Floxie Hope

Floxie.Hope.1800.72.dpi

This site is to give HOPE to those who are suffering from Fluoroquinolone Toxicity Syndrome as a result of being poisoned by fluoroquinolone antibiotics – Cipro, Levaquin, Avelox, Floxin, etc.  It contains stories of healing.

Cipro, Levaquin, Avelox and all other fluoroquinolones are dangerous drugs that can have devastating effects that cumulatively I’ll refer to as Fluoroquinolone Toxicity Syndrome or Floxing.  Fluoroquinolone Toxicity Syndrome/Floxing includes damage to connective tissue (tendons, ligaments, cartilage, fascia, etc.) throughout the body, damage to the nervous systems (central, peripheral and autonomic), and more. The damage done by fluoroquinolone antibiotics can destroy a person’s quality of life or even kill them. Certainly, there is a time and a place for drugs with dangerous side effects. If you find yourself in a septic shock induced coma, fluoroquinolones may save your life. Unfortunately, these drugs are not being reserved for life or death situations. People are being prescribed them for urinary tract infections, suspected prostate infections, upper respiratory infections, as a prophylactic for travelers’ diarrhea, ear infections, pink eye, etc. Thousands of people have suffered needlessly from the devastating effects of fluoroquinolone antibiotics, when another, safer antibiotic could have, and should have, been used.

The damage done by fluoroquinolones is largely unacknowledged by the medical establishment and an accurate diagnosis, compensation and relief are difficult to come by. There is no known cure for Fluoroquinolone Toxicity Syndrome/Floxing.  However, many people continue to LIVE after being poisoned by fluroquinolones.  They find healing, recovery, perseverance, compassion and hope.  These are their stories.

This site is meant to give hope for healing to those who are adversely effected by fluoroquinolones.  It is no way meant to disregard the pain of those who are chronically suffering from the horrifying effects of Cipro, Levaquin, Avelox or the other fluoroquinolones.  There are people who don’t recover.  Their stories are real and they matter.  There are also people who are able to recover and I share their stories with the hope that they inspire others, or at least give hope that recovery is possible.

Here is a New York Times article about the dangers of fluoroquinolone antibiotics – http://well.blogs.nytimes.com/2012/09/10/popular-antibiotics-may-carry-serious-side-effects/?_r=0 – more news stories, research papers and other resources can be found on the “Links and Resources” page.

Here is a Facebook group that is a great resource for those going through Fluoroquinolone Toxicity – https://www.facebook.com/groups/floxies/

Featured post – I’m floxed. Now what?

The Fluoroquinolone Toxicity Solution Ebook has helped many Floxies to recover, including DanielCindy and Ruth.  As a bonus, you will also receive The Floxie Food Guide – a book of diet guidelines to help you through fluoroquinolone toxicity:

flu tox get help you need banner click lisa

 

 

 

16,988 thoughts on “Floxie Hope

  1. Harriet January 9, 2018 at 7:24 am Reply

    I am sorry to read this it sounds horrific but thankfully you did not have a dvt.

    I too have had many courses of antibiotics including Cipro , the macrolides, and now realise the toxicity of them.
    I was given clindamycin but it caused problems, now I avoid all antibiotics.

    I take magnesium regularly and it does help me with the muscle cramps. I am in the process of ordering some new foam seta for my armchairs to see if they make a difference to my back pain and neuropathic pain. I have also cut out gluten, soy, wheat and feel a bit better. I got really down at Christmas knowing that I could not eat the foods that I used to eat without even having to think about any complications or bad reactions.

    Dr Carolyn Dean is an expert in magnesium and has written books on the subject. Others on here can give you much more help than I can but taking magnesium seems to be the starting point to combat the side effects of these nasty antibiotics.

    Take care.

  2. Harriet January 9, 2018 at 11:47 am Reply

    Hi again Toby
    If you e mail Dr Carolyn Dean who wrote the book the Magnesium Miracle she will probably ask you a series of questions or alternatively you could send her a resume of your conditions and ask if it is safe to 5take magnesium. It is not recommended or everyone esp if you have kidney disease. You may require a full blood screening first just to make sure. Also magnesium can interact with other drugs. Best to get checked out first.

  3. Harriet January 9, 2018 at 11:54 am Reply

    Hi Toby here is the link to Dr Carolyn Deans facebook page.

    https://www.facebook.com/pg/drcarolyndean/posts/

  4. Andrea January 9, 2018 at 12:34 pm Reply

    Hi guys. This evening I was visited by an urologist, for my bladder-BPH symptoms. He suspect I have a prostatits, so he prescribed me some ketoprofen suppository. I already know that FANs are really dangerous for floxies, but, do you think that is the same thing, even with suppository form? Any advice would be much appreciated, thanks.

    PS a couple of months ago I took some aspirin. 2xday for 10 days, it didn’t bothered me much,so I don’t know…

    • Andrea January 9, 2018 at 1:48 pm Reply

      *FANs is the Italian acronym for NSAIDs. Excuse my broken english.

  5. Harriet January 9, 2018 at 4:43 pm Reply

    Hi Andrea Your English is fine.
    Asprin is different to an NSAID.
    I would say that whatever form or route you take any NSAID or any other drug it is still being absorbed into the body. It will be absorbed much more quickly if given rectally as there are more blood vessels in the mucous membrane of the rectum.

    I would seek alternative homeopathic drs out for natural solutions.
    I am female by the way.

    • Andrea January 10, 2018 at 4:51 am Reply

      Thanks a lot Harriet

  6. Harriet January 9, 2018 at 4:49 pm Reply

    Hi Andrea here is a link for info on prostatitis.http://home-cure.net/home-remedy-prostatitis

  7. Tim January 9, 2018 at 5:14 pm Reply

    Hi guys , has anyone tried using saunas to detox this drug out of the system and other benefits I have used saunas in the past but I really want to step it up and go every day for 3 months or more to get the benefits ,I have been reading a lot about saunas all types ,lots of good info and gives me hope , INFARED NEAR AND FAR seem to be the best for detoxing at a cellular level and other good things for mitochondria which seems important for people with cipro damage, it all sounds good lots of info if you guys are interested google NEAR INFARED SAUANA BENEFITS , just thought I’d share that with the community,

    • Andrea January 10, 2018 at 4:49 am Reply

      Hi Tim. I was once interested in Near Infrared Therapy. They seems particullary good for peripheral neuropathy. I once bought an infrared lamp, I’ve tried it only a couple of times, because it is not very practical to keep this thing for 20 plus minutes pointed on your ankle. Anyway, I didn’t notice anything from it. So, in my personal opinion, it was a waste of money, but maybe I should’ve been more consistent with it.
      I was interested in buying a more sofisticated device, I think one of the best on the market, but It was too expensive for me. I give you the links below
      Here’s the lamp that I bought :

      https://redlightman.com/product/infrared-mini-830/

      and this is the website that sells the more advanced device :

      http://www.ledtherapylights.com/near-infrared-light/4587423297

      PS I was interested in trying regular saunas, but I think I became sensitive to heat, so I’m kinda scared that it could be dangerous for me.

  8. Chris January 10, 2018 at 5:08 pm Reply

    Does anyone have any information on whether getting a flu shot will trigger a flare up of symptoms. I have permanent nerve, tendon & muscle damage from Cipro. Even after 3 1/2 years I will still flare occasionally, but not to same extent. I’ve never gotten a flu shot at all & I’m terrified it would trigger a major relapse.

    • L January 10, 2018 at 5:29 pm Reply

      I would NOT get a flu shot. Too many toxins. My doctor (integrative) and ND advised me against it. Haven’t had one now in 3 years and will never get another one. Just stock up on “just in case” treatments like oil of oregano, sambucol, olive leaf extract…or the homeopathic OSCILLOCOCCINUM

      • Madge hirsch January 12, 2018 at 5:08 pm Reply

        I read some interesting stuff today on something called ASIA or Shoenfeld syndrome put forward by an Israel doctor . It’s about autoimmune damage caused by the adjuvants in vaccines particularly aluminium. It fitted in with how ill I felt after my flu vaccination in late autumn 2010. I had thought the vaccination had reactivated a previous floxing but it might have been this ASIA. Has pulmonary hypertension been considered for your breathing difficulties? I am sure I have read somewhere that FQs can cause that.

        • L January 12, 2018 at 5:47 pm

          Hi Madge, thanks for the suggestion. I looked up pulmonary hypertension, and with the exception of the breathing difficulty I had none of the other symptoms. Today I had a nuclear stress test (grrrr…..radioactive isotopes….just what my body needs, more poison.) So I will see where to go from there.

    • Bob January 10, 2018 at 5:29 pm Reply

      I would not even consider it.

    • Andy January 12, 2018 at 1:45 am Reply

      I have a good freind with ms she’s a nurse had a flu shot and had burning all over her body for two years
      She’s a nurse and tells people it’s full of poison, most pharma drugs are bad for floxies while our body is struggling

      • Barbara Arnold January 12, 2018 at 5:21 am Reply

        Oooh that’s terrible Andy, your right most pharma drugs are bad for floxies. I don’t take any if I can help it. I took the flu shot after researching the contents and I was satisfied for myself to take it, but everyone has to make up their own mind. I googled a number of sites one of them that I googled was….What ingredients are in the flu shot….Passport Health. We are all different, with different issues. We start from different places so it’s difficult to know if what we are doing is right. All I can say is I have not had the flu (Fingers crossed) for 12 years. I hate Big Pharma, but some drugs keep people alive.

      • Harriet January 21, 2018 at 5:58 am Reply

        She is right. I would avoid as many drugs as possible.

  9. Barbara Arnold January 10, 2018 at 11:40 pm Reply

    I have had it for the last three years without any problems, but it was a very hard decision to make after most people said they wouldn’t take it, and Kerri Knox also said she wouldn’t take it. I took it because I know what it’s like not to be able to breathe, and I used to get bronchitis every year, so for me after weighing up the pro’s and cons I take it, because the floxie symptoms as bad as they can get, are not as bad as not being able to breathe. I take no other meds at all. So it’s a decision that’s very individual to each of us.

    • L January 11, 2018 at 9:48 am Reply

      It is an individual decision. I have asthma, have had pneumona three times, bronchitis many times…but I will never again get the shot. I got the flu this year but I was well prepared with things like oil of oregano, sambucol, Echinacea, etc and it was very treatable.

      • Harriet January 15, 2018 at 3:13 pm Reply

        My dr will not give me the flu jab due to the preservatives etc it contains.

    • Madge hirsch January 12, 2018 at 5:14 pm Reply

      Hi Barbara – having a high vit D level is protective. One has to ask why do people not get flu in summer? Also NAC. Since taking NAC from 2016 neither hubby nor I have had even one cold. Hope that is not famous last words!

      • Barbara Arnold January 12, 2018 at 11:16 pm Reply

        Yes Madge, high VitD is protective and even though I live in Spain I take 5000iu in Winter. I believe it’s not impossible to get the flu in summer, but cold wet damp conditions are ideal for the bug to thrive in Winter. It’s a ruddy nightmare deciding what to do with so many drugs after being floxed, but I’ve managed to not take any up until I had my fall, then I just had to have injections of voltaren because the pain was excruciating. I found out afterwards that voltaren is an NSAID but I was between the devil and the deep blue sea. I did get a flare in my lower legs but I can’t say for sure if it was the voltaren. Anyway I’m back have more sessions of Hyperbaric Oxygen therapy and slowly getting back to where I was before.

      • Harriet January 17, 2018 at 5:35 pm Reply

        We do get flu in the summer.

  10. jérôme January 11, 2018 at 1:40 am Reply

    I’ve seen that high doses of vit D3 prevents the flu…

  11. John Taylor January 11, 2018 at 3:51 am Reply

    L and others asking for more answers on the question how to use magnesium to remove Cipro

    I wish I could have responded faster.
    I am in rehab now, trying to regain the use of my legs. WiFi barely works here. I have very little free time.

    I have answered this question enough to realize I need a canned answer that includes all the additional information bloggers need. So I am working on that. I have been here38 days and am now off narcotic pain meds so my mind is much clearer and able to think.

    3 or 4 of five issues with my right leg have been resolved. 44 days back the lack of micro nutrients started dissolving muscle. I lost 26 pounds. In 14 days. My body was going after magnesium mostly to keep my organs functioning. I have been soaking in saturated Epsom salts on the sneak.

    I now am certian just now that I will have a full recovery. Cipro’s side effects – the last being a very thorough micro nutrient flushing from your body. Have stopped. Restoring theses micro nutrients can take a while. Your body uses 100 to 900 times what your blood stream can hold. Fortunately we are not starting at zero. I think I will be able body surf again this summer at 70 years old.

    So keep blogging and together we will figure this out. I thank God for Lisa and her blog. I was a big help in saving my life.

  12. Toby January 13, 2018 at 11:15 am Reply

    My naturopath wants to give me winter savory, thyme and nettle tea. Is it safe?
    I am floxed with metronidazole.

    • L January 13, 2018 at 11:26 am Reply

      You are probably fine with all. Sometimes people will have a reaction to a particular herb but it is mild. I used nettle all the time for allergy/sinus issues. Thyme has all sorts of benefits and is an antioxidant. I use it in cooking.

  13. Kate January 13, 2018 at 1:46 pm Reply

    What have others done for insomnia? Mine is unrelenting. I simply cannot sleep. I am only getting 1/2 hour a night, and I can’t sleep during day (although all I do is lie on the couch). Does this pass? Would love some ideas?

    • Barbara Arnold January 13, 2018 at 11:41 pm Reply

      Kate the tincture from Sackred Kana in the UK helps me sleep like a baby after really bad insomnia. It’s from the cannabis plant, it has over a hundred compounds I believe. I believe also they deliver world wide. You may be able to get CBD oil where ever you are.

    • jat92517 January 14, 2018 at 2:07 am Reply

      Kate,
      When I chelated the Cipro off the surface of my brain cells and out of my body by soaking a foot in a saturatedrated solution of Epsom salts for four days all my Sleep problems stopped. I slept for 14 deliscous hours. The wild dreams stopped.

      I had Sleep problems for years which improved greatly when I raised my Vitamin D level by taking Vitamin K2. K2 is also available from bacon fat. I eat a pound every two weeks. To not over heat it and kill the vitamins, I keep them juicy. It took three months to raise the D level. Then I slept for a month 8, 10, 12 hours a night for a month. My brain was disconnected from my body. I had to concentrate to move my arms and legs. Wonderful.
      John Taylor

  14. jérôme January 13, 2018 at 1:46 pm Reply

    Toby,you mean Flagyl,but it is not a fluoroquinolone?

    • Toby January 13, 2018 at 5:39 pm Reply

      Yes flagyl. You are right it’s not a fluoroquinolone, but side effects are similar.

  15. jérôme January 13, 2018 at 1:47 pm Reply

    Kate,I use L tryptophan for sleep,it works quite well

  16. Harriet January 13, 2018 at 2:46 pm Reply

    bananas contain tryptophan.

  17. Adam Lallana (@AdamLal62625019) January 14, 2018 at 5:57 am Reply

    Two year ago i was about to go for lungs volume reduction just for me to live a better life at least,not until u was i ask to give a try on totalcureherbalfoundation@ gmail .com natural herbal formula which i emailed and purchased from them,the herbal remedies work perfectly on my system,i can only say that for me this treatment has worked well and has allowed me to live a normal life and I am extremely grateful to the herbal team.

  18. Kate January 14, 2018 at 10:27 am Reply

    Thank you everyone! Another question: I am working with a functional medicine nutritionist who recommended I take a REALLY high dose of NAC, 3,000mg, which I did — and had terrible side effects: headache, dizziness, increase in blood pressure. Is this common? How are others using NAC? Thank you!

    • Bob January 14, 2018 at 5:49 pm Reply

      I used a medical intuitive after I got floxed and she had me on a bottle dose of NAC for 1 week. NAC boosts your glutathione which jacks up your liver detox. Probably way too fast of a detox for the intestines to handle.

  19. Harriet January 14, 2018 at 6:01 pm Reply

    Hi What is NAC?

    • Bob January 14, 2018 at 7:42 pm Reply

      N ACETYL Cystine I hope I spelled that right.

  20. Harriet January 15, 2018 at 3:19 pm Reply

    Thanks Bob. x

  21. MJ January 17, 2018 at 12:17 pm Reply

    Hi all,

    I posted a few weeks ago about needing surgery on an umbilical hernia. It is not an emergency, but it could become one someday so I’m considering going for it. I am afraid the anesthesia could make my flox symptoms worse. I primarily have nervous system issues (tingling, fatigue, heavy brain fog) and I do feel sensitive to many things.

    I’ve met with a doctor. They would use local anesthesia via IV as follows: Propofol (an anesthetic, also called Diprivan), Fentanyl (an opioid narcotic) and Versed (a sedative, also called Midazolam).

    I’ve done some research and I can’t find any evidence that these drugs cause issues for floxies or people with Multiple Chemical Sensitivities, nor do they seem to be considered neuro-toxic….nor are they fluorinated (as general anesthetic can be). I would not take any corticosteroids, antibiotics or NSAIDS.

    I realize that no one can say for sure how I would react. I’m just curious to know if anyone out there has experience with any of these drugs AFTER being floxed? Did it make things worse? Or no difference at all?

    Again, I understand that we are all different…but if anyone responds saying they felt worse after these specific drugs, it would make my decision fairly easy.

    Thanks all.

    • A.Coleman January 19, 2018 at 2:41 am Reply

      MJ I have had that combination of drugs in order to preform endoscopy and colonoscopy investigating Floxie symptoms and suffered no side effects. I had both preformed 4 to 6 months after being floxed. There is a site out there that details how anesthesia affects floxies butI always have trouble finding the link when I look. In short that combo was okay for me, but we are both alike and different in our reactions to the fluoroquinolones. Best of luck.

  22. Harriet January 18, 2018 at 5:56 am Reply

    Hi MJ I had midazolam a few months ago and was ok. I do not know about the other two drugs. Hope that helps. Take care.

  23. A.Coleman January 19, 2018 at 2:52 am Reply

    Hey gang need some insight. I am about 2 1/2 years post flexing. Recovering but not well yet. About 6 weeks ago I started getting really bad neck pain sometimes with headaches. These are triggered when I sleep (or try to as insomnia is something I still battle). I don’t have the pain every night but probably 4 or 5 out of 7. I can hear vertebrae cracking and popping. Never had this more than 1 day or 2 prior to this episode. It is better when I am sitting and most days goes away a few hours after I get up only to return in the late afternoon. Then sometimes it goes away with sleep for a few days and other times sleep only makes it worse. Anybody think this is floxie related or is this a time where seeing a doctor might actually help? I kept thinking this was stress or sleeping wrong and would go away but……..

    I am buying a new pillow today FINALLY to see if this helps and splurging for a high quality one. Going to try scheduling a massage too. Any other ideas? Tylenol does help but I don’t like relying on that approach.

  24. Harriet January 19, 2018 at 5:12 am Reply

    A. Colman
    Perhaps consider seeing a physiotherapist for an assessment as well.

  25. Toby January 19, 2018 at 5:55 am Reply

    I checked my vitamin B12 and D levels.

    B12 level is 412.7 pmol/L. Normal range is 138-652

    D level is 22.56 ng/ml.
    Do vitamin D supplements can help me with anxiety?

    • BOB January 19, 2018 at 8:19 pm Reply

      Your vit d level should be much higher.

      • Toby January 20, 2018 at 5:23 am Reply

        How much higher? I read that normal range is above 30.

        • A.Coleman January 20, 2018 at 8:56 am

          My integrative doc has been trying to get mine to 50 at least. For some reason fqs really seem to decrease Vit D levels. I supplement 6000 IU daily and still am stuck in high 30s. Important to include Vit K2 and Mg as cofactors.

        • L January 20, 2018 at 9:11 am

          My doctor has me on 10,000 day of D!

        • Toby January 20, 2018 at 9:35 am

          Are there any side effects of D3? I am very sensitive to supplements.
          Does it help you with anxiety?

        • Bob January 20, 2018 at 12:40 pm

          D3 is good for everything. I have gotten shots as well as take 5000 units per day. Best combined with vit k2. I don’t know of any side effects.

        • Bob January 20, 2018 at 5:41 pm

          At least above 50,

  26. Andrea January 19, 2018 at 11:32 am Reply

    Hi guys;
    I was watching The Joe Rogan Experience, today, on Youtube, with Mel Gibson and Dr. Neil Riordan. They were talking about stem cells. it’s something that has always interested me, because In my opinion it could have some potential benefits for our issues.
    What’s your thoughts on this? Has anyone here ever tryied it? Anyway, here’s the link about the video

    • L January 19, 2018 at 5:48 pm Reply

      I think stem cells are a great way to go. Lisa recently posted a CBS news piece on a CA doctor who himself was floxed and got his health back with stem cells from adipose (fat) tissue—

  27. T January 20, 2018 at 9:02 am Reply

    Thanks for that article L, one day I will afford to visit him and get stem cell treatment , or better yet in Panama with Mel haha

    Question for the men here, has any one had their testosterone levels checked ? Is there any connection to hormones and Cipro poisoning?
    After being floxed and searching for answers to what happened I had mine looked at and it was in fact somewhat low for my age but I don’t recall having any issues whatsoever prior to the Cipro.

    • Andrea January 20, 2018 at 11:16 am Reply

      Hi T. Yes, I’ve read that FQs can interfere with your hormone balance. A few months ago I’ve had an endocrinologic check. Doctor said everything was fine. PS I’m a man.

  28. Andrea January 20, 2018 at 11:34 am Reply

    Guys, regarding the stem cells thing, I posted that video, because I founfd it interesting, and I wanted to know your opinion about it. But remember, stem cells infusion/injection is still a debatable practice with potential side effects, so, as always, be careful and try to seek as much information as you can about new medical procedures, before trying them.

  29. Faisal January 20, 2018 at 4:51 pm Reply

    Hi all,

    I’m suffering from otitis from two days , and it’s painful ….
    in this moment , my fever is 39 degrees ….
    and I have no idea about any antibiotics that I can use and about any structure to compose fever

    • Ryan L January 20, 2018 at 5:25 pm Reply

      Hey Faisal,

      Lisa posted in the past a list of antibiotics that floxies have taken after their FQ experience which seem to be well tolerated:

      1. Doxycycline or Tetracycline
      2. Z-packs
      3. Amoxiciliin
      4. Peniclillin
      5. Cephalosporins.

      I took amoxicillin for a staph infection post Cipro and didn’t seem to have any problems with it.

      You might also look into natural antibiotics:
      https://naturalife.org/natural-remedies/best-natural-antibiotics

      Many on this site have had great success with Oregano oil for infections.

      I hope this helps.

  30. jérôme January 21, 2018 at 4:18 am Reply

    Colloidal silver can work for infection without side effects…better than these crappy antibiotics

    • L January 21, 2018 at 9:16 am Reply

      yes…and you may need to use it for up to a month

  31. jérôme January 21, 2018 at 4:19 am Reply

    Did someone try PRP ?

  32. Harriet January 21, 2018 at 6:35 am Reply

    amoxicillin seems ok for me. I take half the dose prescribed to see how I go. BRICYNAL. This triggered off severe neuropathy last night after just one puff of this inhaler. I won’t be having anymore !

  33. Harriet January 21, 2018 at 12:52 pm Reply

    Has anyone heard of the opiod induced hyperalagesic syndrome?

  34. Dan January 22, 2018 at 2:31 am Reply

    Hello everyone,
    Did not write in here for some time,
    I got a little better but still have severe balance and equilibrium problems, i am like in a boat and please if someone had these kind of problems please let me know how you guys solved these:
    severe balance and equilibrium problems..not diziness but in a boat feeling and rocking in all of the sides,
    weahnes in legs and tight and hard muscles of the legs, the lower part.
    weakness in hands and the feeling the hands wont listen to me write like i want to grab or pull or move or write or other action and have a feeling of weaknes and like the hands are by themselvs
    tremors in jaw big time and in hands and body..kind of earthquake inside especialy at 5 am when i abruptly wake up..
    its been 6 month since i finished the leflox..what should i expect.
    i take probiotics, magnesium, vitamin complex for men, olive and coconat oil, and started no gluten type of diet..
    I was at a new neorolist and prescriped me Phenibut for a month?
    What do u think? everybody thinks i have just an over reacted anxiety..
    i started to have muscle twiches for about sa month..everyday is different
    Joanne G please provide more info about your diziness and loss of balance and how the transfer factor sup[liment helped you..thimking to order some.
    Thank u all.

  35. Mary January 22, 2018 at 5:06 am Reply

    Sorry to read this. Have you heard of the MacKenzie therapy? It is about massaging trigger points to stop the spasms etc

    • L January 22, 2018 at 10:15 am Reply

      I have never heard of Mackenzie therapy, but there is something called the Mackenzie Method (which is a therapy) , which is to help treat back problems, especially disc problems. I know because I have used it for over 30 years, but it is a series of exercises.

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