Floxie Hope

Floxie.Hope.1800.72.dpi

This site is to give HOPE to those who are suffering from Fluoroquinolone Toxicity Syndrome as a result of being poisoned by fluoroquinolone antibiotics – Cipro, Levaquin, Avelox, Floxin, etc.  It contains stories of healing.

Cipro, Levaquin, Avelox and all other fluoroquinolones are dangerous drugs that can have devastating effects that cumulatively I’ll refer to as Fluoroquinolone Toxicity Syndrome or Floxing.  Fluoroquinolone Toxicity Syndrome/Floxing includes damage to connective tissue (tendons, ligaments, cartilage, fascia, etc.) throughout the body, damage to the nervous systems (central, peripheral and autonomic), and more. The damage done by fluoroquinolone antibiotics can destroy a person’s quality of life or even kill them. Certainly, there is a time and a place for drugs with dangerous side effects. If you find yourself in a septic shock induced coma, fluoroquinolones may save your life. Unfortunately, these drugs are not being reserved for life or death situations. People are being prescribed them for urinary tract infections, suspected prostate infections, upper respiratory infections, as a prophylactic for travelers’ diarrhea, ear infections, pink eye, etc. Thousands of people have suffered needlessly from the devastating effects of fluoroquinolone antibiotics, when another, safer antibiotic could have, and should have, been used.

The damage done by fluoroquinolones is largely unacknowledged by the medical establishment and an accurate diagnosis, compensation and relief are difficult to come by. There is no known cure for Fluoroquinolone Toxicity Syndrome/Floxing.  However, many people continue to LIVE after being poisoned by fluroquinolones.  They find healing, recovery, perseverance, compassion and hope.  These are their stories.

This site is meant to give hope for healing to those who are adversely effected by fluoroquinolones.  It is no way meant to disregard the pain of those who are chronically suffering from the horrifying effects of Cipro, Levaquin, Avelox or the other fluoroquinolones.  There are people who don’t recover.  Their stories are real and they matter.  There are also people who are able to recover and I share their stories with the hope that they inspire others, or at least give hope that recovery is possible.

Here is a New York Times article about the dangers of fluoroquinolone antibiotics – http://well.blogs.nytimes.com/2012/09/10/popular-antibiotics-may-carry-serious-side-effects/?_r=0 – more news stories, research papers and other resources can be found on the “Links and Resources” page.

Here is a Facebook group that is a great resource for those going through Fluoroquinolone Toxicity – https://www.facebook.com/groups/floxies/

Featured post – I’m floxed. Now what?

The Fluoroquinolone Toxicity Solution Ebook has helped many Floxies to recover, including DanielCindy and Ruth.  As a bonus, you will also receive The Floxie Food Guide – a book of diet guidelines to help you through fluoroquinolone toxicity:

flu tox get help you need banner click lisa

 

 

 

25,593 thoughts on “Floxie Hope

  1. Laura December 5, 2013 at 12:37 pm Reply

    Sorry Lisa. Was unable to answer you probably earlier. So doctors have responded in differenrt ways to me. Most of them say “the drug is out after 4 weeks”. But one said that my muscle pain come from Cipro. But she said my props would be over by mid of november, Well thats when they became worse…One Psychologist said my anxiety comes from cipro “and that that is commonly known that cipro does cause anxiety props.” Another doc Im seeing says he will search for info and if its cipro he will search a specialist…but I dont want to expect to much. Ive given up docs. Since most of them told my Im mentally ill and supposed to a hospital for mentally ill people. Just because they didnt find the reason for my pain. Soi thats my doctor story 😀

    • Lisa Bloomquist December 7, 2013 at 11:26 am Reply

      Your story is very similar to that of lots of other Floxies. I’m so, so, sorry for the pain, the disregard and the run-around. Here’s an excellent post about how the specialist model in Western Medicine encourages that kind of run-around and misdiagnosis – http://www.hormonesmatter.com/hyperspecialization-medicine-fluoroquinolone-injury/ It’s a great article about how absurd and uncaring the system is.

      When I was first told that my issues were due to the Cipro that I took earlier, I was relieved, because I thought that my symptoms would go away as soon as the drug was metabolized. Unfortunately, the damage that the drugs did continued to escalate for a long time after they “should” have been out of my system. With that said, I did recover. I did get better. With time – just not the timeframe that the doctors told me I “should” anticipate.

      I think that the “alternative medicine” model of treating the patient holistically, is a better model for most Floxies. I hope that you find relief and help – from someone – whether that person be a specialist (probably a Toxicologist) or an alternative health provider!

      Please let me know if you need anything.

  2. C December 8, 2013 at 2:27 pm Reply

    Thank you Lisa! I hope that for my twin as well. Glad your Dad is well and enjoying life!

    • Lisa Bloomquist December 10, 2013 at 12:15 pm Reply

      Yes, chemotherapy worked well for my Dad’s Lympohma. He is doing wonderfully. I wish the same for your twin! Please keep me updated. Thank you!

  3. Catherine December 9, 2013 at 7:15 pm Reply

    Recently I have been having a lot more myoclonic seizures – where my body jerks me awake every time I start to fall asleep. I have had this symptom since I was first floxed, but these episodes have become much more frequent recently. For me this has always been the most frightening symptom, and makes it impossible to get any sleep which makes everything else worse. I’m thinking of trying acupuncture again, and wonder if anyone else has had this symptom, and if they have found anything which helped?
    Thanks
    Catherine

    • Lisa Bloomquist December 10, 2013 at 12:18 pm Reply

      Hi Catherine,

      I sometimes get jerky as I start to fall asleep. Taking a magnesium supplement just before bed seems to help. Do you take a magnesium supplement? I also wonder if taking a GABA supplement could help too. Maybe melatonin as well? I’m not sure about these and independent research is definitely necessary, but they’re things to look into.

      xoxo

      Lisa

      • Catherine December 10, 2013 at 2:03 pm Reply

        Hi Lisa
        I take a calcium and magnesium supplement morning, afternoon and evening, and I also take Epsom salts and have an Epsom salts bath every evening. I still don’t know if I’m getting enough mag though. I’m taking a lot of different supplements – nothing seems to be helping, but I suspect that my constant, spiking anxiety is the main reason why I feel so awful, along with the fact that I’m still in the acute stage with the poisonous reaction still spreading. I am trying to meditate to calm down, but find it impossible to still my chattering mind! I do believe that with time I will adjust to what’s happened and get the anxiety under control.
        I’m not sure what GABA is – could you possibly let me know please?
        Thanks
        Catherine x

    • Lisa Bloomquist December 10, 2013 at 2:54 pm Reply

      Catherine, stop taking Calcium. If you can get through this article, it’s a rough one – it makes my head hurt – it says that calcium is bad for Floxies – http://www.jimmunol.org/content/184/9/4827.full.pdf

      As for the GABA – I have heard that supplements don’t cross the blood-brain barrier, but I’m not sure. If you google GABA supplement, you might find some good information. It’s supposed to help people to calm down, but I don’t know much about it.

      • Catherine December 10, 2013 at 3:11 pm Reply

        Thanks Lisa, I was taking calcium because I cannot have dairy products, and I was worried about osteoporosis. Have I done myself irreversible damage by taking it?

      • Teresa January 1, 2014 at 7:54 pm Reply

        Lisa, could you be more specific where it says calcium is unsafe for us to take? Like the title of the article and paragraph where it explains this? Thanks

      • Lisa Bloomquist January 2, 2014 at 10:22 am Reply

        Teresa, I’m not 100% sure about whether or not we should take calcium. The article that led me to say that is the one that I linked to. The explanation of the quote is what I replied to you yesterday.

        I don’t think that any of us should go crazy with calcium avoidance – lots of people have healed while eating dairy products and veggies. But Floxies may want to experiment with not taking calcium supplements. Magnesium supplementation seems to help most floxies. It makes sense that the calcium/magnesium ratio in our cells is messed up.

        It’s all really difficult to make sense of. That’s why good advice is always to ask an expert – typically a doctor. Unfortunately, most doctors don’t know much about FQ toxicity so we’re left to figure it out ourselves. Please keep in mind that I’m no more of an expert than any other Floxie. I’m trying to figure it all out, but I can’t say that I have a lot of answers. It’s all so complex and daunting. I’m trying though. And right now, I’m thinking that magnesium needs to be loaded up on and calcium shouldn’t be supplemented by Floxies. Take that for what it’s worth though.

      • Destruida los Restos January 5, 2014 at 1:44 am Reply

        GABA (gamma-aminobutyric acid) is a natural brain chemical, a neurotransmitter, an agent which transmits messages from one brain cell (neuron) to another. The message that GABA transmits is an inhibitory one: it tells the neurons that it contacts to slow down or stop firing. Since about 40% of the millions of neurons all over the brain respond to GABA, this means that GABA has a general quietening influence on the brain: it is in some ways the body’s natural hypnotic and tranquilliser.
        Some people are prescribed benzo-diazepines to calm over-stimulation, but they have great dangers.
        http://www.benzo.org.uk/manual/bzcha01.htm is an excellent site about benzo-diazepines, their ill effects and addictiveness.
        Recently, people are starting to take extra, synthetic GABA supplements and apparently there are good eports, but I know nothing about it.
        For the first year after poisoning, I slept less than one hour a night on average; once I didn’t sleep at all for six days; the next three years a bit more, but only recently have starting sleeping for four hours a night – still in short bursts.
        I’ve never read that calcium is bad for quinolone-poisoned people – I think there’s some confusion. If André felt worse after eating foods containing calcium, there must be another reason.
        Magnesium would counteract Fqs if you took it within a couple of hours, but it’s not a treatment for quinolone toxicity – it won’t cure anyone or help to cure them. It’s nearly always helpful to calm nerves, relax painful musckes and aid sleep, but not specifically for quinolone toxicity.
        Dave Fuller, who used to have a big website and forum, always said that, unless you knew that you were deficient in a specific vitamin or mineral or reacted badly to a specific food, there was no point in bothering; he said that you’ll either get better or you won’t, it’ll take as long as it takes and that all the supplements and special diets are just expensive ways of passing the time while you wait! He exaggerated, but there’s quite some truth in it. The best prescription I know of for newly poisoned people is to watch some really funny films – funny or musical or beautiful, depending on individual choice. (If your short-term memoriy’s shot, you can watch them twenty times, so you get value!)
        I do, however, recommend masses of vitamin C. Hardly anyone eats enough vitamin C.
        Somebody asked about pulses and about nightshade plants. Personally, I find I don’t want them, but I don’t think there’s any reason not to eat them unless you notice a bad reaction.
        Avoid other toxic chemicals – hairdye and so on, household products, insecticidal treatments and collars for your pets (neurotixic to insects, to pets and to the children who play with them (and adults, but too bad – adults should grow up and take responsibility.)

    • Lisa Bloomquist December 10, 2013 at 3:22 pm Reply

      I have been consuming dairy products my whole life – through my floxing and through my recovery. I have yogurt every day. I have still recovered. I just think that it might be best to stop supplementing calcium. As for whether or not to cut it out of your diet, I don’t know. I recovered just fine while eating things with calcium. But you might want to see if you feel any better without any calcium. It’s worth a try. As for Osteoperosis risk, that’s something to ask your doctor about.

      Try not to worry about irreversible damage. It’s hard not to think about it, but it’s worth a try. People heal. Try to believe that you will be someone who heals.

      xoxoxo

      Lisa

      • Catherine December 10, 2013 at 4:39 pm Reply

        Thanks Lisa.
        I gave up dairy a long time before being floxed because I have an intolerance. Also, because I have been in a wheelchair and unable to exercise for 17 years, I am at a high risk for osteoporosis, and so I was taking extra calcium. I will speak to my nutritionist. I see what you mean about the article – with my floxed brain I didn’t even understand the title! I will try again when I’ve had some sleep. Xx

    • Michael December 15, 2013 at 9:10 am Reply

      I had this really bad for a few months. I was afraid to fall asleep,but it improved over time and is not really an issue for me anymore.
      I’m not sure if this really helped but i think it did. I believe the cause is the electrical signals your brain is shooting down your nerve pathways is misfiring.I would lie on my back keeping my neck as straight as possible with my back so the path would be straight(er) than if lied with my neck bent.
      Hope it helps you.

    • Bill January 10, 2014 at 7:27 am Reply

      I’ve heard that tonic water works great for quieting restless leg syndrome and the presleep twitching. Supposedly the quinine in the tonic water helps with this and is not habit forming, but should only be used until the symptoms subside.

      • Lisa Bloomquist January 10, 2014 at 10:37 am Reply

        I have always tolerated tonic water just fine, but I have been avoiding it since I got floxed. I think that the quinine molecule is somewhat similar to the quinoline molecule. I may be wrong about this. It’s something to look into. I have heard of people feeling better after having tonic water and I have heard of people feeling worse. I certainly haven’t heard of it killing anyone. :p

        Magnesium helps my muscle twitches and restless leg syndrome.

        • Catherine January 10, 2014 at 10:58 am

          My doctor told me quinine would help my body to absorb avelox better, so I actually took it with tonic water! I have wondered since if that might be why I was floxed so severely. This is pure conjecture however. My husband (who has never had a FQ) finds it stops him getting leg cramps in the night if he drinks it before he goes to bed.

        • Teresa January 10, 2014 at 10:49 pm

          Lisa, I suffer from restless leg too. There are numerous remedies that people have tried. I have tried a few that haven’t worked yet. Right now I am working on B vitamins. Adding a little extra of one at a time. My restless leg came on mostly after a surgery. I think the surgery depleted one or more of vitamins or minerals. I have been taking calcium and magnesium, vit. A for years. B12 for a few months. Nothing is working yet.

      • Ricardo December 20, 2018 at 9:21 am Reply

        Hi!

        Anyone had some bad reaction to tonic water?

        I was almost pain-free and neuropathy-free for three years almost. The main issues that persisted were my gut and adrenal fatigue symptoms.

        Two weeks ago, after consuming a lot of carbs and drinking tonic water, I relapsed to the point where the tendon pain and neuropathy came back.

        My doctors say it has something to do with weak adrenals, sugar and excessive oxidative stress.

        I think it may have something to do with the tonic water, but I may be wrong.

  4. Jordan Paterson December 10, 2013 at 7:44 pm Reply

    First of all, have the outmost respect for everything you are all going through and keep in there. Our body’s aren’t designed in a way not to fight off attacks but drugs like these! Time is a healer. I was wondering if any of you have any information on specialists on this? Or would it just be a naturopath I should see?
    Thanks alot for your time

  5. C December 10, 2013 at 11:28 pm Reply

    Has anyone experienced really bad head pain/headache as well as eye pains (throbbing,stinging etc) if so did anything bring you any relief? How long did it last? Thank You

    • Lisa Bloomquist December 11, 2013 at 9:29 pm Reply

      I asked on https://www.facebook.com/groups/46690244194/ and several people said that they had the same symptom. Here are some words of advice:

      “I get explosive headaches and eye pain, when they happen the only thing that helps is going to bed and using an icepack on my head/eye”
      “Fellow migraine sufferers, I’ve finally found a combination that helps! I take 300mg of 5htp (do not use this if you are on antidepressants), and 3mg of melatonin (bedtime) daily. This has reduced the number of attacks. When I get a migraine, I take an herbal ‘migraine relief’ capsule (I’ll have to check the brand), and use essential oils (a blend of peppermint and lavender) on my neck, shoulders, and temples, aspirin only if needed.”
      Heating pad on neck
      Gluten free diet
      “Having it now – at times I found that I was dehydrated and fresh lemon water helped. I think that most of us experience a mild form of dehydration – drying out all over – but not high enough to test positive like everything else. Eating hydrating foods like Jell-o and drinking lemon water has helped me. Also, Bolthouse Blue Goodness and Green Goodness is very nutritional.”
      ” my eye pain is ciliary spasm-related”

      Several people said that it came and went.

      I hope that helps!

    • Destruida los Restos December 27, 2013 at 11:30 pm Reply

      Feverfew is an excellent and harmless treatment for migraine and headaches. You can grow it in a garden or windowbox and chew 5 fresh leaves as soon as the pain starts, or buy dried feverfew and make an infusion or you can buy it as tablets. It’s by far the most effective treatment I’ve ever used and it can work prophylactically as well (taking two leave s day for six weeks.)
      You can buy natural asprin, which is the bark of salix negra (black willow) or salix alba (white willow.) The negra won’t hurt you in reasonable quantities, but the alba is harmless – I use it as an infusion or a tincture (Baldwins herbs, U.K. or Nutricentre.)

    • Destruida los Restos January 5, 2014 at 1:52 am Reply

      Eufrasia (eyebright) tincture is wonderful for eye pain, eye soreness, damage to eyes(including severe U.V. burning) and to the area around the eye. A few drops in an eyebath of non-chlorinated water, wash your eye up to four times a day – great stuff. Also a pad soaked in strong, black tea is very good – or save used teabags, but cold, strong tea is best. You can see it working on my blog. I’ve used it often for animals, as well.

  6. Andre B. December 11, 2013 at 6:14 pm Reply

    I want to chime in on Lisa and Catherine’s remarks regarding calcium. I became FLOXED back in mid June. I got severe tendonitis/tendon rupture issues. After monitoring my diet and seeing what made my symptoms worse, I noticed that every time I would consume a calcium based product my symptoms would worsen. Now, people are telling me this is because of the dairy, soy, and gluten found in most calcium products. However, I am not sure. I have been without calcium for months now and my knee got better but I am still struggling with my ankle. I can’t prolong this though because I am afraid of becoming calcium deficient.

    Does anyone have any other advice on whether calcium is good/bad for FLOXIES? I would greatly appreciate it.

    • Lisa Bloomquist December 11, 2013 at 9:04 pm Reply

      Andre, if you can get your head wrapped around this article http://www.jimmunol.org/content/184/9/4827.full.pdf+html (I’ve read it several times and I’m just starting to comprehend it), I think that it will tell you how Calcium is part of the Floxing puzzle. Here is a quote, “The combination of a mitochondria-generated H2O2
      signal with a simultaneous Ca2+ influx into the cytosol constitutes the minimal requirement for induction of CD95L expression.” CD95L is http://en.wikipedia.org/wiki/CD95L

      It makes me wonder if magnesium is helpful because it interferes with calcium absorbtion… or something like that.

      Interesting stuff, to be researched more.

      I think that for the moment, you should concentrate on what makes you feel better or worse right now and that if calcium makes you feel worse, stay away from it. Calcium deficiency is something that can be remedied when your body is no longer going hay-wire. That’s just my opinion, please take it for what it’s worth (not much, I promise).

      • Catherine December 12, 2013 at 3:36 am Reply

        I’ve stopped taking the cal/mag supplement and replaced with magnesium on its own, but have noticed that some of the other supplements I’m taking (multi vit/min, vitamin C, b vitamins, protein powder) also contain calcium. Is it essential to cut out all of these, or do you think it’s ok to have some calcium as long as I’m not mega dosing? Being dairy intolerant, and also completely bedbound, I do want to make sure my bones stay as strong as possible.
        Thanks
        Catherine

      • Teresa January 1, 2014 at 8:01 pm Reply

        Lisa, I don’t think your quote is saying whether calcium is safe or not. “The combination of a mitochondria-generated H2O2 signal with a simultaneous Ca2+ influx into the cytosol constitutes the minimal requirement for induction of CD95L expression.” Me thinks only the researchers could explain this sentence because of the jargon.

      • Lisa Bloomquist January 1, 2014 at 8:52 pm Reply

        Teresa, I’m not 100% sure of the mechanism of damage for fluoroquinolones. Luckily, I’m in good company because no one is. It is likely, IMO from the research that I’ve done, that a big part of the damage mechanism is that they mess up the balance of calcium (Ca2+) and magnesium in our cells. Magnesium is depleted. Here is an easy to understand article about the deleterious effects of magnesium depletion – http://articles.mercola.com/sites/articles/archive/2013/12/08/magnesium-health-benefits.aspx It’s possible that magnesium depletion answers all questions about fluoroquinolone toxicity, but I think that the problems are a bit more complex than that – otherwise people would know the damage mechanism. But it’s possible that the role of cellular magnesium is not well enough known.

        To try to put the quote into normal person language, here ya go – When mitochondria are damaged they generate hydrogen peroxide (H2O2). Simultaneously there is an influx of calcium (possibly because the FQ has attached to the cellular magnesium and upset the balance) in the cell. When those things occur, CD95L is expressed. For an explanation as to what CD95L is, I’ll refer you to wikipedia – http://en.wikipedia.org/wiki/CD95L I have trouble understanding even the wiki article, but I think that inducing expression of CD95L causes apoptosis (programmed cell death) and immune system malfunction. Neither mass cell death nor immune system malfunction feel very good, as we both know. But apoptosis is better than the alternative – cancer – so there’s that.

        Basically, calcium should be avoided because the calcium/magnesium balance in our cells is messed up. There is too much calcium, which is triggering the CD95L expression. We need to increase our magnesium levels to fight all of the ill effects of magnesium depletion.

        That’s my take on it, at least.

        Best regards,
        Lisa

      • Teresa January 10, 2014 at 11:07 pm Reply

        Well, some physicians feel that you shouldn’t take magnesium at the same time as calcium. Then I have also been told that calcium levels are sometimes low because magnesium levels are and the magnesium can help raise calcium levels (perhaps taken at seperate times?).

        Anyhow I wanted to share a new magnesium supplement I stumbled across. It is suppose to be able to cross the brain barrier which may be important for us. It is called L- Threonate. I am not sure of the dose in comparison with the other magnesium types. I have just started it the last few days, so no news yet. I wonder too if I may have a low stomach acid so am not digesting the Calcium/magnesium I have been taking for years. A thought. Sometimes reflux is because of not enough stomach acid rather then too much. over and out.

  7. Catherine December 12, 2013 at 7:47 am Reply

    Hi again,
    Does anyone have any knowledge or experience of magnesium injections? Just wondering if it might be more effective in case I’m having problems digesting supplements.
    Thanks
    Catherine x

    • Lisa Bloomquist December 12, 2013 at 9:37 am Reply

      Catherine, please keep in mind that I am not a doctor or otherwise trained medical professional. I can tell you what I know from personal experience and from doing independent research, but I highly recommend that you not take my advice as medical advice, because I am not a medical professional of any kind. IMO, you should listen to yourself and your body first and foremost, your trusted medical professionals second, independent research third and random people on the internet (including me) fourth. As for answers to both of your questions, I don’t know how to get a good balance of calcium and magnesium into your body. I know that magnesium supplementation seems to help most people who are Floxed. I know that I recovered while taking a magnesium supplement and eating things with magnesium and calcium. I also know that my experience does not prove causation of anything, it is simply my experience. Please listen to your body. If your body is having trouble digesting supplements, try experimenting with not taking them. I don’t know enough about magnesium injections to tell you about them – hopefully someone else can point you in the right direction. Epsom salt baths are a way to get magnesium that is not supplement oriented. Do you take Epsom Salt baths?

      • Catherine December 12, 2013 at 9:56 am Reply

        Thanks Lisa
        Yes I do take Epsom salts baths, and will carry on with those. The problem I have here in the UK is that there are no medical professionals who can help with this, so I am working it out on my own, and the only source of information available to me is on the Internet. The doctor who prescribed FQs denies that they have caused my symptoms. I do feel that given enough time I will improve. It’s just knowing how to support my body in the meantime to maximise my chances of recovery.
        I’m sorry if I seem over- dependent on you at the moment! I find this website and your words very comforting, and for the time being it really is a lifeline.
        Thanks again xx

      • Destruida los Restos December 27, 2013 at 11:47 pm Reply

        Catherine, I remember now – it was a nutritionist calledLlinda at Nutricentre who recommended the Dr. Schultze’s Superfood Plus. I’d never have tried anything with such a name! She sent me a little free sampland the leaflet and I got stronger within minutes of the first spoonful! It’s far better than any vitamin pill, as I’m sure you’ll see if youi try it. I don’t think it’s a good idea to slam your digestion with masses of supplement tablets.

    • Lisa Bloomquist December 12, 2013 at 10:00 am Reply

      Having to figure this out on our own is a problem that we all have. I’m happy to help but I want it to be clear that I am not a doctor and can only tell you what worked for me and what I have heard has worked for other people.

      Are there any alternative medicine providers that can help you? I was helped greatly by my Acupuncturist. I have heard good things about Chiropractors, Naturopaths, etc.

      I’m glad that I can be comforting! It’s why I’m here. People do heal. Please keep that in mind. It’s never an easy road, but healing does happen. xoxo

      • shelabella December 13, 2013 at 8:33 pm Reply

        I have not dealt with flox damage, but have encountered a lot of other pharma damages with my youngest son (5 yrs old). He has regressive autism and we have achieved amazing improvements in his health and learning/behavioral challenges through dietary intervention and a range of therapies. A year ago I started down a personal journey of holistic medicine. I am overwhelmed with its effectiveness and see it working in my son and even myself. Acupressure/acupuncture can provide true relief for pain and I was able to reverse progressing arthritis & carpal tunnel in my ands and wrists. (And it was so bad I went to bed with braces on each hand. Sometimes my fingers wouldn’t cooperate for hours in the mornings and I’d developed large cysts on my joints that would swell and ache horribly. Between diet (went Paleo and GMO free), acupressure, positive thinking, and NAET I have lost 35 pounds, eliminated IBS, and regained my hands. They don’t ache or swell unless I cheat and eat junk food. NAET has helped my son in so many ways. It’s worth reading about to learn more and consider. I’ll admit that it sounds quite different (muscle response testing for allergens/reactants, retraining body’s response through balance and release of energy, etc.), but it’s been a miracle for my 5yr old. I know I dont really fit in with your audience, but I enjoyed your article on Cipro and found my way here. ive had such a transformation through diet, NAET, and homeopathic remedies, I like to share in case it helps someone else. If you’re interested in a little more on NAET, you can read our story on my blog here: http://muckrakingmaven.wordpress.com/2013/07/08/have-you-heard-of-naet-for-allergies-autism-chronic-illnesses-this-is-worth-reading/

      • Lisa Bloomquist December 14, 2013 at 3:15 pm Reply

        Thanks for your comment, Shelabella! Even though our ailments may be different in many ways, we have a lot in common. When you have a difficult to treat, systemic illness, like floxing, autism or a huge variety of other ailments, the specialist model of Western Medicine does little to help. Here is an excellent article about the my friend Emily’s frustration with the specialist model in Western medicine – http://www.hormonesmatter.com/hyperspecialization-medicine-fluoroquinolone-injury/ So we seek holistic healers and alternative medicine. Luckily, those things help a lot of people. I will certainly look into NAET. I appreciate you visiting floxiehope and please let me know if you have any questions.

        Best regards,
        Lisa

      • Destruida los Restos January 8, 2014 at 12:10 pm Reply

        I can’t see a reply button to answer Shelabella’s post, but this is to say that I looked at her blog, it’s well worth reading and sharing and I can see that NAET might well help FQ victims.

    • Kate (Destruida Los Restos) December 25, 2013 at 3:11 pm Reply

      No, you haven’t done yourself irreversible damage, or any longterm damage, by taking calcium supplements.
      Hi Catherine, I highly recommend a natural, vegan, pure food that has a silly name – Dr. Schultze’s Superfood Plus. It’s absolutely amazing and will give you complete nutrition. The website doesn’t give the full nutritional analysis, so ask them to send you the leaflet as well. Two years ago, I was so weak and I couldn’t eat and could hardly drink – I was just fading away – and a nutritionist sent me a sample. It gave me strength immediately and I started eating and drinking. I’ve recommended it to other people and it’s helped them, too.
      I’m almost entirely vegan and have been vegetarian for 45 years – if you eat sesame and other seeds, almonds, oats or oatmeal and plenty of fresh vegetables, especially dark green ones and carrots, you’ll get plenty of calcium. Also black, fermented rye bread and fermente vegetables such as sauerkraut are very good.
      You also need a LOT of Vitamin C, but not from ascorbic acid crystals or toxic Redoxon (now owned by Bayer, who added aspartame.) It’s much better to get your nourishment from food or whole plants, which contain a far more complex, comleat and delicate balance of living, lively nourishment, rather than bash-bang hefty doses of separate, dead vitamins and minerals. Just eat seeds, nuts, vegetables and fruit, with as many herbs and spices as you like – the more the merrier.

    • Teresa January 10, 2014 at 11:10 pm Reply

      I did have magnesium injections for a few months once. Twice a week. It seemed to help raise the levels some; I was taking oral magnesium too at the time. They were rather painful though; injected in the bottom.

  8. C December 12, 2013 at 1:18 pm Reply

    Thank you Lisa! I appreciate it as always!!

  9. Andre B. December 12, 2013 at 2:13 pm Reply

    Thank you Lisa! I tried reading that article Lisa, but it is quite scientific. I’m trying to distill it into laymen terms. We’ll see. Abandoning calcium has helped me heal my tendon issues I feel, but I am worried that I can’t go much longer without calcium. It’s a catch 22 unfortunately.

    The problem with this disease, like Lisa said, is that there is no absolute treatment and each of us is just experimenting around to see what works. I take all advice with a grain of salt and know that I am the best at understanding my own situation.

    Lisa is right. People do heal. The tendons in my kneecap, which were the first to have problems, have completely healed thankfully. However, tendon rupture occurred in my right ankle as well and I am still waiting for that to heal. I think setbacks are the worst. You get better, and then all of a sudden you eat something wrong and the symptoms resurface. These are by far the most mentally and emotionally challenging experiences I’ve been through. If it wasn’t my passion for life, I would have fallen into despair long ago. My thoughts and prayers are with all of you. Know that you are not alone.

    • sweetjan79 December 12, 2013 at 8:30 pm Reply

      Hi Andre and Lisa,

      To Andre: yes, our hearts are too shaken by this apparently deadly toxic but you guys are right , the milk are spill. we can only look forward to healing. our body are healer itself. Since you have problems with calcium, maybe you can consider Magnesium? I read from a source this “pharmacist” got duped into taking Cipro and has his explanation on healing.

      extracting his words:

      Magnesium May 27, 2013 at 13:39

      I am a professional chemist who has suffered the “side-effects” of Cipro. It has nothing to do with fluoride. The (2-carboxyquinolone) portion of the drug chelates metal ions like magnesium and calcium, and can upset the balance of electrolytes in your body. If you have the syndrome you are probably critically deficient in intracellular magnesium. It is very difficult to rebuild magnesium — in fact it cannot be done with ordinary OTC supplements because they are absorbed too slowly. You need to treat yourself topically with magnesium chloride solution (33%) and orally with about 0.5% solution. Take 1 tsp of this four times per day (or more) but do not swallow it right away. It will give you diarrhea. Allow it to be absorbed by holding it in your mouth for at least a minute before swallowing. Check with a doctor before beginning magnesium supplementation, as it is dangerous with certain conditions (for example, kidney failure). It is a disgrace that the drug companies have not researched their own drug sufficiently to have figured this out.

      source: http://www.the-spearhead.com/2010/06/21/fluoroquinolone-antibiotics-such-as-cipro-and-levaquin-ruin-lives/

      hope it helps!

      Good recovery everyone, lets’ keep each other posted 🙂

      Best
      Jarene

    • Lisa Bloomquist December 17, 2013 at 10:42 pm Reply

      Hi Andre,

      Here is my interpretation of the article. It was a difficult article to read and I literally had to read it 10+ times to understand it. My post doesn’t make it an easy read, but at least what I wrote is in more simple English. 🙂

      https://floxiehope.com/2013/12/17/article-breakdown-mitochondrial-reactive-oxygen-species-control-t-cell-activation-by-regulating-il-2-and-il-4-expression-mechanism-of-ciprofloxacin-mediated-immunosuppression/

      Thanks,
      Lisa

  10. Andre B. December 13, 2013 at 11:21 am Reply

    Thank you sweetjan for the information. Yea, I have been taking a magnesium supplement since June. It’s just a standard 250mg one you get at the grocer. I’ve been taking 2-4 tablets daily and it’s been helping. I know most people will say you have to use magnesium oil and liquids, but my knee has resolved itself just through OTC magnesium supplements. I sometimes use oil. For those who feel they need it then go for it.

    I definitely appreciate the conversation 🙂 Keeping each other in touch about what has or has not worked is the best us FLOXIES can hope for. So kudos for all those who have chimed in and will continue to do so.

  11. Jordan Paterson December 14, 2013 at 2:24 pm Reply

    Is there anti anxiety tablets that can be takes post flox? I’m currently still diagnosis and my symptoms are no where near as strong as most on this page but I believe it’s making it much worse? So would be beneficial to get myself in order to tackle it
    Thanks alot, Jordan

    • Lisa Bloomquist December 14, 2013 at 2:46 pm Reply

      Acupuncture and the herbs that my acupuncturist gave me helped me immensely with my anxiety. Meditation helped me quite a bit too. I took a class called Mindfulness Based Stress Reduction that helped a lot. Breathing exercises can help with anxiety. Staying away from negativity is probably good for you – if it’s possible.

      Some people take benzodiazepines to get through the anxiety. If you get on a Benzo to help with your anziety, please look up not only the side-effects, but also the effects of quitting and withdrawal. Benzo withdrawal effects the same GABA receptors in the brain as fluoroquinolone toxicity and it can be an additional thing to overcome. Brian’s story speaks a bit about both FQ toxicity and benzo withdrawal – https://floxiehope.com/brians-recovery-story-cipro-side-effects/

  12. Debs December 16, 2013 at 5:28 pm Reply

    I totally agree that the supplementing with magnesium is very beneficial to many of us, I would however just like to add it is not suitable for all. Anyone thinking of doing this please make sure get your kidney function assessed BEFORE implementing it, to make sure they are not/have not been compromisedMagnesium can be very hard on the kidneys. I myself am unable to go down this route, as the the FQs have irreversibly damaged mine, unfortunately resulting in chronic kidney disease.

    • sweetjan79 December 16, 2013 at 8:40 pm Reply

      Hi Debs

      Sorry to hear about your chronic kidney disease. how do you determine you have kidney disease and it’s symptoms? i’m asking this as i think it’s reversible and has hope with the right tonic. i just hope you won’t see your condition as “chronic” yet since there are so many wonderful herb to explore.

      wonder if you heard of the famous chinese herb called Lingzhi (known as Reishi mushroom), one of the wonders it cures is kidney problem. in fact Lingzhi works to detox and heal every organs in our body to function properly. i used to take it when my platelets went high and my doctor even want me to go take bone marrow test. i said no way! let me find a solution myself. i took reishi mushroom (capsule) for 3 months went for another test and platelets went down to normal level! so yes i save myself with this chinese herb.

      now my health is down and all time weak because of the stupid Cipro, i am thinking of taking Lingzhi back

      http://www.webmd.com/vitamins-supplements/ingredientmono-905-REISHI%20MUSHROOM.aspx?activeIngredientId=905&activeIngredientName=REISHI%20MUSHROOM

      • Debs December 17, 2013 at 5:09 pm Reply

        Hi sweetjan79

        Thank you for your reply, nice to meet you,

        I am a long term floxie having been floxed five times since 1988. All this has left me now with some permanent damage, including the kidney issues. Although it is often possible to reverse acute renal failure immediate damage to the kidneys ,which is sometimes caused by the FQs , ( I am wondering if it is this you are thinking of ), the chronic version of this , Chronic kidney disease ( failure) is unfortunately at the present time irreversible.,as it causes progressive damage to both organs, resulting in the eventual need for lifelong dialysis, to keep you alive it causes a condition known as Uraemia, ( the full spectrum of metabolic disorders that occur as a consequence of kidney failure which would, if you did not have dialysis result in death. Recovery of any sort does not occur unless you are able to obtain a transplant, which at present, is the only option available.

        It can be slowed down , via change of diet, drugs (( shudder )) etc, and the earlier it is caught, the better chance you have of doing this, and therefore delaying the need for dialysis as long as possible, sometimes it can be delayed for many years.

        Kidney disease is normally detected via blood/urine tests, & it is often picked up when you have blood tests for other reasons, In the early stages, you normally have no symptoms of it, & feel completely well, ( unless you are also floxed, when you feel so ill anyway would probably not not notice the difference even if you did have symptoms ).

        I hope this helps explain things for you a bit better.

        Debs .

    • Destruida los Restos January 5, 2014 at 1:57 am Reply

      Hi Debs, that’s one reason I recommend the hideously named Superfood Plus – it’s always better to consume a wholefood that contains a whole range of nutrients naturally balanced with the proper enzymes to digest them and not great, synthetic lumps of just one molecule.

  13. sweetjan79 December 17, 2013 at 3:55 am Reply

    Hi Lisa,

    Good day to you!

    I am close to 1 month after i got “floxed” and sometime now, i should be expecting my menstrual period. Sorry, ladies only topic 😛

    In fact, it’s a bit overdue by a few days expected to be now..but anyway, Lisa, do you felt any difference during your initial recovery period when coping with menstrual period? say, more painful at pelvic ?

    by the way, is there any way to determine if the effects of Cipro is still residing in our body over time? like tsunami, we are healing our damaged body like damaged homes when the first wipe of deadly wind is over but how can we be sure there is no “residing cipro” still lurking in our body somewhere that comes to revenge later on?

    I did ask my acupuncturist regarding this. she told me when the symptoms first appeared, it will appear more during this “danger time” as it’s releasing it’s toxic so she did ask me to wait out for another 1 month to be sure. meanwhile TCM works to reduce inflammation as much as possible so healing can take place. now i’m believing why some people always complain they don’t heal is because perhaps they didn’t work to reduce inflammation to the lowest during the earliest critical period and this pain escalate to a deeper, inflamed condition leading to chronic pain over time. so that’s why avoid NSAID, pain killer, steroid drug is so crucial as these drugs seek to mask pain and not cure pain.

    I’m now upping my Co Q10 to 2 per day coupled with a loads of multivitamin + mineral + tumeric + calcium + fish oil and liver cleanse day/night.

    Now i felt my tinnitus is somewhat under better control, lesser in volume but still there. but the tendons at my ankle , knee cap is still painful and occasionally i felt that “Stabs” when walking.

    the muscle twitching at the leg toes also lessened. the biggest problem as at now is to heal the tendons so it won’t affect our day to day activity. taking things slower now while healing…..

    Thanks Lisa again!

    Best
    Jarene

    • Lisa Bloomquist December 17, 2013 at 10:22 pm Reply

      Hi Jarene,

      Everything flared and got worse for me just before and during my period. I’m not sure if it’s because of the blood/iron loss (BTW, iron supplementation helped me a lot – I take a low-dose, but it’s the main supplement that helped me) or because of the hormone shifts or something else. Just be warned that periods can be harsh for Floxed women, and that the flare that comes with the period passes along with the period.

      Everyone takes a different amount of time to heal. Some heal in a matter of months, some heal over years and some, unfortunately, don’t heal. I am not sure if healing is indicative of the Cipro (or other FQ) leaving the body or if the healed person just compensates for the damage, or what exactly is going on. I know that the FQ “should” be fully metabolized long before most people find full healing. It’s strange and I wish that I had a better idea of how to think about it.

      It sounds like you are on a good path! I hope that all that you are doing works well for you!

      Best,
      Lisa

      • sweetjan79 December 18, 2013 at 1:08 am Reply

        Hi Lisa,

        Thanks dear again 😀 Hope you enjoy this festive celebration with a well recovered body 🙂

        Love
        Jarene

  14. sweetjan79 December 17, 2013 at 7:38 pm Reply

    Dear Debs

    Thanks for explaining to me about your Kidney condition and sharing your stories. I knew how you felt. We are all here because we have a common cause which is to get cured and floxed out.

    Sorry i am not well versed with kidney disease.

    I just hope my suggestion to introduce the Chinese medicine works for you because it definitely has much less side effects . There are wonders of TCM herbs that might work for you. from my knowledge, Lingzhi mushroom (also known as Reishi mushroom) is one century herbs that has miraculous healing on illness and on Kidney. it’s proven in the chinese medical book. according to my chinese sinseh, when we are poisioned from Cipro, the first organ it attack is kidney! and that’s one of the organ, besides Liver that needs detox as soon as possible,

    I am visiting my chinese doctor in Asia. You might like to check out a TCM doctor that’s in your state and you can see the difference 🙂 or you check if acupuncture helps you. it certainly unblock the stagnant flow in my body and i believe the more i go, the more stasis it can remove and allow healing to take place. it does takes time , faith and patience.

    my condition isn’t so good too. the common knee pain and ankle pain that’s making me miserable and other odds bodily aches. i am surely turning my back away from the western medicine and increase my rounds of acupuncture for healing.

    just last night my knee pain is acting up. i pasted some chinese herb plaster that aims to boost circulation. it works for now. at least i can move around more .

    Wishing you speedy recovery, Debs.

  15. Catherine December 20, 2013 at 12:02 pm Reply

    Does anyone know if nausea and vomiting are symptoms of floxing? Although I’ve had no appetite for the past four months, I have been managing to eat, but for the past few days I’ve had severe nausea every time I have anything – even water. My GP is going to test my liver and kidney function, but just wondered if other floxed people have experienced this?
    Thanks
    Catherine

    • Lisa Bloomquist December 20, 2013 at 12:14 pm Reply

      Hi Catherine,

      My nausea went away, and my appetite came back (for better or for worse) when I started supplementing hydrochloric acid (HCL – stomach acid). I think that an autonomic nervous system symptom of floxing is that HCL production can stop. It’s an easy and inexpensive thing to supplement, so you might want to ask your doctor about it. Others might have some advice for you as well. If you look at Bill’s story on this page, HCL supplementation helped him too.

      Best regards,

      Lisa

      • Catherine December 20, 2013 at 1:27 pm Reply

        Thanks Lisa. My nutritionist has got me taking digestive enzymes, but they don’t include HCL, so I will look into that. Could you tell me which brand you take please?

    • Lisa Bloomquist December 20, 2013 at 2:00 pm Reply
    • Destruida los Restos January 5, 2014 at 7:55 pm Reply

      I take nux vomica 30c if I feel nauseous. It always works.

  16. Andre B. December 24, 2013 at 2:36 pm Reply

    In terms of diets, can anyone comment about vegetables and fruits? Have you consumed legumes and fruits with no problem? Do particular vegetables or fruits make your symptoms worse, tendonitis, tendon rupture, etc.? I’ve been avoiding veggies and fruits for a while because I’m under the impression that calcium, which is contained in many of these foods, worsens my symptoms. But this is just getting ridiculous. I feel like I should be consuming these healthy foods.

    • Lisa Bloomquist December 24, 2013 at 11:28 pm Reply

      Hi Andre,

      I felt better when I started eating normally again. I eat just about everything. I try not to eat junk, but other than that, I eat what I want. That was my philosophy through most of my floxing. When I first got floxed I stopped eating everything other than veggies and organic meat. I didn’t feel good when I was doing that because I wasn’t getting enough calories and because I was going through the acute stage of my floxing. I felt significantly better when I added other things back into my diet. I have experimented with cutting out things like nightshade veggies but that didn’t seem to help anything so I added them back. I didn’t know anything about the possible relationship between calcium and floxing when I was going through being actively sick. I ate lots of things with calcium in them as I was recovering – including dairy products and all sorts of veggies. Take this opinion for what it’s worth, but I think that you’re going to drive yourself nuts if you try to cut out veggies. Getting floxed throws us into bizarro-universe, but veggies are still good for you (generally, probably, I think). Certainly don’t supplement calcium, but I would think that eating broccoli will still do more good than harm. Of course, I could be wrong about that. My basic advice is – try not to drive yourself nuts. A super-restrictive diet has the potential to drive you crazy. And most people who have recovered have done so while eating vegetables.

      Best,
      Lisa

    • Destruida los Restos December 25, 2013 at 3:40 pm Reply

      Hi André, I’ve written my recomendations above, in a reply to Catherine. Don’t be so neurotic about diet – avoid anything that makes you feel worse, avoid processed or chemically-treated food, eat lots of vitamin C and just plain, natural foods, but don’t fuss and worry about calcium, etc., as it’ll only make you anxious and waste money. Personally, I don’t eat pulses (legumes) and only very rarely bread – mostly fruit and seeds, olive oil and apple cider vinegar – but you may be different. Just eat food! Don’t cook things much – have lots raw.

  17. sweetjan79 December 26, 2013 at 1:10 am Reply

    Hope everyone has a great festive celebration despite being floxed.

    Among other symptoms, I found knee joint pain to be the most distressing. The ankle pain acts up on and off too.

    Next is the chronic leg fatigue at the end of the day, it felt heavy and uncomfortable.

    I asked my acupuncturist if knee pain and fatigue leg are similar problem or separate issue. she said it’s both nerve pain. Heavy and tired leg is a result of damaged nerve.
    Plus toxicity of cipro snap off magnesium at knee , losing our balance and mobility. imagine before cirpo, our magnesium at knee joint is working resiliently at the backend then cipro , being a tyrant boss, make them stopped working so magnesium become lazy and threw riot. it’s different from magnesium depleted off completely..this important mineral just took a backseat so we need treatment to enlighten them to wake up and start moving.

    while many are scared damaged nerve won’t heal, i too believe damaged nerve can be healed with acupuncture. what i wasn’t sure if tendonitis can be healed? i guess again it can with calcium, magnesium, glucosamine, fish oil, collagen. i seriously hope since i never suffer from any joint injury.

    by the way what are we exactly suffering from this cipro poisoning?

    some people said it’s fluoride some people said it’s an extreme imbalance of calcium/magnesium. the undisputed fact is cipro change our collagen DNA, attack our energy cells and damage our mitochondria of all which can be improve by taking the right supplementation

    ..but my top concern is if cipro really is fluroide poisoning at all?

    • Destruida los Restos December 26, 2013 at 9:08 am Reply

      Fluoroquinolones don’t contain fluoride; they contain fluorine. Quinolones were harming people long before fluorine was added. It’s the quinolone that does the harm, not the fluorine. (Beside, if fluoride were as harmful as you’re imagining, one glass of fluoridated tapwater would cripple you!
      Taking lots of supplements doesn’t guarantee healing and there’s no point in eating collagen – your body won’ty magically convert it into new sweetjan79 collagen! It’s as though you kept buying bricks, but the bricklayer’s ill and can’t use them.

    • Lisa Bloomquist December 26, 2013 at 3:34 pm Reply

      Everything that FQs damage is slow to heal. Nerves are slow to heal. Tendons are slow to heal. Cartilage is slow to heal. Everything. It’s really frustrating. I think that it does all heal though – with time. Lots, and lots of time.

      As for what Cipro poisoning is exactly, well, that’s the million dollar question, isn’t it? My current thinking is that it’s DNA damage, an autoimmune reaction and mitochondrial damage. I could be wrong about that, but it covers a lot. I’m working on getting more information on what is going wrong, but I don’t have it yet. If you look through the Links and Resources page on here, you’ll get an overwhelming amount of info.

      As for whether or not it is fluoride poisoning, a lot of people think it is, but I think that DNA damage, an autoimmune reaction and mitochondrial damage are more likely. I don’t know anything for sure though.

  18. sweetjan79 December 26, 2013 at 8:20 pm Reply

    Dear Lisa,

    Thank you truly. Thanks for your reminder that time is healer. It’s frustrating to forget time is the answer when we are living with pain. but as days go by, it will get easier. take this time to better ourselves.

    Yes i have the exact thinking like you too on cipro poisoning.

    I think it’s a good idea to take glucosamine. but ensure it comes with chondroitin and MSM. i felt it helps. i can’t say exactly i have made a big jump but at least a little better than yesterday. concurrently i also applied glucosamine cream on my joint.

    also, i read adding good fats to our diet help flush out this somewhat oil soluble drug. someone add 2 tablespoon olive oil + 2 of coconut oil to his dish and he is getting strong by day 5. hope it will be of interest to anyone who find this useful.

  19. Andre B. December 27, 2013 at 9:03 pm Reply

    Thank you all so much for your advice concerning diets. This website has been a lifesaver in terms of my sanity and trying to figure out this crippling disease. I just started introducing normal foods into my diet, veggies, fruits, some meats, etc. You all rock and I hope you all have wonderful holidays. Maybe the year 2014 will treat some of us better, I pray, I hope!

    • Destruida los Restos December 31, 2013 at 3:15 am Reply

      I forgot to say – and it’s very important – that, if you eat meat, fish or eggs, you should be very careful as to their provenance. It varies from country to country, but in most countries, antibiotics and especially FQs are routinely given to farm animals, even if they aren’t sick, as a preventative! (Thuis shows the combination of ignorance, disinformation, corruption and corporate power that are wrecking the world, as well as us, because we know that giving antibiotics as a preventative will do nothing but strengthen bacterial resistance and weaken the resistance of the aniamls.) Therefore, your animal products should be from small-scale, local, organically fed and antibiotic-free animals. Remember that fish are insensively farmed, too.
      Besides, why should we deserve to recover, if we’re consuming animals raised in intensive torture?

      Of course, all pharmaceuticals are tested to fatality onanimnals; if I’d remembered that and applied it my actions, I’d never have taken any pharma-med at all.

  20. Catherine December 30, 2013 at 6:42 am Reply

    Hi everyone,
    Thanks to all who have responded to my previous posts – am still navigating my way through the maze of symptoms and supplements! I started taking magnesium glycinate a week ago, and the myoclonic attacks have lessened a lot.
    I’ve just had some more blood tests to check liver/kidney function etc, and all are normal except my iron level is low. It’s always been fine before. Does anyone know if floxing causes iron depletion? Also, is it safe to supplement with iron after you’ve been floxed?
    Thanks x

    • Lisa Bloomquist December 30, 2013 at 3:12 pm Reply

      Hi Catherine,

      Anemia is one of the effects of FQs that is listed on the warning label – http://www.accessdata.fda.gov/drugsatfda_docs/label/2013/019537s082,020780s040lbl.pdf I became anemic when I got floxed. Iron is the supplement that helped me more than anything else. I take a low-dose iron supplement called Pur Absorb. It gave me more energy and it even made my tendons feel better. I don’t know if the brand makes a difference, but I am a big fan of iron supplementation, especially since your levels are low. I hope that it helps you as much as it helped me!

      Regards,
      Lisa

      • Catherine January 1, 2014 at 4:42 pm Reply

        Thanks Lisa. My doctor has given me Fersaday (Ferrous Fumarate) tablets 322mg. I’m not sure if I should take them because they contain lots of other ingredients I’ve never heard of, as well as iron. They’re a lot cheaper than Pur Absorb. Does anyone know if they are safe for me to take?
        Also, I read recently that people who have been floxed should avoid vegetables from the nightshade family, and also pulses. Do any of you know why this is? The list of foods I can eat is getting shorter and shorter!
        Thanks. Catherine x

      • Lisa Bloomquist January 2, 2014 at 10:50 am Reply

        Hi Catherine,

        I had to look up Fersaday so I don’t know any more about it than anyone else with google, but I did see this – http://www.netdoctor.co.uk/diet-and-nutrition/medicines/fersaday.html – and I think that it’s a good idea to ask your doctor if he or she is sure that your anemia is not due to vitamin B12 or folate deficiency. I don’t know if there is a way to test for this or not. Netdoctor says that it shouldn’t be used by people with anemia due to vitamin b12 or folate deficiency, so I’d be careful with it. With that said, like I mentioned, supplementing iron helped me immensely. If there are no long-term side-effects of taking it (ask your doc and do research on your own please), trying it out to see how you feel may not be a bad thing to do.

        Foods in the nightshade family have been shown to exacerbate arthritis. I cut them out for a while. I added them back into my diet after a month of not eating them because I didn’t notice a difference. Some people seem to be helped a lot by restricting their diet. I’m not one of those people. I feel best when I eat normally.

        Taking iron and eating whatever worked well for me. Maybe it will work well for you. I hope so. I don’t know though because everyone is different. It’s frustrating, I know, so sorry for not being able to give you more solid advice!

        xoxox

        Lisa

        • Catherine January 2, 2014 at 11:31 am

          Hi Lisa, thanks again for your reply. My doctor is phoning me on Monday, so will discuss this with her then. I think I was tested for b12 a couple of months ago, and was ok, but it might be worth testing again. As you know, it’s so hard when the doctor knows nothing about this problem (and is not really interested in finding out more!) I have an appointment with a private integrative physician in a couple of weeks. It’s costing a fortune, but I’m hoping that she may know more about quinolones. She has a lot of expertise in mitochondrial dysfunction in other diseases (CFS, fibromyalgia, chemical poisoning etc). Quite a rarity in the UK!

  21. Peter January 1, 2014 at 11:05 am Reply

    While I have enjoyed reading about the recoveries of everyone on here, I’m not convinced it will ever get better for me. I took Levaquin in June 2013, followed by Medrol (a steroid) a week later. Since then I have had more problems than I could ever imagine. My symptoms include burning of the face, numbness of the face, trouble breathing, nostrils that are clogged and do not allow in air (my nose is clear though), awful ankle pain to the point I can’t walk on it, dizziness, headaches, heart palpitations, migraines, the skin under my nails retracting (on both feet and hands), most of my nails losing their color and becoming see through, depression, left chest wheezing when I cough, etc. The symptom list is endless and new ones pop up all the time (the most recent was the clogged nostrils, 1 new nail having skin retract, and 1 new nail see through).

    I have been to numerous doctors, but none will listen to me or help in any way. My family doctor just tells me to take medicine and cover it up, I refuse to though. I’ve tried magnesium, multivitamins, and milk thistle. I’ve had MRIs, X-rays, a halter monitor, blood work, cat scans, and follow ups on them. My two brain MRIs have shown something abnormal in my left frontal lobe, which was not there before and they have no idea what it is.

    I’ve honestly lost all hope now. It’s been almost 7 months to the day since I took the medicine and yet I’ve shown no progress, only regression. My left ankle is at an all time high in pain, I can’t breathe, and more of my nails are becoming messed up.

    At this point, I’m not sure what to do. Can anyone help or suggest anything useful?

    • Lisa Bloomquist January 1, 2014 at 3:49 pm Reply

      Hi Peter,

      I’m really, really, truly sorry for all that you are going through! The pain, the destruction, the disregard and lack of answers from doctors – I’m so sorry to hear about all of it. I understand, and so do thousands of other people who have also gone through FQ toxicity. Understanding and empathy count for something. You are not alone. There are people on the facebook support groups that will be happy to offer words of wisdom and advice. They can empathize with all that you are going through. If you need and want the support group (there are pros and cons in joining support groups), the biggest one is here – https://www.facebook.com/groups/46690244194/

      I will do my best not to sound trite in my advice. Your feelings are valid and I don’t want to disregard them. However, if you can try to have hope that you will get better, hope is helpful in facing the next day. Please try to keep in mind that every day is a new day, and that today may be better than yesterday. Today may be the day that you stop getting worse and start getting better. Try to find something (anything) that makes you feel better, and stick with it. Meditation helped me immensely and it’s free. I highly recommend it. Try to believe that this will pass. It will. Everything changes. This is no exception. Most people recover with time. Everyone’s timeline is different, but most people do recover – their health starts to improve and they feel better and better each day instead of worse and worse.

      I think that all of the tips in the stories on this site are useful. Everyone’s path is different. Maybe picking a story that resonates most with you and trying what that person tried in order to recover is a good way to go. I hope that one of the stories, or all of them, can help you!

      I wish you the best and I hope that my advice doesn’t seem trite or dismissive. I wish you healing.

      Best regards,
      Lisa

    • Destruida los Restos January 7, 2014 at 8:31 pm Reply

      Hi Peter, a lot of people need and want hope and a lot of people do recover, perhaps not completely, but enough to be happy about it. However, that doesn’t suit everyone and not everyone will reccover. Personally, I’m not keen on vague hope – I like facts and to learn and learn. The one good piece of advice was to get some funny DVDs and the one helpful remark I ever had was from a French woman on a website that wasn’t related to FQs or drugs and I wasn’t looking for advice, just offering information: she wrote, “You’ll need a lot of courage; in any case, you’ve no choice.” Now that’s the sort of common-sense approach that suits me, but it wouldn’t suit everyone. I was sure within a short time – it was obvious – and between seven and eight months was when my muscles suddenñy withered – in less than three weeks, violent wasting (because of nerve death – if a muscle isn’t innervated, it dies.) My nails grew ridged and curved, skin so dry it’s like old crepe stockings, hair feel out, old scars reopened.. For me, it seems better to face the worst possible scenario, so as to be prepared, but for many people it’s the opposite.
      What people persist in calling “adverse reactions” aren’t reactions – they’re effects. The reactions are our individual emotional and intellectual responses to such a shock. Calling the effects “reactions” just plays into the pharma desires, as it implies that it’s our own stupid bodies choosing to behave badly in response to their nice druggies. “Auto-immune” is another – anything gets described as “auto-immune” and that way it’s your onw body’s fault. It’s nonsense – unless there’s proof of auto-immune behaviour, which there hardly ever is.
      You may not recover, but you’ll almost certainly reach a stable point and you can build a different sort of life that may turn out to be even more worthwhile than the orevious one – or not, in which case, remember what the French lady wrote to me!
      Also, we should all make it routine to count our blessings several times a day. Just think, we could have been blinded and disfigured and crippled even worse, just by a houseoild accident or some other mishap, so we should appreciate each moment of being able to see, for a start. Tomorrow may be better – great – or it may be worse, in which case we should enjoy today as much as possible. (Easy to say – harder to remember and do.)

    • Destruida los Restos April 1, 2014 at 9:27 am Reply

      Hang on! June 2013 – that’s not even a year ago! You appear to be alone with this – you need support and friendship. Personally, I can’t see any point in having scans, tests, etc. I’ve never known anyone healed by milk thistle or supplements, either, though some may help. You could join the Facebook 24/7 FQ chat line. Have you eliminated soy, all processed foods, anything that might exacerbate your symptoms? You could try an exclusion diet – first eat only pears and bananas for a few days, then add one food at a time. For migraines and headaches, try feverfew. Probably your breathing difficulties are due to autonomic nerve dysfunction, but will probably clear up within the next year. Give your ankle hot footbaths with a bit of mustard, then freezing cold footbath. Prop up your sad ankle on a cushion, stroke it gently and tell it you’re sorry. (I’m not joking.) It might benefit from having comfrey ointment gently applied while it’s hot. The feeling of blocked nostrils (which I still get) is, i think, due to dryness. Try to ignore it.
      Try to watch funny programmes or other things that may make you laugh. If you can’t work, try to find an occupation helping others – for instance, i volunteer for animal shelters, placing adverts to find new homes and translating things.
      You speak of recovery stories – I haven’t recovered much, in many ways am worse, have lost every penny and next month will be homeless, but I’m cheerful, so that’ll do.
      When you’ve checked your diet – nothing processed, nothing artificial, no coffee – you could try taking arnica for the shock, waiting a couple of weeks, then hypericum to see whether it helps with the PNS problems. Probably arnica 200c or even a higher potency and hypericum 30c or 60 or 200. They’re homeopathic remedies – they work, but they may not be the exact right ones for you, in which case they wouldn’t.
      Possibly none of these things will help, but none can hurt you and they’re all very cheap, so you may want to try them.

  22. sweetjan79 January 1, 2014 at 8:46 pm Reply

    Hi, hope 2014 marks a good recovery year!

    Has anyone tried Prolotherapy? Someone posted great success with this treatment in facebook. it looks so good to restore damaged tendons back to normal!

    someone in that post said such injection is not for newly floxed. not sure why.

    Lisa, what’s your view on this? Thanks in advance!!

    Just last night my right shoulder is so numb it sent tears to my eyes. My right shoulder pain just surfaced since last week.

    • Lisa Bloomquist January 2, 2014 at 10:11 am Reply

      I hope that 2014 is a year of recovery for you too!

      I don’t know anything about Prolotherapy, so, unfortunately I can’t give you any thoughts on it. Hopefully someone on facebook will be able to give you more information. Or maybe someone else will see this comment and answer your question. Sorry I can’t!

      I’m so, so sorry for the shoulder pain! Does anything seem to help it? Epsom salt baths? Acupuncture? I hope that you get some relief soon! I wish that I could be more helpful in this post. :/

      xoxo

      Lisa

      • sweetjan79 January 3, 2014 at 12:24 am Reply

        Hello my dear,

        Thanks for your encouraging words. I am seeing my acupuncturist this sunday, hopefully she can assess again. a few sessions back when this shoulder pain acts up (never before do i have any shoulder pain before cipro..) she started poking needle in. perhaps i need more drills to bring this down.

        i think the numbness might also indicate peripheral neuropathy. so i added in Alpha lipoic acid to my multi vitamin to up ante the alpha lipoc acid component.

        recently i also started adding chlorella. read this super power algae is able to bind to any toxin and flush out through fecal. it has good amount of chlorophyll and amino acid. took 25 small green pills daily. hopefully it flush out more remaining cipro before any more new damages is made.

        urgh…the recovery road seems so long .

        have a great weekend, Lisa!

  23. Catherine January 2, 2014 at 4:22 pm Reply

    I wonder if anybody else who is recovering or has recovered has had an experience similar to mine? A couple of weeks ago I felt that something in me had changed for the better. It was very subtle – I was still bedbound with horrible symptoms, but I felt somehow lighter and more cheerful. My sense of humour came back, and I felt more positive and optimistic. And I also felt a slight increase in energy, and no longer felt like I was dying all the time. I thought that maybe this was the ‘turning point’ that people talk about, when recovery begins. And for the next two weeks, although the symptoms carried on as before I did feel that something had shifted. A subtle feeling which is very hard to describe. But since yesterday I have felt that I have gone straight back to square one – feeling ghastly all the time – and now I’m wondering if I just imagined that I was feeling better! Have any recovered floxed people had a similar experience at the start of their recovery? Or is it usually a more substantial feeling of improvement at the beginning? I’m not sure if this post makes much sense, and I know that symptoms wax and wane throughout recovery. But I was just so happy to think that my recovery was beginning after being bedbound for months. I even started planning a summer holiday with my children! I would be really interested to know if anyone else went through episodes like this, and whether they felt it marked the beginning of recovery.
    Thanks.
    Catherine x

    • Crystal January 2, 2014 at 9:59 pm Reply

      Hi Catherine,

      I do believe this is a very good sign! For me, it was subtle as well – this morning for example, I just realized it is easier to get out of bed than just weeks ago (emotional-wise) but my physical healing process was the same. Up, up, up! Then crashing back down, and with it, the feelings as well. I am just thankful to know that it’s normal and has nothing to do with being worse-off in comparison to other floxies. But the fact that you had an upswing is WONDERFUL! From here on out, it may jump back and forth – but know that, in my experience and many others, each upturn lasts longer, with shorter relapses between 🙂 Happy new year, Catherine, and I hope so much that you take that holiday with your children this summer.

      Crystal

      • Catherine January 3, 2014 at 4:15 am Reply

        Thanks Crystal
        This is such a cruel disease, isn’t it? It helps so much to know that my experience is ‘normal’! The improvement was not so much physical as emotional. I had my sense of humour and fun back, like I had some of the ‘old me’ back again, and I was more outward looking and able to relax and connect properly with my family. It was so nice for them too. Now I’m back to feeling like I’m drowning in all the physical symptoms again. I just hope that this doesn’t last too long.
        I’m so glad you’re improving again. May 2014 be a much better year for all of us!
        Catherine x

    • Lisa Bloomquist January 3, 2014 at 12:45 pm Reply

      Emotional and mental improvement, even fleeting improvement, counts for a lot! I found that meditating really helped me to see beauty and goodness in the moment. It helped me to concentrate on the goodness and beauty that exists in the world, and that helped me to cope with the pain, fear and anxiety. I hope that your improved state returns! It’s in there.

      Catherine – some floxies have seen improvement while on low-dose naltrexone. It may be something to ask your doctor about.

  24. Sarah January 3, 2014 at 9:25 am Reply

    I would love the opportunity to share hope. I was floxed severely by Cipro in 2011. I had over 50 symptoms, the worst of which was irretractable severe insomnia. I’m happy to report today that I only have 4 symptoms left and they are much milder. I’ve accepted that they may be permanent and it doesn’t scare me anymore. I’m able to live my life the way I used to. I’m happy to share what helped me although I know everyone esp. floxies are different. God Bless.

    • Catherine January 3, 2014 at 11:54 am Reply

      Hi Sarah,
      Thanks for sharing your story. I’m so pleased you’re better. Could you please tell us more about what helped you recover/what didn’t etc? I’m very ill and bedbound at the moment. Stories like yours inspire me not to give up hope.
      Catherine x

    • Lisa Bloomquist January 3, 2014 at 12:27 pm Reply

      Hi Sarah,

      Thank you so much for reaching out! I would love to post your story on Floxie Hope! Can you please email it to me, along with a picture that you would like to go with your story (it can be a picture of you, or a generic photo) to lisa.bloomquist@yahoo.com? As Catherine mentioned, stories of hope and healing inspire those who are sick to make it through. Please let me know if you have any questions. Any format is fine, any length is fine, etc.

      Thank you!

  25. sweetjan79 January 4, 2014 at 8:57 am Reply

    Hi Lisa,

    Often we know joint pain is a common problem of cipro, does your shoulder and knee cap gives a cracking / popping sound when you move the affected part?

    Its sign of the tendonitis right?

    Thanks again for your help

    In hope of recovery,
    Jarene

    • Lisa Bloomquist January 4, 2014 at 11:49 am Reply

      Hi Jarene,

      Joint popping is a common problem of getting Floxed. It happens to lots of people. I think that it’s from a destruction of all tissues that are in your joints – tendons, cartilage, muscles, etc. Tendons and cartilage are slow to heal, but I think they do heal. My musculoskeletal problems weren’t as bad as many. Mine healed. I think that swimming / water therapy and (gentle) pilates helped me a lot. Be careful, of course.

      xoxo

      Lisa

    • Destruida los Restos January 7, 2014 at 8:44 pm Reply

      It may be due to cavitation – tiny bubbles in the synovial fluid – or it may be because our tendons are softened and stretched, so they don’t pop into place immediately. I don’t think anyone’s sure, but it’s not dangerous and will go.

  26. Catherine January 4, 2014 at 11:22 am Reply

    My episode of feeling a bit better came after I started taking magnesium 600mg per day, so I assumed the improvement was caused by this. Now I am feeling dreadful again, do you think this means the magnesium isn’t helping after all? When other floxed people say something was helpful in their recovery, was it consistently helpful, or did you still have times when it seemed like it wasn’t helping? I’m still taking magnesium but am wondering g if it’s worth carrying on with it.
    Thanks
    Catherine x

    • Lisa Bloomquist January 4, 2014 at 11:59 am Reply

      Hi Catherine,

      Magnesium helps most Floxies. I have stuck with magnesium supplementation. Whether or not you should depends on how you feel.

      I don’t think that healing is totally linear. There are bumps in the road for almost everyone. Some days are good, others are bad. It’s nice when the good days start to outnumber the bad. That may take a while to occur. Hopefully, when you have a setback after a good period, your setback isn’t as bad as you felt before you felt better. Sometimes you get setbacks that hurt more than you hurt before. It happens. You can still get better. You can still move forward and upward and keep healing.

      If you read Bill’s story, he had some set-backs that lasted a while. He still healed. It took some time, but he made it through.

      I know that you’ve been hit really hard and that it’s frightening. I think that believing that you will get better, that you will improve, can help though. Hope is really helpful.

      xoxo

      Lisa

  27. casey January 4, 2014 at 3:36 pm Reply

    Hi its casey again my joints have been popping especially the elbows and shoulders and I don’t remember them doing it as much it isn’t followed by discomfort or pain. Im still able to do everything the same as before like heavy lifting and my stretches nothing hurts or pops that much while im doing these activities but when im at home relaxing then suddenly move that’s when they pop. I am experiencing golfers elbows with both sides but mainly the left one, I was experiencing this just sometime after I was done taking cipro and at that time was not doing anything streuous. I have never even heard of golfers elbow until my friend confirmed it for me and he knows these things he’s a personal trainer. Im going to get checked out soon but was wondering if anyone has had the same experience like me? I just don’t know what to say to the doctor I don’t want him or her to think Im losing my mind.

    • Lisa Bloomquist January 4, 2014 at 6:52 pm Reply

      The delayed feedback of pain is really annoying, to say the least. I had the same thing happen. I would be okay while I was doing an activity but an hour later my joints and tendons would be inflamed and I wouldn’t be able to walk. That has gotten better, along with everything else. I had to switch my activities to low impact activities. No more crossfit. I can still swim though. I can still do pilates. I can still hike. I’m okay with not being able to do high-intensity activities. It’s possible that I may be able to do high intensity things again and I just don’t want to – I honestly haven’t pushed myself.

      Basically, the delayed feedback is normal for being floxed.

      As for what to tell your doctor, it’s something that we all struggle with. Here are a couple of things that I have heard that doctors are responsive to –

      Click to access Hall-2011.pdf


      https://skydrive.live.com/view.aspx?cid=B0735325185D9D26&resid=B0735325185D9D26%21149&app=Word

      There are other good docs in the links and resources page.

      Best regards,
      Lisa

    • Crystal January 4, 2014 at 7:45 pm Reply

      Hi Casey,

      I feel like I’m about 85% my normal self at this point, but the one problem I have that persists is the popping and cracking, everything! From my wrists to shoulders, hips and achilles. Like you, it’s not painful. It wasn’t until you mentioned that it happens after relaxing that I realized this is the case with me. When I’m active, it doesn’t happen. It’s painless, but nonetheless, this did not happen before becoming floxed (my knees did crack, but never popped like they do now).

      I was floxed at the end of July at the age of 28 – as I said, I’m much better now but the popping is becoming more widespread as time goes on, but it is never painful and doesn’t limit my activity. I’m sorry I haven’t any advice on your elbows. I wish you luck.

  28. Sandra January 7, 2014 at 3:11 am Reply

    Hi,

    I run into this site while looking for organic food.
    My question is the following:
    If those drugs change your DNA (so, are you GMOs?), is it then possible to fully “recover” just by undergoing acupuncture and some diet?
    Have a nice day!

    • Crystal January 7, 2014 at 12:55 pm Reply

      I’m not sure of the tone or intentions of this comment, but I’ll answer your question with my own opinion.

      When floxed, we are desperate to feel better, and regain some semblance of our lives before.

      After our lives are thrown upside down, some, including me, find a feeling of control over their health by taking supplements. I don’t believe anyone “fully recovers” but do FEEL normal again in their day-to-day activities – which is enormous, because when floxed, no day is normal (just sitting caused pain in my legs, I was 28, in shape and vegetarian and ate organic, keep in mind I could very well have been you stumbling on this site). Now that I feel better for the most part, I no longer take supplements – this is probably because I feel like I’m in control of my life again.

    • Destruida los Restos January 7, 2014 at 3:16 pm Reply

      Hi Sandra, we think that quinolones can alter the DNA of some mitochondria. In our cells, we have organelles called mitichondria and they have their own DNA which isn’t the same as the DNA of the cell itself. The DNA of mitochondria is in a circle, like the DNA of bacteria, so the quinolones can’t tell the difference. So we’re probably a bit GMO, but not as though we’d had our main, straight-line DNA altered. In my case and some others, you can see that the cell structures have been altered – sagging skin, etc. Your question is relevant and perceptive and I think the answer is that, in many cases, the damaged cells with their damaged or mutant mitochondrial DNA can be replaced and that some supplements, diets or other therapies make this possible and more likely, though not certain.

    • Lisa Bloomquist January 8, 2014 at 10:35 am Reply

      Hi Sandra,

      I wrote a post that addressed the question of “Are you GMOs?” Here it is – http://www.collective-evolution.com/2013/10/23/genetically-modifying-humans-via-antibiotics-something-you-need-to-know/

      There is a difference between damaging DNA and modifying DNA. Lots of things damage DNA – sunlight, pollution, stress, etc. Fluoroquinolones may be categorically worse because they adduct to DNA – that means that they attach to DNA. Here is an article about that – http://www.jbc.org/content/273/42/27668.full It should be noted that the DNA adducting properties of fluoroquinolones are not generally accepted or recognized – so some skepticism is appropriate and won’t be taken as offensive.

      Whether or not the damage done by fluoroquinolones to DNA is correctable is a question that I don’t know the answer to. I believe that our DNA does repair and “patch” itself. I know that recovery and healing does occur. I don’t know if recovery and healing occur because the DNA has repaired itself or because the body repairs other damage done by the fluoroquinolone – like correcting the cellular magnesium deficiency and increasing antioxidants in the body. I would certainly like to think that healing occurs on all levels. I’m a fan of thinking that acupuncture, music, light therapy, water therapy, etc. can help to repair DNA. I don’t know that those things are backed up by any evidence though. I find them to be healing none the less.

      The notion that these drugs may permanently damage DNA makes them quite consequential. It makes me really sad to think that I may have damaged the precious DNA that was passed down to me from all of my ancestors, each who was a survivor in every sense of the word, with a stupid antibiotic. I suppose that my lesson was learned. Now I know.

      Thanks for visiting Floxie Hope and please let me know if you have any other questions or concerns.

      Regards,
      Lisa

  29. Catherine January 7, 2014 at 2:00 pm Reply

    Hi again
    Recently the burning pain in my legs and feet has got much worse. Is this peripheral neuropathy? Sometimes it feels like I have had acid poured over my skin – from my scalp to my toes. Has anyone else had this, and did it get better over time?
    Thanks
    Catherine

    • Destruida los Restos January 7, 2014 at 3:41 pm Reply

      You have a central nervous system (brain and spinal cord) and a peripheral nervous sytem, http://biology.about.com/od/organsystems/a/aa061804a.htm or do a search and find millions of pages and images. Peripheral neuropathy means any disease, dysfunction or illness of the PNS, including the sensations you feel (which will pass, eventually, but it could take a very long time.) Hypericum is a very good homeopathic remedy for any nerve damage or pain – you could try taking hypericum 30c or even 60c or 200c, dissolving one pill under your tongue (in a mouth free of food tastes or toothpaste, etc.) and again after a few hours, stopping if and when you feel a change. To soothe burning, you can use cold, black tea, calamine lotion, ice or very cold flannels.

    • Lisa Bloomquist January 8, 2014 at 10:20 am Reply

      Hi Catherine,

      HUGS!!!!! I’m so sorry for everything and I’m so sorry that you’re getting worse! What you describe certainly sounds like peripheral neuropathy to me. Have you found a doctor who is willing to at least listen to you? If so, he or she would be able to tell you more than I can. I know that you struggled with finding a doctor who listened to you, and I’m so sorry about that too.

      Do any supplements help or hurt this symptom? One person mentioned in one of the floxie facebook groups that too much vitamin B12 could have an ill effect on hair follicles and skin. I don’t know much about it, but maybe it’s something to look into. Most people respond well to supplementing vitamin B12 though, so I’m not trying to scare you away from it. It’s just something to maybe research and experiment on yourself with.

      I hope that you have another upswing again! I’m guessing that it’s disheartening to feel worse again after you had a moment of feeling better. You have my caring thoughts from across the pond!

      xoxo

      Best regards,
      Lisa

      • C Pomfrett January 8, 2014 at 10:31 am Reply

        Thanks Lisa! I am struggling to cope again. But my appointment with the private doctor is next week, so I’m just hoping and praying that she will be able to help me. Thanks again Love, Catherine xx

        Sent from my iPhone

    • Debs January 10, 2014 at 5:32 am Reply

      Hi Catherine, How are you feeling ?,

      I was just wondering, whether you are on Facebook ? I know you are concerned about joining any of the groups at present, but I was wondering , although of course I in no way profess to know everything about FQ toxicity,& without meaning to sound big headed at all I do know quite a lot & may be able to offer you further support. If you wish to send me a friend request,we could discuss things on the subject via PM, It would be another way for you to obtain information, support on floxing until / of if ever you feel ready to join the groups.

      (( hugs ))

      Debs.

      • Catherine January 10, 2014 at 11:11 am Reply

        Hi Debs
        I’m not doing too well unfortunately. I did feel a little better just before Christmas, but since then have slipped down even lower than before, so finding it hard to stay sane. The anxiety and horror attacks are very severe at the moment. I did join one of the Facebook groups a while ago, but have cancelled it for the time being, because my anxiety was spiking all over the place. I will try again at a later date when I’m feeling a bit stronger. But I would like to email you for your knowledge and advice if that’s ok? I don’t feel I have a lot to offer fellow floxies at the moment – hopefully I will reach the stage where I can make a useful contribution instead of just asking questions! At the moment all of my energy is going on trying to control my own mental state, and also trying to help my daughter who has developed some mental health and behavioural issues as a result of what’s happened to me.
        How are you? I hope things are going ok for you.
        Love, Catherine x

    • Debs January 10, 2014 at 10:50 am Reply

      Whoops Sorry Catherine, following on from my last comment I forgot to give you my full name, so you can find me on fb if you so wish.

      Its Debs Cassidy .

  30. Joanne January 7, 2014 at 7:02 pm Reply

    Gulf War Syndrome was caused by a sandflea infecting it’s victims with a sphirochete not unlike that associated with lyme disease. The govt. was treating its Gulf War patients with 400mg of fluconazole each day. If you want the article I refer to I can go into my files.

    • Destruida los Restos January 7, 2014 at 9:12 pm Reply

      There’s absoluetly no evdience or proof of that – it’s just a suggestion and one would expect them to make such a suggestion, comsidering the alternatives! Cipro was one of the medicines given to troops and it was in plain packs, but some soldiers saved a pack or stole an extra one and got them analysed later and they were Cipro.
      Look for proper medical documents about the sand flea suggestion and you’ll find no evidence at all that they cause GWS, though they may contribute. (Search on medline if you’re interested.)
      The sand fleas you mention can carry several different diseases, inlcluding bartonella and leishmaniasis, but those would be contributory factors and would not cause the violent symptoms effects of GWS. Obviously they’ll never say that GWS was caues by the mix of meds and vaccines given to the military, let alone that Ciproi was invloved – imagine the compensation!

    • Lane January 8, 2014 at 9:49 am Reply

      I commented on this under the Lisa’s most recent Gulf War post – spoke with a vet this week who was forced to take CIPRO twice a day while deployed for 10 days, he described the experience himself and it wasn’t for fleas. BTW – I’ve lived in Iraq 1 year and Kuwait for almost 4 now and I’ve never seen nor heard of a sand flea in these deserts; neither from other ex-pats, or Kuwaitis.

      • Teresa January 8, 2014 at 9:10 pm Reply

        Maybe it is the drug that made him sick, not the fleas.

    • Lisa Bloomquist January 8, 2014 at 10:13 am Reply

      I’d like to read the article. If you want to either link to it in the comments or send it to me through the Contact Me link, I’ll take a look at it. Sphirochetes can be nasty, there is no doubt about that, but I do doubt that it is the reason behind Gulf War Illness, or at least not the only reason, because, like Lane mentioned Kuwaiti citizens don’t seem to suffer from Gulf War Illness.

  31. Destruida los Restos January 7, 2014 at 9:19 pm Reply

    Lisa, further down in that article it mentions calium in the context in which you discussed it, but it’s 4.27 in the moring and my eyes sting – I must sleep – so didn’t read it all.
    I’ll send you a very interesting article later.

    • Lisa Bloomquist January 8, 2014 at 10:07 am Reply

      Thanks again for everything, Kate! I look forward to reading the article! I hope that you were able to sleep well.

      • Destruida los Restos January 8, 2014 at 12:30 pm Reply

        I’ve emailed it. Oh, it’s nothing to do with sand fleas and so on – you can find a few articles about that just by googling, but it’s not at all an explanation of GWS.
        No, this is an article you’ll love, by a homeopathic doctor who uses bio-resonance and is currently treating a friend. It’s called “A Statement of Hope, Indeed, to Fluoroquinolones’ Victims” and is by By Savely Yurkovsky, M.D

      • Lane January 8, 2014 at 9:13 pm Reply

        I made an appointment with Dr. Yurkovsky for December but was unable to return to the USA and had to cancel. He practices something know as Field Control Therapy (FCT), I found a white paper on the subject that I can send if you are interested (it’s not exactly summer reading btw). It would be very interesting to hear about your friend’s experience at his clinic and if he/she experienced any marked benefit.

      • Destruida los Restos January 9, 2014 at 3:40 am Reply

        Wordpess doesn’t organise the Reply buttons well, does it? In reply to Lane: Thank you, but I’ve alreeady got his website and several other sites and studies. In fact, Lisa probably already had them, too – I don’t know, as I rarely bother about FQ news or blogs or anything; we’re destroying all life on earth, anyway, so why should I care especially if you or I or even my best friends are suffering? I’ve had a foul time, but I’ve never for one instant blamed anyone but myself or thought, “It’s not fair.” These drugs were tested on puppies, who ere in agonyh and had to be destoyed; all the drugs and artificial products we use are so tested. Obviously, if the doctor had said, “I’m prescribing a drug that’ll wreck your life,” I wouldn’t have taken it, but also if he’d said, “I0m prescribing a drug that was tested most cruelly on beagle puppies,” I’d have rushed out of the office, put my brain in gear and not taken any pharmadrug. BUT I DIDN’T THINK, DID I? I knew that drugs are tested on animnals – I must have known, surely, or if I didn’t then I damn well should have. That’s just one reason it’s perfectly fair. Then there’s oil (petroleum oil) and all its derivatives, nuclear power and its derivatives, all synthetics and non-.bio-degradables, every time I’ve fed a cat on dried junk food without stopping to think, the nylon electric ribbon I used to fence fields.. Unless we can swear that we’ve lived entirely ethically and harmlessly, what right have we to complain? I don’t really care how much we’re suffering, but I care like hell that the animals raised for meat must be suffering just as we are, yet I see FQ victims complaining because they can no longer feed off thiose tortured darlings.

        Our morality is very selective indeed, our intellects lack rigour to the pount where it might be better if we never spoke or wrote anything at all, our emotions and priorities selfish in the extreme. There are very few humans to whom those judgements don’t apply, but most of us had a lot of choices.

        • Teresa January 9, 2014 at 10:23 am

          Destruida, this is a website for supporting each other.

      • Destruida los Restos January 9, 2014 at 3:55 am Reply

        Sorry, I didn’t finish replying. I don’t know any details of how she’s doing, as it’s only been a couple of months and she’s trying not to use any electronics such as cell-phone or computer, but she sent me a short email a few days ago and sounded very different already, making plans and laughing.
        I’d be surprised if he couldn’t help her, as it’s all common sense really, but we’ve got used to the opposite. “Truth is lies,” etc. (Orwell, 1984)

  32. Destruida los Restos January 9, 2014 at 4:09 am Reply

    This is a Field Control Therapy practioner in the U.K., in case anyone’s interested.
    I always use Ainsworths Homepathic Pharmacy in London (though I left the U.K. decades ago) but that one time I thought it’d take too long and I was in pain, so I went to a doctor here instead – oops!

    • Destruida los Restos January 9, 2014 at 4:11 am Reply
    • Catherine January 10, 2014 at 2:51 am Reply

      Does anyone know of anyone who has tried treatment with “homeopathic cipro”? I wonder if people have found it helpful?

      • Destruida los Restos January 10, 2014 at 10:02 am Reply

        Until the time I took the FQ, I had hardly ever taken a pharmamed; my main attitude to illness was, “Ignore it and it’ll give up and go away.” If that didn’t work, I’d use homeopathy or herbs and diet or other natural things. I only went to a doctor that last time because I was travelling in Spain, it’d have taken too long to ring Ainsworths in London, no homeopaths here and I thought, “I suppose it can’t hurt, njjust this once.” Couldn’t have been wronger, could I!
        The reason I say that is to tell you that I’d been familiar with homeopathy for decades, in fact since I was young (and with herbs and proper food.) I did save my last FQ tablet, wondering whether to ask Ainsworths to make me a potentised remedy, but I’d read how it enters all our tissues and has been found in the bones of animals; also, homeopathy stimulates our natural defenses, but I didn’t and don’t see how that could happen as we have no natural defences against such chemicals, so I decided it probably wouldn’t work, or at least not on its own, just like that. I’ve still got the tablet, though, in case!
        However, this Dr. Yurkovsky reckons that, if we can detect which other toxins we have in us (and where and since when, I assume) using bio-resonance, then we can use the appropriate homeopathic remedies to get rid of those and then the FQ. It also depends on things like avoiding electro-magnetic fields (cell ‘phones, etc.) and other things. He has a website: http://www.yurkovsky.com/
        I don’t know of anyone who’s tried a homeopathic potency of their FQ; I take my tablet out and look at it sometimes, but I’ve only got one and don’t want to waste it! You could email Dr. Yurkosky or the Phoenix Clinic in Tunbdridge Wells. One good thing about the U.K. – you have some excellent homeopaths.

      • Lisa Bloomquist January 10, 2014 at 10:17 am Reply

        Several people have tried homeopathic doctors and remedies. Honestly, I haven’t heard any reports back from them. I’m not sure what the silence means. One could surmise in any direction. I haven’t heard that it’s the magic cure, but, to be fair, neither is Western Medicine, Traditional Chinese Medicine or any other form of medicine that exists at this time. I imagine that some people react well to homeopathy and others don’t, just like some people react well to acupuncture and others don’t.

        I would love to hear from anyone who has a positive or negative experience with homeopathic treatments for FQ toxicity.

      • Destruida los Restos January 10, 2014 at 10:52 am Reply

        Reply to Lisa, above: I’ve used lots of homeopathic remedies since ”floxing’ and they work like magic, as always. But I’ve used them to treat individual symptoms and effects, rather than to try to treat the whole toxicity syndrome. When I have time, I’ll try to list what’s helped me. There’s Sarah someone in the FB group and Christina, who got started in homeopathy when I wrote about it – those are two who use it and love it – three including me – but I’m sure there are others. (I’ve put two here – nux vomica and eufrasia.)

      • Lisa Bloomquist January 10, 2014 at 11:09 am Reply

        Replying to Destruida los Restos (you’re right – these reply buttons are not arranged well) – If you don’t mind, I will refer homeopathy questions to you because I know very little about it. I’m so pleased to hear that it has worked well for you and I hope that it works well for others too!

  33. Debs January 9, 2014 at 7:22 pm Reply

    Lisa started Floxiehope ,with the most wonderful idea of creating somewhere we could go to, where we could escape for just a little while & find some positive vibes, give us some HOPE for improvement, & for people to tell their stories who have recovered from FQ toxicity, yes RECOVERY !. People CAN recover. It was an uplifting happy place,& has always done me the world of good.

    I have been monitoring this thread for a while & I must say, am becoming rather concerned on the way it seems to be deteriorating, I have been however, holding my counsel up until now, but the recent comments above, particularly todays have left feeling I must now say my piece, as IMO I feel enough is enough.

    Destruida los restos, you make many interesting points of which some i am in full agreement with, however todays comments I take issue with. With respect, although i am impressed with your strength & passion regarding mistreatment of animals, there are many other more suitable places I feel that comments can be made regarding animal rights/advocacy, & believe me i am well known for my love of all creatures, please leave them in a more appropriate place,although in the grand scheme of things it matters a great deal that animals are tortured, for many reasons, IMO these comments, written in that context, do not really belong here.

    I will also give you the the benefit of the doubt that maybe you are feeling depressed, & perhaps that is reason why that particular comment has been made in that vein, as to regards you caring or not about others. I say this, although you are entitled to your opinion, as that particular comment left me feeling VERY depressed, indeed.

    You state that you rarely bother anymore about FQ news blogs etc, & obviously that is your choice, but to be honest it shows, in a lot of ways in your comments, particularly in your comment of Dec 26th re the Quinolone Fluoride per se &, fluoride/fluorine connection. & what may be responsible for the resulting damage caused.by the fluoroquinolone antibiotics

    Firstly, you are quite correct in your assertion that quinolones were causing many problems before the fluorine was added, NALADIXIC ACID first marketed in 1962 is in itself a listed documented carcinogen, so it is not surprising.

    There is however contrary to your statement, a connection of sorts between fluoride & fluorine although not many people are aware of this fact. It is as follows :

    Fluoride is the inorganic anion of the element fluorine, the compounds of which are known as a group as fluorides.
    Fluoride, & therefore by extension and more so fluorine, are general protoplasmic poisons,this was first mentioned as such in the American medical association editorial on sept 18th 1943.

    Fluorine F1 ( a protoplasmic poison,), is attached to the carbon molecule, which forms the pharmacore of the fluoroquinolones.
    The fluorine- carbon molecule was attached to the original quinolones in order to make them much more powerful ( toxic ),so as to make it easier for the drug to drive deep into every cell of the body, including making it far easier for the drug to cross the blood-brain barrier, & of course it also has the end result of saving the pharmaceutical industry a LOT of money, as by them doing this, less of the active ingredients are needed.

    The fluoroquinolone antibiotics to the best of my knowledge elevate serum fluoride levels.

    As far as you comment re fluoride itself is concerned Destruida los restos, I am sorry to say you could not be more wrong, as regards to its toxicity, & effects on the human body.

    Fluoride is a cumulative poison. A neurotoxin, It has been linked to brain damage & learning disabilities Only 50% of any fluoride ingested is ever excreted from the body, you will NEVER remove it. It builds up over many years in places such as the bones, causing a condition know as skeletal fluorosis ( the early stages of skeletal fluorosis are often mistaken for arthritis) & it is no coincidence that this diagnosis is more common in older people. it builds up in the teeth, many children develop a condition known as dental fluorosis, It is also particularly attracted to the pineal gland, which over time it will calcify.

    The pineal gland, among its many important functions controls our circadian rhythm, fluorides are suspected by many including myself to play a role, although not the whole story by far, in the horrendous intractable insomnia a great number of us experience, sometimes for years. This insomnia is known in many to resemble a circadian/delayed sleep phase disorder, myself I have only slept 3-4 hours a night EVERY night since january 2011, apart from the times i do not sleep at all( as far as this is concerned, so far my record is 72 hours) I cannot get to sleep until 3am, I will be awake without fail by 7am I constantly feel I have drunk way too much coffee, I now understand why sleep deprivation is used as torture.

    As far as the fluoride added to the water supply, this is NOT as many believe sodium fluoride, but is instead something called HYDROFLUORIC/OSILICIC ACID. Hydrofluoric acid is a chemical byproduct of the manufacture of the aluminium,steel,phosphate, fertiliser, cement, nuclear & other industries & a couple of a similarly named toxic cocktail of chemicals are used in parts of the UK & Ireland.

    This is what we are drinking, every day , I would say YES it will eventually cripple you.

    Anyone who would like to find out the corruption/history behind this atrocity, please watch the documentary” the fluoride deception” & similar on YouTube. Believe me,you will never touch tap water again.

    I must apologise Lisa for this war & peace length post, I do not often get on my soapbox, but felt I had to speak out here.

  34. sweetjan79 January 10, 2014 at 1:59 am Reply

    Hi Lisa,

    How are you coping? I know by good faith, you are doing well . I have been appreciating your marvelous sharing! I can’t thank you enough for your wonderful creation of Floxiehope. You keep me moving even in darkest moment. I don’t comment here
    often but I nest in the comfort of your words everyday. Thank you, again.

    Yesterday i ordered Modified CItrus Pectin for detox. have you heard of it? read that some floxie have success with this. i was skeptical because people share it works seems to be the salesman behind but ..after some checking of their background/facebook profile, they don’t seems to be affiliated with this company. so with a small leap of faith, i just buy
    and try! hope it works! heard if taken with Chlorella for detox will speed up recovery.

    Will reach my country in Singapore in 5 days’ time. will feedback how it goes 🙂

    some supporting links:
    http://www.advancedbionutritionals.com/Products/PectaSol-Detox-Formula.htm
    http://www.soultemplenet.org/forum/topics/why-you-must-detoxify-your-body-immediately-and-how-to-avoid

    Good speedy recovery wishes going to everyone!

    • Lisa Bloomquist January 10, 2014 at 10:29 am Reply

      Thank you for your kind words!

      Modified Citrus Pectin sounds interesting – thank you for sharing! I hope that it helps you! Will you please let me know? Especially when/if your letting me know comes in the form of a recovery story. 🙂

      Speedy recovery wishes back to you!

      Regards,
      Lisa

      • sweetjan79 January 10, 2014 at 10:50 am Reply

        Hey Lisa,

        Yes certainly i will keep you posted when it arrives and after i have tried it for a few days on its improvement level 😀

        Love
        Jarene

    • Lane January 13, 2014 at 3:43 am Reply

      I’ve been trying Modified Citrus Pectin as well for a few days (no results to share yet)…it’s hard to find supplements that have clinical trials or scientific studies behind them…among the ones I use that have been shown to provide quantifiable and substantive benefit as evidenced in medical literature are Modified Citrus Pectin (as sweetjan mentioned above), Ubiquinol (aka Coenzyme Q-10 for supporting mitochondria and reducing oxidative stress), Immunocal for Glutathione (GSH) production (for recycling antioxidants), Gelita Collagen Peptides (e.g., Fortigel) for rebuilding cartilage, and wheatgrass juice for Superoxide Dismutase enzymes (SODs) production (for reducing oxidative stress). And, of course, magnesium for everything else 🙂 Supplements are a Floxie’s arsenal, but what will really work for us and what will be proven to work? Only time will tell.

  35. sweetjan79 January 13, 2014 at 8:08 pm Reply

    Hi Lane,

    Thanks so much for sharing 🙂 The Modified Citrus Pectin (MCP)hasn’t arrived my house yet can’t wait to try. ok so you have tried MCP for a few days, let’s be patient as you said time will tell, any supplement takes a while to show positive results. *finger crossed*

    Can I know if you take MCP alone or do you mix with other supplements? I’m not sure if MCP can be taken with other supplements as i am scared it’s overload making it less effective.

    Thanks and speedy recovery, Lane 🙂

  36. S January 14, 2014 at 6:05 am Reply

    My cat has been floxed. She was given Baytril twice for UTIs. Recently, she hurt her leg by simply jumping down from a ledge. She’s been hobbling around for a while and I’m concerned that the same effect of tendon/cartilege damage that occurs in humans could be happening to her. Is there anything I can do to help her? I don’t want to lose my baby, and I don’t want her to suffer. Please help. 😦

    • Lisa Bloomquist January 14, 2014 at 8:24 am Reply

      Maybe it’s warped and wrong of me, but I get more tear-y about the pets being hurt by FQs than I do about adult humans getting hurt by them. You can explain to an adult human what is going on. You can tell a person to take it easy. You can tell a person that she or he needs to take supplements. A person can do research on his or her own. A cat or dog can’t. They’re hurt and they don’t know why. It breaks my heart.

      As for what to do for her, I’m not sure. Magnesium helps people. If there is any way that you can get some magnesium into her (maybe through grinding it up and putting it on her food?), that might help. Antioxidants are probably helpful. Fish oils would probably be enjoyed by cats. My cat really likes coconut oil. I’m not sure about the antioxidant content of coconut oil, but it seems to treat most Floxies well. Try to keep her from jumping.

      Please tell the Vet about what has happened to your cat. She/He will likely deny that it is from the Baytril. He/She is wrong – of course your cat’s musculoskeletal problems are from the Baytril. But it’s good for him or her to hear it no matter what.

      The damage done by FQs to animal cartilage and tendons is well documented. I think that I have a couple of docs on animals in the links and resources section. If not, google can help.

      I really need to get on creating a site about how FQs hurt pets. It’s not okay. If you would like to write up your cat’s story, I would love for it to be one of the first stories up. Please let me know through the contact me link if that is something that you want to do.

      I’m so sorry for your kitty’s pain!

      Regards,
      Lisa

      • S January 14, 2014 at 8:45 pm Reply

        Thank you for the response. It is heartbreaking to know that so many people’s pets are needlessly suffering, and that there is even less acknowledgement of the damage that has been done to them. I think the worst part is knowing that my kitty can’t talk to me and tell me if she’s hurting. The only indicator I have that she might be in pain is her behavior.

        I will continue searching for information and resources. So far all I’ve found is stuff about pets going blind, but I know the extent of the damage goes far beyond that. I will keep an eye on her and take note of any changes. For now there isn’t much of a story to tell, but I’ll get back to you later on as things progress. Right now she seems to be doing much better since she hurt her leg several weeks ago. She still limps a bit, but she’s been very playful and affectionate and seems to be in a good mood, so I don’t think she’s suffering terribly at this very moment. I know she does, however, have periods where she is fairly lethargic and doesn’t want to be touched, and she’s had a bad hip since we found her as a kitten, so I imagine this is only making it worse. I am going to look into supportive care for pets with arthritis/muscle problems and see if there’s anything I can do for her as far as pain goes. Unfortunately I have to go back to university very soon and won’t be there to care for her, but I’m going to let my dad know what’s going on. I don’t think he’ll have any trouble believing me and I’m sure he’ll do what he can to help her as well.

    • Destruida los Restos January 14, 2014 at 10:11 am Reply

      Poor little love! I wouldn’t give her extra magnesium without a blood test to see whether she needs it and how much; also, if she was trreated for UTIs and has had Baytril twice, her kidneys may not be too healthy and magnesium could be dangerous. I’d avoid proprietary catfood and feed her on real meat, half raw and half cooked or all raw, not from intensive, FQ-treated animals, and make sure she drinks lots of water. I wouldn’t give her any vitamins or minerals. (I know it costs a fortune to buy real meat, but it’s best for her and it means you aren’t just harming other animals, rainforests, etc. and giving your money to the same corporations who make the drugs.)
      http://www.bornfreeusa.org/facts.php?more=1&p=359
      http://www.petco.com/Content/ArticleList/Article/33/2/256/Dangerous-Supplements-for-Cats.aspx

      I’d try giving her two homeopathic remedies, perhaps three: arsenicum album 6c, rhus tox 6c, arnica montana 6c, but I’ll think some more and come back to you about dosage, where to buy and in what form, etc., if that’s O.K. with you, Lisa – I just wanted to warn against over-enthusiasm with supplements for pets.

      • Lisa Bloomquist January 14, 2014 at 11:05 am Reply

        Sure, pointing S in the direction of some homeopathic remedies is fine with me.

        It’s really hard to judge dosages of supplements for pets. I would say ask the Vet but the Vet is the person who gave the poor kitty Baytril in the first place. Maybe the Vet can still give some good advice. It’s possible.

      • S January 14, 2014 at 8:48 pm Reply

        Thank you for all of the suggestions. I’ll do some research and see if I can get my dad to take her to the vet for some blood work. It’s about time she had a check-up anyway. I’ll see what the vet says about it, too, though I’m not too hopeful.

      • Destruida los Restos January 15, 2014 at 12:50 am Reply

        I’ve seen other ‘floxed’ animals; their vets gave them NSAIDS, steroids and more and more stuff and of course they got iller and iller. The vet can test for levels of nutrients, though.
        I order all homeopathic remedies from http://www.ainsworths.com/ They have customers all over the world and it’s a compounding homeopathic pharmacy staffed by trained homeopaths, so I can get advice and order any formula or format I wish. I usually ask for soft tablets, as they dissolve so fast – cats, especially, are expert at saving a hard tablet then spitting it out. I would order a 7g vial of arsenicum album 6c and give her one if she gets lethargic and poisoned-looking, then another a few hours later if she shows no improvement, up to three times a day for up to three days. If there’s no change, stop; if there is a change, you stop at once – with homeopathy you stop as soon as there¡’s a change.
        For her stiffness and musculo-skeletal pain, I’d definitely recommend rhus tox 6c (or , 12 or 15c.) I’d give her one when she seems to be in pain and, as usual, two or three times a day and stop if there’s a change. Rhus tox is very good for treating arthritis, but one would use a higher potency for adult humans.
        I thought of arnica if she was in shock or bruised, but she sounds fine in those ways.

    • Lisa Bloomquist January 14, 2014 at 12:29 pm Reply

      I have also heard good things about Diatomaceous Earth as something that helps human Floxies. It apparently is good for pet ailments too. Here is a web site – http://www.earthworkshealth.com/

      • Destruida los Restos January 14, 2014 at 12:48 pm Reply

        I use it externally, for dogs, cats and birds, and around pot plants, to kill fleas, mites and other insects by physically slicing theri poor little carapaces, rather than using neurotoxic chemicals that are worse for the insects and for their host animals. I even sprinkle it in my bed if the cat’s been scratching – you can’t feel or see it, except the sheets need an extra rinse.

    • Debs January 17, 2014 at 2:58 pm Reply

      Hi S,

      I am so so sorry to hear about your cat, It makes me absolutely livid. & so heartbroken to hear of any living creature having to go through this.

      Although It has been mentioned above that these drugs can cause visual issues I would like to warn to everyone that has cats, that as far as the potential ADRs due to this poison, that BAYTRIL is actually EXTREMELY dangerous for cats regarding potential damage that can be caused to a cats eyes, & this damage is permanent..

      They unfortunately lack the protection of a particular enzyme, which means that they are extremely susceptible to retinal degeneration, & this is increased substantially if a cat is then let outside whilst undergoing treatment, & as with us, possibly for some while after undergoing treatment, this of course is due to the greatly enhanced risk of photo toxicity which is a common ADR to the fluoroquinolone antibiotics.
      Vets usually are unaware of this fact, & I have yet to meet one who knows anything about the photo toxic risk, & who will advise you to keep your cat inside at the very least whilst they are undergoing treatment .

      These ” antibiotics ” should never be given to young animals ( goes without saying ), animals with any degree of Kidney disease or elderly animals , In fact as far as I am concerned IMO, they should not be prescribed for animals …. PERIOD. !

      Unfortunately, the vet one of my cats was under for treatment, before I knew anything about these drugs, or that I had been floxed, happened to be one of the clueless ones.

      My beautiful cat who had a slight degree of kidney disease, was wrongly prescribed Baytril, & he went completely & irreversibly blind …… Overnight .

  37. S January 14, 2014 at 6:22 am Reply

    And I also wanted to ask: what can I do to make sure this never happens to me? Does lying and telling doctors that you’re allergic to quinolones help? What if you’re in a situation where a potent antibiotic is absolutely needed – will they listen to your request for a safer alternative? I get scared that I might one day have an infection severe enough to warrant a hospital visit, and that I’ll be administered an FQ without my knowledge. Even if I’m on my deathbed, I never ever ever want an FQ in my system, ever. Not worth the risk. *massive hugs for you all* I can’t believe that these drugs are still legal.

    • Lisa Bloomquist January 14, 2014 at 8:30 am Reply

      I would have it put on your chart that you are allergic to Cipro, Levaquin and Avelox, and if they’ll put it generally on there as no fluoroquinolones, that will work too. If you really want to be sure about not getting a FQ, you can also get a medical alert bracelet that says “no fluoroquinolones.”

      Even most people who have been floxed think that these drugs are okay to use when death is the only alternative. The problem is that these drugs are used to treat simple infections – like UTIs or sinus infections, and that people are hurt needlessly and without their consent. I sincerely hope that you are never in a life-or-death situation with an infection. If you are, I hope that every alternative antibiotic is used before fluoroquinolones. Then, if you have to have them, I hope that you don’t have a bad reaction. That’s a lot of hope and it’s certainly best to avoid them when possible. They’re nasty drugs that are responsible for a huge amount of pain and suffering. Avoiding them when possible is definitely the best move. I just wanted to acknowledge that there are some life-or-death situations in which they can’t be avoided.

      • S January 14, 2014 at 9:03 pm Reply

        Oh wow, I didn’t know you could just have it put on your chart like that, but I definitely will. For now I won’t worry about a bracelet, but if ever a situation comes up where I feel like it’s necessary, I might get something to carry around with me even if I don’t wear it all the time.

        I realize there are some situations where it might be necessary. It’s just such a terrible thing. I’d hope that they would exhaust all other options first, but a lot of times they don’t. As you said, they prescribe it for pretty much anything, so I have to be on the lookout.

        One of the main reasons it scares me is I believe my mom may have been floxed, though I’m not sure. She started struggling with chronic debilitating pain a few years after she had me. She became bedridden and struggles with crippling arthritis and all-over pain. In addition, she suffered a herniated spinal disc supposedly from being in bed for so long and now has painful sciatica in her legs and feet. No doctors have been able to explain her problems and many of them treat her like a hypochondriac. The neurologist she saw definitely thinks she has some nerve damage but has no idea how that might’ve happened. Recently she was diagnosed with diabetes, which her doctor attributed to her neuropathy and pain. She also has a plethora of GI issues, struggling with IBS, multiple food allergies, and an intolerance to gluten that causes her to bloat up like a pregnant woman when she has it.

        I have yet to ask her if she’s ever taken an FQ. She’s a strange and stubborn woman and has refused to accept many possible explanations for her pain. I don’t know why she has this denial, but if FQs are responsible for her pain, it may take her a while to acknowledge it. I think what I’m going to do is ask her if she’s ever taken them, and if she has, simply send her an email with several links about it and let her decide what she wants to believe.

        But yeah. After growing up and watching my mother suffer with chronic, disabling pain, it’s very hard for me to take any risks that could put me in the same position. I already struggle with a difficult neurological condition and the idea of adding to the pain I already have is just sort of terrifying. I hope that if anything ever happens to me, this drugs will be the last resort.

    • Lisa Bloomquist January 15, 2014 at 10:00 am Reply

      I’m so sorry for everything that your mom has been through! Fluoroquinolone Toxicity could certainly cause all of the issues that she has experienced. I think that it’s good to know a cause – whether it’s the FQs or not – so that she can know and seek help – from either doctors or online support groups. If she wants to join one of the online support groups, this is the biggest one – https://www.facebook.com/groups/46690244194/ I’m also happy to answer any questions that she might have – the “contact me” link on here is the best way to reach me.

      Good for you for being proactive in ensuring that you don’t get hurt by a fluoroquinolone! If I could make everyone as aware and cautious as you, I would do so – and it would save a lot of people a lot of pain.

  38. sweetjan79 January 14, 2014 at 8:59 pm Reply

    Hi Lisa dear,

    One of the hardest thing i can’t let go is that silent anger i felt towards my doctor. Maybe this drug is needed to save someone in this world who truly needs it. but doctor who has full control who to give, give it to us. and we never doubt, never question why this drug. trust them, take it with faith. and we got poisoned. and when you share the candy they prescribe give you adverse effect, they looked shock, was alarm , said “oh dear, it’s very rare side effects” and gave some excuses to protect themselves..ended the call with “please take care”

    i knew i have only myself to blame. for once when i report my side effects to him and he can’t offer much advice, i felt the whole world has stopped turning for me. imagine i was standing in the center of the globe, stagnant and yet the world still evolve around me.

    when i blame myself for being so trusting and so hopeful to take drugs without thinking twice, the hurt seems to lessen. because our heart can’t bear to hate. to carry hatred to doctor we “think” we used to trust is not only a misjudgement, but also a sad realization that the one who can cure us also has the greatest power to destroy us.

    it’s so much to bear the hatred by hating someone who won’t want to be responsible but when we begin to look inside ourselves, we can only blame ourselves. this way, we felt better. because we can control our choices from now without any expectation of others. it’s this maturity that gain us new respect and a way we say sorry to our body by feeding it with toxic. because doctor don’t force us, we chose to believe their choice is right – but clearly it’s wrong.

    already we are nursing a hurt body and yet we have to nurse this emotional assault at the same time. it became too much. seriously i rather i have no one to hate. i hope no one is ever involved. seriously i rather i fell into a pit and only have myself to blame with my painful leg. but now, there is someone involved who got us into this terrible plight in the first place. it’s so hurting. it’s just…so sick. as someone said “i don’t want to sue anybody, i just want to get well” bring tears to my eyes. so true. we are so helpless and we can only turn to one another for support. take this chance to better ourselves, wise up and learn the hard way.

    i knew you said meditation helps. can you please tell me how you meditate for a start? any starters tips to help you calm and let go of the anger during your earlier days?

    thanks Lisa.

    Love
    Jarene

    • Lane January 15, 2014 at 6:10 am Reply

      Hi Jarene,
      I reflected the other day that before I was floxed over a year ago…I was in pretty awesome shape, running 6 miles a day, weight training 3x per week and teaching a spinning class…and never really had anything substantial to complain about physically. I never had muscle or joint pain, intense cramping, tendonitis, nerve pain/sciatica, fasciculations, paresthesias, vertigo, intense palpitations, emotional stress, overall body weirdness; the spectrum of issues I have now. Then I got really angry that something so small, that was supposed to help me, could act like a nuclear bomb on my body and seemingly create a crippling disease I never had before (or even a whole range of diseases) and that I probably would never have had otherwise. Then I remembered that even when I was 100% healthy I still complained anyways, still wanted an extra bit of health or physical fitness…never really satisfied with myself.

      Now, there are some days when I can barely walk and I tell myself to be thankful because there is always HOPE (even if I am never 100% again, I would still complain anyways probably). I never really knew “suffering” until this happened, but it has made me more empathic to others that are suffering, especially with chronic illnesses. I’ve never been one to make excuses, but I now understand what it’s like for others who are simply not able to cope with life for whatever reason, physically or emotionally.

      Meditation can help you see the HOPE, because it can help you quiet your thoughts, negative emotions and stop allowing pain and anxiety make you unhappy or angry. I got started with meditation by using a guided meditation developed by the Benson-Henry Institute at Massachusetts General Hospital, “Bring Relaxation To Your Life” presented by Olivia Hoblitzelle (http://www.mghgeneralstore.com/67483.html). This CD has been used in a number of clinical settings and has been extremely beneficial to many people for pain and stress management at MGH General…and it’s great for beginners because it guides you through the whole process of “mindfulness” and teaches you to meditate even without the CD (although I always use it 🙂 It’s also great for helping quiet the mind before going to bed.

      Anyways, I hope this may be of help to you and others that may be interested as well.
      Cheers,
      Lane

    • Lisa Bloomquist January 15, 2014 at 10:21 am Reply

      Jarene and Lane,

      Thank you. Thank you both for your touching, insightful comments.

      The journey is difficult. There is no way around it – it’s hard. It’s difficult to deal with a body that is in pain and falling apart. It is difficult to deal with the anger that comes with getting poisoned. It is difficult to deal with the disappointment that comes with realizing that your doctor can’t do anything to help you (after hurting you no less). It is difficult to deal with gaining empathy for those who are sick, unable to deal with areas of life – and it was difficult for me to realize that I didn’t really have that empathy before. It’s difficult to suddenly see the world differently and to realize that some of the systems that you assumed were in place to help and protect you aren’t there any more. It’s just hard.

      Here are few things that helped me to get my head and heart wrapped around it all:

      1. “A Return to Love” by Marianne Williamson – it gave me perspective
      2. Meditating – more below
      3. Finding some purpose in this difficult journey – becoming a more patient, empathetic, compassionate person was huge. Starting this site and fighting was even bigger – for me.
      4. This may sound strange, but it helped to realize that on some level, I asked for this. Not that I deserved it – I didn’t. I asked for it though. I guess that’s taking “personal responsibility” but for some reason I don’t like that terminology. Anyhow, here is the post that I wrote on the topic – https://floxiehope.com/2013/10/31/lessons-learned-from-getting-floxed/

      I learned to meditate through taking a class called Mindfulness Based Stress Reduction that is based on the teachings and findings of Jon Kabat-Zinn. It helped me immensely. If you can’t find a class in person, I’m sure that there are versions online. Meditating helped me to gain patience and compassion. It helped me to calm my body and mind. It helped me to stop panicking. It helped me to see beauty and peace in the world – If you concentrate on a rock long enough you will see beauty in it. It helped me to feel more connected. It helped me to gain passion, purpose and direction. I recommend it to anyone/everyone.

      The anger and the hate will go away. The parts of you that are hurt in ways that express themselves like that will heal too. It takes a long time – and that’s okay. There are people and systems that deserve your anger and hate. Forgiveness is hard. Ultimately, you have to do it for you, not for them. But please don’t be angry with yourself for being angry. It’s okay. They hurt you – anger is quite warranted.

      xoxoxoxo

      Lisa

      • sweetjan79 January 15, 2014 at 8:42 pm Reply

        Thank you Lane, Thank you Lisa. Appreciate abundantly for both of your love! 🙂

        I read all your sharing with gratitude. Thank you I’m going to check out “Bring Relaxation To Your Life” CD, the book by Marianne Willamson and Lisa meditation tips/class in my area. Really, i am overwhelmed by your love.

        Lately i found these 2 great facebook pages on holistic healing that will be useful for us:

        1. “Heal Thyself!”
        2. “Alternative Health Solutions”

        Yes after floxed, it brought me to a new level in life too. I used to be really stressful over trivial thing that I seem to forget appreciating what i really have – my caring family, my little daughter and a supportive husband. See, i already have brain fog before floxed, haha!

        After floxed, strangely i felt more peace (of course, after the fearful denial stage when i first knew I’m poisoned..), now i’m moving more to the “acceptance” stage so hence the calm.

        Just this morning, before i sent my girl to school, I kiss my legs and give thanks. We walk on our dear legs for years but till when it showed sickness, we began to realize how importance giving thanks is. we give thanks through living well, eating good and taking care of our body. Floxing period give us an opportunity to rebuild our poor system from start and understanding how to nurse a sick body.

        But take heart, my friends, especially Lane who you are still recovering after a year, there is Hope. Like you said, Hope! Lisa also took close to 2 years to get healed. Everyone is healing!

        In fact, yesterday after my regular acupuncture session, my doctor told me we are still young and we can recover up to 95% . the younger we are , the higher capability is our healing. i heard of a few floxie who is beyond 60 and restore back to their 80% original so everything is still good!

        if you turn to page 27 here, you can read more on fluoroquinolone:
        http://www.joomag.com/magazine/fibromyalgia-chronic-pain-lifejun-2012/0648498001339623432
        (case in point: a lady who is badly sick for 2.5 years got her life back with an antioxidant drip and more..)

  39. Catherine January 15, 2014 at 4:00 am Reply

    Hi everyone
    I had a telephone consultation with a private GP yesterday. It was the first time I’ve spoken to a doctor who is interested in helping since I was floxed, so was quite interesting. She has her own theories and ideas about it, which are interesting, but I also have a healthy degree of scepticism about it, as obviously we none of us know for sure what’s really going on.
    She believes that the adverse reaction is caused by micronutrient deficiencies which cause a severe auto-immune response to switch on in the patient. She actually uses Cipro herself in patients with severe infections which have not responded to anything else, but always in conjunction with IV minerals and orher nutrients, and says her patients have no problems with them. She wants to give me magnesium and B12 injections, with other minerals, as well as nystatin and fluconazole (I have quite severe candida infection). Also melatonin for sleep. (She wanted to give me tranquilizers for sleep too, but I refused them). Has anyone else had any of these therapies? I would be grateful for your comments.
    Catherine x

    • Lisa Bloomquist January 15, 2014 at 5:47 pm Reply

      It sounds like you found a good doctor, Catherine! That’s fantastic! Her protocol for you certainly sounds good to me. I haven’t tried any of the things that she recommends, but I have heard good things about each of them.

      One thing that you might want to mention to her for when she treats patients with fluoroquinolones in the future is that previously magnesium saturated cells were shown to resist some of the negative effects of fluoroquinolones, BUT magnesium supplementation was less effective after the fact. So, she may want to be sure to start those nutritional IVs, especially the magnesium IV, for a while before she administers a FQ to future patients. Prior saturation with magnesium certainly doesn’t make fluoroquinolones safe, it just might help though.

      Here’s an article – http://intl-vet.sagepub.com/content/38/2/143.full

      • Catherine January 18, 2014 at 11:57 am Reply

        Thanks Lisa, I will pass that info on. I’m trying not to get my hopes up too much about the new doctor. She still seems to think that my reaction to FQs is very rare, in spite of what I’ve told her. But I’m going to be very careful only to try treatments which won’t cause any harm. I’m just longing to be able to get out of bed and get dressed every day! I’m so ill at the moment that I find it hard to imagine how I can ever recover, but I still have a small spark of hope. xx

    • Lane January 19, 2014 at 7:48 am Reply

      Hi Catherine,
      If you would like to try a non-pharmaceutical approach in treating your Candida infection, my naturopath recommended the following:

      1) Kolorex (1 capsule at night – you can find this product on Amazon).
      2) A supplement they make at their office, but the main ingredient is black cumin seeds which is an anti-inflammatory, taken 3 times per day.
      3) A pro-biotic called Mutaflor, I take 2 capsules in the morning – not sure where to buy this in USA although it is available, but must be refrigerated.

      I’ve also heard of many having success with:
      1) Thorne Research – Formula SF722
      2) Thorne Research – Bacillus Coagulans (formerly Lactobacillus Sporogenes)

      I’m surprised she didn’t offer any advice regarding probiotics. I believe that correcting your gut flora will also aid in fixing your micronutrient deficiency. I would also recommend eating fermented vegetables like kimche or kraut as well (“let thy food be thy medicine, etc..”) 🙂

      Hope this helps!
      Lane

  40. Paul Karpfen January 17, 2014 at 12:26 am Reply

    I saw earlier on here that someone had difficulty with jerking awake everytime they were about to fall asleep. I had that also early on post floxing – it felt like as I was entering an alpha state I would be interrupted and it would keep me up. I told this to a nutritionist at a supplement store – she said that many prescription drugs rob the brain of vitamin b6 which can affect your sleep pattern then. I supplemented with vitamin b6 and the problem went away. I stopped taking it then and haven’t had the same problem since – thank God. I hope this is helpful to someone!

    • Catherine January 18, 2014 at 11:59 am Reply

      Thanks to everyone who has responded about the problem of jerking awake. I have felt some improvement with magnesium, and will try vitamin B6 too. Catherine xx

      • Lane January 19, 2014 at 8:01 am Reply

        Catherine,
        I had this problem as well about 5 months post-floxing…just as I was about to fall asleep I had jerks as well as trouble breathing; it’s hard to explain but it felt like my body “forgot” how to breath, my lungs took in less air as I got closer to sleep and I kept waking up after these suffocating feelings and chest pains. I clearly remember getting no sleep for 2 days because I simply couldn’t fall asleep due to these issues. I thought I had developed sleep apnea (but a sleep study ruled it out) My only help was from Klonopin; it’s really been a tremendous help to me although I would prefer using no pharmaceuticals. I have no issues now (without the Klonopin) and can even take naps, which I consider a huge improvement.

  41. brian January 17, 2014 at 8:53 am Reply

    Vit B6 and magnesium helped me a lot with this problem. This now happens to me very rarely and then only once a night.

    • Teresa January 18, 2014 at 12:03 am Reply

      I had this same problem years ago; it was very disturbing.

  42. sweetjan79 January 17, 2014 at 7:35 pm Reply

    It seems heel pain is the hardest to heal or takes longest to heal. My acupuncturist told me recovery will start from top to bottom if our pain starts from bottom to top (reverse )

    Pain started from heel (weakest blood circulation) travelled up to knee then to shoulder. So to note if we are starting to recover, we will know if shoulder pain has lessened then knee then heel.

    The heel still painful to walk on.. As if elephant leg. And the nerve at heel can be so tensed up that makes walking difficult.

    I think i will go check out a orthopedic heel insert to see if helps. Right now wearing ankle brace and use home massage (with Ion heat therapy)

    • Lane January 19, 2014 at 8:07 am Reply

      Hi Jarene,
      Have you started the modified citrus pectin (MCP) yet? I’m either out of a cycle or it’s really helping because my the stabbing ankles and foot pains have improved. If you are experiencing nerve pain, then it stands to reason that you will indeed heal from “top to bottom” because the nerves in the extremities (hands, feet) are usually damaged first in a case of neuropathy. Hope you will get some relief soon!

      • sweetjan79 January 19, 2014 at 9:04 pm Reply

        Hello Lane,

        Great to hear! I think you are both – out of cycle and Improving! 😀

        I started MCP for 5 days. But despite it says 3 times a day, I just do once a day. Because i have hosts of vitamin to take in morning and night and in afternoon i also take chlorella. I am afraid my body can’t process so many , ended backfiring each other effectiveness making me absorb nothing. Alas, I’m in a dilemma.

        I take MCP with chlorella 5g. I read about this from a guy who also have success with MCP but he mentioned it’s best to take with chlorella, reason being Chlorella guides the detox MCP expell to rectum and excrete out so it works better this way. this is at least what he say haha but since i have chlorella, i thought why not. again, it might be better to take MCP on its own. I kind of separate them in 15 mins. MCP is best taken in empty stomach.

        How about you Lane? Do you take 3 times a day? What about other vitamins?

        during this 1 year, how do you take care of your ankle pain may I ask? do you wear ortho boots, put KT tape…or simply bear with the pain and adjust lifestyle?

        Thanks!

        Love
        Jarene

  43. sweetjan79 January 18, 2014 at 6:07 pm Reply

    does shockwave therapy works for our floxed heel/ankle? Thanks in advance

    • Lane January 21, 2014 at 7:06 am Reply

      Hi Jarene,
      I hear that the MCP works best if you mix it with water and let it sit for about 20 minutes before drinking on an empty stomach. I’ve been using mine in smoothies and stuff twice a day, so I don’t know if I’m getting the maximum benefit, but something from it seems to be working for me.

      Also, I haven’t found a solution for the pain, I would like to try Lisa’s suggestion on the low dose naltrexone option if I can get my Dr. in USA to prescribe it. It’s kind of an unusual request so I don’t know if he’ll go for it. There is lots of intersting information on LDN here: http://www.lowdosenaltrexone.org/index.htm. I thought it surprising when I read that Dr. Mercola actually advocates its use. Its been used in therapy for many pain-related conditions including fibromyalgia.

      I would be interested to know if any floxies have used LDN and reported success?
      Cheers,
      Lane

      • Sandra January 30, 2014 at 8:27 pm Reply

        Was wondering if the modified citrus pectin is still working for you? I would like to try it to se if it helps with the leg pain.
        Thx in advance

  44. sweetjan79 January 20, 2014 at 9:14 pm Reply

    When i recover, “Bitter Pills” is the book i will buy to remind myself for the grave past i used to make. but till then…i still not healed. if i buy now, it will add to my sadness.

    about quinolone danger with just 1 pill sent author’s wife to hell needlessly.

    the pharma industry is just so sick

    http://www.amazon.com/Bitter-Pills-Inside-Hazardous-World-ebook/dp/B004G60FS6/ref=sr_1_1?ie=UTF8&qid=1390273895&sr=8-1&keywords=Bitter+Pills%3A+Inside+the+Hazardous+World+of+Legal+Drugs+Hardcover

  45. sanda January 21, 2014 at 1:09 pm Reply

    Hello everyone. I was floxed December 2004. I have burning in my legs most of the day. When I wake up I don’t have any burning but it doesn’t take much for it to start up again. I do have some tendon pain behind my knees.

    I plan to try the modified citrus pectin as I saw it helped someone on the TOPIX forum (which by the way that particular forum topix has been discontinued. 😦 ) which makes me a bit sad but I am glad I found this sight.

    Heres to healing for all. I hope for me my symptoms will just be burning legs and some tendon pain that will eventually heal.

    • Sandy January 21, 2014 at 9:11 pm Reply

      Meant floxed 12/4/2013. I plan on trying modified citrus pectin as this is the second place I’ve seen it mentioned. Hope for better days for all.

  46. casey January 21, 2014 at 2:23 pm Reply

    Just got a question I caught salmonella again and most likely gonna need antibiotics but this time I made it clear to my doctor that I am not going to take cipro or its relatives. But I was wondering is it ok to take another kind after taking cipro in the past? Its been almost a few months since I took them.

    • Lisa Bloomquist January 21, 2014 at 2:31 pm Reply

      Hi Casey,

      I’m not entirely clear as to what you mean, but I’ll do my best to answer your question to the best of my abilities. It is okay to take an antibiotic that is NOT a fluoroquinolone again. You can take a tetracycline, cephalosporin, penicillin, etc. to get rid of your infection. Though some people don’t react well to those antibiotics, they are not in the same category as fluoroquinolones (Cipro, Levaquin, Avelox, Floxin and a few others) and are unlikely to hurt you. Please don’t be scared of antibiotics generally, as they are not all created equal.

      As far as fluoroquinolones go, you should never take one again. Adverse reactions to fluoroquinolones tend to increase in intensity and severity with each administration. It says on the warning label for each fluoroquinolone. Here is what it says on the label for cipro – “Ciprofloxacin is contraindicated in persons with a history of hypersensitivity to ciprofloxacin, any member of the quinolone class of antimicrobial agents, or any of the product components.” You now have a history of hypersensitivity to Ciprofloxacin so you should never take another quinolone/fluoroquinolone again.

      Good luck and I’m so sorry about the salmonella infection!

      Regards,
      Lisa

      • casey January 21, 2014 at 3:06 pm Reply

        Thank you and yes you did answer my question.

  47. sweetjan79 January 27, 2014 at 1:22 am Reply

    Hi Lisa and floxie,

    Like to share this interesting article. As we know, fluoroquinolone destroy our mitochondria cell, here is a study by Lef.org that shows PQQ (pyrroloquinoline quinone) can rejuvenate our cells by growing new mitochondria. there is hope! more supplements are now revealing it’s help to reverse the damage done.

    Rejuvenate Your Cells by Growing New Mitochondria
    http://www.lef.org/magazine/mag2010/ss2010_Rejuvenate-Your-Cells-Growing-New-Mitochondria_01.htm

    • Lisa Bloomquist January 30, 2014 at 11:01 am Reply

      It’s an excellent article, isn’t it? It’s really interesting. The only reason that I hesitate to supplement PQQ is that it is molecularly similar to fluoroquinolones. I’m not sure what the implications of this molecular similarity are though. I’m paranoid enough to not try it, but that may be completely irrational of me. I have heard of people supplementing it but I haven’t heard any reports back on its effectiveness (and I haven’t heard anything bad about it either). I read that both parsley and whiskey have PQQ in them naturally, so that’s where I’ll get mine from. 🙂 If you have any positive or negative experiences with it, please let me know. Thanks!

  48. Lane January 29, 2014 at 6:56 am Reply

    Fellow floxies,
    Has anyone noticed significant changes in their skin since being flexed? I look like I’ve aged 5 years since my last floxing 17 months ago…sagging skin, more wrinkles, deep creases in my forehead (I’m not even 40 yet…) and the weirdest thing…everything seems to leave a lasting imprint on my skin for about 15 minutes afterwards…e.g., the bedclothes on the acupuncturist table will leave this crisscross pattern across my chest that takes what seems like a prolonged amount of time to go back to normal looking skin. Is this typical for floxies and does it “get better”?
    Thank you,
    Lane

    • Lisa Bloomquist January 30, 2014 at 10:57 am Reply

      Hi Lane,

      Skin and collagen issues are common among floxies. I’m not sure what the solution is, but I have heard good things about drinking bone broth. Also, I have replaced lotion with coconut oil. I lather myself with it. It has made my skin look good and it also has protective qualities against the sun.

      I hope that those suggestions help!

      Regards,
      Lisa

    • Teresa January 31, 2014 at 1:34 pm Reply

      I have noticed my skin is redder and dryer. Also this sounds strange but my vagina wall is starting to slip downward. Also parts of my hands are white and pressure leaves imprints on all areas of my skin too. I don’t know if it is related to retaining water or not.

      • Lisa Bloomquist January 31, 2014 at 6:06 pm Reply

        When I was in the thick of my floxing, someone mentioned a prolapsed vagina to me and it scared the crap out of me. I started doing pilates to keep that from happening. TMI, I know. 🙂 But pilates really did help me with a lot of my floxing symptoms.

        All of the symptoms of FQ toxicity are so odd. I wish I knew more about what the causes of all the bizarre symptoms are, but I’m not sure. Hopefully it will all pass. I’m hoping for you.

        • Teresa February 1, 2014 at 9:43 pm

          Lisa, I think it is from damaged pelvic tendons. It comes and goes. Exercise helps keep my prolapse under control.

  49. casey January 30, 2014 at 10:16 am Reply

    I was just wondering does anyone else experience cracking or popping of the sternum when stretching their back. If so is it bad that its doing that?

    • Lisa Bloomquist January 31, 2014 at 6:03 pm Reply

      I’m not sure, Casey. I think that painless popping and cracking is generally harmless, but it may be something to consult a professional about. Or, if you want to hear from people who know a lot more about FQ toxicity than the pros, 🙂 , you can ask the people on the facebook support group – https://www.facebook.com/groups/46690244194/

      Regards,
      Lisa

  50. Sandy B January 31, 2014 at 1:23 am Reply

    I was floxed 3/15/12 and I am mostly recovered except for the bottoms of my feet hurt pretty bad when I do a lot of walking. I was mostly affected on my heels/ankles/back of lower legs initially, and as symptoms have improved, the soles of my feet have not really. It feels like the padding has thinned out. Do you know of anything that will help?

    Also, I noticed if I eat junk food, especially stuff with processed soy, it gets worse. Meal replacement bars with soy as the protein source really puts me out of commission for a couple days. Do you know if it’s safe to eat tofu, given my reaction to soy protein bars? Since it’s not a processed food persay.

    Thanks for your help.
    I’m on a multivitamin, a powdered magnesium drink supplement and 500 my of carnitine 3xs daily.

    • Lisa Bloomquist January 31, 2014 at 6:01 pm Reply

      Hi Sandy,

      I’m glad to hear that you are mainly recovered! I’m sorry to hear about the continued pain in the soles of your feet though. I had to wear crocs all the time for a long time because my feet hurt when I wore anything else. 😦 A friend who has non-fq-related plantar fasciatis noticed that her symptoms were alleviated by going on a gluten-free diet. It’s worth a try if that is something that appeals to you.

      I’m a big fan of acupuncture. It helped me with all of my symptoms.

      As for soy, I am not sure what to tell you other than listen to your body. If you don’t tolerate it well, try cutting it out to see how you feel.

      If it doesn’t hurt too bad, maybe some exercises that build some muscles on the bottoms of your feet could help? I’m just guessing at that one.

      Hopefully those things can help. You may be able to get more suggestions from the people in the facebook support groups. Here is the biggest one – https://www.facebook.com/groups/46690244194/

      Best regards,
      Lisa

    • Lane February 2, 2014 at 12:09 am Reply

      Hi Sandy,
      It’s quite possible that you have developed a food sensitivity to soy. In other words, when you eat soy your body is reacting to it by producing a delayed autoimmune response, which is causing inflammation that is increasing your pain. The only way you’ll know is if you get the appropriate tests conducted. I’ve had the Sage test done (a simple blood draw) and it indicated a number of foods I needed to eliminate (including soy). I know it is tempting to speculate on these issues, but only testing will confirm or deny your suspicions, please consider this (http://www.foodallergytest.com/foodAllergy.html)…it might be the final piece to solving your puzzle.
      All the best,
      Lane

    • Lane February 2, 2014 at 12:51 am Reply

      Hi Sandy,
      Also, please remember, you probably don’t need as much protein as you think you do. The recommendation is that you stick to government guidelines, which can be found at websites like http:// http://www.cdc.gov/ nutrition/ everyone/ basics/ protein.html.

      Recommended levels vary according to age and gender. They are around 46 grams of protein for women between 19 and 75, and 55 grams of protein for men between 19 and 75.

      Also, high levels of protein keeps IGF-1 levels high; IGF-1 plays a key role in many of the diseases of aging (including cancer).

      If you want to supplement with protein, you want to get all your branched-chain amino acids (BCAAs)…there are more BCAAs in undenatured whey protein isolate than eggs or soy. I would recommend this as an alternative to soy.

      Hope this helps!
      Lane

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