Tag Archives: levaquin poisoning

The Risk in the Remedy

For better or for worse, there is no one-size-fits-all method for recovery from getting floxed. Some people are helped by supplements, others can’t tolerate them, or even feel worse when taking them. Some people are helped by acupuncture, others think acupuncture is a waste of time and money. Some people are helped by physical therapy, others aren’t. Some people are helped by specific diets, others feel better when they don’t restrict what they eat. Some people are helped by nutritional IVs, others aren’t – and some people have even been hurt by them. As of right now, there is no right way to get through fluoroquinolone toxicity. There is no single supplement, or diet, or exercise, or practice, or IV, or food that cures everybody.

Even though we are lacking a specific cure for fluoroquinolone toxicity, there are people who recover. Each recovery journey is different, and the differences between the various recovery journeys can be hopeful or frustrating, depending on your perspective. The recovery stories on Floxie Hope (59 stories have been published so far) offer a tremendous amount of insight and information, and, more importantly, they offer hope. They let people know that recovery is possible, and hearing that other people have recovered is important for those currently going through the “flox bomb” going off in their body.

Because there is so little research into cures for fluoroquinolone toxicity, the information in the recovery stories and the support group forums is often seen as the only advice and guidance available to floxies. Though the recovery stories and comments on Floxie Hope (and the FB support groups) are intended to be helpful, and it is hoped that what helps one person can help another, it should be noted that everyone’s journey through fluoroquinolone toxicity is different, and what works for one person may not work for another. We all have different genes, different microbiomes, different hormone levels, different toxin loads, different viral loads, different liver function, different tolerances for each treatment, etc. There is no one-size-fits-all solution for fluoroquinolone toxicity, and what helps one person may not only not help another person, it may actually hurt them.

I encourage you to approach any and all remedies for fluoroquinolone toxicity with caution, thoughtfulness, and guidance from someone with an outside perspective or, even better, medical expertise.

Many floxies distrust doctors. It’s reasonable to distrust them – doctors played a role in poisoning each of us, then many people face denial and derision from doctors post-flox. But if you can find a doctor who you trust, who is open-minded, and who is willing to run multiple tests for you, his or her guidance can be incredibly valuable.

This disclaimer is posted at the bottom of each story on Floxie Hope:

** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with Floxie Hope, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, affect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.

People typically pay little attention to disclaimers, but I really want people to read and heed that one when they read the stories on Floxie Hope.

There is a lot of wonderful information on Floxie Hope, and each story is the 100% true story of the person who experienced/told/wrote it. They each shared their story to help others. But, for better or for worse, their story is not your story. We’re all different.

I certainly don’t want to discourage people from trying things that they think will be helpful in their recovery journey. I just want people to realize that we all react differently to different remedies, and that invasive and/or risky remedies should not be taken lightly.

The recommendations for fluoroquinolone toxicity recovery that people give can be broken up into three general categories–things that can’t hurt, things that are unlikely to do harm, and things that have some risk and can potentially do harm. It seems excessive to say that you need medical advice before doing the things that can’t hurt – like meditation or having a positive attitude. Likewise, for the things that are unlikely to hurt you, like changing your diet in a non-drastic way or taking epsom-salt baths, asking a doctor first is probably not necessary (in my opinion, but feel free to consult a doctor if you feel differently). But, for things that some people have reported being hurt by (and other people have reported that these things have helped them too – there’s that side as well) like nutritional IVs, essential oils, and even supplements, it’s probably best to consult with a doctor before going forward with those remedies.

Just…. be careful, my friends. We all want to get better, and it breaks my heart a bit when someone reports feeling worse after trying something mentioned on Floxie Hope. We’re all trying to get better and/or help others. Please just approach the remedies that have risk associated with them with caution…. and consult your doctor when necessary.

 

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All of the recordings for The Anxiety Summit are available for purchase. I am one of the interviewees. 🙂

 

The Floxie Hope Podcast Episode 7 – Brett Peto

Brett Peto The Floxie Hope Podcast

On episode 7 of The Floxie Hope Podcast I had the opportunity to interview Brett Peto.  Brett was only 21 years old when he got floxed by levofloxacin.  After taking levofloxacin, Brett went from being in the peak of his physical fitness (as 21 year olds should be) to having aches, pains, muscle freezing, weakness and more musculoskeletal problems.

Brett and I discussed the things that have helped him through fluoroquinolone toxicity.  In addition to magnesium and the information that he got from Floxie Hope, he was also helped by the support and love of his friends and family.  We discuss the healing that art and laughter and community can bring.  We also discuss how Bret’s perspective was changed by his experience with fluoroquinolone toxicity.  The medical system lost credibility with Brett after he was poisoned by levofloxacin.  He has found a good doctor to work with though, and is trying not to be too jaded from his experience.

Brett mentions his book, The Updraft, in the podcast, and how writing was healing for him.  You can purchase The Updraft HERE.

You can listen to Episode 7 of The Floxie Hope Podcast featuring Brett Peto through the following links –

http://www.floxiehopepodcast.com/episode-007-brett-peto/

https://itunes.apple.com/us/podcast/floxie-hope-podcast/id945226010

Thank you very much for listening to The Floxie Hope Podcast!

Reviews of The Floxie Hope Podcast on iTunes are GREATLY appreciated!

If you have any topic suggestions, or if you would like to be on The Floxie Hope Podcast, please let me know.  You can reach me through the Contact link on this site.

 

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False Idols

Thou shall not worship false idols.

I’ve been thinking about the commandment not to worship false idols a lot since getting floxed.

We, as a society, and probably as individuals too, look to pills to fix us.  We look to pharmaceuticals to cure us when we are sick.  We worship the pills as if they are magical, and good, and as if they will remove all problems from our lives.  There is a systematic lack of questioning about whether or not drugs are actually good – whether the benefits outweigh the costs.  We have faith – blind, baseless faith – that all drugs do more good than harm, that adverse effects are transient and rare, that there is enough knowledge about the workings of the human body to anticipate how a drug is going to affect cells and how those effects are going to change the health and well-being of the person who takes them, etc.  (To their credit, scientists do try to make drugs safe and understand how they work – but there is a lack of willingness to admit that we know far too little about the workings of the human body to be messing with it like we are.)

We worship doctors as if they are Gods.

I wonder if there is something profoundly broken about this way of thinking.  And I wonder if there are some deep lessons to be learned in thinking about where our worshipping of false idols is taking us.

What happened in our floxed bodies is chemical.  I don’t think that any of us got sick because of God’s spite or vengeance, or because any of us worship the “wrong” God.  (There is NOTHING about getting poisoned that is your fault.  Nothing.)  Likewise, what it will take to fix us is chemical, and I don’t think that faith is going to be able to repair our broken cells.

But I also think that it is destructive and wrong to worship pharmaceuticals and doctors.  They can be helpful and they can be guides – but they are not Gods.

I used to believe that adverse reactions are rare, antibiotics are benign, when a drug does harm a doctor can fix it, the FDA is ensuring drug safety, diseases are well understood, the pharmaceutical industry is working hard to find cures to the ills that plague humanity, etc.  I no longer believe any of those things.  I have lost my faith.  Getting hurt – then gaining a little knowledge about how drugs work – will do that to you.

I don’t claim to know who or how (or even if) we should worship.

But I don’t think that pharmaceuticals or doctors should be worshipped.  They are powerful – there’s no denying that.  Unchecked power has never led to good though.  In politics, unchecked power leads to corruption and tyranny.  In medicine, unchecked power leads to poisoning – which leads to chronic disease and suffering.

Drugs aren’t the only false idol that are worshipped to the point of destruction and pain.  The oceans, rivers, land, animals and humans are being hurt in the pursuit of fossil fuels.  Money – the ultimate false idol – the one that none of us (myself included) seems capable of getting out from under the enchantment of – is pursued to the point of inducing pain, destruction and suffering of the earth and all her inhabitants.

When we, collectively (seriously, no individual blame here), worship false idols, we get poisoned.  Our earth and our bodies are being poisoned as we worship money and power and chemical concoctions that we don’t realize the consequences of.  It is a shame – a crying shame.  My heart and soul ache for us all.

 

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MLM Products for Floxies

Let’s talk about MLM companies.  First, MLM means multi-level marketing.  Avon, Mary Kay, Arbonne and Pampered Chef are all examples of MLM companies.  Their sales/distribution model is one in which independent sales reps (as opposed to employees) sell the products directly to consumers – typically by throwing parties and whatnot.  The “multi-level” part of MLM means that the sales people get other people to sell the product too.  So, Sophie is a sales person for Mary Kay.  Sophie gets Lori to start selling Mary Kay products.  Sophie will make money off of not only what she sells directly, but also what Lori sells.  So it ends up being a big pyramid in structure.  But it’s not a pyramid company, because pyramid companies are illegal – technicalities.  Anyhow, you make money based on how much of a product you sell, and how much of it the people under you sell.  That makes sense, right?  If not, google will tell you more.

The reason that I’m mentioning MLM companies is because there are several floxies who have been helped by products that are sold using the MLM model.

Before I go into what those products are, I’m going to editorialize a bit (it’s my blog, I do what I want! :p ).  The sales method does not say anything in itself about a product.  There are good and bad products sold through the MLM model.  There are also both good and bad products sold through the traditional retail model.  A product is not a “scam” just because it is sold through the MLM model.  There are some very good (or at least perfectly fine) products that are sold by MLM companies.  There are also some products that are crap that are sold by MLM companies.  Just like when you go to Target – some stuff is great but not everything is.

There are pros and cons for the consumer in buying from companies that utilize the MLM model.  The pros are that the sales person generally knows a lot about the product that s/he is selling, and you get to socialize while you shop.  The cons are that every sales person for a MLM company has an inherent conflict of interest.  The sales person has a financial interest in you buying in to the product – not just because they get a commission off of the sale (and all MLM products are marked up a significant amount), but also because they want you to believe in the product so much that you want to sell it.  So, it’s really difficult to tell whether a person who is singing the praise of a product sold by an MLM company was genuinely helped by the product or if they just want you to buy it so that they can make money.  (Also, there tends to be a lot of cult-ish Kool-aid being drunk in the MLM company culture.)

BUT, if someone believes in a product enough to want to sell it and to want to get their friends to sell it, well, maybe it’s just a good product and what I wrote above is just cynical.

Here are the MLM companies and products that have been reported to help Floxies:

  1.  doTerra essential oils – http://www.doterra.com/us/  Here is a post that Erin wrote about her experience with doTerra essential oils – http://blogs.naturalnews.com/fluoroquinolone-recovery-brought-to-you-by-nature/  Several Floxies have reported being helped by the oils.  I can’t say that I know much about them, but I certainly believe the reports of the Floxies who like them (especially the ones who aren’t selling the oils and therefore have no conflict of interest).
  2. Asea – http://www.asea.net/  They say all the right things about redox signals and complex cellular feedback mechanisms that are definitely broken in us Floxies.  I don’t know if Asea is actually a way to fix those broken feedback loops or if it’s just expensive salt water.  No clue.
  3. Isagenix – http://www.isagenix.com/ – Nutritional supplements of all types.  They have some amino acid blends that look interesting.  I’m not sure that you can’t get something equivalent from Whole Foods though.
  4. Zija – http://drinklifein.com/ – I haven’t looked into it yet, but I heard from a fellow Floxie that it helped her a lot.
  5. Usana – http://www.usana.com/ – See comment below from Destruida

I have zero personal experience with any of these companies or products.  I don’t know much about them.  Each one has been reported to help a Floxie friend or two.  Will they help you?  I don’t know.  I certainly hope so – if you want to try them.  If you don’t want to try them because you don’t like the sales model, or because you read something negative about them on the internet, that’s cool too.  I recovered without using any of these products.  But that doesn’t mean that other people can’t be helped by these products.  Other people have been helped by these products.  So… there ya go.

Floxie friends who sell these products, feel free to put your contact info in the comments section of this post.

But friends, all of you, if you decide to sell these products, PLEASE do not try to get customers from the Floxie support groups.  That’s a tacky way to try to get customers and it will get you kicked out of the support groups.

With all that said, I am now off to an Arbonne party that my co-worker is throwing.  Hopefully I’ll get enough free champaign to make up for the dent in my wallet.

 

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