Floxie Hope


This site is to give HOPE to those who are suffering from Fluoroquinolone Toxicity Syndrome as a result of being poisoned by fluoroquinolone antibiotics – Cipro, Levaquin, Avelox, Floxin, etc.  It contains stories of healing.

Cipro, Levaquin, Avelox and all other fluoroquinolones are dangerous drugs that can have devastating effects that cumulatively I’ll refer to as Fluoroquinolone Toxicity Syndrome or Floxing.  Fluoroquinolone Toxicity Syndrome/Floxing includes damage to connective tissue (tendons, ligaments, cartilage, fascia, etc.) throughout the body, damage to the nervous systems (central, peripheral and autonomic), and more. The damage done by fluoroquinolone antibiotics can destroy a person’s quality of life or even kill them. Certainly, there is a time and a place for drugs with dangerous side effects. If you find yourself in a septic shock induced coma, fluoroquinolones may save your life. Unfortunately, these drugs are not being reserved for life or death situations. People are being prescribed them for urinary tract infections, suspected prostate infections, upper respiratory infections, as a prophylactic for travelers’ diarrhea, ear infections, pink eye, etc. Thousands of people have suffered needlessly from the devastating effects of fluoroquinolone antibiotics, when another, safer antibiotic could have, and should have, been used.

The damage done by fluoroquinolones is largely unacknowledged by the medical establishment and an accurate diagnosis, compensation and relief are difficult to come by. There is no known cure for Fluoroquinolone Toxicity Syndrome/Floxing.  However, many people continue to LIVE after being poisoned by fluroquinolones.  They find healing, recovery, perseverance, compassion and hope.  These are their stories.

This site is meant to give hope for healing to those who are adversely effected by fluoroquinolones.  It is no way meant to disregard the pain of those who are chronically suffering from the horrifying effects of Cipro, Levaquin, Avelox or the other fluoroquinolones.  There are people who don’t recover.  Their stories are real and they matter.  There are also people who are able to recover and I share their stories with the hope that they inspire others, or at least give hope that recovery is possible.

Here is a New York Times article about the dangers of fluoroquinolone antibiotics – http://well.blogs.nytimes.com/2012/09/10/popular-antibiotics-may-carry-serious-side-effects/?_r=0 – more news stories, research papers and other resources can be found on the “Links and Resources” page.

Here is a Facebook group that is a great resource for those going through Fluoroquinolone Toxicity – https://www.facebook.com/groups/floxies/

Featured post – I’m floxed. Now what?

The Fluoroquinolone Toxicity Solution Ebook has helped many Floxies to recover, including DanielCindy and Ruth.  As a bonus, you will also receive The Floxie Food Guide – a book of diet guidelines to help you through fluoroquinolone toxicity:

flu tox get help you need banner click lisa




25,108 thoughts on “Floxie Hope

  1. Henk Noordhuizen January 29, 2020 at 6:48 am Reply

    Ciprofloxacin impairs mitochondrial DNA:


  2. Tricia January 29, 2020 at 2:10 pm Reply

    I have officially been re-injured by Macrobid. One of the known side effects is peripheral neuropathy or irreversible nerve damage. I’ve been supplementing w magnesium , similar to what one would do w FQ’s…..but this could be an entirely different monster and I’m not sure what to do or how to get better…..if I get better from this. Has anyone on here been injured from Macrobid and then miraculously recovered? Please help !

    • L January 29, 2020 at 2:45 pm Reply

      Damn, so sorry. I just posted the other day about how bad Macrobid is. You might want to look into gabapentin. I have not used for this, but I believe someone on this site used it for nerve pain and I have read it may help with neuropathy. Anyhow, I would do some research on it. (I hate the idea of taking any pharmaceutical after being floxed, but if it helps… And I also have read about gabapentin dependency, so look at that too.

    • Henk Noordhuizen January 30, 2020 at 2:55 am Reply

      Tricia,I’m so sorry to hear what the Marcrobid did to you!

      Nerve damage is very difficult to treat,and the process will be a slow one.I know that some of the B vitamines (it’s best to take the whole complex),from a reliable brand (I,for me,prefer Solgar).are very important for good brain- and nerve health,and minerals like magnesium and zinc are as well.

      And also very important are the right amounts of Omega 3 oils .Fish oil,or,better,consumption of fatty fish,because there’s much bad quality fish oil in the market.Choose your fish wise,cought in the cleanest parts of the oceans (North Atlantic seems to be fine).

      I hope that things turn for the better,for you,soon,and that some wise people,here,can give you even better advices than mine.


    • Larry February 15, 2020 at 11:40 pm Reply

      Tricia, I ran across a post from a woman who had macrobid nerve damage and she said she lived in hell for 4 years but it eventually went away. I’m dealing with levaquin nerve damage. Ugh

  3. Dee January 30, 2020 at 8:58 am Reply

    I keep hearing a lot of good things about zinc? Does anyone know what a good dose is to take everyday and what type? Pill, tincture etc? Any suggestions on a good brand??

    • Henk Noordhuizen January 31, 2020 at 1:43 am Reply

      Zinc is,indeed,a very important mineral/trace element,for women,and even more so,for men (libido and healthy prostate).The optimal dose is concidered 25-30 mg daily,but when there’s a deficiency,50 mg for max. 6-8 weeks is concidered therapeutical.

      The minimum (!) uptake,needed,is 7 mg for women and 9 mg for men;this should be easy to get from food.Only vegans and vegetarians might not get enough zinc from food because our vegetables,today,are often lacking zinc,and zinc from vegetables is not well absorbed.

  4. Henk Noordhuizen February 1, 2020 at 2:01 am Reply

    This is how people with line-wire telephones payed for the 5G network.And how a lawsuit might make an end to this disasterous plan:


    And a question I ask myself for quite a while:why doesn’t anybody speak,or think about the enormous amount of micro-wave energy we beam in the atmosphere,constantly,and how this heats up the atmosphere and changes the climate?

    People (not me) put food in the microwave oven and know that the waves will heat up the (water molecules in) the food,but never think about how the same microwaves,used for telephony,must,for sure,heat up the water molecules in our atmosphere! Instead,they blame the innocent CO2,which has a very weak greenhouse effect.

    By the way;since two years the earth is COOLING! But the media,and some hysterious kids,still believe in “their” hoax.Seems to me like one BIG psychological experiment in manipulating the minds of the GLOBAL population.

  5. Dee February 1, 2020 at 8:08 am Reply

    Hi all! Anyone take DAO enzymes to help lower histamine??? I’m considering it with all this itchy skin. I guess it would help digestion too??

  6. Dee February 1, 2020 at 8:16 am Reply

    Bob and Daniela who were damaged by Septocaine are you still around and reading this?? How are both of you doing? I have a couple of questions for you if you are reading this. Thanks a lot! Hope you are both doing well and improving!! Dee

  7. Dee February 1, 2020 at 9:37 am Reply

    Henk, thank you for info on Zinc. I’m thinking of adding it to my supplements? I already take so many supplements that I hate adding more but seems like a lot of Floxie’s take zinc?

    • Henk Noordhuizen February 1, 2020 at 9:47 am Reply

      Well;I do,Dee.Not on a constant base;I use 50 mg/day,and when the package is empty,I useualy forget to buy a new stash,for weeks,sometimes even months.When I notice that my prostate might be starting to swell,I put the zinc on my shoplist,before I make my weekly shopping-tour.So;I have a simple but effective regime ;-))

  8. Don M February 1, 2020 at 9:50 am Reply

    Henk……… Very interesting article. I ordered an inexpensive (but supposed to be very good) EMF measuring meter. Checking around with it will be interesting. I am kind of torn on my use of WiFi. My cell phone is capable of making calls over my WiFi and saving any cell network usage charges. So for this reason I need to allow my router to broadcast WiFi.

    I do believe that many health problems that people are having could be traced to the EMF radiation around us. If 5G is allowed to go forward who knows what the health results will be.
    An interesting question. Are floxies more susceptible to EMF radiation?

    • Henk Noordhuizen February 1, 2020 at 10:14 am Reply

      Don,I,too,had the choice to WIFI or not to WIFI,and I chose for the more expensive option.Whenever I have to download a higher amount of data,I buy a package.I only use my cheap smartphone experimental,just to see what’s the +’s and the -‘s of a smartphone,compared to my very cheap Nokia,The only thing I found,that might be usefull to me,is GPS.And,maybe,WIFI control of my camera,under certain conditions.

      Inside my house,everything is wired,except the remote control of my TV,which is IR.No problem,there.And for my camera,I actually prefer a wired cable control,in the very rare occasion I have to control my cam from a distance.Also have an IR control,but with that,it’s hard to have reliable control.Sometimes it works,sometimes not.And that’s inside my house;outside,in full sunlight,I haven’t even tried.

      Almost all of my phone calls are made with my wired phone,and my GSM phone is only used for situations where no other option is available;the rest of the time it’s switched off.I have no need at all to be reachable,24/7,and if necesary,people can reach me on my wired phone,and leave a message on that phone,when I’m not at home.But when the 5G network would be realized (which I dearly hope,will not!),I,too,will be a victim of people who want to experiment with life on earth,just for power,and money.

    • L February 1, 2020 at 11:02 am Reply

      I purchased one about 6 months ago, (Cornet) and turns out it is the same one Dafna, who I mentioned in another post, uses. (I had purchased another, a tri-something and returned it because a friend also purchased one and they differed wildly.) It is really I don’t have much wifi in my apt, and even my laptop I put on airplane mode when not in use. And it showed. My friend however has lots of wifi stuff, and THAT really showed too! Another good idea is to put your cell phone in another room or at least far from your bed at night, or put it in airplane mode. It’s amazing how many people…esp teens, sleep with it right next to their beds.

      • Henk Noordhuizen February 4, 2020 at 1:45 pm Reply

        As far as I know the Cornet is quite a reasonable meter,and I surely would like to buy one but I can’t afford it,right now.

        After all I read about the medical world,the multinationals and the governments it’s not hard to start thinking that the 5G network is pushed on us,NOT DESPITE the health risks,but BECAUSE OF those risks.Just like the salt hoax,the saturated fats hoax,the sun dangers hoax,the safe an effective medicines and a few more.

    • Henk Noordhuizen February 8, 2020 at 4:47 am Reply

      “An interesting question. Are floxies more susceptible to EMF radiation?”

      I think the answer is:”YES”.Because our DNA is already compromised by FQ’s,which will make it even more sensitive to emf,maybe,in particular microwaves.

      Bizar thing is: you’re adviced to test your microwave oven frequently for leakages,and now they’re bombing us with ever more powerfull microwaves,just for an even faster internet.And because my refrigerater wants to “talk” with my car and my watch wants full control over my room temperature.Idiocy into the extreme!

      I wouldn’te heve any problems with this madness,were it not,that everybody will have to suffer,to make this possible.The youngborn,the elders,the animals,the trees and the much needed insects.Only evil minds can come up with this totaly over the top technocratic ideas!

  9. Dee February 1, 2020 at 12:42 pm Reply

    L. I read your post on Ruth’s story about the Zeolite. I’m curious to see how it works for you when you get it. I know it is coming from Germany. How much did it cost?? I’m considering trying it too. I know Ruth mentioned using TRS from Coseva. I wonder what the difference is? Did you look into that one at all? I’m desperate to try something with this damn itching going on. I’m pretty sure it is a histamine issue? My acid reflux is really ramped up too and I’ve read high histamine can cause that too!? Trying to get this nummular eczema and itching under control ever since the Lidocaine shots triggered it 3 months ago. Soooo frustrating!! I hope it calms down and goes away since it was a “reaction”?? I hope!!🙏🏻🙏🏻

    • L February 1, 2020 at 1:20 pm Reply

      I STILL have not received it, and USPS says it was supposed to have arrived two days ago and I cannot get any further updates. Grrrrr. I bought it because it was the one that Alison Vickery uses. This is the list of the ones she recommends (that doesn’t necessarily mean others won’t but I just figured she’s the expert here. “The source of zeolite really matters as there needs to be sufficient silica to bind the aluminum naturally contained within the zeolite. The ratio needs to be more than 5 silica to 1 aluminum molecule.
      These brands meet this criterion:
      Biopure Zeobind
      G I Detox

  10. Dee February 1, 2020 at 2:21 pm Reply

    L. Thanks for the list of zeolite products. How long ago did you order the zeolite from Germany? May I ask what the cost of it was?
    I hope you get it soon!!!!

    • L February 1, 2020 at 2:43 pm Reply

      Ordered it Jan 14. It was around $30. They didn’t really charge extra for postage so I figured it was safer to order direct from them than Amazon ( hate to support Amazon anyhow)

      • Andrea February 2, 2020 at 6:16 am Reply

        Since suffering from IBS, I’m looking into so many products to try to heal…I’ve just ordered the product form NOW foods you suggestede a few days ago (candida spport), but right now I’m taking high dosage L glutamine and see what happens. There’re a few studies that show how it could be beneficial for leaky gut. I’ll let you know if I notice somehting in about 10 days.
        I’ve also read about zeolite. What was the reason you wanted to try it?

        • Don M February 2, 2020 at 8:06 am

          Andrea…….. I keep seeing that you have IBS problems and mention leaky gut. Here is something that I took that seems to have helped my problems. https://store.drhyman.com/metagenics.html
          Very expensive and one bag only lasts for 2 weeks. I found that it took a couple of months but it seems to have worked. It was prescribed by a chiropractor who also specialized in nutrition.

          Something that seems to not be observed by most everyone. When you ingest liquids a half hour before or after eating you have diluted the acid level in your stomach. Enough stomach acid is very important for breaking down the foods before they enter the intestinal tract. The common practice of having a big glass of something with a meal is actually counter productive to good digestion. Yet most everyone ignores this.
          Some people are taking acid capsules before meals to raise the acid level in their stomach when all they would need to do is refrain from liquids prior to and after eating.

        • Henk Noordhuizen February 2, 2020 at 8:30 am

          Don,I don’t drink for at least one hour before,and after meals,since at least 30 years.It probably helps,and when not,I eat a citrus fruit,or,sometimes,drink the freshly made juice of it.This (almost) always does help.

        • L February 2, 2020 at 11:27 am

          And drinking while eating dilutes stomach acid, so if you are already having issues because of low stomach acid (which is what most people have—not too much as big pharma would have you believe) you just further diminish it.

        • L February 2, 2020 at 11:19 am

          It binds histamine. I thought it might be worth a shot to help deal with this congestion issue, since I have ruled out so many things on what’s causing it.

        • Andrea February 2, 2020 at 3:15 pm

          Thanks everyone for your answers

  11. Dee February 1, 2020 at 2:56 pm Reply

    L. Ok thanks!! I will look into the different products. Let me know after you start taking it if you think it helps your histamine issues!!

    • L February 1, 2020 at 2:59 pm Reply

      will do.

  12. Henk Noordhuizen February 3, 2020 at 2:34 am Reply
    • Don M February 3, 2020 at 8:34 am Reply

      Henk……… This is also an interesting article by Mercola about Ginkgo Biloba. https://articles.mercola.com/sites/articles/archive/2020/02/03/ginkgo-biloba-mystery.aspx
      Especially interesting are the parts about ATP and the mitochondria. Things that appear to be prominent in the floxie world. As with most things one must understand the “cautions” too.

      • Henk Noordhuizen February 4, 2020 at 3:06 am Reply

        I saw the article,yesterday,in the Mercola mail,but read it today.Most amazing,to me was:

        “The ginkgo genome is huge and contains 10.6 billion DNA “letters” compared with the human genome that contains 3 billion letters.” WOW!!!

        I read about Ginkgo,increasing ATP but I couldn’t find anything on mitochondria in that,and an older Mercola article about the Ginkgo,not even in the comments.Wonder where you have read that,Don.

        Today,Mercola disappointed me. I found the article on the fact that the new Corona virus seems to be man made ( by a lab in Wuhan City),and escaped (or did it???).Being curious,I visited the Natural News website (Mike Adams loves conspiracy stories,but hates lefties,and I am one).There I found out that YESTERDAY Adams wrote an extensive aarticle on the same subject,but with a lot of PROOF).Because the Mercola article was more basic,I wanted to point readers,there, to the NN article but when I placed the link,the “naturalnews” part was replaced by “***”.Tried once again;same result! Placing a link to NaturalNews is prohibited by the Mercola website software!

        Okay,I don’t like Mike Adams,either,and I unsuscribed from his daily updates quite a while ago (his anti-socialist “war”,and the fact that he earns most of his money by re-editing other people’s articles). But this time,the NN article was way more informative,and the fact that Mercola places an article about exactly the same subject,be it with less of the important info,THE NEXT DAY,and filtering the website link to where he,most likely,found the base for his own article,to make it hard for readers to link to the original NN article….NOT GOOD!

        I know that Mercola and Adams are not exactly friends,and both stride to be the website with the most readers (Mercola stiil being nr.1,and Adams nr.2,of health related websites),but I didn’t expect such behaviour from Mercola and his team.Had an agrument with one of the main commentors,2 weeks ago,because I really dislike the daily updates,with the cryptical descriptions of the article subjects,just to push you to visit his website to see what it’s all about.Don’t like sneeky tactics!

        Before I forget;here’s the link to the NaturalNews article:


        • Don M February 6, 2020 at 8:44 am

          Henk……… Mentioned or not ATP has to do with the mitochondria. So it may go unsaid but it is a fact.

  13. Don M February 4, 2020 at 8:17 am Reply

    Henk……. NaturalNews web site https://naturalnews.com/ has some VERY interesting reading. Maybe floxies should scan through it. There may be some things there that are affecting them that if recognized and eliminated would help them. “Maybe”??? There are no doubt many things there that are contributing to our problems.

    • Henk Noordhuizen February 4, 2020 at 12:29 pm Reply

      Don,I’ve read the NaturalNews every day,for several (10+) years.Sometimes there is interesting news,and this time they were a day earlier than Mercola,with the news on the new Corona virus being man made.But I don’t want to read almost on a daily base that all things bad are caused by lefties and,of course,everything good is made possible by rightwinged.(they never even call socialistic democrates “leftwinged”) .Well,it’s the leftwinged that brought the working class the 40 hour work week,holidays,safe work,medical care,and quite a few more worker rights,during the last 100+ years.Things that are so easily forgotten,nowadays.

      Like I wrote,Mike Adams,most of the time,just edits an article,written by someone else,and I always had to go to the sources to read the original article.That’s how I discovered that,very often,he made his articles more sensational then they really were,and sometimes he bent the truth quite a bit (if not totally) to do so.And,like I wrote,since the last election,his website is very much about politics,and most of his “real” articles are politically coloured as well.Not a pleasant read,at all!

    • Henk Noordhuizen February 4, 2020 at 12:30 pm Reply

      I forgot to mention that I discovered both websites around 2005,and read both daily.Mercola always was the more reliable website.

  14. Andrea S. February 6, 2020 at 10:27 am Reply

    Hi everyone. Sorry if this has been discussed before. In regards to just the standard flu strain that is going around every year, how many of you get the flu shot? I have only gotten the flu shot once in my life. I seem to get a cold or flu every year as I have sons in school who bring that stuff around. As I get older lots of people I know get the shot. I am on the fence with this one.

    • L February 6, 2020 at 11:23 am Reply

      I used to (pre floxing) get them religiously. And I often got the flu. Since floxing, 5 years ago, I have not and will not get another one. Too many toxic adjuvants. I keep oil of oregano and other natural anti-bacterial, anti-virals around. Also the more you get the flu shot, the less effective it is. And some years it’s only 20-something percent effective anyway—not worth the trade off for the toxins it contains.

      • Andrea S. February 6, 2020 at 12:06 pm Reply

        That’s my train of though too L. I don’t like the adjuvents. Last time I got the flu shot two unexpected things happened. 1. I got the flu anyhow and 2. I got pregnant. My third child is a joy and blessing but anyhow… yeah I am extremely gun shy of putting any of this stuff into my system.

        • Sheila February 6, 2020 at 12:38 pm

          the thing to keep in mind with the flu shot is that the “current” flu shot is only for the virus that was recognized the year before cause they can’t predict what strain will need to be protected against. They do include the previous years and years before that to ensure proper coverage but yes sometimes it’s only 20-40% effective cause the strains that are prevalent in that year supersede the vaccine strains. So if the vaccine protects against strain 8 and the one that really hits everyone is strain 9 then yes strain 8 may skew the vaccine stats into showing that vaccine was only 20% effective, makes sense since the vaccine was for strain 8 and not 9. I hate to hear people get hung up on percentages of effectiveness when it’s such a crap shoot as to what strain will be the problem. I think with my age and cipro toxicity that I am smart to get the vaccine rather than get violently or fatally ill with the flu. It’s a choice but make that choice with information and not fear.

        • Henk Noordhuizen February 6, 2020 at 12:59 pm

          Here,in the Netherlands,the doctors (their national institute) asked the government permission NOT to give the flue shots,anymore.Reason: they were more or less useless,and many people get very sick from the shots.Quite a few people even die.

        • Sheila February 6, 2020 at 3:16 pm

          yes that’s true some people die from it usually those are people with compromised immune systems or serious illnesses and some it’s allergic reactions but the number of deaths from vaccines versus the illnesses is extremely low. There is no 100% harmless vaccine or drug on the market including over the counter meds, we know of a friend who took Nyquil and died cause her tongue swelled up and she suffocated – these things happen; that’s why you have to weigh your own risk factors with what you know about the illness you are trying to prevent. Knowledge is power – the power to make your own informed choice. But when someone asks about info and asks for a personal experience with the said topic I like to think I can help if I personally have had experience with what the questioner was asking and in this case I do. I grew up in the hospital and my mom worked over 25 years in surgical unit of our hospital here so I feel I have a knowledge base to draw from.

        • Henk Noordhuizen February 6, 2020 at 12:45 pm

          Pregnancy as an (un-documented) adverse reaction to a flu shot? My word;what a world,we live in!

          Just kidding ;-)) To answer your question;the only vaccinations I had sing my child time were tetanis,and those were probably totally useless.Tetanis is spread by horse shit,and the last time I saw a horse in my area was at least 30 years ago.Horses that ride the city streets have a “shit bag” hanging on their behinds,since years,now.The risk for tetanus is practically zero,but they still push these shots on as many people as possible,with no reason but their financial gain.

          Never had a flu vaccin,my whole life.Just like my father,I seldom get the flu,or a common cold.My father never had a flu untill he was in his seventies,and the doc gave him a flu shot because he had some heart issue.Than he got extremely sick from the damn shot,en never accepted one,again.

          I Know a woman who’s mom never got the flu,just like my dad.Than,her doc pushed one on her,she immediatly got very sick,and within 2 weeks she died.

        • Sheila February 6, 2020 at 3:04 pm

          I had to look that up – seems it is in horse manure BUT it is found in soil and dust which is everywhere.

          Causes of tetanus
          Tetanus bacteria live in soil, dust and manure, particularly horse manure. Infection occurs when the bacteria enter the body through a break in the skin. Symptoms occur between three days and three weeks after infection. … Tetanus is not transmitted from person to person. Sep 30, 2014

          Common Ways Tetanus Gets Into Your Body
          These bacteria are in the environment and get into the body through breaks in the skin. The spores can get into the body through broken skin, usually through injuries from contaminated objects. … Wounds contaminated with dirt, poop (feces), or spit (saliva)Feb 28, 2019

          How is tetanus caused?
          Tetanus is caused by an infection with the bacterium Clostridium tetani, which is commonly found in soil, saliva, dust, and manure. The bacteria generally enter through a break in the skin such as a cut or puncture wound by a contaminated object. They produce toxins that interfere with normal muscle contractions.

          I found this info on a search interesting info

        • Nicole February 6, 2020 at 3:19 pm

          Andrea, I always had the flu shot before being floxed. Then I skipped 2 years after that. For me I found the fear of the flu at my age was making me have have more flox problems than I felt the shot would as I have had flox friends like Sheila who get them every year since being floxed with no problems. Now at my age I should get the strong seniors one but I have had the single dose pregnant lady one that is mercury free the last two years and no side affects what so ever. Everyone is different and there are certainly people who have great immune systems and don’t get viruses or at least get a lighter effect from a virus. I am not one of them. So it is what you feel in your gut is best for you.

        • L February 6, 2020 at 5:08 pm

          The flu shot is even less effective for seniors (which says a lot since it is not that effective overall.) And sorry for my cynicism but I think the senior shot is just another big pharma money grab. https://articles.mercola.com/sites/articles/archive/2019/09/26/flu-shot-ineffective.aspx

        • Henk Noordhuizen February 7, 2020 at 4:14 am

          Sheila,I have my hands in the soil,very often;my plants and my garden are one of my main hobbies (a have quite a few :-)) And NL is one of the biggest agricultural exporters in the world,despite the fact that it’s actually a very small country.Never heard of any case of tetanus,here.Getting it from the soil is extremely rare;would have been a bit higher in the time when horses were very common,and horse dung all over the place.When tetanus would be quite common,in soil,where are the victims? And the warnings,not to put plants in the soil when you have small wounds on your hand?

          The only time I got a tetanus shot is when a Danish dog bit almost right through my hand.I had to go to the doc to clean it and stitch it.Then,he insisted on giving me the shot,and told me that the stitches probably had to be teaken out within a few days because these kind of bites almost always get infected,and he was right.

        • Sheila February 7, 2020 at 12:15 pm

          true tetanus is unusual but not unheard of today. Partially because of the vaccine partially because people don’t work with their hands as much in dirt and around tools that might have come into contact with it. We no longer do the manual labor like we used to. I know some have a fear of vaccines I do not; I don’t always believe that science is out to kill us; however I don’t feel that the senior vaccine which is 4 times as strong is a good idea I mean really 4 times as strong with the elderly?? not good.

        • Nicole February 7, 2020 at 12:43 pm

          I agree Sheila. That is why I choose to get the single dose regular at 69 and my doctor actually agrees. He does not say we need the shot because it will prevent the flu but that it does help keep us out of the hospital. He never pushes antibiotics as he thinks we are going to have worldwide problems from over use and the fact they will not work anymore. He was not the doctor who gave me the FQ’s and does understand the side affects. That actually happened in a ER and hospital sitting. I was double dosed and my liver went into hepatitis but they didn’t test me for days and it was just too late. All the many side effects just kept happening for months afterwards and still get new ones. My life as I knew it was ripped from me four years ago today!
          But like you I do believe in vaccines.

        • Andrea S. February 6, 2020 at 2:21 pm

          Henk yes pregnancy side effects LOL. I don’t know how or why he is a blessing though. But we tried 5 years with no luck then the flu shot and bammo. I can’t explain that one??

          As for Tetanus I am 25 years past due on that. I have been gun shy with that as well just a fear of mine. You know these vaccines are a double edged sword. You get them you fear you might have a negative reaction, you don’t get them and one may become ill and land in the hospital with a nurse sneaking Cipro in your IV bag when your dozing off. I know several who marked allergies on their charts but were given things anyhow.

          Damned if you do… damned if you don’t so they say.

    • Sheila February 6, 2020 at 12:29 pm Reply

      Andrea I have been getting the flu shot for 5 years now with no problems at all. I don’t have any more symptoms with my cipro toxicity than normal – it’s just like I had nothing but I have not had any colds or flu since taking it but I don’t get out in public much either during the winter and I always keep my hands clean.

      • Andrea S. February 6, 2020 at 2:23 pm Reply

        Sheila first I am so glad that you don’t have too many toxicity symptoms that is good news. I hear you on the hand washing. I am also glad to hear the flu shot did not cause any problems. That is encouraging to know.

        • Sheila February 6, 2020 at 2:59 pm

          Andrea I have a lot of toxicity issues from the cipro but none that were made worse with the flu shot. I will always get the flu shot from here on in. I avoided it like the plague until I got deathly ill from the flu one year thought I would die and I thought I would rather deal with a flare up than feel the way I did with the flu that year. So far it’s been great, the worst thing I had was a bruise that didn’t want to go away from the injection site.

    • Virginia February 6, 2020 at 10:35 pm Reply

      Hi Andrea. Even though I’m floxed and also have Lyme Disease, I’ve never had a bad reaction from the flu shot. Ever since I was laid low by the flu for a month, 10 years ago, I get the yearly shot and have never had flu since. Considering about 10,000 have died of flu this year in the U.S., and that it’s way more deadly than the new coronavirus, I think it’s an acceptable step to take for me. Even if the flu shot doesn’t offer full protection and has some not-so-healthy additives, I’d rather risk those than a deadly disease, especially since the Lyme disease has already dragged my immune system down somewhat. We’re all different though, and the flu shot may affect some people badly, including some with Lyme. It’s an individual choice.

      • L February 6, 2020 at 11:34 pm Reply

        The numbers you quote are inflated. Big pharma via the CDC and other agencies throws around those huge numbers to get more people vaccinated. But those numbers are not just from the flu. They get all lumped together. https://www.huffingtonpost.ca/lawrence-solomon/death-by-influenza_b_4661442.html

      • Henk Noordhuizen February 7, 2020 at 3:53 am Reply

        Do you trust those CDC numbers? Since yeras it is knowwn that they add all lung illnesses together and call it “flu victims”. Hardly any of those victims is tested for the virus,and people who had the vaccin and died are in that number as well.

        Flu is not a deadly illness,per sé: it is highly contagious,so,many people get infected,but the number of victims,although mainly fabricated,is actualy not that high (up to 2 %,other lung diseases and vaccin victims included).

        Looking for better and safer protection against the flu,and many other illnesses? Vitamine D! The flu virus is there,all year around;the sun is not.That’s why common cold and flu,among others,are typical winter illnesses.Can you now imagine a reason why the Farmafia and our own governments are fear-mongering everybody,trying to keep you out of the sun?The sun is your best friend,and protects you against many illnesses,as long as you don’t overdo (don’t get a sunburn!).In fact,if enough vit.D is in your body;it actually protects you agains skin cancer.I posted a link to a Mercola article,on vit.D,just a few days ago.

        A few yeras ago,an opinion website,here,in NL,put up a webpage where everybody was asked to answer two questions:1.Did you get the flu vaccin,this year,or not? 2.Did you get the flu,this year,or not? Outcome was: the percentage of people who got the flu was even a little bit HIGHER under the vaccinated vs. the unvaccinated! In other words: no protection at all from the vaccin.That’s why,here,in NL,the doctors national institute has asked permission to stop vaccinating against the flu. Permission denied:too many universaties depend on Farmafia money,and so do several governmental organisations.

    • Barbara Arnold February 6, 2020 at 11:53 pm Reply

      I’ve had the flu shot for the past ten years without any problems whatsoever. I used to get the flu a lot before I started the shots but haven’t had it since. I’d rather take a chance with the shot than get the flu and not be able to breathe as happened before.

  15. Michael February 7, 2020 at 12:31 am Reply

    All over body tingling …. what the heck is this. I thought my PN was getting better and I cut right back in my gabapentin to just 100mg per day. And my feet are better not so sore any more. But today whole body is tingling. Shoulders, face, back, thighs …. what the heck.

    7-8 months out.

    Is it true if you’re not better by 12 month it’s permanent?

    • L February 7, 2020 at 1:00 am Reply

      no one-fits-all timeline. It was closer to between 1 1/2 years to two years before I started feeling even close to normal.

      • Michael February 7, 2020 at 1:07 am Reply

        This is just unimaginable hell. Out of all the tragedies and misfortunes … I never saw this coming. I just took a course of antibiotics prescribed for a simple infection.

        • L February 7, 2020 at 1:22 am

          Oh, I hear you Michael. My little cipro adventure was so torturous, physically and mentally, I prayed for death for a year. I still wonder sometimes how I made it through the worst…barely able to see, 90 pounds, barely able to walk, gasping for breath, asphyxiated by every single thing in the world and in excruciating pain. Beyond description, because it was all so outside the realm of human experience. And mine too was for a UTI. Who could have ever imagined

        • Don M February 7, 2020 at 5:41 am

          Michael……… Yup. This is why we all must take every opportunity we have to broadcast to the world the terrible problems that can arise if one takes a Fluoroquinolone antibiotic. We must do our best to educate as many people as we can so that this terrible thing does not happen to them. EVERYONE. I’ll repeat that. Everyone who takes a Fluoroquinolone “is” affected. Maybe not immediately. Maybe not seriously. But just by the way the Fluoroquinolone is designed to work it affects everyone’s body. Anything designed to infiltrate and affect the DNA and mitochondria will do it not only to the bacteria but the mitochondria and DNA of the host too.

          The affect of taking these antibiotics is very unpredictable. Some have no reaction at all. (they think) Some have an immediate reaction. For some the reaction is delayed for days, weeks, months or years. But make no mistake. Everyone is affected in some way and at some time by Fluoroquinolone antibiotics. They may be very effective but they are bad news in the long run.

          Also look for “fluoride” in things around you. Do your best to minimize your exposure to it.

        • Don M February 7, 2020 at 6:06 am

          I mentioned fluoride in a previous post. Here is a website on fluoride. https://www.greenmedinfo.com/disease/fluoride-toxicity

    • A.Coleman February 8, 2020 at 10:05 am Reply


      So sorry to hear about your PN relapse. Unfortunately this is very consistent with what many other floxies experience. I know you are comfortable with the gabapentin; but while it may make the short term better I think it will make your long term worse. I am sure that reducing that has caused some of your recent flare; but I would go ahead and remove it altogether.

      My neuropathy spiked to a 6 or 7 out of 10 when I was initially floxed; then got better for a few months. Then about 4 months after my initial floxing it spiked up to a 9 out of 10. It stayed there for a few months and then very, very, very slowly got better.

      By two years post floxing I was mostly neuropathy free on most days; but about every 4 to 6 weeks I would have a flare; no idea why. It would last three to seven days and then go away. Now I am 4.5 years post-floxing. I still follow this basic pattern; but the neuropathy days seem to be shorter – maybe 3 to 5 days.

      I ask myself, “how can I be completely normal for weeks then have a flare?” I have no idea; but suspect my body is still dumping toxins somehow and maybe one day I will be well. Regardless I would consider myself well even with the current neuropathic symptoms; but my brain fog, headaches, and dizziness keep me from that state for now.

      In short I do think there is healing after 12 months; but know from first hand experience that the rate of healing slows down. For me there is a marked slow down in healing around the 3 year mark. HOWEVER, I am still healing and hope that one day I will be well. It may be anywhere from 6 to 18 months; but I am pretty confident that I will be 95% of my old self 95% of the time by then. (My personal criteria for being well).

      Things that help my neuropathy in order of importance:

      1) B vitamins
      2) Mg supplements
      3) Epsom salt baths (not just foot baths) – with loads of epsom salt (I take one a week and then may do foot soaks in between)
      4) Mg oil – this initially makes my feet worse; but the next day they will be better. I only use the Mg oil when I am relapsing

      Try to stay positive. It might get worse for a while; but I suspect it will get better.

      • Michael February 8, 2020 at 7:47 pm Reply

        Thank you A. Coleman. I appreciate the advice. This is very consistent with what I had surmised. I am often almost symptom free but prone to relapses everyday few days or weekly. They are becoming less severe though and lasting less time.

        I think my last one that I posted about was triggered by eating dairy. I’ve been plant based for a while now and trying to stick to vegan since floxxing but the day before I had pizza with normal dairy milk cheese…. I had tingling all over my body the next day.

        Regarding gabapentin yes I’m desperately trying to come off it. I went cold Turkey from 900mg/day to zilch and stated getting withdrawal effects after 3 days. But I’m now down to 300mg/day. At the end of Feb I’m going to wean it off to zero over 2 weeks.

        • Henk Noordhuizen February 9, 2020 at 3:20 am

          Michael,did you have the same reaction on diary,before? How do you know for sure that it was the cheese on the pizza,and not one of the other ingredients? And was it real cheese? There is fake cheese in the market,as well;might it have been the fake one?

          Better avoid the oven-ready pizza’s (fresh or frozen);I loved those,from one company (Dr.Oetker),but at a certain point I started getting reactions to MSG,so I stopped eating them.Then,one day,out of curiousity,I looked on the ingredient list and saw that,just like many other companies,Dr.Oetker had also stopped using MSG,and I bought my favorite one and ate it that same evening.And got the same MSG reaction! They had removed MSG from the ingredient list,but NOT from the pizza’s!

          I am only allergic to the chemical/synthetic MSG;nót to the natural ones,used by many other companies,today.But Dr.Oetker was the first european company that managed to create a synthetic/chemical form,and used it in their own products,as well sold it to other companies.And while other companies changed to better tolerable forms,they descided to fool their customers and only removed it from the ingredient list.

          What I mean to say: it’s very hard to know what,exactly,is in your food unless you make it yourself,and choose your ingredients wisely.The only pizza’s I eat since than are 100% home made,from the dough to the choice of topping ingredients.Can only eat a small pizza,now,or half of a 30 cm one,thanks to what antibiotics did to my internal glucose regulation;I’m still extremely sensitive to all carbs,and when eating more than 1 1/2 slice of bread,I get a hyper(-glycemea),followed by a hypo.Just one of the many ways antibiotics changed my life for the worse.

        • Michael February 9, 2020 at 12:43 pm


          It was a dominos one so pre made but vegetarian. Normally I try to be 100% plant based but sometimes I make an exception.

          So who knows what it contained. But doing some research dairy (and gluten) are things that are best avoided by people with neuropathy as they are pro-inflammatory.


        • Henk Noordhuizen February 10, 2020 at 2:13 am

          That’s the problem,Michael;it’s often hard to impossible to know what’s in,or on your food.I eat much vegetables.Most of the time fresh,but I also buy frozen vegetable mixes for frying in a wok/wadjang.The fresh vegetables are washed very well,and from vegetables like cabage,I throw the outer leaves away.But how about those mixes?Do they wash them as well,before cutting them to pieces?I don’t know of any test on pesticides on these products.

  16. Don M February 7, 2020 at 5:15 am Reply

    Very long boring and technical but the bottom line is something that the medical profession appears to want to overlook. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1449587/ Have you heard of “persistents”? Bacterial persistence……….. Namely bacteria that can not be killed off. Every floxie should be aware of this even if your doctor will not admit it exists.
    Why do we have chronic reoccurrences of some bacterial infections? Seemingly spontaneous because we did nothing to cause it. The answer is because we may harbor “persistents”. These persistents have the ability to go into a state of hibernation to weather the antibiotics thrown at them and will regrow after the antibiotics are stopped.

    Just some information that the average person may not be aware of and the medical profession seems to ignore because “treatment” is good for business.

    • Henk Noordhuizen February 7, 2020 at 5:48 am Reply

      Thanks,Don;an interesting publication. I’m glad that things like Colloïdal Silver and electro-zapping (Beck protocol)are options with a totally different way of operation,that might work on those persistant bacteria.Both seem to work well for infections,like malaria that hide in human cells,as well.

      Oh,Mercola has removed my initial comment,with the link to the NN article on Corona virus being man made.Also removed the reaction on that comment by another reader,(Rinske:”Thanks very much Henkie! Exactly my first thoughts.”).My respect for Mercola made a free fall! Most remarkable of all;many comments,written after my initial one,seem to be “inspired” by the NaturalNews article,without mentioning a source……I don’t like hypocrism!

      • Don M February 7, 2020 at 6:14 am Reply

        Henk………. I think the things that you mentioned would at least help to mitigate the proliferation of the bacteria. Sadly. So many people are not aware of anything outside the prescription bottle. They seem to be relying solely on the medical profession. Another sadly. The medical profession has become a place were it is more about money than it is about “healthcare”.

    • Henk Noordhuizen February 9, 2020 at 3:43 am Reply

      Hi Don,I read the publication,and doctors should know this stuff because it is known for the better part of a century that some bacteria can change it’s form to a spore,in which form it is very persistant.e.g. Lactospore (Bacillus Coagulans).The spore form is nature’s way to protect organisms agains extreme conditions.

      The main problem in making a reliable and “safe” antibiotic is,finding a balance between where it kills the pathogens (and,of course,when used orally,the gut flora),and starting to damage,or kill (too much) human cells,because of the way evolution created our bodies;many cells in our body still have ancient bacterial structures,e.g. the mitochondria.When pathogenic bacteria change to their spore forms,antibiotics will not,or hardly work.Once,the antibiotics ahev gone,the spores change back to their active form.

    • Virginia February 10, 2020 at 6:45 pm Reply

      Yes, Don, I’ve heard of “persisters” in terms of bacteria. I’m infected with one of those persisters; Borrelia, aka Lyme Disease. Others are tuberculosis and leprosy, and I’m sure others too. These bacteria are about the “smartest” known: they disguise themselves and change shape, thus evading the immune system. They’re capable of withstanding multiple rounds of antibiotics, which is how I still have Lyme after 6 years of daily antibiotics (including Cipro).

  17. Henk Noordhuizen February 7, 2020 at 1:24 pm Reply
    • L February 7, 2020 at 3:15 pm Reply

      and every time you start voicing dissent about mandated vaccines, people always bring up polio….

      • Henk Noordhuizen February 8, 2020 at 3:01 am Reply

        Indeed,L. And smallpox.And measles.And HPV.Etcetera.All vaccines that “don’t live up to the expectations”.With whistleblowers,and lots of evidence that the Famafia used cherrypicking,fraud and every other illegal tactic,possible,to get their vaccines registrated.And let’s not forget the millions of people,injected with a polio vaccin,contaminated with the SV-40 virus,which causes cancer.And the new epidemia,in India,which is called “vaccin related Polio symptoms”:


        Money is the magic word!

  18. Andrea S. February 7, 2020 at 1:59 pm Reply

    Are any of you taking Ubiquinol? If so what kind of benefits have you seen? My side effects from Cipro, be it they are fortunately mild are constant ear ringing, eye floaters and I the tendon on the bottom of the right foot is painful. Thanks to you all I have been doing magnesium since day 1. Perhaps that helped me somewhat. Anyhow sorry to digress… any luck with Ubiquinol?

    • L February 7, 2020 at 3:30 pm Reply

      I am. It’s always difficult when someone asks if a supplement like this helping, because there may be no way to notice that. Ubiquinol is the preferred form of co Q10 for anyone over 40. Several integrative doctors suggested I stay on it (was already taking post cipro. I am on a number of supplements so it would be hard to say which is having the most impact on any one area. However I recently had blood work done, and one of the things tested for was Cellular Energy & Mitochondrial Metabolites. I thought I would be low, but I actually tested well, so certainly the ubiquinol could have played a part in that.

      Dr mercola and DR Oz, (among others) recommend it for everyone over 40, not just us floxed people, because of the many health benefits.

    • Don M February 8, 2020 at 6:02 am Reply

      Andrea S…… I agree with L. On some supplements you can’t see or judge the benefit. You just have to go by what the “experts?” say from their testing. Doing a little reading and it appears that it is rather important in sufficient quantities in the mitochondria and has to do with ATP. Both these are front and center items with floxies. It also is confirmed that as we age our own production decreases and we really do need to supplement with quality Co Q10 Ubiquinol because it it best form. For what it is worth read this. https://en.wikipedia.org/wiki/Coenzyme_Q10

  19. Michael February 7, 2020 at 7:28 pm Reply

    Honestly and correct me if I’m wrong I’m starting to think you don’t really get better from this…. unless you’ve had a pretty mild reaction and/or by that I mean you get better within weeks to a couple of months my impression is that if you’re experiencing symptoms much longer than that your in it for the long haul i.e life. Not to say that there may not be some improvement but it’s gonna follow you …. a bit like diabetes etc

    What do people think?

    • Don M February 8, 2020 at 6:23 am Reply

      Michael……… I will no doubt be criticized by some of the floxie community but I do agree with your assessment. You can and many do recover (get better) but in my opinion you never truly get over it once you have taken a Fluoriquinolone. By the very design of the Fluoroquinolones, they are made to infiltrated the mitochondria and DNA of bacteria and disrupt the reproduction. To think that Fluoroquinolones are so intelligent that they can be selective and only infiltrate bacteria is ludicrous. Once in the mitochondria and DNA of the host do they ever get completely eliminated? Yes, people do get better and some feel “totally recovered” but do they really get totally over their exposure to Fluoroquinolones?

      • L February 8, 2020 at 10:13 am Reply

        While I believe that there are definitely some flq injuries that may be permanent, like nerve damage, I don’t necessarily believe that one cannot completely recover if they don’t have that type of injury (or say vision damage). I have now been told by several different doctors that stem cells aren’t affected (which is why people can do therapies with their own stems and see improvement.) Our own stems are continually going to where they are needed in the body. “Day-to-day living means the body is constantly renewing its tissues. In some parts of the body, such as the gut and bone marrow, stem cells regularly divide to produce new body tissues for maintenance and repair.
        Stem cells are present inside different types of tissue.” The bottom line is, we just don’t know, so I would rather err on the side of hope. https://www.medicalnewstoday.com/articles/323343.php#sources

    • cipropoisoned February 10, 2020 at 4:32 pm Reply

      Unfortunately, I am going to have to agree with you. I am 8 years and 1 month and counting. I am not back to normal. I still have cycles, and I am not even sure when the full damage will stop. I have gone from believing I may go back to normal to hoping for a limited permanent injury. Now, as before, I believe that Flouroquinolone toxicity is an auto-immune illness that is triggered by some unknown process. Once the immune system is triggered, it keeps on going. Our malfunctioning immune response is no different than Lupus, RA, Reactive Arthritis, etc. This is exactly why no two sufferers/victims have the same symptoms.

      Honesty, I have given up hope of living the healthy, normal life I lived before FQTD. Right now it’s about living the best I can with the aches and pains of FQTD.

  20. Henk Noordhuizen February 8, 2020 at 3:17 am Reply

    Interesting new research,showing coffee lowers risk for Alzheimer,dementia and insulin resistance,and has quite a few other health profits as well:


  21. Henk Noordhuizen February 8, 2020 at 3:33 am Reply

    A bit of coffee knowledge,I learned over the years:

    Grinding your coffee beans,yourself not only reduces the risk of rancic coffee,but the taste is so much better than coffee that was grinded days,weeks,or even months before you use it! An old grandma “trick” for an even better taste: add a tiny bit of salt to the grinded coffee,before you prepare your daily cup(s). And always store your coffee (grinded and beans) in the refridgerator.

    A nice weekend to you,all!

    • Andrea S. February 8, 2020 at 8:13 am Reply

      Henk I love coffee. I read it can be bad for floxies but I still need my occasional cup a morning. I was told Coffee is one of the highest products containing pesticides. The Dunkin Dougnuts brand has the highest pesticide level. We buy organic coffee and try and freshly grind it ourselves. I also just got a reverse osmosis water system in the kitchen to pull most of the flouride etc. out of our drinking water. Thanks for sharing the link.

      • Henk Noordhuizen February 8, 2020 at 11:23 am Reply

        Hi Andrea,I had to again get used to coffee,after both AB courses I had.I do prefer espresso,and started with 1/2 espresso/day.then,after a while,to 1 espresso,then to a double espresso (my favorite daily dose ;-)),and after that worked,I had to add the sugar,little by little,untill I reached the desired dose.Sometimes I even drink this double espresso,two times;one after my noon (main) meal,and another one,halfway the afternoon.No problem.

        I know that coffee can have a high pesticide level,but it’s hard to find any info on the subject.Will do another search on the coffee/insecticide info as soon as I have enough time and motivation.

        Have a nice weekend!

        • Andrea February 10, 2020 at 8:29 am

          Thanks Henk, and Don, no I’ve never tried aloe vera, expecially that particular brand. Might give it a try. Thnaks. Anyway, right now for my gut issues I’m taking “some” glutamine, I’ve read some studies on how it should be beneficila for leaky gut. But the problem is that I’m megadosing with it, 40 gr a day. I’ve been taking it for about 8 days now, and I’m seeing some improvements, less bloated and less constipated. Stool look better too. What would you think? How long shopuld I keep taking such an high dosage?

      • Andrea February 10, 2020 at 3:20 am Reply

        I used to love coffee, well actually I still do, but I don’t drink it anymore. I used to buy organic beans, grind them myself and make some amazing pour over, espresso or moka coffee. I used to drink black, no sugar, no milk, no cream. Now it’s done for me. No more coffee in almost 2 years I guess…
        I remember some time ago, I’ve tried a small cup of decaffeinated espresso, and all my sympmtoms came back almost in full force, for about 24 hrs. Plus with all my urological/bladder issues, coffee isn’t exaclty the best thing to drink. But that doesn’t mean that every floxie is affacted by it (see Henk). Sometimes I think could try it again, but I don’t think it is worth the risk.

        • Henk Noordhuizen February 10, 2020 at 4:15 am

          I”m sorry to hear that you still can’t drink coffee,Andrea.I started to drink coffee,the dutch way,with milk and sugar when I was in my late teen time.When an italian guy,I met end 70’th,here,in NL,came back with some italian friends,with the intention to stay here and make a living,I started drinking espresso.A year later,after they took me to Italy for a holiday,there was no way back;since then I almost exclusively drink espresso’s,and hardly any “dutch” coffee anymore.

          Like I wrote,after both AB courses,in 2004 and 2016,I couldn’t tolerate coffee anymore,and had to “learn” drinking it again.First with really small amounts (a few little nips,maybe 1/3 or 1/4 of a normal espresso.No problem;you can keep the rest of that espresso in the fridge,and finissh it in the next days;it doesn’t loose it’s taste.When this “dose” doesn’t give any problems,you can drink a bit more,and more,building up slowly.This worked fo me,both times,and now I can drink a doppio espresso,every day.Sometimes I drink a second doppio espresso,later in the afternoon.The trick is to build up the amount slowly.

        • Don M February 10, 2020 at 6:40 am

          Andrea…. Have you looked into freeze dried Aloe Vera for your bladder problems? It may help. One does not know unless you try it. L mentioned it in a previous post. Just be sure that it is freeze dried. Liquid Aloe Vera contains things that are not beneficial.

          Desert Harvest https://www.desertharvest.com/Super-Strength-Aloe/ claims to be the best. It is not a “quick fix” thing. They say it takes time to see results.

  22. Andrea February 10, 2020 at 8:39 am Reply

    Thanks Henk, and Don, no I’ve never tried aloe vera, expecially that particular brand. Might give it a try. Thnaks. Anyway, right now for my gut issues I’m taking “some” glutamine, I’ve read some studies on how it should be beneficila for leaky gut. But the problem is that I’m megadosing with it, 40 gr a day. I’ve been taking it for about 8 days now, and I’m seeing some improvements, less bloated and less constipated. Stool look better too. What would you think? How long shopuld I keep taking such an high dosage?
    Don, I’m not going to buy that particular aloe vera brand, because it is from the US, so I’m 99% sure that it’s going to be stopped at custums, but I’ve found an Italian retailer that sells aloe vera (freeze dried), from global healing center. I might give it a try. Thanks anyway

    • Michael February 10, 2020 at 1:45 pm Reply

      I still drink a lot of coffee ….but not as much as before. Good point though. I tend to drink more coffee at work and that seems to be when my symptoms flare up more. Maybe I should drop it?

    • Michael February 10, 2020 at 3:38 pm Reply

      I used aloe Vera gel on my legs and I think it may have helped with my neuropathy symptoms when they were really bad at the beginning ..

  23. L February 10, 2020 at 3:29 pm Reply

    I wanted to mention I found something natural that works for me for sleep. I really thought it would just be more money thrown away, but I found after the second night it actually really is working. I was surprised because some of the individual ingredients I had tried before did nothing (ie valerian and passionflower) Perhaps it is the CA poppy? Anyhow, a bit pricey. You take one an hour before bed and one at bed. If you want to give it a try it is called DEEP SLEEP. I paid over $30 at my local health store, but just found on vitacost for less. https://www.vitacost.com/herbs-etc-deep-health-60-fast-actimg-softgels-1?csrc=GPF-765704502068&CSRC=GPF-PA-Google_PLA_PRO_Herbs+%26+Botanicals-&network=g&keywordname=&device=c&adid=92700046737980432&matchtype=&gclick=Cj0KCQiAm4TyBRDgARIsAOU75soK9mxxZkClx1iofAzxOhec_nEAkDiLHe11Az-YVO9qPUrWdKCpb_YaAoizEALw_wcB&ds_agid=58700005284937408&targetid=&gclid=Cj0KCQiAm4TyBRDgARIsAOU75soK9mxxZkClx1iofAzxOhec_nEAkDiLHe11Az-YVO9qPUrWdKCpb_YaAoizEALw_wcB&gclsrc=aw.ds

  24. Henk Noordhuizen February 11, 2020 at 1:31 pm Reply
  25. Henk Noordhuizen February 12, 2020 at 3:52 am Reply

    Is this evil? No;it is far beyond that!


    Have you taken your mandatory pills,today? No? Than,from now on,your bank account will be blocked!

    Can we get rid of this evil system? Yes;by burning it to the ground and build a new system,for,and by the people.This would need a revolution like the world has never seen before.And we would have to ommit every mistake,made in the past,while building that new system.Like;giving too much power to politicians,companies and whatever other institute.

    For now:use your political vote wisely. I hope that politicians like Bernie Sanders can make a change for the USA.

    • L February 12, 2020 at 10:51 am Reply

      I had to laugh when I saw the “posting fake news” as one of the things that could effect you. China does it all the time! I have now read several places that the corona virus was actually started from a biological warfare lab, not from some animal-human contraction. And this is another reason 5g is so abominable, in addition to the health threats….the 24/7 surveiilance (and as I was reading the article I thought “oh Henk’s gonna love this one! 🙂 )

      • Henk Noordhuizen February 15, 2020 at 12:31 pm Reply

        I’m starting to be predictable,I guess ;-))

        (and as I was reading the article I thought “oh Henk’s gonna love this one! 🙂 )

        Well,love is not the right word.I do love the critical Mercola article,but I am disgusted by what it tells.China might be a step ahead in total control of it’s population,but don’t forget that the USA and the EU are not that far behind.

        • L February 15, 2020 at 1:22 pm

          btw, I order a gluten free, organic licorice from vita cost. considering it’s GF it is not too bad…esp compared to others I have tried…and just noticed it is from the Netherlands

        • Henk Noordhuizen February 15, 2020 at 1:38 pm

          ” I order a gluten free, organic licorice from vita cost. considering it’s GF it is not too bad…esp compared to others I have tried…and just noticed it is from the Netherlands”

          Don’t blame me,when it proves to be rubbish;I’m innocent! :-))

          Btw: my favorite licorices are from Italy (Amaretto di Sarono,Frangelico,Vecchio Amaro del Capo),and spanish (Liquor 43),and do have some (35-45%) of alcohol in it ;-))

        • L February 15, 2020 at 6:07 pm

          no, it’s the best organic GF I have found to date

        • Henk Noordhuizen February 16, 2020 at 4:17 am

          Great,L.;I hope it works miracles for you :-))

        • L February 16, 2020 at 11:09 am

          well it doesn’t really do anything for me…except satisfy a licorice craving I have had all my life.

        • Henk Noordhuizen February 16, 2020 at 11:16 am

          I know.It’s adictive.I’ve known people who ate a meal of liquorice,every day ;-)) But be carefull,it may rise your blood pressure to a dangerous level.

        • Henk Noordhuizen February 16, 2020 at 4:44 am

          Saw this line in the header of Vitacost,on the search page:

          “Used to flavor foods, beverages and tobacco today, licorice root has a long history of use for health support”

          Does Licorice really make tobacco healthy?

          Warning about Licorice:it makes your blood pressure go sky high! Where do you use it for?

        • L February 16, 2020 at 11:16 am

          I am guessing NOTHING makes tobacco safe. I just eat a few little licorice pieces each day. My blood pressure is super low. And I don’t even have a whole “serving.” I just love licorice. The only sweets I crave are that, dark chocolate and marzipan. Never been a big ice cream or cake eater.

        • Henk Noordhuizen February 16, 2020 at 11:26 am

          Well,I eat a piece of dark chocolate every day,right after my noon (warm)meal.and my doppio espresso,and I’m really fond of marzipan.Used to make it,myself,1 kilo at a time :-))

    • Andrea S. February 14, 2020 at 2:01 pm Reply

      Interesting. I can tell you I have a facebook account but there is nothing of any substance posted there. I don’t post my birthday, my family it’s mainly used as a tool to keep contact with family and friends. My husband an Engineer refuses to use social media. They have been collecting our information for years. I can’t understand half my friends on FB sharing so much personal information for free to FB and all who collect it. I have said this before, facebook and the other social network platforms should be paying us for using them. I say $50 a month for gathering our info and that is on the low end. Beware… Big bro is watching and I don’t say this in a paranoid way it’s just the way it is.

      My PC has tape over the camera. I don’t take my phone in my bedroom or the toilet. I turn it off at night. Also those who have Alexa… Alexa is taking notes. There was a recent story on how the Mic on Alexa was listening in to your conversations. No thanks!!

      Then we can talk about our keystrokes and searches on Google.. the #1 search engine known for collecting our data. Nothing is safe.

      Henk if you have Netflix check out the series Black Mirror series 3, episode 1 – Nosedive. Creepy for sure.

      • L February 14, 2020 at 2:12 pm Reply

        I too have something over the camera on my laptop. I do use FB but mostly because I need to spread the word about events. I put my phone on mute at night and when I am driving. And I don’t use google. I use duckduck go

      • Henk Noordhuizen February 15, 2020 at 1:16 pm Reply

        Andrea,the only “social network” prog on my PC is Skype,and it’s only active when I need it (a few times a year).Progs like FB don’t need you to write very personal info;they “destile” it from the things you write,and the answers you get from your contacts anyway.The best way to protect your privacy is,probably,to write them the old-fashoned way,on paper.

        My PC doesn’t have the cam taped;it has NO cam.And my mobile phone,which I only switch on when needed (I do have a wired telephone),is never taken to my bedroom,which I exclusively use for sleeping,and reading (I have about 1000 books,there;the rest of my books is in my living room).I do have a wired telephone,there,as well,in case of an emergency call.My friends and family know that I don’t like to be called before noon,so;I seldom get disturbing calls,there.

        I seldom use Google;my favorite search engines are Ecosia (who donates trees from the money they earn with my searches),and DuckDuck.Ecosia is my standard search engine.

        I have no Netfix,and hadn’t heard of that series.Did a quick search;the maker claims the name is based on the black screen of a telephone,when it is switched of and you only see your own face in the screen.As a matter of fact,the name was already well,known,long before the making of the series;it is a very successfull horror adventure game (The Black Mirror),developed in 2003.Brooker (the maker) does admit he was inspired by Twilight Zone,a series with several revivals.By shear “coinicidence” ;-)) the second revival,and the one that many still remember,started in….2003. Originality is dead.

        Want to see a critical view on modernism,with a smile? Then,try to find Mon Oncle,a movie made by Jacques Tati in 1958.The full movie is hard to find,but here’s one of the many Jacques Tati “trailers” ,just for the taste:

        Life is sad enough,especially for Floxies and other ill people.A good laugh is such a good medicine,mentally and physically,and modern TV is doing a bad job,here.Hurray for Tati,Buster Keaton and other comedians that make life more bearable :-))

  26. Henk Noordhuizen February 13, 2020 at 3:24 am Reply

    Another interesting Mercola article,about flavonols,and what thy can do for your overall health (not just lower your dementia risk):


  27. Henk Noordhuizen February 13, 2020 at 3:26 am Reply

    And here an extensive list of kaempferol-rich foods.Kaempferol is the most interesting of all flavonols:


  28. Henk Noordhuizen February 13, 2020 at 3:30 am Reply

    More info on Kaempferol,which seems to be a must for Floxies (and I love most fruits and vegetables that are rich in it :-)):


  29. Dee February 14, 2020 at 11:33 am Reply

    L. I think you mentioned before that you had/have intercystic cystitis???? When did you start getting it after floxing and is it any better? Have you found anything that has helped it and does it come and go for you??? I wasn’t sure if maybe I was experiencing that or the beginning of a UTI??? I have it very mildly and especially notice it upon waking. Feeling like I have to go to bathroom right after I have gone. I feel some pressure and urge to pee during the day but not terribly. I also don’t really have any burning so that was why I was thinking maybe I was experiencing mild IC vs a UTI?? I mainly feel a pressure down there? Any thoughts on this??

    • L February 14, 2020 at 11:56 am Reply

      I think it was within a few months, but I had SO much going on head to toe and such extreme pain, I can’t really recall. Early on I was more focused on the in-the-bone pain, the vision and the breathing stuff. At any rate, for me it was more pressure and pain. It started out dull and then got excruciating…at one point it felt like I had crushed glass inside me. Just hideous.

      What helped initially was acupuncture and this Chinese Herbal mixture that my acupuncturist mixed together for me. That was more temporary. What helped later was aloe vera capsules. This mentions several therapies. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1476005/

  30. Dee February 14, 2020 at 12:27 pm Reply

    L. Thanks for the info! So is it mostly gone now?? I am still wondering if I have histamine intolerance? Wondering if that triggers IC?? Do you still take the aloe Vera caps? What brand did you buy and where did you get them? I may be fighting off a UTI too but only feel the pressure and the urge so not sure what I am dealing with?? Just feel like I have to pee all the time!!! Argh!!! Hope this gets better soon!!!

    • L February 14, 2020 at 12:33 pm Reply

      yeah, it’s been gone quite a while. I think I may have had a couple very minor recurrences, but nothing like the initial pain. I think the brand I used was Pharm Aloe. RE histamine, I believe I mentioned that Alison Vickery recommends using zeolite, but you need to go to her site to get the right kind (It needs a certain ratio of zeolite to something else.) I finally got mine and it didn’t help my issue, but I think that only means that mine is not related to histamine.

    • Andrea S. February 14, 2020 at 1:44 pm Reply

      Dee I am dealing with the same thing. Urine urgency, I have cloudy urine with a strong odor and some burning however after a urine culture no bacteria was found. I read that IC can cause all these if the bacteria is not present. D Mannose really helps me but I am interested in hearing about the Aloe from L. My Cipro mistake was IC and not a UTI after all. L – is the Aloe safe? I’ve read some conflicting things as I have been trying to search it up. I have read that it helps MANY with this condition.

      • Andrea S. February 14, 2020 at 1:46 pm Reply

        That meant to read: My Cipro mistake may have een IC and possibly not a UTI after all. However I have not been diagnosed with IC. This is all new to me over the past 3 months in terms of chronic UTI like symptoms.

      • L February 14, 2020 at 1:57 pm Reply

        lots of information out there. do a little research https://healthfully.com/aloe-vera-for-urinary-tract-infections-6317653.html

        • Andrea S. February 14, 2020 at 2:04 pm

          Thanks L. It looks very promising. I am glad to hear your IC has calmed down. You had really been through the wringer with so many issues. 😦 I have the Aloe in my shopping cart right now. I think I am going to get it.

        • L February 14, 2020 at 2:13 pm

          Good idea. (Of course it also depends on the brand, from a good reputable company.) But it most definitely helped me!

      • JP February 15, 2020 at 3:12 am Reply

        Aloe is one the worst things for me if there is some in shampoo etc. Brings back the neuropathy. It contains anthraquinones. It’s not a problem for everyone though.

  31. Dee February 14, 2020 at 3:34 pm Reply

    L. Thanks for the aloe Vera info. Do you think the Zeolite takes awhile to work for a histamine issue??? I know you haven’t been on it too long? Just curious if you need to be on it for awhile to work?

    • L February 14, 2020 at 4:51 pm Reply

      not sure how it works for everyone, but I know Alison had posted that she sees a difference in a half hour. I really encourage you to look at her site. She’s the expert

  32. Dee February 14, 2020 at 5:47 pm Reply

    L. I have looked at Allison’s site. It is pretty detailed with lots of good info. Right now I’m waiting on some blood work results that my Doc ordered to see if I have histamine issues? Not sure what the tests are but I guess I will get some feedback on my histamine?? If I have an issue then I will get more serious about treating it.

    • Henk Noordhuizen February 15, 2020 at 12:21 pm Reply

      What’s so interesting on at Allison’s site,and where can I find it (link)?

      • L February 15, 2020 at 1:13 pm Reply

        Alison deals mostly with mast cell and histamine issues. https://alisonvickery.com.au/

        • Henk Noordhuizen February 15, 2020 at 1:31 pm

          I know that website;was there,some years ago.Probably,Mercola (another EFT enthousiast) brought me there :-))

  33. Michael Tombros February 15, 2020 at 2:02 am Reply

    topical lignocaine.. has anybody had any experience of it? My pain specialist prescribed me some to rub onto my sore feet… I have been using it and I think it does help

    the other thing I came across is some research showing that gabapentin may help sprout axons..

    “Gabapentinoid treatment promotes corticospinal plasticity and regeneration following murine spinal cord injury”


    this research of course is not in humans but in mice, and relates to spinal cord injury, but in principle I cannot see any difference with us who have had nerve damage (axonopathy) or damage to the dorsal root ganglion (ganglionopathy) which manifests with non-length dependent sensory changes.. (e.g. face affected before legs etc)

    it’s very up to date though… any thoughts?

    • L March 28, 2020 at 10:33 am Reply

      I tried gabapentin for another issues and it actually exacerbated it.

  34. Barbara Arnold February 15, 2020 at 2:39 am Reply

    Henk, have you heard of Nrf2science ?? Apparently it helps with oxidive stress. Maybe you could google it and give your opinion ? I don’t know how to post the link.

    • Henk Noordhuizen February 15, 2020 at 12:11 pm Reply

      Barbara,I did some (re-)search on Nrf2,and it is a signaling protein,involved in body’s own anti-oxidant production.Since the discovery of Nrf2 many companies claim to sell an Nrf2-activating product.I went to the nrf2science.com website,and this is one of those companies.Their product? Well,you first have to “donate” them your email-address (which I refuse to do),and than they probably try to sell you their “miracle” product.

      Their “studies” webpage has a list of studies about Nrf2,but no links (just,to make reading those studies more difficult?),On another website,www.nrf2.com,a same page (Clinical Trials & Research) has a list of not working links,so,same thing happening,here.

      Most important indication that it might be better to stay away from these websites:you can’t find a single word about their products,and the fact that they first want to get your email address before you get any info on what they want you to buy is a big NO-NO for me.

      Conclusion:lots of research on the Nrf2,your body produces if needed,but nowhere the slightest bit of what these so-called Nrf2 activaters (are supposed to) do,what the positive,or negative effects will be in case these products really work,and what you’re gonna pay to be their guinea pig.

      • Barbara Arnold February 15, 2020 at 10:29 pm Reply

        Thanks Henk, It was from someone on “The wall of pain” for floxies on facebook. A poster said it really helped her and she did give links etc. She sent me a friend request, but I don’t accept any requests on facebook. It turns out she’s selling it, so I took a look and it ‘sounded’ good. But I have no idea if it is. I’m not spending any more money chasing these things anymore, as I’ve wasted enough as it is. I just wondered if you had heard of it and what you thought.
        I have recently started the 5.2 diet as I had put on so much weight after a fall. You fast up to 500 calories for 2 days the other five days you eat a normal healthy diet. I have to say fasting has really helped me in terms of pain and energy, and I am losing weight. It’s early days yet, but I will post later as I progress. The 2 fasting days should not be consecutive. It also seems to be helping with gut issues, so may help others with gut problems. Thanks for your imput.

        • Henk Noordhuizen February 16, 2020 at 8:49 am

          Barbara,it striked me that more and more people mix as a “victim among victims” to promote a product,they sell. Some of them got caught in a piramid system and are looking for others to improve their own position,from owning money to the company,to turning their loss into a gain.The fact that you have to make yourself part of the system,by providing your emil-address,and probably some more info,before even getting the slightest bit of information about their “miracle” product is a clear give-away of the fact that the whole thing smells very fishy.

  35. Henk Noordhuizen February 15, 2020 at 3:42 am Reply

    The history of Fluoride,and how this rat poison/extremely toxic industry waste was falsely promoted as safe and healthy,and added to our drinking water,toothpaste and “MEDICINES”;an excellent article by Gary Null,PhD:


  36. Henk Noordhuizen February 15, 2020 at 3:49 am Reply

    And a load of scientific articles on Flouride toxicity:


    On the left of this very informative webpage a list of substances that are researched,and might be helpfull for Floxies (like Tamarind :-))

  37. Larry February 15, 2020 at 11:49 pm Reply

    Hello fellow floxies. I haven’t posted in a while but I’ve been dealing with head to to nerve damage since April of 2019. I found myself constantly dwelling on my symptoms and it’s been a nightmare as you all know.

    I was introduced to the app TikTok at the end of the year by my much younger cousin. Well, TikTok has been a blessing to me. It has certainly been a mood lifter and it gives me something to focus on other than my body all day long. If I start panicking I turn on TikTok and the world seems to melt away. Also, I focus on making videos a lot now so that keeps my mind nice an distracted.

    I’m not trying to promote anything but that app has helped me in ways I cannot explain.

    Hope everyone is as well as they can be.

    • Michael Tombros February 16, 2020 at 2:16 am Reply

      Hi Larry, I’m in a similar situaton. Floxed in June 2019. My only remaining symptom is neuropathy. Otherwise I am close to where I was before say 90%. Today I ran 5ks in 30 mins which is what I was doing pre-flox. Neuropathy wise I get symptoms in my legs up to my knees and even into my thighs sometimes. Occasionally I get tingling in my upper arms and the back of the head but it is mild and not upsetting. I take a small dose of gabapentin 300mg, as well as lots of supplements (magnesium, ALA, B12 etc).

      How about you?

      • Larry February 16, 2020 at 9:54 am Reply

        Hey Michael. I have it pretty bad in my legs and arms and stuff even in my mouth and lips. It feels like my skin is a raw wound or something. I don’t take anything but supplements like coq10 and fish oil. I guess it’s getting better slowly?

        • Michael February 16, 2020 at 1:50 pm

          I think so also. But it’s so gradual it’s hard to tell. And I have good days when I am almost completely normal and bad days where it flares up and I feel like I’m never going to get better ….

          How much fluoroquinolone did you take ? I had about 4 weeks of Ciprofloxacin 500mg twice daily.

          My symptoms reached a peak in September last year and gradually abated since then. I am at the 7-8 month mark now. I had a good weekend but this morning my legs are sore with that low grade neuropathic type pain…. not what it was but not normal either. In any case will need to wait until at least the end of this year before I can talk about whether the damage is permanent or not.

    • Henk Noordhuizen February 16, 2020 at 4:33 am Reply

      Well,I took a few minutes to watch some of the most trendy vids on TikTok.These were the most wasted minutes of my life! Now my last hope for humanity has vanished;how could it come this far down? Do IQ’s below zero really excist?

      • Don M February 16, 2020 at 8:14 am Reply

        Henk…….. Ha,ha,ha,ha. I assume you are not a fan of TikTok.

        • Henk Noordhuizen February 16, 2020 at 8:38 am

          Indeed,Don,you’re sóóó right on that! In fact,I think that these kind of “look,how stupid I am” movies make certain other people think that their superiourity allows them to play their nasty games with all of us.

          For fans of TikTok (the name,allone….),search YouTube for the numerous “fail” video’s.See,how idiotic guys push their(mostly) girlfriends to do stupid,sometimes outright dangerous things for the purpous of filming the event and place it on YT to gain hits.Sóóó uplifting :-((

    • Henk Noordhuizen February 16, 2020 at 8:58 am Reply

      Reading this might change your taste of amusement:


    • Henk Noordhuizen February 16, 2020 at 9:02 am Reply

      And the excelent book “The Deliberate Dumbing Down of America” by whistleblower Charlotte Iserbyt might be an eye opener,for many people,caught in the most evil manipulation system this world has ever seen.


    • Larry February 16, 2020 at 12:55 pm Reply

      In reference to someone’s opinion on my TikTok post. The platform is not for everyone. However There are billions of videos that feature tons of DIFFERENT content much like YouTube. You literally have no idea what content I am watching and what type of content I am posting and you literally made a quick judgement based off of a few videos. Last thing I heard its biggest user base was in India and not the US. Those stats may be outdated but that’s what they were.

      I don’t know why people feel the need to cut down others and feel the need to voice their opinion when their opinion just doesn’t really matter sometimes. If you don’t like TikTok feel free to write a review on the App Store I’m not sure why a review of TikTok, that was based on a few minutes of the apps use, was needed to be written on floxiehope.

      Finally, I am living in a floxie hell right now. My entire body hurts and burns and it doesn’t stop. My life has been destroyed and hopefully I will be normal again someday. So once again. TikTok has been a wonderful platform for me to get my mind off of my situation. I can watch videos suited to my taste and I can post videos that others enjoy as well. I posted the suggestion because it has lifted my mood so much. I am sorry for ruining your day but if someone else on here enjoys the platform I did a good deed.

      I have nothing else to say on the subject.

      • L February 16, 2020 at 1:00 pm Reply

        Funny you should post this. I just saw a post on facebook that was pretty adorable. It looked like some fluffy dish in a pie pan. Then you see a paw come out. It was a cat. I noticed it said tik tok in the corner. Not sure if this will work here, but.. https://giphy.com/gifs/MApLxXYGTNYYBq5CYM?fbclid=IwAR2AG0WBmPOB9FZtx1tJfo5HuUkrAdDCI7BgKbzOFWri5r7Dc3q0BzwOUrQ

      • Henk Noordhuizen February 16, 2020 at 1:36 pm Reply

        Sorry,Larry;I didn’t mean to upset you,but that was my personal opinion.It’s great,that it distracts you of your misery,but the negative side is,that it distracts people from more important things,as well.Read the book,I mentioned (The dumbing down of America),and you will understand.Read “Amused to death”,by Neil Postman (Roger Waters based his album with the same name on this book),and you’ll understand.

        The Romans called it “Bread and Games);those were ment to distract people from their extreme poverty while the emperors and their family and friends lived a life in extreme luxury.

        That’s the reason why I’m so against this silly kind of amusement.On dutch television it’s even hard to find a serieus program of a descent level,today,especially during the weekends;it’s garbage,all the time.

        Once again;I;m sorry to have upset you but in my vision theré is way too much of this kind of low level amusement,knowing the political reason for it:dumbing down the people.

      • Nicole February 16, 2020 at 10:34 pm Reply

        Hey Larry. I certainly sympathize and hear you. I have been in pain, burning like crazy and many other stupid symptoms from this evil for four years now. I learned from the beginning anything that makes you laugh, or gets your mind off for even just a few moments is worth sharing. I watch the same old sitcoms over and over from years ago as they just relax me and don’t make me nervous. I can’t watch normal shows that I watched before being floxed. I can get into easy reading mysteries that aren’t too deep but have a bit of fun in them. I used to read the morbid heavy ones before FQ’s. I had a friend that had his story on here named Daniel that posted wonderful music videos. Any escape that takes your mind off the pain is so worth it. I will check it out as love things that are funny and cute.
        I know everyone wants to give a opinion but over the years this site is becoming too much know it alls and bitching. You may not aim to be that way but we are all hurt and our feelings are on our sleeves. Let’s just be positive and caring from now on and catch ourselves before we criticize because in lite of where we all are, it doesn’t matter. 💞

        • L February 16, 2020 at 10:45 pm

          When I was first floxed I couldn’t watch anything or listen to music. My entire body and mind was so damaged that any sensory stuff actually hurt. About 9 or 10 months in, I was able to watch sitcoms. That was it. I would watch Friends and the Office and Seinfeld over and over again. I didn’t laugh much, but it was somehow a bit comforting, just being so familiar. I was still pretty much crying everyday, so I sure didn’t need anything on TV that would add to that. Always been a big animal lover too, and it was nice to just watch videos of dogs or rabbits or any furry little creatures.

      • Barbara Arnold February 17, 2020 at 3:26 am Reply

        Hey Larry, sorry your having such a hard time. I’d say WHATEVER WORKS FOR YOU is a good thing, so my advice is keep doing what helps you. It doesn’t matter what anyone else thinks. I’d also say it may, just may help someone else, so thanks for the post. I had very bad burning tingling in my legs, which has mostly gone now, so hopefully this will be the same for you. Time is a main component. Icing helped in the early days, and for me ozone autohemotherapy. I did and still do get flares but they are no where near as bad as they were. So I hope this gives you some encouragement. Also laughter is the best therapy in the world. xxx

  38. Andrea February 16, 2020 at 4:36 am Reply

    Hi guys. I wanted to share with you my latest experience with diet and supplements.
    2 weeks ago I started megadosing with pure L Glutamine (0.5 g per kg of bodyweight) because I’ve read some protocols backed up by some studies, where it is shown G. can help with leaky gut. After the first couple couple of doses of such an high dose, I’ve immediately noticed some improvements, and during the two weeks of treatment the benefits were steady. Bloating is still there, but way less, more regular bowel movements, ability to better digest foods that prior I wasn’t able to digest and better stool “appearance”, sorry about the details…So anyway, my symtoms are defenetly still there, but they improved a bit., with apparently, no side effetcs.
    Another thing I wanted to talk about was dairy : since November, I went completely dairy free. And all my joint issues ALMOST disappeared. I was even able to run again without too many problems the day after. But, like 3 or 4 days ago I started to reintroduce dairy in my diet, and all the aches came back quite fast. So now, I’m thinking to eliminate dairy again and gluten too, to see if my symptoms will improve even better.
    Oh, and as far as the Glutamine protocol, today is the second week mark, starting from tomorrow, I’m going to slowly reduce the dosage until I reach the 5-10 gr a day dose, and then stop completely, and see what happens.
    Hope this will help you guys.

    • Henk Noordhuizen February 16, 2020 at 8:40 am Reply

      Thanks,Andrea;after reading through some science on Glutamine supplementation I plant to give it a try in the near future.As far as I understand,the Glutamine Peptide form is the best choice.

      • Andrea February 16, 2020 at 10:36 am Reply

        It should be pure L glutamine

        • Henk Noordhuizen February 16, 2020 at 11:20 am

          There’s still a debate going on about Glutamine vs. L-Glutamine,but recently the peptide form has,more or less,ended that discussion.Most sources prefer the peptide form,being the best absorbable,

        • Andrea February 16, 2020 at 4:28 pm

          I’ve read extensevly before even try this protocol. Every article I’ve found was stressing about using pure L glutamine and avoiding the other forms…

        • Henk Noordhuizen February 19, 2020 at 3:01 am

          Most of the webpages I found of the subject were body builder forums ;-))

          Well,there is a lot of confusion on free Glutamine,and other forms.After an extensive search (even read some discussions on the BB blogs :-)) it all comes down to this: free Glutamine is better absorbed,but very unstable. Forms like ( much more expensive!) N-acetyl-l-glutamine are more stable,are not as well absorbed,but can be taken on an empty stomach (free G. can give stomach and gut discomfort).

          Somewhere else I read that binding Glutamate to other peptides does improve absorption,So;in fact it;s useless to discuss about which form is the best;too much confusion,even among the “experts”,hardly any reliable research,and mixed conclusions.

          My choice is a simple one;because I’m over-sensitive to (synthetic) glutamate,and prefer food sources,anyway,I stick to my brocolli,kapers,meat and fish,etc.

        • Henk Noordhuizen February 19, 2020 at 3:02 am
        • A.Coleman February 18, 2020 at 3:04 pm

          Andrea, I agree with your use of the L glutamine form based on my own investigation. I took glutamine for my digestive problems for a while and it seemed to help. I wasn’t taking nearly as much as you. I was only taking 4 to 5 grams a day at the most. Mostly it seemed, like you, that stool was more normal; though my ability to digest certain foods – carrots and nuts is still a work in progress.

          I quit because I thought the glutamine was tied to the bad headaches I started having at the time; but now I am not so sure. Most of my digestive problems seem to be in the past; probably 90% normal digestion now and still slowly improving; so maybe no need.

          Good luck on your progress and keep us posted!

  39. Don M February 16, 2020 at 9:15 am Reply

    A word of advice. If you are considering trying Freeze Dried Aloe Vera for Interstitial Cystitis (which mimics a prostate infection for men but is non bacterial so antibiotics are not warranted) you should first go to this website and read about Interstitial Cystitis dosage. If you may be thinking that just a few capsules a day will do the trick. Think again! See their dosage recommendations. https://www.desertharvest.com/aloe-vera-recommended-dosage.html You will see what it takes if trying to use Freeze Dried Aloe Vera for Interstitial Cystitis. This recommendation will hold true for any other brand that you may choose. Not following these recommendations will only leave you disappointed because you think it is not working for you. Just be aware of this if you choose to try it.

    • Andrea February 16, 2020 at 10:39 am Reply

      Thanks Don. Yeah, I’ve noticed how high the dosage for I.C. should be. The problem is that I could not find an European retailer for desert harvest, and buying it from their website would almost certenly means that it’s going to be stopped at customus for who knows how long and I will also have to pay the fee…

      • Don M February 16, 2020 at 5:44 pm Reply

        Andrea…….. Why I posted. I posted this particular web site only as a reference so that people would read about the use of Freeze Dried Aloe Vera. I realize that people world wide read postings on this web site and their sources are world wide. I just referenced this web site so that people would know the truth about how much Freeze Dried Aloe Vera is needed. Many web sellers low ball the requirement so people believing their information do not get enough of the Aloe to do them any good.

    • Henk Noordhuizen February 17, 2020 at 11:24 am Reply

      I just bought about a kilo of ginger.Part of it,to make ginger syrop (coming in from the cold,nothing works better than a mug of ginger syrop and cooking hot water.Drink it hot;it works like a hote stove warming you from the inside.The recipy for the syrop is the same as for other (fruit) syrops;grind the ginger,cook it for 20-30 minutes,filter,and add enough sugar or honey,needed for conservatiion.Store in the fridge.

      The other part is for making the Golden Milk,much loved in India because of it’s health promotion.Cook a few slices of both ginger and Curcuma in milk,filter,add a bit of honey,et voilá;your super healthy Golden Milk drink is ready.

    • Andrea February 17, 2020 at 12:15 pm Reply

      Hi L.
      The problem with things like ginger or garlic, just to name another one, for people with autoimmune disease, and I’m more and more convinced that FQ toxicity has so much in common with AI disorder, it’s that it can make things even worse, because it stimulates an already hyperstimulated immune system. Me personally, I’ve never noticed anything bad from ginger or garlic, but what do you think about that?
      What I’ve written is correct : many people with AID should avoid healthy stuff like ginger, but what about us floxies?

      • Henk Noordhuizen February 17, 2020 at 12:32 pm Reply

        I’m a floxie since sept. 2016,and eat ginger and garlic,and quite a few other immune-stimulating foods on a reular base.I stlll have floxie symptoms but those don’t seem to be negatively influenced by any of those health substances.Maybe others do;every Floxie is different,has different left-over symptoms and might react in a different way.

      • L February 17, 2020 at 1:19 pm Reply

        I don’t know. I am not an expert. I just posted that because I thought it would be of interest to some. As badly as I was damaged, I have had no issues with most supplements, including ginger. I have used oil of oregano to treat colds, flu, sinus infection. I rely on these kind of supplements. As we have seen here, what works for one person doesn’t necessarily work for another.

    • Don M February 18, 2020 at 3:11 am Reply

      I would like to read the article but every time I click on the link the page is covered with a solicitation for membership at a minimum of $8 a month. I can not view the content of the page unless I click on the “join” and come across with a membership and $$$$.

      • Henk Noordhuizen February 18, 2020 at 4:26 am Reply

        Don,you can close that donation message at the right side of the screen (black dot with white “X”).Then scroll down to read the article;it’s below the book commercial.I think,both obsticals have to be removed this way, on every page of this great website.You’ll get the hang of it ;-))

        • Don M February 18, 2020 at 5:59 pm

          Thanks Henk…….. I reduced the font etc. on the screen and the black circle with the X did appear. I clicked on it and eliminated the screen block that was there. Very interesting article. I have been taking Ginger and Curcumin with Biperine capsules because I read that they work synergisticly in helping with pain. Recently I read that adding Quercetin improved the mix so I have added it too. I am one who, as the saying might go, do all the supplements a la carte. I suppose I end up paying more but I refuse to pay $67 a bottle for 30 fancy combo-pills.

          Thanks again, because the article supported what I have been doing. I seem to be getting most of my good information from reading blogs and other web sites. I sure as hell never got any good advice from MD doctors. They all had their prescription pad and wanted to use it.

        • Henk Noordhuizen February 19, 2020 at 2:23 am

          Don’t mention it,Don;I’m glad you found your way in :-)) I sent a mail to Greenmedinfo,yesterday,because of theit annoying commercial behaviour.Had registrered 4 days earlier,and choose for a WEEKLY,instead of a DAILY news update.Thahat day,and the next 3 days (4 days in a row!) I got a mail in my box;the first 2 were “introduction” mails,the 3rd and 4th were mails to push me to a payed membership.They’ve excused,and changed my profile,whatever that means;I had susbcribed for a weekly update,didn’t I?

          Well;they have good articles,and the e-book you get after a (free) subscription is usefull,as well; a list of fluoroquinolone articles,to name one subject.

          Found this on Bioperine:


          I heard,years ago,that the source of Bioperine,Black Pepper,indeed improves absorbation of not only Curcumin,but lots of other substanves,like vitamines and minerals,from food as well.I made it a daily ingredient in my meals,since then;not just for better absorption but also because it adds to the taste.Ther is quite a difference in quality among the pepper you buy in supermarkets and the more specialized herb- and spice shops on the web,and,because herbs and spices are very expensive,since a while,anyway,it’s wise to pay attention to the quality you buy.So;as usual,I go for the natural source,instead of the pills and capsules ;-))

        • L February 19, 2020 at 11:10 am

          Everyone has to make a living, and someone has to take the time to research and post these articles. Greedmedinfo is actually one of the few sites that does NOT do that. All you have to do is click on that little X on the right upper corner of the box to remove the “offer.”

      • L February 18, 2020 at 10:38 am Reply

        That’s weird because Green Med Info is ad free. There is a box regarding a book you can purchase, but an X at the top to get ride of it. I have no problem getting in to the site.

        • Henk Noordhuizen February 19, 2020 at 2:31 am

          Gerrnmedinfo does have add’s,but not from external companies.Just their own ones.And after I subscribed for a weekly (free) news update,the next four days they sent me a mail (the last 2 being mails to push me for a payed membership).Had to send them a complaint,to stop this annoying behaviour.Well,they excused,and wrote that these were the “normal” introduction mails.And that they changed my profile.???? I subscribed for a weekly update,so,the problem was NOT my profile.Fingers crossed;today,untill now,no new “introduction” mail.

        • L February 19, 2020 at 11:15 am

          I have been getting emails from green med info for over a year. I have not had any issues. I have not been asked to be a member (other that the little “offer” you see on the site. I have no idea what you are referring to. And all sites now require “unsubscribe options” in the US. Again, you need to appreciate the fact that people are putting in years of research to write these pieces. I consider this a very trusted, easy to use site, and Sayer Ji is well respected in the holistic community. I don’t know how they could make it any more easy or use or accessible.

        • Henk Noordhuizen February 19, 2020 at 1:44 pm

          L. I have no problems with the website;Don had,untill I wrote him how to pass the pop-up and the start of the page,with the book commercial.I do appreciate all the troubles,work and time they put in research,to offer us the info.But making it hard for people like Don,to find the info he wants to read is counter-productive,and that’s a shame.

          I did get two “introduction mails (day 1 en 2),and 2 “become a supporting member” mails (day 3 and 4).A bit disappointing;I had,during subscribing,chosen for óne news update mail per wéék.They apologised,and would change my profile (to what I subscribed for,one mail per week?).So,it was not a big problem,just a somewhat annoying experience.That’s all.

        • Henk Noordhuizen February 19, 2020 at 2:35 am

          Sorry;ment to write “Greenmedinfo” since being floxed these “typo’s” happen all the time.As if somewone treated my brain with a blender :-((

  40. Adam Smith February 17, 2020 at 12:02 pm Reply

    Hello, I am in desperate need of help, Please can someone help me, please. In September I was unnecessarily given the antibiotic ”Clairthromycin” for what the doctor believed a ”post-viral” issue. Today I suffer from muscle twitching and spasms, severe balance issues, ear pain and eye pain and sinusitis. Nerve pain–GI issues—Central Sleep Apnea, which is my body stopped breathing during sleep—-AN IMPENDING SENSE OF DOOM” depression and de-personalization.

    I am suffering and I am afraid that I will give up,I don’t want to leave my loved ones behind.

    Before the Antibiotic I was incredibly mentally and physically healthy. I had just completed a joint honors degree of business and finance and the last time I saw a doctor I was 13 years old (I am 25).

    PLEASE has someone taken this antibiotic ”CLAIRTHROMYCIN OR BIAXIN”.

    I understand a floxied poster named ”LUKASZ” has.

    1) Is this drug more severe and dangerous then ”CIPRO” class of antibiotics.
    2) Will I ever recover, I am currently under torture. SEVERE torture and fear I may lose this constant struggle.

    Please any comments or suggestions.

    Thank you forever grateful.

    • Henk Noordhuizen February 17, 2020 at 12:50 pm Reply

      Hi Adam,although your symptoms are quite like those of FQ toxification,Clairthromycin is not a fluoroquinolone antibioticum.Because the symtoms are more or less the same,I guess that the “first aid” will be,too,e.g. magnesium supplementation,vitamine D,zinc,etc.Magnesium and vit.D are very helpfull for muscle relaxation and depression.

      There’s no way to tell if Clairthromycin is more dangerous than FQ’s because everybody reacts different,and things greatly depend on dose,and how long you used it.

      Panicing is the worst bthing you can do,and will worsen your symptoms because the stress and worries further deplete your magnesium.Taking a hot magnesium bath sometimes works miracles,here.And because of your age (you’re young;many of us are “older” (have to be carefull.here ;-)) your chances of an (almost) full recovery are very good,but it will take some time.Think of months,sometimes even a few years.Because there’s no fluoride in Clairthromycin,your chances might even be better than it is fro Floxies.Be patient,and don’t lose yourself in despairation.Good luck;and I hope things will change for the better,for you,soon.

    • Andrea S. February 17, 2020 at 1:04 pm Reply

      Adam I agree with Henk try not to panic. It will raise your cortisol levels and work against you. Henk was the first to calm me when I posted here. I was a horrible mess.

      Back in December I took Cipro for a UTI and was not aware of the dangers and I fully paniced. I am talking full on hysteria. I even tried to throw up my one pill after I learned online what I did not know before I took it. I jumped on Magnesium and vitamin D3 and really researched a healthier lifestyle removing as many toxins as possible. I am not familiar with that antibiotic but maybe it works to kill off the Mitochondria like the Fluoroquinolones antibiotics can? And if that is the case you need to rebuild yourself back to where you were before the antibiotic took hold. If your healthy and able I’d get on a very good quality magnesium and multiple vitamin and cut anything bad out of your life, smoking, drinking, anything that can impede the healing process.

      Gut health, also remove as much flouride containing products that you can in your life ie: toothpaste, drinking water that is not reverse osmosis or distilled etc. I only took 6-7 pills but I believe what may have saved me from a more severe outcome was getting on magnesium asap. I have planter fascitis in my right foot very bad now, floaters and what I think is now nerve pain but I am thankful that I started early to try and heal myself. Please don’t lose hope. I have heard stories of some who were floxed so severely it almost killed them and there are stories I have read of successful recoveries so since you are at a great age (25) with better mitochondria then me (age 50) I think the odds are in your favor of recovery.

      • Don M February 18, 2020 at 10:32 am Reply

        Over a 30+ year period I took maybe 1,000 yes I do mean 1,000 pills of Cipro 500 and even Cipro 750. Chronic UTI. Caused by a well meaning but not to smart Urologist. I was involved in the clinical trials of Cipro before it even came to market. Not one doctor, pharmacist or medical person ever warned me about the possible problems one could have. It was not until I read about Fluoroquinolones on the internet did I put two and two together and understand that I was floxed. All those years I would complain to the doctors about various things and they always seem to have some reason other than reaction to the Cipro I had taken. I am definitely among the very fortunate Cipro users to not be affected worse but now at 85 I am paying the price for my ignorance of the side and after effects of Fluoroquinolones.

        • L February 18, 2020 at 11:03 am

          Damn, you threshold was REALLY high. I had (although I didn’t recall) a round of cipro once and a round of Levaquin once. Third time, I had side effects after ONE pill (and continued up to 4 til I figured out what was going on.) And as I have posted before, I am the poster child for everything that can go wrong..head to toe damage, several systems and organs, vision, mental, and on and on. Had I been on your protocol I’d have been dead by now.

    • Virginia February 17, 2020 at 8:12 pm Reply

      Hello, Adam. I’m so sorry about your horrible reaction to Clarithromycin. We are all so different; I took it for many months for Lyme Disease and never reacted badly to it. Your reaction sounds unusually bad. My advice would be to find a naturopathic or integrative/functional doctor who can help. Regular doctors might not be able to help with this. Please don’t give up; you might well find relief with the right doctor. As the others said, you are still young, so your body is more likely to heal. I’m not sure how to treat your other issues, but magnesium will likely help your muscle spasms. I agree with Henk and Andrea about their advice, and yes: Epsom salt (magnesium) hot baths could help.

  41. Dee February 17, 2020 at 12:29 pm Reply

    Adam Smith, I’m afraid not too many Floxie’s have had a bad reaction also to Clairthromycin but you are right that Lukusz who has written a recovery story on Floxie Hope did experience a reaction to that medication along with a FQ. Sometimes he checks in on this “home” page but I haven’t seen him on here recently. I would try posting on his personal Floxie story and hopefully he will reply to you!!?? I know there was a man from South Africa that also reacted to Clairthromycin that communicated back and forth with Lukasz on his comment history. I’m so sorry that you are going through this but I know Lukasz has found some recovery and healing. I hope you can connect with him! Please don’t give up as things should get better for you in time. Hang in there and keep the faith!!

  42. Andrea February 19, 2020 at 2:13 pm Reply

    Hi guys, I think I’m suffering from acute prostatis right now. Tomorrow I’m going to the doctor to do the exams he reccomended (urine test,urethral swab), but I’m almost sure it will come out positive. The symptoms are all there…Now the problem, what am I supposed to do?
    I already know what he’s going to give me…What can I do to try to avoid to take an antibiotic? Any suggestion on some more neutral remedy. Thanks

    • Don M February 19, 2020 at 7:24 pm Reply

      Andrea…….. Get busy with D-Mannose!!!! Research it. Get it . Use it. It works. Slower than antibiotics but in the end regular use of it is effective. I know because I use it and have used it for several years against my problem with UT infections. Read what is here….. https://duckduckgo.com/?q=Tahoma+clinic+on+D-Mannose+for+UTI&t=crhs&ia=web
      Good luck.

      And another thing. It is proven that using Colloidal Silver with antibiotics enhances their effectiveness.

      • Don M February 19, 2020 at 7:52 pm Reply

        Andrea……. D-Mannose use. After you have managed to conquer a UTI using D-Mannose one day each week. Helps to guard against it coming back. Use a day’s dose one day each week. It is something that has no time limits on it’s use.
        If it turns out that you are plagued with Interstitial Cystitis and not an infection the thing to try is Freeze Dried Aloe Vera. I think that we have already discussed that.

      • Andrea February 20, 2020 at 7:52 am Reply

        Thanks Don. I’ve ordered a bottle o d mannose, and I was discussin ti with the urologist. he said to be careful using it, because if you don’t use it properly (too little or for to little time) it could actually feed the bacteria. Ever heard something about that?

        • Don M February 20, 2020 at 9:07 am

          Andrea…… I had not heard that one about D-Mannose. D-Mannose is by it’s makeup called a sugar. But it is not in the same class as regular sugar. It does not raise the persons blood sugar level. What it does do is ball up eColi to where it can not stick and also D-Mannose adheres to the walls of the urinary tract and makes them to slick for bacteria to stick. I tend to feel that your urologist is trying to hedge a bit on the truth for his own gain. Experience has taught me that sometimes doctors do that.

          Interesting thing that I learned. Freeze Dried Aloe Vera contains some D-Mannose. The comment was that adding D-Mannose is not necessary because it is in the freeze dried Aloe. The more one reads the more one is able to put two and two together. Sadly one tends to find out that they have been mislead by the medical profession many times

        • Andrea S. February 20, 2020 at 10:07 am

          From the other Andrea LOL I know there are two of us on here.

          I have either a UTI or I am suffering from IC and when I take the D Mannose it’s like an instant relief within hours. Don do you know if it is safe to take 1 per day every day? I think the standard is 3 capsules 3 times a day to initially treat it – but I am also interested also in the long term maintenance. An assumed UTI is what landed me on Cipro and on this group.

        • L February 20, 2020 at 11:22 am

          per my last post (which I think I posted to the wrong andrea!) in the formula I was taking, I was taking d-mannose EVERY FOUR WAKING HOURS for almost a month

        • L February 20, 2020 at 10:39 am

          I know that question was for Don, but my first response was WHAT???!! Never heard such a thing. They are not all that common, but I would try to search for an integrative urologist.

  43. Don M February 19, 2020 at 7:13 pm Reply

    Another article about adverse effects of Cipro and other Fluorided drugs. I post it because there is some interesting information in it.
    Worth a read.

  44. Don M February 20, 2020 at 6:27 am Reply

    The first article in the search engine I listed above. “History of the D-Mannose Bladder Infection Cure – Tahoma Clinic…”. READ IT!!! Your urologist is not going to tell you about or prescribe this for you because it is not a medication (antibiotic) that they can write on a prescription pad. You do not go to a pharmacy to buy it. Most family care doctors and urologists have never heard of it. When I mentioned it to my own doctor of 20+ years he wrote it down. I assume he was going to check into it.

    If more people (especially women) were acquainted with D-Mannose and knowledgeable about it’s use problems with urinary tract infections would be reduced by and astronomical percentage. Maybe 80% to 90%. It is so safe that one can use it one day a week as a preventive. Let me repeat this. Your doctor most likely will never tell you about this. Why? Because it will seriously cut into the profits of him/here and the drug companies.

    I know it works because I use it!!!!

    • Andrea February 20, 2020 at 8:21 am Reply

      Hey Don, calm down. I already knew about D mannose, I belive thanks to you, since you’ve already posted about it other times. I’ve used it in the past to PREVENT a UTI, since I had to do a cystoscopy, but I’ve never had an actual UTI, like now. I was just asking you if you ever heard what this doctor (who evidently knew abot D M.) told me, that’s all

      • Don M February 20, 2020 at 8:52 am Reply

        Andrea…….OK …. Admonishment accepted. I am just kind of ticked over D-Mannose being such a secret among the medical profession. It really looks as if the profession is trying to hide D- Mannose from the public for their own gain.

        • Andrea February 20, 2020 at 11:14 am

          I understand. Thanks for your answer anyway 🙂

      • L February 20, 2020 at 11:01 am Reply

        My other suggestion,, which I have posted before, is to find a good ND, preferably female, who knows the “formula” for natural treatment of UTIs. I remember it involves high doses or vitamin A, vitamin C, d-mannose and Herb pharm’s urinary system support. But the amounts differ daily. And I recall the d-mannose is every four hours while awake. It’s supposed to take two weeks. Took me a month, but I stuck with it because I was so terrified of taking an antibiotic. And it worked. I went through a LOT of bottles of supplements but it was worth it to me. If you might be interested in doing this, I would just call around to different NDs and see if you can find someone who does it. I assume mine learned it in school. (sadly she no longer practices…done in by western-medicine treatment caused heart issues.)

        • Andrea February 20, 2020 at 11:19 am

          Thanks L, but the only experience I had with an ND, a naturopath, if it’s what you mean, has been terrible. She’s the one, who, without telling me about the side effects of S. Boulardii, sold me that thing and I end up messing up my, at that time, perfecly functioning intestines. Anyway, now that I think about it, D Mannose is used to clear or prevent infections from the bladder, making the wall more “slippery” and thus avoiding the accumulation of bacteria. What about the prosate then?

        • L February 20, 2020 at 11:26 am

          sorry about your experience. just like all professions, good ones and bad ones. I have had 3 NDs and all have been amazing. AS for the protate, I have heard d-mannose helps PREVENT re-infection, but again, my advise would be to use it with the other protocol ingredients. I wish I had written this down, because the A for example starts at extrememly high doses and tapers down each day. I also don’t remember the amounts of any of the 4 ingredients. Just wish you could find someone who uses this.

      • L February 20, 2020 at 11:10 am Reply

        I had been told d-mannose was only for prevention, not treatment. Still, if you want to try that route, it only effects e coli. (Perhaps that explains all the other ingredients I listed)

        • Don M February 20, 2020 at 11:32 am

          L…… D-Mannose is said to only affect e Coli. Which may be only partially true true. E Coli has receptors on it’s surface that are attracted by the D-Mannose or vise versa. When the D-Mannose get into the receptors it kind of balls them up where they can no longer adhere to the walls of the urinary tract. This does make D-Mannose very effective against e Coli. D-Mannose is also said to make the urinary tract walls slick so that nothing can stick to them. On this premise I have to argue that D-Mannose can be somewhat effective against other bacteria too. If that bacteria can’t stick to the urinary tract walls it will be washed away. Adding other ingredients will certainly make things better.

  45. Roxanne February 21, 2020 at 6:38 am Reply

    Was floxed almost 3 yrs ago by Cipro. Still dealing with all the tycial & many different side effect, and experiencing a rather ruff relaspe for the last 2 months. Went to Dr this week for my yearly physical and he was concerned with my liver count being elevated. Just wondering if that too could be another side effect. Not a drinker, don’t take perscription drugs. Has anyone else had elevated liver enzymes?

    • Andrea February 21, 2020 at 1:45 pm Reply

      Hi Roxanne. What does your diet look like?

      • Roxanne February 21, 2020 at 2:51 pm Reply

        No sugar, breads, dairy. Drink only spring water.

        • Andrea February 22, 2020 at 6:50 am

          That’s defently good. Do you eat lots of saturated fats? Do you eat carbs? I mean legumes, vegetables, oats? That’s all good for you and it is shown to lower cholesterol

  46. Don M February 21, 2020 at 9:12 am Reply

    Rather interesting article. It is not by some person inside the medical world but by a person who has been floxed and is now dealing with the problems. He writes not from the perspective of and insider of the medical world , but as someone who is living in the real world. I consider it a read for floxies. Refer it to your friends so that they may understand what devastation Fluoroquinolones can wreak on a person.
    Cumulative Toxicity of Fluoroquinolones http://www.myquinstory.info/cumulative-toxicity-of-the-fluoroquinolones/?fbclid=IwAR3M9TVbu9z7HBYU1F2aWNMMnqpk22UtrnPdVO_EhvbyNlcJYiTndLJK630

    • L February 21, 2020 at 10:34 am Reply

      It has long been suggested that the effects are cumulative. Those who say “Oh I have taken it before with no problem,” still should not assume that will be the case in the future. It is Russian Roulette. I tell those who DO say this that they already likely have some degree of damage but it is just under the radar for now. For me personally, when I was devastated by the Cipro, I thought it was the first time I had ever taken it. Then I got a readout of the last ten years of my pharmaceutical history, and as it turns out I had been given both Cipro and Levaquin in the past. Third time it went off like a bomb…after the first tablet. (sadly I took three more before I made the connection.)

      • Don M February 21, 2020 at 11:41 am Reply

        L…… The pharmaceutical industry as well as the medical industry seem to like to keep the truth about Fluoroquinolones under wraps. There is no doubt that the affects of Fluoroquinolones are cumulative and can be devastating. It is just a matter of how much and when. As I have said before. For 30+ years I took Cipro and progressively symptoms appeared but no one was able to explain why. I only learned why by reading blogs on the Internet. Definitely NOT from anyone in the medical profession.

        • L February 21, 2020 at 12:46 pm

          Oh, that’s right….YOU were the one with the astronomical threshold!

  47. Salim Gasmi February 21, 2020 at 5:35 pm Reply

    Hey guys, I don’t know if this has been posted here but it looks like scientists may have found why some of us are affected by FQ.

    If true, this is amazing as this could enable a test to check if one can take that drug and avoid millions of floxied.


    • L February 21, 2020 at 6:06 pm Reply

      that’s a terrific piece, Salim. Thanks for posting. It covers it all…Golomb’s research; Dr Cohen’s work; Fried’s “Bitter Pills”; prophylactic use in the military; Dr Bennett. Really one of the most thorough pieces I have seen…especially in such a relatively short article. (One thing not mentioned was that Dr Bennett had tried to get a warning re: mitochondrial damage, but the drug-owned FDA declined. What gets me is they are willing to make billions off these drugs, but “Manufacturers don’t have an incentive to fund post-market safety studies, particularly for off-patent drugs such as cipro and levofloxacin, where the vast majority of sales are from generics firms.” And yes, would be nice to know in advance whether you have that gene…but I suspect it STILL would damage everyone somehow…the whole cumulative effect thing.

    • Henk Noordhuizen February 22, 2020 at 3:48 am Reply

      Hi Salim,this article is mentioned,and linked on FloxieHope,almost 2 years ago..


      The experiences of Dr. Miriam van Staveren show the situation in The Netherlands,and probably in the rest of the world;it’s hard to convince your doctor that his/her “medicine” has damaged you in a possibly permanet way.My doctor,before prescribing Cipro,told me that she just received a message,not to do so because of another (also Fluorid “fortified”) I already used,but,after about 1’/2 hour of phoning around,descided to do so,anyway,lowering the other drug to 50%.

      When I came back to her,2 weeks later,and told that I had stopped taking the Cipro after 4 pills had made me extremely sick,she got really angry,almost screaming to me that I should have finished the course.Only after I told that I stopped after consulting the weekend-doctor,she calmed down,saying that she NEVER heard any complaint about Cipro (and didn’t want to hear mine! :-)) I was too shocked by her reaction to even mention that she was warned to NOT prescribe it to me,in the first place.

      There is some reason to think that a gene might be involved,make some people more vonurable to FQ damage than others,but that is a suggestion,based on a very small group of people (24).And most cases where FQ’s are needed can’t wait for DNA results,before using FQ’s.And there are those,who used FQ’s several times,or even years (ask Don M),before they took it one time too much,and got floxed;that doesn’t match well with the gene theory.I don’t think there will be a quick test,soon,to know if you’re safe with FQ use,or not.In fact.I think that FQ’s,and other Fluoride “fortified” drugs are extremely dangerous.

      • Andrea February 22, 2020 at 7:06 am Reply

        Doctors like the one you described are a disgrace to all the category. And sadly, are probably the biggest part. There’re still a few doctors around, who, even if their knowledge is so limitated, they still try to listen to you and understand that their profession it’s not perfect as it is portraited to be.
        One of the last neurologist I’ve went to, was another example of a misereable skank, who not only wasn’t listening to me and denieing what I was telling her, but she even told me that she couldn’t listen all day long to all the things happened to me since I was floxed in 2016. I was in her office for about 5 minutes…talking about dedication to their job….

        • L February 22, 2020 at 11:06 am

          What is it with neurologists? They seem to be the worst of the worst, with even bigger blinders on. I have mentioned before of the dozen MDs I saw before finding help with an ND, (they were all pretty awful) but the neurologist took the prize. He wrote in my record that I was delusional, and that I had “pseudo medical knowledge” after telling him exactly what has been written about flqa—including possible permanent nerve damage. A neurologist who is totally unaware of a black box warning on a drug that refers to his specialization???

          And more recently, against my better judgement, on the advice of an ENT I did like, I saw yet another neuro. Things seemed to be going well, and I had asked if he was aware of anyone doing autonomic nerve testing…desperate to find SOMETHING regarding this two plus years now of breathing and congestion issues. He mentioned one possibility. Then I had handed him a list of the side effects from cipro, and another of ever thing I have tried—many NON western medicine. Both lists were single spaced and took an entire page. He left the room for a few minutes. I thought he was coming back with referral information. Instead, he said my case was very complicated and he wanted to think about it. I thought that was great. He said he would call the next day. Never heard from him. I even called and left several reminders about him getting back to me. CRICKETS. I’m sure he must have looked at the list of side effects and thought I had Munchhausen. I would never wish ill on anyone, but boy, there are moments like these when I’d wish these ignorant, arrogant, brain washed people would experience just a fraction of what I’ve gone through.

          And once again, I have to remind myself to trust my instincts. My gut was saying “don’t go” but in desperation, I ignored it.

        • Andrea February 22, 2020 at 11:41 am

          Ahah, I too sometimes hope that whoever underestimated or discredited my symptoms, expecially “doctors”, would live a couple of weeks of my worst days, let’s say, like I felt in the summer of 2017…just 2 weeks, then they’d feel normal again. I’ll bet anyone, ANYONE, would change their mind.
          Now, about neurologists. Another one, who at least treated me like another human being, with decency and respect, showed his huge ignorance anyway.
          When he prescrivbed an MRI, he told me that they should be probably doing it with Gadolinium. I said that I would never do that, as I recalled soemthing wrong with it. He said there was nothing to worry about it and I shouldn’t read too much on the internet. Back home, I googled Gadolinium, and found out that many drugs containg it were already banned, as it doesn’t leave your body and it accumulates in your brain tissue. Just like what happened to FQs. Funny how the ones that should be the first to know all this, are the most clueless…

        • L February 22, 2020 at 11:45 am

          yeah I got into one of those contrast dye arguments as well. I didn’t get the dye, and guess what. They were able to read it just fine. (and yes that is NASTY stuff!)

        • Henk Noordhuizen February 22, 2020 at 11:53 am

          Tell him that HE should do a bit more reading on the internet.Reading all the information,the Farmafia keeps hidden from him,to be exact! For the sake of his patients.

        • Andrea February 22, 2020 at 4:44 pm

          Right! I shouldn’t read too much, if THEY would read a little more…

  48. Don M February 22, 2020 at 7:33 am Reply

    Henk…………. No one is “safe” using a Fluoroquinolone! By the very nature and design of the antibiotic (with the fluoride added to it) it is to infiltrate the mitochondria and disrupt the DNA reproduction of the bacteria. Anyone who has ever taken it or is taking it now WILL be affected by this antibiotic. To what degree varies considerably, but make no mistake, everyone is affected. It may be immediate and obvious or sometime in the future and subtle. To think that this antibiotic class is so smart that they can differentiate between bacterial mitochondria and DNA and the mitochondria and DNA of the host is ludicrous.

    The first basic Quinolone was Nalidixic Acid but it was only somewhat effective because it could not penetrate well. Fluoride was added to the Nalidixic Acid and Fluoroquinolones were born. Fluoride can penetrate to the mitochondria (the brain and every other organ of the body) and take it’s co-product with it. In doing this with the various concoctions it disrupts the reproduction of bacterial DNA and also “does a number” on the DNA of the host. What a Fluoroquinolone does appears to be well documented. How to counteract that is still a mystery to the medical world. By all appearances it seems that if they don’t know what to do they are trying to ignore the detrimental effects possible. Sadly…… Many doctors and other medical personnel remain clueless.

    • Don M February 22, 2020 at 7:41 am Reply

      A foot not to my diatribe. Do you realize how many things that have “fluoride” added to them? Fluorides are in anesthetics, cosmetics, tooth paste, asthma inhalers as well as antibiotics and who knows what else.

      • Henk Noordhuizen February 22, 2020 at 9:06 am Reply

        Yes,Don,and,when added to a “medicine” like Quinolone,which,on it’s own causes quite a few serious adverse reactions,this makes an extremely dangerous combination!

      • Andrea S. February 22, 2020 at 1:10 pm Reply

        Not to mention food products, most canned foods, tomatoes, pickles, carrots, soda, wine, beer. I was surprised to see that it’s in general anesthetics. Diflucan, certain antacids, Prozac, Celexa and Lexapro also come to mind.

    • Henk Noordhuizen February 22, 2020 at 8:24 am Reply

      You’re right Don.In fact,it looks mostly as if they are “shooting the patient” to kill the bacteria.Attacking every cell,bacterial and mammal,hoping that the pathogenic bacteria die,and the mammal cells survive (hardly,and with lots of damage).That’s excactly what chemo does!The switch from natural remedies to synthetic/chemical ones was not ment to improve on efficiency and safety;it was ment to create a system that would automaticly lead to a monopoly,because costs for approvement of a medicine are extremely high,and only patented drugs can earn back costs,and have a (high) profit on top of that.

      Long-term,the governments could change things,and limit costs for health care by funding research,needed for approvement and registration of natural remedies,but most governments are corrupted by the Farmafia,and because of the political systems (new elections,every 4 years),our “chosen leaders” are only aiming for short term successes.

      • L February 22, 2020 at 11:36 am Reply

        and here’s another example of that. When I was first floxed I was on inhaled steroids for asthma. I was such a mess and I knew that steroids were only exacerbating the situation. But I was having that awful breathing issue, where it would just “cut off” so I gasped for each breath. Truly horrifying. (Either autonomic nerve damage or mitochondrial damage to the heart muscle.) So the thought of having an asthma attack on TOP of this other breathing issue was just morbid. So my ND put me on hydrogen peroxide IVs (an MD said “don’t do it! it’s dangerous!”) But I trusted the ND, and within a month or so of IVs I was able to wean off asthma meds, and had NO ASTHMA for the next two years.

        Fast forward…after 2 plus years of dealing with MDs and dozens of treatments and procedures, and NO help with the congestion issue, I went back to m original ND (who fortunately reopened his office recently) and even though this s not the same issue, he suggested I try some more rounds of the H2O2 IV. Well, wouldn’t you know it…for the SECOND time in about 5 years, the FDA has removed these IV bags from the market. Why? $$$$ Now apparently big pharma is poised to come up with their own, which will necessarily have some chemicals in it so they can patent it. AND of course it will also drive the price way up, out of affordability. I finally had started getting some hope, and now this. And my doctor only has a few bags left, and several patients that us it. The FDA/big pharma cabal strikes again.

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