Floxie Hope

Floxie.Hope.1800.72.dpi

This site is to give HOPE to those who are suffering from Fluoroquinolone Toxicity Syndrome as a result of being poisoned by fluoroquinolone antibiotics – Cipro, Levaquin, Avelox, Floxin, etc.  It contains stories of healing.

Cipro, Levaquin, Avelox and all other fluoroquinolones are dangerous drugs that can have devastating effects that cumulatively I’ll refer to as Fluoroquinolone Toxicity Syndrome or Floxing.  Fluoroquinolone Toxicity Syndrome/Floxing includes damage to connective tissue (tendons, ligaments, cartilage, fascia, etc.) throughout the body, damage to the nervous systems (central, peripheral and autonomic), and more. The damage done by fluoroquinolone antibiotics can destroy a person’s quality of life or even kill them. Certainly, there is a time and a place for drugs with dangerous side effects. If you find yourself in a septic shock induced coma, fluoroquinolones may save your life. Unfortunately, these drugs are not being reserved for life or death situations. People are being prescribed them for urinary tract infections, suspected prostate infections, upper respiratory infections, as a prophylactic for travelers’ diarrhea, ear infections, pink eye, etc. Thousands of people have suffered needlessly from the devastating effects of fluoroquinolone antibiotics, when another, safer antibiotic could have, and should have, been used.

The damage done by fluoroquinolones is largely unacknowledged by the medical establishment and an accurate diagnosis, compensation and relief are difficult to come by. There is no known cure for Fluoroquinolone Toxicity Syndrome/Floxing.  However, many people continue to LIVE after being poisoned by fluroquinolones.  They find healing, recovery, perseverance, compassion and hope.  These are their stories.

This site is meant to give hope for healing to those who are adversely effected by fluoroquinolones.  It is no way meant to disregard the pain of those who are chronically suffering from the horrifying effects of Cipro, Levaquin, Avelox or the other fluoroquinolones.  There are people who don’t recover.  Their stories are real and they matter.  There are also people who are able to recover and I share their stories with the hope that they inspire others, or at least give hope that recovery is possible.

Here is a New York Times article about the dangers of fluoroquinolone antibiotics – http://well.blogs.nytimes.com/2012/09/10/popular-antibiotics-may-carry-serious-side-effects/?_r=0 – more news stories, research papers and other resources can be found on the “Links and Resources” page.

Here is a Facebook group that is a great resource for those going through Fluoroquinolone Toxicity – https://www.facebook.com/groups/floxies/

Featured post – I’m floxed. Now what?

The Fluoroquinolone Toxicity Solution Ebook has helped many Floxies to recover, including DanielCindy and Ruth.  As a bonus, you will also receive The Floxie Food Guide – a book of diet guidelines to help you through fluoroquinolone toxicity:

flu tox get help you need banner click lisa

 

 

fluoroquinolone-lawsuit-banner-trulaw

 

15,686 thoughts on “Floxie Hope

  1. David pollard April 19, 2017 at 1:41 pm Reply

    Hi Doug. I’m taking a Calcium Magnesium supplement available at GNC health stores in Ontario. Calcium 333 mg. magnesium 137 mg. Recommended by a Doctor of Pharmacology, health practitioner, doctor, integrative medicine specialist, all familiar with Cipro toxicity. I was disabled for several months and had to stop working.
    I take five caplets a day. Citrate is one very small component of this supplement.
    Please do some research on magnesium deficiency. Severe Magnesium deficiency is characterized by neuropathy, severe tendonitis, muscle spasms, cramps, anxiety, sleep issues, depression, heart issues, tremors ( twitching) I had all these symptoms and am now 90 percent recovered. I took Cipro for months.
    I’m not saying other supplements like Vitamin B complex, vitamin c, glucosamine chondroitine won’t help repair the damage to connective tissue already done. But the root cause is magnesuim depletion by Cipro at the mitochondrial level.

  2. D Snyder April 19, 2017 at 2:40 pm Reply

    Was just wondering how many people can use NSAIDS after being “floxed”. I have taken aspirin for a couple of days and my symptoms have worsened . I only took a total of 3 or 4. I am about 14 mos. into my recovery. Is it ever safe to take them again? Tylenol doesn’t work for me at all so what alternatives do I have for things like headaches or backaches?

    • L April 19, 2017 at 2:46 pm Reply

      Sadly, never a good idea. (I have fluid around my heart since the cipro, and the recommended treatment is steroids or NSAIDs. I won’t take either, and still have the fluid two years later.) I would recommend acupuncture or see an ND. THey often have none pharma suggestions.

      • D Snyder April 20, 2017 at 9:56 am Reply

        Thanks, L. I think I will try Tylenol again.

    • Michael Teeter April 20, 2017 at 8:28 am Reply

      It can be really dangerous. I guess it all depends on the individual. With me it caused a perforation of my small and large intestines and it has been shown to cause tendons to rupture. I use natural pain management.

      • D Snyder April 20, 2017 at 9:55 am Reply

        thanks for the response, sounds scary. Guess I’m lucky it only increased my foot pain and leg issues. Have you taken Tylenol?

  3. Daniela April 19, 2017 at 6:02 pm Reply

    Good news for floxies worried about dental anesthesia! Septocaine destroyed my life and I have gone for several years with three broken teeth. Finally found a dentist willing to work without anesthesia. Relative to floxing, the “pain” was a big NOTHING!

    The best part was, when everything was finished, no injection site pain, no accidentally biting oneself. I just got up and walked away as if I had never been there in the first place. Plus the dentist who works this way was very cheap!

    Here is an excerpt from the ncbi nlm nih gov article on dental anesthesia Septocaine :

    “A patient with no history of atopy had two anesthetic injections, one of 2% lignocaine with 1:80,000 adrenaline for a root canal procedure and another of articaine chlorhydrate (marketed as Septanest® in France and as Septocaine® in the US) for a tooth extraction. On the first occasion, a few seconds after the injection, the patient experienced abdominal pain, tachycardia, burning paresthesia on the feet, hands and face, hypertension, hyperpnea, tachypnea, and severe anxiety.

    The same anesthetic (lignocaine) had been given a few days before without any adverse effect. Thus, the cumulative dose of local anesthetic could have led to systemic toxicity. As Lemay and et al13 reported “… a medication can be tolerated for a significant period of time before causing an accident”. For example, in a different case, a patient had been given the same amount of the same preparation as Ultracain D-Suprarenin® 2 and 10 months earlier without any adverse effects.6

    The second event (with Septocaine) occurred 9 months later. Septanest was administered without noradrenaline, following the recommendation of a cardiologist. However, the patient experienced the same symptoms and some additional symptoms including muscle pain, a sensation of heat, especially on the face, partial paralysis of feet, hands and throat, headache, dizziness, a loss of spatial orientation, and dysphonia. Tachycardia was less intense, but still present. The patient required admission to the emergency ward.”

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3417971/

    • L April 19, 2017 at 9:11 pm Reply

      yikes—cannot imagine dental work without anesthesia. I was severely floxed and did ok with septocaine

    • Daniela April 20, 2017 at 2:12 pm Reply

      the article describes how the effect is cumulative. Like fluoroquinolones

  4. Michael Teeter April 20, 2017 at 8:29 am Reply

    Hello everyone! I just got back from my new doctor he is great and pretty much on the same page as me. The docs at age management help floxies.

  5. Heather April 20, 2017 at 12:14 pm Reply

    Hi everyone, I was floxed 4 and a half years ago. Have been on and off this site. I had a lot of improvement since the beginning but I still have a lot of pain. I believe it is both neurological( receptors damaged) and connective tissue damage. I gave birth a year ago and between labor and carrying around the baby my pain level is killing me. I take some supplements and Epsom salt baths, heat and ice packs. Benadryl and Xanax can both help with the pain some but I’m sleepy as it is with a baby. Just a few questions…. Did anyone have any tests showing connective tissue damage? Not necessarily tendons but tissue that gets less blood flow? It feel like I’m full of cracking scar tissue. Second any pain management recommendations? If I didn’t have to carry a heavy child around it wouldn’t be as bad but there’s no alternative there. Lastly I have a new primary Dr. What is the best thing to print out to give him? He said fibromyalgia etc etc but I don’t think he really is aware of the fluiroquinolone damage that can be done and it’s hard to explain when you don’t know exactly what the damage is( neurological, musculoskeletal etc) Any suggestions greatly appreciated. Also Daniela I can’t use lidocaine’s/mepivacaine either, I had to give birth without an epidural and have dental work without anything. You would think there would be alternatives.

    • Daniela April 20, 2017 at 2:11 pm Reply

      Hi Heather, I had to go through this with a baby as well. It’s been years and years, and I have learned a lot of things during this time.

      You are so perceptive to focus on blood flow and circulation, and that is also the gist of Indian yoga and Chinese acupuncture.

      The acupuncturist can tape tiny balls to your earlobes for dental work pain.

      To show doctors, I printed the recent US govt FQ warning and the septocaine article I linked above.

    • L April 20, 2017 at 2:16 pm Reply

      You can print out one or both of the dear doctor letters. Personally, I would find another doctor. Many floxies get misdiagnosed with fibromyalgia, among other things. Do a search for intergrative MDs in your area.

      I just started curcumin IVs which I am taking for inflammation but they are supposed to help with pain, if you can find an integrative doc or ND that does IVS.

      https://floxiehope.com/2016/05/25/dear-colleague-letters-information-about-fluoroquinolone-toxicity-from-doctors-to-doctors/

      • Daniela April 21, 2017 at 10:34 am Reply

        I forgot about turmeric (curcuma is the main component)! A bit of the powder will relieve a sprained ankle. At my worst I covered myself in the stuff and it really helped. Now I make turmeric tea every morning. Sprinkle some into some coconut oil with other spices like ginger, boiling water, honey and lemon to taste. They’re selling the real root in a lot of grocery stores now, too, but the powdered form is available everywhere in the spice section.

        It stains orange so watch out for that. But it works so well topically that I didn’t care #OITNB lol! Turmeric/curcuma is actually used as an orange dye so if you tie your tshirt, socks etc, you can actually get some nice effects

        L, try this before you risk the IV, please! Someone just died from a curcumin IV in SoCal 😦

        http://www.10news.com/news/team-10/encinitas-woman-dead-after-i-v-infusion-of-turmeric

        • L April 21, 2017 at 10:47 am

          I am aware of the news report. This clinic was not using a compounded pharmacy curcumin. What gets me about this is that ONE person dies from an IV (from a questionable source) and it is all over the news. Millions die each year from big pharma drugs and we hear nothing. I already had one IV and getting another next week. You could not orally take the amounts given in an IV, and even if you could, going through the digestive destroys much of what is valuable.

        • stephanie April 21, 2017 at 11:18 am

          OMG I hate that story about the tumeric so much so many people say oh you see that……. I say exactly same thing you say to them. I love my IVs I would be so much worse off without them. Big pharma kills so many and one bad experiances opens the flood gates to discount all the good they do. I wish people were so quick to do the same to all pharmacutial drugs. If they were none of us would be in this spot. UGH UGH UGH okay nap time LOL

        • L April 21, 2017 at 11:59 am

          I would trust my ND (and this btw is from from nurse with an integrative INTERNIST—an MD) over 99% of the MDs out there. But a story like this gets pushed by trolls for ama and big pharma. Not saying it is awful that it happened. But also, if this patient was having a reaction they should have had benedryl or something to counteract it right away.

    • Jane April 22, 2017 at 11:48 am Reply

      Has anyone tried deep muscle massage in conjunction with the treatments suggested on here?

      In the UK the speciality is called deep remedial massage . I understand the idea is to have deep muscle massage to break down the adhesions and for the muscle to start to rebuild again minus the fibrosis and adhesions. sorry if explanation is a bit unscientific. It is painful at the time and for 3 to 4 days afterwards but it encourages movement and helps with co ordination and balance.

      I have been told that if it does not hurt then there is no point having this done.

      • Heather April 29, 2017 at 6:28 am Reply

        I get a deep tissue massage once a week. I wouldn’t be able to function without it. When my neuropathy was at it’s worst the first two years I couldn’t handle the massages. But now it helps,I feel amazing for a day Lol(wish it was longer). It helps me for a few days and gets me through the week.

      • Susan April 29, 2017 at 11:58 am Reply

        I get deep tissue massage weekly. It is expensive but worth it. It hurts every time I get it done. Nothing relaxing about this massage. I think back almost two years ago when I started and how horrible the pain was everywhere. Now there are areas of pain that I get treated weekly. Overall I wouldn’t say it has eliminated anything but helps to keep the pain tolerable. The day of the massage is the best and within 3 days I am not feeling the best again.

        • Jane April 29, 2017 at 3:52 pm

          Susan well at last you are getting some relief which is good. I understand that you can self massage, stuff online for free.xxx

  6. Daniela April 21, 2017 at 12:34 pm Reply

    Well said!

    • Daniela April 21, 2017 at 12:36 pm Reply

      A completely natural approach is so much more effective as well!

    • L April 21, 2017 at 1:10 pm Reply

      but I do really appreciate your concern! thanks

  7. Kurt April 25, 2017 at 5:10 pm Reply

    Has anyone tried Metanx for Neuropathy? It’s a prescription medical food.

    • Barbara Arnold April 27, 2017 at 10:26 pm Reply

      Hi Kurt,
      I looked Metanx up, sounds interesting so I asked my pharmacist and he said he did not think it was on the FDA list here in Spain, but will investigate to see if it is. I will ask my ND Doctor who is also a medical Doc. I dont think he will have heard of it but it sounds good enough to give it a try. Let us know if you find out anything more. Thanks

  8. Stephanie April 29, 2017 at 1:11 pm Reply

    I was poisoned by Cipro 3 weeks ago. I will not go into my whole story. My symptoms are Achilles tendon pain/tightness, on and off pain in shoulders/wrists, burning, coldness, swelling in ankles and feet, muscle twitches (but this has gotten better). In my quest to find out what is going on, I came back positive for Rheumatoid Arthritis. I am having a hard time finding a doctor/specialist who knows anything about Cipro toxicity. My doctors feel like I am crazy. I read that steroids can make this worse after my doctor put me on one. It did make the muscle twitches and sensations worse. Right now the only thing that helps with the pain is Meloxicam. But, I have read on this site that you should not take anything in the NSAID family. I have a few questions.

    1. if Meloxicam is helping the pain, should I still not take it?

    2. What type of doctor should I see? (I have an appointment in a month with a rheumatologist and have had an ultra sound on my tendons which I was told they look fine)

    3. An EMG was recommended for my burning/cold in my feet. But, I feel my nerves are over
    sensitive and this test will be very painful. Has anyone found this test helpful?

    4. I heard of several types of Magnesium recommended. Which is best?

    5. I have not driven since this happened due to pain but also nervous I will hurt my Achilles tendon. Does anyone find driving made their tendon worse?

    • Bob April 29, 2017 at 1:46 pm Reply

      I would not go near that EMG test. Your nerves are too sensitive. Besides it is only to confirm what you already know. The burning pain my left foot is so bad I can barely walk. I am giving get to try ozone infusion. Did you ever try that Blue Room in Olympia. It is supposed to be good for pain. I wish I was close to one to try it out.

      • Jane April 29, 2017 at 4:00 pm Reply

        Bob have u tried deep remedial massage? You can self massage there are videos online etc.

        For the feet try exercises recommended for plantar faciitis. For example putting a, tennis ball under the foot and moving it about to loosen the tendons and muscles.

        Also try stretching exercises. Again free online videos to save you spending money .
        Wear supportive shies with arch supports.
        Applying magnesium oil topically is good.

        Take care x

        • Bob April 29, 2017 at 4:53 pm

          Yes I did that and now it’s much worse. I actually belive though that the increase in pain in my left foot is due to a molar I had pulled a few months ago. They are on the same meridian. I also think the seprocaine messed me up.

    • Bob April 29, 2017 at 4:02 pm Reply

      I’m sorry I confused you with another Stephenie. When I was floxed I tried to find homeopathic cipro. I could not find it or anyone that knew of it. About 2 weeks ago I talked to Homeopathic Associates in CA. They have worked with a lot of floxies and they use homeopathic cipro. They told me if you start treatment in the first several weeKS it is very effective. They take cases over the ,phone. There no is 619 741 5795. Allopathic doctors won’t do you much good. I take magnesium bicarbonate from Pristine Hydro. If you have a ND or functional medicine doctor near you might try ozone therapy and nutritional IV s.

    • L April 29, 2017 at 5:21 pm Reply

      So sorry Stephanie. Personally, if it were me, I would not take an NSAID. In face, I have fluid around me heart (ever since the Cipro over two years ago.) They recommend steroids and NSADS which I refuse to take. I have tried other anti-inflammatories, that have not worked. BUt now I am getting a curcumin IV in hopes that will help. I just don’t know.

      I would try to find an integrative doctor. I went through almost a dozen doctors, most telling me it couldn’t possible be the Cipro (and bear in mind I was SEVERELY floxed…from my vision, to PN to horrific breathing problems, large weight loss, major GI issues and on and on. I only started turning things around when I saw a naturopath. I now also have an integrative MD. At the very least, make sure to take a copy of the dear doctor letters, which are written by doctors for doctors. https://floxiehope.com/tag/dear-doctor-letter/

      AS for the emg I was told there would be some “discomfort.” YIKES! I thought it was painful. I would NOT do it had I known. Also, that measures the large nerves and chances are pretty good that it will show nothing. I have read that most of the damage is I the smaller nerves, which requires a biopsy, but usually they wont do that til they first do the other.
      And THAT might not show anything either, because as dr todd plumb says, the damage is functional, not structural.

      You want to avoid mag citrate mostly for elimination reasons (diarrhea) I like orotate or taurate (which is also good for the heart). or L-threonate. The most poorly absorbed is oxide, so avoid that.

      Yes, best to baby the tendon for at least 6 months (although honestly it an go out at anytime.) Something you might want to look into to strengthen the tissue is prolozone injections. They help you heal naturally.

      • Stephanie April 29, 2017 at 6:24 pm Reply

        Thanks L. I unfortunately did not read about not taking steroids until it was too late. My doctor had told me this would wipe out the inflammation and swelling. I believed her. I am not sure what to do about the Meloxicam because it is relieving the pain enough that I can work. Hopefully once I increase my magnesium, I will be able to get off of it.

        I am going to ask my doctor for a blood test to see how low my magnesium levels are. I just found a functional doctor that looked interesting online in my area that I will check out.

        I am also wondering about going to a podiatrist to see if they can give me recommendations for protecting my tendon. I was seeing a PT prior to my Cipro issues for back problems and now he is also working on my tendons. But, he does not seem to get how it is different from normal tendonitis. I have had ultrasounds done of my A, tendons and am told they are fine.

        Any suggestions on how to reduce swelling in feet and ankles? I am wearing compression socks. Sometimes my feet feel so heavy. Not sure if this is the swelling or the nerves?

        • L April 29, 2017 at 7:09 pm

          Not surprised the ultrasound came back normal…again mostly functional and not structural damage. Whatever kind of physician you see I urge you to find an integrative one if at all possible. Good your one doctor is functional medicine. You might want to find either a sports doctor, or a naturopath, who uses prolozone therapy. It could help with the tendons. I don’t want to scare you re the NSAIDS but I know a few people on this site who had gotten much better had relapses after taking nsaids. If you want to post what city you are near, there may be someone on this site who has a good integrative dr or ND that they could recommend. (If the podiatrist is unfamiliar with FLQ toxicity, and I am guessing he/she is, you will get the standard recommendations that likely will include more pharmaceuticals.)

        • Stephanie April 30, 2017 at 7:47 am

          Thanks L. I live in Rochester NY. There are only 3 functional medicine Drs in the area and based on my online search no one does prolozone therapy in the area.

      • Vee April 29, 2017 at 10:19 pm Reply

        L, please be careful about that IV. A young woman just passed away from one I saw on the news.

        • L April 30, 2017 at 9:14 am

          As I wrote in an earlier post, while I appreciate the concern, this was a one-off incident. The person giving the IV did not use a properly compounded source. My MD has been using this for years. And again, I want to say DAMN!!!!! ONE person dies from an IV, improperly given and it makes the news. MILLIONS have died from big pharma drugs…and nothing. Please don’t rush to judgement on a protocol until you have all the information. This is the type of thing that helps fuel the movement (paid for by big pharma) to kill all supplements and to give naturopathy a bad name.

  9. Stephanie April 29, 2017 at 4:05 pm Reply

    Thanks Bob. Going with question 4 above. Had anyone tried Magnesium flakes. I have intestinal reactions to magnesium and thought this might be a option?

    • Bob April 29, 2017 at 4:14 pm Reply

      You can avoid that problem with any topical magnesium as well as Remag.

  10. Jane April 29, 2017 at 4:19 pm Reply

    Dr Carolyn Dean sells all sorts of magnesium and adrenal support supplements.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s