Tag Archives: thyroid

Fluoroquinolone Toxicity and Intracranial Pressure

Several people suffering from fluoroquinolone toxicity have noted that horrible headaches and pressure in their head has been a symptom of fluoroquinolone toxicity. This comment simply sums up what others have said:

“How do you get rid of the head pressure? I can’t concentrate to read. It’s been 16 months, any tips please.”

Additionally, in the post, “Floxies vs. Normals Part 2” Betsy describes her post-flox headaches (and other painful conditions):

“Migraines before were painful. Migraines after are devastating and debilitating. The one I got while on Cipro was the most intense thing I’ve ever experienced. I’ve never had meningitis but the pressure and pain in my head was so excruciatingly painful that I can only imagine it must be similar. I’ve had infrequent migraines my entire life but the floxed ones truly devastate my body leaving me so weak as to be unable to function at all. There is no comparison.”

Unfortunately, these are not two isolated incidents. While not every “floxed” individual suffers from intense headaches (I didn’t), many do, and head pressure/headaches can be both devastating and under-acknowledged symptoms of fluoroquinolone toxicity.

Fluoroquinolones have been linked, through several studies, to pseudotumor cerebri syndrome (PTCS), which manifests as horrible headaches and head pressure. Chandler Marrs, founder of HormonesMatter.com describes PTCS as follows:

“Pseudotumor cerebri, also called intracranial hypertension, is a serious neurological condition marked by excessive cerebral spinal fluid (CSF) induced pressure in the skull. The increased CSF puts pressure around the brain mimicking symptoms of a stroke or a tumor, including severe headache, vision changes, even vision loss, synchronous pulsatile tinnitus (pulse based ringing in the ears described as a whooshing sound), and nausea. Many women (and men) who experience these symptoms are misdiagnosed with migraines or led to believe that it’s ‘all in their head’ – pun intended. If sufficient intracranial pressure builds up other symptoms  develop including sharp nerve pain in the arms, legs, and back, severe neck stiffness, nausea/vomiting, numbness or tingling in hands, feet, and face, depression, exercise intolerance, and memory difficulties. These symptoms occur absent a tumor, hence the name pseudo or false tumor, and absent other disease processes.” (source)

Sound familiar?

A recent study published in the American Academy of Neurology, “Oral fluoroquinolones and risk of secondary pseudotumor cerebri syndrome: Nested case-control study” found that approximately 2,000 of the 6,000 cases of PTCS are related to fluoroquinolone use. That’s ONE THIRD of the cases of PTCS – a disabling and life-altering painful condition. The researchers found that the relative risk of PTCS is 5.6 times higher in recent recipients of fluoroquinolone antibiotics than in non users.

In Intra-cranial Pressure and “Headaches” on FluoroquinoloneThyroid.com, the author describes her experience with post-fluoroquinolone intracranial pressure:

“I don’t know how to describe it other than “pressure”.  It feels like my head could explode, and I especially feel this in my ears.  It’s as if my ear drums are going to blow out with this too.”

She goes on to note that this fluoroquinolone toxicity symptom appears to be related to thyroid hormone and iodine homeostasis, and describes how differing levels of TH and iodine affected her symptoms. (The post, Fluoroquinolone Antibiotics and Thyroid Problems: Is there a Connection?, gives an overview of the connections between fluoroquinolones and thyroid problems.)

Also linked to in Intra-cranial Pressure and “Headaches” is a horrifying case-study of a 6-month old boy who was given nalidixic acid (the original precursor to the quinolone pharmacore) who suffered from “bulging fontanelle, papilloedema, widening of skull sutures, and vomiting” after being given naladixic acid for treatment of a urinary tract infection. The case-study was published in 1967. Instead of using naladixic acid, we now use fluoroquinolones, which are likely more dangerous than naladixic acid because fluorine was added to them specifically so that the drugs would more deeply penetrate tissues and cells.

Unfortunately, most doctors don’t link head pressure, intense headaches, PTCS, or migraines to fluoroquinolone use more than fifty years after the publishing of the case study noted above. The lack of recognition and connection is disheartening, to say the least. Perhaps with more studies, and more patient-advocates connecting the dots, more physicians will recognize the connections. If headaches, head pressure, migraines, or other related issues are fluoroquinolone toxicity symptoms for you, I suggest that you look at “Oral fluoroquinolones and risk of secondary pseudotumor cerebri syndrome: Nested case-control study” and that you give it to any physicians you’re working with. It is odd, and likely “unheard of” for most physicians and patients alike that fluoroquinolones can increase the risk of PTCS or other head-pressure related illnesses, but the connections are there and documented, and they should be recognized.

Connection – Post-fluoroquinolone headaches may be a result of cerebrospinal fluid leaks. Please see the post, Do Fluoroquinolones Cause Cerebrospinal Fluid Leaks?, for more information on the possible connections between fluoroquinolone toxicity and CFS leaks. Thank you.

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The Healing Power of the Sea

Lisa Kauai

If I could turn back time, and I had to go through the acute stage of fluoroquinolone toxicity again, I would forego 90% of the doctors’ appointments and I would head straight for the beach. Really–I’m not joking at all. The times that I’ve spent at the beach, and, specifically, in the ocean, have been incredibly healing for me. The sea has given me significant symptom-relief, and I have felt great progress in my healing every time I have visited the ocean post-flox.

The sea is like a giant mineral bath. It is full of magnesium, sodium, and trace minerals (including iodine). Our bodies absorb these minerals through our skin. As most who are reading this know, fluoroquinolones deplete the body of magnesium, iron and other minerals. Soaking in ocean water can help to replace those minerals. Additionally, fluoroquinolones damage the thyroid, and the iodine in the sea may help to repair the thyroid.

I am guessing that most of the benefits I feel while at and in the ocean have to do with the absorption of minerals from the sea into my body through my skin, but there are other benefits to being at the beach too. The times that I’ve gone to the beach post-flox have all been times when I’ve been on vacation, and I have been relaxed while I’ve been there. De-stressing is good for everyone, especially floxies whose GABA neurotransmitters are downgraded, causing them to have difficulty relaxing (though the difficulty relaxing tends to be paired with fatigue – a horrible combination, for sure). I also got tons of vitamin D3 from the sun while at the beach, and vitamin D3, as well as other beneficial things from the sun, are anti-inflammatory and good for the body.

This is a bit woo-woo, but I’ve always felt like being in the water was good for me energetically. It feels as if my nervous system is both energized and relaxed when I’m in the water. In my recent interview with Dave Asprey on Bulletproof Radio we chatted about this. The healing effects of submersion in water for people dealing with multi-symptom, mysterious illnesses, are documented–though I’m not sure of the mechanism through which water heals.

Post-flox, I’ve always felt better in the water. Swimming, even in chlorinated pools, has been healing for me. But I never feel as good in a pool as I do in the ocean. The pool is healing, but the ocean is magical for me. It helps–immensely.

I was never a beach person before I got floxed. I was born and raised in Colorado and I am a mountain girl through and through. I never understood the appeal of beaches–they’re sandy, the sea-water makes my skin sticky, and I both overheat and get sunburned easily. After I got floxed though, I started to appreciate the water because it was healing and energizing for me. About 10 months post-flox I went on vacation to Hawaii and felt the healing power of the sea. Being in the ocean felt AMAZING! Ever since then, I have gotten in the ocean whenever I have the opportunity, and each time it has been invigorating and healing. I guess that I’m a beach/ocean person now–there are worse changes in the world. :p

I hope that fellow floxie friends find the ocean to be as invigorating and healing as I do. The sea is one of my favorite kinds of medicine.

 

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The Thyroid, Hormone and Autoimmune Connections to FQ Toxicity

Hormones Matter Logo

This article puts SO MANY pieces of the FQ toxicity puzzle together, I had to share and keep it on this site.  I didn’t write it, but the author did an AMAZING job at explaining the connections between fluoroquinolone antibiotics and thyroid problems, so I’m sharing it on Floxie Hope.  Please share the article with your doctors.  It has a lot of amazing, helpful information in it.

FLUOROQUINOLONE ANTIBIOTICS AND THYROID PROBLEMS: IS THERE A CONNECTION?

It’s published on Hormones Matter.  Those hormonal systems do, indeed, matter.  They’re so delicate and non-linear though, that they’re rarely studied.  Not looking at them doesn’t make them inconsequential though.

 

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The Floxie Hope Podcast Episode 9 – Rick Radcliff

Rick Radcliff Floxie Hope Podcast

In Episode 9 of The Floxie Hope Podcast I had the opportunity to interview Rick Radcliff.  Rick is a long-time flox survivor.  He was hurt by Avelox/moxifloxacin ten years ago.

In the ten years that Rick has been a floxie, he has learned a lot about fluoroquinolone toxicity.  He reveals a lot of interesting information about the links between fluoroquinolone induced mitochondrial damage and thyroid health.  Balancing his hormones has helped him to improve immensely.

Please listen to Rick’s story and share it with your friends.  Thank you!

https://itunes.apple.com/us/podcast/floxie-hope-podcast/id945226010

http://www.floxiehopepodcast.com/episode-009-rick-radcliff/

As always, reviews of The Floxie Hope Podcast on iTunes are greatly appreciated!

 

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