Floxie Hope


This site is to give HOPE to those who are suffering from Fluoroquinolone Toxicity Syndrome as a result of being poisoned by fluoroquinolone antibiotics – Cipro, Levaquin, Avelox, Floxin, etc.  It contains stories of healing.

Cipro, Levaquin, Avelox and all other fluoroquinolones are dangerous drugs that can have devastating effects that cumulatively I’ll refer to as Fluoroquinolone Toxicity Syndrome or Floxing.  Fluoroquinolone Toxicity Syndrome/Floxing includes damage to connective tissue (tendons, ligaments, cartilage, fascia, etc.) throughout the body, damage to the nervous systems (central, peripheral and autonomic), and more. The damage done by fluoroquinolone antibiotics can destroy a person’s quality of life or even kill them. Certainly, there is a time and a place for drugs with dangerous side effects. If you find yourself in a septic shock induced coma, fluoroquinolones may save your life. Unfortunately, these drugs are not being reserved for life or death situations. People are being prescribed them for urinary tract infections, suspected prostate infections, upper respiratory infections, as a prophylactic for travelers’ diarrhea, ear infections, pink eye, etc. Thousands of people have suffered needlessly from the devastating effects of fluoroquinolone antibiotics, when another, safer antibiotic could have, and should have, been used.

The damage done by fluoroquinolones is largely unacknowledged by the medical establishment and an accurate diagnosis, compensation and relief are difficult to come by. There is no known cure for Fluoroquinolone Toxicity Syndrome/Floxing.  However, many people continue to LIVE after being poisoned by fluroquinolones.  They find healing, recovery, perseverance, compassion and hope.  These are their stories.

This site is meant to give hope for healing to those who are adversely effected by fluoroquinolones.  It is no way meant to disregard the pain of those who are chronically suffering from the horrifying effects of Cipro, Levaquin, Avelox or the other fluoroquinolones.  There are people who don’t recover.  Their stories are real and they matter.  There are also people who are able to recover and I share their stories with the hope that they inspire others, or at least give hope that recovery is possible.

Here is a New York Times article about the dangers of fluoroquinolone antibiotics – http://well.blogs.nytimes.com/2012/09/10/popular-antibiotics-may-carry-serious-side-effects/?_r=0 – more news stories, research papers and other resources can be found on the “Links and Resources” page.

Here is a Facebook group that is a great resource for those going through Fluoroquinolone Toxicity – https://www.facebook.com/groups/floxies/

Featured post – I’m floxed. Now what?

The Fluoroquinolone Toxicity Solution Ebook has helped many Floxies to recover, including DanielCindy and Ruth.  As a bonus, you will also receive The Floxie Food Guide – a book of diet guidelines to help you through fluoroquinolone toxicity:

flu tox get help you need banner click lisa





15,094 thoughts on “Floxie Hope

  1. joanneg January 8, 2017 at 11:22 pm Reply


    Sometimes the sicker we are the less supplements and medications we can take, because they can definitely keep you in a flare.

    Since being floxed, I was put on heart meds, thyroid meds, and valium, all which flared my symptoms to unbearable, and I had to quit taking them all. Even some supplements like B vitamins, milk thistle, glutathione, and iodine just to name a few, and of course coffee/caffeine. It took a long time and a lot of hard suffering to realize these things were keeping me in a manic, loose my mind, jump off a cliff flare.

    If I were you I would start seeing what supplements and meds I could stop, and maybe when you’re stronger you can add them back in if needed.

    I would never stop taking Magnesium!!! make sure you’reusing transdermal and you’re taking enough 900-1200 mg total. Also, I would definitely order the Omega patch. I’ve taken omega pills and they didn’t help at all. I don’t know why, but those patches help tremendously!!

    So, you got some big things to think about reguarding what you’re taking.

  2. Ghost January 9, 2017 at 7:13 am Reply

    Can someone post the links of the doctors?

  3. L January 9, 2017 at 9:29 am Reply

  4. Ken January 9, 2017 at 10:05 am Reply

    Thanks everyone for your suggestions. It has been since last Aug. and I just continually get worse. I don’t know what I am doing at times and I have really wore my family completely out. It took two years of torture last time and I am getting worse each day but thanks again.

    • Bob January 9, 2017 at 11:04 am Reply

      I have been getting worse since September also, ever since I had oral surgery. I also don’t feel like fighting it any longer but what is the alternative?

  5. Stephanie January 9, 2017 at 4:51 pm Reply

    So I’m here in spirit but need another break till I get used to sulfur pills it’s day two and I feel like my body is drained of all energy and the muscles are killing me. I feel like also the drooping in left side and the muscle sticking out in my neck feel like they are touching. But I’m staying positive and it’s crazy the wedding is planning itself it’s amazing like the universe knows I have no energy so everything is just coming together and looking to be right on budget. Just need to conserve energy.

  6. Catherine P January 10, 2017 at 9:49 am Reply

    I know this has been asked before, but which brand of colostrum is recommended? Thanks

    • Ryan L January 10, 2017 at 12:06 pm Reply

      Here’s a link to the one Joanne G recommended (Immune Tree Colostrum 6).


      • Catherine P January 10, 2017 at 12:43 pm Reply

        Thanks Ryan

      • Nicole Reedy January 12, 2017 at 7:02 am Reply

        Ryan L, I have gone back to find where you have talked about colostrum & cannot find it.
        Someone else mentioned this supplement to me this week.
        Can you tell me what it does & you use it for?
        Thanks, Nicole

        • Ryan L January 13, 2017 at 6:42 pm


          Colostrum is mainly used to help strengthen the immune system and fortify the digestive system. Most people with leaky gut have found it very helpful. Immune Tree Colostrum 6 is the popular brand.

          Hope that was what you were looking for.


  7. joanneg January 10, 2017 at 10:53 pm Reply

    I posted this for those who don’t realize how important it is to replenish their magnesium, especially because we all took a fluoroquinolone and maybe even a steroid with it which both are very well known to chelate or strip our bodies of this mineral.

    What happens when we’re deficient in magnesium?

    Many of us have symptoms of magnesium deficiency without knowing the cause – cramps and muscle twitches (particularly night twitches), peripheral tingling or numbness, low energy, pain and inflammation, nausea and vomiting, migraines, tension headaches and anxiety states can all be the result of depleted magnesium levels. Breathing may become restricted and it’s common to sigh a lot.

    A common factor in all of these symptoms is magnesium’s functions in regulating neurotransmission and controlling muscle relaxation. In this role sufficient magnesium is necessary for a smooth and steady flow of nerve impulses to the muscles, telling them what to do. When magnesium is deficient those nerve impulses become erratic and jumpy, causing the same behaviour in the muscles.

    When the central nervous system lacks magnesium, the sympathetic activity of the autonomic nervous system is increased. This includes the fight or flight response, our hardwired mechanism for coping with stress. When our stress response is activated the body requires more magnesium, essential for detoxifying the steroid hormones our adrenals produce. The downward spiral of magnesium deficiency created by this extra demand can impact on our functioning in a number of ways. Restlessness, irritability, mood swings, poor appetite, high blood pressure, insomnia, poor memory and concentration, fatigue, anxiety and panic attacks, even seizures can result. Hyperactivity and a short attention span in children can be due to low magnesium.

    Magnesium deficiency in smooth muscle contraction causes constipation, menstrual pain, photophobia, difficulty swallowing and noise sensitivity – all seemingly unrelated but traceable to the same problem.

    Low magnesium in cardiac muscle can upset normal heart metabolism and may increase the risk of congestive heart failure.

    Only one per cent of our magnesium is found in the blood, so a deficiency is unlikely to show up in the standard blood serum test (Measuring either intracellular magnesium or free ionic cellular magnesium are the only accurate lab tests for magnesium deficiency).

    What health conditions are associated with low magnesium levels?

    Several factors involved in insulin production, carbohydrate and fat metabolism are affected by magnesium deficiency. These can eventually manifest in debilitating conditions such as diabetes, abdominal obesity, hypertension, cardiac dysrhythmia and cardiovascular disease. There is also a specific connection between magnesium deficiency and mitral valve malfunction.

    Asthma, migraine onset, fibromyalgia, chronic fatigue, depression, anorexia, allergies and chemical sensitivities, attention deficit disorders (ADD/ADHD), hearing loss, some eye disorders, tempero mandibular joint dysfunction (TMJ), sudden infant death syndrome (SIDS), premature ejaculation and scar formation are all conditions linked to magnesium deficiency by various research studies.(blog.healthpost.co.nz)

  8. John January 11, 2017 at 2:54 am Reply

    Has anyone here taken Flagyl? I have mostly recovered from my Cipro reaction but the initial reason why I took the Cipro in the first place has returned. I refuse to take Cipro again but apparently Flagyl is more effective for my condition. I fear I will have the same reaction. Has anyone taken this drug?

    • Debs January 11, 2017 at 3:29 am Reply

      IMHO, this one is best avoided if possible, although of course sometimes we do have little/ no choice re antibiotic depending on what bacterial strain is involved. & just have to take our chances.
      All allopathic drugs of course have a toxic profile & can potentially cause problems & we are of course all different insofar as to what we can or cannot tolerate re allopathic drugs, however this one also has a serious toxic profile, particularly in the neurotoxicity dept so, IF you can find another alternative to FLAGYL ( & Please make sure you know exactly what bacterial strain is involved here, as the culture will list ALL alternative antibiotics the bacterial strain is susceptible to, & I suggest to also make sure ALL alternative options have been investigated for your particular issue ) I would personally recommend you avoid FLAGYL IF you can do so .

    • Ann January 11, 2017 at 8:46 am Reply

      Hi John
      Dont take flagyl. I have been so damaged by flagyl, 15 months ago. I have The exactly same damage and symptoms like They Who took Fqs. its neurotoxic to The brain. I have talked to so many People Who also took flagyl and they are damaged to. You can see on askapatient what People have written about flagyl. Off course you do what you want too, but i have to warn you, because flagyl destroyed my life.

    • L January 11, 2017 at 10:44 am Reply

      John, I have not taken Flagyl but several people who have posted on this site have, and have ended up with side effects similar to those of Cipro. I would avoid it if possible. I really suggest you find an integrative MD or Naturopath.

    • Ryan L January 11, 2017 at 12:48 pm Reply

      Hey John,

      I’ve shared this before, but the “The 7 Most Prescribed Drugs In The World And Their Natural Counterparts” states that natural forms of antibiotics include: Sunlight (vit D), garlic, coconut oil, turmeric, foods high in nicotinamide (vit B3) such as salmon, sardines and nuts. Also manuka honey, olive leaf extract, green tea, pau D’Arco, rose water, myrrh, grapeseed extract, golden seal, oregon grapes, oregano oil, andrographis paniculata, and probiotics.

      Another site I looked at today suggested the following as natural treatments for Flagyl: Garlic, Echinacea, Goldenseal, Barberry, and Tea tree oil

      As always, do your research before beginning any natural treatment to make sure you know what to expect.

  9. Debs January 11, 2017 at 3:30 am Reply
  10. Debs January 11, 2017 at 3:36 am Reply

    Here you can find a list of numerous antibiotics If you know the bacterial strain involved in your condition it would be very helpful towards seeking out another alternative to Flagyl if there is one available .


  11. No cipro January 11, 2017 at 9:26 am Reply

    Suggestions please!!! Dr prescribed me flagyl for a mild bacterial v and I’m afraid to take it!!! Any other remedies that you may know?

    • Debs January 11, 2017 at 1:42 pm Reply

      it depends on the infection & bacterial strain when it comes to antibiotics, in regards to UTIs these can often be treated naturally. I would strongly recommend getting a culture carried out when we have UTI symptoms, & particularly important if these symptoms keep recurring because we can often develop conditions which MIMIC UTIS & they mimic them very well indeed. this can even include blood in the urine, & white cells being present. Despite this & all the symptoms pointing to a UTI , on culture we can find we actually have no infection These various conditions include IC ( interstitial cystitis ) & neurological issues with bladder function/ related to the urinary system, i.e. neuropathic bladder

      Floxing can damage the nerves relating to bladder function & cause the wrong signals to be sent i.e. signals which indicate a full bladder when we do not actually have one, it can affect the ability to hold urine resulting in urgency, frequency, various problems with micturition & also in regards to functioning of the bladder ( detrusor ) muscle affect the contraction, one result of this problem can potentially be retention of urine .

      We can also develop something which can best be described as Diabetes inspidus , ( this is not your usual diabetes )but caused by the kidneys inability to conserve water which leads to frequent urination & pronounced thirst, it is connected to filtering of blood via the kidneys
      This link is useful for natural alternatives to antibiotics, the comments also have some very good suggestions .


  12. joanneg January 11, 2017 at 11:39 am Reply


    I don’t know what know what kind of bacteria or infection you’re dealing with, but since being floxed I’ve used Olive Leaf Extract, and it worked great. I even wound up with the same infection that caused me to have to take cipro, and it took it straight away in about 3 days when not even cipro would kill it.

    No Cipro,

    Olive Leaf Extract is also an antiviral. I used it while floxed for shingles, and it killed it quick.

    • L January 11, 2017 at 12:17 pm Reply

      Like Joanneg I would also suggest nonchemical alernatives. Another good one is oil of oregano.

      • Ann January 11, 2017 at 12:43 pm Reply

        I have bought oil of oregano in a bottle . But how should it be taken?

  13. Ann January 11, 2017 at 12:27 pm Reply

    Have any body Heard off eeg off The brain, or have any body did that test? its a test that measure The brains electrical signals. My doctor told me about that test today. Im going to have another mri off The brain Again. And then she said, that if that shows nothing, she thought about that eeg test off The brain. have anybody had that test?

  14. John January 12, 2017 at 2:33 am Reply

    Thank you for the feedback, everyone. I suffer from a condition called epididymitis. It is basically an inflammation of the back part of the testicle that causes pain/discomfort 24 hours a day. Most doctors are not only clueless but also lazy when it comes to treatment. I came down with this a year ago after sleeping with the girl I was seeing at the time. I was seen by a “doctor” who was no older than 25 who threw Cipro at me without doing any kind of tests. After 10 days of Cipro, I had slight relief and had minor side effects from the drug but didn’t put 2 and 2 together that the Cipro was the cause of the slight tingling I felt in my leg. I figured this was from the epididymitis spreading as this condition can effect the nerves as well. I went back for a refill as I thought I simply needed more drugs. After a few pills of the second course was when my full fledged Cipro reaction kicked in. My epididymitis temporarily was cleared up due to my body being flooded with Cipro poison but that was the least of my concerns. 7, 8 months of hell ensued in which I lost my job, girlfriend, my ability to be happy, and thousands of dollars. From March – November I had all the symptoms in the book but have largely recovered since and I am thankful for that as I know many others have not been as lucky. I contribute a lot of my recovery to glutathione IV’s and supplementation…mainly 50 billion+ probiotics and heavy Methylcobalamin B12 supplementation. This helped me recover from the nerve damage and mental issues.

    I began seeing a new girl in November and after being intimate, my epididymitis returned with a vengeance so now I am back to square one. Pain/discomfort all day, every day. Very frustrating. I feel defeated. I know that the only way to eradicate this is to practically poison yourself half to death with heavy antibiotics as standard antibiotics are not strong enough to penetrate to the testes. The urologist I went to a month ago shrugged his shoulders at me and told me it wasn’t a big deal and prescribed me a worthless antibiotic that did nothing. He even told me it was “non bacterial prostatitis” which is complete nonsense because it came immediately after sleeping with a girl. The research I have done suggests it is unquestionably bacterial and standard antibiotics simply cannot penetrate the area. I asked if it were “non bacterial” then why is he prescribing me an antibiotic? He didn’t have a clear answer and it seemed he was just trying to shove me out of the office. Amazing how a few hours of research and you can know more than these “professionals.” This entire experience has left me completely disillusioned with our health care system. It seems that if you aren’t dying or have a condition that results in forking over thousands to them, they couldn’t care less.

    I have tried all the natural alternatives including every antioxidant and natural antibacterial in the book but have had little success. I am debating whether or not to ask my doctor for Flagyl as I have read many reviews that this drug has worked for many people as it kills anaerobic bacteria. I fear that I may experience from the same reaction again, however. It is a tough decision to make.

    Has anyone heard of Tindazole? I have read that this is a safer and possibly more effective version of Flagyl. I plan on giving myself another month or two of trying heavy natural supplementation before I try one of these drugs. I have a desk job and sitting down all day with epididymitis is enough to drive a person insane. I am definitely reaching my limit. That being said, this pain is nothing compared to being floxed. I have a new job and cannot afford to lose it due to another antibiotic reaction. Not sure where to go from here. Thanks again to everyone for the recommendations and a special thanks to Lisa for giving us this platform for discussion. Thank you all for listening.

    • L January 12, 2017 at 10:16 am Reply

      John, most of us here are disillusioned with western medicine. After the terror I went through, I am also frightened by it. Again I would urge you to seek out an integrative MD or an ND. I had so many doctors say the ONLY way to get rid of a UTI was with antibiotics (that’s all they know) but I did indeed get rid of it with a protocol from a naturopath. I recenlty found a new doctor (MD) who is integrative, and while he does have phamaceuticals at his disposal, he will always opt for natural treatments first.

    • Bob January 12, 2017 at 10:19 am Reply

      My story is similar to yours. I thought I could not stand the pain of epiditamitis but that was nothing compared to the cipro. The cipro did not help the condition at all. Eventually it went away but comes back if I have sex. Personally I don’t know if I could tolerate any antibiotic now. I am in a terrible relapse due to oral surgery and I didn’t even take any antibiotic. I think I would try something like ozone therapy or ultraviolet blood irradiation. Both kill bacteria systemically. I would be very wary of the antibiotics. The UBI as well as the ozone can be very effective for many conditions.

      • SM January 21, 2017 at 1:26 pm Reply

        Bob- I assume you had anesthesia? I think many floxies react to that. I’m not sure what I’ll do when I have to make that decision. So sorry to hear.

        • Bob January 21, 2017 at 3:47 pm

          Yes I did,. First a root canal and later had the tooth extracted. I think the anesthesia was the main culprit. This relapse has gone on for 5 months. Supplements are not helping at all. Don’t know what to do I can hardly get out of bed.

        • L January 21, 2017 at 4:04 pm

          sorry to hear. I had dental anesthetic and did ok (and I had been SEVERELY floxed) but I saw an holistic dds, and she used either septocaine and carbocaine, and I had no problem with it. It’s kind of a crap shoot for all of us now, but next time I would try one of those. (Your regular DDS may not have them, but you could try to find a Huggins trained dds. Mine was only marginally more expensive than the dds I had been seeing. They don’t use fluoride (if could have been that that you reacted to as well) and they use safer methods and materials.


        • Susan January 21, 2017 at 10:50 pm

          People with the MTHFR mutants don’t do well with laughing gas; it can be dangerous for them.

    • Daniel Lavoie January 12, 2017 at 6:17 pm Reply

      I’v kicked mild cases of epididymitis by applying the topical antibiotic ‘fucidic acid’ to the area.

      It is available under the brand name Fucidin.

      It has great skin penetration, so if you put it in the right spot, it should also get inside to help kill the bacteria.

      This combined with d-Mannose got rid of it for me, for good. Also you might consider boosting your immune system with Immune tree Colostrum and possibly Lauricidin.

      Careful with the last two. Start slow because they can cause Herxheimer reactions.

      • John January 13, 2017 at 12:59 am Reply

        Thanks again, everyone…Daniel, did that topical antibiotic really work? How long before you saw results? Also, where did you get it from? Is it sold in stores?

        • Daniel Lavoie January 13, 2017 at 6:17 am

          In Canada it is by prescription only 🙂 It is likely the case in the US as well.

          If you have a Doctor who is willing to try things, and I know that is a big if, I’m sure you can get a script. Otherwise tell them you keep getting cuts and are worried about cellulitis (infection of the fat layer under the skin) because your friend had it and want some on hand maybe? (That would be a more on label use of this antibiotic cream)

          I know it can be annoying to have to cajole prescriptions out of doctors.

          It took about 2 weeks along with colostrum to break the back of the infection. After that had some minor flare ups, but managed to shut them down in a day or two with the same method.

          Now having said all of that, pain sensitization can be a real issue with infections like this (google ‘interstitial cystitis’ for an example of a similar condition). I noticed that tightness of the muscles in my pelvic floor, or even muscles way up in my back can refer a surprisingly acute pain to my perineum, for example. (google ‘proctalgia fugax’)

          For a few months after, stress would cause the symptoms to flare up, but I believe there was no underlying infection. They say that ‘neurons that fire together, wire together’, so after experiencing pain in a particular spot for a long time, the nerves that signal that pain to the brain get upgraded from a two lane road to a superhighway.

          This makes them more effective at signalling pain from that area, which can leave you stabbing at ghosts.

          I say this, because I’ve learned that it can be hard to interpret pain in that area, and that it can be caused by factors that might seem totally unrelated.

          Good luck.

  15. joanneg January 12, 2017 at 8:49 pm Reply

    For those considering LDN, here’s a comment from a 60 year old women who was cipro poisoned and was helped by Low Dose Naltrexone http://patient.info/forums/discuss/arms-feeling-heavy-and-dead-404457?page=0#2300090

  16. Lwd January 13, 2017 at 9:38 am Reply

    I have a question about feelings I get at random times. I get sensations of jitters, sliding or moving when I’m not moving. I’m in a relapse situation and I didn’t have these sensations with my initial floxing. I’m looking for suggestions on how I can try to help my body recover from this.

    • Lisa January 14, 2017 at 10:25 am Reply

      Hi Lwd,

      Here are a few suggestions:

      1. Magnesium supplementation – either oral or topical (or both)
      2. Meditate or do another activity that calms you and reduces adrenaline
      3. Eliminate caffeine
      4. Cut down on sugar
      5. L-Theanine supplementation has helped some people with the feeling of the jitters
      6. Kava may help – but please note that it should only be used for a short period of time and that it can be hard on the liver.


      • Lwd January 14, 2017 at 6:44 pm Reply

        Thank you Lisa

  17. joanneg January 14, 2017 at 10:01 am Reply

    I wanted to post again about the Omega Patch because it is helping with all my brain issues so much!!!

    I no longer deal with about 95% of the dizziness, shaking, vibrating, manic brain issues that have been with me since June 2014. There is still a very tiny bit of it, but a lot of times it’s not there at all. I can’t express how much this is helping.

    There have been other supplements that have helped with the intensity, mainly magnesium and colostrum, but neither were as good or as continuous as this patch. Also, I’ve tried omega pills which were very expensive, supposedly very good quality, and they didn’t help me at all. So I don’t know why these patches help so much, but they do.

    So please, if you haven’t tried them, I’m almost begging for you to at least try them to see if they will help you too. My brain issues were the hardest of all my symptoms to deal with because I couldn’t think, remember things, or function properly.

    Here is the site http://www.patchmd.com/ so you can see what’s in the patch, and order it if you want, but I get mine from ebay because they’re 15.00 and free shipping instead of 20.00 plus shipping.

    • L January 14, 2017 at 10:04 am Reply

      That’s wonderful news joanneg!

    • Lisa January 14, 2017 at 10:26 am Reply

      That’s wonderful news! Thank you so much for sharing!

    • joanneg January 14, 2017 at 1:13 pm Reply

      Thanks Linda and Lisa,

      You know, we try all kinds of different supplements trying to get some kind of relief from this nightmare, so when I find something that helps really good and that lasts I try to post it, because I know how desperate I have gotten for anything to help ease our suffering.

      I hope those who try it get the same extremely wonderful relief that I did.

  18. Ann January 15, 2017 at 9:38 am Reply

    All The muscles waisting away in the body. Is that permanent? Or can it Come back? Very worried. And has anybody had extreme problems with a hard time to swallow and extreme difficulty breathing?

    • L January 15, 2017 at 11:17 am Reply

      Hi Ann, yes I had extreme breathing difficulty. I was literally gasping for breath every minute of the day for months. It was nightmarish. A researcher told me he suspected mitochondrial damage to the heart muscle. (Another suggested nerve damage to the autonomic nervous system.) I eventually got mostly back to normal (still have ocassional glitches) through my IVs and also supplementation with those things that help mitochondria, like alpha lipoic acid, NAC, and others. There are actual formulas that combine all of them, like one by KPAX.

      • Ann January 15, 2017 at 11:59 am Reply

        Hi L
        Its really a nightmare. Im scared to die from this. Like you… I have to gasp for air. Like i cant breath, and like my body has forgotten how to breath. Im scared to death. I wake up in the middle off The night, when i have to litterally think off every breath i take. Its horrible! and i cant swallow. like my body have forgotten how to swallow to, it makes popping sounds in my whole body, and even in my throath ….I dont know what to do anymore. Going to The hospital.. Well.. I know they would only look at me like im crazy. L, did you also woke up in the middle off The night with this? I have to fight to breath every minute off The day. But in The night its really scary.
        For me i think its autonomic neuropathy /dysfunction or dysautonomia. Because i also have problems with extreme high heart rate when i stand and also my blood pressure, my body cant control it anymore.
        I dont know what to do. And all my muscles is just waisting away..
        We dont have ivs here. But im going to try ala Again… Taking other supplements, but nothing seems to make any difference.

        • L Livingston January 15, 2017 at 12:11 pm

          A few nights I literally jerked up in bed, thinking i was choking, because in addition to gasping for breath, I also have issues around the neck that at times feels numbs and at other times like I am being strangled. (Between the two, I WANTED to die.) But for most of that time I just didn’t sleep. Even with a sleeping pill, in the first couple months, I was lucky to get one or 2 hours a night.

          Yes, I would encourage you to go back on ALA. Also add in CoQ10, acetyl l-carnitine and NAC. I know you are in Sweden, right? Still I think you could probably mail order a mitochondrial supplement. Life Extensions makes one as well as KPAX. Even if you can’t get IVs, do you at least have naturopathic or integrative doctors (ones that will focus more on non-chemical treatments)? Perhaps you could get a referral from here: http://www.swedish.org/for-health-professionals/graduate-medical-education/swedish-sponsored-fellowship-programs/integrative-medicine

        • Ann January 15, 2017 at 1:19 pm

          Thats horrible that you went through this. I feel like im going to die from this. It feels like a slowly death… Im scared for my life.
          Okay so you felt numb in your neck, i feel that to. But i also feel numb in the throath and even feel it in my lungs, my back, head, face, legs, arms, feet and every where.
          I dont sleep Well either because off this. I wake up gasping for air and The feeling that my body is shutting down and that my body cant breath. Yesterday i had to lay over The side off The bed to even get any air at all. It took an hour for it to calm some down. But i allways have to fight to breath, every minute off The day .
          Im taking q10 right now. But i Will take ala Again, last time my stomach could not take it. But i Will try Again. This is horrific…
          Im seeing a naturopath over here. He started with gluthation (not ivs) and some herbs for me to take. I also take d-ribose and colostrum, a small dose magnesium but i seem to react badly to magnesium, so i try to eat alot with magnesium instead.I also take d vitamin.
          When you had this severe breathing problems, did you also had pain in the lungs?

        • L January 15, 2017 at 1:29 pm

          I had terrible pressing chest pain, what I imagine a heart attack might feel like. Again, I think it is from mitochondrial damage. The crushing pain left sooner than the breathing problems. I also have asthma (the breathing problem was not that —it felt different, I still had normal readouts for my peak flow) But I was terrified—what if I had an asthma attack, on TOP of this other breathing problem? Yet, all asthma meds (preventative) have both fluoride and steroids in them. My ND gave me H2O2 IVs and I was able to get off my asthma meds. You might want to suggest to your ND that it is a strong possibility your issues are related to mitochondrial damage and ask what he suggests for that.

        • Ann January 15, 2017 at 2:51 pm

          Ohhh The chest pain i also have. It feels like a pressure and pain. But i also have tingling and numbness in the chest. But i have it in the whole body. Awful neuropathy.
          Maybe it is like you say… Mitochondria damage. I hope it can get better… Because living like this. I dont want to even think about that.
          Thats good that you could stop with The astma meds. That you had this horrible breathing problems and The astma…. Horrible!.
          I just wished we had ivs here. I think that could be good for me. Then i would try ozone teraphy.
          Im so scared to go to bed because off this Hard breathing nightmare. Many say to me ” take Deep breaths, then it gets better ” but no…it makes it even harder to breathe.

        • L January 15, 2017 at 3:06 pm

          NO—no one who has not experienced this has a clue. They think it is anxiety (which is what deep breathing would help.) I was googling and found this “After first being used in Sweden in the 1920’s, ozone therapy is widely used around the world…” Seems strange you can no longer get it there. Do you have hyperbaric oxygen there? (I couldn’t do because of claustrophobia, but it was also something suggested to me by several health care practitioners.) Ok, found this. Under Sweden there is an email (for hyperbaric) http://www.londondivingchamber.co.uk/index.php?id=contact&page=11&region=5&country=58

        • Ann January 16, 2017 at 2:20 am

          Well thats what they tell us all..anxiethy. Well i have had that my whole life, but i have never had anything like this before i took flagyl
          I think that we had ozone teraphy here before, but not now, i have tried to find on Google, talked to my naturopath, but no…we dont have it here. My naturopath is working together with another naturopath in poland. He do ivs. But i could never travel there. I can hardly walk from my bed to my Bathroom.
          The hyperbaric oxygen Chamber. They only have that for People that have been in a diving accident
          I Will look at that link you send to me. Im also claustrofobic.

        • Ann January 16, 2017 at 2:21 am

          That seems to be in London

    • Susan January 15, 2017 at 3:23 pm Reply

      I do have have problems with my breathing stopping momentarily at night when I am asleep. It is a gross feeling. Sometimes I am laying on my stomach too. Don’t know if it is related to the levaquin or anxiety. Some times too when I swallow the food gets caught in my throat and it moves painfully very slowly until it hits my stomach.

      • Ann January 16, 2017 at 2:25 am Reply

        Hi susan
        Do you have The breathing stops only during The night?
        I have it 24/7, i have to fight to breath… Im so scared
        Okay so you have this swallow problem too. It horrible. I have to fight even to swallow water. I dont know what to do anymore

        • Susan January 21, 2017 at 2:22 pm

          So sorry you are having so much suffering. Try and see if you can do things to reduce anxiety as it may help. Magnesium/calcium is helpful for anxiety and sometimes the spasms in the esophagus and tubes leading to lungs which can cause problems swallowing and obstruct breathing. I have taken to taking my magnesium rectally. I know it sounds strange, but it works very well. Here is the website; you do not want to over-doze so read carefully. http://drmyhill.co.uk/wiki/Magnesium_Per_Rectum. To make things a little simpler I do the following: I take 3/4 teaspoon of Epson Salts with 3 to 4 teaspoons of filtered water. Heat it for about 15 seconds in microwave and stir until dissolved. Cool to just warm as you DO NOT want to burn your rectum! Buy a 10 ml syringe (may have to buy it on line). Suck up the mixture, lay on side (towel underneath). Use it like you are doing an enema. Squirt it into your rectum and hold about 7 minutes but no longer as it can be a little irritating to the membranes. Expel into toilet. Don’t do this just before you go out anywhere as you may have to sit on the toilet a second time within the hour. No more than once a day. If you want to get started right away you can buy a 5 ml syringe in the drugstore and just suck up solution and squirt in in twice. Good luck and let us all know if it helps please.

        • Susan January 21, 2017 at 2:26 pm

          Ann also you want to make sure you have a balance of calcium and magnesium as one may deplete the other. Lack of calcium can cause spasms as well. You may want to have your doctor check both of your levels before hand taking the magnesium to be on the safe side. Good Luck.

    • Kurt January 15, 2017 at 4:30 pm Reply

      I’m praying for you Ann, and sending good thoughts your way! Hopefully we will ALL see some improvement in 2017. Take Care….

      • Ann January 16, 2017 at 2:27 am Reply

        Thanks Kurt
        I really needed that. I really hope to, that we all see improvments. Im scared to be living like this. Only gets worse
        Take care you to

  19. Amy January 16, 2017 at 5:57 am Reply

    I read alot of people saying ibuprofen and/or tylenol trigger symptoms. I only noticed after taking tylenol for a headache that the next day I had a few hours of feeling shaky, weak & just weird all over. I’m 9 months out from Levaquin & I literally take no other meds. Could tylenol have affected me the entire next day after taking it? I wonder if it was coincidence- but it was such a weird experience & wonder others thoughts…

    • Bob January 16, 2017 at 5:52 pm Reply

      Tylenol interfere with the activity of glutathione in the liver which impedes detoxing.

      • Amy January 17, 2017 at 7:31 am Reply


        Thanks for response. I’m having what I call an “episode” which started after the meds last year. Weak, aches, etc. My CBC came back totally normal today & only other thing different was a 500 mg. of Tylenol that I took. I can’t ever figure out the triggers for my episodes & when you don’t feel good with normal tests- people stop believing you 😦

  20. Ann January 16, 2017 at 9:54 am Reply

    I have a friend that also got hurt from flagyl. She is doing a mri, with contrast. Is it safe to take a mri with contrast? Have some one heard that the contrast can be neurotoxic to?

  21. Mark S January 16, 2017 at 10:03 am Reply

    I never thought my left Achilles tendon would recover. 18 months later and it feels like it largely has if not all the way. Happy. I think manganese has really helped it get to this level. Probably MSM too. Honestly who knows for sure. Just glad to see improvement.

    • joanneg January 16, 2017 at 12:24 pm Reply

      That’s GREAT news Mark!! I pray it continues to improve 🙂

  22. Faisal January 16, 2017 at 6:47 pm Reply

    All all.

    Now one year and 2 month from floxed just one pill of avalox Heart palpitations still it will last forever? I was very athletic I’m sad I can not go up the stairs, I am now 29 years old and I feel that I am 80. What happened to us darn! Just one tablet of medicine changed the course of my life and I feel symptoms of neurological different but more cheesed tired heart palpitations continuously Largo healing for all and I hope to someday find a cure for a final nightmare in which we live Thanks to all

    • L January 16, 2017 at 7:20 pm Reply

      Faisal, I am so sorry. It is just so wrong how many people have been damaged. I would urge you, if you haven’t already, to find a naturopathic doctor or an integrative doctor, especially one who is familiar with fluoroquinolone toxicity. I am afraid seeing allopathic/western doctors will not get you in the right direction. Where do you live, generally speaking…

      • Faisal January 17, 2017 at 6:24 am Reply

        I live in one of the Arab states (Jordan) and no one believed me

        • Kurt January 17, 2017 at 6:36 pm

          Hello Faisal,
          Very sorry to hear. I’ll be thinking about you and praying for a recovery in 2017.

        • Faisal January 17, 2017 at 8:53 pm

          I thank you and I wish everyone a recovery from this hell

        • L January 17, 2017 at 9:10 pm

          and I wish the same for you Faisal!

        • Madge hirsch January 18, 2017 at 10:58 am

          That’s one of the tough things with this poison -getting believed by the doctors. If it is any consolation I am 1year and 5 months out from my last ( also only one) pill of Cipro and I am only just starting to see signs of getting a bit better. My relapses are lasting less time and are less severe. At the moment am suffering some stress due to a death in the family and I am hoping it will not bring about full blown relapse. Hang in there . I have had arrhythmia too but it’s mainly gone now. Are you taking magnesium?

        • Faisal January 18, 2017 at 9:15 pm

          Yes, I am taking of magnesium but a few 100mg every day and Vitamin C 1000

          I dont now its low of mag ?? Just 100mg every dam

        • L January 18, 2017 at 9:41 pm

          I would up the mag to 400-800 a day. (If you avoid citrate, less chance of diarrhea) Also, there is a good chance your D is low…might want to test for that

        • Faisal January 19, 2017 at 6:09 pm

          Its ok if i take 400 every day ? I will try and inform you

        • L January 19, 2017 at 8:58 pm

          I was taking 800 a day for almost a year.

        • Faisal January 21, 2017 at 8:08 pm

          Hello L I bought today magnesium ( oxide, gluconate, lactate ) 250 company Jamieson Is this a good thing?

        • L January 21, 2017 at 8:48 pm

          Hi Faisal…not familiar with Jamieson brand, but oxide is one of the least effective. Here is a good post that shows the different forms and their effectiveness (orotate is a good one if you can find it.) http://www.globalhealingcenter.com/natural-health/types-of-magnesium/

  23. Barbara Arnold January 17, 2017 at 2:12 am Reply

    I have developed a hard knott on the back of each achilles. This has only happened in the last month or so. Anyone else got this ? I am 27 months in.

    • Madge hirsch January 17, 2017 at 6:06 pm Reply

      I had Achilles tendon problems years ago which I suspect now were due to a previous floxing.. I developed a lump on the right hand side. I never had a rupture and eventually the lump went away. I have a very small lump on my left inner wrist but I have no pain in the tendon there.

      • L January 17, 2017 at 6:47 pm Reply

        Madge—I ALSO have a lump on my inner left wrist! In fact, after the numb fingers and blurred vision, which I attributed to “sleeping weird” and pinching a nerve, it was the swollen wrist that finally got me on my hunt to discover fluoroquinolone toxicity. It was like golf ball sized and surrounded by a huge bruise—and I just woke up like that. it is now more than two years later, and there is still a small swelling…

        • Bob January 17, 2017 at 7:27 pm

          I just found a treatment that might have have incredible healing potential. It’s called the BX protocol. The problem is that it costs $17,000.00 up front for one year of treatment. The name of the company is Delta if someone wants to research it. I just saw a YouTube video about a man with COPD on oxygen who couldn’t walk to his mailbox who was essentially cured in less than a year with a monthly treatment.

        • L January 17, 2017 at 7:39 pm

          wow.stem cells don’t even cost that much, and that is also a great treatment if you can find it/afford it

        • L January 17, 2017 at 7:41 pm

          just noticed they also list hyperbaric and ozone. I have been told hyperbaric would greatly help to mitochondrial damage…wish I wasn’t so claustrophobic!

        • Bob January 17, 2017 at 8:19 pm

          I had hyperbaric. It’s no big deal. It’s actually very relaxing. They can get you out pretty fast if you panic.

        • L January 17, 2017 at 8:50 pm

          yeah, I can’t even imagine getting IN. (Have to take xanax to fly….) something I should work on because my new integrative MD really wants me to do it for my mitochondrial damage…but thanks for the reassurance Bob!

        • Madge hirsch January 18, 2017 at 10:32 am

          Snap for the numb fingers and blurred vision. My blurred vision is always worst in the morning and I often wake with one or both hands completely numb. I also developed a vitreous detatchment in my right eye this year so have black blobs and a wiggly tree branch there.

        • L January 18, 2017 at 11:17 am

          Yeah, my vision was so bad at one stage I couldn’t see a TV three free away. Scary. The floaters at times were so huge and thick that it was like looking through gauze, and so many black specks that walls and floors would literally look like they were covered with them. One thing that has helped some is an eye drop called Vision Clarity. (They are supposed to help with cataracts and it was suggested they might also help with floaters.) It’s a hassle because you have to use them four times a day, for months and months (they say best results after around a year, although you will see some changes before then.) I am on month 10 and there is a definite improvement although they are not gone. I also still get the ocassional black spots too, and was told I have early stage macular degeneration, which really pisses me off (and has been linked to FLQs.)

      • Barbara Arnold January 17, 2017 at 10:32 pm Reply

        Hey Madge,
        Thanks for answering. This poison never stops giving does it. I have the biggest lump on my right achilles the same leg that I had a ruptured tendon. The left lump is not as big. I have also developed arrythmia and am waiting to see a cardiologist next month. I think the worst thing for me is that I thought I was really getting better and just when your not looking something else happens. I also have been crying a lot which is not like me. If I was to analise it, I would say I must be depressed mainly because my hopes keep getting dashed. I hate posting like this but it’s really my only outlet, apart from my husband who’s been great, but I don’t want him to know how depressed I feel.

        • Madge hirsch January 18, 2017 at 10:48 am

          I had arrhythmia after my last pill of Cipro – I ended up being taken to hospital in an ambulance and spending 3 days in cardiac intensive care. Totally OTT but that’s France! They said it was cos my TSH was too low and I had gone into a fib but I know it was the Cipro that triggered it as my TSH had been like that for years and the only other time I had had a heartrate that high was with the Cipro the time before. I was on Bisoprolol and a blood thinner for a few months but after a holter monitor test my own cardiologist said I could stop the Préviscan and wean off the Bisoprolol. I felt like death on the Biso and had to reduce the dose to an absolute minimum. But I suspect it was because after the floxing my liver just was not metabolising it correctly at the higher dose leading to a toxic buildup.
          The real bummer is that I have had to reduce my thyroid meds and abandon the T3 component as I think the latest floxing could have made me less tolerant and I don’t want to risk another bout of a fib. I think a previous floxing (or two!!!) in the 90 s buggered up my thyroid and it was getting the combo treatment that helped me feel well again. So doubly done down by this poison.

        • Susan January 21, 2017 at 2:01 pm

          James, I am an educator also. I had to climb several stair cases several times once and my left knee has not been the same since. Pulled something underneath the knee, on left, which is causing me to gimp around for three months.It was getting better so I started to exercise again and now it is worse then ever. Doctor on Monday. Don’t know how I am ever going to get it healed up as I have 20 steps to go up to my apartment as well as having to walk around at length in schools. I know your frustration. I want to scream. I get injured so easily! I pulled the meniscus to the right of the same knee just throwing a first baskets at P.E. That took three months to heal. I have started to look for another kind of job where there are no stairs and physical risk; no luck yet. I am wearing one of those elastic supports around my knee and that seems to help the discomfort. I took levaquin six and a half years ago but I am also 61 next week; so healing may not happen for me. I wish I could make the manufacturers of these drugs suffer the way we have been forced to on a daily basis.

          Thanks L for the information.

        • Susan January 21, 2017 at 2:06 pm

          Madge/Barbara- I had a retina tear a year and a half ago and I know the Levaquin caused it. Lost three weeks wages because I couldn’t work. This drug never stops damaging me ever!

  24. Patricia Lawler January 20, 2017 at 11:35 am Reply

    Hello, I stumbled across this site while searching for an answer to my symptoms. I’m a 45 year old female and this is mu story.I was diagnosed with an UTI in September of 2016 and put on Cipro. In October I went to the Emergency Room with the worst headache I’ve ever had, after a ct scan I was told I had mastoiditis and perscribed Cipro again. As I was not getting any better and had a whole other list of symptoms I saw my family physician who also perscribed another round of Cipro. I’m absolutely certain I have been floxed. I have so many horrible symptoms and I’m scared to death. I’m looking for help as to what I can do. Any advice will be greatly appreciated as I can’t live like this anymore.

    • joanneg January 20, 2017 at 12:41 pm Reply

      Hi Patricia,

      Sure sounds like you were floxed.

      I would start taking

      Magnesium; I take between 600-900 mg of magnesium chloride, glycinate or the best is magnesium oil you spray on your skin (it absorbs best) and take epsom salt baths or soak your feet in it daily

      Probiotics: I take VSL#3

      Colostrum: I use Immune Tree 6 or Sovereign Labs

      Omega patch (by patchmd.com) has helped me tremendously with all the brain issues I had

      I have taken many supplements since being floxed, and these are the ones that helped me the most. Fluoroquinolones chelate magnesium from your body, destroy your stomach lining, and cause chronic inflammation and oxidative stress among a lot of other things. And these supplements will address those issues. But you’ll find everyone is different and what helps some makes others worse.

      This site has a lot of good information and a lot of stories of recovery that can help you through this. I pray you find your healing.

    • Lisa January 20, 2017 at 2:29 pm Reply

      Hi Patricia,

      I’m so sorry for everything you’re going through! The pain, and all of the other horrible symptoms, are awful, and my heart aches for you! Please know that you are not alone. This is a lovely community of people who you can lean on for support.

      Here is some additional advice. I hope it helps! https://floxiehope.com/2015/10/12/im-floxed-now-what/


    • Kurt January 20, 2017 at 6:13 pm Reply

      Very sorry to hear of your situation, Patricia. Sounds like you’ve been floxed like the rest of us here. What are your symptoms?

    • L January 21, 2017 at 8:52 pm Reply

      and shame on the prescriber/. the FDA FINALLY—and ONLY because of an outcry, came out with a warning in June of July of last year saying they should NOT be used for UTIs!!! (that’s what I got it for…lost a year of my life to terrifying, suffocating, mental and physical side effects, lost m saving, have permanent nerve and vision damage—all for a urinary tract infection!

      • Bob January 22, 2017 at 3:01 pm Reply

        Find a lawyer to and sue. With the new FDA warnings you may have a case. Suing the prescribing doctors is the only way to stop them.

        • Stephanie January 22, 2017 at 3:29 pm

          I’ve tried 3 different law firms no one will take the case. It’s not that easy to get a law firm to fight against the drug companies. There are a lot that say they will help but don’t take the case and never tell you why

        • L January 22, 2017 at 3:43 pm

          I agree. And please be aware there is a statue of limitations. If you don’t file within that time you cannot sue. It varies from state to state.

  25. James Stamboni January 21, 2017 at 3:34 am Reply

    Having tendon problems in both knees, hamstrings and patella. There is on occasion pain, but mostly it’s just weakness and susceptibility to injury, to the point where I can barely walk on a linoleum floor. Most of these injuries resolve within about two weeks, but I find myself re-injured doing normal daily activities like reaching for something on a shelf or pacing back and forth. This has been going on for three months now, since two days after taking one 750mg levofloxacin pill. I’m a 29 year old high school art teacher, my job requires constant motion and the ability to lift. I’ve been using two knee braces to function, but now even that isn’t covering it. A week ago I was able to stride without wearing the braces, but while reaching for something I felt a pain under the patella of my left (better) leg, and now it’s the weakest it’s ever been/ can barely support weight.

    The longest I’ve been off work has been 2 weeks, but thinking of taking up to five now in hopes that rest will allow my knees to heal. I formerly had issues in all my other joints, especially my ankles, but that all went away in the first month and a half. Prior to returning to normal, each joint would begin cracking/ popping readily after use. My patellas have been doing that for a month now, and my hamstrings for about two weeks, to a lesser extent, but they have yet to heal.

    I’m taking a multivitamin, liquid magnesium, Bone broth, and just started MitoQ and Alpha Lipoic Acid

    Has anyone else had experiences with these kind of symptoms, and their treatment? I fear no longer being able to perform my job.

    • L January 21, 2017 at 8:03 am Reply

      Hi James. Starting in around weeks 3 or 4 post floxing I was getting what felt like little electrical zaps and also popping in my knees, especially the right one, that continued on. Fast forward a year or so, and as I went to get out of bed one morning, I collapsed in a heap on the floor, unable to support my weight. There was a lot of pain in my right knee and I used a cane for the next couple weeks to get around. I had an MRI done and sure enough there was a torn meniscus. Surgery and steroids were both offered and I refused both. My ND suggested prolozone injections, which is a combination of ozone and a collagen producing substance, which allows you to heal naturally. It has only been a couple months, and they say you need 6 months to get the full benefit, but I have had no problems. Since my left knee had also felt as bad as the right at times, I went ahead and got the injections in that knee too. If you do a google search you can find a lot of info on this as well as hopefully someone who does it near where you live. (and the cost is a fraction of what surgery would be.)

      Again, I did this for torn meniscus and it may have other uses…and it is quite possible that this is what you are experiencing as well.

  26. Kurt January 21, 2017 at 6:51 am Reply

    Anyone have ideas for treating sagging skin? My loose skin is mostly on my lower legs.

    • L January 21, 2017 at 8:04 am Reply

      I was in terrific shape before all this, and then, after quickly dropping thirty some pounds, I have the same problem. Really pisses me off. Let me know if you find anything!

      • Kurt January 21, 2017 at 11:58 am Reply

        Sorry to hear, L.

        Any recovery stories from this saggy skin? Does it get better, and how long does it take? Thanks!

        • Ryan L January 21, 2017 at 7:33 pm

          Ruth Young says she believes she 100% healed, and she listed sagging skin as one of her symptoms. She also responds to many posts, so you can always ask her if there was anything specific she did to treat that.


        • Kurt January 22, 2017 at 5:28 am

          Thanks for the response, Ryan! I really appreciate it! I’ll post over there with the question.

  27. Catherine P January 21, 2017 at 7:24 am Reply

    Does anyone know if colostrum could cause a herx type reaction? I started it a few days ago and am feeling terrible. I have Lyme as well as floxing. Not sure if I should persist with it or not. Thanks

    • Ryan L January 21, 2017 at 12:19 pm Reply

      Unfortunately there is a possibility of a herx reaction with Colostrum. Sovereign Health Initiative states that “Some people may experience a healing incident (called Herxheimer reactions) as the body releases toxins (digestive problems, skin eruptions, rashes or flu-like symptoms). These symptoms usually disappear in a couple of days. Colostrum’s growth factors may create initial pain in areas of old wounds or injuries as it heals. If this becomes uncomfortable, you may want to cut back on the colostrum for a few days and then resume at a lower quantity, increasing your intake slowly as you reach optimum levels.” As a floxie, less is always more, so you may want to stop the treatment for a period of time or dramatically reduce it…maybe every other day, every third day, or once a week. I usually stop new treatments altogether when I have a herx type reaction to see if the two factors (the new treatment and herx type reaction) are connected.

  28. Faisal January 21, 2017 at 8:02 pm Reply

    Hello all I bought today magnesium ( oxide, gluconate, lactate ) 250 company Jamieson Is this a good thing?

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