Tag Archives: Quinolone

Seeing through the Matrix

Do you remember that scene in The Matrix where Neo (Keanu Reeves) is offered the pills by Morpheus (Laurence Fishburne)?  He has the choice, he can take the red pill and see the real world, or he can take the blue pill and remain in the façade world, the Matrix.  He takes the red pill and he breaks out of the fantasy façade world and enters the real world – a place of destruction and suffering.

I took the red pill.  I actually took 14 red pills.  I’m not sure which one triggered the reaction in my system that changed my perspective entirely, but I see the world differently now, as a result of being floxed.  It would be horribly narcissistic for me to say that I see the “real” world now and that few others do, and I don’t mean that.  What I mean is that I see the world differently now than I did before, and that there are some things that I believe to be true that never even occurred to me before.  I broke out of my own personal Matrix, with those pills; those 14 fateful, life-altering pills.

This perspective shift is not unique to me, or to being floxed.  Whenever people experience a betrayal, whenever something that they assume is safe and protective turns out not to be, their perspective changes and they see the world differently.  Usually this is a bad thing.  People become jaded and bitter, assuming that they are going to get hurt again because they got hurt in the past.  I would like to think that this hasn’t happened to me.  I’m still pretty trusting.  But I do see things differently.  I’ll let you judge for yourself if these things that I now believe are jaded and bitter or if they reflect the “real” world.

I now see:

  • No one is looking out for patients.  The FDA isn’t (duh).  Doctors, Pharmacists and the other people directly involved in the medical system aren’t.  The legal system isn’t.  No one is.  The medical system doesn’t get to be the 4th leading cause of death of Americans by having the proper checks and balances that focus on patient safety and protection.  (Of course, there are plenty of individuals who are looking out for the best interest of patients, but the system, as a whole, is not.)
  • Much of medicine relies on magic, not science.  Officially, the mechanism by which fluoroquinolones cause tendon, CNS, kidney, liver, etc. damage is unknown. (source 1)  Scientists and doctors state, most of them truthfully, that they have no idea how these drugs mess people up.  It is also claimed that much is unknown about the way these drugs work to kill bacteria – the thing that they are supposed to do.  If the mechanism by which a drug works, and sometimes doesn’t work, is unknown, the reliance is on magic and faith to get the desired outcome, not science.  Doctors claim that their pills and potions are backed up by science, but they’re not.  They’re backed up by faith in a broken system.  BTW – the mechanism by which fluoroquinolones both kill bacteria and damage every cell in a person’s body is by forming a poisonous adduct to DNA.  This was found, then immediately ignored, in 1998.  Here’s the article – http://www.jbc.org/content/273/42/27668.full (source 2)
  • Doctor’s rely on anecdotal evidence all the time, but patients aren’t allowed to.
  • No matter how many peer-reviewed, scientific journal articles show the danger of a drug, doctors will believe that the scientific evidence supports its use until it is removed from the market.  Similarly, no matter how sick a drug makes people, it won’t be taken off the market unless…. I’m not sure…. Because flat-out causing cancer isn’t enough to get Humira (source 3) and Enbrel (source 4) removed from the market.  Perhaps damaging the DNA of humans will be enough to get fluoroquinolones removed from the market (read source 1 and 2), but I doubt that it will be.
  • Fluoroquinolone damage is everywhere.  A large portion of the people who are diagnosed with autoimmune diseases, fibromyalgia, chronic fatigue syndrome, leaky gut syndrome, anxiety, depression, dementia, arthritis etc. are actually suffering from fluoroquinolone toxicity.  (Of course, those diseases are real on their own, and there are many factors that cause them, but fluoroquinolone toxicity is one of the causes that isn’t even considered.)
  • If enough people repeat a mantra enough times, it will be seen as true, no matter what the evidence against it.  It almost makes me laugh, reading articles that point out the damage that fluoroquinolones can do to mammalian cells that follow that presentation of damning evidence with the conclusion that they “have an excellent safety record.”  (source 5)

I could go on, but I’ll leave it at that.

I have largely healed from getting floxed.  I fluctuate between 95-100% of my pre-floxing capacity.  Life has continued.  As I live my normal life, and feel fine while doing so, the memories from being sick fade.  Sickness is no longer my reality.  It is no longer shaping my day-to-day life.  It is no longer warping my perspective and shattering my trust in the medical system.  Normalcy has resumed and the trivial has, again, taken over.  It would be easy for me to go back into the Matrix, the façade world where I don’t understand how “mysterious” ailments occur, and to think that the systems that are in place to protect and sustain us are working as they should.  Undoubtedly, it would be healthier for me to leave my “Floxie” world behind and to go back to what everyone else considers to be the real world.  As a healthy person, I can do that if I choose to.

But I’m choosing not to.  I’m choosing to stay in the “Floxie” world.  I am choosing the version of reality, of truth, that I had when I was sick.  It may not be the healthiest thing in the world for me to do, but it feels like the right thing to do.  People are sickened by these drugs every day.  Their world is shaken to the core when their health, their pain-free, happy, trusting existence is brutally stolen from them.  It seems like the right thing for me to do to continue to see their pain, to acknowledge their struggles, and to fight the broken systems that are perpetuating the sickening of innocent people.  It feels right to stay in the dark and gloomy “real” world and fight the Agent Smith’s of the world who want to keep us trapped and sick.  So I will continue to do so.  The Matrix, with its niceties wrapped in naiveté, is enticing, but I prefer to know the truth.

Sources:

  1.  Sarah H. Elsea, Neil OsheroffST, and John L. Nitissll,  Cytotoxicity of Quinolones toward Eukaryotic Cells: IDENTIFICATION OF TOPOISOMERASE II AS THE PRIMARY CELLULAR TARGET FOR THE QUINOLONE CP-115,953 IN YEAST* Vol. 267, No. 19, Issue of July 5, pp. 13150-13153, 1992 THE JOURNAL OF BIOLOGICAL CHEMISTRY 0 1992 bv The American Societv for Biochemistrv and Molecular Bioloev. Inc. Printed inn.’S.A.  http://www.jbc.org/content/267/19/13150.full.pdf+html
  2. Arkady B. Khodursky and Nicholas R. Cozzarelli, The Mechanism of Inhibition of Topoisomerase IV by Quinolone Antibacterials*  10.1074/jbc.273.42.27668 October 16, 1998 The Journal of Biological Chemistry, 273, 27668-27677.  http://www.jbc.org/content/273/42/27668.full
  3. FDA warning label for Humira – http://www.accessdata.fda.gov/drugsatfda_docs/label/2012/125057s232lbl.pdf
  4. FDA warning label for Enbrel – http://www.accessdata.fda.gov/drugsatfda_docs/label/2012/103795s5507lbl.pdf
  5. Stahlmann R., “Safety profile of the quinolones,” Journal of  Antimicrobial Chemotherapy. 1990 Nov;26 Suppl D:31-44. http://www.ncbi.nlm.nih.gov/pubmed/2286589

 

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Lessons Learned from Getting Floxed

1980-08 #15 - Version 2

I’m going to start this post with a disclaimer – when I say I “asked for” this, I don’t mean that I deserved to get sick.  It is not my fault that I got sick.  I have made plenty of mistakes in my life, and plenty of the mistakes that I’ve made have to do with taking those Cipro pills.  But still, the bomb that went off in my body as a result of taking Cipro was not my fault.  Those of you who are sick from fluoroquinolones or other Rx drugs, it is not your fault.  The disproportionately horrifying adverse reaction that you are going through makes any responsibility that you have in creating the problem miniscule in comparison to the responsibility of those who are at fault.  There are people who are to blame for your illness, but you are not one of them.  You are a victim.  So, when I say that I “asked for” the things that have come into my life after getting Floxed, I mean those words literally – I asked for them.

I’ve always wanted:

  1. Purpose
  2. Direction
  3. Passion
  4. Righteousness
  5. Something to say that was important/interesting
  6. To be heard/validated
  7. A spiritual outlet
  8. An identity
  9. To be a fighter – to be strong
  10. To lose 10 pounds

I asked for those things.  I sent those desires out into the universe in whatever form I sent them – vague thoughts, wishes, desires, prayers, etc.  If you had asked me at any point in my adult life if I wanted any of those things, I would have said yes.  There would have been no hesitation.  Without a doubt, I wanted each of those things to come into my life.  I didn’t have a plan of action for how I was going to obtain any of them, other than the most trivial of them – to lose 10 pounds – I always had a theory on how to do that.  I wanted all of the more important things too, but I had no idea how to get them.

I vaguely looked for purpose, direction, passion, righteousness and an identity through my education and career choices.  I got a Masters in Public Administration with the hope of finding a way to make the world a better place through public policy.  I had every intention of finding my purpose and passion through my Master’s program but when the program ended it was a struggle to pick a topic for my thesis because I hadn’t discovered anything that I really cared about.

I work for a non-profit.  The non-profit that is my employer does good work in the community by lending money to developers of affordable housing.  I like that I do something that is generally helpful, but I don’t feel passionate about what I do.  I admire the people who feel passionately about their careers and their lives.  I wished to live like them, to have something that got me riled up, something that I really cared about, something that made a difference in the world and that made me someone important.

I never thought that I was particularly tough or strong.  I have always been strong physically, but emotionally and mentally, I was sensitive and (I hate to admit it) weak.  I would sacrifice myself so that others could win, or not feel bad.  I needed validation and was torn down easily.  I never had much will-power, thus the fairly constant unfulfilled wish to lose ten pounds.

Despite not having passion, direction, etc. my life wasn’t bad.  In fact, it was quite good.  I had my health.  I had a family and friends who loved me immensely.  I had enough money (everyone wants more, of course, but I had enough to get by).  I had a job.  I owned a home.  Life was good, it just didn’t have the “oomph” that I wanted it to.  I wanted more “oomph” and, over time, never specifically consciously, I wished for the things listed above.  I wanted them.  I asked for them.

I got all of those things.  I survived getting poisoned by Cipro and in doing so I learned that I’m not only a survivor, I’m a fighter.  I gained passion, direction, righteousness, etc. through screaming that it is NOT OKAY for people to be poisoned by prescription antibiotics.  I found that I have something to say and a surprising number of people are listening to me.  I found spiritual outlets (you can read about that here http://www.collective-evolution.com/2013/09/14/a-journey-through-pharmaceutical-induced-illness/) and I found my soul.  I found my purpose.

I got exactly what I wanted.  Through getting sick.  Through recovering.  Through Cipro.  Out of all the things in the world, fucking Cipro, brought me those gifts.

I asked for them.  I asked and I received.  They just didn’t come in the packaging that I was looking for.

It’s kind of funny, isn’t it?  In a shoot-me, horrifying kind of way, it’s funny.  Be careful what you ask for, because you just might get it.

There are some other things that I gained from getting sick.  If I had been a more wise person, I probably would have wished for them ahead of time.  They are:

  1. Empathy
  2. Compassion
  3. Patience
  4. Tolerance

I gained those things from being knocked down, from being sick.  When I was healthy, I didn’t even realize that I was lacking those things for those who are not healthy.  I now see the world in a way that enables me to have empathy, compassion, patience and tolerance for those who are struggling and sick.  In gaining those things, I have become a better person.

To wonder if it was the right thing, to wonder if my health and longevity should have been sacrificed so that I can have a purposeful and passionate life, is futile.  That choice, if it was a choice, was not made on a conscious level.  I certainly know that I will never sign up to get poisoned again and that I will do everything in my power to keep others from going through what I went through.  But the experience of getting sick, the experience of recovering, and now the experience of fighting, have made me a better person.  It’s good to be empathetic, compassionate, patient, tolerant, passionate, determined, righteous and even skinny*.  These are not bad cards to be dealt.

* Do NOT even think about taking a fluoroquinolone for weight loss.  I could list the ways that that’s a stupid idea, but I’ll just leave it at – don’t be an idiot.

 

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Legal Compensation for Fluoroquinolone Toxicity

I was floxed in the last months of 2011.  (I took the Cipro in November but didn’t react until December so my flox-iversary is debatable.)  For most of the time that I have been a “Floxie” the general word among fellow Floxies was that lawyers weren’t accepting fluoroquinolone toxicity cases.  It was only after the August, 2013 adjustment to the FDA warning label accompanying fluoroquinolones, that added the warning of permanent peripheral neuropathy, that I even heard of lawyers accepting fluoroquinolone toxicity cases.  Now there are at least 2 law firms that are taking fluoroquinolone toxicity cases.  I appreciate them both so I’m going to plug them:

Red Law, LLP

(310) 917-1070

http://www.redlawllp.com/

and

Nidel Law

(202) 558-2030

http://www.nidellaw.com/

There are a million personal reasons why you may or may not want to pursue legal recourse and I respect all of them.  It’s a very personal decision and I am not trying to pressure you in any way.  I do want to make sure that you know that the option is available though.  Both of the firms listed above are taking cases.

I have no reason to think that either firm is better than the other.  I have been in contact with both the Red Law attorneys and Chris Nidel, the principal at Nidel Law.  They all seem competent and professional.

Legal pursuits are probably the only way that the system is going to change; that people are going to stop being needlessly poisoned by fluoroquinolone antibiotics.  It’s not your responsibility to be part of the change in the world that keeps others from getting hurt, but it may be some consolation as you go through the pain of a lawsuit.

I could complain ad nauseam about how the legal system isn’t set up to compensate victims of fluoroquinolone toxicity, but I’ll refrain because it’s pointless.  We have to start with where we are, with the system as it is.  I wish you all the best of luck in getting your cases accepted, getting the compensation that you deserve, and changing the world for the better.

 

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The Silence Around Fluoroquinolone Toxicity

I posted this – http://www.hormonesmatter.com/epidemic-silence-adverse-drug-reactions/ on Hormones Matter on October 17, 2013.  It was originally similar to the post below but I changed and edited it until it became what I submitted to Hormones Matter.  I still like the earlier draft and since it’s more Flox focused, I thought I’d share it on here.  As always, thanks for reading!

The Silence Around Fluoroquinolone Toxicity

One of the more bothersome feedback loops that keeps the dangers of fluoroquinolones from being recognized is that people stay silent about their pain and suffering, and therefore their pain and suffering is not recognized or appreciated, and everyone in the medical field gets to continue to think that these drugs are safe and that adverse reactions are rare. Seeing is believing and they don’t see it, in part because people aren’t screaming. Of course, there are people who are screaming at the top of their lungs about the pain and suffering caused by fluoroquinolone antibiotics who are systematically disregarded, and that’s a problem that has bothersome consequences and feedback loops as well, but it’s a topic for another post. This post is about people suffering in silence about the pain that Cipro, Levoquin, Avelox or Floxin has caused them.

People stay silent for a variety of reasons. There is a lot of shame associated with getting sick. People feel bad about what they can no longer do. They feel responsible for the role that they played in taking those pills, or insisting on them from their doctor, or administering them to their child, and they hide in shame. Also, a lot of the adverse effects of fluoroquinolones are CNS related, meaning that they can adversely effect many areas of mental health. People are notoriously ashamed and silent about mental health issues. It is easier to deal with anxiety, memory loss, depression, panic, etc. alone, in silence, than it is to speak up about what happened. After all, if you speak out about experiencing mental health issues, you run the risk of being labeled as crazy. Additionally, Fluoroquinolone toxicity takes its toll on every system in the body and therefore it is difficult to describe what is going wrong. How does one explain, to anyone, that EVERYTHING is going wrong? It’s too difficult and people sound and feel crazy, so they stay silent. When people ask their doctor about the possibility that the drug that they took caused the myriad of symptoms that they now experience, and the doctor denies that it’s possible that the drug that they prescribed could do what it has done, people assume that their doctor is right, or that they at least aren’t entitled to question their doctor’s expertise. After all, their doctor went to school for a long time and knows what they’re talking about… right? So people assume that they are wrong, their doctor is right, and they stay silent. There are a variety of other reasons why people stay silent about the travesty that is Fluoroquinolone Toxicity. All of them feed into the real risks of these drugs being under-recognized. The silence is, sadly, as much of an epidemic as the pain.

A friend of mine went to a Psychologist to help her to get through the mental and emotional trauma of being Floxed and she told me that, as she was telling the Psychologist her story, the Psychologist started to cry because a few years ago her (the Psychologist) knee swelled up and she experienced over-all tendon inflammation after taking Levoquin. When she asked her Doctor about it, her Doctor told her that the Levoquin couldn’t possibly be the cause of her pain. She knew differently but didn’t say anything. She recovered and didn’t think much of the period that she went through with painful, inflamed tendons much again. My friend’s experience and story validated the Psychologist’s pain, suffering and notion that Levoquin was the cause of her tendinitis, and it freed her to be able to acknowledge that she too was a victim of fluoroquinolone antibiotics. Before my friend visited her, the Psychologist thought that she was wrong, or the only one, or that her Doctor must know better, or that her story didn’t matter enough to scream about it – after all, she did recover – and she suffered in silence. She didn’t get the support that she deserved. She didn’t get the acknowledgment that she deserved. No one saw her pain and suffering because no one, including her, acknowledged that it existed.

I went out on a date a few months ago with a guy who was clearly Floxed but he didn’t know it until I told him my story. He had been treated with multiple types of antibiotics for a “chest infection” that was really acid reflux that was making him cough incessantly. He kept going back to his doctor for more and more powerful antibiotics because the mild antibiotics that he was given didn’t get rid of his cough – of course, because it wasn’t from an infection. His doctor eventually prescribed him Cipro and he had an adverse reaction to it. Most of his adverse reaction was mental (but he also lost his endurance and had an increased heart rate that he struggled to get down). He had a severe anxiety/panic attack and he thought that he was about to die. His sister flew to the U.S. from Sweden to be at his side because he thought he was dying. He lost his memory. He lost his composure and was barely able to do his job in software sales. He was clearly sick. But he stayed silent because he was ashamed of having mental issues. He never connected his sudden onset of mental health issues and the antibiotics that he took, and thus his doctor got to continue to think that he was a healthier than average person and that Cipro was a perfectly safe drug.

I have always talked about what was going on in my body and mind. Silence is not something that I have ever been afflicted with. I have always felt the need to be understood, to be recognized and for my pain to be acknowledged. I am lucky enough to have friends and family members who listen to me. Despite being a talker, I still felt like I lost my voice for a while. I felt like I couldn’t really explain what was going on. I felt like there was a wall between myself and those that I was trying to talk to. I think that feeling socially isolated is a symptom of being Floxed and that it’s really difficult to explain something like Floxing to people. It is ABSURD that a prescription antibiotic that is used all the time could cause my body and mind to explode like it did. I knew that what I was saying sounded absurd, and that people didn’t understand what was going on, so there was that barrier to my voice being heard. It didn’t stop me from yapping though. 🙂

I hope that all of you who are afflicted with silence start screaming about your reaction soon. It’s not okay that you were hurt by a prescription antibiotic. It’s not okay for these drugs to take away your ability to walk, your ability to think, your ability to speak, etc. I hope that you all gain your voice back, that we are all heard, and that this absurd situation starts to change.

 

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Fluoroquinolone Antibiotics and Nerve Damage/Malfunction

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This post about how fluoroquinolones are associated with Central, Peripheral and Autonomic Nervous System Damage was published on Hormones Matter on 09/09/2013.  

http://www.hormonesmatter.com/fluoroquinolone-antibiotics-associated-with-nervous-system-damage/

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Permanent

I really appreciate that the FDA has put the word “permanent” on the warning labels of fluoroquinolones.  “The nerve damage may be permanent” is now stated under the peripheral neuropathy section of the side-effects listed.  Permanent.  Physicians may take note; they can do permanent damage to their patients with these drugs.  It may make them think twice.  It may make them realize the severity of the adverse effects of fluoroquinolones.  They may see that they can do damage with these drugs that they can’t fix.  Permanent damage.

While it is wonderfully validating to see the words “The nerve damage may be permanent” on the updated label for Cipro, there’s a part of me that hates that word – permanent.  It’s a word that steals people’s hope.  It’s a word that feeds into fear, hopelessness and suicidal ideation. It’s a word of doom.

You are not doomed.  There is nothing about you that is permanent.  Nothing is permanently damaged.  Nothing is permanently perfect.  We are all in a state of flux, all the time.  Sure we’re all decaying a bit, it’s the nature of living things, but we are also growing and healing.  People recover from this.  They do.  I did.  Lots of other people have recovered too.  There are stories of hope and healing on this site.  Sure, it’s not a huge number of stories right now, but the site has only been up for a couple of months and, well, the people who have healed have moved on with their lives.  If I may be so audacious, I would say that MOST people recover, with time.  It’s a really long, rough, painful, scary road, but people get down it.  People get to the end.  They recover.  I hope that you can find the strength to believe that you will recover too.  If you can’t find that strength today, I hope that you can find it tomorrow.  Because this life is worth fighting for.  Not only your health, but your hope and your spirit are worth fighting for as well.

As someone said in one of the fluoroquinolone victim support group sites, “no side effect can be proven permanent until you’re dead.”  True.

So hang in there folks.  I know that it’s a trite thing to say, and I apologize for that, but I mean it.  Just take one breath at a time.  You can get through this.  Bayer and Johnson & Johnson may have kicked you, but they didn’t kill you.  You’re still here.  You can recover.  Have hope.  Try.  ‘Cause it’s only permanent if it kills you, and it didn’t.

 

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Is Fluoroquinolone Toxicity Rare?

I’ve come to hate the word rare. As in, “your reaction is rare,” or “those side-effects are rare,” or “it’s rare for someone to suffer from adverse effects from fluoroquinolones.” It’s such a dismissive thing to say. As if it’s okay for this to happen as long as it’s “rare.” As if it’s okay for a certain number of people to be collateral damage as long as the devastation that they experience is “rare.” As if it’s okay for there not to be any research or resources or justice or answers to questions because the problem is “rare.” As long as what you experience is labeled as “rare,” it doesn’t matter. Your experiences, your pain, your health, stops mattering. You become statistically insignificant.

It’s not a very nice thing to say to people. People who are trying to tell their stories. People who are trying to be heard. People who are trying to get answers, justice and cures. People who have been attacked and who need their pain and suffering to be acknowledged. Telling them that they are insignificant, rare, is just mean.

And is it true? Are adverse effects of fluoroquinolones really rare? How, I wonder, would anyone have a clue? Seeing as there is no recognized diagnosis of (name for) Fluoroquinolone Toxicity Syndrome / Floxing, most people who suffer from it are misdiagnosed. They are either told, as I was, that there is nothing detectable wrong. There was definitely something wrong with me, but “I don’t know” is the most benign wrong answer possible, so I’m thankful for it. Other people who have doctors who are less willing to admit that they don’t know are diagnosed with fibromyalgia, arthritis, chronic lyme disease, leaky gut syndrome, chronic fatigue syndrome, bipolar disorder, depression, anxiety, rheumatoid arthritis, M.S., lupus, sjogren’s disease, or, in children (shudder), autism or autism-like symptoms.  Plenty of people who are floxed end up with one of the diseases listed, and fluoroquinolones may (um did, but that’s a bold assertion when I have no proof) have even caused those diseases to emerge.  (All of the diseases listed are complex diseases with multiple causes – fluoroquinolones are NOT the only cause of them and they are not the only cause of symptoms like those of the diseases listed above.  I’m just saying that sometimes, possibly often, people who are suffering from Fluoroquinolone Toxicity Syndrome are misdiagnosed with those diseases, and for some of the autoimmune diseases, fluoroquinolones may contribute to them.)  So people who should have at least a partial diagnosis of Fluoroquinolone Toxicity Syndrome / Floxing / whatever it ends up being called, end up being put into a different disease category and everyone gets to remain willfully ignorant, thinking that adverse effects from Cipro, Levaquin and Avelox are “rare.”

The fact that adverse effects of fluoroquinolones are often delayed makes the connection between the cause (fluoroquinolone antibiotics) and effect (bomb in body and mind) difficult to see. Patients and doctors alike are failing to make the connection between fluoroquinolones and the symptoms that are the manifestation of an adverse reaction to them.

As far as I know, there has never been a study of fluoroquinolones that takes into account the delayed adverse reaction to them that many people experience. Another thing that I have never seen taken into consideration is the fact that there seems to be a threshold for fluoroquinolone tolerance. Some people react negatively to their first pill, but most people tolerate fluoroquinolones for a while (some people can take 5 pills, some can take 500 pills) then, once their threshold is reached, they have a severe adverse reaction. If neither delayed reactions nor thresholds (nor cumulative effects) are being studied, how in the world would anyone have a clue how often adverse reactions truly occur?

The less noticeable adverse effects of fluoroquinolones, effects like mild insomnia, memory loss, urgency of urination, painless muscle spasms, etc. (a list can be found here – https://floxiehope.com/2013/07/10/warning-signs/ ) can even be mis-attributed to aging, dehydration, etc. Though these effects are mild and nothing compared to the triggering of an autoimmune disease-like reaction like full-on floxing is, they’re still adverse effects and they’re still damage done to people by fluoroquinolones. I doubt that these effects are rare. They probably happen to most people who take fluoroquinolones. But they are rarely reported and rarely connected to fluoroquinolones, and thus, everyone gets to continue to think that adverse reactions are rare.

No one really knows how frequent adverse effects of fluoroquinolones are because no one is looking at the full picture and no one is asking the right questions.

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Of course, I’m a bit biased, but I see adverse effects of fluoroquinolones everywhere. I don’t have a large number of friends – I’m certainly not a “connector” – yet I have 4 friends (not including facebook friends) who have been adversely effected by a fluoroquionlone. I also went out on a date with a guy the other day who was telling me that he had a rash, an irregularly high heartbeat, loss of endurance, an anxiety attack and leaky gut syndrome after taking an antibiotic. I bet you a buck he was floxed.  He didn’t know, his doctor didn’t know, the FDA didn’t know and the pharmaceutical companies didn’t know, so everyone gets to go on thinking that his reaction didn’t happen, and the number of reported adverse reactions remains lower than the number of actual reactions.  A lot of people have been adversely effected by these drugs. Most of them recover, thank God. But suffering from any adverse effects from a drug when there are safe alternatives that will get rid of the infection, is wrong. And it isn’t RARE.

 

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