This site is to give HOPE to those who are suffering from Fluoroquinolone Toxicity Syndrome as a result of being poisoned by fluoroquinolone antibiotics – Cipro, Levaquin, Avelox, Floxin, etc. It contains stories of healing.
Cipro, Levaquin, Avelox and all other fluoroquinolones are dangerous drugs that can have devastating effects that cumulatively I’ll refer to as Fluoroquinolone Toxicity Syndrome or Floxing. Fluoroquinolone Toxicity Syndrome/Floxing includes damage to connective tissue (tendons, ligaments, cartilage, fascia, etc.) throughout the body, damage to the nervous systems (central, peripheral and autonomic), and more. The damage done by fluoroquinolone antibiotics can destroy a person’s quality of life or even kill them. Certainly, there is a time and a place for drugs with dangerous side effects. If you find yourself in a septic shock induced coma, fluoroquinolones may save your life. Unfortunately, these drugs are not being reserved for life or death situations. People are being prescribed them for urinary tract infections, suspected prostate infections, upper respiratory infections, as a prophylactic for travelers’ diarrhea, ear infections, pink eye, etc. Thousands of people have suffered needlessly from the devastating effects of fluoroquinolone antibiotics, when another, safer antibiotic could have, and should have, been used.
The damage done by fluoroquinolones is largely unacknowledged by the medical establishment and an accurate diagnosis, compensation and relief are difficult to come by. There is no known cure for Fluoroquinolone Toxicity Syndrome/Floxing. However, many people continue to LIVE after being poisoned by fluroquinolones. They find healing, recovery, perseverance, compassion and hope. These are their stories.
This site is meant to give hope for healing to those who are adversely effected by fluoroquinolones. It is no way meant to disregard the pain of those who are chronically suffering from the horrifying effects of Cipro, Levaquin, Avelox or the other fluoroquinolones. There are people who don’t recover. Their stories are real and they matter. There are also people who are able to recover and I share their stories with the hope that they inspire others, or at least give hope that recovery is possible.
Here is a New York Times article about the dangers of fluoroquinolone antibiotics – http://well.blogs.nytimes.com/2012/09/10/popular-antibiotics-may-carry-serious-side-effects/?_r=0 – more news stories, research papers and other resources can be found on the “Links and Resources” page.
Here is a Facebook group that is a great resource for those going through Fluoroquinolone Toxicity – https://www.facebook.com/groups/floxies/
Featured post – I’m floxed. Now what?
The Fluoroquinolone Toxicity Solution Ebook has helped many Floxies to recover, including Daniel, Cindy and Ruth. As a bonus, you will also receive The Floxie Food Guide – a book of diet guidelines to help you through fluoroquinolone toxicity:
Hi all,
Been a rough few months and I am still don’t understand what is happening.
Long term Floxie. I’ve followed a strict paleo diet for nearly 3 years. Take no supplements as I find myself sensitive to most. Have felt decent and stable for quite some time, but I posted awhile back about how I have gotten worse from either re-introducing coffee or increasing the intensity of my exercise. I started to have one cup of coffee a week (which I have now stopped), and also started running several miles once a week.
Ever since starting to do these things I have had worsening head pressure, fatigue, anxiety and brain fog. I also started having digestive issues, which I have NEVER had before.
The fatigue is the worse though. I feel intolerant to exercise now. I am so exhausted after any physical activity I do, even low level stuff like walking. Along with the exhaustion I feel anxious, have difficulty focusing and am very depressed. I do not feel like myself. It lasts for days after exercise. When I am in this state other activities that I once enjoyed are exhausting too, including reading or even just watching television. I get exhausted trying to focus on nearly anything, and end up wanting to go to bed — which, unfortunately, does not even seem to help. I wake up fatigued after 8-9 hours of sleep.
So, what, do I suddenly have Chronic Fatigue Syndrome now? It sounds like I have most of the symptoms to get this diagnosis.
Or is this just another stage of Fluoroquinolone Toxicity?
Ultimately, does it even matter what label we give it? Is the origin of fatigue similar for CFS as it would be for FQ toxicity?
I am so afraid that I now suddenly have CFS. Does anyone have any insight on CFS as it relates to FQ toxicity?
My hope is that maybe my strict paleo diet, which was naturally low carb, was enough when I was only active sporadically — but was not enough for the increased exercise I started doing. Still, after upping my carbs, my fatigue does not seem to dissipate…
Hi M,
I experience the same tiredness,after any physical activity.Things like working in the garden really exhaust me,and not the kind of exhaustio one normally feels,and which gives you a satisfying feeling,but af a,before,being floxed,unknown kind.Feels like being sick to the bone and sometimes lasts for 2-3 days.
I guess it’s caused by the damaged mitichondia,and I theorized,a while ago,that forcing cells to create more mitochondrie,things would get better over time.Later on I found out that Dr. Carola Dean has this same theory.But there are some doubts>because the mitochondria,and the mitochondrial DNA are damaged,the newly created mitochondria might be damaged as well.I hope that Lisa has found some info on this subject and want to share it with us.Or somebody else?
Since I experiment with this theorized method,I do feel less sick afterwards,and I have a bit more endurance but,untill now,it didn’t work the miracles I hoped for.Better:yes.Like before I was floxed? Not by far.But every bit of improvement is very welcome,and regarding my age,more than I expected,to begin with.
I think both the increased intensity of your exercises,and your low carb diet might be the problem,here.And don’t forget that exercising causes you to sweat,and lose minerals like magnesium and zinc.Coffee might add a bit to tah mineral loss but because it’s only one cup a week,I don’t think this adds up much to this exhaustion (coffee,in high quantities,can deplete the body of magnesium and zinc0.
I would advice you to be very carefull,regarding nyour tendons,as well,because they are weakened since you were floxed.Don’t overdo,start to build up your condition very slowly;walking is better than running.
Definition…………..Chronic fatigue syndrome (CFS) is a complicated disorder characterized by extreme fatigue that can’t be explained by any underlying medical condition. The fatigue may worsen with physical or mental activity, but doesn’t improve with rest. This condition is also known as systemic exertion intolerance disease (SEID) or myalgic encephalomyelitis (ME).
ANYONE (in the medical field) who has bothered to read the warnings or look at the long list of side effects and get them self a little acquainted with Fluoroquinolone Toxicity can easily see that the underlying reason for the (unexplained) extreme fatigue is brought on by the system being poisoned by the use of a Fluoroquinolone antibiotic.
M
Exercise causes the body to eliminate toxins. My theory is that your lack of exercise the last few years has allowed your body to section off the Fluoroquinolone toxins so that they aren’t causing you problems but when you started exercising those toxins began to be released. The release of those toxins has caused the new symptoms.
There are quite a few articles on the internet that speak to how the build up of toxins can be released by exercise. Here is one written in simple language – https://www.huffpost.com/entry/signs-of-systemic-toxin-a_b_1214624
I know personally that I have forced myself to continue exercising while I have been recovering from floxing. You have to keep exercise to paramaters your tendons and joints can handle but this keeps those toxins moving and keeps you a little more healthy overall.
I think you have a choice here. Stop exercising and I suspect your problems will subside in a few months or keep exercising and expect additional and continued symptoms until the toxins (flurorquinolones) exit your body. Sorry to hear about your problems with supplements because I would agree with Henk that with renewed exercise, detoxification, and general exercise you might benefit from some minerals and vitamins. I too have been eating mostly paleo for about 8 months now. It actually helped me get over the final hurdles with my digestive problems and except for head pressure and light headedness I am doing much better.
Good luck
I am worried about this tendon info I keep hearing about and wondered does this worry go away?? if the toxins are leaving does that mean that the tendons will return to almost normal??
Sheila, that is exactly the kind of none-answers I get, too. This disease has me asking questions that are always avoided. Like, does this ever go away? Can I wake up one day with a broken arm or leg or knee (or worse)? Will I wake up blind from detached retina? Will I end my life deaf, or lost in Alzheimer’s? Some forks here write stuff that would make Stephen King shudder.
Are we here to get better? If so, let’s start a list of what works, who it works for, and how well it works, and try to answer all questions.
I’m fighting for my life and I’m 71. I’m hard to beat, hard to knock down. I challenge everyone here to get well. Or die trying.
http://www.jessicawilliams.com
Jessica yes that’s what I would like too, some info on what is working to combat this I see magnesium listed and other vitamins and minerals and I too am worried about waking up with something new to deal with…..I don’t know whether to exercise to help release toxins like yoga and pilates do or avoid it, I don’t know what to expect I am a leg amputee so if anything gives out on my one leg that’s left is that permanent will I spend my life in a wheelchair? I mean my god I am so frightened by this and yet I really am not getting a lot of help…..I hate to admit it but I don’t have the energy to put into doing a whole long list of what to take and when to take it and what to take it with and adjusting every facet of my diet and lifestyle to accommodate this issue I am just too emotionally worn out to want to invest that kind of effort into something that may or may not even work…….
Hello Sheila and Jessica,I understand your disappointment about some questions not getting answered but the reason is as simple as it is annoying: after years of being floxed we just don’t know the answers. Sometimes a symptom seems to have vanished but then,all of a sudden,it is back.Sometimes the reason is known (even one cup of tea can bring a relapse),but often the cause of the relapse is not clear.
Meditation is always good but because (Hatha) yoga is much about stretching muscles,this might put too much force on tendons and muschels,so,be carefull.Even after almost 3 years (4 Cipro pills) my tendons are weak,and when I’m making a wrong move or putting just too much force on a muscle,there is some punishment.Not as bad as right after being Floxed,but enough te be worried.
There is so much,not yet known about being floxed,and,although some of the symptoms are “common”,there’s so many possible symptoms,and difference between floxies,that it is just impossible to do any predictions.We would like to comfort you,sure thing,but the only thing we can do,is being honest and tell you that for most floxies things improve over time. How long,how much,those answers are hard to give;too much factors involved.
I know this might sound silly but all this tendon talk has me concerned – what does a torn tendon feel like?? is it possible I have had this and not known that’s what it was?? It’s also a real worry for me since I walk on crutches being a leg amputee I walk on my wrists and use my arms for everything and in ways others don’t and obviously I abuse my one leg as it functions as two……. so I am getting worried about my future can someone explain a torn tendon and does it heal??
While I have heard of someone doing an exercise or something strenuous and the tendon just “blowing” I think usually there are signs that something is wrong earlier. I didn’t rupture any tendons, but the cipro did cause torn meniscus in both knees, and very early on, weeks after the cipro, I started getting popping in my knees (other areas too). It became painful for me to use stairs. So for that I definitely knew something was wrong. Would be curious to see if anyone else had something that just suddenlty “went” without warning.
that’s interesting cause I know I never had any joint popping till after cipro and my one knee started to just go weak and drop out so to speak – that can seriously injure me with being on crutches and one leg if that goes out I am on the floor…..and I have gotten weird swelling behind the knee only to disappear and then my ankle will swell and then it will be months before it does again and my arms feel super heavy and my elbows hurt all the time I even went into therapy for my elbows thinking it was too many years on crutches but the therapist said it was a nerve that was causing most of this, my dentist told me I had TMJ never had that issue either till after cipro…..
Question – are brittle fingernails and nails that split vertically up the nail a result?? is hair loss a result of cipro?? I already have skin issues from it and the tons and tons of floaters in my eyes is almost impossible to see and I am an artist and it’s almost gotten to where I won’t do any artwork due to the floaters I just read that this is also a symptom…….but the nails and hair loss are worrisome as the hair just doesn’t stop thinning out and my nails are horribly ripped and tearing all the time and my finger joints just feel swollen all the time
my floaters were awful…literally hundreds so it was like trying to look through gauze. Now I have very few. I also had hair come out in chunks. That stopped. Don’t know about the nails, but since this poison can destroy and all connective tissue, I supposed it is possible.
Hi Sheila,I cann’t tell you how a fully torn tendon feels but I had partially torn Archillea tendons,first on one side,and a few weeks later,shortly after the left one was healed,the right side one started hurting badly.I could hardly walk for over a month,and realized that the pain was a warning to not stress those tendons any further untill they were healed.My Magnetic Pulser helped reduce the pain,and,probably,to quicken the healing.
That’s why I’m worried about yoga,and prefer meditation,instead (I’m a “TM’er”,did a training in 1998).When practicing yoga,choose your Asana’s wisely; a (partially) torn tendon is no fun,and can take a long time to fully heal.
These are difficult questions to answer. Some people get better in months, some in years, and some continue to struggle. As for how long it takes to leave your body, that too is problematic. Some believe it continues to live in your fat cells; others believe the continued side effects are from damage to mitochondrial DNA. There are still just too many unknowns.
Lists too are tenuous. What works for one may not work for the other. I did well with glutathione, the mother of antioxidants, as have others. Then again, there are people on this site who say it brought on side effects. We are all so different. That is why it is not as simple as just “making a list of what works.” Magnesium would be at the top of the list for most people, but I even recall someone saying they reacted to that. Some may need folate, especially if they have the MTHFR gene mutation that prevents them from utilizing folic acid. Others may not need it at all. Almost everyone needs a good probiotic to help fix the ravaging of good gut microbiome. Unhealthy gut microbiome is linked to almost all disease. Fermented foods are also very good for this….unless you have mast cell disorder, which can also come from fluoroquinolone poisoning. IN that case, fermented foods need to be avoided.
Most would do well to add in coq10 (ubiquinol if over 40) to help the mitochondria. Dr Jay Cohen, in his book on fluoroquinolone toxicity mentions vitamin E, zinc, NAC (precursor to glutathione) in addition to magnesium.
So you can see, it is difficult to come up with a definitive list. IF you can find an integrative MD or ND who has treated floxies, that is helpful. If you would like to share what area of the country you are in, perhaps someone on this site can give you a referral.
Yes L you are right what I meant was it would be great to see a compiled list of things that worked for people so that people like me who are new to this site could read the list and see what things might sound like something we might want to try – I didn’t mean a list of what works 100% of the time cause it’s always different that’s why we all have similar but different symptoms – however, a list of things that worked for some leaving whether to try any of them up to the reader after researching it for themselves……. but gosh there are so many posts and so many repeats of the same ideas and suggestions and then the one post I might miss might have the one thing I needed plus I am a list person and like to see things simplified into a checklist – just knowing that magnesium worked for a few or manganese or leaving off fluorides etc. just a bullet list would simplify for us newbies as to what we could research…..sorry I wasn’t as clear as I should have been… I try to keep a notebook next to me now to try to write down what has worked for this person or that person so I can check it out later but a comprehensive list wow that would be so helpful
It can be overwhelming. One thing that might help is scroll through the actual stories. many of them, at the very end, have posted what worked/what didn’t…..
Sheila, Home made bone broth from grass fed animals are great for hair and nails. I put mine in a pressure cooker with some veg and garlic for around 5 and a half hours. Then I strain it and freeze it in small quantities to be used in gravies, soups, stews etc or just drink it. If you do this for a period of time I have every confidence yoyr hair and nails will improve.
thanks but I am such an animal advocate that I can’t do boiled bones I understand that gelatin is great I remember my mom drinking gelatin when I was little to get her hair and nails to grow…..so I know it works I just can’t do it….Thanks for the suggestion though…..It’s a horrible world we live in with this toxicity I did get the CoQ10 and I am slowly going to be adding other supplements I have been on probiotics even while I was taking the cipro so I hope that I kept my gut pretty clean even during the cipro ingestion…..but I am very careful about throwing anything at my system without giving it a while to adjust before introducing a second or a third supplement.
Does anyone else have the skin lesions?? I have little bumps that keep coming up on my arms and sometimes my leg it’s leaving scars all over my arms it’s embarrassing and I wear jackets all the time even in 92 degree weather…..anyone else have those??
I didn’t get those, but it just ravaged my skin, from the collagen damage they cause. My skin aged decades. Of course at the time, it was the least of my concerns, but now, after having spent decades working out and taking such good care of myself, I am pissed off!
I wonder though if what you are experiencing is some kind of mast cell thing. I did get hives all over my torso for about a month during my first post-cipro year and I know others have as well. I also read on one site listing possible cipro side effects “red skin lesions, often with a purple center” These skin things tend to be transitory from what I have seen.
I began getting blood spots under my skin when I jogged, looked like busted blood marks that would heal and go away. It would actually feel like a pin pricking me when it would burst. I also had severe inflammation around the eye and i stretched my eye skin out permanently.
Sheila, how about fish collagen powder from health food shops. Don’t know if you can do that. Here’s a good one if you can …Marine Collagen by Correxiko. It’s full of all the neccessary ingredients that you need, because from your post collagen is one of the answers to help you.
Hi M,
I believe all Floxie are dealing with Candida! (Among multiple other things)
Look up some sites on Candida.
When you start killing it off your symptoms will get worse, especially fatigue cuz your cells are constantly working overtime to rid your body of it.
There are many things that can help kill it and Exercise is one of them that’s probably why you got flared up.
I’m 5 years out and was feeling really good but I still had some low level issues so I decided to try killing Candida and my results were exactly as they predicted!
I got flared up in many areas including fatigue if it got too bad i’d lower the killing rate but I stuck with the program and after a couple weeks I felt better then when I started.
There are many ways to kill it. I use Wobenzyme as directed on the bottle and Borax 1 teaspoon diluted in 1 liter of distilled water kept in the refrigerator and from that mixture I take 1 or 2 teaspoons a day. Out of all the things I tried, with these 2 i have the least die off affects or flare ups and the best results feeling more healed as I go. And I also take 3 Doctors Best magnesium 1 in the morning, afternoon, and evening.
Whatever you decide to do, I’ll be praying for your healing and don’t get too discouraged it will get better😊
This a good site explaining the use of enzymes and other remedies for bacterial, viral, and yeast infections which can gain a foothold in a person after using antibiotics.
http://www.enzymestuff.com/conditionbacteria.htm
Just a heads up for everyone – please do your research I started looking into this and saw where the Wobenzyme can cause bleeding issues or coagulation problems so I continued to do research and here is what I found for what it’s worth: https://sciencebasedmedicine.org/systemic-enzyme-therapy/
Just another idea. Is it right for you? Would it help you? https://draxe.com/boswellia/
Seems like there would be benefits from it.
To all European’s, the BBC is doing a programme on fluroquinolone’s in the light of the EMA recommendations. They are interested in anyone whose been floxed since. I’ve sent my story and opinions so anyone who wants to join in the email address is alix.hattenstone@bbc.co.uk
Hi
Long story short – I tore my bicep tendon a couple months ago after taking levaquin and prednisone for pneumonia. My doctors are saying that there’s no way to tell if my rupture was induced by the meds.
I am now having increasing pain in one of my knees and achilles tendon and am very anxious that I may have another injury – is there a way to tell if I have damage due to taking the medication?
Thanks for your input!
PS – if you’re interested in the long version of my story, I’ve started documenting it here:
https://www.hikerstrong.com/levofloxacin-induced-tendon-rupture/
They always say ” couldn’t be the cipro or Levaquin or whatever” “no way to tell” I would bet good money it was from the fluoroquinolone. It tore both my meniscus. It eats through connective tissue. It also left me with so many hundreds of floaters it was like looking through gauze for the better part of two years. My suggestion would be to look into prolozone injections (procaine and ozone) to help the damaged areas heal naturally. Many NDs, sport medicine doctors, even some osteos now do this. And there is something else to look into…very new…exosomes, and I was about to do a post on that.
Of course your Doc would say that. Ask him why the FDA has documented this and warned against fluroquinolones as had the EMA. There is enough evidence now to prove it’s from fluro’s, and to give you prednisone at the same time has made it worse. Don’t take any NSAIDS, it could make it worse. Start taking magnesium straight away. Just stay away from MD’s most know jack. If possible find yourself a ND. Look under resources at the top of this page for further help.
By the way, since there was a warning already about giving steroids with fluoroquinolones, you might want to think about a lawsuit. Also, may I ask what state you are in? (There are also different pharmacy laws that may apply as well.)
Hey everyone…something interesting you can all investigate on your own, in your areas of the country, or in your country other than the US. It’s exosomes. They are now being used to help treat everything from Altzheimers’ to rotator cuff injury to pain. The cool thing about exosomes, unlike stems (from another person) they don’t have DNA. If you receive Stems from another person, you basically become a DNA mosaic of that person and yourself…but since exosomes contain no DNA, there is not that problem. After a near century of study, so far they appear to have no downside. They can be introduced via IV, or injected, or even used topically, for say diabetic injury, much like hyperbaric can. They contain hundreds of growth factors and more to help create a regenerative response.
Anyhow, you might want to look into Organicell exosome therapeutics (that s the one that my doctor uses) I don’t know much more than that…sat in on a discussion this evening.
That’s interesting info,indeed,but although a few clinics already offer exosome therapy (Advanced Rejuvenation in the USA,to name one),little is known about what exosomes really are,how they are generated and what their functions are.So,these therapy’s are experimental and might have long term risks,not yet known.Here’s some reliable info:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4906597/
well my doctor said that in decades of research they have so far found no down side. As for your citation, the author is with Cambridge Institute for Medical Research, which is funded by European Research Institute and Medical Research Council, which in turn do biomedical research. According to JAMA, 60% of that is funded by the pharmaceutical industry. I am not saying it has no validity, only that there could be bias.
My doctor was telling us how sometimes you will see a study of something like this, a non-chemical/ non-pharmaceutical, that seems to be going well. It looks promising. Then suddenly….crickets. The study seems to have disappeared off the radar. What happened? Well, oftentimes, it was pulled, because the drug company behind the study was actually hoping for negative results, trying to prove it doesn’t work. Then when they became aware that it DID work, that would need to stop it.
Again I didn’t want to get into some argument on the merits of exosome therapy. I only wanted to share something I thought was interesting and might offer hope to those who are feeling hopeless. That is why I said to investigate on your own.
Hi L.,I think that the story,your doc told,is quite strange.Exosomes are not yet fully understood;in fact,the firdt decades after discovery,they were thought to be debris,excreted by cells.Only recently researchers realised that that exosomes are no debris but play an active roll which is,yet,not fully understood,and research is slowly discovering more about them,bit by bit.
That’s the reason I am worried about a handfull of clinics is already commercialising exosomes,while so little is known.And the reason why,untill now,no downsides are found is a simple one:no research (which costs lots of money) is made untill researchers and funders are certain that exosomes are medically useable,safe,and financially interesting.
And remember that those safety tests are,way too often,not done the proper way,or even corrupted by bias and greed.The adverse reactions,following FQ use,where “minor,and very rare,most of the times only excisting between the ears of hypochondric patients”.
Entering a clinic,today, to give exosome therapy a try is,in fact,offering yourself to be a guinea pig.Wouldn’t suprise me if you will have to sign an agreement,preventing any damage claims which could heart the clinic.
Henk, I am not sure what part of my last response you did not understand: I wanted to offer something for people to investigate on their own, that shows great promise, and I was not interested in getting into a discussion with you on it. I know you put yourself out there as the ultimate expert on all things medical/scientific/pharmaceutical, ad nauseum. However, my doctor is an internist, pulmonologist and clinical care professional, who trained at UCLA as well as having extensive training in all aspects of functional and integrative medicine. You were not at the talk he gave. You did not hear the cogent responses he gave to the many questions he got nor did you see the slides, complete with studies. I will take his word over yours. You continue to tell people with great conviction what they should and should not do, which, I’m sorry, but it is just inappropriate not to mention legally tenuous for Lisa since it is basically “practicing without a license.” ALL of us here are only giving suggestions of what has helped us and others and what options readers might want to explore. I am sorry you have this compulsion to always be right, to always have the last word.
I just do my research,like you suggested,and give my opinion,based on the info I found. And if that info tells me there’s no,or not enough reliable research done on the safety of exosomes,I not just have the right,but the moral duty to write about my concerns.
After all,floxies are even more vulnurable than totaly healthy people and have to be very carefull when experimenting with these kind of possible solutions.There is a reason why only a handfull of clinics offer this exosome therapy,suppose.Better too carefull than not carefull enough.
Don’t react as if I attack you,personally; there’s absolutely no reason to do so. I’m just skeptical about the whole medical industry,which ruined my health with their “cures”.
Oh,and I am NOT putting myself out there as the ultimate expert on all things medical/scientific/pharmaceutical, ad nauseum.Nor am I “practicing without a license.”. You’re insulting me, with these accusations,and getting way too personal.Thank you!
When logging into the Floxie Hope page there’s a lot of information about the esommes ( spelt wrong sorry) Look at what they’re saying.
Thank you,Lisalisa12,I wasn’t aware of these articles.Quite interesting;I’ll read them as soon as I have time to spend on it.
Thanks Lisa Lisa. It does mention using exosomes to fight cancer. The accompanying article is also over 3 years old. I imagine quite a lot has been done in that time.
I am a new floxie. At 71, I was given Cipro for a mild UTI, in January 2019. My life has changed so much.
So sorry. That is infuriating on a number of levels. First, the doctor is completely out of touch since there was a warning a couple years ago that these drugs should NOT be used for simple UTIs. Second, there was ALREADY a warning for people over age 65. This doctor needs to be sued, and maybe the pharmacy too, depending on what state you are in and whether or not you were given a consult.
I would start on Magnesium. I took up to 800 mg for the first year. Good choices are L-threonate, orotate, taurate or glycinate. Avoid all NSAIDS, steroids, fluoride and any meats that might contain antibiotics. Also a good idea to start on a good probiotic. There is also a lot of other good information on this site. I will post something from Lisa, the site’s founder. Meanwhile if it were me, I would find another doctor (preferably integrative) or ND and sue this one. https://floxiehope.com/2015/10/12/im-floxed-now-what/
Everything L said I agree with 100% I was 71 years when I got floxed over four and a half years ago. I tried to sue then but the warnings wern’t what they are now. So when you feel better it’s something to seriously think about.
You are now in a marathon, not a sprint, so just keep going until you get there. I was in a wheelchair at one point as I couldn’t walk, but now I would say I am 90% better, some days even 95%.
Thanks, Barbara.
I will look into exosomes, and have already doubled my Magnesium/mangansese intake. I take Reishi mushrooms. My symptoms are severe pains in left rotator cup, joint pain everywhere, inability to sleep on my sides, exhaustion, weakness, nausea, and the feeling I don’t even look the same. I feel like a different woman.
I am a Jewish Buddhist. I chant the Nicherin Buddhism in Daimoku. I used to be a well-known pianist. Life is never without irony.
Thank you, everyone for the substantial help. This is when humans are best: when they help each other.
http://www.jessicawilliams.com
Jessica…If you want a list from people about what’s helped, here’s mine. I want to emphasize this is MY list and it may or may not help you.
I am over 4 and a half years floxed and I was 71 years young when it happened, just like you.
I spent a fortune on different vitamins and minerals in the begining as I was desperate to help myself. I did not notice any changes during that time. I noticed feeling better after the following.
Ozone Autohemotherapy,
Hyperbaric Oxygen Therapy
Bone broth
Magnesium oral and topical. I use Magnesium body butter on my tendons (from Amazon)
I would recommend CO Q 10 Ubiquinol although I noticed nothing, it felt right and it’s helped others.
Swimming in the sea, or a pool.
Resting after listening to my body.
Taking Kratom when the pain was unbearable.
CBD oil for insomnia. It reset my body clock. From being awake all night to 7 hours good sleep.
A positive attitude and not giving up.
From being in a wheelchair at one point to traveling long haul flights on vacation.
I still get flares, but not as severe and they last less time.
I am 90 to 95% better.
TIME is the key. Nothing will change quickly. For some things change quickly, others take longer. Accepting this will stop the despair.
Hope this list will help you get started on your research.
If you are on facebook there are fluroquinolone groups, but be warned some can get you down if you let it.
Thank you immensely. I deeply appreciate the suggestions. I am doing some of them already. Oxygen therapy (hyperbaric). Magnesium, Manganese, CoQ10, Bone Broth, CBD, Cannabis Oil, Nightly Cannabis tea (I know a grower). I also use Hyraulonic acid, Condroitin daily, and hot showers. I ache all over with the flox pain which is quite different than sore muscles.
My doctor, who I would never sue, because being litigious is not my thing, especially in times of great stress and pain. That’s all I need. Besides, he’s been my doc for 32 years.
I’m experiencing a time-dilation effect. It’s like being really stoned of hash. Months seem like weeks to me, and my memory is occluded.
Oh well, as Stan Lee said in the last “Captain Marvel” movie, “Well, the sixties were fun but now I’m paying for it.”
Sounds like you are doing all the right things. (My doctor tried to get me to do hyperbaric, but claustrophobia prevented me.)
I mentioned suing for two reasons. One it is malpractice and the only way these doctors seem to learn is if it costs them monetarily. Two, I was badly injured and to date it has cost me more than $45,000 since everything that has helped has not been covered by insurance. I just don’t want someone to regret later, after they missed the statute of limitations for filing a suit, that they did not consider their costs.
If you do not want to sue your doctor, please at least educate him so he doesn’t hurt anyone else. This is malpractice. I can only post one link, but look up fluoroquinolone associated disability and share that with him. Also, here are some letters from doctors, to doctors. I usually print out and take the first two. https://floxiehope.com/2016/05/25/dear-colleague-letters-information-about-fluoroquinolone-toxicity-from-doctors-to-doctors/
Yes, all that sounds good. Just don’t expect quick fixes. Time is now your main thing. You will find you have ups and downs, good and bad times, but just keep going until you get there. You are doing everything possible to help yourself. Some say a gluten, sugar free diet also helps. For me it made no difference. I don’t eat a lot of gluten or sugar in any form anyway. However others say this and fasting has helped them. I do know that when I eat less or go at least 14 to sixteen hours between eating I feel better. I eat a healthy mediterranian diet veggies salads, meat, fish etc, but no processed foods. I have two weakness’s wine and potatoes in any form, so I know I shouldn’t but I do indulge and to be honest the psychological effect does me good. Some people cannot tolerate alcohol at all and others are sensitive to different foods. I am not one of those people, so I guess I’m one of the lucky ones. Stay strong xx
I, too, handle alcohol (red wine) well. I can also drink coffee.
Hi Barbara- what brand mag butter do you use? After thinking things were finally improving I have been hit with a really bad relapse and my tendonitis is awful again. Are you suffering a heatwave again? Temps predicted up to 40° here today. Not helped by family visit and the dishwasher conking out! Grrr!
Hi Madge, It’s called ‘ Better You ‘ magnesium skin body butter. I put it on after a shower or at night before bed. Seems to help me. Got it on amazon. Worth a try, sorry your still suffering. Dam antibioctic. You’ll get back again.
Yep really hot here to 40° odd. I have been swimming every morning about 9.a.m. before the sun is on the pool. I have to say I feel better for it.
Know what you mean about family visits ha ha. Make them do the washing up.
Keep cool xx
I hope you two are talking in terms of celcius…otherwise i’m jealous. 101 here yesterday, which would be about the same. Bad everywhere. Damn climate change.
Madge,I think there is no difference between magnesium oil and magnesium butter.In fact,I’d prefer the magnesium oil.I make it myself,by dilluting 660 grams of Zechstein magn. flakes in 6 dl (600 grams) of destilled water.This is way cheaper that buying mag.oil,and it is the real thing! I can only find one trademark of magn.butter: “BetterYou Magnesium Body Butter”. It is only 100 ml,no indication of how much magnesium it contains and it costs € 13,95 ! This is an absurd price.I’d rather mix some fine grinded magnesium salt (Zechtstein is the best) with a good quality coconut oil,but that’s the way I do things to keep life affordable while going for the best quality my money can get.
It’s quite hot here,as well (38 to 40 degrees,for today). Good thing is,that the warmth may make you get rid of some of the poison(s),by sweating them out :-)) But you’ll have to drink a lot and take care not to deplete your minerals.My main meal,during these warm days,is a nice vegetable soup,with a mix of different vegetables,Himalaya Sea Salt,and quite a bit of Cayenne pepper. :-))
Strange weather,by the way! Now and then a very hot,but also very short period (just a few days),and then the temperature goes down and we have weeks of cool weather,most of the time grey and cloudy,and with temps that are low for the time of the year,especially in the evenings.And look here: a perfectly round area of showers that doesn’t move (the picture shows the past 3 hours) .Now press the “next 3 hours” button and it moves like the other clouds.It’s there since yesterday,since I noticed it for the first time:
https://www.buienradar.nl/wereldwijd/europa/buienradar
Oh,why it starts to move in the next 3 hours? Because that is a prediction,based on rules on how clouds act on wind,etc. The past 3 hour presentation is based on the real situation,and my prediction is that that strange round shower area will stay there for another while.Geo engeneering? Noooooooo! Absolutely not. Well,uhhh,maybe ;-))
Madge,I hope the relapse will live a short life and you’ll be fine,soon.
Have a nice,warm day.
Forgot to mention that I have a water destiller (+cheap and high quality destilled water),and my home made magnesium oil contains as much magnesium as the original Zechtstein mag.oil does (ca 31%) ,but it costs me ca. € 6 while the original costs € 49. Quite a differense ;-))
L that’s positivly cool ha ha
Hello, has anyone tried to take desogestrel (or do you have any ideas) to decrease the hormonal fluctuation during period and ovulation? I had this thought because I think this might stop the period completely. Unfortunately I am still experiencing bad stomach cramps (when nothing really works) and according to my calendar it usually occurs around ovulation and period. I am asking about your opinion because my doctor simply doesn’t know. This was actually my idea but as I was floxed I am unsure about the potential harms (like stroke….)? Thank you.
Barbara, L and Madge You were all very helpful in giving me advice about going through an endoscope and colonoscopy and how you did under sedation. I had my scope in mid June and was sedated with propofol for about 30 min. I am happy to report that I did ok with the sedation although it took me 3/4 days to get my bearings again. The scope results were ok too other then esophagitis from my acid reflux so I have to try and heal that. My Doc wanted me back on PPIs which I weaned off of when I got floxed. For now I am taking Zantac for acid reflux but trying to find more natural ways to cure it?? I am 2 years out from being floxed and still dealing with morning gut issues ( like morning IBS) and still waking up a little earlier then I would like!! Would you say that you kept on improving after the 2 year mark?? I feel probably 80/85% recovered but am hoping for some of these “lingering” symptoms to finally disappear!! I’m hoping to hear that healing seems to continue after 2 years out since you all are further out in your recovery!! Thank you again for your supportive advice in tackling the colonoscopy/endoscopy as it did calm me and take some of the fear factor away!!!
Glad the whole colonoscopy thing went well. As for the zantac, it is not something I would personally take, and it turns out most people have too little, not too much stomach acid. Are you seeing an ND or integrative doctor? Very early on my gut was destroyed, and I was taking enzymes, HCL Betaine (which is tricky to use without help) and DGL licorice and of course probiotics. I was on the betaine HCL for over a year before finally weaning off, but again it’s tricky to know how much to use. You build up using it with protein meals until you get a “warm sensation” and I felt like I never got that. But I think I had built up to around 9 or 10 early on. The problem with zantac (aside from the fact that you might not even have too much stomach acid) is that it can lower magnesium levels, and can actually worsen your situation. I found this interview on it on Mercola’s site. https://www.lewrockwell.com/2011/01/joseph-mercola/before-you-swallow-another-prilosec-zantac-or-pepsid-ac/
Dee, glad you got through it okay, your stronger than you think. I agree with L and all her advice. It’s hard to put a time thing on any of us as we are all different, I was doing quite well around two years in, slowly, but then came different relapses, up and down like a yo yo. The worst was after a fall where I compressed my spine and piled on the weight due to inactivity, which even to this day is still there. However, during that time I had lots of times where life was good and it doesn’t mean you won’t slowly improve either. In November it will be five years for me and I’m 90 to 95% better. Fingers crossed I keep going in the right direction. Just stay positive and don’t stress yourself. You are doing everything to help yourself get there. xxxx
At last it’s cooler today and we had a short storm which brought some much needed rain. No use getting my stepson to wash up and I doubt the grandchildren have ever washed up. . It would just need doing again ! I am making them eat out. New dishwasher still has not arrived after the delivery liars said it would come Thurs. Now they are saying next Tues. The truth is that half of their sraff are on holiday and the other half are probably on a go slow because of the heatwave! You are lucky you can swim. Chlorine makes me worse. How is your husband doing?
Flipin Eck Madge, they sound spoilt. I have to say mine are great to help and they even cook for me which is great. Otherwise there would be no vacancies here lol.
My husband is starting to eat like a hog now and doing well. His disability is, he has no muscle in his right shoulder so it has dropped and its lower than the left one. This is from the operation on his neck. However he thought he would not be able to swim again, but he can, which is great as he thought he would be swimming in circles ha ha. He has two belly buttons now, as the other was from the feeding tube he had in his stomache. He’s going to tell people his shoulder and other hole in his stomache is from fighting in the Afgan and gulf war. Not sure he’ll get away with that, but hey ho. Thanks for asking.
I often wonder if our relapses are due to anything we have eaten, drank, or done. I have long thought is it just the nature of the beast ?? and part of the healing process. Every time I have had a relapse I can’t pin it down to anything different that I’ve done. The only thing I’ve noticed with me is, it happens in extreem stress, like when my husband was going through hell with his treatment. I can remember visiting him one day in hospital and as I was walking towards the entrance I actually came to a full stop as the pain in my legs and the exhaustion I felt was so strong I could not move another step for about five minutes. I know Lisa practiced mindfulness which she said helped her a lot. I am quite an expressive person who feels strongly about some things and I often wish I was the calm quiet sort as it does me no good to express my feelings so strongly. But that’s me. We need proper research desperatly to find out more about these relapses and what the causes are or if it’s just a brain thing. Christ they have a lot to answer for.
Madge I have found Kratom is amazing for pain for me, but not only that it makes me feel ‘normal’ for a couple of days. I make my own capsules as it tastes foul to me. I always have it on standby in case I get that unbearable pain and I only use it for that. Theres a whole movement in America trying to fight off ‘big pharma’ and their cronies that want it stopped. Anything that works and helps people, those bas…ds try and stop it.
Stay cool xx
Sorry to be negative but not for me. I’m four years out nearly to the day and in the middle of a bad relapse. I did think I was getting better till about a month ago and have no idea really what set it off. Some suckling pig I ate at a friends 60th birthday meal? Two cups of tea the following week when on a short trip ? A dental treatment that needed an anaesthetic jab? Who knows? But symptoms that were waning in intensity ( mainly tendon pain) are back with a vengeance and some that had disappeared altogether for over a year have come back. None of it is really debilitating – just painful and annoying. I have learned to live with the pain and pace myself.
Really glad to hear the colonoscapy went well and there is nothing sinister going on. I get acid reflux sometimes but found it much worse after all three colonoscapies. It took 3/4months to calm down each time. I’m sure it is caused by the prep deranging the digestive system.
Dee, I was thinking have you ever fasted ? Even say from 6p.m. until 6p.m. the next day. I have noticed when I don’t eat for a number of hours, only drinking water I feel much better, qbut I was thinking it may help your gut. Others have said that it has helped to.
I did a 3 day fast. water only. It was rough, but I felt so much better. 3 days is supposed to reset your gut and your immune system. But I would start out like you said with smaller fasts. (I started by doing intermittent fasting ….16 hours between dinner and my next meal.
Barbara and L. Thanks for the tip on fasting! I might try a one day fast just to see if I feel better!! L, As far as the Zantac goes that was actually an alternative to my Doc wanting me to take a PPI like nexium to heal my esphagitis. I have had acid reflux for years and even have Barrett’s so I have to be extremely cautious not to let it get worse. I was on a PPI for 10 years and actually weaned off when I got floxed. I was aware that my problem may be actually low acid (and probably is). I lost 50 lbs when I got floxed but have gained 40 back which was more then I needed back and I think the extra weight stirred up my acid reflux again?? Anyway, my GI Doc wanted to rescope my throat in 8 weeks to see if it had healed with the Zantac. I started taking it a couple of weeks ago and didn’t like being on it so going to look for a more natural way to fix acid reflux like celery juice, ACV, aloe vera? Whatever I can come up with?? I think I will postpone the re scope to give me more time to heal naturally? I will make an appt with my GI to see what he thinks? He actually is also a functional Doc so I would think he would support that?? I don’t think he uses much of his practice for functional medicine but mainly his GI practice. Losing some weight would help me too!! I was so concerned about losing 50 lbs in 3-4 months of being floxed and was happy that I was healing enough to gain weight again but of course now I have too much weight!! Never satisfied!! Anyway we shall see. I am actually experiencing a relapse of waking up extra early again and running back and forth to the bathroom. It had started to get a lot better for the last 2-3 months but I was extremely stressed about my scope and my results for the month of June and I’m think that might have triggered this relapse??? Although it took a couple weeks to hit me after the scope?? I have cut back some on my mag too so that could be a possibility? I take about 300-400 mgs a day still though? As we all know these relapses are a mystery and I hope mine is short lived as it already has been going on 2 weeks! I think the stress might have triggered it???
While zantac is not a PPI it still has its share of nasty side effects. IT is an H2 histamine blockers (interestingly, those are one of the treatments suggested for mast cell disorder, which has ties to fluoroquinolone toxicity.) You may very well be one of those people who actually does have too much stomach acid, and there are several different ways to test for it. I will include a link below. Of course if you have too little stomach acid, the zantac will only make it worse. It also (because of lowering acid) puts you at increased risk of hip fractures if taken long term, since it makes it more difficult to absorb calcium….or any other nutrients. https://drjockers.com/5-ways-test-stomach-acid-levels/
L. Thanks for the info on testing your stomach acid!!! The home test with the baking soda looked interesting!!! I’ve been wanting to test my acid levels!!! So appreciate the info!! Now to get over this little relapse….Argh!!!!
L…when you did the three day water fast, you said it was rough. Can you tell me what you experienced ?
Well the first day wasn’t really bad, and I was actually surprised that the hunger kind of went away. Hard to remember now, but sometime later during the second day I just started to feel almost flu like. And by the third day I felt really weak, and just kind of stayed on the sofa all day. I think I might do a one day fast again, but probably not three. I was glad I did it though because it is supposed to have health benefits, but it wasn’t pleasant! And you need to be careful about breaking the fast. I had read to have watered down juice or broth, then a couple hours later, something else very light like a piece of fruit. Then a couple hours later something else small, like yogurt. Then the next day just eat light meals. About 12 hours before the fast ended I just couldn’t stop thinking about orange juice. I knew I would have watered down OJ as my first thing. It tasted so good! And it was really just 1/2 juice and 1/2 water.
Thanks L. That makes sense. I don’t think I could do a three day one. I can do 18 hrs okay. I remember when I went gluten and dairy sugar free for the first time ever, I was really weak and could hardly lift my arms up to do my hair. It did get better and I felt better. Now its gone to pot but I feel fine. I actually don’t eat much gluten or sugar anyway. I do like my cheese though. Maybe I’m lucky as I don’t seem to re act to most foods or drinks. That’s why I wonder if it’s a brain thing if I have a relapse as I don’t change anything I normally do. I am struggling to lose weight at the moment even though I only eat small meals. That could also be the added thing of age grrrrrŕ. I swim every day, but I know people who eat like a horse don’t exercise and are really slim. It again is down to our individuality and our genes just like when we got floxed. You sound much better, so I hope it continues.
I too eat very little but seem to struggle to keep my weight where it is. After the Cipro I lost 1/4 of my body weight in about 3 weeks and was emaciated. I struggled for a year to get the weight back on. (Never had THAT problem before.) But now I am back to my old self as far as trying to keep from putting it on. I am slim but it takes very little for pounds to creep back. I was tested and am allergic to no foods. (Thought for sure I had a shellfish allergy). And I don’t think I am sensitive to gluten but avoid it anyway. I do seem to get more congested, an issue that plagues me, from dairy…but not oddly enough from goat dairy. So on those rare occasions where I buy cheese, I buy goat cheese. But I use almond milk, almond based yogurt, goat kefir. I did the fast because of an issue that continues to plague me, and a couple doctors had suggested a supervised fast. But that costs a coupe thousand dollars to go to the place that does them. Since I read that a 3 day fast resets your immune system, I thought maybe I could at least eliminate that as a cause. It didn’t help my issue, but it did seem to do good things for my gut!
I just came from a very sobering talk on the harm from wireless technology, given by Attorney Dafna Tachova, formerly computer and communications officer in the Israeli Army. There were moments when I though “she could be talking about flq toxicity, when she discussed the health effects, the burying of studies and evidence, the complicit “protection” agencies.
Studies directly linking to cancer and other illnesses have been buried for decades. There are already millions who have experienced health issues even before 5G, which is just pure insanity. We are exposed to 80 quintillion (that’s 18 zeros) times the amount of this type of radiation than we should be exposed to. If I could move I would move to a place that did hot have wifi. If I had children (who are most at risk for injury) I would do everything in my power to see that their school used grounded technology and that they had as little exposure as possible. For now, I limit cell phone use, turn my laptop on airplane mode when not in use, and contact local politicians urging them to keep 5g away. This technology can injure any bodily organ and system. I will post more information when it is sent to me, but meanwhile, this is the organization she represents. https://wearetheevidence.org/
Hello,
did anyone try “povidone iodine” as antiseptic. I had its mouthwash during a teeth operation and then I started to have dizziness, nausea, headache. I read this chemical has neurotoxicity.
Oh God, so should we stay away from all kinds of antibiotics/antivirals/antiseptics?
Regards,
Selcem
Hi Selcem,there are lots of safe antibacterial substances.Colloïdal Silver is a good,and very safe one,if of high quality andused in a responsibal way.A lot of info on CS (Coll.Silver) can be found on Pubmed.Then there are herbs like oregano (-oil),Salvia,and others.For an antiseptic mouth rinse I use CS,or 1,5 % hydrogen peroxide.The hydrogen peroxide is the main antiseptic substance in commercial mouth rinse fluids.
I’ve never heard or read about the use of povidone iodine(here it’s known as Betadine) for oral desinfection in dentistry; hydrogen peroxide or chlorhexidine are used in commercial (oral rinse) products.Betadine is used for little wounds of the skin;I’ve no idea if the symptoms you had were related to this antiseptic;those might have been caused by the stress,and pain during the operation.Did you have an anesthetic? That’s one of the things many Floxies don’t tolerate. I hope you’re better,now.
Hello Henk,
the operation was to clean tooth stones, because they all covered my teeth. I did not take anesthesy.
Henk, may I ask you if you heard about Rifaximin. For my SIBO, food allergies and bad bacteria at colon, doctor prescribed me this antibiotic which will stay in intestines, not enter into bloodstream.
Selcem,I think the best way to treat gut problems is by probiotics and a diet,not by antibiotics (which might be the cause of this problems,to begin with). I don’t know if you’re still breastfeeding your little girl.If you do,try to avoid every (synthetic) medicine,where possible.
This is what I found on Rifaximin:
“Tell your doctor if you are pregnant or breastfeeding.” This warning indicates that there is no,or not enough research done to know for sure if this antibiotic might ,or might not enter the bloodstream,breastmilk,or fetus.So;your doc gave you wrong information,here.
“Rifaximin should not be given to a child younger than 12 years old.” This indicates that it’s not safe for young children.
“Common side effects may include:
nausea,headache, dizziness. ”
Do these symptoms sound familiar? Those are exactly the ones you mentioned,so,they are probably caused by the Rifaximin,not by the Betadin.Here is the info:
https://www.drugs.com/mtm/rifaximin.html
Hello Henk,
unfortunately probiotics are not coming good to me. I probably disturbed my small instestine with sauerkraut, and probably let probiotics overgrowth there. So, whenever I take probiotics, I encounter more bloating, gas and digestive issues. You know I already tried oregano oil, which forced my livers a lot with allergy on whole body.
There are some other natural herbs like berberine and neem and allicin suggested for sibo. Do you think I should try them before rifaximin?
I did not take yet rifaximin.
Regards,
Selcem
Hi Selcem,there are lots of different probiotics,and after an AB course in 2004 I used more than a few of those.It cost me a lot of money and it didn’t help a bit.
A while ago I read a lot of good things and success stories about a spore probiotic;not the bacterium itself,but a spore form,which can pass the stomach without being harmed by the stomach acid.This probiotic really works for me.The bacterium is named Bacillus Coagulans,and the trade name is Lactospore.I buy mine from Bulkpowders;they are quite cheap and deliver to the Netherlands (where I live),and I on their website I found that they deliver to Turkey as well.
https://www.bulkpowders.co.uk/lactospore-tablets.html
I’ve ordered there several times,and different products,and untill now I’m satisfied with the quality and the shipping.If only they could use smaller containers for their pills and caps;those are,most of the time,way to big for the content,and made of plastic.
I read somewhere that a few people react different to some of the probiotic bacteria in probiotics.And the same happens when using live probiotics like Sauerkraut.Lactospore might be a blessing for you,but there is no guarantee it will.But it might help to balance your gut flora,and the B. Coagulans should leave the gut within 3 days,not collonizing there.
Thanks a lot Henk. I will ask this probiotic to my gastro doctor. May I ask you whether you took any medical antibiotics since floxed? I know there are many side effects for rifaximin, but I discussed with few floxies who tolerated it well. But for sure, it does not guarantee no adverse reaction. Considering I reacted to even oregano oil, or povidone iodine.
Selcem,I didn’t take any antibiotics since being floxed,and I hope to not need any AB’s for the rest of my life.I had two AB courses in my whole life,and both had desastrous effects on my life and health.I really hope I will never need that poison again,and will only use a synthetic AB in a case of a life-threatening problem,after safer options failed.
Thinking about taking an antibiotic (Rifaximin) to threat the problems,caused by another AB,on a gut that’s in trouble,with an already damaged gut flora,makes me feel very uncomfortable.Might you still breastfeed your child,remember;there’s no,or not enough research done on the Rifaximin entering the bloodstream,and no info on the safety for breastfed children,despite whatever your doc told you.
I am not breastfeeding anymore. But, since my state is not progressing I need to do smt to improve my intestines. Due to malabsorption, I lost many muscles. So, I will probably try 1 pill and according to result, if makes me bad I will try to get berberine, neem, allicin.
I can tell you my life conditions does not allow me much for slow recovery. My husband is divorcing me, I have a small daughter and I have to work. So, if I will live, I have to improve more at least to maintain my life on my own.
I’m sorry to hear about your husband devorcing you.Can’t understand how a man can leave his wife and daughter because she got sick!
I have no experience with Berberine,and the only experience I have with Allicin is in it’s natural form (I love garlic,and onions;only my social life prohibits me from eating those too often).
My only experience with Neem is the use of Neem oil as an anti-insecticide. I know that tea,from the leaves,is used in India but I don’t know how effective, or how safe it is.Most of the time the oil (from the seeds) is mentioned, medically,but there’s almost no info about safety,or how to use;you might need advice from an ayurvedic doctor;the only thing I find on it are warnings NOT to use Neem oil orally.
Take care,Selcem,your health is already so fragile;not a good situation for experiments.And there’s your daughter who needs you!
Unfortunately yes, he leaves me because I am sick and look bad, can’t do house work and not joyful anymore. Anyway, I have no choice other than continue to try for healing. Else, he may get my daughter also from me.
I will see another ımmune doctor and ask for help also. But as I said, I seem have no choice other than rifaximin, unfortunately.
What’s left of the “in good,and in bad times” ? Or was it,in his case: “in good,and in bed times”?
I hope the Rifaximin will help you,and not make things worse.Avoiding allergens should help,too.Things like wheat,and other gluten-rich carbs,and (cow) milk are the first things to try (if elimination works),but for many those are the basic food and drink,and not easy to replace because most people are so used to it.
Within floxed state and this difficulty you realize better who is really good to you and who doesn’t care. There are some kind and good people like you who try to help on someone that you never saw, and some people even from family who try not to get in touch due to this sick state. I just wish from God, these kindness of you will be appreciated and rewarded.
Thanks for your help and good wishes.
I know of what you speak, my relationship with my husband has been touchy ever since I started having symptoms from being floxed….his whole attitude sucks….and just this weekend I finally pushed hard enough to get an answer to why he is so mean verbally and he admitted that I am now “sick” and can’t do the things I used to and he’s upset by that fact, not that I’m sick – but that I can’t do the things he wants me to do, go places that he wants to go etc. due to this fatigue and joint pain…….doesn’t seem to matter that I feel like crap nope just that this negatively affects HIS life…….he doesn’t handle anyone’s illness in a proper kind manner and threatened several times to divorce me due to me having to have my leg amputated due to a broken hip back in my early 20’s so he knows that he has to have a better excuse than the fact I’m sick……..but it hurts and doesn’t help with the mental state that one has to have in order to shake this toxicity off to do anything productive, having the added pressure of loved ones treating you like crap when you already feel like crap is like the last straw……..my heart goes out to ya’!!!
Sorry for you Sheila. It is very sad that with all this pains and inability to do many physical activities, family members even my mom, my brother does not believe at me. I am sure same happens to you except your husband’s attitude. My husband also only care his life, and he always complain how badly his life effected. Indeed, it is us who is suffering from all pains, allergies, mental issues, etc. It is very unfair that we can’t complain as them.
I hope you are at least able to care yourself and do your own work without in need of someone. That’s my wish for myself. To cook, to do minimum of housework and handle my kid alone.
yes I understand and to be able to do basic household chores again without full exhaustion at the end would be great. You’ve got this! you can do this you sound very determined, hang in there.
Barbara thank you yes we do deserve better, and yes I thought about the being on my own but that ship has sailed…..it is not a viable option anymore and we do love each other but he’s an a$$ when it comes to illness I’ve had to deal with that before…..but it is a lonely journey when you feel horrible to always be the only person to pick yourself up and motivate yourself through the pain
Hi Selcem,thanks for your very friendly words;I appreciate them!
I know how disappointing it is to be let down by the people,nearest to you.I’ve lived through that kind of experiences way too often,and it ruined my overall trust in people.From your story,and those from some other women,here,on FloxieHope,one would guess it’s allways men,leaving their wives for a better opportunity,but I’ve experienced the same with two out of three relations.
There is no difference between men and women;both are,most of the time,more or less opportunistic.There are really good people,too,but it’s really hard to find them among so much people,pretending to be “your best friend”,family included.Realizing this made me very disappointed in humanity,but,on the other side,it made me appreciate those who are real friends all the more.
Don’t worry too much about your husband,leaving you. As long as he pays alimony,you’re probably better of,on your own.One person less to take care of. I guess that,with his kind of mentallity (and I know a bit about most turkish men,and their idea of “women’s place”,regarding right’s and duties),you will have more time to take care of you,and your little girl.
The invisibility of being floxed is an extra burden upon floxies;most people react by thinking:”Nothing wrong with him/her;it’s all between the ears”. Most of them aren’t even willing to read the information,you offer them,or will do a www-search on the subject,themselves (and this goes for most doctor’s,as well !!).This lack of interest on other people’s problems is global.How nice it is to share nice things,nice times,but when things change for one of both,friendship crumbles down.
Value the few friends you have,and take the others,including your family members,for what they really are:people,you know,and you can trust to a certain level.And share your love with your little baby;she needs you, and you need her as well;she’s your best friend !
I wish both of you all the luck you need to live a happy life !
Oh,forgot this. When you ask me where your best chances are,for improving your health (and I guess,you’ve understood the importance of a good magnesium supplement,by now,and use one),I would go for the Lactospore probiotic. You’ll first have to improve your gut health because it’s the base of your overall health.When your gut is a mess,you can use every supplement that might be usefull,but probably with little or no possitive effect.
https://selfhacked.com/blog/b-coagulans/
This probiotic works best if taken with Inuline ,which is the preferable food for probiotics It’s called a prebiotic,and is neccesary for probiotics to be efficient). I buy both from the Bulkpowder webshop because they’re the cheapest source I found and the quality is good,and shipping is,too.In fact,this is,probably,the cheapest probiotic I’ve ever used,and the only one that really worked for me.I hope it works for you,too;you need it!
Hello Henk,
I read Lactospore probiotic is producing lactic acid which is not good for my SIBO. Previously, like sauerkraut includes, I tried solely Lactobacillus plantarum and it effected me negatively also; headache, brain fog and nausea. The problem with SIBO is also, they can’t detect which bacteria, probiotic is excess in small intestine. So, solution seems antimicrobial/antibiotics either natural or medical.
Regarding magnesium, I just ordered MagEnhance which contains Magnesium L-threonate from US. I will start it and Collagen from Ancient Nutritions after completing SIBO treatment considering absorbtion will be better.
Probably probiotic and inuline will be safer to be used after treatment also.
Regarding people’s and doctors’ inattentive and denying attitude is really unacceptable according to my way of thinking. I am an engineer, and I do backup of backups while working on softwares or hardwares not to interrupt operation for seconds. But doctors and medicine industry employees who are contributing to production and delivery of those poisons do not care to lives of people and use us as test object. How long history do these chemical medicals have and how do they easily deliver those without knowing long-term consequences. Whichever doctor I saw they are saying these affects may occur very rare, they obviously don’t know what is statistics at all. If it was that much rare, how would these many people would exist at these web sites.
And all these issues can’t be understood by a normal person who don’t experience these. Once my doctor who gave me tavanic told me said “even if you would take cyanide you would heal or die”. He does not know anything about drug he is prescribing. In medicine school, they are firstly taught “Either help or do not harm the patient!” , they were obviously did not understand it.
“Marketing
B. coagulans is often marketed as Lactobacillus sporogenes or a ‘sporeforming lactic acid bacterium’ probiotic, but this is an outdated name due to taxonomic changes in 1939. Although B. coagulans does produce L+lactic acid, the bacterium used in these products is not a lactic-acid bacterium, as Bacillus species do not belong to the lactic acid bacteria. By definition, lactic acid bacteria (Lactobacillus, Bifidobacterium) do not form spores. Therefore, using the name Lactobacillus sporogenes is scientifically incorrect.”
More on SIBO and fermeted foods:
https://bodyecology.com/articles/the-truth-about-fermented-foods-and-sibo/
Every time I hear the word rare I want to scream. Of course, they are just repeating the nonsense put out by the Bayer and J & J and the FDA. Dr Charles Bennett, a drug safety researcher at the University of South Carolina extrapolated from the FDAs own reporting numbers. “The FDA gets about one percent of all reports,” said Bennett, who argues if you take the 3,000 deaths already reported, the actual number of deaths is closer to 300,000.”. That would also put injuries in the millions. I think both these figures are probably very low. This is from four years ago. I am guessing the stats of reporting are even lower worldwide, and I see posts from victims in the Netherlands, Germany, Spain, Canada, Pakistan, Hungary…you name it. I suspect when most people hear “rare” they think maybe a few people have been injured (and MAYBE one or two deaths.) Not these staggeringly high numbers.
Hello L,
you are totally right. Also, doctors are not accepting that we are experiencing side effects, so these events are not reported to drug companies. Which makes indeed the real statistics much more higher than noted at prospectus.
It is also very foolish of them saying, I am prescribing this drug to many patients and I never heard of these side effects. So, either they are lying or patients who are affected can not recognize the source of issue.
What I would really like to do is to give one box of quinolones to doctor prescribing it at single shot and then let’s see how rare these effects will show up! That would be fair.
Some science on Bacillus coagulans,taken together with a prebioticum like Inulin (polysaccharides),and the benefits:
https://www.ncbi.nlm.nih.gov/pubmed/25219857
” This shows that consumption of BC30 “(Bacillus coagulans) and subsequent use of prebiotics (Inulin) resulted in elevated populations of beneficial genres of bacteria as well as organic acid production.
Hello Henk,
I took one dose of Rifaximin (200 mg) today and pain on my lower hips started, with headache. I will see what happens more until evening. Do you think I should stop taking it?
This drug remains in intestines but it has many side effects on whole body.
I cann’ot advise you further on Rifaximin than I already did. I cannot find any proof of Rifaximin staying in the intestines,and I really doubt that.Getting adverse reactions in other parts of the body seems to proof it does enter the bloodstream,I guess. Ask your doctor where you can find proof of Rifaximin nót entering the bloodstream; I’m very curious if he can show any evidence of his claim.
Thanks Henk, I will probably not take further doses after 200 mg pill. I already checked some articles about possible absorption in case of liver problems. Also, it is said minimal absorption not zero absorption. I started headache and body weakness even with single dose, so it seems not safe drug.
I know low usage may cause resistance to drug but I will probably try all other alternatives. Like berberine, allicin, ozone, etc.
Hello Henk,
I am continuing Rifaximin to find some healing and my doctor ecouraged me about this drug will stay in intestines. I have no another solution for now. My husband left home, so I have to heal somehow. According to results of Rifaximin, I will retrieve Allicin or Berberine drugs from abroad. I wish from God at least rifaximin womt damage me. I completed 4 days already.
Selcem,I think that,after the Rifaximin,you’d better focus on repopulating your guts with healthy bacteria,in stead of using even more,although it being natural,antibiotics.
“My doctor ecouraged me about this drug will stay in intestines.”Well,you,yourself,found info as well,that there is no real proof of this claim.And how about your headache and other symptoms of adverse reactions? These point to the Rifaximin,effectively entering your bloodstream,I suppose.
Try to drink more (water);this might reduce the headache.And I would try to find a good quality Probiotic,and Inuline,to reenforce the remaining gut flora,in stead of doing even more damage to it.
I got ther-biotic complete probiotic from Klaire labs. I will start it when completing this rifaximin.
I’ve read many reviews of satisfied users,so,I guess it is a good product,but too many complaints about shipping.It should be shipped in an icepack,but many sellers don’t:
https://www.amazon.com/Klaire-Labs-Ther-Biotic-Complete-Probiotic/dp/B00JZ246S6?th=1
If not,it should work still as expected but keep it in the refrigeration after having received the package.It will be expired sooner when not shipped in an icepack.
Here is a very critical reviewer of probiotics.On B.Coagulans he is quite possitive,but would like to see more research done.He does not recommend the multi-spore probiotics that entered the market recently;too much unknown factors,and most spore bacteria used in those “multi’s” are soil bacteria,with unknown risks.
He did an extensive research on the literature,regarding B.Coagulans,and that indicates it is safe.In the used doses,that is; you experienced,yourself that even eating way to much of the natural probiotic Sauerkraut can give nasty results.
https://fixyourgut.com/ganedens-bacillus-coagulans-supplement-a-review/
Selcem, Sheila,….You both deserve better. If someone treats you like that when you need them most, are the most sefish kind of people ever. You are better off on your own.
I’ with Henk re the oil or oregano (get organic) and colloidal silver. I have used oil of oregano to treat flu, sinus infection, it even helps shorten the duration of a cold. I use colloidal silver topically, but have also used it in a nebulizer. Lisa posted a list of “safer” antibiotics on here somewhere if you do a search. I believe a z pack was one, but try to find the list. They would be an absolute last resort for me now.
Hello L,
oil of oregano caused serious allergy and tendon pain on me. Also, it is said to damage liver. MY allergy on whole body shows it also. Currently I am continuing rifaximin, it causes headache, tingling at feet and hands, weakness but I am trying to complete treatment. There is no allicin, berberine and neem drugs in my country, I will try to get them according to results with rifaximin.
The liver damage comes only when taken in high doses. Used as directed and for periods up to 10 days it is not an issue; but obviously if you think you had an allergic reaction then you wouldn’t want to use it.
Hello L, indeed it gave me reaction like below, naturopath doctor told it is detox. But it took few months it to pass. All other doctors told it was allergy, cant be such detox
https://get.google.com/albumarchive/111783738050939932240/album/AF1QipMqnogU8RHX_w47nEOL0lbJAffd4Qe5Uh-U-4Ng
Öregano oil:” Naturopath doctor told it is detox. All other doctors told it was allergy,”
Cipro and other FQ’s: “Naturopath doctor told it is FQ-poisoning. All other doctors told it was allergy,and FQ’s are perfectly safe”,
I know the last time I went in my doctor said that she wasn’t going to prescribe cipro for me anymore I asked why and she got a horrible look on her face and said “oh we are hearing horrible stories about what’s it’s doing to people” so at least she was aware I haven’t talked to her about my symptoms I haven’t had time, I just found this site a couple months ago and that was in the midst of moving so I intend to set up with a different doctor in this area and get down to brass tacks as to what to do that he/she can monitor……..and rule out any other issues that might be underlying…….I suspect it’s all cipro poisoning but we shall see…..
That’s good to hear. Wish that knowledge was more wide-spread. I would urge you, when searching for a new doctor, to find an integrative one. They will be far more aware and wont automatically reaching for the RX pad for everything.
Have you seen this article? Repositioning of fluoroquinolones from antibiotic to anti-cancer agents: An underestimated truth https://www.sciencedirect.com/science/article/pii/S0753332218370689?fbclid=IwAR06HrTRcl3syjR0762fXAWaaclCiB54_diGdwh-er8XINqwVhBc-G-4r1Y
I wonder how many doctors are paying any attention to this.
They have already used them as cancer drugs in the past. This is odd. This article seems out of date. In fact , Lisa wrote about them as chemo drugs several years ago, and if you do a search you can find a number of studies. https://www.hormonesmatter.com/cipro-levaquin-avelox-fluoroquinolones-chemo-drugs/
Granted. There have been many articles about Fluoroquinolone antibiotics actually being chemotherapy drugs. BUT….. Do you suppose that there is an overdue awakening going on now?
I wish, Don…
Hi Don,thank you for this very,very interesting article. Not only does it tell more about the mentality of those evil alchemists,and the fact that it’s all for the money (the first part of the article),but,further on in the article it shows the extreme damage FQ’s do to human cells,cancer cells ánd healthy cells.They knew about the damage,done to mitochondria and DNA,probably from the time Cipro (the worst!) and other FQ’s were launched as cancer chemo,failed,and were repositioned as antibiotics,but they never admitted that fact to the FQ-victims.
Now that more and more people know about the dangers of FQ’s and try to avoid them,or refuse to use them,sales are decreasing and they need other indications to save their profits.They also want to make it even more “effective” for cancer treatment (“Derivatives and salt complexes of fluoroquinolones are highly effective anticancer molecules than parent molecule.”).
They also refer to Thalidomide (here sold as Softenon,untill banned),and it’s successfull repositioning,although they admit that “Tragically, however, with its renewed use children are again being born with thalidomide-induced deformities, particularly in Brazil.”.Well,Bazil is far from their beds.:
https://www.sciencedirect.com/topics/medicine-and-dentistry/thalidomide
That is how Science Based Medicine works: attack all bacteria,and hope that the good ones survive while the others die. Attack all cells,and hope that the good ones survive and the bad ones (the cancer cells) die. I’m impressed! Real science at work!Like throwing a handgranate in your sleeping room to kill that one mosquito that keeps you from sleeping!
Cipro mechanism of action: mitochondrial dysfunction. Well,according to Otto Warburg,this actually IS the cause of cancer:
” Warburg hypothesized that cancer growth is caused by tumor cells generating energy (as, e.g., adenosine triphosphate/ATP) mainly by anaerobic breakdown of glucose (known as fermentation, or anaerobic respiration). This is in contrast to healthy cells, which mainly generate energy from oxidative breakdown of pyruvate. Pyruvate is an end product of glycolysis and is oxidized within the mitochondria. Hence, according to Warburg, cancer should be interpreted as a mitochondrial dysfunction.
Cancer, above all other diseases, has countless secondary causes. But, even for cancer, there is only one prime cause. Summarized in a few words, the prime cause of cancer is the replacement of the respiration of oxygen in normal body cells by a fermentation of sugar.
— Otto H. Warburg, [14]
Warburg continued to develop the hypothesis experimentally and gave several prominent lectures outlining the theory and the data.[15]
Today, mutations in oncogenes and tumor suppressor genes are thought to be responsible for malignant transformation, and the metabolic changes Warburg thought of as causative are now considered to be a result of these mutations.[16]
However, a recent reevaluation of the data from nuclear/cytoplasm transfer experiments, where nuclei from cancer cells are placed in normal cytoplasm and where nuclei from normal cells are placed in cancer cytoplasm, more strongly supports Warburg’s original theory than the somatic mutation theory for the origin of malignant transformation and cancer ”
This makes modern medicines like antibiotics a likely cause for cancer and lots of other illnesses. I don’t remember who wrote this,but more and more evidence proves it to be the way “science based medicine” works:
“First create a problem (modern “medicines”),and then offer a “solution” (modern “medicines”)”.
This is interesting. https://www.healthline.com/nutrition/is-brown-rice-good-for-you Interesting because it mentions nutrition in brown rice as a benefit for problems a floxie faces. I like brown rice pasta and find it comforting to know that it has some value.
It does, but sadly it is higher in arsenic, so I would limit its consumption (even organic)
Hi Don,L. is right;on the same website I read an article about the high amount of arsenic in rice
The article about the healthy benefits of rice compares brown rice to white rice,like brown (whole wheat) bread,and pasta’s,to white bread.I’d like to point to an article that compares brown rice to whole wheat,rye, and other cereals,especially those with a low gluten content:
https://www.healthline.com/nutrition/9-benefits-of-whole-grains#section2
This article writes about those same health benefits for a number of whole grains,brown rice included,but doesn’t give a real comparison. But when you take the high arsenic level of rice in,I guess most other grains are preferable.
I really like rye.When cooked,the grains get a very nice,nutty taste,and they are very nutritious. I ate them frequently in the 80’s,when macrobiotic was the trend.Cooking grains as an alternative to potatoes was nice,for a while,but in the end I prefered potatoes and I didn’t like meals with 50 % or more grains.And all the legumes were bad for my social life ;-))
Hi! I have noticed that in the evenings my symptoms are relieved, and sometimes I feel like I am old again. No anxiety – or just very small. But during the day i’m anxious again and hissing sound in my head – Why?? And nowadays after 19month of poisoning in the mornings I’m not able to wake up… I don’t drink coffee, and any alcohole since 19 month but still fighting. sometimes I have strange dreams again… Why healing for so long? 😦 oh God
To know the full scope of why this symptom and that symptom occurs, you’d have to be a fly on the wall of Bayer or other pharmaceutical companies meeting room and/or laboratory.
Greetings. Does anyone have any experience with physician prescribed thyroid hormone supplementation? Specifically, has it worked for anyone here to relieve the countless health problems we’ve acquired especially the neurological stuff like insomnia and shallow sleep?
What are the pros and cons of using these synthetic hormones? Can they make problems worse? I’ve read about people being helped by them but wanted to see if anyone here has experience using them. I’ve read that high doses are much more beneficial than low ones?
On top of the thyroid hormone supplement, does anyone use T3 supplementation to help with the conversion of T4 into T3? Any input on the matter is much appreciated.
Hi Łukasz! My opinion is that you shouldn’t try anything… As I see after 20months only time will heal us.
Wiec nie bierz nic bo nigdy nie wiadomo na co ci zaszkodzi. Cierpliwosc i jeszcze raz cierpliwosc!
Attila,
I get what you’re saying, but, after 5 years of being mostly housebound, I’m running out of patience. If I was only housebound and not dealing with unrelenting symptoms that make my life hell every minute of every day, I would consider doing nothing at all but these are desperate times in my life. I fear the worse if my fortunes don’t change soon. Every man and woman in this world has a breaking point and I’m getting close to mine. I’m not saying any of this to draw pity, I’m saying this because I’m truly running out of willpower, and when that happens, it’s game over.
Przepraszam za negatywny tone ale naprawde jusz mam tego wszystkiego dosc.
Every word has power. That power can be harnessed. It can be used for healing, providing the belief is strong enough. Most words here are heavy, sad, divorced from a longed-for, somehow still-desired past.
Only the future awaits. We all stand at the edge of death. And we all have choice.
I choose to help others, to be alive, to be strong for my husband. He would die without me. My compassion has taught me that we are not alone, ever. Our presence is vital.
Every cloud has a silver lining. Love and support
if I’d hurt anyone’s feelings, I’m sorry. Everyone here is a real warrior, I just relied on my experience. Of course, every body is different.
Jessica,
While I fully respect your opinion, I respectfully disagree with the notion that we should harness our feelings and emotions and that we somehow have a choice towards it all. At least, that’s what I’ve gathered from your post.
I realize that my words sound heavy, sad and divorced from a longed-for, somehow still-desired past, as you so eloquently put it, but I also realize that I’m extremely depressed from battling a 5 year illness that has no ending in sight. My apologies if this offends you or others, I am who I am and that’s not going to change given the circumstances. Healing? Belief? Trust me, I’ve been there and done that. It’s great that your beliefs are strong and unrelenting, but some of us need more help than thoughts and prayers, or even deep-seeded belief which you seem to have plenty of.
You seem to be very confident. Enlighten me, why is our presence so vital if lives begin and end all the time? Do you not think the world will carry on when we die? Human lives are constantly coming into and out of existence.
Again, I’m not trying to be disrespectful towards you. I’m just seeing things a little differently than you.
Have a good day.
I had the exact same reaction to that post as you did, Lukasz……
Attila,
No hurt feelings.
Please don’t offence to my earlier post. I was trying to relate that doing nothing in the past didn’t help me but I realize that there’s plenty of people who do very well without supplementation. I’m glad you’re one of them. It’ll save you tons of money and it’s also possible that the results will be better than for those of us who have experimented with different supplements.
How many months or years are you into this?
I’ve been on thyroid replacement for decades. When I talked to both my ND and integrative MD about trying to get off of them, they both said “don’t worry about that. Focus on getting better.” Neither seems to think it is an issue. (and given I have been on them so long I am not sure my body could ever adjust to go off of them.) (Levothyroxin)
L,
What’s their role in your recovery, if any? I don’t want to feed the pockets of doctors if they won’t benefit my health in any way. I have 5 years of insomnia / inability to stay asleep that I’m trying to resolve and was thinking that maybe it’s related to a hormone imbalance? I don’t want to further jeopardize my health (I’m in bad shape) but at the same time, I know I have to do something, else I’ll be dead soon.
Nothing specific to my recovery, but as I said I have been on them for decades, because an underactive thyroid can effect pretty much every function in your body, and obviously my integrative doctors didn’t think my going off the meds was all that crucial. I would first make sure that your doctor did a complete thyroid panel. Most docs only do only the TSH test, and not also include free and total T3 and free and total T4. This link I am posting talks about trying to naturally address the issue (I think I am way too past this) and as a floxie you may already likely be doing much of this. https://draxe.com/health/endocrine-system/hypothyroidism-diet-natural-treatment/
Thanks for the info. I’ve had TSH, Free T3 and Free T4 levels tested in the past by an integrative MD and the results were all in the normal range but both TSH and T3 were on the low end. Only T4 was well into the normal range. He gave me an Rx for thyroid (30mg) (1 tablet 1 time daily for 2 months of 30 days) and Maxalt (10mg) (3 tablets other for 1 week) (Takes one tablets SOS. Please issue 3 tablets).
Have you heard of these ones?
As you can see, the instructions are confusing. I ended up not filling the prescription because his IVs got me into a worse state than I already was. Lately though, I’ve been thinking more about the thyroid and if the antibiotics haven’t damaged it. I’ve heard of many people having thyroid issues post-abx and I wouldn’t be surprised to find out that I was one of them. It was always on my radar to dig deeper into this but it always seemed to go on the back-burner. I think I’ll need to revisit this especially since low end results can signal a deficiency/imbalance, am I right?
Never heard of those. I really don’t think thyroid med is something to be worried about. Like I said I have been on levoythyroxin for decades and never had any issues
That’s reassuring. Do you know what the appropriate doses are? Do they start people on lower doses and then work the dose up or is it usually a fixed dose?
There are SO many different doses. It depends on what your tests reveal. I have been on a couple different strengths EG for levothyroxine: https://reference.medscape.com/drug/synthroid-levoxyl-levothyroxine-342732
I’ll wait for the tests then. Thanks, L.
It was after what I think was my fourth encounter with Cipro! After the 3rd ( iv in hospital for diverticulitis ) I had an abnormal ECG and chest pain but nobody told me it was a reaction to the drug. I cannot verify what I think were my 1st and second floxings due to my English medical records being destroyed after moving to France but I am sure going by the symptoms that I was given Cipro at least twice in UK. It is possible I also got it as a prophylactic for an operation. I took a combo of synthetic thyroxine and NDT ( which I ordered online from America ) for many years with no heart problems and felt well on it. This was after what I think was my second floxing. I started having really bad rib pain which mystified my GP ( little wonder as cartilage degeneration in the ribs is a problem in the elderly and I was only 47 then). I also had stomach pain so she sent me for testing. That was when the hypothyroidism was discovered though I found out later that a thyroid test done 7 years previously was not normal. If your free T3 is low you might benefit from NDT. It is odd that your TSH is also low. if free T4 is high it could be that you are not converting properly. You could try selenium supplements as selenium is essential for conversion of T4 to T3.
Wow. Sorry to hear about all this, Madge. You’ve been through a lot it seems but I get the feeling that you’re one of those people who’s willpower is extraordinary. I applaud your courage and determination.
Thanks for the info re: the thyroid meds. It seems thyroid dysfunction has many ways of manifesting itself. In your case, these pains that led you to find out about your own thyroid issues. I’m glad you were able to bring it under control at some point. Are you still taking the thyroid meds today?
Something is definitely off with either the thyroid or as you said, the conversion of T4 into T3. I should have been investigating this a long time ago but with FQAD, there is always something new to tackle.
There was a time a while back that I was eating a couple of brazil nuts to supplement selenium but I stopped after a while. I think they helped at the time but I was being cautious and only consuming 2 a day since selenium toxicity can occur if too many are consumed. Never tried a selenium supplement on its own but it might be worth a try. Thanks for the suggestion.
I think once your thyroid is not functioning and producing enough hormone it’s better to take the meds. Fluoride is a well known poison for the thyroid. I am sure my hypothyroidism was precipitated by my first floxing and then exacerbated by having moved to a city where the water was fluoridated . Once the hypothyroidism was discovered and I started treatment I improved healthwise despite having probably been floxed again. After my last floxing I ended up in ER with afib and they said it was because my TSH was too low (;though free Ts were perfectly normal). They removed my T3 and reduced the T4 and I definitely notice a deterioration. I am too worried about the afib to increase the Levothyrox. I think the arrythmia was more lokely due to the Cipro but thd cardios looked at me like I had two heads when I suggested it.
Yeah, I just figure that since the thryroid is linked to so many things, I may as well stay on the medication, and not perhaps cause even more issues. It’s not even a particularly high dose I am on (.88 mcg)
Thanks for sharing, Madge. Just to confirm, it likely wasn’t the thyroid meds that caused the heart arrythmia, but rather the second floxing from Cipro? Just want to be sure that these thyroid meds are safe and not going to cause me more problems.
Hi Lukasz,
I myself have had issues with my thyroid post-floxing. In my own experience, I had seen a naturopathic dr who did full complete panels including cortisol saliva testing. This allowed her to analysize all the results for more accuracy. In my case, I was following natural rhythms, but it was running at a reduced capacity. Instead of treatment using pharmaceutical (western medicine), she has me using AdreneVive by Ortho Molecular Products. She was originally going to have me taking their Adrene-all product, but at the time I was nursing my 3 month old daughter.
It took a little bit to notice a difference, but it does help. The muscle/joint pain has lessened, the insomnia issues had decreased, and it helps to clear quite a bit of the brain fog and memory problems. I also used this in conjunction with addressing my diet to be more thyroid friendly. My ND wanted me to eat more red meat, avoid vegetables and fruits that are goitrogens (ie: broccoli, spinach, etc), and avoid soy and other endocrine disruptors (many of which tend to make their way into laundry cleaning products and toiletries).
Making all these changes together seemed to have an better impact for me.
Due to all the additional chemicals being introduced via pharmaceuticals, I try to avoid introducing more unless it’s absolutely necessary or there is no natural alternative.
A few other people that I know to be suffering from thyroid issues (but were not floxed), have mentioned that it appears once you are prescribed meds for thyroid it seems to be a lifelong need to remain on that medication.
I hope this information provides you some help and hope in your recovery.
Tristine,
Thank you for this write-up.
I had a look at this company’s website and the product you mentioned. It seems to be a good mix of extracts. My only concern is that it may be difficult to access since they are a U.S. based company and there’s not much info about shipping to Canada. Also, no suppliers in Canada, at least not any that I could find. I might get in touch with them tomorrow to see if they have delivery to Canada but with the exchange rate and shipping, it may be too expensive. Nevertheless, I appreciate you taking the time to bring this product to my attention. I saw that they also carry a product called Thyrotain which contains iodine but it’s 4 capsules per day! The AdreneVive is just 1 capsule a day. Big difference. Also, I didn’t see Adrene-All anywhere on their website but did see Adapten-All. I’m guessing that’s a different supplement to the one you’ve mentioned?
Also, I’m surprised to hear this about vegetables. I thought broccoli and spinach were extremely beneficial for health? It’s pretty much all I eat these days.
Anyway, glad to hear you’re better off. It gives me some hope knowing that the thyroid issues can be addressed and improvements to health be obtained.
For the Adrenevive & Adrene-all, I actually seem to get the best deals through another naturopathic dr’s online store (also located in U.S.). https://www.drdonistore.com/All-Products_c_17-3-3.html
They do also carry on amazon as well.
I felt very much the same about eating broccoli and spinach (amongst others) as they tend to be beneficial for most individuals, but can cause issues to persist for those of us with thyroid conditions.
Good to know. Thanks for the info, Tristine.
They are worse if you eat them raw or very lightly cooked. Cooking helps destroy the goitrogenic chemicals in them. I think some nuts are goitrogenic too eg pine nuts which I love but try to limit. Soy is definitely goitrogenic.
So spinach should be fine as long as it’s well cooked? I eat it with eggs quite often and would hate to give it up. Too bad about nuts. Maybe that’s why I felt really ill a while back after having trail mix that contained various nuts and chocolate.
” Dear heaven,please,don’t let it be the chocolade ” Lukasz,you’de better read the ingredient list on your chocolade before eating;many chocolade bars contain….soja lecithin,and you might be allergic to soja.
After being floxed I have several allergies;some started after my first AB course (2004,Amoxicillin and Metronidazole).It is a fact that AB’s are a major cause of allergies;main action probably being the killing of gut flora.In the 12 years that followed,some of them diminished,but after being floxed they all came back,fullblown.
It was a trail mix snack so a combination of nuts and chocolate bits but I wouldn’t be surprised to find that one of the ingredients was in fact, soy lecithin. I had no idea that soy lecithin was a food additive. Considering I’ve had issues with soy products before, it’s another ingredient I’m going to have to keep an eye on. Pretty sure the Haagen-Dazs ice cream bar that I splurged on today contained it as well. How to live without Haagen-Dazs, though? lol
I too have a laundry list of food allergies, sensitivities, intolerances, or whatever it’s called these days and they ALL began after the antibiotic rounds. I had no issues with any foods prior to getting floxed. So yes, you’re correct Henk, antibiotics are the catalyst to these issues and gut disbiosys is the event/result that causes it to become a chronic occurrence. It’s no wonder the spike of food allergies in people has been through the roof over the past decade.
Thanks for the assurance that these get better over time. I wouldn’t mind enjoying a small amount of junk food in the not so distant future. Especially things like ice cream which I deeply miss… and yes, it is with great shame that I admit to having it earlier today. Damn you Haagen-Dazs. Why do you have to make such good ice cream? lol
You can find chocolate without it. I know there is no Trader Joe’s in Canada (too bad) and I eat a bit of their organic dark chocolate every night. But I am sure if you did a search you could find others as well. It does suck having to cut stuff out, but many things I had to cut out initially I am able to tolerate again…like chocolate, coffee, wine. I have even cheated and had stuff I would normally never eat at a party or somewhere, like gluten laden non-organic cookies, and had no repercussions. So hopefully this isn’t a life sentence for you.
Hi Lukasz,soja lecitin is in a lot of foods;it is used as an emulgator,to bind things like oil and water.Here,in the Netherlands,and probably in the EU,allergens are mentioned on packages,under the ingredient lists.Nowadays lecitin is also produced from sunflower seeds,and even rice becuase of many people being allergic to soje,and because its getting more and more difficult to obtain non-GM soja.
So,there is chocolade without soja,and there might even be ice without soja (I doubt there will be Haagen Dazs,soja free).Don’t want to miss icecream? Buy an ice-maker,and make the finest icecream yourself.You can even make it without equipment,the way it was made a long time;you’ll only need a freezer.Follow the recipy,pour the mix in a bowl and put it in the freezer.Take it out every 5-10 minutes to stirr it well,and bring some air in the mixture,untill it is all froozen,and time to party ;-))
Even simpler,for people who don’t own an icemaker: a dutch woman with a website,dedicated to making your own icecream got this recipy from her brother,also an icecream lover,who had a lot of strawberries in his freezer.He discovered that blending the frozen strawberries and fresh cream with a hand blender gives a nice ,quite creamy result;the cold temperature from the strawberries helps to get the ice-like constitution.Putting it in the freezer and taking it out to stirr,every 5 minutes might give you an even better result,making it into real icecream.But,of course,these primitive methodes are only suitede for the real icecream lovers who want it the healthy way :-))
My allergies are,mainly,contact allergies.It took me a long time to discover that my sudden allergy for blue jeans was not from wash detergents,or the parfumes in them,but from the blue dye in those jeans.Had to buy new pants and get used to my new “image”,after wearing blue jeans for 40 years.Have a latex allergy as well (think:knickers,socks,etc.),and,why not,a classic hayfever.Probably some milk (products) intolerance and other “minor”allergy problems as well but those are hard to discover without trials.And dust,and moist….
I do not avoid the allergens but try to minimize contact;this way your body builds up tolerance.This worked after the Metronidazole/Amoxicillin torture,and it seems to work after being floxed,as well.It’s very important to take good care of your gut flora;that’s where the bigger part of your immune system is established,and that’s the reason antibiotics,when taken orally,ruins your health in a severe way.But things like pré- and probiotics,in extreem cases a gut flora transplantation,and eating healthy food can be very helpfull.
By the way: I have NO wireless devices in my home,and never had,because years ago I understood the hidden dangers of this technology.I have a wired telephone,and a GMS,which I use 2-3 times a month;the only times I activate it.PC,television and other devices all wired.Darkening a bedroom is not that difficult,in most homes.And pushing the Off-button on the tele and the GSM,an hour before sleeping,and sit,or lay down with a good book is possible;it’s hard,but it IS possible ;))
I use wifi only because that is my internet connection that comes with my rental, but I always turn my phone and laptop off at night and on airplane mode when not in use. BUT we are ALL having 5g forced down our throats, and this is a whole new beast. It requires a small cell tower on every block which means 24/7 exposure to EMF radiation. Brussels and parts of Switzerland have said “no thanks” but these giant world wide telecom industries are so powerful they are making it hard to fight them. Still I would urge everyone to do so and encourage everyone you know to do the same. IT is especially harmful to children, the elderly and those with illnesses. (In fact, one group I am affiliated with recently sent an email about a letter regarding the science of it and studies linked to it, and it was by none other than “our” very own Beatrice Golomb, who did the fluoroquinolone study at UCSD. ) Here is more info on 5G. https://www.5gspaceappeal.org/the-appeal?fbclid=IwAR3D5Y3XIFGbe3ub69DADv0JuIYQ5lktcsazw50Asej4Hmz7LSyGe6yI7Ho
Looks more and more like a chemical and electromagnetic genocide,going on;somebody behind all this must hate life :-((
It’s not just the companies,getting rich from these technologies;the governments gain bilions of $/€ by selling the frequencies,used. Strange idea:to sell frequencies,you first have to “own” them,right? Next thing:making you pay for every breath you take? While they already poison us,and burn our brains? Why do all those idiots vote these people into power,time after time?
And then there is also the sinister element of invasion of privacy. These devices can listen to you, track you, 24 hours a day. My apologies if I posted this link before, but it’s so important to health of everyone, not just us poisoned ones. And it is especially harmful to children. https://www.5gspaceappeal.org/the-appeal?fbclid=IwAR3D5Y3XIFGbe3ub69DADv0JuIYQ5lktcsazw50Asej4Hmz7LSyGe6yI7Ho
L.,I never took part of the “social”network hype.For me no Facebook,Twitters,etc. Years,before,I used Messenger,for a while,and noticed that many users were collecting “friends”.A girls,I took care of,the first 2/5- 3 years of her life,had,at one point,over 300 (!) “friends,and communicating with her on Messenger was impossible,because of all the others were disturbing our talk.Skype was just a little bit better (but is owned my Microsof,now).I sometimes use it to make a cheap phonecall with friends,abroad.
You’re right;our life is taken away from us;so is our power. “They” own our health,our food and our privacy,at least;that’s what they think,and strife for.But there are people like Bob Beck,Dr.Mercola and quite a few others that are working on making people aware of their individual powers,and of all those powers,collected.We can still choose for healthy foods,for natural med’s and for safer options for Google,Facebook,etc.And,although slowly,more and more people start to understand what’s going on,and start to demand changes.
Look,what the many petition websites have achieved;who could have imagined that we,via the WWW,could put pressure on politicians and make changes,15 years ago? See,how choosing for healthy bio food made big companies and supermarkets change their assortments;today every supermarket has more and more bio products on offer;they have to because we want to!
The way they try to prevent us from putting our individual powers together is by dividing us,wherever possible.Not long ago here,in NL,they made a law that saying something to a woman what could be,in every way,offending,is punishable,and shortly after the first fine was cashed;a man,telling a woman the she looked great,had to pay € 300 for that mistake.Does the woman get the money? No;the money is cashed in by the state! Max fine on this kind of behaviour is €3000.
How to create a real war between men and women,parents and children,etc.And while we fight this surreal war between each other,they “change our world for the better” And it will be over and they will have made the whole world into one,global,dictatorship before people wake up and realize what happened,if not for people like Beck,Mercola,Ron Paul,etcetera;the people who keep on warning us,and doing their utter best to help us fight for our rights and freedom.
Yes, using division and fear has always been the tool of those that want to rule the world. If you are familiar with George Carlin, he had a very prescient routine on this very thing. That is what has happened here in the US too. Gullible people think that it is people that don’t look like them that are the source of all their problems, when it is the politicians they have elected and the corporations they support. And as for Mercola, you are likely aware of the post he wrote the other day on how he has been relegated to the black hole of space on the internet, and I think he said he removed his facebook presence. Thankfully health practitioners like him don’t give up.
Hi L.,I love the humor of George Carlin,and his view on politics,and I follow Mercola on a daily base,for about 15 years.Have a nice weekend!
thanks! You too
Lukasz,try to find “Even Cowgirls Get the Blues”,written by Tom Robbins .This book is a nice start;will give you a good laugh (which you really need!),and a good night sleep.And after you read the other books of T.R.,you might give other genres,and authors a chance,and call yourself a READER :-)) Best,and easiest way to fall asleep is,when your eyes get tired after reading of a good book!
I did find and eat organic chocolate from my local health food store. That was a while ago though. I might go back to it since organic chocolate is supposedly good for you, especially 85% cocoa or above. Lots of iron and magnesium content.
Things have improved with being able to tolerate more foods, including some non-healthy kind, but I can tell my body isn’t up for much of it. It seems to prefer the raw vegetables, as well as other healthier options. At least for the time being.
Hope you’re right, though. It would be good to enjoy a wide assortment of foods like most people and not suffer the repercussions afterwards.
I took a selenium supplement for several years but now I just eat Brazil nuts 2/3 a day. There is no worry about selenium overdose at that level.I am still taking 75 mcg of Levothyroxine but my TSH has risen a lot though still in normal range . The problem with thyroid issues is that it is very individual. Some people are perfectly fine with a TSH towards the top of the normal range whereas others have a bunch of hypo symptoms at that level. If T4 is high and and T3 low it could mean a conversion problem or a conversion to reverse T3 which I think happens if there is an adrenal problem. I always felt well with a very low TSH but my docs will not wear this any more so they give less meds.
Although floxed several times I am not severely affected compared to many. I do live with a lot of tendon pain and it is very bad at the moment. I have been having a relapse for about 2 months now after improving a bit and that is always depressing. Recently I have had some emotinal stress and I have noticed my pain has got much worse. I was 63 when I took my last dose of Cipro in 2015. I have more or less reconciled myself to not healing like I did in the past due to my age. This time it will be even slower if at all. I worry about getting worse -especially in a relapse. At the moment walking is difficult but not so difficult I have succumbed to rooting out my walking stick! I can still climb on our motorbike and do short trips and work about 2 hours a day in my garden. Although this does not help my tendons any it makes me happy and gives me a sense of achievement. . I do hope you can get your thyroid sorted out. I am convinced that being floxed often affects the thyroid and treatment can make you feel better.
Thanks Madge. I had my blood drawn a few days ago so waiting for the results on that. Hopefully, it will paint a better picture of what’s going on with the thyroid and I can begin addressing the issue if necessary.
Btw, I suspect you’re right about the conversion problem. Between a possible thyroid gland problem and a confirmed adrenal gland problem, there is likely to be hormone issues. This would explain my 5 year sleep disorder, among other things.
Attila,
I get what you’re saying, but, after 5 years of being mostly housebound, I’m running out of patience. If I was only housebound and not dealing with unrelenting symptoms that make my life hell every minute of every day, I would consider doing nothing at all but these are desperate times in my life. I fear the worse if my fortunes don’t change soon. Every man and woman in this world has a breaking point and I’m getting close to mine. I’m not saying any of this to draw pity, I’m saying this because I’m truly running out of willpower, and when that happens, it’s game over.
Przepraszam za negatywny tone ale naprawde jusz mam tego wszystkiego dosc.
Lukasz, what a croc. So sorry your struggling so much. You may have already tried it, but CBD oil reset my body clock. I was awake most of the night for a very long time, the opposite to what I was originally. I could sleep on a washing line no problem. Taking the CBD changed that and now I get around 7 hours good sleep. Considering my age as well that’s pretty good.
Did you ever try the ozone autohemotherapy ? That really helped me to. The trouble is what helps one person may not help another, but these two things won’t harm you at least.
Please don’t give up just yet, you never know if things could change in a moment.
Barbara,
I did try CBD oil and unfortunately, it had a really bad effect on me. It was something I was really hoping would turn the tide in my favour, but it seemed to do the opposite. As you said, what works for one, may not for another. Still, it’s good to cross it off the list of things to try. At least if I exit this world, I will exit knowing that I tried everything possible to overturn this mess. I’m hoping to stick around, but once I’m out of options, it may be time to check-out.
Are you referring to the Hyperbaric Oxygen Therapy or the 10-pass ozone therapy? I did both and like the CBD, neither worked for me. I just think I’m so badly messed up by Clarithromycin and Ciprofloxacin, that it’s going to take some kind of miracle to get back on my feet. As it stands, my quality of life is so LOW, that it makes my existence hard to justify. Having said that, I’m going to stick around for a little longer in the hope that my situation changes.
Glad you’re doing better!
Sorry to hear about your experience with CBD. Just a thought, there are many different terpins and different CBD’s. You probably know all this, but thought I would mention it as it may help others. It’s really important to start low and slow and build up. Also it’s important to find a good source with full lab results so you know exactly what you are getting. Facebook has CBD forums where you get really good information. It’s about waking up your cannabinoid system and reaching your sweet spot. Is it possible you got the wrong one or gave up to soon ? Is it possible you got a herx reaction ? Forgive me Lukasz if you know all this, I just thought it might help. I know you research a lot so maybe you are just one of those unlucky people that it didn’t suit.
The 10 pass ozone is not recommended because of the pressure on the veins. You cannot get a 10 pass in Europe. I had one a week initially for 10 weeks. It helped a lot until I had a fall about a year later and compressed my spine. So I went back and got two a week for five weeks. Again I don’t know if this would have helped you, as again we are all different. Ozone is not a cure but it helped me with pain and fatigue.
I had 30 hyperbaric sessions at one every day . Later another 30 sessions, no cure but helped with pain and fatigue. Some people in the chamber were diabetics, others people with cancer and were having one a day for around 6 months.
I really feel for you Lukasz, it’s hell on earth what you are going through, but you could be close to feeling better. You just don’t know when you could turn a corner.
I’ve written this to you because even though you probably already know what I’ve said, it could help others, so please forgive me if that’s the case.
and I would add to that, you don’t need to do all ten passes. I have a new ND who has the machine to do 10 pass, and I initially thought I would try that. He suggested starting with fewer. I’m glad he did. He said lets just start with a few and see what you think, and by the time he had done 4, I said “ok, I’m done.” Nothing I can really explain. I didn’t feel bad in any way, it was like my body just said “ok, let’s stop here.” Most times I did three. In fact, I don’t think I actually ever did the whole ten. (This was for another issue, not flq toxicity.) But I think it is helpful for SO many issues.
I thought so too so I tried a few different ones and they all seemed to make me worse. I went with low doses to err on the side of caution but still no luck. Then again, back then, I was even more wrecked than I already am and everything I tried made me feel worse so who knows. I did give up fairly soon since I was feeling very off after each one but I didn’t want to further jeopardize my health so I had to stop. Perhaps if I had carried on, my body would have adjusted to them. Herx reaction is also a possibility. As you said, I’m probably one of the few unlucky ones who’s unable to tolerate CBD.
I have huge regret re: 10-pass ozone. I never should have done it. I felt like hell for a long time after having it. Not worth the trouble. What’s worse, they used Heparin on me, a blood thinner. They made all these claims about 10-pass ozone being the cure all and it turned out to be lies. Looking back, I wish I had never found this chelation clinic, but when you’re desperate for help, you’ll do anything. These people took my money and only made me feel worse. Then again, most of these MDs, NDs and other so called “medical professionals” go about the same route. It’s all about profiteering.
If we didn’t live in a world where shiny discs and colourful paper was exchanged for services and products, it’d be a very different world but when you live in a world full of greed and opportunity, you’re going to have some very evil practices occurring and the outcome is a deceased and/or disabled population.
Sorry to stray from the script, Barbara, but I’m still pissed off as hell that we’re all going through this. All because we put some trust in the medical establishment.
The long time symtpoms are based on mitochondrial damage. If one get’s out the deleted mtDNA everything else heals too as long damage isn’t beyond repair. The main problem is that deleted mtDNA proliferates by clonal expansion and can suppress the wildtype mtDNA. Fasting and elevating of NAD+ levels enhances mitophagy of deleted mtDNA.
On the other hand oxidative stress, lack of nutrition and antioxidants, high glyx foods and glucosis, meds, poison, x-rays, too much sport increase amount of deleted mtDNA.
Michalak et al is highly recommended for theory of FQAD.
How is it possible to get out all of the mtDNA mitochondria ? I’ve tried everything within my power. Still after 13 years of taking that 1st 750 mg pill of l still have horrible gut issues. It also had a five year jump on ME since back than No one was talking about it. They were told not to speak about it to anyone as they were suing, mostly for torn Achilles. I had an attorney for three years. They suddenly dropped my case because my shoulders tore before my tendons and I developed progressive instead of another type. All I know is that I was 42 years old going to a low impact 30 min workout 5- 6 times daily along with walking two miles 5 days a week. I feel better for a few days than horrible. Depersonalzation was one of the worst parts of this poison. I’ll never STOP fighting this. I Do believe it starts to hurt the human body immediately. It really attacks especially bad once it’s totally stopped being ingested. That’s how it felt to me. As I took levequin and Avelox levequin 7 times Avelox twice for sinus infections within a three year time period. 2009 was the first time I ever saw a warning about these toxins. I say toxins as I believe that’s exactly what they are. The company KNEW EXACTLY what they were going to do to the human body 20+ years before I ingested one pill. Ruining millions of people’s lives worldwide is a greedy devastating thing for any company to do. Yet they’re still doing it ? THESE poisons need to be BANNED FOR EVER. Knowing what I know now, if TOLD I had a 50/50 CHANCE of surrival by ingesting levequin antibiotic/ POISON. I would follow my probiotics and oil of oregano capsules three times DAILY. I’d heal within days with absolutely no side effects whatsoever. SAFE natural antibiotic Oil of Oregano. No side effects unless allergic to oregano. That’s my go too now. Only if I actually have an infection. Thanks for your feedback. Any place I can read up about healing the mitochondria , greatly appreciated.
Lisa wrote an article about this publication,two years ago:
https://floxiehope.com/2017/09/06/fluoroquinolone-toxicity-article-treatment-of-the-fluoroquinolone-associated-disability-the-pathobiochemical-implications/
Lisa wrote an article about this publication,two years ago:
https://floxiehope.com/2017/09/06/fluoroquinolone-toxicity-article-treatment-of-the-fluoroquinolone-associated-disability-the-pathobiochemical-implications/
The most promissed suggestions for treating the FQ after-effects:
“In the case of mtDNA destroying, the treatment is difficult and it must focus on the stimulation of mitochondrial replication. The more destroyed mitochondria must be removed and the less destroyed must replicate in order to substitute for the removed ones and to reduce the total LEC. After many replications, the most healthy mitochondria would dominate the cell. The final effect would depend on the state of the most healthy mitochondrium in the cell.”
This one was the first thing that came into my mind after I found out about the mitochondrial damage and mtDNA damage,and after reading about how cells create new,and more mitochondria when needed I imagined that stressing the cells to work harder would be the most likely way to (partly) repair the damage.I put it to the test and it seems to work;my energy levels are up,although not to the pré-FQ levels.Later on I read on the website of Carolyn Dean that she’d come to the same conclusion.
Attention: because of weakened tendons,you’d better not stress the muscles and tendons too much,or you risk ending up worse,instead of better. And you need to build up slowly; when I started pressing myself to be more active,tiredness from working a few hours lasted for days,and it was not the normal feeling of being tired,but it was a feeling of being sick.After a while these things improved and by now I mostly get a quite normal tired feeling,and the restoration is way quicker.
“If new research would confirm the existence of FQs in the cells and mitochondria in the amounts making possible their permanent interactions with proteins and cations even after many years of FQ application, the research must focus on methods on how to remove FQs from strong protein and cation complexes. The simplest way seems to be the application of increased doses of metal cations Fe2+, Cu+, Mn2+, Zn2+, and Mg2+ which are natural FQ-competitors for protein-binding sites.”
Although there isn’t any proof of FQ’s,remaining in the cells,long after the FQ use has ended,the suggestion of daily supplementation of those minerals and trace elements seems to be a logic one.Question,here;which forms are the ones that have the best chanche to get there,where we need them most.Chelated forms might be the most effective ones.Vitamines C,E,K and others are mentioned as well.
Two years after this publication nothing seems to have been done as a follow up on this article.The writer’s urge to do more research on several points he indicated seems not to have worked,so far,in spite of the fact that he,describing the immense misery,these FQ’s cause,and the lack of knowledge,how to help these victims in restoring their health,where possible,has given the world of “Science Based Medicine” a clear message:”You have caused all this misery,and now it’s you,who has the duty to do whatever is possible to help this/your victims.” Untill now: silence!
I’ve been on thyroid meds for 40 years as I have Hashimotos (low thyroid). When I got floxed 2 years ago my thyroid went haywire!! My dosage had to be lowered 4 times! It has been stable now the past several months. I take both synthroid and cytomel which is T4 and T3. I agree with the others here and make sure you get a FULL panel to test your thyroid and only go on meds if your Doc feels it is necessary! There are 4-5 tests in a panel and make sure your Doc is knowledgeable about thyroid issues. Some are not very knowledgeable about reading and understanding all of the tests given in a full panel. You cannot just go by your TSH. You must look at the whole picture!!!
Thanks for your input, Dee.
40 years is a long time, but if it’s necessary, what choice is there? Any idea what caused your Hashimotos all these years ago? Someone once made reference to it and was under the impression that I may have this condition. This person’s family member had it and it matched many of my symptoms.
So if antibiotics cause the thyroid to go haywire, as in your case, it’s clear as day that they do some kind of damage, if not destruction, to the thyroid gland and accompanying hormones which are produced there. This would explain many of the health problems that have arisen for so many of us.
I know this is for the doctor to work out but any idea what sort of thyroid med dosages are normal for a male in his late 30’s? Do these thyroid meds have any uncomfortable side effects or are they well-tolerated? As you can expect, I’ve grown to be very cautious about pharmaceuticals, that’s why I ask.
Hashimoto can also have a genetic mutation component
I actually found out I had Hashimotos post flox by chance since my thyroid numbers are “lab perfect” My entire Mom’s side of the family has it and my brother got checked after I did and he has it as well. It’s a very hereditary disease.
Justin,
If you don’t mind me asking, how did you come to know if your lab results were fine? Is there some sort of test for Hashimotos besides the full panel test used for thyroid?
Yes -you need to have testing for thyroid antibodies as Hashimoto’s is an autoimmune condition. There are several types of thyroid antibodies. Re your question on spinach. I think lightly cooked spinach would not be goitrogenic. It is raw cauliflower and cabbage salads you should avoid. As for nuts pine nuts are the worst and an online search would check out others.l dont think all nuts are goitrogenic.
Thanks Madge.
Has anyone been pretty much healed and then gets relapses after taking medication that did not bother them before?
I was 99% healed and then I took a Tylenol and then all of my floxie symptoms returned but seem to be leaving a lot quicker than original floxing?
any success stories?
my anxiety is way to high to read all the negativity
I am 8 months out and I took 2 pill of 500mg, main symptoms were muscle weakness, worst symptom was neuropathy and I am 27
I exclusively use Paracetamol;the active ingredient in Tylenol);it’s the safest painkiller I know. Never had any problems with it,not before,ánd not after I was floxed in sept. 2016. Some trademarks add caffeïne for a faster uptake but,as far as I know,the Tylenol brand is pure Paracetamol.
I took 4 pills,and had heart palptations for 1 year,and,when these had vanished,got problems with doubble vision. Lots of tendon pain,shortly after being floxed,but these too,got less severe,although they regularely come back,and seem to travel along all tendons I got.Nerve pains as well,coming and going.
Since a while the double vision has,most of it,gone,and when it is there,it is less severe than when it started.All-in-all things are a lot better then in the first two years,and I hope it will stay that way.Had to give up drinking tea (fluoride);my main drink,and I still miss it.Still have tens of different tea blends;was unable to throw them out and hope that,someday,I’m able to drink them again without severe relapse symptoms.
well that’s disappointing to hear…especially since Tylenol is the only otc NON NSAID and it is the one that is recommended for floxies. Are you certain it was the pills that caused the relapse? Unfortunately some of us have relapses and never really know what caused them, as they appear to come out of nowhere. Glad to hear recovery is faster, and that seems to be the norm, with each additional relapse
Dear Lucasz,
I feel terrible about the word-mash I wrote. It sounds like I was in the movie “Dune”, on spice. Forgive me. I am rarely so embarrassed by comments I make. I am sorry from my heart.
My empathy for you is deep and undeniable. There are some things that have happened to me since my floxification that have changed me, deep within. Life and Death now seem so much closer. It has only been 9 monthes for me, and my husband is taking excellent care of me, so I am very lucky and grateful.
But I have changed.
I wish you the best life you may find. I hope your pains and sadnesses melt away along the Path. Be well, Lucasz
http://www.jessicawilliams.com
Well that certainly made up for it for me! That made me smile. Not sure what the “spice” is but the Dune analogy made me laugh. 🙂
Jessica,
Don’t sweat it. Upon reflecting back on your post, I came to realize that you meant well. You were trying to shed light on a bad situation. I can appreciate that. We are all suffering, some more than others, but whether we like it or not, these circumstances are what binds us. It’s what we all have in common.
I too have experienced a massive change from my previous state, so I can relate to what you’re saying re: the change within. I think quite a few folks on this website have also had their state drastically altered. It’s not an ideal experience to go through but it is, what it is. We have to accept it.
As for death being so much closer, that’s completely out of our hands. All we can do is make the best of our remaining time and hope that a pleasant place awaits us when the time comes to depart. These days, I try to remember the good times I had in my life prior to being floxed. It softens the blow.
I’m glad to hear that you have a supportive spouse. That’s a blessing in itself.
Thanks for the kind words. I too wish you a quick recovery. All the best to you.
Lucasz, Spice was the drug from the planet Arrakis that made space travel possible by folding space. I was on RSO and Norco, plus prednisone. Sorry my folding crashed into your Mothership! I am thankful that you are a reasonable man, and a fair Captain. To be good, kind, and strong is evidenced in your commitment to help others.
Peacelovesanity
Jessica
actually it was me that posted that (L) not lucasz but thanks for the explanation (although I think I am still confused.)
I think I’ll change my name to Captain Flox. lol. Kidding aside, thanks again for the nice words.
Has anyone experienced a sensation of something being stuck in their eye post-floxing? Almost like something is crawling inside? It’s probably nerve damage inside my eye socket but I’m curious if anyone else has experienced this? Even though this issue is under a month old, my very first symptom after being poisoned by Clarithromycin was muscle spams on my eyelid, the same eye that is now giving me problems on the inside. Could this be nerve damage from the drugs or a symptom of something else like thyroid disorder? There are times when it gets better and I hardly notice/feel it, but at other times, it’s a nuisance.
Anyone know what this is and what might be the cause?
I recognise this feeling;like having sand behind the eye.It’s always just one eye;never both,and most of the time it is my right eye,which,after having behaved like it should for the last few month,most of the time,since almost a weeks has started going “solo” again: double vision.Not as bad as it was,when it started,one year into being floxed,but untill now not improving,more like getting worse.At the same time my right side Archillea tendon,and even my right leg getting painfull,again.No known cause of this relapse,untill now.
Every day seems to be a new experience for a floxie. Most of my daily issues are on my left side. Only good thing about it all is that I am right handed.
Hi Don,I’m a right-handed leftwinger,but my right hand is (still) okay :-))
Oddly the same with me. I’m thirteen years out. I didn’t know what happened to me for five years. It’s been a rough ride but never giving up. My swollen ankle tendon have gone back to almost normal. Progressive neuropathy controlled by b6 and Biotin. So many natural things that have helped me. I use oil of oregano capsules and probiotics whenever I have a sinus or ear infection..natural antibiotic that doesn’t harm me and works. I use colostrum for the past almost 4 years. First a lot now maintenance a tablespoon mixed with filtered water 3 times weekly. Actually helps with shoulder and knee pain. Torn tendons in both shoulders. I used to post a lot. I find it hard to get back in at times. Still have e-mail coming through. This site gave me HOPE probably saved my life. I knew NOTHING and learned a lot. Lisa’s great. As many of the people here are. All trying to heal and share what helps them. I’m trying the NAD in subligual form trying to heal the mitochondria. SUPPOSEDLY once we’re able to get rid of the mitochondria that’s been effected. We can fully heal 🙏 it helps. Best of luck to you. Best thing that helped me was to get complete bloodwork showing all vitamin and mineral levels. I was depleted in many. B12 47. I started subliguals immediately and stopped falling asleep 😴 constantly. Again wishing you and everyone here their BEST. Health back. ✌ and positive thoughts and energy to all. To answer your question my eyes were completely dry every am. I had to put saline solution in and wait before opening them. Actually scratched my cornea once. Floaters lasted a bit than went away. I drink a gallon of Zero water daily. Helps keep the eyes moist. I also like to believe it’s helping to continually flush out these toxins
Best to all thanks for sharing.
Lisa,
Thanks for your sharing your journey. I’ve made some notes because I believe a lot of what you’ve written applies to me.
How do you take your B6 and Biotin (B7)? Sublingual like the B12 or other form? Any particular company/brand? Also, did you suffer any Myasthenia Gravis like symptoms from the neuropathy?
yes I have had the same sensations and so has my mom…..she won’t drive anymore because hers is so bad, for me I know it will go away eventually so I try not to rub my eyes but once I did have a floater get stuck and went to the eye doctor and he said that it was an adhesion and would eventually let go which it did….but it is no fun I’m an artist and hardly paint anymore due to eye issues from cipro
Hi Sheila,same problem,here.I am,or,actually,was a fanatic hobby photographer.No fun at all,now;a short view through the viewfinder is,half of the time,enough to distord the synchronisation between both eyes,and I have to wait untill my right eye wants to focus on the same point as my left eye,again.After a few times this double vision,my eyes start to get tired from trying to re-focus on one point,and all the fun is gone.Trying too much gives me a headache.I never leave the direct surroundings of my house anymore,accompanied by my camera.
Henk, as an amateur photographer myself, I know how you feel. It was/is one of my biggest life passions, along with travelling. I was never one to use the viewfinder much as I always preferred the LCD screen, but I know what you mean nevertheless.
I still take some shots here and there but they’re mostly of my immediate surroundings. Prior to getting floxed, I was all over the place taking photographs. Nature, landscapes and wildlife are my favourite to photograph. Hope you can eventually get back into it, even if you have to use the LCD screen.
I wouldn’t describe it as crawling, but a movement in the sinuses near the eye is how I would describe it. I never had sinus sensations before floxing. I had to go to the emergency room for my eyes, 48 hours after Cipro500 – so that was the worst part of my floxing. They determined (guessed) the tissue/tendons around my eyes inflamed from an immune response to the medication. The inflammation caused eye pain and blurred vision for weeks. Afterwards I was left with one under eye bag, not a herniated fat pad, but likely the skin stretched from the inflammation. One eye was affected worse than the other, but my vision returned to normal thankfully. I still get a moving sensation in the sinus area around my eye, I have no idea why. Maybe it is your sinus cavities?
So it seems this is more or less a common occurrence. As some of have described, it seems to be some kind of movement within the eye or eye socket. I don’t think it’s in the sinus cavities itself because the movement / crawling sensation seems to be more confined to the eye area. My speculation is that it’s related to nerve damage, but again, this is only my speculation. I’m thinking about seeing an optometrist for this issue, but the wait times to see one here are ridiculously long. Plus I refuse to have any more eye drops placed into my eyes. God only knows what kinds of chemicals / poisons they’re putting into these eye drops.
The eyedrops are Atropine,from the Atropa Belladonna,a plant from the Nightshade family.In the past,women used it because they thought the big eye pupils made them look beautiful (now they use Botox,to be “beautiful”;another toxin).The whole plant is highly toxic;2-3 berries can kill a child.The plant is protected (not the children :-(( ,but since last year this plant seems to grow all over the place,around my house,and I do destroy them,to protect the children.Most worrying fact:those berries seem to have a nice taste,so,after one berry they will probably eat more of them.
Those drops are not eye’s best friends;years ago an optician overdosed me and I could hardly find my way home (by bike).had several almost-accidents.For several days I was half blind and the least bit of sunshine burned in my eyes like crazy.Worked as an archaeology assistant,at the time,and it were hot,sunshiny days which made my work a terrible experience for about a week!
A few month ago my neighbour accidentally used the drops from one of his daughters, (though it were his eyedrops,for his itchy eyes because of hayfever allergy),and had the very same problem.
As far as I know these eyedrops are not more problematic for floxies than for others,but don’t use them unless they are really necessary.
Unreal. Thanks for sharing this, Henk. This makes me wonder if the eye drops that were used on me in years past haven’t impacted my eyes and vision. Between Clarithromycin, Ciprofloxacin and these drops, it’s a toss-up as to which poison has had the most toxic effects on my eyes. At this point, I can kiss my 20/20 vision goodbye. What a world.
I’d bet on the Cipro,and the Clarithromycin may have played it’s part,as well.I had great eyes,and all my same-aged friens were jaleous.Then,in 2004,shortly after a course with Metronidazole and Amoxicillin,I got floaters;It scared the hell out of me! It took quite a long time to,slowly,disappear,with some very small leftovers.But,shortly after getting floxed,the floaters were back.This was long before I got the double vision problem;at least half a year earlier.
The double vision came with horrible pains in y eyes,like somebody sticking needles in my eyes.These pains are now,mostly,gone.Only when I stress my eyes to much,like,when the double vision is there,or when I want to finish a chapter in the book I’m reading,the pains return.
I think that the Atropine drops are quite safe,if they are pure Atropine,with no adds (“they” seem to put Fluoride in more and more “medicines”;what a great way to dump industrial waist!).Better ask the doc,first.And,like with other seemingly safe things,like an ordinary cup of tea,a floxie is often more sensitive to adverse reactions.
Me too. I had perfect 20/20 vision and had razor-sharp vision. Then these poisons came into my life and my vision was suddenly destroyed. I’m still furious about that. I could go on another rant about the injustice of it all but I’ll save my breath since it won’t change a thing.
Don’t waist the little energy,left after being floxed on hate and furious thoughts; that’s useless.Better appreciate what’s left and try to make the most of it.I’m glad my ears are still in exellent condition;it made it possible for me enjoy the beautiful and sometimes meditational music of Jessica.You might want to go there and find some joy and relaxation as well:
http://www.jessicawilliams.com
I know there’s lots of good music to be found but she’s one of us,floxies,remember? And for people,in a better financial condition than I am: you might consider to help her by buying one or more of her cd’s;then,maybe,one day,she’ll have enough money to (re-) buy a piano (had to sell her own;read her story,on her website.)
Wish I could, Henk. Reality is, my blood will be boiling over this until the day I die.
Could this be an extreme symptom of dry -eye? Both floxing and hypothyroidism cause this. I have never had this though I have had bouts of dry eye . After my second floxing when my hypothyroidism was discovered it was so bad I had to have lubricating eye drops.
It very well could be. I pray that it has something to do with my dysfunctional thyroid, if it’s even dysfunctional, so that I can address it with thyroid meds and hopefully get my vision issues resolved. I noticed that the double vision / blurriness tends to occur later in the day. It’s not so bad early in the day but gets progressively worse as the hours go by. If thyroid meds resolve this, I’m happy to take them for the rest of my life. If it’s a floxing symptom, I’m pretty much screwed.
Lucasz, I slept on my side ( a first for about 9 months) and laid on my eye. It was dim and fuzzy all day. I’ve had a cataract operation years ago, so it’s not the lens, it has to be either subtle retinal tearing (retinal detachment is a trick of the flox fox). But I washed both eyes with streams of water, and this yellow-grey kind of goop came out of both eyes. It’s like a huge floater but not clear. Just try that, and maybe it might work. Maybe our eyes get “infected” from flox. Whatever — this was not clear optical exudate — this spoke of infection.
Jessica,the floaters I had in 2004 were black;it was blood,from a teared small bloodvain,and it took a long time to vanish.My recent floaters,and the ones I head since the black ones vanished,are mainly transparent,sometimes black But those are mainly small,compared to that first ones in 2004.It sometimes helps (according to the eye doctor),to sleep sitting right up (the floaters will sink to the bottom of the eye),but I can only sleep on my right side,since my health problems started.
Sleeping on my (right) eye causes,just like you experience,a blurred vision for hours,after waking up.Best is,to not touch that eye;could make things worse or make it longer to get o.k.I think that laying on your eye does something nasty with the tendons on the back of the eyeball.Only rest brings it back to “normal”.The yello/gray “goop” you mentioned makes me think of the “corns” you often find in the corners of your eyes,at wake up.It’s the dried tear fluid;most of the time it’s hard “corns”,but sometimes it’s a sticky stuff; an infection might play a role,here.
The floaters are caused from vitreous tears. Just like all other connective tissue, good ole cipro and the other flq toxins eat through it. Mine were so severe that the day after ONE pill I rushed to the eye doctor thinking I had a detached retina.
Within a couple weeks I had so many floaters, I could not see more than a couple feet. My eyes were literally filled with what seemed like hundreds of them. (These were those greyish ghostly squiggle.) For more than a year it was like trying to look through gauze.) Then within a month or so, I got the little black dot ones (also floaters.) I kept waving my hand to the side, thinking there were bugs there. There was a long period of time…months, where there were so many, they would literally cover whatever I was looking at. I was terrified it would always be like that. I remember standing on the white tile floor of a Costco, while someone picked up something for me. I just stood there in tears as I looked down and it seemed to be covered in thousands of these little black dots.
The scariest thing to happen with my eyes was seeing two different images. NOT double vision, but two distinctly different images. Our minds automatically merge what we see through our eyes into one cohesive picture. But my brain wasn’t doing that. I was seeing one thing out of one eye and a different thing out of the other. Fortunately that resolved.
I don’t know if it was just time, or the CAN-C eyedrops I took for over a year, but the floaters are mostly gone. My sight is not as good as it was (although I still only use reading glasses), and I was diagnosed with macular degeneration after the cipro. I do a light therapy procedure every 4 months to hopefully keep it at the stage it is in since there is no cure. I was fortunate that the doctor who developed it lives in my county.
I am posting a link of what it looked like to look at anything for several months. Not sure it will go to the right place though. https://duckduckgo.com/?q=black+dots&t=ffhp&atb=v1-1&ia=images&iax=images&iai=https%3A%2F%2Fs3.amazonaws.com%2Fspoonflower%2Fpublic%2Fdesign_thumbnails%2F0457%2F3970%2Fminikuosi_dots_bw_new_shop_preview.jpg
I first tried the link you sent and,well;lots of black dots,that’s for sure ;-)) But I don’t think it was where you ment to send me/us ;-)) But it was funny,and gave me a good laugh,so,thank you!
My first floaters,in 2004,the black ones,were “strings” of blood,from torn veins.My eye doc confirmed this;in fact,she told me what it was because I didn’t have a clue.The vitreous tears were there,as well,and it’s that kind of floaters,that I had,from time to time,ever since. Might be some black onces between them that consist of blood cells,but I don’t want to go to the eye doc anymore;she’s too fond of using the Atropin fluid on me.
IN times when the floaters are there,I also have this “light show”,when I move my eyes around in the dark. These seem to be caused because of a partially torn retinal,and damaged nerves.
Today I woke up with a cramped and painfull right side buttock,and because of the pain I hardly did a thing untill now.Being floxed has brought pain into my life on a daily base.Sometimes there’s a good day,more often the days are no fun at all because of the ever present symptoms.I hope,there’s a special hell for doc’s who,willingly,poisoned us,and so many other people,with extra tortures for the most evil among them ;-))
nope, that was it! That is what my eyes saw for the first year. Your post reminded me of something else. I had an absolutely terrifying “light show” in the central vision of my right eye that went on for ten minutes. It was like a big arc of light with little bursts of electrons over it. Thanks fully that never returned. But I do get little flashes of light from time to time and my eye doctor told me it was from the macular degeneration. I now see a couple different opthamologists…since I don’t want to trust anyone in particular
sounds a bit like my lightshow;circular flashes in the middle,and some smaller flashes on the outsides,left and right.I.had a dark “flash” by daylight,for a while,but that’s almost gone,now.Haven’t seen that one,for days.That’s why it amazes met that I still have a sharp view on distant objects,and a reasonably sharp view on reading distance (I’m 65),alhough,especially when I’ve laid on my right eye during sleeping,focus of hat eye is disturbed for hours,sometimes for the rest of the day.In now way as much fun as the lightshows were,back,in the 70’s (I was a DJ,back then,although not a real pro :-))
Fact: Bob Beck created the surrealistic light effects in the movie “The Trip” (1967).This was just one of his many interests.Peter Fonda,one of the actors in this movie,died yesterday,aged 79.
https://www.imdb.com/title/tt0062395/
yes, I heard about Peter Fonda right after hearing two friends I had not seen in quite a while had died. One in his 50s , the other in his 60s 😦 Both seemed very healthy last time I saw them. Another reminder we need to make the most with what we have. Although if someone had told me that at gasping, underweight, blinded self, I would have said “yeah, right.”
Madge,I really don’t know what causes this nasty feeling of “dirt” behind the eye,but in my case,it slowly got less and less frequent,and now it is only seldom there. What might help is an eye-wash,with destilled water or,what I used,Camomile tea,and Colloidal Silver water.Don’t know which of both worked best,but in the end it helped a lot.I only used the C.S.before sleeping to eliminate the extremely small risk of getting “blue eyes” (Argyria).
Like all FQ symptoms,the quality of my eyes,too,has ups and downs.Today the double vision,that came back a couple of days ago,seems to have disappeared (for now),and my vision of distant objects is (almost) razorsharp.Even reading without using glasses is still possible although it takes some more afford and a little more distance between eyes and text.Ingredient lists are almost impossible to read,but that’s because the companies choose to print them in the smallest character,possible;they don’t want us to read what’s in our food!
Thanks to everyone for their input on the eye issues. It’s another wound I have to make peace with.
My main eye problem has been blurred vision when I wake up. This comes and goes and when present disappears after 5/10 mins and a lot of blinking. I have had it many years now. 8/9 months after my last dose of Cipro I suffered a vitreous detatchment in my right eye. This has never gone away ( unlike one my husbsnd had) but I have got used to it. It looks like a small black twig with a few dots round it.
The greatest place to find information to help as much as possible. To all of US we now call ourselves ” FLOXIES ” MAY this site help you on your journey to healing as much as possible. If not completely. Thirteen years later I’m still fighting off side effects. Many have disappeared others remain. No two of us are the same, what helps one may or may not help another. I found the best thing that helps all is Magnisium. Get your vitamin and mineral levels checked by a caring Dr or endocrinologist and start from there. Best of luck to you all. May your healing process begin. Never give up, no matter how bad it gets we’re still here. Other’s lost their lives with just one pill. The company needs to be held responsible and do everything possible to find a cure for all of us. Thirteen years of suffering from an FDA approved antibiotic all because I trudged a lazy Dr who never looked back for updates on these toxins to the human body. ✌ love and mostly your HEALTH.
I wonder if somebody else noticed this,so I ask. Like many floxies my healthy looking skin changed to a dry,wrinkled skin within a few weeks after getting floxed.But this year I spent a lot of time outside,and in my garden,and my skin seems to hardly get any sun tanning;it still has that pale look it had in spring.And wounds heal very slooooowly,to,and leave a sign that hardly vanishes,if,at all.
I know I’ve read something about the ability of sun tanning,and the Melanin production being damaged in Floxies,but I can’t find that info back,for now.Has anybody noticed this same symptoms? And has anybody found info about this,and NOT lost it (like I did ;-))
Dear Henk,
I was severly floxxed 10 monthes ago (cipro) and my skin has also reacted. My face is fine so far but my hands! I’m female, 71, and I’ve seen fire and I’ve seen rain but flox changes all of you. The only thing I’ve found that really works to keep skin smooth, and cut the pain is liquid RSO, CBD, home-made in my house because my husband is a licensed grower of such products (limited to my 15 planys). It’s too expensive on an SS budget, but he makes it for me, and uses extra green virgin olive oil as a base. Look up “Primo: making RSO) on youTube.
https://accounts.youtube.com/accounts/SetSID?ssdc=1&sidt=ALWU2csTFbSx0pH4guFbCUXPVBxevD520mReN8ieFL%2BSiJZJ4zdYot1jPoAf4yj3gnRFtyneEHzzaJcR36DhxiPiIcov0xrf9ugpw86JKTGVkJO4uG8tOBMn2IMsT5V9%2FJzgvbZjnChAp5NrC08sCGbgIQqCSLSYl1R7RgAlcZKY1Bhvibh24wu2rk8celvyouTaCMb%2FvDgFhnlr8Qb7Fj69El7j4p3FI9ZGfLVJnIIbx7cuTWeOWVtuAD%2B9tSjGzss14D9Sismc9WzvT8s%2Fhd%2FyzzeBqbJodQ%3D%3D&continue=https%3A%2F%2Fwww.youtube.com%2Fsignin%3Faction_handle_signin%3Dtrue%26app%3Ddesktop%26hl%3Den%26next%3D%252Fwatch%253Fv%253D4EFbjb51hTc%26auth%3DnQetV3hK8PcgPQDiUYQ0WEnsZZtAIBP4wtvSt6-LAjGrGJidR-da95LEPql3pGc3igS2PQ.&tcc=1
As you might know,Rick Simpson moved to the Netherlands (that’s where I live :-)) I don’t recommend his method;here’s some research by a dutch and an italian university,on the best solvent to make Cannabis oil,and your husband is using it already:
http://www.cannabis-med.org/data/pdf/en_2013_01_1.pdf
One of the reasons olive oil is better than alcohol or Nafta: made with olive oil the end product contains more terpenes:
“The use of olive oil as extraction solvent was found to be most beneficial based on the fact that it extracted higher amounts of terpenes than the other sol-vents/methods”
Recent research shows the importance of terpenes; they play an important roll in the medical properties of Cannabis oil,and a lot of other natural remedies.
The links in your mail brought me to the sign in page of your YT account;I guess something went wrong?
Although I’m not a real piano lover,I did listen to some of your music,and I really loved it! It’s so relaxing,and it made me think of some of the better “New Age” music,I heard in the past.I really hope your situation will improve,and you’ll have a good piano at your disposal,again; what a waist of your talent,not to be able to use it fully.Your story is,in some ways,like the story of Nikola Tesla,to whom we own so much.After he helped Westinghouse with his financiel problems,Westinghous let him “rot away” in a cheap hotelroom,not being bothered at all about the waist of talent to which he,himself,owned so much.The American way?
I think good,and bad people can be found,all over the world.One difference: you’ll have to search for a long time to find a good person,and friend,but you won’t have to search for the bad people at all:they will find you!
I wish you,and your devoted husband,all the luck in the world,and an improved health in the future!
Dear Henk,
I was in San Jose airport 35 years ago, and I was complaining about how many people were wonky, daft, and out-to-lunch. This man is front of me turned and said to me, “Lady, if there were more bad people than good, none of this would be here.” And I never forgot him, this man I had never met. Some words are just rue, and I believed in what he said even long before I met him, because people are as beautiful as angels sometimes. It’s important to maintain a “naive perspective”, even at my age, because it’s just who I am and who I always will be.
My career gave me the opportunity to play a lot of piano in my 50+ years, but never have I listened so ardently to Valentina Lisitsa playing Beethoven, or Curtis Mayfield (Shaft) playing New World Order. Music still makes me smile, laugh, even feel a deep sense of peace at having been so lucky to be part of all that.
I saw this interview with Joni Mitchell, and she was older . . . still beautiful, still, super-charged, and still full of her rage at the men who had “wronged her”.
If I held grudges like that, I would paddling her raft with her, right into the waterfall . . . because it’s not “chance” how we go, it’s choice. If we can think at all through our floxation, we can decide to be heroes or zeroes. We don’t have to do anything special, just be there and be a force for good. Be remembered well, or not at all.
It’s easy to write words. Words are useless in some situations. There are so many floxies that are so much more affected than I. I can still walk down the hallway. My life is 90 percent different now — but I adapt. I lived through two weeks playing duo with Stan Getz — I can make it through this.
Henk, I love Holland, the tulips, the windmills in the countryside, the Van Gogh Museum winding through my days like millions of sunflowers, and peaking with his Japanese Prints, so unknown and so elegant, I love the Amsterdam Pizza (with corn), the Bimhaus, the smell of cannabis in the air, the health-care, the whole idea that is Nederlands. I lived in Copenhagen with Dexter Gordon’s wife for awhile and loved it. It was cold, but it was safe and civil, then. I am not so sure of now.
Thank you Henk, for enjoying some of my music. It was so much fun to make.
Lovepeacesanity
Jessica
free downloads at my site, full albums:
http://www.jessicawilliams.com/downloads.html
http://www.jessicawilliams.com/downloads/gifts.html
http://www.jessicawilliams.com/sheet_music_2.html
Where is a safe place to get CBD oil and what protein powder do any of you use or collagen?
Yup. I somehow suffered a cut on my foot near my ankle, don’t even know how it happened but it was there, and it wouldn’t heal for many, many months. I’m talking like half a year or so. In the past, if I suffered anything of that sort, the cut would be healed within days or a few weeks at most. Now, everything takes ages to heal. There’s a very delayed response and I believe it may have something to do with White Blood Cells (WBC) which I believe are responsible for healing and immune response.
Blood tests I’ve had in the past revealed low WBC counts. Prior to getting floxed, they were always normal. Need I say more?
Interesting. I hadn’t thought about this. I got a blood blister on my foot and a midwife/nurse told me it would be gone in a week or two. It finally left after—-2 1/2 months!
I know what not healing is like. I have a cat that delights in trying to grab my foot when I pass him. He always has a claw out while doing this. It leaves a pin point mark on my foot and leg. It is sometimes months before it finally disappears.
Well this really pisses me off. I had mentioned that someone could perhaps find a used copy of Dr Jay Cohen’s book, now that it’s out of print. Well, I went to the medication sense site which linked me to amazon sellers and the CHEAPEST was $94.74 going all the way up to (are you ready?) $706.70!!!!! (but hey, free shipping!) Amazon has a place to comment on pages so I did. This is just obscene. Now I am going to contact the publisher to see if they would do a reprinting….
L.,just a few weeks ago I bought a newly published oudition. I think I read something about this being an edited (by his children) audition of the original book,and the name changed as well: (What you must know about) The Hidden Dangers of Antibiotics (2018).Copyright: Barbara Isrow-Cohen (I guess this is his daughter).There is now dutch translation,yet,so I bought the original,englis version and payed € 14,31.On the back is a little price sticker;in GB it costs 13,99 Pounds (Deep Books ltd.).
The original book was 206 pages,this edited version is only 130 pages,and the way it was edited is unkown to me.It’s not what you and I were looking for but it is the next best thing;the original version will ,probably,never be reprinted.All I hope is,that some owner of an original version book will scan it and share the scanned version in the P2P network,some day.This new book feels like,what we call here,in NL,”tailriding” on the popularity of the original,and the extreme prices on Amazon are justified,by the sellers,because of the rarity of books,for sale.
The new book: ISBN 9780757004698 (paperback).
That’s good to know. I had though that that was an earlier book. Is it all about fluoroquinolones or does it include others as well? I tried contacting the publisher of the other book and it turns out it was a self-publishing company.
Where J.Cohen was pointing to Cipro as the worst of the family of FQ’s,this book just talks about the FQ family,without concentrating on Cipro as the worst of the family,at least,they do that in the title of the book.This new book also seems to be 50 % shorter,so,I think that lots quite a bit of the original is “lost”. People who read it still think it is an important book but because I’ve never read the original I can’t compare on that.I will read it,as soon as I find the time for it;on my bed I only read dutch books,and with a more pleasant story,shortly before going to sleep.
The “sub” title is:How the side effects of six popular antibiotics can destroy your health,so,I suppose it’s only about FQ’s. Also saw a thing about the contra-indication between steroids and FQ,s,and Part 2 of the book is about advices for floxies;of course magnesium is mentioned as an important and beneficial supp.,as do N-Acetylcysteine,Zink and vit. E,and other remedies.Wel worth the money,I guess.
well I have the other book and the title gives cipro and Levaquin equal billing…but can’t remember now if it mentions any of the others inside. And yeah, those were the basic supplements he recommended in the other book. He had also suggested that if you HAD to take them (I would never ever again) that one should take magnesium four hours apart from it.
Hi L,any chance of you,digitizing it? Would be great! All the info that’s not in the new book,would otherwise be lost for humanity :-(( And for all the floxies.:-((
No. A) it would take forever and B) as a writer myself I understand copyright laws—not something I would want to do. I have pretty much covered his important insights on this site a number of times
L.,I understand.It was only because of the fact that this book is out of print,and will not get re-printed in the future,that I asked you.Taking photographs and puting them together in a PDF file would be a reasonable job,though.It is one of the books that Google Books will probably not publish on it’s Google Books,website,because of “conflicting interests”,being the interests of the Farmafia.
The absurdly expensive one ($706,70),is “This book is not in the greatest shape, qualifying only as Acceptable condition.” Wauw!!!The “good” and “very good” ones are way cheaper.Review of this seller,Books in Demand: 1 out of 5 stars
“My order was cancelled by the seller and the product I wished to purchase was marked-up $700.00 from order date. The book should have arrived today. There has been no contact from the seller about this development. Books in Demand cancelled my order in order to mark-up the price of this product. This seller should be taken off the Amazon platform.”
I totally agree with this unhappy buyer !!
Anybody noticed the Jay S. Cohen M.D. Foundation website also disappeared?
well like I said I contacted amazon about the entire page. It’s obscene. I think price gouging laws should apply. Here is the US it varies state to state, but basically you cannot raise the price of a commodity by more than a certain percent during / after an emergency, like bottled water after a fire or hurricane. To me, this is no different morally. Didn’t know about the foundation site, but the medication sense site, while still up, is obviously not being monitored since it still has info re if you want to contact him for a speaking engagement.
Guess what? This book,”only” $ 945,95 !!! What a world!! Of course,this is all about the same greed that makes so many people suffer from medication damage.
https://www.abebooks.com/servlet/BookDetailsPL?bi=30402519242&searchurl=isbn%3D9781518626869%26n%3D100121503%26sortby%3D17&cm_sp=snippet-_-srp1-_-title3
According to the book seller this book is in good condition. :-)) Anybody???
That makes me so angry. Especially since it may have been originally purchased by someone who knows how hellish this can be, and how desperate people feel. I just hope no one ever buys it.
Hi! Can anyone answer me? l’m anxious during the day but when the afternoon comes and the evening this feeling vanish and my tinnitus also subsides?
Atilla,I don’t have a clue about what causes this anxiety by day,vanishing at knight.The only person I met,in a far past,with this kind of problem,was an alcoholic.He never drank during the day,because of his work (didn’t want to loose his job),and complained about shivering and shaking,while at work,but as soon as he came home,he started drinking alcoholics and the symptoms disappeared.Not long after that period his mother found him on the floor os his appartment,in a diabetic coma,and he hardly survived.
These symptoms might be bloodsugar related as wel,but I don’t understand that they don’t appear after you had a meal,but in the evening.Any way,you might by a bloodglucose meter and check;antibiotics do cause hyper- and/or hypoglycemia,and this is one of the problems that,at least in my case,don’t really disappear.But you can learn to control it with a diet,and I used a magnetic pulser (Beck protocol) which helped a lot.
I have no idea, but if you find out, let me know. I would LOVE my tinnitus to subside. It seems to have only 3 settings: barely tolerable, so unacceptable and where’s the scotch?
Dear Attila,
The stuff you do during the day is likely to be unpleasant for you. Any stressor can trigger symptoms, right? I know with me, if I watch the news, I’m going to pay later in Karma of my own design.
So I avoid any stress. I am older, and perhaps it is easier, because my health team is so organized, and I have little to worry about right now.
The experts are finding that watching movies actually helps patients who are stuck in bed. I watched “The Guardians of the Galaxy Volume 2” and never once though of my problems. Sometimes you just have to let your freak flag fly, and eat that Hagen-Daas Ice Cream or spend that $20 for “Endgame”.
When my own evening comes, it’s husband, bed, (omg it feels good to lie down), sometimes a small snack like fruit or cottage cheese, my sleep meds, and the best cannabis I have. It’s not an addiction. It’s my medicine, prescribed by my physician, and it’s wonderful. I sleep soundly for the first time in my life. I take my RSO with milk and cinnamon. Okay, nutmeg and vanilla too. I have rituals. I rub marijuana cream into my joints.
I am still ambulatory enough to get around the house by myself. I am lucky!
Your tinnitus is a good indicator of heart rhythm and steadiness. When I can hear the crickets, I know I am making progress. It means the pressure is off and you can finally relax, and lordie have I know some uptight people that would not ever relax. Wired tight as drums. “White people waiting to die” could be a theme for my elderly neighbors, but for me, I choose the future, and I want to leave the world better for the children. This is all about the kids. I want to be the best role-model I can be.
Good luck and love, Attila. It sounds like you have “Bright Moments”. Trust in those moments, and be a giver, always. Things will come to you as you need them, I pray.
http://www.jessicawilliams.com