Floxie Hope


This site is to give HOPE to those who are suffering from Fluoroquinolone Toxicity Syndrome as a result of being poisoned by fluoroquinolone antibiotics – Cipro, Levaquin, Avelox, Floxin, etc.  It contains stories of healing.

Cipro, Levaquin, Avelox and all other fluoroquinolones are dangerous drugs that can have devastating effects that cumulatively I’ll refer to as Fluoroquinolone Toxicity Syndrome or Floxing.  Fluoroquinolone Toxicity Syndrome/Floxing includes damage to connective tissue (tendons, ligaments, cartilage, fascia, etc.) throughout the body, damage to the nervous systems (central, peripheral and autonomic), and more. The damage done by fluoroquinolone antibiotics can destroy a person’s quality of life or even kill them. Certainly, there is a time and a place for drugs with dangerous side effects. If you find yourself in a septic shock induced coma, fluoroquinolones may save your life. Unfortunately, these drugs are not being reserved for life or death situations. People are being prescribed them for urinary tract infections, suspected prostate infections, upper respiratory infections, as a prophylactic for travelers’ diarrhea, ear infections, pink eye, etc. Thousands of people have suffered needlessly from the devastating effects of fluoroquinolone antibiotics, when another, safer antibiotic could have, and should have, been used.

The damage done by fluoroquinolones is largely unacknowledged by the medical establishment and an accurate diagnosis, compensation and relief are difficult to come by. There is no known cure for Fluoroquinolone Toxicity Syndrome/Floxing.  However, many people continue to LIVE after being poisoned by fluroquinolones.  They find healing, recovery, perseverance, compassion and hope.  These are their stories.

This site is meant to give hope for healing to those who are adversely effected by fluoroquinolones.  It is no way meant to disregard the pain of those who are chronically suffering from the horrifying effects of Cipro, Levaquin, Avelox or the other fluoroquinolones.  There are people who don’t recover.  Their stories are real and they matter.  There are also people who are able to recover and I share their stories with the hope that they inspire others, or at least give hope that recovery is possible.

Here is a New York Times article about the dangers of fluoroquinolone antibiotics – http://well.blogs.nytimes.com/2012/09/10/popular-antibiotics-may-carry-serious-side-effects/?_r=0 – more news stories, research papers and other resources can be found on the “Links and Resources” page.

Here is a Facebook group that is a great resource for those going through Fluoroquinolone Toxicity – https://www.facebook.com/groups/floxies/

Featured post – I’m floxed. Now what?

The Fluoroquinolone Toxicity Solution Ebook has helped many Floxies to recover, including DanielCindy and Ruth.  As a bonus, you will also receive The Floxie Food Guide – a book of diet guidelines to help you through fluoroquinolone toxicity:

flu tox get help you need banner click lisa




25,839 thoughts on “Floxie Hope

  1. Stephanie December 16, 2015 at 12:53 pm Reply

    How do you know when you need to stop being stubborn and get a cane?

    • Linda December 16, 2015 at 1:23 pm Reply

      when you are in danger of falling over…or if it would just make you walk more comfortably and easily…..hang in there kiddo

      • Stephanie December 16, 2015 at 1:39 pm Reply

        I’m just having days where my boyfriend grabs my arm or says why are you walking like that and I have to look to hold onto stuff cause I haven’t fallen yet but I feel like more moments happen like today where I fight to stand and am angling my legs weird cause it can’t walk like normal. So I guess I need one. Maybe I will get a pimp one Hahahaha

        • Linda December 16, 2015 at 1:56 pm

          don’t forget the feathered hat

        • Stephanie December 16, 2015 at 2:07 pm

          Hahahaha I ended up with a purple cane the pimp canes were not adjustable.😢 But now I will be able to walk without hurting my knees. I’m 35 and I need a cane thank you Bayer for yet another fun way of stealing a piece of my life away. I have to wait to break the news to my boyfriend his birthday is on Saturday and I don’t want to depress him even more.

        • Linda December 16, 2015 at 3:15 pm

          hey, have you done any high does vitamin c? It is supposed to help with collagen repair.

        • Stephanie December 16, 2015 at 3:47 pm

          Yep my ND even gave me extra. I take all my supplements. I can only absorb it through an IV is my opinion. The supplements aren’t helping me. I feel so good after my IVs I feel almost normal for two hours then it slowly goes away and I go into such bad spams that my boyfriend watches me and says 1 finger for okay two for rushing you to the ER. Like I would ever say take me to an ER. But it’s odd I have to talk to my ND about it. I cannot afford to get daily IVs plus he is so busy he always fits me in and it’s asking too much. I just take all the supplements and never feel any better.

        • Linda December 16, 2015 at 6:31 pm

          Damn. Sorry. It infuriates me what we all have to go through for someone’s greed. Do you think your trouble walking is more related to nerve damage or collagen/structural damage?

        • Stephanie December 16, 2015 at 8:00 pm

          I dont know how to tell the difference. Sometimes my left leg will just give out. I have spasms in my legs and sometimes they turn in without me knowing it so I walk bow legged. Then there are times where I have trouble getting up. Is that nerve or collegen?

        • Linda December 16, 2015 at 8:59 pm

          hmmm…not sure. I ask because the phosphatydalchline helped me with some of the nerve damage. Are you getting that one? I had spasming fingers that would move in crazy ways that I couldn’t control. In fact, I couldn’t even MAKE them move that way when I tried. That is one of the things that did go away completely.

        • Stephanie December 16, 2015 at 9:13 pm

          Yep I have that one. No my spasms are rad I have my eyes roll into the back of my head, at the same time my arms flop sometimes smack myself legs twitch and turrets. Its some type of one or all of those at the same time. I have learned how to see while my eyes spasm and shake it’s awesome. When I go to the store and it happens at least I usually get to be next in line hahahahahahaha. Either that or people will clear out like I am contagious. 👍 But hey I am comforted with the fact that the Bayer executives are having a nice Christmas in their large homes possibly going on vacations buying their families expensive presents. While I could only afford to spend $50 on my boyfriend we cannot afford to go anywhere, oh and have to make sure that our dinner is simple enough to ensure we have money for rent. He has a killer tooth ach cause we cannot afford to get it fixed because he tries to cover my food needs. Also my company messes up my disability pay so I have to spend cautiously cause I need to have money to pay my bills. But hey those Bayer execs really deserve a nice Christmas. 😔

        • Linda December 16, 2015 at 10:15 pm

          yeah—I am down to the dregs money wise. First year ever where I could buy NO gifts at all. May all those at Bayer who are responsible get a nice big lump of coal in edible form stuffed with Cipro and steroid icing.

        • Stephanie December 16, 2015 at 10:41 pm

          It just isn’t right Linda!!! It’s not right. I hope they get an iv drip of this crap. I mean since we are all outliers they should take this crap with steriods. I wonder how many of them go to NDs. I got the pleasure of telling my boyfriend that I got a cane for Christmas. He got quite and said next year we will have joy. Stay positive we need to stay positive. I am trying to but it’s hard to.

        • Linda December 16, 2015 at 11:12 pm

          your boyfriend sounds wonderful. glad you have him. I need to get me one of those 🙂

        • Stephanie December 17, 2015 at 12:31 am

          Lol thank you. He is my angle and I tell him that every day. Yes you do!!! You are a wonderful person and we all need someone to help us through this crap!!! First we make sure you are financially okay!!! Have they responded to you yet? I hope they just give in. It’s evil. Just evil.

        • Linda December 17, 2015 at 12:52 am

          no they haven’t. I can’t believe the doctor could put me through all this and then let me go through all the legal hoops too…..

        • Stephanie December 17, 2015 at 1:05 am

          Unfortunately I can. These doctors that gave us this crap do not care. Want them to look at us and see what they have done. See the pain they have caused. I have been told oh well he thought you were sick it’s not his fault. Umm they gave you the same crap they give to people who have cancer and anthrax. I think that’s a bit much for a UTI don’t you. He just wants to save his ass. Everyone I know who is not a doctor but tied to medicine said that’s why I don’t trust doctors. These are nurses medical billers. They see that these Drs just see money. I remember the Drs looking at me like I was insane. I know you have gone through the same shit. We have to find you someone willing to help you!!!!!

        • jwinn December 17, 2015 at 6:44 am

          Your boyfriend sounds like a very special man! Glad you have him too to help you through all of this….mine decided I was too much trouble and not healthy enough for him, so he bailed on me. I lost all hope….which only made me sicker and probably aided to my relapse. I am angry at Bayer, too. I’m angry that I am not healthy. I am angry that my dear friend in Italy offered me a free trip to visit over the holidays, yet I am not healthy enough to travel, much less enjoy myself. All of this because of a UTI….and Yes, I am sure the Bayer execs are having a marvelous Christmas! YET! We all need to try to stay positive, even though we all know how bad floxing sucks for us!!!!!!! I’m glad we have eachother to vent to when we are angry, or just having bad days! Stay strong!!!!!!!

        • Stephanie December 17, 2015 at 8:23 am

          Jwinn that makes me so sad. Thank you I told my boy friend and he said he’s not special he just somehow got this idea of what a true man is. He said real men don’t leave someone when they need them the most. We all need support someone to hug us when we are down. One of my dreams is to go to Italy. I’ve always wanted to go. We do need to vent it helps us continue on and fight. Sending you all lots of love xoxoxoxo

        • jwinn December 17, 2015 at 8:43 am

          Thank you, Stephanie. I’ve been blessed to have gone to Italy twice, and it is absolutely amazing!!!!! It makes me very sad to think I may not ever be well enough to walk those streets again. I also don’t feel good about myself and the way I now look or feel…I don’t want my friend to see me like this. I want him to remember me as the happy, vibrant, healthy woman I once was. I will always have the memories. I hope that you are one day able to go and experience the happiness I felt when I was there!

        • Stephanie December 17, 2015 at 8:56 am

          I know what you mean about hating how this crap changes how we look. I don’t like to look in the mirror anymore. I feel ugly and I don’t post any pics of me at all. It’s so hard. I just won’t let them win though. I went on a three hour drive to visit people it was hard but I go on mini trips. To the falls by my house. Stuff like that. I hope you can go to Italy again and I hope I get to go just once. There is so much to see. Hehe

        • Stephanie December 16, 2015 at 9:19 pm

          Sorry for the heavy sarcasm. I am just angry really really angry. I find it frustrating I have written so many people I drag myself to the computer to write these emails the least they could do is respond. But nope. But when I watch tv I get to see Johnson and Johnson commercials about how they care about people. They can bite me. Then I think of all those scientists that made this crap in their nice houses while I am constantly scared of becoming homeless. But hey it’s all good Bayer execs are having a super happy holiday.

        • jwinn December 17, 2015 at 8:05 am

          Stephanie, I take a MOUND of supplements every day, but I don’t think they help much either. I don’t live within a 200 mile radius of a NP that does IV treatments, so I am stuck. Linda found me one 150 miles away, but he doesn’t do IV treatments. I’ll keep taking the supplements until they run out, but don’t know if I’ll replenish all. I’ll keep up the B12, Vit D, Magn, Calcium, and Vit C….I just started taking Boron. Hoping that will help in some way. We’ll see. Wish a NP with IV treatments lived closer!!!!

        • Stephanie December 17, 2015 at 8:32 am

          I wish they did too or that one was willing to make house calls. I mean someone has to be able to do something. I keep taking the supplements thinking something must be getting in but I would think that I would feel something positive. Ugh IVs of cipro for all Bayer execs.

        • Tom Marsella, Fresno December 17, 2015 at 9:29 am

          Jwinn: the product B I referred you to is the purest form of supplements you can find and is being considered for the Nobel Prize in health. Takes time. Tom

        • jwinn December 17, 2015 at 9:46 am

          I’m still using it….still hoping for results.

        • Tom Marsella, Fresno December 17, 2015 at 10:08 am

          Jwinn: I started out with 7-8 daily, now at 5. If questions call me. Merry Christmas! Tom, in

        • Linda December 16, 2015 at 3:16 pm

          I meant high dose vitamin c in an IV

  2. dan December 17, 2015 at 5:04 pm Reply

    dear jwinn, sorry to hear about your situation. how long ago were you effected? you mentioned relapse were you better at some point? what are your symptoms now? thanks dan.

    • jwinn December 18, 2015 at 7:58 am Reply

      Dear Dan, I was effected 5 1/2 years ago. Yes, I was better at some point…up until April of last year, I could feel myself getting progressively better. I was given Levqaquin first, then Cipro. When I had my reaction, they were convinced I had an autoimmune disease so they started me on Prednisone and sent me to an autoimmuned specialist. I continued to tell them that my symptoms only started after I took the anitbiotics, but no one would listen to me. I started off with labored breathing, chronic fatigue, my feet and hands were red and felt like they were on fire, and sever joint pain. I went to the doctor with these symptoms, and he told me I was suddenly ‘menapausal’ and had Fibromyalgia. Within a week after this visit, my feet and hands had turned black from lack of circulation, I had lapses in memory, I had lost 15 pounds, I had neuropathy. My feet and fingers were one complete huge big blister. My legs and feet had swollen to twice their size. I had severe Petechiae on both legs, both arms, and around my major arteries. I did not have the energy to walk. I could barely breathe. I felt like someone had poured liquid lava in my veins, and I was in severe pain all over. My anxiety was through the roof. My blood pressure would go from 80/50 in the morning to 150/100 by 3 p.m….then my nose and ears would blister as well. I lost all of my nails due to lack of oxygen and my hair fell out by the handfuls. I honestly thought I was going to die. I even got my will and life insurance policies ready. I went back to the doctor and AGAIN mentioned the antibiotics I was on…….But, he put me on prednisone and sent me to the autoimmune specialist….who tested me for an entire year and all of my tests came back negative each month. ( I also went to 18 other specialists in between who all just shrugged their shoulders and sent me on my way). Btw, I was on Prednisone for an entire year….which is a big no-no. Nothing they gave me for the pain worked. I am very med sensative, so they have to be careful what to give me. I don’t like taking medication at all, even though I take about 20 supplements twice a day. They finally tried me on a very low dosage of Savella in the morning, and it helped my worst shoulder pain for about a year. I slowly got to where I was functioning about 75% better and less pain. I also took (and still take) Vit B12 shots and Vit D supplements. Then in April of last year, out of the blue, I woke up with a ‘frozen shoulder’ with my good arm. I literally could not move my arm, and the pain level was BAD! I was in severe, nauseating pain…my anxiety went through the roof, I lost 20 pounds, I had severe labored breathing, my feet and hands started burning, I lost 2 of my nails, my hair started falling out, and the nightmare started all over again. I went back to the doctor, and he gave me a steriod shot in my arm, which gave me about an inch of movement, and sent me to a physical therapist. They cost $120 a visit x 3 times a week and I couldn’t afford it. I went 3 times, got some exercises and started doing them at home with tears down my face. I almost lost my job. My sister talked me into going to a chiropractor and he helped me get some ranged and motion back. HOWEVER, I now have BOTH arms hurting and my neck and head hurting EVERY DAY as well, which I didn’t have before going to the chiropractor….not sure if that is a good trade-off. I am no longer seeing the chiropractor. I have been seeing a therapeutic massage specialists who specializes in sports injuries and using pressure points to relieve pain. She has done the most help for my shoulder, arm, neck, and head pain. However, She is $70 an hour, and I can only afford to go every 2 weeks. She helps to make the pain tolerable. It has been 9 months now since my relapse, and I’m not sure I will ever get any better., whereas before my relapse, I had some glimmer of hope because I could see progress. I now have about 50% movement in my arm, but the pain in both of my arms, neck and head are what gets me the most. It is all I can do to make it through work to get home and crawl into the bed. I have no desire to go anywhere, because I am in so much pain. Laying down is the only thing that relieves the pressure off of my shoulders and neck. The doctor gave me a low dosage of Remeron for the anxiety and to help with my weight loss. My anxiety is some better, and I have gained back 20 pounds, but it all went to my stomach, which does not make me happy about myself. I lost all of my muscle, and I don’t have the energy to increase my activity levels. I have also found that the more I make myself do, the worse I hurt, so I had to back off on pushing myself to do some things. I am now very self conscious about the way I look…my skin is sagging (and I never weighed more than 115 in my whole life, so I wasn’t overweight, I just lost a dramatic amount of weight in a short time), I have wrinkles everywhere…my arms, my legs, my neck, even down the middle of my back, where I lost my muscle. Most of this occurred with my relapse. I’ve used every cream on the market and none have helped. My diet is not the best, because I live alone, and I don’t have the energy to shop, much less cook. I have not let anyone take of picture of me in over a year. I used to be proud that I looked much younger than I truly am, but not anymore. The last year has truly aged me the most. I would tackle any job/project around my house, and have more power tools than most men, but I can’t use them anymore. I don’t want to discourage you. I am simply just telling you my story, which can be a discouraging one, unfortunately. However, there are those who have recovered! There is hope! I don’t have a NP within a 200 mile radius of my home, or I would go to one for help. I take MANY supplements that have been recommended by various people on this site. That is the best information I have. There are a lot of good people here, and we all have different stories, but one common thread—-we were all floxed! We feel eachother’s pain and support eachother! I am praying for healing for everyone on this site….including YOU and myself.
      I pray that you have a healing story to tell me very soon!!! Sending blessings and healing your way during this holiday season!

      • Carla January 1, 2016 at 9:31 am Reply

        Dear jwinn … Your story has touched me most deeply and I hope the information all of us are sharing has been of help to you. Please meditate each morning on the energy we are building here, based on our mutual desires to heal, to help others heal, and to educate all on the dangers of pharmaceuticals and the steps of natural methods of healing. Linking in to the energy we are building will help all of us go in the right direction.

        • jwinn January 1, 2016 at 6:24 pm

          Sorry Dan, thanks for your support. I just saw your post and appreciate your thoughts. I’ve been having a bad week…somewhat of a setback. I have been having severe joint and muscle pain in my neck, shoulders, arms and hands. I am beginning to notice the return of Petechiae on my arms and my finger nails are starting to recede from their nail beds again. My nails have been fine since I lost them 5 years ago and now, all of a sudden, I am having problems again. I know it is coming from poor circulation from my shoulders area joints to my finger tips due to the inflammation…..I’m just getting really tired. I don’t know what else to do anymore. Not to mention, I can’t sleep. I’m also craving chocolate like crazy and I’ve never done that. It has been a long road and at the moment, it just seems to be getting longer. Just discouraged and frustrated. I’ll be okay. I am praying for a better year for all of us!!!!!! Happy 2016!!!!!!! 🙂

        • jwinn January 1, 2016 at 6:29 pm

          Thanks Carla…I’m hanging in there. I appreciate you listening. I get so numb with my health issues, that sometimes it is healthy for me to rehash the physical torture I have been through so I don’t lose my will to fight. I’m Having a bit of a relapse at the moment and it has me discouraged, but I’ll pull through. I’m sending healing and blessings your way for a better 2016 than we had in 2015!!!!!!!!!! Hugs!

  3. Marçal William December 17, 2015 at 7:23 pm Reply

    Has anyone here ever tried Autohemotherapy?

  4. dan hedrich December 18, 2015 at 2:08 am Reply

    hello marcal, no i have not. how are you coping? are your symptoms still the same? thanks dan.

    • Marçal William December 18, 2015 at 9:15 am Reply

      Hello Dan, my metabolism and my stamina improved.
      I’m doing an alkaline diet and Autohemotherapy …

  5. Catherine December 18, 2015 at 9:53 am Reply

    Hi everyone
    Would having my teeth cleaned at the dentist worsen Flox symptoms? I had a check-up yesterday, didn’t need any work doing thankfully, but she did give my teeth a polish. I felt fine afterwards, but today the flox symptoms have flared up worse than ever. Could it be related or just a coincidence?

    • jwinn December 18, 2015 at 10:03 am Reply

      Catherine….the answer is “OH YES!” Flouride can make your symptoms worse. I had the same reaction to my teeth cleaning. There are more people on this website who are more knowlegable than I am on the flouride topic, but I can tell you that I had the same experience!

      • Catherine December 18, 2015 at 10:36 am Reply

        Thanks jwinn.
        Did the bad reaction to the fluoride go off again?

        • Linda December 18, 2015 at 10:49 am

          I had mentioned this before—a good idea if you can find a Huggins trained holistic dentist. They do not use fluoride or other toxins. Their methods are holistic as well. https://www.hugginsappliedhealing.com/find-dentist.php

        • Catherine December 18, 2015 at 11:01 am

          I’m in the UK and have a NHS dentist. She has always avoided using fluoride on me before, but yesterday I stupidly decided to get them polished.
          Does the adverse reaction go off, or will I be stuck like this for ages?

        • jwinn December 18, 2015 at 11:16 am

          Hang in there, Catherine! Don’t lose hope! The reaction should get better!

        • Catherine December 18, 2015 at 11:28 am

          Thanks jwinn!
          I’m kicking myself because I’ve been bedbound for nearly 3 years now, and only recently felt well enough to get out in a wheelchair and get to hairdresser, optician, dentist etc.
          I can’t believe I’ve gone back to square one again – it’s too much.

        • jwinn December 18, 2015 at 3:10 pm

          Catherine, I know that feeling exactly. I was sooo depressed. But there is light at the end of the tunnel! I will say that it is taking me longer to recover from my relapse, so try to be patient! I know how difficult that can be!!! Stay strong!!! Prayers and hugs!

      • Stephanie December 18, 2015 at 10:44 am Reply

        I had reactions to the floride in toothpaste which is lower than when you go to a dentist. I suggest a dentist that doesn’t use floride. There are naturopathic dentists out there. They don’t use floride and will be understanding of your issues.

  6. dan December 18, 2015 at 10:58 am Reply

    jwinn, please, please hang in there!! we are all pulling for you.just get plenty of rest. dan.

    • jwinn December 18, 2015 at 11:13 am Reply

      Thank you, Dan! Doing my best! The same to you!!! Just getting off from work and heading home to get my evening rest with my precious doggie! She is my life line! 🙂

      • Tom Marsella, Fresno December 18, 2015 at 12:47 pm Reply


  7. jwinn December 18, 2015 at 3:11 pm Reply

    Thanks Tom, I’m still taking the Product B 5 times a day. I haven’t given up!

    • Tom Marsella, Fresno December 18, 2015 at 3:35 pm Reply

      JWINN: I’m into my third year on product B. thank God for that!

    • Lucy Sky December 28, 2015 at 1:10 pm Reply

      Hi jwinn
      What is product B5? Is it vit B5.

      • jwinn December 28, 2015 at 2:25 pm Reply

        Lucy, It’s called Isagenix 4th generation Product B. It comes in a bottle of 120 soft gels.

  8. Heath Wynn December 19, 2015 at 12:05 pm Reply

    I am very new to all this but I would love some input on a couple questions I have. I took cipro a year ago at 21 years old and before this I was in the best shape of my life. I could bench 225 and lifted weights religously. I ate healthy and was a very happy person. Three days after taking cipro I could not lift weights without pain or even walk without pain. It steadily got worse and worse and doctor after doctor could tell nothing wrong with me. I have muscle faciculations everywhere and major cognitive issues now. I have tried all supplents and diets which seem to have no effect. I was wondering if it is possible to get worse before you get better because i am starting to lose hope.

    • Bob December 19, 2015 at 12:26 pm Reply

      Wynn, Sorry to say but you can get worse before you get better. Then you can get better and get worse again. I took cipro 2.5 years ago and I was better at 6 months out than now. On the other hand I was also better 6 months ago than I am now. The maddening thing is you get better then you can get you can get worse and you don’t know why. Don’t lose hope though because when some people get better they stay that way. Don’t waste your money on regular MD’s because they don’t know anything that will be helpful to you. My theory is that the livers of some people just don’t detox fast enough to get rid of the cipro. I think the IV’s are the best bet; nutritional, glutathion and hydrogen peroxide. Don’t lose hope that’s all you have right now. I still have to wear an ice pack around my left leg to walk. and my feet hurt like hell. At 6 months out though I was shoveling snow. I have lost hope several times but that feels worse. Hang in there. Try meditation and see yourself as well and do it everyday. That may be the most important thing.

      • Carla January 1, 2016 at 9:19 am Reply

        Please look into Ionic foot baths as well, to remove toxins. My chiropractor offers them and the results are amazing, both in the relief for the feet and the ugly toxins that are removed. Remember, toxins are often stored in the feet. I just ordered my own ionic foot bath on Amazon (got the ‘cheap’ one at $116) and will let you know if it helps. The one my chiro has is undoubtedly stronger.

    • Linda December 19, 2015 at 12:40 pm Reply

      I’m with Bob. Most western med doctors, unless they are integrative will tell you it couldn’t be the Cipro or Levaquin. they will do test after test after test which normally come back negative, because as Dr Todd Plumb explains, the damage is functional, not structural. I also agree with Bob on IVs being your best bet. They literally saved me from the brink of death: Glutathione (or in a push), H2O2 or Ozone, High dose vitamin C, phosphatydilcholine (good for nerve damage). So I would suggest finding an integrative doc or an ND who does IV therapy.

      • Heath Wynn December 19, 2015 at 2:21 pm Reply

        Thanks for both of the replys. It gives me hope to know there are ups and downs with some people. I have tried both ozone and glutathione and both made me foggier for some reason.

        • Bob December 19, 2015 at 3:50 pm

          Heath, The glutathion helps your liver to detox. Some of those toxins can get back into your system through your intestines. I’m sure it is beneficial though. The ozone is oxidizing toxins which also could give you a reaction. Maybe you should try the nutritional IV.

        • Linda December 25, 2015 at 10:29 am

          Also wanted to mention that it might have been too soon for ozone. It is good, but perhaps not the best first step. May have been too much for you. Maybe try a meyers or high dose C with a push of glutathione. You will need to be tested for the high-dose c if you go that route. Avery small percentage of the population cannot do it.

    • Bruce December 19, 2015 at 3:14 pm Reply

      I just started a Iodine liver detox last week so I will give updates. The iodine is supposed to be very good for detoxing the liver. I was taking 25 mg of Indomethacin since Aug (shortly after I got floxed) and was doing pretty good. This past week I tried to get off the indomethacin and after about 3 days it was hammering me pretty good so I am trying Meloxicam to see how it does. From what I read Meloxicam is not as hard on the gut. I realize that most people say Nsaids are a no-no but they have been my saving grace. Still doing my organic vitamins, organic magnesium, CoQ-10, Udo’s oil blend, probiotics and exercise. I lift light weight with a lot of reps. Stay positive!!!!

  9. Linda December 19, 2015 at 1:59 pm Reply

    Hey Lisa…just came across this site which said you need to remove ALL fluoride. That is depressing, since it is virtually impossible. I cannot remove it from the shower. I buy bottled spring water which has some naturally occurring fluoride. (I know there is the R/O route but also impossible given my living situation.) Plus there are those times that you get caught away from home and run out of water. Distilled is not supposed to be good for you. Your thoughts? Did you eliminate it entirely?

    • Linda December 19, 2015 at 2:00 pm Reply
      • Carla January 1, 2016 at 9:11 am Reply

        Multipure water filters makes a shower-head filter that removes chlorine from your shower. I’m not sure if it removes fluoride also, but you could check their information online. I’ve used Multipure water filters since the 1970s and I’m sure that has helped me remain healthy up to my 70s. I’m now fighting a moderate Fluoroquinolone toxicity which has effectively disabled me for a year or more. I say “moderate” only because I have read some of the other stories on here and they have had worse reactions, plus been disabled at a young age. I hope my 40 years of experience with self treatment, diet, supplements, herbs and research will be helpful here. I am slowly recovering from the floxing and intend to recover full function, since I plan to be around a while yet. Thank you for this site, by the way, and Happy and Healthy New Year.

  10. dan December 19, 2015 at 9:18 pm Reply

    bruce, what were your symptoms from the begining?dan.

    • Bruce December 20, 2015 at 11:19 am Reply

      Started out with joints locking up and then painful burning in both hands. This lasted about 6 weeks until I started my supplement, detox, Gabapentin and indomethacin. I pretty much got the pain under control and started working out to try and save my muscle and tendon loss. I am sore every day but it is manageable. Take a little Tramadol and Alprazolam at night. Just taking it day by day.

  11. dan December 19, 2015 at 9:28 pm Reply

    heath, i am having more and more muscle spams myself and feel its getting worse. was the glutithione iv or by mouth? and where is your pain mostly? thanks dan.

    • Heath Wynn December 20, 2015 at 10:37 am Reply

      it was by iv and i have tendon pain pretty much everywhere as well as nerve pain.

  12. dan December 20, 2015 at 12:08 pm Reply

    dear heath, how bad is the pain and are you able to sleep? how many treatments of both?thanks dan.

  13. dan December 20, 2015 at 12:16 pm Reply

    bruce how many times do you go to the gym? i am trying to run but iam scared to aggrevate my symptoms. i cut back. keep hearing how it is going to get better. i hope it is for every ones sake. dan.

    • BRUCE BRANNAN December 20, 2015 at 12:27 pm Reply

      I work out at home and walk. I lost about 75% of strength but have gained back about 25% of it. Still got a way to go. I feel like I have this stabilized but still very cautious.

      Bruce Brannan All Star Forest Products (662) 417-7648 (Ph) (662) 294-9001 (Fax) brucebrannan@cableone.net

  14. Heath Wynn December 20, 2015 at 9:35 pm Reply

    dan, i did 4 ozone treatments and 2 gluathonine treatments. Its hard to sleep if i walk to much but meletonin helps.

  15. Peter December 20, 2015 at 11:38 pm Reply

    It just never ends I swear. My pinky toe nails both cracked/broke/something and fell off. This has never happened before in my life. I’m shocked…

    Nothing had helped my severely dry mouth either.

    Continuing to wonder where the silver lining is.

    • Stephanie December 21, 2015 at 12:00 am Reply

      Peter I know it’s hard!!! Trust me, I know that it’s painful. The silver lining is that you are here you are alive and there are going to be days where is just blows and you question everything. But you have all of us to fill you with hope when you have none. To give you a place where everyone understands. There are going to be days where it blows. But that’s what this site is for to say today sucked and lean on us to help get back on your feet to keep fighting!!! If you look through past posts you will find suggestions from others on both the dry mouth issue and nail cracking issue. Keep hope, it’s all we have!!!

    • jwinn December 21, 2015 at 1:50 pm Reply

      I’m sorry, Peter. I lost all of my fingernails and my toenails, but as time went by, they began to grow back. I only have trouble with my two big toenails now. Fortunately, I can keep them polished. I am also still having spasms and tendon issues….bones crack every day. When I hear them crack, I pray it is for good reasons and my body is fighting to get back to the way it is supposed to be! Hang in there!!!! Hugs!

  16. Diego December 21, 2015 at 6:51 am Reply

    Has anyone found relief or help from a Chinese Herbalist Doctor?

    • daniela December 21, 2015 at 5:00 pm Reply

      Acupuncture and Chinese herbs help me a lot. If I could afford to, I would go at least once a week.

    • Linda December 21, 2015 at 5:57 pm Reply

      Hi Diego..I now see an acupuncturist who also does Chinese herbs.Both have helped. There were so many issues, he just focused on one at a time. There was so much pressure I felt like I had another UTI, but I didn’t. Just more nerve damage. So he treated that with both acup and herbs and it has subsided. Working on the breathing thing, although it is still a mystery as to exactly what is causing it. Likely not the lungs, but probably damage to autonomic nervous system or mitochondrial damage to the heart muscle. Anyhow, he focuses the acup on the heart, lungs and liver. The herbs I take now are general tonics for overall health. It’s slow, but I do see improvement.

  17. dan December 21, 2015 at 8:53 am Reply

    hi peter, are you the same peter on diegos post.if so are still having spasms and tendon issues bones craclkling? thanks dan.

  18. Diego December 21, 2015 at 7:54 pm Reply

    Daniela and Linda, thank you so much for your input. I did see an Herbalist today and she is starting gentle and slow with me. In my mix of herbs which ended up all being mixed and in a liquid form in a dropper bottle. She have me a total of 6 herbs in my mix and it is to support muscles, help relax, improve the Qi, circulation, and digestion. I will start slow. I will begin with 1/2 a dropper once a day. Thanks for your response.

  19. Linda December 21, 2015 at 11:17 pm Reply

    Hi all. In case I don’t post again for awhile I just wanted to say Merry Christmas, Happy Chanuka, or whatever else you celebrate, I hope the new year brings substantial recovery for all of us. xoxo

    • Bruce December 22, 2015 at 8:37 am Reply

      Merry Christmas to everyone in this new group of people that I am sharing an unwanted part of my life. May Santa bring strength and healing to all my Floxie friends!!!!!!

      • Bob December 22, 2015 at 7:59 pm Reply

        Even though I continue to have symptoms I still choose to Know that I will recover. I learn more as more as I research and am convinced I will have a better future. You create your future by holding your focus on the future you want and take it away from the pain of the present. This is simple but very difficult with the pain we have to live with. No one that has not experienced this could understand living through this. I urge everyone in the coming year to choose to believe in their own recovery to the extent that it brings them joy to think of it. Engage the mind and emotions and magic will happen. Merry Christmas and happy holidays to everyone.

        • Linda December 22, 2015 at 8:03 pm

          good thoughts, Bob….Happy New Year

  20. Marçal William December 22, 2015 at 7:45 am Reply

    Hello everyone, autohemotherapy is working!
    I improved on some points.

    • jwinn December 22, 2015 at 8:16 am Reply

      Thanks Lisa. Merry Christmas to you too! Marcal!!!!!!!! Congratulations! I am praying for you to have a complete recovery!

      • Marçal William December 22, 2015 at 2:19 pm Reply

        Thank you so much Jwinn.
        I hope to post my story of total recovery!

    • Linda December 22, 2015 at 10:49 am Reply

      I hadn’t heard of this before you, so I did some research. Appears to be used around the world to help the immune system. What are you using it for?

      • Marçal William December 23, 2015 at 9:19 pm Reply

        My own blood only …
        I intend to do with ozone also …

        • Linda December 23, 2015 at 9:27 pm

          Heard good things about Ozone. The only reason I wasn’t give it was that I was getting H2O2 and there is some overlap.

  21. Tricia December 22, 2015 at 10:01 am Reply

    I think I had an allergic reaction to tuna last night. Itching , rash on face, and burning , tingling all over. is it safe for floxies to take benadryl? ??

    • Linda December 22, 2015 at 10:53 am Reply

      Trish, I noticed several others had taken benadryl. couldn’t find anything against it—other than it’s made by Johnsons and Johnson, the makers of levaquin! I am wondering though if it was the tuna you actually had a problem with or mercury. I used to eat canned tuna every week, but I no longer do for that reason.

      • Tricia December 22, 2015 at 5:35 pm Reply

        Thanks Linda!
        I posted earlier but I guess it didn’t show up. Anyhow, I’m Leary about taking benadryl now that I found it is made by those monsters.
        For the last 3 weeks I’ve been doing great. No leg pain and only minimum back pain after working all day. Then, on Saturday, I took 3 bites of my daughter’s non organic pork sandwich, and now I have burning, itching skin all over and feet pain returning, as well as tons of anxiety. i feel like I’ve been refloxed but it’s not like I took an actuaul quinolone:( maybe residual fq’s from pork, but i have no idea if fqs are even used in pork. The tuna fish from last night also seemed to exaccurbate my symptoms. Has this happened to anyone else??

        • Linda December 22, 2015 at 5:46 pm

          Ugh. This is so frustrating the way things just keep on coming back, and you are never really certain why! I had the nerve pressure in my neck, which makes it feel like I am choking, go away and come back and I haven’t a clue why. I wish they’d take some of the millions they spend on advertising and try to find a way to fix us. And yeah, if anything says bayer or johnson and johnson—no way I am using.

        • Stephanie December 22, 2015 at 5:56 pm

          Different foods do from places I don’t know use 100% organic meat are a 50/50 shot in making me sick to my stomach and making it so I can’t walk or I will sit and cry for no reason. I look at it as if I eat out maybe I will be okay maybe I won’t

    • Lucy Sky December 28, 2015 at 1:33 pm Reply

      Hi Tricia
      Sorry to hear that you had a bad reaction to tinned tuna.

      A nutritionist told me not to eat tinned tuna.
      Fresh tuna is better but only from certain areas due to the problems with mercury.

  22. Stephanie December 22, 2015 at 2:46 pm Reply

    Happy Holidays whatever you celebrate I hope you all celebrate with loved ones and joy. We all need it. I’m probably going to be on silent mode for a while. My hands are burning as I type. My foggy brain cause me to get very sick. Stay strong, never give up!!!! If we are silent they win. Love to all of you!!

  23. Linda December 22, 2015 at 3:52 pm Reply

    Very important. As if big pharma wasn’t already getting away with murder (literally) now they want to take away compounded drugs and compounded IVs. Please read, edit the letter with your own words and send. Thanks. http://www.anh-usa.org/congress-sends-strong-warning-to-fda/

    • Stephanie December 22, 2015 at 4:29 pm Reply

      I am going to lose it!!!! If they take away my IVs I will not be able to walk or talk!!!!! Seriously, it keeps me able to do my limited things. I cannot imagine my life without IVs. What are we going to do freaking have to go to secret doctors that give you IVs. The FDA is going too far. This is too much. I am going to lose my mind if this happens. It’s their fault we are like this these people are evil l think they are plain evil!!!!

      • Linda December 22, 2015 at 5:10 pm Reply

        That is the gyst of what I put in when I edited the top of the letter before sending. It kills me—the FDA allows big pharma to foist all these poisons on people and then tries to take away benign, helpful, natural cures. They disgust me. Please edit and send the letter on the link. Maybe if they get enough they will (finally) become aware of the sinister hoax that is going on.

        • Stephanie December 22, 2015 at 5:53 pm

          Already did it and shared it. I seriously will be up a creek without my IVs. They are bastards. Oh here are your crumbs floxies are now a disability. Piss off. Seriously just wish that people would wake up. The FDA doesn’t help anyone they only help big pharma and themselves!!!

        • Linda December 22, 2015 at 7:17 pm

          I know. A friend posted the flq hearing thing and my comments and someone posted “well, sorry about your friend, but side effects like this are rare.” GRRRRRRRRRRRR

        • Stephanie December 22, 2015 at 8:01 pm

          Really omg grrrrr and then fine you take it. Is my response and nine of us were told. People are so stupid I have been told well everything has side effects and I’m like walk in my shoes buddy. Tonight I had another bad turrets attack. My boyfriend just held my hand saying breath breath but hey it’s a side effect. I give them my usual response make sure you get a flu shot. Lmao

  24. dan December 23, 2015 at 5:05 am Reply

    stephanie, did you have any prior iisues before being floxed? when and how did this all start? and what type of ivs are you taking? thanks dan.

    • Stephanie December 23, 2015 at 7:29 am Reply

      Hi Dan,
      I had stomach issues prior to being floxed. That’s actually how I got floxed. Stupid ER dr gave me some lovely Levaquin for devrticulitis which I do not have. That was in February of this year since then I’ve gotten gradually worse. Right now I have a long list of issues ranging from burning pain in hands and feet brain fog, dizzy, turrets, spasms, drooping on the left side on my face that moved over to the right, slurred speech sometimes I cannot speak at all, chest pain, hyperventilating usually after my turrets somehow they are connected, difficulty walking im 35 and I have to use a cane now because I’m scared I will fall and crying fits. I may have missed somethings it’s hard to keep track. For my IVs I take gluthion, Myers, vitamin c. I get relief for the longest is two hours but it also helps me walk and prevents me from have days where no one can understand me. Right now my amazing ND went for on a much deserved and needed vacation for a week so I’m in a lot of pain and cannot really walk well and having trouble talking right now gah means yes and bah means no because that’s easier for me to say then the actual words. My boyfriend tried really hard to understand so I kind have my own language that he tries to understand cause I cannot always type out what I’m saying and I will give up and sit in silence. But I try to stay positive. I will not give Bayer the satisfaction of me rolling over and giving up its what they want us to do. I record all my ailments weekly which I encourage all of us to do. Get friends to help record spams when you feel sick make a video show how you cannot walk or grasp things. Make records!!!!! They cannot say this is a small group if enough of us video tape it and share it with people.

      • Bob December 25, 2015 at 9:26 am Reply

        Stephanie, Did you take a generic? If not do you know about the class action suit.

        • Stephanie December 25, 2015 at 11:22 am

          Hi Bob,
          I didn’t take the generic and would love to know about it. Thank you for a Christmas gift.

        • Bob December 27, 2015 at 12:13 pm

          I believe the law firm is Barron @ Budd in Texas. there is also one in California in partnership. I believe you have to have a diagnosis of PN.

        • Stephanie December 27, 2015 at 12:27 pm

          Hi Bob,
          Thank you do you have to live in the state to be apart of it? I have been diagnosed by a neurologist with PN he said that what I have is permanent because the drugs he gave me couldn’t reverse it. But I go to my IV treatments to prove him wrong. My ND says as long the nerves aren’t dead there is hope. I will contact them next week. Most lawyers have told me it’s very hard to go after the drug companies. I also have been told that I have to wait a year to be considered. But that comes up 2/4/16

        • Bob December 27, 2015 at 1:17 pm

          No Stephanie you don’t have to live in the state. Permanent PN is the diagnosis you want because they added that to the “side effects” I think in August 2013. You may have had to have been floxed before that date. Contact them and find out.

        • Stephanie December 27, 2015 at 1:59 pm

          Thank you Bob. I will check it out I do have that diagnosis. I think you are right about the 2013 thing. It’s such bs. I mean I was never warned no warning label on my pill bottles but because it’s on a piece of fucking paper they are in the clear for what they did. I will contact them tomorrow let you know what I find. Fingers crossed.😜

        • Deborah December 27, 2015 at 5:41 pm

          FYI – Warning was put on levofloxacin Sept 2013, I was told. It was given to me by my Internist PA in Oct of 2013. After suffering with right thigh pain for few months, I went to my Internist and was diagnosed with peripheral neuropathy in Nov 2014.

        • Stephanie December 27, 2015 at 6:05 pm

          I was never warned it was never put on a bottle that was given to me. It’s all a game so the evil FDA can continue its path of poison. You weren’t warned none of us were. One day I hope we have our day in court to explain to the world how the drugs they bow down to are slowly killing them. I won’t stop fighting because the FDA says that a warning was given. I sure wasn’t warned. Where did they put the warning? I mean I don’t get it. I have heard there was this freaking warning and it’s so stupid because no one warns anyone. I don’t understand what the stupid warning is supposed to do. Drs don’t pay attention to these. They need to start because all our lives would be different if properly warned.

        • Linda December 27, 2015 at 7:32 pm

          Yep. That’s why I am continuing on to court, with or without an attorney. It’s even harder in CA—so many roadblocks, but the doctor is so arrogant I am sure he thinks he did nothing wrong by giving me cipro and prednisone at the same time. Trouble is, if it actually makes it to court he could line up a lot of other drs who would say “yeah, that’s the correct standard of care.” They JUST DON”T KNOW. They are not reading ANYTHING. I hope your case gets taken by baron and budd. They are one of dozens I contacted, but again since I took a generic I can’t sue the manufacturer. Jeez, how screwed up is that? Thanks again, Supreme court. Yet another absurd ruling.

        • Stephanie December 27, 2015 at 9:40 pm

          Right it makes no sense!!! You were damaged from drugs that follow the same thing. I’ve contacted some and I will keep going right now one is looking my case over but they said it’s hard to prove that I wasn’t warned and that they have to be sure they can win. So I’m just looking around I have the actual stickers that the freaking pharmacy gave me and it says no where in the bottle that there is a possibility of nerve damage. How is that not an open and shut case! I hope you find someone. The doctors don’t care they just dump out pills. They don’t want to be bothered and don’t care why they did to any of us. If they did all of this wouldn’t be so hard. I mean they all can still work.

        • Linda December 27, 2015 at 10:08 pm

          ONe of the attorneys I talked to said “well, the doctor will just say he did warn you.” I said–“well what is the logical conclusion to that? He told me there were a dozen different antibiotics I could take, but one has possible permanent nerve damage and when taken with prednisone increases your risk of tendon rupture…and I said yeah, give me THAT one!” Seriously, how idiotic is that? In what world would someone ask for the one that could permanently damage you???

        • Stephanie December 27, 2015 at 10:28 pm

          Lmao Linda, you make me laugh. Cause yeah who would do that? It logically doesn’t make any freaking sense. Then add the pharmacy that gave you the drug. Isn’t it their job to make sure we know what the potential side effects are I guess they don’t make potential nerve damage stickers. I was told oh we have to find medical professionals who agree that you wouldn’t have had this if you weren’t given the meds ummmm I never had freaking nerve damage in my life. I used to hike now I freaking use a cane ummm what more proof do you need pics of me before and videos I have should be plenty.

        • Bob December 27, 2015 at 6:14 pm

          I gathered all the info for the lawsuit and then found out ciprofloxine was generic for cipro. No one told me I would lose legal rights by taking a generic anyway. Thanks Republicans on the Supreme Court aka Nazis.

        • Stephanie December 27, 2015 at 6:33 pm

          It’s an evil game and the general public are the losers. Bob I’m so sorry. All I can say is keep up the fight!!! There has to be a way. Don’t lose hope. It’s just evil.

        • Bob December 27, 2015 at 6:44 pm

          A very wise teacher I once had said, “There are no monsters in the unknown they all walk the streets,” They also make the drugs and the laws.

        • Stephanie December 27, 2015 at 7:26 pm

          Lmao very good quote!!! I totally agree.

        • Linda December 27, 2015 at 7:37 pm

          yeah Bob , it is beyond absurd. So much for “for every wrong, a legal remedy.” There was actually one case that went forward in Alabama, against the original mfr even though the plaintiff had taken a generic. Don’t know how far up that will go, but it will be interesting to see. Meanwhile, we are all screwed. IF you can find attorney willing to do so, I would try going after the doctor and/or the pharmacy. Don’t know where you live, but in CA the law requires pharmacies to do a “new drug consult.” So if it was the first time you took cipro or levaquin and there was no consult by the pharmacist, that’s a problem. You might want to check what the law is in your state. Also be aware of your state’s statute of limitation. I am a paralegal, so by law cannot advise, but I can steer you in the right direction, if you like.

        • jwinn December 27, 2015 at 2:42 pm

          Bob,.you are right about the firm in Texas. I talked to a girl named Kristen. Her direct number is 214-523-6543. She didn’t have very good news for me, but maybe she can help someone else. I took the regular form of levaquin and the generic of cipro in 2010. I was diagnosed with neuropathy in my medical records. Good luck!

        • Stephanie December 27, 2015 at 3:17 pm

          Thank you Jwinn

  25. Mark S December 23, 2015 at 9:39 am Reply

    Hi All!

    Just wanted to give a quick update. I’m a little over five months post script. During the past couple of months I’ve had stages of feeling very good and feeling pretty lousy. My continued main complain is discomfort in my Achilles due to my hamstrings and calves being super tight. I think this may be due to sitting at an office job all day. I also started going to physical therapy due to both my knees tracking the wrong way, causing a grinding sensation that is not pleasant. Working on getting that corrected on top of Cipro symptoms has been a real challenge. But I think the overall benefits I’m getting from light muscle training, cross friction massage, and stretching will pay dividends.

    I went through a period of a couple weeks where my anxiety/stress levels were absolutely insane because of my job and taking this pre workout supplement that was loaded with stimulants (terrible idea). I started to have crazy heart palpitations, body wide tremors, panic attacks, and shortness of breath because of this. I also noticed that I had weird little yellow marks on the soles of my feet. Very odd but that seems to have abated within a month. I also seem to be regulating in terms of digestive issues thanks to a good probiotic before bed every night.

    All in all I could definitely be much worse and I have hope that I can get better to be the normal 24 year old I should be. I read a lot of stories where people start to turn a corner around the six month mark in terms of tendon issues so I hope I can too. Have hope, guys. For some of us it may only take a couple months to get better, and for others it will take longer. But if you’re in a bad place right now, please know that it won’t stay that way forever. Eat clean, take great supplements, avoid fluoride, and try to relax. Stress does the body no good and the power of positive thought is something that is invaluable.

    Happy Holidays!

  26. dan December 23, 2015 at 10:38 am Reply

    stephanie, dont mean to harp on syptoms did you get all these symptoms you describe right off the bat and they got worse and did you have turrets prior to floxing? i am a bit miffed that the ivs are helping but only to an extant. there has to be something out there to your benifit. i have been reading your posts and i am praying for you to get better. dan.

    • Stephanie December 23, 2015 at 10:56 am Reply

      Thanks Dan,
      I never had turrets or anything but stomach issues prior to being given this poison. They all started at different times and progressively got worse. I am on disability. You also have to take into account that I was given Levaquin at 750mg followed by two different dosages of cipro each 500mg. So I look at my situation as different than most because I was given a ton for this crap. The weeks where I have no IVs the pain is unreal. So I know that it helps me lead a some sort of a life. I am lucky I stopped taking the two second dosages of cipro I kept telling the dr it made me sick. I remember telling my girlfriend I think this shit is killing me. I do not think my situation is like most people’s. I was the victim of mass stupidity. It shows the huge issues with our medical system. The doctors do not know what they are giving patients when it comes to drugs. They really don’t know if there is a black box warning or not for the most part. I am an example of gross negligence. So I think I have a very long road ahead of me. I know there are people who are worse off than me and sometimes I feel like this shit is slowly killing my nervous system. I have no proof. But I never had issues till being given these pills. Sorry for the long response. I just want everyone to know that I consider myself an extreme case. Dispite my daily issues I try to always be positive. Some days are better than others. But in no way should people freak and think that they are going to end up like me. I was given a massive amount of this shit over the course of two months. I hope this helps explain why my symptoms are so bad.

      • Jason December 23, 2015 at 11:24 am Reply

        Don’t forget the damn Steroids at same time Steph, many who took Steroids with or after the CIpro have a severe Floxing and unfortunately that was you too 😦 (HUGS)

        Dr. Dean thinks being deficient in Magnesium is the main reason people get Floxed, but I believe there are at least 5 reasons someone is more prone to being Floxed:

        – prior Gut issues (me)
        – prior exposure to daily Fluoride (me shower)
        – prior deficiency in Magnesium (probably me)
        – prior exposure to Fluoroquinolones (almost for sure me)
        – prior Genetic issues expressing especially Glutathione and Methylation (me)

        Any ONE of these can cause someone to be Floxed in my estimation and opinion, and as you can see, I think I fit into every one, which might explain why I could only take 2 pills and I was already screwed.

        • Stephanie December 23, 2015 at 11:41 am

          Hahahaha Jason you are too funny. That’s right I forgot I was given steriods too. I have had so many flipping pills I can’t remember them all anymore. I think your list describes me too. Thank you again for all the information you provided it’s helped with my stomach issues. My ND is like umm yeah you have leaky gut. So that’s fun. Wishing you and your family a very happy holidays whatever you celebrate I hope you have a wonderful time doing it!!! All I remember is telling doctors this hurts that hurts and they didn’t even bother writing it down. But I do have to say that my fave place to get teriyaki that doesn’t cause me stomach issues and is safe for me to eat are these lovely ladies who said I have a acupuncture person you must go to I know it will heal you. I burst into tears and they gave me all the information. Going to try to get in to see them next week. Fingers crossed that they can help. I wish I could afford more nerurologic tests and genetic tests. If only I had a law firm to do it for me hahahahaha. Hopefully one day.

        • Jason December 23, 2015 at 12:05 pm

          I should mention too, that if someone didn’t have some of those issues pre-Flox, they DEFINITELY have some of them now, some experts think the Quins and other toxins like them can even change how Genes express.

          Furthermore, those 5 things are the TOP reasons people can have trouble healing IMO, so they ALL need to be accounted for and worked on, especially top 3. Prior exposure just means you likely have more toxins you need to detox, and #5 means you might have more trouble doing it

        • Jason December 23, 2015 at 12:34 pm

          Thanks Steph and your very welcome, and my best to you and yours as well

          I hope the Acupuncture helps, it has definitely helped others. It seems nerve damage is likely a big issue for you so I think adding the IV that Linda gets might be a good idea, the Phosphytydilcholine, but maybe also consider taking a Lecithin supplement (I take one made from Sunflower, not Soy) and/or PC’s brother from another Mother, Phosphatidylserine. My fav place to buy Supps are here, best prices, good quality, etc

          http://www.swansonvitamins.com/swanson-ultra-sunflower-phosphatidylserine-soy-free-100-mg-90-sgels (unfortunately Soy-free is more $)

        • Lucy Sky December 27, 2015 at 4:25 pm

          Jason et al

          Just received an e mail from a friend .please see below.
          Marc Macozzi MD and the ‘Disturbing Link between mental illness and common drugs.’

          No prizes for guessing which drugs Dr Macozzi is referring to.

          Best wishes to everyone.

  27. Jason December 23, 2015 at 11:11 am Reply

    Hi all. Just dropping by to wish everyone Health, Healing and Happy Holidays this special time of year. All of you are in my prayers and I hope you will all enjoy the Season as much as is possible

    Also just wanted to share a little gift and hope with everyone. Last page I went over the critical importance of the Gut, and how many Floxies have Gut issues (probably all Floxies), some subtle, some not so subtle, and how this alone can keep someone from healing if DIET and the GUT itself is not addressed. (Its actually critical to Health for any person nevermind a Floxie who took the ultimate Gut destroying pill, Cipro. I have been focusing my reading more on this recently and GUT is so so so important, and where so many people, especially those with Health issues, ALL have issues)

    I got an email from the “Truth about Cancer” people, that there is a new series coming out in January, entitled:

    “Heal your gut… where health starts and healing begins!”

    You can register for FREE here: http://naturalgutcures.com/

    Be sure to pick up the free gifts too, which you can download as PDF’s:

    Expert Talk #1: 5 Steps to Heal Leaky Gut, Josh Axe, DNM, DC, CNS
    Expert Talk #2: Boost Immunity with Gut-Immune-Cancer Connection, Ty
    Expert Talk #3: Getting to The Root Cause of Thyroid Disease, Izabella Wentz,
    PharmD, FASCP
    Expert Talk #4: Secrets to Overcome Candida & Yeast, Donna Gates, MEd,

    There are going to be THIRTY GUT EXPERTS interviewed for this series, some big names included too:

    Dr. Leo Galland
    Dr. David Perlmutter
    Dr. Axe
    Many more

    This looks like it is going to be an AMAZING series, just like the Cancer one was

    Take care all

    • Linda December 23, 2015 at 12:09 pm Reply

      thanks Jason—and happy new year to you too.

  28. Lucero Rojas December 24, 2015 at 5:51 pm Reply

    Hi my dear friends!

    Just dropping by to wish each of you a Merry Christmas!! May all the love, joy, and warm wishes keep each of you with the stregth to continue with this fight. I will continue keeping each of you in my prayers for a continuous healing process. May your Angels and God always keep you safe. Merry Christmas to each of you once again .

    Sending all the love in the world this holiday season,


    • Linda December 24, 2015 at 5:58 pm Reply

      And Merry Christmas to you too Lucero

  29. Lisa Bloomquist December 25, 2015 at 9:57 am Reply

    Merry Christmas everyone! I hope that you have a blessed day full of love and cheer. xoxoxoxoxooxoxoxoxoxoxoxoxoxoox


  30. kev December 26, 2015 at 9:22 am Reply


    Im 24 years old male and i took only one 500mg cipro pill about 5 days ago and stopped after reading comments, 2 days after i started having back and joins pain everywhere in my body even fingers i don’t know if it’s psychosomatic in my case (because of the comments) or im really unlucky (doctors say it’s a pretty rare side effect 1/1000)

    I ordered some CoQ10, L.GLUTATHION and Omega 3 and i started taking magnesium right after.

    I already have IBS (for 3 years now) and brain fog problems which are making my life significantly harder and am really afraid to add this to the mix my depression will go too far i see only suicide as a way out.

    Merry Christmas !

    • Stephanie December 26, 2015 at 11:17 am Reply

      Suicide is never an answer and this is coming from a person who is at the bad end of being floxed. I would suggest getting to IV treatment I would not trust the opinion of a western medicine dr because they think we are all anomalies. I am glad you stopped taking it after one pill. Just keep positive get to an ND for IV treatment. Don’t freak out. I have had many days where I didn’t think I could last one more day. You have to go to an ND first get some supplements I’m not good on advise for those things but I am sending you hugs and positive thoughts. Please you are so young!!!!! You have a full life ahead of you I had IBS before too. I know it’s scary but you are young and took very little so get to an ND the odds of you getting better IF you are floxed are in your favor. STAY Positive Please don’t go to a bad place!!!!

    • Linda December 26, 2015 at 11:45 am Reply

      Kev, Like Steph said, the doctors really are pretty clueless about how widespread this can be, and yes one pill could do it. I would add to make sure you don’t take any kind of steroids (prednisone) which a doctor may try to give you and avoid all fluoroide. That’s a biggie. As for the magnesium, you will need more than you usually take. I’m with Steph—best to find a good ND if you can. That you stopped after one is great and very encouraging.

    • Lisa Bloomquist December 26, 2015 at 1:18 pm Reply

      Hi Kev,

      I’m so sorry that you’re going through this! I’m also sorry to hear that you are feeling suicidal. Please try to fight off those feelings, and call a suicide prevention hotline number if necessary. Please know that most of the people who have stories of recovery on this site felt, at some point, that death would be the only way through this mess. They were wrong about that at the time, and they have now recovered and are happy to be alive. I know that it’s trite to say, but, this too shall pass. It will get better. Please try to believe it. Your life is not over. It will get better, and you have a lot of good life ahead of you.

      If the stories of pain caused by these drugs hurt you psychologically, please steer away from them. We all want the best for everyone, and if staying away from this information is best for you, I truly do encourage you to stay away so that you can focus on things that are positive and uplifting. Personally, self-help work helped me a lot. Just telling myself, over and over again, that it would all get better – helped me immensely.

      Hang in there. It will get better.


  31. kev December 26, 2015 at 3:16 pm Reply

    Thank you for your support it made me smile 🙂

    Floxed for no reason, result of dr THINKING i had an UTI but it was only an inflammation, he even told that i have to minimize physical activities cause i may end up with a tendinitis but didn’t tell that i can get it in every join and for years or life !

    I hope i won’t end up paralyzed or highly disabled cause i have no one to help me do my everyday stuff.

    • Stephanie December 26, 2015 at 3:41 pm Reply

      That’s what we are here for support and love!!! Get to an ND!!! If you don’t know where to find one let us know the general area you live and we can help you find one. Please don’t stress. It only puts more stress on your system. Remember you are young. Fingers crossed that you will be fine. Please please follow the advise that was given to you here. One thing about this site is that it can be used for support. But if you need additional support especially since you mentioned you live alone please call a hot line that can provide you additional support. Always remember what Lisa said. Your pain will pass. Go to an ND get some IVs follow what Lisa said as well. Stay positive your not alone!!!

      • Linda December 26, 2015 at 4:28 pm Reply

        couldn’t have said it better myself! happy new year kiddo

        • Stephanie December 26, 2015 at 4:34 pm

          Awww txs Linda happy new year to you too 💗💗💗😘

    • Jason December 27, 2015 at 1:38 pm Reply

      Hi Kev. You have received much good advice already, regular Doctors are completely useless and actually harmful for anything other than broken bone, failing organ or bleeding to death, for ALL other things please see a Functional, Integrative or Naturopathic Doctor, these folks know how to get the root causes or problems, and are NOT trained to treat symptoms ONLY with drugs like the regular Doctors are (its about all they know how to do).

      There is a TON of info in these pages on how to heal from this, things to eat and not eat, things to avoid, things to take to help, things that need to be done etc etc

      As I mentioned above, anyone like yourself, Stephanie, myself (and MANY many others here) that ALREADY had GUT problems are MUCH more susceptible to being affected by these drugs, then there are the other 4 factors as well. I talked a LOT about the Gut on the last page here: https://floxiehope.com/comment-page-43/#comments You will need to read through the page to see the many comments about the Gut, Diet, Candida, and other factors, and what can be done about it, there is a LOT of info there, and there is a LOT of info in all past pages as well about everything to do with Floxing.

      I also have IBS, and have been suffering from Brain Fog for 30 years. I have studied both of these in depth for many years now, of course they are connected all GOOD experts agree on this, so your GUT is probably your number one priority, as well this drug robs the body of Magnesium right out of the cells, continually also, and getting it back into the cells is not the easiest task, I took 7 different forms of Magnesium to help me heal, I did not screw around with this, its proven the drug does this, and I took that and many other actions to correct it and they worked I was 80% healed after 3 months. Ancient Minerals Magnesium Oil is one of the best ways to help get MAG back into the cells, it is applied to skin and bypasses the GI Tract this way which helps.

      Please know that IBS can be more or less “cured” as well, and is a HUGE issue that causes multiple other issues like Brain Fog, Depression, Joint issues etc etc. Many experts agree that SIBO is often the root cause of IBS, and SIBO can be treated and cured. DIET is absolutely critical to these, AND to just healing from this CIPRO crap, again please see the last page there is more info there about this to help.

  32. Tricia December 26, 2015 at 6:37 pm Reply

    Does anyone know If it is possible to get floxed from a small amount of non organic meat?

    • Stephanie December 26, 2015 at 6:50 pm Reply

      Yes, in my experience I have gotten floxed from soda, non-organic meat, wheat, dairy, coffee. I ate one slice of honey baked ham from Christmas Eve dinner, everything else was organic and non dairy and no wheat/gluten. I was spasming so much I spent most of Christmas Day in bed I’m still felling crappy. I know it blows.

      • Tricia December 26, 2015 at 7:04 pm Reply

        Hi Steph…
        I hope your doing a little better. I must say I admire your strength, courage and light-heartedNess throughout this ordeal. You have amazing courage.
        I’m about 13 or 14 months out and have had non organic meat, Alcohol, sugar, wheat since being floxed w no problem . My daughters pork sandwich did something to me though. … Ugh!! I was doing so well too and now I’m kicking myself. It’s like I’ve been refloxed BY trace amounts of who knows which antibiotics these farmers use?? Anyhow Steph, hang in there:) sending you lots of love and hope.
        Tricia 🙂

        • Stephanie December 26, 2015 at 7:33 pm

          Thank you Tricia,
          It truly means a lot to me. I try to be strong but somedays are easier than others. I believe when going through this you have to laugh in order to let go of the whole thing. I feel like this makes us all strong. I mean you have a daughter to take care of. I can’t imagine going through this and having a child. To me you are the strong one!!! I have no idea how to figure out which antibiotics that farms use. I would think that they would have to disclose this to the public but then again we were all supposed to be warned of the potential side effects of this crap and well…. I hope you feel better soon. Yummly is an amazing app to download you can put a filter on dietary needs and they have a lot of good detox recipes. I am going to try a grapefruit one this week. See how that goes also supposed to melt fat yay😜. Thank you for your warm wishes and I hope that you have an amazing New Year!!!

      • Lucy Sky December 27, 2015 at 4:06 pm Reply

        Hi Stephanie
        Have you ever been tested for food intolerances?


        • Stephanie December 27, 2015 at 5:41 pm

          Nope too expensive even with insurance it’s too expensive

    • Jason December 27, 2015 at 6:11 pm Reply

      Hi Tricia. Steph is absolutely correct unfortunately, there are MANY things that can cause down-cycles, relapses, or even a refloxing (re-poisoning) and foods are just one of them.

      It is known the Farmers DO widely use Cipro as just one of the Antibiotics in Chickens, Beef, Pork (if they don’t they lose some animals to sickness/disease etc, in some cases it can be a LOT of animals so its “insurance”, this is very well known and easy researched so anyone thinking otherwise is woefully ignorant to the FACTS and has done ZERO research. Quote, “In the U.S., about 80 percent (same as Canada) of antibiotics are used for livestock and 20 percent for humans, according to the Center for Disease Dynamics, Economics & Policy (CDDEP), a Washington, D.C.-, and New Delhi-based think tank. Globally, antibiotic use for livestock, including for growth promotion, is on the rise as the demand for meat increases. There is a TON of info out there on this, its a HUGE problem that is actually being looked at due to the negative effects such as antibiotic resistant bugs, etc and its finally starting to be addressed) etc etc, so its a Russian Roulette game every time we eat non-organic: Will it have Cipro? If it does will it be enough to cause symptoms to flare up? If not this time, how much needs to build up again until it will happen the next time? Will the other antibiotics being used react inside us and cause symptoms to flare up again? If not this time, etc etc

      It SUCKS, I know too well, but unfortunately it is what it is, and people need to be aware of the risks, as they are real, I have seen SO many people tell the same stories, over and over again, just look at poor Catherine further up the page who got re-floxed from Fluoride treatment from the Dentist, and Jwinn as well, and so many others, is it all in their head as some people would have you believe? Just coincidence? Please, these people don’t know how the Human body works. People use to believe this stuff was random (and some still do…), and these symptom flare-ups were just part of the “Journey”, well this is pure ignorance sorry to say, there ARE reasons for these things, and perfectly logical ones too, and I’ve seen it repeated over and over and over again from the same things, these are not random nor are they coincidences, thinking otherwise is pure foolishness and just shows a lack of research, something which I have done a LOT of.

      With that in mind, here is my current list (this comes from studying hundreds of Floxed people, and from many many years of research on the Human Body) of reasons someone can experience Symptom Flare-Ups, Relapse or a Re-Floxing (which to me is a re-poisoning from new poisons being introduced):

      – Rigorous Exercise: Detox – Like running, Soccer, etc basically hard impact stuff where body is making a hard impact on ground (shakes things loose). This is one of the most common things to cause a relapse. Note that everyone’s tolerance for exercise can be different, someone more severely floxed can have things flair up from light exertion/exercise, even a long walk, but do not let this keep you from doing it, it’s part of the process and necessary since this factor is helping clear out toxins, not putting new ones in.

      – Sauna: Detox – This also will start the body detoxing things deeply stored, even Metals

      – Supplements: Depends – Certain ones can mobilize toxins, even Minerals can do this as they displace things like Metals (Zinc in particular can do this). Some supplements can cause other reactions that are undesirable and can set things off, for example I can not tolerate MSM or Sulfur supplements, many others can not tolerate Folate or Methyl B12, etc (I can not tolerate Folate either, this is a BIG one)

      – Aggressive Massage: Detox – This one surprised me but of yeah, a strong pair of hands can release toxins, I experienced it myself and many others have too.

      – Fluoride/Fluorine: This is a re-poisoning – I believe all Floxies are now more sensitive to this very lethal toxin unfortunately post-Flox and need to be extra careful to avoid it. Fluoride is one of the most reactive substances on Earth, there is no telling what the Fluorine in the Cipro did when it went into your body (it reacts, binds with many things like Magnesium for one, Calcium, Aluminum, and almost all other substances on Earth) but one thing seems certain; if you ingest just a little bit, it will go into the body and get stored in the same places where the old Fluorine and Cipro are, if there is some left there, and it can eventually react with and mobilize them all over again causing a Re-floxing. I have experienced this MANY times and others have too. I also experienced my symptoms dissipate a great deal when I was in another Country and away from my Fluoride shower I have everyday at home, others have also experienced this also including you Tricia. There are many sources of this damn poison, Food, Water, Dentist, Coffee and Tea, etc etc. This is another BIG one folks educate yourselves

      – Coffee/Tea: See Fluoride, I experienced this myself about 5 different times (stubborn…though one time was an accident) and this is with DE-CAF! (In a restaraunt, there is also the Milk & Water factor of: Fluoride, Hormones/Antibiotics in Milk, etc etc)

      – Caffeine: See Fluoride, but also the Caffeine itself can cause some bad reactions also

      – Steroids: This is another re-poisoning – of sorts, that reacts with the Cipro toxins in the body, re-activating them like Fluoride (mobilizing them), also adds to Gut destruction

      – NSAIDS: Another re-poisoning – again likely reacts with the Cipro toxins in body, also adds to Gut destruction

      – Stimulants: Depends – on what they are, this can be a re-poisoning or just cause reactions in the body that can set things off

      – Epsom Salts: Detox – It a known detoxifier the MAG/Sulfur mix can be powerful, and in some people again the Sulfur can cause an undesired reaction (CBS/SUOX Genes)

      – Fat Loss: Detox – This in itself has been shown to release toxins, Exercise at play here possibly again Sauna too, but even just losing weight from diet can stimulate detox.

      – Food: Depends – GMO’s, pesticides, Antibiotics, Hormones & more, this is a re-poisoning, or in the case of some healthy or targeted foods (like high in Sulfur, Tamarind detoxes FLuoride etc) can be detox too. The bad ones are everywhere, and if for one example you are eating regular non-organic Chicken, or Eggs, which potentially seems insignificant and innocent enough, you can bet that you are slowly re-poisoning yourself again with Cipro, which means eventually you could be putting yourself at more risk for relapse when the stored up toxins release again. There is also the aspect of Leaky Gut here, which IMO is something many Floxies are suffering from, and reactions from foods entering the blood stream etc can be mistaken for Symptom flare-ups, but can probably also cause them in that way as well.

      – Water: Re-poisoning – This includes the shower unfortunately, Fluoride and 6 other chemicals are “purposely” put there, then there are many other things there like drugs etc too ALL toxic which can all accumulate and are no good for anyone, especially a Floxie who is already suffering from Toxic overload, toxins need to be avoided as much as possible in order to heal. Very important to at least drink clean filtered Water, and preferably re-mineralized to help heal from this

      – Stress: Depends – There are many factors and variables at work in this one, just know that getting over-stressed/over-worked generally lets the defenses down which can bring on a down cycle/relapse.

      – DRUGS: Re-poisoning – Most if not all (my opinion is ALL) are pure toxins, many will react with the other chemicals stored in the body, especially if they have Fluorine in them, which a lot of them do, even if no “F” the body is already overwhelmed with toxins, this just adds to the burden and can cause a downcycle and/or re-floxing. All toxins need to be avoided and this is a BIG source of them.

      – Other toxins: Re-poisoning – This list is HUGE, but some of the bigger and more common culprits that are avoidable I listed here, other than “household” common toxins, which many people use everyday without thinking about it, which is a mistake for a Floxie. This looks like a good article and website about this, people should download the 19 page PDF linked there and educate themselves on these common poisons being used everyday (Quote, “On average, every morning before leaving for work, a person applies and uses 250-300 chemicals”) These many poisons can accumulate in the body and its only a matter of time, which can be a really short amount of time for a Floxie….

      – Gene Mutations: This is not a direct cause per se in all cases, but something I want to mention. If you are in the ~45% of the population with an impaired Methylation Cycle your detoxification pathway and DNA repair process are hindered and inefficient. First, IMO, this is a big reason why many of us ended up Floxed in the first place as mentioned as opposed to those who take this poison and do not. Second, it is also another likely reason why some people take a long time to recover. Third, these same people are going to be more susceptible to relapse, and potentially BAD relapses. Fourth, if they take something like “Active-Folate” especially in bigger amounts, they can kick-start an otherwise fairly stalled Methylation Cycle and the body can start dumping a LOT of stored toxins, this can bring on a terrible and very intense Down-Cycle or Relapse.


      Again – Anyone that thinks a down cycle in relation to these things is a coincidence only, is purely ignorant to the facts on what these are, and how the body reacts to them, and has not done any significant research on Floxing patterns and/or the Human Body.

      Note – This is likely not a full list but I believe the main culprits. I post this NOT for people to live in fear, but for people to be aware of the what and the why’s, and so people can take precautions where possible and necessary. As you can see, some of these are unavoidable, and so like in the case of exercise, which can be just walking, having a downcycle flare up from this will be “just part of the Journey”, and in fact necessary to healing. In many other cases, these ARE avoidable and so some down cycles (thus even some new symptoms in some cases etc) CAN be avoided, especially like at bad times where someone is already at their worst or just getting over a cycle, why add to the suffering unnecessarily. Moreover and most importantly as well, pretty much ALL of the re-poisoning scenarios can be avoided when someone has the proper knowledge.

      In some cases, people may even want to do some of these like Exercise, Sauna, Sulfur-rich foods, Minerals, etc to get the process going, that is in order to fully heal from a poisoning, the poisons need to be removed as much as possible from the body. Generally most things in the list up there NOT labeled a re-poisoning, means it can possibly help the body get rid of the toxins. The body has natural processes built-in to it to make sure this happens, your bodies detoxifying processes are working every single minute of every single day, but with Cipro it gets overwhelmed and the damage it does also adds to the mess and can complicate things, even possibly “turn on” otherwise dormant Genetic Mutations, some of which that can actually impair the bodies detoxification processes (and in fact many Floxies already had these impediments, part of the reason they ended up here…)

      Note – I am not recommending any action or anything in particular here, for anyone, other than avoiding known re-poisoning situations and other known triggers at undesired times. Detox is VERY serious with many possible complications and is something that should be talked about with an expert, so NOT a MD, but a Functional, Integrative or Naturopathic Doctor educated in Human Detoxification (which most of them will be to some degree). Many factors and variables need to be taken into account; especially where someone is in their Floxing, what their current symptoms are and how intense they are, etc etc.

      Disclaimer – I am not a licensed Doctor of any kind, all the above information is based on years of research, knowledge and my experiences.

      • Jason December 27, 2015 at 6:25 pm Reply

        For the website for “Other toxins” in the above post, you need to google “purezing guide to toxins”, and go to the website link that comes up, at purezing “dot com” and also download the PDF at the 2nd google result as well.

        The Floxie Hope website won’t accept a link to that website, this sometimes happens, sometimes for a good reason, other times for seemingly no reason.

        Thus I apologize if this or the long post gets repeated, hopefully Lisa will catch the other ones probably stuck in a queue and delete them

        • Bruce December 28, 2015 at 6:06 am


          Thanks for the information you gather and share. It is helpful and healthy info even if you are not floxed. Again Thanks!!!

        • Lucy Sky December 28, 2015 at 12:44 pm

          Hi Jason
          I would just like to say that you have made very important and valid points on the subject of being floxed, re floxed/poisoned etc through not only the drugs but also through food. That has been my experience too especially over the Christmas period when our diet can vary to an extreme degree from the norm.

          Your findings have confirmed my worst fears that food is just as responsible for re floxed as taking a further dose of the cipro or any other antibiotic.

          I am convinced that any antibiotic is equally as dangerous to those of us who have been floxed. I know that we must have an antibiotic if we are in a life/death situation but…..

          Being floxed has changed my life very dramatically.
          Shopping for food, eating used to be a pleasure. Now it has become aan anxiety producing, arduous task .

          So thanks to the irresponsible thugs aka owners, of certain drugs companies who have known about the real dangers of fluroquinolones but chose to keep it well hidden in the small print.

          I also blame doctors for failing to research these drugs and also for being too cowardly to band together to try to ban them or to simply stop prescribing these drugs which I now refer to as wmd.

          Surely to simply NOT prescribe these horrendous drugs is the obvious and ultra simple thing to do for any reputable doctor?

          Other drs would follow suit if set a precedent by their colleagues.

          In your posting Jason you specify taking iodine as a rescue . In what form would you taking it?

        • Carla December 31, 2015 at 10:15 pm

          Lucy, I now make my own antibiotic tonic from elephant garlic, ginger root, turmeric root, organic lemons and local raw honey. I juice the roots and the lemons and add honey to make a tonic. A spoonful after meals will prevent incipient infections from developing, and it makes a nice warming drink with hot water. Topical application heals sores, bites, scratches, even staph infections. I intend to never again have to take a pharmaceutical antibiotic. I am more and more impressed with the healing powers of natural foods and herbs.

        • Jason December 28, 2015 at 1:49 pm

          HI Bruce & Lucy, very welcome hope it helps. I was Floxed around Jan 30th this year, and managed to heal up to 80% in 12 weeks or so, and then up to 95% after 5 months or so. Even at 95% I STILL have to be careful with ALL the things I listed above, I have had reactions and in some cases more than once from everything on that list except Steroids, Stimulants and Drugs. I still have very minor Tinnitus, sensitivity to many things and some other residual damage like Magnesium easily depleted, and a couple more

          One of the worst damages the Quins do is to someone’s “Microbiome”, your good Bacteria in your GUT, the effects of this alone causes MULTIPLE very very nasty symptoms, anxiety, insomnia, brain fog, this list goes ON and ON. So for all Floxies anything that effects the GUT in a negative way really could have devastating effects, and of course ANY antibiotic is at the top of that list, but there are many other things some of which I also pointed out up there.

          For the Iodine, I took Lugol’s brand and I still use it, it can greatly affect Thyroid Health so please be very careful if thinking of using it, I made some posts about this in the past

        • Jason December 28, 2015 at 2:08 pm

          I guess I should note that I did not react to Steroids, Stimulants and Drugs because I have not taken them and plan never too again. I know my Health problems over the last 30 years stems from over-use of Antibiotics when a teenager, and drinking and recreational drugs, all things that ruined my GUT.

          I was over-confident in my recovery, foolish and desperate enough one day to try one Advil pill (NSAID, I knew better thanks to Lisa warning us), for a splitting headache I had. It was a “Re-Floxing/re-poisoning” no question about it, aches and pains came back, Tinnutis flared up from barely there to 3 or 4/10 and took FOREVER to die down again, it was a REALLY stupid idea.

          So I am living proof of that list above, but anyone reading it should know I researched tons of Floxies here and other places, and what caused their relapses etc and those are my findings in total. The somewhat scary and alarming part is how many people can relapse after being healed for 5 or 6 years, and then WHAM, relapse or refloxed, sometimes worse than original Floxing, it may be true that every single Floxed person even 99% healed, will never be exactly the same again. Keep that in perspective though because many things change us not just the Quins, and at 95-99% healed you live again and (mostly) forget about Floxing, but you are hopefully smarter now, and take more care when it comes to Health…..

      • Stephanie December 27, 2015 at 6:26 pm Reply

        Jason you are far more knowledgeable than most Drs!!! Again thank you for sharing. It is like Russian Rulette. Why’s going to relapse me now. Lmao sad but true thank you as always for sharing. You have a wealth of knowledge and I always learn something from your posts. They are always so helpful.😜

        • Jason December 27, 2015 at 6:52 pm

          Thanks Steph, yes unfortunately being Floxed is a bit like being dropped by parachute in the middle of Minefield, sad but true, glad you find that info helpful. I honestly wish I did not have this knowledge or at least had a different motivation for obtaining it, because that would mean I was enjoying and actually “living” a relatively normal life for the last 30 years.

          As it was, nothing could be further from the truth, and I have “Studied” under hundreds of Experts, Doctor’s, Scientists, “Self-Healers” and God knows who else, own thousands of books (probably only read 10% of them, skimmed many others) and at this point probably have “put in” more hours into “schooling” than many Doctors do.

          So its a bit of a sad story really, but the good news is I get to share this knowledge to help others, and I have healed from almost ALL my numerous ailments of 30 years and feel pretty good these days, though it is an ‘on-going’ battle to keep some of them in remission….

        • Stephanie December 27, 2015 at 7:30 pm

          To me, you are proof that I can “heal”. It is sad that a fair share of Drs in the us have no clue about the information you do. Maybe they should allow you to be a dr as you have more knowledge of healing and actually care. You help others everyday and bring hope to so many!!!

      • Tricia December 27, 2015 at 8:31 pm Reply

        Jason, thanks so much for responding. It’s a lot of overwhelming info but very true indeed. I guess my question is, will I recover again from the small amount of pork I ingested??
        If so, how long will this take?? I was having a great month of recovery before all this happened 😦

        • Tricia December 27, 2015 at 9:22 pm

          I guess what I’m asking is….can three bites of a pork sandwich Reflox me? It’s not like I took an actual cipro pill:( ugh!!! This is all such craziness.

        • Jason December 27, 2015 at 9:22 pm

          Yes of course you will, do not worry, you have been through this so many times already you are an expert by now on Down-Cycles!!! 🙂

          Really though its impossible to answer, assuming it was only from the Pork and not other factors, if it didn’t react with too much in body it could be as short as 2 – 5 days, likely maybe a week or two, of course could be more its very individual and depends on current state of body and many other factors like corrective actions being taken etc. If you have not already, if I were you I would increase Magnesium intake, Borax intake, Antioxidants etc until it comes under control, and then passes.

          At 3 months I was 80-85% healed, and around 5 months I think I was around 95% healed. From Jan to now (11 months out) I would estimate I have had at least 12-14 down cycles/symptom flare-ups, many on purpose, and in the last 6 months many were not on purpose (but knowing full well they could likely happen, due to intense exercise). I have also had a couple small re-poisonings (other than cumulative shower toxins) and a couple of Relapses (95% healed, down to like 60% one time, and maybe 80% another).

          What helped me recover pretty quickly every time was increasing Supplements like Antioxidants for protection from damage, Detoxification supplements like those that are “Binders” to toxins (Magnesium, Boron, Chlorella, Benonite, other Minerals, etc) and things like Sauna which helps to Flush out toxins through sweat. Also important is Minerals in general, Vitamins, as these are needed for support to help the body heal. Diet and sulfur-based foods (Sulfur is quite important to body for detox) also helped me a lot.

          I should have mentioned in the above post, being LOW on Magnesium is yet ANOTHER reason someone can have a Down Cycle (I mentioned up there somewhere that its a reason someone can be Floxed, well it applies here too). I can’t tell you how many times this is so obvious in my own body, where just something small, like a few bites of Pork, can set things off, and then I slam my body with Magnesium and the effects quickly quiet down. The thing to remember is when the toxins become mobile, all the same damaging effects can start happening again which includes Gut destruction, stripping the cells of Minerals like Magnesium etc etc, so the faster someone works to correct these things, the faster the down cycle can subside IMO. Note its multiple damaging effects, the drug does widespread damage and causes many imbalances so Probiotics, Mag, Boron, Iodine, etc many more all potentially needed to correct what the drug cycling is actually doing in the body. This is what makes sense, and this was my approach and what worked for me, and still does. Thanks to my shower I am really not sure I will ever get back to 100%, but I have been at 95% or so since July, and Cipro has been the least of my problems since then (I really don’t think about it anymore, other than avoiding what I know I need too) and flare-ups are very very minor, and I can hope will stay that way (and should as long as I exercise and keep flushing out any new build-up of toxins)

        • Jason December 27, 2015 at 9:40 pm

          To answer the 2nd post, yes, IMO absolutely that is what I put in the “Food” bullet of long post. Floxies become ultra-sensitive to all toxins until good and healed, and even after healed some will remain sensitive in my estimation, especially where Genetics tie-in to their picture.

          Please Do NOT despair, listen to my most recent episode. I ate a friends Chili 2 days in a row, made with non-organic Beef (NOT a good idea I know, but it was given to me and I kind of needed the food at the time…) Fluoride water etc. Normally, my last remaining symptom (keeping my from 100%, along with some residue damage and sensitivities etc) Tinnitus, is at 0/10 – 0.5/10 during the day at the most, and at night first thing upon waking it can be 0/10 – 1.5/10. After the 2nd day of eating the Chili, shortly after my Tinnitus shot up to 3/10 during the day!!! This never happens to me anymore (since July) not even with a very minor down-cycle, this was a re-poisoning. I very quickly took Iodine and Borax in water, and some MAG, and thankfully the Tinnitus went back to close to 0 after about 3 hours, Whew… So don’t despair, just take actions 🙂

        • Jason December 27, 2015 at 11:41 pm

          One more note about this, and Exercise and Magnesium. It is known that Exercise USES UP Magnesium (and other Minerals, and even being “stressed” does as well). This is likely another reason why exercise can bring on a Relapse, its a bit of a double whammy, stimulating detox AND depleting Mag at the same time.

          So my recommendation, and what I try to remember to do, is take extra MAG before AND after exercise (or when stressed) to compensate for this, and when I do it, I usually don’t have issues. When I forget? Uh yep, countless times, please keep this in mind all, stress or exercise is a good time to take extra Magnesium.

          http://drlwilson.com/Articles/MAGNESIUM.htm (note he is talking in general and NOT about Floxed people in article, I also don’t always agree with him on his many great articles but mostly do)

          “Magnesium is involved in every body function, where it is required for thousands of critical enzymes everywhere in the body.”

          “Stress and too much exercise also use up magnesium quickly.”

          “Magnesium antagonists tend to be somewhat similar to those for calcium. Important ones include calcium, sodium, potassium, phosphates, fluoride, all toxic metals and others. Alcohol severely depletes magnesium.”

          “Diarrhea. Magnesium is rich in the stool as it passes through the digestive tract. If diarrhea occurs, significant amounts of water and magnesium are lost from the body. This can help deplete magnesium. Several days of diarrhea are not a severe problem. However, if one has chronic intermittent diarrhea, as can occur with irritable bowel syndrome or colitis, magnesium loss can be significant.”

  33. Stephanie December 27, 2015 at 2:15 pm Reply

    Hi All,
    So I know many of us have issues walking. I swallowed my pride today and got a cane. I’m 35 and I have a cane and guess what I can walk with less pain and less fear of falling if someone bumps into me. It’s a fashion cane so it makes me feel fancy hahahahaha. Cause I can’t walk around with a cane that says grandma. Like is said I’m 35. Please don’t look at this post and feel sad. Look at this as if you need one suck it up and get one. I did and now I don’t have as much stress in my muscles.

    • kev December 27, 2015 at 3:17 pm Reply

      Hi Steph,

      Some people are saying that in next 50 years people will a lot longer and cure all sorts of disease thx to nanotechnology 🙂 so we can easily say that lot of poisoning like floxing will be history in the next decade.

      Oh i also read that DNA can repaire itself, nerves and joins to but how long does it take ? i don’t know but the only issue seem to be getting rid of that poison from your body.

      Did someone here try glutathion injection ? i read that someone who tried it got instant relief.

      I started questioning myself how can some people take aggressive medications like chemotherapy and just go on with there lives and others like me just after one cipro pill struggle to type and a keyboard…

      • kev December 27, 2015 at 3:20 pm Reply

        will live a lot longer*

        struggle to type on a keyboard*

      • Stephanie December 27, 2015 at 3:45 pm Reply

        Hi Bob,

        Yeah my ND says yes nerves can heal so as long as the nerves don’t die I am good but yeah how long it will take who knows. I am sure the nanotechnology will be there but how much will it cost and who will it be available to who knows.

        I am on the heavy floxed side so take my expeirance with things a little different. I was given levequin then cipro and then cipro again followed by steriods and I had IBS before this.

        The IVs do help me but again I had so much given to me that I hope other that read about me need to not freak out because I am on the bad end. I receive benifits from the IVs I wish I could have them every day but that’s not possible. Weekly is what I do and I love them. Support the IVs and know that with out them I would be in much worse shape. Maybe I should not post anymore because I don’t want to scare others or cause others stress. Please remember I’m on the sever side.

        Oh for hand pain I time out hand use. So I allot myself certain amount of time using my hands. Then I rest them put my cell phone away. I spray some magnesium on my hands sometimes helps sometimes no.

      • Bob December 27, 2015 at 6:20 pm Reply

        Kev, I got instant relief from my first glutathion IV. It lasted about 2 days.

      • Bob December 27, 2015 at 6:33 pm Reply

        Doctors and the pharmaceutical industry kill over 800,000 people a year. This is just the ones they know about and doesn’t include people damaged like us. There are good doctors but hard to find. When the public gets tired of being maimed and killed by the MD’s and they stop thinking the doctors are gods things will change.The Cleveland Clinic sees the hand writing on the wall because they now have a functional medicine clinic headed by Dr. Hyman. Good luck getting your insurance to pay for it though. Everything can heal if you can manage to not succumb to hopelessness. Read the book “You Are The Placebo” by Dr. Joe Dispenza.

  34. Tricia December 27, 2015 at 9:57 pm Reply

    Thank you Jason for your very expert , yet (I guess I must add ) “non professional “advice. It is really scary what the FDA allows in our food/water supply. After this whole ordeal though I almost want to become vegan. Even “organic” meat can be questionable.
    On a side note, since I started taking borax my neck, spine pain has greatly improved. Now my low back is the only thing that gets a bit sore after a day of standing at work.
    Thanks for all your extensive research and helping all of us 🙂

    • Jason December 27, 2015 at 10:24 pm Reply

      You’re very welcome Tricia, and very glad the Borax is helping I was hoping it would as it has helped so many others in many ways including joint issues like those you described.

      Yes, you are totally spot on with the “Funeral Directors of America” comments, which is why I adopted that name for them from Rene I think, it fits oh so well. Yes organic “everything” is questionable unfortunately, really ALL food is questionable, there is just too much corruption and greed running everything out there.

      The food supply really is in a disastrous state overall, at least in the USA and Canada, and with my long-standing Gut issues, sensitivities, and “new” sensitivities (thanks, Cipro) I too and seriously thinking about Vegan, I mean I can’t even handle Nuts they irritate my Gut in a subtle but nasty way (common actually). I have a friend who I play Tennis with and the guy is 57 and runs around the court like a 30 year old, he’s been vegan for 30 years, and once a week has water ONLY for one whole day, eating is overrated I tell ya….

  35. Lisa Maskevich December 28, 2015 at 12:02 am Reply


  36. Lisa Maskevich December 28, 2015 at 12:58 am Reply


    • Bob December 28, 2015 at 7:07 am Reply

      Lisa, You have suffered for too long. Hopefully we will all find help. Have you tried IV’s. sometimes they work when oral suppplements don’t.

    • Bob December 28, 2015 at 7:26 am Reply

      Lisa, My wife spent 20 years in bed with Lyme disease and now she is doing better than me. don’t despair, the body can heal. Everything you say about the purveyors of poison is true but try to focus on a vision of yourself as healed and doing what you like to do. I don’t know how but they will get what’s coming to them someday.

      • jwinn December 28, 2015 at 2:31 pm Reply

        Bob, what did your wife do? I had Rocky Mountain Spotted Fever and almost died before they caught it. Then I had a reaction to the Levaquin, so they put me on Cipro, then I had a reaction to Cipro so they put me on Prednisone…which I was on for a year. I can still barely walk across the floor, and I have severe joint pain. I have tried everything I know to do!

        • Bob December 28, 2015 at 7:21 pm

          No one knew what was wrong with her for years. At one point she thought she was going to die and I took her to get UBI–ultraviolet blood irradiation. then she started to slowly recover.

    • Linda December 28, 2015 at 1:40 pm Reply

      Lisa, I totally am on board with your rage. I have contacted members of congress, the attorney general, newspapers, etc just to get someone with clout to pay attention. I am so sorry you have been dealing with this for so long. Are you in US? What area? I know finances are a problem—I am so in debt because of this; but I had significant recovery in some areas from naturopathic IVs. I would suggest this might be your best bet—if you can find an ND or an integrative doctor who gives IVs, such as glutathione, high dose vitamin C, Myer, Phosphatidylcholine (esp helpful for nerve damage.) It is not cheap. I got over 50 and they cost me b/t 100-200 each, but I felt I had no alternative. And I would be very leery of regular allopathic MDs, unless again, they are integrative.

      • Daniela December 28, 2015 at 6:20 pm Reply

        Hey Lisa, Lisa and Bob. Count me in, too. I was really shocked to see that people with Alzheimers are given needless drugs, just because…..


        It really breaks my heart when they do these things to people who cannot defend themselves.

        And I bet they even have a word, or maybe even a department for devising ways to sell to the terminally ill. I bet they even brag about it.

        Turmeric, epsom salt, yoga and meditation.

        If you can, find a good acupuncturist. They will help your body heal itself. And what Bob says is so true. I never imagine myself as healed, I always imagine the worst and in a way that helped me refuse more drugs and operations. But the other way works too, it’s not mutually exclusive.

  37. dan December 28, 2015 at 7:06 am Reply

    dear lisa, what are all of your side effects? did they all start at once? thanks dan.

  38. dan December 28, 2015 at 7:14 am Reply

    sorry lisa did not see your latter post. have you tried alternative treatments? dan.

  39. dan December 28, 2015 at 7:40 am Reply

    bob, how are you making out? thanks dan?

    • Bob December 28, 2015 at 7:13 pm Reply

      The pain in my legs and feet has been getting worse since sept. It also goes up my left arm to my head. I keep feel like I can’t take it any longer but keep hoping to get some relief.

  40. dan December 28, 2015 at 7:51 am Reply

    bob. how long have you been suffering before you got the ivs. dan?

    • Bob December 28, 2015 at 7:17 pm Reply

      Dan, I got the glutathion IV’s about 2 weeks out. I got a Myers about a year later. I’m sure I should have gotten more.

      • Linda December 28, 2015 at 9:26 pm Reply

        Hi Bob—there wasn’t a reply option by your post to Steph re the phosphyatidal. IF you go to almost any ND website, you can get more info on its benefits. This is from Northampton Wellness: ” Studies have shown using PC in an intravenous form can be effective for treating toxicity of the nervous system, or neurotoxicity. Symptoms of neurotoxicity can include severe fatigue, weakness, chronic muscle aches, memory problems, unclear thinking, confusion, headaches, dizziness, and blurred vision. Some causes of neurotoxity may include environmental toxins and heavy metal poisoning. Well-known illnesses that are beginning to be linked to neurotoxins include Lou Gehrig’s Disease (ALS), Alzheimer’s disease, Parkinson’s Disease, Multiple Sclerosis, and Multiple Chemical Sensitivity Syndrome. Several of these illnesses have shown benefit from trials of intravenous PC therapy. The way PC works is not exactly understood, but most likely has to do with the fact that toxins seem to have affinity for attaching to fats in the cell membrane. By giving the body a continuous resupply of these membrane fats, the process of toxin attachment to the cell surface can be reversed and the cells can regain their former vitality.”

        • Bob December 29, 2015 at 10:15 am

          thanks, I will try one and see what happens

  41. dan December 28, 2015 at 8:43 am Reply

    tricia, how are you taking the borax? how much and with what? thans dan.

  42. claire December 28, 2015 at 8:46 am Reply

    im juicing marijuana leaves ….. is it okay to use cannabis oil too ?>

    • Lucy Sky December 28, 2015 at 1:00 pm Reply

      Are you in the US Claire?

      I am going through a flare up with burning of both legs.

      I feel as strongly about Big Pharma as everyone else does.

      Prison is too good for those responsible for wrecking my life.

      • jwinn December 28, 2015 at 2:27 pm Reply

        I would juice up all the cannabis I could if I lived in a legal state….I’m still praying for that!

        • Stephanie December 28, 2015 at 2:49 pm

          Even if you live in a state where it’s legal like i do canibus oil cannot be shipped in the us. I have to use canibus with high cbd for my nerve pain. I can’t seem to find the oil in any shops and trust me I have been to them all in my area. On top of that my boyfriend has looked into it and just cannot find it. The media down plays the benifits from it and allows so many to die from cancer and live in pain when they could simple declassify canibus and allow people to heal without being hooked on pills.

        • Carla December 31, 2015 at 10:30 pm

          Stephanie and jwinn … High-CBD cannabis oil is legal to ship thru the mail and it can be found online. The Feds have decided if it has less than 0.1% THC, it is hemp oil, not marijuana. I think the oil that is available — like Charlotte’s Web, the Colorado oil that helps the children with epilepsy — is rather expensive, but hang on, because it will soon be legal everywhere and much more available. I work with cannabis products in CA and have studied it extensively, and I know it has great healing potential. I make a topical MSM/cannabis oil cream that has helped me with this terrible Floxie pain, and I may soon have it available on a website. Do keep exploring all avenues of natural healing.

    • Jason December 28, 2015 at 3:16 pm Reply

      Some people have had bad reactions to Cannabis in general, I believe it is the THC content that would do this. So anyone taking this in ANY form would probably want the ones with very little or better NO THC content, and only high in cannabinoid content

      Something like this one maybe: https://www.bluebird-botanicals.com/cannabidiol-cbd-oil/

      Many have reported pain reduction, and it has been noted to help with PN symptoms as well and has many other possible benefits, but there are risks for a Floxie, too, and even some side effects for non-Floxie people

      Note – I have not done research on this, and could be wrong. Its possible THC also helps, I seen one study that showed low THC was basically as effective as “medium” content, but it seems VERY risky for a Floxie in either case and could possibly cause relapse (and has), but note again I have not looked at this in depth

      • Jason December 28, 2015 at 3:21 pm Reply

        Steph I have no idea if the oil in the link is any good, or the company, but they say they ship to all 50 states right on the website

        • Stephanie December 28, 2015 at 3:43 pm

          Thanks Jason I will check it out. 😜

      • Bruce December 28, 2015 at 3:27 pm Reply

        No harm in letting the THC and a little Led Zeppelin do its thing while the cannabinoid does its thing.

    • Carla December 31, 2015 at 10:05 pm Reply

      Claire, I have found a lot of help from cannabis. I make an oil by slow-cooking good quality trim in olive or hemp oil in my crock pot, and I put a teaspoonful a day on my breakfast. Various strains will give you different effects, but generally the Indica strains will help with sleep and calming anxiety, and the Sativa strains will relieve pain but may cause more anxiety and restlessness if too strong. It’s important to find the strain that’s the right balance for you, and it can be very helpful. Topical application will also help with pain relief, and it has no psychoactive effects. I believe we will continue to find a lot of healing with cannabis.

  43. dan December 28, 2015 at 9:11 am Reply

    jason, how much borax and iodine are you taking? thanks dan?

    • Jason December 28, 2015 at 1:34 pm Reply

      HI Dan. Please see this page where it was discussed in detail:


      Posts of note are at:

      – November 19, 2015 in reply to Mike
      – November 19, 2015 in reply to Terry
      – November 21, 2015
      – November 21, 2015 in reply to Tricia

      More info:

      – November 19, 2015
      – November 19, 2015

      I took and still take at times about 1/4 TSP Borax in 2 litres of Water, and about 6 – 10 drops of Lugols 2% Iodine

  44. kev December 28, 2015 at 12:10 pm Reply


    After some research i found that the body can repair 1mm of nerves per day so for 4 meters of nerve damage it will take 10 years !

    I guess all hard floxed will be well after 3 years or so :/

    • Linda December 28, 2015 at 12:46 pm Reply

      well that’s kind of encouraging. where did you read that?

    • Deborah December 28, 2015 at 2:08 pm Reply

      I have read & heard there is no cure for peripheral neuropathy. I have PN in my right thigh from taking levofloxacin in 2013.


      • Jason December 28, 2015 at 2:14 pm Reply

        Hi Deborah. Don’t believe the “conventional wisdom” NONSENSE that comes from Western Medicine research, which is where that comes from. The truth is they have not found a DRUG to cure it, just like for Cancer, so they call them “incurable” and permanent, yet BOTH of these conditions are perfectly curable. PN is a very nasty symptom and can be hard to recover from, but MANY people HAVE done it, please read some of the stories right on this website.

        • Stephanie December 28, 2015 at 2:40 pm

          To add to what Jason said my ND has cured many people from nerve damage. He told me as long as the nerves do not die it can be cured. He said the time table is unknown. All I know is that the IVs I take are keep my nerves from dying and allows me to keep hope that they will heal one day.

        • Bruce December 28, 2015 at 3:00 pm

          My theory on Neuropathy and Fibromyalgia is that both are side effects of drugs. There are not a lot of documents on either until the late 90’s and early 2000. Most drug advertisements list numbness and joint pain as possible side effects, so what does a doctor tell you, either NP or Fibro. The thing is most people never ask how they got it, especially older people. Most people associate NP/Fibro as getting old just like arteritis. Like my Rheumatologist told me, I had SOME TYPE of inflammatory arteritis. How did I get it???? Answer- Don’t know.

        • Jason December 28, 2015 at 3:29 pm

          Most Disease in general, is caused by Drugs or Food, “Disease goes in through the mouth”


        • kev December 28, 2015 at 3:32 pm

          Stephanie, what makes think that your nerves will die if you don’t take your IVs ?

        • Stephanie December 28, 2015 at 3:52 pm

          Well the type of IVs I get feed my nerves and I have normal face and voice for two hours now after four months of weekly IVs. When I have to go with out IVs because my ND has a life and needs time off as he works tirelessly 7 days a week. I have an increase in nerve pain when I go without it. I get my IV tomorrow and am so excited. My boyfriend is so happy after my IVs because it’s the only time he sees me and can hear my real voice. I record messages to him and send them to him when he is at work when I get my IVs because it makes his day and I don’t want him to miss it cause he has to work. So do I know the science nope. But I was told by western medicine that I had no hope and my IVs give me hope that one day I will be better. Some may say two hours of no pain after four months doesn’t seem worth it but it does to me and my boyfriend. Also I want to remind everyone I am in the bad end was given a crap load of levequin and cipro plus steriods so my healing process is much different.

        • Bob December 28, 2015 at 7:49 pm

          Stephanie, I am really curious about the phospatidalcholine IV’s for the nerves. I asked the nurse where I got IV’s and she said they give them to break up fat. she had not heard about a connection with the nerves. Do your nerves actuially feel better after the .IV?

        • Stephanie December 28, 2015 at 8:58 pm

          Hi Bob,
          What I can tell you is that from the moment it goes into me till now after four months of weekly IVs I get two hours of no burning hands or feet free of brain fog and almost straight normal voice and face. It’s my favorite time of the week and keeps me hopeful that one day I will be cured. It may sound small but you know how much the pain can be discouraging. The two hours I get to enjoy “normalcy” is amazing. My boyfriend says each time he hopes it stays each time but it gives him hope that one day it will stay.

  45. Deborah December 28, 2015 at 3:25 pm Reply

    Also, more recently have been diagnosed with fibromyalgia & osteoarthritis. Not fun w/ all three!

    • Jason December 28, 2015 at 5:00 pm Reply

      Deb – Have you seen a Naturopath, or Functional or Integrative Doctor? “Regular” Doctors are COMPLETELY USELESS when it comes to all things besides a broken bone or organ failure. You need to see one of these people educated in Autoimmune Diseases, and look into healing your GUT, where the inflammation most often starts, and causes all these problems. See the TON of information on the last page about this, Fibo is nothing more than a “label” given to a set of symptoms Western Medicine has NO CLUE how to fix

      • Deborah Harple December 28, 2015 at 10:15 pm Reply

        No, Jason I was diagnosed w/Fibro & Osteo by a Rheumatologist. Live north of ATL & not even sure if any up my way. Will need to check those out. The PN is most painful & learning to control other w/SAMe. Friend who is an Administrator w/QVF told me about. I order from iHerb.com & ships from CA.

        • Jason December 28, 2015 at 10:49 pm

          The trouble with all these Allopathic Doctors, is they were trained to treat SYMPTOMS only, with drugs, which of course solves nothing and most often makes people worse and creates new problems, which then requires more drugs. The Doctors I referred to, are trained to get to the ROOT CAUSE of people’s problems, and would only use Drugs as a last resort (since they are ALL toxic) and use Diet and Natural Supplements to help people heal, which combined is the true way to heal. I hope you find a real Doctor to help you sort through things

  46. dan December 28, 2015 at 4:43 pm Reply

    hey steph, what part of the country are you in? and what is the name of your nd? sounds like a great person. thanks dan.

    • Stephanie December 28, 2015 at 5:08 pm Reply

      Hi Dan,
      My ND is the most amazing person. He always fits me in. He even will give up his lunch time for me. I try to bring him snacks if he schedules me during lunch cause I want him to eat. I live near Seattle. His name is Dr Marco. He is a truly amazing man. He really cares about his patients.

  47. Jason December 28, 2015 at 5:33 pm Reply

    This message is for PETER.

    If you see this, take a look at this, you were complaining about Dry Mouth, another Floxie I am talking to also has this same problem, there are it seems very few causes of Dry Mouth. The most common cause is Drugs, so if a Floxie is not currently taking them, then a Down-Cycle could be possibly causing this, however THIS looks like a much more likely cultprit, and what seems to be the next most common cause of dry mouth other than drugs:


    Surprise – Yet ANOTHER Autoimmune Diesease, there are tons of them, all went over on the last page. GUT again, Peter like I told Deb and basically everyone last page you should see a Naturopath, Functional or Integrative Doctor about this problem, and talk to them about the GUT destruction Cipro does, and how to heal it, again TONS of info last page about this.

    • Terry December 28, 2015 at 5:58 pm Reply

      Cause and effect. Does FQT cause sjogrens? Or could it be damage to the ANS/CNS? Or is it damage to the gut. As fast as FQT hits a person, I think it may be a autoimmune response.

      • Jason December 28, 2015 at 6:12 pm Reply

        IMO its all tied together and to the GUT (less CNS damage which is separate from Gut). FQT destroys the Gut, and as I outlined above somewhere, many people already had comprised Guts before Cipro, whether they realized it or not, from prior years of Antibiotics, and the multitude of other common attacks on someone’s Microbiome.

        So the bottom line is MANY “Diseases” are really complications of Gut problems, especially ALL Automimmune ones, this was gone over in detail on the last page, where I cited multiple experts etc etc.

        • Jason December 28, 2015 at 6:17 pm

          And as I have said before, many people will need to heal their GUT, in order to heal from FQT.

          Many people who are suffering for years and years and seeing no relief from FQT is due to them not repairing the GUT damage that was done, adjusting diet accordingly etc etc. Its no easy task, but I am sure this is behind a LOT more than most people think, and a key reason why some people struggle to heal

        • Jason December 28, 2015 at 6:24 pm

          Here is another key factor, people not putting back enough Magneisum:


          Suggestive early warning signs of magnesium insufficiency:

          Physical and mental fatigue
          Persistent under-eye twitch
          Tension in the upper back, shoulders and neck
          Pre-menstrual fluid retention and/or breast tenderness

          Possible manifestations of magnesium deficiency include:

          Low energy
          Seizures (and tantrums)
          Poor digestion
          PMS and hormonal imbalances
          Inability to sleep
          Muscle tension, spasm and cramps
          Calcification of organs
          Weakening of the bones
          Abnormal heart rhythm

          Signs of severe magnesium deficiency include:

          Extreme thirst
          Extreme hunger
          Frequent urination
          Sores or bruises that heal slowly
          Dry, itchy skin
          Unexplained weight loss
          Blurry vision that changes from day to day
          Unusual tiredness or drowsiness
          Tingling or numbness in the hands or feet
          Frequent or recurring skin, gum, bladder or vaginal yeast infections

        • Jason December 28, 2015 at 6:25 pm

        • Jason December 28, 2015 at 6:36 pm

          This actually all came into my inbox from one of the experts, Dr. Sircus:

          I received a letter from a professional colleague named George Eby in 2007 that stated that his daughter was destroyed by the terrible side effects of a special type of antibiotic called fluoroquinolones. He said,

          “My daughter was stricken with this horrible affliction. Cipro sensitivity causes long term (multiple years to life) chronic pain, weakness and tendon weakness leading to tendon breakage and many other horrible effects, some physical and some mental. This is something that everyone needs to know about. We have been destroyed by cipro. I don’t think there is much anyone can do, except to give her magnesium, which is somewhat of an antidote. I am very worried but I haven’t lost hope, but I am being realistic. Some of the tendon damage is necrotic and permanent. However, we have studies with rattlesnake venom that produce necrosis on animals and simply applying magnesium (chloride) and zinc (gluconate) topically, the necrosis vanishes.”

          Ten days later I received this email from George: “Topical magnesium chloride for 10 days = well daughter!”

          There is a power and a force in magnesium chloride that cannot be equaled anywhere else in the world of medicine. There is no substitute for magnesium in human physiology; nothing comes even close to it in terms of its effect on overall cell physiology. It goes against a strong gale wind of medical science to ignore magnesium chloride used transdermally in the treatment of any chronic or acute disorder. There are four hundred references in my eBook “Transdermal Magnesium Therapy”, the majority linking to original medical research.

          Remember the other Magnesium expert, Dr. Dean, is convinced many of the symptoms of FQT are largely just from Magnesium deficiency

  48. claire December 29, 2015 at 5:44 am Reply

    https://www.facebook.com/profile.php?id=100010784176354 they shift except australia .. i will try to get there also they have an option low thc and cbd etc etc you might check and talk to them . i also smoke weed sometimes 🙂 yea they right you need to heal the gut .. leaves and some non pesticides leafy greens will help .. we need to stay alkalize our body

  49. claire December 29, 2015 at 5:51 am Reply

    its also illegal here . but they cannot caught me i have teenagers friends in here join me .:) hope the oil work for me if i have dry leaves i make it powder and put it in my food .. i dont know but still hope it help .. sometimes dnt know what im doing but i will do my best its my life .and my body if i not reacted in tht i will continue doing it . anyway i live in phillipines

  50. dan December 29, 2015 at 8:47 am Reply

    jason, what were all your symptoms? and were yhey from the get go? thanks dan.

    • Me December 29, 2015 at 10:33 am Reply


      Is there a specific test to ask for to check magnesium deficiency on a cellular level. Also is there a specific test to test for leaky gut. Thanks.

      • Jason December 29, 2015 at 3:49 pm Reply

        Hi there. I’m not sure there is an accurate test for MAG on cellular level, which is what is important especially for Floxies. A Hair Mineral and Metals test is very helpful for many things, but someone needs to realize that this shows what the body is “excreting” on a cellular level, so MAG might show up as high, only because it is being stripped from the body, and does NOT necessarily mean someone has high levels. Mine showed up high, likely because I was taking a LOT of Mag, and it was being excreted, and I can tell you that 6 months later Mag levels are still not stable in my cells, and I still need to supplement with it or some symptoms come back, especially after exercise. I did find one site on testing from a quick search, but not sure how good any of these are either, and the damn link won’t post here, you will have to google: “mymagnesiumdeficiency how-to-test-for-magnesium-deficiency”

        Dr. Dean has even said people with Kidney issues STILL need Mag, but of course have to be very very careful, because it can be hard on them, so if there is something to consider its probably testing Kidneys

        There are several different tests for Leaky Gut, however there are also several different “levels” of Leaky Gut illness, ranging from Autoimmune at the high end, to Brain Fog and other smaller issues on the low end. I posted about this in great detail on the last page, and as I told Stephanie, I don’t think all the tests are necessarily accurate here either, probably for people with severe LG, but likely not for those with more minor LG, which in my estimation is probably at least half the World’s population (and definitely most if not all Floxies). Yes I think it is yet another epidemic, the Gut is under constant attack from foods and the environment, and as I said there are many levels of LG here IMO, so I am including those with even just minor damage, from things like Lectins, Gluten, Drugs, etc etc this list is DEEP.

        The whole last page I talked about this, see my post December 6, 2015 at 12:39 am about testing and a link to more info.

        • Jason December 29, 2015 at 3:52 pm

          Here is another good article:


          Quote” The inconvenient truth is: leaky gut testing could be a waste of money if you already have it. Leaky gut is a tricky condition. In fact, only 70% of people with leaky gut have digestive problems. You can even find it in people that “look” healthy, which would make it seem like you might want to test for it but…

          I think our friend and mentor Chris Kresser L.Ac says it best, when deciding on investing in a medical test ask this question: “Will the test result change the outcome of the treatment?”

          In the case of testing for leaky gut, not necessarily. Why? Because if you’re reading this, you probably have leaky gut.”

        • Jason December 29, 2015 at 3:54 pm
        • Vee June 21, 2016 at 8:19 am

          Jason, wonder how much mag chloride and zinc gluconate Dr Eby gave his daughter topically to cure her of floxing? How can we buy topical zinc he used?

    • Jason December 29, 2015 at 4:02 pm Reply

      HI Dan. I put together a “quick version” of my story here many many pages back:


      October 10, 2015 at 1:30 pm is where I posted it, here is some of that post:

      A quick pre-Flox background paragraph, I’m close to 50, suffered with Brain Fog from about age 18 to now (current), I had heartburn and digestive issues from about age 18 as well (yes, they do relate) the heartburn was largely corrected through diet changes 2 years ago, digestive issues are ongoing and likely for life (I believe weak pancreas runs in family). Before I was Floxed I was on a VERY healthy diet for 1.5 years (except that I was still recovering from Christmas “cheating” and not fully back to strict diet at moment I took pills, Floxing changed that immediately…) and being on this post-Flox I am sure helped immensely; basically Paleo, no refined Sugar, limited fruits, no Wheat, Soy or Gluten, no fake processed garbage, only eggs and butter for dairy, healthy water, a LOT of veggies, etc. Before Floxing I was suffering from some joint issues like cracking etc (not pain thankfully) and I had Tendonitis on and off for maybe 4 years, in the last 1.5 years pre-Flox I had constant Tendonitis, note I am an avid Racket sport player though.

      Around Jan 30th or so this year I was Floxed with 2 Avelox pills. On the third morning I woke up with a ton of back pain and walked to the washroom about 10 steps away where about 30 of my joints cracked, not exaggerating, this was about 27 more than normal at that point. Of course I knew something was wrong, went to the computer and the rest is ‘almost’ history. By the time 2 more days went by or so, I had about 23/24 symptoms in total, I was a mess BUT I would consider that I was only Floxed in a minor-way comparatively speaking to many others I have seen. The joint and tendon issues were exasperated by pre-existing conditions, and as it were turned out to be my most intense/worst symptoms as mentioned, especially in legs.

      I had already suspected that I was suffering from generalized inflammation for years, and had researched it and was doing some things for it, but Floxing upped the ante big time and I tripled and quadrupled my efforts in this arena which I do believe helped a lot. Pre-Flox I was taking a Joint supplement, and it was helping, I could notice when not taking it cracking/popping was worse. Once Floxed I started taking 3 supplements specifically for joints, and more things for inflammation. The joint supplements are sort of a “band-aid” fix, but in the case of Floxing I believe that by helping to “stop the bleeding” (helping to heal cartilage, while the drug keeps breaking it down) it did help things to not get worse. Addressing inflammation is I believe one of the most important things that can be done to help cracking/popping joints and tendon issues, and the cold water treatments to me were the most important, also avoiding hot like hot baths or hot showers which aggravate inflammation (very brief hot exposure can possibly help as it increases circulation, but prolonged exposure can cause it)

      So that day I woke up on Jan 30th, I actually figured out what happened through googling, and I immediately starting taking a LOT of supplements (I already had a lot of them too because through not being well in the first place). By week 2 I was up to something ridiculous like 15 different ones, by week 3 it was more like 25, not all at once, but in a rotation, they all served a purpose, and many were targeting either symptoms, damage, detox, pain, or a combo of. I was in a bit of panic, I already had some health issues, and did not want to suffer anymore, and did not want to miss the coming Tennis season (as silly as that sounds it was motivation) so I was at the computer 16 hours a day, 7 days a week adding to my already extensive knowledge-base on health and trying to figure out specific things I could do quicken my healing journey from Floxing & prevent more damage, etc.

      The first thing I did was started taking Antioxidants, this helps to protect the body from oxidative damage, which the Cipro drug usually does a LOT of. Selenium was huge help for me, Vitamin C, Vit E, Astaxanthin, don’t remember others but these were main ones, I noticed a BIG difference as soon as I started Selenium, but of course all of these things can only do so much, and their help can seem intermittent at times (sometimes it felt like they did nothing, even though that is likely untrue). A body makes some of these naturally, but when Floxed is now in a weakened state and in my opinion needs extra help.

      I also started Magnesium right away, and worked up to about 7 different forms in total taking them in rotation, which I calculated to be somewhere around 500-600mg/day IIRC. I did not get the actual AM MAG Oil until later, I had trouble finding it in Canada and it took some time and convincing I needed it, but boy was I glad when I got it, it REALLY works. I also made my own Magnesium Bicarbonate Water which is really easy, cheap and effective, and I still do this to this day (please search about 3 – 5 pages back if interested and you will find my instructions for this, search the pages for Bicarbonate and you will find it quickly)

      Other things I did immediately were:

      – Taking some Aluminum-free Baking soda in mornings: to help reduce inflammation (it helps restore Alkaline/Acidic balance, but it does cause me insomnia. Insomnia is yet another symptom I had pre-Flox that got worse with Floxing)

      – Cherry Tart Juice: Helps with pain and reduce inflammation

      – Vit D: IIRC Cipro can often strip you of this as well, helps with some things too

      – Multi-Mineral: Was doing this already

      – Multi-Vitamin: Was doing this already, expensive high quality, you get what you pay for here most times, many contain some really crappy forms

      – Probiotics: Was doing this already, Cipro often ravages the gut in a big way which causes ALL kinds of other issues, Gut health is critical to overall health.

      – Fish Oil: Was doing this already, good quality key here again, fish from Asia contaminated, Omega 3 key to Brain & Heart health, reduces inflammation, good for joints, many benefits.

      – Joint supplements: Already taking one, added 2 more (today none! yayyyy)

      – Silica: Many benefits, took for joints with other things

      I think that was most of them to start with, but there were some others too like things I put in my morning green shake. Everyone morning with my magic bullet I would stuff it with: All-in-one protein/Vit/Min complex, organic Broccoli, Kale & Spinach, Flax, Vit C, Turmeric, dash Pepper, Hemp, Ashwanda, liquid Fish Oil (on top of pills), couple of others, blend up, nutritious and delicious.

      After about 1.5 – 2 weeks, things started calming down a good bit, maybe 10 symptoms disappeared (like pain in back muscles, etc) and others were much less than the first week, which was hell. This combined with my knowledge on detoxing the body, combined with my new-found knowledge of how to possibly detox the Cipro poisons, set in course my next plan of action; detoxing the Cipro toxins. This was the plan:

      When feeling good enough and strong enough, I would exercise. In the beginning, this was a very light 5 minute jog to the Doctor’s Office from where I parked the car. This was enough to set in motion a cascade of effects, and in my opinion mobilized the toxins. This caused many symptoms to either re-appear or flare up in intensity, so needless to say I would not recommend this to anyone who does not feel ready for it. For me, I was desperate to make this process faster and did not want future relapses, so this made sense FOR ME. On days I would do this, I also took Iodine and Borax in Water, these 2 things have helped people heal from Fluoride toxicity, and Fluoroquinolone toxicity by definition is a form of Fluoride toxicity, we all have been poisoned with Fluorine in this case (more or less same as Fluoride, fluoride is a source of Fluorine) and of course the rest of this incomprehensible drug. It is known that Borax and Iodine will increase the amount of Fluoride the body excretes, so it likely mobilizes it and binds to it. (I’ve posted about this extensively in the past, with links to research etc). My hope, was that seeing that Fluorine went IN the body attached to the rest of this nasty drug, that hopefully when Fluorine came out it was STILL attached to most of it. There is no proof of this, and as far as I know there are no studies done on this either (rest of drug still being attached) but it made sense to me and it was the only hope I had, and I was going to do it anyway to purge the stupid Fluorine which in my opinion causes MANY of the Floxie symptoms all by itself (this is my unprofessional opinion after a ton of research), I also believe it does some of the actual damage as well but not all of it, it seems the rest of the drug unfortunately causes a lot of actual damage done in the body as well. (Very similar to Chemo drugs).

      Anyway back to the plan, I’ve posted many times in past on detox with some helpful links etc but the general gist of it is this: Protect body first and foremost, mobilize toxins (see my post on Relapses Oct 8th 9:03 pm) then Bind toxins to help them exit body. So Antioxidants, then Exercise, Iodine, Borax, and then Sauna. Tons of water all the time, Fluoride-free I recommend RO Water with Minerals added to it (You need to add them yourself). Okay so I did all this on day of jog to Doctors office, and boy did things flare up, massive tremors in legs was the most predominant, IIRC this lasted for about 2-3 days, and was followed by a LOT of pain for about 1.5 weeks this first time I did it. Things I did AFTER I had Sauna (also a mobilizer as well as purger): Activated Charcoal, Spirulina & Chlorella (VERY careful the source, these are extremely absorbent and some on market are toxic themselves), Benonite Clay & Psyllium Husk in water every night, I think these were the main ones I took I might have missed one not sure. These are the “binders”, and I took these every day until things calmed down again, no more exercise or antagonists (mobilizers) while “healing” and “purging”. Antioxidants everyday as well, Fish Oil all that stuff as usual. Then, when strong enough again, I would repeat the process. Each subsequent time, things were less intense, and would calm down again quicker. I did this about 4 or 5 times, and by 10 weeks I was 80% healed. By 12 weeks I was 85% healed, and playing Tennis regularly, but this would cause minor pain and short flare-ups until I was about 6 months out, when it finally ended for good.

      At 6 months when this stopped, around July sometime, the only symptom left was Tinnitus, which I still have to this day now about 8 months from Floxing. 23 of 24 symptoms were gone, and I just did the math that is ~ 96%, where I am now. There are a couple factors against me, I shower in Fluoridated water every day, and I drink the occasional decaf coffee. The coffee has caused flare-ups in the past, I only do this about once a month sometimes twice, I should not do it at all of course it is VERY acidic, contains Fluoride etc but it is a pleasure I choose to partake in. The last one I had this past Sunday caused my Tinnitus to get worse, in the past it caused minor tremors and then pain, I don’t recall it causing Tinnitus to get worse but this time it is without question, so I will have to do a gut check and try and muster more will to resist these if I ever hope to rid myself of this annoying Tinnitus (typically exercise can still cause it to flare up, as does showering. I still take small amounts of Iodine and Borax to try and help with this influx of Fluoride through showering).

      Alright whew, that might be the closest I have come yet to trying to get my full story down.

      • Jason December 29, 2015 at 4:03 pm Reply

        Here were most (not all) of my symptoms I recorded earlier on in Floxing with severity on scale 1 – 10:

        – Joints “popping & cracking” – 7 or 8
        – Painless tremors from knee to ankle – 7
        – Burning, weakness and tendon pain legs following tremors – 7
        – Inflammation in many areas – 7
        – Muscle pain in back and in Hamstrings – 6 or 7
        – Pain in right Knee – 6
        – Insomnia (bouts of this pre-flox also) -6
        – Pain in Liver area (lasted 2 days only) – 6
        – Random pains anywhere – 6
        – Fatigue – 5
        – Tendon pain various spots – 5
        – Brain Fog (worse than usual) – 4
        – Damaged Gaba recpetors – 4
        – Head pain / aches – 3
        – Tinititus – 3
        – libido and sexual dysfunction – 3
        – Hot / Cold spells – 3
        – Dry Mouth and dryness other spots – 3
        – Sensitivity to ultraviolet rays – 3
        – Depression (hit when symptoms at worst) – 3
        – emotional outbursts – 3
        – blurred vision – 3
        – Suicidal thoughts – 3
        – Bruxism – 3

        All of these and others I have surely forgotten are all resolved except Tinnitus, which is usually minor, Intermittent (at times its almost gone) and typically only noticeable at late night and mornings.

      • Cindy Jones June 22, 2016 at 6:41 pm Reply

        Jason Where did youget the hemp from? I am in agony with PN caused by these f……. fluoroquinolones.

        Can u get me some I can pay you in advance and send it to me please.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.