Floxie Hope

Floxie.Hope.1800.72.dpi

This site is to give HOPE to those who are suffering from Fluoroquinolone Toxicity Syndrome as a result of being poisoned by fluoroquinolone antibiotics – Cipro, Levaquin, Avelox, Floxin, etc.  It contains stories of healing.

Cipro, Levaquin, Avelox and all other fluoroquinolones are dangerous drugs that can have devastating effects that cumulatively I’ll refer to as Fluoroquinolone Toxicity Syndrome or Floxing.  Fluoroquinolone Toxicity Syndrome/Floxing includes damage to connective tissue (tendons, ligaments, cartilage, fascia, etc.) throughout the body, damage to the nervous systems (central, peripheral and autonomic), and more. The damage done by fluoroquinolone antibiotics can destroy a person’s quality of life or even kill them. Certainly, there is a time and a place for drugs with dangerous side effects. If you find yourself in a septic shock induced coma, fluoroquinolones may save your life. Unfortunately, these drugs are not being reserved for life or death situations. People are being prescribed them for urinary tract infections, suspected prostate infections, upper respiratory infections, as a prophylactic for travelers’ diarrhea, ear infections, pink eye, etc. Thousands of people have suffered needlessly from the devastating effects of fluoroquinolone antibiotics, when another, safer antibiotic could have, and should have, been used.

The damage done by fluoroquinolones is largely unacknowledged by the medical establishment and an accurate diagnosis, compensation and relief are difficult to come by. There is no known cure for Fluoroquinolone Toxicity Syndrome/Floxing.  However, many people continue to LIVE after being poisoned by fluroquinolones.  They find healing, recovery, perseverance, compassion and hope.  These are their stories.

This site is meant to give hope for healing to those who are adversely effected by fluoroquinolones.  It is no way meant to disregard the pain of those who are chronically suffering from the horrifying effects of Cipro, Levaquin, Avelox or the other fluoroquinolones.  There are people who don’t recover.  Their stories are real and they matter.  There are also people who are able to recover and I share their stories with the hope that they inspire others, or at least give hope that recovery is possible.

Here is a New York Times article about the dangers of fluoroquinolone antibiotics – http://well.blogs.nytimes.com/2012/09/10/popular-antibiotics-may-carry-serious-side-effects/?_r=0 – more news stories, research papers and other resources can be found on the “Links and Resources” page.

Here is a Facebook group that is a great resource for those going through Fluoroquinolone Toxicity – https://www.facebook.com/groups/floxies/

Featured post – I’m floxed. Now what?

The Fluoroquinolone Toxicity Solution Ebook has helped many Floxies to recover, including DanielCindy and Ruth.  As a bonus, you will also receive The Floxie Food Guide – a book of diet guidelines to help you through fluoroquinolone toxicity:

flu tox get help you need banner click lisa

 

 

 

25,621 thoughts on “Floxie Hope

  1. dan December 29, 2015 at 9:07 am Reply

    bob, are you starting the ivs up again? thanks for your reply. dan.

  2. Stephanie December 29, 2015 at 10:52 am Reply

    Does anyone know when my hair will stop falling out? It’s one of the hardest things. I used to always do my makeup and my hair. Now it falls out so much that it brings me to tears to style my hair. I have researched it and cannot find an answer.

    • Lisa Bloomquist December 29, 2015 at 10:57 am Reply

      Have you had your thyroid checked, Stephanie? From a great site, http://www.fluoroquinolonethyroid.com

      “8. I believe that once a person has been floxed, they may always be at greater risk for thyroid problems. As such, I do recommend a thorough thyroid panel, in particular the autoimmune component, be tested for in the acute phase and monitored for several years post flox. This is true for people already on thyroid hormone medication as well (continual monitoring of the autoimmune antibodies despite being on thyroid hormone medication). Current clinically available anti-thyroid antibody testing includes: TPO, TgAb, TSI, TrAb, and TBII. The TSI, TrAb, and TBII are every bit as important as the TPO and TgAb, and possibly more so during the acute phase. It is not enough to only test TSH, T4, or maybe TPO. I also recommend a traditional spot urine iodine test during the acute phase of FQT, as well as continual monitoring. I highly suspect that people with low iodine status are susceptible to FQ reactions. For those so inclined, testing for minerals during the acute phase would be a good idea; I would include Selenium, Zinc, and Copper in this testing.”

      • Stephanie December 29, 2015 at 11:10 am Reply

        Hi Lisa,
        I had an in depth thyroid panel done two weeks ago came back perfect. I cannot afford a minerals test my insurance won’t cover it and it’s $300. I take supplements daily and get IVs weekly I just don’t know why it’s still falling out I can touch the top of my scalp. It’s just hard to see my hair falling out every time I brush it wash it touch it hair is in my hands.

        • Lisa Bloomquist December 29, 2015 at 11:17 am

          Does iodine help (or hurt) you, Stephanie?

        • Stephanie December 29, 2015 at 11:30 am

          I have no clue I’m too scared to take it

        • Lisa Bloomquist December 29, 2015 at 11:57 am

          Understandable… the thyroid is delicate.

          How about iron? A low-dose iron supplement helped me a lot, and low iron levels are mentioned in here as a cause of hair loss – https://www.organicfacts.net/health-benefits/other/home-remedies-for-hair-loss-in-women.html.

        • Stephanie December 29, 2015 at 12:15 pm

          Iron levels are normal too lol they only dip down once a month I stumped my nd haha I said I’m special. He says stop being special. Lol

        • Linda December 29, 2015 at 1:10 pm

          iodine too…but you need to be careful. Steph, ask your ND re an iodine supplement

        • Jason December 29, 2015 at 3:09 pm

          Hi Steph. That is a LOT of tests, and of course free T3 and total T3 should be there very important, but honestly I am starting to wonder if the damage done by Quins to Thyroid even shows up on tests all the time, it might not, and it is EXTREMELY common amongst Floxies.

          Fluorine (in Cipro) strips Iodine from the Thyroid, Iodine is a CRITICAL component for Thyroid health, this alone will screw it up.

          Please do NOT be scared of Iodine, like anything important and health related that actually WORKS there is controversial information on the Internet about it, I’m sure it shows up on the Idiotic Quackwatch, and there are many other confused people out there who think it is not safe, pay not attention to them please. Listen to experts like Dr. Sircus, Walter Last, Larry Wilson, many many more.

          Anyone moderately to severely Floxed is very likely going to be low on Iodine, and will NEED to render this just as all other deficiencies. I would buy some Lugol’s Iodine (cheap, readily available), and then paint a patch on the belly 2 inches by 2 inches first thing in the morning after a shower (once dry). Watch this closely during the day, if it disappears before 4 hours someone is severely deficient, within 5 – 8 hours very deficient, 9 – 12 hours deficient, 13 – 19 hours a little deficient, if it doesn’t disappear until after 20 hours you likely have close to enough Iodine in the body. This is a “crude” test, but one many use and widely thought to be very useful, other tests to check Iodine levels would also be a good idea though.

          http://www.earthclinic.com/remedies/iodine13.html#thyroid_27508

        • Stephanie December 29, 2015 at 3:57 pm

          Hey Jason,
          I will try the test and see what happens. I’m on bed rest cause I have done too much so this is probably the last message I will write till after the new year. I don’t believe my thyroid test at all. I totally agree with you Jason. It’s why I wish some ND would just start a portal or something on us where they could share information. I believe that the absorbtion does do something my hair is just falling out and I have sores. My ND says everything screams thyroid. But the tests shows it’s perfect. It’s all nerve issues I shook after my IV today that’s why I’m on bed rest. So no puzzles no texting a little tv and meditation tapes. Soooooo boring, I swear sensory deprivation helps a lot but it’s so boring. 😢I will try the iodine test to see what happens. Txs a lot and very happy new year to everyone. May this new year bring us all healing.

        • Tom Marsella, Fresno December 29, 2015 at 5:11 pm

          Stephanie : The herbal blend works and is being considered for a Nobel nomination.

        • Bob December 30, 2015 at 9:18 am

          Stephanie, There are some doctors like Dr. Mark Starr who say you have to go by symptoms, not test results, to treat thyroid.

        • Jason December 29, 2015 at 3:14 pm

          Here is some more info, and many many links to a pile more info:

          http://www.stopthethyroidmadness.com/iodine12345/

          One quote:

          “Are there nutrients I should take before going on iodine? Do I need selenium?

          Experts on the use of iodine state there are key nutrients one should take to counter the detox of bromides, chlorine, fluoride that iodine will promote, as well as block negative reactions to iodine. Many start these one month before introducing iodine. Lynne Farrow of the Iodine Workshop group called these “Companion Nutrients”, and they are:

          Selenium – 200 – 400 mcg per day
          Magnesium – 400 – 1200 mg per day
          Vitamin C – 3,000 – 10,000 mg per day
          Vitamins B2/B3 (ATP CoFactors) – 100 mg riboflavin and 500 mg no flush niacin, inositol hexanicotinate form, 1-2x per day
          Unrefined Salt (Celtic) – 1/2 tsp. or more per day

          —–

          IMO probably ALL Floxies should be taking some amount of Iodine and Selenium, and lots of Vitamin C and of course lots and lots of MAG, they all helped me greatly and have many others as well.

        • Carla January 1, 2016 at 8:19 am

          I have been told that one Brazil nut a day will give you adequate selenium. I eat one with my breakfast.

        • Linda January 1, 2016 at 11:18 am

          Yes, I have posted this a few times as well. You just don’t want to grab a handful. Just one is right, two tops.

        • Jason December 29, 2015 at 4:14 pm

          I am relieved you will do that test Steph, if somehow it does not disappear for 20 hours, then I guess your ND is right you are an enigma…. I highly suspect you are deficient, but I’m no expert on this maybe something else could be behind it

          Sorry the rest is so boring 😦 I know too much CNS stimulation is likely hard on already damaged nerves, and even noticed small instances of this in myself before so please do rest, especially when you feel “edgy”

        • Lucy Sky December 29, 2015 at 4:52 pm

          Hi Steph
          Sadly blood tests are unreliable.

          If u e mail me I can send links to thyroid forums.

          Sorry to hear that you are going through this. I am having a flare up myself with severe tendonitis . Let us hope that 2016 will bring us all the healing from this harrowing experience.

          Lucy

    • Lucy Sky December 30, 2015 at 11:40 am Reply

      Hi Steph
      I am sorry to learn of your problems with hair loss.

      I was wondering if you had ever had an adrenal stress/fatigue test done.
      I understand that stress can cause these problems.

      A good source of information on the subject can be found on Dr Barry Peatfields website. He was a dr who is now practising as a nutritionist .

      Hope the above helps.

      Lucy

  3. Linda December 29, 2015 at 11:02 am Reply

    Bob—also be aware that as far as the PC, they recommend doing 20 of them. So you may not notice anything after just one. Also, Lisa, do you know why sometimes there is a “reply” by a post and sometimes there isn’t? I am just always wondering if someone is actually going to read what I have posted when it is in response to a particular question.

    • Lisa Bloomquist December 29, 2015 at 11:59 am Reply

      Hi Linda,

      This site is hosted on http://www.wordpress.com, and the settings are that replies can only go 2 levels deep. I don’t think I can change that. :/ Sorry!

      Regards,
      Lisa

      • Linda December 29, 2015 at 1:11 pm Reply

        ok, thanks for the reply (gotta say, I don’t think wordpress is very user-friendly)

    • Bob December 29, 2015 at 3:33 pm Reply

      Linda, When you do your PV IV are you doing any others at the same time?

  4. Tom Marsella, Fresno December 29, 2015 at 12:39 pm Reply

    Stephanie : I take an herbal blend that has gradually restored my hair over time. …Tom in Fresno

    • Stephanie December 29, 2015 at 12:45 pm Reply

      What is it?

      • Tom Marsella, Fresno December 29, 2015 at 1:05 pm Reply

        I’ll explain

        • Jason December 30, 2015 at 5:00 pm

          Tom, just curious if you are a distributor for a MLM company, because it certainly appears that way as you don’t share info on products but would rather have people email you all the time, I don’t think this is very transparent.

        • Lucy Sky December 30, 2015 at 5:47 pm

          Hi Tom
          What exactly is in the herbal extracts that you mention and how much does it cost?
          many thanks.

          Lucy

  5. Ned December 29, 2015 at 2:57 pm Reply

    Hi everyone. I was floxed in July of 2015 for a UTI. For almost the
    last 6 months I have suffered CNS side effects- depression, anxiety
    and panic attacks, insomnia, hopelessness, suicidal thoughts and
    anger. It is often difficult for me to be with others as I can
    overreact, take things personally and then withdraw.I had no Christmas
    spirit this year, spent the day with my brother but too anxious to
    spend more than several hours. I have been able to hold down a job,
    pay my bills but at times its so overwhelming. I find myself staring
    at the tv at night, not interested in calling friends or going out. I
    am frightened that after almost 6 months I am still so messed up. I
    took an antidepressant, paxil for many years and discontinued it. When
    I started it again to help with the withdrawal I found that I couldn’t
    take more than 1.25-2.5 mg at a time because it reacted with the
    withdrawal stuff. Can you please help me with any suggestions or
    advice. I am taking magnesium powder, vitamin C, avoiding alcohol and
    usually coffee. I walk regularly and want to get back to biking. So
    far, no skeletal issues although several people I know have torn
    ligaments or tendons in feet or toes.nn

    • Lisa Bloomquist December 29, 2015 at 4:22 pm Reply

      Hi Ned,

      I’m so sorry for everything that you’re going through! The CNS effects of FQ toxicity are truly horrible. What you’re describing is, unfortunately, common, and you are not alone. There seems to be a loss of self that comes with FQ toxicity. It is horrible to go through, for sure!

      Perhaps Nick’s recovery story can help you – https://floxiehope.com/nick-gs-story-recovery-from-fluoroquinolone-anxiety/. His main symptoms were CNS too.

      Here is a post that may help too – https://floxiehope.com/2015/06/22/treating-fluoroquinolone-anxiety/. Please check out the links and comments as well.

      Fluoroquinolones do similar things to GABA neurotransmitters as benzodiazepine withdrawal. The things that help people through benzodiazepine withdrawal can be helpful for FQ toxicity symptoms too. I have heard good things about http://www.benzobuddies.org as a resource.

      Meditation helped me immensely. Self-help helped me immensely. Being positive helped me immensely. Telling myself that I was still in there and that I would heal, helped me. I did heal. I feel like myself again. My SELF has returned. Hang in there. Yours will too.

      If you’re religious or spiritual, practices that align with your beliefs may help too.

      I think that getting a thyroid panel done is a good idea. The comment above to Stephanie from http://www.fluoroquinolonethyroid.com may help. I also think that Jason’s comment about companion nutrients is a good list of supplements.

      You’re on a healing path. You are – try to believe it. Take small steps every day, and they will add up.

      Regards,
      Lisa

      • Bob December 30, 2015 at 9:26 am Reply

        Lisa, have you ever looked at Ibogaine as a treatment for FQ toxicity?

    • Linda December 29, 2015 at 7:56 pm Reply

      Hi Ned, I am ten months out and the anxiety is debilitating at times. I have been unable to work (not just from that, but other side effects.) You might try adding 1,000 mg turmeric—a good brand with high bioavailability. There was a study in which turmeric performed as well as prozac for depression. Bonus—it’s also anti-inflammatory. I actually had switched to turmeric for depression a year before I was floxed, and it worked very well.

      • Lucy Sky December 30, 2015 at 8:04 pm Reply

        Linda
        Where did you buy your turmeric from?

      • Lucy Sky January 3, 2016 at 10:07 am Reply

        Dear Linda and Jason
        Did you buy the turmeric in tablet or capsule form. Is it available in the UK?

        Many thanks

  6. Lisa Bloomquist December 29, 2015 at 4:24 pm Reply

    Did you all see Diego’s wonderful video of encouragement? Here it is –

  7. Clay December 29, 2015 at 10:41 pm Reply

    Ok have not been on for a while, just updating for those that remember, had my surgery 4 bones taken out of my hand not Floxie related but was none the less concerned about it considering the hell I went through with Cipro but all in all I am healing but still have symptoms from the one farking time that Cipro got me but they are subsiding. I will never have the use of my right hand as I use to and that is a question that I will never be able to answer was it the Cipro on its own? I dunno but the rest of my body suffered for 2 plus years. I hope that all you tell your stories to every one my local Doctor refuses to acknowledge and continues to say its a reaction but dam if I wasn’t poisoned! Docs don’t want to hear those terms when the are getting kickbacks. Carry on. A hopeful but angry guy!

    • Linda December 29, 2015 at 10:45 pm Reply

      Hey Clay—glad you are improving. yeah, the whole denial thing with MDs is infuriating. I went armed to the hilt with articles and couldn’t even get any of my docs to read them! My NDs, on the other hand, and acupuncturist, didn’t bat an eye when I said I was poisoned by Cipro. Word is getting out. SLOWLY. Too slow considering how many decades this nonsense has been going on. Keep talking ,keep writing people in power. Let’s expose this for the criminal activity it is!

  8. dan December 30, 2015 at 6:36 am Reply

    jason, thanks for your recovery post. iam dealing with electical pinches throuhout my body at times along with spasms. i am trying yhe 20 mule borax this morning. do you sip the stuff all day in 2 liters of water? i am going to ad lugols later. thanks dan.

    • Jason December 30, 2015 at 1:01 pm Reply

      Hi Dan. Yes, I started with small amount like 1/8 first day to make sure die off would not be too bad, because it will cause that in some people, then I quickly worked up to 1/2 TSP max. I also added 1/8 TSP or so Himalayan Sea Salt which is good for many things, fresh squeezed juice of 2 Lemons and 1 Lime, and 2 or 3 TBSP’s Chlorophyll.

      Some days I do only Borax and water, when I was suffering I did the mixed water every 2nd or 3rd day. The Sea Salt is full of minerals, and can also stimulate light detox, the lemons/limes basically the same idea as salt plus they Alkalize the body, and the Chlorophyll does many things inlcuding cleaning the blood, Alkalizing the body, and more.

      Most Floxies are suffering from very high acidity (from Minerals being stripped from body for just one reason, so Multi-Mineral Supplement helps, along with targeted ones like extra Mag, Iron, Vit D etc) and large amounts of inflammation from acidity and GUT damage etc, which all add to the oxidative stress and damage the drug does. Drinking the mixed Water was a huge help for me, and I also drank 1/2 TSP Aluminum free Baking Soda in a large glass of Water every morning which also helped, but B.S. causes me Insomnia too much Sodium I guess so I had to cut it out eventually so be wary of this possibility (B.S. is a powerful Alkalizer though, and is reported to aid in pain relief, likely due to its Alkalizing and thus anti-inflammatory effects [Acidity is one root cause of inflammation, so its a HUGE deal for Floxies all of this]).

      • Jason December 30, 2015 at 2:46 pm Reply

        And while on the topic of Acidity and Inflammation, I will mention that DIET once again is absolutely critical for Floxies for many different reasons, these being only 2 of them

        • Lucy Sky December 30, 2015 at 5:32 pm

          Hi Jason
          I suffer from hyperacidity issues . I see that you recommend taking lemon and limes but I am wary of taking these due to their acidic content.

          I have reflux and acidosis issues. Would they be suitable for me?

          Lucy

        • Jason December 30, 2015 at 6:25 pm

          Hi Lucy. I suffered Heartburn 25 years, and have very acidic blood as well. I had to cut out all acidic foods like Sugar, Simple carbs Pasta etc, and once I did this my Heartburn basically went away (sadly had to cut WAY back on spicy things I love so much too)

          Once in awhile Lemons will give me a little heartburn, but its not bad for me and passes and I still use them for all their other many benefits, which making the body and blood more Alkaline is one of them (see below where I mentioned this as well, this is sort of unintuitive, they are acidic themselves but they do help remove acidity in the body). I am unsure of any possible contradictions such as Warfarin etc

        • Lucy Sky January 3, 2016 at 3:57 pm

          Thanks for the info Jason. Lucy

      • Dani December 30, 2015 at 4:37 pm Reply

        Hi Jason what are your thoughts on drinking diluted Apple cider vinegar. I hear it is helpful to prevent and rid UTIs. Is the acidity damaging?

        • Jason December 30, 2015 at 4:55 pm

          This is like lemons, where the Acidity actually makes the body more Alkaline, and there are also many other Health benefits. I use Braggs, and dilute it. Note the acidity is really bad for tooth enamel though, so it is recommended to drink through a straw, or quickly swallow and rinse after

  9. Mark S December 30, 2015 at 10:04 am Reply

    Diego’s video really inspired me. Cipro has damaged my body but I refuse to let it damage my spirit any longer! Sure, it may take a couple years to really feel recovered. But maybe it won’t! Maybe I’ll recover at the one year mark. That’s out of my hands so there is no point obsessing over it anymore. We all have to go through valleys in some form in our lifetime. But those valleys do not last forever and they eventually lead us to higher mountains. Stay strong everybody. This is all just very temporary in the grand scheme. Focus on the day where you will be back to the healthy person you once were. It is coming! Positive thoughts influence the brain which influences the body. Heal the mind, heal your gut, and you will start to heal the body. 2015 is now almost over and it’s only up from here.

    Mark

  10. dan December 30, 2015 at 5:59 pm Reply

    jason, just had 750 mg gluthione push. now my elbow is sore. he wanted to do 1400mg but i backed off, got scared i guess. any thoughts? i am still spasming and tingling. thanks dan.

    • Jason December 30, 2015 at 7:02 pm Reply

      Well there are many things that can happen here. First, something like this or Myers which are both great, will typically promote detox in the body, especially the first bunch of times someone does them, so I would say the elbow pain is consistent with this, when I do other aggressive things to detox I sometimes get funny random pains in body, like in foot etc (I tend to think this is from Metals being dislodged, they are a HUGE irritant to body joints, organs etc which is probably why they often get stored in fat cells when the body can’t excrete them all at once).

      It might take a day or two for things to “settle down” but hopefully they will, I would increase Antioxidant intake asap, like Vit C, Selenium, Vit E and last thing at night 2 hours away from others, take a “binding” supplement like Benonite, Chlorella, Activated Charcoal etc. Assuming toxins have been “stirred up”, these things will help protect the body until it has a chance to excrete them, Sauna would likely help too

      The other thing people need to be aware of is any Supplements that are Sulfur-based like the IV you did, ALA, NAC, MSM, etc etc many people can NOT tolerate these due to Genetics (CBS + SUOX) and/or Mercury Toxicity or other issues. You will only know this through trial and error, or in case of Genes getting a Genetic test done, but don’t mistake “normal detox” reactions for “adverse reactions”, they are two very different things, even if they might feel a little similar possibly, one is healthy and a normal reaction, the other is not. How can you tell the difference? Not the easiest question to answer and it will vary largely from person to person I’m sure, but someone should “know” if they can’t handle Sulfur once they take too much I’m thinking, for me my Brain shuts right down, I even have trouble with raw garlic and onions I get Brain Fog from them. Taking Molybdenum and/or Activated Charcoal may help to avert an “adverse” reaction but not necessarily.

  11. dan December 30, 2015 at 6:43 pm Reply

    jason, it feels like my calf is swelling, but no swelling. i dont know if the ivs stirred this up? dan.

    • Jason December 30, 2015 at 7:04 pm Reply

      Don’t panic for sure, but yes things are very likely “stirred up” alright, see my post just above on what I think in more detail

  12. dan December 30, 2015 at 7:37 pm Reply

    jason, doc gave me boron tablets. 5 x per day. i am wondering whether to take them? thanks dan.

    • Jason December 30, 2015 at 8:40 pm Reply

      Well I’m not sure exactly what he gave you, and what kind of Doctor you are seeing, and what all your complications are etc etc so its a hard question to answer.

      Pure Boron is a natural Mineral thought to be safe and needed by many experts, though apparently not all agree unsurprisingly. I take Borax, but I also have a Multi-Mineral Supplement with many things in it, and Boron is one of them (1.5mg). I think the upper limit might be 3mg a day, but don’t quote me on this my memory is still not very good, I am pretty sure that amount is safe, but maybe more can taken too not sure.

      • Tricia December 31, 2015 at 7:55 am Reply

        Does anyone have a remedy for insomnia? Since i’ve been repoisoned from pork my skin is burning and I lost the ability to sleep 😦 I’m so tempted just to take ativan! I took melatonin and that did nthing

        • Linda December 31, 2015 at 12:26 pm

          Hey Tricia, at my worst (0-1 hours sleep a night) I did take Zolpidem (generic ambien) which I was on for about 5 months. Then I weaned myself off. I was still having problems, and happened to be reading a book about women’s health, by an ND and she suggested something called AdrenaSense. It works by helping your adrenals. I thought for sure my adrenals were trashed b/t the flq toxicity and years of asthma meds, so I gave it a try, and it really did help. I bought it through natural healthy concepts but you can probably get it other places. This is what it looks like. http://www.naturalhealthyconcepts.com/women-sense-adrena-sense-NF60.html

        • Jason December 31, 2015 at 3:39 pm

          Just a note that generally speaking supporting Adrenals can cause more “stimulation” than relaxation, and in that supplement many people find Rhodiola rosea to be stimulating, Ashwagandha typically is neutral, not sure on others

          Here are other ideas I have posted in the past:

          http://www.naturalnews.com/026605_fluoride_fluorides_detox.html

          This article shares some important tips (references are not great in it, though, very incomplete) on using Iodine and Borax to chelate Fluoride from the body. The one thing this article incorrectly omits is the importance of taking Antioxidants in any detox

          The other important thing it points out is how it screws up the Pineal Gland (much like the Thyroid Gland) which screws up Melatonin production which causes Insomnia, this is well documented. So its at least a double whammy here, having the Pineal Gland screwed over AND having Gaba/Glutamate balance thrown off.

          I had very bad Insomnia at the beginning (I already had some pre-Flox too) and I
          took lots of Melatonin along with a few other things and they all helped a lot, BUT ONLY BECAUSE I TOOK MANY THINGS ALL AT ONCE. I have to stress this point, because any Floxies who think taking one or two things is going to curb Floxie Insomnia are sadly mistaken, this is a severe infliction, and thus severe measures need to be taken, high amounts of MANY supplements to try and counter the gross imbalances created by the Drug. (including robbing MAG, which is relaxing to system, so triple whammy, and probably more)

          So I am very sure I would have got a LOT less sleep without these things like Valerian Root, Melatonin, 5-htp, Passion Flower, and a couple more things taken in Tea and supplemental form, all at once especially before bed.

          Some more natural things for Insomnia that can help (I used many of these in one form or another, YES I TOOK ABOUT 10 THINGS ALL AT ONCE, sleep is important to healing and I had BAD insomnia!!!!!):

          – Magnesium definitely – it is calming, take LOTS and good forms!!!
          – Gaba & L-Theanine (by countering Glutamate the tired and wired type of Insomnia)
          – Cherry Tart juice (Melatonin, I took this ON TOP of Melatonin supplements)
          – Lavender aromatherapy
          – Hyland’s Calms Forte (homeopathy)
          – Lemon Balm
          – Hops
          – Catnip Herb

        • Linda December 31, 2015 at 4:19 pm

          all I know is, it (Adrena sense) worked for me. Says this on the bottle: “supports adrenals and promotes uninterrupted sleep.” It was recommended in “Making Sense of Women’s Health” by Dr Marita Schauch, BSc, ND

        • Linda December 31, 2015 at 4:21 pm

          Also, of the list: Magnesium definitely – it is calming, take LOTS and good forms!!!
          – Gaba & L-Theanine (by countering Glutamate the tired and wired type of Insomnia)
          – Cherry Tart juice (Melatonin, I took this ON TOP of Melatonin supplements)
          – Lavender aromatherapy
          – Hyland’s Calms Forte (homeopathy)
          – Lemon Balm
          – Hops
          – Catnip Herb

          Never tried catnip or hops, but tried all the others and they did nothing. I even purposely got Magnesium taurate, the kind recommended for this purpose—nothing.

        • Carla January 1, 2016 at 8:51 am

          Magnesium has definitely been helpful, but if I take too much, it causes diarrhea. Just have to find the right amount.

        • Jason December 31, 2015 at 3:52 pm

          Here are 18 things total for Insomnia, many I have listed already but a couple more here: http://everydayroots.com/sleep-remedies

          Some of these things are bandaid fixes, some address the root causes, of course without knowing your own root cause its hard to treat it properly, I listed 3 possible and probable ones above, however there are many more possibilities, like: Other Neural Transmitter imbalances (Amino Acid’s can help) and other Hormone imbalances, both very common in today’s society and even more common amongst Floxies. Insomnia can also be caused by Electrolyte and Mineral imbalances, but for any of these additional things without knowing which deficiencies and imbalances someone has it is impossible to recommend anything.

          In my case the Sodium Bicarbonate I was taking for Acidic issues was causing me Insomnia (even pre-Flox I just didn’t know then), once I realized and cut way back on it and started balancing other Electrolytes and Minerals it helped a lot.

        • Carla January 1, 2016 at 8:48 am

          I have found that taking vitamin B supplements later in the day will keep me awake. I have to take the B vitamins in the morning. BTW, B5 — Pantothenic Acid — helps build resistance to allergens, and I have found an extra dose of B5 with the other Bs seems to help with Floxie symptoms. Remember, all the Bs have to be taken together or they just wash thru without helping.

        • Carla January 1, 2016 at 8:38 am

          Tricia, the best treatment for insomnia I have found is Cannabis. It is necessary, tho, to be sure the strain you are using is predominantly Indica. Sativa strains, especially in overdose, will make insomnia worse and also cause anxiety and paranoia. You can find out which strains are which on Leafly.com.

        • Lucy Sky January 1, 2016 at 8:13 pm

          Have u tried bicarb of soda? I take a quarter of a teapoonful in about four fluid ounces 129 mls of water.
          Hot milk also helps me to relax and to sleep.

        • Lucy Sky January 9, 2016 at 8:42 pm

          Tricia
          I googled Treatment for fear of sleeping. It is quite interesting.

        • ChristmasCarla January 11, 2016 at 9:03 pm

          Lucy, one of the best treatments for insomnia is cannabis. I take a small amount of cannabis oil made from a strain that is relaxing and sleep-inducing, one of the Indica strains. if you are in a medical marijuana state, ask at a dispensary for a sleepy strain. Hope you can get some relief.

      • Tricia December 31, 2015 at 7:58 am Reply

        Does anyone have a remedy for insomnia? Ever since I was poisoned from pork, my skin is burning, Itching and I cannot sleep at all 😦 melatonin does nothing for me, I’m so tempted to take ativan !

        • Lisa Bloomquist December 31, 2015 at 8:29 am

          It’s not good for you, but I’d take a Benadryl before an Ativan. It may help with both the itching and the insomnia. Ginger is a good natural antihistamine too. Try eating some ginger or drinking ginger tea. Also, if there is a room in your house that is completely dark, complete darkness may help. I’ve been sleeping in my walk-in closet for the last month because it’s nice and dark in there.

        • Lucy Sky January 10, 2016 at 3:41 pm

          Tricia
          How are u now after being poisoned with pork? How long ago was it? Have you improved at all?
          I had a cottage pie x 2 ready prepared processed meal and the burning has increased.
          The meat in this cottage pie tasted quite an inferior quality of meat. Makes you wonder what they meaning the manufacturers put in it!

          I am sorry that I ever ate it. I wonder just how long it is going to take to stop having this adverse effect on me.

          Lucy

      • jwinn December 31, 2015 at 8:56 am Reply

        I take Boron 3 mg. a day. You can get the liquid in 6 mg, which is the upper limit. It has not caused me any issues so far.

  13. dan December 31, 2015 at 9:42 am Reply

    thanks jwinn. dan.

  14. dan December 31, 2015 at 9:44 am Reply

    sorry guys its borax pills. [homeopath]. dan.

  15. Mark S December 31, 2015 at 11:31 am Reply

    Has anyone tried Astaxanthin? It’s supposed to be an AMAZING antioxidant that works well at the cellular level. Could be pretty great for us floxies.

  16. Mark S December 31, 2015 at 11:45 am Reply

    “When it comes to free radical scavenging, astaxanthin can be as much as…

    65 times more powerful than vitamin C*
    54 times stronger than beta-carotene*
    Plus, astaxanthin has been shown to be more effective than other carotenoids and other nutrients at “singlet oxygen quenching” by being up to…

    800 times stronger than CoQ10*
    6000 times greater than vitamin C*
    550 times more powerful than green tea catechins*
    11 times stronger than beta-carotene*”

    • Jason December 31, 2015 at 4:09 pm Reply

      Yes those are the “claims”, not sure how accurate they are but I bought some long before Floxing and after I was Floxed I made sure to use it everyday as well (I forgot to list it above in reply to Dan but have talked about it many times in the past)

      Its hard to say which ones help the most, I did notice an immediate difference with Selenium, but at any rate I think people should be using them ALL, since we know the drug is doing oxidative damage.

      If someone does not have Sulfur issues they can possibly add NAC (ALA too if no Mercury Fillings, but even if not I am leery of this one it crosses the BBB so could be bad in a couple senses) and Glutathione directly, and they can eat a lot of Sulfur Veggies to also help.

      • Linda December 31, 2015 at 8:06 pm Reply

        I have mercury fillings and I was told to take ALA now by two different naturopaths and a FLQ researcher.

        • Jason December 31, 2015 at 11:52 pm

          Not all Naturopaths know everything about every supplement, there are just too many, too many factors, and too many things to know. People need to learn that NO Doctor, not even the good ones from Functional, Integrative or Naturopathic, no Doctor should be completely relied on, ever, and I have seen plenty of Naturopaths who have given out bad advice to plenty of people which drives the point home.

          Mercury fillings leak Mercury a little bit each day. ALA binds to Mercury. ALA crosses the Blood Brain Barrier. Put all this together, and what conclusion do you come to?

          This is why Andy Cutler, famous for curing himself of Mercury Toxicity and coming up with and sharing his protocol, which thousands upon thousands of people have used successfully it is the most widely used Protocol, recommends NEVER taking ALA until ALL fillings have been removed, and then waiting at least 3 more months, and this is assuming someone has already been on a Protocol for 6 months. ALA can be used to remove Mercury from the Brain due to these properties it has, and this is what Cutler recommends, but only later in a Protocol which makes perfect sense given all the facts. So people can choose to listen to this person or that person, or to someone that has fully researched it, which in this case is Andy Cutler

    • Lisa M Maskevich January 10, 2016 at 3:57 pm Reply

      I am in awe at so many amazing ways to try to get better. Thank you Jason for posting about the Astaxanthin. I have been ” Floxed ” for Nine Years, I only learned about this horrible poisoning in 2013,a little over two years ago, but had been suffering since 2007,I had no WARNINGS at all, at that time nothing was on the Prescription warning of anything but may cause” Dizzyness,drowsiness constipation or diarrhea. I really hadn’t noticed anything but dizziness which I thought was due to over exercising, not eating enough, nothing so severe as being Poisoned Ever crossed my mind. Shoulder pain became excruciating,MRI,s showed a small tear, then the same thing happened to my knees and ankles,bilaterally,getting worse and worse with absolutely NO IDEA WHAT WAS CAUSING THIS TO HAPPEN,I then slept literally Slept for almost an entire year! This caused several problems as you can imagine, I went from being very active and social to unable to lift my head from my pillow, I was sent for tests mostly MRI,s, Tendon Tears were getting worse, from me doing Nothing? Now into my Ninth year of being Floxed I have armed myself with as much ammunition possible and decided that I AM THE ONLY ONE WHO CAN MAKE MYSELF BETTER, Along with the help and support from my fellow floxies,newly Floxed which really saddens me because THERE SHOULD HAVE BEEN A STOP PUT ON THESE POISONS YEARS AGO, and those like myself who have been going through this horrible unnecessary poisoning for several years… regardless of when this happened to any of us, we have THE RIGHT to DEMAND these POISONS BE REMOVED FROM THE GENERAL USE for Minor infections,URI,S Sinus, Upper Respiratory….Not ONE of these illnesses I mentioned needed to be treated with the same antibiotic used to TREAT ANTRAX POISONING,MERSA?????????? OVERKILL IN A NUT SHELL. I finally learned to deal with the tendon issues, but now I have heart valve problems, I gained the 70lbs I lost pre Floxed,.yet I hardly eat anything at all, that is why I am petrified worrying about my Heart,liver,Kidneys. I have begun using mega dosing of magnesium just this week, taking collagen capsules and hoping my Nutri Bullet arrives tomorrow so I can start drinking as many nutrients possible in there most natural forms.Tumeric,flax seed almonds, banana pine apple smoothies all of which have there own healing properties turmeric anti-inflammatory, Flax seed the Omega fat oils the good kind, I am so grateful as I have said several times here, that I have found you all. It is really hard tying to understand WHAT IS HAPPENING TO OUR BODIES let alone TRY TO EXPLIAN TO OTHERS WHAT IS WRONG ? We were unable to explain something WE HAD NO IDEA WAS HAPPENING TO US, I am certainly not undermining anyone here because we are all in this Together, but I really thought I was going insane when I started having all of these things happening to me, after all I had lost 70lbs went to low impact gym 3 – 5 days a week walked one to two MILES A DAY NO MATTER WHAT THE WEATHER,I went on Vacation and climbed the Dunn’s River Falls in Jamaica this was right before taking Levequin, merely a few months before. I was FORTY SIX YEARS YOUNG & IN THE BEST PHYSICAL SHAPE I HAD EVER BEEN IN MY ENTIRE LIFE. STRONG & HEALTHY. EATING RIGHT,EXERCISING,SOCIALIZING,Oh I had a knee & back injury but through exercise and keeping muscles strong it was tolerated, Then I feel asleep, I slept through everything, my Mom was 69 at that time and would sit by my bed and say Lisa Please wake up, Please…..I felt as if I was in a dream, I could hear her but couldn’t respond, then back into the dreamland, my sister was diagnosed with metastatic colon cancer, which was terminal it was found to late, The worse part of being Floxed was not being able to have the STRENGHT in my BODY TO WALK TWO HOUSES DOWN to SPEND THE LAST DAYS OF MY SISTERS LIFE WITH HER, I will NEVER FORGIVE that ” Family oriented Company ” for doing that to not ONLY ME but MY SISTER who wanted Nothing More then to be around me during her last days on this earth.especially because of that reason! I have no idea what my health will be like in this new Year, I only pray that I will be able to stop taking all medications and only ingest good natural things, perhaps it may be too late for me,after all this poison has been destroying and wrecking havoc on every cell muscle tendon nerve in my body for the past NINE YEARS MARCH 2016. 03/19/2007 was the exact date that Levequin began to slowly but relentlessly kill me, it did not fight fair, it snuck around my body causing very suttle things at first, things I was NEVER TOLD TO WATCH OUT FOR,popping sounds from my ankles, shoulders knees. Total loss of appetite but gaining weight anyway? I was on and still am on Synthroid medication for Hypothyroidism.no surprises there as it is on both maternal & paternal sides of family, Grandmothers Mother. I am probably one of the ” Senior” Floxies,meaning I have been living with this dreadful poisoning for almost Nine Years, and I can tell you one thing for certain just within the past week or so using the magnesium and Epsom salt baths along with Vitamin C no added junk, has made me feel better, I for the very first time since learning of this Poisoning have a glimmer of hope, I say glimmer only because of the many years this POISON was allowed to freely roam my body destroying whatever it wanted to destroy. I am boiling mad, mad as hell at the FDA and J&J for allowing this to happen to so many people, young and old and in between. Who gave them the RIGHT to do this to Us, they took away our lives, hurt and maimed our bodies under the FALSH pretense of healing us, when in FACT they KNEW EXACTLY WHAT THOSE MEDICATIONS COULD and WOULD Do to MOST of the People who too that POISON, It was LEVEQUIN that did me in, others Cipro, others anyone of the other TWENTY ONE DRUGS IN THAT CLASS, Being I had always kept up on my health, I always had a Full check up EVERY YEAR, Blood work EKG ECHOCARDIO GRAMS Stress Tests Bi yearly, I had never ONCE HAD ANYTHING WRONG WITH MY HEART OR THE VALVES GOING TO OR FROM IT,IMAGINE MY SHOCK THIS PAST YEAR WHEN I LEARNED THAT NOT ONLY MY MITRAL VALVE HAD A ” SLIGT REGUGATATION” But also My TRICUSPID VALVE???????? RED FLAG DEFINATLY, also a small bump on my abdomen which was passed off as a fatty tumor, nothing to worry about, I had noticed that right away in 2007 about six months after my second dosing of Levequin, seems my SPLEEN that tiny little organ that does so very much to keep us healthy, became ” Slightly Enlarged” My Theory about my Spleen and my PCD seems to agree with me on things more & more as our relationship is becoming stronger knowing me longer has helped that tremendously. My poor tiny Spleen has enlarged because it has been continually working over time for almost Nine Years trying to get rid of the extra inflammation that Levequin has caused my body. Thus far 03/19/2007 up until now January 10,2016.Levequins ingestion has caused me Bilateral Shoulder, knees and Ankles Tears, Bilateral sensory Perihipial Neuropathy Heart valve both Mitral & tricuspid regurgitation. I really believe that I am still walking with assistance of a cane which will be no use to be soon being my arms wrists hands and shoulders are becoming weaker since being FLOXED Because of the Wrenching determination to become as Strong as possible, healthy as possible going into my Fifties,, My Heart Body & Mind were very strong, any Doctor I have spoken with always tells me I have a very ” Strong Heart” I in turn ask well how long do you think it will stay strong fighting hard to breath, move do anything?? I only KNOW what that Company did to us was WRONG, They need to STOP HURTING PEOPLE, They need to HELP PEOPLE GET BETTER,THEY NEED TO BE PAYING FOR IV,S and Mineral testing. We all deserve at least that much in return for the devastating injuries caused by them, intentionally caused by them, no matter what I have NO DOUBT that J&J and its subsidiaries KNEW what the end result would be regarding the Poison they were pushing on people, I in hindsight have said this several times, I would of rather ate a bit of rat poisioning,because at Least I WOULD OF KNOW WHAT WAS GOING TO HAPPEN,NO SURPRISES,DAYS WEEKS MONTHS YEARS LATER…Boom Burning off of my mouth lips tongue esophagus, stomach lining small and large intestines, pretty much destroying my entire route of life sustaining nutrients. All in one shot, INSTEAD it has been happening for these Nine Years slowly and steadily, which is worse, if neither can be completely fixed, I should have been GIVEN A CHOICE,I SHOULD HAVE BEEN TOLD, Each and everyone of us should have been given that OPTION to SAY NO,I wasn’t told anything, nothing that would scare me enough to cause me to run screaming from my Doctors office, a Sinus infection, treated with a TEN DAY SUPPLY OF 750mg OF LEVEQUIN. In Hindsight, I do not think it cured that infection at all, because I had to take Levequin again five MORE TIMES ? Now I am really MAD, Levequin caused me to suffer in ways beyond comprehension yet, it never cured my Sinus infection ? Was I a test subject without knowing it, where are the Clinical test subjects, are they Floxed, are they still alive, these are questions I want answers to, We Deserve to KNOW the Answers to these Questions, We were FLOXED without Permission, and now we will suffer for years,hopefully some will be lucky enough and heal quicker then I have, but needlessly we have all suffered for No other reason then CORPORATE GREED,THE FDA needs to do its Job and Protect us from these ” Medications: take their hands out of these Big Pharma’s Pockets and PROTECT US! Thank you and may you all have the Healthiest days ahead that are possible. We all NEED TO STAND TOGETHER AND GET THIS POISON OFF OF THE MARKET, It should be used ONLY TO SAVE A LIFE,NOT TAKE LIVES. I pray every night that Not one Other Person is Ever given any of these Poisonous Medications, especially Now that most of the side effects have become PUBLIC, There is absolutely no amount of money in the World that can replace My Health, yes it can pay for Therapies and things that may help REVERSE these horrific side effects, but these should be paid for either way, MY HEALTH WAS THE MOST IMPORTNAT THING TO ME,ESPECIALLY AFTER WORKING SO HARD TO GET INTO THE BEST POSSIBLE PHYSICAL MENTAL AND GENERAL SHAPE IN MY ENTIRE ADULT LIFE<AGE FORTY SIX I WAS SO HEALTHY& HAPPY LOVING LIFE TO ITS FULLEST,YES I HAD A KNEE & BACK PROBLEM,I SUFFERED FROM PTSD AT TIMES BUT NOTHING WAS GOING TO PREPARE ME FOR THE HORRORS THAT AWAITED ME. Nine years 03/19/2016 will mark the First day that I ingested that first 750mg Levequin pill. There would be five more times taking Levequin, some 500mg most 750mg,the oddest thing thinking back is I do not think it cured my Sinus Infection. Now that's a real kick in the teeth, Health to you all, Mega Doses of magnesium it has been helping me, and that in itself is a true gift, Bath in Epsom salts, you will get the magnesium in your body through your skin, Trans dermal. If nothing else a nice warm bath heals the mind body and soul, along with the Magnesium from the Epsom salts its a win win. We have been FLOXED but I will not give up ever, I just hope my body can take these next few months of detoxing these poisons from my system, if I get through that, I can get through any surgeries needed to be able to perhaps walk, swim exercise again, I only want to be as I was before they Poisoned me, I do not think that is to much to ask for. I am hoping to be able to get into Court in front of a Judge and Jury Trial of my Peers, normal everyday people like ourselves who can appreciate not being able to work, walk or have any quality of life, all because of Corporate Greed, the thing that REALLY got my ears steaming was reading on Janssen Pharmaceuticals Web site," The Most Important Thing To Them Are Their Stock Holders" I wonder how many of their Stock Holders have been " FLOXED" Health & Healing to all, thank you for allowing me to rant and rave and get this off of my mind and out into the World.

      • Lucy Sky January 10, 2016 at 6:43 pm Reply

        Dear Lisa

        If you need any statements from me in a similar vein to what you have written please do not hesitate to let me know. I am in the UK but echo every single solitary word you have so eloquently written. I would like to see these pharmaceutical ‘people’ put away for a very long time.

        I would like to see each and everyone of these morons have all their assets stripped, be publicly shamed and stand trial with full global publicity 24/7.

        My health is wrecked as well as that of my family.

        These pharmaceutical ‘people’ are destroyers of lives. IMO like Jason says NO drug is safe. All are toxic. ALL.

        Sorry for the rant but I am in a lot of pain emotional and physical thanks to these ‘caring’ people.

        Like yourself I did not even have an infection.

        Lucy

  17. F December 31, 2015 at 7:44 pm Reply

    Has anyone had this. I am 8 months out from Cipro and have PN, probably small fiber neuropathy(SFN) according to my neurologist, with pain and tingling in my feet. Also hair loss in my feet and ankles. Now I find that all my body hair, I am male, is growing in bizzare scraggly patterns and some in new places. WTF? Does this mean I have nerve damage everywhere under my skin effecting my hair growth. Scared that this means my neuropathy has spread and I am going to get pain everywhere. Anybody heard of this and has anyone recovered? I am just not prepared to live with bodywide neuropathic pain for the rest of my life. No sir! Cause there are a lot of folks out there that got SFN from Cipro,that live, or shall I say, exist, in that state. If that is my future, I would rather put a bullet in my head right now. This is all just too much!

    • F December 31, 2015 at 7:58 pm Reply

      Despite my personal horror, I would wish all of us a healing New Year!!!

      • Linda December 31, 2015 at 8:08 pm Reply

        F—I had hair issues, the opposite actually where it came out in handfulls. Not sure either has any relevance to PN. I believe it is just damage done on the cellular level.

      • SM January 1, 2016 at 12:13 am Reply

        F-I have said this many times before, but based on reading many floxie stories I would be careful about saying that you have SFN. Many floxies have symptoms of PN or SFN, but many do not test “positive” for nerve damage even with skin punch biopsies. It is very possible that you have nerve disruptions but no actual damage. Even if you do, it doesn’t mean you won’t heal. Don’t put too much faith into a neuro. And don’t get caught up in labels- they can be more harmful than good sometimes.

        • Deborah January 1, 2016 at 8:54 am

          One Neurologist told me I had Meralgia Paresthetica after testing, however, internist diag first as Peripheral Neuropathy. Second Neuro doc did not really say which he thought. Also, other docs here will not acknowledge the levofloxacin caused my Cdiff, PN issues, Fibro & Osteoarthritis. Prior to being given toxic med only had hbp. Really wonder if anyone has gone after practice who prescribed, and if so, what’s the window timewise???Personally, I would like to be able to try cannabis oil on my thigh to see if could obtain relief from extreme pain, burning & numbness!!

        • F January 1, 2016 at 7:00 pm

          Thanks SM, It is hard to do. As I said there is a SFN facebook page with many fluoroquinolone victims that have SFN that appears to be permanent. I would sure love to read accounts, other than the ones on this site, that have recovered from this. I can’t find them. Maybe I am not looking in the right place. I thank you for taking the time to respond. I am trying to hang on to hope. I am on all the usual supplements, I have tried IV therapy. I spent a month going to a Hyperbaric Chamber and yet things seem to be progressing. I have heard of some who have recovered after a couple of years. I am troubled by the accounts and descriptions of PN in the recovery stories on this site as they are sometimes vague and don’t resemble what I am experiencing.

    • Stephanie December 31, 2015 at 8:15 pm Reply

      F,
      You don’t want to go down that road!!! I say ask you Neurologist. Also know that neurologists are apt to tell you that you cannot be cured from neuropathy. My ND has not given up on me I have lost hair on my head only. It could just be a hormone thing. Please get to a counselor ASAP. You need to stay positive you’re not only please. Promise if you start to feel down you will call a suicide hotline. Or you will post a message here. please don’t go down that road!!! You will heal read the stories of recovery on this site that Lisa has posted. I know this process blows. I am 11ish months out now. I’m on the bad end. I know it’s not a quick road to recovery but the light to recovery is there. I know it’s scary and painful. I know it hurts. Just know you’re not alone please just try to focus on today if that’s too much focus on just for one hour. You will heal. Are you getting IV therapy? Are you going to Reiki Healing. I do both they both help. Are you taking supplements please stay positive. Please don’t give up!!!! I’m watching my hair fall out I know it’s hard but you will heal.

    • Jason December 31, 2015 at 11:57 pm Reply

      Yes as Stephanie says, I would be VERY careful listening to a Neurologist, they are experts BUT Western Medicine trained experts.

      Also as Steph mentions, I too think this is probably more related to Hormones, and if you have not already you should consider getting a full Hormone panel done

  18. Linda December 31, 2015 at 8:13 pm Reply

    Ok, well my last advocacy for 2015. I just saw a piece on NBC evening news about a medical devise that has caused death. Horrible, yes, but really pales in comparison to the deaths caused by the fluoroquinolones. So I wrote to the news person who reported it (Kate Snow) and the one who actually did the piece (Stephanie Gosk) and also sent a message to senator Grassley, who was interviewed for the piece and who said “the FDA’s only responsibility is the protection of us.” or something to that effect and commented how they had failed in this regard. Apparently the FDA did not respond to requests regarding the story (surprise surprise) they are so freaking arrogant and so removed from the rest of us. Anyhow, if anyone else want to also talk about the horrors of flq toxicity and how they should do a news piece on it, both correspondents can be messaged via facebook, and Senator Grassley’s site allows messages from all states. So, have it…Steph??? anyone? Happy New Year everyone, and let us ALL have a healthier 2016!!!!!

    • Stephanie December 31, 2015 at 8:25 pm Reply

      Ahhh Linda how you know to mention my name. I will send them my story and wish them a happy new year😜. I will also add how I have videos and will be happy to show them my cane and they can watch some of my episodes and tell me that the bs FDA is there to protect us. If so, then they owe us for sleeping on the job. I am so sick of watching commercials listing out side effects did you know a member of the cdc came out admiring that gardacil that was injected into many young women doesn’t even stop HPV. I have no words for my disgust with the FDA. My wish for the new year is to be able to sit in a court room and tell everyone what they did to us all. Of course I will try to not spit in their faces Hahahaha

      • F December 31, 2015 at 8:50 pm Reply

        Thank you Stephanie! Fact is I think I am too much of a coward to actually off myself but man, how much can we endure. Linda and Stephanie, Do you remember the Bruce Cockburn song, “If I had a rocket launcher!” ..say no more!

        • Stephanie December 31, 2015 at 9:04 pm

          Lol haven’t heard that song I will have to look it up.😜 We are here to support each other and make sure that we all are okay. I know it blows, we just have to stay strong. These people that did this to us want us to give up and go away. May 2016 be the year we all heal!!! Happy New Years.

  19. Ann January 1, 2016 at 11:22 am Reply

    Has anybody in here vision problems, and ear problems after taking antibiotics? My vision is blurred, and I cant even look at television. My head feels like its gonna explode. And i cant take in what im seeing, and my balance is way off and dizzie all day. In my ears, i have pressure, and every sound i hear, i cant stand. Its like an echo. Has anybody experienced this? Sorry for my bad english, im from sweden. 8 weeks since i took antibiotics, and I feel worse now, than in the beginning, is it normal?

    • Stephanie January 1, 2016 at 11:58 am Reply

      Your English is wonderful Ann. I have had similar issues with stimulation tv, not being able to process. My eyes will spasm and roll into the back of my head. My suggestion is to get to a naturopath ASAP. Get them to put you on IV treatments and stop taking the antibiotics. What antibiotics were you given? About the tv stuff when I feel this way I lay down in a dark room no sound meditate and try to relax. Meditation allows you to create beta waves in your brain that promotes healing that’s what my ND told me.

      • Ann January 1, 2016 at 1:15 pm Reply

        Tanks stephanie for responding. thanks im trying with my english, but i think you understand. What is IV treatment? I dont know if we have it here in sweden. Im going to The eye doctor, waiting for a time. Did your eyes become better, or is it like it was in the beginning? How long have you had this with your eyes? I took flagyl antibiotics, 8 weeks ago, but stopped after 6 dags, endeed up in Er. and my vision is still bad. And my ears to. I also gets spasm in my eyes, like you. So scared it Will be permanent. So depressed. Have many more side effects, like burning feets and hands, fatigue, brainfog, insomnia,muscle spasm, depression, neuropathy, panic attacks and my stomach is a mess. Dont now what to do anymore.

        • Stephanie January 1, 2016 at 2:44 pm

          Hi Ann,
          IV treatments they can give you nutrients in an IV that can help your body heal. I get gluthione magnesium, Myers and some others I can’t remember right now. But others can chime in to help you. My eye stuff is in and off. But get yourself to naturopath they will be able to give you stuff to start healing. Look for one that does IV treatments.

        • Debs January 3, 2016 at 4:17 am

          Hi Ann,

          I have done a lot of research on many drugs over a long period of time & when it comes to antibiotics FQs are not the only dodgy ones out there although they do tend to be quite a different animal, & in a class of their own when it comes to damage. However as I mentioned there are other antibiotics out there which can also cause serious issues & which also carry a more serious toxic profile. Along with Macrobid Bactrim & a few others Flagyl is also one of these dodgy ones, & is on my personal do not touch list.
          There is of course a possibility that you may have been given fluoroquinolone in the past or you may instead have had an ADR to the Flagyl. or even be suffering from ADRs to both. When considering the Flagyl alone There is a recognised condition known as Metronidazole ( Flagyl ) central nervous system toxicity. Any chance you can get hold of your medical records to find out if you have been prescribed a FQ in the past at all ?
          Just to let you know, An awful disgusting taste in the mouth is actually a very well known ADR to this antibiotic, this happens to many people who take Flagyl

      • Ann January 2, 2016 at 1:33 am Reply

        Hi Again stephanie
        I looked up what we have here in sweden, and we dont have any IV treatments. Wish i lived where you live. Does The IV make you better? Do you see changes?
        This neuropathy also is awful. Burning everywhere, tinggling and numbness. Its Hard to stand up, but im trying every day. And The balance is way off. Im so scared it Will Come up more and more things to deal with. And The insomnia and panicattacks and The depression, did or do you have it like this to? my feets are read and i cant sweat anymore. And my skin has become yellow.

        • Bob January 2, 2016 at 9:47 am

          Ann, You need to seek medical attention soon. Yellowy skin is a sign of toxins building up because your liver can’t handle the load. start taking mil thistle immediately and get to a liver specialist.

        • Stephanie January 2, 2016 at 10:03 am

          You need to get to a doctor ASAP. I’m so sorry that you don’t have access to IVs they help me a lot but listen to what Bob said please go to a doctor tell them you are alliergic to Levaquin Cipro and Flagyl and steriods. That way you will not be given any additional drugs that will make you worse. Most doctors will not know that and telling them you are alliergic is the easiest way to prevent you from having them give it to you. Please get to a doctor about the things Bob pointed out. Also to help please use this link for a reiki healer. http://www.reikimembership.com/MembershipListing.aspx
          Reiki is great to use with naturopath and I have had amazing results from it. Also if anyone wants to try it and lives in so cal or Washington I can let you know who to go to. They are reiki masters and are amazing!!!!!

        • Ann January 2, 2016 at 10:52 am

          Hi bob
          Now im more afraid. But my ordinary doctor said last week that my liver was fine. But it was ordinary samples. I will look for thistle, and will go back to my doctor. But they dont belive me when im saying that this antibiotics Did this to me. Their looking at me like im crazy.

        • Stephanie January 2, 2016 at 11:16 am

          http://www.integrativecare.se/en/about-us
          Maybe these doctors can help you they are in Sweden. 😜

        • Bob January 2, 2016 at 11:57 am

          Ann, Don’t be afraid. If the doctor said your liver tests were OK then it is not in the dangerous level. Those tests are not good at picking up problems until they are really bad. How about your kidney tests. You definitely need a detox with the yellowing skin and the bad taste in your mouth. I’m experiencing the bad taste in my mouth right now from detoxing too quickly. There must be a naturopath or functional medicine doctor somewhere near you. You need to find someone that knows how to detox slowly. if you can’t find someone you may want to contact Linda Freud on The Healing Gift website. She is an expert in detox. She is in the US but can work remotely. Find some bath clay and put it in your bath with the epsom salts. There are lots of detox programs but you need to do it slowly enough that you don’t mobilize a lot of toxins too fast. Drink lots of water and visualize your recovery. Mediate so you broadcast the frequency of peace instead of fear. Fear will bring you more trouble.

        • Ann January 2, 2016 at 11:15 am

          Stephanie
          Yes i Will go to The doctor Again. But last week they said my liver was fine. I dont know why my skin becomes yellow, around my eyes and feet. Thought that it could be because i can not sweat like i used to, before taking flagyl.
          Yes im so sad that we dont have IV treatments here. I have been reading alot, and many seems to get better. Maybe i have to visit Usa.
          I Will till The doctor that i can not take flagyl, cipro, steroids and many more. I think i Will never take an antibiotics again.
          Thanks for The link about The healer, Will look that up. I found an naturopath here now, so i Will give him a call on monday. They dont do ivs here, but maybe he can help me some how. Im doing a brain scan on tuesday to.
          Thanks for answering me and give me advise, it means alot. Here in sweden. They dont even now what floxing are. And The doctors dont belive me, when im saying, that flagyl, did this to me, i was fine before. I never had neuropathy signs before, and other side effects.
          Stephanie, good to here that The ivs treatments have helped you. Can i ask you, in what ways have you become better from The ivs? Maybe i have to go to another country to get that.

        • Stephanie January 2, 2016 at 11:30 am

          Maybe they do it in Denmark. I can ask my girlfriend who lives in Denmark if they do IV treatment. Its helped me a lot. Helped me in so many ways. Stopped my feet and hands from burning for about two hours helps with brain fog I have normal voice for a bit and stops pain in my neck for a bit.

        • Bob January 2, 2016 at 12:11 pm

          Ann, you definitely need a gut expert from the sound of your symptoms. When your microbiome is messed up from antibitotics it screws up everything else. If your are able to travel the German doctors are great. The thing about IV’s is that they bypass the gut and go directlly to the blood but the effect doesn’t last that long. that is why you need to get your gut back in order. Bone broth and fermented foods would be good to start.

        • Ann January 2, 2016 at 12:55 pm

          Stephanie, that link. It seems that it is a science center, and do not help People in that way. My sweden is way back from this IV treatments.
          Yes that would be very Nice if you could ask your friend in denmark, if they do ivs. So glad if you could help me. Also glad that i found this website. I thought i was alone with this nasty side effects. But its so sad People are hurting from this awful antibiotics.
          Thanks Again stephanie with all your help 🙂

        • Ann January 2, 2016 at 1:18 pm

          Bob
          The fear is The hardest thing right now. Im so afraid of all this. I have so much side effects to deal with my stomach, insomnia, panicattacks from no where, depression, burning skin all over, tinggling and numbness, fatigue, cant hardly stand some days, shaking in my arms and legs very bad, blurry vision, off balance, my ears sounds like an echo, food taste weird and many more things. As you said, my gut have to heal, have lost a lot of weight. Try to eat, but so nausea. Taking an probiotics now, dont no if it helps. Im going to contact a naturopath here where i live. I saw that he was good on The stomach issue. I hope he can help me.
          Ok, by detoxing, you mean to eat right and take supplements and so on? I have made some bone broth, and have been eating it. Today i did a soup with lots of vegetables. But my stomach is a mess. Maybe thats why i can taste this metallic taste. How long have you been detoxing Bob?
          I Will also have accupuncture, most to The mentally things, i havent slept a night since this happened, and crying all The time. This is not me. But im trying every day to stand up, take a little walk, and trying to eat. But some days are hard. I Will try meditation, so my body can calm down. Sorry for my bad english, im from sweden.

    • Linda January 1, 2016 at 12:05 pm Reply

      Ann I have vision problems. In the first month after it was horrible. Very blurry, to where I couldn’t see the tv just 5 ft away. Also ENORMOUS floater covering vision in one eye. The blurriness has gotten better, just intermittment, but the ginormous floater is there almost all the time. It is thought that it damages the vitreous just as it damages collagen. i went to eye doctor and there was vitreous detachment. He tried to tell me it was a normal part of aging, which it may be, but not so drastically literally overnight. I also still light sensitivity, especially outside, or in stores with flouorescent lighting. Pisses me off so much after a lifetime of taking such great care of my eyes. I also experience sound problems with sharp sudden noises, like a child’s scream in a store, or a metal door. I experienced horrific olfactory changes to where all scents were unbearable and choked me. This stuff messes with your nerves so much and that is what affects the hearing and smell. As for the eyes, while the floaters are from vitreous pulling away I suspect the blurriness is another nerve issue. (and I wouldn’t have guessed English was not your first language!)

      • Ann January 1, 2016 at 1:47 pm Reply

        Thanks Linda for responding, i do appreciate That. So you have become a little better in your eyes? But not The floaters. I also have floaters, but have been a little better with The floaters, The past week. But blurry vision is still really bad. Cant this heal? Or is this something That Will be permanent? Im also very sensitive to light. To be in a store is awful, my eyes cant not take it. And to go outside, when The sun is shinning is awful to. How long have you had this vision problem? Ok, so The eye doctor told you that you had vitreous detachment, that sounds bad. Or is it? Did The doctor do anything about it? Or does it heal by itself?
        Ok, so you also experience The ear problems? So sorry. Its also awful. I cant talk to People, their voices echos in my head. And every sound are so high in my head. I just Wonder if this can heal, or if its something i have to live with. Do you take any supplements for your ears and eyes? How long have you had this vision and ear problems? and for my english, thanks, but in school i didnt do so great in english. But i do belive that you Will understand most of it. Greetings Ann

        • Linda January 1, 2016 at 3:06 pm

          Ok Ann, first I did a little digging and you may have a hard time finding a naturopath in Sweden. I thought I found one, but turns out he is FROM Sweden but now here in the US. However I am going to include his link on the off chance he might be able to direct you to someone in Sweden. http://www.thekarlfeldtcenter.com/ As for the vision thing, floaters are supposedly forever, but I think the blurred vision has a good chance of going away. Mine is much improved. I am 10 months out from taking Cipro. It was so blurry at one point, I couldnt clearly see anything a few feet away. Now it is off and on and not as bad—my big problem now is the major floater. For eyes, I had been taking something an eye doctor recommended called Preservision Areds 2. But I have since found something called Bluebonnet eye antioxidant which contains everything the Preservison has, but also has other nutrients that are supposed to be protective of eyes like Ginko, NAC, bilberry and more. Like Steph, I also got IVs–glutathione, high dose vitaman C, Myers and especially something called Phosphatidylcholine that is supposed to especially help nerve damage. While you could take this or Vitamin C orally, there is no way you could take the therapeutic amount give in an IV. EG a high dose vitamin C IV might have 50,000 mg, where no way you could do that with supplements.

          As for the auditory problem, that has lessened. I still notice it on ocassion but not nearly as bad as it was. And the olfactory was replaced by phantom smells which are disgusting, but that is not all the time. I think your eye and ear problems will eventually go away. Meanwhile, try to eat clean, avoid GMOS, gluten, nonorganic etc. I know you didn’t take a fluoroquinolone but I would still make sure you are getting enough magnesium. Also, if you have to luck with getting info on a naturopath, perhaps you can try to find a functional medicine or integrative doctor. They are more open to nontraditional treatments.

        • Carla January 5, 2016 at 9:32 am

          For me, adding lutein and other eye vitamins (beta carotene, etc.) to my daily regimen eliminated floaters and when I got my eyes checked at 70, for the first time in 30 years, my vision was no worse than in my teens. The eye doctor said, just keep taking those vitamins.

      • Ann January 1, 2016 at 2:07 pm Reply

        linda forgot to wrote. Im also sensitive to scents. I found out The Hard way when i was cleaning my bathroom, i almost suffocated.

        • Linda January 1, 2016 at 3:10 pm

          Mine was so horrific there is no way I could have lived with it if it had continued. It was for a couple months. If someone came over with even sun lotion or hand lotion on, I would burst into tears and feel like I was choking. I couldn’t go outside becaue the scent of flowers asphyxiated me. Then, my landlord was cleaning up after working in the bathroom and he used bleach. I had to sit outside for several hours while they ray fans trying to air it out of the window. Even diluted dish soap (diluted 50% with water) would choke me—just a couple drops. I couldn’t explain to anyone how horrible it was. I am about 90% better in that regard, but as I mentioned, I now get a phantom cigarette smoke smell. It’s gross. It has come and gone more than a dozen times now. I thought it was strange but apparently that smell is not unusual with nerve damage.

        • Lucy Sky January 1, 2016 at 8:05 pm

          All this happened to me too. I ever use spray polishes etc. I use good old fashioned bicarbonate of soda as a cleaner.
          I only use certain brand of washing up liquid, soap powder and never ever use fabric conditioner.
          I also can only use certain hypo allergenic deodorant roll ons and one talcum powder in minute quantities.

          I cannot stand the smell of fried oniois as they cause severe choking sensations and coughing spells.
          Day after eating Jamie Olivers wild sage red sweet onion and chestnut stuffing.

          I had severe burning in my throat, bronchospasms, cough, breathlessness and was coughing up bits of green, sage, for over two days.

          I have a fridge full of Christmas food that I dare not eat and have to stick to bland soft foods. All thanks to cipro.

          I feel breathless EACH MORNING AFTER GETTING UP.

          I am sorry that I ever took any antibiotics and wish that those responsible end up in prison for a long long time..

          I read yesterday that dry eyes and dry mouth can also be a sign of sjorgrens syndrome.

          Got a nasty ;letter from the surgery on Christmas eve for daring to request a drs visit for a chest and throat infection plus severe backache that travelling to the surgery impossible.
          The timing of the letter shows just how malicious and vindictive these drs really are when confronted with someone who they so negligently floxed.

        • Lucy Sky January 2, 2016 at 5:21 am

          Does anyone know why ? All these things happened and are still happening to me. The question is WHY?

        • Jason January 2, 2016 at 4:57 pm

          Hi Lucy. My guess is you have a VERY Leaky Gut, this causes tons of problems

          I posted a TON of information on the GUT here on one of the old pages:

          https://floxiehope.com/comment-page-43/#comments

          Starting at my comment on November 29, 2015 at 9:24 pm about 20% down the page, and then for pretty much the entire rest of the page I posted a ton of info on why the GUT is so important to a Floxie, and why I think it is preventing many people from healing faster and what can be done about it. Also on that page is how to generally heal from Candida, Leaky Gut, and more, links to more information, diet information, recipes, much more.

        • Jason January 2, 2016 at 5:00 pm

          I should note that is not the only reason, much is this is ongoing for you, but it might be one of the bigger reasons and why I am mentioning it, Leaky Gut is behind many Autoimmune Diseases as you will see on page 43 where I detailed this, and it sounds like you could have more than one, not to mention all the other problems it causes, which are extremely numerous, and which many Floxed people all end up with

      • Lucy Sky January 1, 2016 at 4:26 pm Reply

        Linda
        I also started with heavy cold legs plus blurred vision, floaters and a throbbing pain in the right eye plus sensitivity to light. I went to an eye hospital where they diagnosed a posterior vitreous detachment. Dr eye, concretions. I was prescribed lacri lube at night only then later artificial tear drops which I could not tolerate. The hospital did ultra sound scans and retinal photography as had to rule out a retinal detachment.
        I was also checked out for an auto immune eye disease. The anas were positive being 1 in 80 and the EBV was also positive.

        I was told to go back should I get any more floaters.

        This I do .

        It was not until many months later that the connection between the cipro and the onset of the signs and symptoms was made.

        I have to be hopeful that things will improve.

        • Lucy Sky January 1, 2016 at 8:08 pm

          WHOOPS typos..
          Meant to write that on Christmas day after eating Jamie Olivers wild sage, red sweet onion stuffing I developed bronchospasms etc, etc.

      • Ann January 2, 2016 at 2:09 am Reply

        Linda thanks for digging, i Will look at The link you send to me. I also looked on The computer after an naturopath. I found 2, in the city i live. But IV treatments, we dont seem to have here in sweden. Wish i lived where you live, so i also could get it. Has The IV treatments worked for you? Are you getting better from The IV?
        Yes im trying to eat healthy. My stomach can hardly eat anything. I have lost a lot of weight. I only eat organic food now, and a lots of fruits and berries. Taking magnesium, zinc, probiotics and vitamin d. But its all in small doses, my stomach cant take more.
        I Will ask The eye doctor when im going to him, if there are something i could take for my eyes. My eyes are also very dry.
        Oohh, The smells you discribe, horrible. I hope it Will not be worse, because i can hardly deal with it now. And i also have a metallic taste in my mouth, did you have that? Some foods taste very strange. And i also got a furry tongue from this antibiotics . I have never experienced all of this pain with an antibiotics before.
        Glad that your blurry vision is getting better, i hope that it Will for me to. And even The ear problems.
        But i have so many side effects to deal with.
        I Will try accupuncture, to see if its working for me to relax, because all of this is very scary, and im so depressed.crying all The time.Before i was very happy person, its like i have died.

        • Linda January 2, 2016 at 1:47 pm

          I echo everything bob said. Yes, the IVs were the first time I saw any improvement. One of the first things to go was horrific, deep-in-the-bone pain. Also the numbness in my fingers got better fairly quickly (not my toes though.) It also helped with the breathing issues, which I still deal with—but when I went in I was just barely clinging on to life, gasping for each breath. I too lost a lot of weight—32 lbs in two months. I was very fragile, since I wasn’t really overweight to begin with. I am ten month out and still have gut/GI issues but much much better from where I was. At first, because of the breathing issues (hard to breathe much less chew) I lived on smoothies for a couple months–spinach or kale, banana, berries and organic protein powder, almond milk. My eyes were also very dry, in addition to blurriness and HUGE floaters. They still get dry on and off but it is not constant like before.

          I didn’t get metallic taste but yes a couple different weird tastes. First, for several months I had what was almost like a baking soda taste I couldn’t get rid of. That was followed by something else which I can’t recall now.

          Sadly, you are not alone in how you feel. I felt like I was dying for months (and wanted to for a couple of them.) I had over 30 side effects, any one of which would make a person frustrated and angry. Then on top of all the side effects I felt like when I had double pneumonia.

          I had over 50 IVs and had to stop. Almost out of money. I am getting acupunture 1-2x a week, and have a wonderful person who is trying to acomodate me financially. He also does chinese herbs. Both have helped with various issues.

          I have cried at least once, more like 3-4x day every day for the last ten months. I have cried myself through every grocery store, drug store, retail shop, you can think of. Part of it is the sadness, but more than that it is automatic. I don’t have to be doing anything and tears just break out. I think it has to do with the damage to the gaba receptors that Lisa talked about. They modulate fear and anxiety and I guess mine are broken. I am guesssing that is the source of your panic attacks as well.

          I don’t know if flagyl has fluoride, and you may be one of the lucky ones as far as not fluoridating water, but I would avoid fluoride in any event as well. Glad you found us and hang in there.

        • Jason January 2, 2016 at 3:24 pm

          Hi Ann. So sorry this has happened to you. I think what has happened is you were given Fluoroquinolone Antibiotics in the past, and the Flagyl has now set them off causing you to be “Floxed”, because Flagyl typically does not do this to people. It does not matter too much the “why”, because the suggestions to heal are the same, but I let you know this for your own info, and to alert others what can happen when you take drugs in the future.

          You have received a lot of good advice already, it definitely sounds like you could have Liver issues (yellow skin, drugs damage Liver, etc) so the initial tests the Doctor did were probably not enough to catch them, AND these kinds of tests they are not comprehensive either, they do not look for all problems that the Liver can have. As suggested I would look further into this, an Ultrasound can be ordered by Doctor, more specific tests, a Specialist, and the Naturopath you found might have more ideas. Generally you will need to avoid ANY more toxins of any kind, especially DRUGS of ANY kind, these are some of the worst toxins, drinking water is of utmost importance it needs to be Reverse Osmosis and remineralized preferably to be the safest cleanest source of healthy water 2 litres per day minimum, and food needs to be organic, otherwise can contain Hormones, Antibiotics, Steroids, and many other toxins.

          Your GUT is probably your top priority along with Liver, it sounds like you have a Candida overgrowth issue (Furry Tongue, Nausea, weight loss, Leaky Gut symptoms, gut issues cause many of the other symptoms you are having, etc) this is extremely common, do not be scared you can recover from this but it will take some work and tough diet choices, and some supplements.

          I posted a TON of information on the GUT here on one of the old pages:

          https://floxiehope.com/comment-page-43/#comments

          Starting at my comment on November 29, 2015 at 9:24 pm about 20% down the page, and then for pretty much the entire rest of the page I posted a ton of info on why the GUT is so important to a Floxie, and why I think it is preventing many people from healing faster and what can be done about it. Also on that page is how to generally heal from Candida, Leaky Gut, and more, links to more information, diet information, recipes, much more.

          Also I suggest go back even further in these pages (even this page has a bunch of info, don’t forget to take lots of Magnesium, as long as Kidney tests okay, it can be hard on Kidneys) and do a bunch of reading, there has been a lot of information shared (I’ve posted detailed info on detox in past, etc tons of info in past pages) and advice given for many things in the past, and you can read some of the stories on this website for more ideas and especially for hope of healing, of which there is a lot of. Most people heal Ann so please do not worry, just make sure you do a lot of reading, and then do what you can to help yourself heal, that is all a person can do, and worrying can make things worse unfortunately.

        • Jason January 2, 2016 at 3:33 pm

          Here is a list of Doctors trained in Functional Medicine in Sweden:

          https://www.functionalmedicine.org/practitioner_search.aspx?id=117#results

          AFMCP UK 2012 APR Carl Antonson, MD Malmo

          AFMCP UK 2011 OCT Maria Berglund Rantén, BSc+46764239820 Stockholm

          AFMCP 2011 SEP Cecilia Furst, MD 46707822800 Loderup

          AFMCP 2015 MAR Peter Martin, MD, PhD +46317112700 Gothenburg

          AFMCP UK 2012 APR Frida Thorsen, MD 46 40 607 21 00 Malmo

          AFMCP 2000 FEB Peter Wilhelmsson, ND 46-23-70-5250 Falun

          ———

          Maria Berglund Rantén, BSc states she is knowledgeable in Autoimmune Disease and Detox, both of these are important for you. Peter Wilhelmsson is a Naturopath Doctor, so an expert in healing Naturally. Not sure where you live, but if I was you I would try to see BOTH these people if possible, for different perspectives.

          Functional M.D. Doctors are “regular” Doctors, however they have been trained in how to look for “root causes” of the most common problems, and this is something where ALL other regular MD Doctors fail miserably.

        • Jason January 2, 2016 at 3:41 pm

          https://floxiehope.com/2015/10/12/im-floxed-now-what/

          There is some more general advice here, note I have posted around 15 comments below the article with more general advice every Floxie should consider, and links to more info, like the link to the Anxiety article in my post December 6, 2015 at 9:57 pm, that one has about 50 comments below I have posted, and the last two comments on that Anxiety page also have info on Insomnia.

        • Ann January 3, 2016 at 1:57 am

          Linda
          Ok, so The ivs did help. I wish i could do that to.
          The breathing issue, that i have to, not as bad as you, but some days its very Hard to breath, almost like i have a cold in my lungs. Some days i get a weird cough to.
          So sorry you also have this terrible gut issue, but you have improved, when did you see some changes? Mine is bad 8 1/2 weeks out. Im over weight, so i have a little to get from, but its not good to loose weight like this. Have lost 12 kilos ( dont know what it is in ibs) but this i have lost for The last sex weeks, and its getting more bad every day.I forse my self to eat. Do You take any probiotics today?
          Did you also have insomnia? Tonight i didnt slept at all. Thinking of sleeping pills, took that in the beginning, only to get 2-3 hours per night. But i know pills are not good right know, but i need some sleep soon.
          The break outs with crying i have to. Yesterday i where in a store to get some vitamins, and I was so overvelmed by The lights and The sounds, and just cried. Some days i cry, and wish i was dead instead of this heel. How do you feel today, 10 mounths out? Are you stronger mentally?
          Im also going to a chinese accupuncture, she also do The herbs. What have helped you with The herbs? Oohh sorry, i have so many questions.
          I dont now if flagyl has flouride, i dont think so, but its seems to have The side effects like The antibiotics you did take.
          I was thinking of The water. I dont now where to get water with no flouride in it. We have small amount of flouride in our water. I did looked it up on internet, but any water here, that you can by seems to have flouride in it. So i dont know what to do there. Im trying to hang in there, but its Hard, some days horder than others. Thanks for your support.

        • Linda January 3, 2016 at 11:51 am

          I started seeing some improvement gut wise about 4 months into it. I still have some problems but not nearly as bad as the beginning. Yes, I still take probiotics and will continue to do so. I too had to force myself to eat, and was able to gain back about half the weight I lost, but it took months.
          Yes, insomnia was hideous. At the beginning there was a two week period where I literally did not sleep at all. Although I wouldn’t necessarily recommend it, I did take sleeping pills (zolpdem the generic of ambien) thinking like you do that you HAVE to sleep to heal. My situation was a bit different in that I was literally gasping for each breath. Even with the sleeping pills I was luck to get one hour sleep for a while, then somewhere between 3 and 5. As the breathing got a bit better, I started to wean myself off the pills and have been off them now for 4 or 5 months. I still get insomnia (like last night!) but it is usually just once a week, sometimes twice.
          Speaking of crying, I cry pretty much anytime I am out…still cry at home too, although that has lessened a bit. Sometimes it is because I am sad/depressed/angry but other times, especially when I am out, it is automatic. Just happens. I attempted my first social gathering new years eve at friend’s party. I cried 8 times and left at ten o’clock. (figured I had spread enough joy.) Yes, the stores are overwhelming with me too, especially the lights and in the beginning the smells would force me to leave. Sounds are bad with things like a baby crying or a child screaming—anything shrill just cuts through me like a knife. And yes, though they are fewer now, I do sometimes feel like I wish I was dead instead. (Before that wish was 24/7 for months.) Today I am mentally stronger, but I do have those moments. The most difficult things to deal with are the continued breathing problems, where I just kind of have to gasp for a deep breath sometimes, and the anxiety and the vision in my right eye especially, where it feels like I am looking through gauze. But again, compared to where I was it is quite different.
          As for the Chinese herbs I am afraid I don’t know what he gives me. First I had terrible pressure to where I thought I ahd another UTI, but a test confirmed I did not, so he gave me something for that and it went away (also with acupuncture.) Since then he has had me on a tonic that is supposed to improve overall health but I am not sure what was in it. He also gave me something that helped a bit with the overproduction of phlegm that has been there since this happened.
          Don’t worry about the questions! Ask away. If I don’t answer it means I didn’t see the post. I always respond to ones where I get an email notification but apparently those don’t go on forever.
          As for the water, you should be able to get at least bottled spring water at the store, no? Spring water does have naturally occurring fluoride but usually much less than municipal water if it has been added. Do they add to your water? There is also something called reverse osmoses hich take everything out so you need to put back the good minerals. You might look to see if you have a water store nearby, or at least a store that dispenses that kind of water. Ask your acupuncturist about that. Hang in there, we will all get through this.

        • Ann January 3, 2016 at 2:54 am

          Hi Jason
          thanks for responding 🙂
          I have been on forums, i have talked to People as i, Who have been Hurt by flagyl like i do. But maybe you are right. 5 years ago i took a antibiotics to, and when i look back, i have had issues with my healt, but not like this. Dont remember what The antibiotics where, but maybe a fluoroqinolone. Do really People get better from this? I have read so much horror storries out there on The internet. It feels like i have a brain injury. My head dosent feel right. Hard to describe.
          I Will Phone The naturopath tomorrow.I hope he can help me with my gut and liver.
          I do eat medication for my heart and stomach, i can not quit them. Im thinking of antidepressants, but thats not an good idea then? And sleeping pills, because i can not sleep at all, its like my body can not relax. I Will look into The links you send. So i dont need pills.
          I do eat organic food now, not in the beginning, because i didnt know how to eat. And The water, i drink a lot of it. But here we dont have water without flouride. Can i do something on my own, to get The flouride out from The water?
          I do belive like you said, i have candida, and a leaky gut. I Will read all of The links you sent. But its gonna take a time to get better i think.
          About functional medicine doctor. Thanks for The info. Maria ranten from Stockholm seems to be good. Its not far from where i live. Thanks you so much Jason for your help 🙂

        • Ann January 3, 2016 at 1:19 pm

          Hi Again Linda
          Ok then i Will ask you questions, without thinking that its to much. When this has happened, its Nice to talk to someone Who been through The same thing. Because People around me dont understand. And some think im crazy, and their saying that antibiotics dont do this to People. Before this, i would probably think The same. Only when you go through this, you understand. My boyfriend belive me, and my parents.
          Okay so you also took sleeping pills. I dont want to take them, but tonight i probably Will, because i have only slept 5 hours The last 3 days. thats not good. But i Will not take a whole pill, only 1/4 of an pill. I hope accupuncture Will help me with The sleep.
          You where strong to go to The new years party, even if you cried, they did understand why? . I havent seen friends at all, i have no energy for that. Do you work? The first 5 weeks, i could not work. But now a little. But i work from home alot, because i have no energy. Have a really good manager. But i only work half time, but i dont know if this gonna work with my job.
          The breathing issue seems to be very Hard to deal with. I get that to. But in my case, it seems to be when my stomach hurts, its like i cant breath. I also get that when im trying to sleep sometimes. I also get panicattacks while sleeping. Just from no where my heart is racing so bad, and my body have a lot energy, i cant stay still. I have to move my body The hole time. I think that this causing The insomnia. But i have had problems with my sleep before, but not so bad like this.
          Okay so your gut feels better 4 months out. I hope to see some improvment soon. But i have had stomach issues before, so im prepared that it Will take time.
          About The water, we have it here in the store, but i think we only have with small amount of flouride. I looked on The internet, an our tap water, has pretty much The same amount fluoride as The water in the store. But i Will look on that more. I Will ask The accupuncture to, if she knows.
          I Will ask one more question, do you want to e-mail instead? If you dont want to, i will understand that to. now i Will try to go bed, my head hurts alot, but i hope to have a little sleep tonight. Thanks for listening. 🙂

        • Linda January 3, 2016 at 3:16 pm

          Yeah that is really tough dealing with people who don’t understand. Starting with the doctors!I was told by 11 of 12 doctors that Cipro couldn’t do this. One was aware of some of the side effects but not the vast amount they can cause. It’s hard too for friends. I don’t think anyone who has not been through this could possibly understand. Especially now, when I am looking more like my old self I think it is especially hard for people to understand how much is going on inside, physically and mentally. I’m glad you have the support of your boyfriend and parents. (And yeah, I probably would have been going “no way” if it hadn’t happened to me.)

          Yeah, if you can do the ¼ pill do that. Like I said, I wouldn’t recommend any sleeing pills at all…but I know after weeks of literally not sleeping at all, I wasn’t doing myself any favors. As for acupuncture I know it does help some people sleep. It doesn’t necessarily help me at night, but the hour I am there I almost always fall asleep, which is nice.

          I few people at the party knew why I was crying (heck, most of the time I don’t know!) —the others probably thought I had a break up or I was just crazy! And no, I cannot work at this point. Sadly, when this all began I was just starting to interview for jobs as a paralegal. For the first few months I felt like I had one foot in the grave. I was so ill I was bedridden for a while and then I could only walk with help…too weak. I can go out now and I walk every day, but between the breathing thing, the anxiety and the constant crying, I couldn’t work now. (That would be a great job interview. I would be in tears in the first five minutes—or probably as soon as I passed through the door.) This has devastated me financially.

          As for the stomach issues, I had some problems before but nothing like this. I had cut out gluten before this happened and that alone seemed to be helping. Of course then post- Cipro, my gut was just ravaged. .
          Sure, you can get my email address from Lisa.

        • Ann January 4, 2016 at 2:19 am

          Linda
          I have now contacted lisa to get your e-mail, so we can write more to each other. 🙂
          And if you dont hear from me, then contact lisa about my e-mail adress, but i hope she contact me.

    • Debs January 3, 2016 at 4:25 am Reply

      The site askapatient in fact shows just how nasty Flagyl can be, to react to this particular antibiotic in one way or another is not rare, though they who manufacture these drugs & are in the know of course would like us to think it is.

      http://www.askapatient.com/viewrating.asp?drug=12623&name=FLAGYL

      • Debs January 3, 2016 at 5:14 am Reply

        I am someone who was floxed many times over many many years Ann . If the FQs have been involved in causing your issues I can confirm when it comes to the FQs that the largest proportion of people who are floxed will eventually improve, many substantially & are then able to move on with their lives either feeling recovered, or most commonly in my experience the majority of recovered are those who move on perhaps with a few lingering issues often related to exercise intolerance aches & pains that were not there before that sort of thing, when the experience of floxing can eventually be put down to another awful life experience then be consigned to memory, the word to keep in mind is eventually it can often take a long time to get to that point . one thing I will mention is in order to try to avoid problems, I have found that I need to be VERY careful with any drugs substances etc & I avoid allopathic drugs / toxins as much as humanely possible. I would certainly be wary of taking antidepressants etc going down the psychotropic drug route, there are many other things which can be tried first. I have done a lot of research on them, & also been damaged by them myself , the psychotropic drugs are not what they seem, psychiatry & Big Pharma are tucked up nice & close in bed together, they have a long dark history & your average Dr simply does not have a clue just how dangerous those drugs are.
        Personally I have been floxed 7 times & even after all that, & 12 years of other mitochondrial psychotropic damaging drugs on top of that, I still improved over time, & in some ways substantially.
        If I can do this after all that, I truly believe their is hope for us all .

        • Ann January 3, 2016 at 6:08 am

          Deb
          So you have been floxed 7 Times? How could you go by that? The worse thing right now is The panic all day, and my head pressure, and my balance is way of and my ears have just an echo sound, so scary. Afraid that i have ototoxicity.What have you gone through, with The side effects? I cant read People having this ear pressure and echo sound in the head here. I cant take in what People are saying. Very strange.
          You said that you have been recover alot, what has been better? And what are you struggling with today.I can take tinggling, numbness and so on, but The insomnia, depression, anxiethy, blurry vision, off balance and especially The brain pressure and ears. This things that i can not take.
          I know you are right, but i can not take this feelings anymore. I Will try to Hang in there, without medication. So afraid of The side effects of them to.
          What have you been doing to get better every time you have been floxed? Im just afraid i have permanent damage. Especially in my brain, in my ears and eyes. Regards Ann

        • Debs January 4, 2016 at 5:11 am

          The difference is in the FQs mechanism of action, the way the FQs cause damage Ann, the damage is at at a DNA mitochondrial level & the damage is cumulative. how I go by that means despite being damaged so much I am still on the whole heading in the right direction, with a few blips along the way caused by my reacting to every single allopathic drug I have been prescribed since my most damaging floxing & have no choice but to take which keeps setting me back. I have had a few relapses along the way. An epsom salts bath caused one of them, this relapse lasted 8 months a pacing exercise programme I was put on a long time ago caused a very serious relapse in me , & now I am dealing with the results of using eyedrops for my recently diagnosed glaucoma which have caused symptoms to worsen yet again There is a lot of info in the links on the right of the page on the FQs & how they damage.

          My first floxing in the 1980s I did nothing as regards to treatment as I did not know what had happened but I eventually felt completely recovered over time, only to then get floxed many more times before I eventually realised what was going on via my medical records. I also recovered 80% ( ish ) from another floxing.

          Again after my 7th floxing lot of my symptoms improved substantially the balance co ordination issues have completely gone head pressure is only present with severe FQ induced headaches I get now. The neuropsychiatric issues depression akasthesia type anxiety etc has again completely gone.

          Personally all I have ever done is to clean up my diet. I do not follow any strict dietary or otherwise protocol.
          Floxing is a very bizarre thing, & in regards to treatment what works for one person can often harm another . I do think that a clean diet is imperative .
          I am left presently with various types of pain insomnia tinnitus & various eye issues but most of these have improved to varying degrees having been floxed so much I do unfortunately have some damage which is their for good ( chronic kidney disease ) & also have ongoing specific problems with my cognitve functioning.

          I do not know too much about specific Flagyl damage I will do a bit of research on it for you .

        • Ann January 4, 2016 at 10:06 am

          Debs
          Thanks Again for responding. And as i said to The other, sorry for my english
          I Wonder how flagyl are working, if its also on The dna and so on. I do think its simular to The fq, because i and many more seem to have The same symptoms like The People Who got Hurt from Fq.
          OH what you have been through. I cant even think about it, this is The most awful thing i have experienced. And that you have been through this many Times, poor you.. But you seem to have been healed a couple of Times. How long was it since you been floxed The last time? How long did it take for The depression and anxiethy to go away for you? Im so afraid i Will cry for everything forever, and The panicattacks, every day, even when im trying to sleep.
          I also have head pressure, feels like my brain is mashed, every day, and headaches from hell. I also have pressure in my ears, some time it feels like They are on Fire. And every sound echo in my head. Can not listen to People when they are taking. Have you had that? I also have tinnitus, a sound that i hear all The time. And im off balance, and dizziness all day. And its not improving. Also this burning under my feet and legs, and hands, some Times The head. And tinggling and numbness all over body.
          Ok, so you never took supplements? Just eating healthy?
          I also think that healthy food is The most important thing. Im eating organic now, no gluten, no sugar, no Coffee. How have you change your diet? I do take supplements, magnesium, d vitamin, probiotics and so.
          I hope i Will recover from this, but i hope it Will not take years

      • Ann January 3, 2016 at 5:50 am Reply

        Thank deb 🙂
        Yes that shows that flagyl is awful to. Im writing in another forum, but not as good like in this site, and there are alot of People like me. Its so sad. But many of them dont have this kind of many side effects as i, but many are Hurt and cant live their lives. This flagyl has destroyed my life. I hope i can heal.

        • Ann January 4, 2016 at 2:10 am

          Thanks Again Jason, for all your help
          I cant find some reverse osmosis water here, but maybe we do have some water filter or something like that. I Will look for it more. Its Hard here in my country, we dont seem to have, what you have over there.
          Of course, every drug are toxic. And i do want to go The healthy way. I did try melatonin, but i couldnt take it. Last night i took 1/4 of an sleeping pill, but i feel that was not good for me, felt very weird after taking it, but i slept 3 hours. Its very bad this insomnia. Feels like im going crazy without any sleep.
          I do take magnesium oil on my body, i dont feel any difference, but maybe in time.
          I do belive that it was flagyl Who attacked my body like this. I looked on The information paper, and neuropathy is a side effect. But The doctors dont belive any way. And i researched The internet, and ototoxicity also is a side effect, i do belive i have that now, because everything in my ear dosent sound right. It attacked everything in my body. But i have to take one day at a time. I feel so sad that i dont now if i Will heal or not.

      • Jason January 3, 2016 at 11:23 am Reply

        Thanks for the link Debs. Drugs.com shows a different story, many many reviews as well, but better rated and much more tolerated, so this is another good site for drug reviews it seems, and as you say it does show Flagyl does have some nasty side effects and definitely more than I was aware of, though likely no where near as lethal as a Quin. Good spot on the metallic taste too, that does seem to be common, and of course Candida/Thrush as with any antibiotic, which can cause hundreds of symptoms all by itself, just not the DNA damaging ones like the stupid Fluoroquinonlones

        • Jason January 3, 2016 at 12:35 pm

          Hi Ann. It still does seem to me that you might be “Floxed”, from a Quinolone, but apparently the Metallic taste, burning/tingling, Gut issues of course, and not sure what else can all come from the Flagyl Antiobitoic as well. Candida and Leaky Gut can cause a LOT of bad symptoms as I mentioned, make sure the Doctors who you contact are educated in how to deal with these, and please do see the link to the older page with all the info above.

          I recommend finding someone who sells Reverse Osmosis Water, if there is Fluoride in the water there then for sure there will be people there selling this water, and I recommend adding some Minerals to it like from Himalayan or other Sea Salt for example to make it more Alkaline and not be such an “empty water”.

          Be sure to talk to the Naturopath about the Medications you are taking, there may be natural alternative solutions. Antidepressant Drugs are VERY toxic, some of them have Fluoride in them, and all of them Fluoride or not and NOT treating depression properly anyway, Amino Acid Therapy is the more natural and correct way to treat Depression, but moreover DIET and GUT issues are one of the main root causes, and so is Candida and Leaky Gut, these things are often all tied together, along with Insomnia, Anxiety, etc etc. The Naturopath should have a lot of suggestions for all this as well.

          Here is the Anxiety article, and at the bottom I have added about 50 comments with suggested “natural” things that can be done, and at the very bottom there are suggestions for Insomnia as well https://floxiehope.com/2015/06/22/treating-fluoroquinolone-anxiety/ I was having small bout of Insomnia myself last 2 or 3 days, well last night I had had enough and I took 5mg Melatonin and sprayed Ancient Minerals Magnesium Oil on legs, and took some other Magnesium pills and I slept like a rock last night, 7 solid hours, I think a bomb could have went off and I would still be sleeping, the MAG OIL is my top recommendation for Anxiety and Insomnia, especially for people who have taken Fluoroquinolones, but even others too.

          Unfortunately ALL drugs are toxic in my opinion and in the opinion of many experts like Walter Last etc, some much more than others, but they all affect the Liver at minimum, even Tylenol, Advil, Sleeping Pills, etc etc so the more someone is taking, the worse off they are, and most/many of them WILL make someone worse if they have taken a Fluoroquinolone. The Fluoroquinolone’s are at the top of the list of the worst and most damaging drugs on the market, along with Chemo and others, and most people all heal from these so don’t worry and most times damage is not permanent, but yes it does take time to heal, and in my opinion that time varies a lot on what a person chooses to do after they have been poisoned (there are many factors, most are in control of the person IMO, and of course some things take longer to heal than others etc)

  20. Jason January 1, 2016 at 5:26 pm Reply

    Just want to wish everyone here all the best for the New Year of 2016 and especially for continued healing and big improvements in Health going forward. I think 2016 will be a better year for us all, 2015 was my worst year in 20 years in general so I’m really looking forward to this year and hope you all will too:) Keep the hope, healing will come for all those who seek and work for it. Take care all

    • Linda January 1, 2016 at 5:28 pm Reply

      Back at you Jason!

    • Bruce January 2, 2016 at 10:18 am Reply

      Hey Jason,
      Thanks for all the information you supply to this site and the time you take to answer so many peoples questions with detailed information. Don’t know what you do for a living but your knowledge of the body and general health is unreal. Wishing you and all the floxies of the world a healing and prosperous 2016!!!

    • Jason January 2, 2016 at 6:16 pm Reply

      Thanks guys, and you’re very welcome Bruce and thanks for those extra comments 🙂

  21. Lucy Sky January 3, 2016 at 10:32 am Reply

    Ann
    I have gone through this believe me.

    Can you recall what other drugs you were taking at the time or before you took the fluroquinolones?

    Just to reassure you when I had the dry eyes, headaches and throbbing pain in my right eye, was photosensitive I thought I was going mad. Guess what? It was due to dry eyes and concretions plus a posterior vitreous detachment caused by the poisonous fluroquinolones.

    Flagyl is an anti fungal as you probably know. This is another drug that may cause problems for people.

    Jason will probably advise u on leaky gut syndrome. I know that anti fungals are contra indicated in a lot of conditions including Long QT syndrome and epilepsy. Just as the fluroquinololones are.

    the University of Arizona carries a very comprehensive list of drugs to avoid in the Long QT syndrome.

    Please hang on. We have all been and some still there with all this.

    Don’t let big Pharma win.

    • Ann January 4, 2016 at 1:11 am Reply

      Thanks Lucky for responding
      I dont know if i have been taking a fluoroqinolone before, maybe some years ago, but not sure. It was The flagyl, that started this almost 9 weeks ago, and now i have so many side effects. Its also a nasty drug. Many People are suffering. What is qt syndrome? Im going to The eye doctor soon i hope, waiting for a time. Ok, did they do something about The vitreous attachment? Have you been better from side effects, what antibiotics did you take?
      Yes i do belive i have a leaky gut and also candida. im eating organic, no sugar, no gluten and so on. Dont know what to do more. Im trying every day.

      • Ann January 4, 2016 at 1:12 am Reply

        I mean lucy, not lucky

      • Lucy Sky January 4, 2016 at 7:29 pm Reply

        Hi Ann
        Have you ever tried a nebulizer for the breathlessness?

        • Ann January 5, 2016 at 1:19 am

          Lucy
          No i havent, what is that?

      • Lucy Sky January 7, 2016 at 8:53 pm Reply

        Hello Ann
        Just cam across this.
        I do not know but it is possible that dry eyes and concretions are responsible for your eye pains. However worth investigating IMO.
        Obviously this means having a full eye examination preferably by an Ophthalmologist.

        Hope you do not think I am being pushy etc. Just trying to help. Can’t you get an early appointment to see an ophthalmologist?

        A lot of drugs can affect the eye .

        Lucy.

        Symptoms[edit]

        Conjunctival concretions are generally asymptomatic. Common symptoms include eye discomfort, eye irritation, and foreign body sensation. Sometimes, the larger, harder or multiple concretions make the rubbing off of the superficial layers of the conjunctiva or eyelids to cause conjunctival abrasion, especially prominent when upon blinking. In severe cases, dysfunction or inflammation of the Meibomian (Meibomianitis, an inflammation of the tarsal glands) glands may occur.

        Clinical Statistics[edit]

        Conjunctival concretions can be single, also multiple, less confluent. There is no difference between the site of the occurrence on the upper and lower eyelid, nor right or left eye. The vast majority of concretions are in the conjunctival surface rather than deep. There is no difference in age for predilection or incidence of concretions, due to the causes of conjunctivitis, aging, and even congenital factor.

        Treatment[edit]

        Conjunctival concretions can be seen easily by everting the eyelid. The projecting concretions should be removed. Removal is easily performed by a doctor. For example, using needles or sharp knife removes the concretion, under a local light anesthesia of the conjunctiva.

        Categories: Disorders of conjunctiva

  22. Lucy Sky January 3, 2016 at 10:36 am Reply

    Hi Ann
    Have u heard of the gluten syndrome? This can cause a lot of the signs and symptoms u are experiencing too.
    Might be worth having a food intolerance test.

    • Ann January 5, 2016 at 1:24 am Reply

      Lucy. I havent gluten intolerance, as The test says, but now when im so sick to my stomach, then i stoped with gluten, because it made me worse

  23. Stephanie January 3, 2016 at 11:21 pm Reply

    Does anyone have suggestions on shampoos that won’t make my head burn? I’m down to only buying so called organic shampoos in travel size due to price because living proof burned my scalp and then went hair. I have an apothecary by me but that stuff goes bad so fast. Has anyone made their own? Is it hard? Is it expensive?

    • Linda January 3, 2016 at 11:43 pm Reply

      well, hello again. go to a health food store and buy whatever organic one is on sale. That’s what I do– or I order from vitacost online—-organic, unscented. I currently have one by Accure and one by Desert Essence. (The only one I really did not like because it didn’t feel like it cleaned at all was by Jason. (Sorry Jason.) If you order $49 or more on vitacost the shipping is free (and fast) so I wait til I’m out of several things.

      • Dani January 4, 2016 at 12:21 am Reply

        Hey Linda (or anyone reading) do you know much about cephalexin I was prescribed it for a uti and naturally I am scared to take it because of my horrible reaction to Cipro. Thanks for any responses

        • Debs January 4, 2016 at 4:06 am
        • Lucy Sky January 4, 2016 at 6:05 am

          Cephalexin/Keflex can cause C diff and burning. Hospitals will not prescribe it.

        • Linda January 4, 2016 at 10:12 am

          I don’t know anything about it, Dani—but I have had a UTI since this all happened and treated it naturally with a combination 0f herb pharm’s urinary system support, high doses of vitamin C and A, and d mannose. It is a 2 week protocol and if you can find a naturopath they can give you the exact amounts of each (Vitamin A tapers each day –I remember that much.) Mine was stubborn and ended up taking a month (and about $100 of stuff) but it was cleared per a follow up urinalysis and SO worth it not to take a pharmaceutical. Also, if you have a chinese herbalist, they also offer a treatment treatment.

        • Lucy Sky January 9, 2016 at 8:48 pm

          Cephalexin can cause burning of the legs . It also causes C Diff and hospitals refuse to prescribe it for that reason.
          I replied before but as this is very important thing to know I am re sending it. Apologies.

      • Stephanie January 4, 2016 at 3:42 am Reply

        Thanks this freaking burning scalp blows. It burned so badly when I washed my hair. My whole scalp is still on fire and is so soft to the touch. A girlfriend of mine was like make some. I told if I had the freakin energy to I would. Lmao. Again no one gets it. Also to the perpson with the uti go to a naturopath. Also some months back Jason posted natural remedies for a uti. I would look those up on here and try one of those instead. I know if you can tolerate cranberry juice to try that. But there is a long list of remedies for a uti that Jason posted I think in November. I can’t remember.

        • Lucy Sky January 5, 2016 at 4:52 am

          Stephanie

          I came across an ad for organic hemp oil shampoo from Holland and Barrett . I don’t know anything about it.

          Hope this helps.

          Lucy

        • Lucy Sky January 10, 2016 at 6:18 pm

          Stephanie
          I had pulling sensations all over my scalp which were worse over the crown of my head. I could not bear anyone touching my head and even had to very gently comb or brush my hair. My neurologist thought I may have anterior arteritis.
          I stopped having my hair highlighted. I too suffered with what I now recognise as burning of the scalp plus scabs.

          These scabs started at the nape of my neck I put I down to perspiring especially at night. Now I know it was the much detested fluroquinolones and other nasty antibiotics .

          Even now I can feel some slight tugging on my scalp I live in dread of this starting up again. On the note of steroids I had a short course (5 days) of prednisone and an antibiotic for a bad wheezing attack/chest infection in 2012.

          I recall feeling very depressed. A consultant physician said that it was no wonder that I felt depressed because that is what steroids do to people, he said.

          This was prior to the three antibiotics prescribed at the same time in Dec 2013.
          I am definitely keeping off the seretide inhaler as I referred to in an earlier posting this evening.

          Lucy.

      • Lucero Rojas January 9, 2016 at 3:12 pm Reply

        Hi Linda!

        How are you doing? Hope all is well and your health path continues to improve. How is your year going so far? Linda any suggestions on a good organic hair color powder. I saw you posted some stuff up about shampoos don’t know if you have look at haircoloring treatments. My poor hair looks so ugly..lol. two colors since I haven’t done anything to it so far since floxed.

        Thanks in advance

        Lucero

        • Linda January 9, 2016 at 3:23 pm

          Hi. Things are slowly improving, thanks. Hair colorist tough one, since they all have chemicals. The worst ingredients are ppd and ppt. Can,t recall the long terms they stand dor. I finally found one called tints of nature that is semi permanent and doesn,t have those. It.s not great color and doesn,toast as long but iti is doable for me for now. I buy online. Watch ou t though the same lone in the permanent color does have one of those ingredients. Wish I could findsomething better. Good sign though that I even are about this! BeforeBI didn’t care about anything physical. Hope you are improving as well!

        • Linda January 9, 2016 at 8:58 pm

          wow—just saw all the typos! sorry, I was using a small tablet and couldn’t see well. anyhow, in addition to avoiding things like ammonia and peroxide, the ppd and ptd I mentioned before look like this: p-phenylenediamine. Again, the one I mentioned is very natural—no chemicals and no henna. Not great, but it’s something.

        • Lucero Rojas January 11, 2016 at 7:27 am

          Linda hi!! Ty for replying back. I ordered some organic henna for hair. Don’t know if henna is bad. How come you avoided henna too? Does it have bad chemicals?

          Ty

          Luz

    • Debs January 4, 2016 at 4:05 am Reply

      Hi Stephanie

      I am also in a similar situation looking for an answer. I have an itching head which drives me to distraction along with recurring sores on my head which I have had for years from floxing. these sores are in exactly the same place they first showed up, which have never healed. I can find no shampoo to help or treatment that works for this weird problem

      • Stephanie January 4, 2016 at 4:44 am Reply

        The sores are the worst. Makes my head all soft. Do you get head crusties too? It’s so gross. People think I’m dirty but I’m not and I loose so much hair everyday.

        • Debs January 4, 2016 at 5:17 am

          I lost half the thickness of my hair each time I was floxed the good news is the thickness came back every time eventually. The sores & the itching an re another matter make people think I have fleas I am sure . I have researched this subject to death but can find no answer to resolving these sores, they crust over flake off & then come up again in exactly the same place. They drive me to distraction.

        • Catherine January 4, 2016 at 5:30 am

          I had forgotten about the sores on the scalp – I had them for the first year or so after I was floxed. Even the water from the shower hurt like hell. They eventually disappeared after I started using essential oils for systemic candida infection.

        • Daniela January 4, 2016 at 3:57 pm

          I get a sore area on my scalp too, and one time it formed a red abscess. I find that washing only once a week using baking soda (looks like Wenn!) or a drop of Dr bronner’s lavender castile soap instead of shampoo, finished with a rinse made up of a teaspoon of white vinegar in a cup of water, helps.
          Right now I don’t have it or the eye twitching but I have plenty of other problems still preventing me from leaving the house 😦

        • Stephanie January 4, 2016 at 4:15 pm

          I know what you mean Daniela. Thank you I will try it yeah my head hurts in certain areas when I touch it. I went to the movies everyone stared at me. I’m sorry that you aren’t leaving the house either. I hope this year brings us all healing. It sucks that we have to do this. Now we can’t even wash our hair. Ugh ugh ugh sorry just blows

        • Leslie January 4, 2016 at 10:31 pm

          Hey Stephanie – I am also losing my hair and it is really depressing. Thinning like an old lady (I’m 38!). Obviously have a serious imbalance going on but don’t know what it is exactly. Has been falling out for 4 months. Debs – how long did it take for your hair to grow back? At the moment mine is still rapidly decreasing (I am 9 months out from cipro).

        • stephanie January 4, 2016 at 11:13 pm

          It is so depressing. I try to make a joke of it and say bye bye hair. LMOA I am demented. Does yours fall out even when you run your fingers through your hair. Mine does. I never hated people touching my hair now I am like hands off the head. LOL

        • Linda January 5, 2016 at 12:02 am

          I’m ten months out and my hair has really thinned. I went for my first cut in a long time, and I usually get layers because it is (was) kind of thick. well, I got the layers and it’s awful—just little wisps in parts. Plus I used to color my hair—not ready for grey, and of course staying away from chemicals. Only found one that is not henna that has no chemicals. Costs twice as much, color is awful and it washes out in a few weeks. I used to LOVE my hair, thick, beautiful golden brown, shiny. Looks like crap now. Of course, it is the least of my issues but feeling good about yourself goes a long ways mentally.

        • jwinn January 5, 2016 at 7:18 am

          I have the same ‘self-image’ problem. Everything about me has changed, and it depresses me. I used to date “HOT” men 1/2 my age, and now I don’t even want them to SEE me across the street. I wouldn’t dare sit across the table from them and have dinner with them now. I know I look bad, and I have totally lost my self confidence. I have aged 20 years in the last 5 years. I know I will never be able to go back to where I was before I was floxed. I live in isolation with my dog. She loves me inspite of how I look or feel about myself!

        • Lucy Sky January 10, 2016 at 6:20 pm

          Stephanie
          Pls see my posting dated January 10 . Lucy

  24. Debs January 4, 2016 at 3:58 am Reply

    Hi Dani

    When it comes to antibiotics the penicillins Cephlasporins ( of which cephalexin is a first generation member ) & Doxycycline tend to be the ‘ better tolerated ‘ somewhat less toxic ones for everyone not just us ( allergies apart ) . However we must always keep in mind that all allopathic drugs can potentially cause issues depending on the person & their many variables & the fact that as floxies we can often have problems metabolising drugs due the FQs inhibition of the Liver P450 enzyme pathway, the enzymes which are responsible for the metabolising of the majority of drugs & also some substances including caffeine that enter the body.

    Have you had this UTI cultured ? If not I would strongly recommend you do so, as FQs can also cause both interstitial cystitis & also bladder neuropathic issues which can mimic UTIs extremely well. For anyone who finds they are continually getting symptoms of UTIs yet on culture no bacteria is found ( I have neuropathic issues & often get white cells sometimes blood yet have no infection ) I would recommend getting tested via cystoscopy to help with ruling out IC, & urodynamic studies done to rule FQ induced bladder neuropathic issues out. At the end of the day all allopathic drugs are toxic, some are less toxic than others. we as floxies often tend to react detrimentally to many of them, so in my opinion & experience of being around a while & having been damaged by quite a few of them myself, allopathic drugs are best avoided if humanely possible. Although antibiotics are sometimes needed to treat serious infection & cannot at times be avoided, when it comes to antibiotics I would always seek out the least toxic version which is effective for the bacterial strain concerned, & personally I would always try natural means to treat suspected UTIs first , keeping a close eye on symptoms whilst a sample is being cultured & confirmed, I would personally also try natural means first to treat early confirmed infections whilst always keeping a close eye on symptoms as UTIs can turn into kidney infection only when necessary, if natural means fail, will I go down the ‘ better tolerated ‘ antibiotic route.

    Personally I would try to avoid Macrobid & also Bactrim which are so often prescribed for UTIs if humanely possible, as they are antibiotics which carry more serious toxic profiles .

    • Debs January 4, 2016 at 4:37 am Reply

      As for Drs always going for the usual suspects when thinking antibiotic for UTI ,there are actually countless antibiotics available to treat UTIs, depending on the bacterial strain involved. Drs are often just too busy ( being kind ) or often just too lazy to look any further.
      This subject & Drs indifference on this matter drives me literally up the wall.
      As we can see , here is a rather long list .

      http://www.drugs.com/condition/urinary-tract-infection.html

      • Stephanie January 4, 2016 at 4:50 am Reply

        They are lazy and then we suffer the consequences of their laziness. It’s so frustrating.

    • Linda January 5, 2016 at 12:08 am Reply

      You aren’t kidding about the mimicking of UTIs. I felt like I had a UTI for most of the first 9 months of being floxed. (Oddly enough, when I was given the Cipro for the pre-floxing UTI, I didnt even know I had one!) But after I was floxed, only once did I actually have one, and my ND treated it with a special supplement protocol. I thought it came back but a urinalysis showed it had not. An acupuncturist used both acupuncture and chinese herbs to finally make that pressure and UTI-feeling go away. IF anyone has a UTI I highly recommend going to an ND for treatment. The protocol (can’t recall amounts) include D-mannose, which helps prevent the little buggers from sticking to the uterine wall, Herb Pharm’s urinary system support and vitamin C and A in fairly high doses. (That’s why it is good to have an ND give exact amounts).

  25. Debs January 4, 2016 at 4:27 am Reply

    For anyone here who is suffering the various neuropsychiatric symptoms from floxing here is a very good link with information on many alternatives to taking psychotropic drugs as a first choice, & this site also links to many other relevant connecting subjects including help with withdrawal issues from the same & contains links to various very good support groups.
    As someone who went through 12 years of iatrogenic hell on earth from the original FQ induced toxic psychosis & resulting issues Big Pharma then gave me courtesy of their psychotropic poisons, I highly recommend it

    http://beyondmeds.com/2015/01/17/major-depression-responds/

  26. kev January 4, 2016 at 5:02 am Reply

    Hi guys,

    13 days into floxing, im having Myasthenia like symptoms now, muscle weakness all over my body that started by jaw and neck, im having trouble keeping my head up, i feel to much weight on my neck. You think that this to is due to floxing ?

    • Stephanie January 4, 2016 at 5:33 am Reply

      Yes please go to a a naturopath. Have you gone to one yet? Have you started IV treatments?

      • kev January 4, 2016 at 6:49 am Reply

        I got an appointment 12 Jan with a naturopath that is an MD to. IV treatments kinda scares me tho don’t know what kind of side effects i can get from that to …

        • Bruce January 4, 2016 at 7:03 am

          Good Luck Kev!!! Hang in there, It will get better. 6 months since all hell broke loose but I see light at the end of the tunnel. Use the info from the Floxie group and other FQ sites and you will get better.

        • Michael Teeter January 4, 2016 at 9:32 am

          Hey kev,
          been through all of that. It is about the only thing that helped me. Not many side effects for me.
          These three places helped me the most.
          http://www.centerforwellness.org/ My natural doctor.
          http://www.pointofreturn.com/ Tell them you have been poisoned by Cipro
          http://www.agemanagementmi.com/ Where I get IV treatments.

        • Stephanie January 4, 2016 at 9:40 am

          I know it sounds scary but try to relax stay positive. You are getting treatments and it will hopefully get better for you!!

        • kev January 4, 2016 at 1:16 pm

          Thank you guys

        • Linda January 4, 2016 at 6:14 pm

          A naturopath whose an MD—great! Don’t be scared. I have had over 50 of various ones. You may not (probably won’t) notice anything right away, but you will see improvement over time.

        • jwinn January 5, 2016 at 8:09 am

          Kev, PLEASE BE HAPPY!!!!!!!!!!! Don’t be scared! I would do anything to have a NP within driving distance from me! I am excited for you!!!! You have a light at the end of your tunnel!!!

  27. Mark S January 4, 2016 at 1:03 pm Reply

    If anyone is suffering with tendonosis, I highly recommend upping your Vitamin K2 intake to go along with the obvious magnesium supplementation. Our tendons have become calcified due to the chelation of the magnesium. What does this mean? Magnesium rushes out, calcium rushes into our soft tissues. K2 acts as a gatekeeper and pushes the calcium OUT of the blood, soft tissues, and arteries, and pushes it where it needs to go (bones and teeth). This is ESPECIALLY true if you are also supplementing large amounts of D3. This is my understanding at least.

    • Linda January 4, 2016 at 1:08 pm Reply

      yeah, definitely want to take K2 with D for sure.

    • kev January 4, 2016 at 1:19 pm Reply

      I had prior vitamine K and vitamine D deficiency before being floxed, maybe thats what made me vulnerable.

      • Mark S January 4, 2016 at 1:27 pm Reply

        It’s possible. We simply don’t know what makes more people susceptible to physical floxing problems. However nearly 75% of the United States is Vitamin D deficient. It’s an epidemic. Best to get those corrected and push magnesium HARD with both oral and transdermal supplementation for the next couple of months. I’m five and a half months out and still have a pretty bad Achilles on my left side.

    • Lucy Sky January 4, 2016 at 5:23 pm Reply

      Unfortunately I am not allowed K2 as I am on Warfarin. Is there anything else I could substitute it with?

    • Lucy Sky January 8, 2016 at 5:38 am Reply

      Hi Mark
      Do you have a substitute for K2? I am taking warfarin and unfortunately have to avoid K2.

      Thanks

      Lucy

    • Lucy Sky January 8, 2016 at 5:41 am Reply

      Mark Are you saying to avoid D3? Lucy

    • Lucy Sky January 10, 2016 at 7:20 pm Reply

      I can’t take Vit K2 due to being on warfarin. Is there an alternative please?

      • Jason January 10, 2016 at 9:25 pm Reply

        I don’t think anyone here is aware of one, including myself, this is something to ask a Naturopath, Functional or Integrative Doctor

  28. dan January 4, 2016 at 5:14 pm Reply

    hey guys, could flonase or nasonex trigger symptoms? i took it on and off for about a month before levaquin maybe even during levaquin? thanks dan.

    • Mark S January 4, 2016 at 7:43 pm Reply

      I’m pretty sure Nasonex caused my floxing to become worse. I felt largely recovered within two months and then after three days of Nasonex I was worse than ever.

    • Linda January 5, 2016 at 12:11 am Reply

      Yes! Nasonex is a steroid, so definitely could. Need to stay away from steroids in all forms. I was given prednisone with cipro which is why I believe I was hit so hard.

    • Jason January 5, 2016 at 2:12 am Reply

      I would not consider flonase either if I were you, that is laced with Fluorine just like the Cipro drug was

      Really from what I have seen going way back in these pages, and looking around in other places etc is many (not all, maybe Debs would like to comment on this she has been around and seen a lot of “re-floxings”) Floxies react to just about any drug, even after YEARS of being okay, and they end up feeling re-floxed all over again, I really don’t think it is worth the risk to take ANY drug, ever again, unless it is a real emergency, that is my plan anyway, and what I recommend for others. For those who have “conditions” that “require” drugs, I would be having a serious discussion with a Naturopath, as I have said before, there are very often (maybe not always) Natural solutions for many issues, and the drugs can be weaned off of and replaced with something much safer, especially for a Floxie, who is often hyper-sensitive to many things, especially drugs.

      There are other things though, that can set people off, I listed a whole bunch just recently, I think last page, caffeine, even some supplements too, etc lots of things, but drugs would be at the top of the list of dangerous substances to Floxies IMO, any of them (some worse than others, but all are risky IMO). Be careful out there, and PROTECT your recovery, what you have of it, because yes, it can always get worse, many sadly find this out the hard way.

    • Jason January 5, 2016 at 2:20 am Reply

      Here was another thing, on the “list”, fresh from my inbox:

      http://articles.mercola.com/sites/articles/archive/2016/01/05/ge-food-dangers.aspx

      “In fact, just 10 corporations control almost every product on grocery store shelves”

      Wow. Check out the Graphic on this half way down or so, not good. There really is no good news when it comes to the Food Supply, there is a link there too for contacting your Senators, I hope some of you do, we have to try and do what we can as he says

  29. Debs January 5, 2016 at 1:46 am Reply

    Yes, Firstly corticosteroids in any form should never be taken concurrently with FQs. One thing to keep in mind if considering taking them after floxing bearing in mind the mechanism of damage of the FQs to connective tissue which is degenerative, is that steroids are also detrimental to the connective tissues & can cause further degenerative damage to these tissues after floxing, this along with the many other nasty ADRs theses drugs can cause for anyone, whether they are floxed or not, especially if taken long term. Although some people do seem to find them helpful for symptoms, I personally would not touch them with a bargepole unless I had no choice, & there are of course people who have no choice but to take them at times for various conditions. I was on Nasonex myself before I knew what had happened to me & I took it before during & after for a long time around the time of my most damaging floxing with an NSAID & Cipro, it certainly did not help matters one little bit .

    • Debs January 5, 2016 at 3:03 am Reply

      People often consider inhaled steroids as more ‘ benign ‘ than other routes of administration & are often unaware of the damage they can cause, particularly at a higher dose & taken over the longer term .

      http://www.ncbi.nlm.nih.gov/pubmed/10326936

      I do feel myself that we have to be extremely careful when it comes to taking any allopathic drug after floxing & this also goes for everything else too we either are thinking of either taking or letting anywhere near us. it is extremely common for those of us who have been injured to react to so many different things, many of them considered benign. I say it often but floxing is bizarre beyond words, & every persons floxing is completely unique as are what works or does not work for them, what works for one person can sometimes severely injure another & set them back, sometimes for a long while with healing
      I do feel myself that allopathic drugs are one of the biggest risks we run, I have not been able to tolerate any drug I have been prescribed since my most damaging floxing without it causing me major issues & my having to stop it I am now stuck in a situation diagnosed with Glaucoma unable to tolerate the drops I have been prescribed where the surgery does not tend to be effective for the type of glaucoma I have, having to think about trying various others, with the drugs for chronic kidney disease in the future sometime breathing down my neck & all that goes with that, up the creek without a paddle as they say, In fact I wonder if I will have a canoe to paddle much longer, why I have to get stuff with generally no natural solution I don’t know, good job I can swim lol .

      • Debs January 5, 2016 at 3:07 am Reply

        inhaled steroids & effects on bone http://www.ncbi.nlm.nih.gov/pubmed/15702810

      • Jason January 5, 2016 at 12:05 pm Reply

        Sorry to hear about the Glaucoma Debs, not sure how effective any of these are because I have not researched that condition in any depth, but wanted to pass these along: http://draxe.com/glaucoma-natural-treatment-prevention/

        • Debs January 11, 2016 at 2:37 am

          Thanks for the link Jason on glaucoma. My eye pressure at least as noted by the Drs is normal so I have been been diagnosed with normal tension glaucoma however this is not the whole story I have found. I have come across some interesting stuff on my travels on this subject & will post a bit more on this in a bit, as if anyone here has glaucoma in the family / is a glaucoma suspect / has raised intra ocular pressure & as many of us do suffer from low blood pressure issues, & considering the eye issues we get, the info I have come across re this subject could be very important.

          Unfortunately their are of course certain conditions for which allopathic drugs can sometimes be unavoidable eventually, my chronic kidney disease & glaucoma as things stand are potentially two of these conditions. My CKD will eventually not be controllable only via diet etc. it sucks so much that some of us are ending up lifelong prisoners of Big Pharma.
          As such, I feel we should do our utmost to try to avoid ending up in these sort of situations once we are aware of this fact, to seek out a natural integrative Drs help etc, try natural treatments to take the place of these allopathic drugs, to try to get ourselves out of these situations if humanely possible, as to ensnare us, this is of course high on their long term agenda, to create lifelong customers.
          I have managed to stop most of of the drugs I was on this way, although as I mention above it can as be a situation where you have no choice it could also be that you could drop the dose of the allopathic drugs for instance, take less, as drugs are very often prescribed at much too high a dose anyway particularly when it comes to women / children as most of the clinical trials to rate toxicity on many of the drugs used today were only done on healthy young men. Every little helps . I personally feel it is well worth trying

          I got myself off the psychotropic drug one way train to hell a long time ago, despite being told I would have to take them for life by idiot Drs, & I no longer take proton pump inhibitors as have found alternative treatment to those, & have also managed to stop many other drugs over time too by various means .
          Big Pharma which of course as an investment business wants customers for life & they don’t give a FQ who they hurt along the way, This is is the reason why psychliartrists ( who are in collusion with Big Pharma BIG time ) are diagnosing & treating younger & younger children even babies with ‘ mental illness ‘ & prescribing them psychotropic drugs, its sick beyond words ! . These people sold their souls to the devil before they were even born .

          http://www.uptodate.com/contents/major-side-effects-of-inhaled-glucocorticoids

        • Jason January 11, 2016 at 1:29 pm

          I am so with you on this Debs, it is EXTREMELY maddening and very sad to see what is happening to today’s young children and kids, and babies as you said!!! Bombarded with drugs and vaccines, as I think you have said before, “get them while their young, hook them for life”. My good friend’s 8 year old was “diagnosed” with ADD, so of course he is on a daily drug, or two, its gut wrenching and heart-breaking, he is extremely withdrawn, shy by nature but its clear the drugs are doing him no favours as usual, and setting him up for more future issues, which is the plan exactly as you say, $$$

          I’m no expert on Human Anatomy like specific organ diseases, failure etc but I do suspect you might be right, if something is left long enough, or if something is affected too much, condition is too severe, it may be too late for some of the Natural Alternatives to really make a difference, and drugs might actually serve a necessary evil purpose. I know you agree that for the most part someone is taking drugs completely unnecessarily most of the time, and are in fact hurting themselves not helping, I’d bet this is 97% of the time drugs are handed out, maybe even 99%, considering just how many they hand out.

          Not sure why you were taking the PPI’s, you’ve probably seen me mention I had heartburn for 25 years or so. I was prescribed a few things over the years, and never took them, but I did eventually start eating Rolaids every day, and at one point I was up to like 5 – 10 a day. I also had the head of the bed propped up at one point, which did help, was diagnosed with GERD, went for scopes (God I HATE those) and eventually diagnosed with Hiatal hernia (though I am not sure that came from an actual test/xray/scope etc or just putting the puzzle pieces together). The last Specialist I seen recommended Nexium, I think I was supposed to take it everyday for about 6 weeks, or possibly longer if the “problem” persisted. Being I was never a believer in drugs, I did not want to take it at all, however I was worried that the 5 – 10 Rolaids were doing me no favours either, which I am sure they weren’t. So I did decide to try it, only I only used it when I felt I needed it, which turned out to be about half a pill once a week. Of course later I would find out that 85% of the time Heartburn comes from NOT ENOUGH stomach acid, not too much, so as usual the drugs are treating people in a ass-backward fashion (shutting down HCL), and actually making the problem WORSE! Eventually, I finally had had enough of that and other issues, and made the hard choice of resigning to changing my diet completely, lifestyle change not a diet, and that combined with some Enzymes and HCL is what solved the issue for me. Its like clockwork too, when I cheat, eat too much chocolate, simple carbs, sugar etc cheat too much like Christmas time, back comes the Heartburn, then I smarten up and it goes away again, but before it does I will take HCL to help ans support digestion etc.

          Diet is so crucial, my 44 year old Brother now has near crippling Arthritis in his fingers, and other places too. His diet could not be any worse, he is likely taking drugs for it (and hasn’t told me for fear of scolding…), and I found out he is popping Tums left right and center for heartburn too. He knows what I have went through, but he focuses on my “downs” rather than “ups” and how far I have come. I hope he doesn’t wait too long to “get with the program”, right now I am sure lifestyle changes and Natural things can help him, but if things go on too long and too far, the ounce of prevention methods might be off the table.

          That is great you will post more info from your research on the eyes, as you say eye issues are so common not just among Floxies but just in general like with Elderly etc

      • Jason January 5, 2016 at 12:05 pm Reply
        • Jason January 5, 2016 at 12:07 pm

          Seems Frankincense might be helpful, diet of course, from the above link:

          “After several years of trying every alternative treatment I could find, I finally have had success in lowering the intra-occular pressure with diet, exercise and frankincense. I used supplements for years without noticeable difference in pressure, but once I started following Dr. Benjamin Lane’s diet and exercise recommendations and using Frankincense, improvement was substantial.”

  30. Marc Thavenot January 5, 2016 at 2:29 am Reply

    Hi I am newly floxed from 2 Levo pills. I’m at just over 3 months. I’m a sound engineer and I getting sound sensitivity and dizziness and wondering if these could be perminant damage? It’s been difficult to work so I’m a little concerned
    Thanks
    Marc

    • Ann January 5, 2016 at 6:45 am Reply

      Hi mark. I Wonder about that to. Im soon 9 weeks out. But not from an fq. Im also sound sensitive, every sound echo in my head, and dizziness all day, also have pressure in my ears. I also Wonder if this can be permanent. Maybe ototoxicity. I also have problems with my eyes. This is a nightmare. Do you also have pressure in your ears and head? /Ann

      • Marc Thavenot January 5, 2016 at 8:41 am Reply

        Hi Ann, i had the pressure in my head but thats subsided a good bit now I’m 13 weeks out but i still have lingering vision problems but they seem to get better at points and come back. i also have a bit of pressure in my ears at times, i am really hoping that it will go away like some of the other symptoms. I started doing sound therapy as its treatment for hyperacusis (sound sensitivity) Hoping it gets better.

        I am following a very strict supplementation plan as per all the advice but the helpful people here.

        Magnesium Oral & Topical
        Vitamin D
        Vitamin C Plenty
        Vitamin E
        CoQ10
        PQQ
        Bulletproof Glutathione (no IV available in my country)
        Epson Salts Baths
        Dr.Wahls Diet (no gluten, no sugar, just veggies & organic meat & some fruit)

        • Ann January 5, 2016 at 9:46 am

          Hi Again mark
          Ohhh i hope my head pressure Will subside soon to, i have it every day. Ok, so your eyes gets better to, thats good. Mine havent improved, going to an eye doctor soon.blurry vision and my eyes can not take in what im seeing.
          Sound teraphy, what is that, maybe i Will try that to then. I also take supplements magnesium, probiotics, omega 3, vitamin d. How much vitamin d and magnesium do you take?
          The People here are so helpful and Nice, im so glad i found this page, thought i was alone.
          We dont have IV treatments here in sweden Either, its to bad.
          I have also stoped with gluten, sugar, Coffee and so on.
          I bought The book with dr terry wahls, a few days ago, i hope i Will get it soon. Have you seen improvments with The diet?
          I also have many side effects to deal with. Its Hard. Some days worse than others

      • Mark S January 5, 2016 at 9:36 am Reply

        Ann,

        I have not had any of these symptoms you are experiencing. But you must realize we are all different. Some will have mainly cognitive symptoms, others mainly physical, and others will be hit hard with both. Me personally, have MOSTLY been physical symptoms in my lower legs, but I have also experienced other things on and off through this such as rapid heart rate, mild tinnitus, GI problems, and anxiety.

        You are very early in this. But please don’t talk yourself into anything being “permanent” with no hope. I often have had these worries but it’s the worst thing you can do for yourself. Having a positive mindset seems to be very beneficial for people that have been hurt by FQs (I refused to use the term “floxie” anymore, it does not define who I am). The good news is that most people do recover with a super clean diet, avoiding flouride at all costs, some key supplements, and a positive mind state. The bad news is it may take longer than you’d like it to. I’m not even a half a year into this thing but I’ve accepted that it may take another year to feel like my old self. We will see. Just hang on and take it day by day.

        Take care,
        Mark

        • kev January 5, 2016 at 9:55 am

          Symptoms are really different from person to an other that im beginning to think that a big part of this is psychosomatic and the cure has a lot to do with some placebo effect.

        • Mark January 5, 2016 at 12:26 pm

          No Kev tendons rupturing is definitely not psychosomatic…

        • Mark S January 5, 2016 at 10:00 am

          Kev,

          It’s a bit of a pessimistic view but there really is no “cure” other than the body healing itself over time, which it will. For some it takes much longer than others.

        • Ann January 5, 2016 at 10:09 am

          Mark
          Its certainly different from People to People. Some have more side effects than others. You are right, but some days im so afraid this Will be forever, but like you said, many People recover, in one way or another. I have not take fq antibiotics, but i have The same side effects. I hope i Will see any little sign of getting a little better. I hope that day Will Come soon. I know that this Will take time, to heal, but The depression make things harder.Im trying accupuncture, maybe it Will help in some ways.
          Take care, you too, and thanks for your positive words

        • Mark S January 5, 2016 at 10:14 am

          Ann,

          You are very fortunate to have not taken an FQ. You will for sure get better. I’ve seen a pattern of most people getting better from FQ toxicity after 1.5-2 years. But since you didn’t take one I’m sure your road will be far less traveled.

          All the best,
          Mark

        • kev January 5, 2016 at 11:00 am

          Mark,

          What i mean is there is a chance all these symptoms may be caused by a psychological effect (our selfs thinking that we are sick), studies have shown that some people can really make them selfs sick if they think they are, so if you tell your self that you will recover in 2 years from now you will stay sick all along even if nothing is wrong with your health.

          The reverse can be true, some people can really cure them selfs when they believe they are cured.

        • Marc Thavenot January 5, 2016 at 11:15 am

          Yes i believe the mind is very powerful, we must tell ourselves that we are well and that we will be healed. this type of thinking can only do one thing and thats help. You have nothing to loose in thinking this way and one must stay as positive as possible and try to continue living your life.

          I have had some major set backs when i was a kid. I was born with CP and could barely walk. At the age of 8 years old i had a major risky surgery on my spinal cord to try and rewire some of the bad nerve connections. after the surgery i woke up worse and was paralyzed and could not feel or move my legs. I was extremely determined though and now i had to re learn and try to force my muscle to move again. Recovery was long and painful with shock treatments etc. But low and behold i am writing this today as a person who can walk and drive on his own without the use of special aid. If this is possible i know FQ recovery is.

          Stay positive folks and believe you can heal!!!

        • stephanie January 5, 2016 at 11:37 am

          Yes I agree that having a positive out look is important but I would never go as far as to say that some of these symptoms are psychosomatic. At least not in my case. I am an extremely positive person I eat well do everything I am supposed to so I ask you to think before you write things. Because I want to be back hiking and living my life more than anything!!!! I hate the fact that I have to use a cane. I hate the fact that my boyfriend worries about me 24/7. Choose what you say carefully.

        • Marc Thavenot January 5, 2016 at 12:03 pm

          Hey Stephanie
          I am sorry if what i said struck a nerve. I didn’t at all mean that these symptoms are psychosomatic because what I am experiencing is definitely real as well. I was just trying to make a point that having a positive outlook can aid in healing compared to a negative mind set. I really do wish that we all heal from this as fast as possible.
          Blessings
          Marc

        • Mark S January 5, 2016 at 11:06 am

          Kev,

          That’s also true! I think it’s a bit of both honestly. Anxiety and stress will slow down the healing time for sure. In the end time is the biggest healer I still believe though. You can be positive about it until the cows come home but really it is also up to nutrition, supplements, and staying active to get the nasty FQ residuals out of our system.

        • Jason January 5, 2016 at 12:33 pm

          The mind is very powerful, but so is this drug. So while someone can think themselves sick, that is NOT what is happening with this drug, at all, for the most part. Not to say people can not make themselves worse because they can and can extend their healing if they are worried/stressed etc, but the symptoms from these drugs are numerous, and damaging, and from damage, and for the most part not from the mind

          I would also be very careful saying “most people” heal in 1.5 years etc. Many people get better in 3 – 6 months, some take 4 years, maybe the “average” might be somewhere around 1.5 years (or not, see below), BUT that is VERY different than saying “most” recover around that time, which is saying to people chances/odds are your screwed for 1.5 – 2 years

          Really trying to put numbers on these things is impossible, because the amount of people who are injured that are actually on the Internet is a tiny fraction of the total amount of damaged people first off, and many of them are in it for the long haul, which is why they are on the Internet, looking for help, support from others in same boat etc, where as the people who heal quickly won’t need to be on the Internet or are there for a tiny blip of time and hardly noticed (I noticed, however), which totally skews the way the numbers look.

        • Stephanie January 5, 2016 at 12:50 pm

          Preach Jason preach!!! Also I would like to say that Kate Snow from NBC has read my Facebook message to here of my story so now she has been sent two floxie stories. I am asking you guys to flood Kate Snow with your stories. It’s NBC people and she read it. Maybe if more of us send her stories they will see this is an issue and cover it. It’s about all of us. Shedding light on FDAs refusal to pull these drugs off the market and bring the drug companies to justice. Send in your stories people!!!!! Do it do it

    • Stephanie January 5, 2016 at 9:35 am Reply

      I suggest getting to a naturopath for IV treatments ASAP. People can heal stay positive stay positive!!!! If you let us know the area that you live one of us can help you find a naturopath to go to.

  31. Marc Thavenot January 5, 2016 at 10:17 am Reply

    Hi Ann

    Magnesium I take up to 1000mg a day in small doses throughout the day.
    You may want to start at 400mg a day and work up until you get the laxative effect.
    I also take natural calm drink form amazin.com thats an ionic form thats very good i found.

    Sound therapy is basically not isolating yourself in silence. Even if your ears are sensitive find something soothing like rainfall recording or just plain white noise and put it on soft as you can tolerate. the more you isolate yourself in silence the more sensitive they may get. similiar to if u stay in a dark room for long when you go outside your eyes are sensitive. The treatment for Hyperacusis (sound sensitivity) is called TRT and its something similiar to sound therapy where you listen to white noise constantly building up your tolerances to sound slowly with the use of a sound generator type hearing aid.

    The Wahls diet is great to get your body back to a point where it can heal effeciently. All these processed foods, sugar and chemicals just poison our bodies and prevent them from healing. so i think the diet has helped.

    • Ann January 5, 2016 at 11:15 am Reply

      Mark
      Yes im happy that i didnt take an fq, but this flagyl i take, its a poison to. A lot of People out there, like me, Who have been Hurt. So its a nasty drug to.
      Ok, then i have too raise my magnesium, i just take 300 mg. But i can not take to much, because of my stomach.
      Ok, then i have been doing The wrong thing. I have been avoiding sounds, because i cant stand them. But then i Will do The same you are doing, listen to sounds anyway.
      Sounds good with dr terry wahls diet, i will try that to, when i get The book. But im eating only organic now, and no gluten, no sugar, no Coffee and so on. Thanks for The sound teraphy tip, i will start with that today. 🙂

      • Marc Thavenot January 5, 2016 at 11:20 am Reply

        Hey Ann
        Make sure you only listen to soft sounds that do not hurt or irritate start with as soft as you need to. just to avoid being in complete silence.

        Magnesium can upset your stomach depending on the type you take.
        Try Magnesium Malate, Glycinate or Natural Calm
        http://www.amazon.com/gp/product/B00BPUY3W0?keywords=natural%20calm&qid=1452018016&ref_=sr_1_3&s=hpc&sr=1-3

        • Ann January 5, 2016 at 11:48 am

          Hi mark
          About The magnesium, i live in sweden. But The kind of magnesium i take is better for The stomach, first i took The wrong magnesium, and I couldnt take it, but this are more softer to The stomach.
          Ohh i was going to put on The stereo, with full volume over here. Haha… No just joking. I Will start with a low sound, so i can tolerate it, and then more and more over time. I hope that this Will make our ears more tolerate to sounds in the future.

    • Lucy Sky January 9, 2016 at 8:40 pm Reply

      Hi Marc
      Re your occupation as a sound engineer and sound sensitivity. Have you had a Hearing /audiometry test at all?
      Some Companies who have an Occupational Health department have the equipment to do an audiometry test. This should be done in an audiometry booth in order to get an accurate result/reading.

      Lucy

  32. Lucy Sky January 5, 2016 at 8:39 pm Reply

    I just wrote a long posting to Ann about the headaches etc and it disappeared off screen. Will write again.
    Lcy

    • Ann January 6, 2016 at 1:01 am Reply

      Hi lucy
      So you write about my headaches, some tip about? Because The pressure in my head are there The hole day now, couldnt sleep tonight because of it.

      • Lucy Sky January 7, 2016 at 8:37 pm Reply

        Hi Ann
        I apologise for the long posting.

        I am writing this with the assumption that your headaches have been investigated.

        As always I can only speak about my own experience in this matter in trying to get answers for the cause/treatment of the disabling headaches and throbbing eye pain.

        I am finding it difficult to write this and I think it is because the whole thing was/is so stressful and horrific. Please bear with me .I may have repeated myself but I am trying to get this done as best I can in order to help you.
        I am trying to focus on the headaches and eye pain but I had several other signs and symptoms alongside these due to being floxed.

        I had had severe persistent headaches and eye pain in the right eye for several months when I was referred to an eye specialist.

        Following a full eye examination he told me that I had the following conditions.

        Dry eyes, concretions, posterior vitreous detachment.

        He removed the concretions and the relief was immediate. He next prescribed lacri lube at night and artificial eye drops during the day.

        However the ophthalmologist could not account for the headaches so he referred me to a neurologist who specialises in chronic migraine.

        The neurologist told me to avoid caffeine, codeine, analgesics and to exercise in order to stimulate the endorphins.
        I had been taking a total of 3 to 4 co codamol a WEEK, that’s right a WEEK for a dislocated shoulder. the neuro told me that that was more than enough to give me or anyone else a chronic analgesia headache!

        Codeine has horrible side effects including causing headaches, making the eye swell as well as it being a drug of addiction/dependence. It also suppresses the production of the body’s natural anti depressants and pain killers namely the endorphins.
        Fortunately I was not addicted to the drug.

        Things that helped control the headaches.

        Taking the neurologists advice!

        Avoiding codeine. After 10 days of stopping it my headaches subsided quite considerably. There are withdrawal symptoms.

        Avoiding caffeine but having said that one can get headaches due to the withdrawal of caffeine so I decided to reduce the number of cups of caffeinated tea and use decaff tea as well.
        This seemed to work somewhat.

        EXTRA INFO ABOUT THE EYE PAIN.

        On ONE occasion the eye pain suddenly changed in nature from a throbbing pain to a severe stabbing one in the right eye.

        I phoned the ophthalmologists pa up straightaway she said it sounded like a pick axe migraine which whilst excruciatingly painful is not detrimental to vision. However she made me an appointment for the same day just to get my eyes checked out.
        My eyes were okay in the sense that nothing new was found.

        CONCRETIONS.

        These are chalk deposits in the eyes.
        These aref ormed due to lack of lubricating fluid normally formed in the glands over the eye surface ,the underneath side of the upper eyelid and the tissues surrounding the lower eyelid .Consequently without the lubricating fluid the eye becomes sore, sometimes one can also get a red eye with a sensation of sand, grittiness, a foreign body in the eye(s).

        It was explained to me by drs that because of the constant irritation experienced in the eye then one develops headaches and pain in the neck muscles.

        A vicious circle of eye pain, headaches, stiff neck, muscular pain in the neck and shoulders is then set up.
        Obviously one has to break this vicious circle.

        Other things that helped me were as follows.

        Having short to medium length hair style .
        This is to avoid the weight of the hair especially when wet pulling on the scalp.
        j
        Avoiding water splashing into the eye and cutting down on hairwashing.

        Using a very mild unscented shampoo in small quantities.
        After hair washing drying the hair straightaway to avoid the heavy wet hair pulling on the scalp.

        Avoiding wearing hats and headscarves.
        .Be careful not to get any water in the eye especially any splashing up when turning the tap on.
        The pressure from just a small amount of water splashing up and into the eye(s) can be very painful indeed.
        Avoiding dry atmospheres whenever possible or going near fans .

        Avoiding sprays, polishes, aerosol sprays, scented flowers, perfumes , paint fumes , building works as the dust will irritate the eyes,etc, etc.

        Putting heat [ads, hot water bottles on the neck and shoulders. Ice packs -wrapped in towel or a pillow case to avoid an ice burn. Have to be very careful not to leave on for longer than ten minutes.

        Sitting in a good posture with the back of the neck supported with a small cushion.

        Everything at eye level to avoid putting a strain on the neck muscles and the back.

        Sleeping in a bed that provides proper support with pillows that are also supportive .
        I have a wedge shaped memory foam pillow underneath the ordinary pillows for support of my neck.

        Changing ones posture and position at frequent intervals.
        Sitting and standing correctly.

        Doing gentle neck exercises.

        The above things have helped me tremendously. I went to a physiotherapist for a full assessment first before embarking on any exercise programme.

        Ann if you have any queries please let me know.

        Lucy.

      • Lucy Sky January 7, 2016 at 9:29 pm Reply

        LAnn I meant to mention blurred vision as well. Dry eyes can also be a sign and symptom of Sjorgrens syndrome and also thyroid eye disease. these are treatable which can make a huge difference to your life.
        lucy.

      • Lucy Sky January 10, 2016 at 7:00 pm Reply

        Ann I sent u a long posting about pressure in the head and eye problems.I don’t know if you have had the chance or felt well enough to read it yet.
        Lucy

  33. Jason January 6, 2016 at 12:35 am Reply

    HAIR FALLING OUT

    For everyone with hair falling out issues etc, I just got an email from someone else asking about this so I am going to repeat the info here again, and have posted about this in the past. The Cipro screws up Thyroid function in many people, whether it shows up on test, or not.

    Here is another good article about why Iodine is so important:

    http://www.health-science-spirit.com/iodine.html

    Quote:

    “The main causes of suppressed thyroid functions are Candida, mercury and fluoride. Until the 1970’s Fluoride was prescribed by doctors as thyroid-suppressing medication for patients with an over-active thyroid!”

    You may monitor your thyroid function by checking your temperature before getting up in the morning. Measuring under the tongue is more reliable than in the armpit. Women before menopause measure in the first half of the cycle before ovulation and best in the first week after the start of a new period. The temperature should be 36.5ºC (97.6ºF) or higher, otherwise the thyroid is likely to be under-active. However, be sure that you do not have a raised temperature due to a healing reaction or an infection.”

    ——-

    So we see here two issues that apply to MANY and likely most Floxed people, Candida and Fluorine/Fluoride. It is no surprise Thyroid issues are so prevalent, minor or more serious with hair falling out, sagging skin etc, Fluorine robs the Thyroid of much needed Iodine this is very well documented.

    The following is from Walter Last’s book, “Heal Yourself the Natural Way”, here is a quote that shows how much he thinks need to be taken for Candida (note I think the amounts are a little high, and extra care is needed because high amounts of Iodine can damage the Thyroid, also note he is not talking about Floxed people, just people with Candida below, so in my opinion more than 3 weeks is needed for Floxie):

    “It is commonly used as Lugol’s solution with 10% of potassium iodide and 5% iodine, and may be called 5% iodine solution. Each drop contains about 6.5 mg of iodine/iodide. Other names for Lugol’s solution are Aqueous Iodine Oral Solution BP or Strong Iodine Solution USP (both of which contain 130 mg iodine/iodide per ml). Iodine. Topical Solution (USP) contains 2% iodine and 2.4% potassium iodide. Therefore if you use this 2% iodine solution take 2.5 times more than the amount recommended for Lugol’s solution. In the US you may also buy Iodoral tablets, each with the equivalent of 2 drops of Lugo’s solution. I do not recommend pharmaceutical types of iodine dissolved in alcohol or other solvents as they often cause side-effects.

    To test for allergy (which is very rare) take a drop of iodine in liquid other than just water. If there is no reaction, gradually increase to 6 to 8 drops 4 times daily or 10 drops 3 times daily in liquid or mixed with food. Do not take the iodine directly with antioxidants but it is fine to have antioxidants five or more minutes later during a meal. You may use more or less iodine according to body weight. I believe that a 3-week course adjusted for body weight is generally safe for children. However, it may not be suitable if the thyroid is overactive or with goitre; with these conditions the amount of iodine may need to be increased much more gradually and adjusted according to symptoms.”

    —–

    I will note that taking Iodine has been reported to mobilize Fluoride, and thus can possibly mobilize Cipro in the body as well, which is how I used it myself. Thus my recommendation to anyone going to take Iodine, is to take a LOT of antioxidants to help prevent damage from the mobilized Drug/Fluorine, and take things to BIND to the toxins, Benonite Clay, Chlorella, etc I have been over this many times in past posts, please see old posts, including the ones near the top of this page where there are other recommended things to take as well, and as always, lots of Magnesium and other “normal” things that are needed for Floxed people, will be needed even more so if the toxins are cycling through the body (so yes, in my opinion Iodine has the ability to possibly cause a down-cycle, so care is needed, however, so is the Iodine…)

  34. Ann January 6, 2016 at 3:07 am Reply

    Im thinking about q10, im not eating that supplement, but im thinking of it. How much do you take?

  35. dan January 6, 2016 at 5:48 am Reply

    jason, help. i discontinued supplements 3 days ago. cant sleep due to itching and prickling sensations mostly in face. want to go back to the gym but i am scared.joint popping seems better but still spasms mostly at night. thinking of wellness center in atlanta to do some tests etc.. money tight. should i wait it out? still waiting on cell test. question is distiiled water better? did you have any neurological issues? do you know anything about h202 treatments? if i go back to the gym i will be taking magnisium before and after. spoke with atlanta well.. they said to exercice as much as i can but not over do it. seems like the more i rested the worse symptoms got. or they might of eventully sprung up anyway? thanks dan.

    • Jason January 6, 2016 at 3:54 pm Reply

      Hi Dan. Not sure what you are taking or why you stopped. Itching can have many causes, this could be one of them: https://floxiehope.com/2015/10/01/can-fluoroquinolones-activate-mast-cells/

      Prickly sensations sounds more like nerve issues

      For Insomnia see my suggestions on this page, and in Anxiety article linked

      Good news on the Joints, keep up Mag for the spasms (might help nerves too, and Insomnia etc)

      Well tests are always good, not sure which ones you are thinking of to weigh whether or not they could be helpful and thus worth it, especially if money is tight, it depends on main symptoms showing as well etc to know which would be best, and if worth it or not

      Distilled Water like RO water is a VERY empty water, I’m not sure if one of these is better than the other, that would depend on who you ask, they are comparable anyway, the main thing is that both should be fairly pure, but also acidic and empty, so what I do is add some Minerals back to my RO Water, this kills 2 or 3 birds with one stone

      Somehow I managed to escape most neurological issues, I did have Brain Fog before Cipro, but luckily it really didn’t get much worse if at all, and somehow I escaped Anxiety (being at home, no job helped, and of course all the other things like Diet, Supps etc) for the most part. It wasn’t a “full escape” though, I had AWFUL Insomnia, I had some on and off before Cipro will after Cipro I REALLY had it, until I figured out which supplements worked best for me, and which does I had to use etc. I also had some Depression some days, and Suicide thoughts, this is pretty much “par for the course” unfortunately from what I have seen, so its important people don’t blame themselves for feeling this way, and just know the drug causes this in several possible ways, and just need to pull through it, it will pass

      H202 treatments have helped people for different things, there are IV’s, can be taken as supplement (liquid form, I tried this), and even rectal treatments, which would likely be helpful to those with Candida issues etc. I am no expert on this treatment and have not researched it extensively.

      Symptoms are pretty much unavoidable, if not entirely, despite taking a TON of supplements sometimes it “seemed” like nothing would help, even if they were only stopping things from getting worse, keeping a level from getting lower, etc. We can’t totally avoid stimulation, exercise, food, etc etc, but we do have to try and listen to our bodies, so if moving around helps you, then I would “go with it”. Just know that exercise does have the ability to cause a down turn in symptoms, especially the more intense it is or the more someone pushes themselves, everyone has a different tolerance, and IF it does cause a downturn, in my opinion from exercise it is not necessarily a bad thing, depending on the timing (don’t want it happening if already suffering a lot) as it means some of the toxins are being released and hopefully purged from the body, so part of the healing process, IMO anyway. I did this to myself on purpose, I really don’t know what would have happened if I did not, I can only speculate that eventually the “Down turns” would have came anyway, by one trigger or another. What is important when exercising is REST, really rest is always important to healing, but if pushing one’s self then even more so (it won’t help avoid a downturn necessarily, though, but its still very important regardless)

      • Lucy Sky January 8, 2016 at 5:33 am Reply

        Dan and Jason
        Tingling also can precede an attack of shingles. Lucy

  36. Mark S January 6, 2016 at 6:51 am Reply

    I seem to react badly to Vitamin D3. It flares up my tinnitus as well as much Achilles symptoms. However I am deficient at a level 24 and need to stay on it to get into optimal range. Should I just ride it out for now to increase my levels? It’s a major catch 22 for now.

    • Lisa Bloomquist January 6, 2016 at 9:06 am Reply

      Hi Mark,

      I think that Ruth’s advice of getting your magnesium and vitamin K2 levels up is good. Natural sources of all 3 may be the best way to start, until your body can stand supplementation. You can get vitamin D3 from the sun – or tanning booths – but be careful with both and don’t burn yourself. Vitamin K2 is found in brie cheese rind and kimchi, and in some other foods too (google it for more info). Most people tolerate topical application of magnesium well. You can get in the ocean, take epsom salt baths, and/or use Ancient Minerals magnesium oil. Eventually, you should become more tolerant of it – I would think. You want to get your vitamin D3 levels up, but if you can’t tolerate supplementation, well, spending time in the sun is a good alternative.

      Regards,
      Lisa

    • Jason January 6, 2016 at 10:27 am Reply

      Mag & K2 are important, I can’t remember if there are other factors other than D3 is fat soluble so its best taken with a meal that has fat with it.

      I’m pretty sure all Floxies are deficient in Magnesium maybe not in the blood, but much more importantly right in the cells, and it is HARD to get the Mag back in there, it takes a lot of time, and then even once it starts getting back in there, it is still being leeched out at times, like through stress and exercise, so it is a constant battle for a Floxed person to try and get that Magneisum sufficient again at the cellular level.

      Ancient Minerals Magnesium Oil is my top recommendation, it bypasses GI Tract, its fast and powerful, and will help alleviate Anxiety & Insomnia for those that use enough of it. I took a LOT of this, combined with many other Mag supplements, and all combined it worked but as I said its an ongoing thing, even 6 months later from being at 95% healed, it is one of those “residual damages” that is taking more time to “heal”, not sure it will ever be the same as it was, hope so, but for now I have to keep taking Mag, no where near as much as when I was suffering a lot, but I still need it, especially when exercising.

      Its a hard call on D3 for right now for you, we have to listen to our bodies, but yet sometimes things can get a little worse before they get better. D3 tends to make me a little tired, I try to take it at night with snack or supper. Not sure how much you were taking, but if it is flaring things up a little too much I would cut back a bit, for a bit, work on Mag & K2 and then try to work D3 slowly back up again

      • jwinn January 6, 2016 at 10:53 am Reply

        Can someone please help me with what type of Magnesium to take? I have chronice fatigue, severe joint and muscle pain, chronice insomnia, severe anxiety and depression, brain fog, memory issues….I never knew there were so many different types of magnesium out there! After reading a post from Ruth this week, I looked on my magnesium bottle to find out that it is 500 mg. of Magnesium Oxide, which I also read is pretty much useless to my healing. Now, I’m reading there is Magnesium malate, glycinate, threonate, etc. I don’t know which one I am supposed to take, or if I am supposed to take ALL of them. I would truly appreciate some guidance before buying (Type, preferred company, dosage). Any recommendations or advice would be greatly appreciated! Thank you!

        • Jason January 6, 2016 at 12:29 pm

          My goodness Jwinn this can possibly explain a lot for you, I’m sure with all those issues there is much more going on (please try to read through past pages, Gut/Diet/Candida/Inflammation/Acidity/Mineral deficiencies and more all likely issues for you, it would be great to get some testing done I made some very basic recommendations in the “I’m Floxed, now what” article, an 85 dollar Hair Metal/Mineral Test might be a good idea too Adrenal Fatigue surely an issue etc). 500mg is good amount, but Oxide is thought to be one of the weakest forms to take, and Mag is one of the most important things a Floxie needs, if not often the most important thing, IMO

          There have been a LOT of past posts about this, with a lot of very specific information, I will try to remember everything I did again here, which was a lot, but I also mostly healed in 3 months, so I tend to think many of the things I did worked

          Ancient Minerals Magnesium OIL – (not lotion which is weaker, and also the oil with MSM is weaker, MSM is good, though not tolerable for all, however Mag is needed more). This IS the most important one, IMO, because it is the most effective at getting it back into the cells, from my own experience, and from what experts say, hundreds of past posts about this. People need to start slow, it may cause “stinging” sensation, and can dry out the skin, it is supposed to be washed off after 20 mins or so IIRC. Start with 2 sprays each leg or problem area shoulder etc, then next day 4, if still tolerated keep working up the amount, when I needed it most I used about 20 sprays on EACH leg, this was when my legs were twitching up a storm and in tons of pain, the Mag helped a lot. I have no idea how much Mag I was getting from that, and to be honest I didn’t care a whole lot, it was working, and my body was telling me I needed it badly and I knew I needed it (especially if I was exercising). For dry skin, someone can ALSO maybe try the lotion, or use another natural lotion to help counter the effect. NOTE THE OIL IS VERY POWERFUL, I WOKE UP DIZZY WHEN I TOOK LARGE DOSES (and others have too), WHICH IS WHY IT IS MY TOP RECOMMENDATION FOR INSOMNIA AND ANXIETY, IT IS A RELAXANT TO THE SYSTEM AND IT WORKS WHEN TAKEN PROPERLY!

          Natural Vitality Natural Calm – This is a Ionic Citrate IIRC, supposed to be a good form, recommended by Dr. Dean an expert, not sure on dosage this one was pricey in Canada I did not use it, but I think everyone probably should, it is very well reviewed and has worked for past Floxies

          Those two are probably the most important, BUT, IMO, NOT enough for a Floxed person, supplements will also help.

          Magnesium glycinate or Bi-glycinate – This is highly absorbable, probably my top supplement recommedation, it is thought to “possibly” add to Glutamate which is a potential negative, I am extremely Glutamate sensitive and notice nothing with it, I took a lot of it and still take it. Follow directions on bottle

          Magnesium threonate – Another good form, many reported benefits, not sure how accurate they are (I did notice a difference with Memory, it is supposed to cross the Blood Brian Barrier…), I recommend this one and I took this one as well, follow directions on bottle

          Magnesium Malate – Another good form bound to Malic Acid with has other benefits (chelating Aluminum one of them), recommend and took this one, follow directions on bottle

          Magnesium Taurate – Supposed to maybe be calming (they ALL are really), did not use this one but it seems to be a good form

          Magnesium Carbonate – Still supposed to be good, I took it, but considered it the weakest of the bunch (it was in a Multi-Mineral sup I took)

          —-

          Those are probably the best ones out there (however, see just below), in the order I listed them, IMO, and I think using several of them is a good idea and what I did (I think I took a couple more not listed there as well), there is no telling which forms are going to work best, for which people, so leave nothing to chance, use the best ones AND some of the others, “cover all the bases”.

          —-

          Magnesium Bicarbonate – I’ve posted about this many many times, Dr. Sircus another expert on Magnesium calls this “The Ultimate Mitochondrial Cocktail”, I don’t think there can be much higher praise for it, than that, many Floxies have Mitochrondria issues, this is a Water which is really easy to make, cheap and effective, and I still do this to this day. Please search about 3 – 5 pages back and you will find my instructions for this, search the pages for Bicarbonate and you will find it quickly

          —-

          http://articles.mercola.com/sites/articles/archive/2012/12/17/magnesium-benefits.aspx

          Talks about K2, D etc, and the different forms a little

          —-

          Magnesium can be hard on Kidneys, so having that tested before taking large doses would be a great idea. Some forms can cause Diarrhea more than others, or if just taking a lot in general this can also happen, personally I did not worry about it, Mag in my cells was more important than sitting on the can now and again, but it is something to be aware of.

          So my recommendation, is to take the “shotgun approach”, its what I did and what worked for me. Several different types, rotated here and there, in the priority order listed. Constants are the Mag Oil, Bicarbonate Water, and Bi-glycinate, I used those every day (Natural Calm too would be a good constant). I tried to supplement at least 500mg with supplemental forms (I was taking so many other things it was hard at times) ON TOP of the Water and Oil, which is generally what I would recommend (working up to that amount, or even a little higher if body can tolerate it and needs it), but there are MANY variables for each person, how far out they are, which symptoms they have, etc etc etc

        • jwinn January 6, 2016 at 2:04 pm

          Thank you sooooo much, Jason, for taking your time to answer me! I appreciate your advice and will be taking it soon!

        • Jason January 6, 2016 at 12:38 pm

          I posted a really good article in the past on different forms but can’t seem to find it, here is another one:

          http://www.naturalnews.com/046401_magnesium_dietary_supplements_nutrient_absorption.html

          See what it says about Malate:

          Magnesium malate is a fantastic choice for people suffering from fatigue, since malic acid — a natural fruit acid present in most cells in the body — is a vital component of enzymes that play a key role in ATP synthesis and energy production. Since the ionic bonds of magnesium and malic acid are easily broken, magnesium malate is also highly soluble.

        • jwinn January 6, 2016 at 1:15 pm

          Thanks, Jason!

        • Jason January 6, 2016 at 2:52 pm

          You’re very welcome Jwinn. I hope it helps, I am quite sure it will, however….

          I do hope you also read through many of the past pages for more info on things to help, with your listed issues I would think your GUT is a top priority and a root cause to many things (very common even in non-Floxed people), if someone does not address their Gut and the root causes to their Gut issues, and they do have issues there, I really think this will stop someone from healing

          https://floxiehope.com/comment-page-43/#comments

          Starting at my comment on November 29, 2015 at 9:24 pm about 20% down the page, and then for pretty much the entire rest of the page I posted all about Gut

          Candida alone, which is just one root cause of Gut issues – can cause:

          Chronice fatigue
          Severe joint and muscle pain
          Insomnia
          Anxiety and depression
          Brain fog & memory issues
          Depersonalization

          and much much more, it also is a root cause of Leaky Gut, which then causes a whole host MORE and worse issues like Autoimmune “Diseases”, etc etc

          So I suspect Candida & Gut issues are likely an issue for you, as it is to many Floxed people (and even many non-Floxed people, but especially those that have taken any Antibiotics multiple times in their lives) and some level of Leaky Gut probably too. While some people’s bodies might be able to bring the Candida back under control on its own, many other people’s will NOT, I am one of those, my Microbiome was severely damaged in teens I believe too many Antibiotics etc, and FLuoroquinolones are probably the most powerful Antibiotic, so a disaster for Gut Health overall.

          Then add possible Magnesium deficiency, other Mineral and/or Vitamin deficiencies, Adrenal Fatigue (Candida again a root cause), possible Thyroid issues, Hormone imbalances, and we easily see why all this could unfortunately add up to 5 years of suffering for you.

          The Cipro can cause a HUGE mess of deficiencies, imbalances, symptoms and damage, and unless they are ALL addressed people can spin their wheels, take supplements and get absolutely no where. Some people get lucky, some can even do nothing and heal, the body is a miraculous but not everyone got “Good Genes” and some people are more susceptible and sensitive to things than others, so for them they have to give it extra help it repair itself, IMO anyway.

        • jwinn January 7, 2016 at 10:09 am

          Jason, my brother sent me some L Glutamine powder to help rebuild my muscle. I read in an article that this product may also help to rebuild the intestinal lining for leaky gut. Have you ever used this?

        • Stephanie January 7, 2016 at 10:29 am

          Oooohhh that sounds wonderful can you let us know how it works and the brand. I will wait for the update to try it. 😜

        • Stephanie January 7, 2016 at 11:23 am

          Thank you I hope it helps you I will give it a shot too💗👍

        • Mark S January 7, 2016 at 8:34 am

          Jason,

          How much weaker is the oil with MSM? That’s the one I’ve been using for a while! I started off with the original formula in the beginning and noticed much better results with that. Switching back to that one now.

        • Jason January 7, 2016 at 11:57 am

          Hi Jwinn. I am quite sure my GUT was VERY Leaky a few years ago, and still is to some small degree now. A few years ago, I went on a VERY strict diet protocol (mostly detailed on past page with Gut info) and was very aggressive with killing Candida, as I know I had a problem with that, which is a root cause of Leaky Gut, as I had all the symptoms of both, especially BRAIN FOG and ZERO Memory left, and many many other things, but 30 years in total I suffered, going to Doctors, Specialists, even Naturopaths and getting no where.

          What happened was quite remarkable, first I went through some typical Herx reaction and die-off, felt really crappy for a good week, then stabilized for about another week, all the while my body adjusting to the new diet, learning to run more off fat than sugar, etc etc. During week 3 I started getting healing reactions, where I was feeling a “tingling sensation” in my head, similar to “shivers up and down your spine”, this led to a CLEAR Head and TONS of energy! I could THINK! I could follow conversations, I started dreaming again, memory starts coming back, I could do calculations in my head again, its like a Miracle, 30 years of Fog dissipating, from the point of Dementia or Alzheimers to quick witted again and feeling GREAT for a damn change. This did not happen overnight, in the 3rd week it started, I would have days where I felt great half of the day, then eventually days I felt great the whole day, and eventually days where I felt I could jog around the city I had so much energy after maybe 2 months. Joints improved, Tendinitis went away, Blood Pressure dropped to normal, Cholesterol dropped through the floor to normal levels, etc etc and etc this list of improvements goes on and on

          Sorry I am getting off track here, but I think its important to know the backstory, my story is NOT unique, thousands upon thousands have gone through this same transformation, I just didn’t know until I finally stopped going to Doctors and through many many years of research, figured out that my Gut was one of my big issues.

          Ok so back to the question, after about 4 weeks total on the diet supplement protocol is when I started focusing on Leaky Gut, because you need to wait until you kill off a bunch of Candida, or you will spin wheels get no where, it is one of the most common root causes of LG (and many people who take Antibiotics end up with it), and must be eliminated to heal it. I took a product called “Repairvite K-60” by Apex Energetics, this is a very good product, expensive, but I did a LOT of research on LG and this has many of the most common recommended ingredients to heal LG, including a large quantity of Glutamine (Marshmellow Root, Slippery Elm, MSM, Gamma Oryzanol and a few others, those are the main ones though). Unfortunately now they require a Naturopath recommendation to buy it on most websites, though someone might be able to find it or work around that, I did 1 year ago when I bought more. I also took EXTRA L-Glutamine at the same time as this product, since it IS the most important supplement for healing Intestinal track according to many many experts. I do believe these things helped a lot in my original healing process.

          HOWEVER – This was BEFORE my latest Cipro poisoning. This is very important, because Cipro screws up Gaba receptors in many people, and all these people now become hyper-sensitive to anything Glutamate, of which Glutamine is one item. Post-Cipro, I have tried to take Whey, Glutamine and other healthy products and they ALL cause me Brain Fog (google MSG 50 hidden sources, I have posted this link many times, all those things needed to be avoided by all Floxies as well), sometimes so bad my Brain literally shuts down, to the point I need to go lie down in the fetal position, thanks, Cipro. This is another one of my residual damages that has not gone back to normal, I highly suspect I was sensitive to these things before and just did not notice, but for sure it is worse now.

          So that is the bad news for Floxed people and Glutamine. The potentially good news, is I may have found one way to counter it. I have taken Gaba many times to help me get out of these “Glutamate Brain Fog” jams, and it helps a lot, usually within 25 minutes I feel good enough to at least get out of bed or off the couch, so what about taking it to “prevent” the problem in the first place? So I did a little experiment, I took some Gaba and a few hours later, I took some Glutamine, it worked I had very little Brain Fog, note I have only tried this once though so far. Ideally if someone (Floxie) is planning to take Glutamine for maybe 3 weeks (minimum amount of time to see results) then they should take Gaba for a couple of days first, and then every day while taking the Glutamine.

          There might be other things that could help try to prevent the Fog (and note other people might experience Anxiety from the Glutamate effect, for me its Fog, both are possible too) and many of those other things I have listed here in the Anxiety article comments: https://floxiehope.com/2015/06/22/treating-fluoroquinolone-anxiety/ There are many options, I have posted about 50 comments total there, I am unsure which others besides Gaba itself could help the most, and it would depend on how someone reacts to it, Fog, Anxiety, or both, as some of them are better suited for one vs. the other. L-theanine might help, it did not work so well for me and my issues, it helps others, Taurine also and Vitamin B6 (P5P best form) could be very important, many many possibilities.

        • jwinn January 7, 2016 at 12:54 pm

          Jason, thank you once again for taking the time to give me such wonderful information!!!! I REALLY appreciate your help and your insight into all of my issues. My head spends around so much these days that I don’t know when I am making the right decisions. It causes me anxiety to even make choices about types of products and comparisons. I know it takes time for you to answer me in such great detail, and I truly appreciate you doing this for me. It helps me so much to hear from someone who has been there and made the path easier for those of us who are following behind your efforts in healing. Thank you soooo much!

        • Jason January 7, 2016 at 12:07 pm

          The other reason I told that little story, other than to inspire and give HOPE, was also because healing a Leaky Gut is no easy task, someone is not going to just take Glutamine and see results 98% of the time IMO, from all the research I have done on it.

          If someone has a Leaky Gut, the true root causes must be dealt with, like with curing any problem, for LG that can be many things, a food intolerance and diet like Lectins etc, or very often Candida. I would direct everyone interested again here: https://floxiehope.com/comment-page-43/#comments

          Starting at my comment on November 29, 2015 at 9:24 pm, and then for pretty much the entire rest of the page I posted a tons of info about all this and links to more info from experts etc

        • jwinn January 7, 2016 at 12:46 pm

          Jason, one of your posts on Nov 29 is where I found the information on L-glutaminepowder helping with leaky gut.
          http://draxe.com/4-steps-to-heal-leaky-gut-and-autoimmune-disease/
          It suggests that it may help. It’s worth a shot. My brother takes it for diverticulitis, and he says it helps him. We’ll see how it goes….

        • Jason January 7, 2016 at 12:11 pm

          HI Mark. IIRC, I believe the pure Mag Oil is about 2.1 grams of MAG, and the MSM version is about 1.3 or 1.4 grams, with about 700 mg of MSM. Pretty sure the lotions have even less Mag. I also bought the MSM one and used it and still do, it works for me (and surprisingly I don’t react to the MSM like I normally do with MSM) but for sure the regular one makes even more difference.

        • Jason January 7, 2016 at 2:22 pm

          You’re very welcome Jwinn, please read all of these posts carefully, because I would love to see you start getting better and stop spinning your wheels….(mounds of supplements NOT addressing root causes to the issues etc…)

          I just went back to the last page where I think you more or less posted “your story”. NO MORE DOCTORS! Please. Drugs have made your situation much much worse IMO, so that is one of my other top suggestions, if you really need one, make the drive to the ND, things they recommended won’t hurt you more and will likely help a lot, unlike the things the “Doctor’s” have been giving you.

          Also, please see my old posts about Acidic Blood, Alkaline foods, Inflammation etc etc. Circulation issues which you say and seem to have can be due to Acidic Blood, something I constantly battle with myself, DIET IS CRITICAL, Food has the power to HEAL or HURT you, quite literally. So for your conditions, I would try to avoid all the most acidic foods like Sugar (Candidas favourite food as well), Coffee, Beef (once in awhile ok), Cheese huge no-no, etc etc AND you should really try to eat more Alkaline foods, AND do other things to Alkalize the blood and body, which will help alleviate pain for some people, and help improve circulation as well, and help alleviate some inflammation, etc etc etc. Here is a handy little guide I posted before: http://www.billschoolcraft.com/ph.jpg generally veggies good, most other things, not so much

          What I also do is drink ACV, 15 mins before eating helps with digestion as well. Take a Multi-mineral supplement. Drink fresh squeezed Lemon juice in water. Drink 1/2 TSP of Aluminum free Baking Soda in a large glass of water (tastes gross, but it works, can give me Insomnia however, too much Sodium have to be careful can throw Minerals out of the balance). Drink Chlorophyll (many benefits) water, put 2 – 3 TBSP of Chlorophyll in 2 litres of Water, 1/4 TSP Borax, juice of 2 Lemons and 1 Lime, 1/8 – 1/4 TSP Himalayan Sea Salt, shake well before drinking throughout the entire day, drink this every 3 days for awhile, I still do this probably once a week, or after eating bad stuff and I feel myself getting “tired” (acidic blood gets worse from bad diet…) etc.

          Also, AVOID HOT showers and baths. Anyone in a lot of pain with Joint, Tendon and Muscle issues is likely suffering from too much inflammation (usually starts in GUT and radiates to the rest of the body), HEAT will aggravate it and can make it worse, I know this first hand, but many experts have cited this as well. COLD does the opposite, it sucks, I HATE cold showers (I start warm, stand out of way most of time, then end in cold, and if having trouble with an “area” make sure to put coldest setting water there), but I am always glad I did them afterwards because I feel better, more energized, etc etc, (Cold shower is one of the MOST recommended natural “cures” for Depression, and to me, its because it reduces inflammation which helps people to feel better). Johnathan the “Tendonitis Expert” one of the authors of the FQ Toxcitity book (a good book mostly) has written books about this, and about Cold Water treatments and I have helped cure some of my Tennis Buddies long standing Tendonitis by telling them about the Cold Water treatments, and diet etc. It works (by shutting off inflammation, something many Floxies are suffering from), if someone works at it….

      • Mark S January 6, 2016 at 12:24 pm Reply

        Jason and Lisa,

        Thanks for your advice. I’m going to cut back on the D3 for a bit and really focus on my Mag and K2. I can definitely tell I’m still deficient in Mag because as soon as I take D3 I get the symptoms flaring up. Eventually it will be imperative to get the D3 up, but for now it’s making me feel noticeably worse. The Magnesium will have to take priority for me in the interim. Then once it gets warm and sunny again in a few months, I will start laying outside.

        Thanks!
        Mark

      • Lucy Sky January 10, 2016 at 7:33 pm Reply

        Jason I keep on posting the same message which is that I am unable to have Vit K2 as I take warfarin. Is there a substitute? Lucy.

        • Jason January 10, 2016 at 9:26 pm

          I don’t think anyone here is aware of one, including myself, this is something to ask a Naturopath, Functional or Integrative Doctor

    • Lucy Sky January 10, 2016 at 3:31 pm Reply

      Marc
      I am going thru a very bad patch with tendon issues and burning the present. I was also wondering about D3 worsening the tendinitis because it increases the amount of calcium in the body and this means more calcium gathers in the tendons. Catch 22 .
      Shall I take the adcal D3 and magnesium.
      I feel as if I have flu as well.

      lucy

    • Jason January 6, 2016 at 10:34 am Reply

      Sounds like a good candidate for an “Article” for Floxie Hope, “Hair Loss issues for Floxies”

      There is the Thyroid Iodine Candida connections, and if this article is accurate, Iron deficiency, Histamine, Mass Cell issues and inflammation possibilities as well, ALL things we know are common in Floxies. That article mentions a few more ideas to help, hope everyone with the issue reads it.

      Lisa I do hope you will organize your past articles into useful sections one day as I suggested before, I think this would be a HUGE help for Floxed people looking for specific information on things

    • Linda January 7, 2016 at 6:16 pm Reply

      Thanks for the post Lisa, Those damn mast cells/histamine again! Although I suspect, as she mentioned, stress could have been an obvious culprit, what with gasping for breath, barely able to move, extreme pain, blurred vision, etc. I am guessing my body/mind was about as stressed as is humanly possible. I got excited about the peppermint oil until I read on the link that too much topically applied can be toxic. I will try to look into that nigella sativa she mentioned early on. I do have a question though I have been meaning to ask you. She also mentions green tea, which I used to drink before this, but I recall reading floxies should not drink green tea. Is that because of the fluoride in the leaves or some other reason? Because if it is just the fluoride, I could buy from a country that doesn’t fluoridate.

  37. Stephanie January 6, 2016 at 10:33 am Reply

    Does anyone know why we get spasms? May sound like a stupid question but I’ve tried magnesium spray to stop them to no avail. Mine are getting more violent to the point where my boyfriend watches me and gets scared. He is not the scared type. I don’t see it so I don’t know what it looks like to me it feels like my nerves are randomly firing I take all the supplements you are supposed to take every day.

    • Jason January 6, 2016 at 1:01 pm Reply

      HI Steph. I tried researching the “Turrets” like symptoms you are having before, and to make the connection to Floxing, and thought I posted a reply to you in the past but can’t remember for sure or not if I did (I remember looking at Epilepsy, too)

      How much Mag are you taking? If it is a combination of Muscle and Nerve Spasms, which it very well could be, then the Mag would seem critical here once again, it is very difficult to get back into the cells, and with you being severely Floxed it will likely be that much harder, see my reply to Jwinn about this, shotgun approach needed IMO

      • Jason January 6, 2016 at 1:05 pm Reply

        Maybe I never finished fully looking into it, it is a little complex, I remember looking at this website before as well and thinking it had some good info, but not sure if it fully applies to you, or not: https://www.tourette.ca/what-is-ts

      • Stephanie January 6, 2016 at 1:38 pm Reply

        Thanks Jason I will look at it. I take magnesium but maybe it’s the wrong kind. I have the spray too going to try to increase the amount of spray. Maybe I didn’t use enough.

        Txs for the link on turrets but it doesn’t apply to me cause I never had it before the crappy levequin and cipro. The neurologist said it cannot be reversed and that the damage is too far gone. IMO I think that if I could afford a freaking brain scan or a test of my nerves they would see deep damage again I was give. A lot plus given steriods plus given flagyl the doctors just just tossing more and more pills at me. Lmao still sick more pills more pills. Oh you call us crying that the pills are hurting you here just take some of these.
        My ND and you guys are really the only people that give me hope. I stay positive because it’s who I am. I know one day I will heal it may take longer which is why I ignore time lines cause again I have a lot to clean out. I just know and cling to knowing one day I will be better. Thank you again for always trying to help it gives me hope. The worst thing is if people give up on you. Western medicine Drs are quick to give up on you and say here is your life it sucks to be you. I know that stimulation is a key factor. So that’s why sometimes I just put away my phone and lay bored as heck in the dark because it’s the only thing that helps. I wanted to go to a rock concert in feb but since movies are a challenge for me I think I have to say goodbye to concerts for the time being which is freaking hard for me to say. I love music and can barely tolerate listening to it anymore. When I do my turrets is out of control and will spasm till I pass out. I am considering just putting all the videos I have on YouTube and say this is what levequin and cipro did to me thank you FDA. Hahahaha maybe it will freak enough people out that we can get some attention on this matter. Its hard for me to record it and my boyfriend tries to just keep me calm when it happens and will not stop to grab a phone when it happens. Lol I guess that’s a good thing lol

        • Jason January 6, 2016 at 1:48 pm

          Yes I remember a little more now, and that since you know that CNS stimulation is a main trigger for the Turrets, than it sounds largely nerve based, so Mag is one thing that can really help, but there are others like that one specific IV, the related supplements I recently linked, I think I made at least one good detailed post in past on all the good possibilities that can be taken for nerves.

          Don’t believe the Neurologist, that is always their answer for damage, because they do not have a DRUG that fixes these things, and are not open to Natural methods. Many people have healed from Nerve Damage, sure some don’t, but then you have to wonder what variables there were, and there are many, just put all the odds in your favour, that is all someone can really do, and keep the hope!

    • Linda January 7, 2016 at 6:20 pm Reply

      Funny I should just see this post, Steph. Just back from my acupuncturist, and I had mentioned to him about our writing campaign, and happened to add some of the stuff you have gone through from Cipro. I mentioned the spasming muscles and he said “muscle waste.”

      • Stephanie January 7, 2016 at 9:22 pm Reply

        Well I will have to figure out how to stop that and add a copay for acupuncture now. Yay, maybe the protein powder will help me. Maybe I should just post videos of how I walk and then have people guess my age. Then surprise them with 35 and say this is what cipro and levequin did to me. But hey, the FDA put a warning on it and no one freaking told me this could happen so my bad. Lol

      • Lucy Sky January 10, 2016 at 8:15 pm Reply

        Did he suggest Pilates for the muscle waste?

  38. Catherine January 6, 2016 at 11:18 am Reply

    Since I was severely floxed 3 years ago, I have been unable to sit up for more than a couple of minutes. If I do, I get more and more light headed, my whole body becomes weak and shaky and I pass out. It’s even worse if I talk – I have to make sure I am lying down before I say anything, Does anyone else have this? It’s completely disabling – because I can’t sit up I can’t even go out in a wheelchair, but am confined to bed or the sofa. After 3 years like this I’ve had enough – I want to go out in the world again,
    Has anyone else experienced this? Any idea what causes it and what I can do about it?

    • Jason January 6, 2016 at 12:54 pm Reply

      Hi Caterine. There are MANY possible causes for this, here are some to consider you really should try to see a Doctor, even a regular one can test for some things, a Functional, Integrative or Naturopath would be much better for helping SOLVE the issues though:

      – Low/High Blood Pressure – (This has many causes, itself, like directly below)
      – Mineral Imbalances – Magnesium, Iron, more etc etc (those two are typical in Floxies)
      – Acidic Blood – Often caused by, Mineral Imbalances, like from being Floxed, Diet, etc
      – Low Blood Sugar
      – Dehydration

      There are many many more, and I might be forgetting an important Floxie one here not sure but those would be my most probable guesses for yourself off top of my head, and you may even have a combination of them. It could even be something serious, I would recommend testing ASAP, low Iron is VERY dangerous if it gets too low for just one example

      Not a very good website this one, at all (terrible really), but here is a small list of some:
      http://www.mayoclinic.org/diseases-conditions/dizziness/basics/causes/con-20023004

      • Lucy Sky January 10, 2016 at 8:33 pm Reply

        Jason

        Just a word of advice.
        I think that you should be advising Catherine to see a neurologist or cardiologist with the signs and symptoms she is describing.

        The cause could be simple only a dr can say.

  39. Melissa January 7, 2016 at 1:51 pm Reply

    Hello all. I am so glad to have found this website. I have not been able to find support otherwise. People, doctors don’t want to believe what I am trying to tell them about the cause of my symptoms. I am 10 weeks from taking the last Cipro, started to notice symptoms about two days afterwards. I had incredible pain in my hips and legs, felt as if I could not move them. The past few months have gotten better with the hip and leg pain. My muscles still feel very tight at all times, mainly my legs and glute areas. Now I am experience pelvic pain and burning pain throughout my thighs and buttocks. I also have numbness in a couple of fingers and toes. I am very, very scared as what to do next. Has anyone else experienced these type of systems and have noticed them resolving. Any help/support will be appreciated. God bless and thank you.

    • Linda January 7, 2016 at 6:38 pm Reply

      Hey Melissa, glad you found Lisa’s site. Yes, we are all used to being disbelieved by doctors and others. (For a little support when you go to see anyone, take a look at the myriad articles Lisa has in the resource section and print a few out—esp the letter from a doctor who was floxed. Personally, I think you should avoid all MDs for now and find yourself a good naturopath esp one that does IVs like phosphatydilcholine, high dose vitamin C, Myers. These are all nutrient IVs and will help you detox and the the first one helps with nerve damage.

      I have had all you are experiencing and more. Cipro destroys collagen, muscle, bone, etc and also can cause horrific nerve damage, and I believe those two things are contributing greatly to what you are experiencing in the leg, pelvis, buttocks areas. (I had so much nonstop pelvic pressure I thought I had another UTI several times, but only once did I actually have it.) Things may get worse before they get better , so don’t panic if they do. In addition to finding a good naturopath or other natural healer, like an integrative MD or acupuncturist or Chinese herbal doctor, do no take anything with fluoride, including water. Buy spring water or reverse osmosis water (you need to then add back in the good minerals). Do not take any steroids, (which many doctors would unwittingly prescribe) and no NSAIDs either. Try to “eat clean” (organic, non-gmo) and consume as many fresh, organic vegetables and fruit as you can. There are many wonderful posts on here about what has helped different people. For my the IVs were the biggest help, but also supplements and clean eating.

      • Melissa January 7, 2016 at 7:31 pm Reply

        Hi Linda, thank you for your advice. I just made an appointment with an intergrative MD next week. I will definitely discuss the IV treatments you suggested. I feel things are getting worse, almost to the point of being scared to wake up. How are your symptoms now?

        • Linda January 7, 2016 at 8:46 pm

          Well as scary as it is now Melissa, all I can say is “hang in there.” It will get better. I had horrifying breathing problems to where I was gasping for every breath for two months. Really just wanted out. Remarkably I am still here today, and though my breathing is not normal it is vastly improved. (not lungs but perhaps autonomic nervous system damage and or mitochondrial damage to the heart muscle.) I still have pericardial effusion (fluid around the heart) and I still have numb toes, anxiety, vision-filling floaters and fatigue. But I am so far from where I was. I had dropped 32 lbs lbs in less than 2 months with muscle waste. I was bed ridden for a while, numb and spasming fingers, horrific olfactory nerve damage to where every single thing in the world asphyxiated me (truly nightmarish—like being on an elevator where everyone is wearing grossly strong perfume and someone just used bleach everywhere—only you can’t get off the elevator.) Now I have about 10% of that and “phantom smells” on and off that smell like cigarette smoke. I have gained back all the weight I need to. People were dropping off food and water for about 4 months and now I am able to go out and do everything for myself. the excruciating back pain left about a month after I started IVs and never came back.

          I think the PC IV I mentioned before was most helpful. I also was getting IVs of H2O2 because I had been on asthma meds, which are all steroidal now. Interestingly, I have now been med free and my asthma is better controlled now than when I was on pharmaceuticals! But H202 also bathes all the cells in oxygen, so it was good for other stuff too I believe. (Some people also get ozone treatments. I did not because there is some overlap there with the the H2O2.) The high dose vitamin C helps rebuild collagen, among other things.

          So glad you found an integrative doc! You’re ahead of the game. I started noticing side effects my second day but spent the next month and half wasting time going to ill informed doctors who only wanted to do test and more tests and more tests. Only one of 12 was even aware of ANY side effects, and one said in my report (even though he looks at me with such interest during the exam) that I was delusional. I was so afraid to see a naturopath I held on to his number a month before I went. That is my regret–that I didn’t call right away. But glad I got in there within a couple months of this poisoning.

        • ChristmasCarla January 9, 2016 at 3:14 pm

          Linda and Melissa … I get extra oxygen in the form of Food Grade H2O2 taken in Aloe Vera juice. I started this at the advice of my chiropractor 27 years ago because of long-term chronic lung congestion.
          At first I bought Dr. Dornsbach’s Super Oxy at the health foods store for $20 a quart. Dosage is one ounce morning and evening, so a quart lasted only about two weeks and it got expensive. I liked the help it gave me for breathing and clearing congestion, so I wanted to keep taking it. I figured out the basic ingredients were aloe vera juice and H2O2, so I got some of each and experimented.

          My present recipe is one gallon aloe vera juice ($7 at Trader Joe’s and $25 everywhere else) and one ounce (1/8 cup) Food Grade Hydrogen Peroxide (can be ordered online and kept in freezer). Mix the juice and H2O2 and take an ounce morning and evening. To take, swish around in mouth, gargle, swallow, and breathe in and out deeply a few times. For me — for 27 years — this opens my breathing and causes congestion to be expelled. Sometimes it takes ten or fifteen minutes to loosen congestion, but once it is coughed out, the lungs stay clear for some time. Always cough with your head down, like leaning over the sink, to help the lungs clear.

          I attribute my use of this oxygen and aloe therapy for the fact that I have not had significant lung problems in my Flox battle, although I am battling many of the others — tendon damage and muscle weakness, fatigue and neuropathy. Although I am in my 70s, I was not damaged as badly as some of the people posting here who are much younger, and I attribute that to the fact that I gave up on doctors and drugs back in the 1970s and have been learning self-care for more than 40 years.

          I was given either Cipro or Levaquin intravenously when I was hospitalized after an accident in 2013. I asked about it before they administered it, and the nurse just shrugged and said, “It’s just a common antibiotic given to everyone.” My nurse friend who works in Emergency says they commonly give Levaquin to incoming patients when they are not sure what’s wrong with them. I think they are so afraid of MERSA they just go overboard with the antibiotics.

          I’m very grateful to have found this forum for exchange of information, and my resolution for 2016 is to share this information as much as possible. To raise awareness of the dangers of these drugs, I have passed this issue on to my doctor, nurse friends, my chiropractor, other health practitioners, and I have posted it on my Facebook page. I have insisted to all my loved ones that they make sure they never take them and to make others aware of the dangers.

          I hope my contributions will be of help to others going through this terrible plague. It certainly is helping me to know I’m not the only one battling this and to know what’s caused it and what we might do to get well.

        • Linda January 9, 2016 at 3:28 pm

          Thanks…I actually got h2o2 ivs but this breathing problem is not lung or oxygen related. Likely damage to autonomic nervous system or mitochondrial damage to heart muscle, but thanks for the thought. Thanks to the h2o2ivs I no longer take asthma meds though, great stuff!

      • Melissa January 8, 2016 at 7:21 am Reply

        Linda, thank you for taking the time to help. It really means a great deal. My family doesn’t believe what I am telling them, they just can’t believe it was from the Cipro and are pushing for me to take steroids prescribed by my GP. I told her at that time I would not take them.
        I’ve done a mri and it came back normal, dr thought I had a pinched nerve. I talked to her about Cipro and she said it was more of a tendon problem not any nerve pain. I know I was fine before the drug. I feel different parts of my body tingling and others have painful burning. I hope for you to continue healing, I hope that for all of us.

        • Daniela January 8, 2016 at 2:22 pm

          I was just about to write that I am having hip pelvic glute tailbone pain and burning too. I worry it’s flox-caused prolapse, where the tendons are weak and tissue falls.
          The good news is that I had exactly the same feeling years ago and recovered completely, though it took months and months.
          Still it’s distressing for it to cycle back. It makes me feel like this will never end, and I am so disappointed and worry it is getting worse.
          Like last time, the acupuncturist suggests astragulus ( he calls it Qi falling)

        • Linda January 8, 2016 at 3:38 pm

          Ugh…how disappointing for it to return. I know the feeling. Some things I thought were gone—like olfactory hallucinations keep returning. I wonder if the there are a couple things happening here and not just tendon issues. I had incredible pelvic area pressure but not the others and I believe it was more nerve damage causing the sensations. My acupuncturist/chinese herbalist was able to finally make it go away with acupuncture and chinese medicine.

        • Melissa January 8, 2016 at 3:40 pm

          Hi Daniela, I’m so sorry that it is cycling back. The good news is that you recovered from it one time already and will again. Did you also have any problems with your thighs burning as well? What did you find helpful? Would you recommend acupuncture?

        • Daniela January 8, 2016 at 6:41 pm

          I highly recommend acupuncture – he is from China and he cured me of the arthritis type pains I had for two solid years in just a few weeks, treating me for “circulation”.

          The boiled astragalus makes me a bit nauseous but I remember doing it a few years ago when I had the same problems and it obviously helped then.

          Lisa mentioned that it could be prolapse in this thread a few years back, so I am freaking out about that. According to the powers that be, it is only treatable by surgery. But then I try to remember that the medical establishment says everything needs a blowtorch treatment and I have personally found that to be completely untrue.

          Oh, that reminds me, don’t forget the Kegels ! The acupuncturist said to picture cupping the pelvis and eventually it will just happen without having to clench, and it was true!

          As opposed to other floxies, I seem to have lost the ability to get depressed (though it might be because I can’t produce tears anymore), but if I were to feel sad, I would be feeling really really bad right now 😦 😦 I was ready to call myself mostly cured but this is quite a setback.

          Thanks for your words of encouragement. I’ll try to remember that I got over this once before. Maybe it’s “retracing” which is a part of healing. But it’s hard because I read the nasty WebMD stuff about how prolapse comes and goes until it is incurable.

          Then again, I was told the same thing about rheumatoid arthritis and I am so glad I did not take those meds and found another way.

          By the way, I had asthma and phantom smells and tastes, in my ears as well, couldn’t bear the sound of a spoon in a cup. I think what helped me was acupuncture and constantly drinking mild herbal tea (ginger, star anise, linden, etc) and lots of water as well.

        • Lisa M Maskevich January 10, 2016 at 10:30 am

          I am reading about so many things that have happened to others and I HAVE NEVER EVEN THOUGHT TO CONNECT IT WITH LEVEQUIN> I had taken Levequin 6 times between 3/19/2007 and 2009. I never had a chance to say NO,I had no reason to be afraid of an antibiotic ,well my doctor knew what he was doing, or so I thought. I had to get rid of the sinus infection because it had been over a week with no relief in sight. I suddenly had “Chronic Dry eye ” among several other symptons,I just saw a post that said this also caused tear from producing, this is getting worse and worse, not only tendon tears, Neuropathy Mitral & tricuspid heart valve regurgitation. My skin will itch & if I scratch it, leaves a small circle where the skin just seems to Rub off ?? I have been suffering from these side effects going into the Ninth Year, and I am so afraid of what is next, I only know I am going to fight as hard as possible to rid by body of as much of these toxins as possible, thank you for putting up this site allowing us all to gather as much information possible, trying to help each other with different approaches. Some will help some will not all in all I am thankful for any and all information I find here, just knowing I am not ” CRAZY ” or a HYPERCODRIACK is a Wonderful feeling. You can imagine how hard it was for me back in 2007 & 2008 when these things were happening to me and I had NO IDEA AS TO WHY, that was an extremely frightening and painful experience for me, I could not explain why I couldn’t lift my head up, or why I couldn’t walk a mile a day anymore? There was nothing online anywhere, until 2013 when I saw an Ad from an Attorney asking about Tendon problems, after taking Levequin, finally an answer then last March that same Attorney discharged me from the Mass Tort because he said ” I was to young to have tendon tears and my Ankles had to have torn first, before shoulders” ? This goes way beyond monetary compensation now for me, it is about healing and helping to protect others, Stopping the use of these Poisons and keeping informed on all the New found ways to get this Poison out of my body before it is to late for me. Thank you so very very much for being here, you have no idea how grateful I am just knowing I am not alone. Even though I wish I were just because so many people are suffering needlessly.

        • Linda January 9, 2016 at 12:25 am

          UGH!!! This is so annoying when doctors say it is only a tendon problem. There is a 43 page warning. Please look under resources and find the letter from the floxed doctor. Or print out one of the hundreds of news pieces on flq toxicity. Or do a google search and look up dr jay cohen—he has a number of articles you can find that outline just what cipro can do. SO GLAD you turned down the steroids. They will only exacerbate everything. I think I got hit so hard because I was given prednisone at the same time as Cipro. You can also go to drugs.com and it shows the benefits of taking cipro and prednisone do not outweigh the risks. As for the tests, they almost always come back negative, because as Dr Todd Plumb (one of several doctors who has written a “dear dr” letter describing in medical terms what happens to a floxed patient) says the damage is functional not structural. I was put through many tests…ALL negative. I wouldn’t waste a lot of time trying to convince friends/family, frustrating as it is, but just tell them to search cipro toxicity or fluoroquinolone toxicity and hundreds of articles will come up. Again—lots of info on the resource tab here. Hang tough on the steroids!

        • Lisa M Maskevich January 10, 2016 at 9:11 am

          I feel so blessed for finding this page, thank you to all who are sharing their stories. I like Linda was given a prednisone inhaler along with 750mg of Levequin, back in 2007 when there were No warnings at all, I was a healthy 46 year old young woman,within two years I was unable to lift my head? It has been NINE YEARS of suffering for me, no Dr wants to believe these antibiotics caused so much damage, well it has and I have decide to make 2016 the YEAR I Take back my health, I have been using magnesium three times daily the edible kind as well as Hot baths in Epsom salts transdermal, it has seemed to be helping, as anyone knows who has been “Floxed” any relief is welcomed. I have already had two breathing incidents within three weeks, of course there was NO INFECTION in my lungs, I try telling the Doctors, Nurses anyone who will listen that I was hurt severely by using Levequin along with the Prednisone. It angers me to know that these Poisons are STILL BEING USED ? There is absolutely No Reason to give someone with a sinus infection the same antibiotic used to Treat Anthrax Poisoning. In Hindsight I would have ran from my Doctors office had I known the horrors that were waiting ahead for me. Forty Six great physical shape, back and knee pain but exercise was controlling them, I had tendon issues previous to using Levequin, so there was no way I would have taken it had I had the information that was needed back then, I wish you all the best possible new Year, along with the least side effect pain possible, hoping your able to rid yourselves of some of the toxins these Poisons have left in or bodies. May we each find something that helps us, and please share all, some things will help and others will not but at the very least whatever we try to help find relief it will be nothing short of nutrition at the very least. Who wouldn’t enjoy a nice hot soak in Epsom salts? I read that our Oceans no longer have the SALT CONCENTRATIONS that it had years ago, when so many of us most likely swam in the Oceans, our bodies just absorbing magnesium trans dermally. Health to All…May you have the least pain possible for as long as possible.

        • Melissa January 12, 2016 at 1:39 pm

          Hello,

          Just wanted to check in with you Linda and Daniela to see how you are feeling. And to thank you for your suggestions. Also thank you ChristmasCala for yours. I did make an appointment with an integrative dr and he agreed to start me on Myers Cocktail IV for a few weeks. Is this something that will be helpful?

          I have an appointment to do acupuncture in a couple of weeks. I started swimming yesterday in hopes to ease the anxiety and help with the pain which is mostly burning nerve pain. I actually don’t feel it in the water.

          Bless you all.

        • Linda January 12, 2016 at 3:00 pm

          Breathing is a tad better…perhaps from the acupuncture I have been getting. Thanks for asking! Glad you will be doing acupuncture, and swimming sounds great. I know that was something Lisa did a lot of . I have no where to swim, and if I did go to a pool there would be chlorine which I need to avoid. Bad for asthma. You sound better already!

  40. Mike January 7, 2016 at 3:14 pm Reply

    Catherine, look into autonomic dysfunction or dysautonomia.

  41. Linda January 7, 2016 at 6:03 pm Reply

    JWinn and Steph—I just notice that glutamic acids cousin, L Glutamine is in the protein powder I use which is actually Vital Proteins Collagen Peptides, if you want to give that a try. (I replaced my regular protein powder for smoothies with this.)

    • Stephanie January 7, 2016 at 9:18 pm Reply

      Will do thank you maybe it will help me from getting to a freaking wheel chair after today it’s not far away. 35 and contemplating a wheel chair thank you FDA Bayer and Johnson and Johnson.

      • Jason January 7, 2016 at 10:44 pm Reply

        Guys note what I noted to Jwinn above, L-Glutamine will add to bodies Glutamate, this WILL cause many Floxies to experience more anxiety and/or Brain Fog, thanks to the Gaba receptor damage, Linda this might explain a few things for you.

        I can not tolerate it at all, and MANY others have reported the exact same thing, even non-Floxed people (though it makes you wonder, just how many were Floxed and just don’t realize it…) once again, see this list as well, and refer to it often:

        http://www.truthinlabeling.org/hiddensources.html

        While Glutamine is not there (its talking about “Free Glutamic Acid”), as Linda alludes to it is “closely” related to both Glutamic Acid AND Glutamate, and in fact Glutamine is actually a direct precursor to Glutamate, so you WILL be increasing your Glutamate, which is VERY noticeable to someone who more or less “feels good”, but not as noticeable to someone who is already suffering, and can’t tell what is making it worse….

        • Linda January 7, 2016 at 11:08 pm

          Actually the anxiety is less now than before I started using it so don’t think the glutamic acid has had any effect in that regard. Wish ALL things applied to ALL people—would make all this so much easier, wouldn’t it! Hey Jason, as long as I have your attention… I know someone asked about pqq since it has Pyrroloquinoline Quinone. I have done a bit of research and coming up empty handed. I have seen it recommended over and over again for mitochondrial damage—a big problem I believe for me, esp re the breathing thing–and I have also read that it is naturally occurring in our bodies—yet that “quinolone” in there freaks me out. Were you ever able to find anything substantive on this?

        • Jason January 8, 2016 at 12:26 am

          Yeah that is why I never label something as absolute, so in this case I said “many”, however I would be a little shocked if someone that already has anxiety, or brain fog, doesn’t actually have negative effects (as I said they may not be able to differentiate) from many things on the list in the link on left side and Glutamine, that would be somewhat surprising given the science and people’s direct experiences, down-regulated Gaba receptors are a very common root cause of those conditions, and we know the Cipro does this, but there are sometimes a few exceptions (and you have proven to be one more than once)

          PQQ is not related to the Drug “Quins” from what I could tell when I looked at in the past, the quinolone name is very alarming to us Floxies I agree. However it is a synthetic supplement, which is something I don’t choose to swallow myself, honestly I don’t like taking the natural ones I do either, but they have helped me so it is what it is, and I know I need them. Note – I did not look at it in any depth, because I lost interest when I found out it was synthetic, similar to MitoQ. They may not be that harmful for very short term use, I really don’t know, my common sense thinks long term use would not be a good idea, and I personally avoid things that are not as natural as possible especially when alternate natural choices exist that do the same things

          For ATP and Mitochondria issues, I posted about 8 replies to this article with natural ways to deal with them https://floxiehope.com/2015/09/07/the-mitochondrial-link-fearless-parent-podcast-81/

        • Linda January 8, 2016 at 12:13 pm

          Thanks Jason—yes I remember reading those old posts and have been using ALA, L-carnitine, coq 10…It’s just that I seem to see so much lately about how pqq blows all those out of the water, and I believe my breathing issue is rooted in mito damage. It was just seeing the dreaded “quinolone” in there that gave me a start. I am willing to try it short term.

        • Linda January 8, 2016 at 12:15 pm

          oh, also I read that pqq is naturally occurring in the body

        • Lucy Sky January 10, 2016 at 8:03 pm

          Jason Are u saying that glutamine can worsen the signs and symptoms of quin toxicity?

        • Jason January 10, 2016 at 9:18 pm

          Lucy, yes some of them for some people

      • jwinn January 8, 2016 at 11:20 am Reply

        Thanks Steph…..hand in there girl.

  42. Mark S January 8, 2016 at 7:54 am Reply

    Hi Jason,

    Achilles tendonosis seems to be my main worry these days. Do you think this is something iodine could help?

  43. Lucy Sky January 8, 2016 at 10:21 am Reply

    I would also like to ask the same question because I am unable to tolerate the tendonosis anymore.
    I have had to resort to taking the seretide inhaler over the past few days too.

    Lucy

  44. Jason January 8, 2016 at 2:01 pm Reply

    Hi Mark & Lucy. While I can’t recall at the moment whether Iodine could help “directly”, I will note that the Fluorine in the drug leeches Iodine from the body, and Iodine is important for many functions and is detected in every organ and tissue in the body.

    This is a pretty good article on Iodine showing some of its importance

    http://www.health-science-spirit.com/iodine.html

    • Jason January 8, 2016 at 2:26 pm Reply

      This page had some good info put on it for Tendons, Collagen, Joints, etc

      https://floxiehope.com/comment-page-41/#comments

      Starting about 1/3 of the way down showing the Fluorine connection (thus why Iodine and other like things can at the least likely help indirectly), and then posts of note with some specific suggestions, November 8, 2015 at 6:43 pm, Debs posted a good link at November 9, 2015 at 5:16 am, I commented on it directly below, the post at November 11, 2015 at 12:49 pm links to another post that I feel helped my legs and feet as I too had some Achilles damage and terrible tendonosis in many places.

      Other than that and off the top of my head, Mag Oil directly on it which I think you are doing, lots of Vit C and Lysine (and other things in those posts, like Glycine that accounts for one-third of the amino acids in the collagen molecule, note however Glycine is non-essential the body can make it, unlike Lysine), Antioxidants to protect against further damage, diet alkaline and noninflammatory, definitely don’t stress it too much, avoid heat mostly and use cold, and then time (and if deemed a good idea for the individual, things to help detox to “possibly” speed up that time [of which Iodine is one, I think I noted somewhere it has the possibly to cause a down-cycle] and lessen the chance for future relapse or at least a “full” one, IMO. I am very sure everything I did detailed at the bottom of the page a page or two back which was a ridiculous amount all helped me, but it won’t be a good approach for many people it is too aggressive).

      • Mark S January 8, 2016 at 6:27 pm Reply

        I just started taking Collagen 1,2,3 to my repitoir. Which has Glycine, Lycine, and a whole bunch of other amino acids. Will report back with progress.

        • Jason January 8, 2016 at 8:29 pm

          The unfortunate thing with many (most) Collagen/Gelatin products, and Amino complexes etc is they include Whey, Glutamine, Glutamic Acid, Hydrolyzed Protein, Hydrolyzed Collagen, etc. See the truth in labeling link and post above on why that can be very bad for a Floxed person, maybe not everyone will react to it (or won’t notice if already having fairly bad symptoms, which in this case it will just keep them going), like maybe people with no Brain Fog or Anxiety issues, but many do for sure as I noted, I am one I had to stop taking Collagen 1 & 3 for this reason, my Whey Protein I was having in shake, and a few other products, ALL confirmed issues for me, which I could tell easily because I had no constant Brain Fog or Anxiety, it was intermittent and always triggered by something, either food or in this case supplements. I was able to keep taking NeoCell Collagen type II, and I did confirm with company it was not Hydrolyzed (it is especially good for joints and knees, and I did notice a difference in my knees which were extra bad post-Flox)

      • Jason January 8, 2016 at 8:59 pm Reply

        Oh and on the note of Iodine purging Fluorine and thus possibly Cipro and possibly causing down-cycle, I sit here after another little “test” of my recovery status, post 2 days of fairly high Iodine intake (higher than I usually did in the past), and my legs are “buzzing” and twitching a little, the same shit, that poison is not all gone yet, maybe it will take years to fully clear it (and as I have said many times as long as I shower in Fluoride water every day I may never be fully able to).

        I’m just personally very thankful that after 3 months or so, less one small relapse pain never ever returned after the buzzing and twitching, like it did consistently in the first 3 months and severely. The twitching, buzzing and pain got to be less and less intense each time (which does tell me it was clearing), and eventually less frequent, and once I hit 5 months or so I rarely even had the “twitching” flare-ups anymore, even after intense exercise many times (though I made sure to use lots of Mag always too which I know helps). However, lately I am not exercising or having Sauna as much (read build up of toxins can occur), and I really don’t supplement anymore with “Floxie things” other than occasional Mag and a couple things, which I am going to need to ramp up now….

        Anyway for you Mark don’t worry, from what I can tell it sounds like you are doing many of the right things, in my first 3 or 4 months I was coming here while researching these drugs and asking anyone, is this crap going to go away, or what? I was very scared and worried, seeing all the horror stories, Flox report etc etc, didn’t really know for sure at the time if what I was doing was truly working and if things were really purging to allow healing, but yeah, 24 of 25 symptoms ALL went away (just the dumb very minor Tinnitus left, likely to stay thx to shower, and some small residual damages), and I am sure it will for you too, very likely 3 – 6 months from now or maybe sooner that Achilles will be hardly noticeable.

        • Mark S January 9, 2016 at 2:52 pm

          Jason,

          Thanks for the encouragement. You mentioned cold showers. I just read a study that shows daily cold showers for 10 minutes can SUBSTANTIALLY raise ones glutathione levels as well. Perhaps it’s time I start on that.

        • Jason January 9, 2016 at 3:57 pm

          Yet one more great reason for them for sure, I think they are even more, especially quelling inflammation but definitely more. I can tell you that they kick the Adrenal Glands square in the Ass, it might take a couple of weeks to really notice but many people will (of course if other things are really keeping them “down” they may not).

          I would make sure to do cold water treatments on the Achilles itself, fill the sink with cold water and an ice pack, let sit for a few minutes, dunk the ankle and leave it for 20 seconds, then out 10-20, back in for 20, etc 4 or 5 times. Do this 5 or 6 times a day for 2 or 3 weeks at least, you should notice a difference. I used to also put water on the very coldest setting in shower and put problem areas in one at a time also which I know helped me, even my “head” to help with fog. I can tell you this is extremely invigorating, not unlike swimming in a fairly cool lake.

    • Lucy Sky January 10, 2016 at 7:54 pm Reply

      Thyroid issues include overactive . Iodine is therefore inappropriate.

      • Jason January 10, 2016 at 9:21 pm Reply

        Lucy many experts agree Iodine is good for BOTH Hypo & Hyper Thyroid issues

        Here is another good article on it other than the one I linked above:

        http://drsircus.com/medicine/iodine/iodine-rescue

        1) Iodine helps synthesize thyroid hormones and prevents both hypo- and hyperthyroidism.
        2) Iodine sufficiency reverses hypo- and hyperthyroidism.
        3) Iodine supports apoptosis.
        4) Iodine activates hormone receptors and helps prevent certain forms of cancer.
        5) Iodine protects ATP function and enhances ATP production.
        6) Iodine prevents fibrocystic breast disease.
        7) Iodine decreases insulin needs in diabetics.
        8) Iodine helps support protein synthesis.
        9) Iodine deficiency is a global health threat.
        10) Iodine destroys pathogens, molds, fungi, parasites, and malaria.
        11) Iodine supports immune function.
        12) Iodine eliminates toxic halogens from the body (including radioactive I-131).
        13) Iodine regulates estrogen production in the ovaries.
        14) Iodine is anti-mucolytic (meaning it reduces mucus catarrh).
        15) Iodine neutralizes hydroxyl ions and hydrates the cells.
        16) Iodine makes us smarter.
        17) Iodine prevents heart disease.
        18) Iodine is needed with the use of cordless phones, cell phones and now smart meters to prevent hypothyroidism.
        19) Iodine supports pregnancy (as the fetus undergoes more apoptosis than any other developmental stage).
        20) High doses of iodine may be used to reverse certain diseases.
        21) High doses of iodine may be used for wounds, bedsores, inflammatory and traumatic pain, and restoration of hair growth when applied topically.
        22) Iodine helps in the diminishing of tissue scarring, cheloid formations, and Dupuytren’s and Peyronie’s contractures, which are hyper-scarring conditions.
        23) Iodine supports spiritual development.

        —–

        The whole article is good, you and everyone should read the whole thing

      • Jason January 10, 2016 at 9:23 pm Reply

        Lucy you should really read the other article linked above, there is info there that pertains to you specifically, like this quote

        “Iodine supplements tend to normalize over-active thyroid conditions, including autoimmune conditions and thyroid cancer. However, if the size of the thyroid is increased as with goiter, then additional iodine will initially cause an overstimulation. To normalize thyroid size and functions the iodine dose needs to be increased only very slowly and temporarily decreased when overstimulation occurs, and after a while slowly increased again”

        • Lucy Sky January 11, 2016 at 10:54 am

          Thanks for the info. Lucy

  45. Lucy Sky January 9, 2016 at 7:17 am Reply

    Jason I am having an horrendous flare up. I am unable to have Vit C and many other things. I am thinking of giving up completely

    Lucy

    • Jason January 9, 2016 at 8:55 am Reply

      Hi Lucy sorry to hear that. I’m not sure what you mean by giving up, but there isn’t really a way to ignore what has happened to us, we must deal with it one way or another. Reacting to pretty much “everything” is a sure sign of “Leaky Gut” and/or Candida (including smells bothering someone, supplements, foods, allergies, etc etc) and possibly Liver P450 enzyme issues in the case of things like Caffeine, some supplements, etc. I guess just having a Flare up/Down-Cycle might cause a lot of extra sensitivity, but other than through the 2 ways mentioned I will have to think about why else that might be, I’m still thinking these 2 ways are how it manifests.

      P450 I am unaware of what can be done, other than things to help support the Liver, like Milk Thistle, Coffee Enemas (which could be a really good idea for SOME Floxies [read no one severe for sure], these will be very detoxing so not suited for everyone, can cause Down-Cycles etc). I have not looked into what else specifically could be done for this.

      Leaky Gut on the other hand, can be dealt with specifically, but it is no simple task as I noted to Jwinn above, it would be best to find a good Alternative Doctor to discuss it with, people can also look at the page I linked to Jwinn for a lot of info on it.

      What I did that worked for me to help calm them down would be take LOTS of Magnesium, Antioxidants like Vit C (maybe the “form” you are taking has to be changed) Selenium etc, Benonite + Psyllium drink to help Gut and soak up toxins, Chlorella and other toxin binding things, and all the other “usual” things to help Floxing I’ve always gone over like things for Insomnia if that comes with Flare up, Multi-Minerals, Alkaline stuff, lots of Veggies like Green shakes, etc.

      Hang in there Lucy it will pass, please be extra careful about all things ingested and hopefully discuss everything with an Alternative Doctor

      • jwinn January 9, 2016 at 9:00 am Reply

        Jason, is there a specific kind of Vit C that is better? Mine simply says Vit C 1000 mg.(as Ascorbic Acid) on the bottle.

        • Jason January 9, 2016 at 3:07 pm

          Hi Jwinn. It depends on how much someone wants to spend and how much they want to prioritize Vit C itself, it is pretty important IMO. Pretty sure IIRC Liposomal Vitamin C is probably the best form but it is quite a bit more than other forms. Dr. Mercola goes into some detail here: http://products.mercola.com/vitamin-c/

          Ascorbyl palmitate is the next best form again IIRC and from my research on it which admittedly was not super in depth, price-wise it is also in between Liposomal and Ascorbic acid.

          Ascorbic acid is okay but probably not as good as the other 2 and as you might suspect the cheapest typically, I try to buy mine with bioflavonoids when I can.

          What I did was buy all 3 forms, being price conscience and, putting a high priority on it, its important for a whole lot of things.

          There are other forms but I think these were the 3 “main” choices that stood out to me. The thing to watch out for here and with all supplements really are the EXTRA ADDITIVES that many companies will add, like with the powder forms they will add things like Sorbitol, and other dumb artificial sweeteners (I don’t think Xylitol is good either, as much as the benefits of it are touted all over the place) or they will even stick Fructose and the like etc etc which is what I was suspecting Lucy could be reacting to the additives.

        • Bruce Brannan January 11, 2016 at 6:44 am

          Having sinus problems for a few days and starting to drain into chest. Have been doing Nelimed sinus flush. Normally I have done Advil cold & sinus or Mucinex. Any suggestions???

        • jwinn January 20, 2016 at 12:56 pm

          Jason, I just received my lab results from my doctor. I have a few concerns. I don’t go back to visit my doctor until Wed., 27th, but we are expecting a BIG snow storm, so that may not happen. My concern is my Total Cholesterol was high (210 – normal average is below 199), my Sodium levels were borderline high (145 – normal average between 135 – 145), and my Alkaline Phosphates were LOW (37 – normal average is 50 – 75). High cholesterol runs in my family, so that is no big surprise; however still alarming. I am confused about the high sodium levels because I don’t feel that I consume a lot of sodium. I am REALLY confused about my LOW Alkaline Phosphates level. I’m not sure what even causes this. I tried to research it on the internet, but I’m more confused now than I was before I started looking. Do you (or anyone else) know what causes LOW Alkaline Phosphate levels in the body, and what I can do to correct this? Any information or suggestions would be greatly appreciated!

        • Linda January 20, 2016 at 1:58 pm

          hi Jwinn, I don’t know about the low levels of this but it caught my eye because (I am not even sure they are related) but I keep testing very high acidic in spite of eating a mostly alkaline diet. I think it is just another result of the floxing. Anyhow I did find this article on low alkaline phosphate and it does say it is rate but can be caused by medication so I am guessing this is another Cipro “gift” that will likely correct once everything else starts healing. http://www.livestrong.com/article/283414-what-causes-low-alkaline-phosphatase/

        • jwinn January 20, 2016 at 4:38 pm

          Thanks Linda for the info! I will read the article….another unwanted gift from Bayer. I’m trying to get myself together for this blizzard they are calling for us to get…I’m praying the weather forecast is WRONG!!!!!! I don’t have the strength to dig myself out and don’t want to lose power or have my pipes burst. Everyone please say a prayer for us in the East Coast.

        • Carla January 20, 2016 at 4:55 pm

          jwinn, that storm passed thru northern California yesterday, and it was less disastrous than they predicted — also not as scary as the radar images on the weather site! It was a good consistant rain, but we had only minor flooding (gutters, etc.) and it blew on thru in a day and a half. I know they are posting storm warnings, but I think it is not as bad as it may appear. Be safe and stay warm!

        • jwinn January 21, 2016 at 10:13 am

          Thanks Carla! I needed to pep talk! The pending storm has peaked my anxiety, and I’m trying to get it back under control.

        • Linda January 20, 2016 at 6:07 pm

          Ugh…I know the feeling. I am in CA and we were warned about torrential rains from El Nino. We got a bunch, but not unbearable. Good luck!

        • Stephanie January 20, 2016 at 6:09 pm

          When was El Niño every year???

        • Linda January 20, 2016 at 1:59 pm

          damn…should have bee “rare” not “rate”

        • Jason January 9, 2016 at 3:26 pm

          Here is probably one of the WORST examples of a Vitamin C supplement I’ve seen, scroll down and click on the ingredients to see what I mean if curious:

          http://www.walgreens.com/store/c/walgreens-vitamin-c-effervescent-powder-blend-1000mg-packets-orange/ID=prod6254739-product

        • Jason January 11, 2016 at 1:45 pm

          HI Bruce. I am just getting over a cold/flu myself with likely partial bacteria infection in lungs (again…) given the yucky phlegm coming up, my immune system is terrible (unsurprisingly given my Gut history) and it is now 3 weeks, and there are still remnants of it there over the last week but I am 95% better (Of course not eating well just before Christmas and during Christmas, was partly why I got it and took so long to heal from it).

          I have not done a lot of research on this, though I probably should at some point, what I do when I think something is coming on (last one snuck up with NO warning) is take Colloidal Silver and Oil of Oregano, I also added Neem to this as well. I find these things fight off a germ many times, I also take extra Vitamins and Minerals, especially Zinc & Vit C, can’t recall other specifics, my Brother finds Echinacea helps his germs be much more mild. I also take a Mushroom blend of Shiitake, Mitake and Reishi and Astralagas to boost the Immune function, and I find moisture typically makes me worse, so no baths, and I try to skip a shower here and there too. Drink lots of liquids, clean diet veggies, rest, there are probably more things for Sinus specifically (that I haven’t dug into) but these are mostly what I do hope it helps

        • Bruce Brannan January 11, 2016 at 3:52 pm

          Thanks!!! I have a bottle of Silver in the cabinet. I have never tried it but will let you know how it works. The last upper respiratory infection I had was when I took levaquin 6 months ago. Gosh, what I have learned in the last 6 months. Thanks again!!!

        • Jason January 21, 2016 at 11:27 am

          Hi Jwinn. Sorry I just seen this now. High Cholesterol is mostly likely diet related, AND can be corrected with diet. Mine was getting quite high as was my blood pressure (you didn’t mention it but with high sodium and high LDL I’m thinking yours is likely higher as well), when I cut out Sugar and Simple Carbs (Pasta, Rice, Potatoes, Bread, Starches in general etc) completely both those levels went right through the floor. Those are the two “killers”, quite literally, and sugar is hiding in many foods under many names, its in almost everything and very hard to omit entirely unless eating only whole foods, which is best anyway. Also, my “good” Cholesterol was low, HDL, and I’m thinking yours might be as well, even if not, raising this up by eating Coconut Oils and good Fats, taking Fish Oil etc helps to lower the bad Cholesterol (LDL).

          Sodium is another thing related to diet, and also in tons of “foods” (really anything processed is NOT food, it is more like “Fraken-Food” aka man screwed with it it’s garbage) even places you would not expect it, so it would seem diet is very important for you (really it is pivotal to everyone) ASAP, and I seen you mention in the past you have not been watching your diet closely enough, right now your risk of Heart issues and/or attack is higher if you have high LDL and especially higher blood pressure together, be vigilant on reading labels but more importantly cut out crap and eat more whole foods (I know it is not convenient and a PITA but it is SOOOO important). More or less I eat Paleo, and I think it is a good way of eating in general to solve a lot of health issues, the Wahl Protocol is a good example, but with high Cholesterol you need to watch the Meats, Cheese is especially bad, Dairy Milk, really animal fats are not the greatest IMO, animals in general (I am leaning to Vegan honestly) I also cut out Dairy except for Eggs, which I eat a lot of, and butter (I use Coconut Oil mostly though). For Meat I stick mostly to organic Chicken, without the skin, it is a fairly lean meat and a protein source

          Alkaline Phosphates, known as ALP, is one test Doctors usually give to test Liver Health and Bone Health. Normally, these levels are raised in people indicating potential Liver damage and blocked bile ducts etc (Mine was raised before Cipro). So the good news, is your levels are hopefully not high, and I say hopefully because IIRC my Doctor told me that this level can come back randomly incorrect, and sometimes needs to be re-tested, check your records for your last result, if you don’t have it phone the office. Low levels can again be diet related like low B12, low Protein and good fat intake (again), and also Mineral deficiency and/or imbalances, like having low Zinc levels, and other things as well.

          A Hair Metal and Mineral test ordered from Holistic Health International (Amy Yasko) would be a good idea, and really is for everyone (mine showed many interesting and important things, being low in Phosphates was one which I think again can affect ALP levels being lower [for me this is ok]). If things are out of whack a lot sometimes just diet may not be enough, and today soils are depleted etc from many Minerals like Zinc for example, so someone can be eating Alkaline and many of the right things but if they have bad deficiencies (like Cipro causes making people too acidic, and that causes inflammation, which causes tons of problems common in Floxies) it could take a really long time to correct these, this is where supplementation is important.

          Diet is a big big reason IMO why many Floxies have trouble healing, Mineral deficiencies (Zinc is need for 900+ things in the body) Vitamins, Good Proteins, Good Fats, etc these things are all critical for body functions, and the bad stuff in diet can cause issues and exasperate any current ones. I know there is not one close by but seeing either a Naturopath and/or a Nutritionist might help you a lot with the diet aspect. A HUGE part of healing for a Naturopath is Diet, healing naturally with foods, foods have the power the harm (kill, actually too), or heal.

          Please post a short reply just so I know you got this msg ok being on the old page

        • jwinn January 21, 2016 at 12:05 pm

          Thank you, Jason! I got your information and appreciate you taking the time to answer me. I am supposed to have follow up blood work done on Wednesday…weather permitting. I will fill you in after I get the results. Thanks again.

        • Jason January 21, 2016 at 12:59 pm

          You’re welcome glad you seen this then. I hope you are not eating margarine but if you are please ditch it asap, its pure garbage and made with bad oil with raises Cholesterol, its essentially “plastic” really there are so many things wrong with it. I should have stressed bad oils above which are infamous for raising Cholesterol levels and hidden again in many “foods” and used in Baked goods, etc etc, stay away from Corn Oil, Canola Oil (both GMO too extra nasty) etc (see chart for more) and try to use as much Olive Oil and Coconut Oil as possible, these changes can make a HUGE difference for someone alone.

          I am not sure about the Grapeseed Oil (I may have read something bad about it in past can’t recall) and the Walnut Oil but otherwise this is a good chart and consuming those other good Oils can raise your HDL which helps lower your LDL:

      • Lucy Sky January 10, 2016 at 7:17 pm Reply

        Thanks Jason
        I am unable to have a lot of Vit C due to kidney disease. Likewise K2 is out as I am taking warfarin.

        I feel pissed off.
        Lucy.

    • Jason January 9, 2016 at 3:22 pm Reply

      This is probably a good time to mention again that I don’t think Down-Cycles are avoidable, and they are part of the “healing process” that I think most if not all people will end up going through. So we can look at it as a bit of “good news” (as long as it was not triggered by ingesting new toxins, in which case it is likely to be more of a retracement, instead of actually progression), even though it feels anything but.

      • Lisa M Maskevich January 10, 2016 at 9:51 am Reply

        I had replied earlier just to say I was going to get my health back, I had suffered long enough as most of us have. Nine years in I am done with doctors telling me : Levequin & Albuterol ” had nothing to do with, torn tendons,Peripheral Neuropathy Leaky Gut chronic fatigue the never ending list as you all know. I just wanted to comment on the vitamins Vitamin C with Bioflavonoids & wild rose hips, also the ingestible/transdermal magnesium and the one that seems to really be helping quickly besides the mag,is the Hydrolyzed Collagen……..( healthy support for Skin & Connective Tissue) hence the Tendons.. all that I have mentioned are FREE of additives and as natural as possible, C has 1000mg (as ascorbic acid) Citrus Bioflavonoid Complex Citrus Peel, Rose Hips THE Collagen has no wheat fish gluten artificial sweeteners milk, lactose. It was purchased from Puritan Pride which I find to be very helpful with finding many vitamins and supplements I am looking for, plus the prices are extremely reasonable, long term buy one get two is great, I stocked up on all especially the mag oil, hoping this will be THE YEAR that slows down my Symptoms in the very least,ultimately stopping them completely. Luck & health to all.

        • Linda January 10, 2016 at 11:24 am

          Hi Lisa, I don’t know if you have seen any of my past posts but I want to mention something since you said you were taking albuterol. When I was floxed I had severe breathing problems NOT related to my asthma (as I have mentioned before likely mitochondrial damage to heart muscle or something to do with the autonomic nervous system.) Anyhow I was already gasping for breath and the thought of having an asthma attack on TOP of all this was terrifying. Yet I knew that my inhaled steroid ( qvar at the time) was likely exacerbating the cipro side effects. well my ND started me on IVs of H2O2. I was scared, but after about the 6th I started weaning off of the Qvar. Well, it has now been almost 6 months since I came off my asthma meds (which I have been on for decades) and NO asthma! I may need to get an ocassional H2O2 IV, but for now my peak flow is as good (and often better) than when I was on asthma meds! So, something you might want to check out. (and as for the infuriating, disbelieving doctors, print out a copy of the Fluorquinolone Related Disability statement from the Nov. 5 FDA safety subcommittee hearing. I believe Lisa has posted them on this site (perhaps under resources?) Or better yet…ONLY see NDs and integrative MDs who DO believe you.

  46. jwinn January 9, 2016 at 9:01 am Reply

    Lucy, hang in there! I had a horrible relapse last year for no unknown reason and am still recovering, but I’m getting there. YOU WILL TOO!!!!!! HUGS and PRAYERS!!!

    • Lucy Sky January 10, 2016 at 3:34 pm Reply

      Thanks jwinn.

      Your encouragement s very much appreciated.
      I am at the end of my tether.

  47. Lucy Sky January 9, 2016 at 8:24 pm Reply

    Lisa
    Just came across this. What do you think?
    Lucy

    • joanneg January 10, 2016 at 10:02 am Reply

      Lucy, I just wanted to say you are probably imo definitely flaring up because of the seretide inhaler I think it is a steroid, which is known to make this extremely worse for most people. Please look into this.

      • Jason January 10, 2016 at 12:39 pm Reply

        Good catch Joanne, I missed Lucy’s post up the page noting that she was using yet another drug, of course it is that and not the Vitamin C. ALL drugs have the ability to cause to a down-turn in cycles, some are worse than others, like especially Steroids, and especially things with Fluorine/Fluoride in them (of which Seretide is BOTH so a double whammy), but ALL DRUGS ARE ALL TOXIC and no good for Floxies. Every time someone uses a drug, they are playing a Russian Roulette game IMO, I went over this in my very long detailed post about many of the different causes for down turns and Relapses etc.

        There are NATURAL alternative solutions for just about everything if not everything, and the more people seek them out, the better off they will be and the more chance of healing they are going to have. Can’t stress this one enough, the same mistakes are repeated by people, over and over and over and have been for many years.

        • Linda January 10, 2016 at 1:14 pm

          Absolutely, and again, please —anyone with asthma using steroids please look into H2O2 IVs. I have been inhaler free for almost 6 months now (after about 10 H2O2 treatments) and my peak flow is as good as if not better than when I took steroid asthma inhalers.

        • joanneg January 10, 2016 at 2:01 pm

          Hi Jason, I was waiting for you to respond to Lucy about the Seretide, because I’m more or less a stranger on this site. When you didn’t I knew you must have missed it, so I figured I have to tell her. I hope she reads it soon and stops taking it. One day I will properly introduce myself and my ongoing nightmare(19 mos). It just always seems too much to write. But I would like to say how much I appreciate this site, and all of you who comment on these pages.I read here every day, and you all have brought so much comfort and information to me. Even though I just lurk, I feel like I know you all somewhat and appreciate all the effort to try and help each other out. Sincerely, thank you all. And Lucy please don’t take any thing without asking your friends here, who probably know more than your MD.

        • Jason January 10, 2016 at 2:54 pm

          Thank you Joanne for noticing and posting about it and helping Lucy 🙂

  48. Jason January 10, 2016 at 1:40 pm Reply

    More reasons not to eat Animal products and consider Vegan eating (I’m debating it) and just more evidence of the sad state of affairs of the Food Supply in general.

    http://www.who.int/mediacentre/factsheets/fs225/en/

    From the World Health Organization:

    – Dioxins are a group of chemically-related compounds that are persistent environmental pollutants (POPs).

    – Dioxins are found throughout the world in the environment and they accumulate in the food chain, mainly in the fatty tissue of animals. (<=ME, where many toxins are stored)

    – More than 90% of human exposure is through food, mainly meat and dairy products, fish and shellfish. Many national authorities have programmes in place to monitor the food supply.

    – Dioxins are highly toxic and can cause reproductive and developmental problems, damage the immune system, interfere with hormones and also cause cancer. Short-term exposure of humans to high levels of dioxins may result in skin lesions, such as chloracne and patchy darkening of the skin, and altered liver function. Long-term exposure is linked to impairment of the immune system, the developing nervous system, the endocrine system and reproductive functions.

    – Due to the omnipresence of dioxins, all people have background exposure, which is not expected to affect human health. However, due to the highly toxic potential, efforts need to be undertaken to reduce current background exposure.

    – Once dioxins enter the body, they last a long time because of their chemical stability and their ability to be absorbed by fat tissue, where they are then stored in the body. Their half-life in the body is estimated to be 7 to 11 years. In the environment, dioxins tend to accumulate in the food chain. The higher an animal is in the food chain, the higher the concentration of dioxins.

    ———

    It's virtually impossible to avoid all toxins, we just have to try and limit them as much as possible, and IMO even more so as a Floxed person (the more they build up, the more chance of bigger release and re-floxing you have IMO). Teflon non-stick frying pans have Fluoride in the coating which leaches into food, and thus your body, Mercola has stated these are highly toxic and can be stored in the body for a really long time like 20 years or something, if not forever (can't remember which). If you own these throw them away ASAP and go with fully ceramic

    • Lucy Sky January 10, 2016 at 4:23 pm Reply

      Dear Jason /jJoanneg
      Thanks for your replies. I will not use that drug -seretide- again don’t worry about that one!

      I had not used seretide for several months then just before Christmas had a chest infection , with broncho spasms, wheezing, breathlessness, , sore throat, aching muscles all over my body including my arms. My throat was burning.
      Everything I ate and drank made the burning sensation much worse.

      The pn worsened. I had a total of three Keflex .

      I felt better except for the burning which increased.

      It was a choice between pneumonia and being re-poisoned with a dratted antibiotic so to speak.

      Two days ago I ate the cottage pie and this also increased the existing increased burning.

      I cannot stand this much longer.
      I thought I was getting better hence writing to you about physio etc. Now I feel back to square one almost and full of despair. I am sorry to be so miserable but I can’t help feeling this deep despair.

      I am taking the following meds.

      Bricynal inhaler very occasionally.

      Valsartan for high blood pressure.
      cardicor.
      Warfarin
      Phenytoin and clobazam for epilepsy.

      Adcal D3 for Vit D deficiency disorder.
      Codeine for peripheral neuropathy.
      Paracetamol.

      Magnesium. Supplement.

      Bicarb of soda for acidosis.

      TENS machine for back pain and pn.
      I cannot even have a bath due to having epilepsy. Even with someone in the house it is still unsafe.
      I also have a thyroid disorder with over 20 nodules but no treatment has been commenced yet.
      I have panic attacks and also a fear of sleeping.

      I just want this nightmare to end one way or another.

      Lucy

      • jwinn January 10, 2016 at 4:26 pm Reply

        Lucy, I am praying that you will have answers, peace, and healing soon!

      • Jason January 10, 2016 at 5:28 pm Reply

        Lucy I think the absolute most important and imperative advice for you is to find a “Good” Functional, Integrative or Naturopath Doctor ASAP, and preferably someone also knowledgeable in toxicity issues to help with current and past Med use. No one here fits that description, unfortunately I am not an expert on Drugs or many of the 100’s and 100’s of conditions that people suffer from.

        You need an “expert” in the conditions you are suffering from other than FQ Toxicity, who has knowledge of drugs and natural treatment alternatives, knowledge of toxins/detox methods, and knows the importance Gut and Diet, etc, and those 3 Doctor choices are your best bet to find such a person. Everything has to be taken into account, and then they will hopefully help you devise a complete plan on how to alleviate pain and as many conditions as possible in the short term as well as devising a plan for long term healing.

        • Lucy Sky January 10, 2016 at 7:43 pm

          Thanks Jason. I know I am a misfit because I do not have a wonderful recovery story to tell.
          Sorry about that.
          This is the UK . We do not have IV”s Naturopaths, Integrative medicine drs unfortunately.
          Never mind I will not be missed.

        • Jason January 10, 2016 at 9:08 pm

          Lucy that is NOT true, people have been over that with you, there are PLENTY of those Doctors all across the UK and many that do IV’s. So either you don’t want to see those Doctors, or just don’t believe people they are there, however more than once even links to some of them have been provided to you. So I’m a little dumbfounded here on what else can be done for you, its not that you are a “misfit” and 98% of the people here do not have a recovery story to tell, yet; however it IS that you do have several conditions in which you are taking several drugs for, and ALL THOSE THINGS need to be accounted for in EVERY single step in your recovery plan, because they are ALL important, and there are NO experts here on all those things. I hope you understand as we have been over that before too, I’m not trying to shove you off at all and I am happy to answer questions as are others, but we only know so much, and I’m trying to give you the advice I think is absolutely the best for you, and that will give you the best chance to recover. Hugs

        • Debs January 11, 2016 at 1:34 am
    • Linda January 12, 2016 at 3:12 pm Reply

      Playing devils advocate (esp since I cannot digest beans well, so meat is a good source of protein) but also bone broth is extremely healthful. It is loaded with minerals and helps bones, immune function, the gut and much more.

      And speaking of the gut–I posted something but for some reason it didn’t show up. I had written down strains of probiotics NOT to take because of an earlier link you provided, and one was lactobacillus casei. Then today I saw a post from The Truth About Cancer, singing its praises for helping improve your microbiome. So, while I was going to not take it because it contributes to histmamine, I think its benefit to microbiome outweighs that. It’ hard because there is so much information out there that sometimes it is just becomes overload. I think the key is to “pick your battles” and take everything with a grain of salt.

      • Debs January 13, 2016 at 2:11 am Reply

        For anyone thinking of using bone broth, just a quick word of caution , Please try to make sure the animals the bones are sourced from are organically sourced & have not been living in a fluoridated area/ have been consuming fluoridated water or consuming fluoride contaminated feed . Fluoride is of course stored in bone & some of these animals drink huge amounts of water .The fluoride content in the bones of these animals will do us no good whatsoever .

        http://fluoridedetective.com/2012/03/31/fluoride-soup-broth-and-gelatin/

        • ChristmasCarla January 16, 2016 at 10:03 am

          Debs … Right on about the bone broth and making sure the bones are from organically-raised animals. I save all the bones from chicken dishes in the freezer and when I get a bunch, I simmer them (use filtered water) for a day or two with a little apple cider vinegar in the water (1/4 cup for large pot of bones). Strain and use broth as a soup base. Excellent flavor and it feels good and is definitely good for you.

          I also split the broth, using part of it to make dog food, using the scraps of meat and connective tissue from the chicken that I’ve strained out of the broth. I save the trimmings of the organic veggies I eat and put those in the dog food as well. My dog doesn’t care that it’s the end of the carrot. I freeze the completed dog food in serving sizes, heat it a bit and add a little good-quality kibble when I feed him. He LOVES his dog food, and his weight has stabilized and he looks super healthy. I think bone broth is super healthy for us as well.

          Another food to have only organic is butter. The toxic substances fed to cattle are stored in their fat, so be sure, if you have butter, that it’s organic. BTW, I cannot tolerate milk, but have no problem with butter … not lactose intolerance, but reaction to casein, the milk protein. So butter, ghee, heavy cream do not cause problems for me, whereas a tiny bit of cheese or plain milk will make me hurt all over.

        • Debs January 16, 2016 at 1:58 pm

          I only ever eat organic butter myself, ChristmasCarla I try to make sure I eat organically as much as I can.
          Having been in our parallel universe unfortunately more than a little while, at least means that I have had a very long time to research many subjects connected to our Big Pharma psychopathic killers.& their various ‘ hangers on ‘. Just a heads up re feeding our pets, for you in case you are unaware, & for anyone else with pets interested here. The Big Pharma octopus has its toxic tentacles entwined in many places including the Veterinary world, & this includes connections to the pet food industry.
          You might want to take another look at the kibble you are feeding your dog ChristmasCarla, albeit being just a small amount & marketed as ‘ good quality ‘.

          I am a cat owner & have been so for over 50 years, My own beautiful cat was irreversibly blinded by the FQ BAYTRIL, his story is on Floxiepets, I lost a cat to the very first feline dry diets launched onto the market many years ago which caused kidney failure not knowing any better at the time, & have also in the past had a cat severely injured for life by a vaccine.

          It is of course a personal choice what we feed our pets, however to all pet owners here, please make sure it is a fully informed one. I feed a species appropriate diet to my own cats, cats being obligate carnivores, & would never again due to the research I have done & the things I have discovered along the way feed anything else but raw to a healthy cat or dog. Feeding a species appropriate raw diet can also help with many of the health issues our pets now face which are all too often caused by commercial pet food the drugs / vaccines etc in the first place .
          To investigate the pet food industry in depth is extremely important, pet food is not what it claims to be. in respect of vaccinations, the world small animal vaccination ( WSAVA ) guidelines were changed in 2010, but are still even now being completely ignored by many Vets who are automatically calling pets in every year for their ‘ boosters ‘ , to look into the toxic parasitic treatments for fleas etc, is also imperative for everyone here who owns pets & who wants to try to make dammed sure that their precious fur babies stay as well as possible for as long as possible.

          http://www.dogsnaturallymagazine.com/kibble-never-a-good-option/

        • Debs January 16, 2016 at 2:04 pm
  49. Lucy Sky January 10, 2016 at 5:04 pm Reply

    Thanks jwinn. This is the worst nightmare ever. I hate Big Pharma.
    I simply detest these drugs as Jason says they are all toxic. Hear, hear!
    I just want my life back. Chances of that happening seem pretty remote at the moment.

    Maybe there is a better environment elsewhere.

    • Jason January 10, 2016 at 5:38 pm Reply

      You can heal Lucy, don’t doubt that for a moment, even people that have not healed for 9 years like Lisa M Maskevich who recently joined us can heal, Jwinn 5.5 years suffering can heal, Mike 4 years suffering and getting worse not better can heal, there is HOPE for everyone!!! Maybe we will never be “exactly” the same as before, however once enough root causes are revealed and dealt with, imbalances corrected, the body is supported and given what it NEEDS (and is lacking) to do its job and heal etc, it will do just that!!!

      • Heather January 10, 2016 at 7:42 pm Reply

        http://nyti.ms/1VI1Tgg

        I wonder if the flourochemicals in this article have any relation to the fluoroquinolones. Even if not it still reminds you to avoid Teflon!

        • Heather January 10, 2016 at 7:52 pm

          Just curious does anyone take albuterol? I have always had asthma also had a spontaneous pneumothorax when I was 20 but for the last 8-10 years it was pretty much under control with lifestyle changes. Now I am 6 months pregnant and have been wheezing and have had to take a puff about every other day for the last month. I was severely floxed a little over 3 years ago with great progress in healing though pregnancy has been harder on my already weakened system. I also had severe morning sickness in the beginning which I ended up having to take a benedryl every morning for 2 months. Other than that I avoid all medication. Just curious if albuterol or benedryl has had any adverse affect on anyone since being floxed?

        • Linda January 10, 2016 at 8:26 pm

          I purposely avoided using my emergency inhaler after being floxed, because of the fluoride.I got H2O2 IVs and have not had to use that or my daily inhalers. If I were forced to take one or the other, I would go with the benedryl, but never took it to relieve an asthma attack. I have read where people specifically refer to ORAL steroids, intimating that inhaled steroids are OK; but it was my belief as well as my naturopath’s that inhaled steroids would also be detrimental.

        • SM January 10, 2016 at 10:05 pm

          Heather- I have asthma also. Haven’t touched a steroid inhaler but I have done Albuterol. Wired me a bit and may have revved up the nerves a bit, but other than that, there was no significant reaction. I only used it last spring when my asthma acted up. And it was only for a few days. That’s it.

      • Debs January 11, 2016 at 2:58 am Reply

        indeed, I took even longer than 9 years to feel healed but feel healed I eventually did, ( despite also being force-fed 12 years of psychotropic poisons on top ) until not knowing what had happened to me at the time, i then got floxed again.
        I have found in my many years of being in this weird parallel universe we inhabit, & after doing the research that getting myself off those allopathic poisons, & then avoiding taking new ones, at least as many as humanely possible is one of the most important things.

        • Lucy Sky January 11, 2016 at 10:58 am

          Debs
          In the hope that u will help me I was wondering how long it is going to be before this steroid seretide decides to leave my body.

          Everything is worsening and drs are no use to anyone.

        • Jason January 11, 2016 at 12:08 pm

          Thank you Debs you are a prime example as you have posted before, of why just about anyone can heal, after being Floxed so many times and taking so many more drugs as you say.

          Lucy please read what she noted there carefully on what she thinks was the most important factor for her, and also please see the link she provided for you, the UK is literally “littered” with Naturopaths coast to coast

          http://gcrn.org.uk/member-search/

          Some of your conditions are serious, you can’t just go quitting drugs cold turkey, you need sound expert advice from someone who can look at your whole picture, and devise a plan for you as I noted above, and hopefully one that includes replacing some of these drugs with Natural substitutes and lifestyle changes etc (which often “fix” many of the issues all on its own).

          It is impossible for anyone to say how long it will take Seretide to purge, and note that the Seretide has most likely mobilized the Cipro toxins, which IMO is why you are experiencing a “Re-Floxing”, this is what happens when someone keeps ingesting new toxins all the time, the “old ones” can become mobile ‘combined’ with the new ones, this is not a good scenario. It will pass eventually, how long it takes is highly variable on your body, and what you choose to do it in the meantime, and how you possibly support it, and even diet is important.

          Please seek expert advice, a good Doctor (NOT MD’s) can REALLY get you on the right track if you find one, and make all the difference in your recovery and can potentially make it MUCH shorter and less painful

        • Jason January 11, 2016 at 12:15 pm

          Lucy here is a link to find a “Functional Medical Doctor”, again there are at least 25 here to choose from in the UK

          https://www.functionalmedicine.org/practitioner_search.aspx?id=117#results

          This would be a good list to pick from I think for you, some of these are Naturopaths who took some extra training in “Functional Medicine”, some of them are regular MD Doctors who know everything a regular MD does but who has now been trained in actually solving everyday common ailments by getting to root causes, NOT by just throwing drugs at symptoms, like “regular” MD’s do.

          The ones that have the “IFM Certified Practitioner” designation would be the best ones to choose from, because they have undergone MORE training than the ones that don’t have it.

          Again, I think this is imperative for you, and I hope you take it seriously

        • Jason January 11, 2016 at 12:23 pm

          Note that some of the ones who do not have the IFM Certified Practioner desingation also specialize in Thyroid disorders, like Rodney Adeniyi-Jones MD/DO in London, and Oliver Barnett ND in London, who also specializes in Autoimmune disease and gastrointestinal disorders, many to choose from there, and sometimes seeing more than one can be helpful

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