Floxie Hope

Floxie.Hope.1800.72.dpi

This site is to give HOPE to those who are suffering from Fluoroquinolone Toxicity Syndrome as a result of being poisoned by fluoroquinolone antibiotics – Cipro, Levaquin, Avelox, Floxin, etc.  It contains stories of healing.

Cipro, Levaquin, Avelox and all other fluoroquinolones are dangerous drugs that can have devastating effects that cumulatively I’ll refer to as Fluoroquinolone Toxicity Syndrome or Floxing.  Fluoroquinolone Toxicity Syndrome/Floxing includes damage to connective tissue (tendons, ligaments, cartilage, fascia, etc.) throughout the body, damage to the nervous systems (central, peripheral and autonomic), and more. The damage done by fluoroquinolone antibiotics can destroy a person’s quality of life or even kill them. Certainly, there is a time and a place for drugs with dangerous side effects. If you find yourself in a septic shock induced coma, fluoroquinolones may save your life. Unfortunately, these drugs are not being reserved for life or death situations. People are being prescribed them for urinary tract infections, suspected prostate infections, upper respiratory infections, as a prophylactic for travelers’ diarrhea, ear infections, pink eye, etc. Thousands of people have suffered needlessly from the devastating effects of fluoroquinolone antibiotics, when another, safer antibiotic could have, and should have, been used.

The damage done by fluoroquinolones is largely unacknowledged by the medical establishment and an accurate diagnosis, compensation and relief are difficult to come by. There is no known cure for Fluoroquinolone Toxicity Syndrome/Floxing.  However, many people continue to LIVE after being poisoned by fluroquinolones.  They find healing, recovery, perseverance, compassion and hope.  These are their stories.

This site is meant to give hope for healing to those who are adversely effected by fluoroquinolones.  It is no way meant to disregard the pain of those who are chronically suffering from the horrifying effects of Cipro, Levaquin, Avelox or the other fluoroquinolones.  There are people who don’t recover.  Their stories are real and they matter.  There are also people who are able to recover and I share their stories with the hope that they inspire others, or at least give hope that recovery is possible.

Here is a New York Times article about the dangers of fluoroquinolone antibiotics – http://well.blogs.nytimes.com/2012/09/10/popular-antibiotics-may-carry-serious-side-effects/?_r=0 – more news stories, research papers and other resources can be found on the “Links and Resources” page.

Here is a Facebook group that is a great resource for those going through Fluoroquinolone Toxicity – https://www.facebook.com/groups/floxies/

Featured post – I’m floxed. Now what?

The Fluoroquinolone Toxicity Solution Ebook has helped many Floxies to recover, including DanielCindy and Ruth.  As a bonus, you will also receive The Floxie Food Guide – a book of diet guidelines to help you through fluoroquinolone toxicity:

flu tox get help you need banner click lisa

If you would like to support Floxie Hope, contributions are greatly appreciated! Thank you for your help!

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13,144 thoughts on “Floxie Hope

  1. John August 7, 2016 at 9:35 pm Reply

    Has anyone else become extremely introspective since becoming floxxed? I find myself re-hashing every mistake I made in life and stressing about them. Before cipro, I had gotten over everything and rarely thought about it. Now I think about them all day. Anyone else have this?

    • L August 7, 2016 at 10:00 pm Reply

      yeah, I know what you mean. I think part of it is the heightened anxiety and another part is just the awareness that life as you knew it has changed. Also, since we may not be filling our days with things we used to do, there is more time to ruminate. I was doing that A LOT. Less so now as I am getting better and better.

    • Cindy Jones August 14, 2016 at 10:22 am Reply
    • Cindy Jones August 14, 2016 at 3:38 pm Reply

      yes, big time.

      Pls google intravita for vitB12 information plus the pernicious anaemia society.Dr Martyn Cooper has written a book on the subject of undiagnosed perbicious anaemia and peripheral neuropathy.
      Also need to treat the anaemia with folate to make Vit b12 injections work.Too complex to explain here.

    • Bonnie Neidhart August 15, 2016 at 1:34 pm Reply

      I, too, dwell on past mistakes and bad things that happened to me which I did’t before. Severe depression doesn’t help! Everything I do is an effort and so many things I can’t do. Not fair. I had a minor UTI and knew nothing about cipro but I assume the doctors and pharmacist did! Night is my haven, morning is hell! The rest of my life like this?

      • Cindy Jones August 19, 2016 at 7:30 pm Reply

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        Vitamin B12

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        The U.S. Food and Drug Administration does not strictly regulate herbs and supplements. There is no guarantee of strength, purity or safety of products, and effects may vary. You should always read product labels. If you have a medical condition, or are taking other drugs, herbs, or supplements, you should speak with a qualified healthcare provider before starting a new therapy. Consult a healthcare provider immediately if you experience side effects.

        Allergies

        Vitamin B12 supplements should be avoided in people sensitive or allergic to vitamin B12, cobalt, or any other product ingredient.

        Side Effects and Warnings

        Vitamin B12 is likely safe when taken according to the recommended dietary amounts (RDA) or less.

        Use cautiously in people with heart concerns, due to an increase in rates of restenosis (reoccurrence of narrowing of a blood vessel) after stent placement and vitamin B12 supplementation.

        Use cautiously in people with high blood pressure, as high blood pressure following intravenous (IV) administration of hydrocobalamin has been reported.

        Use cautiously in people with a history of cancer.

        Use cautiously in people with skin disorders, as rash, itching, and burning have been reported. Pink or red skin discoloration and facial flushing have also been reported.

        Use cautiously in people with genitourinary concerns, as urine discoloration has been reported.

        Use cautiously in people with gastrointestinal concerns, as nausea, difficulty swallowing, and diarrhea have been reported.

        Use cautiously in people with blood disorders, as it has been reported that treatment of vitamin B12 deficiency may lead to an increase in blood volume and the number of red blood cells.

        Use cautiously in people with low serum levels of potassium, as the correction of megaloblastic anemia with vitamin B12 may result in fatally low potassium levels.

        Use cautiously in people with a history of gout, or elevated uric acid levels, as the correction of megaloblastic anemia with vitamin B12 may start a gout attack.

        Use cautiously in people taking the following agents, as they have been associated with reduced absorption or reduced serum levels of vitamin B12: ACE inhibitors, acetylsalicylic acid (aspirin), alcohol, antibiotics, anti-seizure agents, bile acid sequestrants, chloramphenicol, colchicine, H2 blockers, metformin, neomycin, nicotine, nitrous oxide, oral contraceptives, para-aminosalicylic acid, potassium chloride, proton pump inhibitors (PPIs), tobacco, vitamin C, and zidovudine (AZT, Combivir®, Retrovir®).

        Avoid in people sensitive or allergic to vitamin B12, cobalt, or any other product ingredient.

        Pregnancy and Breastfeeding

        Vitamin B12 is likely safe when taken according to the recommended dietary amounts (RDA) or less. There is insufficient reliable information available about the safety of larger amounts of vitamin B12 during pregnancy.

        Infants, when breastfed by a vitamin B12-deficient mother, are at risk for many health issues such as severe developmental disorders, growth failure, and anemia. Some research has reported that vitamin B12 levels during pregnancy have effects on mental function in infants.

        Dosing
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        Portions of this document last updated: Nov. 01, 2013

        This evidence-based monograph was prepared by The Natural Standard Research Collaboration

        http://www.naturalstandard.com

    • Jaci August 17, 2016 at 2:49 pm Reply

      Yes. Never had regrets. Now I find myself regretting just about everything.

      • Ned August 19, 2016 at 12:34 pm Reply

        Jaci,
        Yes, I find myself regretting many things. I’m 13 months out from a seven day course of cipro. Today, for several hours (a window), I noticed myself calming down, for the first time in a year! I almost felt like myself again. I have been living with such anxiety, constant feeling of impending doom, suicidal thoughts, none of which I used to experience. I am paranoid at times. A lot of the time I don’t think I will get through this. It’s easy to forget, after so many months that it’s the side effects. I’m looking for a new job and I am running low on money. I am not getting a lot done. I’m on medication for ocd which is starting to work, but it adds to the overall picture.

        • Cindy Jones August 19, 2016 at 7:33 pm

          Ned It sounds as though you are emerging from this nightmare. Avoid fluoride and also other antibiotis/I am allergic to lots of things and also developed a food intolerance thanks to these poisonous fluoroquinolones and other toxic antibiotics . All antibiotics are toxic.

        • Ned August 21, 2016 at 12:33 pm

          Thanks Cindy! I am taking an antidepressant that helps, but as someone else mentioned earlier in the week, mornings are HELL, waking up, freaking with anxiety and worried for the future, the oder of ammonia or something on my fingers. Bedtime, I’m more relaxed. I am a little more interested in being out in the world. I won’t say more for fear His Satanic Majesty, Cipro decides to pay me another unexpected call. One day at a time……My best to all!

        • Aron Lycele August 21, 2016 at 12:41 pm

          Same here. Also for me, mornings/waking up is often dreadful. The evenings are almost OK sometimes (though my dry eyes are a royal pain atm). One day at a time, we will get through this.

    • Cindy Jones August 20, 2016 at 1:35 am Reply

      I agree I cannot stop worrying aboout everything and anything .

      Does anyone know anything about selecid please?

    • Cindy Jones August 21, 2016 at 2:11 pm Reply

      Still feeling depressed.

      Does anyone know how to get hold of the Patient Informtion Leaflet on VitaminB12 injections DEPOT Rotorex medica?
      Sorry just feel too depressed for words.
      I would be wary of Selexid as this damages muscle as well.

  2. FloxFromCipropol August 8, 2016 at 5:50 am Reply

    We all one terrible irreversible mistake had done – fq poison!
    I want time machine.
    I think a lot about this moment when googled cipropol
    pl language and nothing disturbing found.
    this moment will be with me till i die.
    this poison has too many trade names: cipronex, cipropol,
    ciphin, levoxa, tavanic etc…
    I trusted doctors, now I hate doctors.
    I hate big pharma testing drugs on people directly.

    30 years of all world floxing I think few milion
    floxed people on Earth since 1986 (including
    200000 soldiers with gulf war syndrome),
    maybe 10% are aware what happened – fq poisoning,
    90% are sick, are not aware reason.

    • L August 8, 2016 at 10:45 am Reply

      How right you are! Yesterday I was talking to a retired nurse who was aware of years of cipro use and when I explained the horrors that happened to me, she kept insisting it was rare and that she knew so many people who had taken it and not had a problem. I told her that later they may have developed problems and were told they had fibromyalgia, or chronic fatigue, or the rupture was from an injury or age, etc. Too many people poisoned and the the guilty have gone unpunished.

      • Stephanie August 8, 2016 at 11:45 am Reply

        They are all brain washed and the guilt they would have to realize that they have all been poisoning people forced them to say we are wrong. I believe that most people in the medical field have such good brainwashing from their childhood to schooling it’s all of these issues combined. They keep all western medicine students in the mind set that these drugs are always good and okay. I don’t excuse it I think that they are all saying no to is because they would have a mental breakdown if they admitted to themselves that they have been poisoning people. I talked to a nurse who said that the fault is with the manufacturers. I said no it’s the system. Everyone in the medical industry carries the blame. She couldn’t handle it and said she does her best for patients they mentally can’t take the blame and that’s a huge part of the issue

        • L August 8, 2016 at 12:32 pm

          I agree whole heartedly. If they say “yeah, the cipro did this to you,” then they have to think back on all the hundreds of times they have prescribed it, and wonder what the repercussions of those were. And the FDA is the worst….they have to be pushed and shoved for a lousy warning, taking their damn time, and THEN they don’t even send urgent warnings to all physicians, who apparently still hand these poisons out like candy. (btw good luck tomorrow and let me know how it goes)

        • Stephanie August 8, 2016 at 12:51 pm

          Lol thanks bed rest today for tomorrow. I’ve got good news my biopsy results are in I get the results on the 24th. Just got the call he won’t release them to me on line so it means they found something. Every time nothing showed he always pushes it through online. I got three calls to make sure I was coming tomorrow because the movement Drs are in high demand. I have to go to a stupid dr for social security in the 23rd. Ugh

          Don’t get me started on how the warnings are done. The whole system is created to protect the drug companies. I don’t get how no one else cares how no one else gets it. It seems people only care when they are messed up from it.

        • L August 8, 2016 at 1:13 pm

          oooh…I hope this is the beginning of some real recover for you!!!! xo

        • Stephanie August 8, 2016 at 1:19 pm

          Thank you!!!! Xoxox

        • Cindy August 10, 2016 at 12:51 pm

          Hello Stephanie I totally agree with you.

          Hope no one thinks that I am preaching but.I have learned to treat people like this with the contempt they deserve.

          I refer them to my signs and symptoms and to research links to research findings on the Fluoroquinolone Toxicity Syndrome. I mention the BLACK BOX warning.

          This is something very checkable. This usually shuts these Doubting Thomas’s up.

          I have learned that it is no use using up my precious time and energy trying to convince these cynics and ignorami anyway and run the real risk of sinking lower and lower into the depths of depression.

          Then I move on.

      • Cindy Jones August 19, 2016 at 7:35 pm Reply

        I would not believe this nurse. Of course she knows the dangers.

    • Deanne August 8, 2016 at 8:56 pm Reply

      Nerve pain RELIEF seemed to come with taking a small amount of Ativan this weekend. I had taken Gabapentin over the weekend but it made me very drowsy and didn’t calm the nerve pain much.

      I read that Ativan could be used for nerve pain. I tried just a 1/4 of 1mg and a bit more later and the nerve pain seems to have become much more manageable. I had the Ativan from my doctor prescribing it for my TMJ and to take it for sleep but I never took it.

      Has anyone used Ativan for their nerve pain? Or other nerve pain medications to recommend? There are so many and it’s confusing.

      I have tried for months to not take any meds and I am too the point where the supplements were not enough to get me through a day.

      I’m going to discuss with my doctor but want to be educated to let her know my thoughts on what direction to go with this.

      Thank you for any responses and input. I really appreciate it.

      • Jason August 9, 2016 at 1:16 pm Reply

        Benzos are a very very slippery slope directly to HELL. This hell is one of the worst on Earth, where people want to crawl out of their own skin they feel so awful, not unlike how some people are after being Floxed. Please educate yourself, start doing some googling about Benzo withdrawl symptoms and you will see exactly what I am talking about, you will find sites this this for example where people are desperate, suffering in sheer torture, and can’t barely get off the drug and once they do, its a longgggggg road to recovery from THAT point. http://www.benzobuddies.org/forum/index.php?PHPSESSID=8d8of6gtktieibra5nguapl770&board=145.0

        Floxed people are MORE susceptible to enter that hell, if they take these. All a Benzo does is quiet the SYMPTOM, like all most drugs ever do, it does not fix the issue and in fact can make it much much worse. There are many better ways to deal with Neuropathy like getting to the roots of the issue, no quick or easy fixes, but at least they don’t lead to a worse hell (I do help people with this symptom one on one, a Functional Medical Doctor should also be able to help someone as well [usually big bucks though], which is something I have studied and am still studying currently)

        • Cindy August 10, 2016 at 12:13 pm

          Hello Jason
          Are u doing a course in Functional Medicine. If so GOOD for you.

          Love you.

          I am going thru hell due to the f…… fluoroquinolones as we all have or are doing. Hope that makes sense.

          Yesterday due to INR dropping I was told to take an extra 2.5 mgms. Today the burning around both ankles has increased. However yesterday I leaned forwards and my back went. So possibility of the increased burning being due to the back pain.

          Have u seen the news article about Vitamin B12 in the Daiy Mail, Britidh paper. Will send the link. xxxxx

        • Cindy August 12, 2016 at 2:10 am

          Jason I agree/ Another issue is the diagnosis of Vitamin B12 deficiency. If you google Dr Martyn Hooper , Sally Pacheok you will see how people are losing out.

        • Cindy Jones August 14, 2016 at 10:23 am
      • Andy P August 10, 2016 at 12:20 pm Reply

        I was on benzos ,ads and antipsychotics for three years ,getting off them was by far the hardest thing I’ve ever gone through.Please dont get on that train its not worth it in the long run

      • Cindy August 13, 2016 at 5:03 am Reply

        Deanne ARE YOU IN THE UK?

        • tfortal August 15, 2016 at 6:29 pm

          Cindy-thanks for responding. I am in the US.

      • Cindy Jones August 14, 2016 at 10:19 am Reply

        Fortification of flour and processed foods with folic acid has a known masking effect on megaloblastic anemia (enlarged red blood cells). It is added to foods to prevent birth defects in unborn children. Folic acid suppresses the size of the red blood cells but does not prevent neurological damage caused by a B12 deficiency. I have read that megaloblastic anemia is a late-stage sign. So if you live where folic acid has been added to food, or your deficiency is in an earlier stage, it isn’t very likely you will have megaloblastic anemia.

        The FDA (Food and Drug Agency) in the United States has required fortification since 1998. From what I can find on the internet this is still under debate in the UK. From my perspective as a PA sufferer, it was a wrongheaded decision for the US to require fortification without making the B12 test standard as part of the complete blood test as it became much harder to diagnose a deficiency (scientists warned the FDA about this). It took many months before my deficiency was diagnosed, who knows how many more have suffered as a result. There is very little awareness of PA in the US.

    • Cindy Jones August 14, 2016 at 3:43 pm Reply

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      ‘Statins ruined my life’: Darling of the gossip columns PETRONELLA WYATT reveals how she conquered high cholesterol
      Petronella was told she had dangerously high blood pressure by her GP
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      By PETRONELLA WYATT FOR THE MAIL ON SUNDAY
      PUBLISHED: 22:05, 13 August 2016 | UPDATED: 00:06, 14 August 2016

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      Petronella Wyatt was told she had dangerously high blood pressure by her GP
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      Petronella Wyatt was told she had dangerously high blood pressure by her GP

      A few months ago, I discovered I was ‘ill’. Prior to that, at the age of 46, I had felt confident of longevity.

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  3. Jane August 8, 2016 at 8:17 am Reply

    So since I’m still having hair loss after the Levaquin, it was suggested to take Biotin Forte. I am just now deciding on a probiotic and vitamin c, etc. I’m worried about adding all these things and triggering flare ups. Any ideas on this? Better to start with one thing at a time?

    • L August 8, 2016 at 1:17 pm Reply

      Mine just started returning once I started to get better, but a definite YES on the probiotic. Look for something with multiple strains and 50 billion +

      • Jane August 8, 2016 at 2:18 pm Reply

        L,
        Were you referring to your hair returning? I don’t know if I’m better because I have days where I feel ok then I get hit with a week of aches and I’m in bed again. I’m so upset over the hair loss. I saw a rheumatologist who at least seems to be taking me seriously so we shall see…anything else you did to help with hair growth?

        • L August 8, 2016 at 6:30 pm

          yes, I was referring to the hair loss. Didn’t do anything differently except using shampoos from the healthfood store with no toxic ingredients, and shampooing about every 4 days. I was also still getting IV therapy so not sure what made the difference. I just know that as I started feeling better the hair started growing back in.

        • Angie August 9, 2016 at 7:59 am

          Hi Jane

          Hope you are doing well. I see that you went to a rheumatologist as I did as well. I was floxed the latter part of 2013. I immediately after 2 cipro pills awoke to cracking/popping joints and dire tendons. 2 of the 3 rheumys I went to said arthritis and 1 said he didn’t know what it was but all said no it couldn’t be the cipro. I’m like really didn’t have any of this prior to the cipro. Has your rheumy tried to convince you that it’s arthritis and not the flqs.

        • Cindy Jones August 19, 2016 at 7:43 pm

          Jane
          You could be Vitamin B12 deficient or have a thyroid disorder.
          If you go to b12d.org you will get lots of information as we do from this forum/website .

          The British haematology guidelines say that if someone has neurological signs and symptoms irrespective of blood results that they should be treated with Vitamin B12 injections as soon as possible to prevent further nerve damage. Most peope are unable to absorb sprays, sub linhgual B12 hence the need for injections. methlcobalamin s preferable to hydroxocobalamin . Avoid cyanocobalamin, cheap and nasty, as it is converted into cyanide in the body.

          Antibiotics including the macrolides, amoxycillin, nitrofurantoin interfere with the absorption of vitamin B hence peripheral neuropathy.

    • Cindy August 12, 2016 at 2:12 am Reply

      If u google Dr Maryn Hooper u will see another cause of nerve damage as well as that already sustained by Fluoroquinolones. PPIs, statins are also to be avoided.

  4. Andy P August 8, 2016 at 10:41 am Reply

    Some updates on where I am 7 weeks out,this last week my joint and hip pain have gotten worse as I’ve become more mobile.At night the hip pain was a 10 and I’ve developed bad insomnia not sure it’s from the pain or just insomnia
    Anyhow I had a glutathione IV yesterday and my pain was very very bad last night and I was going back to work the next day.I told my wife it is impossible to work in this much pain but eventually fell asleep around 2am then woke at 4 to scared to even move for the pain.I got up at 6 and went downstairs to get ready but something was different no pain.I thought it couldn’t be true so went to work and waited for the pain to come on all day.I was up and down the stairs and walking as normal,some pain there but more of an annoyance than anything else.I hope this continues as it gives me some hope I can one day recover
    A question I upped my mag to 500mg per day three days ago but it’s given me terrible heartburn and stomach acid what’s the lowest amount that would help.
    Any tips on insomnia I’m not going the sleeping tablet route it took me three years to get off them a while,ago

    • Bob August 8, 2016 at 4:17 pm Reply

      That’s great news. Try magnesium bicarbonate from Prisine Hydro. Try GABA to help you sleep. Take the magnesium before bed that will help too.

      • Andy P August 9, 2016 at 1:29 am Reply

        bit short lived i felt good when i got home then went to bed and couldnt sleep after an hour it felt like i had electricity running through my veins and i was up all night i now feel very anxious and dont know what to do.My tendons and muscles have greatly improved though almost recovered.This is really a killer isnt it you get better with one thing then something else hits you,I cant cope working 12 hours a day with no sleep,my wife doesnt understand and says theres nothing wrong with me😦
        I feel I have nowhere to turn and anxiety is kicking in hard,three years ago i spent 3 months in a mental hospital and thought it would never happen again but it seems more likely every day

        • Madge hirsch August 9, 2016 at 8:41 am

          Maybe you could get your wife to read some of the recovery stories here so she can see that what you are suffering is fairly classic for this type of poisoning but also that people do get better. Getting rid of one or two debilitating symptoms to have others pop up is typical. Sometimes they get better too and the original ones return. Are you making sure that you only eat organic animal products? Farmed shrimp has been found to have FQ residues and they are used in intensive farming.

        • Andy P August 9, 2016 at 9:41 am

          Hi Madge my wife won’t read the site she says I’m imaging it ,I don’t understand why I was almost pain free yesterday but today I am in agony lower back and hips.I can walk fine and the pain doesn’t change so I am obviously scared its neuro damage
          Tomorrow I have to drive 200 miles and back to see a customer I am not sure I can do it.MY GP won’t write me a sick note because my blood test are normal.I have cleaned my diet up since I got diagnosed with dv disease but it wasn’t bad before
          Being positive my sore and inflamed tendons seem to be healing well and I have no further issues with tendon damage
          Sorry I am moaning a lot but I have no other outlet but on here
          Thanks for the advice and I hope you are well

        • ChristmasCarla August 10, 2016 at 3:13 pm

          Andy, a suggestion about communicating with your wife … Perhaps if you copied specific stories from here that mirror your own symptoms, putting 3 or 5 excerpts on a page then printing out the page, then just left it sitting around on the desk, she might run across it. Then you could continue the process, relating to different symptoms as yours change (aren’t we lucky to have such variety?). If you start to accumulate a number of corroborating stories from people all over the world, how could she ignore it? You wouldn’t have to say a word.

        • L August 9, 2016 at 9:46 am

          Andy, as someone who has suffered with around 30 side effects, some truly terrifying, I hear you. In addition to suffocating like breathing for months on end, blurred vision and horrific pain, I am now, 1 11/2 years later dealing with torn meniscus in both knees. I am sorry your wife doesn’t understand. Lisa has so many wonderful articles under the resource tab here. Perhaps you might want to read through some of them, and print a few out for your wife to read. Or purchase Dr Jay Cohen’s book online…”How We can Halt the Cipro and Levaquin Catastrophe: The Worst Medication Disaster in U.S. History”

        • Andy P August 9, 2016 at 10:38 am

          Thanks L where are you with recovery now ?
          I am getting my head together and finally realised I can’t work in this state at the moment so I’m going back to the doctors and pleading for a long term sick note so I can concentrate on getting better.Its very frustrating when people think your imaging the pain like it isnt that bad

        • L August 9, 2016 at 1:24 pm

          Well, I am about 90%, and again, I was severely floxed. The breathing along was so nightmarish I just wanted out. I prayed for death everyday for months on end. So to be where I am now is pretty great. Out of 30-ish side effects I still have vision issues (likely permanent), some on and off choking sensations (more like being strangled…the nerves around my neck, but it is way way better than it was), numbness in my toes and balls of feet and a couple wonky fingers. I still get occassional pelvic area pressure, some GI issues and a glitch in my breathing where it is not quite normal, but light years from where I was. Then just recently I found out I had a torn meniscus in my right knee and i suspect the left as well. That part sucks because I was walking on the beach several times a week which really lifted my spirits and was so good health wise—barefoot “earthing” and the exercise of it. Still a bit of the anxiety but compared to where I was, again, light years. I started, a few months ago, go out to plays again and sometimes dinner with friends although that is a real challenge with all the limitations. I also recently enjoyed my first glass of wine in over a year and my first scotch! (no more coffee though😦 )

          I am sorry about the people think you are imagining this. It just adds insult to injury. I am lucky my friends did believe it, but then I looked like hell! I had gotten down to 112 lbs from 140-something and I was pasty white. It is so difficult to suffer through the pain and discomfort and psychological aspects and then on top of that not be believed. Almost a dozen doctors said “couldn’t be the cipro” and one even said in his notes that I was delusional. That is why it is so important to talk about it to anyone who will listen. This has got to change. The FDA came out with that recent warning in June about not using it for simple infections and doctors are STILL prescribing it. The FDA does a sucky job of getting the word out, probably because they mostly want to protect big pharma profits.

        • Andy P August 9, 2016 at 1:45 pm

          It’s nice to hear your close to total recovery well done for sticking it out,when I was in a pit of anxiety and depression and in a mental hospital it was the lowest point in my life.I was put on a cocktail of meds and I thought I would be back at work in a few weeks ! It took me nearly fours years to recover but I did it and was proud of that.
          In some way I am lucky my tendon pain isn’t that bad and I only have pretty evil insomnia and lower back and hip pain which sometimes is a ten all day but sometimes a 5 or 6..Others symptoms are just a bit annoying I’ve suffered a bit of anxiety last night but no depression and my mental clarity hasn’t been changed at all
          I think I had a big herx reaction last night to the IV ,I couldn’t get off the toilet my body was on fire with electricity and even my nose starting running.All of those toxins evacuating my body,yuck.its all worn off today and I feel ok at the moment a decent nights sleep would be good🙂

        • L August 9, 2016 at 1:48 pm

          btw, can’t recall if I mentioned this before, but turmeric is proven to be more beneficial for depression than prozac!

        • Andy P August 10, 2016 at 10:48 pm

          Good ideas Carla I will try that my brother has listened to me after I showed him afew stories but I think he thinks I’m getting mentally ill again
          Hope your healing well

        • Kevin.D August 11, 2016 at 10:34 am

          Hello Andy,

          Yes I believe it can work also but I think DMSO taken orally or trough IV pushes is by far more effective.Glutathione is not suited for everyone because of genetic mutation.People highly sensitive to sulfur may also react to DMSO but I an not sure.We all learn trough trial and errors but I hope it works for you.

        • Claudia August 13, 2016 at 3:56 am

          This is unbelievable! Cant imagine a wife would not stand with her husband in times of sickness!! I am so sorry that you have to deal with such a wife who can not sympathize with her own husband. ask her what would she expect you to do if she was in the same situation facing the pain you are in? So sorry..

        • Cindy Jones August 21, 2016 at 2:18 pm

          You do have somewhere to turn to. Please do not give in to negative thoughts it is destructive. My hubby is similar and it is very upsetting. However I try not to be too harshbecause at the end of the day it is hard to accept your partner/spouse is ill.

          Please always turn to us or the Samaritans In England the freephone number is 116 1234.

    • Kevin.D August 10, 2016 at 2:26 pm Reply

      Hello L

      Did you suffer from head pressure also ?

      • L August 10, 2016 at 4:09 pm Reply

        no, that is one of the few things I did NOT have

      • Andy P August 10, 2016 at 10:45 pm Reply

        Hi Kevin
        Yes terrible head pressure at the front of my head but it slowly faded after about 5 weeks and also very bad electric shock burning in my neck where it meets my skull
        8 weeks in I’m feeling a lot better ,my ligaments and tendons have turned from burning pain into dull aches so I think they are healing

        • Kevin.D August 11, 2016 at 6:41 am

          Hi Andy,

          It seems to me that you are recovering pretty well.Research everything you can about DMSO.I found a guy on cure zone who achieved 90 % recovery in two months after taking it.

        • Andy P August 11, 2016 at 8:13 am

          Thanks Kevin I wonder if the gel works for swollen ligaments ?
          Glutathione seems to have really helped me but made me feel 10 x worse for a day or so

        • Kevin.D August 11, 2016 at 10:35 am

          Hello Andy,

          Yes I believe it can work also but I think DMSO taken orally or trough IV pushes is by far more effective.Glutathione is not suited for everyone because of genetic mutation.People highly sensitive to sulfur may also react to DMSO but I an not sure.We all learn trough trial and errors but I hope it works for you.

        • Andy P August 11, 2016 at 10:45 am

          I drove over 400 miles today to visit a customer and my pain level was ok but you know how it is you are waiting for something to happen.My knee started hurting from using the clutch pedal but is ok nowI’ve got home.I feel a bit woozy and weak but I’ve been taking antihistamines to help me sleep so not sure if it’s that or not
          How are you healing Kevin are you making progress ,I am happy to at least be able to work to support my family and pay the bills

      • Cindy August 11, 2016 at 2:04 pm Reply

        Hello everyone Please can u tell me what DMSO is? I can’t take much more of this. The GP and nurse are unsupportive and have been in tears all day following a visit to the surgery this am for bloods.
        I am changing surgery after this fiasco.

    • Cindy August 12, 2016 at 2:50 am Reply

      Hi Andy
      Mind my asking where you had the glutathione IV and what DMSO is please. Many thanks

      • Andy P August 12, 2016 at 3:35 am Reply

        Hi Cindy I am in the UK so had it done here you need to be careful with it I had a very hard time the day after and it made me feel very unwell.Anything you try go slowly and build it up even oral vitamins. DMSO is a treatment they use on horses etc for joint pain but its supposed to heal all manner of things but it was never approved by the FDA
        https://en.wikipedia.org/wiki/Dimethyl_sulfoxide

        • Cate P August 12, 2016 at 5:05 am

          Hi Andy, whereabouts in the UK did you have the glutathione IV? I’ve been trying for a while to get it done here, but couldn’t find anywhere. I’m in Yorkshire.

        • Andy P August 12, 2016 at 5:35 am

          Hi Cate
          you can get it done in manchester and here but theres a long waiting list http://www.hm-skinbeautiful.com/treatments/iv-nutrition-therapy/
          http://www.mac-aesthetics.co.uk/intravenous-therapy/
          please be careful it doesnt suit everyone that takes it,im going for an ozone steam sauna which is far less risky next week

        • Cindy Jones August 21, 2016 at 2:21 pm

          Hi Andy Just seen your reply. I am also in England.
          Having a bad time atm.

          If u would like my e mail address please ask Lisa.

          I can telephone u if you wish as well.

          I have Long Qt syndrome and have to be very careful with drugs etc. I am also taking warfarin.

          The drugs to be avoided in the Long QT syndrome are listed on the University of Arizona website .

      • Kevin.D August 12, 2016 at 6:30 am Reply

        Cindy google Dr Jacob DMSO.You have many ressources online explaining what it is.Dont go on wikipedia.This product has been used for decades on humans with great success for neurological ailments.It is not approved by the fda because its a natural product ans it works.

    • Cindy Jones August 14, 2016 at 10:25 am Reply

      http://www.vitamincfoundation.org/statin.htm
      Please try to get investigated for Vit B12 deficiency as well. PAS>

    • Cindy Jones August 21, 2016 at 2:24 pm Reply

      Great Andy. Just seen this posting from you hence replies not in chronological order. if you google Silentnight videos there is a video on there by a dr with secret sleep tips. BTW UI am not advertising etc.

    • Cindy Jones August 21, 2016 at 2:28 pm Reply
  5. L August 8, 2016 at 1:21 pm Reply

    There are many different forms of magnesium. You might want to try mag taurate or orotate. I was taking up to 600 a day, and only recently, after a year, dropped down to around 300. You could probably go to 200 if you are getting it from other sources like nuts and green leafy vegetables. As for the sleep, I had to go the pill route since I was getting 0-1 hours for weeks, but then weaned myself off after a few months. There have been herbal and suppement suggestions, but I am afraid none of them helped me.

    • Andy P August 8, 2016 at 1:33 pm Reply

      Hi L I’ve tried herbal stuff does nothing also tried melatonin does nothing .It took me three years to get off a cocktail of pysch drugs and I can’t risk going that route again.I don’t feel well enough to excercise yet but that usually does the trick for me
      To be honest I haven’t noticed any difference taking mag but do feel a lot better after an Epsom salts bath
      Hope your healing well !

      • Ryan L August 8, 2016 at 2:52 pm Reply

        If your’re not allergic to it, try eating a bowl of gluten free oatmeal 1-2 hours before going to bed. I’d also recommend avoiding any TV/Computer screens the last two hours before going to sleep.as well. Even spraying some magnesium on yourself before going to bed has helped some.

        Here’s a link to an article Lisa shared about combating insomnia that has info shared from other floxies. I would avoid items 18. Benadryl. and 19.Tylenol PM. Some floxies can take all kinds of meds post FQ, but most need time off from pharmaceuticals. Oh, and read through the comments under the article as there’s some good advice there as well.

        https://floxiehope.com/2016/01/18/48-tips-for-overcoming-insomnia/

      • Anna August 8, 2016 at 3:10 pm Reply

        Andy, try taking vitamin d supplement not less than 4000 iu. I get the chewable ones from Amazon. It should be taken in the morning though. It seems to regulate the sleep cycle. Give it a try for a week. It helped me . Hope it will help you too.

      • Cindy Jones August 14, 2016 at 10:48 am Reply

        ANdy have you tried the magnesium tablets manufactured by D Caroyn Dean, she wrote several books on magnesium. The Magic of magnesium.

        • Andy P August 14, 2016 at 10:57 am

          Hi Cindy
          I took mag even before I was floxed and to be honest never had any relief from it,the only thing that seems to be helping me at the moment is an Epsom salts bath.It gives me great pain relief.I don’t think my symptoms are as bad as others but the lower back and hip pain is unbearable at the moment

        • ChristmasCarla August 16, 2016 at 6:30 pm

          Andy, the hip and lower back pain have been keeping me inactive, but today I had my first acupuncture treatment. Immediately after, I felt light-headed, almost dizzy, but I quickly recovered and have been largely pain-free the rest of the day. Hoping this lasts! Looking forward to my next treatment.

  6. Frank B August 8, 2016 at 6:57 pm Reply

    “Let me tell you something you already know. The world ain’t all sunshine and rainbows. It’s a very mean and nasty place and I don’t care how tough you are it will beat you to your knees and keep you there permanently if you let it. You, me, or nobody is gonna hit as hard as life. But it ain’t about how hard ya hit. It’s about how hard you can get hit and keep moving forward. How much you can take and keep moving forward. That’s how winning is done!”
    ― Sylvester Stallone, Rocky Balboa

    Yes,I did a Rocky Marathon today…
    Reading some recent gloomy posts…
    Seven years out from my first floxing,working a back breaking job through it all,
    but I’m still here.
    I’m still here.How am I still here?
    Hope you all find your “inner Rocky.”

    Peace,
    Frank

    • John August 8, 2016 at 9:39 pm Reply

      Thanks for the encouragement, Frank…always loved that quote. Do you have any remaining symptoms 7 years later? What were your initial symptoms? Thanks again.

    • FloxFromCipropol August 9, 2016 at 5:18 am Reply

      Rocky Balboa is my favourite childhood hero,
      fighting Rocky with Russian giant man is really exciting.

  7. L August 9, 2016 at 9:24 am Reply

    well, just when I thought consumer reports was coming around, after publishing the dangers of FLQ they go and do this. They have joined the enemy, in large part thanks to their old-school, AMA-immersed, anti- natural treatment board doctor, Marvin Lipman. I am writing them yet another letter and hope you all do the same. http://articles.mercola.com/sites/articles/archive/2016/08/09/consumer-reports-attacks-supplements.aspx?utm_source=dnl&utm_medium=email&utm_content=art1&utm_campaign=20160809Z1&et_cid=DM113484&et_rid=1608794992

    • Ryan L August 10, 2016 at 9:21 pm Reply

      Hey L,

      I read your earlier comment about your knees. I don’t know if you’ve already looked into inferno heat wraps, but they do make an electromagnetic heat wrap for knees. Here’s a link:

      http://www.infernowrap.com/

      • L August 10, 2016 at 9:58 pm Reply

        Thanks…just waiting til I have money to get stem cell injections to repair the tears.

        • Ryan L August 10, 2016 at 10:24 pm

          Interesting. Please let us know how that goes.

        • L August 10, 2016 at 10:37 pm

          I will. I am afraid it will be a while….working on getting some money for it

  8. Mark S August 9, 2016 at 11:11 am Reply

    Cipro disrupts the collagen matrix. I suspect it heavily depletes us of essential minerals such as manganese, copper, and zinc. All crucial for healthy collagen formation. Copper is needed for the synthesis of mature elastin and collagen, as well as helping them cross link. A prolonged treatment using these minerals along with vitamin C and E, and I believe you can fix your weakened tendons.

  9. Jane August 9, 2016 at 12:19 pm Reply

    Hi Angie,
    My current rheumatologist actually seems perplexed, but he’s definitely not trying to push a random diagnosis so far, thank god. Have they done bloodwork on you for that? The tests that look for inflammation, etc.- did yours come back elevated? Mine were ok. My joints aren’t too bad, it’s the flu like symptoms and whole body aches that are awful. I get them every month like clockwork and that’s what baffles them the most. Even went to gyno to see if it’s related to my hormones/cycle- definitely brushed off in that department. I did hear the rheum say it’s been too far out since my meds for it to be the cause- but I don’t agree. He is definitely trying to help which is encouraging. Also, my hair is still falling out from the Levaquin and I did finally get the doc to acknowledge it can cause hair loss. Have they referred you to any other specialists?

    • L August 9, 2016 at 3:01 pm Reply

      your doctor needs to read Dr Jay Cohen’s book on fluorquinolones. Not “to far out’ from ingesting cipro or whatever. “It is disappointing and discouraging when I hear stories of people with obvious FQ reactions going from doctor to doctor and being told the symptoms cannot possibly be related to the antibiotics. To say a side effect cannot persist after the drug has exited the human system is total ignorance of basic pharmacology. The entire field of toxicology is predicated on the fact that many drugs have toxic effects that last long after the drugs have exited…eg liver failure from …Lipitor..what is so hard to understand about that? “(p 72).

      • Jane August 9, 2016 at 8:47 pm Reply

        L,
        Yes it’s disappointing especially because these are supposedly the best specialists. It took how many visits to finally get one to admit my meds can cause hair loss. They don’t want to try explaining what isn’t in the medical textbooks & I’m so tired of it

        • Madge hirsch August 10, 2016 at 1:39 am

          I have stopped washing my hair often. I now wash it once every three weeks and since it is in much better condition . Most modern toiletries are full of chemicals that are very bad for us and enter our bodies through the skin. Being relatively dirty is actually healthier . Most people ljving in America and Europe wash too much and poison their bodies with shower gels, shampoos ,antiperspirants etc. I have read stuff about how it is not necessary to wash the hair with shampoos at all. I have just read an article anout the connection of douching to ovarian cancer!!! Try gradually lengthening the time between shampoos and only shampoo once with a minimum .

  10. Angie August 9, 2016 at 1:37 pm Reply

    Hi Jane thanks for your response! When I was first flowed I had a sed rate of 44 which was high the range on the report was 20. The RA factor was normal as well as the CRP. I remember soaking to another floxie back then that was told she had RA but after retesting her was told she didn’t. I know my body and I know I didn’t have these types of pains until after I took 2 cipro pills. Also each month that my cycle comes I get more achy until my cycle leaves so I know that it’s something with the hormones.

    • Jane August 9, 2016 at 2:59 pm Reply

      Angie,
      I know exactly what you mean about knowing your body. My sed, crp, etc were all pretty high when I had meningitis last fall- which is how this all started due to the meds I took. They are ok now. I asked doc if my illness and/or meds could have induced something. The rheum. and immunologist at least agree I have a mild autoimmune thing but can’t pinpoint it. Frustrating! Ok I thought it was so strange it comes a week before my cycle and ends once it starts. It has to be something to do with that. The gyno just kept shaking her head and dismissing me like a child. Needless to say not going back to her. Did any docs ever acknowledge the hormone factor for you?

      • Cindy August 10, 2016 at 12:32 pm Reply

        I am not an expert but I would just take one thing at a time so that if you do have a reaction then you will know what has caused it etc. I don’t know what others think of this?

  11. Angie August 10, 2016 at 9:30 am Reply

    Jane,

    I haven’t spoken with my gyno about it yet but I plan to do so. I’ve been trying to wait and see if the pain was consistent every month and for the past couple of months it has been. So I’m definitely going to bring it up when I see her again. It just amazes me how the doctors will overlook everything you see as it relates to these antibiotics.

    • Jane August 10, 2016 at 12:23 pm Reply

      Well let me know what they say, I’m curious! There were actually fellow doctors in with the rheum and one of them asked alot about the timeline & my cycle. Hoping they look more into it…and yes- anything they can’t explain they brush off.

    • Anna August 10, 2016 at 2:52 pm Reply

      Angie amd Jane, I am the same as well. All sorts of pains and dizziness flare up before and during my cycle. Things get better after it ends and this only started after the floxing so It must be cipro or the other Fqs that has messed up something hormone related in our bodies for sure. Hope yr gyno will have some explanantion that might help us, Angie. Keep us updated.

      • Jane August 10, 2016 at 6:07 pm Reply

        Anna,
        Best thing I did was make a log of things..I finally had a pattern to show them. Strange thing is, I had labs done in the midst of one of my worst achy/weak flares and they were normal. I told my doc I can literally plan my schedule around them! So glad to hear others have a connection to their cycle, too

        • Anna August 11, 2016 at 8:52 am

          Jane, i have a journal from the first day I had the poison Cipro and i started noticing the pattern as well. Interesting though that your labs were normal… There must be some relation between fqs and hormones. I believe our bodies more than the lab tests. I also remember reading on floxie hope a reply from Lisa B to someone a while ago, that she also had symptoms flaring up around her cycle , but learnt to ignore them. Btw, Did you notice new symptoms appearing almost exactly every month? I developed an anxiety every time i turn the calender to the next month fearing what is around the corner in the new month. It is like fqs have a timer to release new symptoms every 4 weeks or so. I hope this nightmare will end for all of us one day.

      • Madge hirsch August 12, 2016 at 1:51 pm Reply

        I think I was floxed many years ago when I still had a cycle. I had a lot of problems with low blood sugar before the period and I think the floxing makes that worse. Now with the latest floxing long after a hysterectomy with ovary removal I get problems with symptoms of low blood sugar in the floxing cycles. FQs can lead to blood sugar problems. When my glucose level was tested in the hospital when on Cipro iv it was higher than it has ever been. I suppose it could have been the feeding drip that put it up . I had not eaten anything for more than 24 hours so it certainly wasn’t due to guzzling chocolate or icecream.

  12. Carrie August 10, 2016 at 1:38 pm Reply

    Hi all, I have a question. Can anyone tell me why coffee/caffeine is not good for floxies? I have really appreciated all the posts. I have learned many things from this website. I was floxed almost 2 yrs ago and have tried many different treatment plans. None successful yet. I am now seeing an Osteopath and am trying homeopathic meds.

    • Ryan L August 10, 2016 at 2:28 pm Reply

      Jason wrote a lot about coffee/cafeine in the comments on the page I’m linking below. Just search for the word “coffee” on the page and you’ll see what he had to say. Look for his comment date stamped at “October 16, 2015 at 4:34pm.” That’s where really begins discussing it in detail.

      https://floxiehope.com/2015/06/22/treating-fluoroquinolone-anxiety/

  13. STELLA August 11, 2016 at 3:15 am Reply

    How an Everyday Secret Can End Joint Pain ?
    If, like me, and most of us who… aren’t as young or as active as we used to be… you either suffer from joint pain or hope to be one of the very few people who avoids joint pain. And you probably have friends and loved ones who feel the same way… or are suffering themselves.
    Unfortunately, we’ve been taught that joint pain is a fundamental part of aging. And that dealing with joint pain is limited to treatments:
    • drugs with nasty side effects
    • painful and expensive surgery that may make your joint pain worse
    • blocking out large chunks of time (and co-pays) for courses of physical therapy
    And all of which never seem to really address the cause of the pain. Well, I’ve found part of the solution to my joint pain.
    This article by retired NBA player and joint pain relief expert, Jonathan Bender. This secret doesn’t take long, but it is kinda boring. It’s practically painless, but it is kinda boring.
    It is completely, absolutely safe, but it is kinda boring. It’s free…and you know what I’m going to say, so I won’t. And it may sound like magic, but it’s based on a great athlete’s intuitive, instinctive understanding of how your body really works.
    And every day I use this slightly boring secret, my pain levels have dropped and my comfort increased. I don’t just feel better, my life is better.
    Click here to read “Why Joint Pain Isn’t Inevitable…and How to End Yours. ”
    Click here to read “Why Joint Pain Isn’t Inevitable…and How to End Yours

    • Jane August 11, 2016 at 3:03 pm Reply

      “Stella”
      I don’t get it- are you referring to joint pain from being floxed? This sounds like an infomercial…

      • L August 11, 2016 at 3:06 pm Reply

        that was my feeling too

  14. Claude August 11, 2016 at 7:06 am Reply

    Hello
    What hormonal test should we do
    Tank you

  15. FloxFromCipropol August 11, 2016 at 12:16 pm Reply
  16. FloxFromCipropol August 11, 2016 at 12:19 pm Reply

    Fda will NOT inform individual doctors about fq toxicity
    http://www.myquinstory.info/fda-fails-go-distance-yet/
    … so people will be poisoned … still.

  17. Jane August 11, 2016 at 3:16 pm Reply

    Anna,

    Well they didn’t check hormone levels or do more in depth testing during the actual flare- just basic panels so that says alot. The day before I was diagnosed with meningitis my labs were normal, but I was definitely feeling ill. My labs went crazy the next day when I was actually admitted- so it’s hard to believe tests at times. I was literally sitting there with a raging blood infection in the doc’s office and they didn’t know. That scared me pretty bad. So my monthly symptoms are always the flu aches/weakness, but newer is actual muscle soreness, as though I ran a marathon! I will say the vertigo & spacy feelings intensify and yes the anxiety of knowing it’s coming is more intense, too. I’m glad to have found this rheum. He seemed genuine in helping me…

    • L August 11, 2016 at 3:56 pm Reply

      hope he does. the good ones and few and far between

    • Anna August 13, 2016 at 1:39 pm Reply

      It is scary to think that when we are in a real health emergency situation, mds cant figure it out or act quickly as they should, while when we have mild infections, they are quick to cause us so much harm. Good luck with your new rheum…hope all works out well

  18. John August 11, 2016 at 10:48 pm Reply

    anyone have cramping where there heart is? I had chest pains months ago but they went away. The past few days I have been feeling a dull, cramping feeling directly where my heart is. Very frightening. Not a serious pain just a dull, mildly painful feeling that has been coming and going the past 3 days…anyone else have this?

    • L August 11, 2016 at 10:56 pm Reply

      I had horrible chest pressure for months. (It turns out I also had pericardial effusion, or fluid around the heart, which can happen with antibiotics) but the cardiologist didn’t think the pain/pressure I was experiencing was from that. I also had horrific, suffocating like breathing problems. I think both were related to mitochondrial damage to the heart muscle. The pain/pressure/cramping in the heart area finally went away but it took months.

    • Bruce Brannan August 12, 2016 at 4:58 am Reply

      I have pains around my heart. I worry about muscle wasting and since the heart is a muscle you have to wonder about the damage to those muscles as well.

  19. Andy P August 12, 2016 at 4:27 am Reply

    I went for accupuncture today and told the lady about flox poisoning she was shocked and treated me for detox .I was there over two hours and she put over 30 needles in me ,no idea if it will work but its worth a try.My sleeps getting worse and its really knocking me about i feel terrible today.But ive had two of the best days ive had for two months this week so must concentrate on the positives

  20. Richard G Berg August 12, 2016 at 9:21 am Reply

    Hello Everybody!

    Tried posting before but with no success!

    One month out from my divine denting from Cipro and really really frightened as each week something else crops up!

    First it was tinnitus which has all but disappeared and then it was neuropathic pains in the feet (which have also gently receded) and then muscle aches in the legs (now mainly confined to the left calf) and then that wall of insomnia which comes and goes and seems to be better if I take one formula, plus tart cherry juice and the multi-vitamin mix…

    In recent days, the anxiety attacks have waxed and waned and yesterday I was diabolically constipated but that subsided this morning as well..

    Symptom of the Day for today: nausea!

    It looks as if my lot is rolling symptoms.

    Good news is that everybody sooner or later makes a recovery (of sorts) from all the evidence that I have read – most who do recover never share their stories and we have to recall that there are millions of people out there dealing with some of the residual issues from FQT and the ones we know that endure are the tendon ruptures/neuropathy whereas the evidence suggests that most CNS issues eventually subside; the problem is tolerating that period between onset and eventually!

    Anybody know of fellow sufferers in London that I could be put in touch with as I feel very isolated with this sh***y predicament?!

    Feel free to leave me a post here or send me an email:

    rglassberg@tiscali.co.uk

    Love to all…

    Dickie

    • Andy P August 12, 2016 at 10:07 am Reply

      Hi Dickie I am from Birmingham uk and fixed 8 weeks ago I was dong better being crippled by insomnia at the moment which I am finding hard to deal with.The symptoms change some go quickly others dont.There are lots of places in LOndon that do ozone saunas this would really help you recover and detox
      Good luck

  21. Richard G Berg August 12, 2016 at 9:25 am Reply

    Incidentally, almost ready with a website that I was intending to create prior to this horrific ordeal but never got round to it. Now it is a matter of survival to create it, especially as on the bad days (like today) the lifeline of writing and sharing, if not transforming, the suffering, through creativity, would be immensely helpful for me, and for others….in theory!

    Will reveal the link to the website in due course once it is up and running…

    The aim is to post thoughts/anecdotes/wit/wisdom/poetry every day and see where that leads to…

    Dickie

  22. Richard G Berg August 12, 2016 at 9:37 am Reply

    Sorry: one last post with queries:

    Is the ‘acute phase’ always the same duration (two to three months)?
    Has anybody lobbied the UK Parliament/GMC for a similar directive, to the one issued by the FDA in May, for physicians not to give out this drug to prostatitis sufferers?!

    Does the terror ever wane?!

    Do fellow ‘floxies’ tire of the well-intentioned platitudes from friends and family?!

    Does anybody notice their skin, especially fingers, reeking of what can best be described as stale cat’s urine?!

    What is the earliest one can expect the insomnia to truly settle?!

    R

    • Ryan L August 12, 2016 at 11:17 am Reply

      Hey Richard,

      You asked if anybody noticed their “skin, especially fingers, reeking of what can best be described as stale cat’s urine?!”

      Well, I’ve had that ammonia type smell in my armpits and connected it to an issue with my body processing Sulfur products (I have the CBS gene mutation). You may not have that issue, but one way to test it is to see how you feel after a meal with things like proteins, broccoli, cauliflower, and green beans (High in sulfur). Another test would be to purchase sulfate test strips (These are made by SEOH). You dip these in urine and if you are in the 200-400 range after a meal, you’re probably normal. Anything higher may be a sign of an active CBS gene mutation and problems detoxing ammonia. I’d also recommend the 23andme gene test to see where mutations might be. I can’t really help you in addressing a CBS mutation, as I’m still working on that myself and other mutations have to be factored into it. That’s where a good naturopathic or functional medicine doctor with genetic experience comes into play. They can look at the whole picture and make recommendations.

    • Debs August 13, 2016 at 12:38 am Reply

      Hi Richard ,

      Speaking as someone who has been in this weird parallel world we inhabit almost t as long as the FQs have been , having been floxed no less than 7 times myself, I can give you my own opinion here based on this experience . in regard to timelines, that is is best to try not to ! try to base anything on timelines, as everyone timeline to eventual improvement & eventually hopefully getting to a place where we might FEEL completely recovered is different I would also try hard not to put yourself into any category of floxing . This is due to the fact that every person reaction is completely UNIQUE to them . The best most honest in fact only answer I feel can give to anyone asking these questions is ‘ how long is a piece of string ‘

      You are actually very early still into your reaction .The ‘ acute phase ‘ in floxing is generally thought of as the phase where we go downhill & more symptoms pop up, & lasts until this stops occurring & we tend to stabilise, one common pattern in floxing, is after this We then generally jog along at around the same level for varying amounts of time before eventually turning the corner & very slowly starting to improve , this improvement can be interspersed with cycling of symptoms/ groups of symptoms . We can also experience flares at any time in our reaction ( normally due to something that disagrees with us which unfortunately can be MANY things, & we can also potentially relapse, I have experienced a few in my time . . ) The ‘ acute phase ‘ for me on average looking at my various floxings was around 18 months ( on reason for this being, that one of the insidious ways floxing presents is that as well as symptoms rearing their ugly head quite soon after taking the drug, symptoms can also but not always be delayed, & sometimes they can pop up & surprise us for many months ) .

      Insomnia is very common with us , I have this quite severely, this symptom like the others again can last for varying amounts of time, & I would strongly recommended that you do not try to put a timeline on this.
      The problem with timelines is that we subconsciously absorb the belief that we expect to see a difference by the timeline have heard others improve by / subconsciously set ourselves, & unfortunately we can potentially be disappointed, finding we are not improving by this time which can then obviously leave us feeling depressed anxious, even bereft etc, which does not help us at all, especially our immune system, our bodies attempts at healing .

      The ‘ free floating’ anxiety issues which if severe can be classes as FQ akathisia . the neuropsychiatric symptoms CNS stuff oversensitivity to noise etc the balance co ordination spatial awareness stuff we can potentially develop etc this is something which DOES tend to eventually resolve, again given time, on a timeline which is different for everyone .

      Family, friends , in fact anyone who enquires after my health I just answer ‘ not too terrible ‘ myself .

      One thing I will say here is that I have noticed being around more than a little while that 18 months / 2 years is often quoted as a time when people often ( but not always, I note some start noticing definite improvement from their worst earlier, & others further down the line ) they state they DO start to see a clear change in regards to symptoms improving.

      Sorry I cannot be more definite, in regards to timelines in fact to anything re floxing , floxing truly is a different animal, a law unto itself.

      • L August 13, 2016 at 9:47 am Reply

        Yeah, Debs. I am 18 months out and about 90%….and light years from my worst, which was terrifying, asphyxiating, suffocating, and suicidal. I was severely floxed, and I can say at this point that I never could have imagined feeling this close to normal again. I hope for a complete return, but I believe some of the half dozen remaining side effects may be permanent, like the PN in my toes and some fingers, and the vision problems

    • Madge hirsch August 13, 2016 at 1:18 am Reply

      Like Richard I too developed this odour but in my armpits. Oddly it was far worse on the left. But it came many years after a previous floxing when I lived in Birmingham UK and before my most recent floxing here in France. I wondered after discovering I had been floxed if there was any connection and this is the first time I have come across anybody else mentioning it. It comes and goes so now I will see if it corresponds to eating brassicas.

  23. Andy P August 12, 2016 at 10:11 am Reply

    I got floxed from a diviculitus infection they put you on IV cipro and flagy ,I suspect many divic suffered get floxed and don’t even know it
    Insomnia is a hard one but I’ve overcome it before after rebound insomnia from taking olanzapine but it took many months
    My mouth always tastes of metal now and it won’t go away no matter what I do

    • Madge hirsch August 13, 2016 at 1:33 am Reply

      I too was floxed in hospital for diverticulitis with this combo. It is truly nasty but seems to be standard treatment. It is here in France. I used to live in Brum and I am pretty sure I was floxed there without knowing it in 1999. I developed a lot of connective tissue problems , blurry vision, nausea (especially in the mornings ) and feeling generally unwell. Eventually I improved but had several relapses probably brought on by stress or minor illness. I am sure one par ticularly bad relapse was brought on by a flu jab. But because I had no idea what was causing all this I was unable to take steps to avoid further FQ contamination like avoiding non organic animal produce and farmed fish and prawns.

      • Andy P August 13, 2016 at 1:45 am Reply

        Hi Madge
        Cipro and flagel are standard for divic infections in big doses,it took 9 courses of antibiotics to get rid of my infection and my colon is still inflamed and sore to touch.In the northern Scandinavia countries they won’t treat it with antibiotics unless it’s extremely severe but put you on nil by mouth and a liquid diet for a few months
        I’ve cut all processed foods out of my diet and stopped eating any red meat or pork,I take 20g a day of the purest grass fed un denatured whey protein every day.I’ve lost two stone and even though I stil feel yucky in some ways feel healthier if that makes sense.I am scared if I have another divic infection because I don’t ever want to go on antibiotics again
        I had my 1st acupuncture session yesterday that lasted two hours,I have been really suffering from a dry burning chest and couldn’t catch my breath,an hour after acupuncture I coughed up loads of goo and can now breath properly.Voodoo witchcraft I don’t know but it’s made me feel better so that’s all that counts

    • Madge hirsch August 13, 2016 at 1:43 am Reply

      Also it is vital to get your vitamin D level checked. UK levels are woefully low – the lowest in Europe for what is considered normal . Your level needs to be much much higher than the norm given so if you can get your gp to even do the test in the cash strapped nhs do not let them fob you off with “it’s normal” Demand the number! If your vit d is low it can exacerbate floxing symptoms and even non floxies can suffer from musculo skeletal problems. In the meantime if the floxing has not made you photosensitive get a little sun.
      If your gp will not test I would get it done privately.

  24. Richard G Berg August 12, 2016 at 10:17 am Reply

    Hi Andy

    Thanks for that. Yes, I hear the insomnia usually dissipates in months but will definitely resurface when and if put on any Benzo-oriented medication.

    The metallic taste might be nothing to do with the FQT by the way as I had that prior to taking Cipro and was reliably informed that this can be from a mixture of Candida infection or over acidity in the gut. You might want to check that out and see where it takes you or have a heavy metals/toxicity test..

    How did you overcome the insomnia in the end? Was it just perseverance? And, was the improvement gradual or sudden?

    Also, how much Cipro did they give you by IV when in hospital and for how long?

    Dickie

    • Andy P August 12, 2016 at 10:22 am Reply

      I exexcercised and never gave in ,I tried melatonin and various herbal meds but it did nothing.Eventually my body gave in and decided it needed sleep.Even if I had zero sleep I would still work out and suffer the problem is now I have trouble walking so working out is off the agenda.No idea how much I dont want to think about it but I had 9 courses of different antibiotics over the last 8 weeks enough to kill an ox

  25. Richard G Berg August 12, 2016 at 10:20 am Reply

    Andy

    Would a dry sauna be as effective as an ozone one?

    Will check out ozone saunas too…

    Dickie

    Note that you say you are dealing with insomnia now but overcame it in the past. I know that insomnia goes in the end but is made more tenacious by being on Benzos, as said in other post.

    Most people’s accounts suggest that it takes a few months to settle down….

    • Andy P August 12, 2016 at 10:23 am Reply

      Ozone therapy feeds the body with oxygen to the cells to detox and repair damage its very different

  26. Richard G Berg August 12, 2016 at 10:28 am Reply

    Yes, so I have read..

    Will do this sooner as I am currently four weeks from my brush with those dreaded pills; just four of them!!

    Dickie

    • L August 12, 2016 at 12:40 pm Reply

      Also, just detoxing can cause odors. During my first 6 months post Cipro I had hideous breath and body odor–two things I never had before. They resolved as I got better

  27. Debs August 13, 2016 at 12:54 am Reply

    A word of caution from someone who has seen many people hurt by various things tried & who has experienced this also from various allopathic drugs I have had no choice to take & also from an epsom salts bath which caused me to relapse quite badly, is to Please be VERY careful with any treatment suggested, as we can react to MANY things after floxing . I would personally recommend to start any treatment at a low dose first to see how you react to it as MANY people have been further injured by trying various treatments both Allopathic drug & alternative, often by trying too many things at once / at too high a dose, & please keep in mind at all times also the fact that we many of us now have problems metabolising allopathic drug/ various substances , due to the FQs inhibition of the Liver P450 enzyme pathway. This includes a large majority of the drugs which enter the body, & this means we can now negatively react to drugs we have taken with no problems in the past & any new drug we are prescribed in the future depending on how they are metabolised . this can also be the reason we often cannot tolerate caffeine.
    This inhibition can last for months or longer, & this does seem dependent somewhat on severity of reaction.

  28. Susan August 13, 2016 at 1:41 pm Reply

    It is hard for me to even write on here. I am sure you have heard this before but I feel like I am losing my mind and no doctor believes me. Actually what they believe is that my weight problem is causing all my health problems. In 2011 I took my first 10 day round of a Cipro drug. The previous year I had lost 180 pounds and felt great. I did not have any notable affects of the antibiotic at the time except that I can say I have almost gained all of my weight back and it is not due to a poor diet. Then in April of 2015 I was prescribed another 10 day round of Cipro for a sinus infection. In July I went to my doctor and said I just wasn’t feeling good. My legs and feet just aches and my lymph nodes were tender. She sent me home saying viral but did do blood work including Lymes and all came out negative. The first week of September everything went horrible and I don’t think I will ever be the same again. I experienced flu like symptoms for a good week. Couldn’t get out of bed. Could hardly walk. The pain was horrid. Long story made shorter, I went to the doctor many more times. I had other tick borne illness testing done, had to go in ambulance to ER for severe abdominal pain, had CT scans, ultrasounds of thyroid and abdomen, oodles of different blood tests, endocrinologist, rheumatoid, on/gyn went to a different clinic, removed Mirena birth control thinking it was the culprit, saw a psychologist and psychiatrist, massages, chiropractor….I did everything and anything that was suggested. I take the max dose of Cymbalta for my pain. I was on a low dose of Sertraline for many years before this with no problems. I had bumps in my muscles that were so painful that I could hardly stand to be touched. My husband would use a rolling pin to try to work them out. Both of my knees are completely shot. I have muscle pain everywhere. I have numbness and tingling in my feet. I have no energy. My anxiety and depression has gotten increasingly worse. I sweat a LOT. None of this is probably new to any of you. A familiar story. But I still am not diagnosed with anything. My doctor keeps bringing up fibromyalgia and other doctors say it is all because of being obese. I have to say that I am better than I was last September-December. I missed over 20 days of work last fall. But when I start feeling better with one thing, another starts. Is there any hope since I have improved? How long has it taken some of you to recover, that is if you recovered?

    • Ryan L August 14, 2016 at 8:35 pm Reply

      Susan,

      People have recovered from this nightmare, and that’s where I’d recommend reading the recovery stories on this site to see what their journey was like. Some continue to provide updates to their recovery stories, and others have just gone on with their lives like it was all a bad dream. Just be aware that most people who are posting on the homepage are still in the midst of the storm. Some are close to being fully recovered and sharing their own stories, but others are still struggling in one way or another. Keep fighting, as any sign of improvement is a good thing.

      • Susan August 15, 2016 at 8:54 am Reply

        Thank you for the words of encouragement. I surely need them. I know I am better than I was last September, but right now what I am struggling with is anxiety and depression. Also lack of energy which could go hand in hand with my mental state. I do make note of the little steps forward such as being able to go down a step without the severe pain I had last fall. Still painful, but better! But this depression is kicking my butt! It would also help if I could get a doctor to acknowledge this. I just discovered over the weekend that I was on Cipro three times instead of two. 2010, 2011 and 2015

  29. JV August 14, 2016 at 4:54 am Reply

    Glad I found this site though not glad I’ve been floxed. My story started just last week. I was given 250 pills for 5 days to be taken every 12 hours. After the first dose my ears felt plugged up. After the second dose my tinnitus increased dramatically.. Next day I decided to stop taking the Cipro and got headaches and felt totally out of it. And that evening anxiety set in in the form of rapid heart beat and just feeling on edge. Headaches went away but tinnitus is still worse and anxiety is still there though it sometimes comes and goes. I’ve started taking magnesium supplements that seem to work well for some people. For me it does seem to take the edge off a little bit though I’m taking Magnesium Oxide and I heard other forms of magnesium are better.

    What worries me is that I’m reading lots of stories where peoples’ symptoms don’t kick in until weeks after stopping the Cipro. After having taken just 2 doses, are my symptoms just a prelude for things to come? Will the anxiety go away on its own?

    • Madge hirsch August 14, 2016 at 7:14 am Reply

      If this is the first time you have ever taken Cipro it is possible that you might get away with a minor reaction. Some people obviously do. Worrying is the last thing you want to do. Follow the advice on cleaning up diet and taking supplements like magnesium ,vitamin D and a probiotic and other stuff you can find on this website. Watch out for tendon issues in the future but try to stay positive.

      • JV August 14, 2016 at 7:30 am Reply

        Thanks for the reply. Am hoping that things will improve but after reading some of the horror stories I sort of feel like a ticking time bomb. Will also try the vitamin D supplements. What kind of probiotic would you recommend?

    • L August 14, 2016 at 11:04 am Reply

      Did you mean 250 pills or 25o mg? First, yes, it is possible to react to just ONE pill and yes, more side effects may occur. The good thing is that you are taking mag, that you stopped. I would also start on probiotics a couple times a day, because so much is linked to gut health which they destroy. IT is also possible, although you may not remember, that you have been given cipro, levaquin, avelox, etc in the past. I didn’t remember, but I looked at old pharmaceutical lists and had been given levaquin a couple years ago, so this cipro was not my first. I started having side effects after the first pill, but didn’t make the connection and ended up taking four. And shame on whoever gave it to you. The FDA warned in June they should NOT be used for simple infections unless there are no other options.

      • JV August 14, 2016 at 5:10 pm Reply

        Sorry, meant to say 250 mg. I just found the new FDA warning which was issued just last month which I severely doubt my doctor knows about or if she did, ignored it. Aren’t doctors supposed to be up on these things? Anyway, anxiety seems better today though I’m getting weird aches in my toes when I walk. Am hoping this all goes away soon.

        • L August 14, 2016 at 7:38 pm

          Yeah, it is horrible that the FDA does not seem to make much of an effort to actually NOTIFY the doctors about the lastest warnings.And doctors mostly aren’t paying attention anyhow.Mine never bothered to find the black box warning between Cipro and Prednisone. I hope anyone who was injured by these AFTER the June warning, sues their doctor. That may be the only way to get this nonsense to stop. Glad you’re feeling better.

  30. Andy P August 14, 2016 at 8:55 am Reply

    Just tale it easy JV and don’t worry you only had a few tablets.I was pretty bad 8 weeks ago feel terrible today but had some almost no pain and no symptoms days this week
    Just hang in there you will get through this

    • JV August 14, 2016 at 5:11 pm Reply

      Thanks, Andy. What have you been doing to keep yourself sane? Any supplements you’ve been trying that have worked for you?

      • Andy P August 15, 2016 at 12:31 am Reply

        Hi JV I cleaned my diet up and cut out all the crap,I went back to work but it nearly killed me,i use krill oil,zma,probiotic.The two best things to help me are epsom salt baths and accupuncture mainly because the acupuncturist believes what i am going through and nobody else does in my family
        I tried glutiathione iv it made me better for a few days but much worse afterwards,I am going to try a ozone sauna as there is little risk in that but many benefits
        The thing that has kept me going is i have a family and mortgage to pay and i have had some really good days without almost no symptoms.I believe this is a sign of recovery one day.I had almost every symptom in the 1st month and was bed bound hardly able to walk,the tendon and joint problems with insomnia came about 6 weeks later .My hip and back pain and insomnia is the only thing that is really bad everything else is just annoying.
        We will all recover in different ways at different times,the flouroquine tendon solution book is worth buying off here

        • Andy P August 15, 2016 at 12:54 am

          forgot to add i am taking 20g a day of very high quality organic undenatured whey protein

  31. Andy P August 14, 2016 at 9:04 am Reply

    Anybody in the UK want to swap emails and support each other through this mess ?

  32. JV August 14, 2016 at 7:11 pm Reply

    Anyone know what the best kinds of magnesium are? I’m now taking oxidized magnesium but hear that absorption is very low so am switching to chelated magnesium. Anyone try this or anything else that helped?

    • L August 14, 2016 at 7:40 pm Reply

      I like magnesium orotate or taurate. Both have improved absorption, and you don’t get the side effects (diarhea) of citrate.

    • Ryan L August 14, 2016 at 8:19 pm Reply

      JV,

      Use the link below to read the article on the various types of magnesium. The three most popular ones people list on this site are Magnesium L-threonate (Crosses the brain blood barrier), Magnesium Citrate, Magnesium Glycinate, and magnesium oil (Topical use).

      http://peoplesrx.com/the-best-kind-of-magnesium-for-you/

    • Erin August 14, 2016 at 8:51 pm Reply

      I take magnesium glycinate and the brand Doctor’s Best chelated magnesium. Magnesium L threonate is also recommended.

    • John August 14, 2016 at 10:37 pm Reply

      JV,

      You will be ok if this is your first floxing and you only took a few pills. Have you had any nerve damage? Usually, that is the first thing to set in. If you go more than a month or two with no nerve issues, it is extremely unlikely they will pop up down the road. I am 5 months out and I have nerve damage in my left leg although it is much better. The only delayed symptom I had was aching in parts of my body that I previously injured. I wrestled throughout high school and college and had knee, ankle, and shoulder injuries. All of which began to ache about 3 months out. I still have some aching in my knee and ankle but no aching in any joint that was not injured. I think you will be just fine…here are some supplements that may help you.

      Probiotic – for gut health which ultimately will improve any mental issues you may have
      Neuro-Mag – also for mental issues as well as overall recovery
      Chelated Magnesium
      Glucosamine Chondritin – for joint health (just in case)
      A good multi vitamin

      You may also want to look into getting a Glutathione IV…will help with overall healing. I had about 10 and they helped me mentally and gave me relief from the nerve pain in my leg. Try to stay active as well if your body can handle it. You will be fine, dont worry too much.

    • Bob August 15, 2016 at 4:41 pm Reply

      I am taking magnesium bicarbonate from Pristine Hydro. It is a liquid. I believe it i very well absorbed and helps to alkalyze you.

  33. veteran floxie August 14, 2016 at 10:29 pm Reply

    Hi folks, i got floxed five years ago. You will recover but it will be slow and there will be some issues that will linger longer. I`ll be coming in from time to time to answer any questions. My best advice for all is this, get magnesium chloride and make a liquid, you can use it to spray it on your legs and ankles or areas where you have pain. I still use it every day on my legs for my sleep maintnance. Most people recover at the three year mark, which means you will be able to eat more different types of food. I don`t recommend taking any type of drug for anything, I always took supplements in capsule form when i got better, at the beginning i only drank calming teas. I open the capsules and take the supplement, tablets have toxic binders. For nausea i recommend mint drops (food grade) one drop in a liter of water helps with nausea. What has happened to your body? quins damage the cappillaries and small nerves in your body and everything goes downhill from there, it takes a long time for the body to heal that system, but you will heal and that is why i am here to give you a good hand to hold. The world is very cold and cruel no one will know what you are going through only another floxie.

    • Debs August 15, 2016 at 12:11 am Reply

      Having been in the weird parallel universe we inhabit almost as long as the FQs have I must be classed a prehistoric floxie then Veteran Floxie lol .

      There are no set timelines to improvement /potential recovery in floxing, ( & of course recovered means different things to different people ) nothing is guaranteed unfortunately, this is due to the fact there are just SO many variables, we are all different & come into this from different health perspectives different ages ad infinitum etc, everyones floxing & this includes timeline to improvement / potentially getting to a place where they may FEEL completely recovered is actually completely unique to them in every respect .

      Some people, indeed DO eventually get to a place where they FEEL completely recovered ( I did feel I reached this place myself , subsequent to my very first serious floxing after just 2 doses of a FQ, this was after many years ).
      The largest majority of recovered floxies however, in my experience & opinion, we do tend to experience some lingering issues, particularly due to the mitochondrial toxicity / dysfunction, the mechanism of damage on the connective tissues . this can result in a certain degree of exercise intolerance, & due to these degenerative effects on the connective tissues potentially various aches / pains we just did not have before, our bodies are just not the same after taking FQs, & particularly after visible / noticeable floxing because of this. I feel myself that one main thing to try to always keep in mind for anyone recently hit is the following : That the largest majority of ‘ recovered ‘ floxed people, whether we eventually do FEEL recovered completely, OR whether we still experience these lingering issues ongoing to various degrees, we DO eventually improve to the point where we CAN & DO move on with our lives, albeit maybe our life now might be a little bit different, we ARE eventually able to consign this whole traumatising experience to memory, just like our various other extremely negative life experiences, & it will no longer consume every waking moment .

      I certainly due to my researching them for many years 100% agree with you in respect to avoiding those allopathic drugs, that is if it is at all humanely possible although of course this is not always the case.

      Anyone who has not yet sustained organ damage via allopathic drugs,via chemicals, via food etc, anyone here who is not yet ‘ caught ‘ by big pharma, & their toxic accomplices, stuck in a place where they have NO choice but to take these drugs to control symptoms & /or in order to remain alive, PLEASE PLEASE look after yourself & try very hard to avoid this happening.
      Please look into following a clean a diet, avoid chemicals of ALL sorts, whether these be ingested , absorbed used on your skin, on you, & those around you ( environmental poisons ) as much as possible. An ounce of prevention truly is worth a pound of ‘ cure ‘ here It is very important to keep in mind that in the pharmaceutical world , the word cure is actually not recognised, not allowed. We CANNOT be healed by the same system that broke us. We are NOT sick we ARE systemically poisoned, & our allopathic Drs sadly, even if they do believe us, they do NOT know WHAT to do for us, OR know HOW to fix poisoned.

    • FloxFromCipropol August 15, 2016 at 4:55 am Reply

      Veteran floxie, there are people who dont recover,
      example ciproispoison.com, thencamemichael.com,
      fqwallofpain.com…

      • Bob August 15, 2016 at 4:50 pm Reply

        That may be so but if you don’t believe you will recover you probably won’t believe you will.

    • Jason August 15, 2016 at 10:04 am Reply

      Unfortunately “Veteran Floxie”, who looks very very suspiciously like “My sweet Lord” from past posts, as Debs mentions you really can’t make most of the sweeping generalizations you made because they are NOT at all accurate, and I will once again bring up that people who read the “Flox Report” and “think” they know what is going on with Floxing, are very very sadly mistaken for MANY reasons.

      A little advice, save your advice and your time and others peoples time, Floxing is very complex and there are many important pertinent details NOT in the Flox Report

  34. JV August 15, 2016 at 12:36 am Reply

    Thanks everyone for the replies. VERY helpful! So, I still have my UTI and my doctor gave me a new prescription for Macrobid (Nitrofurantoin), but the side effects look equally as horrible. Was curious what people took to get rid of UTI after the FQ didn’t work out?

    • L August 15, 2016 at 10:28 am Reply

      Macrobid is mentioned often because it actually targets UTIs but it too has horrible side effects. I would avoid all antibiotics and go the natural route. find yourself a good naturopath, perhaps a female, and ask her. There is a formulary, and I cant remember the details but it involves high doses of vitamin A and C, Herb pharms’ urinary system support and d-mannose. (The d mannose does not actually kill the bacteria, but helps to prevent the little suckers from sticking to the vaginal wall, so it is easier to eliminate.) This protocol takes a couple weeks, but it is worth it if you don’t have to use antibiotics. Worked for me (and a uti is what got me into this mess to begin with, so glad I didn’t have to go back to antibiotics).

  35. claude August 15, 2016 at 11:06 am Reply

    after 1 year and 1 month of suffering what help me the most hypnoneuroimmunotherapy

  36. Claude August 15, 2016 at 12:37 pm Reply

    Hello. If someone can translate this Italie us very very complete about sides effects It us from France

    http://sante.journaldesfemmes.com/medicaments/ciprofloxacine-sandoz-500-mg/medicament-62445726/effets-indesirables

  37. Andy P August 16, 2016 at 2:16 am Reply

    I slept for over 12 hours last night I think my body just gave in and said enough is enough🙂
    my lower back and hip pain has drastically reduced I hope its a sign of recovery

  38. Tracy August 17, 2016 at 4:46 am Reply

    Should all of the Levaquin people get on Twitter, every day, regarding MArgaret Hamburgs indictment, don’t we have a duty to warn the world, she needs to go to prison.

    • Stephanie August 17, 2016 at 7:52 am Reply

      It should be all forms of social media not just Twitter!!! The more people are aware the hope that they will the FDA is a pile of shit!!!!

    • L August 17, 2016 at 9:15 am Reply

      That’s a great idea. I don’t tweet (and took cipro) but I believe in making our voices loud and constant to help end this nightmare. Even since the June warning, doctors are STiLL prescribing cipro for simple infections. I just send a lengthy email to a reporter at CBS news who I thought might actually cover this on a national level. Everyone of us needs to be advocates for not only the removal of this toxins but for bringing those to justice who have so callously manufactured, sold, prescribed these poisons.

  39. FloxFromCipropol August 17, 2016 at 8:19 am Reply

    Social media (facebook, yahoo discussion list, twitter)
    floxiehope, wallofpain, private wordpress blogs right
    direction but not enought, people are fq poisoned still.
    FDA develops new black box warning, but not warn doctors.
    I have written few pages back – 100 000 votes and new president
    should consider the problem.
    Fq floxed soldiers with gulf war syndrome – they should know what
    happened to them, they should have organization of veterans.
    Prominence this tragedy with support this people group
    and the whole world will know.
    This requires additional commitment, and money unfortunately.
    We have no money😦

  40. ursula August 18, 2016 at 1:25 am Reply
  41. Jane August 18, 2016 at 7:28 pm Reply

    Well I have a sinus infection and have tried everything. I need meds, can’t take a chance letting it go…and I’m so worried what they’ll try to give me. I do know that I’ve already documented in my medical chart that under no circumstances will I take fluoroquinolones. I guess that’s the only thing helping…..

    • L August 18, 2016 at 7:31 pm Reply

      oil of oregano! several drops on the tongue several times a day for a couple weeks. got rid of mine

      • Virginia Ward August 18, 2016 at 7:43 pm Reply

        Have you tried neti pot saline flush? Saved me from the regular sinus infections I used to get.

        • Vee August 19, 2016 at 7:47 am

          Where do you buy and how do you use neti pot saline?

        • Ryan L August 19, 2016 at 11:51 am

          Vee,

          Here’s a link to neilmeds sinus rinse products (Including their version of the neti pot). This website should answer your questions. I personally prefer their sinus rinse bottle over the netipot. Neilmed products can be found at rite aid, walgreens, and in most major retail stores within their pharmaceutical isles.

          http://www.neilmed.com/usa/adwords_naturalallergies.php?gclid=CJyK14eSzs4CFcSCfgodkewOYA

      • Jane August 24, 2016 at 6:10 pm Reply

        L,

        Well ENT now says no infection- compliments of the tube up my nose- and I may have some bad allergies..but I’m weary of the oil of oregano thing. I guess I made the mistake of googling side effects and got worried. So you’re sure that it got rid of yours??

        • Angie A. August 24, 2016 at 6:25 pm

          I use oil of oregano (Sinu Orega) several times a week, sometimes several times a day for a couple years now. I’m very sensitive to everything and have no issues with this. I have sinus issues and allergies too, this really keeps it in check.

          If my sinuses get bad where I’m clearly heading toward or maybe already dealing with infection, I do a day of the oregano several times and then switch over to the colloidal silver nasal spray for about 3 days, then back to maintenance dose of oregano. Using the oregano nasal takes it right to the issue,, it burns pretty bad for about 5 seconds after each spray then the pain totally goes away.

        • L August 24, 2016 at 6:49 pm

          Positive. I don’t know what bad side effects you read about, but it is truly a miracle treatment for so many thing. I would check out this: http://articles.mercola.com/herbal-oils/oregano-oil.aspx (btw if you happened upon a site called science based medicine it is ” propaganda to support the chronic-sick-care system of Big Pharma in America.”

  42. Erin August 19, 2016 at 8:38 pm Reply

    I have kind of a question for everyone who has been floxed. We have a lot of restrictions now. No steroids, no meat with antibiotics, NO fqs ever again,no to most antibiotics, no to a lot of other pharmaceuticals that can make our situations even worse, and a whole bunch of other things. How do you guys deal with that? A few weeks after I was floxed I ate chicken and had a relapse of pain in both my achilles tendons and could barely walk for days. Chicken! I mean come on! I have been talking to someone who took cipro 3 months ago and had only mental problems and NO physical problems, the other day he used a cream with a steroid in it and bam all of a sudden he has muscle and tendon aches. It was 3 MONTHS after taking the cipro! I don’t understand what the future holds for us. I’m only 17 years old and I am terrified of ever having any health issues because I’m afraid anything a doctor gives me will hurt me even worse than I have already been hurt. I currently have UTI and I just keep thinking I’ll have no choice but to take some antibiotic that will put me right back where I started. I have nightmares over going to the dentist and being given a flouride treatment without my knowledge. I have nightmares that I’ll need a surgery and be given another fq while I’m unconscious. How have you guys dealt with these restrictions and how do you deal with the fear? Sorry for ranting but I would like to hear what others have to say on this.

    • Cesar August 19, 2016 at 8:49 pm Reply

      Hello, I am Erin’s friend who applied a topical cream containing a steroid. Now I have a new list of symptoms of aches, pains, and popping joints. I also have the same concerns for our future. What practically have to live in a bubble for the rest of our lives or what?

    • L August 19, 2016 at 10:43 pm Reply

      Yeah Erin, it pretty much sucks…BUT this is how I cope. I ONLY see a naturopath or integrative MDs. As for the UTI, you can get rid of it without antibiotics. I wish I could remember the actual protocol, but I don’t, and the amounts vary day by day, but it involves herb pharma urinary system support, high doses of vitamin C and vitamin A and d-mannose. I would suggest you find a naturopath you trust (perhaps a female for this) and they should know the protocol. I was freaked out too the first time I got a UTI after being floxed (and I was floxed BADLY—over 30 side effects). As for other infections, I have treated a sinus infection, gotten rid of the flu quickly and also healed an infection on my fingers, all with oil of oregano. Perhaps if you say what general area you live in, someone can direct you to a trusted ND.

      • Erin August 20, 2016 at 10:29 am Reply

        Hi L, I am treating my UTI naturally and I think it’s working but I still have that fear of needing to take antibiotics, you know? I was really upset last night because of what happened to my friend who used a steroid cream and developed new symptoms and I wrote all of that in anger and fear. I would like to see a naturopath but my mom can barely afford the copays to go to the regular doctor with insurance. Financial problems on top of being floxed isnt a good combo lol. Thank you for responding, hope you’re having a good day.🙂

    • Debs August 20, 2016 at 1:25 am Reply

      Speaking as someone who has been around more than a little while & who has done literally years of research into MANY subjects I will tell you what works for me. RESEARCH research research. THIS imo is actually our very best friend .
      personally, subsequent to the research I have carried out what I discovered means I now avoid allopathic ‘ care ‘ like the plague, that is unless I literally have NO choice in the matter, There are problems in ALL areas of ‘medicine’. i.e. the drugs, the medical devices , the training of these Drs, & this goes on ad infinitum. I would advise seeking out an Naturopath / integrative Dr myself .

      I now avoid ALL allopathic drugs, every single one of them, whether this be prescription or otc, as much as humanly possible ( I am already horrendously toxic, poisoned at a DNA / mitochondrial level by FQs. logic dictates to me, that I DO NOT wish to add voluntarily, anymore poison to my already seriously compromised body & brain , this makes NO sense to me whatsoever . The amount of data ( the raw data ) withheld from the clinical trials is HUGE, this is also an important reason to try to avoid them. bottom line : All allopathic drugs are poisons of course, & ALL will affect homeostasis, & cause damage to the brain & body when taken to some degree or other whether this be noticeable or ‘ under the radar ‘, Importantly, & something I feel is very important to keep in in mind, is the fact that MANY of these allopathic drugs ALSO damage mitochondria .
      if we add to the above the fact that the majority of published research is compromised, factor in ghostwriting, & disease mongering, the collusion between psychiatry & Pharma, & the corruption of the various drug regulatory agencies, & much much more, methinks we have a VERY BIG problem with what is known as allopathic ‘ healthcare ‘ .

      I avoid all the preventative ‘ healthcare ‘ checks , those things like the mammograms, various scans, ( contrasts are also a very big no for me, unless I feel they are imperative & I may be seriously ill as they can generally see what they want without them . ) & especially invasive tests colonoscopies etc, Also the well woman clinics, the check ups, all that sort of stuff which is in most cases just big pharmas’ way of ‘ collecting ‘ the worried well, ( i.e. Blood pressure ) cholesterol ‘ numbers ‘ might be slightly off on the day . ( re scopes, leaving aside the attendant risks re colonoscopy & the bowel prep which decimates the microbiome, there is also big problem there atm with the various scopes & the cleaning of )

      I have not had a vaccine administered since I was a very young child, knowing what I know about those, I will not touch them with a bargepole .

      I avoid all chemicals, as much as I can possibly do so, whether they be ingested, topically applied , environmental etc. especially fluoride ( carries its own serious issues ).

      I eat organically as much as I can afford , I definitely make sure that anything I use a lot of ( the staples ) they are always organic, this to me includes eggs butter milk potatoes veg etc ( & also importantly the meat ).

      I avoid sugar in its various forms as much as possible.

      All the above & much more I have probably forgotten right now ( & to fit it all in i would be writing this comment here forever ) I worked out via my personal research for me are just not worth the risk. the risks for me far outweigh any benefit . ( this will be different for everyone based on their own personal circumstances of course & this is is important to keep in mind )

      Personally, to avoid as much of the anxiety as possible re being administered allopathic drugs etc, in case the situation arises when we are unable to advocate for ourselves I would advise everyone here to set up an advance directive, includes an advance statement re future treatment you wish to refuse if this occurs, This is a legal document, which to the best of my knowledge cannot be overridden, unless you are considered to be of unsound mind, & then they have to go to court first to override this FIRST if they think this is the case, This gives us TIME, & imo is a very important safety net .

      The summary to take away for me is to try dammed hard to avoid the various toxins in ALL forms, in this poisoned world of ours, as much as humanly possible. I am ALREADY seriously injured, I am already poisoned . So WHY on earth would I voluntarily WANT to add even MORE poison to my poor struggling, compromised, seriously injured body & brain IF I CAN avoid doing so .

    • Debs August 20, 2016 at 1:38 am Reply

      There are various natural treatments for UTIs which can be tried , there are also many antibiotics out there for the same IF one is actually needed.
      The ‘ better tolerated ‘ antibiotics for us in fact for everyone, IF one is needed ( allergies apart ), they tend to be the Penicillins Cephlasporins & Doxycycline.

      Although we are of course all different insofar as to what we can or cannot tolerate, re antibiotics I would strongly recommend avoiding MACROBID, ( the FQs chemical friend ) BACTRIM, ( the use of which in the UK was severely restricted many years ago due to the dangers ) & if possible Flagyl. if you can myself All of these actually carry serious toxic profiles, & they have injured many people over time

      https://chriskresser.com/treat-and-prevent-utis-without-drugs/

      • Erin August 20, 2016 at 10:20 am Reply

        Thank you for your response and all this information. I had a reaction to macrobid before I took cipro so I know how nasty that stuff is. I got a shot of rocephin which is a cephlasporin after taking the cipro for the original UTI I had that got me floxed because the infection didn’t go away with cipro and I didn’t notice any worsening symptoms. I’m trying to treat the UTI I have currently through natural routes like water,cranberry pills,vit c,urinary maintence herbs, and I think it’s working but the uncertainty of needing antibiotics isn’t fun. Again thank you for all your insight.

    • ChristmasCarla August 20, 2016 at 10:15 am Reply

      Erin, please be sure the chicken you consume is organic, free-range and has no antibiotics. Chicken and eggs are my main sources of protein, and I have had no trouble with the local, organic chickens.

      • Erin August 20, 2016 at 10:23 am Reply

        I honestly am no longer going to eat chicken or most meat anymore simply because I don’t care for meat that much, never have, and also because I just can’t risking having another set back. If I do decide to eat chicken again, I will make sure it’s organic and no antibiotics. Thank you.🙂

  43. Debs August 20, 2016 at 1:42 am Reply

    Note Macrobid has a rating very simjlar to FQs

    http://www.askapatient.com/viewrating.asp?drug=20064&name=MACROBID

  44. Debs August 20, 2016 at 1:44 am Reply

    the UK story of Bactrim

    http://briandeer.com/bactrim-septra.htm

  45. Debs August 20, 2016 at 1:45 am Reply
  46. Debs August 20, 2016 at 1:48 am Reply

    Colonoscopies etc , the cleaning of the various ‘ scopes ‘ actually leaves a LOT to be desired .

    http://articles.mercola.com/sites/articles/archive/2015/12/06/endoscope-sterilization.aspx

  47. Debs August 20, 2016 at 1:51 am Reply
  48. Debs August 20, 2016 at 2:03 am Reply

    At the end of the day at least WE are aware, & we CAN now do something about this, & look after ourselves. The majority of the world, they actually do NOT have clue what’s going on in allopathic ‘ care’ .nor do they know what is going on ‘ under the radar ‘ elsewhere, so they continue poisoning themselves day after day in various ways.

    I can now do various things to help myself, & protect myself. I consider myself lucky in that respect, actually very lucky indeed.

  49. Ryan L August 23, 2016 at 6:43 pm Reply

    Some good news for floxies living in India. It appears that there are two different medicinal products that contain the bacterial strain OXALOBACTER FORMIGENES! Those who’ve been here a while know that this bacterial strain has been wiped out in many floxies and that currently there are no known probiotic supplements on the market that contain it. If you’re unfamiliar with how this bacterial strain plays into floxing, please read the article Lisa posted on it which can be found in the first link below. The other two links are for the products that India has that contain O. Formigenes.

    Fluoroquinolone Antibiotics and Oxalate Overload
    https://floxiehope.com/tag/oxalobacter-formigenes/

    Oxalobact
    http://www.netmeds.com/prescriptions/oxalobact/cap

    Oxalo
    http://www.indiamart.com/proddetail/oxalo-capsules-5057544333.html

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