Floxie Hope

Floxie.Hope.1800.72.dpi

This site is to give HOPE to those who are suffering from Fluoroquinolone Toxicity Syndrome as a result of being poisoned by fluoroquinolone antibiotics – Cipro, Levaquin, Avelox, Floxin, etc.  It contains stories of healing.

Cipro, Levaquin, Avelox and all other fluoroquinolones are dangerous drugs that can have devastating effects that cumulatively I’ll refer to as Fluoroquinolone Toxicity Syndrome or Floxing.  Fluoroquinolone Toxicity Syndrome/Floxing includes damage to connective tissue (tendons, ligaments, cartilage, fascia, etc.) throughout the body, damage to the nervous systems (central, peripheral and autonomic), and more. The damage done by fluoroquinolone antibiotics can destroy a person’s quality of life or even kill them. Certainly, there is a time and a place for drugs with dangerous side effects. If you find yourself in a septic shock induced coma, fluoroquinolones may save your life. Unfortunately, these drugs are not being reserved for life or death situations. People are being prescribed them for urinary tract infections, suspected prostate infections, upper respiratory infections, as a prophylactic for travelers’ diarrhea, ear infections, pink eye, etc. Thousands of people have suffered needlessly from the devastating effects of fluoroquinolone antibiotics, when another, safer antibiotic could have, and should have, been used.

The damage done by fluoroquinolones is largely unacknowledged by the medical establishment and an accurate diagnosis, compensation and relief are difficult to come by. There is no known cure for Fluoroquinolone Toxicity Syndrome/Floxing.  However, many people continue to LIVE after being poisoned by fluroquinolones.  They find healing, recovery, perseverance, compassion and hope.  These are their stories.

This site is meant to give hope for healing to those who are adversely effected by fluoroquinolones.  It is no way meant to disregard the pain of those who are chronically suffering from the horrifying effects of Cipro, Levaquin, Avelox or the other fluoroquinolones.  There are people who don’t recover.  Their stories are real and they matter.  There are also people who are able to recover and I share their stories with the hope that they inspire others, or at least give hope that recovery is possible.

Here is a New York Times article about the dangers of fluoroquinolone antibiotics – http://well.blogs.nytimes.com/2012/09/10/popular-antibiotics-may-carry-serious-side-effects/?_r=0 – more news stories, research papers and other resources can be found on the “Links and Resources” page.

Here is a Facebook group that is a great resource for those going through Fluoroquinolone Toxicity – https://www.facebook.com/groups/floxies/

Featured post – I’m floxed. Now what?

The Fluoroquinolone Toxicity Solution Ebook has helped many Floxies to recover, including DanielCindy and Ruth.  As a bonus, you will also receive The Floxie Food Guide – a book of diet guidelines to help you through fluoroquinolone toxicity:

flu tox get help you need banner click lisa

 

 

fluoroquinolone-lawsuit-banner-trulaw

 

15,519 thoughts on “Floxie Hope

  1. joanneg January 8, 2017 at 11:22 pm Reply

    Ken,

    Sometimes the sicker we are the less supplements and medications we can take, because they can definitely keep you in a flare.

    Since being floxed, I was put on heart meds, thyroid meds, and valium, all which flared my symptoms to unbearable, and I had to quit taking them all. Even some supplements like B vitamins, milk thistle, glutathione, and iodine just to name a few, and of course coffee/caffeine. It took a long time and a lot of hard suffering to realize these things were keeping me in a manic, loose my mind, jump off a cliff flare.

    If I were you I would start seeing what supplements and meds I could stop, and maybe when you’re stronger you can add them back in if needed.

    I would never stop taking Magnesium!!! make sure you’reusing transdermal and you’re taking enough 900-1200 mg total. Also, I would definitely order the Omega patch. I’ve taken omega pills and they didn’t help at all. I don’t know why, but those patches help tremendously!!

    So, you got some big things to think about reguarding what you’re taking.

  2. Ghost January 9, 2017 at 7:13 am Reply

    Can someone post the links of the doctors?

  3. L January 9, 2017 at 9:29 am Reply

    • Ghost January 9, 2017 at 9:47 am Reply

      Won’t let me open it

      • L January 9, 2017 at 9:49 am Reply

        hmmm. not sure what happened there. Lisa will comment on this I am sure.

      • L January 9, 2017 at 9:55 am Reply

        Ghost, I would contact this place and ask if they have treated anyone for fluoroquinolone toxicity or cipro toxicity. (Even if they haven’t I think it is worth checking out.) This has an integrative internist who is also a naturopath, so best of both worlds. And I see they offer some IVs (which is what turned me around.) http://www.drkalidas.com/practice/our_practitioner.html

        • L January 9, 2017 at 9:57 am

          also, whenever you go to see a doctor/ND take a copy of the dear doctor letter(s) with you. They are from doctors who have themselves been floxed, and written specifically for other doctors. https://floxiehope.com/tag/dear-doctor-letter/

      • Lisa January 10, 2017 at 6:30 pm Reply
        • Tom Marsella January 10, 2017 at 9:36 pm

          Says unable to open

        • Tristine January 31, 2017 at 2:35 pm

          I had attempted as well and it gives me a prompt to ask for permission to the google doc through email on gmail.

          Was hoping to find a doctor in Arizona as the ones I’ve seen so far have either questioned that my symptoms are related to Cipro or have “rushed” me out the door by giving me another prescription for a pain medication or anti-inflammatory.

        • L January 31, 2017 at 3:11 pm

          I don’t know where you are in Arizona, but I would try a place like this that is integrative and offers IV therapy. (just do a search of integrative doctors or physicians…they combine naturopathic and western medicine and will be far more supportive and knowledgable. Then I would go armed with one of the Dear Doctor letters, written by floxed doctors http://www.globalmedicalhealing.com/content/medical-treatments-and-services

  4. Ken January 9, 2017 at 10:05 am Reply

    Thanks everyone for your suggestions. It has been since last Aug. and I just continually get worse. I don’t know what I am doing at times and I have really wore my family completely out. It took two years of torture last time and I am getting worse each day but thanks again.

    • Bob January 9, 2017 at 11:04 am Reply

      I have been getting worse since September also, ever since I had oral surgery. I also don’t feel like fighting it any longer but what is the alternative?

  5. Stephanie January 9, 2017 at 4:51 pm Reply

    So I’m here in spirit but need another break till I get used to sulfur pills it’s day two and I feel like my body is drained of all energy and the muscles are killing me. I feel like also the drooping in left side and the muscle sticking out in my neck feel like they are touching. But I’m staying positive and it’s crazy the wedding is planning itself it’s amazing like the universe knows I have no energy so everything is just coming together and looking to be right on budget. Just need to conserve energy.

    • L January 31, 2017 at 3:12 pm Reply

      sending hugs xoxoxo

  6. Catherine P January 10, 2017 at 9:49 am Reply

    I know this has been asked before, but which brand of colostrum is recommended? Thanks

    • Ryan L January 10, 2017 at 12:06 pm Reply

      Here’s a link to the one Joanne G recommended (Immune Tree Colostrum 6).

      https://immunetree.com/shop/colostrum-6-5oz-powder/

      • Catherine P January 10, 2017 at 12:43 pm Reply

        Thanks Ryan

      • Nicole Reedy January 12, 2017 at 7:02 am Reply

        Ryan L, I have gone back to find where you have talked about colostrum & cannot find it.
        Someone else mentioned this supplement to me this week.
        Can you tell me what it does & you use it for?
        Thanks, Nicole

        • Ryan L January 13, 2017 at 6:42 pm

          Nicole,

          Colostrum is mainly used to help strengthen the immune system and fortify the digestive system. Most people with leaky gut have found it very helpful. Immune Tree Colostrum 6 is the popular brand.

          Hope that was what you were looking for.

          Ryan

  7. joanneg January 10, 2017 at 10:53 pm Reply

    I posted this for those who don’t realize how important it is to replenish their magnesium, especially because we all took a fluoroquinolone and maybe even a steroid with it which both are very well known to chelate or strip our bodies of this mineral.

    What happens when we’re deficient in magnesium?

    Many of us have symptoms of magnesium deficiency without knowing the cause – cramps and muscle twitches (particularly night twitches), peripheral tingling or numbness, low energy, pain and inflammation, nausea and vomiting, migraines, tension headaches and anxiety states can all be the result of depleted magnesium levels. Breathing may become restricted and it’s common to sigh a lot.

    A common factor in all of these symptoms is magnesium’s functions in regulating neurotransmission and controlling muscle relaxation. In this role sufficient magnesium is necessary for a smooth and steady flow of nerve impulses to the muscles, telling them what to do. When magnesium is deficient those nerve impulses become erratic and jumpy, causing the same behaviour in the muscles.

    When the central nervous system lacks magnesium, the sympathetic activity of the autonomic nervous system is increased. This includes the fight or flight response, our hardwired mechanism for coping with stress. When our stress response is activated the body requires more magnesium, essential for detoxifying the steroid hormones our adrenals produce. The downward spiral of magnesium deficiency created by this extra demand can impact on our functioning in a number of ways. Restlessness, irritability, mood swings, poor appetite, high blood pressure, insomnia, poor memory and concentration, fatigue, anxiety and panic attacks, even seizures can result. Hyperactivity and a short attention span in children can be due to low magnesium.

    Magnesium deficiency in smooth muscle contraction causes constipation, menstrual pain, photophobia, difficulty swallowing and noise sensitivity – all seemingly unrelated but traceable to the same problem.

    Low magnesium in cardiac muscle can upset normal heart metabolism and may increase the risk of congestive heart failure.

    Only one per cent of our magnesium is found in the blood, so a deficiency is unlikely to show up in the standard blood serum test (Measuring either intracellular magnesium or free ionic cellular magnesium are the only accurate lab tests for magnesium deficiency).

    What health conditions are associated with low magnesium levels?

    Several factors involved in insulin production, carbohydrate and fat metabolism are affected by magnesium deficiency. These can eventually manifest in debilitating conditions such as diabetes, abdominal obesity, hypertension, cardiac dysrhythmia and cardiovascular disease. There is also a specific connection between magnesium deficiency and mitral valve malfunction.

    Asthma, migraine onset, fibromyalgia, chronic fatigue, depression, anorexia, allergies and chemical sensitivities, attention deficit disorders (ADD/ADHD), hearing loss, some eye disorders, tempero mandibular joint dysfunction (TMJ), sudden infant death syndrome (SIDS), premature ejaculation and scar formation are all conditions linked to magnesium deficiency by various research studies.(blog.healthpost.co.nz)

  8. John January 11, 2017 at 2:54 am Reply

    Has anyone here taken Flagyl? I have mostly recovered from my Cipro reaction but the initial reason why I took the Cipro in the first place has returned. I refuse to take Cipro again but apparently Flagyl is more effective for my condition. I fear I will have the same reaction. Has anyone taken this drug?

    • Debs January 11, 2017 at 3:29 am Reply

      IMHO, this one is best avoided if possible, although of course sometimes we do have little/ no choice re antibiotic depending on what bacterial strain is involved. & just have to take our chances.
      All allopathic drugs of course have a toxic profile & can potentially cause problems & we are of course all different insofar as to what we can or cannot tolerate re allopathic drugs, however this one also has a serious toxic profile, particularly in the neurotoxicity dept so, IF you can find another alternative to FLAGYL ( & Please make sure you know exactly what bacterial strain is involved here, as the culture will list ALL alternative antibiotics the bacterial strain is susceptible to, & I suggest to also make sure ALL alternative options have been investigated for your particular issue ) I would personally recommend you avoid FLAGYL IF you can do so .

    • Ann January 11, 2017 at 8:46 am Reply

      Hi John
      Dont take flagyl. I have been so damaged by flagyl, 15 months ago. I have The exactly same damage and symptoms like They Who took Fqs. its neurotoxic to The brain. I have talked to so many People Who also took flagyl and they are damaged to. You can see on askapatient what People have written about flagyl. Off course you do what you want too, but i have to warn you, because flagyl destroyed my life.

    • L January 11, 2017 at 10:44 am Reply

      John, I have not taken Flagyl but several people who have posted on this site have, and have ended up with side effects similar to those of Cipro. I would avoid it if possible. I really suggest you find an integrative MD or Naturopath.

    • Ryan L January 11, 2017 at 12:48 pm Reply

      Hey John,

      I’ve shared this before, but the “The 7 Most Prescribed Drugs In The World And Their Natural Counterparts” states that natural forms of antibiotics include: Sunlight (vit D), garlic, coconut oil, turmeric, foods high in nicotinamide (vit B3) such as salmon, sardines and nuts. Also manuka honey, olive leaf extract, green tea, pau D’Arco, rose water, myrrh, grapeseed extract, golden seal, oregon grapes, oregano oil, andrographis paniculata, and probiotics.

      Another site I looked at today suggested the following as natural treatments for Flagyl: Garlic, Echinacea, Goldenseal, Barberry, and Tea tree oil

      As always, do your research before beginning any natural treatment to make sure you know what to expect.

  9. Debs January 11, 2017 at 3:30 am Reply
  10. Debs January 11, 2017 at 3:36 am Reply

    Here you can find a list of numerous antibiotics If you know the bacterial strain involved in your condition it would be very helpful towards seeking out another alternative to Flagyl if there is one available .

    https://www.drugs.com/article/antibiotics.html

  11. No cipro January 11, 2017 at 9:26 am Reply

    Suggestions please!!! Dr prescribed me flagyl for a mild bacterial v and I’m afraid to take it!!! Any other remedies that you may know?

    • Debs January 11, 2017 at 1:42 pm Reply

      it depends on the infection & bacterial strain when it comes to antibiotics, in regards to UTIs these can often be treated naturally. I would strongly recommend getting a culture carried out when we have UTI symptoms, & particularly important if these symptoms keep recurring because we can often develop conditions which MIMIC UTIS & they mimic them very well indeed. this can even include blood in the urine, & white cells being present. Despite this & all the symptoms pointing to a UTI , on culture we can find we actually have no infection These various conditions include IC ( interstitial cystitis ) & neurological issues with bladder function/ related to the urinary system, i.e. neuropathic bladder

      Floxing can damage the nerves relating to bladder function & cause the wrong signals to be sent i.e. signals which indicate a full bladder when we do not actually have one, it can affect the ability to hold urine resulting in urgency, frequency, various problems with micturition & also in regards to functioning of the bladder ( detrusor ) muscle affect the contraction, one result of this problem can potentially be retention of urine .

      We can also develop something which can best be described as Diabetes inspidus , ( this is not your usual diabetes )but caused by the kidneys inability to conserve water which leads to frequent urination & pronounced thirst, it is connected to filtering of blood via the kidneys
      This link is useful for natural alternatives to antibiotics, the comments also have some very good suggestions .

      https://kresserinstitute.com/%EF%BF%BCtreat-prevent-utis-without-drugs/

  12. joanneg January 11, 2017 at 11:39 am Reply

    John,

    I don’t know what know what kind of bacteria or infection you’re dealing with, but since being floxed I’ve used Olive Leaf Extract, and it worked great. I even wound up with the same infection that caused me to have to take cipro, and it took it straight away in about 3 days when not even cipro would kill it.

    No Cipro,

    Olive Leaf Extract is also an antiviral. I used it while floxed for shingles, and it killed it quick.

    • L January 11, 2017 at 12:17 pm Reply

      Like Joanneg I would also suggest nonchemical alernatives. Another good one is oil of oregano.

      • Ann January 11, 2017 at 12:43 pm Reply

        L
        I have bought oil of oregano in a bottle . But how should it be taken?

  13. Ann January 11, 2017 at 12:27 pm Reply

    Have any body Heard off eeg off The brain, or have any body did that test? its a test that measure The brains electrical signals. My doctor told me about that test today. Im going to have another mri off The brain Again. And then she said, that if that shows nothing, she thought about that eeg test off The brain. have anybody had that test?

  14. John January 12, 2017 at 2:33 am Reply

    Thank you for the feedback, everyone. I suffer from a condition called epididymitis. It is basically an inflammation of the back part of the testicle that causes pain/discomfort 24 hours a day. Most doctors are not only clueless but also lazy when it comes to treatment. I came down with this a year ago after sleeping with the girl I was seeing at the time. I was seen by a “doctor” who was no older than 25 who threw Cipro at me without doing any kind of tests. After 10 days of Cipro, I had slight relief and had minor side effects from the drug but didn’t put 2 and 2 together that the Cipro was the cause of the slight tingling I felt in my leg. I figured this was from the epididymitis spreading as this condition can effect the nerves as well. I went back for a refill as I thought I simply needed more drugs. After a few pills of the second course was when my full fledged Cipro reaction kicked in. My epididymitis temporarily was cleared up due to my body being flooded with Cipro poison but that was the least of my concerns. 7, 8 months of hell ensued in which I lost my job, girlfriend, my ability to be happy, and thousands of dollars. From March – November I had all the symptoms in the book but have largely recovered since and I am thankful for that as I know many others have not been as lucky. I contribute a lot of my recovery to glutathione IV’s and supplementation…mainly 50 billion+ probiotics and heavy Methylcobalamin B12 supplementation. This helped me recover from the nerve damage and mental issues.

    I began seeing a new girl in November and after being intimate, my epididymitis returned with a vengeance so now I am back to square one. Pain/discomfort all day, every day. Very frustrating. I feel defeated. I know that the only way to eradicate this is to practically poison yourself half to death with heavy antibiotics as standard antibiotics are not strong enough to penetrate to the testes. The urologist I went to a month ago shrugged his shoulders at me and told me it wasn’t a big deal and prescribed me a worthless antibiotic that did nothing. He even told me it was “non bacterial prostatitis” which is complete nonsense because it came immediately after sleeping with a girl. The research I have done suggests it is unquestionably bacterial and standard antibiotics simply cannot penetrate the area. I asked if it were “non bacterial” then why is he prescribing me an antibiotic? He didn’t have a clear answer and it seemed he was just trying to shove me out of the office. Amazing how a few hours of research and you can know more than these “professionals.” This entire experience has left me completely disillusioned with our health care system. It seems that if you aren’t dying or have a condition that results in forking over thousands to them, they couldn’t care less.

    I have tried all the natural alternatives including every antioxidant and natural antibacterial in the book but have had little success. I am debating whether or not to ask my doctor for Flagyl as I have read many reviews that this drug has worked for many people as it kills anaerobic bacteria. I fear that I may experience from the same reaction again, however. It is a tough decision to make.

    Has anyone heard of Tindazole? I have read that this is a safer and possibly more effective version of Flagyl. I plan on giving myself another month or two of trying heavy natural supplementation before I try one of these drugs. I have a desk job and sitting down all day with epididymitis is enough to drive a person insane. I am definitely reaching my limit. That being said, this pain is nothing compared to being floxed. I have a new job and cannot afford to lose it due to another antibiotic reaction. Not sure where to go from here. Thanks again to everyone for the recommendations and a special thanks to Lisa for giving us this platform for discussion. Thank you all for listening.

    • L January 12, 2017 at 10:16 am Reply

      John, most of us here are disillusioned with western medicine. After the terror I went through, I am also frightened by it. Again I would urge you to seek out an integrative MD or an ND. I had so many doctors say the ONLY way to get rid of a UTI was with antibiotics (that’s all they know) but I did indeed get rid of it with a protocol from a naturopath. I recenlty found a new doctor (MD) who is integrative, and while he does have phamaceuticals at his disposal, he will always opt for natural treatments first.

    • Bob January 12, 2017 at 10:19 am Reply

      My story is similar to yours. I thought I could not stand the pain of epiditamitis but that was nothing compared to the cipro. The cipro did not help the condition at all. Eventually it went away but comes back if I have sex. Personally I don’t know if I could tolerate any antibiotic now. I am in a terrible relapse due to oral surgery and I didn’t even take any antibiotic. I think I would try something like ozone therapy or ultraviolet blood irradiation. Both kill bacteria systemically. I would be very wary of the antibiotics. The UBI as well as the ozone can be very effective for many conditions.

      • SM January 21, 2017 at 1:26 pm Reply

        Bob- I assume you had anesthesia? I think many floxies react to that. I’m not sure what I’ll do when I have to make that decision. So sorry to hear.

        • Bob January 21, 2017 at 3:47 pm

          Yes I did,. First a root canal and later had the tooth extracted. I think the anesthesia was the main culprit. This relapse has gone on for 5 months. Supplements are not helping at all. Don’t know what to do I can hardly get out of bed.

        • L January 21, 2017 at 4:04 pm

          sorry to hear. I had dental anesthetic and did ok (and I had been SEVERELY floxed) but I saw an holistic dds, and she used either septocaine and carbocaine, and I had no problem with it. It’s kind of a crap shoot for all of us now, but next time I would try one of those. (Your regular DDS may not have them, but you could try to find a Huggins trained dds. Mine was only marginally more expensive than the dds I had been seeing. They don’t use fluoride (if could have been that that you reacted to as well) and they use safer methods and materials.

          https://www.hugginsappliedhealing.com/find-dentist.php

        • Susan January 21, 2017 at 10:50 pm

          People with the MTHFR mutants don’t do well with laughing gas; it can be dangerous for them.

      • Anna February 5, 2017 at 7:22 am Reply

        Bob, do you know which oral anesthetic were you given in both procedures? Some people react badly to the epinephrine, others do fine with it.

        • Bob February 5, 2017 at 9:11 am

          No I don’t. My wife keeps bugging me to get the records and find out. I think I will do that so it doesn’t happen again. I will post it when I find out.

    • Daniel Lavoie January 12, 2017 at 6:17 pm Reply

      I’v kicked mild cases of epididymitis by applying the topical antibiotic ‘fucidic acid’ to the area.

      It is available under the brand name Fucidin.

      It has great skin penetration, so if you put it in the right spot, it should also get inside to help kill the bacteria.

      This combined with d-Mannose got rid of it for me, for good. Also you might consider boosting your immune system with Immune tree Colostrum and possibly Lauricidin.

      Careful with the last two. Start slow because they can cause Herxheimer reactions.

      • John January 13, 2017 at 12:59 am Reply

        Thanks again, everyone…Daniel, did that topical antibiotic really work? How long before you saw results? Also, where did you get it from? Is it sold in stores?

        • Daniel Lavoie January 13, 2017 at 6:17 am

          In Canada it is by prescription only 🙂 It is likely the case in the US as well.

          If you have a Doctor who is willing to try things, and I know that is a big if, I’m sure you can get a script. Otherwise tell them you keep getting cuts and are worried about cellulitis (infection of the fat layer under the skin) because your friend had it and want some on hand maybe? (That would be a more on label use of this antibiotic cream)

          I know it can be annoying to have to cajole prescriptions out of doctors.

          It took about 2 weeks along with colostrum to break the back of the infection. After that had some minor flare ups, but managed to shut them down in a day or two with the same method.

          Now having said all of that, pain sensitization can be a real issue with infections like this (google ‘interstitial cystitis’ for an example of a similar condition). I noticed that tightness of the muscles in my pelvic floor, or even muscles way up in my back can refer a surprisingly acute pain to my perineum, for example. (google ‘proctalgia fugax’)

          For a few months after, stress would cause the symptoms to flare up, but I believe there was no underlying infection. They say that ‘neurons that fire together, wire together’, so after experiencing pain in a particular spot for a long time, the nerves that signal that pain to the brain get upgraded from a two lane road to a superhighway.

          This makes them more effective at signalling pain from that area, which can leave you stabbing at ghosts.

          I say this, because I’ve learned that it can be hard to interpret pain in that area, and that it can be caused by factors that might seem totally unrelated.

          Good luck.

  15. joanneg January 12, 2017 at 8:49 pm Reply

    For those considering LDN, here’s a comment from a 60 year old women who was cipro poisoned and was helped by Low Dose Naltrexone http://patient.info/forums/discuss/arms-feeling-heavy-and-dead-404457?page=0#2300090

  16. Lwd January 13, 2017 at 9:38 am Reply

    Hello
    I have a question about feelings I get at random times. I get sensations of jitters, sliding or moving when I’m not moving. I’m in a relapse situation and I didn’t have these sensations with my initial floxing. I’m looking for suggestions on how I can try to help my body recover from this.

    • Lisa January 14, 2017 at 10:25 am Reply

      Hi Lwd,

      Here are a few suggestions:

      1. Magnesium supplementation – either oral or topical (or both)
      2. Meditate or do another activity that calms you and reduces adrenaline
      3. Eliminate caffeine
      4. Cut down on sugar
      5. L-Theanine supplementation has helped some people with the feeling of the jitters
      6. Kava may help – but please note that it should only be used for a short period of time and that it can be hard on the liver.

      Regards,
      Lisa

      • Lwd January 14, 2017 at 6:44 pm Reply

        Thank you Lisa

  17. joanneg January 14, 2017 at 10:01 am Reply

    I wanted to post again about the Omega Patch because it is helping with all my brain issues so much!!!

    I no longer deal with about 95% of the dizziness, shaking, vibrating, manic brain issues that have been with me since June 2014. There is still a very tiny bit of it, but a lot of times it’s not there at all. I can’t express how much this is helping.

    There have been other supplements that have helped with the intensity, mainly magnesium and colostrum, but neither were as good or as continuous as this patch. Also, I’ve tried omega pills which were very expensive, supposedly very good quality, and they didn’t help me at all. So I don’t know why these patches help so much, but they do.

    So please, if you haven’t tried them, I’m almost begging for you to at least try them to see if they will help you too. My brain issues were the hardest of all my symptoms to deal with because I couldn’t think, remember things, or function properly.

    Here is the site http://www.patchmd.com/ so you can see what’s in the patch, and order it if you want, but I get mine from ebay because they’re 15.00 and free shipping instead of 20.00 plus shipping.

    • L January 14, 2017 at 10:04 am Reply

      That’s wonderful news joanneg!

    • Lisa January 14, 2017 at 10:26 am Reply

      That’s wonderful news! Thank you so much for sharing!

    • joanneg January 14, 2017 at 1:13 pm Reply

      Thanks Linda and Lisa,

      You know, we try all kinds of different supplements trying to get some kind of relief from this nightmare, so when I find something that helps really good and that lasts I try to post it, because I know how desperate I have gotten for anything to help ease our suffering.

      I hope those who try it get the same extremely wonderful relief that I did.

  18. Ann January 15, 2017 at 9:38 am Reply

    All The muscles waisting away in the body. Is that permanent? Or can it Come back? Very worried. And has anybody had extreme problems with a hard time to swallow and extreme difficulty breathing?

    • L January 15, 2017 at 11:17 am Reply

      Hi Ann, yes I had extreme breathing difficulty. I was literally gasping for breath every minute of the day for months. It was nightmarish. A researcher told me he suspected mitochondrial damage to the heart muscle. (Another suggested nerve damage to the autonomic nervous system.) I eventually got mostly back to normal (still have ocassional glitches) through my IVs and also supplementation with those things that help mitochondria, like alpha lipoic acid, NAC, and others. There are actual formulas that combine all of them, like one by KPAX.

      • Ann January 15, 2017 at 11:59 am Reply

        Hi L
        Its really a nightmare. Im scared to die from this. Like you… I have to gasp for air. Like i cant breath, and like my body has forgotten how to breath. Im scared to death. I wake up in the middle off The night, when i have to litterally think off every breath i take. Its horrible! and i cant swallow. like my body have forgotten how to swallow to, it makes popping sounds in my whole body, and even in my throath ….I dont know what to do anymore. Going to The hospital.. Well.. I know they would only look at me like im crazy. L, did you also woke up in the middle off The night with this? I have to fight to breath every minute off The day. But in The night its really scary.
        For me i think its autonomic neuropathy /dysfunction or dysautonomia. Because i also have problems with extreme high heart rate when i stand and also my blood pressure, my body cant control it anymore.
        I dont know what to do. And all my muscles is just waisting away..
        We dont have ivs here. But im going to try ala Again… Taking other supplements, but nothing seems to make any difference.

        • L Livingston January 15, 2017 at 12:11 pm

          A few nights I literally jerked up in bed, thinking i was choking, because in addition to gasping for breath, I also have issues around the neck that at times feels numbs and at other times like I am being strangled. (Between the two, I WANTED to die.) But for most of that time I just didn’t sleep. Even with a sleeping pill, in the first couple months, I was lucky to get one or 2 hours a night.

          Yes, I would encourage you to go back on ALA. Also add in CoQ10, acetyl l-carnitine and NAC. I know you are in Sweden, right? Still I think you could probably mail order a mitochondrial supplement. Life Extensions makes one as well as KPAX. Even if you can’t get IVs, do you at least have naturopathic or integrative doctors (ones that will focus more on non-chemical treatments)? Perhaps you could get a referral from here: http://www.swedish.org/for-health-professionals/graduate-medical-education/swedish-sponsored-fellowship-programs/integrative-medicine

        • Ann January 15, 2017 at 1:19 pm

          L
          Thats horrible that you went through this. I feel like im going to die from this. It feels like a slowly death… Im scared for my life.
          Okay so you felt numb in your neck, i feel that to. But i also feel numb in the throath and even feel it in my lungs, my back, head, face, legs, arms, feet and every where.
          I dont sleep Well either because off this. I wake up gasping for air and The feeling that my body is shutting down and that my body cant breath. Yesterday i had to lay over The side off The bed to even get any air at all. It took an hour for it to calm some down. But i allways have to fight to breath, every minute off The day .
          Im taking q10 right now. But i Will take ala Again, last time my stomach could not take it. But i Will try Again. This is horrific…
          Im seeing a naturopath over here. He started with gluthation (not ivs) and some herbs for me to take. I also take d-ribose and colostrum, a small dose magnesium but i seem to react badly to magnesium, so i try to eat alot with magnesium instead.I also take d vitamin.
          When you had this severe breathing problems, did you also had pain in the lungs?

        • L January 15, 2017 at 1:29 pm

          I had terrible pressing chest pain, what I imagine a heart attack might feel like. Again, I think it is from mitochondrial damage. The crushing pain left sooner than the breathing problems. I also have asthma (the breathing problem was not that —it felt different, I still had normal readouts for my peak flow) But I was terrified—what if I had an asthma attack, on TOP of this other breathing problem? Yet, all asthma meds (preventative) have both fluoride and steroids in them. My ND gave me H2O2 IVs and I was able to get off my asthma meds. You might want to suggest to your ND that it is a strong possibility your issues are related to mitochondrial damage and ask what he suggests for that.

        • Ann January 15, 2017 at 2:51 pm

          Ohhh The chest pain i also have. It feels like a pressure and pain. But i also have tingling and numbness in the chest. But i have it in the whole body. Awful neuropathy.
          Maybe it is like you say… Mitochondria damage. I hope it can get better… Because living like this. I dont want to even think about that.
          Thats good that you could stop with The astma meds. That you had this horrible breathing problems and The astma…. Horrible!.
          I just wished we had ivs here. I think that could be good for me. Then i would try ozone teraphy.
          Im so scared to go to bed because off this Hard breathing nightmare. Many say to me ” take Deep breaths, then it gets better ” but no…it makes it even harder to breathe.

        • L January 15, 2017 at 3:06 pm

          NO—no one who has not experienced this has a clue. They think it is anxiety (which is what deep breathing would help.) I was googling and found this “After first being used in Sweden in the 1920’s, ozone therapy is widely used around the world…” Seems strange you can no longer get it there. Do you have hyperbaric oxygen there? (I couldn’t do because of claustrophobia, but it was also something suggested to me by several health care practitioners.) Ok, found this. Under Sweden there is an email (for hyperbaric) http://www.londondivingchamber.co.uk/index.php?id=contact&page=11&region=5&country=58

        • Ann January 16, 2017 at 2:20 am

          L
          Well thats what they tell us all..anxiethy. Well i have had that my whole life, but i have never had anything like this before i took flagyl
          I think that we had ozone teraphy here before, but not now, i have tried to find on Google, talked to my naturopath, but no…we dont have it here. My naturopath is working together with another naturopath in poland. He do ivs. But i could never travel there. I can hardly walk from my bed to my Bathroom.
          The hyperbaric oxygen Chamber. They only have that for People that have been in a diving accident
          Thanks
          I Will look at that link you send to me. Im also claustrofobic.

        • Ann January 16, 2017 at 2:21 am

          L
          That seems to be in London

    • Susan January 15, 2017 at 3:23 pm Reply

      I do have have problems with my breathing stopping momentarily at night when I am asleep. It is a gross feeling. Sometimes I am laying on my stomach too. Don’t know if it is related to the levaquin or anxiety. Some times too when I swallow the food gets caught in my throat and it moves painfully very slowly until it hits my stomach.

      • Ann January 16, 2017 at 2:25 am Reply

        Hi susan
        Do you have The breathing stops only during The night?
        I have it 24/7, i have to fight to breath… Im so scared
        Okay so you have this swallow problem too. It horrible. I have to fight even to swallow water. I dont know what to do anymore

        • Susan January 21, 2017 at 2:22 pm

          Ann,
          So sorry you are having so much suffering. Try and see if you can do things to reduce anxiety as it may help. Magnesium/calcium is helpful for anxiety and sometimes the spasms in the esophagus and tubes leading to lungs which can cause problems swallowing and obstruct breathing. I have taken to taking my magnesium rectally. I know it sounds strange, but it works very well. Here is the website; you do not want to over-doze so read carefully. http://drmyhill.co.uk/wiki/Magnesium_Per_Rectum. To make things a little simpler I do the following: I take 3/4 teaspoon of Epson Salts with 3 to 4 teaspoons of filtered water. Heat it for about 15 seconds in microwave and stir until dissolved. Cool to just warm as you DO NOT want to burn your rectum! Buy a 10 ml syringe (may have to buy it on line). Suck up the mixture, lay on side (towel underneath). Use it like you are doing an enema. Squirt it into your rectum and hold about 7 minutes but no longer as it can be a little irritating to the membranes. Expel into toilet. Don’t do this just before you go out anywhere as you may have to sit on the toilet a second time within the hour. No more than once a day. If you want to get started right away you can buy a 5 ml syringe in the drugstore and just suck up solution and squirt in in twice. Good luck and let us all know if it helps please.

        • Susan January 21, 2017 at 2:26 pm

          Ann also you want to make sure you have a balance of calcium and magnesium as one may deplete the other. Lack of calcium can cause spasms as well. You may want to have your doctor check both of your levels before hand taking the magnesium to be on the safe side. Good Luck.

    • Kurt January 15, 2017 at 4:30 pm Reply

      I’m praying for you Ann, and sending good thoughts your way! Hopefully we will ALL see some improvement in 2017. Take Care….

      • Ann January 16, 2017 at 2:27 am Reply

        Thanks Kurt
        I really needed that. I really hope to, that we all see improvments. Im scared to be living like this. Only gets worse
        Take care you to

  19. Amy January 16, 2017 at 5:57 am Reply

    I read alot of people saying ibuprofen and/or tylenol trigger symptoms. I only noticed after taking tylenol for a headache that the next day I had a few hours of feeling shaky, weak & just weird all over. I’m 9 months out from Levaquin & I literally take no other meds. Could tylenol have affected me the entire next day after taking it? I wonder if it was coincidence- but it was such a weird experience & wonder others thoughts…

    • Bob January 16, 2017 at 5:52 pm Reply

      Tylenol interfere with the activity of glutathione in the liver which impedes detoxing.

      • Amy January 17, 2017 at 7:31 am Reply

        Bob,

        Thanks for response. I’m having what I call an “episode” which started after the meds last year. Weak, aches, etc. My CBC came back totally normal today & only other thing different was a 500 mg. of Tylenol that I took. I can’t ever figure out the triggers for my episodes & when you don’t feel good with normal tests- people stop believing you 😦

  20. Ann January 16, 2017 at 9:54 am Reply

    I have a friend that also got hurt from flagyl. She is doing a mri, with contrast. Is it safe to take a mri with contrast? Have some one heard that the contrast can be neurotoxic to?

  21. Mark S January 16, 2017 at 10:03 am Reply

    I never thought my left Achilles tendon would recover. 18 months later and it feels like it largely has if not all the way. Happy. I think manganese has really helped it get to this level. Probably MSM too. Honestly who knows for sure. Just glad to see improvement.

    • joanneg January 16, 2017 at 12:24 pm Reply

      That’s GREAT news Mark!! I pray it continues to improve 🙂

  22. Faisal January 16, 2017 at 6:47 pm Reply

    All all.

    Now one year and 2 month from floxed just one pill of avalox Heart palpitations still it will last forever? I was very athletic I’m sad I can not go up the stairs, I am now 29 years old and I feel that I am 80. What happened to us darn! Just one tablet of medicine changed the course of my life and I feel symptoms of neurological different but more cheesed tired heart palpitations continuously Largo healing for all and I hope to someday find a cure for a final nightmare in which we live Thanks to all

    • L January 16, 2017 at 7:20 pm Reply

      Faisal, I am so sorry. It is just so wrong how many people have been damaged. I would urge you, if you haven’t already, to find a naturopathic doctor or an integrative doctor, especially one who is familiar with fluoroquinolone toxicity. I am afraid seeing allopathic/western doctors will not get you in the right direction. Where do you live, generally speaking…

      • Faisal January 17, 2017 at 6:24 am Reply

        I live in one of the Arab states (Jordan) and no one believed me

        • Kurt January 17, 2017 at 6:36 pm

          Hello Faisal,
          Very sorry to hear. I’ll be thinking about you and praying for a recovery in 2017.

        • Faisal January 17, 2017 at 8:53 pm

          I thank you and I wish everyone a recovery from this hell

        • L January 17, 2017 at 9:10 pm

          and I wish the same for you Faisal!

        • Madge hirsch January 18, 2017 at 10:58 am

          That’s one of the tough things with this poison -getting believed by the doctors. If it is any consolation I am 1year and 5 months out from my last ( also only one) pill of Cipro and I am only just starting to see signs of getting a bit better. My relapses are lasting less time and are less severe. At the moment am suffering some stress due to a death in the family and I am hoping it will not bring about full blown relapse. Hang in there . I have had arrhythmia too but it’s mainly gone now. Are you taking magnesium?

        • Faisal January 18, 2017 at 9:15 pm

          Yes, I am taking of magnesium but a few 100mg every day and Vitamin C 1000

          I dont now its low of mag ?? Just 100mg every dam

        • L January 18, 2017 at 9:41 pm

          I would up the mag to 400-800 a day. (If you avoid citrate, less chance of diarrhea) Also, there is a good chance your D is low…might want to test for that

        • Faisal January 19, 2017 at 6:09 pm

          Its ok if i take 400 every day ? I will try and inform you

        • L January 19, 2017 at 8:58 pm

          I was taking 800 a day for almost a year.

        • Faisal January 21, 2017 at 8:08 pm

          Hello L I bought today magnesium ( oxide, gluconate, lactate ) 250 company Jamieson Is this a good thing?

        • L January 21, 2017 at 8:48 pm

          Hi Faisal…not familiar with Jamieson brand, but oxide is one of the least effective. Here is a good post that shows the different forms and their effectiveness (orotate is a good one if you can find it.) http://www.globalhealingcenter.com/natural-health/types-of-magnesium/

  23. Barbara Arnold January 17, 2017 at 2:12 am Reply

    I have developed a hard knott on the back of each achilles. This has only happened in the last month or so. Anyone else got this ? I am 27 months in.

    • Madge hirsch January 17, 2017 at 6:06 pm Reply

      I had Achilles tendon problems years ago which I suspect now were due to a previous floxing.. I developed a lump on the right hand side. I never had a rupture and eventually the lump went away. I have a very small lump on my left inner wrist but I have no pain in the tendon there.

      • L January 17, 2017 at 6:47 pm Reply

        Madge—I ALSO have a lump on my inner left wrist! In fact, after the numb fingers and blurred vision, which I attributed to “sleeping weird” and pinching a nerve, it was the swollen wrist that finally got me on my hunt to discover fluoroquinolone toxicity. It was like golf ball sized and surrounded by a huge bruise—and I just woke up like that. it is now more than two years later, and there is still a small swelling…

        • Bob January 17, 2017 at 7:27 pm

          I just found a treatment that might have have incredible healing potential. It’s called the BX protocol. The problem is that it costs $17,000.00 up front for one year of treatment. The name of the company is Delta if someone wants to research it. I just saw a YouTube video about a man with COPD on oxygen who couldn’t walk to his mailbox who was essentially cured in less than a year with a monthly treatment.

        • L January 17, 2017 at 7:39 pm

          wow.stem cells don’t even cost that much, and that is also a great treatment if you can find it/afford it

        • L January 17, 2017 at 7:41 pm

          just noticed they also list hyperbaric and ozone. I have been told hyperbaric would greatly help to mitochondrial damage…wish I wasn’t so claustrophobic!

        • Bob January 17, 2017 at 8:19 pm

          I had hyperbaric. It’s no big deal. It’s actually very relaxing. They can get you out pretty fast if you panic.

        • L January 17, 2017 at 8:50 pm

          yeah, I can’t even imagine getting IN. (Have to take xanax to fly….) something I should work on because my new integrative MD really wants me to do it for my mitochondrial damage…but thanks for the reassurance Bob!

        • Madge hirsch January 18, 2017 at 10:32 am

          Snap for the numb fingers and blurred vision. My blurred vision is always worst in the morning and I often wake with one or both hands completely numb. I also developed a vitreous detatchment in my right eye this year so have black blobs and a wiggly tree branch there.

        • L January 18, 2017 at 11:17 am

          Yeah, my vision was so bad at one stage I couldn’t see a TV three free away. Scary. The floaters at times were so huge and thick that it was like looking through gauze, and so many black specks that walls and floors would literally look like they were covered with them. One thing that has helped some is an eye drop called Vision Clarity. (They are supposed to help with cataracts and it was suggested they might also help with floaters.) It’s a hassle because you have to use them four times a day, for months and months (they say best results after around a year, although you will see some changes before then.) I am on month 10 and there is a definite improvement although they are not gone. I also still get the ocassional black spots too, and was told I have early stage macular degeneration, which really pisses me off (and has been linked to FLQs.)

      • Barbara Arnold January 17, 2017 at 10:32 pm Reply

        Hey Madge,
        Thanks for answering. This poison never stops giving does it. I have the biggest lump on my right achilles the same leg that I had a ruptured tendon. The left lump is not as big. I have also developed arrythmia and am waiting to see a cardiologist next month. I think the worst thing for me is that I thought I was really getting better and just when your not looking something else happens. I also have been crying a lot which is not like me. If I was to analise it, I would say I must be depressed mainly because my hopes keep getting dashed. I hate posting like this but it’s really my only outlet, apart from my husband who’s been great, but I don’t want him to know how depressed I feel.

        • Madge hirsch January 18, 2017 at 10:48 am

          I had arrhythmia after my last pill of Cipro – I ended up being taken to hospital in an ambulance and spending 3 days in cardiac intensive care. Totally OTT but that’s France! They said it was cos my TSH was too low and I had gone into a fib but I know it was the Cipro that triggered it as my TSH had been like that for years and the only other time I had had a heartrate that high was with the Cipro the time before. I was on Bisoprolol and a blood thinner for a few months but after a holter monitor test my own cardiologist said I could stop the Préviscan and wean off the Bisoprolol. I felt like death on the Biso and had to reduce the dose to an absolute minimum. But I suspect it was because after the floxing my liver just was not metabolising it correctly at the higher dose leading to a toxic buildup.
          The real bummer is that I have had to reduce my thyroid meds and abandon the T3 component as I think the latest floxing could have made me less tolerant and I don’t want to risk another bout of a fib. I think a previous floxing (or two!!!) in the 90 s buggered up my thyroid and it was getting the combo treatment that helped me feel well again. So doubly done down by this poison.

        • Susan January 21, 2017 at 2:01 pm

          James, I am an educator also. I had to climb several stair cases several times once and my left knee has not been the same since. Pulled something underneath the knee, on left, which is causing me to gimp around for three months.It was getting better so I started to exercise again and now it is worse then ever. Doctor on Monday. Don’t know how I am ever going to get it healed up as I have 20 steps to go up to my apartment as well as having to walk around at length in schools. I know your frustration. I want to scream. I get injured so easily! I pulled the meniscus to the right of the same knee just throwing a first baskets at P.E. That took three months to heal. I have started to look for another kind of job where there are no stairs and physical risk; no luck yet. I am wearing one of those elastic supports around my knee and that seems to help the discomfort. I took levaquin six and a half years ago but I am also 61 next week; so healing may not happen for me. I wish I could make the manufacturers of these drugs suffer the way we have been forced to on a daily basis.

          Thanks L for the information.

        • Susan January 21, 2017 at 2:06 pm

          Madge/Barbara- I had a retina tear a year and a half ago and I know the Levaquin caused it. Lost three weeks wages because I couldn’t work. This drug never stops damaging me ever!

  24. Patricia Lawler January 20, 2017 at 11:35 am Reply

    Hello, I stumbled across this site while searching for an answer to my symptoms. I’m a 45 year old female and this is mu story.I was diagnosed with an UTI in September of 2016 and put on Cipro. In October I went to the Emergency Room with the worst headache I’ve ever had, after a ct scan I was told I had mastoiditis and perscribed Cipro again. As I was not getting any better and had a whole other list of symptoms I saw my family physician who also perscribed another round of Cipro. I’m absolutely certain I have been floxed. I have so many horrible symptoms and I’m scared to death. I’m looking for help as to what I can do. Any advice will be greatly appreciated as I can’t live like this anymore.

    • joanneg January 20, 2017 at 12:41 pm Reply

      Hi Patricia,

      Sure sounds like you were floxed.

      I would start taking

      Magnesium; I take between 600-900 mg of magnesium chloride, glycinate or the best is magnesium oil you spray on your skin (it absorbs best) and take epsom salt baths or soak your feet in it daily

      Probiotics: I take VSL#3

      Colostrum: I use Immune Tree 6 or Sovereign Labs

      Omega patch (by patchmd.com) has helped me tremendously with all the brain issues I had

      I have taken many supplements since being floxed, and these are the ones that helped me the most. Fluoroquinolones chelate magnesium from your body, destroy your stomach lining, and cause chronic inflammation and oxidative stress among a lot of other things. And these supplements will address those issues. But you’ll find everyone is different and what helps some makes others worse.

      This site has a lot of good information and a lot of stories of recovery that can help you through this. I pray you find your healing.

    • Lisa January 20, 2017 at 2:29 pm Reply

      Hi Patricia,

      I’m so sorry for everything you’re going through! The pain, and all of the other horrible symptoms, are awful, and my heart aches for you! Please know that you are not alone. This is a lovely community of people who you can lean on for support.

      Here is some additional advice. I hope it helps! https://floxiehope.com/2015/10/12/im-floxed-now-what/

      Hugs,
      Lisa

    • Kurt January 20, 2017 at 6:13 pm Reply

      Very sorry to hear of your situation, Patricia. Sounds like you’ve been floxed like the rest of us here. What are your symptoms?

    • L January 21, 2017 at 8:52 pm Reply

      and shame on the prescriber/. the FDA FINALLY—and ONLY because of an outcry, came out with a warning in June of July of last year saying they should NOT be used for UTIs!!! (that’s what I got it for…lost a year of my life to terrifying, suffocating, mental and physical side effects, lost m saving, have permanent nerve and vision damage—all for a urinary tract infection!

      • Bob January 22, 2017 at 3:01 pm Reply

        Find a lawyer to and sue. With the new FDA warnings you may have a case. Suing the prescribing doctors is the only way to stop them.

        • Stephanie January 22, 2017 at 3:29 pm

          I’ve tried 3 different law firms no one will take the case. It’s not that easy to get a law firm to fight against the drug companies. There are a lot that say they will help but don’t take the case and never tell you why

        • L January 22, 2017 at 3:43 pm

          I agree. And please be aware there is a statue of limitations. If you don’t file within that time you cannot sue. It varies from state to state.

  25. James Stamboni January 21, 2017 at 3:34 am Reply

    Having tendon problems in both knees, hamstrings and patella. There is on occasion pain, but mostly it’s just weakness and susceptibility to injury, to the point where I can barely walk on a linoleum floor. Most of these injuries resolve within about two weeks, but I find myself re-injured doing normal daily activities like reaching for something on a shelf or pacing back and forth. This has been going on for three months now, since two days after taking one 750mg levofloxacin pill. I’m a 29 year old high school art teacher, my job requires constant motion and the ability to lift. I’ve been using two knee braces to function, but now even that isn’t covering it. A week ago I was able to stride without wearing the braces, but while reaching for something I felt a pain under the patella of my left (better) leg, and now it’s the weakest it’s ever been/ can barely support weight.

    The longest I’ve been off work has been 2 weeks, but thinking of taking up to five now in hopes that rest will allow my knees to heal. I formerly had issues in all my other joints, especially my ankles, but that all went away in the first month and a half. Prior to returning to normal, each joint would begin cracking/ popping readily after use. My patellas have been doing that for a month now, and my hamstrings for about two weeks, to a lesser extent, but they have yet to heal.

    I’m taking a multivitamin, liquid magnesium, Bone broth, and just started MitoQ and Alpha Lipoic Acid

    Has anyone else had experiences with these kind of symptoms, and their treatment? I fear no longer being able to perform my job.

    • L January 21, 2017 at 8:03 am Reply

      Hi James. Starting in around weeks 3 or 4 post floxing I was getting what felt like little electrical zaps and also popping in my knees, especially the right one, that continued on. Fast forward a year or so, and as I went to get out of bed one morning, I collapsed in a heap on the floor, unable to support my weight. There was a lot of pain in my right knee and I used a cane for the next couple weeks to get around. I had an MRI done and sure enough there was a torn meniscus. Surgery and steroids were both offered and I refused both. My ND suggested prolozone injections, which is a combination of ozone and a collagen producing substance, which allows you to heal naturally. It has only been a couple months, and they say you need 6 months to get the full benefit, but I have had no problems. Since my left knee had also felt as bad as the right at times, I went ahead and got the injections in that knee too. If you do a google search you can find a lot of info on this as well as hopefully someone who does it near where you live. (and the cost is a fraction of what surgery would be.)

      Again, I did this for torn meniscus and it may have other uses…and it is quite possible that this is what you are experiencing as well.

  26. Kurt January 21, 2017 at 6:51 am Reply

    Anyone have ideas for treating sagging skin? My loose skin is mostly on my lower legs.

    • L January 21, 2017 at 8:04 am Reply

      I was in terrific shape before all this, and then, after quickly dropping thirty some pounds, I have the same problem. Really pisses me off. Let me know if you find anything!

      • Kurt January 21, 2017 at 11:58 am Reply

        Sorry to hear, L.

        Any recovery stories from this saggy skin? Does it get better, and how long does it take? Thanks!

        • Ryan L January 21, 2017 at 7:33 pm

          Ruth Young says she believes she 100% healed, and she listed sagging skin as one of her symptoms. She also responds to many posts, so you can always ask her if there was anything specific she did to treat that.

          https://floxiehope.com/ruths-story-cipro-toxicity/

        • Kurt January 22, 2017 at 5:28 am

          Thanks for the response, Ryan! I really appreciate it! I’ll post over there with the question.

  27. Catherine P January 21, 2017 at 7:24 am Reply

    Does anyone know if colostrum could cause a herx type reaction? I started it a few days ago and am feeling terrible. I have Lyme as well as floxing. Not sure if I should persist with it or not. Thanks

    • Ryan L January 21, 2017 at 12:19 pm Reply

      Unfortunately there is a possibility of a herx reaction with Colostrum. Sovereign Health Initiative states that “Some people may experience a healing incident (called Herxheimer reactions) as the body releases toxins (digestive problems, skin eruptions, rashes or flu-like symptoms). These symptoms usually disappear in a couple of days. Colostrum’s growth factors may create initial pain in areas of old wounds or injuries as it heals. If this becomes uncomfortable, you may want to cut back on the colostrum for a few days and then resume at a lower quantity, increasing your intake slowly as you reach optimum levels.” As a floxie, less is always more, so you may want to stop the treatment for a period of time or dramatically reduce it…maybe every other day, every third day, or once a week. I usually stop new treatments altogether when I have a herx type reaction to see if the two factors (the new treatment and herx type reaction) are connected.

  28. Faisal January 21, 2017 at 8:02 pm Reply

    Hello all I bought today magnesium ( oxide, gluconate, lactate ) 250 company Jamieson Is this a good thing?

  29. Jon January 24, 2017 at 2:25 am Reply

    I’m a healthy 30 year old male. I was recently put on cipro and directed to take 2x500mg pills a day. The very night after I took my second dose I noticed my tendons started “popping”, and by the next day the tendons in my ankles and knees hurt like hell.

    I immediately stopped the medication. It’s been about 48 hours since my last does of cipro. My tendons did feel slightly better today than yesterday, but after being on my legs all day I’m having really bad cramping.

    You guys think I’m permanently damaged from 2 pills? Has anyone here gotten over the tendinitis quickly after ceasing the medication?

    • Barbara Arnold January 24, 2017 at 3:10 am Reply

      Jon,
      I suggest you start taking magnesium immediately, this will help you tremendously. You can take most types apart from mag oxide as this is not very well absorbed by the body. I would also take a large dose up to the point you get loose stools then you can taper down. If you do this you will have a really good chance of recovery, but you can never take a fluroquinolone ever again. Good Luck

    • L January 24, 2017 at 9:35 am Reply

      Jon, it’s really a crap shoot. A lot of it has to do with our genetics. The good news is that you stopped quickly. I only had 4 pills and lost a year of my life and continue, two years later to have problems with nerves, mitochondria and vision…but I was also given prednisone along with it, which is contraindicated. I second what Barbara said about the magnesium. I would also take probiotics, since these toxins destroy the gut, which is connected to so many issues body-wide. Orotate is a good choice. I would avoid any heavy duty weight bearing on the joints for several months, and just keep an eye on it. Unfortunately, these injuries can occur months after you stop. I too had the “popping.” I had it in my back, hips and knees. More than a year and a half later an MRI showed torn meniscus with the knee that had the most popping. I was doing nothing at the time it “went out.” I literally had just woken up and gotten out of bed. Doctors of course will suggest surgery, but after some investigation I found better alternatives are stem cell (which I could not afford) and prolozone injections, which I got. Takes months to know if it was successful, but I have not had any pain since.

  30. L January 24, 2017 at 9:36 am Reply

    ORotate referred to the magnesium…..misplaced modifier 🙂

  31. joanneg January 25, 2017 at 4:58 pm Reply

    Hi Everybody,

    I’ve been dealing with a lot of stomach issues with this last flare up, and my regular supplements, that usually help pretty good, aren’t giving me much relief. So I ordered some Siberian Pine Nut Oil to see if it will help. I will post if it gives me good relief.

  32. charlottejacobs17@yahoo.com January 25, 2017 at 8:12 pm Reply

    Has anyone ever heard of or tried a cream called magnilife for nerve damage?

    • Bob January 26, 2017 at 8:16 pm Reply

      I have used it but it doesn’t really help.

  33. Tristine January 25, 2017 at 8:32 pm Reply

    Hello everyone. I am a newbie to the floxie community. After a trying year for me medically, I had finished out 2016 with being floxed (officially as of Christmas Eve). I have been struggling since for relief from my pain, but haven’t found much relief. I’ve begun to go down the rabbit hole of researching my condition and what I can do to help myself through this.

    On top of being floxed myself, I am extremely worried as my newborn daughter (currently 3 months) was exposed through nursing/breast milk.

    Does anyone know or have any information related to exposure through breast milk? I haven’t been able to find any solid information or at least anything useful. My daughter doesn’t appear to be exhibiting any issues, but its not like she can tell me if she is.

    I am currently in process of evaluating my treatment options and of course what extra limitations I may encounter due to nursing.

    If anyone has any information on these topics, I would greatly appreciate it.

    • L January 25, 2017 at 9:24 pm Reply

      So sorry Tristine. AS for the pain this is an ongoing problem with all of us. I would tell you to AVOID NSAIDS and steroids. I experienced just horrific pain in my mid back—worse than when I had cracked ribs. It subsided within weeks of starting naturopathic IVs, and is one of the few side effects that never came back. But while it was going on I just “toughed it out,” which was so difficult; but I just did not want to take any more pharmaceuticals. It really depends on the cause of the pain though. Fluoroquinolones attack collagen and tendons and connective tissue, so it could be from damage there. It is also well known for nerve damage, so it might be from that. Something I am on now (so jury is still out) is called Agmaset which my new integrative MD has me on. It is supposed to help with nerve damage, but it could take a couple months. He said he has good results with it though.

  34. Barbara Arnold January 25, 2017 at 10:40 pm Reply

    Charlotte,
    Thanks for the info on the lumps on my achilles. I looked it up and it could very well be a ganglion. Suppose I’ll show it to my Doc next time I see him. I will probably have to tell him what it is as he’s useless. But hey ho, compared to everything else it’s nothing. Thanks again

  35. charlottejacobs17@yahoo.com January 26, 2017 at 8:57 am Reply

    Faisal I am sorry to read that you too have been floxed. I found this link to drugs that contain fluoride. Have you taken any other medications apart from the antibiotics.

    I hope it helps as it contains a list of drugs that contain fluoride.
    http://www.slweb.org/ftrcfluoroquinolone.html

    • Tristine January 26, 2017 at 7:56 pm Reply

      Charlotte – I recently found that website as well.

      It’s interesring to hear that they recommend to treat being floxed similarly to having fluoride poisioning. I’ve already removed some fluoride sources in my daily life (ie: toothpaste, purchasing only organic produce). I already had filtered water in my home, but it really does make me thing about the other products that could expose me to more fluoride.

      In addition to this, I recently made a connection between something I had a reaction to about a decade ago. The compressed air dusters used for computers/ electronics tends to contain a chemical in it. About a decade ago, I had some sprayed directly on my skin for no more than a second and immediately felt this horrific burning sensation. Upon the feeling of thay sensation, I quickly ran to rinse off my skin. Come to find out, I had a “rare reaction” which left this big red irritated patch of my skin for about a month. However, in remembering the chemical it also contained a fluoride/fluorine component. The chemical is called difluoroethane. I’ve steered clear of direct exposure and it being so specific, but am now realizing the connection between that and being floxed. Makes me wonder if anyone else has found a similar connection.

      • L January 26, 2017 at 8:07 pm Reply

        I was wondering if I was more severely floxed because not only was I given prednisone at the same time, but I had been on twice daily inhaled asthma meds—which contain both steroids AND fluroide. (I was able to go off them with H2O2 IVs.) There is fluroide in so many things….it is unconscionable. And the US is one of the last countries to ban it in drinking water. (BTW I understand there is a fair amount in tea—so I gave up green and black tea)

        • Tristine January 26, 2017 at 8:23 pm

          Good to know about the tea. I am a huge black and chai tea fan, looks like I be cutting that down quite a bit.

          Before I was floxed, they had me on several rounds of augmentin shortly before. Also makes me wonder if that attributed to it.

        • charlottejacobs January 27, 2017 at 4:55 am

          Tristan There is no reply next to your name so hence my sending it via L. I too had a course of augmentin as well as prednisone a few months prior to being floxed!

        • Madge hirsch February 1, 2017 at 11:50 am

          I have had to give up coffee altogether as it gives me pain and tightness in the chest since the floxing. At first it was really difficult as I only normally drank one cup with breakfast but I take it black and hubby makes it strong ( breakfast is his job!) and it was one of the first pleasures of the day. It was torture smelling his. Sometimes when we go out for lunch I will order an expresso take 2 or 3 sips then dump the rest in his cup. Sometimes I get a bad reaction but other times it’s ok.I have got used to forgoing my breakfast cup but wonder if I will be able to go back to it eventually.

      • charlottejacobs January 27, 2017 at 11:36 am Reply

        Tristaine Just found this link to difluorethane. I had a very quick look and the stuff is It is also contained in refrigerant fluid. I expect thay put it into all sorts of things. https://www.google.co.uk/search?q=difuorethane&ie=&oe=

        This is supposed to be a civilised world yet these people are taking risks with our lives literally.

        • Tristine January 27, 2017 at 3:36 pm

          Charlotte, I did notice that as well when I began searching for difluoroethane. It is ridiculious to find out with how little regard many companies and government related entities appear to have when it comes to health in general. Prior to this incident, I’ve been attempting to cut out other sources of toxins and cancer causing “items” from my everyday life. However, it is very difficult to strip out these sources completely because they tend to make their way into everything. A movie called Human Experiment really opened my eyes to paying a much closer look at all the consumer products I purchase and which ones I should find safer alternatives for (for example, body care products like shampoo and body wash).

      • charlottejacobs January 27, 2017 at 11:38 am Reply

        Sorry Tristine
        I accidentally mispelt your name. Please accept my apologies.

      • Madge hirsch January 28, 2017 at 4:14 am Reply

        I think the answer to poisonous chemicals in so many household and cosmetic products is to actually minimise their use and to put it bluntly become much more dirty. This is not easy as in all western societies we have been brainwashed from childhood into thinking that almost antiseptic levels of cleanliness are healthy as well as socially and morally desirable . This brainwashing has mainly been done by advertising and has the purpose of selling us more products. It is just not necessary to wash hair everyday as some people do. In fact it is not necessary to use shampoo on hair at all. Old fashioned bars of soap are preferable to shower gels. Too much showering and bathing wash away essential bacteria that live on our skins. There are links between douching and ovarian cancer. And using antiperspirants is crazy. Nature designed us to sweat to reduce body temperature and get rid of toxins. A superclean house that has had umpteen products used to scour and polish is far more toxic than a dirty one.

  36. charlottejacobs January 26, 2017 at 6:15 pm Reply

    I just read on another website that topical magnesium cleared up peripheral neuropathy within a few days!!!!! I am unsure if that was the case but it is a bit of hope.

    • charlottejacobs January 26, 2017 at 6:20 pm Reply

      Just seen that clindamycin causes peripheral neuropathy.

    • L January 26, 2017 at 7:27 pm Reply

      Topical mag has offered relief for some. For others, like myself, it had zero effect, in any way.

    • Barbara Arnold January 28, 2017 at 11:44 pm Reply

      Charlotte I wish lol. I found it does help somewhat with “Regular Use” but I have yet to hear of it curing PN. Ah well onwards and upwards xx

  37. Tristine January 26, 2017 at 8:42 pm Reply

    Wanted to share some other supplements that I’ve considered taking, but due to nursing my 3 month old I’m a little more limited.

    They can be found by searching for Protandim. They have a couple of types that I would try if I weren’t nursing. One of them is used to deal with oxidative stress. I am taking this one as the ingredient that isn’t nursing friendly would clear out between babies nighttime and morning feeding. The other is meant to help repair and replenish mitochondrial DNA.

    I have taken the oxidative stress supplements a few years back and happened to still have them around so they came back to mind during my research. I’ve only been taking for about 2 weeks, so it is tough for me to notice the impact yet.

    I haven’t tried their other supplement, but would love to hear if anyone has tried it and the result. Might be something to consider…

  38. Amy January 28, 2017 at 6:59 am Reply

    I swore off Ibuprofen back when my initial floxing happened, it gave me crazy hot flashes & no docs believed it. So I thought Tylenol was ok for some reason. I took one Tylenol for a headache & it triggered a week long episode of my ususal weakness & aches. I also made the mistake of having a glass of wine not long after I took it. Can’t be a coincidence. I didn’t believe it could have such an effect, omg was I wrong…

    • SM January 28, 2017 at 9:27 am Reply

      That’s a bit surprising, Amy. I wouldn’t touch ibuprofen with a 10 foot pole, but I always though floxies handled Tylenol quite well. I haven’t taken either in 3.5 years, but I’ve always thought that Tylenol was tolerated well.

      • Amy January 29, 2017 at 8:07 am Reply

        I thought it was ok as well, I’ve taken it here and there with no issue. I thought maybe having the alcohol with it could have had some affect- but I could also be desperately looking for any explanation because to this day- I don’t really know what triggers the episodes I have. They started while I was on meds & haven’t stopped since…

        • L January 29, 2017 at 6:02 pm

          sometimes I think there is no rhyme or reason. months ago I had a cup of coffee and then awful side effects returned. Recently I have had it with no problem….so maybe it wasn’t the coffee after all. Ditto wine. I think the the things to be most careful of are nonorganic meats that could possibly have antibiotics, and gmos. The healthier the gut, the better overall your health. I would also avoid any steroids or NSAIDS like the plague.

  39. Susan January 31, 2017 at 8:19 pm Reply

    Adamswillson, your letter is inappropriate. Please keep on topic.

    • Barbara Arnold January 31, 2017 at 10:21 pm Reply

      Susan it’s a troll

  40. AColeman February 2, 2017 at 4:36 pm Reply

    Hi everybody,

    I have been lurking on Floxie Hope for over a year now and this is my first post. I was floxed in September of 2015 and was thinking that I might be about ready to post a recovery story soon back in October of 2016. Then came my first true relapse. Sure my path to recovery was rocky like all of ours; almost as many down days as up, but I was getting really close – then WHAM.

    My primary issues when first floxed were digestive and neuropathic. I had battled the digestive issues for about 8 to 9 months and was 99% better in that area. I never treated it with anything other than digestive enzymes, probiotics (including living foods), and Aloe vera juice, but it was so bad that I had endoscopies, gastric emptying studies, colonoscopies – all were normal; well the gastric emptying study I passed, but just barely. Nonetheless, time the only real answer for floxies, led to healing. My peripheral neuropathy was getting much better too and my other nagging issues were less.

    Acupuncture was my panacea, which I started around month 2 post floxing. About 4 months in I found an Integrative medicine specialist who believed I had been floxed when I suggested it, although she took a while to come around, but she has offered little help other than discovering I was extremely low in Vitamin D and Iron.

    I still had some pain in the connective tissue between my ribs though and lingering digestive issues on rare days. I started eating mostly organic and whole foods after being floxed. I read about the Whole 30 diet (think strict Paleo) which challenges you to eat only whole foods for 30 days (no dairy, sugar, grains, legumes) and then reintroduce slowly to find food triggers. I completed the diet with no real discoveries, but about half way through a new bout of peripheral neuropathy began and I started into my first real relapse.

    I had exercised steadily when I wasn’t in too much pain starting about 3 months post floxing and hoped that this approach would leave me free of relapses. I can’t figure out anything else other than the stress of the Whole 30 diet on my system that could have caused my relapse, but once it started it opened the flood gates.

    The neuropathy subsided after 10 days or so, and I thought okay it was just a flare. In fact since then I have experienced only a few days of neuropathy with most days normal. But, that’s when the digestive issues started again. It started with heartburn, something I never experienced during my initial symptoms. It was strange in its presentation – only when I burped, usually on an empty stomach, and worse between 4-6 PM. This was my only symptom for around 6 weeks other than swollen lymph nodes and extreme fatigue, which hit after about a month.

    I tried treating it as other floxies have with Betaine HCL and Deglycerized licorice in addition to Aloe vera juice. Just as the heartburn started to decrease all my old stomach problems came back. They are not as bad as before, but still an issue. I had tests for H.pylori – negative and thyroid – negative. Also tested for mono (Epstein Barr) and results indicated I may have suffered an adult relapse, but my doctor felt they were unequivocal.

    Then after about 10 days of the stomach problems all my old symptoms started randomly firing. I would get neuropathy – but only for a day, then next day, the muscle and tendon problems I suffered in my leg would come back. Then the next day I would have horrible insomnia, or should I say night? You get the idea. This has been going on for around 2 weeks now with the digestive issues constantly waxing and waning. I even have had three days I would describe myself as normal during this time frame (first time in nearly 18 months), but the randomness of symptoms and continued relapse has me down. This relapse is entering its fourth month and while not nearly as severe physically as my initial floxing it is almost worse in some ways.

    Any feedback from the community would be appreciated. Just an FYI. I, like many floxies was extremely healthy prior to being floxed (for a UTI I didn’t even have). I currently have no real health issues according to Western medicine. I take Vitamin D, Vitamin K2, Vitamin E, Vitamin B complex, digestive enzymes, HCL with high protein meals, Mg (200 mg daily), and ProImmune a Glutithoine precursor blend (which really works BTW, but that’s for another post, when I can deal with the down turn it brings prior to healing), but haven’t felt up to this for over two months.

    Thanks for you time and comments.

    • L February 2, 2017 at 5:04 pm Reply

      you might want to try adding in something called RESTORE. I have been put on it for a few months by my integrative doc, since I continued to have GI issues in spite of probiotics, organc, non gmo, no dairy non soy diet…

    • Ryan L February 2, 2017 at 5:54 pm Reply

      Hey AColeman,

      Having had GERD and Acid Reflux before my floxing, I may have some tips that will help you.

      First off, I’d consider going on a low acid diet. This made a tremendous difference for me and now my reflux only seems to pop up if I eat foods that are really high in fat, exercise, or take too many probitiotics with Bifidobacterium lactis Bb12 (Has been shown to increase stomach acidity.

      Next, I’d look into strengthening your vagus nerve, as that has been shown to improve digestion. Check out the link below.
      https://selfhacked.com/2015/07/30/28-ways-to-stimulate-your-vagus-nerve-and-all-you-need-to-know-about-it/

      I’d also consider raising the headboard of your bed 8-10 inches with cinder blocks. That will help keep acid in the stomach.

      Finally, endoscopies and colonoscopies effect the gut microbiome, so unless your doctor did a reseeding of the gut flora during your colonoscopy (Very few doctors do), your numbers are probably low. Unfortunately most of the good bacteria in our digestive system will only replicate over time through proper nutrition or through a Fecal Matter Transplant, but others are available in supplemental forms. The key is getting it to make it past the stomach and to seed the large intestine. The two best probiotics I’ve found for this are Elixa and Bravo Suppositories. Others may have probiotics that they like, but as I said before, getting it to the large intestine intact is the key. Elixa uses a Fortress five encapsulation technology that is very effective. So much so that most people see sections of the capsules in their stool. Just make sure you start with only one capsule at the beginning instead of the full dose (10 capsules). If you don’t have problems with one, then try two the next day and so on as long as their our no problems. Bravo Suppositories are a rectal probiotic, and the treatment is pretty self explanatory. lol

      I hope this helps.

    • Madge hirsch February 2, 2017 at 5:55 pm Reply

      So sorry to hear you are going through this but it unfortunately is not unusual. Your floxing is still recent . I took one pill of Cipro in August 2015 for a UTI I did not have after an iv floxing in Oct 2014. Luckily I looked up the Cipro after the one pill and stopped. I am still not recovered but up till the end of last year I was making progress albeit with relapses some lasting weeks. Due to a death in the family I have had to make two journeys in less than three weeks from France where I live to London which I hate! The stress of this has brought on another relapse but as I improved after the last one I am confident I will improve again. You say that this relapse is not as severe as the initial floxing. Hang on to that-you are improving alhough it is hard to believe it.
      It is possible that the diet brought this on but not sure. I think these relapses can just come as part of the process of getting better. Perhaps you could relax the diet a bit. Are you addressing your vit D deficiency adequately? I have been taking a curcumin supplement for several months and I think it has helped with digestive issues. You could also try upping your magnesium with some magnesium threonate. This is expensive but does not seem to upset the gut.
      One of my worst symptoms is pain in the rib cartilage and that had improved a lot but is now back . I have become more accepting of relapses and they depress me less as the overall longterm trend is one of(very) slow improvement. Try to stay positive and tell yourself that you will work through this relapse and start to improve again.

      • AColeman February 3, 2017 at 4:01 pm Reply

        Madge,

        Thanks for the supportive comments. I know I have been luckier than many others and it is sometimes easy to fall into the poor me camp. I would like my life back and relapses make you think you may never get there.

        I will consider your Mg threonate suggestion. I have never clearly benefited from Mg other than Mg oil for muscle aches post floxing. I take it because so many Floxies report how important it is to them.

        Interesting to hear that you too suffer from pain in the rib cartilage. I hadn’t read of others with that issue on the site. It is far from my most severe problem, but is one of the longest standing (15 months and counting). I get acupuncture treatments (weekly or bi-weekly) and they do help, but it seems to come back a few days after each treatment. Still I am seeing improvement, mostly due to time I imagine, but you might consider acupuncture if you are not seeing one.

        • Madge hirsch February 4, 2017 at 7:08 pm

          Read Bronwen’s recovery story. She too had this and collagen supplements helped her. I have not tried them yet. I believe I was floxed many years ago in the 90s more than once perhaps but after the one in 1999 I started with the rib pain. Iwas 47 at the time. My then GP in England was mystified and sent me to a gastroenterologist as I was having some digestive issues . He ordered blood tests and hypothyroidism was found. I suffered from the rib pain for years on and off despite being treated for the thyroid. It always came along side two other symptoms – bluured vision and a dry yellow coating in my nose on waking.
          After my 2 floxings here in France all three symptoms came back with a vengeance along with tendonitis and some neuropathy . My GP here said the pain in my ribs was due to cartilage degeneration and was not uncommon in older people. I told him that mine was due to Cipro and he was shocked when I said I started with it aged 47. No wonder my English GP was mystified as I was presenting with a condition of old age!
          It is by far my worst symptom . It did get better though with relapses after the 1999 floxing and recently I had a break of about a month from it. My physio does acupuncture but I will have to go to the GP to get a prescription for the sessions.

  41. Andrew Collins February 3, 2017 at 7:18 am Reply

    L,

    Thanks for the Restore suggestion. I read up on the product and will add it to my list of possible tools, but their website claims that you have to continue use for the rest of your life, with only 20% of people successfully stopping use even after 9 months. As my digestive system eventually got better before, I think I will hold off on adopting a treatment that may make me dependent on the treatment until I am a bit more desperate.

    • L February 3, 2017 at 10:55 am Reply

      I didn’t see that, but my doctor just said to stay on it for a few months.

  42. Andrew Collins February 3, 2017 at 7:48 am Reply

    Ryan L,

    Thank you for your suggestions. I am fairly certain that my heartburn problems were not caused by too much stomach acid but by too little. After I started adding HCL and digestive enzymes is when it started getting better. Also the weird way my heartburn presented even had my integrative doc suggesting I supplement with HCL.

    I had been considering taking actions to strengthen my vagus nerve after reading other posts on here that pointed to the same article you shared. Thank you. I like diving into music and losing myself, so if that helps stimulate my vagus nerve I can try that.

    I read up on the Elixa probiotics, and while expensive it sounds reasonable. What kind of success did you have with Elixa? I will order some and thanks for the advice to start out slow and then ramp up, but that sounds like it may mitigate the effectiveness too.

    I know that part of my problem with probiotics is that I often forget to take them, or stop after a month or so, because I run out and don’t prioritize buying more.

    I had my endoscopy and colonscopy over a year ago, so I am sure that recolonization has happened, but probably not with the right strains. My BMs are regular and normal even with my current digestive problems. They were crazy and all colors of the rainbow when initially floxed, so that is another way I know this time is not as bad.

    I appreciate all your suggestions and time to reply.

    AColeman

    • Ryan L February 3, 2017 at 12:46 pm Reply

      Hey Andrew,

      I’m happy to hear that you had success in the past with HCL and digestive enzymes. Trying to figure out whether a problem is too little acid or too much can be tricky, and most Gastroenterologists won’t actually test stomach acid unless you ask for it. Since you’re taking HCL supplements, you probably did the HCL test at home to see if that was what you needed. It may still be what you need, but it’s always worth considering that whatever caused you to produce too little stomach acid may now be doing the opposite within the body, so I’d recommend retaking the HCL test or another stomach acidity test to be sure. That’s the unfortunate thing with those FQ drugs. We just don’t fully understand all that has happened and how it might manna fest within us.

      I’m still new to Elixa, and unfortunately I can only take one capsule every other day due to GERD issues. With that said, I have noticed a change in my skin complexion (looks healthier), my energy levels, and even my cognitive functioning. I’ve tried other probiotics in the past and did not have this result. I’d also point out that stool size and texture can be misleading. Sure, you want to see a healthy stool when you go to the bathroom, but that doesn’t mean all your good bacterial strains are in the proper quantities. You really need to take a Ubiome gut test to see exactly where you are. I learned more from that test than any other test I’ve taken over the last year and I’m convinced that the gut microbiome plays a hugs role into why it can take a long time for so many to recover.

      The biggest challenge with treating the gut microbiome is the fact that there are only two primary strains found in our probiotic supplements (Bifidobacterium and Lactobacillius). Both have been shown to improve the gut microbiome, but there are hundreds more that we just don’t fully understand which have been found in healthy people. For example, when I did my Ubiome gut test, I learned that my samples count of the strain Bacteroides was 22,101. A healthy person has a count of around 310,922. That’s a big difference, and unfortunately many more strains in my sample were also found to be very low and no probiotic supplement had been found that contained those low strains.

      So what is one to do? Well, some studies have shown that increasing Bifidobacterium and Lactobacillius may also increase the replication of other good strains. Beyond that, it’s diet, exercise, and time that will increase the numbers unless someone takes the risk in pursuing a Fecal Matter Transplant.

      I think the gut microbiome is also why so many have flares, set backs, and relapses, as the microbiome is changing every day based on diet, exercise, and lifestyle. I’ve even read countless reports of people experiencing extreme stress after they were healed, or that they consumed meat that was not antibiotic free, only to have a relapse. Well, studies show that stress and antibiotics affects the gut. That’s not to say that they didn’t have other problems in addition to their gut microbiome, but the gut being affected is a common denominator.

      I’m hoping that over time I will see improvement in my gut microbiome through continued Ubiome tests that will also be in line with continued healing.

      • Andrew February 3, 2017 at 3:51 pm Reply

        RyanL,

        Was the Ubiome test ordered by a doctor or did you bring it to their attention? Did insurance cover part of the cost? I read up on this test previously, but put it down in the investigate later corner of my mind. I will have to bring it up to my integrative medicine doctor when I see her in a couple of weeks.

        I have been monitoring my HCL use closely too and only use when I eat significant meat now. Luckily my heartburn is now mostly under control. I have only had very mild heartburn twice in the last two weeks and it continues to get better.

        I know I got lazy and ate a bit of fast food a few weeks after my relapse started when traveling for the holidays and I am sure that didn’t help me heal.

        Thanks again for your detailed responses.

        • Ryan L February 3, 2017 at 4:33 pm

          The Ubiome SmartGut kit can be ordered by a doctor, but anyone can order the Explorer kits (On the Ubiome homepage, click the tap in the upper left hand corner of the page that says “EXPLORER”). They both should provide the same rough data, but the SmartGut comes with more printable graphs and forms that a doctor can go over with their patient. SmartGut is fully or partially covered by most health insurance companies under “out-of-network” healthcare benefits. One “Gut Explorer” kit is $89.00.

          Again, from what I’ve read, the SmartGut results are mostly the same stuff you’ll be able to view online with an explorer kit and without the hassle of making a Dr. apt.. I think Ubiome makes more money when a SmartGut kit is ordered, but a floxie can glean enough information from the Gut Explorer kit to know what’s going on. If you go that route, you will need to get the raw data into a excel spreadsheet to explore the data per bacterial strain as that data is not easily viewable in the online results. Here’s a link on how to do that.

          http://blog.richardsprague.com/2015/01/how-to-analyze-ubiome-sample-in-excel.html

  43. Tricia February 3, 2017 at 9:21 am Reply

    Has anyone had local anaestesia post flox? And if so, did anyone have a negative reaction?

    • AColeman February 3, 2017 at 4:13 pm Reply

      Tricia,

      I can’t find the link now but there is a site out there that lists the anesthesias that are safe for Floxies. I know that I had both an endoscopy and colonoscopy post floxing and actually felt better for a few days after them both. I know my docs put me out with a combination of Versed and another med.

      As to locals that is a crap shoot. If you look at other posts on here you see that some people had locals applied by dentists with little problems, while others suffered serious setbacks. THere is a thread discussing this topic from January 21 of this year. Scroll up and I think you will find it.

      • Tricia February 3, 2017 at 5:47 pm Reply

        Thanks AColeman:)
        Do you think for floxies that general anaesthetic is safer than local ?? Is that what you had done for your procedures? Thanks in advance, Tricia

        • AColeman February 7, 2017 at 7:15 am

          Tricia,

          Sorry it took me so long to get back to you. Hopefully this is in time, but I finally found the list that describes anesthesias that are tolerated by Floxies. Here is the link.

          http://www.myquinstory.info/what-helps/

          This list lots of good information about tests to take and ways to treat common conditions that are reported as safe for floxies – up to you to decide which treatments to employ.

  44. Stephanie February 7, 2017 at 12:07 am Reply

    So I have no clue what to do. What tests can a naturopath in the us run that are close to an eeg? I just can’t with these freaking chest pains and spasming it’s getting worse and I caught a cold on top of it which is pushing me over edge of my normal well this sucks but it’s pretty outside focus on that attitude. I am taking two oil of oregano pills daily and washing my sinuses out as much as possible. I just can’t get to a specialist because none of them accept my crappy insurance that I’m stuck with. I just need the pain to dull cause this is now a new level of hell. I normally try super hard to be positive but I’m just on barely and decent sleep and I just can’t. Please no suggestions of going to a western Dr they won’t help me

    • L February 7, 2017 at 12:26 am Reply

      Hey Stephanie…..first, have you tried searching under integrative doctor and eeg (like contacting seattle integrative? http://www.seattleintegrativemedicine.com/ ) also as far as the oil of oregano. I would ditch the pills and go for the oil. IT is said to work better and more quickly. and I would use it 4 or 5 times a day to start. It’s totally gross, but I have gotten rid of sinus infections, the flu and even sped up a cold. Get organic if possible. you just put a few drops under your tongue. leave it about 10 seconds, then swirl it around with some water and swallow.

    • charlottejacobs February 19, 2017 at 7:16 am Reply

      Sorry to hear this Stephanie. A cold will make you feel very low but will clear up.Keep positive please.

      EEG . I am unable to sus why you ave mentioned an eeg? Do you suspect epilepsy ? A conduction test is necessary to find out what is causing the spams that are driving you mad. If you have a neck problem that can cuse tension hence spasms as well. Have you got access to a pt?

      Try to keep positive. You will feel better soon once the cold starts to go honestly.

      • Stephanie February 19, 2017 at 9:17 am Reply

        Conduction tests are horrible for floxies I had one done and it’s very painful and only shows up for structural issues not functional. I don’t have epilepsy I was and am severely floxed. My naturopath and I are working on a way to do an at home eeg. It’s better he said at catching what needs to be analyzed as he stated eegs in the United States are step up to catch issues where the person loses consciousness. They are not setup for my issues so we have to set it up a different way to catch the portion of my brain that’s impacted from the drugs. Most western Drs have preset way of running tests while my amazing naturopath looks at my situation and sees how to use technology to help me heal. It’s very rare and he is an amazing Dr his whole staff is so kind to me that I cry a lot when I am there.

  45. Catherine P February 7, 2017 at 9:11 am Reply

    Does anyone know if it is safe for floxies to take fish oil and evening primrose oil?
    Thanks

  46. joanneg February 7, 2017 at 4:29 pm Reply

    Lisa B. or anyone else,

    Are you or anyone on this site familiar with Hepatic Encephalophy in which damage to the liver doesn’t route the ammonia from the gut to the urea to be eliminated by the kidneys, so the serum ammonia levels rise and go to the brain causing inflammation, head pressure, dizziness, brain fog, and a host of mental problems: anxiety, depression, and insomnia, forgetfulness, ect.

    Anyhow, If this is part of what we who suffer a lot of brain issues are dealing with, there are some ways in the medical world and less in the natural world to eleviate the brain symptoms. It doesn’t heal you, but it stops the symptoms.

    I just started reading on this, and knowing Fluoroquinolones do cause liver damage, I was wondering if anybody floxed has looked into this and/or used the prescription medicine called Lactulose which is supposed to stop all the brain symptoms by causing you to eliminate the ammonia through many bowel movements, and it also stops the bacteria in the gut from making the ammonia.

    If any floxy has tried Lactulose and has gotten help for their brain issues, it sure would help a lot of other floxies if you would post your experience.

    Any info would be greatly appreciated.

    • Debs February 8, 2017 at 2:50 am Reply

      I have no choice but to take Lactulose every day due to being on opioids joanneg, it has had no positive effect whatsoever on my floxiefog

  47. Debs February 8, 2017 at 5:09 am Reply

    You might be interested in this recent study on Lactulose joanneg

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5040005/

  48. Debs February 8, 2017 at 5:13 am Reply

    Forgot to say, I have been on lactose for years, & it also has had no positive impression whatsoever on my horrendous insomnia situation unfortunately

    • joanneg February 8, 2017 at 10:14 am Reply

      Hi Debs,

      Thank you for the response and sorry to hear it doesn’t help you. I was hoping I found something to replace my supplements, even though they are helping me pretty good with all the brain issues, I thought the Lactulose might be just as effective without all the cost.

      But I still was looking for a natural alternative for it because I didn’t want to take a pharmaceutical. I found one site that said magnesium citrate could be used, and it made me wonder if that’s why magnesium helps so many floxies. It’s just a never ending puzzle!

      Anyhow, thanks again for your reply, and good luck in your healing.

      • BRUCE BRANNAN February 8, 2017 at 10:58 am Reply

        I have left voice messages and emails but no replies. Don’t look good but there is nothing available in any lumber. I have actually had end users cold calling me looking for lumber.

        Bruce Brannan All Star Forest Products (662) 417-7648 (Ph) (662) 294-9001 (Fax) brucebrannan@cableone.net

  49. Lebo February 9, 2017 at 9:38 am Reply

    Hi Lisa,

    Am a black male from South Africa and I believe I have been floxed after taking 500mg cipro two times a day for five days. Prior to that I had taken predisone and had just cold turkeyed from benzos, so I was really hit hard. I lost my job, my family is not offering much support, I wallow in pain on most days, not able to afford any diet, I just eat whatever due to financial constraints and not having the means. Can anybody suggest measures one can take in improving their health naturally, as I do not have the means and I am in constant pain and its affecting me so much.

    Regards

    • L February 9, 2017 at 10:03 am Reply

      So sorry Lebo that you have had to join our group. The most important things are to avoid fluoride, GMOs, gluten and if at all possible eat organically. Also never again take any steroids. Your magnesium levels are likely severely depleted and it is so important for many things including nerve functions. You can find some pretty inexpensive magnesium supplements (avoid citrate for diarrhea reasons) and try to get 400-800 mg. There are food sources as well but I am not sure you can get enough at this point from food. Another HUGE problem is cipro destroys the good bacteria in the gut, which is linked to pretty much every disease you can think of. Probiotics with live cultures and different strains are important to take. They can get expensive. Also helpful for this are things like fermented foods. Goats milk kefir is good. Most definitely avoid any meats that are not organic, because they can have antibiotics in them and cause you more problems.

    • Michael Teeter February 17, 2017 at 12:21 pm Reply

      Hey Lebo I am so sorry to hear that you were Floxed. Here is a non Profit Organization that helped me. I am still recovering after 5 years. Check them out they offer good stuff and I am sure they save my life the last time I was in the Hospital.
      http://www.pointofreturn.com/

      • Lebo February 17, 2017 at 2:27 pm Reply

        Hey Michael, thank you, will check them out. How has the journey been for you?

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s