This site is to give HOPE to those who are suffering from Fluoroquinolone Toxicity Syndrome as a result of being poisoned by fluoroquinolone antibiotics – Cipro, Levaquin, Avelox, Floxin, etc. It contains stories of healing.
Cipro, Levaquin, Avelox and all other fluoroquinolones are dangerous drugs that can have devastating effects that cumulatively I’ll refer to as Fluoroquinolone Toxicity Syndrome or Floxing. Fluoroquinolone Toxicity Syndrome/Floxing includes damage to connective tissue (tendons, ligaments, cartilage, fascia, etc.) throughout the body, damage to the nervous systems (central, peripheral and autonomic), and more. The damage done by fluoroquinolone antibiotics can destroy a person’s quality of life or even kill them. Certainly, there is a time and a place for drugs with dangerous side effects. If you find yourself in a septic shock induced coma, fluoroquinolones may save your life. Unfortunately, these drugs are not being reserved for life or death situations. People are being prescribed them for urinary tract infections, suspected prostate infections, upper respiratory infections, as a prophylactic for travelers’ diarrhea, ear infections, pink eye, etc. Thousands of people have suffered needlessly from the devastating effects of fluoroquinolone antibiotics, when another, safer antibiotic could have, and should have, been used.
The damage done by fluoroquinolones is largely unacknowledged by the medical establishment and an accurate diagnosis, compensation and relief are difficult to come by. There is no known cure for Fluoroquinolone Toxicity Syndrome/Floxing. However, many people continue to LIVE after being poisoned by fluroquinolones. They find healing, recovery, perseverance, compassion and hope. These are their stories.
This site is meant to give hope for healing to those who are adversely effected by fluoroquinolones. It is no way meant to disregard the pain of those who are chronically suffering from the horrifying effects of Cipro, Levaquin, Avelox or the other fluoroquinolones. There are people who don’t recover. Their stories are real and they matter. There are also people who are able to recover and I share their stories with the hope that they inspire others, or at least give hope that recovery is possible.
Here is a New York Times article about the dangers of fluoroquinolone antibiotics – http://well.blogs.nytimes.com/2012/09/10/popular-antibiotics-may-carry-serious-side-effects/?_r=0 – more news stories, research papers and other resources can be found on the “Links and Resources” page.
Here is a Facebook group that is a great resource for those going through Fluoroquinolone Toxicity – https://www.facebook.com/groups/floxies/
Featured post – I’m floxed. Now what?
The Fluoroquinolone Toxicity Solution Ebook has helped many Floxies to recover, including Daniel, Cindy and Ruth. As a bonus, you will also receive The Floxie Food Guide – a book of diet guidelines to help you through fluoroquinolone toxicity:
Dee,
I don’t know if this will help, but I’ve just seen a post from a fluroquinolone site, where the poster, who is also a moderator said she took Betain HCL. The theory being that the reflux resulted not from an excess of acid production, but a general paucity. Blood cells in the respiratory tract could stack in what supposedly called the ‘Rouleaux formation’ This results from an absence of certain compounds necessary for digesting protiens. She said that taking Betaine HLC , a cheap probioctic complex, and some standard digestive enzymes, in less than a week this cleared up the problem. She also said it worked for people with ‘air hunger’ as well. It seemed to make sense to me, so I thought you might like to look into it. I really hope it helps.
I also think losing weight could help, but like you I find this extremely difficult as I’ve got older, it sucks, but I’m really happy to hear just how far you have come. To be 90% recovered after 3 years, tells me you are doing well, and with your positive attitude you will get there. Never foreget how far you’ve come in one of the hardest journey’s of your life. Your stronger than you think.
I wish you all the joy and optimism in the road ahead.
Love Barbara xx
Barbara, thanks for the suggestion on the Betaine HCL. I’ve thought about trying it in the past as I know it is possible that I have too little acid rather then too much. This actually is pretty common. I’ve never been tested so I don’t know the answer for sure in my case? BUT I think I will give it a try to see if it is a game changer! I’ve really got nothing to lose. I will know fairly soon after trying it if it works or not for me? Thanks for reminding me about it! I will update you when I give it a try!!! Take care and enjoy going out to eat in a week!! I miss hugging my grandson too! Time to start getting out again in a safe way before we all go crazy!!! Big hugs! D
Dee, just remembered I heard Apple Cider Vinegar can also help. You can mix it with juice apparently. Something else you could look into. Hope it helps.
Hi All,
I can’t stop people from commenting on a particular topic or thread (as one can on Facebook), so I just deleted a couple threads that had become contentious on issues other than fluoroquinolone toxicity. I deleted entire threads so as not to single out any particular person. I have an awful tendency to always want the last word, and I don’t think I’m alone in that unproductive tendency, so I just deleted the threads, and I hope that those who were involved in the conversation can agree to disagree.
Fluoroquinolones don’t care what a person believes, and people from every background and with beliefs all over the spectrum of possible beliefs, have been floxed. In a crazy way, it has brought people together who would not otherwise associate with each other, and that is a round-about blessing. I appreciate all the people that have come into my life because of this site and the “floxie” community. In no way do I appreciate the drugs or the damage they have done – but I do appreciate the people, even the ones that I disagree with and wouldn’t have associated with under other circumstances. This site has been a place where people can find things that they have in common, and they can help people through the horror of fluoroquinolone toxicity. Finding things in common and helping others is at the base of our humanity, and I appreciate seeing the humanity in everyone on here that has helped others through this difficult disease. You are all appreciated. Even those of you who are pissed at me for deleting long posts that took you a while to write. 😉
We are living in contentious times, and our differences seem to be highlighted more often than the things we have in common. But we really do have more in common than we don’t – and that’s something we should all keep in-mind.
I ask that until the world feels a bit less topsy-turvy, can you (collectively) please try to stick to topics that are fluoroquinolone toxicity and healing related? I know that COVID, and politics, and other contentious topics are on everyone’s mind, but if you can please stick to FQ related topics for the most part, your help will be appreciated. Thank you.
Hugs,
Lisa
Got it 🙂
Hi Dee, I might recommend some caution with Betaine hCl. An integrative doctor recommended it for me, and it, maybe combined with other meds/supplements, made my stomach hurt for a whole year. The doctor had told me to lower my dose when I felt a warmth and tingling in my stomach, but I never felt those sensations, so didn’t realize I might be damaging my stomach. For those of us with too much acid, B. might be unsafe. I think I’ve brought that up on this site before, but not sure if you’d seen it.
Thanks for stepping in, Lisa, and for your tactful, peace-making explanation.
Thankyou Lisa,
I one hundred per cent agree with what you have said. Thanyou for this wonderful site that has helped so many, may it continue to do so. xx
Thank you Lisa, thanks for this great site that gives people hope.