This site is to give HOPE to those who are suffering from Fluoroquinolone Toxicity Syndrome as a result of being poisoned by fluoroquinolone antibiotics – Cipro, Levaquin, Avelox, Floxin, etc. It contains stories of healing.
Cipro, Levaquin, Avelox and all other fluoroquinolones are dangerous drugs that can have devastating effects that cumulatively I’ll refer to as Fluoroquinolone Toxicity Syndrome or Floxing. Fluoroquinolone Toxicity Syndrome/Floxing includes damage to connective tissue (tendons, ligaments, cartilage, fascia, etc.) throughout the body, damage to the nervous systems (central, peripheral and autonomic), and more. The damage done by fluoroquinolone antibiotics can destroy a person’s quality of life or even kill them. Certainly, there is a time and a place for drugs with dangerous side effects. If you find yourself in a septic shock induced coma, fluoroquinolones may save your life. Unfortunately, these drugs are not being reserved for life or death situations. People are being prescribed them for urinary tract infections, suspected prostate infections, upper respiratory infections, as a prophylactic for travelers’ diarrhea, ear infections, pink eye, etc. Thousands of people have suffered needlessly from the devastating effects of fluoroquinolone antibiotics, when another, safer antibiotic could have, and should have, been used.
The damage done by fluoroquinolones is largely unacknowledged by the medical establishment and an accurate diagnosis, compensation and relief are difficult to come by. There is no known cure for Fluoroquinolone Toxicity Syndrome/Floxing. However, many people continue to LIVE after being poisoned by fluroquinolones. They find healing, recovery, perseverance, compassion and hope. These are their stories.
This site is meant to give hope for healing to those who are adversely effected by fluoroquinolones. It is no way meant to disregard the pain of those who are chronically suffering from the horrifying effects of Cipro, Levaquin, Avelox or the other fluoroquinolones. There are people who don’t recover. Their stories are real and they matter. There are also people who are able to recover and I share their stories with the hope that they inspire others, or at least give hope that recovery is possible.
Here is a New York Times article about the dangers of fluoroquinolone antibiotics – http://well.blogs.nytimes.com/2012/09/10/popular-antibiotics-may-carry-serious-side-effects/?_r=0 – more news stories, research papers and other resources can be found on the “Links and Resources” page.
Here is a Facebook group that is a great resource for those going through Fluoroquinolone Toxicity – https://www.facebook.com/groups/floxies/
Featured post – I’m floxed. Now what?
The Fluoroquinolone Toxicity Solution Ebook has helped many Floxies to recover, including Daniel, Cindy and Ruth. As a bonus, you will also receive The Floxie Food Guide – a book of diet guidelines to help you through fluoroquinolone toxicity:
Thnaks fopr the info Don. But right now I’m not sure if I’m going to take anything. I don’t want to get things worse. I was using a probiotic, until a couple of months ago : VSL 3. Pretty expensive, 20 euros 10 doses. Not much, but at the begging it was working quite good. I mean, it never cured me, but at least I was able to go to the bathroom a little more regurally. But after a few months of use, it started to bothering me. So I gave it up, and strangley I continued to go to the bathroom with regularity, but I’m still suffering GI issues.
I’d say, compared to how I was in the first 6 months, when all this started I can say I’m 50% healed. I’m tempted to try this Betaine HCL, but I’m also very scared…
Andrea……. Do some research on light therapy. The red at about 650 nm (nanometers) and the far infrared at about 850 nm are the main ones. Cold Laser units use LEDs of this nm. Any cold hand held home laser that is worth anything is very expensive but there are some light bulbs around $40 and panels that have many of the LEDs in them for less than $100 on Amazon and eBay. Here is one example on eBay https://www.ebay.com/itm/US-Stock-SGROW-Anti-Aging-660nm-850nm-Red-Light-Therapy-45W-LED-Therapy-Light/292907519249?hash=item4432a60d11:g:GegAAOSwa1ZcMxLf
Light therapy helps many things and has been around for at least 20 years but with the advent of the LED panels with many LEDs now available they are becoming more popular. They are highly touted for healing. Used by many sports teams to hasten recovery from injures.
I have this panel and use it daily. It does a good job of mitigating pain when ever it shows up.
Really amazing what infrared LEDs can do when it comes to healing. Look into it.
Hi Don,I think that here,the oldfashoned filament lamps probably outperform leds.There are even plans to start production of leds with an extra,inbuilt filament to produce (near-)infrared light,because,after making more and more powerfull and efficient leds,the focus is now on full spectrum ledlight,infrared and near-infrared light included,and here the filament technique comes in.The old infrared lamps are way better than leds,here;I still got one,and I think those are still in production.
Actually it’s quite funny;the energy “loss” because the filament lamps generate quite a lot of heat is no real loss;it’s the light frequenties that are now recognised as the most healthy. And in my country (Netherlands) it’s no loss,at all,because most of the year,the times we need to light our houses,and heat them at the same time.Now.they even want to quit the use of gas and other fossil fuels,alltogether,and we have to switch to electricity for heating (and cooking).Absurd;first they force us to switch to unhealthy leds (the blue component in the light is bad for your eyes,and your sleep/biorithm),and now its clear this was a big mistake and we have to switch back to filament light,for health purposes.
I placed a link,not so long ago,to a PDF file with info on this matter.
Hi All,
I need help can i take Amoxicillin is safe for us or not ?
Hi Faisal,Amoxicilling is not a FQ,nor does it contain any Fluorid.It will probably be safe,for as far as any antibiotic is really safe.My experience with Amoxicillin (combined with Metronidazol) is from 12 years before getting floxed,but it was a bad one.can’t tell if the Amoxicillin,or the Metronidazol,was the worst of the two.
Mabe somebody with experience with Amox.,áfter getting floxed,can give you more info.Good luck.
Henk and Fiasal……… Won’t go into the long version of my story but I have taken a lot of Amoxicillin while I was floxed. It all was taken before I come to realize I was floxed. To control a IUT I was taking Cipro and Amoxicillin together. MANY TIMES. I did not seem to have any problems with the Amoxicillin.
Bottom line……. I found that I had a compound infection (gram negative bacteria e Coli) and the Cipro would work with it but not the other one. The other bacteria was enterococus (a gram positive bacteria) and the Amoxicillin did work with it. Taking them together (against the doctor’s recommendation) finally corrected my problem.
Faisal, amoxicillin SHOULD be one of the most well tolerated antibiotics, but this doesn’t mean that someone in our condition (floxie) can’t have a bad reaction with it. Sorry, but as always, be careful and use it, only if it’s really necessary
Like everything else, what works fine for one person, may adversely effect another. I know it was on Lisa’s list of “likely safe” antibiotics. Yet I recall someone on here saying that they had a reaction. It may also depend on how far out you are from the floxing. Nothing natural you can take?
Ehy everyone, just another thing…
lately (last few months) I’ve noticed that my tongue is almost always covered with a thin white coat. Not really a coat actually, but my tongue isn’t really red as it should be. I always brush my teeth and tongue and I try to keep it really clean, but in my opinion this have soemthing to do with my GI issues. Could be mouth candida. But I’m not sure.
Any experience with Nystatin (or commercial name Mycostatin)?
I have the same white “haze” on my tongue;not really something to worry about.Like the outer skin,the FQ has also changed the inner skin (intestines,stomach lining and of course,the lining of your mouth).I wouldn’t grab for things like Nystatin but first try things like backing soda (used in babies mouth,for this same problem (thrush);safe and efficient),or Colloidal Silver).Antifungul medication is not risk free.
Yeah, I’ve tried some “natural” things : brushng my tongue with baking soda, aloe vera mouth wash, but they only help for an hour or so. Thanks anyway.
I was reading about using a mouthwash containg at least 0,12 to 0,20 Chlorhexidine, to fight things like thrush. Maybe i’ll give it a try. A mouthwash is probably way better than some antifungal drug.
Andrea,you think this thrush is connected to your intestinal state,and I agree. So,maybe it’s better to focus on improving your gut health;after improvement,here,the thrush migh disappear without the need for medical care,then.Those problems started right after the Saccaromyce Boulardii,you used,so,you might have a yeast overload.That’s why I guess,Lactospore might be the best possibility to change things back to normal,but the choice is yours,of course.
I have an abscess inside the nose, I took one pill of medicine the first hours I was normal but now there is some high pulse but I can endure
If those pills are fluoroquinolones,you’d better be carefull.When the symptomes these pills give you get worse,you might consider to stop the course and go back to your doctor.Maybe he can open the abcess and flush it,and then give you another,mild antibiotic.Good luck;I hope things change for the better.