This site is to give HOPE to those who are suffering from Fluoroquinolone Toxicity Syndrome as a result of being poisoned by fluoroquinolone antibiotics – Cipro, Levaquin, Avelox, Floxin, etc. It contains stories of healing.
Cipro, Levaquin, Avelox and all other fluoroquinolones are dangerous drugs that can have devastating effects that cumulatively I’ll refer to as Fluoroquinolone Toxicity Syndrome or Floxing. Fluoroquinolone Toxicity Syndrome/Floxing includes damage to connective tissue (tendons, ligaments, cartilage, fascia, etc.) throughout the body, damage to the nervous systems (central, peripheral and autonomic), and more. The damage done by fluoroquinolone antibiotics can destroy a person’s quality of life or even kill them. Certainly, there is a time and a place for drugs with dangerous side effects. If you find yourself in a septic shock induced coma, fluoroquinolones may save your life. Unfortunately, these drugs are not being reserved for life or death situations. People are being prescribed them for urinary tract infections, suspected prostate infections, upper respiratory infections, as a prophylactic for travelers’ diarrhea, ear infections, pink eye, etc. Thousands of people have suffered needlessly from the devastating effects of fluoroquinolone antibiotics, when another, safer antibiotic could have, and should have, been used.
The damage done by fluoroquinolones is largely unacknowledged by the medical establishment and an accurate diagnosis, compensation and relief are difficult to come by. There is no known cure for Fluoroquinolone Toxicity Syndrome/Floxing. However, many people continue to LIVE after being poisoned by fluroquinolones. They find healing, recovery, perseverance, compassion and hope. These are their stories.
This site is meant to give hope for healing to those who are adversely effected by fluoroquinolones. It is no way meant to disregard the pain of those who are chronically suffering from the horrifying effects of Cipro, Levaquin, Avelox or the other fluoroquinolones. There are people who don’t recover. Their stories are real and they matter. There are also people who are able to recover and I share their stories with the hope that they inspire others, or at least give hope that recovery is possible.
Here is a New York Times article about the dangers of fluoroquinolone antibiotics – http://well.blogs.nytimes.com/2012/09/10/popular-antibiotics-may-carry-serious-side-effects/?_r=0 – more news stories, research papers and other resources can be found on the “Links and Resources” page.
Here is a Facebook group that is a great resource for those going through Fluoroquinolone Toxicity – https://www.facebook.com/groups/floxies/
Featured post – I’m floxed. Now what?
The Fluoroquinolone Toxicity Solution Ebook has helped many Floxies to recover, including Daniel, Cindy and Ruth. As a bonus, you will also receive The Floxie Food Guide – a book of diet guidelines to help you through fluoroquinolone toxicity:
Henk. Thank you for your suggestions! I agree that the Derma is trying to take the attention away from the lidocaine and direct it to something else!!!! I still think my reaction is mostly due to the lidocaine since I stopped using the bandaid awhile back. Although I think the lidocaine reaction is what caused the bandaids reaction since I never had a problem with bandaids even “after” my floxing until this procedure. I think I just have to ride it out and the reaction to the lidocaine will slowly calm down. “I hope”!!!!!
Hi Dee,the list of adverse reactions to Lidocaine is focussed on healthy people;floxies are even more sensitive.So;your dermatologist obviously doesn’t have the faintest idea od possible adverse reactions to the substance,she uses,or,like most of the doctors,she learned to deny the possibilities of those reactions,claiming those medical substances are perfectly safe.Don’t forget;most of them are totaly brainwashed by the Farmafia,and there’s also that false feeling of honour in such people.
I think you’re right in choosing to just ride it out;suppressing the imune system doesn’t seem the best way to go,right now.There is a perfectly safe way to threat the itching,though;the juice of a plantago plant.You can find these almost everywhere,on grassfields and especially on places where nettles grow.I consider it a gift of our creator because the juice of that palnt is the best ever medicine against the irritation of nettles,and where’s nettles.there’s (most of the time) Plantago.I’ve both the narrow leaf variation and the one with the big,round leaf growing in my garden (the narrow leaf variation is from seeds I collected in the wild).The CS gel,Don suggested,might be working,as well.
Dr.Mercola advices probiotica,for allergies,and yesterday I found another article,that research shows,antibiotics cause allergies (by changing the gut flora).From my own experience,the Lactospore,I used,seems to have brought my allergic reactions (hayfever,Latex) down,so,maybe I’m gonna give it a test by wearing my blue jeans again (after my first AB course,with Amoxicillin and Metronidazole I got allergic to the blue dye in blue jeans;it took 1 1/2 to 2 years before I understood that the terrible itching and swelling was caused by that dye.
L thanks for your feedback on the colloidal silver gel. I will check it out. I feel pretty convinced that I had an allergic skin reaction to the lidocaine even though the dermatologist thinks there is no way. She has absolutely no understanding of being floxed! Frustrating! Anyway since I won’t take steroids as I told Henk I guess I’m just going to have to ride it out and hope for the best!!! Have you taken Claritin? Wondering if that might help me??
Not sure if it will help, but yes I have taken all sorts of allergy meds post floxing with no issue
Guys, we were talking about the bioptron some time ago. The deal with that is that it uses polarised light through a special filter. Anyway I ordered a second hand unit off ebay with all the coloured lenses for about $350 US including postage to New Zealand. The other thing I have tried for pain relief is the Quell unit which is a kind of wearable TENS device and this seems to help. I’m actually almost totally pain-free now, and it’s only been 5 months since my last dose of a 4 week course of Cipro. However I will point out I am taking pain meds (but no opioids):: low doses of nortriptyline, gabapentin and clonidine (prescribed by a pain specialist). None of those are having any significant side effects right now and they are all non-opioid so I can function well and I am back to work now full-time.
Hope everyone is doing OK considering the circumstances.
Michael
Hi guys. Has anyone ever took Nystatin? Any shared experience would be greatly appreciated.
https://en.m.wikipedia.org/wiki/Nystatin
Thought I would share some news with you, since we all wonder on here if our mitochondria can be saved. I had a test done called nutreval (summary was 30 pages!!!) Anyhow, my mitochrondria range was not only high, but VERY high. Good news since I had been told early on that the horrible breathing issue I had was likely mitochondrial damage to the heart muscle. It has been five years, and in that time I have taken ubquinol or mitoq and pqq. Guess i can finally cut back. (my Bs sucked though…need to up that supplementation.)
L. That is awesome great news about your mitochondria!!!! Gives us all great hope!!!
L. Can you tell us more about the test. Is it covered by insurance? If not, is it pretty expensive?
It’s likely VERY expensive, but my doctor said insurance would cover it. Again, it is called NutrEval and it is done by Genova Diagnostics. It covers SO many things. EG some of my minerals/and Bs and showing I am low, in spite of taking supplements…but that together with other info on some gut related things suggest I am just not assimilating them…so back on digestive enzymes for me. (Also pointing in this direction is that I am low on acids in spite of having an almost daily smoothie with protein powder that contains all of them. My glutathione was also very high, and I have been taking NAC every day for this whole congestion thing.
That’s why I posted. I wanted people to know that taking ubiquinol or mito q is not just money down the drain. thanks
Thanks L that’s good to know. I’ve been taking MitoQ and definitely notice a difference if I don’t take it.
MitoQ
Lipoid acid
Magnesium
B complex
All are helping.
Michael
Yes, all good. And he put me back on the ALA. AND mag. I had dropped to 400 mg a day but I guess it’s just not enough. That or it also is because I am not absorbing it well
May I make a comment? I get more information (clues about what to do) by reading the posts of all of you than I do from my 5 minute visit with an MD. Shameful, very shameful to have to say.
Seriously! (Although now I have a wonderful integrative doctor who works WITH me, and values my opinions.)
Any doctor who will “actually” listen to you is a treasure. Most are either actually ignorant or play ignorant about the “truth about Fluoroquinolones”. Not surprising though. After about 30 years of writing prescriptions they look pretty dumb if they all the sudden change their view of Fluoriquinolones. The term is called “saving face”.
If you are floxie. Which you probably are if you are on this site. You already know what is happening now and has happened to you but you should read this story. I won’t say more. Just read it. http://www.myquinstory.info/the-fluoroquinolones-inconvenient-truth/?fbclid=IwAR2ru9TKbfkWdT4x3jFHhKeCkToUUi3LN_PnqmzCqR9KiIdnwXz434XUMTY
I’m sorry I even started reading that. I know this. I don’t need a reminder. And again, everyone is different. I think if you focus on not ever healing, you likely won’t.
It’s depressing. I read it shortly after it was posted. I know someone who has ALS. He has also suffered from Crohns most of his life and when he told us of his ALS diagnosis the first thing that I wondered was how many times he had been given Cipro when hospitalised with the Crohn’s. I have to say I don’t have much hope of getting better – just hope that I don’t get a lot worse. I had an x ray that showed osteoarthritis in my right hip a few weeks ago and walking has become painful. The left showed no damage but hurts as well. I suspect tendonitis is partly to blame for the pain in each side. At the moment I am trying to wean off my beta blocker and getting some withdrawal symptoms like dizzy spells. At least I hope it’s just withdrawal and not some nasty late gift from Cipro. I am over 4 years out now. Unlike you I never had an initial scattergun severe reaction but a slow deterioration with mainly musculoskeletal problems. Other stuff like neuropathy, chemical sensitivity and vision problems have been very minor -nuisances rather than debilitating.
If you can afford it Madge, I would look into prolozone injections for your hip. And I suspect there are likely tens of thousands walking around who have been diagnosed as havng so many different diseases, that were in fact floxed.
Just found out recently..serious peripheral neuropathy, blown tendon (right bicep), sever lung problems, continuing pneumonia. Veteran….no help from VA. Amazing pain in hands. Any suggestions? Thanks…Robert L. Babcock
How many months / weeks out are you? I’m 4 and a half months. The following helped me:
Magnesium
Alpha Lipoic acid
Mito Q10
Epsom salt baths
Gabapentin for symptomatic relief
Taking 3,000 mgs. Gabapentin every day. Codine every night. Hands burning like fire. Blown tendon 5 years ago. Slowly deteriorating last two years. Doctors …no help
Two things, Robert, I would like to suggest. First, for the blown tendon, try a prolozone injection (and/or PRP) I had mine from NDs, but a number of sports medicine doctors now do them. MY ND was cheap. When I have contacted sports MDS they tend to charge way more. It is ozone mixed with procaine and it allows the body to heal itself naturally. I had in both knees after cipro tore both meniscus. It took a few months, but I am back to doing most things (knee wise) that I did before cipro, including modified squats. I did go back and get a second one in one knee and I am fine with that. If I have issues again, I would just go get another prolozone injection. But so far, that is all I have had in the last three years.
Second thing is this. Gabapentin can have some serious side effects long term. You might want to try low dose naltrexone. It is such a low dose that it has to be compounded, but because it is SO low dose it has virtually no side effects. pain is one of the things it is used for. Here is an article on it. IT’s worth a shot. If it doesn’t work, at least you tried. If it does, you will deal with far fewer (maybe no) side effects…
L – tell me more about prolozone injections. I too have suffered a torn meniscus in my knee post floxing. I did have a torn meniscus in one knee before being floxed; but then I was able to heal it with physical therapy and rehab – no scoping.
This time I went to physical therapy again – did all the work; harder than before and saw only mild improvement. It has been so bad that it resulted in me modifying my lifestyle some. I don’t want to start down the road of surgery yet; obviously I probably will need it some day; but in my early 50s I sure hope not. I had been contemplating getting arthroscopic surgery in the spring if it wasn’t better; but this sounds like a better alternative.
So, do you think my orthopedist would give me the injection? I do note that he immediately commented on how evil flurorquinolones are when I saw him and how many cases he has dealt with that were caused by that drug. Even better, this is a teaching hospital and he told the resident that he would never prescribe it and felt it should only be available in a hospital setting when life threatening conditions warranted – so at least some in the younger generation of doctors are being instructed as to its evils.
I have an integrated medicine specialist too that I see in a month or so – she might be more likely to prescribe.
This is the best news I have heard in some time and sure hope I can find someone to give me the injection and it works as well for me as it did for you; especially since the left knee is now starting to show similar symptoms to the first. Even better; maybe it would help the problems the fluoroquinolones caused in my neck – because if that was fixed I would be nearly well.
I did find this site associated with John Hopkins Medical Center and it sounds like a great alternative – https://www.wellspringhopkins.com/prolozone-injections/
Thanks – A.Coleman
I am a big fan. I never had ANY issues with my knees until Cipro. Within weeks I was unable to use stairs. I kept hearing a “popping” sound. And it was too painful…especially going downstairs. At the time I had major breathing, vision and olfactory problems, not to mention I was losing weight like crazy, so the knees had to wait. Walking got harder and harder until I was using a cane. (One knee was definitely worse than the other, although both had issues.) Once the other stuff started heading in the right direction, I got an MRI of the really bad one and it confirmed the meniscus was torn in several places. I knew I did not want surgery. First, I have read many reports where those who have surgery fare no better a few years down the road than those who don’t. Also, I just didn’t want something that invasive, not to mention accompanying drugs.
My ND (whom I credit with saving my life and getting me back on the path of healing) suggested the prolozone. I had already read a lot of good things about ozone and I know he had used it on his Lyme and cancer patients and some floxies. It also contains procaine and I was a bit nervous since it is an anesthetic (althought that is not its use here. Here it helps the ozone do its work.) But I decided to go ahead with it. He told me it takes a few months to “work” while it helps the body heal itself naturally. Well, within less time than that I got rid of the cane, and within a few more months I was back to doing pretty much everything, including modified squat. (I cut lunges out altogether.) About a year later I had the other knee done. I ended up needing two injections, spread out over a year. In fact, if any issues come up, I will just go and get another injection. I will not have surgery.
Now I imagine there are some cases where it might not suffice. But for me—for the foreseeable future, it is the only remedy I will use.
I know of two NDs I can go to, to get the injections, and I am aware of one orthopedic surgeon who does them. The difference in price is BIG, so I go to the NDs. But this has become much more common place now, and you should not have trouble finding someone to do it.
Robert, this device helped me. It’s wearable you put it on your leg and it gives you a small electric current. I’ve been using it every day. They say use it at least 3x per day for 30 days for max effect.
https://www.quellrelief.com
I don’t know if you are using a TENS device but I think this is slightly different.
Hi A.Coleman and Henk
I do agree with you and I want to come of these meds ASAP. But in the grand scheme of things I’ve only been on them for a few months. They are keeping me going for a while. I also use the Quell TENS and supplements magnesium etc
I will point out I’m not against mainstream medicine. What happened to me was bad. There was negligence on behalf of the doctors. I was not fully informed of the side effects. I was not advised to stop immediately when I developed paraesthesiae etc BUT without mainstream medicine I would be dead now (I had a very treatment resistant strain of E Coli acute bacterial prostatitis).
So yes I’m angry. And we all have a good reason to be angry with big pharmaceutical our doctors etc but I’m not rejecting medicine just yet.
Btw so you can see how open minded I am not only am I using all the supplements many advise here but I’m also doing acupuncture and have ordered a light therapy device.
Regards to you both
Michael
also.. I would recommend seeing a pain specialist. A month or two ago I was trying to get on top of my pain with amitriptyline and then nortriptyline, however even at relatively high doses I wasn not getting sufficient relief. The pain specialist gave me the following.
Gabapentin 300mg three times per day
nortriptyline 20mg at night
clondine 25micrograms at night
He explained that low doses of all of these neuromodulating meds are much better and more effective than taking a very high dose of one.
So right now I have been able to cut down my meds even further to:
Gabapentin 300mg twice daily
nortriptyline 10mg at night
clonidine 25micrograms at night
I’m getting very little in the way of side effects as these doses are very low and I am taking no opioids or even any paracetamol any more.
Hi Michael,and this is for Robert,as well:Gabapentin is a very risky and unhealthy “medicine” with side effects like cancer and suicide,and quite a few others.
Nortriptyline: a long list of possible adverse reactions! reading this list made me notice that many of these reactions indicat a serieus magnesium defficiency! Take this
“medicine” and there might lay a lot more troubles for you,ahead.
Clonidine: irregular heartbeat,slow heartbeat,and depression are among the adverse reactions.And lots more.
These three “medicines” are probably never tested in combination (well,untill now,with you as a guinea pig :-(( and may cause as of now unknown new adverse reactions.Knowing this,your remark “I am taking no opioids or even any paracetamol any more.”,sounds weird,Paracetamol being the probably safest painkiller,if not overdosed,today.
Codine/Codeïne:respiratory depression,fast, irregular, pounding, or racing heartbeat or pulse,etc.I don’t know if the “natural” codeïn,made from morfin,is used,or a synthetic/chemical A combination of Paracetamol+ Codein,500/40 or 500/50(mg) makes an effective and strong painkiller,stiil with the addictivity risk from the codeïn,but probably much safer,long term,than the combinations of med’s,both of you are using now.
The best advice for both of you might be to try if natural painrelievers like curcumin,CBD oil etc. and/or things like meditation,near-infrared light therapy,magnetic pulser works for you.All these can be safely combines,as far as I know,but curcumin sometimes interacts with certain (synthetic/chemical) “medicines” ;you’ll have to do some research on that.
I’m just saying what worked for me.
In Robert’s case he is already taking a substantial dose of gabapentin without good results. It may be that a pain specialist could help him with a different medication or combination of meds.
Don’t get me wrong I want to be totally off these meds as soon as I can. The Quell device has really helped me also. It works in two ways: first by neuromodulation like classical TENS (gate control theory) secondly by stimulating endorphin production. And you can wear it all day and control it via an app.
This link shows an up to date treatment algorithm for neuropathic pain:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6544553/
Michael,
Hi, I second Henk’s recommendation to consider getting off these meds – especially gabapentin sooner rather than later. Since your body is now using the Mg and B vitamins that you are supplementing have you tried a few days without any of these meds?
First few days of withdrawl might be bad – but having been floxed I find it surprising you are so trusting of all these meds.
I was offered gabapentin for my nerve pain – no nearly forced to take it and I steadfastly refused. I focused on healing using things my body natural needed and used like Mg and B vitamins along with Alpha Lipoic Acid (though I only took that for a about 3 months as taking it as a supplement has its own issues – for another post).
If nothing else I would keep tapering down as you improve and set yourself a deadline when you will lower your dose or remove it altogether. I know the neuropathy is no fun – from personal experience. Good luck.
Have you looked into light therapy? It helps with pain. I am talking about near and far infrared lights.
Another option for treating pain might be a magnetic pulser;I use it all the time (almost on a daily base).You can build one ,yourself (easy and cheap),or buy one. Sota has a great one,which I use,along with one I built,years ago.Both work great but I have only little experience with nerve pains.To be sure,first build one and give it a try.When satisfied,you might want to spend more money and buy one.
Happy Thanksgiving!!🦃🍴
I pray everyone is at least doing better.
And the same Happy Thanksgiving to you.
Hey Joann EGG, it’s been a while! Happy Thanksgiving to you too! Hope you are doing well.
97 Ways to Make Money Online From $7728 per day: http://foosubkeli.tk/7m8if
An inspiring message of hope: a dutch boy and his dream to clean the ocean of plastics,comming true:
Wow !!!
A nice weekend,everybody!
A very interesting video. While watching it I was thinking how great it would be if the $$$$ being wasted by our congressmen and congresswomen trying to unseat our president (here in the US) were channeled into projects like this.
There are actually few things more important than unseating this president. He has rolled back regulations in every area that effect our health, and hastened climate change. He has allowed industrial polluters to pour their waste into our waters. He has rolled back protections/inspections on our food. He has tried to undo California’s regs to limit car exhaust. The list is endless. This president has been a boon for corporate greed and waste.
L. – I TOTALLY agree and as an animal advocate that list is extensive too as to what has been ruined and animals that are on the verge of extinction and some went into extinction due to this admin’s policies regarding caring about anything but money. Health is just one of the many ways this admin has lost it’s mind but the list would fill an encyclopedia at this point….and the total disregard for science is mind bending and that will affect us all when it comes to our personal health.
Me too. I weep at the number of animals who have died/will die under his watch…and making it ok to have “trophy hunting” and all the other abominations. I could go on for days. So much harm to our health, the environment, all living beings, under his “watch.”
Absolutely . The man is an ordure. That’s the worst insult you can use against somebody here in France! He comes across as an ignorant , narcissistic lunatic.
Tres Vrai!
Here’s a great article from Dr. Mercola,about our Endocannabinoid System and Human Health.Some of the info might be very usefull for Floxies! Great info in the comments,as well!
Endocannabinoid System and Human Health:
https://articles.mercola.com/sites/articles/archive/2019/12/01/endocannabinoid-system-role-in-human-health.aspx?cid_source=dnl&cid_medium=email&cid_content=art2HL&cid=20191201Z2&et_cid=DM402966&et_rid=760687923
Very interesting and informative article. I do use CBD at 33 mg per the 1 ml dropper but not on a regular basis. Cost of the product limits how much is used and how often. Would regular use help us floxies?
Don,I think you’re doing right,not to use CBD,or any other cannabinoid on a regular base;this would possibly make your own cannabinoid production lazy.
Henk……….. Regarding lazy system. Now that I look back on my life and the many antibiotics I was prescribed I think that my immune system got lazy. I think that my immune system just stepped back and relied on the antibiotics to fight bacteria I came in contact with. I think that the same is true of viruses too. I could walk through a store and end up with a cold. When I began to shelve the antibiotics and doctors who prescribed them and look toward building my immune system life changed.
Then the floxing symptoms set in.
Don,when you know how important your intestinal bacterial flora is for your immune system,it isn’t hard to imagine what all those antibiotics do with your immune system.Add the lack of vitamines and minerals in our food,and the handiicapt absorption because of that gut flora damage,and the damage to the inner lining of your guts,and a low vit.D level (vit.D is extremely important for the immune system;less sun in winter time is the reason for colds and influenza;those virusses are here,all year around!).
In short:the chemicals and synthetic substances,used for growing our foods and “healing” us,are slowly killing every piece of life on this earth,while wars,the climate hoax and television entertainment are used to substract us from what’s really going on.
You might consider to upper your vit.D level.Forget about the cholesterol hoax,and don’t wash the fats (mainly cholesterol!) from your skin.You NEED them;that cholesterol layer is,where the vitamine D is formed.It takes at least 2 days to form that fatty layer,and after the sun hit it,it takes another 2-3 days for your body to absorb the vit. D through your skin.You can’t fully substitute this by a vit.D supplement.And you need sun,of course;as long as all those airplanes cover the sky with their trails,it’s hard to get enough sunlight for your vit.D production.
This is how civilizations disappear: suicide by “development”.
And another reason for our deteriorating health: the countless bad advices from our “science based” healthcare.Avoid the sun,avoild cholesterole,3 grams of salt a day,maximum,etc.Today another article from Mercola,about the importance of Choline,for our health,including miitochondrial health and cognitive health:
https://articles.mercola.com/sites/articles/archive/2019/12/02/are-you-getting-enough-choline.aspx?cid_source=dnl&cid_medium=email&cid_content=art2HL&cid=20191202Z2&et_cid=DM402967&et_rid=761321981
It seems to me that these sick advices are/where:
* Far from scientific!
* To create as much customers for their industrial poisons as possible.
Real medicines grow in the wild,and are not patentable!
Spot on Henk on all your points.
Henk……….. Just a point about sun exposure and Vitamin D. Arizona summer time is as bad as Northern winters when it comes to getting vitamin D from the sun. Most people live and work under air conditioning so their sun exposure in the summer is very low. For us it is best to supplement too.
As Barbara Arnold says……….. You are spot on with all your points.
Thanks,Don and Barbara,but the fact that both of you agree with my points doesn’t excactly comfort me :-((
Most people,in particular the youngsters,believing everything governments and whitecoats tell them,swallowing their lies like candies and cookies,makes perfectly clear that things have to even get much worse before “The Mass” will,slowly,wake up.And by then,things will be to late,if it isn’t already.
Some of us have lived through the Flower Power period,when youngsters started to question everything the governments told them.What happened? Why are most youngsters,today,so extremely naïve?Do they think,life is just another computer game? Isn’t there any sense of reality left?
It’s a sad world!
Hi Don,while the temperature in NL is,during summer,quite pleasant,where I live the sky is almost always milky-coloured.When there are no clouds or fog coming in from the sea,and the day starts with a bright blue sky,planes put a layer of trails all over the place,and in less than an hour these trails have spread and prevent UV-B from reaching the ground (and us).Even when these trails are just water vapor,and not the chemicals they might be,blocking those,for health and vit.D production so important UV-B rays is a disaster!
After having tried in vain to visit the bobbeck.com website several times,during the last couple of weeks,I found this message on FB:
Erzsebet Jung “The website is not accessible, it says “You do not have permission to view this directory or page.”
Respons:
Bob Beck Protocol
Bob Beck Protocol “Thanks for checking in with us – Our website at http://www.bobbeck.com is undergoing some changes and reorganizing – we promise to get it up and running as soon as everything is squared away. It may be a while, but we’ll do our best to speed things along.”
So,for anyone,interested in info about Bob Beck and his protocol:you’ll have to wait a few weeks before the website is back online.
https://floxeddoc.com/
There is real hope for floxed. I want to tell you the true story of my sister. She is in her early forties, with two children. She took care of two children while working full-time until she could no longer work because she was bed-ridden.
It all started three years ago, when she got a bladder infection. The doctors gave her Levoquin. At first she felt better. But within three weeks after stopping the antibiotic, she felt all her energy drain. She also got intense joint and muscle pains and other problems, like anxiety and panic attacks. Then a month later she had one of her ankle tendons rupture. She had no idea what was going on with her. Then another tendon ruptured. Then she got brain fog, she could not think right, and her memory stopped working.
My wife and I did what we could. At first we took her to the doctor and was referred to specialist. But the doctors had no idea what was going on. They said she was making it up. But we know her. She is a real trooper, she never breaks down, and this whole thing wasn’t like her. She had the surgeries. They gave her more drugs, ibuprofen and steroids. This made her worse, and she went downhill until she finally was bedridden and could not walk at all. They said they had no idea what was going on with her. But they had more drugs for her! One doctor even wanted to make an appointment for her with a psychiatrist!
We had enough and did our own research. We found out about fluoroquinolones, and what these drugs can do to you. The Levoquin had made her sick, months after she took it! Since the doctors did not believe her, she now tried natural things. She changed her diet. She went to an acupuncturist, and took all sorts of herbs and supplements. She took magnesium, and glutathione. They helped some, but she got only a little improvement. She still could not work. She was now also running out of money. Our church prayed for her. Then she came across a story about HomeoCipro on this website.
We contacted the folks at HomeopathicAssociates.com. Dr Mueller and his wife explained how homeopathic treatment and HomeoLevoquin could help her body fix itself. The Muellers had treated hundreds of floxed cases that have completely recovered. She started the treatment over the phone and was better and out of bed within a month. She got to where she could work again. Then after about five months later, she could no longer afford the treatment and decided to stop taking the medicines. She got worse again, within a month she was bedridden again.
She called Dr. Mueller, and he to explained that the treatment had not had time to make the full repairs, that so far, it only had improved her functions, and that with continued treatment she could probably recover. She went back to taking the medicines, and in about a year she completely recovered. She is now off the treatment, back to working full time, and says she feels completely back to normal and can even exercise regularly again with no trouble.
For those who have been diagnosed with Lyme disease, these articles discuss a new treatment that has been described by some as a miracle cure. It is not an antibiotic either, but rather a drug used for treating alcohol abuse. (Who would have thought?)
Some lyme patients that have been dependent on antibiotics for years are reporting full remissions.
https://www.lymedisease.org/disulfiram-kinderlehrer/
https://www.lymedisease.org/disulfiram-kinderlehrer-2/
Daniel,from what I can find,Disulfiram has some very serieus side effects.It is used to “help” alcohol addicts who want to stop drinking alcohol (by making them sick as hell after just a drop of alcohol),but even when not drinking alcohol at all,these serious,and some even dangerous effects are there.For Floxies,I think this “medicine” is a big NO-NO,and I think the use of it should be restricted to what it’s ment for:Sulfur vulcanization of rubber!
By the way:Bob Beck known for his Bob Beck protocol has a better solution for stopping alcohol abuse: the Bio Tuner.The technique,used by this device,is used since the 50’s,in Russia,to treat alcoholics (army officers,etc),and it works by stimulating endorfin production.Works in kicking off other drugs as well (Pete Townsend,from The Who, is a welknown and succesfull user).The Bob Beck Protocol is mentioned as a helpfull way in treating Lyme disease,and what I read is,that it helped many to recover.
Henk…….. Simple question. Why is it that many people who have been floxed gravitate to more drugs for treatment? Drugs are what cause the problem in the first place. Body homeostasis is what is needed and unnatural things like laboratory concocted drugs will NOT allow the body to achieve homeostasis. Natural food and supplements are what is needed.
Yes ….. I understand that we all have been programmed (fed BS) to think that medical science is the answer when back to basics is a much better answer for most of our problems.
People are desperate. It is hard to judge what anyone is going through. For example, when I was first floxed, and again, I would venture to say I was one of the more damaged ones on here…heart, vision, respiratory, connective tissue, ad nauseum. I was getting no sleep. ZERO. And because of either mito damage to the heart muscle or autonomic nervous ustem damage, by breath kept stopping. I would begin to take a breath and it would just cut off…like a door shut. This led me to quite literally gasp for every single breath. I started taking sleeping pills and even WITH the pills, I would get maybe 2 hours before I jolted up, gasping for air. But for months that two hour was the ONLY sleep I got. I weaned myself off as soon a I was able to get 6 hours, and the breathing had somewhat improved.
More recently an integrative MD that I trust very much suggested low dose naltrexone to me to see if perhaps my current condition is cipro-caused auto-immune. This is an off-label use for autoimmune and for pain, and I would recommend it to anyone who would want to try it. It is so low dose it has to be compounded (4.5 mg tops as opposed to say 50mg.) and has virtually no side effects, although it may cause insomnia in some. It didn’t with me, but all you need to do is take melatonin.
Of course there are still drugs I would never want…steroids (which I have now been told by a dozen doctors may be the only thing to help me) and certain antibiotics. Not all drugs are created equal…and not everyone is going through the same thing. If I could avoid all pharmaceutical for the rest of my life, I would. But sometimes it is necessary.
Hi Don,this question is so hard to answer;every person is different.I needed twenty years of poisoning,with one “med” after another,to wake up and realize that the first “medicine” created the need for the second one,which,in turn…etc.Most of the synthetic/chemical “medicines” is derived from natural medicines;Aspirin from the willow tree,Quinolones from the Cinchona family os tree’s and a few bushes.By the way:quinolones ,also the natural ones,cán give quite severe averse reactions,and Salicine isn’t very friendly to the stomach;not all natural medicines are perfectly safe.
The main difference is the fact that many of the natural substances can be neutralized by oxidation,and many bacteria and viruses are very sensitive to oxidation as well.Synthetic/chemical substances,in contrast,are,most of them,very stable molecules that can not be oxidated,but the body produces ROS,anyway,which,by the lack of other particles to react with,turns to our celss and in the process damages DNA,mDNA and mitochondria.
Because most people don’t have a clue to how those modern medicines are related to natural remidies (they were told that natural remedies are quackery),and only a small minority has any knowledge about these herbs,tinctures etc. and know how to use,and prepare them,there’s only one source of medicines available for them; the other possibility,natural remidies,is quackery.
So,even when somebody is floxed,and starts to understand that modern “medicines” have risks,sometimes very serious risks,for them there’s only one possibility to get out of troubles:taking more of these “medicines”,in reality,relying on modern quackery.And many of them start with a medicine,they don’t even need )like Cipro vor a suspected U.T. infection),and end up eating meals of pills,every day (that’s what I’ve seen happening to my mom,who eventually died at the age of 57 years ( I was 22,at the time,and the eldest of her 4 sons).
So,the main reasons are,IMHO,indoctrination,and a lack of knowledge about the alternatives,like herbs,healthy foods,and techniques like (near-) infrared light,and electric energy healing like the Bob Beck protocol,etc.In fact,most people consider electricity as being dangerous and are afraid of even the low voltage,needed for Beck protocol,and they don’t have the faintest idea of the importance of electricity in the human body.E.G.:our central nerve system is electro-chemical,and making an EEG is,in fact,measuring the tiny electric signals,produced by our brains.This electronic method will,in the furture,quite probably be one of the standard ways of treating illnesses and diseases.
Every medicine has side effects, but if you are dealing with true chronic Lyme and are dependent on antibiotics for the rest of your life, then a few months of Disulfiram sounds like abetter alternative to me.
I’m not advocating for it, I just thought it was an interesting development.
“Every medicine has side effects”. Even if this is right,and (for synthetic/chemical “medicines” it probably is, this goes from very mild to dangerous/deadly;nothing new her,for Floxies.But there are only a handfull of tests on humans,which seem to be promising,but,considering the very serious adverse reactions this might prove to be one I would only chosse after having tried most,if not all other possibilities,e.g. the Bob Beck protocol,and combinations of natural antibiotics (+ the Bob Beck Protocol).No sense in going from one bad situation to another bad,or even worse situation.
Anyone know if it’s a good idea to take a supplement in liquid-form (drops) which contains vitamin D3 (cholecalciferol), vitamin K2 (menaquinone-7) and vitamin A (palmitate)? My concern lies primarily with the vitamin A palmitate as I’ve heard it might be health-damaging to the kidneys and other organs? Is this valid? Also, vitamin K2 has the letters ‘quin’ in it which worries me since the word fluoroquinolones contains ‘quin’ as well. Is this form of K2 and A something to be worried about?
My vitamin D levels came back low so I’m trying to supplement and I figured a supplement with K2 would be beneficial for better absorption but I’m worried about it making things worse because of the aforementioned forms of the vitamins, palmitate and menaquinone-7.
Here’s some additional information…
Each Serving (0.25 mL) Contains:
Vitamin A (palmitate) – 151 mcg RAE/EAR – 500 IU
Vitamin D3 (cholecalciferol) – 25 mcg – 1000 IU
Vitamin K2 (menaquinone-7) – 50 mcg
Non-medicinal Ingredients:
Medium chain triglycerides, olive oil, flaxseed oil, tocopherols, vanilla cream flavour
This product does not contain artificial preservatives, colour or sweeteners; corn, dairy, starch, gluten, wheat or yeast.
Recommended dose is 1 serving (0.25 mL) daily.
Should I trust this supplement or better to avoid?
I hate when they add extra stuff. Adding K to D makes sense. Not sure why they add the A. Having said that, that is a very small amount. And that is the correct form of K that you want. Don’t worry about that. Not related to the quin in fluoroquinolone
L,
I’m unhappy about this as well. I went to the health store looking for just D3/K2 combo and was unable to find one besides this one. I mean, there was a couple other options as far as the combo is concerned but they all contained small amounts of D3 compared to this one. It’s a great supplement, I just wish it didn’t have the A in it since as Henk mentioned, it’s likely from an animal source and not vegetable source. Seems suspect that they don’t have any in-between options. I don’t want to buy them on their own since they’re too expensive that way and again, D3 is just too low. I guess it should be fine given that the amounts aren’t high. Would you up the dose in winter months beyond what’s recommended on the bottle or just stick to 0.25 mL? From past research, I remember reading that going above 1000 IUs is perfectly safe.
What do you think?
I would up the dose. My doctor had me on 1,000 mg for over a year. I took myself down to 500 and have stayed on that now for several years. When I had that test I mentioned before, my D was I a good range. (not the government recommended range, but the range preferred by NDs and integrative doctors which is much higher) The one I use now is by Life extension (has a bit of iodine in it which is fine.) And it has a few different kinds of K1 and K2
Hi Lukasz.like L. wrote:no reason to worry about this supplement.I use the same forms of D3 and K2,for quite a while,now.The D3,same form and dose,is what I use during the dark season,here,in NL (over half of the year).I use the K2,same form,double your dose (100mcg),for about a year.Did a search on the vit.A (I only use the fully natural form :-)) and found that a dose with health risk is about 300 x higher than the dose in your supp.
D3 and A are fat-soluble oils;those can accumulate when used over an extended time,in high doses (thats why I prefer betacarotenes from vegetable sources over the palminate form (animal sources)).
Only little worry I have is the flaxseed oil.The way it’s made (extreme pressure,chemical processes etc.) makes it a no-no for me;where possible,I avoid it.And the first ever research on it’s influence on (human) health has shown that it promotes Alzheimer disease in rats; the research in humans is an “in the wild” research,and we are the guinea pigs.But in the very small dose in your supp it won’t harm,I guess.
Henk,
Thanks for the input. I gather your D3 and K2 come in separate bottles? I’m a little concerned about the A palmitate being possibly derived from animal sources. I’m going to call up the company to confirm if it is in fact derived from an animal source. I’m going to look around for vitamin A beta-Carotene on its own as it seems a safer option and if I find one, I’ll have to split up the D3 and K2 as well. I’m sure the costs will be significantly higher than using the present one but it’s peace of mind.
Thanks for the info re: the flaxseed oil. That’s a bit worrisome. I also use about 1 teaspoon of organic milled golden flax seed (cold milled, 100% raw, GF and non-GMO) in my shakes. Should I be worried about it or is this one fine to use since it’s cold milled? If you were in my shoes, would you continue with this D3/K2/A combo or opt for individual bottles? Also, do you think that upping the dose to 0.50 mL in a week or so is wise or is it better to stick to the recommended dosage of 0.25 mL?
Saff, I’m hoping you still check here? You told me you reacted to Lidocaine and the relapse lasted 3 months?? It has been 5 weeks for me and I seem to still be reacting? My skin is reacting the most with small fiber neuropathy including burning and “itching”!! I continue to break out in very small red itchy bumps especially by the two spots that were cut out. Was your relapse pretty bad and did it completely go away??? I’m worrying about this symptom not leaving?? The lidocaine actually gave me some dermatitis by the cut out spots too and both my Derma and Primary Doc want to give me steroid cream which I refused. I just don’t know what to do for my itchy red bumps and skin??? One of my Docs suggested Claritin to combat possible allergic reaction? Have not tried it yet? Any ideas, suggestions from anyone is welcome!! Do you think this reaction will settle down in time??? I am 2.5 years out and was doing pretty well until this mess!! All from 2 “tiny” shots of Lidocaine!! Geez!!!! Just want this to pass!!!!
Hi Dee,there are several natural,and safe remedies you might try.The first thing I would try is Plantago.It grows almost everywhere,is perfectly safe (you can even eat it,although I don’t like the taste,but I use it when juicing).You can sometimes buy it in a salve (Plantago salve).It works extremely well for e.g. mosquito bites,and nettle irritation,and is known to help when skin problems like little wounds don’t heal well.
Çamomile (tea,or in salve form) might help as well,is easy to find and you can drink the part you don’t use on your skin.
Tea Tree oil could also help (works well on mosquito bites,and as a desinfectant for small wounds),but before using it on larger surfaces,you better do a test on a smll plece on arm or leg to test if you’re not allergic to it.I don’t know if there’s any allergy,known to excist for TT oil,but just to be sure….
About Claritin:seems to me that something,taken orally,for skin problems,is a bad idea.Why would you want to use something that spreads through your whole body,for a skin problem with a limited surface? It’s way better to treat such a problem with topical applied remedies (imho).
Hey Dee, I don’t think there would be any harm in taking the Claritin. I have taken Allegra, Benedryl, and another antihistamine numerous time since being floxed. The thing is, I am not sure you can call it an “allergic reaction” any more than you can call being floxed an “allergic reaction. That said, I don’t think there would be much harm in trying it, on the off chance it is. Have you tried colloidal silver ointment? (Sovereign Silver is a reputable brand)
Henk, the idea behind the Claritin was if I was having an allergic reaction to the lidocaine hence causing the skin breakouts, itching etc. I was having none of these issues prior to the lidocaine…..I have not taken it as of yet but from what I know most floxies do ok on a anti histamine and don’t have problems??? Obviously my body was extremely sensitive to the lidocaine but after 5 weeks I was wondering now if it triggered some kind of Floxie relapse??? Very strange reaction to small amount of lidocaine!!?? I sure hope it will ease up! Thanks for your suggestions on the topical treatments!
Dee I have had a total relapse to a Caine over two years ago with neuropathy, tendon and all my other floxed problems returning worse than it ever was before. Need eye surgery but afraid of Caine’s.I would tell you it lasted over 6 months but just went over my notes to my NP and was really subsiding by month 3.
I just had to have lidocaine for a bladder scope and do feel some burning and tendon pain but not as bad as last time so maybe because I am further out. This also made me look at all my notes to my NP over the last four years with the same relapse falling apart reactions, crying and wanting to die with no reason. So it’s actually caused me to laugh. I can not prove nor can any of us that a Caine or anything else is causing reactions. We just don’t know. At the same time of the eye drops I had felt so much better and I was really over doing it and stressed to the ends of the earth over a situation. I can honestly say those two things do cause us problems.
Now about you skin reactions. I did have them at the beginning of my floxing and Claritin did help me and does not hurt me at all. I still use it when what I feel what is my neuropathy burning acts up and it helps. This has made me wonder if I really have burning neuropathy or is the body burning a CNS reaction as the antihistamines help with our histamine!?
So I do work with a NP and we do everything natural we can but she also recommends antihistamines when needed.
If you reread Lisa’s recovery story I do believe they helped her.
The Caine’s are so questionable as are sometimes needed and I have only seen a very few of us that have reacted to them. Most floxies have no problems with Caine’s.
So my opinion for what it is worth is try the Claritin.
Dee,what makes me wonder is the fact that those side effects are supposed to last for a short time,from a few hours to,maybe,a few days?I think that they will go away,without any treatment,but ,like litle wounds,musquito bites and other small skin damage,things just take much longer than before we were floxed.When the annoyance is not to bad,I think that patience,maybe a little help from one or more of the natural remiedies,is the best thing to do.
Nicole, thank you for your info about your reaction!! I am super happy to hear that it subsided after 3 months!! One other guy on this site said he had a reaction too that subsided in about 3 months so I will keep my fingers crossed!! I think I will try a child Claritin to make sure I seem ok with it and I “hope” it might settle some of this burning and itching down some!!!! You do give me some hope!! Thank you!!!! Sorry to hear you struggled with it back then but it sounds like you might be getting less sensitive as time goes on??? That would be a plus too!!!! I was hoping that are sensitivities calm down with time???🙏🏻🙏🏻
You all are most likely right that the lidocaine is probably past the point of giving me a reaction now. I do think it might have “triggered” some FQ symptoms so I’m thinking I am having a relapse???? “If” that is the case I hope it will be short lived!!! I will try the Claritin (a children’s dose) to see how I do with it? Hopefully it might calm down the itching??? These symptoms only came on after the lidocaine but like you it seems crazy I would still be having a reaction to it after 5 weeks!?? It must have triggered relapse symptoms???? Sooooooo frustrating all this is!!!!