Floxie Hope

Floxie.Hope.1800.72.dpi

This site is to give HOPE to those who are suffering from Fluoroquinolone Toxicity Syndrome as a result of being poisoned by fluoroquinolone antibiotics – Cipro, Levaquin, Avelox, Floxin, etc.  It contains stories of healing.

Cipro, Levaquin, Avelox and all other fluoroquinolones are dangerous drugs that can have devastating effects that cumulatively I’ll refer to as Fluoroquinolone Toxicity Syndrome or Floxing.  Fluoroquinolone Toxicity Syndrome/Floxing includes damage to connective tissue (tendons, ligaments, cartilage, fascia, etc.) throughout the body, damage to the nervous systems (central, peripheral and autonomic), and more. The damage done by fluoroquinolone antibiotics can destroy a person’s quality of life or even kill them. Certainly, there is a time and a place for drugs with dangerous side effects. If you find yourself in a septic shock induced coma, fluoroquinolones may save your life. Unfortunately, these drugs are not being reserved for life or death situations. People are being prescribed them for urinary tract infections, suspected prostate infections, upper respiratory infections, as a prophylactic for travelers’ diarrhea, ear infections, pink eye, etc. Thousands of people have suffered needlessly from the devastating effects of fluoroquinolone antibiotics, when another, safer antibiotic could have, and should have, been used.

The damage done by fluoroquinolones is largely unacknowledged by the medical establishment and an accurate diagnosis, compensation and relief are difficult to come by. There is no known cure for Fluoroquinolone Toxicity Syndrome/Floxing.  However, many people continue to LIVE after being poisoned by fluroquinolones.  They find healing, recovery, perseverance, compassion and hope.  These are their stories.

This site is meant to give hope for healing to those who are adversely effected by fluoroquinolones.  It is no way meant to disregard the pain of those who are chronically suffering from the horrifying effects of Cipro, Levaquin, Avelox or the other fluoroquinolones.  There are people who don’t recover.  Their stories are real and they matter.  There are also people who are able to recover and I share their stories with the hope that they inspire others, or at least give hope that recovery is possible.

Here is a New York Times article about the dangers of fluoroquinolone antibiotics – http://well.blogs.nytimes.com/2012/09/10/popular-antibiotics-may-carry-serious-side-effects/?_r=0 – more news stories, research papers and other resources can be found on the “Links and Resources” page.

Here is a Facebook group that is a great resource for those going through Fluoroquinolone Toxicity – https://www.facebook.com/groups/floxies/

Featured post – I’m floxed. Now what?

The Fluoroquinolone Toxicity Solution Ebook has helped many Floxies to recover, including DanielCindy and Ruth.  As a bonus, you will also receive The Floxie Food Guide – a book of diet guidelines to help you through fluoroquinolone toxicity:

flu tox get help you need banner click lisa

 

 

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15,258 thoughts on “Floxie Hope

  1. Lebo February 9, 2017 at 9:38 am Reply

    Hi Lisa,

    Am a black male from South Africa and I believe I have been floxed after taking 500mg cipro two times a day for five days. Prior to that I had taken predisone and had just cold turkeyed from benzos, so I was really hit hard. I lost my job, my family is not offering much support, I wallow in pain on most days, not able to afford any diet, I just eat whatever due to financial constraints and not having the means. Can anybody suggest measures one can take in improving their health naturally, as I do not have the means and I am in constant pain and its affecting me so much.

    Regards

    • L February 9, 2017 at 10:03 am Reply

      So sorry Lebo that you have had to join our group. The most important things are to avoid fluoride, GMOs, gluten and if at all possible eat organically. Also never again take any steroids. Your magnesium levels are likely severely depleted and it is so important for many things including nerve functions. You can find some pretty inexpensive magnesium supplements (avoid citrate for diarrhea reasons) and try to get 400-800 mg. There are food sources as well but I am not sure you can get enough at this point from food. Another HUGE problem is cipro destroys the good bacteria in the gut, which is linked to pretty much every disease you can think of. Probiotics with live cultures and different strains are important to take. They can get expensive. Also helpful for this are things like fermented foods. Goats milk kefir is good. Most definitely avoid any meats that are not organic, because they can have antibiotics in them and cause you more problems.

    • Michael Teeter February 17, 2017 at 12:21 pm Reply

      Hey Lebo I am so sorry to hear that you were Floxed. Here is a non Profit Organization that helped me. I am still recovering after 5 years. Check them out they offer good stuff and I am sure they save my life the last time I was in the Hospital.
      http://www.pointofreturn.com/

      • Lebo February 17, 2017 at 2:27 pm Reply

        Hey Michael, thank you, will check them out. How has the journey been for you?

  2. Agata February 10, 2017 at 6:29 am Reply

    Hi Lisa
    I woul like to ask you how to avoid fluorid….i know its in toothpaste, cooking pans…teflon……water(our country does not fluorinate water)…..what else? Can you tell me more specific?
    Thank you very much

    • L February 10, 2017 at 11:38 am Reply

      Hi Agata, I am sure Lisa will respond, but I saw this so I thought I would add my two cents. You just really need to either read labels or do research. Things like toothpaste I either get at a healthfood store or order online. If you are unsure you can always contact the manufacturer. For other things, like pharmaceuticals, which I try to avoid to begin with, you really have to go online and research them. For example, I was on inhalers for asthma. I already knew they had steroids in them, which is bad enough, but then I discovered that they also contained fluoride, once I went online and looked for ingredients.

      For water, if it is fluoridated where you live, you can buy bottled water, with varying degrees of fluoride. I go to a water store and buy distilled water. The problem with distilled is that it is “dead” water, missing key minerals you need–so I add them back in with fulvic acid or something called concentrace, which is mineral replacement (that is a brand name and there are other brands out there.)

      Mainstream dentistry uses fluoride, which is why I recommend, if at all possible, that floxies find a holistic dentist. They don’t use fluoride, and they use materials and methods that are more bio-compatible. The gold standard for these dentists is Huggins training. You can search online for Huggins trained dentists.

  3. Agata February 10, 2017 at 1:37 pm Reply

    Hi
    Thanks for replay, i am avoiding this things you mentioned, but what about food….tea, vegetables?

    • Lisa February 11, 2017 at 10:43 am Reply

      Hi Agata,

      I agree with the advice that others have given. It’s horrible that tea (including many herbal teas) have fluoride in them. It makes me sad.

      I try to avoid fluoride, and I think that avoiding it is a very good idea for “floxies.” Cut it out as much as you reasonably can. Jason Uttley credits eliminating fluoride from his water (through drinking reverse osmosis water) for his recovery. You can read more about fluoride here – https://www.earthclinic.com/news/why-the-us-should-ban-fluoride-in-drinking-water-by-jason-uttley.html#jason. Please note that he still bathed in regular tap water, and he also pointed out that many supplements contain fluoride, so he avoided many of them.

      Please note that I recovered while not avoiding fluoride. I have since avoided fluoride, but I did fine while brushing my teeth with regular toothpaste and drinking tap water.

      Regards,
      Lisa

      • Agata February 11, 2017 at 1:16 pm Reply

        Hi Lisa
        The problem is that i don’t know if i have been floxed. I had surgery in general anasthesia and anasthetic was sevoflourane. I requested the medical data and there are no quinolones mentioned. But after surgery symptoms began. My mayor problem is that ligaments streches so easy and the joint are the unstable. Whic is causing a lot of pain. The condition has affected my whole body. Does anybody have the same symptom? There are poping joint which hurt. My connective tissue is like being melted?

        • L February 11, 2017 at 5:23 pm

          fluorine is different from fluoride. the former is a naturally occurring chemical. But often with surgery they give you some kind of prophylactic antibiotic. I would want to see exactly what was given aside from anesthesia.

          as for the popping—I had that a lot, in my knees and back especially. The knee with the most popping was later determined to have a torn meniscus. If you did get a fluoroquinolone, they are known to destroy all kinds of connective tissue

        • Agata February 13, 2017 at 7:30 am

          Hi
          Thank you much for replay, i still have one question to go, if anyone can replay.Two years ago, because of my problems i got dexametazone shot(again fluor), the next day i got my blood tested by another doctor and my iron levels were 38. Could this be a sign of toxicity? Thanks

        • Virginia February 13, 2017 at 5:40 pm

          If your ligaments stretch too easily and your joints are unstable, you might have Ehlers-Danlos Syndrome. You can google the symptoms. People with this disorder have a much worse reaction to Fluoroquinolones. There is no cure; one just has to manage the disorder with no over-exertion and avoiding FQs. I’m sorry for your struggles!

  4. charlottejacobs February 10, 2017 at 2:38 pm Reply

    Tea contains fluoride as do one third of medications as well as eye drops.

    You can have filters installed to remove fluoride from tap water but this is expensive.

    • L February 10, 2017 at 4:10 pm Reply

      also, the older the leaves the more the fluoride. “If you are interested in reducing exposure to fluoride and the harm that may come with it, choose white tea, the tea that is made from young leaves. This does not mean you can avoid fluoride in tea by drinking white tea, only that your fluoride exposure may be less than with other types of tea.” (like black or green) I think herbal teas are a safe bet, but have read that rioobos also contains fluoroide. also, you might want to add 2-3 brazil nuts a day to the diet, as they are high in selenium, which helps block the effects of fluoride.

  5. Kurt February 11, 2017 at 9:25 am Reply

    Hi All,

    I have hair loss on my lower left leg due to the neuropathy. Just wondering if anyone has experienced this and if the hair will eventually grow back?

    Also….does collagen repair itself over time? My skin looks aged and loose. Just curious if it will look like this forever now or does it improve?

    Thanks for any info!!

    • L February 11, 2017 at 11:07 am Reply

      my skin is aged significantly too mostly on my legs, but in large part I believe because I lost 30 pounds in just weeks post-cipro, and I was underweight then for months before I put back at least some of the weight. I also am middled aged so skin just does not pop back like it used to. Not sure how much is the rapid loss and how much is collagen damage. I have been taking collagen peptides in a near-daily smoothie, but have seen no difference as far as the skin.

      • Kurt February 13, 2017 at 6:39 pm Reply

        Thanks for the reply “L”! Happy healing…

        • Lisa February 15, 2017 at 7:26 pm

          Some people have reported that their hair and skin look better after taking collagen supplements that are supposed to support hair and skin health. Sorry for not knowing the specifics right now, but supplementing may help, so I thought I’d mention it.

  6. Tricia February 13, 2017 at 2:41 pm Reply

    Has anyone ever used local anaestesia lidocaine, and have been okay? Also. …is valium safe for floxies? ?

  7. Sarah February 13, 2017 at 4:39 pm Reply

    I found your site trying to find out what’s wrong with me. I have what they think is a sinus infection and told me to take mucinex and Flonase. The next day I was worse and was prescribed levofloxacin 500mg daily and after ONE dose, I started with extreme anxiety, restlessness, chills, calf pain and tingling in my foot. I stopped taking the levofloxacin but was told to take some ibuprofen for the leg pain. I was seen in the ER the next day and they switched the antibiotic to a z-pack and said my leg would get better. Two days after that ONE dose, the anxiety has subsided some but my leg is so sore from my hip down, feels so weak, and my joints are popping. I still am having the chills pretty bad. I am hoping that this will start getting better and not worse as I am leaving on a trip in 6 days… and suggestions on how to correct the poison I put in my body would be greatly appreciated!!!

    • L February 13, 2017 at 5:06 pm Reply

      So sorry Sarah…yes injuries can occur from as little as one pill. First, do NOT take ibuprofin or any other NSAIDs or steroids. Up your magnesium intake, take a good probiotic, avoid GMOs and gluten (much of this is connected to the destruction of good microbiome in the gut) and avoid any nonorganic meats (possible antibiotics). If you scroll though Floxie Hope you will find a great many more suggestions. Oh, and avoid fluoridated water too.

      • Sarah February 14, 2017 at 3:44 pm Reply

        I can’t believe one pill has done this…. I just read the updates and ordered the magnesium and vitamin C. I have only taken Tylenol and at that only twice both 160mg. I take a prenatal vitamin already and that has calcium in it. I haven’t been able to eat in days so I am sure I am depleted nutritional already…. I was on Flonase and have since stopped that as well. I have told all the doctors and they just believe I am dehydrated but I am so scared I am damaged for life now!

        • Virginia February 15, 2017 at 5:14 pm

          Sarah, I know how scary it is to be floxed, but after just one pill, I doubt that you are damaged for life. After such a small exposure, you are very likely to fully recover. Time is your best ally. Be very gentle with your tendons and never push past pain. I also take lots of Magnesium and vitamin C and they may have helped accelerate healing.

    • Bob February 13, 2017 at 5:13 pm Reply

      I would start talking magnesium and calcium immediately. The calcium binds to the drug which has massively depleted your magnesium. I would also order some spray on magnesium oil right away. If you have any naturopaths or functional medicine doctors near you a nutritional IV would be helpful. It will take some time to heal. You will probably get some more advice soon. Try not to panic.

      • Sarah February 14, 2017 at 3:45 pm Reply

        I have calcium in my normal vitamin and shouldn’t have any of the drug left in my system as I only took one pill on Saturday…. I ordered the magnesium. I am so scared I am ruined…

        • Bob February 14, 2017 at 6:26 pm

          Try not to panic. Most people recover. It may not be as fast as you would like.

        • charlottejacobs February 19, 2017 at 11:23 am

          Sarah You only took one pill. You will recover I just sense you will. Take your magnesium and calcium plus vitamin D3 and Vitamin B12. If u order online they will deliver the next day. Not advertising either.

      • Sarah February 15, 2017 at 8:26 am Reply

        I got magnesium but I think I got the wrong stuff…. it is magnesium stearate?

  8. Mark S February 14, 2017 at 12:20 pm Reply

    Hi All,

    Been an on and off poster here for about two years. I think it’s important to bring up the issue of manganese and how it plays into what has happened to us. No, not magnesium. MANGANESE. This goes virtually ignored on all support groups that I’ve seen and I don’t understand why.

    1. Manganese chelates fluoroquinolones, especially ciprofloxacin! That means when you take a FQ drug, all the manganese in your body is going to bind with it, just like happens with magnesium and other trace minerals, and your body will dump it as waste.

    http://www.ncbi.nlm.nih.gov/pubmed/23444035

    2. Manganese detoxifies your mitochondria.

    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2067987/

    3. Manganese is necessary for endocrine function.

    https://books.google.com/books?id=HTUDXnJwVwIC&pg=PA251&lpg=PA251&dq=manganese+polydipsia&source=bl&ots=Tz15XwMjap&sig=9eNXmR5C6qSKvLMdYCsrsxG6ryA&hl=en&sa=X&ei=LOMcVZ7tC5G0oQTZxYCQAw&ved=0CCwQ6AEwBA#v=onepage&q=endocrine&f=false

    4. Manganese is also a necessary nutrient for wound healing… in other words, you can’t make collagen without it.

    https://books.google.com/books?id=vhni0jStgWYC&pg=PA155&lpg=PA155&dq=manganese+deficiency+collagen&source=bl&ots=vO-JbTGCMl&sig=SA9dOLOqmPcep_JiMyg-hA-FGfI&hl=en&sa=X&ei=9MccVa7bDZetoQTQ64HwDA&ved=0CGkQ6AEwDQ#v=onepage&q&f=false

    Studies have also shown that Manganese inhibits the body’s absorption of these medications. Which is why they recommend avoiding taking them together. Studies also show that men have a harder time absorbing manganese in the first place so men may be more prone to connective tissue problems when taking a FQ.

    As far as I can see with all my research, it’s pretty simple. FQ’s disrupt the collagen matrix. We know this. But what specifically? Well, if your body doesn’t have any manganese left, how is it suppose to produce collagen for strong tendons? How is it suppose to produce cartilage and synovial fluid for properly functioning joints? How can it produce necessary digestive enzymes? It can’t. Even more interesting, it has been shown that magnesium supplements hurt the body’s ability to properly absorb manganese. This especially stood out to me because after I was floxed, and I started taking nothing but magnesium in large doses, my knees cartilage wore away and seemed like there was no lubricating fluid left in them. Was this because the Cipro took away my manganese and magnesium worsened the fact?

    The recommended amount of manganese daily is only a couple mg. However, I think us floxies are a special case and are dangerously deficient. I take 10-20 mgs a day along with co-factors such as Vitamin C and E, and a joint formula. I think I have been making strides and it could be our silver bullet in regards to why we have connective tissue problems.

    THIS IS JUST MY HYPOTHESIS. But I have spent much time looking into the matter and would urge other people experiencing the same symptoms to looks into manganese at your own discretion.

    • Agata February 14, 2017 at 3:13 pm Reply

      Thank you very much for explaining, this is important to know. Thanks

    • Lisa February 15, 2017 at 7:22 pm Reply

      Thank you so much, Mark! I know that a couple of floxie friends have noted that their levels of manganese have been really low. You may be onto something. I appreciate this hypothesis very much!

  9. A February 15, 2017 at 12:00 am Reply

    Has anyone else had intense/weird, vivid dreams while on Levaquin or other flox med? The kind where you wake up shaken up because of how intense the dream was? I definitely had them while on the med and I seem to still have them here and there- even quite a while after stopping them…

    • Lenny February 15, 2017 at 2:36 am Reply

      Same for me. I had a lot of horrific dreams short after stopping the medication and on and off since them. I realized that they are worse when i do detox treatments. This is logical to me, because detoxins mobilizes toxins which where ealier stored in the tissue. Its a art on its own to not only mobilize the toxins, but to rid of them too.

      • A February 15, 2017 at 9:26 am Reply

        What do you do as far as detoxing?

    • Lisa February 15, 2017 at 7:20 pm Reply

      I wonder if the mechanism for this is the same as the mechanism through which Lariam/mefloquine gives people horrible dreams. Mefloquine is a cousin drug to the fluoroquinolones.

      Personally, I have really vivid, though generally good, dreams. I always have though, so I don’t think that’s from getting floxed.

  10. Sarah February 15, 2017 at 9:05 am Reply

    What type of magnesium supplement is the best? I bought magnesium stearate but I think that is wrong as it does something to the T cells….

    • Lisa February 15, 2017 at 7:19 pm Reply

      The most commonly positively reviewed form of magnesium is magnesium “oil” which is actually magnesium chloride. You apply it to your skin and it soaks in from there. A lot of people also like magnesium threonate because it has better CNS penetration.

      • Sarah February 16, 2017 at 1:41 am Reply

        Thank you…. I am not sure if all that is going on with me is related to the one levofloxacin 500mg dose. Prior, I had a fatty liver and had no appetite for about a day. I am now 5 days post taking it, I feel horrible. My whole body hurts, I pop every time I move, my temperature drops into the 96 range, and my insomnia and anxiety are killing me. I have read on a lot of things to watch taking the magnesium if you have liver problems. Also I am scheduled for a Ct scan of my abdomen tomorrow with contrast. I am still not really eating or drinking and all of this is scaring me out of my mind

        • Lisa February 16, 2017 at 7:06 am

          Hi Sarah,

          I heard that taking dry lecithin (it comes as an oil and as a powder, apparently the powder is the way to go) is good for treating fatty liver. Please be careful with supplements since your liver is not operating optimally. Check with a doctor and/or naturopath before taking anything.

          Do you take hormonal birth control? If so, that can contribute to liver problems.

          I know that what you’re going through right now is Hell, but please try to believe that it will not stay like this forever. Pain of all types ebbs and flows.

          Being scared and anxious is reasonable, but do whatever you can to get those emotions under wraps. Stress is horrible for everything. Of course, you’re in a stressful situation, but still, try to breathe and/or meditate, or do whatever helps you to get through stress and anxiety.

          Hugs,
          Lisa

        • Bob February 16, 2017 at 5:07 pm

          When I was in floxed a glutathione IV helped me immensely. I also have a fatty liver. Glutathione helps your liver to detox. GABA @ 500 mg helps with sleep and anxiety. The effect of fq’s on the nervous system can be terrifying but you will get better.

        • charlottejacobs February 19, 2017 at 11:26 am

          SARAH

          I just sent you a reply then saw this. Have u had your thyroid hormones and thyroid antibodies checked ?

        • Jason February 19, 2017 at 11:38 am

          Glutathione also damages hundreds of people. I posted around 4 such people’s stories 2 months ago or so, and then very shortly after that 3 people here posted how they were also damaged.

          Highly toxic people such as Floxies ROLL DICE taking Glutathione in ANY form, but especially IV. Roughly 30-40% of people WILL have a bad reaction, some extremely bad. It might not happen on the first dose, or even the 2nd, but it WILL happen, some get screwed right away others after 2nd or 3rd dose.

        • Jason February 19, 2017 at 11:40 am

          There are two more that I just seen post today, here is one:

          Recently I had about 3 glutathione ivs in a period of 6 weeks .. latest one being 2 weeks ago. Well two weeks ago all hell brook loose. This however was at the same time I tried a new herb for Lyme called a-bart. I originally thought I was herxing from the a-Bart and as I started to feel better after detoxing quite a bit I took some oral liposomal glutathione on Tuesday. Within an hour of taking it my symptoms came rushing back (lower back pain, jaw pain, palpations, sweating like crazy in my sleep, leg pain is horrendous) and have progressively gotten worse . I feel poisoned

        • Jason February 19, 2017 at 11:42 am

          Here was one of the replies to the above post:

          “The same happend to me. During naturopat treatmetn for Lyme she gave me 4 IV glutathione. I had reaction after 2nd day of first receiving. She told me it is imposlible that happend due glutathione. I quit a treatmetn because I felt very sick, toxic. After 5 weeks I have lots of new neuro symptoms. It is horror. I was so weak, nothing helps me.”

        • Jason February 19, 2017 at 11:47 am

          Again there are ways to boost Glutathione in the body which is MUCH better than trying to supplement it anyway, and much safer with no risk of damage.

          People also need to avoid ALA for the same reasons. It can be a helpful supplement when taken correctly and can do a LOT of damage when it isn’t

        • Jason February 19, 2017 at 11:53 am

          Oh just seen one more, this is just from TODAY folks. I could keep posting these forever:

          “Two days after a glutathione IV by my lyme doctor I couldn’t feel my feet and then a few months of a supplement w/ALA in it scrambled my brain. Treating all the damage this has done to adrenals, etc. still have significant neuro issues but am praying these will get better in time.”

  11. Pat February 15, 2017 at 3:40 pm Reply

    I was looking for a little guidance and any advice is appreciated. I was put on Levaquin and Prednisone for a sinus infection two weeks ago. I ended a 5 day dose of Levaquin on Feb 3rd and had an outbreak of symptoms on Feb 8th. Looking back I had some early signs from the moment I started taking it but it was moving a heavy box that really brought it all to my attention. Burning muscle pain, joint pain, tingling in my fingers and numbness in my right hand, tightness in my calfs and legs and panic attacks. The pins and needles only lasted the first 36 hours and the burning pain has subsided but I still dont feel right. My muscles are tight and joints ache and pop and if I do any activity even carrying bags for an extended time my arms ache like I just got done working out. I had two questions.
    1. I am only a week out of when my symptoms first really started. I am beyond scared of what is to come next. I feel like some of it has lessened from that first day but everything I have read it seems like it will get worse before better. How long do these symptoms keep developing for? Is it ever in different scales from moderate to severe or do most hit a bottom point after some time?
    2. I can not find any hard list of supplements and dietary ideas to get started on only a collection of other peoples posts and ideas. I so far know that clean eating is key. Is that e-book that i found online worth the money? This is what I came up with so far any feedback is welcome.
    Magnesium 250mg chelated
    maganese
    whey protein
    tumeric
    creatine
    iron low dosage
    glucocismine
    Co enxyme Q10
    Colostrum
    NAC
    D3
    K2
    Vitamin C
    Calcium
    probiotic
    It seems like a lot to be taking at once. Do you guys still take a multi vitamin or just a regiment of supplements?
    Thanks again

    • Virginia February 15, 2017 at 4:54 pm Reply

      Pat, your symptoms may not get worse; everyone is different. Damage can last a year or more, but again, everyone is different and your symptoms might subside soon, and you may be past the worst of your damage. I know it’s scary, but you’re doing the right things: educating yourself and taking supplements. I’ve taken all but 3 on your list, and they might have helped. It’s hard to know if they helped, or just the passage of time. Be very gentle with your tendons and joints and don’t ever push past the pain. You might want to take more Magnesium. I take 500-600 a day. You know it’s too much if you get diarrhea.
      I take a multi vitamin and extra B as well.

    • Tristine February 15, 2017 at 7:06 pm Reply

      Pat – I’ve also started taking this supplement called ‘Protandim’ to help restore my body from the oxidative stress imposed from the floxing. This brand supplement has two types; 1 that helps with oxidative stress (which includes turmeric in the supplement) and the other is meant to help repair and strengthen mitochondrial DNA. I’m currently nursing my 4 month old and got floxed when she was 2 & 1/2 months, so the one for oxidative stress appears to be safe for me, but the other is questionable so I haven’t tried it yet. I’m not exactly certain if this has helped my recovery or the additional cocktail of supplements (magnesium, calcium, pre-natal vitamin, pro-biotic, omega 3’s, and reducing fluoride sources – already was eating a diet consisting mostly of organic/non GMO’s) I’ve been taking in addition to protandim, but it seems to have helped ease some of the joint pain/stiffness that I’d feel throughout the day and appears to be isolated to when I wake up in the morning and when weather systems come through.

      Since I’m choosing to continue nursing (aiming until she reaches a year), my options for supplementation are limited. However, after about a month of this combo, it has eased up quite a bit for me with the residual issues.

      I hope this info helps….

    • Lisa February 15, 2017 at 7:17 pm Reply

      Hi Pat,

      I’m so sorry that you’re experiencing fluoroquinolone toxicity, but I am glad that you found us! Both Virginia and Tristine’s suggestions are wonderful and greatly appreciated. It sounds like you are on a good track. Take a few deep breaths and tell yourself that you will be okay – you will be. Everyone’s timeline is different, and I can’t tell you exactly what yours will be, but I encourage you to try your best to believe that you will make it through this. Hope really is helpful.

      Here are my basic tips for how to approach this – https://floxiehope.com/2015/10/12/im-floxed-now-what/.

      One of the best things that I did early in my floxing was I took a class called Mindfulness Based Stress Reduction. If you can find a class on mindfulness and meditation like it, I highly recommend it. If not, there are tutorials on youtube.

      We’re here for you as well.

      Hugs,
      Lisa

    • L February 15, 2017 at 10:53 pm Reply

      Looks good Pat and SHAME on your doctor…he should have used a non-flq and definitely not prednisone at the same time. I would agree with Virginia about upping your mag…600-800—and if you avoid the citrate, diarrhea shouldn’t be a problem. Try mag threonate or orotate. Also it doesn’t get mentioned here much, but in the late Dr Cohen’s book he lists mag and vitamin E as his first two supplements to take.

      • Pat February 17, 2017 at 7:58 am Reply

        Thank you all for the supportive feedback. I have started a regiment of a multi vitamin, vitamin c, magnesium citrate (can’t find others in a store have to order it) and a strong probiotic. I tried taking Advil and it aggravated my calves and muscles to no end. Then I read that it has that effect on some people. I was wondering if you guys spread the magnesium dose through out the day or take it all at once. I started slow with 375 citrate and 100 oxide in the multi vitamin and haven’t had stomach issues. I was thinking of upping the citrate to 500 but didn’t know if I should stagger taking the pills. Also has anyone had any success with Salmon oil with omega 3s and EPA & DHA? Thanks again.

        • L February 17, 2017 at 10:19 am

          HI Pat, I was taking the mag 3 times a day. Also I think it is important to have the omega 3 EPA, whether you are floxed or not. I had some heart issues from the cipro, but the omega 3s are also supposed to help with joint pain and inflammation which seems to affect most floxies

        • Pat February 17, 2017 at 11:10 am

          Thanks for the feedback. Just got done at neurologist. He wants to rule out anything else to be sure it’s a levaquin reaction. Going for blood work, xrays, MRIs, EMG testing and ultra sounds. He said since you are on no medications and have no history of any problems it very well may be. At least he was open to the idea. Not sure what all this testing will show.

        • L February 17, 2017 at 11:39 am

          This is what happens. We are sent from doctor to doctor to doctor, for tests and more tests because they refuse to believe it could possibly be the FLQs. I finally stopped seeing allopaths, and started turning things around with an ND. Btw, most tests will come back negative because as Dr Todd Plumb states, the injuries are functional, not structural. Dr Jay Cohen, in his book also says that more nerve tests (especially the large ones) will come back negative. I personally would avoid MRIs—you don’t need radiation on top of everything else. Ultra sound is good. But at some point I am guessing you will get doctor/test fatigue.

        • Lisa February 17, 2017 at 12:17 pm

          A doctor who is open to the idea of fluoroquinolone toxicity is a God-send. I think that getting your thyroid, parathyroid, and hormone levels tested is a good idea. I think that FQs cause endocrine problems in many people. A messed up thyroid (either hyper or hypo) can make you feel like death. Here is a great article about the connections between fluoroquinolones and thyroid dysfunction. https://www.hormonesmatter.com/fluoroquinolone-antibiotics-thyroid-problems-connection/

        • Virginia February 17, 2017 at 2:29 pm

          it’s best to stagger the Magnesium doses. I divide mine throughout the day (500-600 mg a day)

  12. Michael Teeter February 17, 2017 at 12:38 pm Reply

    Hello everyone,
    I wish all of you a speedy recovery and future good health. It has been 5 years since I was Floxed. Remember take one day at a time and think everyday is a good day. Don’t focus on the past focus on the positive and avoid the negative. I had to learn to let my anger go. I have learned humility and patience. I really sympathize with other people now.
    I have been disabled for awhile but I do notice small victories that make me happy.
    Lisa as you are aware I was diagnosed with Adult Autoimmune Enteropathy about 2 years ago. I have been seeing a specialist at the Cleveland Clinic. They feel that the fluoroquinolones brought out the autoimmune response.
    I go to doctors in Grand Rapids, and Lansing. I have a great ND who has helped me quite a but. I have met many Fellow Floxies these last few years. I found a great Chinese acupuncturist who I love. My physical therapist is amazing. I run my rife machine twice a week. I keep a food journal. I take IV therapy and I will be trying CBD oil under a doctors supervision.
    Unfortunately I am still on the steroids. My hope is that the CBD oil will help me come off them. They have had me on all kinds of meds since my Cipro Poisoning none have helped. Plus I do not trust big Pharma.
    I will be seeing a few specialist in the near future at Age Management Clinic in Grand Rapids, MI then a doctor in Greenville, MI. I am also going to the University of Michigan to have a GI specialist so I can get help a little closer to home. I still will be seeing my GI doc at the Cleveland Clinic as well.
    I am very thankful to all the Natural paths that have helped me, and I am glad to have met people like all of you.
    last month I was only 114 lbs. I suffer from malabsorption and dehydration quite a lot.
    My levels drop all the time. I think that Cipro messed with the collagen in my intestines and left my tendons alone. I am now 136lbs. I can walk with my cane and I do get to go fishing once in awhile.
    Well I wish you all the best and if there is anything I can do to help anyone. Please ask.
    Sincerely Yours,
    Michael.

    • Bob February 17, 2017 at 3:08 pm Reply

      Michael where do you live?

    • Kurt February 17, 2017 at 8:52 pm Reply

      Great post Michael. Love the positivity. Wishing you a great 2017 and beyond…

  13. moldandlymeillness February 17, 2017 at 8:11 pm Reply

    Hi I was wondering if you could tell me why ibuprofen triggers the toxic reaction with floroquinolones? I had the same thing happen to me when I had a toxic reaction to a steroid. Three weeks later I took ibuprofen mixed with dmso and it kicked up all the steroid symptoms majorly and i realized it was still in my body. DMSO greatly potentiates medications its mixed with. That was seven months ago and im still struggling greatly. Any info would be appreciated as to why that may have happened. The next time I tried to take ibuprofen after that I could tell it was extremely toxic to me after that. Thank you

    • SM February 18, 2017 at 5:45 pm Reply

      Your message was a bit confusing to me- that’s a me thing, not a you thing. But to answer the question of FQs and ibuprofen, yes. Ibuprofen can absolutely trigger FQ reactions. Plenty of floxies are “fine” with FQs, take ibuprofen weeks later and BOOM. Many floxies, including myself, would never touch ibuprofen or steroids.

  14. SM February 18, 2017 at 4:16 pm Reply

    Someone a while back mentioned a mag protocol from a FB Group. I’ve since joined the group and read a lot. It’s a huge group, like 30,000+ people I believe. Anyway, the protocol gave me lots of insight into what I had been doing for years. As a 180 pound male, the idea of taking 500-600 mg of magnesium daily (which I’ve done for almost two years) is almost laughable based on that group. B6 and boron are needed cofactors- I wasn’t taking them. And their recommendation is 5 mg of mag per pound of body weight as a MAINTENANCE dose. That would be 900 mg! If that protocol is correct, my 500 mg without cofactors has been way too wimpy. Not even close. I’m not suggesting anyone do this. Do your own research please. But if that 5 mg/pound dosage is correct, and we truly are deficient in mag, it’s no wonder many don’t bounce back. I’m not sure if mag will help me, but if I need it, 500 mg isn’t going to cut it. Especially without the necessary cofactors!

    • charlottejacobs February 19, 2017 at 7:11 am Reply

      Hi Have you got a link to the forum please?

      • SM February 19, 2017 at 8:48 am Reply

        It’s called the Magnesium Advocacy Group. I’m not trying to advertise here- just passing on information. There are other floxies on there. I searched flox and Cipro and several threads appeared. Interesting information at the very least.

  15. Pat February 19, 2017 at 8:14 pm Reply

    Does anyone have any advice for a good detox protocol to follow. I am only 16 days from finishing the does of levaquin and have been taking Magnesium, Vitamin E, Vitamin C, a probiotic and a multi vitamin. I had read about people saying detox was the first step and wanted to know where to begin. Thanks again.

    • Stephanie February 19, 2017 at 8:27 pm Reply

      I recommend you going to a naturopath or a homeopathic Dr to get a monitored detox. I’m severely floxed and have wonderful detox Dr at my naturopath who monitors it all and she ensures that I’m okay and has explained to me that it’s very easy to do damage to yourself so if you have a professional help you they can help monitor you and set up a plan that is good for you. There is no one way to go about any of this so a plan that is made just for you is my suggestion

    • L February 19, 2017 at 8:31 pm Reply

      You might want to pick up something like flor-essence

  16. Katie Kay February 20, 2017 at 10:06 am Reply

    I was given Cipro as a precautionary antibiotic after surgery (worries about infection). 500mg twice a day for 10 days. The doctor nor the pharmacist gave me any info on tendon issues. I had to look it up and connect the dots. I’m now 2 months out. Sometimes I have terrible achilles pain. Wearing 2 cam walker boots most places as my ankles/legs feel dreadfully weak. (Thankfully was able to go to an orthopedic doctor and tell them it was absolutely the Cipro. She’d seen this before and didn’t argue, so I didn’t run into the gamut of tests, etc and questions…we knew from the get-go what we were dealing with)

    My question is…what would you suggest for pain? My new “norm” is a pain level 2-3 with it flaring badly at times (especially if I try and do too much). The doctor gave me some Tramadol (50mg) which I take once a day, but it doesn’t help with the bad times. Using ice on my ankles/legs definitely helps, but I wonder how people deal with the pain management. Anyone have any thoughts?

    • charlottejacobs February 20, 2017 at 2:43 pm Reply

      Kay what did the orthopaedic dr say about any possible remedies or help with mobilising? IDS

      • Katie Kay February 20, 2017 at 2:55 pm Reply

        Well? I was given 2 of the cam walker boots, and was told the damage may be permanent. I have another appt in a couple weeks. That’s about all she shared with me at the initial visit. I figure I’m in for a long term of adjusting and/or working towards getting better than I am now. I wondered what other folks did for pain management, though, in this long long middle of the road time when it can flare dreadfully bad, but I know that good days are just that..a day..and not me actually well (at least not yet!)

  17. charlottejacobs February 21, 2017 at 10:58 am Reply

    Has anyone on here suffered insomnia?

  18. Lisa February 21, 2017 at 4:45 pm Reply

    Here’s a 15% off coupon for uBiome microbiome sequencing – http://ubiome.refr.cc/LNV6NSL. I thought it was interesting – though it turns out that my microbial diversity stinks, both literally and figuratively. I’m in the 11th percentile for microbial diversity. :/

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