I lost a lot of my reading comprehension while I was floxed. I could still officially read – if you gave me a short memo that said, “buy milk,” or something like that, I could read it. But reading a novel or complex materials for work became really difficult. I lost track of the content of the beginning of a paragraph by the time I reached the end of the paragraph. I struggled to understand things that I used to be able to read with ease. I read The Hunger Games series about 2 months after I got floxed. Despite the fact that most 14-year-olds are able to understand those books, and I could have breezed through them before I got floxed (especially when I was 14), I struggled to comprehend them. I remember the basic gist of the books, but the details were lost on me. I read them slowly and without joy or interest (which kind of sucks because I heard that they were fun). My job requires me to read so I had to force myself to read materials for work, but it was difficult to get through them and I had to read everything two or more times in order to understand what I had read. Even after reading work materials a couple of times, I was still unsure about what I had read.
I hated the feeling of not being able to read like I used to be able to. It was horrible. It was scary. I thought that I was stupid and that I would continue to be stupid because I would never be able to comprehend written words again. I doubted my ability to do my job. I was scared that I wouldn’t be able to learn about what happened to me because I couldn’t read well enough to research. I was scared that I would never be able to enjoy reading a novel again. I was scared that I was unemployable.
Interestingly though, I could still write. My writing actually improved after getting floxed. Written words could flow out of me, but it was a one-way stream – they couldn’t come back in.
I thought of the loss of reading comprehension as a symptom, but it never occurred to me that my improved writing may be a symptom too until other floxies started to report to me that they experienced the same thing – a loss of reading comprehension along with an improved capacity for writing.
Isn’t that odd? Something similar happened in our brains that made us less capable of reading and more capable of writing. It’s really strange and I’m curious about it. What happened? Why would that be a common set of symptoms for multiple people who are suffering from fluoroquinolone toxicity?
Neither a loss of reading comprehension nor an increased capacity for writing are the most severe symptoms that most floxies experience, so I would guess that most people would want research funds to be focused elsewhere. But I wonder if any neurologists find this curious symptom to be interesting enough to study it. If there are any neurologists who read this who want to hear about my experience, please let me know (but know that my willingness to undergo testing is pretty close to zero).
The most simple explanation for these symptoms is that oxidative stress in the brain is what hurt our reading comprehension, and our writing capacity increased because we had something to say. Also, our brains had to compensate in some way for the loss of reading comprehension and perhaps they did so with an increased capacity for writing. That seems like an overly simplified way of looking at complex processes though, and I’m still quite curious about what happened in my floxed brain.
It’s interesting. At least, I think it is. I think that it should be studied. Maybe along with all of the other deleterious effects on the brain/mind that result from fluoroquinolone use.
Are any researchers, scientists or doctors curious about this?
Sadly and strangely, there seems to be a lack of curiosity about anything related to adverse reactions to fluoroquinolones. Maybe that’s because the symptoms are so broad. How does one even start to examine multi-symptom, chronic illness? It’s too big. Perhaps noting some of the little symptoms will pique some curiosity.
I hope so.
P.S. – I can read again. I feel like some of my writing talent has diminished as my reading capacity has increased. This is probably perception more than objective reality, but I wonder if there is only a certain amount of capacity that I have for written words and as one goes up, it takes from the other. Probably not. 🙂