Floxie Hope

Floxie.Hope.1800.72.dpi

This site is to give HOPE to those who are suffering from Fluoroquinolone Toxicity Syndrome as a result of being poisoned by fluoroquinolone antibiotics – Cipro, Levaquin, Avelox, Floxin, etc.  It contains stories of healing.

Cipro, Levaquin, Avelox and all other fluoroquinolones are dangerous drugs that can have devastating effects that cumulatively I’ll refer to as Fluoroquinolone Toxicity Syndrome or Floxing.  Fluoroquinolone Toxicity Syndrome/Floxing includes damage to connective tissue (tendons, ligaments, cartilage, fascia, etc.) throughout the body, damage to the nervous systems (central, peripheral and autonomic), and more. The damage done by fluoroquinolone antibiotics can destroy a person’s quality of life or even kill them. Certainly, there is a time and a place for drugs with dangerous side effects. If you find yourself in a septic shock induced coma, fluoroquinolones may save your life. Unfortunately, these drugs are not being reserved for life or death situations. People are being prescribed them for urinary tract infections, suspected prostate infections, upper respiratory infections, as a prophylactic for travelers’ diarrhea, ear infections, pink eye, etc. Thousands of people have suffered needlessly from the devastating effects of fluoroquinolone antibiotics, when another, safer antibiotic could have, and should have, been used.

The damage done by fluoroquinolones is largely unacknowledged by the medical establishment and an accurate diagnosis, compensation and relief are difficult to come by. There is no known cure for Fluoroquinolone Toxicity Syndrome/Floxing.  However, many people continue to LIVE after being poisoned by fluroquinolones.  They find healing, recovery, perseverance, compassion and hope.  These are their stories.

This site is meant to give hope for healing to those who are adversely effected by fluoroquinolones.  It is no way meant to disregard the pain of those who are chronically suffering from the horrifying effects of Cipro, Levaquin, Avelox or the other fluoroquinolones.  There are people who don’t recover.  Their stories are real and they matter.  There are also people who are able to recover and I share their stories with the hope that they inspire others, or at least give hope that recovery is possible.

Here is a New York Times article about the dangers of fluoroquinolone antibiotics – http://well.blogs.nytimes.com/2012/09/10/popular-antibiotics-may-carry-serious-side-effects/?_r=0 – more news stories, research papers and other resources can be found on the “Links and Resources” page.

Here is a Facebook group that is a great resource for those going through Fluoroquinolone Toxicity – https://www.facebook.com/groups/floxies/

Featured post – I’m floxed. Now what?

The Fluoroquinolone Toxicity Solution Ebook has helped many Floxies to recover, including DanielCindy and Ruth.  As a bonus, you will also receive The Floxie Food Guide – a book of diet guidelines to help you through fluoroquinolone toxicity:

flu tox get help you need banner click lisa

 

 

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15,515 thoughts on “Floxie Hope

  1. janna marsh March 15, 2017 at 7:27 pm Reply

    I posted on here less than a month ago. I only took two Cipro but quickly experienced trouble. I already have tendinitis in my left knee for about 6 years now. I also have fibromyalgia for 18 years now. The fibro alone keeps me unable to function normally. Now this on top of it. I also suffer with IBS with diarrhea, which is common with fibro. I have read a lot on this site and I’m trying different things that seemed to help others. I’m finding that the cost of everything is something I just can’t do. I am on a good probiotic. I’m taking magnesium glycinate every day. I’m soaking my feet in Epsom salts nightly. I’m also applying magnesium oil twice daily to the bottom of my feet and anywhere that is sore. I am taking 600mg of the magnesium daily. Combined with my IBS, I’m basically in the bathroom all day. Is there any way to know if you are getting too much magnesium? I’ve been told it can be dangerous to take too much. I don’t know if my size matters? Unfortunately, it is difficult to tell if the pain I feel is from the floxing or my fibro. Many of the new pains, I can tell. My wrists, knees, ankles, Achilles, and top of my feet are the worst. Any help is appreciated!

  2. Michael Teeter March 15, 2017 at 9:57 pm Reply

    Hello Janna, I am sorry to hear that you have been floxed. You do sound like you are taking a lot of Magnesium. I to take quite a bit but I suffer from malabsorbtion from my adult autoimmune enteropathy I also have fibromyalgia and I have been floxed for 5 plus years now. My suggestions as a fellow floxie are as follows. Doctors recommend that you take malic acid along with your magnesium if you have Fibro. It is not that expensive you can order it from swanson or some other company. I would ask my doctor to have a Magnesium level blood test or a complete blood panel. You can see your level that way.
    I see a Natural Doctor and an Acupuncturist. As well as all my other doctors. These two are worth their weight in gold.
    What area do you reside? I am in Michigan myself.
    Here is my Natural Doctor’s website.
    He has a lot of free information and articles. He does a 10 minute free consultation and he has an online dispensary that you can order supplements from him. http://naturopathic.doctor/

    I am not a doctor but he is. Give him a call.

  3. Michael Teeter March 15, 2017 at 10:36 pm Reply

    I am sorry everyone I had a real bad month in Feb I had a bad relapse and I was down to 114 pounds. I am now up in the 140s now. I had to get back on steroids again. I now and seeing two new Chiropractors out of Greenville Michigan and they know of Floxing and that is where I met my new acupuncturist Tao He. I am now taking traditional Chinese herbal meds and diet along with cupping and acupuncture.My Natural Doctor, Doctor Morgan has helped me start CBD Oil and I have noticed an improvement. I also started IV therapy Again. So hopefully I will recover my health again.
    My GI specialist from Cleveland Clinic had me go to the University of Michigan Hospital to help treat my Adult Autoimmune Enteropathy closer to home. They theorize that it was caused or brought out by the Floxing from Levaquin and Cipro 5 years ago triggering an Autoimmune response. More test.

    http://naturopathic.doctor/

    http://www.thegreenvillechiropractor.com/

    https://www.yelp.com/biz/tao-he-comstock

    • Jeremy March 16, 2017 at 4:45 am Reply

      I guess it’s necessary for you to take steroides? Does this steroid have fluoride compound? All the best!

      • Michael Teeter March 16, 2017 at 8:10 am Reply

        Currently I am taking prednisone 25mg and I have been on it for 5 years. I have been down as low as 5mg. I am also taking Entocort (Budesonide Dr 3Mg) to hopefully replace the Prednisone.
        I do not think it has a fluoride compound. I do have it listed that I am highly allergic to fluoride.

        https://en.wikipedia.org/wiki/Prednisone

        https://en.wikipedia.org/wiki/Budesonide

        That is the medical Doctor’s take on that. Whether I need to take steroids that is all a matter of medical opinion and we all know how many of those are out there!
        But I have a a severe auto immune response after the floxing Reactive arthritis tendonitis, tendonosis, vertigo, migraines, facial recognition problems, finally Adult Autoimmune Enteropathy.

        https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2690661/

        So the regular doc use the immunosuppressants and the steroids to suppress my attacks and combat the malabsorption and dehydration I get with it.
        My holistic and natural docs focus more on the nutritional end and diet.
        I am hoping that the CBD oil I started taking may replace the steroids entirely.
        I have noticed using my RIFE machine and seeing the acupuncturist seems to help the most.

        All the best to you to Jeremy.

    • Jeremy March 16, 2017 at 4:44 am Reply

      Thanks for the link, Michael. Wish you all the best on your recovery!

  4. Michael Teeter March 16, 2017 at 8:16 am Reply

    http://www.painmanagementsolutionsinc.com/abdrkim.html
    David Kim can help Floxies. he is located in Maryland. I talked to him personally.
    here is his contact info.
    Address: 1412 Crain Hwy N #7a, Glen Burnie, MD 21061
    Phone: (410) 761-2988

    • Michael Teeter March 16, 2017 at 8:17 am Reply

      That website may be another mr. Kim he looks like he know his stuff also. 🙂

  5. Michael Teeter March 16, 2017 at 8:20 am Reply

    http://www.eisenhowercenter.com/
    In Ann Arbor, MI The Neurofeedback and TBI looks promising for helping Floxies recover. I may take some training in that.
    Biofeedback, PEMF devices, and RIFE machines look effective to me. I should get licensed and learn acupuncture.

    • L March 16, 2017 at 9:31 am Reply

      While most of my healing came from my NDs and IVs, I did get some help from acupuncture, especially in dealing with pain and inflammation. Good luck with that—and I would encourage you to train in acupuncture.

      • Barbara Arnold March 17, 2017 at 12:05 am Reply

        Hi L,
        Can you tell me how many sessions you had with accupunture before it helped with pain ? I have had five so far but I still have a lot of burning in my lower legs and feet. It has been successful helping me with weight loss as I piled on the pounds after cipro. So I am hoping it will eventually help with pain. Did your accupunturist do anything special ? Mine is Chinese and trained for seven years, so I am hopeful.
        Thanks, Barbara

        • L March 17, 2017 at 10:00 am

          Barbara, I had pelvic area pain and usually it went it away the day of treatment. Sometimes there was a heavy pressure instead of the pain and for that he used a Chinese Herbal mixture. That would take several days to dissipate. The absolute worst pain I had was mid back—just horrific, deep in the bone. The worst pain I had ever experienced and I have had cracked ribs. That went away once I started IVs. I was getting a couple different kinds so I am not sure which on helped.

        • Michael Teeter March 23, 2017 at 5:14 am

          Barbara,
          It all depends on the individual and also the acupuncturist you are seeing. My first acupuncturist took a more traditional holistic approach and it wasn’t until my 3rd treatment that I felt real relief. The second acupuncturist I went to did the whole traditional Chinese Medicine approach, needles, electric stimulation, herbs, cupping the whole ball of wax. I felt immediate relief.
          Here is a site you may want read.
          https://nccih.nih.gov/health/whatiscam/chinesemed.htm

  6. Michael Teeter March 16, 2017 at 8:22 am Reply

    Finally Doctor David P. Nebbling is a Doctor of Osteopathic Medicine.
    He is a DO out of Lansing. He helps Floxies and I got some Amino Acid IV’s from him.
    He has all sorts of cool tools in his place.
    His number is 517-323-1833
    website is AdvancedOsteopathicHealth.com

  7. Jeremy March 16, 2017 at 11:42 am Reply

    Dear All, I wonder what would be your advice for this:

    In around a year I need to travel to China for a months. It’s strongly recommended to get vaccination for hepatitis A and B, because hazard is relatively high in compare to Europe. I will need to eat food there and use water there for month or longer.

    I’m afrad of the adverse reaction. I was floxed in 2015, however my posioning was relatively mild. Nevertheless, I was floxed and thing is still active, I know that because recently had another adverse reaction after fluconazole (antifungal).

    Here’s the double shot I was thinking to take:
    Twinrix – Combined hepatitis A and hepatitis B vaccine
    http://www.twinrix.ca/media/pdf/ConsumerLeaflet_English.pdf

    No fluorid inside, however soidum chloride is present.

    Please share your thoughts and experience. Thank you.

    • L March 16, 2017 at 1:42 pm Reply

      You know, this is something I have wondered about…what would I do if I had to get a vaccine? I no longer get flu vaccines and I will avoid all others at any cost. My advice would be to talk to an ND you trust, especially one familiar with FLQ toxicity. (At the very least one familiar with Lyme since many of the treatments are the same.) Perhaps they can advice you on how to minimize any risks.

    • Lisa March 16, 2017 at 2:45 pm Reply

      It’s a tough call. I’m not sure what I would do in your situation. According to the CDC, “Hepatitis A is a liver infection caused by the Hepatitis A virus (HAV). Hepatitis A is highly contagious. It is usually transmitted by the fecal-oral route, either through person-to-person contact or consumption of contaminated food or water. Hepatitis A is a self-limited disease that does not result in chronic infection. More than 80% of adults with Hepatitis A have symptoms but the majority of children do not have symptoms or have an unrecognized infection. Antibodies produced in response to Hepatitis A last for life and protect against reinfection. The best way to prevent Hepatitis A is by getting vaccinated.” Since hepatitis A is highly contagious, getting vaccinated may be a good idea. However, since it isn’t chronic, it may not be a horrible thing to risk getting. I don’t know – I’ve never had hep A. I would probably get the hep a vaccination.

      Also according to the CDC, “Hepatitis B is a liver infection caused by the Hepatitis B virus (HBV). Hepatitis B is transmitted when blood, semen, or another body fluid from a person infected with the Hepatitis B virus enters the body of someone who is not infected. This can happen through sexual contact; sharing needles, syringes, or other drug-injection equipment; or from mother to baby at birth. For some people, hepatitis B is an acute, or short-term, illness but for others, it can become a long-term, chronic infection. Risk for chronic infection is related to age at infection: approximately 90% of infected infants become chronically infected, compared with 2%–6% of adults. Chronic Hepatitis B can lead to serious health issues, like cirrhosis or liver cancer. The best way to prevent Hepatitis B is by getting vaccinated.” If you’re not going to do any of those high-risk activities, I don’t think that there is any reason to get the hep b vaccine. Personally, I regret getting it. I think it’s unnecessary for most of the population – myself included.

      Regards,
      Lisa

      • Jeremy March 17, 2017 at 10:29 am Reply

        Dear Lisa, thank you very much for developing my post with more precise information. I appreciate.

        It’s a very tough call, and here’s why: in China I will be taking therapy which involves needles (Hepatitis B risk) and will be eating chinese food for a month (Hepatitis A risk). However, clinic is on very high development level, prepared for international patients. and I will live in 4 stars hotel.

        Twinrix vaccine is always 3 shots. First shot would show reaction, of course.

        Indee, finding a German doctor who acknowlege FQ toxicity and consult would be best, but this is not easy.

        Greetings!

        • Bob March 17, 2017 at 10:41 am

          Why should there be a Hep b risk from acupuncture? They use new needles and throw them away when they are done.

        • Jeremy March 17, 2017 at 10:49 am

          I did not write anything about acupuncture, I will get intravenous injections and intraorgan injections. Still, you are right Bob, they will always use new needles.

        • Lisa March 18, 2017 at 10:39 am

          Jeremy, regarding your statement of, “First shot would show reaction, of course.” I’m not sure that’s true. Just like fluoroquinolone reactions have a cumulative aspect to them, vaccine adverse reactions do too. Of course, it’s your decision and you should make the decision using as much information and knowledge of your body as you can. Possible cumulative reactions and overloading your immune system are parts of the equation that should be considered.

        • L March 18, 2017 at 11:15 am

          Yeah, I was thinking the same thing, Lisa, about first shot not necessarily showing a reaction. I would also add that if one is thinking about getting these shots, it might be a good idea to try to find a way to minimize any possible reaction. In Dr Jay Cohen’s book on fluoroquinolones he suggests that if one HAS to take them, it would be a good idea to take magnesium 4 hours away, as well as vitamin E and also possibly supplementing with 10-15 mg zinc and NAC.

        • L March 18, 2017 at 11:17 am

          Those comments were referring to supplement use with FLQs not the shots mentioned, but might be worth a try

        • Jeremy March 25, 2017 at 4:02 am

          Thank you Lisa and L for your precious input. Indeed I need to think about possible cumulative aspect of vaccines .

          I still have some time to decide and can prepare myself, however my gut feeling is that I don’t want to intruduce another risky substance to my body. Tough call, one month in China with everyday threathment. I will keep you posted. Bless you!

    • Michael Teeter March 18, 2017 at 9:04 am Reply

      That is a very good question! It is pretty much your call. It looks like that may be safe enough if I was in your situation. Me personally I avoid vaccines as much as I can because of my Auto Immune disorder. Just FYI if you know someone who has a RIFE Machine there are settings for after a vaccination or injection that helps with adverse reactions.
      I also take detox supplements and run detox settings. maybe run the hepatitis settings.
      As far as China, first of all I am jealous! I always wanted to visit. Check out the food ranger on youtube he is awesome and can help you find safe places to eat in the country.

      I think for water I would use a lifestraw or bobble water bottle filter just to be safe and maybe buy bottle water then run it through my filter. Something like this.
      http://www.esafetysupplies.com/Sawyer-Mini-Water-Filter.html?gclid=CjwKEAjwtbPGBRDhoLaqn6HknWsSJABR-o5sfgnmy_lNb5MloYvnoLdhtm8__tWMGq9MzwfLhcj75BoC1xnw_wcB

      http://www.staples.com/Bobble-Water-Bottle-With-Carry-Tether-Cap-Medium-Lime-185-oz/product_2399101?cid=PS:GooglePLAs:2399101&ci_src=17588969&ci_sku=2399101&KPID=2399101&cvosrc=PLA.google-SALES.Bags%20%26%20Briefcases&cvo_crid=39357178182&cvo_campaign=173090982&gclid=CjwKEAjwtbPGBRDhoLaqn6HknWsSJABR-o5scyOsM5eRy50dYJP83UtwfDa7-GdoLagWo22a74eNWxoCWBDw_wcB

      here is an article you may want to read.
      http://www.china-family-adventure.com/health-and-safety-in-china.html

      I wish the best! happy Travels.

      • Jeremy March 25, 2017 at 4:10 am Reply

        Michael, thank you very much for your words and for your tips and links! I even can’t explain how I appreciate your input! I’m puting all this info into my notes.

        Wish you all the best for your recovery! Stay strong!

  8. Brian March 16, 2017 at 5:02 pm Reply

    Hi, I’m back with a question about the insomnia. It’s been three weeks and I’m still having a lot of trouble sleeping. I’ve been see a psychiatrist (who doesn’t believe that cipros are harmful) and he’s prescribed Ambien. It helps a little bit but not much. Now he’s prescribed Trazadone. Anyone have experience with that med?

    Also, what kinds of time frames have people been seeing in terms of the insomnia improving? I took a total of 5 pills (2500 mg) over 2 days.

    Thank you

    • Brian March 16, 2017 at 5:04 pm Reply

      Sorry, I should have said three days

      • Bob March 17, 2017 at 11:12 am Reply

        Have you tried melatonin and GABA?

        • Brian March 17, 2017 at 12:56 pm

          Hi Bob,

          Yes, I tried melatonin and various dosages including the time release formula. I tried GABA early on and it made me euphoric for a short period of time but didn’t seem to promote sleep. What kind of duration (if you don’t still have it) was your insomnia?

        • Bob March 17, 2017 at 2:15 pm

          Early on it lasted for several weeks but I still have spells of waking up in the middle of the night and not able to go back to sleep. I was floxed almost 4 years ago. Everyone is different with regard to recovery.

        • Heather March 24, 2017 at 6:33 pm

          Hello Bob! I thought I was the only one exsperienced my symptoms after four years still the same awful. Insomnia is awful with muscle twitching and tremors!Been to all types of docs! Please get back with me my email is niner769@gmail.com.

    • L March 16, 2017 at 5:07 pm Reply

      You need to find another doctor. And tell him about Dr Jay Cohen’s book (he was a psychiatrist too) “How We Can Halt the Cipro and Levaquin Catastrophe: The Worst Medication Disaster in US History.” Your doctor is woefully uninformed. (He could at the very LEAST look at the drug label.) This makes me furious.

    • Jeremy March 17, 2017 at 11:42 am Reply

      Also you can try the natural remedy: Valeriana officinalis. You can buy capsules with Valerian root (500mg) and take 2 before sleep. When you wake up in the middle of the night you can take 1 more.

      It’s natural and not addictive. Was helpful for me, however as far as I know for some works better than for others. Best!

      • Brian March 17, 2017 at 1:03 pm Reply

        Hi Jeremy,

        What brand are you using?

        • Jeremy March 17, 2017 at 1:39 pm

          Both Swanson 475mg and Now Foods 500mg worked good for me. Both are genuine, I can smell the real Valeriana officinalis, because the smell is very specific. Buy a smallest package and give it a try. The good thing is that it’s a very healthy sleep promotor. I hope that will help you!

      • Brian March 17, 2017 at 1:47 pm Reply

        Ok I will look for those. If you don’t mind saying, how long did your insomnia issues last for?

        • Jeremy March 17, 2017 at 1:55 pm

          I think I didn’t have real insomnia – as i understand it’s a total lack od sleep, right?

          For a 5-6 weeks I had (1) real trouble with falling a sleep and (2) was waking up after 4-5 hours and couldn’t sleep anymore.

          Please take this into consideration. Valeriana might be a not sufficient solution for you, however it is in use since Middle Ages not without a reason. Good luck!

  9. Brian March 18, 2017 at 6:21 am Reply

    Sorry but I have another question for you all. I have noticed over the last week or so my stool has been green and loose but not diarrhea. No abdominal pain but I’m hearing a lot of noise in my gut. Kind of worried it’s C. Diff but I don’t seem to have all of the symptoms. Wondering if it’s a combination of stress, gut issues from the Cipro, etc.

    I’m going for a physical on Monday morning and will let them know.

    Anyone have any insight on this?

    • Lisa March 18, 2017 at 9:29 am Reply

      Hi Brian,

      Definitely get checked out. Are you taking magnesium supplements? They can make stools loose. It may be worth a try to stop taking magnesium for a few days to see if that helps. Cipro, and the gut destruction it causes, can certainly contribute to GI problems. Stress may be a contributor as well. My main advice is to get checked for c diff and look at your supplements to see if they may be causing issues.

      Regards,
      Lisa

    • L March 18, 2017 at 9:53 am Reply

      This is stuff is so toxic on the gut. My stool at one point was almost white. I had diaharrea for over a year, and for the last year somewhere in between that and normal. Make sure you are getting a good multi-strained probiotic (the kind you refrigerate) and it also helpful to eat fermented foods (I put goat’s milk kefir in smoothies.) Avoid gluten and gmos. Another helpful addition is something called RESTORE mineral supplement. If you are supplementing with magnesium, avoid the citrate form.

    • Brian March 18, 2017 at 4:25 pm Reply

      So if it turns out to be c. diff then are you stuck with Flagyl as the only treatment option?

      • Stephanie March 18, 2017 at 4:38 pm Reply

        Flagyl is horrible I would not recommend it to anyone it’s part of why my spasms are so bad if you have a reaction to flqs then flagyl is not a good idea at all!!!

      • L March 18, 2017 at 5:01 pm Reply

        Check with an naturopath. I have read about other options besides antibiotics for C diff (and again ALL antibiotics effect healthy gut bacteria, so more problems there)

      • Deborah March 20, 2017 at 6:06 am Reply

        Vancomycin

  10. Michael Teeter March 18, 2017 at 9:10 am Reply

    Hello Everyone my health is coming around! I am walking better but I always carry a cane.
    Ever Gentleman should right! I actually gave a part at my congregation and stood up at the podium for it. I have not been able to stand on the stage for 5 years! So this is Awesome. maybe I will be a recovery story soon , eh Lisa.
    Anyway. I have been doing water therapy and I joined a gym with my awesome wife. I am following the advice of my Natural Doctor. Dr, Morgan and my Acupuncturist Tao He and I think this has been helping me the most.
    I still have my regular doctors I see two GI specialist now 1 in Cleveland Clinic and 1 at the University of Michigan.
    My PCP is a dink and I think I am going to fire him.
    I also use my RIFE Machine regularly.
    I just wanted to share. I am getting ready for fishing this year! So look out for catch and cook videos on youtube real soon. I love you all and look for a day when all of us on here are not sick anymore.
    I wish you all the best.
    Mike Out

    • Lisa March 18, 2017 at 9:26 am Reply

      That’s amazing! YOU’RE AMAZING! Great job, Mike! I know this journey has had a lot of ups and downs for you. Your spirit and optimism have always been incredibly inspirational. Thank you for sharing! xoxo

  11. L March 18, 2017 at 9:55 am Reply

    and good you are close to the Cleveland Clinic…they are integrative. Not your standard AMA “health” clinic.

    • Michael Teeter March 23, 2017 at 5:24 am Reply

      I live 5 1/2 hours away from Cleveland Clinic. So it is a journey when I do go, I was seeing specialist when I went there. They never brought the integrative or functional medical folks on board but they were a lot more open to my holistic approach.
      I am now going to the University of Michigan. Seeing a GI specialist there. She ordered a bunch of tests and I just had a CT and enterography scan the other day. I think the barium and contrast they gave me, triggered a GI issue. But I think I am doing better now.
      They all need to rule out cancer with me so they can sleep at night.
      I also see my Natural Doctor in Lansing and I see my acupuncturist and internist in Grand Rapids. In case you folks were wondering I live in Michigan.
      I can see a lot of improvement since I started CBD oil under my Natural Doctor and I started Chinese Medicine under my Acupuncturist.
      I just got to step off this Prednisone wiith out causing severe diarrhea!

      Well I wish you all good health.
      Michael

  12. Stephanie March 19, 2017 at 4:27 pm Reply

    Hey guys thought you would be the best to ask. My fiancé is having lots of hand pain and inflammation he doesn’t want to take NSAIDS and we tried tummeric pills and those didn’t work he is not a floxie but I’m bad with figuring out what’s good for him and he would rather take a pill then cream. This is for when he is working so cbd is not an option.

    • joanneg March 19, 2017 at 9:26 pm Reply

      Hi Stephnie,

      I sure hope you’re at least doing better??

      As for your fiance’s inflammed hand, I know magnesium is an anti-inflammatory that’s why a lot of old timers would take an epsom salt bath. He could try the pills, but I would use the spray oil or soak in epsom salts. Also, a lot of us forget that just icing a couple times a day works great for inflammation. Hopefully you’ll get some more choices from others:)

      • Stephanie March 19, 2017 at 9:42 pm Reply

        Thanks Joanneg

        I will have him try that. 😜 I’m not good my spasms still increase my fiancé took me out for outside time and I’m stuck in the couch and that’s from going to lunch and running an errand where I held onto him. I just am stuck right now till I get some tests and can’t go into it all but just only have my monthly IVs till more tests can be done. I pretty much am house bound. I get to look into wheelchairs next weekend to be able to do more with less stress on my body we decided that today. But I stay positive and am lucky for my fiancé he takes care of me and loves me all through this. As bad as things are for me life can always be worse and I’m lucky for what I have

        • joanneg March 19, 2017 at 10:04 pm

          Well I’m glad you have someone who loves you so much and for how positive you’ve been through it all. Good luck in your healing and keep us posted.

        • Stephanie March 19, 2017 at 10:38 pm

          Thank you!!! Yep he has worked so hard to keep a roof over my head and food in my tummy. He says it’s why you do when you love someone.
          I’m waiting to see if I get approval for an at home eeg. Hopefully this week. Everything is wait and wait and then wait some more. Lol

          I do my best to stay positive. I have my bad days but I go back to positive. To me that’s all that counts. Think e all have bad times and our cry days I know I do but I always come back to positive and thankful 💖💖

    • Michael Teeter March 23, 2017 at 5:30 am Reply

      Hey Stephanie,
      I too can not take NSAID’s ever since my perforation. I found these two products helped me. Pain-Eze and Serrapeptase.
      https://www.walgreens.com/store/c/rainbow-light-pain-eze-tablets/ID=prod6310782-product?ext=gooPLA_-_All_Products&pla&adtype=pla&kpid=sku6262353&sst=150719e1-db5a-48cd-835f-b1a3f3b92e35
      The one use poppy seed and the other is an enzyme that works very well.

      • Stephanie March 23, 2017 at 7:33 am Reply

        Thank you

  13. joanneg March 19, 2017 at 9:16 pm Reply

    I thought this was interesting and maybe helpful in organizing a supplement plan. But I wonder why magnesium isn’t on their list?? Anyhow, I just wanted you all to be able to read it.

    CIPROFLOXACIN (Cipro®, Ciloxan®)
    Ciprofloxacin is an antibacterial agent used to treat infections of the urinary tract, lower respiratory tract, sinuses, and other parts of the body.

    Which Nutrients Are Robbed
    Taking this medicine may deplete your supply of, increase your need for, or interfere with the activity of:

    biotin
    inositol
    thiamin
    riboflavin
    niacin
    vitamin B6
    vitamin B12
    vitamin K
    zinc
    Bifidobacteria bifidum
    Lactobacillus acidophilus.
    Restoring the Nutrient Balance
    Speak to your physician about taking 500-1000 mcg of biotin, 250-1000 mg of inositol, 25-200 mg of thiamin, 25-100 mg of riboflavin, 50-100 mg of niacin, 100 mg of vitamin B6, 500-1000 mcg of vitamin B12, 1-10 mg of vitamin K, 50-100 mg of zinc, 15 billion live Bifidobacteria bifidum organisms, and 15 billion live Lactobacillus acidophilus organisms. You can also eat foods that contain the depleted nutrients. https://www.integrativepsychiatry.net/preventing_pharmaceutical_induced_nutritional_deficiencies.html

  14. Steff March 20, 2017 at 9:15 am Reply

    Hi everyone, I’ve taken cipro a few times but realised I was floxed the last two to three times (I don’t want to go in all the details as it horrifies me but it is in the past so be it!), the last time where the bomb from hell went off in my body actually helped me to put together all the pieces of what the hell has been happening over the last 6 months. I’m almost 4 weeks out since last flox and experiencing various levels of hell but now I am much more educated now about how to take charge of my health and I am doing so!

    We are all really going through the most difficult thing I feel we will ever experience but this experience will truly shape us into better, stronger and more educated people. I feel like this is SUCH a painful lesson but already I have reshaped so many views on health, life and what is really important! Anyway I wanted to make a post for two reasons, 1. If anyone is feeling extremely alone and just needs another mind to chat to via email, to talk about symptoms, discuss treatments they’ve tried and generally just need moral support you could email me at stefflets1@gmail.com. I will try to respond as often as possible. I can’t make any promises but I would like to keep a conversation focused on being positive or proactive and getting through our daily struggles. I’m just putting it out there because thankfully I have my partner and my father who are being great ears to my issues but some of you don’t have that, and it would also be good to give my loved ones a break. There is only so much they can understand or comprehend of this madness. Also note: This is a great website and I am thankful for the positive things people have written and that this feels like a good support network. It really gives us hope! BUT dont spend too much time on here, it can make your anxiety levels go berserk!

    2. I have been suffering from a UTI (definite infection) for almost 2 months and as I got floxed recently I had total panic and tried to avoid antibiotics that my doctors have prescribed. I know alot of people here have become very anti-antibiotic. I tried to treat my UTI aggressively with natural methods and it just wouldnt budge, or would slightly disappear and come back. So now I am on Keflex which I think is working fine, and I have been on it for 2 days now without any adverse reactions. Yes I am nervous, as Bactrim caused an FQ reaction in me previously which I didnt fully understand, I don’t want to take anymore pharma medicines but in this case I really felt it was needed, and by avoiding the antibiotic I became EXTREMELY ill and pushing through the pain to the point where I was in total agony and was not able to sleep barely any hours per night. I realised this is not helpful at all, as sleep is really important for us to heal! I am now equipped with many natural supplements to prevent reinfection and high strength womens probiotics to support flora as well when the course is finished. We are in a hard place due to the FQs affects on our bodies but just try to make the best decision for yourself, and get your body supported by good diet and natural therapies to help prevent reinfection later. Really work on making sure you are in the best opportunity to avoid future illnesses so there are no needs to take these antibiotic medicines again. Only now did I start to be aware of my own patterns and how I was putting myself into these situations where I was getting extremely sick, leading to take the antibiotics.

    Thanks
    Steff

  15. holly March 20, 2017 at 1:32 pm Reply

    Hi everyone- Can you please tell me how long it took your brain fog/confusion to go away post flox? Thank you.

    • Garry March 22, 2017 at 8:56 pm Reply

      Hi Holly, It’s been 4 months and the brain fog and associated nausea and pain recurs very quickly unless I take a regular (3 times a day) intervention combination dose of 400mg IP6 / 110mg Inositol (2 pills) and 250 mg CDP Choline (1 pill Citidine). Both together increase acetylcholine levels in the brain to create clarity for me. The Citidine also breaks down into uridine in the brain which is a nootropic and neuroprotective especially if also taking fish oils. I take many supplements but this is my magic combo for clarity. As always do the research and consult with your health practitioner before embarking on new supplements to be sure it’s right for you.

      • Garry March 22, 2017 at 9:07 pm Reply

        These are to be taken on an empty stomach and definitely without magnesium or other minerals, otherwise the inositol binds to the minerals rendering both useless. I take my minerals 1hour before or 1 hour after. Haven’t totally optimized the timing, but seems to work ok. Also N-Acetyl-L-Carnitine helps me feel more clear too, 500mg 3x a day. I take this one with my meals.

    • Michael Teeter March 23, 2017 at 5:39 am Reply

      3 months for me. I had Brain Fog and my facial recognition was all messed.

  16. Deborah Gnegy March 22, 2017 at 12:22 pm Reply

    I am 53. How can I learn if my joint issues are related to taking Levaquin and Cipro in my 30s for ENT infections. I recall reporting joint fatigue and achiness during a repeat round of Levaquin and it was never prescribed for me again. I have had 11 joint surgeries since and I’m currently recovering from a hip revision. The surgeon commented that I’m “extremely flexible”. I have deveoped issues in other joints while using the walker and cane–and I prepared for surgery with gentle yoga and strength training.

  17. Matt March 23, 2017 at 8:57 am Reply

    Hello all, I was given a 10 day prescription for levafloxacin around Christmas. The only side effects I really had was some itching early on and some stomach pain early on. My question is, how long should I be looking for severe reactions to this poison. I’m not real happy with the prescribing doc as none of these issues were every even talked about. Ive been a mess since I’ve learned about all these issues.

    • L March 23, 2017 at 9:27 am Reply

      Hi Matt…it is different for everyone, and you may not experience anything else at all. Just to be safe, up your magnesium, probiotics, avoid gluten, gmos and fluoride. I personally had numb toes, fingers, blurred vision and tendon swelling right away….and then it got much much worse very rapidly. While there can be delayed side effects, I suspect that if those are your only complaints so far, you may not have any other problems. (also avoid any meats that could have antibiotics in them as well as NSAIDs and steroids, just to be safe)

      • Matt March 23, 2017 at 12:12 pm Reply

        Thanks for the info, like I said I’ve been an absolute wreck since reading about the side effects of these drugs. I will take your advice and increase my magnesium. Thanks again!!

        • Lisa March 23, 2017 at 3:33 pm

          Hang in there, Matt! Though I think (know) that adverse reactions to these drugs are under-reported and under-recognized, they certainly don’t happen to everyone. A friend of mine who is over 60 and has a history of thyroid and parathyroid problems recently took Cipro and was fine. I would have thought that she would be a high-risk person, but she took Cipro and didn’t seem to have any problem with it. Lots of people are fine. You’re fine. These drugs can destroy people, but they didn’t destroy you. You’re okay. Don’t be scared that you actually aren’t. You are. Now that you know the effects of fluoroquinolones, don’t take them again (unless there really are no alternatives and you are in a life-or-death situation). But, it appears that this time, for whatever reason, you weren’t affected. That’s a very good thing! Try to take your mind off of the fear and stress, as they can be damaging in themselves. Like L said, get some magnesium (most people are deficient anyhow – but you need to have proper kidney function to tolerate magnesium supplementation – just know that and beware), and try to live life in a healthy way. Take some deep breaths, and know that even if you do start to get symptoms (but you won’t – try to believe it), there are resources for you.

          Regards,
          Lisa

        • Matt March 24, 2017 at 7:23 am

          Lisa, thanks for the reply. I just happened to stumble on an article about these drug a couple days ago and realized I had taken them a few months prior, amazingly enough that night my legs started aching as did my feet, I think most of which was caused by the anxiety I was feeling about having took the drugs. The mind really is a powerful thing. Funny thing is on the day before reading the article I was telling my wife how good I was feeling. I’ve started a new workout program that I’ve been doing for the past month and a half and finally feeling fully recovered from the pneumonia I had at Christmas. I’m hoping my anxiety subsides soon, it’s amazing how quickly things can change, felt great on Monday by Wednesday I’m having full on panic attacks. Thanks again for taking the time to reply.

  18. Brent Strine March 24, 2017 at 12:19 pm Reply

    In 2008 I got a serious local infection after a total knee replacement. I was given an IV of Cipro for three days. I also have to take it in pill form every time I go to the Dentist. I do suffer from severe general arthritis and now am wondering if the Cipro exacerbated my symptoms.

    • L March 24, 2017 at 1:03 pm Reply

      I would suggest you not take it when you go to the dentist. (Do you have mitral valve prolapse? That is one reason why antibiotics are sometimes recommended.) It you absolutely MUST take something when seeing the dentist I would avoid ALL fluoroquinolones.

      Yes it is possible it exacerbated your symptoms. It is also possible, if you did not have arthritis before taking Cipro, that it is not even arthritis, but rather a side effect. But again, please avoid all FLQs in the future.

  19. E March 24, 2017 at 1:58 pm Reply

    Hi everyone. Im sorry Im posting here. Not sure what to do. I have neck problems from before cipro, but after cipro things have gotten worse, and I don’t blame the cipro because I have no idea if its related. My biggest problem after cipro has been my achilles tendons, so I can say for sure that cipro did damage that, I cant say for sure it did anything to my neck. So the reason im posting here is because of the pain, i have pain running down both arms and numbness in my right arm, and I have been to multiple doctors with no imagining other than a xray done, (x rays dont show nerve related issues), and no solutions or answers. My guess is its a herniated disc, maybe multiple herniations. I’m really young, only 17, and after having this trauma from being hurt by cipro, I am really scared to take any pharmaceutical pain killers. Even Tylenol scares me. I really don’t know what I’m asking, I know no one has exact answers. Im just getting no help from my doctors and its hard to keep going with this worsening pain. Ive been prescribed gabapentin and told to take Tylenol. Has anyone taken painkillers prior to floxing? Im sorry this was so long. Thanks for reading

    • L March 24, 2017 at 2:08 pm Reply

      so sorry you are having these problems, and yes it is wise at this point to not take any pharmaceuticals of over the counter pain killers. I had neck issues after cipro. It sounds like you might have a pinch nerve. If I were you I would find a trusted acupuncturist, ND or chiropracter. Personally, with the exception of a couple integrative doctors I have given up on MDs. Their answer to most things is drugs. Find an alternative practitioner.

      • E March 24, 2017 at 3:10 pm Reply

        Thank you for replying, and I understand that avoiding pharmaceuticals is a good idea, but I can’t do that forever. The pain is getting worse, and I did go to acupuncture with no relief. I think it is more than just a pinched nerve, it sounds like a compressed nerve from a herniated disc. and a big herniation at that because it affects both arms. I personally can’t function with the worsening pain, but I’m terrified to take any pain relief. I have a pain management appointment soon as well. I really do appreciate your reply I just would also like to hear from someone who has taken painkillers and been okay.

    • Bob March 24, 2017 at 3:49 pm Reply

      you need to find a doctor who can test you to see what pain med you could tolerate. It’s hard but there out there.

  20. Mark Medley March 24, 2017 at 7:15 pm Reply

    I am suffering from severe insomnia.

    Is anyone taking benzos as sleep aids?

    I can’t sleep a wink without them

    Serequel is possibility as it does not affect gaba a

    Any comments

    • Brian March 24, 2017 at 7:58 pm Reply

      I was but I’m afraid of become addicted to them. I was prescribed Ambien and Trazodone. The Trazodone works better for me but I feel groggy in the morning. Ambien made me fall asleep faster.

  21. Renee Blare March 25, 2017 at 9:36 pm Reply

    I believe my husband was floxed by Ciprodex by his ear specialist. He had a cholesteotoma for years before they finally reconstructed his ear canal. They treated it by periodically cleaning out his ear and treating him with Ciprodex (or Ciprofloxacin eye drops and Dexamethasone eye drops depending on what was available.). He’s had a total of 37 surgeries in his lifetime and counting. He’s had a left ankle reconstruction (rupture), 5 shoulder surgeries, left knee replacement, and numerous other joint surgeries. He also has nerve damage to both of his feet and carpal tunnel in both of his hands.
    I’ve told ALL of his doctors since day ONE that I believed the Ciprodex was the culprit (I’ve believed it since the Black Box warnings came out on the quinolones. I’m a pharmacist.). I’ve been met with a combination of scoffing, mockery, and outright denial. NOBODY will take us seriously. I’ve even gone as far as trying to get legal counsel. NOBODY will help us.
    They only keep trying to operate on him or dose him with pain killers (when we get the doctors to actually believe what’s going on.)
    We finally have a pain management doctor who believes he’s in pain now.
    My husband is a remarkable man and I admire him. He sleeps very little, but his outlook on life is amazing, even though he lives in pain.

    • L March 25, 2017 at 9:48 pm Reply

      so sorry Renee. Sadly most of us go through the gamut of disbelieving MDs. I had horrific, terrifying side effects that made me pray for death. I am better now (about 90%) thanks to an ND. In fact by the time I found him he had already treated a number of floxies. That’s not surprising given that a) most allopaths do not believe these drugs can cause so much damage and b) they have nothing to offer anyway. You might want to go next time with one or more of the “Dear Doctor” letters written by doctors who have been floxed, for doctors. Or take a copy of Dr Jay Cohen’s book. The title says it all “How We Can Halt the Cipro and Levaquin Catastrophe: The Worst Medication Disaster in U.S. History.” Or better yet find a good ND, especially one that does IVs. I know you said you are a pharmacist, so you are part of the whole allopathic community, but if I were you, I would look outside that world. There are alternatives for most injuries. EG I ended up having a torn meniscus in the knee that did a lot of “popping” post Cipro. I did not want surgery. Instead I got prolozone injections which are supposed to help it heal itself. So far so good! Your poor husband has been through so much. I highly recommend a good ND or other alternative practitioner.

  22. Renee Blare March 25, 2017 at 10:17 pm Reply

    Getting him to even see another provider, alternative or otherwise is hard. He’s “burned out,” so to speak. He’s lost faith in most everybody now. I personally believe these drugs need to be yanked off the market and have for a very long time, but I’m one provider of many. My opinion doesn’t go very far. 😥

    • Stephanie March 25, 2017 at 10:23 pm Reply

      Maybe it will be easier to get him to see an alternative Dr as they would stay away from pills as the answer and try natural methods.

    • L March 25, 2017 at 11:05 pm Reply

      I completely agree with you. I hear some say there is a place for these drugs but I disagree. (If I were dying and given the choice between a fluoroquinolone or death I would face death. I could not go through the horror i went through before.) Until and unless the manufacturers can investigate a way to undo the damage these drugs do…to DNA, mitochondria, collagen and everything else, I think they need to be removed. They have destroyed so many lives..according to Dr Charles Bennett, 300,000 deaths and a million or more injuries.

      I can certainly understand your husband’s feelings. I was so burned out on seeing doctors of any kind. But I credit the ND I ended up seeing with saving my life. He was also the first one to tell me I would be OK and to (finally) let HIM worry about it.

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