This site is to give HOPE to those who are suffering from Fluoroquinolone Toxicity Syndrome as a result of being poisoned by fluoroquinolone antibiotics – Cipro, Levaquin, Avelox, Floxin, etc. It contains stories of healing.
Cipro, Levaquin, Avelox and all other fluoroquinolones are dangerous drugs that can have devastating effects that cumulatively I’ll refer to as Fluoroquinolone Toxicity Syndrome or Floxing. Fluoroquinolone Toxicity Syndrome/Floxing includes damage to connective tissue (tendons, ligaments, cartilage, fascia, etc.) throughout the body, damage to the nervous systems (central, peripheral and autonomic), and more. The damage done by fluoroquinolone antibiotics can destroy a person’s quality of life or even kill them. Certainly, there is a time and a place for drugs with dangerous side effects. If you find yourself in a septic shock induced coma, fluoroquinolones may save your life. Unfortunately, these drugs are not being reserved for life or death situations. People are being prescribed them for urinary tract infections, suspected prostate infections, upper respiratory infections, as a prophylactic for travelers’ diarrhea, ear infections, pink eye, etc. Thousands of people have suffered needlessly from the devastating effects of fluoroquinolone antibiotics, when another, safer antibiotic could have, and should have, been used.
The damage done by fluoroquinolones is largely unacknowledged by the medical establishment and an accurate diagnosis, compensation and relief are difficult to come by. There is no known cure for Fluoroquinolone Toxicity Syndrome/Floxing. However, many people continue to LIVE after being poisoned by fluroquinolones. They find healing, recovery, perseverance, compassion and hope. These are their stories.
This site is meant to give hope for healing to those who are adversely effected by fluoroquinolones. It is no way meant to disregard the pain of those who are chronically suffering from the horrifying effects of Cipro, Levaquin, Avelox or the other fluoroquinolones. There are people who don’t recover. Their stories are real and they matter. There are also people who are able to recover and I share their stories with the hope that they inspire others, or at least give hope that recovery is possible.
Here is a New York Times article about the dangers of fluoroquinolone antibiotics – http://well.blogs.nytimes.com/2012/09/10/popular-antibiotics-may-carry-serious-side-effects/?_r=0 – more news stories, research papers and other resources can be found on the “Links and Resources” page.
Here is a Facebook group that is a great resource for those going through Fluoroquinolone Toxicity – https://www.facebook.com/groups/floxies/
Featured post – I’m floxed. Now what?
The Fluoroquinolone Toxicity Solution Ebook has helped many Floxies to recover, including Daniel, Cindy and Ruth. As a bonus, you will also receive The Floxie Food Guide – a book of diet guidelines to help you through fluoroquinolone toxicity:
But don’t mitochondria replenish? We have billions …. surely new mitochondria are not damaged.
David,I wish you would be right on that one,but not only the mitochondria,themselves,but their DNA as well is damaged.So,when they replicate,you get brand new,damaged mitochondria.That’s the main reason why recovery is taking so long,and so often incomplete,and the lack of energy keeps going on (just like after a chemo;in fact,Cipro,right now,is being re-marketed as a chemo).
My doctor says it was designed as a chemo drug first. Yikes,
I’m told that the accumulation of Cipro in my cells is permanent. That would be in line with what you said Henk. That would explain why now I’m susceptible to poisoning by any number of drugs. I’m 72 and at the age where I will need drug therapy for lots of stuff as my golden years lol continue. Frightening.
A sfar as I know it was,indeed,designed as a chemo,but it failed in effectivenes,back than and was marketed as an antibiotic.Now there’s more demand for new chemo’s because the number of cancer patients is growing fast,and the bacterial resistance to Cipro is growing,as well.Seems,that in UTI’s,there’s an 80% resistance,while Cipro still is the first AB of choice for many doctors,despite of the growing Black List warnings.
You would do better to ignore your doctors when they tell you that you need drugs that are more likely to poison you than do you any good . Polypharmacy is one of the leading causes of death and disablement for older people. Concentrate on a healthy lifestyle. I bet you never needed the statin. I have just had a bad encounter with Cetirizine (Zyrtec). with bad side effects and withdrawal itching after miniscule amounts to try and get some relief from hives. In fact it is better to avoid the doctor if possible.
Statins are among the “medicines” that,for most users do more bad than good.Only a very few might need to lower their cholesterol,anyway,and that can be done with several natural and very save remedies.An apple a day… (no joke;british research showed that the action of one apple a day is almost equal to using a statin drug,but without the nasty adverse reactions of statins).Some natural remedies do even better,and let’s not forget that several statins have been taken out of market because of dangerous,and sometimes even fatal adverse reactions.
Statins too are mitochondrial poisoners. They stop the manufacture of Co enzyme Q10 by the liver as this is done on the same biochemical pathway as cholesterol manufacture. CoQ10 is needed by the mitochondria for the production of ATP.
Again, we need a list of drugs that affect mitochondrial patients …..it appears we have to hand that list to our doctors because most are so poorly informed about mitochondrial issues.
Lidocaine …who’d have thought we need to avoid lidocaine ?
I don’t take anything now unless I Google the name of the drug ( generic and all ) and the word mitochondria.
Dave,I’ve introduced the slweb.org website here,quite a while ago,and asked everyone to add other Fluoride “fortified” medicines that hey know of,to make a list,as complete as possible,for the floxie community.I also asked to report on fluoride-rich foods and drinks,because many,probably even most floxies can’t drink a single cup of tea without getting a relaps (I am one of them).
Fact is,that floxies seem to stay extremely sensitive to Fluoride for the rest of their lives,which makes such a list extremely important.But,untill now,there were no possitive reactions on my request.And the list on slweb.org is far from complete;about 20-25 % of all “medicines” contain fluoride,today,despite the fact that fluoride is one of the most dangerous and aggressive toxins,known to mankind!.
A list of drugs that affect mitochondrial patients would be great but is even more complicated because it appears that all floxies react different on drugs and foods/drinks,while the fluoride sensitivity,making drinking a simple cup of tea a real adventure for floxies seems to be more universal.
Great: the Bob Beck website is back online:
https://www.bobbeck.com/
His protocol has helped me numerous times,first,after I built the Blood Purifier,now,politicaly correct called Silver Pulser (for blood cleansing and generating high quality Colloïdal Silver),and the Magnetic Pulser.After several years of experience,and knowing that this would probably be the best investment,even,in my life,I bought both devices,ánd the Brain Tuner,now called (politics :-(( Bio Tuner from Sota Instruments.
I couldn’t buy the Sota Ozonator here,in EU,at the time,so bought one of their own trademarkt ozonators from Mediverse (where I bought my Sota devices,as well).This proved to be rubbish,and way too expensive (later discovered that it is a cheap chinese ozonator,ment for use in aquariums.They bought it dirt-cheap,and put their owwn sticker on it ).This failed after a while,and when a wire from a Sota device broke,Mediverse proved to not be familiar with the word “waranty”;advised me to contact Sota.
Well,I did,and Sota sent me a new wire,telloing me that there were some problems with those wires,at the time.And to my suprise,a few months later a received an other package,with a kind letter,telling me that they had improved on the wires,and that’s why they,again sent me new wires.This time it were the new,improved ones.That’s the reason that so many love Sota;not only are their devices of great quality,and the only ones,endorsed by Bob Beck,but they do have a great service!The devices,Sota makes,meet Bob’s specifications.
Bob,and Russ Torlage,the owner of Sota later on became good friends,and when Bob died after an accident,all papers and documents of Bob went to Russ Torlage,who gave them to two great ladies.They created the Bob Beck website to honour this great man and to spread the knowledge he gave to the world,for FREE ;Bob never earned a penny on these inventions,he didn’t want to,and he didn’t need to.
On the website is all the info you need to build your own devices,and how to use them.More info on how to use can be found on Youtube;Sota has made several instruction video’s;you’ll find them on their SOTA Instruments Inc. channel.
Here’s a well written introduction to Bob Beck (who also invented the portable photo flash,now found in every camera and smartphone,worldwide.Untill then,flash units were big and heavy,and only suited for use in photo studio’s):
https://www.bobbeck.com/bob-beck.html
Build your own devices,with this info and diagrams:
https://www.bobbeck.com/pdfs/build-your-own.pdf
Dave, did you have a reaction to lidocaine????
So is there any hope our mitochondria can heal??? Can time eventually start healing the damage?? There are those Floxie’s that feel they are mostly or completely healed so it seems to me that it is possible out mitochondria can make a turn around????
Dee….. One theory is that over time it is possible that good mitochondria will again gain the upper hand and be able to crowd out the bad mitochondria. Mitochondria is supposed to die off and be replaced by new mitochondria but as Henk says. The bad fluoride contaminated mitochondria reproduces also so it will remain until the good mitochondria can overpower it. Only time will tell. Good research would help decipher the mystery.
I think that that is the only possible way to heal: the good mitochondria overpowering the bad ones.But remember;there’s lots of other damage,done by the FQ’s,as well,that will have to be repaired as far as possible;;tendons,nerves etc.All damage will take time,but there’s still that little bit of hope.The fact alone,that the Farmafia,who caused all the damage,refuses to do anything to help find solutions for the problems they created makes me hellish!
They don’t know and they’re not interested in solving the FQTS,unless they can earn lots of money with it.In fact,they do,right now;think of all the people who don’t understand what caused all these symptoms,(long) after they stopped using the FQ poison.Most of them are very regular customers for other “medicines”,now.
I think it is a combination of many things. Yes i do think Mitochondria will heal over time depending on age, lifestyle, etc. If you treat your body poorly your “good” mitochondria will not be any good to take over for the FQ poisoned ones. It’s a race between the replication of good mitochondria with damaged mitochondria to overpower the other. Luckily for most floxies there are many more undamaged mitochondria so they eventually die off and real healing can take place.
The second peace is healing the damage done. Strengthening weakened tendons, healing damaged nerves, etc all is certainly possible but takes time as well. I think that’s the main reason this takes so long to heal from. I also think # of pills ingested plays a part (although not always) and age is a big factor. Better chance of full recovery for ages 20-40.
Justin,that would be great,especially for the younger Floxies (which I am not :-(( But there are so many unknown’s.Are there undamaged mitochondria left,after being floxed? How about the fact that,as far as we know now,all cell DNA,mitochondrial mDNA and RNA is damaged ? This would make repair impossible,as far as I know.
That’s the reason that I’m so angry that compagnies like Bayer don’t take their responsibility,and do the much needed research,but because their patent on Cipro has ended there isn’t any gain for them,only risks.With such research,and the outcome they would plead guilty and this would mean juridical processes and a huge drain of their finances,with all the victims going for their money. Won’t happen!
I hope for every Floxie to fully restore from being floxed but there is reason enough to have doubts,based on the little bit of science,available.
Don. Hopefully time does heal mitochondria!! I would think it does or I don’t think we floxies would get better and heal?? But I’m sure it is a very slow process!!!
Today,an article from Mercola,about how “science” on flu vaccination really works:
https://articles.mercola.com/sites/articles/archive/2020/02/25/cochrane-collaboration-flu-vaccine.aspx?cid_source=dnl&cid_medium=email&cid_content=art1HL&cid=20200225Z2&et_cid=DM466552&et_rid=817217257
Henk……….. Every time I refill my prescription for Armor Thyroid I am quaried about a flu shot. Never had one and don’t ever intend to get one. The flu drug manufacturing industry is money driven and not (truth) science driven.
Don,I receive a letter from my doctors regarding the yearly flu shot,in which they ask me to react,in case I DON’T want to get a flu shot,because otherwise they order one for me,in vain (which will cost them money). I NEVER react to these letters,because in my opinion they should first ask me if I want a flu shot,and,when I agree,THEN order one for me.
Henk…… All the major pharmacies give flu shots. Will they be hawking them on the street corners next?
No,Don;they will line us up in the marketplace,for our mandatory shots.At gunpoint;just like they do in the third world countries,on request of Bill Gates.Unless we stop them.
Henk, you probably mentioned it before but what symptoms do you currently have after being floxed?? Was just wondering how much you have recovered and healed??
Dee,at the moment I have a total lack of energy,have a depression,the every-day’s pains in joints,tendons and nerves,which come and go,lasting from minutes to hours,sometimes weeks or even months.During the last 2 months I had three small relapses,where the heart palpitations came back (after 2 bottles of beer (óne too much :-(( ,after a ground beef steak of bad quality,with MSG in it,and during a stressfull period (not yet finished),where I have a conflict with a very despotic female “guide” working for the company where I rent my house).
Although I am so much better than I was,the first two years,at this time I’m starting,like many Floxies,to loose hope of a recovery,maybe not 100%,but enough to pick up some of my hobbies.Making long walks through the forest with my camera,and a bit of food and drink is what I’m missing the most.And searching old “treasures” with my metal detector,and assisting on archeological excavations.Hardly have enough energy for taking care of my garden;not just a hobby but also an obligation for people who rent a house.
Cipro has drasticly changed my life for the worse,and thinking of my doctor,first telling me that she had just received a letter with a warning NOT to prescribe Cipro to patients like me,using Flecainide,and then subscribing it,anyway,and even getting angry at me,twoo weeks later,becaause I stopped taking the poison because of extreme adverse reactions.She took a dangerous gamble with my health,and the risk was all on me.And I was the one who lost.
She’s preparing to retire and enjoy the rest of her life in a while I am limited to surviving and trying to live with the damages she causes.Not knowing what awaits me in the future,because of het big mistake,What hearts the most is that she even doesn’t want to hear what her idiotic descision has caused,getting angry at me because I critisize “her” favorite “medicine”.She’s a total lunatic,and I have to keep myself from thinking what other missery she might have caused during the years she “helped” her patients.A totaly wrong attitude,for a doctor!
Well;I’d better prepare my meal,now.Than wrap some little gifts;my middle neighbour girl has her 7th birtday,tomorrow;those are the little joys in life that are still within my Cipro caused limitations :-))
Henk …… Being floxed does make quite a mess of our lives doesn’t it. My situation started about 60 years ago by a well meaning but procedure happy young urologist. He turned a simple UTI into a life long chronic one. Had I known about D-Mannose then none of my past 60 years would have happened the way they did. For about 30 years I was handed off through 7 urologists 3 infectious disease doctors and a couple of gasteroenterologists. The “g” doctors got into the picture because the urologist had for so many years loaded me up with every antibiotic that came to market. My gut was in constant turmoil. Each doctor had to have his own test results so I repeated many of the tests more than once.
Then Cipro came along.
I was involved in the clinical trials before Cipro came to market. Since it did work and worked well I spent the next 30 years taking it any time I had a UTI flare up. Always wondered why I did not feel normal but the “MD” doctors always had some other reason for my ill feelings. I did not realize I had an iatrogenic illness caused by Cipro. About 3 years ago I had a UTI relapse and went to the ER. The first thing that the ER doctor did was hang a 500 mg bag of Levaquin. That was the tipping point that “really” lit the fire. I was still in the dark about the devastation that Fluoroquinolones could cause. Oh!! And while in the hospital another urologist (number 8) suggested more tests etc.
When I got home and began to research Fluoroquinolones on the Internet. I realized what had been going on the past 30+ years with Cipro and the dose of Leviquin. Deciphering the somewhat “secret” actions that went on during my short stay in the hospital is rather interesting. A little late but now I know and can’t be snowed by the “MD” world any more.
At 85 now I don’t see “recovery” in my future. My goal is to figure out ways to live with the many assorted problems. I just have to live with the terrible fatigue, spacey/dizzy felling and the transient aches and pains. Weather changes are very uncomfortable.
While not affected as severely as some, daily living and catering to the iatrogenic illness gets very tiresome. I must thank the (well meaning but cash driven and clueless) “MD” medical profession for it’s persistence and causing today’s problems.
Henk, reading your words really make me sad…I’m sorry to read all that, and I can understand your depression and frustration. Everynight, when I desperetly try to sleep, but instead, I repetedly go to the bathroom, I think at that ugly stupid face (that urologist) who, with no esitation and no excuses gave those pills who poisoned me for the rest of my life. I remember when, for the first and only time I confrotned him, angrily asking him why in the hell he prescribed me such an overkill and useless treatment, even if he already knew there was no infection. His response was that it is what he was supposed to do. To validate his bullshit, he even said that at the last meeting he went to, they told them they have to prescribe antibiotics as prevention, even if there’s no sign of infection!!! I wish I could know which pharmaceutical company was sponsoring that meeting. I have bad thoughts in my mind all the time. I’ve become so darker and meaner in the last few years. I often think if life is still worth living. I wish I could have my health back, and I really wish he could suffer what I’m suffering. All the pain, the misery, the lack of hope, the drained energy.
Andrea………. Your post reminds me of something that I have copied and keep handy. It is a quote from a Fox News personality who had mysterious headaches that she could not find relief for. It goes: “You must be your own fiercest advocate when it comes to your health. Walk away from medical professionals who dismiss your concerns,and don’t quit searching until you find someone who will partner with you to find the answers you deserve.”
There is one caveat to this theory. MONEY. Easy to do this if you have plenty of money but searching around is very expensive. Not all of us can do it,but we must educate ourselves so that we can make the best decisions.
Andrea,my first AB course,with Amoxicillin and Metronidazol was,or should have been preventive.The dental hygienist had prommised to send me the recipy,a few days before the first treatment but she forgot.Than she gave it after that first teartment but it didn’t work.Instead,it ruined my overall health,my glucose regulation,my gut health and more,untill I re-discovered the Bob Beck Protocol,built the Blood Purifier/Silver Pulser and the Magnetic Pulser,started to use them,and in two weeks time both my glucose regulation and my guts were (almost) healed.
I think that I only used the Magnetic Pulser,during those two weeks.My glucose level was better to the point that I could eat 2-3 slices of full wheat bread without hyper- and,a half hour later,hypoglycemea,and my stools were normal,after 3 years of misery,but stayed very sensitive to infections;the slightest bit of spoiled food or bad bacteria gave me diarrhea,untill I found Lactospore.Since then,that protocol has helped me numerous times,in particular the Magnetic Pulser (great with pains and local infections);that’s why I’m so gratefull to Bob Beck,and why I keep on advising people to build those devices and give them a try.
As soon as I got the money,I bought the Sota devices;those meet the full Beck specifications and are quality built,and a bit more comfortable in use,but quite expensive,but probably the best spend investment I ever made.
The “preventive” claim is just for selling the drug before your body got a chance to heal itself;so,it’s preventive against gain loss,regarding your doctor.
While re-reading the Mercola article about PQQ,I though that you might be interested in it,as well:
https://articles.mercola.com/sites/articles/archive/2019/12/02/pqq-for-brain-health.aspx
Henk, just outof curiosity, how do you use the magnetic pulser for your guts or prosatte problems? You just keep it near your stomach or groin? And how long for each time?
Andrea,the use is as simple as can be.Just put the (electro-),magnet on,or over the place you want to treat. Then push (home-built) the flash test button as soon as the light,indicating that the unit is ready (loaded) for a flash.The flash will (go off).Just repeat this as long as you want too,or,untill the flash unit gets hot and needs some time to cool down.
The Sota unit is even more handy,First of all,the magnet has a handle,just like a shower head.This makes it easier to use on difficult places (your back,underleg and feet,etc.).This unit automatically “flashes” as soon as it is ready/loaded,then starts reloading and so on,for 20 minutes.At that point you can go on or choose to end the session.Stopping can be done at any moment,when you want to.
At the moment of the “flash (the homebuilt really gives a light flash because the flash tube is still there,and in series with the magnetic coil),the magnet coil creates a stron magnetic pulse which enters the body 10-15 cm deep.Because there are metal parts (iron,copper,zinc,etc) everywhere in your body,the magnetic pulse creates a small electric pulse (like the turning/moving magnet creates an electric field in the surrounding copper coil.
The effect is twofold:just like the Silver Pulser,the magnetic/electric pulse disables bacteria,virusses,fungus and other pathogen,which can than be removed by the body.It also calms pain in the treated area (quite helpfull in the tendon pains I had,and,in a lesser way,still have,now and than).
It is very important to start with very short sessions and build up.Also drink at least 2-3 glasses of water before,during and after the session to avoidHerxheimereffect,and when treating your belly,you reaally need to use a good probioticum.
I think a homebuilt MP will cost you about €35-40,at the moment (I buy an old flash unit,second hand,on the web for € 5 – € 7,50,plus shipping,a piece of thick electro-cord (double one,2,5 mm2,ca. 1 mtr. and a coil.My favorit flash (easy to modify) is the Vivitar 2800,and the coil I use is a Visaton (art. number 5032) Here I bought it,last time (attention;the pic shows a same coil,but with other specifications.Best is to “shop around for the best price):
https://www.reichelt.de/visaton-sp-spule-2-2-mh-1-3-mm-vis-sp-5032-p56120.html
The modification is,in fact,very simple:open the flash unit,disconnect/de-solder one of the wires,connected to the flash tube,solder one of the leads of your wire to the fash tube(be carefull;this is the most delicaate part of the job because when putting too much force to the connecton on the tube,it might break),and the other lead to the wire you just disconnected from the tube.Solder both leads on the other side to the copper coil.In this way;the coil is connected in series with the coil,and whan firing the flash,the electric current will flow through the flash tube,through the coil,and back.
Put some isolation tape around the connection between the wires in the unit,make some kind of strain/pull relief around the thick wire (this can best be done before starting the soldering job),and close the unit.Don’t forget to isolate both solder connections at the coil side,as well (the pulse won’t kill you but,because of the high voltage,might be very painfull and scare the hell out of you ;-))
Put batteries in the unit,switch it on and wait untill the flash-ready light burns,and push the flash test button.The flash unit will produce a light flash,and with a washer you can test/demonstrate the magnetic pulse.Just lay the washer near the center,on the coil,then pust the test button.The light will flash,and the washer will fly 20-30 cm’s through the air.Eurica;it works.All this info,and much more can be found on the bobbeck website,and on the YT channel of Sota Instruments are some very usefull video’s.
One of my homebuilt magnetic pulsers needs a “new” secondhand flash unit,which I have already bought.I will make some pics,during the replacement;might be helpfull for people who want to make their own cheap magnetic pulser.
Thnaks Henk. Do you rememebr I told you, some time ago, I’ve tried that magnetic tesla chair, which is similar to the sota pulser but it differs in some key aspects. I really didn’t understand how, actually I still don’t understand. Different power? different magnetic field? I don’t know, I only know it just worsened my problems. Many urologist are now using magnetic pulsers to treat patient after a prostactomy and other stuff, but in my case it even “woke up” my symtpoms. Do you think the sota pulser is going to do the same thing? In what way the sota pulser differs from the amgnetic chair, for example? (please easy langauge) 🙂
I was talking to the urologist a couple of days ago, and he told me that it is exaclty what it is supposed to do : strenghten your pelvic floor muscles, so, if in my case my pelvic floor muscles/bladder are already contracted, it’s just going to be worse for me…what do you think?
Yes.I remember,Andrea,and i Explained the difference,several times.One more try :-)) A pulse has a very steep rise,power going from zero to max in a fraction of a milisecond,and than has a similary fast fall to zero.Way to fast for a pathogen to adapt to it.The Tesla chair is a wave device;the output rises slowly to a maximum,and then gows down the same,slow way.That’s the reason I told you on forehand it would probably not work.
Try to find some handy friend or family member,owning a solder iron and able to handle it on a simple job;building one,the way I described is easy and cheap.Use it for a while,and when satisfied about the effects,consider buying a Sota Magnetic Pulser.On youtube are some vids on how to make one,as well.I’ll let you know when I find a video that shows the right way to do it.
Henk, wow I am sorry to hear your Doc was a lame and uninformed idiot like so many!! The worst part is she won’t take accountability for her mistake!! How long ago were you floxed?? Time does have a way to continue healing us even if it is slow so the best we can hope for is “continued “ healing!!! Thank you for telling your story. I was just wondering too how long you have been floxed?
Dee,my doctor was nót uninformed.In fact,she had just received a warning to nót prescribe Cipro to patients,already using Flecainide (like me),but descided to ignore that warning (which only made her angry;she shouted:”If things go on like this,in a while I will not be allowed to prescribe anything at all,anymore,and might as well stop with my work”) and than she prescribed the Cipro poison,anyway.
And when I came back,two weeks later and told her that I had to stop taking the Cipro after 4 pills,because of the extreme adverse reactions,she got very angry at me, shouting that she never heard any complaints about Cipro,instead of admitting she made a big mistake by,ignoring that warning.
That’s what makes all the missery,I have now,so hard to swallow.
Guys I found a very helpful supplement that I have been taking and I think has been really good for my nerve damage and brain fog type symptoms. I noticed a difference let’s say.
It’s called Life Extension Mitochondrial Energy Optimizer with PQQ. It contains:
B6 (p-5-p) 100mg
Carnosine 1000mg
L-Taurine 800mg
Benfotiamine 150mg
R Lipoic Acid 150mg
PQQ 10mg
It seems to be working for me.
Thanks for that info,Michael.How long do you use it,and after how long did you notice that it works for you?
I consider giving the PQQ,on it’s own,a try.The combi you’re using is beyond my budget (over 3 times as expensive!).
I did pqq along with ubiquinol. And I know you’ll appreciate this. (the source) https://articles.mercola.com/sites/articles/archive/2019/12/02/pqq-for-brain-health.aspx
Thanks for the reminder,L.;I read that article,back than but didn’t back it up and forgot about it :-(( I’m gonna put the PQQ on my wishlist.Combining with ubiquinol would be better,but makes it much more expensive.
Henk and L,
I started this a couple of weeks ago (maybe 3), but I was worried about the B6 at first so I only took a little (less than the recommended dose). I actually only wanted the PQQ really but in the end got this by mail order as it was on special. The PQQ stimulates the new mitochondria to form whereas the mito Q10 which I also have been taken optimizes the existing mitochondria.
Anyway in the last week or so I am taking the full dose 2 tabs twice a day and notice the best improvement so far since the beginning of my floxing. Maybe I am getting better anyway, I don’t know but I think it is doing something.
Regards,
Michael
That’s great. All good stuff. The Bs are important for brain health and nerve health. Sounds like a good formula. Glad it is helping you.
Michael ….. Thanks for the heads up on this supplement. I just ordered it from Amazon. After doing some searching It appears that they have the best price and the shipping is free. (Thanks to our great congress people now we must pay sales tax on online purchases)
I hope it does for me what you say you think it is doing for you. As you have done I think I’ll start with a half dose for the first week.
Thanks again for posting about this Life Extension supplement.
Andrea,
Please try WobenzymeN it will help you
https://losethebackpain.com/interstitial-cystitis-systemic-enzymes/
Andrea, this is about a different systemic enzyme that I never used but I wanted to post it so you can read how systemic enzymes (WobenzymeN) can help you. I’ve used them and they work and they work really fast, about 2-3 days.
When I was recently tested for all sorts of things, it showed my magnesium and a couple other things were low, which was weird since I take so many supplements. My doctor (integrative) said that meant that my body is not utilizing them and I needed to take digestive enzymes with every meal. He also mentioned that I might want to add pancreatic enzymes as well. I am using a supplement that has them now, but I see that Wobenz. does as well. I’ll try this when I run out. Thanks for the mention, Joanne Egg. 🙂
I take Bromelain with my dinner . It works as a digestive enzyme and I feel it helps the mild acid reflux I get when having a relapse. I have had a diminution of floxing symptoms recently but have been knocked back into a relapse by another bloody poison – Cetirizine (sold under brand name of Zyrtec chez vous). I took it to control my hives – which it did-but it gave me terrible lower back pain and a feeling of weakness in my legs despite taking miniscule amounts. 2.5 mg would control the hives for 4/5days but each time I took it the backache got worse. The pain in my hip due to the total lack of cartilage there got worse too and not being able to walk without a stick stressed me so much that a relapse has come on. Hoping it will not last long. I will be 5 years out this summer. Like other oldies here I am beginning to despair of healing.
How odd…I just happened across an article on lawsuits against Zyrtec for severe itching and hives. Interesting that that helped yours!
😉
https://losethebackpain.com/interstitial-cystitis-systemic-enzymes/
Andrea,
https://losethebackpain.com/interstitial-cystitis-systemic-enzymes/
Joanneg. What brand of Wobenzyme N do you take and how much? Where do you order it from?? Did it really help you IC???
https://www.amazon.com/Garden-Life-WZCLEAR100-WOBENZYM-Wobenzym/dp/B0062W3NTA
They really work great for uti and IC!!
I’ve used them for both and so have my daughter’s and they work fast.
Sorry, I didn’t answer all your questions.
I don’t take these every day cuz I’m scared of everything! I only take them when I have any urinary or kidney issues and i start with 1 and increase the dose if i need to and stop them as soon as i feel better which is pretty quick usually no more than 3 days. But once i had to take longer for a uti about 5-7 days.
Joanneg. Thank you much for the info on the enzymes!!! I’m going to try them!!!! I am either having a real mild UTI or IC???? Just feel like I have the urge to go all the time. There really isn’t much burning but feel like I have to pee even after I go!! I take a lot of DMannose which if taken every 2-3 hours if you think you have a UTI is suppose to clear it in a few days. At the very least it has kept it to a “mild” UTI but not sure if maybe I’m experiencing IC instead?? Hopefully the enzymes might help me!!! Thanks so much!!!
Joanneg. Do you start with one enzyme pill per meal or per day???