Tag Archives: Quinolone vigilance foundation

Quinolone Vigilance Foundation (QVF) Update

Quinolone Vigilance Foundation (QVF) Update

I asked Rachel Brummert, President of the QVF, to update the January, 2014 post about the QVF – https://floxiehope.com/2014/01/29/the-quinolone-vigilance-foundation-qvf/.  It turns out that a lot of updating needed to be done, so I’m making the update a whole new post.  Thank you to everyone involved with the QVF for all your efforts!  

There is a non-profit, charitable foundation devoted to raising awareness about the dangers of fluoroquinolone antibiotics and fluoroquinolone toxicity, advocating for victims, educating the medical community, and to funding research on fluoroquinolone toxicity. It is called The Quinolone Vigilance Foundation (the QVF) – www.saferpills.org.

Following is some information about the QVF:

History and Purpose

The QVF is a registered 501(c)(3) non-profit foundation established in 2009 and Incorporated in 2012. Its founders sought to establish professional credibility by reviewing the existing scientific literature that addressed adverse reactions from fluoroquinolones; recruited and networked medical researchers; and stimulated new research into this poorly understood issue. The QVF branched out in 2014 to educating the medical profession.

“Our mission is four-fold: Educating the medical profession about fluoroquinolones, advocating for victims of fluoroquinolone toxicity, raising awareness in the United States and abroad, and research. Advocacy, education, and research go hand in hand and gives a complete picture of the problem. Helping victims already affected and getting ahead of it so damage doesn’t happen in the first place is something we are very passionate about and we work hard to achieve,” explains Rachel Brummert, Executive Director of the QVF.

Advocacy and Outreach

  • In the spring of 2014, the QVF began educating doctors in local practices and major medical centers.
  • QVF has held six fundraisers since 2013 to raise funding for advocacy and education, and for the University of Rochester research study.
  • QVF sells awareness merchandise:

www.cafepress.com/quinvigil

https://www.bravelets.com/bravepage/fluoroquinolone-life-qvf

http://konectidy.com/charity/quinolone-vigilance-foundation/

  • QVF is in early stages of bringing in two new research studies.
  • QVF attended two FDA Hearings
  • QVF continues to work with media outlets to warn viewers of the dangers of fluoroquinolone antibiotics. We provide information to reporters and assist in finding victims to be interviewed.
  • QVF receives many requests from doctors offices and pharmacies for brochures and awareness cards to display. We also offer free brochures to anyone who wishes to pass them out in their communities. In addition, we offer downloadable brochures on our website under the Resources tab for anyone who wishes to print them out themselves. http://www.saferpills.org/print-download/
  • Author, actor and international speaker Josh Rivedal asked QVF to participate in the i’Mpossible Project and the upcoming book The i’Mpossible Project: Volume 1 Reengaging With Life, Creating a New You due to be released on January 13, 2016 and available for pre-order on September 16, 2015. Per an agreement with the publisher, 100% of proceeds made from our contribution to the book will be donated to QVF and no person shall personally gain from the book. QVF has been approached by several media outlets to discuss the book and about the topic of fluoroquinolone toxicity. The book will be available in paperback and e-book, at major bookstores like Books A Million, Barnes & Noble and Amazon, and online as an ebook at BN.com, Kindle, iTunes, Nook, and Google Books. The i’Mpossible Project is a collection of powerful stories. The stories in this first volume are all about overcoming obstacles, reengaging with life, and creating new possibilities. Among the other authors are Academy Award Winner James Lecesne, and actress Ali Stroker of Fox’s GLEE. We are honored to participate and to bring fluoroquinolone toxicity awareness to an international audience.
  • QVF produces awareness videos which can be readily shared to spread awareness and participates in podcasts and radio shows.

Television Media stories featuring QVF volunteers

Arizonahttp://www.abc15.com/news/local-news/investigations/experts-top-antibiotic-carries-hidden-side-effects-not-listed-on-the-label

Arizonahttp://www.azcentral.com/videos/news/local/arizona/2014/11/04/18450053/

Michiganhttp://www.wxyz.com/news/local-news/investigations/experts-top-antibiotic-carries-hidden-side-effects-not-listed-on-the-label

Indianahttp://www.theindychannel.com/news/u-s-world/experts-top-antibiotic-carries-hidden-side-effects-not-listed-on-the-label

Florida- http://www.wptv.com/money/consumer/experts-top-antibiotic-carries-hidden-side-effects-not-listed-on-the-label

Ohiohttp://www.wcpo.com/news/health/healthy-living/levaquin-popular-antibiotic-carries-side-effects-not-listed-on-label

Californiahttp://www.10news.com/news/investigations/patients-experts-popular-antibiotics-could-cause-permanent-damage-11242014

Georgiahttp://www.wsbtv.com/videos/news/channel-2-investigates-complaints-about-popular/vDDZZS/

Georgiahttp://www.wsbtv.com/news/news/local/patients-suffer-devastating-side-effects-popular-a/nj4Br/

Georgiahttp://www.wsbtv.com/videos/news/another-widow-says-medication-killed-her-husband/vDD6mw/

Californiahttp://losangeles.cbslocal.com/2015/03/04/southland-firefighter-says-popular-antibiotic-stripped-him-of-his-career/

Missourihttp://www.kctv5.com/story/28170151/fda-evaluates-popular-antibiotic-that-patients-say-makes-them-sicker

Virginiahttp://wric.com/2015/04/21/8news-investigates-could-this-antibiotic-permanently-damage-your-health/

Virginiahttp://wric.com/2015/05/20/8news-investigates-doctors-left-in-dark-about-prescription-drug-dangers/

Articles featuring QVF

Care Novate: http://carenovatemag.com/personal-account-prescription-destruction-black-box-warning/

United Kingdom: http://born-in-newyork.com/ciprofloxacin-antibiotic-resistance/

Washington Post: http://www.washingtonpost.com/national/health-science/it-pays-to-read-the-warnings-when-you-open-up-a-prescription/2015/08/03/a29e11b4-d70e-11e4-b3f2-607bd612aeac_story.html?tid=hpModule_9d3add6c-8a79-11e2-98d9-3012c1cd8d1e

Tulsa World: http://www.tulsaworld.com/opinion/idelle-davidson-the-risky-business-of-taking-antibiotics/article_bcce562a-bd78-5d92-b156-6926115be61c.html

Connecticut- http://www.courant.com/consumer/hc-ls-antibiotics-drug-reaction-20150821-story.html

Italy: http://m.ilgazzettino.it/m/gazzettino/articolo/NORDEST/1270894

QVF Staff/Volunteers

The QVF is comprised of a board of directors, non-board volunteers, and ambassadors/advocates from all over the world: The United States, Canada, Ireland, the United Kingdom, Belgium, Australia, Algeria, and Italy.

The current volunteer staff positions are as follows:

Board

Rachel Brummert – Executive Director and President

Matthew Arnold – Vice President

Donna Schutz – Assistant Director and Ambassador Coordinator

Leslie Day – Corporate Secretary

Christina Manthos -Sorrell – Treasurer

Dr. Deanna Minkler – General Board Member

Dr. Joe Hudak – General Board Member

Non-board

Victoria Chiovare – Assistant Fundraising Director

Jenny Frank- Public Relations Director

All QVF positions are staffed by volunteers who generously donate their time and talents to promote the mission and values of the organization. No one within the organization receives compensation of any kind.

More information about the QVF can be found on www.saferpills.org and you can sign up for quarterly newsletters to keep up to date on QVF projects and activities.

To donate to QVF: donations@saferpills.org. All donations are tax deductible.

 

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The Floxie Hope Podcast Episode 3 – Rachel Brummert

RachelQVF

Rachel Brummert, Executive Director of the Quinolone Vigilance Foundation, is interviewed on Episode 3 of The Floxie Hope Podcast.  Rachel goes over her history with fluoroquinolone toxicity; and gives information on the history, mission and activities of the Quinolone Vigilance Foundation (QVF).

The QVF is engaged in research, advocacy, outreach and other activities related to helping victims of fluoroquinolone toxicity.  The Mission of the QVF is to understand and reduce Quinolone/Fluoroquinolone Toxicity as a cause of human suffering in the world.

Per the QVF’s web site, www.saferpills.org, they fulfill this mission by networking medical professionals and researchers; fostering, initiating, and directing fundamental research to discover underlying toxicity mechanisms; funding research that will produce the most promising results; translating new discoveries into effective medical practices, therapies and public health approaches; and develop and applying discovered knowledge to educate the medical community and help alleviate individual suffering.

You can learn more about the QVF through listening to Episode 3 of The Floxie Hope Podcast.  It is available through the following links:

iTunes – https://itunes.apple.com/us/podcast/floxie-hope-podcast/id945226010

Floxie Hope Podcast Web Site – http://www.floxiehopepodcast.com/floxie-hope-podcast-episode-003-rachel-brummert/

Thank you for listening!

Please share The Floxie Hope Podcast with your loved ones and help us to get the word out about the dangers of fluoroquinolones.  Thank you!

All reviews of The Floxie Hope Podcast on iTunes are appreciated!

Enjoy!

 

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The Quinolone Vigilance Foundation (QVF)

QVF_logo_high_res

There is a non-profit, charitable foundation devoted to funding research and raising awareness about the dangers of fluoroquinolones and fluoroquinolone toxixity.  It is called The Quinolone Vigilance Foundation (the QVF) –  www.saferpills.org.

Following is some information about the QVF:

History and Purpose

The QVF was founded by 4 floxies in 2009. Their goals were to review the existing scientific literature that addressed adverse reactions to fluoroquinolones, recruit and network medical researchers, and stimulate new research into fluoroquinolone toxicity.  It became apparent that a national non-profit was necessary to establish the professional credibility of the QVF and so that the QVF could act as a vehicle to raise the funds needed to drive scientific research.  The QVF exists to stimulate and fund university-level peer-reviewed research that will inform the medical community about severe adverse reactions to quinolones/fluoroquinolones.

Since April, 2012, the QVF has been registered as a charitable organization, it has received its EIN from the IRS, registered with the State of New Jersey (where the QVF is headquartered), registered with the proper federal agencies, and written up and filed Articles of Incorporation.  In April 2013, the QVF filed for 501(c)(3) status with the Internal Revenue Service, where its status as of 01/29/14 is pending.  The QVF can operate as a non-profit while its 501(c)(3) status is pending.   It is anticipated that receipt of the QVF’s 501(c)(3) status will be received in 2014.

While the QVF does do advocacy, the main focus of the foundation is research.  When research contracts are entered into by the QVF, the QVF officers sign confidentiality agreements, which note that the research cannot be discussed publically.  For this reason, much of what the QVF does is behind closed doors.  The officers of the QVF ask for understanding among floxies in realizing that even though much of what goes on in the QVF cannot be public, much is going on.  Per Rachel Brummert, Executive Director for the QVF:

“My day includes talking to the medical community, soliciting other major universities to do studies, reaching out to other agencies, making phone calls and doing e-mails.  We give up our weekends, evenings, holidays, etc. to do our jobs, and we do not get paid for what we do.  In everything we do, we keep in mind that the floxie community relies on us, and we are passionate about what we do for that very reason.  We understand that it is frustrating that we cannot share more about what we do. We share that frustration, however, we do it to protect the community and the people we work closely with. Unfortunately, research is slow, and expensive. We are fully committed to doing what is necessary to fully fund the studies we initiate so that we can answer the questions of “why did this happen” and “how can we fix it”. The floxie community deserves those answers.”

As a research organization, QVF’s mission is to:

•    Network medical professionals and researchers regarding adverse reactions to quinolone antibiotics.

•    Foster, initiate, and direct fundamental research to discover underlying toxicity mechanisms.

•    Fund research that will produce the most promising results.

•    Translate new discoveries into effective medical practices and therapies to help alleviate individual suffering.

•    Develop and apply discovered knowledge to educate the medical community and inform best practices for public health.

 

Information about some of the research that the QVF is involved in can be found through the following links:

Rochester Study: http://www.saferpills.org/analysis-of-fluoroquinolone-toxicity-in-the-central-nervous-system-cns/

Dr. Mark Noble site: http://www.urmc.rochester.edu/people/23095977-mark-david-noble

UCSD Study: http://www.fqstudy.info/Fluoroquinolone_Effects_Study/Welcome.html

Dr. Beatrice A. Golomb’s C.V.: http://www.fqstudy.info/Fluoroquinolone_Effects_Study/About_Dr._Golomb.html

 

Advocacy and Outreach

Though the QVF is primarily focused on research, some advocacy and outreach activities have been conducted.

In November, 2012, the QVF partnered with another foundation to do a 5k walk/run, where awareness materials such as rack cards, wrist bands, awareness cards, etc. were distributed.

In November, 2013, Matt Sorrell, husband of QVF Treasurer Christina Mathos-Sorrell, ran the NYC marathon on behalf of the QVF.  Matt was able to raise money for the QVF and increase awareness about fluoroquinolone toxicity through running the marathon and collecting donations.

In December, 2013, The QVF did an online auction, put together by Executive Director Rachel Brummert and QVF fundraising director Michelle Fewer.

The QVF plans to hold the events listed above annually, and discussions are being conducted about other ways to raise funds.

TheQVF also sells merchandise.  The QVF store can be found at www.cafepress.com/quinvigil.

 

QVF Staff/Volunteers

The founders of QVF reached out to fellow victims of fluoroquinolone toxicity to establish a presence in the online community. The board of directors was created, and ambassadors/advocates from all over the world began volunteering to help. Currently, the QVF is an international organization represented in six countries: the United States, Canada, Ireland, the United Kingdom, Belgium, and Australia.

The current volunteer staff positions are as follows:

Board

Rachel Brummert – Executive Director and President of QVF

Matthew Arnold – Vice President

Alice Broussard – Corporate Secretary

Christina Manthos -Sorrell- Treasurer

Michelle Fewer – Fundraising Director

Dr. Deanna Minkler – General Board Member

 

Non-board

Donna Schutz- Ambassador Coordinator

Lisa Bloomquist – Communications Director

Lori Boz- Consultant

 

More information about the QVF can be found on www.saferpills.org.

 

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