Floxie Hope

Floxie.Hope.1800.72.dpi

This site is to give HOPE to those who are suffering from Fluoroquinolone Toxicity Syndrome as a result of being poisoned by fluoroquinolone antibiotics – Cipro, Levaquin, Avelox, Floxin, etc.  It contains stories of healing.

Cipro, Levaquin, Avelox and all other fluoroquinolones are dangerous drugs that can have devastating effects that cumulatively I’ll refer to as Fluoroquinolone Toxicity Syndrome or Floxing.  Fluoroquinolone Toxicity Syndrome/Floxing includes damage to connective tissue (tendons, ligaments, cartilage, fascia, etc.) throughout the body, damage to the nervous systems (central, peripheral and autonomic), and more. The damage done by fluoroquinolone antibiotics can destroy a person’s quality of life or even kill them. Certainly, there is a time and a place for drugs with dangerous side effects. If you find yourself in a septic shock induced coma, fluoroquinolones may save your life. Unfortunately, these drugs are not being reserved for life or death situations. People are being prescribed them for urinary tract infections, suspected prostate infections, upper respiratory infections, as a prophylactic for travelers’ diarrhea, ear infections, pink eye, etc. Thousands of people have suffered needlessly from the devastating effects of fluoroquinolone antibiotics, when another, safer antibiotic could have, and should have, been used.

The damage done by fluoroquinolones is largely unacknowledged by the medical establishment and an accurate diagnosis, compensation and relief are difficult to come by. There is no known cure for Fluoroquinolone Toxicity Syndrome/Floxing.  However, many people continue to LIVE after being poisoned by fluroquinolones.  They find healing, recovery, perseverance, compassion and hope.  These are their stories.

This site is meant to give hope for healing to those who are adversely effected by fluoroquinolones.  It is no way meant to disregard the pain of those who are chronically suffering from the horrifying effects of Cipro, Levaquin, Avelox or the other fluoroquinolones.  There are people who don’t recover.  Their stories are real and they matter.  There are also people who are able to recover and I share their stories with the hope that they inspire others, or at least give hope that recovery is possible.

Here is a New York Times article about the dangers of fluoroquinolone antibiotics – http://well.blogs.nytimes.com/2012/09/10/popular-antibiotics-may-carry-serious-side-effects/?_r=0 – more news stories, research papers and other resources can be found on the “Links and Resources” page.

Here is a Facebook group that is a great resource for those going through Fluoroquinolone Toxicity – https://www.facebook.com/groups/floxies/

Featured post – I’m floxed. Now what?

The Fluoroquinolone Toxicity Solution Ebook has helped many Floxies to recover, including DanielCindy and Ruth.  As a bonus, you will also receive The Floxie Food Guide – a book of diet guidelines to help you through fluoroquinolone toxicity:

flu tox get help you need banner click lisa

 

 

 

18,653 thoughts on “Floxie Hope

  1. Ronna July 14, 2018 at 4:11 am Reply

    Daniela, did you eat big meals or a lot of food each day to help gain weight?

    • Daniela July 14, 2018 at 7:45 am Reply

      Not big meals, just those things: avocado, ripe bananas, nut butters, oily fish, sweet potato, put olive oil on everything. Drink coconut water. Turmeric tea with honey. Remember people lose weight by eating just meat and veg.
      I developed food sensitivities to wheat, dairy, chickpeas. You can look into that, too.

      • Don M July 14, 2018 at 9:07 am Reply

        I spent/wasted 2K on a “specialist” in the “wellness” chiropractic field who used holistic medicines. For my money I got the advice “eat often’. Eat small amounts several times a day. I got a list of “NO” foods as well as a list of “GOOD” foods.
        Your comments are right on.

  2. Ronna July 14, 2018 at 9:22 am Reply

    What are the no foods? I want to be sure I’m not eating them. Thanks for the advice😊

    • Daniela July 14, 2018 at 9:57 am Reply

      Maybe it is the SCD diet list of legal/illegal foods.
      http://www.breakingtheviciouscycle.info/legal/listing/

      Don, I once looked into a naturopath who makes you pay that much to do Deepak Chopra’s free questionnaire.

    • Don M July 14, 2018 at 10:26 am Reply

      I was told that the “NO” foods are the night shade family. White potatoes, tomatoes, eggplant, peppers, corn, peanuts. Prepared juices too. I am sure that if you Google night shades you can find a full list of them. “Eliminate (gluten) things made with flour “. Or use gluten free flours. Minimize sugar intake.

      “Eat every 3 hours while awake”. “Make your meals rich in protein”. “Eat healthy fats, nuts and seeds. I snack on Sunflower seeds, mixed nuts, almonds. Eliminate as much as possible “processed “foods. The items mentioned above (avocado, ripe bananas, nut butters, oily fish, sweet potato, put olive oil on everything) sound like good advice too. I try to get at least 3 table spoons of “Extra Virgin” Coconut Oil every day.
      Here in the US there is a wild caught imported sardine (Season brand) available at Costco that is packed in Olive Oil.

      My day starts with 2 eggs lightly poached in a small pan coated with Coconut Oil spray. NO FANCY NONSTICK PANS!!!! Very low heat and just get the whites to turn solid and get white. Chop up in a dish with 3 table spoons of Coconut Oil, 2 table spoons of “Extra Virgin” Olive Oil, salt and “PLENTY” of pepper.
      Turmeric is said to be “oil soluble”. It needs to be taken with oil (Olive oil is best) to be best absorbed. Hence the heavy use of the 2 oils. Bioperine (commonly known as black pepper) is said to also increase the absorbability of Turmeric. Hence the liberal amount of pepper in the eggs.
      Then drink your Turmeric tea.

      I hope this gives you some ideas on a variety of foods that are appetizing.

      • Daniela July 14, 2018 at 5:32 pm Reply

        The only problem with the Season brand sardines that are commonly sold is that they are skinless and boneless. But there are other brands from Morocco that are in olive oil.

  3. Daniela July 14, 2018 at 10:00 am Reply

    Don, Still trying to help the cat who got better on colloidal silver but still shakes its head and scratches a bit. Not really anything in its ears.
    Maybe it’s allergies.

    Reading about phage therapy. It’s non-antibiotic and tailored to each person’s bacterial problem. It has been developed at an institute in Georgia (the central asian republic)

    • Don M July 14, 2018 at 10:36 am Reply

      Hmmm. I can’t be of much help other than the Colloidal Silver. My cat likes to scratch a lot but it never seems to be around his ears.
      Has any vet ever given a Fluoroquinolone antibitic to your cat? Vets seem to think that the affect on animals is not the same as humans. My opinion here………. clueless ignorance.
      I’ll have to do some reading on phage therapy.

      • Daniela July 14, 2018 at 2:47 pm Reply

        The vets offer a standard mix of fq or neomycin/steroid/antifungal. I think it’s very lazy if you have paid for testing to determine if there are mites or yeast. They all say the cat will feel better in a few days to a week, but that’s the steroid!

      • Daniela July 15, 2018 at 11:28 am Reply

        The colloidal silver we got has potassium alginate (a seaweed thickener) and edta (stops metals from binding). They all seem to have that added. Do you think that’s a problem? Also it says it’s 10 ppm.

        • Henk Noordhuizen July 15, 2018 at 11:55 am

          I think you better look for a pure colloidal/ionic silver.Wiki on potassium alginate: <> So,it’s a salt and will bind the silver,making it useless.

          WebMD on EDTA:<> So,it will probably bind with the silver particles,and,again,rendering them useless.

          I wasn’t even aware that these combinations excisted.Two added substances,both probably rendering the silver particles useless and maybe even causing a risk for argyria.Better not use this but try to find a pure silver colloïdal/ionic water.Another possibility is to make your own,with the Sota Silver Pulser (I use this device,both for coll/ionic siver and for pulsing my blood),or one of the other devices on the market.

        • Daniela July 15, 2018 at 12:04 pm

          Thanks, Henk. I don’t know why they added those things. It says pure colloidal silver, but those they were in the tiny type on the bottle 😦

          We really have to do everything on our own!

        • Don M July 15, 2018 at 12:28 pm

          Read this article and you would go no where near Colloidal Silver.
          http://eco-friendly-green-products.com/dangers-colloidal-silver/
          If it were anywhere near true how come silver has been around since before the birth of Christ? How come it has been used by many civilizations throughout history? How come medical science is beginning to find out today that adding silver along with other antibiotics makes them effective again? How come Brigham Young University tested and published a paper on the fact that Colloidal Silver was active against over 600 different pathogens? With all the “plus” information out there today about Colloidal Silver and it’s many uses it appears to me that this article is very, very, very misleading.

          Regarding the EDTA. I am totally puzzled at why it would be mixed into Colloidal Silver.
          Here is a description of it from Google: “How does Edta work? EDTA is a chemical that binds and holds on to (chelates) minerals and metals such as chromium, iron, lead, mercury, copper, aluminum, nickel, zinc, calcium, cobalt, manganese, and magnesium. When they are bound, they can’t have any effects on the body and they are removed from the body”.
          Remember………. If you look into it silver is a mineral as well as a metal. Just like magnesium is a mineral as well as a metal.
          If EDTA binds up all these metals so that they can be eliminated and have no affect on the body what purpose could Colloidal Silver provide if this were added to it?

          I just read Henk’s reply to you and agree.
          As Henk said and I agree. My impression is that adding EDTA to 10 PPM silver means that for you it is worthless and to the company it is a safe and worthless product to sell.

          This product appears to be kind of like the article I refer to above.
          Both BS.

        • Henk Noordhuizen July 18, 2018 at 9:05 am

          Hi Don,thanks for posting this link: http://eco-friendly-green-products.com/dangers-colloidal-silver/ The best laugh I had in weeks! This lady,Mary without a familyname,starts with writing a “critical” article about Coll. Silver,telling us how dangerous it is.She even gives us a “source”: a link that doesn’t bring me to the supposed scientific article but to a biography of an MD. The article she mis-linked is on the Mayo Clinic website, and not a high quality scientific paper. I’ll post that link later.

          Mary’s article is just copy of the article of the Mayo website,and her try to frighten us with argyria is almost funny;because there are so few people who turned blue she placed a pic of one man and two women. Or wait: actually those two women are one and the same! So,in fact there are only two people she knows of,with argyria,both of them having used silver compound which are known to cause argyria. There circulates another pic,of a man who worked his whole life in a silver mine;she missed that one.

          Then she goes on,telling us: “But there are far safer and more effective products other than colloidal silver”. Of course,now she will give us a list of scientificly proven effective and safe alternatives. Or will she? Here is what she says:

          “Cancer Fighting: Both turmeric extract and green tea extract are said to be powerful chemotherapeutic agents for cancer. In fact, it is said that these herbs can cause cancer cells to self-destruct. Additionally, turmeric and green tea extract are powerful anti-inflammatories.”

          “Bacteria Fighting: Olive leaf extract and oregano oil have been said to effectively destroy pathogenic bacteria, fungus’s, viruses and protozoa such as malaria. The herbs are also known to help treat infections like AIDS.”

          Are said to be??? It is said??? Have been said??? Known to help???? Doesn’t this sound scientific to you?

          Half of the alternatives she lists link to Amazon,and are produced by Herb Pharm. Conflict of interest,maybe??

          In now way I can take this lady seriously. She wrote this article in april 2015,and updated in januari 2018. And still “doesn’t know” about an ocean of articles and documentation about the safety and effectivety of Colloidal and Ionic Silver,and the fact that metals and minearls differ extremely on toxicity. Silver and gold are not nearly ast toxic as lead and mercury.In fact the body NEEDS several of these,in trace amounts (iron,copper,magnesium,chromium etc).

          I’ve used Coll./Ionic Silver for years,orally,and still use it as a desinfectant,topically. Not a trace of Smurf-colour untill now! Oned did a little experiment with a left-over bit. I desinfected two clean glasses with alcohol,poured an equal bit of milk from a freshly opended bottle in both of them and added the bit of coll. silverwater in one of the glasses.Then I put both glasses near a window,directly in the sun,and “shoulder to shoulder”.

          After a few days the glass with pure milk started to develop “colourfull things” ,and a nasty smell.Nothing happened in the other glass.After 1 week The pure milk housed several,untill then unknown species,some of them possibly extraterrestrial. Still nothing changed in the “silver”-milk.I threw the extremely rotten and stinky melk away,after making some pics of the result,both glasses side by side.After another few days I ended my experiment.By the there were littje,rubber-like “balls” in the still smelling fresh milk. They had some resemblance with kefir (the water kefir looks like half transparant little “rubber” balls,too.Other little “experiments” with Coll. Silver showed the same effect; to much to tell,here.

          Thanks,again,for the link,Don;at least this lady brought me a good laugh,and that’s a very effective and safe medicine,and dirt cheap as well!

        • Don M July 18, 2018 at 12:15 pm

          Henk…….. I wasn’t quite as amused as you say you were. I was more like disgusted with the idiot woman. There are people who will land on that web site and believe what she has to say.

          My daughter had a case of Thrush. It was deep in her throat so the doctor gave her something that she had to swallow to get to the problem. It was toxic and caused her more problems. She has ended up with nearly untreatable GERD. And guess what the doctor has given her for the GERD. Yup….. Proton pumps to lower her stomach acid.

          I took her a quart of Colloidal Silver and said drink it. It would go to the source of the Thrush and not be toxic. She went online and did her research (wouldn’t listen to me) and came up with the Argyria “possibility”. She never touched what I took her and has been sick ever since.
          About the “Blue Man”. What people do not understand is what he was doing with the Colloidal Silver to get himself blue. First he was adding salts to make it stronger. I have read he was trying to make it well over 100 PPM. Next he was drinking as much as a pint a day of it. Third he was washing his face with the silver mix because he had Acne. All that ever seems to be out there is that the “Blue Man” acquired Argyria. Well daaaa.

          I have been drinking Colloidal Silver (making it myself to about 15 PPM) for about 8 years and I am NOT blue yet.

        • Henk Noordhuizen July 18, 2018 at 1:45 pm

          Well,Don,to be stupid is not a choice,so,I try to not get angry about her stupidity. And although I read a lot about CS, I never landed on her website;most people will not read that nonsense.

          I can understand about your disapointment ,your daughter not daring to use your CS after she read about the (very small) chance of getting argyria.In the end it was het choice.I suppose she knew of you using CS for quite a long time without changing into a Smurf,and most websites she read probably ensured her that te risk of getting argyria from properly made CS was very,very small,but despite of that all she descided to not use it. I think it’s best to respect and accept her choice and get over it.

          She is using PPI’s now,like I did,and it got me into a hospital after about 15 years of use (2 times in 2 weeks,with very hefty cardiac arrythmia;had a long list of health problems at that time thanks to PPI).I think that,today,it’s way more important to help her understand the risks of PPI instead of spending your energy on things from the past;you can’t turn back time but you might be able to help her stop the PPI before a new disaster strikes her.

          Paul Karason might be the most wellknown case of agyria,and he explaines on television many time which mistakes he made.He also declared that he still used CS (but without the salt added) and still believed in the health properties of it.He is the man on the pic Mary’s article.

          The woman is Rosemary Jacobs;she used CS nosedrops.Here,as well,the CS is not the problem but the formula of the nasal drops,CSP,or:Colloïdal Silver Proteïnes. After all this years she still doesn’t understand the difference between CS and CSP:

          https://rosemaryjacobs.com/rose1.html

          She makes the mistake of mixing up CS and CSP ( CS,bound to a proteïne) over and over again,which is,of course,very stupid. But I feel sad for her when I read how argyria ruined her life. I hope that people who visit her website understand that CS and CSP are not the same; it’s the proteïnes in CSP that cause the argyria. A wellknown fact,except for Rosemary Jacobs.

        • Henk Noordhuizen July 18, 2018 at 9:10 am

          Here’s the article Mary tried to link to (but failed):

          https://www.mayoclinic.org/healthy-lifestyle/consumer-health/expert-answers/colloidal-silver/faq-20058061

          Expert? Don’t think so.No sources,no documentation. It’s just his personal opinion on colloïdal silver.

        • Don M July 15, 2018 at 12:35 pm

          Just an added point. Floxicies are said to be low on magnesium and part of our problem. If that is so why on earth would one want to have anything to do with EDTA if it bound up the magnesium and it was eliminated?
          Daniela’s comment “We really have to do everything on our own!” is so true.

  4. Ronna July 14, 2018 at 12:23 pm Reply

    Thanks, I live near a Costco, will try the sardines. Daniela, did your hunger come back suddenly or slowly, how did you know it was back? My stomach is starting to growl again, before no noise at all.

    • Daniela July 14, 2018 at 2:49 pm Reply

      Yes, my hunger came back but it took a while. Try those food I suggested (forgot the coconut oil, thank you Don) because they are really rich in all the nutrients and vitamins you need.
      My impression is that you’re going to be okay 🙂

  5. Ronna July 15, 2018 at 6:37 am Reply

    Thanks a lot, that is comforting to me. Did you also have head pressure? When does that pass or get better, anyone know?

    • Daniela July 15, 2018 at 7:06 am Reply

      My head pressure went away. It’s been so many years ago I don’t remember when. Remember caffeine withdrawal lasts a few weeks, so you might be going through that.

  6. Ronna July 15, 2018 at 7:58 am Reply

    Daniela how long have you been going through all this and how are you now?

    • Daniela July 15, 2018 at 9:13 am Reply

      Ronna, My story is not yours. Anxiety is a known fq adverse effect. But it does show you have a lot of energy in you, so while extremely unpleasant it’s not such a bad sign!

      • Daniela July 16, 2018 at 1:31 pm Reply

        “unpleasant” should be more like “hellish”
        It makes any other problem seem a million times worse.

  7. Joanne. July 15, 2018 at 4:52 pm Reply

    Hi Everyone,
    I posted back about a seaweed supplement that was really helping me, but it fizzled out just like all the others! I’ve taken supplements that help me so much for a while and then they either stop working or sometimes they start making me worse.
    Today I started a new supplement, and as usual it’s helping me really Good, but I don’t know if it’s gonna fizzle out like all the rest!
    Anyhow, I started drinking Essiac Tea.It’s known for curing cancer, but it also surprisingly helped other ailments that the patients had. For example diabetes, thyroid diseases, eczema ect. so I thought I’d give it a try, and I’ll post back to let you’s know how it’s going.
    Here’s a couple sites if anyone’s interested. Also, watch the video it’s very interesting.
    Rene Caisse & The History of Essiac Tea – Essiac Facts
    http://essiacfacts.com/rene-caisse/
    And here are some testimonies from people who have used it
    tea.com/essiac-tea-testimonials.html#stage4esophagealcancer

  8. Dee July 15, 2018 at 11:15 pm Reply

    Ronna, I responded to and earlier post to answer a comment of yours. See “older posts”. Dee

    • Dee July 16, 2018 at 7:02 am Reply

      Joanne, are you the same “Joanne G” who wrote her recovery story? If so…..do you still use the vitamin and omega patches? You wrote that they really helped you with your symptoms, especially dizziness. Did you experience tinnitus?

      • Joanne. July 16, 2018 at 6:16 pm Reply

        Hi Dee,
        Yea, I’m the same joanneg. I don’t know how the g got dropped.
        Anyhow, the only supplement I use every day is magnesium, which is the only supplement that gives me steady, reliable help with all my symptoms. I still have very bearable issues, but I’m constantly trying new supplements to see if they will help them.
        So, occasionally I’ll use the patches, but I don’t notice much anymore. But the Omega patch really helped me sooo much when my head was full of pressure, and that soupy dizziness, but I hardly get that
        anymore-sometimes a little when flared up but nothing like before. But yea they helped a lot with that. I would put the patch right on the base of my neck where your head and neck meet. The first omega patch I put on my neck was crazy feeling it felt like liquid moving and pressure shifting then it felt as someone was just draining liquid out of my head!! That was with first few patches then it came to a standstill, but those patches are what started the relief in my head.
        Right now, I’m trying the Essiac Tea and Chloroxygen both are helping me pretty good. The Chloroxygen immediately takes the pressure or stoned feeling out of my eyes and clears up the muddled, foggy brain feeling. But I don’t know if they are just gonna fizzle out like the others. We’ll see. I’ll post to let everyone know

      • Joanne. July 16, 2018 at 6:27 pm Reply

        Also, I did have tinnitus really bad. It’s pretty much gone now. It only comes back if something flares me up, but even then it’s nowhere near as bad as it was. I’m not sure, but i think it went slowly along with all the crazy brain pressure and soupy dizziness idk?

        • Dee July 16, 2018 at 8:41 pm

          Joanne, thanks for getting back to me! I am glad to hear that your symptoms are bearable! Do you feel mostly recovered now?? I reread your story and I can’t believe you were on all those meds for 2 months!! Did you take the cipro for 2 months? Your recovery is amazing considering how many meds you took!!! Congrats on healing after all that. You must be one strong lady to go through all of that for a little over 2 years!! I am almost 13 months out and “mostly” recovered. I still wake up early at the same time every morning with anxiety and pulsating (throbbing) tinnitus. It had gotten quieter so I hope it will disappear!!! I have leaky gut that gets real busy early in the morning! Let’s just say I need to be near a bathroom! I have other symptoms that have gotten much better like achy stiff ankles and knees that cycle now and then. Also the brain fog. When did you feel your brain fog and tinnitus finally went away for the most part???? I pray that most of my remaining symptoms will go away in the next few months. I am 62 so kind of figure it might take me a little longer to recover?? I just hope to get there and out this behind me!!! I was going to try the Probiotic you recommend VSL 3?? I take 600-700 mgs of angstrom mag everyday.

        • Joanne. July 17, 2018 at 1:49 pm

          Hi Dee,
          Yea, if you have any stomach issues I would definitely try the VSL. I tried many probiotics, but that is the only one that works amazing for me.
          If you are only 13 months out and feel “mostly” recovered that is absolutely good news! At 13 months out I was fighting for my life!! I thought I was going to every day. I just didn’t think anybody could survive what I was going through!
          Anyhow, I thank God I did.
          But I’m definitely not fully recovered because if I quit my magnesium, i get really bad. So everything is bearable so long as I take the magnesium.
          Also, I believe if my tinnitus went away yours will too. It may take a while, but just knowing it can go away helps bear it.
          To tell you the truth, when supplements would take certain symptoms away it gave me so much hope that these issues were not permanent, and hope is what I hung on to cuz everything else was so scary.
          Anyhow, I’m not sure when the tinnitus stopped. I know supplements would help it at about 2 years, and I think about 3 years out it stayed gone with just magnesium.

  9. Daniela July 16, 2018 at 9:00 am Reply

    We put 2-3 drops of rubbing alcohol in the cat’s ears and the next morning the cat stopped scratching and was very active and alert. Kind of afraid to continue because it’s so strong, but it is a human remedy for swimmer’s ears. I suggested it to counteract water in the fake silver drops but the result was dramatic. (There was never any redness or discharge in the ear, just scratching and shaking.)

    It’s so hard to trust doctors and but also so hard to trust products.

    • Don M July 16, 2018 at 12:31 pm Reply

      For what its worth………… I have a problem with itchy ears and I told my doctor that I would dip a Q tip into hydrogen peroxide and rub it around in them, but be very careful not to get very far into the ear canal.. He said better to use rubbing alcohol.

      I also lay on my side and uses a dropper to fill the ear with hydrogen peroxide and wait until it stops fizzing. Then turn and drain it. Turn over and do the same with the other ear. Dr. Mercola says that for some reason doing this with it (the hydrogen peroxide) will help to ward off or eliminate the flu.
      Vets are trained in a way similar to doctors and they only know what they are being taught about modern medicine and its arsenal of antibiotics.

      • Daniela July 16, 2018 at 1:31 pm Reply

        Your comment is worth a lot! Thanks 🙂

  10. MJ July 17, 2018 at 11:03 am Reply

    Hi all,

    Short summary:

    – Levaquin reaction in 2009
    – Have made some improvements over the years, but nervous system still needs repair
    – Current doctor is going down the “damaged GABA receptors” road, which is in line with the proven research out there and feels correct to me (or is at least PART of the problem)
    – However, I am not sure if his approach is correct. He thinks it will help if I “flood” my system with GABA by way of supplementation and a pharma drug.

    Has anyone tried increasing GABA by any method? Taking GABA supplements? My doctor says that even though the receptors are damaged, having more GABA *could* increase the amount that successfully interacts with the receptors and could help me feel better.

    I’m just not sure. I do believe that dealing with the GABA receptors is correct, I am just not sure if this is a wise approach. If the receptors are damaged and I flood my system with GABA I imagine that it could potentially backfire and make me feel worse? Could perhaps even damage them MORE? If receptors are damaged, is it truly wise to flood your system with GABA?

    Does anyone have any experience/knowledge about GABA and GABA receprtors? To be honest, researching GABA has been overwhelming and I am finding myself very confused about the best approach to take. Any insight, or links to good articles/videos on the subject, would be so very appreciated.

    The pharma drug he suggested was Neurontin (aka Gabapentin), which he said would definitely work to increase GABA (while a supplement may not). I told him I’d need to do a lot of research before taking it. Has anyone taken this drug?

    Thanks all,
    MJ

    • Don M July 17, 2018 at 11:58 am Reply

      Hi there. I’ll be watching your replies because I have the same questions about GBA. Personally I am not in favor of the prescription stuff. Prescription stuff is how we got here in the first place. The supplement route may be OK though. So supplements might not be as effective as the prescription “says the doctor”? It appears that in everything we try that going slow with it is the right way.

      • MJ July 17, 2018 at 2:15 pm Reply

        Hi Don. My doctor said that GABA supplements likely will not work because they do not cross the blood-brain barrier in most cases. The research I’ve done on my own seems to indicate that he is correct. But he agreed that I should go slow and try the supplements first — even though I am even scared to try the supplement (!).

        I really think he is on the right track, focusing on GABA receptors. The question is what to actually do with them. I think the approach here could either make me or break me. I just have a sense that flooding my body with GABA may do more harm than good.

        • Bob July 17, 2018 at 4:50 pm

          I had no problem with GABA.

    • Dee July 17, 2018 at 12:06 pm Reply

      MJ. This is just FYI with an experience I had about 3 months out after being floxed. I wasn’t sleeping well and had horrible insomnia and anxiety. I took a half mg of melatonin to help me sleep. This is a pretty low dose of melatonin. I immediately started spinning like a top and my heart rate and anxiety went through the roof. I stayed up all night. The next day I developed terrible loud tinnitus in my ears that literally sounded like a jet engine! It was so loud I could barely hear myself think let alone sleep! At that time my Doc said because my gaba receptors were so damaged that they had an opposing reaction to the melatonin. Kind of like punching back! I have not taken any “calming” supplement or med since! I am now almost 13 months out and my sleep and anxiety have improved quite a bit. My tinnitus still remains but had gotten quite a bit quieter. I hope that means my gaba receptors are healing!!! I am still afraid to take any thing that calms you down. I may be able to now but not going to take that chance as I am not totally recovered. This was just my experience and my Docs opinion. I have read that in order to let your gaba receptors repair you should not take anything calming as if you were going through benzo withdrawal? You may have luck with gaba especially after all these years! I’m suprised (and a little scared) that you still have damage after 9 years recovering. How much Levaquin did you take to get floxed? Do you feel mostly recovered??

      • MJ July 17, 2018 at 2:27 pm Reply

        Hi Dee,

        Thanks for your response. This is good to know. I took courses of Cipro + Levaquin back-to-back. 500 mg each. In total it was about a month long of being on the drugs. I also took a corticosteroid later on which made me much worse.

        I still have issues, but don’t let that scare you. My story has no bearing on yours. We are all so different. If it helps, I *do* think I got hit harder than most (not all, but most) and despite still having issues nearly a decade later I am a happy person today. Wishing you all the best in your recovery.

        • Dee July 18, 2018 at 6:57 am

          Joanne, thank you for the advice on taking the VSL Probiotic. I’m going to try it. How much did you take a day? One or two pills?? Also I was just curious what your stomach issues were? Are they better now? I wake up every morning and have to go to the bathroom in an “urgent” way and it is usually loose. After 2-3 bathroom visits I do pretty well for the rest of the day. I know my anxiety and nervous system seem to be more ramped up early in the morning as I actually wake up at 5/6 am everyday weather I want to or not with my body in 5th gear!!! I don’t know if it is an adrenal issue still trying to balance out?? Just curious what kind of GI issues you had and how long they took to get better? Any other suggestions that helped your GI heal? As always thank you so much for your help and suggestions. Every little bit helps us all in our healing journey!!

        • Don M July 18, 2018 at 7:37 am

          May I add my two cents? Have you looked into fermented foods? Dr. Mercola says that in a helping of fermented foods there are more probiotics than in a whole bottle of store bought probiotics. Fermenting is not difficult and one can ferment a variety of different foods. Once you get going fermenting costs are just the foods you ferment and some pure (iodine-less not table salt) salt. Salts…. Pure sea salt or Himalayan salt. There are several different gadgets that make fermenting easier but they are really not needed to do it.
          https://ohlardy.com/fermented-food-uses/
          Look here for an explanation of some of the gadgets.
          https://www.makesauerkraut.com/fermentation-lids/

          Eating tasty fermented foods (and getting your probiotics) will beat taking pills any day.

        • Henk Noordhuizen July 18, 2018 at 7:40 am

          The best way of treating loose stool after AB’s is,I think,spore-biotics. Those survive stomach acid and promote a healthy gut lining. Combined with inulin this combo helps cure a leaky gut,IBS and other gut problems. The cheapest source for Lactospore and Inulin I could find is https://www.bulkpowders.co.uk/lactospore-tablets.html. The raeson this probiotic survives stomach acid is because it is a spore-forming bacterium (the only one known today). Inuline is the perfect food for probiotics.

        • Dee July 18, 2018 at 7:05 am

          MJ, thanks for letting me know about your experience and I was glad to hear that after all these years you are happy regardless of dealing with your floxie symptoms. That says a lot about your strength and attitude. I personally think the mental healing is just as hard if not tougher then the physical healing. I wish you continued healing and hope you find some renewed balance in your nervous system. I hope to fully heal and after getting quite a bit better at 13 months I hope for continued healing that is let’s me put all this behind me.

        • Dee July 18, 2018 at 8:10 am

          Henk and Don. Thank you for your suggestions for GI issues! Appreciate! I will look into both!! Trying to come up with my game plan to heal this mess!!! Every little bit of info helps!!

  11. MJ July 18, 2018 at 8:37 am Reply

    To Bob from up above – did you have any *benefit* from taking GABA or did it make no difference whatsoever? Do you / did you have clear nervous system issues?

    Interested in anyone else’s comments on GABA / GABA receptors. I’m a little confused on the best approach to dealing with them. More GABA to flood into the damaged receptors in the hope that some will successfully interact? Or *less* GABA *because* the receptors are damaged and become problematic when receiving GABA?

    • Bob July 18, 2018 at 11:28 am Reply

      My nervous system issues were terrible when I was taking GABA. I took 500mg at night with 1mg of melatonin. I do believe it helped. I believe you may be over thinking this. I would take it and see if it helps.

  12. Joanne. July 18, 2018 at 8:52 am Reply

    Hi Dee,
    The stomach issues were up and down throughout this whole ordeal. As far as diahrea I always had it because of the magnesium. Also, it took me a long time to realize when I’d get sleep problems along with flashing nightmares or ugly visions, it was my stomach! So when that would happen I would take a VSL in the morning and another before bed and it would start helping within 2 days.
    As for fermented foods, I always drink keifer and occasionally eat the sauerkraut, but I never notice it helping like the VSL

    • Joanne. July 18, 2018 at 8:57 am Reply

      Also, i never took the vsl every day more than a week, not that that was Good, I was just scared of everything. So, basically I just used it as I felt I needed it.

      • Dee July 18, 2018 at 10:02 am Reply

        Joanne. Thanks for the info on taking the VSL!! Is your stomach healed now? Hopefully so!!!

        • Joanne. July 18, 2018 at 10:23 am

          Yea, but im always trying to see if i can stop the magnesium and when I do that everything starts getting bad again.

      • Dee July 18, 2018 at 10:30 am Reply

        Joanne, my diarrhea was out of control when I first got floxed when taking pills and powder. When I switched to the Angstrom liquid magnesium it made a HUGE difference in controlling my diarrhea! Have you tried Angstrom at all?? It was like night and day and it also gets better absorbed. I take 1 oz at a time throughout the day about 4 x and add magnesium theronate pills in the evening since it crosses blood brain barrier to help my sleep a little more.

        • Joanne. July 18, 2018 at 10:48 am

          Yea, i did try Angstrom and Remag, but I couldn’t get my dosage right, so I went back to Doctor’s Best which im doing good on, and now that i’ve cut that to 400mgs a day i no longer deal with diarrhea. But thanks for thinking of me😊

  13. Ronna July 18, 2018 at 2:25 pm Reply

    Has anyone ever taken a Sudafed for head congestion?

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