Monthly Archives: December 2014

The Floxie Hope Podcast Episode 5 – Rose Casanova

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Rose joined me for Episode 005 of The Floxie Hope Podcast.  In this episode, Rose shares her journey through fluoroquiolone toxicity and discusses how getting floxed changed her perspective on medicine.

You can listen to Episode 005 of The Floxie Hope Podcast through iTunes –

https://itunes.apple.com/us/podcast/floxie-hope-podcast/id945226010

It will be greatly appreciated if you log into iTunes and leave a review of The Floxie Hope Podcast.  Subscriptions through iTunes (or any other podcatcher) are greatly appreciated too.  Thanks!!

You can also listen to the podcast directly through this link –

http://www.floxiehopepodcast.com/episode-005-rose-casanova/

Thank you very much for listening to The Floxie Hope Podcast!  Getting our voices out there, and telling our stories, is helpful.

Thank you, Rose, for sharing your story!!!!

 

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Fluoroquinolones and Dental Problems

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This post, “Can Fluoroquinolone Antibiotics Cause Dental Problems?” published on Hormones Matter, is not very hopeful.  In fact, it’s quite frightening.  Many patient reports have been coming in lately about fluoroquinolone induced dental problems and teeth falling out.  Christopher’s story, on The Fluoroquinolone Wall of Pain is one of the stories highlighted.  Having all of your teeth fall out is a hefty price to pay for using an antibiotic – especially an antibiotic that is regularly prescribed for urinary tract and sinus infections.

I couldn’t find much in the way of journal articles about fluoroquinolone toxicity and dental problems.  If any of you find journal articles with dental problems listed as an effect of fluoroquinolones, please let me know.

The patient reports are quite compelling though – and frightening.

A couple people have mentioned that magnesium supplementation helps their post-flox teeth.  It’s probably a good thing to keep up.

On a personal note, I love my teeth.  Vanity is certainly at play, but I have really good teeth and I’d like to keep them.  I lost a tooth to internal resorbtion – basically, the root disintegrated for no reason – a long time before I took a FQ.  That stunk, for sure.  I can only imagine the horror of losing all of one’s teeth.  Hugs to those who are having post-FQ dental problems!

 

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Breathing Exercises for Health

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Breathing exercises are an easy, free, thing to do to improve your health post-flox.

According to the post, “18 benefits of deep breathing and how to breathe deeply,” the benefits of breathing exercises include:

  1. Breathing detoxifies and releases toxins
  2. Breathing releases tension
  3. Breathing relaxes the mind/body and brings clarity
  4. Breathing relieves emotional problems
  5. Breathing relieves pain
  6. Breathing massages your organs
  7. Breathing increases muscle
  8. Breathing strengthens the immune system
  9. Breathing improves posture
  10. Breathing improves quality of the blood
  11. Breathing increases digestion and assimilation of food
  12. Breathing improves the nervous system
  13. Breathing strengthens the lungs
  14. Breathing makes the heart stronger
  15. Breathing assists in weight control
  16. Breathing boosts energy levels and stamina
  17. Breathing improves cellular regeneration
  18. Breathing elevates moods

The claims in the article weren’t backed up by peer-reviewed sources, but it all seems reasonable enough. We have to breathe. It’s free. We may as well do it in a way that improves our health and well-being.

Bill notes in his fluoroquinolone toxicity recovery story that:

Since I had no explanation why ozone was working, I wondered if maybe all I needed was more oxygen.  When the ozone gas is mixed in with the blood, the blood turns from dull rust brown to bright red, as hemoglobin is supposed to do in the presence of oxygen.  I certainly wasn’t getting any exercise…  Could just breathing more be at least part of the answer?

I think it might just be.  I was able to leave off the cane completely within two days of when I started deep breathing.  The pain, balance problems, and mind fog didn’t go away completely at that point, but the change was nonetheless pretty dramatic.  I took the technique from a cheesy old Tony Robbins tape.  I don’t know how much of what Tony says on the tape is pseudoscience and wishful thinking, but I followed it anyway.

The procedure is pretty simple.  Breathe in, via nose, for a slow count of some number.  There’s no magic to this, just as much as you can hold.  I count to seven heartbeats before I’m full.  Apparently Tony counts to ten, but he’s also roughly the size and shape of Frankenstein’s monster.

Hold your breath for a count of four times how long it took to breathe in.  I count to twenty eight heartbeats, and Tony counts to forty, the freak.  Tony claims that this is the optimum amount of time for maximum oxygen absorption.

Then, slowly exhale COMPLETELY through your mouth, for a count of two times the amount of time it took you to inhale.  I can’t quite manage a count of fourteen, usually making it only to twelve or thirteen.  I have no clue how Tony makes it to twenty except to speculate about an extra lung, perhaps in his chin.  He claims that this maximum exhale stimulates the lymphatic system to flush wastes out of cells and eventually out of the body.

Do this between ten to thirty times per day.  I like to do it while driving.  The way I think about it, even if this has nothing to do with recovering from quins, it can’t hurt to try.

Here are the Tony Robbins Breathing exercises that Bill wrote about:

Some possible techniques are those breathing techniques developed by Dr. Konstantin Pavlovich Buteyko known as Buteyko breathing. Buteyko breathing is described in this video:

Here is some more good information on the background and benefits of Buteyko breathing:

I didn’t specifically do breathing exercises during my recovery, but I did find swimming to be immensely helpful. When you swim, you are forced to do breathing exercises.

I was recently chatting with Ruth, and she mentioned that her functional medicine doctor, Dr. Whitcomb, told her to play the flute often to encourage her to breathe deeply and properly, and to encourage healing. She said that playing the flute helps her to feel more calm and generally better.

Breathing exercises are safe, easy, free and can be helpful for floxies. I highly recommend doing some of the breathing exercises shown in the videos in this post, or swimming, or playing a wind instrument.

 

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The Floxie Hope Podcast Episode 4 – Holidays 2014

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Happy holidays, my friends!  Merry Christmas!  Happy Hanukkah!  Festive Festivus!  I hope that you have a wonderful, healing holiday season and a happy new year!  I know that 2014 was a difficult year for many of you, and I hope that 2015 is better!

Here is episode 4 of The Floxie Hope Podcast –

iTunes – https://itunes.apple.com/us/podcast/floxie-hope-podcast/id945226010

The Floxie Hope Podcast web site – http://www.floxiehopepodcast.com/episode4/

In episode 4 of The Floxie Hope Podcast I go over how difficult Christmas was when I was first floxed, and note how far I’ve come.  I also point out that there are some influential doctors and pharmacists reading Floxie Hope.  Keep screaming, my friends – people are listening!

I truly hope that the holidays are filled with love and laughter for each of you!
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The Floxie Hope Podcast Episode 3 – Rachel Brummert

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Rachel Brummert, Executive Director of the Quinolone Vigilance Foundation, is interviewed on Episode 3 of The Floxie Hope Podcast.  Rachel goes over her history with fluoroquinolone toxicity; and gives information on the history, mission and activities of the Quinolone Vigilance Foundation (QVF).

The QVF is engaged in research, advocacy, outreach and other activities related to helping victims of fluoroquinolone toxicity.  The Mission of the QVF is to understand and reduce Quinolone/Fluoroquinolone Toxicity as a cause of human suffering in the world.

Per the QVF’s web site, www.saferpills.org, they fulfill this mission by networking medical professionals and researchers; fostering, initiating, and directing fundamental research to discover underlying toxicity mechanisms; funding research that will produce the most promising results; translating new discoveries into effective medical practices, therapies and public health approaches; and develop and applying discovered knowledge to educate the medical community and help alleviate individual suffering.

You can learn more about the QVF through listening to Episode 3 of The Floxie Hope Podcast.  It is available through the following links:

iTunes – https://itunes.apple.com/us/podcast/floxie-hope-podcast/id945226010

Floxie Hope Podcast Web Site – http://www.floxiehopepodcast.com/floxie-hope-podcast-episode-003-rachel-brummert/

Thank you for listening!

Please share The Floxie Hope Podcast with your loved ones and help us to get the word out about the dangers of fluoroquinolones.  Thank you!

All reviews of The Floxie Hope Podcast on iTunes are appreciated!

Enjoy!

 

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Shop Amazon – Raise Funds for the QVF

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Are you going to do your holiday shopping on Amazon.com?  Do you want to help raise money for the Quinolone Vigilance Foundation (QVF)?

If so, you can do both of those things simultaneously.

How?

All you do is use THIS LINK to get to amazon.com.  The link will track your purchases and a portion of the money you spend will go to the QVF.  All prices of goods purchased will remain the same.  It will cost you nothing.

Information about the QVF can be found on www.saferpills.org, and through THIS POST.

The link to support the QVF through shopping on Amazon will be good indefinitely.  Sorry for the close-to-Christmas notice!

Note – I am no longer the Communications Director for the QVF.  I still think that they do good work and that they’re a great cause to support.

Thanks, and happy holidays!

 

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We must take time to grieve

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These beautiful words were written by Catherine Zimmerman:

Grief and loss are a part of living with fluoroquinolone injuries. While living with this post drug-induced reality, we must take time to grieve. Whether you are the survivor or supporter of the floxed, part of recovery includes tending to grief. 

My adult son was floxed in October. I took a leave of absence from my job to support him and his family during the early days of complete disability. His profound loss of health, the many unknowns about the extent and trajectory of his injuries and the uncertain pathway to healing create a context for a complex grief process. Yet little has been written about the need to acknowledge our grief, and the important work of mourning. Grief occurs as the result of how profoundly fluorquinolones change lives, thrusting individuals and families into a state of disequilibrium caused by illness.

There are many potential losses associated with fluoroquinolone injuries including the loss of health and all the small daily activities and certainties that health affords. Roles such as family breadwinner or athlete may also be altered, and the many small roles that make up the simple pleasures of daily life – may also be beyond reach. A person who has been floxed loses the certainty of health. Changes may occur in terms of how life is centered… now time, energy and money are consumed by managing symptoms and how to survive and heal the body. An image of oneself as strong and capable may be replaced by an acceptance of the how fragile we really are, if one little pill can so totally alter our lives.

Each perceived loss is felt and therefore must be grieved. It is necessary to mourn our losses… even as family members, caregivers and supporters. If those we love have been floxed, their lives and ours have been altered. As a mental health professional, I recommend acknowledging these losses through a conscious grief journey. Be willing to learn about grief and mourning. Find the courage to talk about your grief. Surround yourself with those who will listen. You are not crazy and you are not alone.

Thank you, Catherine, for so beautifully articulating how many fluoroquinolone victims and loved ones feel.

 

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