Floxie Hope

Floxie.Hope.1800.72.dpi

This site is to give HOPE to those who are suffering from Fluoroquinolone Toxicity Syndrome as a result of being poisoned by fluoroquinolone antibiotics – Cipro, Levaquin, Avelox, Floxin, etc.  It contains stories of healing.

Cipro, Levaquin, Avelox and all other fluoroquinolones are dangerous drugs that can have devastating effects that cumulatively I’ll refer to as Fluoroquinolone Toxicity Syndrome or Floxing.  Fluoroquinolone Toxicity Syndrome/Floxing includes damage to connective tissue (tendons, ligaments, cartilage, fascia, etc.) throughout the body, damage to the nervous systems (central, peripheral and autonomic), and more. The damage done by fluoroquinolone antibiotics can destroy a person’s quality of life or even kill them. Certainly, there is a time and a place for drugs with dangerous side effects. If you find yourself in a septic shock induced coma, fluoroquinolones may save your life. Unfortunately, these drugs are not being reserved for life or death situations. People are being prescribed them for urinary tract infections, suspected prostate infections, upper respiratory infections, as a prophylactic for travelers’ diarrhea, ear infections, pink eye, etc. Thousands of people have suffered needlessly from the devastating effects of fluoroquinolone antibiotics, when another, safer antibiotic could have, and should have, been used.

The damage done by fluoroquinolones is largely unacknowledged by the medical establishment and an accurate diagnosis, compensation and relief are difficult to come by. There is no known cure for Fluoroquinolone Toxicity Syndrome/Floxing.  However, many people continue to LIVE after being poisoned by fluroquinolones.  They find healing, recovery, perseverance, compassion and hope.  These are their stories.

This site is meant to give hope for healing to those who are adversely effected by fluoroquinolones.  It is no way meant to disregard the pain of those who are chronically suffering from the horrifying effects of Cipro, Levaquin, Avelox or the other fluoroquinolones.  There are people who don’t recover.  Their stories are real and they matter.  There are also people who are able to recover and I share their stories with the hope that they inspire others, or at least give hope that recovery is possible.

Here is a New York Times article about the dangers of fluoroquinolone antibiotics – http://well.blogs.nytimes.com/2012/09/10/popular-antibiotics-may-carry-serious-side-effects/?_r=0 – more news stories, research papers and other resources can be found on the “Links and Resources” page.

Here is a Facebook group that is a great resource for those going through Fluoroquinolone Toxicity – https://www.facebook.com/groups/floxies/

Featured post – I’m floxed. Now what?

The Fluoroquinolone Toxicity Solution Ebook has helped many Floxies to recover, including DanielCindy and Ruth.  As a bonus, you will also receive The Floxie Food Guide – a book of diet guidelines to help you through fluoroquinolone toxicity:

flu tox get help you need banner click lisa

 

 

 

18,717 thoughts on “Floxie Hope

  1. Daniela May 1, 2018 at 10:05 am Reply

    I’m afraid to write because sometimes people get so nasty, but also I feel really strongly about the subject and don’t want anyone to be hurt they way I have been.

    I don’t think it’s a great idea to recommend IV’s to people we hardly know. That’s a serious allopathic intervention that shouldn’t be taken lightly. Who knows where a person is located, their age, underlying medication conditions, etc. Some people say they are cured by it but some say they have been harmed, so obviously there can be very strong effects. Where are the bags sourced, it’s all wrapped in plastic, artificial preservatives, there are a lot of concerns.

    So maybe you like IV’s but please have some respect and understand that not everyone has had the same experience. Remember we all want to be listened to about Cipro, too.

    • L May 1, 2018 at 10:15 am Reply

      People come to this site to find out what helped others. Like ANY treatment, you need to do your own investigation and you need to find a trustworthy practitioner. That being said, nutrient IVs are just that. Nutrients. EG A myer’s iv is b vitamins, magnesium and other vitamins and minerals, in doses you could never take orally. For the high dose vitamin C you need to have blood test first. I would not in ANY way compare this to taking Cipro or any other pharmaceutical.

    • L May 1, 2018 at 11:39 am Reply

      And by the way I am not sure where you are getting your info but it’s incorrect. The nutrients are not stored in the iv bags. they come in bottles and are prepared when the patient arrives

    • Tara May 14, 2018 at 6:51 am Reply

      Since you had commented about the grocery store issue- can you share your experience (What did you take, how much, any improvements?) You wrote that it still happens 10 years later… this is my worst fear. I never thought a few pills could destroy me as much as this stuff had. Just when I feel like I am getting up, it knows me down again. I’m 19 months out and can’t imagine continuing in this way day after day for YEARS!

      • Tara May 14, 2018 at 6:51 am Reply

        This comment was intended for for Daniela…

  2. toby May 2, 2018 at 5:11 am Reply

    Has anybody had improvement by removing mercury fillings?

    • L May 2, 2018 at 8:57 am Reply

      Hi Toby, I had mine removed and I can’t say whether or not I noticed any difference; but I did so at the urging of my integrative MD, my ND and my holistic dds. It just made sense to me, and it was one less thing to worry about. From what I have read, you are constantly releasing a bit of mercury every time you chew and it’s toxic to the nervous system. That being said, I would only go to someone who is specially trained in safe removal, like a Huggins trained dds.

      • toby May 2, 2018 at 12:20 pm Reply

        I have 9 mercury fillings. You put composite fillings?

        • L May 2, 2018 at 12:37 pm

          wow…that’s a lot! I had three. If you go to an holistic dds, they use non-toxic restorative materials…or at least something more bio-compatible. I mentioned Huggins-trained for holistic dentistry. That is supposed to be the gold standard. IF you want to see if there is one near you, here is a link. https://www.hugginsappliedhealing.com/find-a-huggins-centers-for-healing-dentist/

        • toby May 2, 2018 at 12:49 pm

          There isn’t Huggins-trained dentist in my country. I must go to conventional dentist. I believe that composite fillings are safe. Many people on this site removed mercury fillings, so it must be important thing for floxies.

        • L May 2, 2018 at 2:38 pm

          I think it is but make sure you get someone who has done this a lot and knows what they are doing. If you look online you will find a number of sites that talk about safe removal procedures.

        • Bob May 2, 2018 at 2:40 pm

          If you are getting mercury fillings removed you must use a mouth dam to keep it from going down your throat and you should do a detox after.

        • L May 2, 2018 at 2:45 pm

          actually there are alternatives to a mouth damn…my dds did not use one because of my problems with breathing/gagging… But yeah, for someone not specifically trained in this, it would be good. I also was given liposomal high dose C gel to swallow before and after. Gross, but necessary.

        • carnationcat May 2, 2018 at 8:19 pm

          Toby, have you looked for a dentist at http://www.iaomt.org? If you can’t switch dentists, print out their recommended protocol and ask your dentist to follow it. Unfortunately, he probably doesn’t have the equipment to do it–as you should have oxygen and the mercury vapors should be suctioned away from you by a strong exhaust system while the drilling is being done. If I were you, I’d travel to the nearest IOAMT dentist you can find, after talking to their office and perhaps going to an evaluation to see if you have a good feeling about him/her.

          I had 15 replaced in 3 visits over about a month. The dentist used a high quality, BPA-free composite called Venus Pearl. You can look it up online. Good luck!

          Oh, and for detoxing afterward, I highly recommend Quicksilver products. You should find a practitioner to guide you, but can read up at http://www.quicksilverscientific.com. Actually you can take some of the products for support before getting your fillings replaced…but definitely afterward.

        • toby May 2, 2018 at 8:21 pm

          Bob, you should do a detox if didn’t use dental dam, or need detox in both cases?

          L, what is alternative to dental dam? Why you needed liposomal vitamin C? I eaten lemon every day 2 months ago and it made my symptoms worse, I don’t know whould liposomal C make problems.

        • L May 2, 2018 at 8:26 pm

          The liposomal c is a kind of preventive/detox before and after the procedure. Some will actually get a high dose c iv during it . Used a special kind of vacuum I think in lieu of dam.

        • Toby May 3, 2018 at 3:07 am

          Why you need preventive? It’s simple procedure. I repaired tooth few days ago and got composite filling without anything(detox)

        • Daniela May 3, 2018 at 7:58 am

          Hi Toby, I had a severe and permanent reaction to Septocaine/Articaine dental anesthesia. I don’t use any anesthesia for dental work now. There are some acupuncture points on the ear lobes to help with pain if you need it. I found that the injections were worse than the pain of the dental work.

  3. Dav May 3, 2018 at 4:04 am Reply

    Is tart cherry juice safe for reducing inflammation/fever after floxing? I have a fever and I’m trying to get it to go down without Tylenol

    • Daniela May 3, 2018 at 7:54 am Reply

      Use a cool compress on your head and pulse points on your wrists. I never thought of sour cherry for fever but it is certainly good to keep your fluids up.

      • Ronna May 3, 2018 at 8:56 am Reply

        Cherry juice is used for treating inflammation as in Gout. It couldn’t hurt I don’t think, it’s fluids.

  4. Don Mowers May 3, 2018 at 8:43 am Reply

    Very interesting piece.

    http://whitewhale.club/elons-miracle-gummies-causes-speculation-by-fda/

    May be worth looking into. This could possibly be a big help for many of the floxies. I use CBD oil and it does help with the anxiety issues. Us floxies tend to spend way to much time focused on our discomfort and pain. Changing our focus to other things or mitigating it with a natural thing like CBD oil can be a real help.

    Elon is very right about this. Just because a ‘doctor’ recommends taking something to treat a disorder, does not mean it is healthy for you to consume. We were always taught to listen to the doctor because “they know best” when in fact, they just relay most of the information from the people creating these health damaging products.” “BIG PHARMA”!!!

    CBD Oil is Threatening Big Pharma …. Big pharma is doing every “DIRTY” thing it can to try to discredit the CBD product.
    Do your own research but do not bypass CBD oil. It might possibly make your life a whole lot more comfortable.

    • Andrea May 3, 2018 at 4:36 pm Reply

      Hey Don, what was your experience with CBD oil?
      I used a 10% concentration cbd oil, for about 20 days. I used the recommended dosage ( 3-4 drops 3 times a day). I didn’t noticed much, as far as anxiety or pain reduction. I don’t know in the US, but here in europe is very expensive. It was 75 € just 1000mg. I think that, to notice some effect, dosages and concentrations should be way stronger, at least for me. Plus I’ve read somewhere that, the real deal (cannabis or cannabis oil) is way better than just CBD, because, in order to be really effective, you need both CBD and THC. If I lived in a country where cannabis is legal, I’d defenetly try some good high CBD low THC strain.
      And speaking of legal cannabis, any floxie here from California, Colorado, Washington etc?
      Have you ever tried it?

      • Don Mowers May 3, 2018 at 7:11 pm Reply

        Andrea … CBD oil. Yes it is expensive stuff. I doubt that 3 or 4 drops would net the affects you are looking for. The CBD oil I use is from Hempland USA http://www.hemplandusa.com View their web site for their sales pitch. They claim to have the only 100% pure Hemp oil with no other things added but a hint of mint to improve the taste. Their product comes in three different strengths. 250, 500 and 1500 How one measures the milligram strength from these numbers I don’t know. Of course the price escalates according to the strength. I use the 500 one and they recommend using one dropper. (a dropper is about 20 drops) This CBD oil appears to last from 4 to 8 hours so when using it I must use a dropper about every 6 hours. This does make it very expensive stuff.

        I like to use it for the anxiety issue because it does seem to mitigate the anxiety and make resting much easier. Seems to become effective within about 30 minutes.

        When it comes to the “pain relief” I don’t see their big claim as true. I see commercials put out by others that feature athletes touting the pain relief qualities but my experience has not been up to what they claim. If I was one of the rich athletes I don’t suppose the cost of it would stop me from using plenty to get pain relief results.

        With this company their “500” product costs $99 for a 1 oz bottle. Buy it 6 bottles at a time and the price per bottle drops (40%) to $69.95 per bottle. Invest in 12 bottles at once and the $99 price drops by 50%. Spending nearly $600 on 12 bottles to get the big discount looks very pricey to me. If I knew other people living close we could pool up and save ourselves some money but this is not happening.

        I would have no interest in CBD that was high in THC because I have enough problems with dizziness and I don’t need to be getting high.

        As far as legal goes CBD is considered legal in all 50 states. The Marijuana THC stuff is being legalized in several states in defiance of the federal law.

        Analyzing what Elon’s CBD gummies are it appears that each contains about 300 milligrams of “real” CBD and the daily consumption is 2 gummies. Looks like a very expensive product to me.

        Really disgustingly aggravating that my Medicare will pay on (unhealthy) prescription drugs but won’t even consider (out side the box) things that are generally harmless and do help with our problems.

        • Henk Noordhuizen May 4, 2018 at 2:37 am

          With 250,500 and 1500 they mean how many drops of oil are in the bottle.It is a mixture of hemp seed oil and hemp oil extraction using CO2 extraction. 500 drops is 30 servings,and per serving 25,6 mg of oil extract.This means every serving is about 16-17 drops.Nowhere any mentioning about the actual CBD percentage of the mixture,the oil extract or per serving.I searched the whole website but found no info on the CBD content.A bit odd….

          https://www.hemplandusa.com/index.php/Cannabitol-500-Full-Spectrum-Hemp-Oil-Drops-Tincture

        • Henk Noordhuizen May 4, 2018 at 2:45 am

          Another strange thing: both 250 and 500 (drops) are 30 servings,1500 (drops) are 60 servings.And the price is sky high. Should expect more info on quantity of the most important ingredient (CBD), in stead of no information at all.

        • Don Mowers May 4, 2018 at 6:03 am

          I can only defend my choice by saying the hemp is organically grown in America and the processing is all done in America with the CO 2 process. My understanding is that many of the others are using hemp grown in other countries and not using the CO 2 extraction process. They use different chemicals that can leave residue in the final product. I did find a site somewhere that gave the percentage of actual CBD in the “500” product. It was not on the Hempland USA site though.

          There are many “not so reputable” organizations jumping on the CBD band wagon. When people use these products and get NO results they give the product a bad name and others lose out on the benefits that they could gain. The one thing that really disturbs me is when they say a couple of drops will do it. The real amount is from 16 to 25 drops of the “good stuff”. I did read somewhere that it is traceable in the system for several days, but my finding is that the really felt effectiveness of CBD lasts about 6 to 8 hours. This requires multiple dosing daily to maintain CBD at a therapeutic level in one’s system. Gets expensive? YES it does!!!

          As I try to stress. Do your own home work when making choices. We all react differently to things we try.

        • Henk Noordhuizen May 4, 2018 at 8:53 am

          Why, and since when is “made in America” the magic term for quality? Since there is no information on theri website about the percentage/quantity of CBD in this oil I really have my doubts.And finding this information on another website makes me doubt that information even more.

          Best way for obtaining CBD oil is,still,making it yourself. In a save way (oil extraction) is very efficient,and save. Not just because there is no rsik of fire or explosion but also because ther is no risk of any unhealthy solvents used and part of it maybe left in the oil.

          The next link,which I posted here some time ago,is a test in which olive oil proves to be far superieur to alcohol and other solvents.I think that,because you heat the olive oil at 100 degrees Celsius,it’s even better to use cocos oil because it can stand higher temperatures way better than olive oil. Here, once again,the link to the test:

          http://www.cannabis-med.org/data/pdf/en_2013_01_1.pdf

        • Henk Noordhuizen May 4, 2018 at 9:00 am

          Here is a very interesting and comprehensive list of research about the medical qualities of cannabis.It’s called “Granny Storm Crow’s List” and it’s a must-read !!!

          http://salem-news.com/files/Granny%20Storm%20Crow%202018.pdf

      • Barbara Arnold May 4, 2018 at 7:22 am Reply

        Andrea, if you look on CBD users Uk facebook, there is so much really good info there and much cheaper products that people recommend. I find it all a bit confusing, but they recommend CBDa for pain, and also to start low and slow to wake up the endocrine system. Also they will tell you their experiences with different products. Generally the sellers will deliver to the rest of Europe from the Uk without any problem. Expensive doesn’t always mean good, and they tell you how to check out different companies as there a lot jumping on the bandwagon now. They should be able to supply a certificate of authentication, where the oil comes from and how its pressed and that it’s entirely organic.

        • Don Mowers May 9, 2018 at 8:52 pm

          Very well said Barbara.

    • harriet May 9, 2018 at 4:32 pm Reply

      Don I am in the UK and have asked this question before so please can u bear with me I have peripheral neuropathy plus tendinopathy. People on here recommend cbd oil, I am now at the point of seriously considering it. However I haven’t got a clue how to go about it. Can someone please advise me. Also concerned about the legalities.Thank you .x

      • Don Mowers May 9, 2018 at 8:45 pm Reply

        Harriet. About CBD oil. I don’t know about the availability and legality of it in the UK but here in the US the CBD is considered legal because it (for all purposes) does not contain the THC that marijuana does. They both come from the same plant but the plant that is used for CBD oil is very low in the THC. Where just the opposite is true of the plant that is used for marijuana.

        CBD oil’s effectiveness. When one researches the many things CBD oil is supposed to treat you see many different things. Are they all really true and effective? I don’t know but I can tell you that it does have an affect on “ANXIETY”. PAIN? It is supposed to be great for pain. Many of the commercials and ads tout it for pain. I don’t find it that effective against pain!!! Maybe it is just that pain receptors in my body do not respond to the CBD oil. Everyone appears to get different results from things.
        The only way to know is to try it. CBD oil appears to have “0” side effects. Don’t we all wish that were true for Fluoroquinolones!!!
        CBD oil dosage. CBD oil comes in many different strengths and some of them have other things mixed in with it. The one that I settled on comes from http://www.hemplandusa.com The reason is that this particular one is pure hemp CBD oil and only peppermint added to improve the taste. They are expensive. Do they ship internationally? I don’t know.
        CBD oil commercials are a bit misleading when it comes to the dosage needed. With mine I take a dropper full (about 16 to 20 drops) each time. It is said to be twice a day, but I find that the affect only lasts from 6 to 8 hours. I must repeat “expensive”!!!

        The peripheral neuropathy. I don’t find CBD oil beneficial at all there. What I have found to be beneficial to me is a “pill” product called Nerveology. https://www.nerveology.com/ It is made in and sold from California. I don’t know if they ship internationally. I also supplement it with R-ALA. R-Alpha lipoic acid. R-ALA is said to be much better than regular ALA.

        Don’t forget about your magnesium level. Pills are said to be from 4% to 20% absorbed by the body. Pills appear to be a very poor source. The ionic liquid magnesiums are said to be the best. Here I have gone to Dr. Carolyn Dean’s “ReMag”. https://www.rnareset.com/
        I hope that I have said something that is of use to you.

        I am sure that there are others on this site that are ready to dispute what I have said. If it makes your day, go ahead.

      • Barbara Arnold May 9, 2018 at 10:27 pm Reply

        Harriet, see my post above to Andrea. It’s entirely legal at the moment as well.

      • Don Mowers May 10, 2018 at 5:21 am Reply
  5. Andrea May 4, 2018 at 6:07 pm Reply

    Thanks everyone for the infos.
    Anyway just to let you know, I haven’t received an answer from EMA yet, so I don’t think they have selected me to speak at the earing. When I subscribed to it, the automatic response was that they’d let me know in about 2 weeks, so…

    • Barbara Arnold May 4, 2018 at 10:32 pm Reply

      Maybe send them an email Andrea ?

    • harriet May 15, 2018 at 6:07 am Reply

      Just read that flq eye drops Levo …. caused respiratory failure.

      • Don May 15, 2018 at 8:46 am Reply

        As I posted earlier. My “retina specialist” doctor is using Ofloxcin as an eye drop antibiotic after an eye injection. When I found this out I put a stop to it immediately. The damned fluoride is everywhere!!!

        • L May 15, 2018 at 9:23 am

          Every eye doctor I have spoken to since this (one optometrist and 3 ophthamologists) ALL said that it is standard practice here to use Cipro for cataract surgery (and steroids!)

        • Don Mowers May 15, 2018 at 9:50 am

          Is it ignorance, denial or what? Pharmacists and doctors say that they would not give these antibiotics to a relative or friend yet we have doctors, clinics and ER’s that give them with absolutely NO” caution. Disgustingly disturbing!

        • Henk Noordhuizen May 15, 2018 at 10:24 am

          Same for chemo and radiation,according to 2 different,annonymous survey’s under oncologists,about 10 years ago. Ethics are all gone in the science based medical world.Guess who are the real quacks!

        • L May 15, 2018 at 10:47 am

          Exactly! And it is infuriating how effective their PR has been. Sometimes I will post something on facebook about a natural treatment for something, and I will get all sorts of nasty replies, with people vehemently supporting AMA/FDA/big pharma status quo.

        • L May 15, 2018 at 10:39 am

          A little of both I think, Don. One of the ones I stopped seeing is world-renown. He gives talks all over about eye issues. His bio is beyond impressive. Yet when I saw him at my worst he kept being very dismissive about the Cipro being the cause of all my sudden eye problems. I looked him up on dollars for docs. He had taken $20,000 from pharma. I stopped seeing him. I just looked him up again, and the past year it was $67,000. I left another one after he stuck up for the first, saying ALL doctors do, and it’s really not that much money because they have to travel around to lecture. Seriously? That’s an explanation?

  6. Ronna May 5, 2018 at 4:12 am Reply

    The doctor has ordered a Modified Barium Swallow and a test for SIBO due to my GI issues and inability to gain weight. Has anyone had any good results that helped them with these tests?

    • Daniela May 5, 2018 at 10:08 am Reply

      Maybe if you ask what the doctor would do if the results were positive, you could do that in the meantime and see if it helps, and that would give you your answer without the test.

      How long have you had the problem, because SIBO supposedly takes a long time to manifest. Most of us lost a lot of weight at the beginning. Wouldn’t someone suffering from fq’s develop sibo after a while, not at first?

      Taking cipro definitely messes with your digestion, perhaps by killing off good bacteria along with the bad. The SIBO idea is to kill off even more bacteria. An alternate route might be to increase good bacteria or balance bacteria, with sauerkraut or other probiotics. You could do that right way and see if it helps.

      It’s not easy to figure out what to do!

      • Don Mowers May 5, 2018 at 10:56 am Reply

        Is my cynicism showing? The good doctor no doubt has a pill he is more than willing to prescribe. Seriously, I am reading that health begins and is centered around the gut. The idea of probiotics, sauerkraut and other fermented foods is a good idea.
        “It’s not easy to figure out what to do!” When people don’t want to believe you and there is no clearly lighted path it is definitely not easy to figure out what to do next.

      • L May 5, 2018 at 10:58 am Reply

        This might be of interest. I would definitely not want someone to give me antibiotics for SIBO…seems so counter-intuitive https://www.drweil.com/health-wellness/body-mind-spirit/gastrointestinal/diet-to-cure-sibo/

        • Daniela May 5, 2018 at 11:45 am

          Great link, L. And we also have to ask ourselves, What is my body trying to do when I have X symptom? We need to (re)learn that our own body is where we should place our trust.

          For example, with food poisoning we need to flush it out but conventional medicine tries to suppress that.

          Maybe weight loss is trying to slow us down while we get the bacteria levels sorted out, or there are new food sensitivities that need to be sorted out.

          It takes time and it’s not easy but it is doable.

    • L May 15, 2018 at 9:25 am Reply

      To be honest, I no longer see any doctor that would order that. I see only NDs or integrative doctors, and they know what to advise without having to go through that. They would not require xrays unless it was something absolutely necessary,

  7. Don Mowers May 5, 2018 at 11:17 am Reply

    I just ran on to this article on “Sepsis”..
    https://www.simplemost.com/sepsis-deaths-teenagers/?utm_campaign=geek&utm_source=facebook&utm_medium=partner&utm_partner=geek

    Since we floxies are obviously compromised it appears that we should be aware of this. Sepsis appears to be somewhat of a sneaky thing masquerading as other problems at first.

  8. T May 6, 2018 at 8:38 am Reply

    Hi guys , I was wondering if any of you had recommendations to help me out, I’ve been floxed like 5 years ago and felt like I recovered from not being able to walk down the stairs to running good distances, but just a few weeks ago I took a few pills of bactrim for a amoeba I caught travelling and knew right away that was a very bad idea, I now feel stupid for doing that, because I have burning and hot sensation through my body mainly in arms I did work out while I took the stuff but it was only a few pills then I quit for the burning reasons, ugh . I have done so well this year to have it taking away from a few pills , what a bad idea , now I’m back to recovery mode and trying to figure out what to do, I don’t think any antibiotic is safe for me, and will do my best to avoid all pharmaceuticals,

    • Daniela May 6, 2018 at 9:47 am Reply

      Put ground turmeric on the spots (just a little because it really stains) and make turmeric tea and drink every day.

      • T May 6, 2018 at 11:13 am Reply

        Thanks Daniela will do , yes it feels like inflammation in knees and elbows now from a couple pills jeez it’s so agrevating that I gambled with my health after feeling pretty good ,the lesson is learned , best of luck to everyone trying to recover !

        • Daniela May 6, 2018 at 2:31 pm

          We learn the hard way, don’t we? It’s good to keep telling our stories.

          The doctors tend to overprescribe for things like this, especially if they harbour certain attitudes towards other parts of the globe.

          I love to travel as well. Maybe you can ask someone in the country or region you visited what they would do?

      • harriet May 14, 2018 at 4:06 pm Reply

        Daniela How do you make turmeric tea please.

        • Henk Noordhuizen May 15, 2018 at 2:30 am

          Grind equal parts of Turmeric and Ginger (bio) and put it in cooking (bio) milk. Let it cook for 5-10 minutes and than throw it through a sieve. Mix a bit of (bio) honey and there you have a famous,deliscious and very healthy drink from India :-)) Enjoy!

        • Henk Noordhuizen May 15, 2018 at 2:36 am

          Here an interesting recipy for you. Found by asking for a “Turmeric tea recipy) in my search engine :-))

          https://wellnessmama.com/223/turmeric-tea/

    • Bob May 6, 2018 at 4:58 pm Reply

      You might consider contacting Dr. MUELLER at Homeopathic Associates for treatment. He uses clearing remedies for pharmaceuticals such as antibiotics even cipro. I am working with him and it is starting to work after 3 months. I am much worse than you as I hardly left the house last year. He might be able to clear you up fairly quickly. He works with people over the phone.

  9. Don Mowers May 6, 2018 at 9:52 am Reply

    Just a comment. One of the problems that floxies have is peripheral neuropathy. There are many different things that are supposed to help the problem. One that appears to be worth a look is “Nerveology” https://www.nerveology.com/
    As I always say. Do your own research and then make up your own mind.

    • Bob May 6, 2018 at 4:46 pm Reply

      Looks like a good formula except for folic acid which is toxic to many. Methyl folate is far superior.

      • L May 6, 2018 at 5:24 pm Reply

        Thanks for pointing that out. It saved me looking into it. I have the MTHFR mutation and I am wondering now if a lot of my congestion issues I am dealing with is because while I had been taking the correct type of folate, the other b complex I was taking had folic acid. So I imagine I have been building up quite a bit. (not to mention sour dough bread, which seems to agree with me gluten-wise, but I just realized my brand also had folic acid. ugh.)

        • Bob May 6, 2018 at 5:55 pm

          I have the mutation also. Folic acid is toxic to use and they put it in many foods. IF a supplement manufacturer is using folic acid it’s because it’s cheap. So what else are they cutting corners on?

        • L May 6, 2018 at 6:00 pm

          yeah, it is astonishing how many products contain it. I am dealing with some major allergy issues, and I have been reading about how it can be related to gut issues. I have been taking probiotics but now I have read there are certain strains I should avoid. I wonder how much accumulation I now have of the folic acid and how it is manifesting….It gets so complicated!

      • Don Mowers May 6, 2018 at 6:07 pm Reply

        That’s the problem with what I call “soups”. The pill is formulated with some things that people can’t tolerate. Most things are beneficial but there is always a couple added things that screw it up.

  10. Ronna May 6, 2018 at 10:05 am Reply

    I guess I want the test for SIBO to see if that is a real problem. I have had no hunger for 16 months now and I miss that part of my life. Maybe I don’t have SIBO, I want to know. If yes, I will rethink the antibiotics. Has anyone else lost their hunger? They try to tell me it is a mental problem, I know better, the more you try to convince the doctor the crazier they think you are.

    • Daniela May 6, 2018 at 5:21 pm Reply

      It can be useful to get diagnoses. “Crazy” works, too!

    • T May 6, 2018 at 7:34 pm Reply

      Have you tried oregano oil for sibo ? 200mg 3x a day , lots of good info about it , hope it helps

  11. Andrea May 6, 2018 at 6:26 pm Reply

    Ehy guys, after the last disappointing experience ( I’m almost sure I’m not going to speak at the EMA earing) and after keep reading all your stories, everyday, I was thinking one thing :
    what if, we, all together, create some form of “floxie earing” online or create a petition and send it to, I don’t know, radio stations, youtube channels, the FDA, the EMA, I mean trying to raise our voices, in the hope that at least, our illness will be recognized by doctors, and so we’re not going to be treated like delusional jerks by them anymore. Think about, if hundreds of singatures will be collected, and people would start talking about us, maybe something would change. Let me know what you think about it, and if you have some idea on how to move in this direction. Thanks.

    • L May 6, 2018 at 7:29 pm Reply

      I have thought similarly. I have personally sent dozens and dozens of letter and emails to politicians, talk show hosts, news reporters, influential people. I have envisioned people making a chain, holding hands, across the countries most impacted. (Of course some are too ill to even do that.) I don’t think the FDA would do much but I do think others need to know, that are in a position to actually do something about this.

      • Andrea May 7, 2018 at 3:20 pm Reply

        And nobody answered you?

        • L May 7, 2018 at 4:39 pm

          Nope. I actually didn’t ask for a direct response per se…more “look, this is what’s happening, gave statistics, links, etc said something needs to be done …too many injured, etc. But the thing is, NO ONE wants wrangle with big pharma. They’re like the mafia.

  12. Ronna May 7, 2018 at 3:36 am Reply

    How do I know if I have the MTHFR mutation? Should I not have folic acid in my B vitiamin?

    • L May 7, 2018 at 9:23 am Reply

      you need to be tested. it’s a blood test. my doctor used a lab called true diagnostics. you can also do the tests I believe through places like 23 and me

      • Bob May 7, 2018 at 6:13 pm Reply

        I got the test through Quest.

        • L May 7, 2018 at 7:02 pm

          oh I didn’t know they did that. They didn’t do a bunch of the other ones I got at the same time, so I guess that’s why he had them done through this other place.

    • A. Coleman May 8, 2018 at 11:50 am Reply

      Ronna – I just got my MTHFR gene tested and was heterozygous for the C677T loci. I am still waiting to work with my integrative medicine specialist to see how we want to proceed. This basically means that I am only about 65 to 70% as capable of methylating as someone who is homozygous normal.

      As part of the follow-up my doc ordered folate, B6, B12, and homocysteine level checks. Based on those levels we can design a plan to start treating with 5-MTHF, the version of folate that bypasses the methylation process. Getting the results of the blood work is critical though because too much of the 5-MTHF can cause cancer by over methylating.

      I really bet that a huge number of floxies have gene defects in this pathway as it would explain lots of our symptoms. The FQs nock out many of our mitochondria and then roughly half the ones we have left are non-functional in the methylation process, so instead of 65 to 70% effective at methylating I suspect someone suffering from FQ toxicity may be as low as 30 to 35%. AND that is for someone who is heterozygous like myself. I suspect many FQ toxicity sufferers are homozygous recessive or double heterozygous for the 677 loci as well as the 1298 loci.

      I will update the site once I get my blood work back and take off on a treatment approach. I am excited because I have been getting quite a bit better the last few months and hope this may what gets me over the finish line to recovery.

      • Bob May 8, 2018 at 4:31 pm Reply

        I came to the same conclusion awhile back. This test should be done before anyone even thinks about taking cipro.

        • L May 8, 2018 at 4:41 pm

          Seriously. I have the A1298C one. I would love to see a count of how many on this site have one or both mthfr mutations…although of course not everyone has been tested. I don’t think it’s the whole picture, but certainly a part of the damage. I’m gonna do a little check on another site and report back

    • Henk Noordhuizen May 8, 2018 at 12:42 pm Reply

      Folic acid is 100% synthetic. And not the form that is acive in the human body.My personal guess is that uptake of Folate *the natural form) from natural sources like spinach and other green vegetables,and nuts,is to be preferred.

      • Bob May 8, 2018 at 4:25 pm Reply

        That’s always the best but some people improve with the methyl folate supplement. Folic acid is likely toxic.

      • A. Coleman May 10, 2018 at 7:32 am Reply

        Henk – people with the MTHFR mutations have trouble converting folate to its methylated form, which is the active form. As Bob notes for those people it might help to bypass the methylation process and have them take the methyl folate supplement.

        Folic acid can’t be broken down effectively by those with MTHFR gene defects and can build up increasing homocysteine levels leading to circulatory and heart problems. Thus MTHFR sufferers should avoid foods fortified with folic acid or supplements that contain this “cheap” version of folate.

        Using methyl folate bypasses an important checkpoint in methyl regulation in the body and can possibly lead to cancer, so should be done under a doctor’s direction. You can get methyl folate as a supplement in various different amounts. I personally plan to work with my integrative medicine specialist to determine the amount that is needed after reviewing key indicators I mentioned in my post above.

  13. Andrea May 8, 2018 at 2:37 pm Reply

    Hey guys.
    I want to share with you a curious fact that happened to me today.
    This evening I received a phone call from a physiotherapist who was treating me a few months, maybe a year ago. He’s a good guy. He’s not one of those therapist/doctor who cares only about the money, and, despite his lack of knowledge about FQ’s, he always seemed very interested on my issue. He always listened to me and he was also trying, without me asking for it, to get as much info as possible on these side effects from his collegues. Anyway, today he called me and asked me how I was doing and if I finally got better. He asked me that, because the day before, another patient, came to him with my same issue (tendon pain) after just 2 pills of the same antibiotic I took.
    Needless to say I was so disappointed. Not for him of course, but because of the doctor who prescribed that stuff.
    He told me that the man ( the patient) immediately got scared, called the doctor who prescribed the FQ and the doc told him to stop with the “cure”, immediately.
    Now, my observations here : if the poor guy started to panic immediately, the doctor, very likely, already knew and told him that the shit could cause the “tendinopathy”, but he probably considered it a remote chance ( ignorant mofo). These dumbasses keep prescribing these evil drugs, and they know the side effects on the warning label, but they don’t bother to ask themselves “uhm, tendinopathy from an antibiotic? that’s weird, why’s that? maybe I should read a little bit more about this one, maybe looking at what the scientific literature says, and you know, I’d avoid to destroy other’s people lfe”, but no, hey! they’re doctors, they already know everything they need to know…

    • L May 8, 2018 at 3:43 pm Reply

      It just sickens me, the number of people STILL being prescribed these toxins. I know a young woman who was given them for a UTI AFTER the warning came out last year. Doctors only seem to get their info from sales reps. None of them bother to check even black box warnings.

      • Andrea May 8, 2018 at 3:47 pm Reply

        That’s crazy. I’d defenetly sue that bastard who poisoned me, but like I wrote in other posts, I need evidence of the damage I suffered, and for now I have none.

      • harriet May 9, 2018 at 6:53 am Reply

        L , Andrea They never check the side effects. One dr was attempting to give me iv antibiotic last week. I stopped him. They never learn.

        • Don Mowers May 9, 2018 at 8:02 am

          I went to the ER. The urine sample indicated high white cell count (infection). The first treatment ordered by the ER doctor was Levaquin IV. Here is my interesting after the fact observation. I was kept and admitted to the hospital for “observation”. Over the next 30 hours blood was drawn at about 5 hour intervals. Following the blood draw I was given a pill.
          Finally I had, had enough and said what is going on. I was told that my magnesium was low and they were trying to raise it. Now as I look back I am thinking that the ER doctor knew that Levaquin would zap the magnesium from my system and was keeping me in the hospital in case of a reaction to the antibiotic. Was there profit involved? You decide. For a 30 hour hospital stay as “observation” I was billed just over $20,000. Medicare agreed to pay them about $2,400.
          I am now dealing with all the symptoms of a floxie.

        • L May 9, 2018 at 9:00 am

          that is why I now avoid all allopaths whenever possible. I have an integrative MD, and the rest are naturopaths, acupuncturists, etc Pretty much done with western medicine

        • Andrea May 9, 2018 at 2:30 pm

          You said it. Never.

  14. L May 8, 2018 at 6:20 pm Reply

    Hey Lisa….So a number of people on this site as well as a number in a another flxoie group I am involved in, all have either one or both of the Mthfr mutations. Do you have any information on if/how that contributes to our injury? Makes us more susceptible? Are you aware of any papers out there on this? Ok, just saw your older post on this. Anything more recent on this that you are aware of? https://floxiehope.com/2016/02/18/mthfr-genetic-mutations-and-fluoroquinolone-toxicity/

  15. Barbara Arnold May 9, 2018 at 8:59 am Reply

    Don……OMG if it wasn’t true, it’s unbelievable. Terrible negligence in duty of care. Freakin cost is outrageous. So sorry.

    • L May 9, 2018 at 9:11 am Reply

      Ignorance and greed. Deadly combo. Interesting that medicare pays for these toxins, but nothing that is natural that will help heal you, and not owned by big pharma

      • Andrea May 9, 2018 at 2:45 pm Reply

        Exaclty. Ignorance and greed. Just like with medical cannabis or CBD, they still keep saying that is a drug, that is bad for you, that it doesn’t cure anything…worthless close minded fools, they keep pushing pills down your throat but if you try to ask them about cannabis they laugh at you. Also psychiatrists are another brillant category. How many children are being drugged for some supoosed mental disorder or how many people are diagnosed with “depression” and start taking anything these fools prescribe to them…that’s just crazy

        • L May 9, 2018 at 2:56 pm

          I was on antidepressants for decades and was told I would need them for life….and this was from a doctor I trusted so much. He was the sweetest man. Used to refer to him as my Yoda. But he was brainwashed like all the rest. There has NEVER been anything to back up this theory about depression being cause by a chemical imbalance. And I think all the pills did was cause me other health issues. When I read about a study done showing that turmeric (95% curcuminoids) was more effective than Prozac, I weaned off my antidepressant and onto the turmeric. I was doing great…then Cipro. Still, never went back and never will.

        • Andrea May 9, 2018 at 3:06 pm

          I know L, it sucks…
          anyway, EVERY antidepressant/sedative has many potential side effects. Many of them are also related to sexual function, either in men and women. Imagine taking something for your depression and not being able to have sex, or not enjoying it the same way anymore. Only this it’s, in my opinion, a huge cause of depression, not a chemical imbalance or like many of them love to say a “pshycological factor”…LOL

      • Barbara Arnold May 9, 2018 at 10:32 pm Reply

        L….how did you take the turmeric ?

        • L May 10, 2018 at 10:21 pm

          I took capsules. just make sure you get 95% curcuminoids in a reputable brand. I think it was 1,000 mg a day, but do a search There is a lot of info out there on this study. Just google turmeric vs prozac

  16. Barbara Arnold May 9, 2018 at 10:57 pm Reply

    I have just found out on facebook, that if you have applied to speak at the EMA you may not have been given your answer yet. Also your loved ones can also email them to tell their side of the story. You can also email even if you have applied to attend. I urge ALL Europeans on this site to do so, please don’t leave it up to others. Even if you are Swiss I would send an email. The EMA is different than the FDA so who knows what will happen, we just may make a difference. Thanks the email is Nathalie.Bere@ema.europa.eu

    • L May 10, 2018 at 9:34 am Reply

      I would encourage everyone to write even if they are NOT in Europe. I am in the US but I sent an email and got a thank you.

    • Andrea May 10, 2018 at 11:21 am Reply

      Barbara, what do you suggest to write them in the email? I applied to the earing but no answer yet

      • Barbara Arnold May 10, 2018 at 10:11 pm Reply

        Andrea, I answered the questions they asked and gave my reasons why, explaing what happened to me. Telling them that Docs are wrong thinking it’s rare. I have to go out now but will post what I said later. Anyone that you are close to can write also.

  17. Andrea May 10, 2018 at 2:58 pm Reply

    Hey guys. Do you have any infos about Fq’s damage and hormones? Since my urological issues got worse after the fq, I’ve done the vasopressin blood test (antidiuretic hormone) and it seems to be too low, that could be the reason why I urinate so much, even if I drink normal amounts of water.

    • Barbara Arnold May 10, 2018 at 10:11 pm Reply

      Lisa has a whole post on hormones on this site

  18. Barbara Arnold May 10, 2018 at 11:52 pm Reply

    This is what I emailed to the EMA. The email address for the EMA is Nathalie.Bere@europa.eu

    Treatment Risks ?…….Being prescribed Cipro over the age of 60 years as I was. Being precribed cortizone injections at the same time, which is contraindicated, as I was.
    Result….TENDONOPATHY, TORN TENDON, CHRONIC FATIQUE, UNABLE TO WALK, CHRONIC PAIN, PERIPHERAL NEUROPATHY. INSOMNIA, HEART ARRYTHMIA, BALANCE PROBLEMS
    DEPRESSION.
    Three and a half years later and some €10,000 spent to try to heal myself (as there was NO HELP from the Medical Profession,) I am in CONSTANT PAIN EVERY DAY. I have INSOMNIA and BALANCE PROBLEMS. I have PERIPHERAL NEUROPATHY. I have gained 28lbs as I am unable to exercise anymore.
    All this because I had a bout of BRONCHITIS, which could have been treated with other safer medication and would not have changed my life so devistatingly.

    My Opinion on safe Use ? DO NOT PRESCIBE IT UNLESS IT’S A LIFE OR DEATH SITUATION.

    Doctors insist the side effects are rare…what’s rare is Doctors do not connect the dots as fluroquinolones are cummulative. Some people can take a fluroquinolone without any side effects as I COULD, I WAS PRESCRIBED CIPRO AT LEAST 3 TIMES BEFORE THE BOMB WENT OFF IN MY BODY. Some people do not get an adverse re action until weeks later, therefore never realizing what’s happened to them.
    There has been A HUGE INCREASE IN FYBROMYALGIA, at the same time as an increase in overuse of Fluroquinolones. Research needs to be done.

    To sum up, In my opinion the risks FAR OUTWEIGH THE BENEFITS, other safer medications can be used, especially for minor infections like Bronchitis, Sinus infections,and others.

    Safe Use ? There is NONE.

    I asked a local Pharmacist if he would give a fluroquinolone to his family or friends, his answer was NO.

    Barbara Arnold

  19. Barbara Arnold May 11, 2018 at 12:01 am Reply

    My email is short and to the point, because I think they will take more notice. Don’t know just guessing. They are cutting down on the use of antibioctics in the UK and also here in Spain. They are getting desperate because of the over use and the costs. There was notices on my Health Centres ( laugh) doors asking patients to stop asking for antibiotics. Pity they didn’t think of that before they poisoned us.

  20. Henk Noordhuizen May 11, 2018 at 2:38 am Reply

    And YOUR viewpoint is…….?

    • Barbara Arnold May 11, 2018 at 2:52 am Reply

      Henk, I dont understand your question

      • Henk Noordhuizen May 11, 2018 at 3:06 am Reply

        Barbara, the question was not ment for you. Sorry. It was ment for Sunbun,because of his critics on Lisa,as you may understand from my new reply. I pushed the “reply”button in the mail,and the box where I typed that question had a “reply to Sunbun” remark on top,just like with my extended reply to Sunbun. After the first reply I saw that it on the webpage it looked like I was answering you,and I wrote the second,extended reply. Which came on the website the same way?!?!

        Now I scrolled through this page,looking for this critics of Sunbun but I can’t find it. Strange: I received it in my mailbox and still have it there. I’ll copy it here and you can read it yourself. And understand why I am mad at Sunbun.

  21. Henk Noordhuizen May 11, 2018 at 2:53 am Reply

    And,Sunbun,YOUR viewpoint is…..?

    Sunbun,we are all searching for answers on matter that is not yet fully recognised,nor understood by medical science. We all do the best we can to gather information on the topic and share it.And we hope to find solutions for all the adverse reactions way before the “medical scientists” do because they are way behind us. We know from experience that these adverse reactions are real (not between the eares) and we are confronted on a daily base with the damage these poison pills do to the human body while the “professionals” still argue about,maybe,putting a more serious warning on the box.

    Of course we sometimes make mistakes in interpreting the info we found; we are no professionals/scientists,but,at least,we do our f……. best to help each other find a solution.

    I hope you appologise to Lisa for your critical attack; we are gratefull for the way she tries to offer us a way to share OUR VIEWS and,hopefully find solutions for those nasty adverse reactions. Thank you,Lisa;I think you’re GREAT !!!

    • L May 11, 2018 at 9:43 am Reply

      I had the same reaction Henk. (no actually mine was more WTF?) I think “sunbun” was a troll. We had a troll on this site a couple years ago who switched names a couple times…may be the same person. I think Lisa removed the post, because I don’t see it anymore. But yes, whoever it was, they owe Lisa an apology.

      • Don Mowers May 11, 2018 at 9:47 am Reply

        I also saw the post and was very disappointed with it. If you can’t say something good don’t say anything at all. If it has been removed I am glad. It had no place here!!!

    • Lisa May 11, 2018 at 11:07 am Reply

      Thanks Henk, L, Don, and others! I’m pretty sure that “sunbun” was a bot of some sort. I hit the “spam” button as soon as I saw the comment. It was too odd and convoluted and WTF to be real. I really appreciate the support and rallying though! 🙂

      • L May 11, 2018 at 11:18 am Reply

        After all you have done Lisa, we ALL have your back! xo

  22. Barbara Arnold May 11, 2018 at 3:00 am Reply

    I still dont understand what you are talking about Henk. I would NEVER criticise or ATTACK Lisa. I think your getting mixed up with something else. Please point out to me where you think I have been critical and attacking ????

    • Henk Noordhuizen May 11, 2018 at 3:12 am Reply

      Babara,here is the content from Sunbun,on which I answered by pushing the REPLY button in the mail.My replies were ment for Sunbun and I still don’t understand why my replies end up being placed as being a reaction to you. They are not!

      Here the content of the comment from Sunbun;see for yourself why I got mad at him/her:

      Sunbun commented on Floxie Hope.

      in response to Lisa:

      Together with every little thing that appears to be developing inside this particular subject material, your viewpoints happen to be quite stimulating. Nevertheless, I beg your pardon, but I do not give credence to your whole idea, all be it radical none the less. It would seem to everybody that your commentary are generally not entirely validated and in fact you are generally yourself not really fully convinced of the assertion. In any case I did enjoy examining it.

    • Henk Noordhuizen May 11, 2018 at 3:26 am Reply

      And another new thing: suddenly my mails have a “Reply” button.First time since I registered here. And,once again,Barbara: my critics were NOT ment for you,but for Sunbun. Still don’t understand why,two times after another, I pushed the reply button in the mail I received with the comment from Sunbun,on the website I type my reply in a box with the header “Leave a reply to Sunbun” and then my reply ends up like being met for you.

      I hope that,by now,you understand that my critics are defenitly NOT for you,but for Sunbun. And I am sorry for the misunderstandings,and you being upset. No reason for that.

      • Barbara Arnold May 11, 2018 at 3:44 am Reply

        Phew….thanks Henk, I get it now. I think that Lisa probably deleted the post as it was obviously a Troll. No worries and thanks for the explanation xx

        • Henk Noordhuizen May 11, 2018 at 4:24 am

          Don’t mention it. It took me a little while to understand hat went wrong,too.

          I hate trolls like Sunbun (probably misspelled sunburn).I see them all over the web, those digital cowards,hiding themselves behind an alias.
          I wish you a fine day,Barbara. Hugs from “the Hollander ;-))

      • Tara May 11, 2018 at 9:10 am Reply

        Hi Henk,
        I am not a regular on here quite as much anymore. I’m 19 months out and my symptoms ebb and flow. My biggest issues are my vision and cognitive faculties. Most of my neuropathy is in my face, hands and feet. The hands and feel cycle. I usually always have something with my vision. I’m hitting a down cycle. I had perfect vision until I took predisone and doxycycline about 2 years ago for sinus issues. I started having some issues with my vision then (difficulty focusing and increased head pressure), but it was starting to improve and then about 6 months after that I had taken a few rounds of Augmentin and then the flagyl and cipro together and that’s when the floaters started. I woke up one morning and it was like the attack of the crows in my eyes. I was also terribly light sensitive. I had unimaginable pain in my eyes and behind my eyes and pretty much everywhere in my face. I ended up having delicate sinus surgery right before the cipro and flagyl (which was given for stomach issues likely related to the other antibiotics, as I never had them before)… and I’m sure the cipro didn’t help it. I had just about every side effect imaginable… I was dizzy every day, all day for a year. I swear it did something to my frontal lobe. My vision issues are neurological, I’m sure. I am fearful that my optic nerve was damaged in some way, but it checks out “OK” on an eye exam. The floaters are beyong annoying. I had toxicity of the vitreous gel, so I have a lot of extra stuff floating in the gel that I see all day. If I could just have the floaters go away, I could deal with a lot of the other stuff. Unfortunately, I am having a downturn again of symptoms. Never sure what triggers it. Light sensitivity is back. I have a really hard time in store lighting. I used to love to shop. Going to the grocery store was like therapy to me. Now, it’s never fun because as soon as I enter the store, it’s like a shade is drawn over my visual pathway in my brain controlling my right eye, I have some nerves on my neck that pulsate, and I become a total space cadet. I am trying to go without the prism glasses. I have gone without them for 6 weeks. Maybe it was too soon, but like you, I want to force things to work in the hope that they heal. I am sorry we are both going through this experience! Have your eyes improved at all? What have you done for the floaters?

        • Daniela May 11, 2018 at 2:54 pm

          The grocery store (supermarket) issue is very real. The strobing of the fluorescent lights? Or the rows? It hits me as soon as I go in the door, still have it a decade later.

        • Henk Noordhuizen May 13, 2018 at 10:58 am

          Hi Tara,I’ll answer your questions a better way another time because I got a headache and my vision,after a good start this morning,is unstable again. Comes and goes,so a special pair of prism glasses won’t do much good here.

          Had my first floater(s) in 2004,as you may have read here,and they disappeared after quite a long time.Now I got one,again,in my left eye,while my right eye is struggling to focus on the same place as the left one.In the dark,or when I closw my eyes,and move them around,I got some kind of a lightshow.

          In 2004 the floaters were very dark (actually,it was blood,from a bursted bloodvessel). This is more annoying than the ones I have now;those seem to be more transparent.

          All I can say is that,in time,most floaters disappear (more or less), and your mind starts filtering them out as well,kind of ignoring the signals.

          One thing that might help: always sleep on the side where the floaters are most severe (right- or left eye). The floaters will sink down in that direction and,hopefully,settle there, where you will have less notice of them.

          My eyes get tired very quickly,specially while reading;I hate that. Can’t read more than one chapter (E-reader,black backgroundlight with red characters,and light intensity on lowest position). Sometimes even one chapter is too much.

          When my problems with my eyes started,few months ago,and 1 1/2 years after I used Cypro for 2 days (!) I had pain in both eyes,like somebody torturing them with needles and knives. Most of this pain is gone;now they heart when they are tired.And then they hurt badly most at the backside.Like you,I think most damage is in the nerves,but here too,tendons might be damaged as well.

          Somewhere in the upcoming days I’ll read your questions once more to see If I can give you better,and more answers.Wish you the best!

  23. Andrea May 11, 2018 at 4:40 am Reply

    Hey Barbara, after applying to the hearing and receiviing no resposne, yesterday I sent them an email at the address you posted, asking them why they didn’t answered me yet. Here’s her response :
    Hello Andrea,

    We had many requests, so it has taken some time to review and select the applications.

    The list of participants will be presented and adopted at the PRAC Committee meeting on 15 May, so then we hope to contact everyone on 16 May.

    Many thanks for your patience,

    Kind regards,
    Nathalie

    • Barbara Arnold May 11, 2018 at 5:36 am Reply

      So there’s still hope Andrea. Fingers crossed. It’s great that a lot of us have applied.

  24. Ronna May 12, 2018 at 4:17 am Reply

    Tara, do you have any GI issues? How is your head pressure after 19 months? I still have these issues after 17 months hoping they disappear one day. Any suggestions? Thankfully my eyes aren’t affected, that must be awful. Can you read and concentrate on what you read?

    • Tara May 14, 2018 at 6:30 am Reply

      Hi Ronna,
      The head pressure did settle considerably around months 15/16. I will get it slightly, but not like it was before. I could not have functioned without the prism glasses. Somehow, that calmed things down for me. Instead of head pressure, it feels like my cranial nerves are trying to “wake up” but are stuck. It’s a weird sensation.

      The vision issues are by far my worst “gift” from this experience. I have some neuropathy in my hands and feet, but my vision is wrecked and contributes to the mental aspect of this experience and the difficulty concentrating. I am always preoccupied with my vision. It’s like I have to think about seeing. I am having a bad cycle, again, right now. It’s always something with the vision. No day is every “good.” I work full-time (and have done so throughout this whole ordeal), but I have to read a lot at my job and use the computer all day and it is very taxing! Especially if it is a mitochondrial related issues. Most of my energy seems to be spent trying to use my eyes during the day.

      As far as the GI issues, it sounds crazy, but I am not sure. I know so much is related to the brain-gut connection, but it’s hard to say. I used probiotics daily for the last 2 years. When I was first floxed, I could not eat anything except salmon and vegetables for months because I reacted to everything. Everything that hit my stomach set off a reaction. I lost 70 pounds (Which I gained back). Like most, I never know what triggers a relapse. I tried eating clean versus the way I ate before (no restrictions) and I couldn’t say for certain that there has been a difference because the symptoms come and go regardless.

  25. Andrea May 13, 2018 at 5:45 am Reply

    Hi guys.
    I’m sure this topic has already been discussed, but I can’t find what I’m looking for in previous posts, so I apologize for bringing this up again, but lately I’ve been battling with some seroius sleep problems. For two main reasons : one is my bladder. It wakes me up many times at night, expecially when I’m finally falling asleep,,but the other one, wich I’m experiencing only lately, is this strange insomnia, that keeps me in this weird state of drowsiness for almost all night. I’m always half asleep half awake, and also lots of weird dreams or thoughts, rather, since I’m never completely asleep. Do you have any advice to help me out?
    I know many of you have already mentioned Melatonin, but I was reading that taking melatonin for extended periods of time, could led to your body to stop producing it, since it’s a hormone. Anyway thanks.

    • Joanneg May 13, 2018 at 7:54 am Reply

      Hi Andrea,
      I haven’t been on the site for a while, but I always check it, and when I saw your post about the insomnia and strange thoughts or dreams I wanted to let you know what always helped me was probiotics, specifically VSL#3. I’ve tried many others but that is the one that would always help me with the flashing nightmares or thoughts and the insomnia.

    • Joanneg May 13, 2018 at 8:02 am Reply

      Also, make sure that in your supplement regiment your not taking anything thats kills bacteria. Always check on google when you want to try a supplement ask if it is an antibacterial.

    • Henk Noordhuizen May 13, 2018 at 8:05 am Reply

      It is important,and confusing as well,to know that a magnesium defficiency,as well as TOO MUCH magnesium give the same symptoms. The time for taking a mag. suppl. is important as well;I noticed that,by taking my mag. around noon,right after my meal,worked way better than taking it togehter with my melatonine,shortly before going to bed.This might even be the most important reason to let your magn. level be tested.

      • Don Mowers May 13, 2018 at 8:44 am Reply

        Your magnesium level is just a wild guess unless you have it tested. A word of caution. The common and cheap blood test for magnesium level is the “blood serum” test.
        Now this test is kind of like taking your blood pressure after a run or your blood sugar after eating cake and ice cream. It is a snap shot of the magnesium blood level at that moment. Accuracy and reliability are very suspect.
        Since the really “high tech” tests are expensive and hard to get the best substitute (recommended by Dr. Carolyn Dean) is the RBC magnesium blood test. It tests a more stable level. The magnesium in your red blood cells.
        It can be done here in the US at “Request a test” and several others without a doctor’s order.
        Cost is around $49 up. What happens is that you go online and fill out the forms and pay. The testing company has a doctor on staff that approves and signs for the lab request. You are referred to a local (well established) lab for your blood draw. Either you are emailed the proper papers to print out and take with you or the company faxes the lab order to your chosen lab.
        I understand by reading some posts here that something similar is available in other countries.
        I had mine done at “RequestAtest”.
        Stop guessing!!! Get your magnesium level tested!!!

        • A. Coleman May 18, 2018 at 12:52 pm

          Don, I agree with getting an RBC Mg test to get an accurate count. BUT you can get it through a doctor’s orders and even have your insurnace pay for it. Agree that paying for the test isn’t a lot and either way it is advisable to know for sure.

          One caveat of my test that all should know was that I had to stop ALL supplements for 7 days to make sure none of the things I was taking were a drag on Mg levels. This wreaked havoc on my neuropathy as I had to stop my Vitamin D and B supplements. It took about 2 weeks for the negative affects to show then another 4 to 6 weeks to get back to the level of very mild neuropathy I was experiencing before the test.

          But, now I know my Mg levels are pretty good; only 0.3 ng/ul below what Dr. Dean recommends and well within the range of “normal” by conventional western medicine levels.

          Would love to hear what your levels were when tested?

        • Don Mowers May 18, 2018 at 4:22 pm

          My doctor told me that my Medicare Insurance carrier would not pay for anything but the “blood magnesium test”. Guess they are too cheap and care less about real accuracy of the mag test.

    • Joanneg May 13, 2018 at 8:58 am Reply

      I’m sorry, but I always think of things after I post. Anyhow, whenever I try to cut back or quit my magnesium the insomnia and weird thoughts or dreams would come, so magnesium has a definite role in it. So I would increase magnesium and take probiotics. Good luck 😊

      • Henk Noordhuizen May 13, 2018 at 9:02 am Reply

        When these symptoms come back as soon as you quit magn.suppl. this is a clear indication that you’re magn.defficient.You might try magn.oil for better uptake.

        • Joanneg May 13, 2018 at 9:18 am

          Hi Henk,
          I do use the oil, supplements, and occasional Epsom baths, but thanks for trying to help me out.😊

        • Henk Noordhuizen May 13, 2018 at 9:25 am

          I want to remind you of the importance of calcium, Vit. D and vit. K2 for an efficient uptake of magnesium as well. When one of those is missing or too low uptake of magn. will be less than optimal.

        • Joanneg May 13, 2018 at 9:36 am

          Henk, I am low on vitamin d (19) when last checked, so about 4 days a week I take Doctors Best multivitamin, which has 2000 iu’s V-d and some K , but it has low calcium. I choose this Multi V because my calcium levels were too high. Anyhow, i dont take them every day cause im paranoid of everything now, but your right, cause the days I do take it, I definitely feel better, so there’s something in them that I need.

        • L May 13, 2018 at 10:19 am

          I don’t take any calcium because too much in the bloodstream is bad, and so many things are fortified with it, even almond milk. But as for vitamin D, even though my levels showed in the normal range on tests, my doctor (integrative internist) put me on 10,000 units of d daily. Sometimes I go down to 5,000 but never lower than that. And at 5,000 you can find a good supplement that had K2 with it.

        • Joanneg May 13, 2018 at 10:46 am

          Hi L,
          How you been? Also do you know how Stephanie (the one who was having all the seizures) is?
          I might try a a higher V-d w/K just to see if it helps me.
          I went into a flare this Feb. from drinking that ozone water!! Warning: Don’t ever do that!! Anyhow, after that Dr. wouldn’t give me IV ozone I bought a little generator and made ozone water, and it destroyed my gut!! I probably would of been healed by now if I’d quit screwing around with all these crazy things, but I’m always looking for something to take the last remaining issues away.

        • L May 13, 2018 at 12:04 pm

          I’m doing ok. Still having breathing issues only now it isn’t the mito damage, it is because I assume my mast cells are so screwed up, I am constantly congested and it always drops into my chest. On 4 different herbs/supplements now but nothing is really helping. Might go back to acupuncturist. Jeez…the money I spend that I don’t have. Also now having a recurrence of the pelvic pain/pressure and on Chinese herbal medicine for that. Sure would be helpful to know what the hell sets off these recurrences!

          Steph is about the same. She’s got an amazing spirit and a great supportive (now) husband.

          Something else you might want to consider re repairing your gut is Restore. Something else to look into is Olive Leaf Extract.

    • harriet May 23, 2018 at 6:32 am Reply

      Andrea I know the answer is going to be a resounding no but please may I ask you if you have ever taken any benzodiazepines, opiates or anti depressants?

  26. Andrea May 13, 2018 at 11:06 am Reply

    Thanks everyone.
    Ehy Joanneg, how are you? I googled that probioitc you’ve mentioned. I only took some probiotic at the beginning of this waful jurney, just because I was scared, but I never really noticed any benefits, and luckly, I’ve never had, since being floxed, any problem wiht my guts. Did you? And if so, does the probiotic helped you in that regard. Thanks.

  27. Andrea May 13, 2018 at 11:11 am Reply

    Oh, just another thing. I’ve been always a little skeptical about probiotics supplements, because, I’ve read many times, that, while eating fermented foods (kefir, sauerkraut etc) it’s an effective way to help your gut flora, popping pills or powders, isn’t just as effective.
    What’s your opinion on that?

    • Joanneg May 13, 2018 at 11:22 am Reply

      Hi Andrea,
      I drink kefir and occasionally eat sauerkraut, but I don’t notice any help, but I definitely notice help right away with all stomach issues and the crazy dreams or thoughts.

    • L May 13, 2018 at 12:11 pm Reply

      Something to know too about fermented foods…while they may be great for many people, they can be a real problem for others because they are high in histamine and many floxies have histamine intolerance.

    • L May 15, 2018 at 10:44 am Reply

      As I mentioned earlier, some need to be cautious with fermented foods because they are high in histamine. Probiotics are great, if you get the right kind. They are not all created equal. You need them from a good supplier. They should have multiple strains and be in the billions of units.

  28. Joanne. May 13, 2018 at 11:31 am Reply

    Edit* sorry I meant to say I deff notice help right away with the VSL.

    • Andrea May 13, 2018 at 11:41 am Reply

      All right Joanneg. I’ll try it. Thanks

  29. Joanne. May 13, 2018 at 3:10 pm Reply

    Hey L,
    Sorry to hear your still dealing with those things. And yea, it’s so hard trying to figure out what flares us up. So far out of the 4 years i’ve been dealing with this, I only know 2 things that i’m absolutely and positively sure of that flare me up, and they are if I reduce or stop my magnesium, and if I take ANYTHING that has antibacterial properties. I figured out the magnesium rather quickly, but it took me about 3 years to figure out that antibacterials did it too.
    Anyhow, I hope you can find something that will help you, and thanks for letting me know how Steph is doing.❤

  30. harriet May 14, 2018 at 5:21 am Reply

    Hi Don Thank you very much for your comprehensive response. I have taken it on board and will be acting on it. The neuropathic pain is intolerable and I am at the point where I will try anything to alleviate it. I hope that you are improving and that you continue to send us info as it is invaluable. Many thanks once again.x

  31. Barbara Arnold May 14, 2018 at 6:21 am Reply

    Guys,
    My husband also sent a letter to the EMA, saying how it effected me and also the impact on his life. We got a reply saying that his contribution was very valuable and it will be taken into consideration at the ongoing review of quinolones and fluroquinolones.
    Also the hearing will be broadcast live from their website on the day….www.ema.europa.eu
    Be interesting to see it ?

    • Tara May 14, 2018 at 12:57 pm Reply

      Thank you for your earlier post, Barbara. Hugs to you, too. I did submit it to the address you provided. I hope it helps. We are all in this together!

  32. harriet May 15, 2018 at 9:23 am Reply

    Has anyone heard of an ac adrenal cocktail?

  33. Elizabeth May 15, 2018 at 10:24 pm Reply

    Has anyone heard of or tied the BX Protocol? It seems to be marketed for mitochondrial repair.

    • Henk Noordhuizen May 16, 2018 at 4:05 am Reply

      I found this on the BX Protocol,and it ounds like quackery:

      https://rationalwiki.org/wiki/BX_Protocol

      • Henk Noordhuizen May 16, 2018 at 4:09 am Reply

        And the BX website sure looks like it’s a quackery selling shop.Sory to disappoint you but this BX thing is probably not the best way to spend your money.

        • Elizabeth Dallas Voss May 16, 2018 at 3:11 pm

          That’s kind of what I was thinking – too good to be true.

        • L May 20, 2018 at 9:43 pm

          Again, not taking sides here….I haven’t researched enough to know much about this company, but I did find this and I think it is worth a review. http://bxlegalreport.com/

        • Henk Noordhuizen May 21, 2018 at 4:13 am

          I took a look at that website,spend some time reading and found nothing that convinced me. After all;evrything there is written by….Mr.Smith. Looked at the forum as well and discovered that al testimonials are placed there by the administrator (Robin H.),and not by the original writers.Strange! Might be fabricated testimonials.

          Well,I’m havin terrible backpain for a week now,and want to spend any more time on this BX discussion.Moving around works a lot better :-))

        • Barbara Arnold May 21, 2018 at 6:51 am

          Henk, I always found ozone autohemotherapy good for backpain, as well as the autohemotherapy, I have had a couple of ozone injections in my coxxyic, as it has been painfull from a fall I had which compressed my spine. I always feel better after ozone and I have more energy, thought I would just let you know.

        • Henk Noordhuizen May 21, 2018 at 7:28 am

          Hi Barbara,thank you for the advice.As I might have mentioned before,I bought my Sota devices from a webshop in Germany (Mediverse) because at that time there was no other company for Sota equipment availible in the EU. Only problem: they didn’t sell the Sota Ozonator because they had their own Ozonator,and,as their spokesman told me,it was cheaper (not thát much),and of equal quality as the one from Sota. Having no other choice I bought the Mediverse Ozonator and soon discovered that it was a cheap,and bad quality ozonator.

          The timer started to hang after about 2 month and I had to give it a push to get it started (it was a mechanical one!).Didn’t use it that much,over the years I had it,but a little while ago I noticed that there was no ozone smell anymore during runtime,and also the typical ozone taste when ready was missing: it wasn’t working anymore. The airpump still works but the ozone generator itself is “kaput”.

          O could have looked for a friend with a creditcard to help me buy a descent one directly from Sota but I hate leaning on somebody else.So I took the garantees from Mediverse for granted,paid about € 250 for the Mediverse instead of € 350 for the one from Sota and that proved to be a big mistake.

          While it worked I,like you,noticed a direct energy boost after drinking a glass of ozonated water. Mainly used it during doing the Beck protocol because it helps remove the killed pathogen from your body,thus preventing a hefty Herxheimer reaction.

          It will take time for me to find enough money to by the one from Sota. I talked to the guy who is selling it here and asked him for a refurbished one.He promissed to let me know when he’s found one which I could then buy for a reduced price. I bought some new accessoires from him and asked for an older type of wire for the Silver Pulser.He had one,second hand and gave it to me without payment because it was an older type,not fitting to the newer Silver Pulser model.Great guy! I really hope he’ll find a refurbished Sota ozonator for me soon.

          In the meantime I will take apart the broken one and hope that I can find that broken ozone generator new on the web; it won’t probably cost that much because shortly after buying that rubbish from Mediverse I found the same ozonator on a chinese website;only thing different was the Mediverse sticker. And it cost a fraction of what I payed Mediverse.It was,of course,the Mediverse sticker that made it so expensive :-((

        • Barbara Arnold May 21, 2018 at 9:37 am

          Henk, I also have a machine from Amazon to ozonate my water. But I go to a private hospital for ozone autohemotherapy from an orthopedic surgeon who has used autohemotherapy for 20 years. He also does operations on the back with ozone. So I think it’s a different thing to what you are talking about. With ozone autohemotherapy he extracts blood injects it with ozone and vitc then drips it back in to me. Hope this helps.

        • Henk Noordhuizen May 21, 2018 at 9:51 am

          That’s right: the methode I use pumps ozone through a glas of water.Part of the ozone is absorbed by the water. Then you drink the water and the extra oxygen-molecule is absorbed in your blood. Have to drink that ozonated water in 10-15 minutes after making it because after 20 minutes all the extra oxigen from the ozone-molecules is gone (water can’t hold it very long).

          I hope my explanation is understandable;just planted 15 tomato plants in my garden and gave them enough water to survive and make more roots. Not the best thing to do when your back hearts but it needed to be done (some rainy days coming;good for my little tomato plants). But the pain makes thinking and writing more complicated.Sorry.

        • L May 21, 2018 at 10:51 am

          sounds like the prolozone injections I got for my torn meniscus (ozone and procaine.) My doctor also uses it on tendons and areas of arthritis. Great stuff!

        • Barbara Arnold May 21, 2018 at 9:57 am

          Awwwwwh hope you feel better soon Henk.Don’t overdo it, but I have to say home grown tomatoes are THE BEST.

      • L May 16, 2018 at 8:26 am Reply

        I don’t know anything about this protocol, but I would caution you against accepting something as “truth” from this page. http://en.metapedia.org/wiki/Rationalwiki We must be very careful about sources. For example, there is a site called quack watch…and it dismisses as “quackery” everything most of us have used to improved. I would also avoid the use of the word quackery itself. This is something that AMA/big/pharma has been using for decades to try to discredit natural cures and practitioners. Again, I know nothing about the validity of this protocol, but I wouldn’t base any lack of trust on information from this site.

        • Henk Noordhuizen May 16, 2018 at 9:08 am

          My first look was at de actual BX Protocol website,and I noticed that there was extremely little information about the protocol,and about the theory and evidence regarding that protocol.That was the main reason for me to search for more information about the protocol and the man/people behind it. I have serious doubts about the trustability of this protocol and the people behind it all. But everybody has to decide for themselves what to believe and what to try. I only gave my own,personal opinion.

        • L May 16, 2018 at 10:23 am

          no, I agree with you Henk about the BX site looking a bit sketchy. just wanted to caution about the wiki site….that’s all.

          And as for your fluoride post…yes TOXIC stuff…used in rat poison. I think that is why the flqs are even more dangerous…it always them to cross the blood/brain barrier. There is a group here in the states…mothers against fluoridation…that has been fighting against its use here for years. It was originally put in the water as a way for the aluminum industry to get rid of its manufacturing waste! They used cherry picked, flawed studies to convince that it was good for the teeth, but it actually makes teeth softer. Still today, most dentists, except holistic ones, continue to use it. http://momsagainstfluoridation.org/resources

        • Bob May 18, 2018 at 8:45 pm

          A local doctor sent a terminal COPD patient to get the BX protocol and it cured him. The disinformation campaign against them is being funded by 2 Parma companies.

        • L May 18, 2018 at 9:19 pm

          wow. That’s why I am so skeptical of pages like the wiki one above (which is NOT the same as Wikipedia, although even that is not a great source to cite.) Do you have any more info on them, Bob?

        • Bob May 19, 2018 at 5:04 am

          Google Dr. Tenpenny and COPD you will find a video on the man I am talking about. Dr. Tenpenny has been harassed by the media for blowing the whistle on vacinnation damage. She is local to me I have been to her office. If I could afford BX I would do it.

        • Henk Noordhuizen May 19, 2018 at 2:44 am

          And how trustworthy is this information? Give us some sources,please. Testimonials are not enough: it’s a known fact that testimonials of webshops are often writtn by the employees. While Bob Beck was a person with a very good reputation the guy who “invented” the BX protocol has had enough problems with autorities to make you wonder if you’d want to put your money in his hands.His website doesn’t give any usefull information on the protocol and is very vage about every little thing you’d like to know before handing him your personal information and your money.

          What I did see on his website is,that he collected information about a diverse of alternative methodes and mixed them together,then calling it the BX protocol. And of course,some people will actually heal,or at least get a bit better than before. That’s called “placebo effect”.

          But for people who want to try: I hope that I’m wrong and that it will really help you a lot,or even cure you 100% (which I think is almost impossible when having severe damage from Cypro and family.

        • Henk Noordhuizen May 19, 2018 at 3:31 am

          I found more info about this guy, our “BX man” Dewayne Lee Smith and I was not suprised:

          http://bx-energy-catalyst.com/8800.htm

        • L May 19, 2018 at 10:02 am

          Again, I would caution you to carefully research websites you are using. Any site that uses words like “murderous, clown, fraud, dipshit,” etc, is certainly not what I would consider a reliable source. And once again, I am not saying there is or is not validity to this protocol…only that it is known that there are sites out there whose sole purpose is to discredit natural treatments (eg quackwatch.) This site also trashes lymenet.org, which appears to me to be pretty up and up.

        • Henk Noordhuizen May 19, 2018 at 1:38 pm

          Well, I find the word clown,and the word fraud (of course;the page is about the frauduleus practices of which they found quite a bit of proof),but not the words murderous,or dipshit.(or did you mean “shitty dimwit”,perhaps?). And,as I told,there’s a lot more about this guy,if you do a search on him. He calls this a conspiracy against him ,just liike your government calls people thinking 911 was an inside job a conspiracy.

          This guy is going through a lot of troubles to convince us that he is 100% honest and that there is a conspiracy against him. No wonder that some people on forums use (to) hard language talking about him. But on that page there are quite a few links to do your own research. And you don’t have to take all I write for granted;that’s why I give you links where ever possible.I just want to hand a counterweight to all the “possitive” information this guy gives about hemself.

          Arguments like I’ve read here don’t work for me:(e.g.) <>

          What had Bob expected to hear? This guy telling him he’s a fraud? He told Bob what every imposter would tell him (I’m 100% honest,and it is a conspiracy against me).

          I’ve looked for possitive testimonials OUTSIDE the BX forum too,but could not find any. Nowhere a positive review about this protocol,as well. Where are all his fans,happy customers? Don’t these facts make people wonder what’s going on?

          I found enough negative things about him,and not enough facts,nor proof of efficiency of the BX protocol to be convinced that this is a bad way to spend my money,but,like I already wrote,everybody has to take his own descisions;I just did what was asked: giving my opinion about this protocol.And to do that it’s important to take a look at the person behind the protocol.

          By the way: Rationalwiki may not be 100% trustworthy but that doesn’t mean every piece of information there is unreliable. You have to read everything with a critical eye;same goes for the BX website,don’t you think?

        • L May 19, 2018 at 2:03 pm

          yes, I totally agree you need to read every site, including their own, with a discerning eye. RE the murderous, etc, I did a search of that source you used and those other words popped up in other “reviews” they did of BX..

          I will say however, I am aware of one company, whose name I will not post, that offers helpful natural treatments. The info on their homepage is very “lean,” purposefully. They are afraid, like many natural practitioners, of being shut down, because they are not “fda approved.” And we all know how reassuring “fda approved” is.

          Again I am not saying BX is on the up and up or not. Only that I would not trust the source you cited.

        • Henk Noordhuizen May 19, 2018 at 2:15 pm

          Reading discussions on forums is a constant filtering of rude language and sifting out the reliable facts :-)) Have a nice weekend,everybody!

        • L May 19, 2018 at 2:35 pm

          Back at you Henk!

        • Bob May 20, 2018 at 8:37 am

          I had no conversation with him about the conspiracy against him, that is all on the internet. That is an assumption. My conversation with him was about his scientific background and how he developed this protocol. What do you think big pharma would do if someone developed an effective treatment that cuts into their massive profits and can’t be shut down by the FDA. These people are ruthless as we know. There are a lot of people that think Beck is a charlaton, so what. If the treatment helps then so be it. They are attacking Smith because it is easier than attacking the BX protocol itself. My GP thinks Cipro is a great drug and homeopathic doctors are quacks. Should I believe him or look at the evidence in front of me. Why would anyone go to all this trouble to discredit this guy. I guess they are just good Samaritans who want to protect the public.

        • Henk Noordhuizen May 20, 2018 at 10:44 am

          Well, not all these alternative medics are good Samaritans who want to protect the public. And the reason they attack him,and not his protocol is the fact that,what is known about Mr. Smith is,most of it,quite negative. The reason the protocol is not attacked is that he is very secretive about it.His website is so vage it doesn’t even give readers a marginal idea about the protocol. And the disclaimer tels you Mr. Smith doesn’t accept any responsability regarding the outcome of his protocol.

          A comparison between Beck and Smith makes things clear: while Bob Beck is a very respected scientist that didn.t earn a penny on his protocol. He gave all the information on how to build the devices you need for the protocol to the public FOR FREE! In contrast,Mr. Smith tries to make a good living out of a vage protocol,and has a bad reputation (not because of a conspiricy but of known problems he had in the past,with the law.

          I’ve read a lot about Bob beck,and one thing I noticed,and did suprise me is,that not only is his protocol not known by many people but the fact that there are only a few people who thing he is a charlatan.Even on Quackwatch his protocol is mentioned but,untill now, they have found no ground to write down any critics on him,nor on his protocol.

        • Bob May 20, 2018 at 5:15 pm

          You no nothing about Smith except a bunch of trash you read on the internet. His protocol involves daily monitoring and is quite staff intensive over a 2 year period. Do you know any doctors who guarantee treatment results. What successful health practitioner doesn’t make a good living. Lots of people have had success with the protocol. I FIND it odd you feel qualified to criticize him or the protocol when you know nothing about it.

        • Henk Noordhuizen May 21, 2018 at 2:47 am

          And your total lack of criticism makes me wonder if there might be “some kind of connection” between Mr. Smith and you.To my opinion he’s probably a crook and that’s why my interest in this discussion ends here

        • Don Mowers May 21, 2018 at 4:59 am

          Thank you Henk. I am getting a bit tired of the tit for tat exchange between you and Bob. He isn’t going to change his mind about defending Mr. BX so there is no more use trying to challenge him. As has been said by so many, many times before. Do your own research and make up your own minds. People who are reading this site are here to try to find ways to mitigate their problems.
          Again……….. Thank you for bringing the discussion to a close.

        • Henk Noordhuizen May 22, 2018 at 2:33 am

          here a new article from Dr.Mercola,with positive news regarding the fluoridation od the water supply of the USA:

          https://articles.mercola.com/sites/articles/archive/2018/05/22/two-major-legal-victories-to-end-water-fluoridation.aspx?utm_source=dnl&utm_medium=email&utm_content=art1&utm_campaign=20180522Z2_NB&et_cid=DM208764&et_rid=311797878

          The bad news is that it makes clear the government is,knowingly,poisening the public,and yes: it;s knowingly lowering the IQ of the public.Question is:why? Is it only for the money or are stupid people more convenient and easier to manipulate for them?

          Why is there still no discussion about children shooting around to kill as many as possible and then commiting suicide while it’s known that most of them,if not all, are on anti depressivants which can make even the most peacefull people in the world extremely agressive and suicidel? What makes the Farmafia so holy that they can get away with these things? Might it be that the main reason for keeping fluoride in the drinkwater supply is the lowering of the IQ?

        • Don Mowers May 22, 2018 at 6:13 am

          Henk………. Your points are valid. WHY? Why when there is definitive proof does the government defer to communities and communities insist on fluoridating the water supply.
          What I find is that it is not the federal government that decides to fluoridate or not to fluoridate local water supplies. The decision is left up to the community. It’s rather long but read the response I got when I sent the question to my city water department. My take away from this is that the bottom line is IGNORANCE by the voters who approved of adding fluoride to our water system. The ignorance even prompted the voters to turn down stopping fluoridation by almost a 2 to 1 margin. Propaganda works!!!

          I hope this reply passes review because it is the actual word of one who fluoridates my water supply.

          Right or wrong, the decision to fluoridate the City of Mesa’s drinking water system was set into motion in 1999 when it was voted into action by most of the City’s population. In September 1999, Mesa joined with 40 of the nation’s largest cities in adding fluoride to its public drinking water. In March 2000, “Proposition 100” was brought before Mesa’s voters to repeal water fluoridation; however, the proposition failed 62% to 38%. To halt the practice of adding fluoride to the City’s drinking water, Mesa’s Counsel Members would need to be convinced to place this issue before the voters to see if there has been a change in their position on fluoridation.

          The cost to fluoridate Mesa’s drinking water is incorporated into the monthly chemical cost at our water treatment plants – averaging about twelve percent of the overall monthly chemical costs. Chemical costs are only a very small cost of the overall operational expense of treating drinking water and delivering it to your home. The largest cost associated with adding fluoride to water is the initial capital expense for equipment and metering which has been amortized over the past fifteen years of operation.

          Fluoridation has been used as a dental health measure in cities across the U.S. since the late 1940s and more than half the nation’s population now drinks water treated with fluoride. However, fluoridation of drinking water remains a heated topic among some citizens even though it is endorsed by nearly every major health and safety-related organization in the world including the National Institutes of Health, the American Dental Association, Centers for Disease Control, and the American Water Works Association. Only time will tell if new research will sway the opinion and recommendation of these organizations.

          Fluoride occurs naturally in our groundwater and raw surface water supplies at an average rate of 0.4 parts per million. Equipment installed by the City increases the level to 0.7 parts per million, in accordance with the American Dental Association’s recommended level for dental health in warm climates. This small addition of fluoride is added at our water treatment plants using NSF/ANSI 60 grade fluoride. The actual chemical used to increase fluoride in drinking water can come from the salt form (sodium fluoride) or the acid form (hydrofluorosilicic acid). The notion that fluoride chemicals comes from byproducts of the fertilizer industry is preposterous but continues to be a common scare tactic used by some who oppose fluoridation of drinking water. Again, only NSF/ANSI 60 grade fluoride is used to fluoridate drinking water. For more information about the regulatory scope of drinking water additives see http://www.cdc.gov/fluoridation/factsheets/engineering/wfadditives.htm.

          Fluoride is a common ion that can easily be removed by home treatment devices such a reverse osmosis (RO). RO systems are extremely affordable and commonly used in homes at the kitchen sink to treat high salinity water found throughout the region. RO removes both the naturally occurring fluoride and the fluoride added at the treatment plant (they are indistinguishable). Water treated by RO is nearly 99.9% pure H2O after all salts are removed.

          My reply is not met to sway your opinion about fluoridation but to provide you information on why it is added and how fluoride may be removed. Toxicity of fluoride has been established by the EPA and is set at 4.0 mg/L. If this limit is ever exceeded in the City’s drinking water then we would be required to include this information in Mesa’s annual Consumer Confidence Report. Mesa reports monthly fluoride monitoring to the Arizona Department of Health Services, Office of Oral Health. Additional regulatory information about fluoride can be found at the EPA’s website at http://water.epa.gov/drink/contaminants/basicinformation/fluoride.cfm.

          Please feel free to call me at the number below if you have any additional water quality questions.

          Kenneth Marshall

          Water Quality Supervisor

        • Henk Noordhuizen May 22, 2018 at 7:29 am

          Hi Don,there a few things wrong with the answer you got. First of all: <> Well,if it naturally occurs in groundwater,it must be healthy,or at least it must be safe???

          Then,they almost dubbel the quantity,from 0.4 PPM to 0.7 PPM. Of course,this is till safe,and healthy.Or is it?

          Second,as Dr.Mercola mentioned,most filters are NOT capable to filter fluoride out of water. This is not a Mercola fantasy but the outcome from several tests. And why would you have to filter your drinking water in the first place? There is,after all,a lot of evidence that fluoride does NOT lead to healthier teeth,and there is a lot of prove that it cuases severe health problems,specialy in children. It should NOT be neccesary to filter your drinking water in the first place because the government has the duty to provide the public with clean and healthy water,WITHOUT adding unproven and,as we know now, dangerous medicines.

        • Don Mowers May 22, 2018 at 8:19 am

          Your right on all counts. The bottom line here is that ignorant and misinformed voters have approved it so it must be OK with the community. That appears to be the thoughts of the people of power who are running our city and making the decisions. The comment he made about “maybe” future science will change the opinion is rather amusing. The science against water supply fluoridation has been around for years!!! European countries have banned it but here in the US it appears to be all about money. Selling the fluoridation equipment and following up with supplying product.

          I am hoping that the “activated alumina” filter I have added to my system does remove most of the fluoride. According to my city rep they lace the water to a level of about .7 PPM. If the sales pitch of the filter supplier is correct this should lower the end product (water) to about .2 PPM. Not better than zero but better than nothing.

        • Don Mowers May 22, 2018 at 8:25 am

          One added point. Why would we need to filter our water? Because where it is treated is many miles of pipeline away from our faucet. It may leave the treatment facility meeting the “water quality” standards , but there is no guarantee that it would arrive meeting the same standards. Final filtering has become a MUST!!!

        • Henk Noordhuizen May 23, 2018 at 2:01 am

          You are right,Don,and the test is only a snapshot. Here in my town,we had very good quality water,right from under the forests that surround the city. Then it got privatized (before,it was owned by our city),and now the water is a mixture of groundwater and water,pumped and “cleaned” out of one of our dirty rivers. Formely it tasted so good that friends from other cities,when visiting me,brought empty bottles to take as much of our water home as possible.

          Now its still not tasting really bad,but it’s not someting you’d drink for the fantastic taste anymore. And there’s way more calcium,and probably other unwanted ingredients in it:when I bought a new waterkettle this got a layer of kettle stone in just weeks,instead of many months,like before.

          Here a new article from Mercola,showing that modern society first introduces “the new goodies” like chemicals into our world,and then,much later,starts to do reseach on the dangers. This time it’s about glyphosate,adn the even more toxic combinations with other chemicals in the formula’s:

          https://articles.mercola.com/sites/articles/archive/2018/05/23/popular-weed-killer-toxicity-proposed-gmo-labeling-rules-updates.aspx?utm_source=dnl&utm_medium=email&utm_content=art1&utm_campaign=20180523Z2_NB&et_cid=DM208766&et_rid=312732736

          Not long ago there’s been research from a team of MD’s toghether with a team of archeologists on the occurence of cancer in the (far) past,,by screening mummies,and other corpses that were still in good enough condition for this research (a lot,as far as I remember they did a search on way over 1000 corpses).This showed that,until recently,cancer was a very rare disease,ent only since 150-200 years ago it got more extant.Fifty years ago it was an illness,mainly,among old(er) people but now so many children get cancer.There is a definate link between cancer and chemicals (including our modern medicines).We are killed by patents!

        • L May 23, 2018 at 8:30 am

          Yes Henk, it is interesting that there are more and more of these “cancer cure” relays (don’t get me started on them) and yet more and more cancers, not less! I think pharmaceuticals have a lot to do with it. While most of them “treat” (I won’t say “cure”) one thing, they cause a whole host of other problems elsewhere in the body. Then there are all the chemicals and toxins in our clothing, furniture, personal care items. And you have people like Bill Gates, widely touted has such a generous philanthropist who is partnered with Monsanto, helping to spread their fake GMO food around the world, and applying more toxic roundup to product it.

        • Don Mowers May 23, 2018 at 3:51 pm

          Water and fluoride. You commented previously that Mercola said water filters are ineffective against fluoride. You are right in one respect. Standard carbon and carbon block filters do not remove fluoride. But a filter cartridge that has inside it activated alumina is supposed to remove up to 90% of the fluoride from the water. Adding this filter to one’s system should assure that fluoride is either eliminated or reduced considerably.

          From the Mercola web site.
          Water Filters: Not all water filters, however, remove fluoride. The three types of filters that can remove fluoride are reverse osmosis, deionizers (which use ion-exchange resins), and activated alumina. Each of these filters should be able to remove about 90% of the fluoride. By contrast, “activated carbon” filters (e.g., Brita & Pur) do not remove fluoride.

        • L May 23, 2018 at 4:02 pm

          I buy my water from a water store. I buy the distilled, which removes most of it. Then I add back in the minerals with something called ConcenTrace.

        • Henk Noordhuizen May 19, 2018 at 3:31 am

          There is a lot more about this guy,who uses different names (trustworthy?) and has had several other companies. BX is actually part of Delta Institute International,and has his own money laundry (trutworthty?) There is a hell of a lot more on this guy and it’s all looking bad. Read this,and the links provided in that article.First a piece of his arguments,and further down the comments and links:

          http://transgallaxys.com/%7Ekanzlerzwo/index.php?topic=8773.msg20501#msg20501

        • Bob May 19, 2018 at 4:57 am

          IT’S a smear campaign by 2 drug companies. He had his own investigation done. I have spoken to him on the phone. He is a brilliant man. The smear campaign is working though. Believe what you want.

        • Henk Noordhuizen May 19, 2018 at 6:24 am

          I do !

        • Henk Noordhuizen May 16, 2018 at 9:09 am

          Sorry;forgot the link to BX:

          https://www.bxprotocol.com/

  34. Henk Noordhuizen May 16, 2018 at 4:25 am Reply

    In 1971 a doctor in The Netherlands noticed that many people,especialy children,got sick from fluoridated water.He started a research on the subject and 2 years later,following disturbing findings in this research,fluoridation of the watersupply was stopped.This is 45 years ago:why on earth is the USA still poisening it’s citizens? Read this summay and see the list of symptoms. Sound familiair? You’re right:this are the known symptoms of fluor(ide) poisoning,and That’s excactly what thappened to us,the Floxies!

    http://www.enviro.ie/How%20Evidence%20based%20Medical%20Science%20Ended%20Water%20Fluoridation%20in%20the%20Netherlands_Waugh%202013.pdf

    From Wiki:

    Water was fluoridated in large parts of the Netherlands from 1960 to 1973, when the High Council of The Netherlands declared fluoridation of drinking water unauthorized.[103] Dutch authorities had no legal basis for adding chemicals to drinking water if they would not contribute to a sound water supply.[104] Drinking water has not been fluoridated in any part of the Netherlands since 1973.

    Reminds me of the lunatic medical industy that,a few years ago,proposed to add statines to the drinking water. Never heard of the Nuremberg Code,I guess.

    • Don Mowers May 16, 2018 at 2:24 pm Reply

      Henk. Thanks for the short history lesson about fluoridating water. My city does fluoridate the water. Here in Arizona we drink a lot of water during the summer. The really heavy water drinkers get a bigger dose of fluoride than the more moderate drinkers. Interesting that fluoridating water is an uncontrolled administration of a chemical called a drug. After (repeated doses of Cipro over a period of 31 years) I have begun to learn why I really kept feeling so lousy all the time and beginning to learn more about Fluoroquinolone “poisoning” I chose to add additional filters to my drinking and shower water supplies. I now filter out chlorine twice and fluoride (with an alumina based filter) once. I also avoid drinking water outside my home, drinking bottled water and do my best to avoid any liquid drinks made with unfiltered tap water.
      If one spends some time looking into it we find that we are exposed to “fluoride” everywhere. It is like playing to old game of “dodge ball” to try to avoid it.

      • Henk Noordhuizen May 18, 2018 at 1:15 am Reply

        How wrong is it that a government puts “medicines” in the drinking suppy and that they,even after the dangers of this are proven,keeps on doing that.Nuremberg kind of crime!

        Even here,some cities put chlorine in the water to make it safer.And people have to buy expensive filters (cheap ones don’t really work good enough),to make their drinking- and bathing water clean and safe.

        For Floxies this fluoridated water is a no-go,I guess; I had a relapse twice,after drinking a cup of tea! Tea was one of my favorite drinks and I still have a lot of different kinds here that I don’t dare to drink anymore. One of those relapses came after drinking a cup of Pu-Erh the,that is poor in fluoride (oké;I made a strong cup of tea,but that never before was a problem.

        Fluro(ide) is known to be a dangerous poison and that’s why it’s so weird that a government puts it in the water supply (not to say:suspicious !). And in toothpaste,and medicines! What on earth are these guys thinking they’re doing?

        • Don Mowers May 18, 2018 at 1:36 am

          Money. Its all about money. The industries that accumulate it (as a waste byproduct) have managed to sell it to the world as something good. From what I understand about Fluoride is that it is an extremely small molecule that is able to penetrate almost anywhere in a body. It also seems to have the ability to draw other chemicals with it. But in itself it is a poison. Why else would it be added to insecticides and rodent poisons? Really good salesmanship to sell it one place as a poison and another as a necessary thing to use to prevent tooth decay. All to dispose of their manufacturing waste product. And without citizen approval cities (seemingly gullible) arbitrarily add it to the one thing that everyone must use. Drinking water.

        • Henk Noordhuizen May 20, 2018 at 2:34 am

          Today Dr. Mercola has an update on fluoride (it’s fluoride awareness week 2018).Among other important info it states that most filter systems are unable to fliter fluoride out of the water. Some do a reasonable job,some don’t work at all.

          Another thing that worries me: <>

          WTF! They already knew that fluoridating drinking water could lead to DAMAGE OF THE TEETH !?! While telling us it was to PROTECT those teeth,especially those of our children?

          Well,read this article yourself.Here is the link:

          https://articles.mercola.com/sites/articles/archive/2018/05/20/movement-against-water-fluoridation.aspx?utm_source=dnl&utm_medium=email&utm_content=art1&utm_campaign=20180520Z2&et_cid=DM208855&et_rid=309870384

          Happy sunday!

        • L May 20, 2018 at 11:18 am

          yeah, pretty diaboloically ingenious. It was a way for the aluminum industry to get rid of its manufacturing waste. What I was told was that they cherry picked a study. They found some little town (in Texas?) that had a very low cavity rate. The water they all used was heavy in minerals, including fluoride. But that was NATURALLY occurring…not to mention there were OTHER minerals in it that they failed to mention in the study. But this goes on all the time by different industries. They pick and choose what ever information is going to help their bottom line.

      • Henk Noordhuizen May 20, 2018 at 2:44 am Reply

        Another Dutch fact: although since 1973 The Netherlands stopped fluoridating our water supply they kept on promoting fluoride for dental care and it’s suprisingly hard to find any toothpaste without fluoride added.I’ve used fluoride-free toothpaste for many years but “they” still got me by Cypro,where,as far as I understand,the fluoride is added to make it “work better”. Like mercury,MSG,aluminium and other poisons in the vaccines they put in our children??? I smell a conspiracy (just kidding,or do I?)

  35. Don Mowers May 16, 2018 at 1:58 pm Reply

    Just a “stronger warning” on the box. https://www.wsj.com/articles/fda-requires-stronger-warnings-for-antibiotics-side-effects-1463088485
    That’s the latest conclusion of the American FDA after their “review”. Most people never see the original box. The same probably goes for most doctors. We usually see a “pill bottle” with a bunch of stickers on it in type too small to read.
    Bottom line. Be aware and tell as many people as possible about the Fluoroquinolones’ dangerous after effects.

    • L May 16, 2018 at 6:47 pm Reply

      and the thing is…the fda doesn’t actually send the new warnings to doctors. the doctors don’t look for them. everything remains the same.

    • Henk Noordhuizen May 20, 2018 at 3:00 am Reply

      A stronger warning on the box? Read by no one? At least,not by any doctor? Read the FDA-Fluoride history for their “vision”.

      <>

      https://fluoridealert.org/researchers/fda/

      Instead of allowing Cipro and family only for a very restricted area of use,they,maybe,want to put stronger warnings on the boxes.The A in FDA probably stands for “Aluminium Industry”?

  36. L May 16, 2018 at 10:36 pm Reply

    I was thinking today about how these poisons seem to find your weak spot (at least in my case.) I already had an eye issue (although it had not caused any problems for decades) and I had a number of disturbing vision issues post cipro. I already had asthma (even though the respiratory issue post -cipro, where I gasped for breath was likely mito damage to the heart muscle or to the CNS.) My excruciating back pain was near where I had had a fractured scapula. I have always had allergies, and I had a pretty much failed sinus window surgery decades ago and now I have all these nasal/throat/lung congestion problems. (I had not problem with numbness in my feet before, but still that is a lot of “coincidence.” Of course since I had over 30 side effects, I suppose it was bound to hit some of my problem area, but my absolute WORST issues seem to have hit where I had been vulnerable before. This stuff is diabolical.

    • Don Mowers May 17, 2018 at 5:17 am Reply

      “This stuff is diabolical”. Yup L it is. I awoke at 3 AM again today. It is usually 3 to 4 AM every day. I awoke to find my left arm from shoulder to fingers tingling and stinging. Not unusual because muscle spasms in my left shoulder seem to be the “norm” recently. I am thinking that my recent dose of Levaquin IV may be behind the tearing of some ligaments in the shoulder. It is sure not functioning up to design. But this is only one of many places that this old body is not functioning up to design.

      Interesting how this “diabolical stuff” (Not mocking you L. Just agreeing and using the term because it fits well) can throw off a list of 50+ symptoms. Even more interesting is how this is giving doctors the ammunition to side step the underlying cause and blame it on one of the 50+.

      Among other things my early morning thoughts landed on the hypo-critic oath that is supposed to be part of the doctor’s/medical system creed. My thought is that it has changed from “Do no harm” to “Show me the money”. It seems that the paradigm is now treat but “for goodness sake” don’t cure because that would stop the cash flow. In my opinion many good and well educated people have been brain washed and cajoled into this paradigm. Conform or you will be ostracized and drummed from our ranks. My own doctor of 20+ years actually admitted this to me.

      Does my cynicism show?

      The really disgusting thing is that the medical insurance companies seem to be leading the way by condoning and paying for all the “crappy treatments” concocted by the modern medical machine. They imply that “natural” treatments are quackery and should be avoided so they will not pay a penny toward them.
      Well, I have news for them. Alternative “natural” treatments (in many cases) do work!!!
      The reason we are all here and floxed is because the “traditional medicine” tools (Fluoroqiunolones) have failed us. Knowing this, do we really want more of modern medicine’s treatments?

      Rather interesting that for over 30 years I took Cipro for repeated treatment of a chronic urinary tract infection and no doubt the symptoms I was experiencing were accumulating but it wasn’t until (recently) I was given the IV dose of Levaquin that it pushed things over the top and brought it all home to roost. At 84 my goal is not to “cure ” my problems but to hold them at bay and hope that they do not get any worse.

      L. I can empathize with you and your problems. One of the things that I have found to work at is ‘diversion”. Try to find things (within your capabilities) to do and think that divert your attention away from all your problems. Not an easy thing to do but if it works it does help.

      • L May 17, 2018 at 9:55 am Reply

        Preach! Yes, it is astounding that insurance will pay for all these toxins, but not natural treatments, which can help prevent MORE costs from accumulating. I am sure big pharma will work hard to keep it that way. I am at around $40,000 out of pocket, and I was looking for work at the time this happened, with little in savings.

        Yes, I try to do most things I did before…just more gingerly now

  37. Andrea May 17, 2018 at 2:39 pm Reply

    Ehy guys, They accepted me to speak at the upcoming EMA hearing about fluoroquinolones!

    • L May 17, 2018 at 3:18 pm Reply

      Yea! Wish I could hear you!

      • Andrea May 17, 2018 at 4:35 pm Reply

        Thanks L, you can, actually. The hearing will be broadcast live on EMA’s website.

        • L May 17, 2018 at 5:10 pm

          cool! I will be cheering you on from California!

    • Barbara Arnold May 17, 2018 at 9:36 pm Reply

      Hey Andrea that’s great. I will be watching it on their website. I think the time is 1 p.m. to be confirmed. Sock it to them girl. We will all be there with you.

      • L May 17, 2018 at 9:52 pm Reply

        yes, please confirm the day/time (and I will have to figure out what it is here…)

        • Barbara Arnold May 17, 2018 at 10:12 pm

          Will do L At the moment it’s the 13th June at around 1p.m. If I hear different I will post

        • L May 17, 2018 at 10:57 pm

          Because of the time difference here in the states, I wonder if somehow can maybe record it and post here on floxie hope?

    • Barbara Arnold May 17, 2018 at 10:13 pm Reply

      Andrea, there are a lot of floxies going from facebook to, so you can all support each other.

    • Madge hirsch May 27, 2018 at 3:31 am Reply

      That’s great! I have sent off my testimony by email as travelling is just not possible at the moment and I hate London anyway.

  38. Ag May 17, 2018 at 2:43 pm Reply

    Hi, does anyone have sugar intolerance after fq’s? and anything that might help with this?

    • Henk Noordhuizen May 17, 2018 at 3:39 pm Reply

      I did have sugar intolerance after an AB-course in 2004 with both hyper- and hypoglycemea. The doctors than told me it was all between the ears but the glucose meter told a different story.In 2016,after Cypro,same story,but now this sugar intolerance is recognised as an adverse reaction.

      In 2004 the only thing that worked ( abit) was a diet with very few carbs. After 3 years nothing had changed and I had to still be very carefull with carbs.Then I re-discovered The Bob Beck protocol and build the devices with help of his descriptions and schemes. I actually did it for another purpose (to help others) but descided to experiment on myself and I to my suprise after 2 weeks the tolerance was almost gone!

      This time (2016) I first tried to stabilize things with just te diet but again it didn’t work.After 1 month I started using the magnetic pulser again,as I did in 2007,and it worked again,but I stopped to soon and intolerance came back. Then I started the second time and now for a longer time,and It worked again. Still pay very much attention buying food because in so many things sugar is added (dextrose is the worst because it “works” so fast),but I hardly have any hypers,nor hypo’s anymore.

      I noticed that the cause is in the pancreas and this last time I only pulsed (and still pulse) the pancreas. This,indeed is the place where those problems come from. I think it’s a kind of infection,unrecognised by de medics. AB’s can even cause a very serious,potentionaly deadly infection of the pancreas.

      How to build the magnetic pulser is quite easy;you only need an old photo flash unit (which creates an electric pulse), and a copper coil (that,with electricity flowing through it,becomes an electo magnet.I,ve described all of this earlier; please read my older comments.Info about Bob Beck,his carreer and his protocol is here:

      http://www.bobbeck.com/

      He is a scientist with an interesting carreer,to say the least,and had great interest in electo medicine. Magnetic pulsing is an accepted treatyment now (artrose etc.),he was the first to start making colloidal silver by electrolyse etc. Take a look at that website;it is devoted to him for a good reason;this man was a genius,100% honest,and he gave all this to us without earning one penny. Just because he didn’t want the Farmafia to rip us from our money and making us (more) sick in the meantime.

      My homebuild devises helped me so much that I bought the more professional devices from Sota as soon as I got enough money to do so but I advice to (cheaply) build yours first and give this protocol a try.He made the schematics as simple as possible for people to be able to build them theirselves without great costs.All the info,including the schematics,are in that website.

    • Andrea May 17, 2018 at 4:44 pm Reply

      I’ve defenetly become more sensitive to sugar since being floxed. And dairy too.
      As L mentioned in her previous post, these damn drugs seem to find your weak spot. I’ve always been sensitive to dairy to a certain degree (digestion issues, oily skin), and sugar was not good eaither for me (actually sugar is not good for anyone) but now, when I eat something that it’s not healthy, I pay the price. Dairy in particular seems to trigger my joints (something never happened before being floxed). And sugar gave me way more powerfoul crashes. On the other hand, fruit never gave me a problem, actually it makes me feel good. I think you should watch your diet, and try to understand what’s good for you and what’s not.

      • L May 17, 2018 at 5:12 pm Reply

        I avoid dairy because it congests me (even more). Interestingly, I don’t have the same problem with goats milk product, eg goats milk cheese.

        • Don Mowers May 18, 2018 at 1:56 am

          Hmmmm. Dairy congests you? I like (real in the block) cheddar cheese but I have really aggravating problems with bronchial mucus. I’ll have to do some experimenting to see if my cheese fetish and the aggravating bronchial mucus are connected. If it proves connected it is rather foolish to eat the cheese and then have to take something to deal with the mucus.
          While I am on the subject. I found a home remedy made from things already in the kitchen. It is supposed to be great for drying up mucus.
          Apple cider vinegar … 1 table spoon
          Coconut oil …. 1 table spoon
          Honey …. 1 table spoon
          Ginger …. The recipe uses ginger tea as the mixer for these ingredients.
          I don’t like ginger tea so I use (filtered and fluoride free water) as the mixer
          and have substituted 2 or 3 ginger capsules.

        • Andrea May 18, 2018 at 4:33 am

          L, goat cheese, together with donkey milk, is one of the most digestible milk for humans. It appears to be very similar to human’s milk. Anyway it still bothers me a little.

    • Henk Noordhuizen May 25, 2018 at 8:57 am Reply

      Well done,Barbara !!!

    • Henk Noordhuizen May 25, 2018 at 9:25 am Reply

      A video about how to build a magnetic pulser the cheap way,with just an old photo flash,a copper coil and a piece of wire:

      Untill now I’ve build 3 pulsers this way;it is easy and they cost me around 25-30 euro’s. How long they keep working is dependend on the flash because the capacitor,although having a life of several 1000 flashes,once comces to his end of life. And,when buying an old second hand flash it’s hard to tell how much longer it will last. But actually it’s the cheapest part of this mag.pulser: te copper coil is much more expensive. But,as I wrote, this homebuild will cost you a fraction of the Sota MP andwill give you the opportunity to get acquainted with magn.pulsing and what it can do for you.

      On of my homebuild pulsers is not working 100% anymore and I found a “new” flash unit for it. As soon as I have the time and peace for the job,I will take the old flash off he coil and assamble it with the new(er) one. I could make a series of pics for others who want to build their own.

    • Madge hirsch May 27, 2018 at 3:39 am Reply

      When given Cipro iv for diverticulitis in 2014 they tested my blood sugar. It was 158.Given I had had nothing to eat for 24 hours before they put me on the drip I could only imagine that the “feeding” part of the drip was very sugary . I told them such a level was much higher than I have had after eating and they said they would change the drip but it could have been the Cipro. My fastings have been in the prediabetic range on and off for years. After being floxed in the 90s I had problems with symptoms of low blood sugar a lot though I never actually tested it then. This recurs and now I do test but the sugar level is not that low.

  39. Andrea May 18, 2018 at 4:33 am Reply

    Sorry I meant goat milk

  40. Andrea May 18, 2018 at 4:41 am Reply

    Don, I can guarantee you, that, even before being floxed, I always had an issue with dairy. Even organic goat yogurt. Even small amounts of it. And I know for sure, I’m not the only one. I remember a few years ago, I avoided any kind of dairy for 14 days. After the first 5-6 days I had no more mucus in my throat or nose. My eyes were producing way less secretion ( eye boogers) and my skin looked very clean too, not a pimple or a blackhead.
    I know it could sound like vegan propaganda, but it defently works for many. (I’m not vegan).
    Why don’t you try for a couple of weeks and see what happens.

  41. Ag May 18, 2018 at 10:39 am Reply

    Thank you for your replies. Henk, thank you for the suggestion, I might try it just a little afraid because I have an arrythmia after taking 1 pill of cipro. I had no previous food allergies or sensitivities, even for about half a year after cipro I had no food allergies and now it seems I tolerate less and less foods each week and one of my WBC is now high. I cannot tolerate pretty much any supplement even a bit of magnesium. It’s hard to know what to do and Im in my mid 20s.

    • Henk Noordhuizen May 18, 2018 at 11:26 am Reply

      Ag,I had arrythmia after using PPI’s (Losec) for 15 years. The Losec caused magnesium defficiency,which caused the arrythmia and many other symptoms,despite the fact that I used a good magn. supplement every day. Cypro also robbs your body of magn. so it would probably be good to get some magn. into your body. Have you tried the magn.oil,the transdermal way? Another,and maybe the best way is (slow-)juicing with lots of green (leafy) vegetables. You’ll need a juicer which can handle leafs,and,another health booster,wheatgrass.

      Because of the arrythmia don’t pulse over the heart,when using a magnetic pulser. It probably won’t be a problem but better be carefull.You can build a pulser,using a second hand photoflash,for $ 30-$ 40;the Sota Pulser is way more expensive.

      With or without pulsing,and magnesium (importan for arrithmia and for sugar intolerance as well),put yourself on a dieet poor in carbs;western people are eating way too much carbs and that is (read the Mercola website) one of the main causes of modern health problems.

      Might you need more info,then don’t hesitate to ask.Have a good weekend (everybody :-))

      • harriet May 18, 2018 at 4:13 pm Reply

        Henck PPI’s also cause peripheral neuropathy, wastage of muscle, cardiac issues, back pain, I was on pantoprazole for 4 years. Another c… drug is a statin. PPIs are only supposed to be prescribed for a few weeks at a time due to their side effects. Statins as we know know are useless.

        • Henk Noordhuizen May 19, 2018 at 6:43 am

          I know,Harriet; I had most of the known symptoms of a magnesium defficiency (except PMS,which is a female problem),after about 15 years of Losec and Promazole. When I was in the hospital the second time (ambulance is a VERY expensive kind of taxi!) I had an argument with the heart “specialist” about the cause and he had a vbery scientific argument: “Do you know how many people use Losec?” Well, do we need more proof of the safety of Losec/Omeprazol?

          Two months later there was an article in every newspaper about this averse reaction of Losec;I hope this “specialist” has read it.I’ve had most of the symptoms for years,and untill now I even don’t dare to stop the Tambocor (Arrithmia’s) although I know I probably don’t need it and it has quite nasty averse reactions as well.

          Statins are NOT useless! They generate A LOT OF MONEY for the FARMAFIA and the adverse reactions to statins add to this.Only a few people seem to be aware of the importance of cholesterol for your health. New research has shown that there is no relationship between high cholesterol and heart- and bloodvessel diseases at all.

        • Don Mowers May 19, 2018 at 7:34 am

          Misinformation and outright lies. Seemingly the mantra of big pharma and the modern medical profession. “If you tell lies big enough and keep repeating them, there are people who will eventually come to believe them”. “All propaganda has to be popular and has to accommodate itself to the comprehension of the least intelligent and most ambivalent of those whom it seeks to reach”. Separating the truth form the chaff has come to be quite a problem. Just an observation.

  42. toby May 21, 2018 at 5:40 am Reply

    I started hyperbaric oxygen therapy. Did 9 sessions, each lasted about 53 minutes. Which parameters should be used? How many therapies is often needed for us?

    • L May 21, 2018 at 10:48 am Reply

      I don’t do it because of claustrophobia (much to my doctor’s dismay!) but I know he always does a minimum of 10. I have read that for things like wound healing they recommend 20-40! So I think you likely have to go by how you feel.

    • Barbara Arnold May 21, 2018 at 9:36 pm Reply

      Toby, initially I had 20 sessions at about an hour each and felt much better, unfortunately I fell down about a month later and compressed my spine. I was in bed for about a month to recover, then I had to take it slow. I went and had another 20 sessions again and it did help, but going EVERY morning was a pain, but it did help with my neuropathy. Trouble was sitting on those hard seats inside the chamber left me with a very painful coxxyic, so thats why I am having ozone injections in the coxxyic which has really helped. At the same time I have ozone autohemotherapy for neuropathy and I feel so much better now and have a lot more energy. I go twice a week for about 10 sessions. The injections are only once a week.There seems to be no limit to the amount of hyperbaric treatments you can have as there were people there with diabetic wounds, recovery from chemo ‘fibromyalgia’ and peripheral neuropathy, like me. I noticed the same people still going when I went back for the second time. The Doctor also told me it was accumulative and if I wanted I could go back for a top up. I have decided to go for the ozone as in my mind I only have to go twice a week and I seem to get the same benefits . But I would recommend both if you can afford it because if you don’t have insurance it’s not cheap. 80 euros for hyperbaric and 100euros for ozone. I wish I could recover what I’ve spent from the idiots that allowed this to happen to me

      • toby May 21, 2018 at 10:40 pm Reply

        Is Herxheimer reaction (feeling worse before better) common with hyperbaric oxygen therapy? I ask this because my anxiety is worse after 10 sessions, but I want to continue because I heard good things about HBOT.

  43. Barbara Arnold May 21, 2018 at 10:47 pm Reply

    Toby, I did get a herxheimer reaction of peripheral neuropathy with hyperbaric and ozone but it passed and I did get better. I can’t say about anxiety because I have never had it. I have read of great reports of CBD oil helping a great deal from anxiety, so I would take that as well.

    • toby May 21, 2018 at 10:52 pm Reply

      When you had herxheimer reaction of peripheral neuropathy with hyperbaric? After how many sessions?
      CBD helped me with anxiety, but cause gut problems. Now I am looking for natural antiemetics and if I find it I will start CBD again.

      • Barbara Arnold May 22, 2018 at 12:10 am Reply

        I honestly can’t remember Toby, but I think it’s irrelavant because we are all different. For gut problems Kefir and bone broth are good probioctics, taken with prebioctics ie cook potatoes, leave to go cold in the fridge and then eat as you wish, heated up or left cold.

        • toby May 22, 2018 at 3:58 am

          I will continue HBOT.
          Also started vitamin c 500mg intravenous. How many times is iv stronger than oral administration.

        • L May 22, 2018 at 9:01 am

          I wonder if you got that number right. Were you first given a blood test for the vitamin C IV? The dosage that I got of IV C was 50,000 mg.

        • toby May 22, 2018 at 1:24 pm

          I used 6000mg orally and felt better on it, but have gut problems and switched on intravenous. I read on web that iv is 25 times stronger than oral. So if I take 500mg iv it’s like 12500mg orally? I don’t know is this true information. I ask this because I don’t have improvement with iv, and I believe that dose is problem, but don’t know should I take 250mg iv or 1000mg.
          50 grams is very very high dose and I heard that some cancer patients gave it.

  44. Henk Noordhuizen May 23, 2018 at 2:11 am Reply

    The website of Bob Beck is growing! There are a lot of boxes with his personal documents te be researched and by now there’s a biography of his life and work availible.Wow;read about this amazing man and what brought him to develope the Beck Protocol to give it to the public for free:

    http://www.bobbeck.com/pdfs/bob-beck-biography.pdf

  45. Henk Noordhuizen May 23, 2018 at 2:14 am Reply

    Here’s a webpage with all the information one might need to build the Beck Protocol devices :
    http://www.bobbeck.com/beck-protocol-articles.html

    This includes part lists and electric diagrams,and extra advises for the assemble.

    • Andrea May 23, 2018 at 8:30 am Reply

      Hey Henk,
      sooner or later, I know I’m going to buy this magnetic pulser…you’ve convinced me, LOL, no, but seriously, after reading a lot about magnetic pulsation, I know I want to try it. Anyway, I think I’m experiencing a relapse these days. As a matter of fact, more or less this time, last year, I’ve experienced the worst symptoms since being floxed, so it could be I’m facing the new cycle, because I feel so weak, dizzy and my body hurts. But anyway, it all happened, and I don’t know if it was just a coincidence, immediately after drinking a cup of decaffeinated tea. I remember you mwntioning something about how bad tea was for you now, do I recall it wright?

      • Don Mowers May 23, 2018 at 8:54 am Reply

        Teas are said to contain fluoride because they are grown in soil heavy in fluoride. Just a comment.

        • L May 23, 2018 at 8:55 am

          I heard that too. So I buy tea grown in a country that doesn’t fluoridate.

      • Daniela May 24, 2018 at 11:11 am Reply

        It could be the caffeine in the tea if the reaction was immediate.

      • Henk Noordhuizen May 24, 2018 at 11:41 am Reply

        Hi Andrea,I had a relapse after drinking tea,twice. First time with Pu-Ehr tea,which is a tea poor in fluoride,but it was a strong glas of tea. Second was with black tea,also strong . Main symptom was the heart palpitations coming back. Not so severe as during the first year after Cipro,but I wasn’t happy with this.After one or two days everything was back to “normal”, meaning: normal as: life after Cipro.

        Danielle: Andrea mentioned it was a decaffeinated tea,so,caffeine can’t be the cause.

        L: This fluoride is not because the tea is fluoridated but it is grown in soil,naturally rich in fluoride or other fluor complexes. Tea plants are known to absorb fluor from the soil quite easily.

        • Daniela May 24, 2018 at 12:38 pm

          Actually decaffeinated tea and coffee still have a lot of caffeine. Something to watch out for. Unless he meant non caffeine (herbal) tea.

        • L May 24, 2018 at 1:24 pm

          but that is naturally occurring fluoride which should not have the same effect (although of course you don’t want to overdo anything.) . however, if a country (or state) fluoridates its water then synthetic fluoride would be in the soil, not to mention fluoride in pesticides

        • Henk Noordhuizen May 24, 2018 at 1:37 pm

          I think that there is no difference in effect between natural fluoride and synthetic fluoride; it’s the very reactive nature of fluor that is the problem. Second problem is: it binds itself very easily to carbon and is almost impossible to separate those 2 elements again. And carbon is the most important element in any life form,including humans.

  46. Andrea May 25, 2018 at 2:15 am Reply

    Thanks guys for your opinion

  47. Barbara Arnold May 25, 2018 at 4:06 am Reply

    Hi Guys,
    I wanted to let you all know some good news. I went to my Doctor this morning for the results of my 6 month blood tests and while I was there I asked him if he had read the information I had given him about the EMA and other information about fluroquinolones. ( I had been bombarding him with information for the last 2 years now) He told me he was very interested and that he has a colleague in the University here and another in the UK who are looking into fluroquinolones. But most importantly he will NEVER prescribe them again. On hearing this I went to the local pharmacy and asked them if they had read the latest info I had given them. They told me they totally agree with me, but also the prescription rate for this poison had GREATLY reduced. This is a real step forward. I’m hoping the EMA will recommend they must not be used unless it’s a life or death situation, then I can sort the few Doctors left in the health centre that still need convincing by giving them a new directive from the EMA. The pharmacist said it’s the Spanish Government that allows fluroquinolones to be prescribed but if the EMA votes against them in June, this will to a long way towards them not being prescribed. I know in spite of the FDA warning it’s still dished out, but it would really help our argument against if we as individuals armed ourselves with the new directive and give it to EVERY Doctor we come across. I am praying it will happen with the EMA as I will take massive pleasure in taking it to my local hospital, where I was treated with contempt, along with MORE EVIDENCE to show them how disgustingly they behaved towards me.
    Don’t think for one moment that every small action us floxies take make no difference, because the Pharmacist told me, it was because of all the bombarding of evidence I gave them and the Health Centre, that the prescription rate has really gone down.. I live in a little pond, but the ripples have spread.
    I feel so much better about this, and has gone from my frustration with NO ONE listening to at last little acorns are growing.

    • Andrea May 25, 2018 at 5:47 am Reply

      That’s great Barbara.
      But anyway, let’s not get too excited. I’m too really curious to see what will happen after the hearing, but this diabolic pharmaceutical companies are smart, you know? They’ll try to do anything to let us think that is just an exaggeration.
      And, by the way, I’m really happy to hear that in your local pharmacy the prescriptions are reducing, but here, I still see many doctors prescribing this s**t for mild infections and even for “prevention”. It was just a couple of weeks ago that I heard of another man, here in my town, reporting floxie symptoms after just 2 days of Plurifloxacin, same drug given to me.
      Anyway, let’s hope something will change..

      • Barbara Arnold May 25, 2018 at 6:16 am Reply

        Yeah I know what you mean Andrea, but we must not let that put us off ‘bombarding’ the prescription poisoners with evidence and information. It’s taken 3 years here for them to accept the truth in my local health centre. In the begining they told the local pharmacist who agreed with me to “shut up” and to just fill out the script. He was under obligation to do so as it’s sanctioned by the government. Now he is very happy the scrips have gone down and even the ones he still fills, he warns the patient about them. This is a huge step forward. We have to be active in getting it out there. It was sheer anger that made me keep going, and every time I had a painful relapse I would double my efforts. I figured if they tried to stop me I would make sure every bit of media here would hear from me. Funny they did nothing, because when they ‘investigated’ they probably found the truth. However my own Doctor believed me and I know he felt bad because he had no idea, and I’m sure he’s helped with his contacts.
        So although I am ‘realistic’ and don’t expect miracles, every little bit helps. I do have high hopes about the EMA so we shall just have to wait and see.

        • Don Mowers May 25, 2018 at 6:50 am

          How is your EMA funded? Money talks with a heavy influence. The FDA in the US gets many millions of $$$$$$$ from the Pharm companies. Guess who’s side they are on? What is really sick and a bit amusing is that Big Pharma funds it’s own “drug safety tests”.

        • L May 25, 2018 at 9:20 am

          yeah, and it’s not just money pouring in. The current head of the FDA while he was at Duke, got the majority of his funding from big pharma. His predecessor actually said, on his way out, that their client was BIG PHARMA, not the people!

    • L May 25, 2018 at 9:18 am Reply

      wow! that is good news. and light years ahead of anyone here in California! just yesterday I went to a retinal specialist (my vision issues continue 3 years later) and once again, I kept hearing “well yes but, this wasn’t from the Cipro.” ARGHHHHHHH. No, it was just an ENORMOUS coincidence that I woke up one day after taking Cipro, and I had a huge swelling over a tendon, number fingers and hundreds of floaters….

      Well, keep up the good work. I tell everyone I know, I tell pharmacists, I tell doctors (even if they don’t want to listen)…..and I know several people who have decline them because of my warnings…

      • Andrea May 26, 2018 at 5:35 am Reply

        Yeah I know what you mean L… “It’s just a coincidence” or “maybe it was something that you were supposed to get anyway”… yeah right…Before FQ I was training almost everyday day. After 5 days of treatment my tendon started to hurt, while I was sitting on a chair. Now I sometimes struggle to climb the stairs, but yeah, just a coincidence…to feel like a 30 years old to an 80 years old man in just 6 months…sure.

        • Henk Noordhuizen May 26, 2018 at 8:33 am

          I,like many of the Floxies,got Cipro for a simple UT infection (due to a kidney-stone,in my case). A few weeks ago I read that,according to a recent study,only in about 20% of UT-infections Cipro still works. In my case it did.That’s what I call a (lucky) coincidence!!!

          In 2010 had a UT-infection as well,and got Cipro,but I didnt use it. Bladder infection healed without that poisonous medication nevertheless. That,too,probably was a coincidence. Or was it the magnetic pulser,drinking a lot more than I used to do and eating a cup of cranberries every day??? Plus extra vit. C? I should have sticked to that/my usual treatment for a bladder infection.

          When I told my doctor in 2010 that I had not taken the Cipro because I noticed that my fever was going down before I started with the AB she got very angry and told me that she didn’t prescribe me the Cipro for NOT taking it. I’m so glad I didn’t use it then; it gave me 6 extra years of being relatively healthy,only more and more health problems from the Losec I took from 1998.And,later,the Metronidazole,the Amoxiciline and the Flecainide;every “medicine” they gave me took a piece of my health away.Never got a medicine that didn’t,in the end,cause more problems that it solved!Is that pure coincidence?

          I hope hell is big enough for all those quacks!

        • Don Mowers May 26, 2018 at 5:28 pm

          Henk ….. You mentioned cranberries. Cranberries contain D-Mannose. I use pure D-Mannose capsules. Take a couple 2 or 3 times a week as a preventative.

        • Henk Noordhuizen May 27, 2018 at 1:59 am

          Hi Don,thanks for your advice but I prefer my Mannose the natural way because I believe that the whole berry contains more valuable substances than just Mannose.Berries are superfoods. And I really like the taste of cranberries.Others might like chips and sweeties but I prefer (dried) berries and nuts.But thanks,anyway.

          Have a nice sunday,everybody :-))

        • Henk Noordhuizen May 27, 2018 at 2:29 am

          Well written article from Mercola,on vitamine and mineral supplements. Directions for how to take magn. subs as well,and advise on what are the best mag.supps.There’s a lot of mis-info about supps as there is about “safe” synthetic medicines. Note that there’s also a difference between natural and synthetic vitamines:

          https://articles.mercola.com/sites/articles/archive/2018/05/27/are-the-elderly-taking-too-many-vitamins.aspx?utm_source=dnl&utm_medium=email&utm_content=art1&utm_campaign=20180527Z2_NB&et_cid=DM210558&et_rid=316828039

          I’d like to add this advice here: always take your supps together with,or immediatly after your (healthy) dinner for best absorption.

        • L May 26, 2018 at 8:51 am

          Yeah, I was in great shape too. I am in my 60s but I was seriously thinking about training for American Ninja Warrior. I worked out regularly, had tons of energy. One of my favorite things was road trips. Now I’m like “well I have to take gallons of water, and foods I can eat, and dozens of supplements, and….just forget it.” I’m most pissed off about what it has done to my eyes. I had had great vision, rarely used reading glasses. Now I still have a lot of floaters, light sensitivity to sunlight, problems with fluorescent lighting, and several other eye isses. I still have fluid around my heart that needs to be monitored. And I still get pelvic pain and pressure, phantom scents, and my skin on my bottom is horrible. I had great legs now I am embarrassed to even wear shorts.

    • Madge hirsch May 27, 2018 at 3:58 am Reply

      Yes – I noticed that my GP ‘s attitude towards them was considerably more circumspect after I had given him lots of info. Let’s hope the EMA comes down on the side of ” last resort only” . Hope you are fully recovered from your spine compression. I am doing well after my op despite having to go to the loo a LOT more than before. Unfortunately I have relapsed a bit floxiewise with a major return of skeletal problems . Gardening is not helping my knee pain at all! All the best M

      • Barbara Arnold May 27, 2018 at 5:00 am Reply

        Thanks Madge,
        I hope you recover soon. I am getting there after having some more ozone therapy, he infuses Vit C in the ozone and that seems to help to. I have just sent for some essential oils as I read a blog from a floxie who said they really helped for pain, also they are cheap so nothing to loose as long as they are organic. May help you ?? I’ll let you know how I get on.
        Hugs Barbara

  48. L May 26, 2018 at 8:52 am Reply

    ooops…that was supposed to be body, not bottom!

    • Henk Noordhuizen May 26, 2018 at 9:17 am Reply

      Both??? ;-))

      • L May 26, 2018 at 9:41 am Reply

        🙂 🙂 🙂

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