Join The Conversation
For over a decade this page has been dedicated to enabling the conversation for floxies to talk with one another. Sign up and subscribe to get all the latest comments.
Floxie Hope Homepage
26,342 Comments
Leave a reply
You must be logged in to post a comment.
Need Help?
GET 15% OFF
Recent Posts
EBOOK FOR GETTING THROUGH FLUOROQUINOLONE TOXICITY
Hello out there. Where has everyone gone? Have all the ones who used to post regularly given up on the “New Floxie Hope”? I click on to the site daily and don’t see any of the old gang posting on either the new or the old comments pages. Yes. I do post the same thing on both the new and original pages to be sure that it is read.
You can actually find all the new comments on the right sidebar of the landing page too.
Hi doctor..im having an urogenital disease and during these two years of treating it i used ciprofloxacin 1 week 500mg/day ,levofloxacin 3 weeks 500mg/day,and ofloxacin 200mg,one pill/ day for 20 days…only ofloxacin helped me cause i had pseudomonas on my prostate,and ureplasma urealitycum on my sperm..but still i have poor erection ,no libido etc..anyway..i feel destroyed totally at 26 doctor.my brain is damaged.my neck is numbed..im losing my balanace of the body..feel weaknes on my muscless everywhere on my body..my knee are damaged,my legs too..i cant work like this,cant live in this condition at all..i have tingling on my brain,,,,feel a vibration in there and this vibration then spreads to all other parts of the body,hands,back,knee,its terrible!!you cant imagine.please help me!!!feel like a 90 years old male at this stade of my life when im actually only 26 years old.i can resist to this weakness in back or legs,,but toxicity has spread on my head as it seems..this is killing me and is making my life a nightmare!!
It’s nice that you are still here. I wonder where did everyone go. Did they found another forum? If you hear from them, please write here. I’d love to chat with them again. I still have questions for John Taylor and Andrea. I’m at the beginning of my flox journey.
Hey John, thanks for joining the conversation. I am sure they will check in soon. If I may ask do you have any suggestions on what I could do to make the comment section better?
Maybe if comment section was present on the home page (when you enter floxiehope.com) – just a scroll down was needed to join the conversation – no one would be lost any more. Is it possible? I know the design is a bit different now but the issue is people ask for help in various places, in recovery stories, about section.
I can make the comment section higher on the original homepage and on the new homepage I can keep the link and photo link to point to the comment section. Good tip John
Hey John, I made the adjustment and hope that works. Now the comments are higher on the page.
Hi Don. I haven’t posted for while. I’m kinda sad that almost nobody is posting anymore here. We used to be a nice pack…I gotta tell you that I much preferred how the website used to be. Anyway, as far as my situation, not much has changed, I hope you (and everybody else) are doing good. One thing I can tell you it’s that I’m highly pissed off to see how many people are passively accepting this covid vaccine and all these awful restrictions. As far as I’m concerned, I’d much prefer dying of covid than giving some pharmaceutical company the chance to destroy me another time.
Agreed! Especially as I can see the wider agenda growing; people say yes this time, whats next? Yes Ill have a vaccine passport, yes ill have the booster shot, yes ill have the microchip, yes ill have the updated vaccine and then its a normal part of life. Frequent vaccinations that you must show evidence of having.
What agenda do you think is happening, I would love to know. I feel the vaccine talks are either one way or the other.
Jason …. You need to view this web site and understand it. https://covid19criticalcare.com/ There are some very well respected doctors in this organization that DO NOT agree with much of the propaganda put forth by the “traditional” medical establishment or the media. These doctors formed this organization to try to get the truth out. You’re right. There are lemmings who are eating up the story about how the “so called” vaccines are saving the world and are flocking to get stuck in the arm. And there are others who are looking at the whole thing and saying no dice to becoming a Guinea pig.
Post both sides!!!
Hey Juju, how are you?
This whole covid situation it’s getting scarier by the day. I’m not taliking about the virus and I don’t want to, but I do belive there’re people using this virus as an excuse, to create something else. In the history of mankind, we’ve faced lots of pandemic and epidemic situations, but something like this never happened before. We’re facing freedom restrictions, privacy violations, psycosomatic side effects, including depression, people are loosing their jobs and they’re even committing suicide. And this is all in the name of this fake safety idea, including the fact that now many people are basically forced to get the vaccine shot. To me it’s clear there’s something behind it, no doubt. And if you think about it, all this crazy situation could be stopped tomorrow, if everybody would just ignore everything our governments tell us and kept going on with our life.
Hi Andrea,
Im doing good, thanks for asking. Slowly coming to terms with my chronic tendonitis 🙂 but refuse to quit pushing heavy weights, trying to do everything i used to do and still spending all my money on supplements 😀 The virus has only just started spreading here so we are entering the curfew and lockdowns phase; yay! How are you?
The ‘pandemic’ has been the most hyperboled event I have ever seen. If it wasnt a planned agenda, it was certainly capitalised upon and sold to the public with an advertising campaign so aggressive; with propaganda and censored media all pushing a narrative it was like another world war. I cant help but feel that the solutions to the problem had been patented long ago and the virus is the perfect excuse to introduce them, (vaccine passports, tracking technologies etc) I cant help but notice all the key figures calling the shots (Bill Gates, Fauci) have finiancial interests in vaccines and or tracking technologies. Like you say everyone needs to stop cooperating en masse because they will push and push things on us and see what they can get away with and people will take the tracking and the shots just to do things we used to; basic human freedoms like travel or go to bars and restaurants. Those things shouldnt be a compromise, we shouldnt have to bargain for them and certainly not in exchange for our privcy and sovereignty of our own bodies!!
JuJu . No conspiracy here. Let’s not look for one.
Hey Andrea, can you please let me know what I can do to make the new site better?
Don’t get me wrong Jason, the website looks great, and it’s probably more “complete” now than before, but this is probably why I preferred the old website, less “dispersive”
Do you feel the comments are working well?
Hi Anfrea- I agree this site is nowhere near as good as it used to be! Where is Barbara ? We are pretty fed up with the lockdowns here in France too. Are you going to be vaccinated? I am really worried about the vaccine causing a relapse .
Madge, the only way I’m going to be vaccinated is if someone put a needle in my arm without my consent. I don’t care if I’m going to be recluded for the rest of my life, big pharma destroyed my health already, I’m not going to give it another chance. Of course, I don’t think all of us it’s going to develop side effects from it, but me, personally, I don’t want this risk. Anyway I hope you’re doing good and keep improving your health.
The walls are closing in on me here. The government want to make it mandatory for all people living here to be vaccinated. They already forced all military personel and medical staff by saying those that refuse cannot go to work, next I think will be all teachers must be vaccinated or cannot work in school. I think that airlines will make it mandatory in order to travel so Im not sure how much longer I can avoid it. The Chinese Sinovac is the common one here, at least that one is an actual vaccine in the traditional sense and not ‘gene therapy’ . Still don’t want all those heavy metals being injected in me though especially not for a virus that has such a low chance of death.
But, if your lack of vaccination or following restrictions affects the health of others, suck it up. It’s not about you. It’s about personal and social responsibility. I’m lost friends and family from COVID because somebody’s “ civil rights “ were being violated by wearing a mask. Your civil rights take a back seat when your choices endanger others.
I’m sorry for your losses but, with all due respect…Are you sure vaccinating people is the only way this “pandemic” will stop? Are you sure there’re no huge interests in blowing out of proportion this whole situation? Are you sure about all the increasing positive cases they tell us about everyday, for more than a year now? Are you sure most of the people, the ones more at risk in particular, have followed some rules to try to prevent catching the virus? (adequate levels of vitamin D, eating healthy, physical activity etc)
Anyone knows about how to reverse closed cytochrome P450 pathway? FQ are CYP450 inhibitors. May P450 inducers help? ( see list here https://en.wikipedia.org/wiki/CYP1A2 )
As I found out from the orthopedic I’ve visited, I have a closed cytochrome because of FQ and that’s the main reason of my symptoms with tendons. I’ll keep you informed when I know more.
Hi John,
How did you find this out? Did you have any tests? I think I have a major issue with CYP450 as I react to pretty much all medications since taking levofloxacin.
Hi Saff,
Actually, I didn’t have any tests. The orthopedic said it based on his studies (he published a paper about how they treated a FQAD patient – I found this paper online and that’s how I know his name) – and as he told me, they have a FQ-tendon-damaged patient at least once a week!
I’m now considering PRP injections to my tendons, but I wonder if it’s a good move now or should I wait some more time before any invasive treatment. Have you heard from floxies who had PRP?
About this CYP450… I know there are some metabolism tests and some people even on the FH website did them and wrote about them in their recovery stories, but I can’t recall what was the test name. I know I bookmarked it on one of my computers, so if I’ll find it again, I’ll post here.
The good news I heard is that the closed cytochrome is going to open (or at least, there’s a good chance) in 3-5 years from floxing. I’m only 7 months out. What about you?
Sorry for the delay and I’m having to type this out again!
Hi John thanks for letting me know. I am 5 years out and perfectly fine most of the time, I go to the gym several times a week. I followed a lot of the supplement guidance and had frequent massages which helped, I also pushed myself to walk a bit each day.
But when I take certain medications I am right back to square one with a flare same symptoms as the initial floxing l and it can take a few months to get back to normal but that’s only from 1 500mg tablet as my symptoms usually start before the next does so I always stop at that point.
I’m very worried about if I have to have general anesthesia…
I haven’t tried prp, although I have heard of it.
Do you have any links to the studies you have read at all? Thanks!
I’d like to post a warning about some supplements that I found harmful. Some recovery stories suggested them, so I’ve tested them, but the relapse symptoms were so quick and obvious, and I’ve also checked them a few times before I’m writing this post.
The supplements harmful for me (I guess everybody is different) are NAC (n-Acylocysteine) and Chelated Magnesium. Maybe the manufacturer is cheating or something (but I took a well known manufacturer), but I cannot use them. I’ve experienced strange ripping feeling in muscles after NAC, and pulsing / twitching of muscles and tendons after Chelated Magnesium. I bought it out of curiousity, but I’ll stick to Magnesium Malate, Lactate and Chloride.
Andy Cutler advices against using NAC if you have issues with heavy metals …. I have mercury toxicity and have learned that makes healing from flexing much more complicated.
NAC saved me, still take it but yes it creates a detox affect. Detoxing from this drug isn’t fun but I’ve improved light years through it. When I detox from it my tendons hurt, my joints crack and I get spasms too…..once I flush everything out symptoms are gone. This is my experience with NAC & detox.
Posted in new floxiehope comments but posting it here too. Have you read about this? https://www.livescience.com/antibody-cocktail-works-preventatively-covid-19.html
Please read this. …. For the many who are having problems navigating the floxiehope web site now. The people’s comments are not in one place any longer. One must visit each of the different subjects (site pages) covered to see the people’s comments about that specific subject. To find that subject and see the comments on it by the people go to the column on the right side of many pages. (header …. “COMMENTS” , there one will find the date and listing of the topic and the name of the person who commented) Clicking on the subjects listed will take you to the web page of the specific subject and you then can read the people’s comments after you have read through the subject. I hope this helps the many who are having problems finding people’s comments and the various subjects and the people’s comments on the various subjects that concern us. I am posting this in both the “old comments and the new comments” sections. Good searching.
Anyone have any thoughts on Urolithin A? I’m still trying to recover from one course of cipro in 2016. I haven’t been able to run, lift more than 10 pounds and get injured easily. Sometime easy workout with 3lb weight is ok and other times I feel ike it tearing something in by body. Before cipro I ran every morning and spent an hour or two in the gym all most everyday. Not sure if its tendon, muscle or fascia or all of the about that need some help repairing. Clearly waiting it out didn’t work but then again for the first 3 years I have zero energy.
Hello,
does someone also have such problems with the eyes?
when i move my eyes i briefly see a gray shadow in the right field of vision. the ophthalmologists do not see any abnormal retina. it is not a floater. When I move my eyes quickly, the shadow is dark. if i move my eyes slowly i don’t see a shadow. they find nothing. does anyone know that?
I had my glaucoma worsened after Cipro. I have some strange vision problems too.
Ask your doctor for glaucoma tests. I was also prescribed citicoline (once daily one 250mg tablet). You can try it out as it’s a supplement, but the more important is to do all the tests: OCT and Retinal ganglion cell’s test. My retinal ganglion cell were found dead.
https://www.youtube.com/watch?v=WLN0KquCrAM It is 48 minutes long but a doctor who was seriously affected by his use of a Fluoroquinolone discusses what Fluoroquinolones are and what they do to your body. It is worth taking the time to watch/listen to his discussion.
Can you give me an adress of this doctor please???i want to contact him..im seriously damaged by floroquinolones..
Ermir Koka … All the information about the doctor is at about at the 41 minute level of the video. Watch the video to there and copy it off.
Hi people..im having an urogenital disease and during these two years of treating it i used ciprofloxacin 1 week 500mg/day ,levofloxacin 3 weeks 500mg/day,and ofloxacin 200mg,one pill/ day for 20 days…only ofloxacin helped me cause i had pseudomonas on my prostate,and ureplasma urealitycum on my sperm..but i still have poor erection ,no libido etc..anyway..i feel destroyed totally at 26 .my brain is damaged.my neck is numbed..im losing my balanace of the body..feel weaknes on my muscless everywhere on my body..my knee are damaged,my legs too..i cant work like this,cant live in this condition at all..i have tingling on my brain,,,,feel a vibration in there and this vibration then spreads to all other parts of the body,hands,back,knee,its terrible!!you cant imagine.please help me!!!feel like a 90 years old male at this stade of my life when im actually only 26 years old.i can resist to this weakness in back or legs,,but toxicity has spread on my head as it seems..this is killing me and is making my life a nightmare!!
Hi All- it’s been along time since I’ve checked in, I’ve been floxed since 2018 started to have a decent stretch in 2020 wasn’t feeling great but much better than I had been, in about February/March time frame I was coaching my son’s flag football game and it hit me like a rock, a wave going over me that feeling of Malaise, brainfog, and fatigue. I said to myself this is just a set back, like others you have experienced over the last three years, you will get better in a month or so, unfortunately that hasn’t been the case. I’m still dealing with a ton of brain fog, which causes mental fatigue, lack of concentration, fatigue and still that over all feeling of malaise. Still taking a fair amount of supplements daily still go to any acupuncture at least once a month. Any advise you can provide is much appreciated, I hope to kick this set back soon.
Have any floxies successfully had surgery on their tendons? I have a podiatrist willing to do surgery. One of my tendons in my left ankle is messed up that badly. It’s clearly visible on imaging. But of course I’m worried about re-tearing it, putting too much strain on the other ankle, having worsening neuropathy from the trauma of surgery. I think I have to take the chance though. I can’t live with this severe pain anymore. The few floxies I talked to that had surgery for full ruptures did not regret it.
Another option is prolo / PRP
Hi – Can anyone recommend a cold laser therapy device for home use?
Fred S … I have and use one called Laser TRX. https://www.lasertrx.com/ It is a rechargeable hand held that is made in Israel. It is comparable in strength to the popular expensive ones at about half the price. I have no complaints about it. To make an extension for the handle I took a paper towel core and wrapped it with clear shipping tape. It slips over the handle and gives enough extra handle that it is able to reach more hard to reach places. Do some research and Google for them. Do not buy a low powered cheap one.
Thanks, Don
Is this the same laser you can get psysical treatment for your tendons from your health insurance or is it a different one? The one I’m talking about is called High Energy Laser. Is it the same?
John … I don’t know because lasers come in all different strengths. Some commercial laser use must be monitored by medical personnel because it has the ability to burn. Most all the hand held cold lasers for home use cap the limits so they are safe for anyone to use. They do work for pain though.
Why the aversion to surgery for floxed tendons? If you have tedinosis and tears that are visible on imaging, why shouldn’t you get them fixed? I’m being told by floxies to “wait it out”. I literally can’t walk more than 5 minutes. I’m 32 years old and 8 months out, and have a surgeon willing to do do allografts (cadaver tendons). Why on earth would I not do this?
When did you get your injuries? In the first weeks after FQ or months later? The thing is we have messed up collagen synthesis and as my orthopedic doctor said it can take 2-5 years to have it back to normal, however there’s no guarantee.
You need to be extra careful with your tendons for at least a few years.
If you need surgery, do it, but be sure it’s instructed by a doctor who dealt with FQ patients before. I was happy to find one, but I didn’t have any severe tendon damage visible on ultrasound imaging. Did you have MRI or ultrasound? I’m 28 years old and also am about 9 months after Cipro. I took it for 5 days. What about you?
My calves and quads are floppy. My muscle still get hard but its like the muscle are loose. I think it could be a collagen thing though i do have horrible neuropathy. Does anyone else have this. Is it recoverable. I am at a 1.5 years
Has anyone had a root canal after being floxed? I think I’m going to have to get one, and I haven’t had dental anesthesia since being floxed.
To everyone ………. The story of Ivermectin. The drug that will crack Covid-19 and it’s variants. Why is it not used extensively? Very long but VERY informative. https://www.mountainhomemag.com/2021/05/01/356270/the-drug-that-cracked-covid
Has anyone gone to Dr. Mark Ghalili in Los Angeles? If so, how would you rate him, your experience and the therapy?
Thank you so much for sharing