Floxie Hope

Floxie.Hope.1800.72.dpi

This site is to give HOPE to those who are suffering from Fluoroquinolone Toxicity Syndrome as a result of being poisoned by fluoroquinolone antibiotics – Cipro, Levaquin, Avelox, Floxin, etc.  It contains stories of healing.

Cipro, Levaquin, Avelox and all other fluoroquinolones are dangerous drugs that can have devastating effects that cumulatively I’ll refer to as Fluoroquinolone Toxicity Syndrome or Floxing.  Fluoroquinolone Toxicity Syndrome/Floxing includes damage to connective tissue (tendons, ligaments, cartilage, fascia, etc.) throughout the body, damage to the nervous systems (central, peripheral and autonomic), and more. The damage done by fluoroquinolone antibiotics can destroy a person’s quality of life or even kill them. Certainly, there is a time and a place for drugs with dangerous side effects. If you find yourself in a septic shock induced coma, fluoroquinolones may save your life. Unfortunately, these drugs are not being reserved for life or death situations. People are being prescribed them for urinary tract infections, suspected prostate infections, upper respiratory infections, as a prophylactic for travelers’ diarrhea, ear infections, pink eye, etc. Thousands of people have suffered needlessly from the devastating effects of fluoroquinolone antibiotics, when another, safer antibiotic could have, and should have, been used.

The damage done by fluoroquinolones is largely unacknowledged by the medical establishment and an accurate diagnosis, compensation and relief are difficult to come by. There is no known cure for Fluoroquinolone Toxicity Syndrome/Floxing.  However, many people continue to LIVE after being poisoned by fluroquinolones.  They find healing, recovery, perseverance, compassion and hope.  These are their stories.

This site is meant to give hope for healing to those who are adversely effected by fluoroquinolones.  It is no way meant to disregard the pain of those who are chronically suffering from the horrifying effects of Cipro, Levaquin, Avelox or the other fluoroquinolones.  There are people who don’t recover.  Their stories are real and they matter.  There are also people who are able to recover and I share their stories with the hope that they inspire others, or at least give hope that recovery is possible.

Here is a New York Times article about the dangers of fluoroquinolone antibiotics – http://well.blogs.nytimes.com/2012/09/10/popular-antibiotics-may-carry-serious-side-effects/?_r=0 – more news stories, research papers and other resources can be found on the “Links and Resources” page.

Here is a Facebook group that is a great resource for those going through Fluoroquinolone Toxicity – https://www.facebook.com/groups/floxies/

Featured post – I’m floxed. Now what?

The Fluoroquinolone Toxicity Solution Ebook has helped many Floxies to recover, including DanielCindy and Ruth.  As a bonus, you will also receive The Floxie Food Guide – a book of diet guidelines to help you through fluoroquinolone toxicity:

flu tox get help you need banner click lisa

 

 

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15,310 thoughts on “Floxie Hope

  1. Lebo February 9, 2017 at 9:38 am Reply

    Hi Lisa,

    Am a black male from South Africa and I believe I have been floxed after taking 500mg cipro two times a day for five days. Prior to that I had taken predisone and had just cold turkeyed from benzos, so I was really hit hard. I lost my job, my family is not offering much support, I wallow in pain on most days, not able to afford any diet, I just eat whatever due to financial constraints and not having the means. Can anybody suggest measures one can take in improving their health naturally, as I do not have the means and I am in constant pain and its affecting me so much.

    Regards

    • L February 9, 2017 at 10:03 am Reply

      So sorry Lebo that you have had to join our group. The most important things are to avoid fluoride, GMOs, gluten and if at all possible eat organically. Also never again take any steroids. Your magnesium levels are likely severely depleted and it is so important for many things including nerve functions. You can find some pretty inexpensive magnesium supplements (avoid citrate for diarrhea reasons) and try to get 400-800 mg. There are food sources as well but I am not sure you can get enough at this point from food. Another HUGE problem is cipro destroys the good bacteria in the gut, which is linked to pretty much every disease you can think of. Probiotics with live cultures and different strains are important to take. They can get expensive. Also helpful for this are things like fermented foods. Goats milk kefir is good. Most definitely avoid any meats that are not organic, because they can have antibiotics in them and cause you more problems.

    • Michael Teeter February 17, 2017 at 12:21 pm Reply

      Hey Lebo I am so sorry to hear that you were Floxed. Here is a non Profit Organization that helped me. I am still recovering after 5 years. Check them out they offer good stuff and I am sure they save my life the last time I was in the Hospital.
      http://www.pointofreturn.com/

      • Lebo February 17, 2017 at 2:27 pm Reply

        Hey Michael, thank you, will check them out. How has the journey been for you?

    • charlottejacobs February 25, 2017 at 10:45 am Reply
  2. Agata February 10, 2017 at 6:29 am Reply

    Hi Lisa
    I woul like to ask you how to avoid fluorid….i know its in toothpaste, cooking pans…teflon……water(our country does not fluorinate water)…..what else? Can you tell me more specific?
    Thank you very much

    • L February 10, 2017 at 11:38 am Reply

      Hi Agata, I am sure Lisa will respond, but I saw this so I thought I would add my two cents. You just really need to either read labels or do research. Things like toothpaste I either get at a healthfood store or order online. If you are unsure you can always contact the manufacturer. For other things, like pharmaceuticals, which I try to avoid to begin with, you really have to go online and research them. For example, I was on inhalers for asthma. I already knew they had steroids in them, which is bad enough, but then I discovered that they also contained fluoride, once I went online and looked for ingredients.

      For water, if it is fluoridated where you live, you can buy bottled water, with varying degrees of fluoride. I go to a water store and buy distilled water. The problem with distilled is that it is “dead” water, missing key minerals you need–so I add them back in with fulvic acid or something called concentrace, which is mineral replacement (that is a brand name and there are other brands out there.)

      Mainstream dentistry uses fluoride, which is why I recommend, if at all possible, that floxies find a holistic dentist. They don’t use fluoride, and they use materials and methods that are more bio-compatible. The gold standard for these dentists is Huggins training. You can search online for Huggins trained dentists.

  3. Agata February 10, 2017 at 1:37 pm Reply

    Hi
    Thanks for replay, i am avoiding this things you mentioned, but what about food….tea, vegetables?

    • Lisa February 11, 2017 at 10:43 am Reply

      Hi Agata,

      I agree with the advice that others have given. It’s horrible that tea (including many herbal teas) have fluoride in them. It makes me sad.

      I try to avoid fluoride, and I think that avoiding it is a very good idea for “floxies.” Cut it out as much as you reasonably can. Jason Uttley credits eliminating fluoride from his water (through drinking reverse osmosis water) for his recovery. You can read more about fluoride here – https://www.earthclinic.com/news/why-the-us-should-ban-fluoride-in-drinking-water-by-jason-uttley.html#jason. Please note that he still bathed in regular tap water, and he also pointed out that many supplements contain fluoride, so he avoided many of them.

      Please note that I recovered while not avoiding fluoride. I have since avoided fluoride, but I did fine while brushing my teeth with regular toothpaste and drinking tap water.

      Regards,
      Lisa

      • Agata February 11, 2017 at 1:16 pm Reply

        Hi Lisa
        The problem is that i don’t know if i have been floxed. I had surgery in general anasthesia and anasthetic was sevoflourane. I requested the medical data and there are no quinolones mentioned. But after surgery symptoms began. My mayor problem is that ligaments streches so easy and the joint are the unstable. Whic is causing a lot of pain. The condition has affected my whole body. Does anybody have the same symptom? There are poping joint which hurt. My connective tissue is like being melted?

        • L February 11, 2017 at 5:23 pm

          fluorine is different from fluoride. the former is a naturally occurring chemical. But often with surgery they give you some kind of prophylactic antibiotic. I would want to see exactly what was given aside from anesthesia.

          as for the popping—I had that a lot, in my knees and back especially. The knee with the most popping was later determined to have a torn meniscus. If you did get a fluoroquinolone, they are known to destroy all kinds of connective tissue

        • Agata February 13, 2017 at 7:30 am

          Hi
          Thank you much for replay, i still have one question to go, if anyone can replay.Two years ago, because of my problems i got dexametazone shot(again fluor), the next day i got my blood tested by another doctor and my iron levels were 38. Could this be a sign of toxicity? Thanks

        • Virginia February 13, 2017 at 5:40 pm

          If your ligaments stretch too easily and your joints are unstable, you might have Ehlers-Danlos Syndrome. You can google the symptoms. People with this disorder have a much worse reaction to Fluoroquinolones. There is no cure; one just has to manage the disorder with no over-exertion and avoiding FQs. I’m sorry for your struggles!

    • charlottejacobs February 25, 2017 at 9:02 am Reply
  4. charlottejacobs February 10, 2017 at 2:38 pm Reply

    Tea contains fluoride as do one third of medications as well as eye drops.

    You can have filters installed to remove fluoride from tap water but this is expensive.

    • L February 10, 2017 at 4:10 pm Reply

      also, the older the leaves the more the fluoride. “If you are interested in reducing exposure to fluoride and the harm that may come with it, choose white tea, the tea that is made from young leaves. This does not mean you can avoid fluoride in tea by drinking white tea, only that your fluoride exposure may be less than with other types of tea.” (like black or green) I think herbal teas are a safe bet, but have read that rioobos also contains fluoroide. also, you might want to add 2-3 brazil nuts a day to the diet, as they are high in selenium, which helps block the effects of fluoride.

  5. Kurt February 11, 2017 at 9:25 am Reply

    Hi All,

    I have hair loss on my lower left leg due to the neuropathy. Just wondering if anyone has experienced this and if the hair will eventually grow back?

    Also….does collagen repair itself over time? My skin looks aged and loose. Just curious if it will look like this forever now or does it improve?

    Thanks for any info!!

    • L February 11, 2017 at 11:07 am Reply

      my skin is aged significantly too mostly on my legs, but in large part I believe because I lost 30 pounds in just weeks post-cipro, and I was underweight then for months before I put back at least some of the weight. I also am middled aged so skin just does not pop back like it used to. Not sure how much is the rapid loss and how much is collagen damage. I have been taking collagen peptides in a near-daily smoothie, but have seen no difference as far as the skin.

      • Kurt February 13, 2017 at 6:39 pm Reply

        Thanks for the reply “L”! Happy healing…

        • Lisa February 15, 2017 at 7:26 pm

          Some people have reported that their hair and skin look better after taking collagen supplements that are supposed to support hair and skin health. Sorry for not knowing the specifics right now, but supplementing may help, so I thought I’d mention it.

        • Kurt February 24, 2017 at 3:49 pm

          Thanks for the reply, Lisa. I just bought some collagen powder, so I’ll give it a try and hope for the best. Take care….

  6. Tricia February 13, 2017 at 2:41 pm Reply

    Has anyone ever used local anaestesia lidocaine, and have been okay? Also. …is valium safe for floxies? ?

  7. Sarah February 13, 2017 at 4:39 pm Reply

    I found your site trying to find out what’s wrong with me. I have what they think is a sinus infection and told me to take mucinex and Flonase. The next day I was worse and was prescribed levofloxacin 500mg daily and after ONE dose, I started with extreme anxiety, restlessness, chills, calf pain and tingling in my foot. I stopped taking the levofloxacin but was told to take some ibuprofen for the leg pain. I was seen in the ER the next day and they switched the antibiotic to a z-pack and said my leg would get better. Two days after that ONE dose, the anxiety has subsided some but my leg is so sore from my hip down, feels so weak, and my joints are popping. I still am having the chills pretty bad. I am hoping that this will start getting better and not worse as I am leaving on a trip in 6 days… and suggestions on how to correct the poison I put in my body would be greatly appreciated!!!

    • L February 13, 2017 at 5:06 pm Reply

      So sorry Sarah…yes injuries can occur from as little as one pill. First, do NOT take ibuprofin or any other NSAIDs or steroids. Up your magnesium intake, take a good probiotic, avoid GMOs and gluten (much of this is connected to the destruction of good microbiome in the gut) and avoid any nonorganic meats (possible antibiotics). If you scroll though Floxie Hope you will find a great many more suggestions. Oh, and avoid fluoridated water too.

      • Sarah February 14, 2017 at 3:44 pm Reply

        I can’t believe one pill has done this…. I just read the updates and ordered the magnesium and vitamin C. I have only taken Tylenol and at that only twice both 160mg. I take a prenatal vitamin already and that has calcium in it. I haven’t been able to eat in days so I am sure I am depleted nutritional already…. I was on Flonase and have since stopped that as well. I have told all the doctors and they just believe I am dehydrated but I am so scared I am damaged for life now!

        • Virginia February 15, 2017 at 5:14 pm

          Sarah, I know how scary it is to be floxed, but after just one pill, I doubt that you are damaged for life. After such a small exposure, you are very likely to fully recover. Time is your best ally. Be very gentle with your tendons and never push past pain. I also take lots of Magnesium and vitamin C and they may have helped accelerate healing.

    • Bob February 13, 2017 at 5:13 pm Reply

      I would start talking magnesium and calcium immediately. The calcium binds to the drug which has massively depleted your magnesium. I would also order some spray on magnesium oil right away. If you have any naturopaths or functional medicine doctors near you a nutritional IV would be helpful. It will take some time to heal. You will probably get some more advice soon. Try not to panic.

      • Sarah February 14, 2017 at 3:45 pm Reply

        I have calcium in my normal vitamin and shouldn’t have any of the drug left in my system as I only took one pill on Saturday…. I ordered the magnesium. I am so scared I am ruined…

        • Bob February 14, 2017 at 6:26 pm

          Try not to panic. Most people recover. It may not be as fast as you would like.

        • charlottejacobs February 19, 2017 at 11:23 am

          Sarah You only took one pill. You will recover I just sense you will. Take your magnesium and calcium plus vitamin D3 and Vitamin B12. If u order online they will deliver the next day. Not advertising either.

      • Sarah February 15, 2017 at 8:26 am Reply

        I got magnesium but I think I got the wrong stuff…. it is magnesium stearate?

  8. Mark S February 14, 2017 at 12:20 pm Reply

    Hi All,

    Been an on and off poster here for about two years. I think it’s important to bring up the issue of manganese and how it plays into what has happened to us. No, not magnesium. MANGANESE. This goes virtually ignored on all support groups that I’ve seen and I don’t understand why.

    1. Manganese chelates fluoroquinolones, especially ciprofloxacin! That means when you take a FQ drug, all the manganese in your body is going to bind with it, just like happens with magnesium and other trace minerals, and your body will dump it as waste.

    http://www.ncbi.nlm.nih.gov/pubmed/23444035

    2. Manganese detoxifies your mitochondria.

    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2067987/

    3. Manganese is necessary for endocrine function.

    https://books.google.com/books?id=HTUDXnJwVwIC&pg=PA251&lpg=PA251&dq=manganese+polydipsia&source=bl&ots=Tz15XwMjap&sig=9eNXmR5C6qSKvLMdYCsrsxG6ryA&hl=en&sa=X&ei=LOMcVZ7tC5G0oQTZxYCQAw&ved=0CCwQ6AEwBA#v=onepage&q=endocrine&f=false

    4. Manganese is also a necessary nutrient for wound healing… in other words, you can’t make collagen without it.

    https://books.google.com/books?id=vhni0jStgWYC&pg=PA155&lpg=PA155&dq=manganese+deficiency+collagen&source=bl&ots=vO-JbTGCMl&sig=SA9dOLOqmPcep_JiMyg-hA-FGfI&hl=en&sa=X&ei=9MccVa7bDZetoQTQ64HwDA&ved=0CGkQ6AEwDQ#v=onepage&q&f=false

    Studies have also shown that Manganese inhibits the body’s absorption of these medications. Which is why they recommend avoiding taking them together. Studies also show that men have a harder time absorbing manganese in the first place so men may be more prone to connective tissue problems when taking a FQ.

    As far as I can see with all my research, it’s pretty simple. FQ’s disrupt the collagen matrix. We know this. But what specifically? Well, if your body doesn’t have any manganese left, how is it suppose to produce collagen for strong tendons? How is it suppose to produce cartilage and synovial fluid for properly functioning joints? How can it produce necessary digestive enzymes? It can’t. Even more interesting, it has been shown that magnesium supplements hurt the body’s ability to properly absorb manganese. This especially stood out to me because after I was floxed, and I started taking nothing but magnesium in large doses, my knees cartilage wore away and seemed like there was no lubricating fluid left in them. Was this because the Cipro took away my manganese and magnesium worsened the fact?

    The recommended amount of manganese daily is only a couple mg. However, I think us floxies are a special case and are dangerously deficient. I take 10-20 mgs a day along with co-factors such as Vitamin C and E, and a joint formula. I think I have been making strides and it could be our silver bullet in regards to why we have connective tissue problems.

    THIS IS JUST MY HYPOTHESIS. But I have spent much time looking into the matter and would urge other people experiencing the same symptoms to looks into manganese at your own discretion.

    • Agata February 14, 2017 at 3:13 pm Reply

      Thank you very much for explaining, this is important to know. Thanks

    • Lisa February 15, 2017 at 7:22 pm Reply

      Thank you so much, Mark! I know that a couple of floxie friends have noted that their levels of manganese have been really low. You may be onto something. I appreciate this hypothesis very much!

  9. A February 15, 2017 at 12:00 am Reply

    Has anyone else had intense/weird, vivid dreams while on Levaquin or other flox med? The kind where you wake up shaken up because of how intense the dream was? I definitely had them while on the med and I seem to still have them here and there- even quite a while after stopping them…

    • Lenny February 15, 2017 at 2:36 am Reply

      Same for me. I had a lot of horrific dreams short after stopping the medication and on and off since them. I realized that they are worse when i do detox treatments. This is logical to me, because detoxins mobilizes toxins which where ealier stored in the tissue. Its a art on its own to not only mobilize the toxins, but to rid of them too.

      • A February 15, 2017 at 9:26 am Reply

        What do you do as far as detoxing?

    • Lisa February 15, 2017 at 7:20 pm Reply

      I wonder if the mechanism for this is the same as the mechanism through which Lariam/mefloquine gives people horrible dreams. Mefloquine is a cousin drug to the fluoroquinolones.

      Personally, I have really vivid, though generally good, dreams. I always have though, so I don’t think that’s from getting floxed.

  10. Sarah February 15, 2017 at 9:05 am Reply

    What type of magnesium supplement is the best? I bought magnesium stearate but I think that is wrong as it does something to the T cells….

    • Lisa February 15, 2017 at 7:19 pm Reply

      The most commonly positively reviewed form of magnesium is magnesium “oil” which is actually magnesium chloride. You apply it to your skin and it soaks in from there. A lot of people also like magnesium threonate because it has better CNS penetration.

      • Sarah February 16, 2017 at 1:41 am Reply

        Thank you…. I am not sure if all that is going on with me is related to the one levofloxacin 500mg dose. Prior, I had a fatty liver and had no appetite for about a day. I am now 5 days post taking it, I feel horrible. My whole body hurts, I pop every time I move, my temperature drops into the 96 range, and my insomnia and anxiety are killing me. I have read on a lot of things to watch taking the magnesium if you have liver problems. Also I am scheduled for a Ct scan of my abdomen tomorrow with contrast. I am still not really eating or drinking and all of this is scaring me out of my mind

        • Lisa February 16, 2017 at 7:06 am

          Hi Sarah,

          I heard that taking dry lecithin (it comes as an oil and as a powder, apparently the powder is the way to go) is good for treating fatty liver. Please be careful with supplements since your liver is not operating optimally. Check with a doctor and/or naturopath before taking anything.

          Do you take hormonal birth control? If so, that can contribute to liver problems.

          I know that what you’re going through right now is Hell, but please try to believe that it will not stay like this forever. Pain of all types ebbs and flows.

          Being scared and anxious is reasonable, but do whatever you can to get those emotions under wraps. Stress is horrible for everything. Of course, you’re in a stressful situation, but still, try to breathe and/or meditate, or do whatever helps you to get through stress and anxiety.

          Hugs,
          Lisa

        • Bob February 16, 2017 at 5:07 pm

          When I was in floxed a glutathione IV helped me immensely. I also have a fatty liver. Glutathione helps your liver to detox. GABA @ 500 mg helps with sleep and anxiety. The effect of fq’s on the nervous system can be terrifying but you will get better.

        • charlottejacobs February 19, 2017 at 11:26 am

          SARAH

          I just sent you a reply then saw this. Have u had your thyroid hormones and thyroid antibodies checked ?

        • Jason February 19, 2017 at 11:38 am

          Glutathione also damages hundreds of people. I posted around 4 such people’s stories 2 months ago or so, and then very shortly after that 3 people here posted how they were also damaged.

          Highly toxic people such as Floxies ROLL DICE taking Glutathione in ANY form, but especially IV. Roughly 30-40% of people WILL have a bad reaction, some extremely bad. It might not happen on the first dose, or even the 2nd, but it WILL happen, some get screwed right away others after 2nd or 3rd dose.

        • Jason February 19, 2017 at 11:40 am

          There are two more that I just seen post today, here is one:

          Recently I had about 3 glutathione ivs in a period of 6 weeks .. latest one being 2 weeks ago. Well two weeks ago all hell brook loose. This however was at the same time I tried a new herb for Lyme called a-bart. I originally thought I was herxing from the a-Bart and as I started to feel better after detoxing quite a bit I took some oral liposomal glutathione on Tuesday. Within an hour of taking it my symptoms came rushing back (lower back pain, jaw pain, palpations, sweating like crazy in my sleep, leg pain is horrendous) and have progressively gotten worse . I feel poisoned

        • Jason February 19, 2017 at 11:42 am

          Here was one of the replies to the above post:

          “The same happend to me. During naturopat treatmetn for Lyme she gave me 4 IV glutathione. I had reaction after 2nd day of first receiving. She told me it is imposlible that happend due glutathione. I quit a treatmetn because I felt very sick, toxic. After 5 weeks I have lots of new neuro symptoms. It is horror. I was so weak, nothing helps me.”

        • Jason February 19, 2017 at 11:47 am

          Again there are ways to boost Glutathione in the body which is MUCH better than trying to supplement it anyway, and much safer with no risk of damage.

          People also need to avoid ALA for the same reasons. It can be a helpful supplement when taken correctly and can do a LOT of damage when it isn’t

        • Jason February 19, 2017 at 11:53 am

          Oh just seen one more, this is just from TODAY folks. I could keep posting these forever:

          “Two days after a glutathione IV by my lyme doctor I couldn’t feel my feet and then a few months of a supplement w/ALA in it scrambled my brain. Treating all the damage this has done to adrenals, etc. still have significant neuro issues but am praying these will get better in time.”

  11. Pat February 15, 2017 at 3:40 pm Reply

    I was looking for a little guidance and any advice is appreciated. I was put on Levaquin and Prednisone for a sinus infection two weeks ago. I ended a 5 day dose of Levaquin on Feb 3rd and had an outbreak of symptoms on Feb 8th. Looking back I had some early signs from the moment I started taking it but it was moving a heavy box that really brought it all to my attention. Burning muscle pain, joint pain, tingling in my fingers and numbness in my right hand, tightness in my calfs and legs and panic attacks. The pins and needles only lasted the first 36 hours and the burning pain has subsided but I still dont feel right. My muscles are tight and joints ache and pop and if I do any activity even carrying bags for an extended time my arms ache like I just got done working out. I had two questions.
    1. I am only a week out of when my symptoms first really started. I am beyond scared of what is to come next. I feel like some of it has lessened from that first day but everything I have read it seems like it will get worse before better. How long do these symptoms keep developing for? Is it ever in different scales from moderate to severe or do most hit a bottom point after some time?
    2. I can not find any hard list of supplements and dietary ideas to get started on only a collection of other peoples posts and ideas. I so far know that clean eating is key. Is that e-book that i found online worth the money? This is what I came up with so far any feedback is welcome.
    Magnesium 250mg chelated
    maganese
    whey protein
    tumeric
    creatine
    iron low dosage
    glucocismine
    Co enxyme Q10
    Colostrum
    NAC
    D3
    K2
    Vitamin C
    Calcium
    probiotic
    It seems like a lot to be taking at once. Do you guys still take a multi vitamin or just a regiment of supplements?
    Thanks again

    • Virginia February 15, 2017 at 4:54 pm Reply

      Pat, your symptoms may not get worse; everyone is different. Damage can last a year or more, but again, everyone is different and your symptoms might subside soon, and you may be past the worst of your damage. I know it’s scary, but you’re doing the right things: educating yourself and taking supplements. I’ve taken all but 3 on your list, and they might have helped. It’s hard to know if they helped, or just the passage of time. Be very gentle with your tendons and joints and don’t ever push past the pain. You might want to take more Magnesium. I take 500-600 a day. You know it’s too much if you get diarrhea.
      I take a multi vitamin and extra B as well.

    • Tristine February 15, 2017 at 7:06 pm Reply

      Pat – I’ve also started taking this supplement called ‘Protandim’ to help restore my body from the oxidative stress imposed from the floxing. This brand supplement has two types; 1 that helps with oxidative stress (which includes turmeric in the supplement) and the other is meant to help repair and strengthen mitochondrial DNA. I’m currently nursing my 4 month old and got floxed when she was 2 & 1/2 months, so the one for oxidative stress appears to be safe for me, but the other is questionable so I haven’t tried it yet. I’m not exactly certain if this has helped my recovery or the additional cocktail of supplements (magnesium, calcium, pre-natal vitamin, pro-biotic, omega 3’s, and reducing fluoride sources – already was eating a diet consisting mostly of organic/non GMO’s) I’ve been taking in addition to protandim, but it seems to have helped ease some of the joint pain/stiffness that I’d feel throughout the day and appears to be isolated to when I wake up in the morning and when weather systems come through.

      Since I’m choosing to continue nursing (aiming until she reaches a year), my options for supplementation are limited. However, after about a month of this combo, it has eased up quite a bit for me with the residual issues.

      I hope this info helps….

    • Lisa February 15, 2017 at 7:17 pm Reply

      Hi Pat,

      I’m so sorry that you’re experiencing fluoroquinolone toxicity, but I am glad that you found us! Both Virginia and Tristine’s suggestions are wonderful and greatly appreciated. It sounds like you are on a good track. Take a few deep breaths and tell yourself that you will be okay – you will be. Everyone’s timeline is different, and I can’t tell you exactly what yours will be, but I encourage you to try your best to believe that you will make it through this. Hope really is helpful.

      Here are my basic tips for how to approach this – https://floxiehope.com/2015/10/12/im-floxed-now-what/.

      One of the best things that I did early in my floxing was I took a class called Mindfulness Based Stress Reduction. If you can find a class on mindfulness and meditation like it, I highly recommend it. If not, there are tutorials on youtube.

      We’re here for you as well.

      Hugs,
      Lisa

    • L February 15, 2017 at 10:53 pm Reply

      Looks good Pat and SHAME on your doctor…he should have used a non-flq and definitely not prednisone at the same time. I would agree with Virginia about upping your mag…600-800—and if you avoid the citrate, diarrhea shouldn’t be a problem. Try mag threonate or orotate. Also it doesn’t get mentioned here much, but in the late Dr Cohen’s book he lists mag and vitamin E as his first two supplements to take.

      • Pat February 17, 2017 at 7:58 am Reply

        Thank you all for the supportive feedback. I have started a regiment of a multi vitamin, vitamin c, magnesium citrate (can’t find others in a store have to order it) and a strong probiotic. I tried taking Advil and it aggravated my calves and muscles to no end. Then I read that it has that effect on some people. I was wondering if you guys spread the magnesium dose through out the day or take it all at once. I started slow with 375 citrate and 100 oxide in the multi vitamin and haven’t had stomach issues. I was thinking of upping the citrate to 500 but didn’t know if I should stagger taking the pills. Also has anyone had any success with Salmon oil with omega 3s and EPA & DHA? Thanks again.

        • L February 17, 2017 at 10:19 am

          HI Pat, I was taking the mag 3 times a day. Also I think it is important to have the omega 3 EPA, whether you are floxed or not. I had some heart issues from the cipro, but the omega 3s are also supposed to help with joint pain and inflammation which seems to affect most floxies

        • Pat February 17, 2017 at 11:10 am

          Thanks for the feedback. Just got done at neurologist. He wants to rule out anything else to be sure it’s a levaquin reaction. Going for blood work, xrays, MRIs, EMG testing and ultra sounds. He said since you are on no medications and have no history of any problems it very well may be. At least he was open to the idea. Not sure what all this testing will show.

        • L February 17, 2017 at 11:39 am

          This is what happens. We are sent from doctor to doctor to doctor, for tests and more tests because they refuse to believe it could possibly be the FLQs. I finally stopped seeing allopaths, and started turning things around with an ND. Btw, most tests will come back negative because as Dr Todd Plumb states, the injuries are functional, not structural. Dr Jay Cohen, in his book also says that more nerve tests (especially the large ones) will come back negative. I personally would avoid MRIs—you don’t need radiation on top of everything else. Ultra sound is good. But at some point I am guessing you will get doctor/test fatigue.

        • Lisa February 17, 2017 at 12:17 pm

          A doctor who is open to the idea of fluoroquinolone toxicity is a God-send. I think that getting your thyroid, parathyroid, and hormone levels tested is a good idea. I think that FQs cause endocrine problems in many people. A messed up thyroid (either hyper or hypo) can make you feel like death. Here is a great article about the connections between fluoroquinolones and thyroid dysfunction. https://www.hormonesmatter.com/fluoroquinolone-antibiotics-thyroid-problems-connection/

        • Virginia February 17, 2017 at 2:29 pm

          it’s best to stagger the Magnesium doses. I divide mine throughout the day (500-600 mg a day)

  12. Michael Teeter February 17, 2017 at 12:38 pm Reply

    Hello everyone,
    I wish all of you a speedy recovery and future good health. It has been 5 years since I was Floxed. Remember take one day at a time and think everyday is a good day. Don’t focus on the past focus on the positive and avoid the negative. I had to learn to let my anger go. I have learned humility and patience. I really sympathize with other people now.
    I have been disabled for awhile but I do notice small victories that make me happy.
    Lisa as you are aware I was diagnosed with Adult Autoimmune Enteropathy about 2 years ago. I have been seeing a specialist at the Cleveland Clinic. They feel that the fluoroquinolones brought out the autoimmune response.
    I go to doctors in Grand Rapids, and Lansing. I have a great ND who has helped me quite a but. I have met many Fellow Floxies these last few years. I found a great Chinese acupuncturist who I love. My physical therapist is amazing. I run my rife machine twice a week. I keep a food journal. I take IV therapy and I will be trying CBD oil under a doctors supervision.
    Unfortunately I am still on the steroids. My hope is that the CBD oil will help me come off them. They have had me on all kinds of meds since my Cipro Poisoning none have helped. Plus I do not trust big Pharma.
    I will be seeing a few specialist in the near future at Age Management Clinic in Grand Rapids, MI then a doctor in Greenville, MI. I am also going to the University of Michigan to have a GI specialist so I can get help a little closer to home. I still will be seeing my GI doc at the Cleveland Clinic as well.
    I am very thankful to all the Natural paths that have helped me, and I am glad to have met people like all of you.
    last month I was only 114 lbs. I suffer from malabsorption and dehydration quite a lot.
    My levels drop all the time. I think that Cipro messed with the collagen in my intestines and left my tendons alone. I am now 136lbs. I can walk with my cane and I do get to go fishing once in awhile.
    Well I wish you all the best and if there is anything I can do to help anyone. Please ask.
    Sincerely Yours,
    Michael.

    • Bob February 17, 2017 at 3:08 pm Reply

      Michael where do you live?

    • Kurt February 17, 2017 at 8:52 pm Reply

      Great post Michael. Love the positivity. Wishing you a great 2017 and beyond…

  13. moldandlymeillness February 17, 2017 at 8:11 pm Reply

    Hi I was wondering if you could tell me why ibuprofen triggers the toxic reaction with floroquinolones? I had the same thing happen to me when I had a toxic reaction to a steroid. Three weeks later I took ibuprofen mixed with dmso and it kicked up all the steroid symptoms majorly and i realized it was still in my body. DMSO greatly potentiates medications its mixed with. That was seven months ago and im still struggling greatly. Any info would be appreciated as to why that may have happened. The next time I tried to take ibuprofen after that I could tell it was extremely toxic to me after that. Thank you

    • SM February 18, 2017 at 5:45 pm Reply

      Your message was a bit confusing to me- that’s a me thing, not a you thing. But to answer the question of FQs and ibuprofen, yes. Ibuprofen can absolutely trigger FQ reactions. Plenty of floxies are “fine” with FQs, take ibuprofen weeks later and BOOM. Many floxies, including myself, would never touch ibuprofen or steroids.

  14. SM February 18, 2017 at 4:16 pm Reply

    Someone a while back mentioned a mag protocol from a FB Group. I’ve since joined the group and read a lot. It’s a huge group, like 30,000+ people I believe. Anyway, the protocol gave me lots of insight into what I had been doing for years. As a 180 pound male, the idea of taking 500-600 mg of magnesium daily (which I’ve done for almost two years) is almost laughable based on that group. B6 and boron are needed cofactors- I wasn’t taking them. And their recommendation is 5 mg of mag per pound of body weight as a MAINTENANCE dose. That would be 900 mg! If that protocol is correct, my 500 mg without cofactors has been way too wimpy. Not even close. I’m not suggesting anyone do this. Do your own research please. But if that 5 mg/pound dosage is correct, and we truly are deficient in mag, it’s no wonder many don’t bounce back. I’m not sure if mag will help me, but if I need it, 500 mg isn’t going to cut it. Especially without the necessary cofactors!

    • charlottejacobs February 19, 2017 at 7:11 am Reply

      Hi Have you got a link to the forum please?

      • SM February 19, 2017 at 8:48 am Reply

        It’s called the Magnesium Advocacy Group. I’m not trying to advertise here- just passing on information. There are other floxies on there. I searched flox and Cipro and several threads appeared. Interesting information at the very least.

  15. Pat February 19, 2017 at 8:14 pm Reply

    Does anyone have any advice for a good detox protocol to follow. I am only 16 days from finishing the does of levaquin and have been taking Magnesium, Vitamin E, Vitamin C, a probiotic and a multi vitamin. I had read about people saying detox was the first step and wanted to know where to begin. Thanks again.

    • Stephanie February 19, 2017 at 8:27 pm Reply

      I recommend you going to a naturopath or a homeopathic Dr to get a monitored detox. I’m severely floxed and have wonderful detox Dr at my naturopath who monitors it all and she ensures that I’m okay and has explained to me that it’s very easy to do damage to yourself so if you have a professional help you they can help monitor you and set up a plan that is good for you. There is no one way to go about any of this so a plan that is made just for you is my suggestion

      • charlottejacobs February 24, 2017 at 9:04 am Reply

    • L February 19, 2017 at 8:31 pm Reply

      You might want to pick up something like flor-essence

      • charlottejacobs February 25, 2017 at 7:10 pm Reply

        I understand glutathione infusions are miracle workers

  16. Katie Kay February 20, 2017 at 10:06 am Reply

    I was given Cipro as a precautionary antibiotic after surgery (worries about infection). 500mg twice a day for 10 days. The doctor nor the pharmacist gave me any info on tendon issues. I had to look it up and connect the dots. I’m now 2 months out. Sometimes I have terrible achilles pain. Wearing 2 cam walker boots most places as my ankles/legs feel dreadfully weak. (Thankfully was able to go to an orthopedic doctor and tell them it was absolutely the Cipro. She’d seen this before and didn’t argue, so I didn’t run into the gamut of tests, etc and questions…we knew from the get-go what we were dealing with)

    My question is…what would you suggest for pain? My new “norm” is a pain level 2-3 with it flaring badly at times (especially if I try and do too much). The doctor gave me some Tramadol (50mg) which I take once a day, but it doesn’t help with the bad times. Using ice on my ankles/legs definitely helps, but I wonder how people deal with the pain management. Anyone have any thoughts?

    • charlottejacobs February 20, 2017 at 2:43 pm Reply

      Kay what did the orthopaedic dr say about any possible remedies or help with mobilising? IDS

      • Katie Kay February 20, 2017 at 2:55 pm Reply

        Well? I was given 2 of the cam walker boots, and was told the damage may be permanent. I have another appt in a couple weeks. That’s about all she shared with me at the initial visit. I figure I’m in for a long term of adjusting and/or working towards getting better than I am now. I wondered what other folks did for pain management, though, in this long long middle of the road time when it can flare dreadfully bad, but I know that good days are just that..a day..and not me actually well (at least not yet!)

  17. charlottejacobs February 21, 2017 at 10:58 am Reply

    Has anyone on here suffered insomnia?

  18. Lisa February 21, 2017 at 4:45 pm Reply

    Here’s a 15% off coupon for uBiome microbiome sequencing – http://ubiome.refr.cc/LNV6NSL. I thought it was interesting – though it turns out that my microbial diversity stinks, both literally and figuratively. I’m in the 11th percentile for microbial diversity. :/

  19. Rhonda February 22, 2017 at 4:49 pm Reply

    Does anybody else still have occasional muscle jerks from the cipro? I’m about 10 months post flox and I still get the muscle jerks, brain fog and floaters in my eyes and a few other things.

  20. Maggie February 22, 2017 at 6:02 pm Reply

    Has anyone still improved after 4 years? It will be four years for me this summer. I still have so many issues (cracking, popping, pain all over). I am losing hope.

    • Debs February 23, 2017 at 5:18 am Reply

      Yes Maggie .

      it actually took me 12 years to FEEL fully recovered after my first floxing but reach it EVENTUALLY i did. I also reached what FELT like around 80% recovery after another subsequent floxing.

      Each persons floxing timeline of symptoms appearing / deterioration / stabilisation / improvement / potentially reaching a place where they may FEEL recovered is completely unique to them, same as we are are all unique into how we came into this in respect to our biology, genetics, health wise etc.

      In my experience of being around a while this is what I see: Although of course it cannot be denied that some people do suffer long lasting potentially permanent injuries, A LARGE majority of floxies DO EVENTUALLY recover enough to move on with their lives, some of us DO FEEL fully recovered, others ( imho the largest group of recovered floxies ) are able to move on as above, albeit with various lingering issues, often these are related to degrees of exercise intolerance & / or various aches / pains they did not have before they were hit . what a person considers recovery of course means different things to different people.

      I still improved a hell of a lot even after my 7th floxing from my worst, EVENTUALLY . Although my life is not the same as it was ( notably nobody visibly/ noticeably floxed or not ( yet ) floxed actually gets out of taking a FQ at a DNA mitochondrial level completely unscathed ), I still DO have a decent life, I just have a different life now, a new normal for me. I now live my life in the slow lane, appreciating every waking moment.

      I actually learned a hell of a lot from my various floxing experiences, & one of the greatest things, was I realised that the little things in life are actually the BIG things .
      So now I make the most of & really enjoy the little things in my life, such as my family, my friends, my animals, natures beauty etc. SO many people in this world of ours, they rush through their lives accumulating things & appreciating nothing of real value, they do not appreciate ‘ the little things’, & they do not realise this truth until its much too late, that’s if they ever do.

      I also realised this : that ‘ I ‘ am not my body, & they can NEVER no matter how hard they try flox my ‘ I ‘, my soul .

      • Maggie February 23, 2017 at 4:22 pm Reply

        Thank you Debs. I am very grateful that you shared your experience with me. I am so sorry that you went through so many times of floxing.

        My musculoskeletal issues from being floxed are not improving at all, after almost four years. I am wondering if I should stop seeking treatments

    • SM February 23, 2017 at 11:30 am Reply

      Maggie,
      You and I are floxie twins! I was also floxed in the summer of 2013. Hard to believe it’s still going. I wake up every day and still can’t believe it.

      • Maggie February 23, 2017 at 4:27 pm Reply

        SM, I know. I hope we all see some miracles soon!

      • Bob February 23, 2017 at 8:26 pm Reply

        Also floxed in June 2013. Worse than ever. I think I may also have Lyme. Would like to do the BX protocol if I could scrounge up $17,000

        • L February 23, 2017 at 8:43 pm

          Bob the naturopath I saw, who gave me over 60 IVs (which made all the difference to me)—half his patients have Lyme. You might want to find a naturopathic or integrative Lyme specialist who does IVs…

  21. charlottejacobs February 23, 2017 at 7:32 am Reply

    I wish that I had never taken these poisonous substances.

  22. James Stamboni February 23, 2017 at 8:34 am Reply

    Does anyone have experience with prolozone treatments? I have an injury/ weakness in my left patella that hasn’t improved in over a month of rest. Has anyone had negative side effects from prolozone injections?

    • L February 24, 2017 at 10:54 am Reply

      james, didn’t see there was a reply. please see my post above. or I will try to find it and repost on your link.

  23. charlottejacobs February 23, 2017 at 2:37 pm Reply

    I have just read Bronwens recovery story which I found very inspirational. Thanks Lisa.

  24. Maggie February 23, 2017 at 4:29 pm Reply

    I did six rounds of prolozone. No side effects, but didn’t help much either.

    • L February 24, 2017 at 10:53 am Reply

      I had prolozone injections in both knees (torn meniscus) several months ago. So far so good. No pain. Will have to wait to see if they heal. That’s what prolozone does—helps the body repair itself. A friend’s father had prolozone injections in both knees and both hips and said it changed his life. I think it takes 6 months or more to see if it makes a difference

  25. L February 24, 2017 at 11:00 am Reply

    Hi all. I wanted to post something that might be of help to those of you in the Los Angeles area. As you know, if you took a generic, you can’t (at this point in time) sue the manufacturer. (There are a few firms working on that, but even if it comes to fruition it could be years down the road.) If you are interested in seeking a medical malpractice case (and please be aware you only have one year, from the time you became aware your injury was related to the Cipro or Levaquin, etc) I am going to suggest a firm I spoke with recently. Genuinely good, caring guys with great reviews. http://www.gansenlawgroup.com/

  26. charlottejacobs February 25, 2017 at 6:40 am Reply

    I have just seen a naturopath who has devised a detox plan for me.

  27. ptnbrm February 25, 2017 at 11:30 am Reply

    hello

  28. ptnbrm February 25, 2017 at 11:37 am Reply

    Hey guys. I wanted to know has actually taken the fluoroquinolone toxicity solution. I wonder if people have actually fully recovered and did they have to carry on following the regime once their body fully recovered. At this point I just don’t want to believ in “hope” until i hear results from people that have tried it.

    I hope people who have been damaged by this poision and finding help and do not give up.
    My email is p.tariq90@hotmail.co.uk. I am open to talking about my experience and listening to others. Let’s not be isolated in our problems.

    I took 19 pills of Ciproflaxacin. It was 500mg twice a day for 14 days. I decided to stop on the 10th day. I’m just frustrated that I took it for that long.

    • Lisa February 25, 2017 at 4:01 pm Reply

      Here are some thoughts on the ebook – https://floxiehope.com/2014/11/25/the-fluoroquinolone-toxicity-solution-ebook/. If you are looking for a sure-fire cure, unfortunately, there isn’t one. The ebook is a good supplement guide though, and it has been part of (but not the complete) a recovery journey for a lot of (but not all) people.

      • charlottejacobs February 25, 2017 at 4:33 pm Reply

        Someone said they had been prescribed monteleucast. This is a dreadful drug trust me.

      • Barbara Arnold February 26, 2017 at 4:22 am Reply

        Lisa,
        I feel the title of the book is misleading and raises false hope. As far as I can tell at this point there is “no” solution. However it’s a good guide of whats happened to you after taking a fluroquinolone, and a good guide on what suppliments to take and what diet can help. If it was a solution we would all be cured now. Having said all that “people” do recover and you are a prime example. We are all different, one size does not fit all, but to be positive and “believe” you will recover goes a long way in helping one’s recovery. Healing to you all xxx

        • ptnbrm February 26, 2017 at 8:11 am

          Hello Barbara i would definately suggest taking pumpkin seed oil capsules. They have really helped with my shoulder tendons. The things is i noticed a difference after taking them for a few days and now my body is feeling better. It takes a little while though for your body to be accustomed to it.

          Im sure everyone is taking a range of different supplements but i wonder which supplements really promotes change in their pain. Cocounut oil is great too. Thr things is i will actually probably carry on taking these supplements even if i do recover because i want my body to be as strong as possible.

          I want to get out of the habit of eating foods which look and taste good but instead those that are going to make you feel great and boost your system properly.

        • Lisa February 26, 2017 at 8:29 am

          I agree, Barbara. I’ll edit my comment so that it says that the ebook is part of some people’s recovery journey, not the “solution.”

    • Barbara Arnold February 26, 2017 at 10:54 pm Reply

      Ptnbrm,
      Thanks for the tip. Glad you found something that helps you. I will look into it

  29. charlottejacobs February 25, 2017 at 7:12 pm Reply

    Montelucast is prescribed as a last resort to fight rashes, immune disorders..

  30. Peter February 25, 2017 at 10:38 pm Reply

    Hey, not sure if you guys remember me as it’s been awhile since i last posted. I was floxed in 2012 and had nonstop horrible symptoms. Well some good and bad news. I think, not 100%, but i think my symptoms have improved dramatically finally. I still have ankle issues, but i haven’t griped about anumber of things this medicine caused in a good while. To give everyone some hope. It takes a ton of time….a ton…almost 5 years now.

    The bad news, since one of my biggest symptoms was burning of the face, I’m not sure if that’s back or is from the car accident i was just in. I was doing fairly well from the floxie damage, but was in a car accident a few months ago and then a really bad one a week ago while i was still recovering from the first. There is significant damage and surgery is on the table…neck.

    So my two cents for the day, i think there’s hope even though i never believed it with this medicine and watch out for bad motorists because there are things that suck just as bad as this medicine. Something i never believed to be the case before.

    I wish everyone the best and the people on here really are kind and understanding. I’ll try to stop in and give another update once i heal up more and can accurately judge the rest of my issues.

    • Peter February 25, 2017 at 10:41 pm Reply

      I guess i should mention i still have very serious eye issues from the medicine and still believe it aged me horribly in numerous ways, but a lot of the more ruin your day symptoms seemed to have calmed down.

      • lenny February 26, 2017 at 6:13 am Reply

        Hi Peter,

        congrats on your recovery steps. It must feel great after years of horror and real nightmare. Thank you for making us hope! It helps a lot. Which symptoms did you have and which of that subsided?

    • joanneg February 26, 2017 at 12:15 am Reply

      Hi Peter,

      I certainly do remember you, and I’m sooo happy to hear you’re doing better 🙂
      And thanks for letting us know.

    • Lisa February 26, 2017 at 8:49 am Reply

      I’m so glad that you have improved, Peter! I’m sorry to hear about the car accident though. :/ Thank you so much for commenting, and for letting us know of the progress you have made! I hope that your recovery progress continues! Please keep in touch.

      Hugs,
      Lisa

    • ptnbrm February 26, 2017 at 10:31 am Reply

      I think its nice of you stop by even though your nearly recovered. I dont think you can put a time frame on this. You need to be willing to be consistent in making new lifestyle choices and realise if you have any chance from recovering from this you have to stick with it. I dont know if i believe in a CURE and i am willing to try anything to get better.

      I would to inform people whats working for me:

      – Pumpkin seed oil capsules (1-3) daily

      – Coconut oil which i apply on my skin especially my shoulder tendons. I ingest 2-3 teaspoons of the coconut oil daily

      – Cod liver capsules (once daily)

      I have heard about Chia seeds which are supposed to be full of protein and promote strength.

  31. Lisa February 26, 2017 at 8:06 am Reply

    The founder of http://www.snowdropherbals.com/ posted this on facebook. I know that a lot of people have had problems with high B6, and I have had adrenal problems, and I thought it would be interesting to many of you.

    “Food for the mind AND adrenals : There are more symptoms that are associated with this phenomenon such as calcium oxalate kidney stones, calcified nodules found in the thyroid gland and in other soft tissue organs and glands.
    Many elevated B6 sufferers also experience thyroid hormonal issues, as well as heart murmur type arrhythmias, and para-thyroid hormone deficiency.
    It is little known outside biochemistry that all vitamins are produced by various organisms sometimes also known as the flora of the digestive tract. The vitamins that your body needs are “harvested” or absorbed from your small intestine where these organisms live and produce various vitamins as part of their metabolism.
    Under normal balanced conditions all is well, and the correct ratio of “vitamins” are produced in a bioavailable form that your bodies readily absorb and use. It is well known that the body does not prefer, but will reluctantly utilize “synthetically” or lab made vitamins when the real vitamin is not available. All B vitamins are “naturally” produced or secreted by the “B” bacteria within the intestinal tract. The “B” bacteria are highly susceptible to acid, and particularly “lactic acid” that is produced by the common pro-biotic LAB bacteria that many consume in excess. The LAB or lactic acid bacteria produce lactic acid as a defense mechanism to kill off other bacteria as a way to secure more food for themselves, this results in “acidosis” of the naturally more alkaline intestines, and large bowl, and colon where the pH level should be in the range of 7.6-8.0. So, you may be asking now “If the B bacteria are killed off, where is the excess B6 coming from?” Great question! Let’s look at this, because herein is the shocking revelation.
    E. Coli, and A. Niger, are organisms that naturally do not produce B6 or Oxalic acid, however, we are not talking about “natural” we are going to talk about the mutated strains of E. Coli, the mutant 0157:H7 strain.
    This mutated strain of E. Coli produces extreme amounts of B6, and oxalic acid. It is also the strain that is most often found to be the leading cause of kidney and adrenal failure, or exhaustion.
    This particular issue is very difficult to diagnose as it will not present in blood test, or blood cultures. It also will not show up in stool samples when labs look for the anti-bodies or shinga type toxins in the stools. The Urine must be cultured to find it. The bladder may also need to be biopsied. These also are the same organisms that cause disease in the lungs, and can only be identified by MRI or ultrascan that is operated by a trained tech who knows what to look for.
    The elevated B6 by this organism directly affects the nervous system. The Oxalic acid binds to calcium and causes the calcium to precipitate out of solution and deposit into soft tissues such as the breast, thyroid, and kidney’s. The term would be Calcium Oxalate stones.”

  32. Brian February 26, 2017 at 11:02 am Reply

    Hi,

    I’m new to this site and am looking for some guidance. I’m an active 47 year old male and earlier this week I believe I was “floxed”. On Tuesday I went to urgent care because of a minor injury to my eye. The doctor at urgent care called it an “abrasion” and didn’t seem to concerned with it. He prescribed some antibiotic eye drops (Genatmicin) and a seven day prescription on Cipro 2×500/mg day. I don’t believe I’ve taken Cipro previously as an antibiotic.

    Normally I am very vigilant about understanding the risks of the meds I’m taking but since they were “antibiotics” I didn’t give it a second thought. That was a huge mistake.

    When my wife and I filled the prescription I was calling an Opthalmologist to make an appointment as the urgent care doctor recommended a followup later in the week. I didn’t speak with the pharmacist about the Cipro and my wife paid for it (I wasn’t at the counter). Second big mistake.

    I started taking the Cipro that day and continued for two days – a total of five pills. On Thursday my anxiety went through the roof. I noticed on the packaging that the Cipro said “drink plenty of water” which I hadn’t really been doing up to that point. So I jumped on the web and learned the real problems with this poison. I immediately threw the rest of the pills away.

    So far I’m having some minor neuropathy in my left hand and some slight pain in both achilles tendons. I’m not sleeping well at all maybe about 4 – 5 hours; nightmares and night sweats. I’m still having some serious anxiety and emotional problems dealing with this. To be honest I’m very scared. Over the last five years I’ve been an active runner, probably about 15 miles / week on average. It’s a sport that I enjoy very much and I’m scared that my body may be permanently damaged because of this drug.

    My wife isn’t providing very much support, unfortunately. For the purposes of full disclosure I have a history of anxiety and depression, specifically with concerns over my health. I was able to move past those issues by introducing a regimen of exercise and healthy habits (quit smoking, eating organic, etc) five years ago.

    After reading much of the information this site I have begun taking 500mg magnesium and 500 UI Vitamin D, 400mg Calcium.

    From reading the stories of recovery on this site, I’m not sure what to expect now.

    • L February 26, 2017 at 11:22 am Reply

      So sorry Brian. Yes it sounds like you have been floxed. I would even up the magnesium (and if you avoid the citrate, there shouldn’t be diaharrea problems.) I would also avoid all fluoride, like from drinking water. Avoid GMOs and gluten. Especially gluten. It may sound odd to you but so many seemingly disconnected issues are linked to gut damage. You might also add in vitamin E. Because of the anxiety (likely from damaged gaba receptors) I would quick coffee for the time being, if you drink that. Eat a very whole food, organic diet as much as you can. Make sure any meats especially are organic because they can have antibiotics in them otherwise. Go easy on exercising for now. This is not the time to be stressing tendons and other connective tissues.

      Most of us will tell you that going to an allopathic (western med) MD will be fruitless unless you are lucky enough to find the small percentage that is aware of fluoroquinolone toxicity. Bottom line is, they have no non-pharmaceutical treatments for you anyhow. I would find a good naturopath or an integrative doctor that does IVs. They were my saving grace and I was very badly floxed.

      What state do you live in? Some states require that if you get a new prescription, the pharmacist must initiate a consultation, so they may have violated a law depending on where you live. As far as whether or not you had taken it in the past, it really doesn’t matter. Turns out I had taken a fluoroquinolone before with no problems, and this time is just caused so much damage. IT is thought that the damage is cumulative, and would affect just about anyone at some point, but our threshholds are all different.

      There is a good book written by a doctor who researched these drugs (and testified before congress, to no avail.) It gives some very good information, and the title says it all. “How We Can Halt the Cipro and Levaquin Catastrophe: The Worst MEdication Disaster in US History” by Dr Jay Cohen. You can buy it online. And if you post the general area of where you live, perhaps someone on this site can refer you to an ND or integrative doctor that has helped them. I know this is easier said than done, but try not to freak out. IT is good you are aware of this so early one. The insomnia and anxiety are very real, but for most it does pass. I was very very badly floxed, and I am 90-some % better.

      • Brian February 26, 2017 at 11:52 am Reply

        Hi L,

        Thanks for your reply! In regards to the pharmacist, I live in Southern California. I’m not sure what the laws are here about pharmacists.

        How much magnesium is OK at this point do you think?

        I will also look into the book you have mentioned.

        How long did it take you to be 90%-ish better?

        • L February 26, 2017 at 12:22 pm

          I am in California. Yes, when a new drug or one that has changed in dosage, strength or directions is prescribed, the consultation MUST be offered by the pharmacist. Those little electronic box signatures are not compliant with the law, nor are one of the tech staff asking if you want a consultation. It must come from the pharmacist. I am not a lawyer so I can not advise you but I will tell you that the statute of limitations for filing a suit in CA are one year from the time you discovered you were injured by the drug.

          What part of Southern California? I have never been to this clinic (and I think it can be pricey) but you might want to look into the Whittaker Wellness Center. (Newport Beach.) They are integrative so not sure, but visits may be covered by insurance, if they accept it. Usually the therapies are not, but again, for me it is what started to turn my life back around. They offer IVs, hyperbaric, infrared sauna, acupuncture…all helpful therapies.

          Where ever you go, I would take copies of the “dear doctor” letters (I know of at least two) that are written by doctors (who were floxed) for doctors. I think you can find them on this site, or if not just google “dear doctor” and Todd Plumb ; dear colleague and Miriam J. de Jonge M.D.

          As for my timeline…and again, bear in mind I was very badly floxed—I started noticing side effects (although like most, I didn’t link it to the Cipro right away) after just one pill. I ended up taking 4. It started with numbness in fingers and toes, blurred visions and large floaters, and swelling over the wrist. Within weeks I spiraled down into a hellish nightmare. Worsening vision, olfactory damage to where everything in the world asphyxiated me–and I mean EVERYTHING. It was just horrific. Like being surrounded by vats of bleach 24/7; horrific midback pain; major GI issues, with 30 pound weight loss; choking sensations around the neck, ZERO sleep for weeks then 1-2 hours for months; hives, hair loss, it just went on and on. But the worst was having to gasp for every breath. I seriously do not know how I am still here today, because I just wanted out. I just didn’t have the means.

          After finally realizing that allopaths offered no help (some not even acknoledgement) I ended up at a naturopath’s office. I had never been to once before and I was scared—but at that point I was gasping for air and I really didn’t care if I lived or died. (kind of a win/win 🙂 ) Anyhow, I got several different IVs and after about the 5th, the pain in my back went away. After several months of 2 IVs a week, other things started to lessen. I would say after about 9 months of IVs I was at around 80%. (Also LOTS of supplements and pulsed electromagnetic therapy…hard to say how much that helped.) Today it is two years since the floxing, and I have (maybe permanent) numbness in my toes, a couple fingers that are wonky, ocassional breathing glitches ( but NO WHERE like where I was) and GI issues and a couple other things. I get phantom scents that come and go. The vision in one eye still has huge floaters, and sometimes little black dots (another type of floater I believe) and the vision is worse than it had been pre cipro. (I also was given prednisone with it too though, and that exacerbates the side effects.) Oh—btw— do NOT take any steroids OR NSAIDS. Where I am today compared to where I was after the Cipro is astounding. I had felt like I was dying (and quite frankly wanted to) and it was hard to imagine ever being even close to normal again.

          IT was also discovered that at least one knee had a torn meniscus a year later. This was the same knee that experienced a lot of “popping” early on. So I think it tore rather early but I didn’t know it until one more when I went to get out of bed and collapsed in a heap. I ended up getting a prolozone injection a few months ago, so am waiting to see how that fared. It is supposed to help your body heal itself. I didn’t want surgery, and stem cell was too expensive. This seemed like a good choice. I wanted to mention this because as an athlete, I don’t want you to despair. It seems like there are natural alternatives to most of the injuries. So far, so good. No pain. And I hope to go hiking again one day soon. If you like, you can ask Lisa to send me your email address.

          (btw if you took a generic you cannot sue the manufacturer. At least at this point in time. a couple law firms are working on that but it could be years before any compensation would be available that route.

        • Brian February 26, 2017 at 1:04 pm

          L,

          I live in the Tustin area and so I’m not too far from Newport (I grew up in Costa Mesa). I’m really sorry to hear about your symptoms but it’s heartening to know that you did manage to come back. I’m not sure what the future holds for me just know. I’m trying to manage the best I can and, right now, getting a good night’s sleep is paramount for me so that I can make good decisions in the next few weeks.

        • L February 26, 2017 at 1:31 pm

          I just did a little google search and found this place. I know nothing about the quality of care, but Ido notice he offers prolotherapy which is what I mentioned. I also notice he lists the treatment of Lyme and we have many things in common with Lyme patients. (A full half of my ND’s practice is Lyme patients.) I can’t tell from the site if he offers IV therapy. Still might be a place you want to check into (bear in mind most insurers do not cover NDs—which is frustrating because they are doctors and go to medical school—just one with a focus more on wellness and less on big pharma.
          http://holisticsolutionsdoc.com/general-medicine/

    • Bob February 26, 2017 at 11:53 am Reply

      That a doctor would prescribe that much cipro for a minor eye abrasion is unbelievable. That completely falls outside of the latest recommended guidelines for using cipro. Keep good records as you may want to sue the doctor as well as Bayer. GABA is (500 mg) is helpful for sleeping. The anxiety is truly terrifying at first. Eventually that will pass. The sad truth is you cannot trust doctors. They believe what big pharma tells them and they control the FDA.

      • Brian February 26, 2017 at 12:01 pm Reply

        Hi Bob,

        In hindsight I agree with you about the prescription. In fact when I did see the ophthalmologist as a follow-up he said that the oral antibiotics were not even necessary! I’m thankful that I stopped at five pills, though.

        I am not familiar with GABA? It looks like it is widely available so maybe I will run out and get some. I took 10mg Meletonin last night and slept for about four hours “OK” and then woke with a splitting headache. Not sure what that was all about. I’m going to try 5mg meletonin tonight.

        • Bob February 26, 2017 at 12:17 pm

          I think 5 mg or even 3 mg is better. When you get a chance go back and look at Lisa’s posts on the changes in FDA guidelines in the last year or so. They don’t inform the doctors and the doctors don’t bother to stay informed. The only way to start changing their behavior is to sue them. They do not respond to anything else. I have no sympathy for them as they are ruining the health and lives of people and do not do their homework.

    • Madge hirsch February 27, 2017 at 11:25 am Reply

      500iu vit D is a tiny dose. It will probably have no effect. You need to get a vit D test done and if your level is low supplement much more aggressively ie 3000- 5000iu à day. You could add some mitochondrial support like ubiquinol and also a probiotic to help heal your gut. Curcumin is supposed to help anxiety.

      • L February 27, 2017 at 12:15 pm Reply

        You are so right. I was taking 2,000 iu of D and thought I was ahead of the game. I got tested and now the doctor has me on 10,000 for the time being. And yes, Turmeric, with 95% curcumin has shown to be as effective (perhaps more) than antidepressants

  33. lenny February 27, 2017 at 2:08 am Reply

    Hi Brian,

    so sorry to hear, its a mess. Besides the valuable advices from L and Bob for me it is helpful to eat less or no sugar even fruit sugar increases my pain level!

    Wish you all the best!

  34. Mike February 27, 2017 at 3:04 pm Reply

    I haven’t posted on here in a long time but I just wanted to say that I went on a vacation to Tulum which is south of Cancun and I can honestly say that I have felt better than I have in years. For years I tried everything and nothing has worked but being in the sun and in the ocean and at much lower altitude than where I live in Colorado I experienced some healing. I felt human again for the first time in years. I’m not sure whether this is an oxygenation issue or mag in ocean water issue or what but for those of you desperate to feel better even for a bit.. go get some sun and get in the ocean!! I don’t think it is a mag issue because mag has never done anything for me.

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