, so I tend to think it is working. Good luck, hope it helps

      • Jason November 8, 2015 at 10:58 pm Reply

        Here is one more story I don’t think I included in those old pages:

        http://ghn.thegraychannel.com/uncategorized/iodine-for-cipro-and-levaquin-damage/

        Note a good Hair Mineral test will include Iodine Levels, very important to Thyroid Health, and Fluoride is notorious for giving people Thyroid problems because it displaces Iodine from the Thyroid (and Pituitary Gland IIRC). Of course, MANY Floxies have reported Thyroid issues unsurprisingly after being Floxed, you will see them even talking about this in the comment section in that link above. Note taking Iodine in high doses can damage the Thyroid (I did not take as much as this person)

        Note in “Keiths” comment close to the bottom of the page he talks about Coffee Enema’s (which detox the Liver) and links there to a Halides test which tests for Fluoride.

    • Lucy Sky November 9, 2015 at 12:33 pm Reply

      Hi Agata
      How long does the chelation therapy take ?

      Lucy

      • Agata November 10, 2015 at 1:02 am Reply

        HI Lucy
        The chelation with zeolit is slow. Its recommended to take zeolit for three months or more. Depends on individuals. Its recomended to start with 5g of zeolit a day. If the symptoms are bad you slowly go to 5g twice a day. But you must take zeolit 4-6 haurs beffor any pills you take. Because the pill wount work for you. That is for those who hawe some other illnes like high blood pressure or ny thing else. Because the zeolit flushes pills out and they wont work. The detoxification with zeolit is a slow process not like other pill for detox which they say to take them for 10 days. I think they even work. If the body is full of toxins I dont think you can get them out of the system in 10 days. Doo you know anything about ATP…
        Adenosin triphosphate. When I went to alternative testing she sad that my ATP is low…that something abaut cell not functioning right. Maybe related to my condition. When I wrote to surgeon on line he sad that my symptoms could be related to ATP.

        • Lucy Sky November 14, 2015 at 7:00 am

          Hi Agata and Lisa
          I now realise that I should ignore negative messages such as was left yesterday, anyway.
          Agata please would you mind telling me where you purchased the zeolite from.
          Lucy x

    • Lucy Sky November 11, 2015 at 1:40 pm Reply

      I am making enquiries about this now. IIn the meantime have started the slow detox with Vitamin C.
      How does one know if the detox is working? Is any blood monitoring required?

      Sadly we do not have any naturopath doctors in the UK.
      Lucy

  24. Lucy Sky November 8, 2015 at 4:09 pm Reply

    Jason I could not reply via your msg. I do not fully understand how to navigate this site yet that is how I came to miss some of your postings. Some msgs just disappear off screen,
    Lucy

  25. Jason November 8, 2015 at 6:43 pm Reply

    Tricia, Agata, this is for you, and anyone else that wants to read an interesting article about the differences between Tendinitis, and Tendonosis, and some suggestions on what to do:

    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3312643/

    Note this quote “Nutrition. Vitamin C, manganese, and zinc are all important for the synthesis of collagen production(20). Vitamin B6 and Vitamin E have also been linked to tendon health(21). Patients might benefit from talking with their primary health care provider or a nutrition specialist to be sure their intake of these nutrients is sufficient.”

    IIRC – Bone broth is thought to be particularly helpful and protein and/or amino acids like Lysine in particular (I took a Vit C with Lysine supplement esp for Collagen, I think they might work synergistically)

    Note the article is not taking into consideration either of those conditions caused by Fluoride or FQ toxicity. Note also, testing just the blood for nutrients/minerals does not give a full picture on what is going on in the body, or in the cells, and does not take into account FQ Toxicity. My test said I was fine in Magnesium and I can tell you that didn’t matter, because every time I put Magnesium on my painful legs it helped the pain and the nerves settle down, and the drug/Fluoride rob the body of this Mineral especially.

    I recommend that people concerned about their Mineral Balances in their body consider doing a Hair Mineral/Metal analysis, which gives a lot of info on many different Minerals, Toxic Metals, and gives a little more insight into what is going on in the cells.

    • Debs November 9, 2015 at 5:16 am Reply

      For tendon issues this is imo an informative site .

      http://www.tendonpain.org/index.shtml

      • Jason November 9, 2015 at 10:25 am Reply

        Thank you Debs it does seem very good indeed, they seem to have some unbiased opinions based on research, I did notice some of the important ones don’t seem to refer to studies or references, some definitely did.

        For the supplement section (which reminds me I forgot to mention I took some types of Collagen [type II for sure, can’t remember if it was also I & III] directly when I was injured to “try” and help things from falling apart, which it felt like my joints, tendons and more definitely were, I was already having issues before Cipro too to make matters even worse) there were some omissions and they mention not many studies were done, I wonder when this was written because IIRC I did find some, maybe it is ‘relatively’ small though.

        It is Interesting what it is said about producing “abnormal” Collagen and a failed healing response, which might be the most important takeaway from this particular site, and which in particular I can imagine applies especially to Floxies (along with this quote, “the tendinosis cycle begins when breakdown exceeds repair”). Concerning Floxies and DNA damage, IIRC, with DNA damage and when DNA is getting rebuilt “abnormal DNA” will be reproduced for some time, until the body slowly corrects this through its DNA repair process, if the process is working and not being overwhelmed by continual damage from more toxins being released or reintroduced. IF DNA is the core of the problem for any injury (not saying it is for Floxie tendons etc), and in the case of tendons not other things like overuse, inflammation etc, its easy to see why NO supplements and therapies etc would seem to help someone who’s DNA repair process is hindered. However having said that, if there are many factors involved in the damage and not just the DNA, like inflammation adding to the problem etc, IMO this is where some things could likely help (In the case of my joints falling apart for example, it was VERY noticeable the days I was away from home and not taking my usual supplements).

        This is another reason Methylation can be critical to healing for Floxies IMO, because when it is impaired, so is the DNA repair process, which to me shows just ‘one’ reason a severely Floxed person may not be healing, and why it takes so long for many others to heal (not detoxing the other biggy, combined it seems like a huge blow to healing to me). The more damage someone has, the more bad DNA gets churned out each time instead of good DNA, slowing and even preventing healing in some cases. To me, this is of the utmost importance to every living person not just Floxies, but for Floxies once I learned some things on how DNA/RNA repair works, and once I learned it was part of Methylation, the picture became very clear to me, especially when you add in the rest of the Methylation picture.

        To anyone reading this, these are only my ‘unlicensed’ opinions

        • Mark S November 9, 2015 at 11:13 am

          http://www.ncbi.nlm.nih.gov/pubmed/18309503

          I found this study to be pretty fascinating and it seems relevant. Jason what do you think? I just started taking high doses of C recommended by Keri in the e-book. Hoping it yields positive results.

        • Jason November 11, 2015 at 12:49 pm

          Hi Mark. Yes there are studies out there showing these things cited in those two posts directly above, and I think all of the info in those posts and on this page are important added up. I also feel the things I did (Idea came from Tucker) in the 5th post here in this link in reply to you helped me too https://floxiehope.com/comment-page-39/#comments

        • Lucy Sky November 13, 2015 at 5:22 am

          Hi Lisa, Jason et al

          http://www.telegraph.co.uk/news/health/11818749/Jeremy-Hunt-NHS-bosses-face-jail-over-links-to-drug-firms.html

          Thought that this article in the Daily Telegraph may be of interest especially to those who have suffered adverse drug reactions on drugs such as the fluoroquinolones.

          This article describes how NHS bosses and doctors may face jail for up to ten years under the Bribery Act..

          7 billion pounds spent on drugs by the NHS. Hospital bosses paid hundreds of thousands of pounds by Big Pharma. drs bribed by Big Pharma to prescribe drugs.

        • jwinn November 13, 2015 at 7:38 am

          Have any of you tried Traumeel for joint and muscle pain? For those of you who have severe joint and muscle pain, thanks to my Veteranarian who actually saved my life, I have discovered a homoepathic ointment to help with the pain. It is called Traumeel. You can order it on Amazon. She precribed it for my dog, who pulled a muscle in his leg. For three months, nothing else had worked. After using the creme on her leg muscles for one week, she jumped up on the couch! I used it on my arms and shoulders last night, and my pain is 50% better today. It works!!! I have now ordered some for myself as well. My dog is on 50 mg ointment (she weighs 18 lbs), but it comes in 100 mg and 250 mg. I am ordering the 100 mg. for myself. I trust my Vet completely, When I first started with my symptoms, I went to 18 doctors and none of them could find out what was wrong with me. My Vet took one look at me, called my doctor, and told him to run a blood panel on me for Rocky Mountain Spotted fever, which came back positive. I should have already been dead. She saved my life. However, I was then ‘floxed’ from the antibiotics needed to cure me. That was 5 years ago. I have been in pain and barely hanging on ever since. She suggested I try this product on my joints and muscles, along with my dog. It is all natural, but I can’t tell you the ingredients off of my head… I can honestly say, it has helped! I hope and pray it helps someone else too! I just wanted to share! I feel blessed, and hope you will too!

        • Lucy Sky November 13, 2015 at 4:36 pm

          Hi jwinn Thanks for the info. I have not actually tried this but I intend to look into it and to try it .

          Is it easy to come by?
          I have been using magnesium oil .These spasms and stiffening of my muscles together with the burning are just too much at times.
          The usual nerve pain analgesics are inappropriate due to their side effects. Hence choice of suitable and effective pain relief is very limited.

          Once again thank you.
          Hope u are OK.

          Lucy.

        • Lucy Sky November 13, 2015 at 7:11 pm

          Jason Someone ,RH, left a message saying that all this was on this website was b/s. Please tell me that it is not and that there is hope for us.

          Please tell me that everything you have written to help us is true!

          How did you reach your conclusions about methylation etc. That must be based on facts.

          Where does one start to unravel the mess following being floxed .

          Having the stiffness of the knee, thigh, ankle, feet muscles and the spasms that are similar to plantar faciitis.It is all very scary.How much rest and exercise should one be taking?

          Are there any guidelines or a protocol, laiid down anywhere for people to follow?

          For example is it best to start with genetic testing and if so which tests would you recommend?
          Then methylation testing next followed by chelation/de toxing.

          What is the most gentle, safe effective form of de toxing and chelation ?

          Thank you.

          Lucy.

        • kelhatesfq November 22, 2015 at 8:16 pm

          Lucy~~~ So what you do is listen to your own body and follow your heart. I think I have been too inactive and oxygen and nutrients do not go to regions without some type of activity. The blood flow, oxygen and other nutrients require activity to nourish the body. This is amateur layman knowledge … but beware not listening to your body and going too fast. After Floxing my legs and backside were terrible and I took 8 weeks off on a bed and they seemed to recover some. I went for a long walk and in the feet everything started up again. A lot suggest aquatic therapy and things that don’t involve weight bearing exercise. The Flox report which was outdated had interesting info on joint/muscle/tendon degeneration and shortening like someone there was a Phsy.Therapist but I find that likely useless.

          The best Floxed people I have seen are ‘young’ on here… They recover the fastest, also those who have strong bodies, not all..but that seems to be more so. The one’s that older or have existing health issues seem to struggle. Larger portion of females too(which is I assume again their structure. (Everything I said is opinion BTW)

          Good luck and welcome haven’t seen you before

    • Lucy Sky November 9, 2015 at 5:20 pm Reply

      Hi Jason
      Thanks this is very informative. You are wonderful doing all this research.
      How are you dealing with being floxed? What I mean is really how badly affected are you? Do you have tendonitis and peripheral neuropathy?
      Hope you don’t mind my asking!

      Lucy

  26. Lucy Sky November 9, 2015 at 5:07 am Reply

    Have to be careful with magnesium if on warfarin. Mag interacts with warfarin.

  27. Mike November 9, 2015 at 11:21 am Reply

    Brian, I’ve noticed the same thing as you since I took Cipro regarding stools. Surprisingly, I found a D.O. who is going to test me for leaky gut today. I’m interested in what the results will be. Off the subject, this Dr. knew all about fluoroquinolone tendon damage which makes sense because he does PRP, prolo etc. He’s had 5 floxed patients. He also is a big believer in mehylation and is currently studying it. Shocking. Glad to see that the damage from these FQ’s are finally starting to be acknowledged as legitimate. It was refreshing to have a Dr. actually be sympathetic to pain and suffering caused by these drugs rather than assume you are crazy.

    • Mark S November 9, 2015 at 11:29 am Reply

      Mike,

      Count me in on that too. Very strange bowel movements but at the same time I don’t have any of the other “leaky guy” symptoms like weight gain, gloating, headaches, thyroid problems, etc. So I’m not really sure what to make of it! I think it’s just our microbiome being turned upside down and our body doesn’t know how to adjust to it. I have yet to overcome it myself but my advice would be to start a great probiotic and be careful about what you eat. Hopefully overtime it corrects itself though good bacteria and good nutrition. Let me know how it goes!

      Mark

      • Lucy Sky November 9, 2015 at 12:36 pm Reply

        Hi
        I am going to see a nutritionist and hopefully receive some constructive help.

        The cipros are the most damaging of the fluoroquinolones I was told today.

        • Debs November 9, 2015 at 3:34 pm

          ALL FQs whatever mode of administration are just as dangerous as each other Lucy . at times certain FQsare associated with particular symptoms more than others depending on the chemical structure of the particular drug involved, however all FQs are capable of causing exactly the same horrendous systemic damage.

          A FQ starts causing DNA/ mitochondrial damage from the very first dose, & nobody floxed or not ( yet ) floxed, unfortunately gets out of taking a FQ completely 100% unscathed .

    • Lucy Sky November 13, 2015 at 6:47 am Reply

      Hi Mike
      Is it possible to have the name of the dr you are referring to. Lucy .

  28. Lucy Sky November 9, 2015 at 4:57 pm Reply

    Hi Debs
    I am sure that you are right. I agree that all flq are just as bad as each other. This was just one persons point of view on the flq.

    I will never forgive the people who did this to me. Do you think I am bad saying that?
    On the subject of a group of drugs damaging muscles. The statins are all as bad as each other. However I am sure that everyone here already knows that.

    How could Big Pharma do this to people? How could anyone?

    These stories about the dangers of fluoroquinolones are true. They are not made up, they are not an imaginary set of signs and symptoms. My signs and symptoms were present but worsening for months possibly years before I even knew they were due to the flq. The only clue I had was that the onset of the heaviness and coldness of my leg started five days after being prescribed antibiotics including cipro. I had had them four or five times over a number of years.
    It was a dr a specialist who pointed me in the right direction and this led to researching antibiotic toxicity which led me to the facts about the fluroquinolones. I feel trapped and disempowered by this continuing harrowing horrific experience.

    WHY, WHY did this have to happen to me or to anyone ? WHY?
    Why do my family have to suffer in silence?

  29. claude November 9, 2015 at 6:22 pm Reply

    hello my friends

    if someone have recommandation with candidas and our condition

    thank you

    • Catherine November 10, 2015 at 1:34 am Reply

      Hi Claude
      I successfully cleared up a severe candida infection using essential oils, rubbed on my feet twice a day. There is a Facebook group called Oils for Flox Recovery which has a lot of info about using oils and other alternative treatments.

      • Lucy Sky November 11, 2015 at 3:56 am Reply

        Hi Catherine
        What type of essential oils did you use? Thanks .Lucy

        • Catherine November 11, 2015 at 6:24 am

          Hi Lucy
          I used a variety of oils with anti fungal properties, in different combinations, rubbed into the soles of my feet, including tea tree, oregano, thyme, frankincense and others I can’t recall. The Oils for Flox Recovery site has a huge amount of information about using oils to treat candida and other intestinal parasites, as well as lots of other conditions. It certainly worked for me, although didn’t make any difference to my Flox symptoms unfortunately.

      • Lucy Sky November 11, 2015 at 12:18 pm Reply

        Thanks for the info on the essential oils.

        Was the candida infection a local skin infection for example Athletes Foot or was it a systemic infection?
        Lucy.
        Where was the candida bnfection ? Was it local

        • Catherine November 11, 2015 at 12:39 pm

          Hi Lucy
          It was a systemic infection, which showed up in stool tests and live blood analysis. I had been on antibiotics for 9 years, so the candida was completely out of control. I also do a very strict anti candida diet – if I ever fall off the wagon the candida symptoms flare up immediately and I have to use the oils again. Interestingly, my chronic acne has completely cleared up now I’ve got rid of candida.

  30. Amanda November 9, 2015 at 9:47 pm Reply

    Floxie question: Has anyone (floxies) ever taken Ashwagandha? If so, any negative side effects? Dosage? My kinesiologist put me on it to get rid of some bacteria & viruses.

    • Catherine November 10, 2015 at 1:29 am Reply

      Hi Amanda
      I take ashwagandha – 1 capsule twice a day – because it is supposed to help with nerve damage. I haven’t noticed any negative effects.

      • Amanda November 10, 2015 at 6:38 am Reply

        Thank you, Catherine. The Ashwagandha caps she wants me on are 500mg at one cap per day for two weeks. I’ve been floxed four years now, and still hesitant to take any new vitamin or supplement. One of my lingering issues is with my nervous system. Do you notice any nerve or brain issues after taking it? Reading about it, it seems like it acts as a mild sedative.

        • Catherine November 10, 2015 at 7:08 am

          The ashwagandha I take is 450mg capsules, twice a day. My floxing is very severe – I’ve been bed bound for 2 1/2 years now, and little improvement, so I can’t really say if it’s doing me any good or not. I’ve been taking ashwagandha for about 3 months. I certainly don’t feel that it’s making things any worse.

        • Amanda November 10, 2015 at 9:10 am

          Do you take any other supplements or vitamins as well as the Ashwagandha? I’m only taking vit C right now. Also, it has been known to have mild sedation or sleepiness effect. She has me on it to clear up ear and sinus infections and to help my adrenals. I’m thinking about seeing if a homeopathic remedy would work to clear everything up. The homeopathic remedies seem to work better on me and with no side effects.

        • Catherine November 11, 2015 at 6:29 am

          I take lots of other supplements – magnesium, vitamin C, B complex, b12, calcium d-glucarate, hyalauronic acid, phosphatidyl choline, pantothenic acid and zinc.

        • Catherine November 11, 2015 at 6:32 am

          I tried homeopathy but it didn’t work for me. My children (not floxed, thankfully) have had great results with it however.

        • Amanda November 11, 2015 at 11:25 am

          Catherine, thank you for your responses. I started the Ashwagandha this morning, and so far having no negative issues. It did seem to calm my nervous system down a little. Ashwagandha reminds me of chamomile tea. It is already working against this ear infection, because my right ear has popped a few times. (It didn’t hurt.) I’m sorry homeopathy doesn’t work for you. Good that your kids can use them. Homeopathic remedies are what I give my kids when they become ill.

  31. Mark S November 10, 2015 at 6:20 am Reply

    I think I need to back off taking Vitamin D. Ever since I realized I was insufficient and started taking it, I have just gotten worse and worse. I started taking a 5,000 IU softgel to go along with my multivitamin and I think it’s just make my mag deficinecy even worse. The past three nights I’ve been having terrible ringing in my ears and “middle of the night insomnia”. Should I back off to just 1,000 IUs or so to take it easy on myself?

    • Mark S November 10, 2015 at 6:23 am Reply

      Also terrible headaches since I started the 5,000 IU. Figure I’m taking too much too fast.

    • Lucy Sky November 10, 2015 at 6:47 am Reply

      Hi Mark
      I think the dose of vitamin D is based on the level in your body.

      I take Vit D but under medical supervision so that the calcium, phosphate, parathyroid hormone levels can be monitored .Bone profile.

      My optimal level is set at 75 nnomols of vit D.It could differ depending on where u live.

      • Mark S November 10, 2015 at 6:57 am Reply

        I’m low, around a 24. But it wasn’t until I started supplementing that I got these new symptoms. I know I need to get my level up but it’s making me feel that much worse when taking it.

  32. Lucy Sky November 10, 2015 at 7:40 am Reply

    Do you know the reference range of vit D?

    It is always adviseable to have the dose monitored to avert vit D toxicity especially if you have kidney disease.

    When did you start taking vit D ? How did you know it was low?

    Are you taking calcium as well?
    What other supplements are you taking?
    Is your blood being monitored?

    If the supplements are making you feel ill then the best advice is to see a dr to get blood works done to exclude/check out vit D toxicity etc.

    Lucy

    • Mark S November 10, 2015 at 8:28 am Reply

      I had blood work done about a month ago. D level was 24 when the suggested minimum by my doctor was 30. Recommended to take 1,000 IU’s daily but I’ve been taking more. My calcium is at a 10.5 which is normal for my age.

  33. Lucy Sky November 10, 2015 at 10:25 am Reply

    Hi Mark
    Have you got copies of your blood reports with the reference ranges and values?

    Are you under an endocrinologist?
    Lucy

    • Mark S November 10, 2015 at 10:45 am Reply

      I do. I am 23 years old so a blood calcium level of 10.5 is still normal range for me whereas it is high for someone who is 35+.

  34. Lucy Sky November 10, 2015 at 11:38 am Reply

    I personally would be very hesitant to take a higher dose of vitamin D unless my dr advised me to do so. However I cannot tell you what to do or what no to do just pass on my comments about my own situation.
    I was wondering if you had actually informed your dr about you increasing the dose and the fact that you feel ill since doing so.

    I take it that you have access to your dr.

    Any change in condition should really be referred to the dr. What does the patient Information Leaflet advise you to do ?
    Lucy

    • Lucero Rojas November 10, 2015 at 5:57 pm Reply

      Lucy hi. “Jason’s Thyroid post was posted by Lisa at the bottom of the page”

      • Lucy Sky November 14, 2015 at 7:02 am Reply

        Thanks Luceros

        How are you?
        I am having a bad day hence keep coming back to my friends on floxiehope.

        Lucy

        • Lucero Rojas November 14, 2015 at 12:01 pm

          Hi my dearest Lucy!

          First i am so sorry that you are having a bad day. Days like this come and go. Most times they linger around to make us lose hope. But we shouldn’t!!!! It is hard to stay positive and continue hoping but we must. We need to do it for us and the people around us. Faith, hope, courage, strength, believing, God the angels or whoever you belive in will make us pass all this. Remember we are here for each other! For anything!!! Thank you for asking how I am . Really appreciate it. Well this last 3 weeks have been a Rollercoaster. Everytime I have an iv something in my body changes. My pains around my body, my emotions, my energy, my head, my ears. Etc! But still here Lucy! Holding on and believing that tomorrow will be better. Also I got a new doctor that says she has knowledge on methylation issues since I came back positive for homo C677T and she said that she can help me with my methylation cycle and be able to help my body detox better but still need to run some other tests first before she can help me. Need to see what other SNP’S I have an address them before the mother gene. I don’t know much on this issue but Jason seems to know alot. Hopefully helping my body to methylate properly it will be able to get rid of any cipro toxin left in my body. She said Cipro was the cherry on top on all this. We are predisposed to things like this because of our genetics. That’s why some people get sick and other don’t. I pray that each of us find relief soon and we get to live a normal and fulfilling life again. If anything I am here too Lucy. God bless you always and sending you a million hugs and blessings your way.

          Lucero

        • Lucy Sky November 14, 2015 at 2:49 pm

          Hi Luceros
          Thank you for your very nice and pleasant e mail. It is most welcome.

          I am sorry for sounding so miserable, we are going thru the bereavement process x 2 in two weeks in the same family. This happened in May and June respectively -close family members.. I did not want to burden people with this and the details but on the other hand you may wonder why I am so down all the time, apart from the issue of the floxing that is.

          Anyway having got that out of the way….
          I already take magnesium with Vit B6 and B12 to relax my muscles and for the peripheral neuropathy and numbness of my legs so I am already a great fan of these supplements.
          .
          However……. I was reading something about Dr Carolyn Dean’s claims about magnesium helping us floxies and someone, not me, had disputed one or two things. I do not feel up to going into it at the moment I hope you all understand. I intend to read it try to summarise it then submit it to this forum for your comments. I am sure Lisa and Jason will respond , hopefully anyway to put our minds at rest.

          BTW I also glimpsed something about the zeolites containing aluminium and something else that was undesirable I will send the link then people can judge for themselves.

          Thank you again for your support and prayers they make a massive difference.

          Lucy. xxx

  35. Lisa Bloomquist November 10, 2015 at 12:32 pm Reply

    This message is from Jason to Lucy. For some reason, it didn’t go through when he posted it –

    Hi Lucy – Thyroid. Did they test you for Graves?

    Here are a few interesting articles, note, this is one subject I have only scratched the surface on because I eventually ruled out Thyroid issues for myself, also I looked more into the HYPO end of it because that is what I thought I might be before I was tested.

    https://doctordoni.com/2015/10/graves-disease-and-leaky-gut.html
    The link between Graves Disease and Leaky Gut. Mentions high Cortisol can affect Thyroid, not sure if that is accurate and to what extent.

    http://www.nativeremedies.com/ailment/hyperthyroidism-symptoms-information.html
    Stresses the importance of knowing the root cause, gives tips etc

    http://articles.mercola.com/sites/articles/archive/2014/06/15/hypothyroid-hyperthyroid-disease.aspx
    This one talks about the Fluoride/Iodone relationship, toxic heavy metals, and more. Oddly enough 3/4 of the way down the page you will see where they treated “Hyper” people with Iodine and Lithium, yet Hyperthyroidism can be caused by too much Iodine (which in a Floxies case is often the opposite, too little Iodine due to the Fluoride). Note I would never use Rx Lithium (toxic I am sure) personally, I use Lithium Orotate myself. Note this study is using regular Iodine also not radioactive.

    http://www.drlwilson.com/articles/thyroid.htm
    Boatload of info here, I use this website a lot, Dr. Mercola too. This one again stresses figuring out the root cause to treat it properly.

    http://www.endocrineweb.com/conditions/hyperthyroidism/hyperthyroidism-overview-overactive-thyroid
    This one says Hyper can be caused by “toxic” nodules, and radioactive Iodine is used to basically destroy some cells in Thyroid to basically shut hormone production, seems like a very extreme measure, but I guess is needed in some cases.

    Seems like you have a lot of reading and definitely more of your own researching to do for this condition for sure, and then can hopefully talk to a Naturopath about all these things, maybe even a trustworthy Doctor if you can find one, and get some very important testing done hopefully too, seems like a fairly serious condition and its one that can affect ones health in many ways. Yours is a complex case overall for sure Lucy with the other factors involved, and proper testing in my opinion could really be key to getting answers to the root causes of some of these issues. Good luck and God Bless

    • Lucy Sky November 11, 2015 at 4:15 am Reply

      Lisa I have sub clinical hyperthyroidism and no one will treat me. One endo suggested radio active iodine , nothing gets done about it though just passed from pillar to post and fobbed off. I have multi nodular goitre. I am sick of being told I am a complex case this is unhelpful and very irritating.
      I need positive comments not patronising ones from people and drs.

      I am also in a lot of [ain due to tendonitis thru the flq.
      I have adrenal fatigue which isn;’t surprising due to the side effects of crappy meds..

      I have never taken lithium but I understand that it is detrimental to the body.I am unsure why someone with hyperthyroidism would require Lithium I certainly would not take it as it is prescribed for manic depression.

      Lucy

      • Jason November 11, 2015 at 8:01 am Reply

        Hi Lucy. That is “my” Thyroid post to you, Lisa had to post it for me because it would not go through the system otherwise.

        I hope you will explore the information in each of those links, they all look VERY relevant, and then do much more of your own.

        I don’t know if you have Adrenal Fatigue Lucy, but just a thought for everyone out there Candida brought on from Antibiotics is yet another cause of AF.

        Lithium is an important essential trace element, and is needed to transport Vitamin B12 into the cells. Lithium has a bad reputation, because it is used to treat some serious Mental disorders, and because the Rx version is toxic garbage with some very nasty side effects. However, the body NEEDS it, so it is not detrimental at all, and experts say many people do not get enough through the food and water (they get a little) which are depleted compared to past times in history. I tested low in Lithium, so I take a natural non-rx version as detailed in my post above that Lisa posted. So like many other things, testing can reveal deficiencies and imbalances in the body which can then be corrected. I don’t know how helpful it is to hyperthyroidism, but the (small) study in one of the links above seems to show it could be. You can read a little about it here, not the best article but some good info https://www.psychologytoday.com/blog/evolutionary-psychiatry/201201/could-you-have-lithium-deficiency

        Lucy I’m sorry you have been bounced around from Doctor to Doctor and have never got anywhere, and that you are a ‘complex’ case due to history and multiple conditions. Lucy I am with you in this. I have suffered for 30 years. I am 95% or so healed from Cipro and was many months ago, however I am still fighting with some of my other per-existing conditions. Over the last 30 years I have seen 40+ Doctors, 10+ Specialists, and 5 Naturopaths. Lucy I am a very complex case too, which is why I finally gave up on other people trying to find a solution for me, and starting researching for one myself, I too have multiple issues. I hope this makes you feel a tiny bit better, you are not alone, and there is a LOT of hope for each of us.

    • Lucy Sky November 13, 2015 at 9:54 am Reply

      Thanks Lisa. My TSH was 0.16, T$ 16.5 Thyroid antibodies less than 33, plus nodules on the thyroid, non cancerous. Diagnosed with sub clinical hyperthyroidism, treatment not yet commenced.

      Lucy

    • Lucy Sky November 14, 2015 at 2:58 pm Reply

      Thanks Lisa for the info it is very useful!
      I did respond previously to your message but since then have seen an endocrinologist so I intend to go thru everything again before deciding what to do.

      I am considering letting the drs give me radio active iodine but that will destroy the thyroid and I will have to take thyroxine for life!! ON the other hand I just want to feel better than I do presently.
      I am also suffering from adrenal fatigue. All these things are checkable as I have scan and blood work reports as well as medical records and reports to substantiate what I am writing. It is not paranoia or a hypochondria.
      Best

      Lucy

  36. Mark S November 10, 2015 at 5:50 pm Reply

    So I’ve been using a chelated form of magnesium from Whole Foods and I just discovered it’s in the form of Oxide and Aspartate! Aren’t these the worst forms of magnesium?!

    • Lucy Sky November 14, 2015 at 3:04 pm Reply

      Hi Mark
      Have you investigated the magnesium advocated by Dr Carolyn Dean, I believe it is called Re-Mag and is absorbed at the cellular level , is a NON laxative . I do not know anything else about it or if the claims being made stand up or not.
      There is also another magnesium called Angstrom magnesium it is on Dr Jay Cohen’s website. Again I know nothing about it so cannot comment..

      Lucy.

  37. Karon November 10, 2015 at 6:44 pm Reply

    Thankyou for accepting me to the group.

  38. Lucy Sky November 11, 2015 at 4:51 am Reply

    Has anyone heard of the Vitamin D Council, I believe they are based in the US.
    Re Magnesium . What s the best,safest form to take?

    Has anyone tried Bowens Therapy?

  39. Jason November 11, 2015 at 8:15 am Reply

    Anyone doubting the seriousness of Candida, and how it can even keep people sick long after some of the other Cipro damage has been healed, should read Erin’s story here:

    http://blogs.naturalnews.com/fluoroquinolone-recovery-brought-to-you-by-nature/

    I talked a little about this last page and left a website there with more info as well. I “think” Erin and Nikki are the ones who started the “Oils for Flox Recovery” group on Facebook Catherine is referring to above, but could be wrong on that. (She does mention at the end she started a facebook group, not sure it is the same one I imagine it is)

    • Catherine November 11, 2015 at 8:58 am Reply

      Hi Jason, yes Oils for Flox Recovery is Erin’s Facebook group.

      • lucy sky November 14, 2015 at 6:38 am Reply

        Hi everyoneWell I don’t know what to believe anymore after reading KH posting. I feel very depressed . Thanks Lisa for posting KH negative message. I wonder how long it will be before I feel any kind of hope now. Others have commented in the same mode as myself and say they will not be accessing floxiehope again, this is sad because there is a lot of valuable information on it.Lucy

    • Terry November 11, 2015 at 9:29 am Reply

      Im not sure if I have candida? Is there a natural way to kill it?

  40. Jason November 11, 2015 at 10:04 am Reply

    One more post about Methylation, DNA, Fluoroquinolones, and healing (or lack thereof).

    One of the most important aspects of the Quins, and why they are so effective against bad bacteria, is that they are designed to inhibit the DNA replication process of the cells, thus damaging the cells ability to reproduce.

    Here is just one study on this, I can’t remember how many others there are but I imagine there are a decent amount on this: http://jac.oxfordjournals.org/content/51/suppl_1/29.full.pdf

    The problem with this as we know, is this doesn’t just happen with the “bad” cells, in typical Chemo-like fashion it ends up damaging good cells too. So that is the bad news.

    The potential good news again, gets very technical but here is an except about Methylation that is mostly in plain English:

    “The Importance of the Methylation Pathway – New cell synthesis and repair

    Mutations in the methylation pathway can cripple the ability of the body to make the building blocks (purines and pyrimidines) needed for new DNA and RNA synthesis. A reduced capacity for new DNA and RNA synthesis means that any new cell synthesis is impaired. For an organism to live, it must create new cells as fast as cells die. This requires that the body make millions of cells every minute, relying on DNA and RNA synthesis. A reduced synthesis capacity due to methylation cycle mutations is a particular issue for cells that already have difficulties meeting their needs for DNA and RNA synthesis under normal conditions.

    Adding a significant methylation issue to the cell synthesis makes it nearly impossible to recover from damage or stress on these tissues. Stress increases the need for nucleotides to overcome negative effects of hormones released during stressful conditions. Cell repair after injury increases the need for nucleotides. In particular, the nervous system has the highest concentration of RNA in the body, and therefore has the highest requirement of methylation need.”

    —-

    So in summary, FQ’s damage a cell’s ability to reproduce. Genetic Mutations in the Methylation Pathway can cripple the cell’s ability to reproduce. What do you get when you add these things together? A DISASTER. What can be done? Genetic test.

    This coupled with my other posts and research concludes ‘my theory’, on why some people very likely take a long time to heal, and why some may not heal at all (I’m sure other people knowledgeable on Methylation and Quins have come to this conclusion like Lucero’s Doctor etc I’ve never seen it talked about though). There are other reasons of course, some related to Methylation as I posted above and some that are not, and there is much much more to this obviously and a hundred or more variables, possibly even factors not yet discovered or understood, but to me anyway Methylation issues look to be possibly one of the “most important” and probable ones.

    • Terry November 11, 2015 at 10:11 am Reply

      Jason, how does this help us? We all know that some people are not affected too much and for others it is destructive.

      • Jason November 11, 2015 at 10:23 am Reply

        HI Terry. Please read everything very carefully on this page, the answer to that question and more are all here and if fact that same question was asked already.

        • Terry November 11, 2015 at 10:51 am

          Don’t get me wrong. I like your way of thinking. I am just wondering this can help us. I don’t believe the medical community is helping us. Or even getting together to correct our problem.

    • Lucy Sky November 14, 2015 at 5:51 am Reply

      Hi Jason
      Which genetic test do you advise having? Lucy

    • Lucy Sky November 14, 2015 at 7:26 am Reply

      Hi Jason
      Hope u are well. You refer to methylation issues. How does one test for this?

      I now realise that I should ignore negative messages such as was left yesterday, anyway.
      Agata please would you mind telling me where you purchased the zeolite from. Lucy

  41. Terry November 11, 2015 at 10:12 am Reply

    The other curious thought is say it is managed now. What happens twenty years later as we age?

  42. F November 12, 2015 at 1:59 pm Reply

    Has anyone had to have Cataract Eye surgery? They want you to take three types of topical eye drops. An antibiotic, usually a fluoroquinolone, a steroid and an NSAID before and after for a couple of weeks. Has anyone had to manage this situation? What did you do?

    • Lisa Bloomquist November 13, 2015 at 7:59 am Reply

      I haven’t been in that situation and I don’t know what to advise, but I’m so sorry that you’re facing it!

      I would recommend being sure to stay away from the FQ, but otherwise trust that your doctor is doing what is necessary to do more good than harm.

      It’s a tough situation, and I truly am sorry that you’re facing it!

      Regards,
      Lisa

  43. Lucy Sky November 13, 2015 at 2:52 am Reply

    Hi Jason

    Hope you are doing OK.
    Do you happen to know if any of the other eye drops contain any nasties?

    For example do any of the eye drops they instill in the hospital /opticians when actually examining the eye got any nasties in them? I have to have frequent eye exams thanks to being floxed.
    As you probably know they use local anaesthetic eye drops, staining solution such as fluroscein!!!!!!!
    What about the staff who manufacture and use such products? I wonder what the incidence of adverse side effects is in the manufacturing industry side of things?

    I feel like throwing up at the thought.

    Help Jason and Lisa.

    These fluoroquinolones really do need banning. Who packs these drugs? Who handles them and where are they actually manufactured?

    What controls are in lace too safeguard the health of hose coming into contact with the raw material in the manufacturing process?
    Are the workers made aware of the risk?
    Thy should be but are they?

    Lucy

  44. Rick Henry November 13, 2015 at 6:49 am Reply

    Sorry for my jaded views. But this is the biggest bunch of BS I have read in all the thousands of references for the billions of BS around the world, much of which is advocated by paranoia of hypochondriacs, seeking 90% of doctors around the world who are just quacks who don’t know squat about you, but prescribe toxic drugs mostly for toxic profits by Big Pharma around the world. The fact is NOT ONE of you are alike. You don’t have the same DNA, the fingerprint of a universe of information that will not be figured out in anybody’s lifetime. All medicines, and many alternative suggestions are just more BS to add to the pile of garbage some damned expert claims will help you when they don’t know squat about you either. We all DIE people,,we all suffer, and you take chances no matter what you do. But something is going to make you miserable, and you gamble on any of the mountains of BS that is advocated in every damned internet site full of quacks and pseudo-scientists that don’t know crap about anything either with certainty. The fact is, you WILL suffer possibly from 90 or 100 % of recommendations from these “experts” that waste their time looking for a holy grail that never will be there for most. So enjoy life as best you can, gamble on all the BS tests, BS doctors, and BS people so full of themselves with all the friggin tests those freaks use, and just know it’s all a gamble,,and BS is the bottom line. Some you may benefit from trial and errors using any of the thousands of speculative BS spouted everywhere, but the fact is nobody is right about everybody ANY of the time. So you gamble on all this crap, and do you live forever? Do you gain one damned thing from all this BS? Life is a crap shoot, and everything you do is a gamble according to you own specific individual billions of cellular differences, and to thing otherwise that there is silver bullet to save your collective asses is pure BS. Have I mentioned all this will be pure BS for MOST of you? Live your life, take your chances, and do bankrupt and die in the process after many of the so-called tests and cures mean not one damned thing about your prognosis, The only certainty in life is that you have to find some small way to enjoy it rather than spend it miserable listening to the quacks of the world, most of whom are only out to make money at your expense and misery in most cases. One one thing said anywhere in my life of investigating millions of claims means jack in the long run, and you are just lucky when some one of hundreds of things tried mean nothing in most cases. It’s the luck of the draw, and our only hope is the peace of death when it comes and frees us from the shackles a mankind which is the most stupid creature of the earth with it’s large volume of BS that could fill an ocean of sorrow unrelieved by all this speculation that cannot be proved, is misinterpreted, and BS too often is the only truth about any of this waste of time. Go have fun, if you can, and enjoy life rather than seeking answers that are lies. Life is too short to hunt with fruitless results and the depression it produces for most of us who are going to die anyway. Sorry if I burst bubbles or piss some of you off,,but this is ridiculous.

    • Lisa Bloomquist November 13, 2015 at 7:55 am Reply

      We all have different paths, Rick. None of them lead to immortality. I truly believe that moving on with life as it is, stopping trying to turn back time, and even acceptance and surrender, are healing. They are not easy though, and sometimes a process of going through a million different methods of trial and error (BS, if you insist) are necessary along the path.

      Please try to be forgiving and patient toward people who are struggling. For me, it was more difficult to be forgiving and patient toward myself than it was to be forgiving and patient toward others. I think both are important in making this world a good place.

      Lisa

      • Lisa Bloomquist November 13, 2015 at 8:13 am Reply

        I also hope that valuable lessons have been passed from person to person on this site. I have learned a lot from the people who have commented on this site, and I hope that they have learned from me too. It’s education, information, empathy and compassion, not BS. And sometimes the information helps people to heal – that is always the hope.

  45. Lucy Sky November 13, 2015 at 7:41 am Reply

    Lisa
    How do I e mail you privately please.
    I have a medical Report confirming the cause of the tendonitis etc, etc is due to the fluoroquinolones.

    Lucy.

    • Lisa Bloomquist November 13, 2015 at 7:56 am Reply

      The contact link at the top of the page.

      • Lucy Sky November 13, 2015 at 5:21 pm Reply

        Each time I try to open up a msg from Floxiehope I keep getting adverts for Dr Mercola coming up.
        Just thought that I would let you know.

  46. Lucy Sky November 13, 2015 at 9:00 am Reply

    Your response to RHenry.

    Wise words Lisa.
    As a person who had cancer , dysgerminoma, of the ovary many, many years ago I can vouch for the fact that we need to be supported.

    I do not recall feeling as depressed or anxious as I do now at what has happened to me over being floxed and also having three lots of antibiotics prescribed for me all at the same time. The antibiotics were amoxyl ,doxycycline and augmentin.

    No blood work was done not even a chest x ray. Just told I had pleurisy. I was sent home from A and E .Why did this dr do this to me? It was uncalled for.
    Drs have since admitted that it was the cipro that caused the damage. I maintain that it was a combination. Over the years I had been prescribed cipro for a UTI.
    The dr tod me at the time that the drug would cause seizures but that that did not matter!!
    I even recall the drs name, it was Dr Jeanette Wilkes now working in London!!

    Clexane – blood thinner- and keflex , phenytoin, statins, pantoprazole are other drugs that cause burning of the legs. At least they did in me. My GP said she would not prescribe the clexane and I agree and thank her for that as well.

    Jason is right in being concerned about drs prescribing drugs that are contraindicated. It is inly be educating the drs to stop prescribing these drugs that they will stop. as stated previously more and more drs are exposing Big Pharma.

    Thee Bribery Act. According to newspaper Reports under the above Act doctors , corrupt NHS bosses , doctors etc can face the sack, unlimited fines even jail sentences of up to TEN years for accepting bribes from pharmaceutical Companies.

    Do you have any such legislation in the US.

    May I say that I think you are an exceptional person with great dignity, patience and empathy.

    Thank God that you as well as Jason etc are here for us.

    Thank you

    Lucy.

  47. Lucy Sky November 13, 2015 at 11:30 am Reply

    I have just found out that the Sunshine Report was quashed in the US.

    • Lucy Sky November 14, 2015 at 5:53 am Reply

      whoops.

  48. Lucy Sky November 14, 2015 at 6:32 am Reply

    I am wondering if this website is closed at the weekend.
    I wanted to send some medical reports but there does not seem to be any point anymore after what RH has posted.
    Lucy

  49. laura November 14, 2015 at 3:19 pm Reply

    Has anyone ever used or be prescribed voltaren gel? I am 11 months out of having pain, loss of muscle strength. My strength is pretty much back, and most of my pain is gone (arms/upper legs), but i still have pain in my ankles. I have been prescribed this by 2 MDs (rhemotologist and orthopedics). I know ibprofen and NSAIDs are not good for us (wish i knew that when i first started having symptoms as i think it made my condiiton worse), but didn’t know if anyone had any knowledge of the topical voltaren gel. Thanks a bunch
    L.

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