Floxie Hope


This site is to give HOPE to those who are suffering from Fluoroquinolone Toxicity Syndrome as a result of being poisoned by fluoroquinolone antibiotics – Cipro, Levaquin, Avelox, Floxin, etc.  It contains stories of healing.

Cipro, Levaquin, Avelox and all other fluoroquinolones are dangerous drugs that can have devastating effects that cumulatively I’ll refer to as Fluoroquinolone Toxicity Syndrome or Floxing.  Fluoroquinolone Toxicity Syndrome/Floxing includes damage to connective tissue (tendons, ligaments, cartilage, fascia, etc.) throughout the body, damage to the nervous systems (central, peripheral and autonomic), and more. The damage done by fluoroquinolone antibiotics can destroy a person’s quality of life or even kill them. Certainly, there is a time and a place for drugs with dangerous side effects. If you find yourself in a septic shock induced coma, fluoroquinolones may save your life. Unfortunately, these drugs are not being reserved for life or death situations. People are being prescribed them for urinary tract infections, suspected prostate infections, upper respiratory infections, as a prophylactic for travelers’ diarrhea, ear infections, pink eye, etc. Thousands of people have suffered needlessly from the devastating effects of fluoroquinolone antibiotics, when another, safer antibiotic could have, and should have, been used.

The damage done by fluoroquinolones is largely unacknowledged by the medical establishment and an accurate diagnosis, compensation and relief are difficult to come by. There is no known cure for Fluoroquinolone Toxicity Syndrome/Floxing.  However, many people continue to LIVE after being poisoned by fluroquinolones.  They find healing, recovery, perseverance, compassion and hope.  These are their stories.

This site is meant to give hope for healing to those who are adversely effected by fluoroquinolones.  It is no way meant to disregard the pain of those who are chronically suffering from the horrifying effects of Cipro, Levaquin, Avelox or the other fluoroquinolones.  There are people who don’t recover.  Their stories are real and they matter.  There are also people who are able to recover and I share their stories with the hope that they inspire others, or at least give hope that recovery is possible.

Here is a New York Times article about the dangers of fluoroquinolone antibiotics – http://well.blogs.nytimes.com/2012/09/10/popular-antibiotics-may-carry-serious-side-effects/?_r=0 – more news stories, research papers and other resources can be found on the “Links and Resources” page.

Here is a Facebook group that is a great resource for those going through Fluoroquinolone Toxicity – https://www.facebook.com/groups/floxies/

Featured post – I’m floxed. Now what?

The Fluoroquinolone Toxicity Solution Ebook has helped many Floxies to recover, including DanielCindy and Ruth.  As a bonus, you will also receive The Floxie Food Guide – a book of diet guidelines to help you through fluoroquinolone toxicity:

flu tox get help you need banner click lisa




26,081 thoughts on “Floxie Hope

  1. Lee October 6, 2016 at 4:20 am Reply

    I have another question does anyone get weird feelings in there head. It’s hard to explain them but they don’t hurt just feeling like something moving of pulsing and I might pass out.

    • Jane October 6, 2016 at 4:16 pm Reply

      I often get vertigo symptoms, light headed, headrush, tinnitus- even when I’m just sitting. I get the “pass out” feeling sometimes, but it’s triggered by the vertigo- it gives me the sensation of it. Best advice is try to breathe because for me it just escalates if I don’t…never had vertigo before the meds..

    • Cindy Jones October 14, 2016 at 10:25 am Reply

      are you taking any medication? Codeine can cause these symptoms as can any opiate.

  2. Jane October 6, 2016 at 4:11 pm Reply

    What is anyone’s best info/advice regarding hormones affecting cycles of flares? From things I’ve read, flox meds screw hormones up in general. My levels are “normal” last they checked, but I’m wondering if the shift in hormones during each month on top of that can then trigger symptoms? Best way to try addressing it? Any and all thoughts appreciated!

    • Lisa October 10, 2016 at 7:50 am Reply

      Hi Jane,

      My symptoms would flare before and during my menstrual cycle for much of my floxing. I’m not sure what stopped the flares, but I think that both time and brewer’s yeast helped. I also found that I experienced less cramping and pain after I stopped taking painkillers (NSAIDs).


      • Cindy October 20, 2016 at 11:35 am Reply

        Hi Lisa
        I was interested in your comment about brewer’s yeast and wondered what the reason was for this.
        These cramps, muscular stiffness , muscle pain are driving me mad..

    • Lorna Gemmell October 12, 2016 at 5:04 am Reply

      Hi Jane,
      I also experience this. I’m currently taking Vit B6 which both supports PMS symptoms generally but also helps magnesium (which I assume you are taking) absorption. Only been doing this for a few months so slightly early to tell but I’m hoping it will help support my hormone cycle. I also plan rest during the days/week in my cycle knowing that I will feel worse… I also never take ibruprofen. I think its slowly improving as the months go by…
      Best wishes, Lorna

      • Cindy Jones October 14, 2016 at 10:26 am Reply

        Careful with b6 it can cause peripheral neuropathy and muscle cramps and spasms

      • Amber Hall October 16, 2016 at 11:46 am Reply

        What can you take instead of ibuprofen ???

    • Lisa October 12, 2016 at 7:06 am Reply

      Another thing to look into is progesterone levels. http://www.larabriden.com/road-map-to-progesterone/. Interestingly, not having sufficient progesterone can also lead to peripheral neuropathy. Please be cautious when supplementing progesterone, as our hormonal balances are delicate. Personally, I would supplement the supporting factors (zinc, iodine, magnesium, etc.) before I would supplement progesterone directly. It’s also best to talk to a doctor or naturopath prior to doing anything – of course. A compromised gut also increases estrogen dominance (progesterone depletion), so if you can do things to increase your gut health, those may help too. Lara Briden’s site is a good source of information.

  3. Ahmdi October 10, 2016 at 11:29 am Reply

    Can someone help with my some symptomes:
    -Chest pain
    2months ago when i’mfloxed everday 24h i have chest pain left everday everday never stopped my pain.
    -My heart is not work properly
    Like heart palpilations, or sometime like abnormal heart beat(sometime)
    -Bad breath
    Like i can’t get enough oxygen on my left side

    I stopped to get supplements few days ago cuz in my country not have quality suppl, are all with sugar artificial or with bad chemicals
    Like only have mg oxide not have others forms.
    Any help for these symptoms?

    • L October 10, 2016 at 11:54 am Reply

      So sorry Ahmdi. I had all of that. I had horrible chest pain and pressure, and felt like I was suffocating for months. And my breath which had never been bad, was disgusting. Starting with the last, I think it could very well be from an overgrowth of bad bacteria and yeast which happens with this stuff. Is your tongue coated white? If so, trying opening a cap of a probiotic and put the contents in a bit of water. Swirl it around in your mouth for a while and then swallow. Even if you dont’ have a white tongue you really need to be taking good probiotics with a lot of different strains. to undo the damage to the good gut bacteria.

      As for the breathing and chest pain, I was able to get IV therapy that helped immensely, but if that is not available to you, as I mentioned iny comments to Ann, the breathing problems can be caused by mitochondrial damage t othe heart muscle and you might want to try n-acetyl cysteine, coq10 and alpha lipoic acid. You said you had not good supplements there. Can you order by mail? What country are you in?

      • Ahmdi October 10, 2016 at 1:53 pm Reply

        Ohh Thanks you very much L for answer
        I’m from Macedonia my friend
        But in my country have much supplemnts but not are high quality 😦

        • L October 10, 2016 at 2:01 pm

          Ok. Not at all familiar with the area. Hopefully you can order online. I order from vitacost.com and I know they ship to a lot of countries. You might try them.

        • Ryan L October 10, 2016 at 4:16 pm


          Bad breath may also come from a build up of old calcified bacteria (tonsil stones) in the tonsils. You may not see any stones when inspecting with a flashlight alone. In order to thoroughly inspect your tonsils, gargle warm salt water and then use a cuetip and apply gentle pressure (as tolerated) to your tonsils. If you see white/yellow/green globs start coming out, those are tonsil stones. You want them out in order to improve one of your bodies defense systems. They may not all come out in one treatment. I’d recommend inspecting your tonsils this way 2-4 times a month as part of your oral hygiene routine. Avoid the temptation of wanting to inspect them this way daily, as that may make you more susceptible to infections due to the fact that your are irritating the tonsils when pressure is applied (kind of like popping a zit). I’ve done this tonsil regiment for about 2 months, and my tonsils have actually shrunk in size due to all the debris that’s been removed. Small tonsils are a good thing.

  4. Debs October 11, 2016 at 3:37 am Reply

    The breathing issues we develop, this is very often something known as air hunger. This feels as if you cannot get enough oxygen into your lungs, or breathe deeply enough, & you can also find yourself having to concentrate on literally remembering to breathe, it is like your body has forgotten to do this automatically.
    The pain in the chest ( & any new pain in the chest should always be checked out to be on the safe side imho ) this can be caused various things, but this is often related to the ribs, inflammation of the connective tissues, something known as Costochronditis.
    We can also develop an issue which often feels as if we have a tight band around the chest area as if someone is squeezing us around the middle this can be a mimic ( for want of a better description ) of something known as the MS hug .
    Depletion of magnesium via FQs / serious adrenal fatigue / peripheral / autominic neuropathy, the list just goes on & on, bottom line we have been systemically poisoned at a DNA/ mitochondrial level, & every organ in the body has its own way of protesting at this this horrendous injustice.
    These various symptoms above, again as with so many of the others, no matter what supplements / protocols we might try, although these may help, or also potentially harm to various degrees ( & as someone who has just spent a whole year trying to recover to baseline from an ADR to an epsom salt bath ),in my experience they tend to do what they are going to do, & my own advice would be to PLEASE start ANY new supplement / protocol slowly / at a low dose at first, just to make sure you can actually tolerate it, no matter how innocuous it seems. as we are often now intolerant of SO many things.
    In my own opinion & experience of being floxed no less than 7 times, & also of a long time of monitoring others experiences of floxing, I honestly feel as things stand right now, it is actually the passing of time which tends to be the biggest factor in showing how much we have been damaged, & imho it is also is the biggest factor in symptom improvement / potential resolution of these various symptoms / us eventually ( & this timeline will be totally unique to everyone ) potentially getting to a place where we might FEEL recovered .

    • Ahmdi October 11, 2016 at 6:13 am Reply

      Hi Debs
      I also think i have Costochronditis because when i touch my chest directly i have more pain like my pain and pressue come from bones.
      For Abnormal heart beat a think is all about magnesium i think when i use mg(oxide not have other forms in my country)my heart is very good, but 7days ago i stopped suppl cuz are low quality my pain in my chest become more and more….

      My best improvements are that my energy level is come back(i think my mitochondria is recovered) i can play football, basketball everything, i can walk run very much km.
      And my anxiety, brain fog, depression, nervous all with my brain are have gone.

      • Madge hirsch October 12, 2016 at 5:03 pm Reply

        Costochondritis is my worst floxing symptom. I have also had heart rhythm problems. My doctor told me that if I can reproduce the pain by pressing or poking my chest then the origin is most likely the costochondritis. Bronwen said she had improvement of this rib pain by taking collagen. I also get the breathing problems too but they come and go. The rib pain is almost always there worst in the morning when I wake and at night. It subsides a bit during the day . Magn esium oxide is better than no magnesium at all. I was floxed long ago and had the costochondritis then too. Eventually it got better but after many cycles. I am hoping that this time it will go too.

        • Lwd October 12, 2016 at 8:07 pm

          I had that tightness around the rib cage and it got better until I reinjured that area. Now I’m feeling the pain again. You were floxed multiple times? Was it worse the second time?

        • Cindy October 15, 2016 at 1:32 pm

          Hi Madge I too and suffering like this. I have long qt syndrome and wondered what would be safe to take for the costochondritis? Is collagen safe for me?
          Many thanks

  5. Jane October 11, 2016 at 1:58 pm Reply

    Has anyone here had blood work done in the midst of an awful flare up of symptoms? I gave up on tests a while ago, but my most recent flare was so bad my doc wanted to do the basic tests. Most was normal but a couple things on the CBC were off and I’m sitting here worrying of course. Just wanted some feedback

    • Cindy October 15, 2016 at 1:34 pm Reply

      Hi which things on the CBC were off?

  6. Bruce Brannan October 12, 2016 at 5:21 am Reply

    Had Laparoscopic Hernia repair where they removed old mesh and replaced with new mesh. Had Clindamycin antibiotic drip during surgery. So far everything is good.

  7. Tom October 12, 2016 at 9:04 am Reply

    Well, I think I’ve been floxed. I took 3 days’ worth of Cipro (2x 500mg per day, part of a longer course that I never finished) for a suspected prostate infection. I stopped the course early because the lab results came back that the infection probably was not bacterial, and because I started to feel muscle pain mainly in the back that I knew was not related to my prostate issue. Once I got online and read about all the possible long term side effects of Cipro, well, that was enough for me to stop. I am now 5 days “post-flox” and am concerned. The second day off the drug I woke up feeling like I’d been run over by a truck- aches all over, mainly in the back and upper legs. Third day was much better, fourth and fifth days I’m getting achy arthritis-like pains in different parts of my body, almost like a bad case of the flu but without any of the other symptoms. I count myself lucky compared to many I’ve read about here that obviously are in much worse shape, but I’m frightened now about how long this might go on, or if it will get worse, and am not sure what to do.

    • Bob October 12, 2016 at 6:28 pm Reply

      Start taking magnesium and calcium supplements right away, especially magnesium. Find a doctor who does glutathion and nutritional IV’s. You’ll get more advice but try to do those right away.

      • Jason October 13, 2016 at 7:33 pm Reply

        Glutathione has damaged MANY people and is a VERY bad idea for any Floxie.

        There are some who think it has helped them, it is not worth the risk of damage it is a very dangerous game of russian roulette where permanent damage can occur

        • L October 13, 2016 at 7:47 pm

          I have to disagree. Glutathione is the master antioxidant. It has helped me tremendously.

        • Jason October 14, 2016 at 11:21 am

          L – You think it has helped, and it may have, although you did many other good things at the same time and in these cases it is always hard to tell what did what. There are cases where it certainly seems to have helped people.

          However, the simple fact here is people have been DAMAGED, time and time again, over DECADES, I have talked to several them and have seen many stories.

          So again, everyone is different, what helps one person, can send another to the depths of hell, and there is no better example of this than a Glutathione IV

          Yes, it is the Master Antioxidant, what the Doctors don’t understand is it is NOT safe to take as a supplement, it is much safer to promote the production of it in the body.

          Everyone has some level of Heavy Metals in their body, when you do something like take VERY LARGE doses of thiol sulfur in an IV, you move LARGE AMOUNTS of Mercury all at the same time, THIS is what damages people, it is EXTREMELY toxic and damaging to the body, and the Doctors are trained incorrectly on this 100%. They (Naturopaths and Functional Docs) are also trained to do challenge tests to test for Heavy Metals. Not only are these NOT useful, they are also DANGEROUS for the same reason, the dose is MUCH TOO BIG and thousands of people have been damaged, over and over and over again over many years.

          These are FACTS, and can NOT be argued.

        • Stephanie October 14, 2016 at 1:21 pm

          You can’t just say something does damage. You are not a dr. It’s dangerous to make these claims and can cause harm. I suggest you are more careful in how you word things and also not attack people on this site. If you disagree there are kinder ways of disagreeing. Also and for everyone who is not a dr statements should include in my opinion, experience and follow up with you are not a dr.

        • Bob October 14, 2016 at 3:32 pm

          You may have a point but I would disagree that it “can’t be argued” I got a glutathion IV after getting floxed and I felt much better to say the least. If you are taking supplements that pull out heavy metals it would make sense to me take glutathion to help the detox.

        • Jason October 14, 2016 at 2:17 pm

          Stephanie it is MUCH more dangerous to promote something as safe when it is in FACT dangerous, I’m sorry this has escaped you, regardless of who is right or wrong

          And where did I attack someone? People make this mistake over and over again, I simply stated a FACT, and then backed it up with more FACTS, I did NOT say anything bad about anyone, please re-read the things I wrote. Yes, my statements contradict what some believe on this site, that does not make them an attack goodness…..

          No one needs to be a Doctor to make valid claims, and in fact as we have seen thousands of times, Doctors make some of the most INVALID claims concerning Health, and damage people over and over again.

          So YES, I CAN say that Glutathione DOES DAMAGE, because it is WELL DOCUMENTED that it does, and I KNOW PEOPLE DAMAGED FROM IT

          What needs to stop are the dangerous claims that it is safe, as it is not. I used to think it was a good idea too and recommended it here long ago, this was before I learned MUCH more about it and spoke to some of the victims of the treatment.

          I am NOT blaming anyone, for anything, I am just stating facts to educate people, because there is, as usual, a LOT of misinformation out there and this is a BIG one.

        • Jason October 14, 2016 at 2:19 pm

          Here is just 2 such examples:

          DON’T DO IT!!!! I had a glutathione IV (by LLMD) and 2 days later I couldn’t feel my feet and everything got worse!!

          June 2013 started with brain fog and stomach upset. Took my gallbladder out. October 2013 took my thyroid out. Cancer. Kept loosing weight. Went crazy. Suicidal. Went to integrative doc. Gave me IV glutithione. Everything went to hell. I became more sick with horrific nerve pain, electric shocks, and emf (electromagnetic frequency) hypersensitivity. I went from 200 pounds to 120. I don’t feel like eating (…) I got very sick after IV glutathione which started my tingling and horrific nerve pain electric shocks.

        • Teresa October 16, 2016 at 2:36 pm

          Thanks for sharing that very important information!

        • Jason October 14, 2016 at 2:21 pm

          Here is a couple more:

          Just like many of you, I’ve spent thousands on doctors who didn’t have a clue as to the cause of my illness, worse yet, some even gave me treatments which made me worse e.g, IV glutathione. I’ve seen it all, and now ready to do some serious healing. (…) I had about 5 or so IV glutathione treatments 9 months ago. I think 2 grams in each. I developed bad neuropathy in my legs, arms and extreme soreness in the outer part of my shoulder. The worst bit was that I became suicidal for a couple weeks. Horrifying.

          I was doing glutathione, lipoic acid IVs for six months and I developed really bad neuropathy. I received them for immune support and lyme disease. I had that for 6 months. Then boom. I couldn’t walk. I spent two months using a walker and the worst pain I could imagine

        • Jason October 14, 2016 at 2:22 pm

          That is just four HORRIFYING stories, there are hundreds if not thousands

          Nerve damage is one of the most common reactions after Glutathione IV, sometimes permanent

        • Jason October 14, 2016 at 2:27 pm

          And here is one more right on this site (there are more on here, too)

          See first comment under this article, Peter developed BAD PN, restless leg, horrible anxiety and more after a Glutathione IV (I have spoken with him a few times)


        • Bruce Brannan October 14, 2016 at 3:49 pm

          Hey Jason,
          I had Laparoscopic Hernia Repair and was given Clindamycin and a bag of saline drip intravenously on Monday. When I woke up I mentioned how good I felt especially in my joints and muscles. I am trying to figure out what could cause my symptoms to go away. I was not in pain before surgery but would have the normal periodic FQT symptoms in wrist and shoulders. I was kind of worried about relapse from surgery but have been pleasantly surprised. Still no pain.

        • Jason October 14, 2016 at 5:14 pm

          Bob, the facts I have put forward can NOT be argued, that is what makes them facts

          Note, that it included, “there are cases where it certainly seems to have helped people.” So, possibly you fit into this group. However, you are a long term sufferer of PN, and I don’t know when that started. As I said, Neuropathy and Nerve Damage IS one of the more common adverse reactions, sometimes immediate, sometimes delayed. Sometimes people can do 1 – 5 IV’s and be fine, and even feel better, then after the 6th one BOOM, sh*t hits the fan.

          Glutathione is NOT helpful for Heavy Metals unfortunately, for the exact reasons I have already posted, it makes a weak bond with Mercury and by moving a LOT of Mercury all at once people end up damaged. Note this is another subject I have expert knowledge on due to the necessity of being Mercury poisoned myself

        • Bob October 14, 2016 at 5:30 pm

          For awhile I was being helped by a practitioner that was expert in detox. When she had me on glutathion I was also on NDF, a supplement with cilantro that binds to the mercury. That seems to make sense to me. The cilantro binds the mercury and the glutathion helps the liver detox.

        • L October 14, 2016 at 5:18 pm

          Jason, we’re going to have to agree to disagree on this one. Anyone of course can have bad reaction to anything. People have posted about having problems with epsom salts. However, my two NDs (one of which I credit with saving my life) both use glutathione IVs on floxies, Lyme patients and cancer patients, as does a local integrative pulmonologist and a local integrative neurologist. FLQ Experts such as the late Dr Jay Cohen also recommended finding someone who did glutathione IVs. So I think their value cannot be denied.

        • Jason October 14, 2016 at 5:19 pm

          Hi Bruce. Glad to hear the Surgery seems to have went well then 🙂

          I’m not sure on your question, but if I had to guess it might be from the anti-inflammatory effect from something they have given you. I have seen this myself in this past with a different antibiotic that cleared up something completely unrelated to what I took it for, and it was the anti-inflammatory effect

        • Jason October 14, 2016 at 5:29 pm

          Hi L. Yes, some people will continue to ignore the warnings
          /stories and end up damaged (and many will get lucky, too, luckily), this is unfortunate but how these things go. Sometimes it is not until YOU are adversely affected, or know or talk to someone who is adversely affected that it really makes you open your eyes. (myself included as I explained above).

          Doctors as I said above are most definitely Glut, Glut, Glut, because, logically, without specific Chemistry knowledge and a thorough understanding of applying that to Heavy Metals, Glutathione DOES seem to make sense as a good therapy. However, even without that knowledge, taking a BIG DOSE of it, does not, since it is known to bind to many toxic things in the body, including very very damaging heavy metals, so of course it makes NO sense to move a whole bunch of it at once that way all at ONE time.

        • Jason October 14, 2016 at 6:15 pm

          Cilantro unfortunately is another thing that makes people VERY sick (and something that is once again NOT understood in the Medical World, by any type of Doctor)

          He is a sampling of 4 stories that people can also choose to ignore if they like


          Cilantro about killed me in 2012. 72 hours of complete brain malfunction following the consumption of the recommended dose of Cilantro Extract. I dont mind it in food, but I will never forget that experience. Chlorella made my whole body twitch and the twitching took a month to stop afte quitting the Chlorella. I thought I was just allergic but looking back I am certain that I was flooded with metals and those reactions were from shocking my system.

          I wasn’t trying to chelate with cilantro. It still moved mercury to my brain and made me very sick. In fact it made me appear mentally ill. I became paranoid. I became dyslexic and bipolar. I could not remember my phone number. I lost my job.

          I just got “cilantro’d” again by my favorite Indian restaurant. I think it’s time for me to stop eating in restaurants all together. Even when you tell them you have an allergy, they can still screw it up. I’m in agony right now. Horrific dizziness and brain fog. Taking loads of vitamin C and activated charcoal. Hope to feel human in a few days. I feel severe brain fog including bad dizziness and light headedness. I’ve had a few zaps of burning brain as well. I hope this is the worst of it. God help me.

          I accidentally got cilantro in my food recently at a restaurant that promised me they were removing it from the recipe and I almost went to the hospital and thought I was dying pretty much. Yet another thing people take for chelation without knowing the damage it can do. I did not know it was the cilantro until about two days later when I ordered the same thing and it came out looking completely different and they explained to me that all of the green sauce had cilantro in. The kitchen had screwed up two nights prior despite my strict recommendations NOT to put it in the sauce. Cilantro symptoms started out as a bit more energy, but then quickly turned to a rapid heartbeat, anxiety, dizziness and fear there was something wrong with my heart. I almost went to the hospital. While I realize this doesn’t happen to everyone, I’ve heard enough stories from others with similar reactions that it’s not a safe option and I worry about people that take it or other unsafe advice without knowing what might happen.

        • Peter L October 15, 2016 at 3:02 am

          I can confirm that glutathione has caused damage; headaches, noise sensitivity. It may move Mercury around. It’s Russyan roulette

        • Peter L October 15, 2016 at 3:52 am

          I can confirm that glutathione has caused damage; headaches, noise sensitivity. It may move Mercury around. It’s Russyan roulette.
          Many many people have been SERIOUSLY damaged by ONE glutathione injection.
          The Mercury link – where glutathione shifts it from storage onto your brain or organs – can be torture and very very hard to reverse.
          Why risk it?

        • Cindy October 15, 2016 at 2:11 pm

          Jason Thank you for warning us about the damage that glutathione does to people. I have never had any as something kept telling me to be very wary of it. Codeine is another nasty drug that can cause and worsen peripheral neuropathy and tendonitis.

        • Cindy October 15, 2016 at 2:52 pm

          Jason I agree. I am very wary of glutathione.
          I think that avoiding chemicals is the best option.

          CODEINE CAUSED ME TO FEEL SUICIDAL. It suppresses the endorphins and dopamine neurotransmitters .

        • Peter L. October 16, 2016 at 2:38 am

          Further to my earlier posts, I can confirm that further symptoms included RLS, intense neuropathy, as well as the ones previously described. You may think Jason is over-reacting here, he is not and it is exceptionally disappointing that the warnings are not at the top of the stories herein. It’s not just this site, but in a lot of places where there are floxie stories. Your naturopath or ‘alt heath practitioner’ do NOT know the risks and you are effectively REALLY gambling with your health whenever you take a material that can mobilise mercury, such as glutathione or ALA. Jason is bang on the money and all he says is true. Glutathione is the big one for danger, followed by ALA.

        • Bob October 16, 2016 at 10:07 am

          If you are going to get rid of mercury you have to mobilize it somehow. You also have to get rid of it as quick as possible once you do. It is a balancing act. I am not ready to believe these substances have no place in a well thought out detox program by someone well experienced.

        • Stephanie October 16, 2016 at 11:09 am

          Exactly you cannot let all this stuff sit in your body. I am in process of figuring out a very careful detox program because of how severely I have been harmed. I am not just going to live with this crap in my body. I believe the only way to get better is to get it out. I know it’s going to be very painful but it’s worth it to flush it out.

        • Peter L. October 16, 2016 at 3:26 am

          There are about 6 or so stories that heavily recommend glut in the ‘recovery’ stories, plus 2 or 3 that recommend liposomal glutathione, and several strongly-worded supports for glutathione in the comments section. The warnings need to be at the TOP of the case studies, yes they may have helped some, but the clear risk of this potentially VERY dangerous supplement needs to be highlighted, so people can make an informed choice.

        • Jason October 16, 2016 at 12:23 pm

          Bob I have done extensive research on Mercury and know MORE than the Doctors do about this, a LOT more. You DO NOT just mobilize Mercury, this is how people get damaged, this is what Glutathione IS doing, poorly, and why is it NOT recommended and neither is Cilantro. Did you read the stories above? I mean holy smokes, there have been 100’s and 1000’s of these people getting damaged because of ill-informed Doctors.

          Here are more horror stories from ANOTHER bad way to try and chelate Mercury


          This is a very in depth complex subject, the bottom line is Mercury is EXTREMELY TOXIC and most of the ways people try to get better do NOT work well, for many reasons some of which I already went over above.

        • Bob October 16, 2016 at 4:03 pm

          You keep talking about what not to do. If you have researched it so much then how do you get rid of it.

        • Jason October 16, 2016 at 12:34 pm

          @Peter – Thank you for reporting on your own damage from Glutathione IV

          @Cindy – Hi Cindy, Cilantro/Coriander is a herb, commonly used in Indian and Mexican and other cuisines. There have been some studies done attesting to its use as a Heavy Metal chelator, and it DOES bond to Metals, unfortunately though it is poorly studied and understood so of no use currently and often makes people more sick because a PROPER way to use it for chelation has never been established (and CAN NOT with the current information available).

          My research/studying is going VERY WELL thank you for asking! My Cipro research concluded 4 months or so ago, I estimate that I have the ADR 90% completely figured out, and have verified my findings in many ways including through helping people get better through personal consultations. I also started studying Functional Medicine about the same time 4 months ago and I have ALL the modules necessary to become a full Functional Medicine Practitioner so that is exciting. This is in addition to the 10 years of previous study I already have on the Human Body and the different Malaises that can plague it, different healing methods, detox, etc, etc.

          Hope you are doing okay Cindy 🙂

  8. Catherine P October 12, 2016 at 10:54 pm Reply

    As well as being severely floxed I am also currently having herbal treatment for Lyme disease. For the past few weeks I have had extreme diarrhoea, nausea and vomiting and it has been suggested that I take NAC to help detox the liver. I’m not to keen on taking any more meds – does anyone know if this is safe for floxies, or can anyone recommend safer alternatives? Thanks in advance.

    • Mark S October 13, 2016 at 6:35 am Reply

      NAC is safe.

      • Cindy Jones October 20, 2016 at 2:38 am Reply

        Hi Jason
        I apologise for not getting back sooner and also for the lenth of this response.

        Thanks for your reply. It is very informative. I did not know that cilantro is coriander. I am not going to take any more because I noticed when eating it I felt quite ill but did not understand why.

        I am pleased that your studying is paying off and feel very confident that you will be very successful. You deserve success as you have studied for a long tim and this shows serious committment.

        If you are available for private consultation albeit from a distance I would be very interested.

        I am not feeling a great deal better thanks to fluoroquinolones then latterly to codeine prescribed by a doctor for a dislocated shoulder then more recently for a bone condition. When I realised just what a dangerous drug codeine is and how it suppresses the endorphins which as you know are the body’s natural painkillers and anti depressants I stopped taking this poison 15 days ago. I was on a low dose despite the ‘doctor’ prescribing 60 mgms up to four times a day.

        I was taking 3 to 4 tablets each WEEK. However according to a neurologist that was more than enough to case the serious side ffects of daily severe headaches, throbbing pain in the eye, sweating at night, had to change nightwear three to four times in winter months. Anorexia, weight loss, severe agitation, anxiety, depression, agoraphobia, panic attacks, seizures, fear, fear of being left alone even when someone else was in the house. The list is endless.

        The doctors response to my asking for help and support to cope with the withdrawal was to say that he would send me some more codeine at a lower dose to wean myself off it!!
        I had not been taking any for 8 days at that point. Needless to say I declined his ;offer;.

        I still feel demotivated wit aches and pains in my legs and feet. I am hopeing that this will pass but it is extremely similiar to being floxed. I will end here but I felt the info may be useful in your work if you happen to come across anyone else who has been prescribed codeine as a pain killer!!

        PERSONALLY I feel this drug should be banned. Just like a lot of others especially the toxic fluoroquinolones.

        I wish you every success Jason. Please keep in touch we need you.

    • L October 13, 2016 at 8:32 am Reply

      Nac helps to increase your glutathione levels which is crucial. (Glutathione has been called the master antioxidant.) When I got nutrient IVs I always got it with a “push” of glutathione at the end (with the exception of H2O2—which does not mix well with that.) I wanted to tell you that when I got my IVs (over 60) which helps immensely, a good half of the patients getting IVs there were being treated for Lyme, and were getting many of the same IVs as well as ozone therapy. I would seek out a lyme specialist, esp one that is integrative or an ND and does IV therapy.

    • Ryan L October 13, 2016 at 10:48 am Reply

      NAC should be safe unless you have problems with your detox pathways (cyp450) or if you have the CBS gene mutation. You’d need to take the 23andme test or another genetic test to determine this. If you don’t have problems with things like lemons, grapes, and sulfur foods in large quantities, it’s probably safe to take NAC or Glutathione. Always start with less than the recommended dose to be safe.

      • Debs October 16, 2016 at 7:43 am Reply

        We who are floxed invariably will have problems with the liver P450 enzyme pathway to various degrees, the FQs are very powerful inhibitors of primarily the P450-1A2 & the P450-3A4. The degree of inhibition & timeframe to potential recovery of the pathway seems dependent on the severity of reaction These particular enzymes are responsible for the biotransformation of a multitude of allopathic drugs & also various other substances which enter the body This is for example one reason why many of us have problems tolerating caffeine after floxing, as caffeine is metabolised through this very same pathway.
        FQs are notorious for interfering with, & inhibiting the Liver P450 enzyme pathway & the effects of this can last for a very long while, in fact I now actually wonder If mine will ever recover . The inhibition of the liver P450 enzyme pathway by FQs is a very important reason to ALWAYS do our OWN deep research into ANYTHING we are thinking of trying whether this be natural or allopathic. we must be VERY careful to make sure we have researched to death ANYTHING we are thinking of trying out to ascertain whether instead of healing it may well end instead potentially causing us serious injury, or perhaps even the death of us instead.
        We are all adults here, & as such, personally, I tend to give people credit for their own intelligence.

        One tip for those who are recently floxed, at least from me for what its worth, is to consider seeking out information from those who have been around a very long time, & / from those who tend to do a lot of research. We old time floxies in particular will always tend to caution against panicking , & caution against trying one thing after another, caution against trying any serious treatment route, particularly early on in an individual floxing, & we do this for a very good reason, because a floxing develops over a timeframe, often symptoms can be delayed for months & therefore we do not yet know in the early stages HOW we have been affected, & we will also recommend if trying ANYTHING new, to try it at a low dose at first, just to see how we react to it, as we have sadly seen numerous people injured further over the years in this way
        We can only hope that others will take notice of this advice, however if this advice is then ignored, as it is at times, human nature being what it is, well so be it, we are in the end responsible for our own decisions. If we make mistakes, we hopefully learn from them.

        ANYTHING, & I mean ANYTHING, be it natural OR allopathic can potentially harm a person, particularly one who is suffering from FQ toxicity , it simply depends on the persons individual biological makeup etc.
        if we were to start putting warnings above everything that may potentially harm us, one problem is that there are SO many things which can potentially harm us, & I am not of course immune to this even 26 years down the line ( she says, still trying to recover over a year after having a seriously bad reaction to epsom salts, ) that the list would be so dammed FQing long, there would be no room for anything else.

    • Cindy October 24, 2016 at 3:13 pm Reply

      Possible cause of continuing signs and symptoms may be due to gluten intolerance.

  9. Amy October 13, 2016 at 12:52 pm Reply

    Does any of the research talk about flox meds causing cancers, leukemia, etc? I now have abnormal bloodwork that has caused the hematologist to want to do a bone marrow test…just sitting here in disbelief & of course worried. Can anyone offer info. or insight?

    • L October 13, 2016 at 1:36 pm Reply

      I have read articles linking the FLQS to cancer, parkinson, als, alzheimers and macular degeneration. Not sue I can lay my hands on sources at this point.

      • Amy October 13, 2016 at 4:01 pm Reply

        Wow it’s crazy, it all happened recently so I wonder if this effect can be happening so fast…I specifically asked the doctor if those meds can do this. At first he made that “ehhhh” and almost shrugged, then said “I don’t think so”….that’s what freaked me out. I have no idea what to do now except maybe try to take some supplements that I was putting off. At this point, why not

        • L October 13, 2016 at 5:09 pm

          It truly is crazy. This stuff is so toxic, and sadly most doctors are so immersed in big-pharma trained thinking, it’s hard to get them to accept just how damaging these drugs are. Here is one link where Dr Charles Bennett, a researcher at U of South Carolina who has been pushing for warnings for years, talks about the connection to those diseases I mentioned. http://academicdepartments.musc.edu/newscenter/2015/antibiotic-warning.html#.WAAhQMkca84

          My suggestion would be to dump the “ehhh” doctor and find an integrative one or ND. I got told so many times “can’t be the Cipro.” No, just a HUGE coincidence that someone who was extremely fit, suddenly developed vision problems, neuropathy, breathing problems, olfactory nerve damage and twenty other things all after taking cipro. (BTW the ND I saw had treated floxies before, but I would say about half his practice is Lyme patients and the other half cancer patients…and many of the treatments overlap.)

        • Tricia October 13, 2016 at 7:22 pm

          Hi Amy,
          So sorry to hear about your abnormal blood work 😦
          How far out are you if you don’t mind me asking?

        • Anna October 18, 2016 at 2:53 pm

          Amy, if you dont mind me asking, what was abnormal in your blood test?

      • Tricia October 13, 2016 at 8:35 pm Reply

        L, or anyone for this matter, would you know how far out you can be before we are ever in the clear for cancer or any other horrific disease? ?? I’m 2 years out, have suffered from many scary symptoms including delayed neurapothy, muscle weakness. I have recovered very much, almost feel “normal “. I had blood work taken last week, all was well. At what point can we stop looking over our shoulders wondering when, or if , something else, something more devastating, will go wrong??

        • L October 13, 2016 at 8:53 pm

          Wish I knew the answer to that. I think the best course is to just keep eating clean, avoiding pharmaceuticals and use supplements to deal with remaining issues

    • Cindy October 15, 2016 at 1:51 pm Reply

      Excess B12 can cause blood disorders and also inflammation of the bowel.

  10. Amy October 14, 2016 at 10:29 am Reply

    My blood work that is abnormal was only ever abnormal while I was on these meds. Never had health issues before. Now I’m off these meds & it’s still causing my platelets to dip. I’m terrified that the meds induced something serious. I don’t want a bone marrow test, I don’t want any of this. Alot of people (including family) don’t understand & think it’s just anxiety. I’m honestly sick to death of people judging when they don’t know….this sucks

    • L October 14, 2016 at 10:32 am Reply

      Yeah, it just adds insult to injury. No one could have even an inkling of what we go through. I would really urge you to see an ND or integrative doctor, esp one who has dealt with floxies before. I know I had so many concerns when this happened…I was walking death (and looked like it) and my ND was the first doctor to say “you’re going to be ok…let me worry about things.”

      • Amy October 15, 2016 at 8:30 am Reply

        Are you sure ND is worth trying? They say my platelets are dipping severely low and I don’t feel well when it happens. They want to do bone marrow biopsy to rule out cancer/leukemia. I don’t know how ND can help if I really have that? I know this is all from the meds 100%. Feeling hopeless

        • L October 16, 2016 at 1:19 pm

          You have to go with your gut. I personally would not do a bone marrow biopsy. The thing is doctors are mostly CLUELESS about this so they do test after test after test (just ask Stephanie!) because they refuse to believe the damage is from a pill they have been prescribing for years. Just like MDS, all NDs are not created equal. I found a great one (two actually.) You might want to post the area you live in to see if someone can recommend one. You said “I know this is all from the meds 100%.” Trust that. And I don’t want you to feel hopeless. I felt hopeless and suicidal for months…I was quite literally gasping or each breath. It was terrifying. You will get through this Amy.

    • Stephanie October 14, 2016 at 1:13 pm Reply

      I am two years out I have had elevated white blood cell count for the entire time. Not just a little elevated a lot elevated. To this day no one knows why. I have been told I have cancer I have been told ooops just kidding. I recently got hold of a record that says I have the on set of Parkinson’s. So I can tell you not to freak out they all have no clue. I don’t know if it helps but I have had and still get huge swelling in my armpits. It comes and goes. Until you get an actual answer, I would chalk it up to they don’t know what they are saying.

      • Bob October 14, 2016 at 3:36 pm Reply

        Those are your lymph nodes swelling in your armpits. I would suggest getting a lymph drainer like :Lymphonest. It works well.

      • L October 14, 2016 at 5:12 pm Reply

        yep….gotta go with that. they are mostly clueless

      • Amy October 15, 2016 at 7:03 pm Reply


        Did your counts go back to normal? If you don’t mind me asking, what tests did they do to even say you had cancer? I’m just dreading the thought of a bone marrow biopsy, I really hope this gets better

        • Stephanie October 15, 2016 at 7:47 pm

          I don’t mind at all. The lymph nods in my armpits and neck were swollen the ones in my armpits are still swollen and sometimes I have to squeeze the puss out of them. I have a WBC count that is abnormally high. They did this blood test where they shoot a laser at it and look to see what the cells look like instead of doing a bone marrow test. Other Drs have suggested a bone marrow test and I refuse. They wouldn’t say 100% that I don’t have cancer I went to a hemotologist to look at my blood work and he was the one to say I have no clue why your WBC count is high but you don’t have cancer. I found out that in my records without telling me they actually suspected that it was the high amounts of cipro and levequin I was given but they never told me kept ordering tests I said enough and went to a naturopath. They wanted me to come back in a few months to check again because they told me that it was unclear and I could have cancer. It’s been 2 years almost and I don’t have cancer and still have a high WBC count. No one knows why so they actually ignore it. I also have the high swelling indicator any of the Drs I have seen including my naturopath have ever seen. No one can tell
          Me why I also recently found out that I have been labeled with early signs of Parkinson’s. I truly think you should get second opinion and also go to a naturopath also request all of your records including the Drs notes. I have discovered that you can learn a lot by them.
          I am currently not allowed to detox except via my naturopath. Next time I see him later this month we are going to talk about homeopath cellular detox I have to be monitored because I have so much damage. So it’s why I am super careful about everything.

      • Ned October 16, 2016 at 2:26 pm Reply

        I am 15 months out and there is some recovery. I am sleeping better but I awoke this morning from a dream that gave me such a panic attack, I freaked out, all I wanted to do is kill myself. It lasted 20 minutes and I calmed down. Now I am taking anti depressants as I have ocd, but when I awake in the morning and the anti depressant effect has weakened since my last dose 24 hours before, I feel like an insane person, “sick inside’. I know its the cipro side effects, suicidal ideation and hyper anxiety. I take my meds and I calm down and return to sanity. I am NOT recommending antidepressants but almost a year and a half out, I am STILL having panic/anxiety/suicidal/ ideation/whimpering. I’m NOT going to harm myself AND I am grateful to this site to read that I am not alone.
        However, to join the benzo thread, I took klonopin for about seven months almost two years ago (before floxing) and it eventually made me sick. It was 8 months of HELL, tapering off it and dealing with withdrawal. Benzos like k, xanax, valium are meant for short term use, used occasionally. Those on the ‘benzobuddies’ site describe that within 3 weeks of daily use you can be hooked…ADDICTED. It’s very possible! None of my doctors were aware of that!! So use sparingly!
        And regarding that someone who’s white platelet count has been affected, I was diagnosed with chronic lymphositic leukemia 5 years ago (way before floxing), still at stage 1, so that’s great news! My oncologist took blood one day 6 months ago and reported that my RED platelet level was dropping. I did some research and discovered that fresh papaya eaten every day would raise the level. I tried it and two weeks later my red level was back in the normal range. I am in no way suggesting the change in your white count means ANYTHING other than your level has changed. But google and see if there is a natural remedy to increase the count. Best to all.

        • Ned October 16, 2016 at 2:31 pm

          …correction, lower your WBC!

        • L October 16, 2016 at 4:27 pm

          great advice Ned, and speaking of natural remedies, there was a study comparing prozac to turmeric, and turmeric won. Not only no bad side effects, but it also has benefits like being anti-inflammatory.

          As someone who was on anti-depressants for decades, and now OFF them, I truly believe they worked because I believed they work. The fact that I could get through this nightmare without them speaks volumes. There is actually no hard evidence to prove that they too other than the placebo effect. Also, depending on which ones you are on, you need to be careful going off. I tried too quickly and got electrical zaps in my legs and other side effects. I went back and slowly weaned off over a period of a month or so.

        • Ned October 17, 2016 at 10:05 am

          Thanks, L. You may not have really needed to be on an antidepressant in the first place, so getting off it was the solution. Prozac has a long half life (3-4 days) and is easier to taper off than paxil (30-40 hrs). I was on paxil for 21 years and it saved my life. Getting off it sent me into a bad depression and my ocd returned with a vengeance, ocd that I had before paxil, but it had progressed over time. I also think the cipro exacerbated it. But I will get tumeric as it will help. Thanks!

    • Tricia October 14, 2016 at 1:43 pm Reply

      I hope whatever is causing your abnormal blood work resolves quickly ! I agree w L…I would definitely get an ND on my side. Expensive, but worth it. Im sorry you , and all these wonderful people on this site are dealing w this unthinkable craziness 😦
      I remember (before I was floxed) I had elevated liver enzymes. I was terrified. Luckily that went away after 6 months, to this day I have no idea what caused it…

      • L October 16, 2016 at 1:21 pm Reply

        And I just saw this….focus on the first reason: “The occurrence of high platelets is divided into two medical categories: primary thrombocythemia and secondary thrombocytosis. In primary thrombocythemia, the cause of the high platelets is not known, and it occurs as an independent condition. In secondary thrombocytosis, high platelets occurs as a symptom of another disease or condition, such as anemia, infection or cancer.” Since you feel certain it is from the meds, I would guess you fall into the “unknown” category

    • Debs October 14, 2016 at 2:59 pm Reply

      Floxing can mimic, & even cause secondary versions of many conditions & this includes to the point of the markers( often of autoimmune conditions ) even showing up in blood-work.
      Many floxies have abnormal results on blood tests, & in respect of secondary versions of autoimmune conditions for example this can be for a long while after being floxed.
      We do know that our allopathic Drs do not know what the hell they are doing & they are clutching at straws, throwing out any label at us our symptoms vaguely remind them of, in order to try to avoid themselves coming across as ignorant & clueless.
      I was suspected of having first ALS, then Huntingtons disease, then it was perhaps MS , & the list just went on & on. I now carry 3 labels of conditions i know I don’t actually have, & I highly suspect also a 4th.
      I know it is hard , but until it ‘ all comes out in the wash ‘ so to speak & you have a conclusive answer, please try not to worry too much, as it does not help us with healing, especially in respect to our immune system.
      I definitely agree with the suggestion of seeking out a natural alternative Dr, always a good move imho .

      • Amy October 15, 2016 at 8:39 am Reply


        Thanks. The majority of my tests are normal. It’s the platelets that have me worried, I know if those go too low it’s life threatening & when they’re low I feel sick so there’s some correlation. I have a bad feeling the meds have destroyed my body/bone marrow or whatever. I don’t know how something that serious can be fixed or if that’s something that will resolve with time- I’m scared it won’t. I’m open to trying ND just to get input.

  11. Ken ward October 15, 2016 at 1:30 am Reply

    God bless everyone who this has happened to, it happened to me 4 years ago next month, and I can’t believe a person can feel this bad! Dr’s won’t listen, your entire body mind and soul are malfunctioning and you can’t get your dr to even aknowledge that your sick much less try to help you, it’s like there afraid there going to get sued! Anyway I have found some hope for folks after 3 and a half years of this horrible excistance I went to see my Dr again I was so sick I couldn’t take it anymore, when I was in my appt. I was having the tremors real bad and he could hear me wheezing, from the constant mucus production 24 7 , and he finally said to me oh looks like that stuff destroyed your central nervous system and he put me on a medicine called klonopin, it helped 90 percent of my symptoms the first dose! I don’t want you folks to think I feel normal or great because I dont, every day is still a challenge, but I can FUNCTION AGAIN and even get out of my house and do some fun things again, anyway just wanted folks to know this medicine has really helped alot! It is a sedative that calms the nervous system which in turn calms everything else down! Sadly it does nothing for the horrible tendonitis. Rather you know it or not all those unexplainable symptoms from head to toe your having are because your nervous system has been damaged, destroyed really. Try it your life WILL IMPROVE!

    • Debs October 15, 2016 at 2:38 am Reply

      As a long term survivor of psychiatry, who has done many years of research on the psychotropic drugs, although it is of course not my place to try to dictate whether someone should not take a particular drug I certainly will not keep quite on the potential risks of them the last thing we need is to add yet more problems to our situation. So I urge you to please make sure you do IN DEPTH research on the Benzos, including, addiction, very nasty withdrawal issues. & also long term risks to health of taking them Tolerance to these drugs will develop, & the dose will only be highered so far .
      These drugs are unfortunately not what they seem to be, & many people who decide to take them will find that they have traded short term gain for long term pain. Please be VERY careful indeed Ken .

    • Lisa October 15, 2016 at 7:05 am Reply

      Please be careful, Ken! I’m glad that the klonopin is helping, but I encourage you not to think of it as a cure. Benzodiazepines can help people through the worst of FQ toxicity, and if they are used sparingly and appropriately they can be life savers. BUT, they have a dark side. They can be addictive and people can have paradoxical reactions to them (meaning that they do the opposite of what they’re supposed to do, increasing anxiety rather than decreasing it). Instead of thinking of it as a cure, I encourage you to think of it as something that is helping you to get through this difficult time, while also preparing yourself for the difficulty of getting off the klonopin eventually too. Benzo withdrawal can be a difficult and drawn-out process. I’m truly glad that it’s helping you now. Just be aware that it can be a wolf in sheep’s clothing, and if you can use it as sparingly as possible, well, that may be helpful in the long run.

      Best regards,

      • Cindy October 15, 2016 at 2:03 pm Reply

        Wise words indeed re the benzos. They are lethal. Getting off them is a job in itself.
        Another nasty is codeine which as you all probably know is an opiate and designed for very short term use only of three days.
        Withdrawal from these drugs is very unpleasant and painful but worth it.

        Codeine is another massive profit maker for Big Pharma and doctors. Look out for it in neurophen plus

    • L October 15, 2016 at 9:58 am Reply

      I have to echo what Lisa and Debs have said. Benzos and withdrawal from them can actually create/exacerbate many of the problems floxies already have. I think this is a dangerous road to go down.

      • Ken ward October 15, 2016 at 12:59 pm Reply

        So is suicide! It has helped me immensely ! I was actually considering suicide after 3.5 years of that! So it’s about weighing the risks verses reward, and as much as there helping me it was a no brainer.

        • Lisa October 15, 2016 at 1:04 pm

          Benzos are certainly better than suicide, there’s no arguing that. Please be cautious. I truly hope that you are a person who is able to take them to get through a difficult time, then can get off of them without too much trouble.

        • L October 15, 2016 at 3:53 pm

          I hear you Ken. I was suicidal for months because of Cipro. I totally get what you are saying, and if you are getting benefits that’s good—I would just be careful of relying on it long-term.

        • Debs October 16, 2016 at 3:03 am

          If you are going to take Benzos please do not take them as a regular drug every day religiously as we do other drugs, you will quickly run into trouble that way . I would strongly recommend that they are used only intermittently, on the odd occasion & only when things are so unbearable you feel you cant cope. The benzos as with the other psychotropics when taken ongoing, will eventually trigger the original problem you were prescribed them for, only these symptoms, when these are drug induced they tend to then be a million times worse.
          Yes, they can be helpful in a crisis, as a last resort drug, but they do not heal anything they suppress emotion, flatten effect. Eventually the anxiety will break through on the dose you are on, & you will need to higher the dose .
          What tends to happen when someone is prescribed a benzo is that Drs might higher it at first, & then will not agree to higher it any further & instead prescribe antidepressants / antipsychotics/ mood stabilisers to take alongside , & before you know it, you will be a walking pharmacy & also due to the fact that all psychotropics are drugs which potentially cause dependence run a big risk of then ending up trapped, only instead of just having just one drug to get off you will then have several.

          I would strongly recommended taking benzos as a last resort drug in an emergency situation &/or on the lowest dose possible,& only intermittent use for the shortest amount of time you can get away with, whilst ongoing seeking other non drug alternatives.

          When a person is considering getting themselves off any psychotropic drug & especially if you have been on it regularly, this should always be via at least advice / support from one of the various withdrawal so support groups, NEVER try to do this cold turkey, it can potentially kill .

      • Cindy October 15, 2016 at 2:07 pm Reply

        With regards to opiates and benzos. I see that these are drugs that drs are so keen to prescribe but when people become addicted/dependent on them drs do not want to know.
        This is a link to withdrawal pf opiates.


      • Cindy October 23, 2016 at 11:09 am Reply

        What happens after withdrawal in terms of the existing signs and symptoms.

  12. Debs October 15, 2016 at 3:55 am Reply

    This link contains a lot of information, including links to various other useful sites, help for withdrawal from psychotropics & more for anyone interested. Also links to various support groups etc & information on many alternative solutions to taking psychotropic drugs.


  13. Catherine P October 15, 2016 at 2:26 pm Reply

    Hi again
    I’ve been ill all week with gastroenteritis, and have just found blood in my urine. I can’t get to see the doctor till Tuesday. If they diagnose an infection I don’t want antibiotics. Is there anything I can do to treat it naturally?

    • L October 15, 2016 at 3:54 pm Reply

      If it is just an infection (blood could mean something else) I would try oil of oregano several times a day for a week or two

  14. Ahmdi October 15, 2016 at 10:46 pm Reply

    I want to tell you little about me and i need really your help.
    4months ago i use 1tablets of cipro for UTI and, 2months ago i use 1tablets of cipro(and now i floxed) for epididymitis but cipro doesn’t heal me, and than my doctor give me Cefixime i try this this helped me around 60% but i have pain in today in my left testicle(mild-normal pain not much pain but i have pain this pain really is so bad, badest that all have pain of floxed syndrome)and i stopped antibiotics i try some natural remediea like yarrow herb, garlic, organic honey etc but doesn’t heal me, i try too oregano oil but i can’t use it cuz make my heart palpilations very hard and now o stay play laugh with my pain i don’t know what to do is anyone suggest me ani natyral remediea or suggest me to take antibiotics or what please really i need your help.
    Peace 🙂

    • Ahmdi October 15, 2016 at 10:48 pm Reply

      Suggest me any natural remedies or suggest me anything that heal me 🙂

    • L October 16, 2016 at 9:12 am Reply

      Ahmdi—so sorry you are having these problems and that you can’t take oil of oregano. That is what I always use. I have read iodine can help, but you should have your levels checked first. I have also read that grape seed extract and apple cider vinegar are helpful. Do you have an naturopathic doctors where you are?

    • Bob October 16, 2016 at 10:15 am Reply

      I had and have the same problem. That is why I took cipro and it didn’t help me either. My wife thinks it may be fungus or yeast related which is hard to clear up. Maybe get tested for yeast and fungus and try to clear that with diet and herbs. stay away from sugar.

      • L October 16, 2016 at 10:22 am Reply

        That reminds me…my ND once gave me a lactoferrin supplement…it is to help break the biofilm that protects these viral/fungal organisms. Something else to consider…I was given H2O2 IVs so I could go off my asthma meds because it helps destroy bacteria/virus/fungus, not only in the lungs but anywhere in the body…

  15. Debs October 16, 2016 at 2:30 am Reply

    Ahmdi , there is unfortunately no one magic wand for this, in my experience & opinion it is time passing by & time alone which is actually the biggest factor in this whole sorry saga, healing is time related most of all. This will eventually show you how much you have been injured, & also how much you will improve or even potentially feel recovered.
    Various things can help along the way yes, but it is different for everyone, for example magnesium can help a lot but it can also harm & some of us cant take it , pain relief is also different for everyone as we all have different tolerance levels to pain & suffer various different types of pain. Kratom has helped some quite a lot with the pain, however in some places it has now been banned, I have no other choice now but to take opioids myself . in regards to your problem with infection right now however, I was just wondering if you belong to the male only flox group on FB ? you might at least get some more specific advice for Epididymitis those testicular symptoms from there.


    • Ahmdi October 16, 2016 at 5:20 am Reply

      Hi Debs,
      Thank u very much for this anser and thanka for the link i join in this group.
      This is life we need to be stronger!

    • Cindy Jones October 20, 2016 at 2:51 am Reply

      Hi Debs
      I see that you have said that magnesium can harm. Can you elaborate on this please. Thanks xx

      • Debs October 20, 2016 at 12:43 pm Reply

        This is in respect to kidney function Cindy .
        If you have suboptimal kidney function, magnesium supplementation can potentially cause further issues, depending on the form used. If your kidneys are functioning OK however, there should not be a problem using magnesium in that respect.
        I would personally right now be using the Pico -ionic form of magnesium myself as I have CKD, only I cannot tolerate any form of magnesium whatsoever.

        • Cindy October 28, 2016 at 11:13 am

          Thanks Debs. What is the Pico-ionic form of magnesium>

      • Debs October 20, 2016 at 12:53 pm Reply

        Here is an interesting article relating to magnesium & its use in kidney disease.


  16. Catherine P October 16, 2016 at 8:20 am Reply

    I feel that the stomach bug I’ve just had has caused my flox symptoms to flare up in a big way. Gone right back to where I was 3 years ago. Has anyone else experienced this, and is it likely to resolve or have I really gone back to square one?

    • Debs October 16, 2016 at 11:13 am Reply

      My symptoms flare with anything i come down with, then I always slowly improve again. Flares related to sickness, things we eat put on us, environmental triggers etc are extremely common in floxing, half the time I don’t know what causes mine but I always do improve again . Even my horrendous relapse from epsom salts has improved over time I am almost back to my baseline now though it took quite a while to say the least.

      • Catherine P October 16, 2016 at 6:36 pm Reply

        Thanks Debs. All the symptoms are back, including being jolted awake every time I try to go into deep sleep, which I haven’t had for a couple of years. I had recently been able to get out of bed and sit in a chair, for the first time in three years. Now I’m bedbound again. I honestly don’t think I can go through all this again – especially if it’s another 3 years till I can get up again.

        • Catherine P October 16, 2016 at 7:35 pm

          Debs, do you think this means I’m starting all over again? i.e new and worsening symptoms developing over the next couple of years, before stabilising, and then more months or years before signs of improvement. I had literally just started to notice subtle changes for the better last month. I can’t believe it’s starting all over again.

        • Bob October 17, 2016 at 3:13 pm

          Just because your symptoms are back doesn’t mean that will last as long as before. Maybe they will go away soon.

        • Debs October 18, 2016 at 12:56 am

          Catherine I have sent you a message via social media . I personally would suspect this is serious flaring / relapse caused by the bodies balance ( homeostasis ) being thrown off via infection ( & it can be very difficult to tell them apart ), in your case due to your concurrent health issues I think it must be quite hard to remain stabilised, as your body is fighting not just the floxing.
          We all walk a very fine tightrope on our unique floxing journeys, & various things can potentially destabilise us and potentially cause flares / relapses. My own epsom salts bath reaction subsequently caused symptoms I had not experienced for years to show up, they have gone again now.
          As i said above, although it took quite a while, I have improved once again over time, & am now almost back to where I was before this epsom salt bath issue happened to me in respect to the majority of my ongoing symptoms.
          Although bearing in mind of course that I am not an expert in floxing, I do not suspect myself, that you are literally starting all over again.

        • Cindy October 20, 2016 at 3:38 am

          Hi Hang on in there. It will pass.

  17. Faisal October 16, 2016 at 10:29 am Reply

    Heart palpitations came back to me these are the biggest problem for me what is the solution, just only one pill of the avelox changed my life

    • L October 16, 2016 at 12:10 pm Reply

      yeah, it was four pills for me that wreaked body wide damage. I did have the heart palpitations and they came and went for a while, but it is one of the things that seems to have now left for good…so have hope.

  18. Ellen October 16, 2016 at 11:44 am Reply

    Please help me I have fibromyalgia, major depressive disorder, generalized anxiety disorder. I took Ciprofloaxin for 4 days and stopped it and about 3 days later I awoke with stiff muscles, panic attacks (which were not an issue before) and I lost 10lbs in 2nweeks tendons in upper leg are so painful across groin and all of my fibromyalgia issues are unbearable. It’s been 6 weeks and my whole body feels as if muscles are spontaneously contracting. I have become suicidal and NONE of this was going on before the Cipro! I feel as if I’m losing my mind. My dr did a blood test which he said showed no signs of inflammation but something is wrong. Someone please help and tell me if this sounds like a toxicity problem or if something else. I do not want to go to a psychiatric hospital as they will have no regard for the pain. Please help. I do not know where to turn.

    • Bob October 16, 2016 at 11:48 am Reply

      This could go on for awhile. Try not to panic. Start taking a magnesium supplement as well as calcium right away. I had the same reaction and it is terrifying but eventually it should get better.

    • L October 16, 2016 at 12:16 pm Reply

      First of all, as hard as it is, try not to panic. These unfortunately are all “normal” for someone who has been floxed. Second, many tests WILL come back normal. As Dr Todd Plumb stated (he was himself floxed) the damage is usually functional and not structural. Because doctors are for the most part so ignorant on this subject, you will likely not have much success getting help there, unless they are very open minded or integrative or an ND. I agree with Bob esp about the magnesium. The late Dr. Jay Cohen who wrote a book on the subject, recommends mag, vitamin E at the top of his list (among other things.) Also make sure you are taking a good multi-strain probiotic (so much of the damage is related to the gut) and eat clealn—no gmos or gluten or soy. some can do dairy, but if you do make sure it is organic. Make sure any meats are organic. Drink non-fluoridated water.

      • Jason October 16, 2016 at 12:56 pm Reply

        Now THAT is great short advice 🙂

        Lots of Vit C, Vit E and Selenium can be very helpful in the early stages and even as times goes on, lots of oxidative damage occurring so the more AO’s the better. MAG is of critical importance as well, Gut needs to be addressed in a very comprehensive program for most

        • Barbara Arnold October 17, 2016 at 2:45 am

          Thanks for all your research, however the information about glutathione is going to cause a lot of worry for those floxies that have been getting IV’s etc. I myself had only two with no ill effects, but also no help either.As we are all different, each persons experience is unique. Glutathione seems to have helped a lot of people, although there is generally a detox effect, which a lot of people recover from. I was told to drink a lot of water which I did. How the hell else are you supposed to get the crap out of the body??
          I have taken the protocol faithfully for one and a half years now. This has made NO DIFFERENCE TO THE PN OR ENERGY LEVELS TO ME. I have spent a fortune on suppliments including liposomal glutathione , NT Factor energy lipids, and always magnesium. I have noticed NO DIFFERENCE.
          The one thing I should not have done is have a nerve conduction test, because since then 4 months ago I have had continuous PN pain, which at times has been unbearable.
          The only relief I have had is with Ozone Autohemotherapy. There have been times during this period that I have experienced complete normality, which led me to believe I was being cured ! However I keep experiencing flare ups, if I do to much. I am not finished with the sessions yet so I am still living in hope that this will do it for me.
          I have noticed now I get very upset or depressed if I have a flare up as this negates any hope I’ve had. I particularly want to give hope to others who are in this mess and blurr of pain, so I’m not giving up just yet. I am going to finnish my ozone treatment but I have decided I’m done with suppliments. There is no way to measure what these are doing to my body apart from still feeling pain.
          We are all desperate for a cure to our suffering, methinks that time is the answer but not for everyone. I am 25 months in and in many ways more fortunate than my floxie friends, I have many moments where I enjoy my life and do what I’ve always done, socialize, drink wine, eat chips. I’m to old now to consider giving up everything I enjoy,
          So sod it. I just would like to see the bastards that did this to us and are still doing it, suffer the hell we have. I would like to see SOMEONE ANYONE to be accountable for everything that’s been done to us.

        • Bruce Brannan October 17, 2016 at 4:33 am

          Borax is supposed to remove fluoride.

        • L October 17, 2016 at 9:16 am

          Barbara, I could not agree more!!! Hundreds of thousands of deaths and millions of lives torn apart and not one person yet accountable at Bayer or J & J or the FDA. It is criminal. And to add insult to injury, we are one of the worlds best kept secrets, despite our numbers, judging by the responses (can’t be the Cipro! Can’t be the Levaquin!) of 90 some percent of doctors.

          As for the glutathione, I do believe it has helped me, and all the NDS and integrative docs I know that do IVS rely on it as does the late flq researcher Dr Jay Cohen. I too don’t want people to be afraid of trying it to see if it helps them too. We are all different in our reactions. Some people on the site have raved about epsom salts or topical mag oil, neither of which did a thing for me. There are some other “mechanical” therapies I would like to try for the PN i I had money…not sure what the name of it is, but some sort of electronic device my ND has, but as usual it comes back to no money.

          I had my first glass of wine more than a year after I was floxed, and yes, it was so nice to do something normal again!

    • Madge hirsch October 17, 2016 at 2:21 pm Reply

      You need to believe that you will get better. The first thing to do is try to repair your gut with probiotics. I lost ten pounds after taking Cipro but have put it back on since. I have also found turmeric and NAC helpful. It is essential to address your vitamin d levels. Get tested to see if you are deficient and then get your levels into the higher end of the normal range.

      • L October 17, 2016 at 5:20 pm Reply

        Great advice! NAC, among other things will help with glutathione production, and the probiotics (multi-strained) and SOOO important.

        • Madge hirsch October 18, 2016 at 2:15 pm

          Thanks L. I have found your story encouraging especially as I have been suffering a bit with breathing problems. They come and go and are nowhere near as bad as what you descrbed but I am hoping they will disappear with time. I seem to remember having the same thing many years ago after what I now believe to be a previous floxing but at the time just put it down to my asthma worsening. I am sensitive to moulds so the autumn is the worst time of year for me . I dislike using the steroid spray but am resigned to it at the moment.

        • L October 18, 2016 at 3:13 pm

          We have a lot in common Madge. Mold is my kryptonite..and I was on asthma inhalers for years. When this suffocating like breathing first happened, I knew right away it wasn’t asthma—for one, when I was able to get a deep breath, which was rare, my peak flow was normal. Also, it just didn’t feel like asthma. Hard to describe. I knew that the steroids (and fluoride) in my prophylactic inhaler was worsening my condition, or at least preventing me from getting better. But I was terrified to stop because I could not imagine an asthma attack on top of the other breathing problem. My ND, who was the first person I trusted could help me at all, suggested H2O2 IVs. Another MD who I had seen once (the ONLY one with any compassion or understanding about the situation, was OK with all the IVs I mentioned I was going to get, except that one. She said “oh, that’s dangerous.” Well I did some research on line and found Mayo clinic actually used it with lung cancer patients. Anyhow, between the trust in my ND, and the fact I really didn’t care if I lived or died at that point anyhow (I couldn’t imagine living much longer feeling I was being waterboarded 24/7) I started the H2O2 IVs. Around the sixth one I started to wean off my inhaler. Instead of two puffs 2/day I did one puff twice a day. Then one. Then I stopped. That was over a year and several months ago. No asthma. I ended up getting I think around a dozen H2O2 IVS and have since gotten one “maintenance” one. Not only is my peak flow normal, some days it is better than when I was on the meds!

    • Cindy October 24, 2016 at 2:27 pm Reply

      Hello Ellen
      Try not to despair. Avoid the psychiatrists as they do not have a clue about physical conditions let alone neurological or auto immune conditions.

  19. L October 17, 2016 at 10:31 am Reply

    well, this is rich. The doctor whose signature is at the end of the Bayer letter, Dario F Mirski, is a PSYCHIATRIST. When I think of all the mental anguish, stress, depression, suicides, that this causes, I am fuming even more. I have written a letter now I just need to find an email address for him. May have to actually call his New Jersey office.

    • Ahmdi October 17, 2016 at 11:26 am Reply

      Hello L,
      I saw that you are very active in this forum
      I want to know about your life what you work how old are u, how much tablets u use of fq family antibiotics, where are u from etc 🙂

      • L October 17, 2016 at 12:35 pm Reply

        Hi there. Here is a brief synopsis. I had only one pillow before I started noticing side effects—blurred vision, huge floaters, and numb fingers. Unfortunately, I didn’t link it to the meds—I was given both Cipro and Prednisone at the same time. I thought maybe I slept weird and pinched a nerve. It wasn’t until I had taken 4 of the Cipro that I made the connection. Within weeks all hell broke lose. My toes all went numb, I had excruciating pain in my upper mid back (worse than when I had cracked ribs) I was severely depressed, anxious and suicidal. My vision worsened and I had a terrifiying “light show” in one eye that looked like little electrical charges. I got olfactory nerve damage that was so hideous, I could not have lived had it continued (which it did for months). Everything in the world asphyxiated me —even just a couple drops of watered down dish soap and “unscented” products. It was like being constantly surrounded by huge open vats of bleach. Words cannot describe how awful it was. IT tore apart my GI system and I lost over 30 pounds in two months. I became very frail and weak. Felt like I had pneumonia the whole time. There were dozoens of other side effects—tendonitis, a recent torn meniscus…but the absolute worst was suffocating like breathing. When it came on I didn’t know how I would make it through ten minutes. I ended up living like that—gasping for every breath and feeling like someone was suffocating me—for months and months. I really just wanted out, and had I been sure that anything I tried would have worked, I would be long gone by now. I was afraid though that if I attempted and failed, could end up in a hosptial, hooked up to tubes with more pharmaceuticals and be even worse off—although it is hard to imagine being worse.

        Regular MDs were pretty useless. I had never been to a naturopath, and like most I had been brainwashed into thinking that only MDs were real doctors. Well, I had nothing to lose so I went to one whose name I had seen on the floxie hope site. He was the FIRST to give me any hope. He had actually treated several floxies before. I started on IVs.Within about 6 weeks I started noticing changes. I ended up getting over 60 total, going broke doing it. But finally something was working! I also added a number of supplements and cut out GMOs, gluten, dairy, soy and started buying non-fluoridated water.

        Starting a few months ago, I started going out with friends and to plays, after “losing” a year of my life. I started exercising again, although recently desicovered a torn menisucus, which I believe is also from the cipro, since the only thing I was doing before it went out was sleeping. So back to just walking. I got a prolozone injection in the knee and hope it helps heal on its own. I want to do stem cells, but don’t have the money.

        My toes are still numb and two fingers that had spasmed wildly are now kind of non-functional. The breathing is vastly improved although it still ‘catches” now and then. The anxiety is much better but still there. Nerves around my neck make if feel like I am being strangled and that seems to worsen with stress. I also continue to have pelvic area pressure most of the time. The floaters and black spots have improved but are still there, and the vision in that eye is worse than before the Cipro.

        So, there is hope. OF course I hope the rest of the stuff goes away, but 8 months ago I wouldn’t have believed I would be this far.

        • Ned October 17, 2016 at 1:05 pm

          Thanks, L. Was your suffocating breathing attached to any emotions like panic or anxiety attacks? When my attacks get bad, I can barely breathe and have to hold on for dear life?

        • L October 17, 2016 at 1:14 pm

          No. I think it was either damage to the autonomic nervous system or mitochondrial damage to the heart muscle. I know what you are talking about, and I can get that too, but no, this was different. I literally could only gasp for air. Truly frightening.

        • Amy October 18, 2016 at 7:42 am

          what supplements did you take initially to help? And did they help? I haven’t taken any yet, just trying to eat a good diet so if you have suggestions that would be great

  20. L October 17, 2016 at 11:28 am Reply

    so…when I look up dario mirski, I can find no email addresses. I called one phone number listed as his office number and got a very obviously private woman’s voice mail. When I look him up on the NJ medical board site, I can not find him in a search. I finally found a street address for a property he owns, so that is where I will send my letter along with dozens of blurbs from different sites and news articles. If you want to send something the address I have is: 15 Bonnell Ln., Randolph, NJ 07869

    • Ahmdi October 19, 2016 at 12:30 am Reply

      Thank u very much for our answer.
      You makes me to be more hopeful, more to believe in myself that one day i recovered, that one day i and all floxed people to become stronger than non-floxed people.
      Thank you L i like u 🙂

  21. Stephanie October 18, 2016 at 10:26 pm Reply

    Has anyone who is severely floxed been forced to go to a physical therapist or had biofeedback? I am being forced to go tomorrow and was wondering from anyone who is like me and can barely walk. I use a cane and have sever spasms.
    Has anyone who has these gone to physical therapy or biofeedback? I’m not happy about this but I agreeed to go to one and see how it goes.

    • L October 19, 2016 at 9:45 am Reply

      so sorry steph. let me know how it goes

      • Stephanie October 19, 2016 at 12:45 pm Reply

        I’m pooped so it’s easier for me to respond here. Vindication, I saw the head of the department and she was like totally on my side. She is making sure to disprove that I have mental illness and she is getting me in for the top physical therapists in the department. She was so awesome I cried. She said any way she can help she will and said that these companies are evil and need to get stopped. Amazing!!!!

        • L October 19, 2016 at 1:07 pm

          YEA!!!!! It does feel so good when you find those people willing to go to bat for you! So glad. And do take her up on “anything she can do to help!”

        • Stephanie October 19, 2016 at 1:33 pm

          Oh I am she is actually helping me get my throut looked at because of my chocking and vomiting issue by an actual speech therapist. I told her how the lung dr just said I can’t help you unless you want to get a sleep study. She was in shock. So I will after two years finally get someone to look at me because no one has even a dr at the er said I don’t know why and I can’t help you. But he sure as shit charged me.

        • L October 19, 2016 at 3:58 pm

          Oh good. You know my neck thing (more like on the outside, being strangled) I am pretty sure is just more nerve damage. Peripheral neuropathy—people usually just think of hands and feet or arms and legs, but it can be anywhere on the body. Woulldn’t be surprised if yours was related to nerve damage too

        • Stephanie October 19, 2016 at 4:15 pm

          Totally I will let you know what they say so maybe it can help you. Since I’m on Medicaid I have limited covered visits so we will see. I just like the fact she said we will try. It’s more honest and realistic. Plus it will allow people to give me a real opinion. I mean I was totally calm and my face still was droopy. I had no reaction and when I talked it was all in the normal range so my muscles are not putting any extra effort into causing my situation. Has to be nerve damage.

        • L October 19, 2016 at 5:03 pm

          when do you go back? let me know what she says/does

    • Cindy October 25, 2016 at 12:12 pm Reply


      Tell them to get lost.

      BTW did you know that Sorbitol causes acidity in the blood because it causes the overproduction of lactic acid.

  22. Tracy Whiteside October 19, 2016 at 5:17 am Reply

    I was just reading that the new head of the FDA, ( Funeral Directors Association) is also a Eugenicist, just like Margaret Hamburg, who needs to be rotting in prison, forever, hideous mass murdering monsters.

    • L October 19, 2016 at 9:46 am Reply

      If you are referring to Robert Cailiff, he had the bulk of his salary, while at Duke, underwritten by pharmaceutical companies. Another fox guarding the hen house

  23. Tom October 19, 2016 at 6:36 am Reply

    I am 12 days post-floxing (after 3 days 500mgx2 of Cipro). Mainly I have the muscle aches, joint and tendon pains (ankles, wrist, mostly on right side) but now a fun new symptom- insomnia. For the past few nights I just cannot get into a real sleep phase, its like my system is all wired even though I’m exhausted when I lay down in bed. Any tips from those of you who had sleepless nights? I know that lack of sleep will delay my recovery so I really need to get some sleep hours in. Oh yeah, and occasionally I am suddenly really intolerant to cold and get chills. I am of course terrified of what is to come and that I will be a long term victim. Luckily I stopped my prescription when I woke up feeling achy all over like I had the flu.

    I am taking magnesium supplements and spraying magnesium oil on my aching tendons nightly, and trying to eat well, lots of fruit and yogurt, fluoride free bottled water, etc. Also taking a probiotic. Very scared as am the sole financial support for my family and just started a new job.

    • L October 19, 2016 at 9:54 am Reply

      Sorry Tom. What you are saying is unfortunately very familiar to all of us. My insomnia was so bad that I slept either zero, one or two hours for the first 5 or 6 months—even with a sleeping pill! I wouldn’t normally recommend a sleeping pill, but in my case I also had suffocating-like breathing problems from CIpro and so it was my only little respite. There are many natural suggestions for sleep (eg chamomile, tart cherry, etc) but none of them helped me. Please know that it eventually will correct. Good on the probiotics—make sure they are multistrained, and have at least 30-50 billion. I was taking two a day for months. Also make sure that if you eat meat it is organic so you don’t risk getting more antibiotics in you. Lots of organic greens. And avoid strenuous exercise or anything that might encourage tendon injury.

      I too had the heat/cold problem—for months I could not get my feet or hands warm no matter how many layers I put on. then something switched and heat was much worse. It got up in the 100s and all my side effects worsened.

      Everyone is different, but for me what helped the most were nutrient IVs from an ND. May be something you want to look into. Not covered by insurance sadly.

      • Cindy October 25, 2016 at 1:54 pm Reply

        Tom Keep away from sorbitol it causes overproduction of lactic acid which makes the blood etc acidic.

    • Ryan L October 19, 2016 at 3:51 pm Reply


      What brand of bottled water did you find that is fluoride free? I ask because I’m sure there are others who are very interested in that. I know a lot of people either buy home purification systems or they buy distilled water and then add minerals back into it in order to avoid Fluoride. Also, I shared a link with insomnia tips for you in a reply below. Hope something helps.

  24. Brandy October 19, 2016 at 8:21 am Reply

    My lips have now gone numb, any one else have this. What can I do for it.

    • L October 19, 2016 at 9:55 am Reply

      Peripheral neuropathy can occur anywhere..not just hands and feet. My toes, fingers, and neck all went numb. That is one of the few side effects I still have. B vitamins are supposed to help. IVs help some with that for me (phosphatydilcholine.) It may just go away by itself.

  25. Tom October 19, 2016 at 10:52 am Reply

    L- how on earth did you function with no sleep? That can destroy your body as badly as floxing. I am determined not to complicate this issue with any other pharmaceutcials, although I’m willing to try supplements.

    • L October 19, 2016 at 11:16 am Reply

      Tom, that I am still here today is unbelievable. As I said, even WITH the sleeping pill (generic ambien) I was lucky to get 1-2 hours. But again, I had the additional problem of having to gasp for each breath, so that was in addition to the regular insomnia that many floxies experience. I had also lost thirty some pounds in less than two months because my gut was so destroyed. I was quite frail and needed help walking. I stayed on the pills a few months until the breathing improved a bit (took 10-11 months to come close to normal on that) and the sleep with the pill was up around 6 hours, and then I started weaning off and it worked. I went from one pill a night to 1/2 and did that for about a week, then one quarter for about a week. and then just went off, and was sleeping reasonably normally. Now I go through occasional bouts of insomnia, where I dont sleep one or two nights a week, but I also have weeks where I sleep normally. I guess given time and the right nutrients your body can come back from most things.

    • Ryan L October 19, 2016 at 11:32 am Reply


      Check out Lisa’s post on Insomnia through the link below. You may find something there that will help you.


    • Debs October 20, 2016 at 12:33 pm Reply

      Tom I have over time developed a sleep disorder myself which resembles a circadian rhythm delayed sleep phase disorder but without the ability to sleep the normal amount hours once i do drop off I now sleep 3-4 hours a night 3am – 6.30-7 at best from January 2011 I suddenly stopped sleeping as I was doing, & now I cannot close my eyes at any other time . However, in respect as to how I function day to day, personally I am fine ( in the floxie description of fine anyway lol ) you do tend to get used to insomnia over time at least in respect to day to day functioning. I have been multiply floxed myself, & have inhabited this weird parallel world for a very long while.

      In my experience & opinion,the largest majority of floxed people do reach a place where they can move on with their lives EVENTUALLY, where this whole sorry experience can then be consigned to memory & it then does not consume every waking moment it just can take a long time to get there. Some will in fact reach a place where they will FEEL completely recovered , others will still be able to move on albeit with some lingering issues often related to exercise intolerance & / or aches & pains they did not have before to varying degrees, but overall they can still get on with their lives to an acceptable level . Even after my 7th floxing & 12 years of other mitochondrial damaging drugs on top I had no choice but to take at the time I have still over time improved a great deal from where I was originally.
      In fact I also experienced a bad relapse a year ago as well & I have come back from that too, & am almost now back to my baseline.

      If I can still do that after all I have experienced, I truly believe there is great hope for everyone

      One thing I will caution on is to advise you to please be very careful about adding yet more poison to your already systemically poisoned body & brain IF you can avoid doing so. it is important to note that MANY allopathic drugs negatively affect mitochondria, & that ALL classes of psychotropic drugs are mitochondrial damaging drugs

      Also, as someone who has FQ induced kidney problems I would advise that if you have not yet done so please make sure you have a general check done on your kidney function as FQs can negatively affect the functioning of the kidneys. if they are NOT functioning A1 right now, magnesium supplementation can result in further deterioration in function, & potentially other issues depending on the type of magnesium being used.
      If any deterioration in kidney function IS detected, I would personally suggest using the pico-ionic form of magnesium only .

      • Cindy October 24, 2016 at 2:31 pm Reply

        Is clobazam a psychotropic drug?

  26. Andy P October 20, 2016 at 5:35 am Reply

    Once the pins and needles and nerve pain take hold of you is there any coming back,I am four months out now doing everything I can but the symptoms keep coming
    I can just about walk but with severe pain and muscle loss
    I went to a pyhsio who said I have ea low pain threshold and it’s all in my head and I need to excercise.So that’s now on my medical records which screws me for any disability if I need it in the future
    The nerve pain is relentless almost like shingles everywhere in my body,even my genitals
    Suicidal thoughts fill my every wakening hour now and I’ve lost all hope

    • Madge hirsch October 20, 2016 at 9:03 am Reply

      Four months is not long Andy in this situation. Do not lose hope and keep telling yourself you will recover maybe not completely but to a level where the symptoms are bearable. I don’t really see how a physio can help neuropathy pain in the first place. Did your GP send you? I hope I am not muddling you up wth someone else but I seem to remember from a previous posting that you live in Brum. Have you thought of going to see a traditional Chinese acupuncturist?

      • Andy P October 20, 2016 at 11:34 am Reply

        Hi Madge my GP requested it I have to follow these appointments up
        I’m seeing an integrated doctor who does ozone iv ,I have had four sessions with magnesium but it doesn’t seem to helping much
        Not sure what to try next,I am under extreme financial and family pressure which is compounding everything

    • Deanne October 21, 2016 at 4:12 pm Reply

      For my burning pain or pins and needles type pain I have used capsaicin cream(christopher’s brand) and a type of tens machine that rotates the tapping. I purchased at my acupuncturist but maybe you could find one online. I found these to be the best ‘go-to’s’ for me when the burning pain becomes severe.
      Hang in there.

      • Stephanie October 21, 2016 at 4:35 pm Reply

        Can you please tell Me more about this machine you bought. I think that would be amazing to try!!!!

        • Deanne October 21, 2016 at 6:06 pm

          The device is from Hua Han Zhen Shen it says. It’s the DJT-4B model that I have. There are a few models that I have seen with different model numbers. If you search low frequency acupoint stimulator you will find more information. Just an fyi, it doesn’t seem readily available like an easy Amazon purchase but I thought there was a similar product on ebay when I searched the term I mentioned. Oh, and it does have an ear component but I use with just the pads on my upper arms and also below ankle back of my foot for when my feet are really burning.

    • Cindy October 23, 2016 at 4:25 pm Reply

      I would definitely challenge this physio. Who does he or she think they are to say such a disgusting thing to you? It is completely unprofessional and it is important to raise your deep concerns and to refute what this person said as a matter of urgency.
      Was the physio a private one or NHS?
      The physio did no have the right to make such a judgement and I would seriously consider making his or her professional body aware of what was said to you.
      You can send a letter to the physio and ask for it to be put on your file. The physiotherapist may have to remove the comments as they amount to defamation and humiliation of a patient and also libel implying mental health problem for what appears to be a neurological issue. I feel that you need to question the qualifications of this physio. For example is he or she a neuro physio? Where has this person worked and what experience if any doe he/she hold with patients with nerve damage.

      I would contact the Chartered Physiotherapy Society and make a complaint to them if u are in England. Sorry to be so pushy but this kin of thing really gets to me.

      ake care and try not to worry about someone who quite frankly lacks knowledge, empathy and common senseee.

      • AndyP October 24, 2016 at 1:43 am Reply

        I am making a formal complaint under the mental health act and also complaining to my GP
        I am in enough pain and emotional distress not have to deal with dickheads like that
        It makes it worse in some ways I am a former international cyclist black belt at kickboxing and he told me I have a low pain threshold .i know my body and I know when its broken,I cant explain everything that is going wrong with me but need support not discouragement
        Some days I do think I am imagining what I am feeling and people question me all the time,I tell them I will go to my grave knowing all this is true

        • Cindy October 24, 2016 at 3:05 pm

          You must try very hard not to let these people get you down. They are ill informed and one has to pity their ignorance and lack of empathy and compassion.
          You are strong. These feelings will pass.
          Change GP and surgery if possible. These people have no right to make these judgements.

          Have you had a MRI scan of your spine to exclude/diagnose and spinal problems such as a prolapsed intervertebral disc, osteo arthritis, perhaps you have osteoporosis, A test done on your ankle can indicate whether you have osteoporosis or not.
          If this test is positive it is usually followed up with a dexa scan.
          Following a positive result referral to a neurologist is or should be done.

          Gluten can also cause neuropathy, ataxia, coeliac disease, leaky gut syndrome, auto immune diseases and thyroid disorders.

          Have you ever been prescribed any opiates for the pain? If so they can also be responsible for the way you feel.
          Opiates are derived from opium and include heroin, morphine, codeine, co codamol, oromorph even Brufen plus has codeine in it. The opiates suppress the endorphins produced by the brain and cause depression, anxiety and also lower the persons pain threshold. Perhaps your GP and physio need to be made aware of these basic facts so they can inform patients of the danger of prescribing/taking this poison.

          If you have taken the opiates these can cause the neuropathic pains , severe depression, anxiety, agitation, agraphobia, panic attacks , anorexia, diarrhoea and constipation, headaches, dry eyes, swelling of the eyes , demotivation and disconnection from the world.

          Withdrawal from opiates is horrendous causing the muscle spasms, burning, tingling, stiffness of the muscles to increase until the withdrawal process is over.

          Opiates lower the pain threshold.

          This is a very important point because opiates make people more sensitive to pain, however in any event the only treatment that ‘doctors’ offer for nerve [pain relief are a group of anti epileptic drugs which have horrendous side effects and in the main are ineffective anyway.
          Take courage because we are here to support you and each other.

          Keep your dignity, do your research into antibiotic toxicity, the gluten syndrome, gluten neuropathy, gluten sensitivity, print stuff off and show it to the dr and physio and ask them for the ‘opinion’.

          Take care xx

        • AndyP October 25, 2016 at 1:17 am

          Cindy I am doing everything I can ,gluten free,supplements,ozone iv
          I have avoided any normal meds but the simple truth is I am getting worse every day.Maybe I’m just one of the unlucky ones
          I haven’t seen a single improvement since the cipro bomb went off
          The only reason I keep going is my five year old daughter
          I keep reading people have made some recovery after one two three or even five years but I cant see how I can with the amount if damage its done to me
          I cant even have a nap in the day my brain won’t allow it
          I get three to four broken hours of sleep a night and that’s it

    • Cindy October 24, 2016 at 3:11 pm Reply

      Andy here is a link to a famous dr about neuropathy.

  27. Cindy October 20, 2016 at 7:00 am Reply

    Apparently according to this link there is a test for connective tissue diseases.


  28. Jim Z October 20, 2016 at 8:38 am Reply

    Hello All,
    Just wanted to give an update in order to give hope to anyone reading this. I am in month 9 now. Took Cipro for 40! days for a supposed prostate infection. I concede that my reaction to the poison was not as severe as many other people’s reaction. Initial symptoms were numbness and tingling in my face, hands and feet. Constant headaches, dizziness, blurred vision, black specks in my vision. Aches in my abdominal area. Aches in my shins. Carpal tunnel symptoms started in both hands at night. My Dr attributed all of these symptoms to anxiety, but I found it hard to believe that these cluster of symptoms all started during and after the 5+ week course of Cipro.

    My anxiety was horrible, made worse by my worry that I may have had Multiple Sclerosis. I went to a Neurologist who ruled out MS. I also subsequently went to a leading Urologist in my city who told me that the vast majority of prostatitis cases are not alleviated by CIPRO and that I shouldnt have been on CIPRO for so long. The Neurologist also said that I was on the medication for way to long.

    .During the first few months I started taking Ativan so that I could sleep. . I went through several weeks of insomnia and constant sweating. My Dr. also tried to put me on Paxil. This magnified my symptoms, believe it or not.

    One day I woke up very angry and decided to take my life back. I weened myself off of the paxil and ativan. After being prescribed the CIPRO i just didnt trust my doctor anymore, and as a result decided to get off of anything she had prescribed me. It was horrible hell for weeks. I did ween myself off all medication. My doctor refused to attribute my symptoms to CIPRO. Before Cipro I was in excellent health – I kept telling her- what are the chances ALL of these symptoms popped up within weeks of taking CIPRO? Connect the dots, I told her. She refused to concede, even after I showed her print outs of all of the FDA warnings.

    Things started to turn around for me after I started taking powerful probiotics. I supplemented with Magnesium, Vitamin C, and the B vitamins. Had daily Magnesium baths at night. I exercised daily. I took my family and went to the Mediterranean for 4 weeks. Daily swims, lying in the sun. Relaxing really helped. Now matter how horrible I felt I pulled myself out of bed, or off of the couch, and started moving. Just move. Stretch, move more. Walk. I learned a lot about myself and what I could endure during the darkest times of my life.

    Month 9 now, and I think Im about 90% back to where I was before the poison. I still get some tingling in my legs and face. Carpal tunnel still occurs at night. Im not as dizzy, and there are days where I feel completely normal, other days where i think I have regressed.

    This horrible poison destroys lives, it also affects the loved ones of the victim. Anyhow, if you are reading this and you need some hope , this is the best website on the internet. Read all of the stories of all the people here, keep moving, keep taking your vitamins, never give up. Never!

    • Amy October 25, 2016 at 7:13 pm Reply


      Can you tell me more about probiotics you took? Brand/type, etc.? I’m shoving in so much food every day trying to get all these vitamins & it’s exhausting- scared to take supplements at all, but I know the meds altered my stomach for sure. Hair still falling out, too! Iron & basic tests all normal so trying to get ideas!

  29. L October 20, 2016 at 9:16 am Reply

    That’s great Jim. Sounds like you are doing all the right things. I can remember saying virtually the same thing to so many doctors “so it is just a HUGE coincidence that ALL of these dozens of side effects, all just happened to occur after the Cipro?” Dr Jay Cohen’s book should be mandated reading.

    Keep up the good work. As for me, I am now leaving Floxie Hope. I am finding many of the posts (not yours) just too stressful to deal with. I wish everyone a good recovery.

    • Jim Z October 20, 2016 at 9:44 am Reply

      Sad to see you go L. You have always been very positive every time i posted here. I wish you the best. I can understand your sentiment though. I try and not to get too caught up in what goes on here on a daily basis because it brings me back to some pretty dark days. That said, on the whole, I think this site helped me tremendously. Those podcasts that Lisa publishes really helped.

    • Madge hirsch October 22, 2016 at 3:13 pm Reply

      Sorry you have to go . In case you see this can you tell me if when you had your breathing problems you measured your oxygen saturation. I have a pulse monitor that gives an oxygen readout and there does not seem to be any difference with the readings between when I feel my breathing is not right and when I feel it is ok.

      • L October 22, 2016 at 3:56 pm Reply

        Hi Madge…this was sent to my inbox so I did see it. I too bought a pulsometer and it always measured normally—96 and up. I believe that is because the most likely culprit (for me anyway) was mitochondrial damage of the heart muscle (or perhaps nerve damage to the autonomic nervous system.) I also, when I was able to get a deep breath, which was rare for months, used a device to measure vital lung capacity—which was ALSO normal.

        • Madge hirsch October 23, 2016 at 10:26 am

          Thank you for replying. I cannot manage over 96 ! Mine is usually in the 93 to 95 range. I have just looked up the chemical composition of my preventative inhaler and lo and behold 3 fluorine atoms in the steroid component. Double whammy ! Although my breathing improves when I use it I get a burning sensation between my shoulder blades -either the tendons or neuropathy. I will try and do without it. Yesterday had a traditional garlic soup to start an excellent restaurant lunch and it seems to have improved the breathing. Am going to steel myself up to chewing on raw garlic every day.

        • L October 23, 2016 at 10:36 am

          That range is still fine. Yes, the prophylactic inhalers have both steroids and fluoride. When I was in my worst, suffocating, gasping for each breath . state (non asthma) the thought of an asthma attack terrified me. It is difficult to explain just how bad this was. If my worst asthma attack had been a ten, this was a 50. I quite literally felt like someone was suffocating me 24 hours a day. It was terrifying. So, the thought of getting an asthma attack on TOP of that was unimaginable. That is when I started getting H2O2 IVs from my ND. After a half dozen I started to wean myself off the inhalers, because I figured as long as I was taking in fluoride and steroids I would never get better. I took about a week to wean off and ended up getting a dozen H2O2 IVs. That was about a year and 4 months ago that I have been inhaler free…..and asthma free. I will just get maintenance IVs of the H2 O2. I have had only two in that time period. Yesterday was the first day I felt a bit asthma-y. My rescue inhaler, which I also did not want to use (more fluoride) was long expired. I read about apple cider vinegar in some warm water. Did that, and by the evening felt fine.

    • Aron Lycele October 30, 2016 at 8:44 am Reply

      Thank you for your support Linda. Wish you the best.

  30. Ahmdi October 22, 2016 at 2:57 am Reply

    Hi all,
    Can i use Manuka Honey for ma epididymitis
    (I use cipro don’t cure me, cefixime also not cure me helped me 60% but not cured me completely) now i have epididymitis for about 2months and is Manuka Honey effective in epididymitis(infection because antibiotic helped me)?

  31. joanneg October 22, 2016 at 10:48 pm Reply

    Hi Everyone,

    This is just an update of my relapse and what I have tried to get better.

    As i posted, in mid July I felt so good I quit all my supplements, which were magnesium, colostrum and probiotics. I did great until the first week in Sept., and ALL my symptoms came back really bad almost like the beginning when it was totally unbearable.

    So I thought “ok this sucks I’m not healed”, and I figured I’d just start taking my supplements again and I”ll at least get back to where I was. But I just kept getting worse! I even went to the hospital and my regular Dr., which I haven’t been to either after the first year because I realized they couldn’t help. But I was sooo bad, my head was so soupy/dizzy,my brain was shaking,I was feeling so faint, my vision got extremely blurry, my insomnia came back and my stomach was wrenching again, I couldn’t think, remember, do tasks, I felt I was loosing my mind again and at a very rapid pace.

    At the hospital they told me my thyroid was off the charts. I think the acceptable range is 0.5-4.0 and mine was 18.850, which meant I was hypothyroid. So they gave me a Rx for 50mcg of Levothyroxine (generic synthroid).

    The first dose worked great! It took a lot of my soupy/dizzy head away but not all of it and only lasted about 8 hours But that night at 3:00 am while sleeping I started to get a migraine and a crazy charlie horse in my right bicep. Anyhow, the migraine was so bad I thought I was going to throw up and it lasted till 7:30 pm. So the next day I went to my regular Dr. and had it switched to Armour thyroid (this is a natural thyroid med from pig thyroid) but long story short I had to stop that one too because even a piece of the smallest dose I was racing out of mind. For example, I’m usually in bed by 10:00pm, well on it I was scrubbing my kitchen floor at 12 midnight and at 3 am I felt like I could go outside and build a house. So I just stopped it for now my Dr. doesn’t even know yet, and I still don’t know what I’m gonna do about that, but I do get another blood test in 6 weeks to check levels and we’ll go from there.

    BUT why I’m really posting, is I want everyone to know I was so sick, and tired, and desperate (as I know we all are) that today I tried what feels like the last tool in my box: The Fecal Matter Transplant !!! I used my husband as the donor, i did it at home myself, I was so desperate it didn’t bother me at all, and within a couple hours I felt almost normal. Now this is only my first day, but I already got tremendous relief I just pray it not only continues but that it will ultimately heal me completely.

    I will keep you all posted whether it be good or bad news. But, as clear as my head and eyes are and how much better my stomach is I am very hopeful.

    Here is the website I was reading on the FMT. http://thepowerofpoop.com/tracy-macs-story/ There are a lot of testimonies of people who’s stomach’s were devastated by antibiotics, and some even mention Cipro.

    • Madge hirsch October 23, 2016 at 10:40 am Reply

      Armour has a too high T3 content for humans . For years I took a combo of it and levothyroxine so I could get the amount of T4 needed without overdoing the T3. I am pretty sure I became hypothyroid as a result of a long ago floxing . This worked well till my last floxing . I went into afib a week after one pill of Cipro and thd cardiologist at the local hospital created merry hell about being on T3 and my TSH being too low. Anyone would think it was crack cocaine the way he went on. He obviously tore a strip off my endocrinologist who had been ok with my dosage and as a result they took me off it and reduced my T4. It feels like being punished over again for being floxed! One year later and I have tried tiny amounts of T3 but have become too sensitive to it. Hope the fecal transplant works.

      • joanneg October 23, 2016 at 11:58 am Reply

        Hi Madge,

        Thanx for the info on Armour. I’m hoping the FMT will help to where I don’t have to take any thyroid meds. Throughout this whole ordeal I feel as though I’ve been bouncing between Hyper and Hypothyroid. I don’t know?? We’ll see. 🙂

        • Madge hirsch October 24, 2016 at 3:43 pm

          There is a link here to a website where the person had very bad thyroid problems after being floxed. It seems to be common for floxing to bugger up the thyroid – along with other things!

    • Ryan L October 24, 2016 at 2:46 pm Reply


      I’m sorry to hear about your relapse. Hopefully it will be short lived and you will soon be feeling better than ever. I also hope that you find great relief with the FMT treatment. It’s not the most appealing, but many with autoimmune diseases have had great results after doing it for a season. You’re the first Floxie I know of to try it, and hopefully it becomes the final piece in your puzzle. My prayers are with you. Keep fighting!

    • Juzero June 14, 2017 at 5:55 pm Reply

      Oh that sound 😝, but it make sensce , thank you, I will try , please let us know how do you feel now, thank you

  32. joanneg October 23, 2016 at 10:31 am Reply

    This is an excellent site that explains the destruction of antibiotics and very detailed information of how gut flora, FMT and probiotics help maintain your physical and mental health

    • Cindy October 23, 2016 at 11:22 am Reply

      Hi How are you doing following your parathyroid surgery? I hope you are feeling better.

      • joanneg October 23, 2016 at 12:00 pm Reply

        Hi Cindy,

        I posted my relaspe 5 posts above this one.

  33. Ahmdi October 23, 2016 at 12:45 pm Reply


    More about Fecal transplant.

    I never hear about this FT, but i see this is very effective and very safe to perform this.
    But my question is:
    I’m floxed with mild60%/40%intermediate reaction and my microbioma it restored automaticlly without FT or without probiotics suppl, only with prebiotics foods and good diet?
    Because in my country not have this method FT and i think suppl are not good like medications for human body!

    • joanneg October 23, 2016 at 2:37 pm Reply

      Hi Ahmdi,

      Thanx for the link to the FMT site.

      I do hope your stomach is restored, but there are a lot of people who do not realize the damage is in their stomach. For example, someone may have anxiety, insomnia, or joint pain without any obvious stomach problems, so they just treat the symptoms never coming to the knowledge that in fact it can be from a bacterial imbalance. Unfortunately for some it’s not always very obvious when your gut has an imbalance.

      Also, I do agree that a real food source is better than a supplement.

      As far as the FMT not being available in your country, if in the future you ever feel you may need that to heal you can do it yourself.

  34. A October 23, 2016 at 5:58 pm Reply

    Hi Joanneg

    Is there s specific test to check for gut problems due to antibiotics.

    • Ryan L October 23, 2016 at 6:11 pm Reply


      You’d need to have your gut microbiome tested through a site like Ubiome (See link below). This type of test will tell what types of bacteria are currently residing in your digestive system.


      • Lisa October 24, 2016 at 6:01 am Reply

        There’s a 10% off coupon for ubiome linked in this post – https://floxiehope.com/2016/03/23/fluoroquinolone-antibiotics-and-oxalate-overload/.

        BTW, when I got my microbiome tested through ubiome, my bacterial diversity was in the 11th percentile. That stinks! (Literally too.)

        • Ryan L October 25, 2016 at 2:25 pm

          Thanks Lisa for sharing the coupon. In your UBiome results, did you discover a lack of the bacteria O. Formigenes? I ordered my test today, and I’m curious to see what it tells.

        • Lisa October 25, 2016 at 5:02 pm

          My uBiome results said that my microbial diversity is in the eleventh percentile. That’s horrible! People who have more microbial diversity are less likely to suffer from chronic illnesses. Eleventh percentile is disheartening, for sure. But I really do feel pretty good, so there’s that.

          I still need to get my results analyzed in a way that I can really understand them in order to see if I have O. Formigenes. The info out there was somewhat overwhelming, and, frankly, I got really busy…. sorry. I should dig into it more and report back to the community. It’s on the to-do list.

  35. A October 23, 2016 at 6:19 pm Reply

    Ryan L

    Thanks so much. I’m getting ready to look at the link now.

  36. Faisal October 23, 2016 at 7:57 pm Reply

    Any idea or new information about heart palpitations , today I’m sick and my heart rate 120

    • Lisa October 24, 2016 at 5:57 am Reply

      Hi Faisal,

      A Chinese herbal formula called suxiao jiuxin wan helped to calm my racing heart and also helped with anxiety. It tastes horrible, and you take it sublingually (under the tongue), but it works.


    • Susan October 24, 2016 at 10:24 pm Reply

      Faisal. B vitamins give me heart palpitations. Drinking water helps to reduce my racing heart. Hope this helps some.

  37. John October 24, 2016 at 1:54 am Reply

    Hey Lisa…I would like to write my recover story…how do I go about doing so?

    • Lisa October 24, 2016 at 5:56 am Reply

      That’s wonderful, John! I’m looking forward to reading and posting it! Please send it to me through the “contact” link above. Or, if you just send me a note through the contact link, I will respond with my direct email address and we can exchange emails/stories that way. Thanks!!

    • tammy gyarmathy December 27, 2018 at 11:53 am Reply

      Did you ever submit your story

  38. Candice October 24, 2016 at 9:45 am Reply

    Do you know any good treatment providers regarding Cipro poisoning. I believe my mother is currently affected. Thank you for your time. Take care.

    • Cindy October 28, 2016 at 11:07 am Reply

      Hi Candice
      I was wondering if you are in the USA? I would be interested in approaching a good treatment provider for Cipro poisoning too. Thanks x

  39. Cindy October 25, 2016 at 8:20 am Reply

    Andy What meds are you taking?
    Some people improve after stopping supplements.

    Are you exercising to encourage the production of endorphins the bodys natural pain killers and anti depressants?
    Have u tried magnesium cream and/or spray ?

    • AndyP October 25, 2016 at 9:13 am Reply

      Hi cindy I can’t excercise I can just about walk,I try to stretch every day and walk a little
      I have been on magnesium,Epsom baths but can’t bath anymore,ppq,mito q,zinc,krill oil
      I haven’t felt any difference from any supplement good or bad.
      I have weekly ozone IVs and mag IVs
      I have started Ldn which releases natural endorphins in the body at night but it takes months to build up
      I would really like a far infrared sauna for at home as I really feel in my head and body I need to detox through the skin to get this crap out of my body
      My skin and muscles feel dehydrated if that makes sense almost like they have lost all elasticity ,I think it’s collagen break down
      Stress at home really isn’t helping but I am partly to blame for that as I overthink things to much
      I am trying but seem to be getting nowhere and the frustration is killing me

      • Stephanie October 25, 2016 at 9:48 am Reply

        Hi Andy,
        I can barely walk I’m almost 2 yrs out supplements don’t help the only thing that helps me are my IVs. I am going to physical therapy tomorrow I will let you know if it helps any. I am also going to my ND this week to find out if I should try a slow detox with the help of homeopathy. Please stay positive we are given one life to try and find joy in it no matter how rough the path. It’s been a process for me and I can go on and on about all of my symptoms but at the end of the day you need to stay positive it doesn’t mean that you can’t feel sad but it helps to just believe that things will get better.
        Big hugs!!!

        • AndyP October 25, 2016 at 10:14 am

          Hi Stephanie add me to facebook so I can share this journey with you ,I rarely log on here
          I would like to help you with encouragement as well,ive had five ozones and magnesium ,booked in for 8 but might try 8 more even if it helps halt the onslaught
          My only joy in life is my daughter she’s the reason I fight every minute of the day

        • Stephanie October 25, 2016 at 10:45 am

          Sure what’s your last name I am not searchable on Facebook so you can’t find me. If it’s your daughter that helps you fight that’s great. I just got word that my argument to the university of Washington was approved and I finally got in for a second opinion to the neurology department. So I feel so happy because it’s been so hard.

        • AndyP October 25, 2016 at 10:52 am

          Andy perks or p3rkles@hotmail.com

      • Bob October 25, 2016 at 4:02 pm Reply

        Andy, hang in there. I was floxed about 3 years ago and was pretty much a basket case for 5 months. See if there is anyone around that does infrared detox. I go to a local guy that has an infrared bed like a tanning bed. it also helps with pain. It might be a good idea to try a hydrogen supplement. It is the only antioxidant that never turns into an oxidant. I just ordered some from echo h2 I think is the name of the company. I just did some research on the studies of hydrogen and it has impressive benefits. Eventually you should heal but it is bitch of a poison that’s for sure, I kick myself in the ass every day trusting doctors.

        • AndyP October 26, 2016 at 4:19 am

          Hi bob
          Sorry to hear your ordeal,I am as bad as can be
          I would like to buy a far infrared sauna for at home I feel this poison is stuck in my deep skin and I need to sweat it out

  40. Laila October 25, 2016 at 6:15 pm Reply

    Thank you very much for such a useful information! Just today i was prescribed Levoquin for tonsilitis…..i went to my local Walgreens and filled the script within 5 sec…they didn’t warn me about anything and i am a regular customet there..they just enclosed the regular px pages..as i get i start reading it…my eyes poped…i googled it and was it total shock…..how come my ENT doctor would give me something like this!!!! I am.40 years old single mom of 2 and thise kids need me!
    I never take anything without googling it first and this time was no exeption. I just can’ t trust him anymore! Why he wanted to kill me?
    There is tonns of other option out there.
    I want to warn everybody don’ t just trust your doctors!!!! Do yourself a favor and do ypur own research and this can save your life as it did mine today!!
    God Bless!!

    • Lisa October 25, 2016 at 6:30 pm Reply

      I’m so glad that you did your research, and that you didn’t take it, Laila! Many of us who have been “floxed” wish that we had known, and that we had learned about fluoroquinolone toxicity via the internet rather than learning about it from first-hand experience. It is always nice to hear from people who have been spared though – it truly lessens the pain of getting poisoned to know that our stories of pain have helped to spare someone else.

      Please show your doctor and pharmacist this new black box warning on Levaquin – http://www.fda.gov/Safety/MedWatch/SafetyInformation/ucm303865.htm. It is NOT APPROPRIATE to prescribe or dispense Levaquin for tonsillitis. Shame on them.


    • Amy October 25, 2016 at 7:00 pm Reply


      Just curious, what medicine did you end up taking instead of the Levaquin?

      • Laila October 25, 2016 at 7:10 pm Reply

        I am continuing my Zpack since i was on it when i came to the doctor. It was my third day on Zpack and he said he give me something better (lol) since i occasionally have tonsillitis and strep throat. And Zpack is not strong enough according to him…..ok but i don’t believe there no other options but Levaquin. Especially i was feeling 75% better.

    • Bob October 25, 2016 at 9:14 pm Reply

      Those are the kinds of posts that make this site worthwhile. You may have saved yourself years of misery. Good for you. You can’t trust the medical pharmomafia gangsters.

  41. Laila October 25, 2016 at 6:23 pm Reply

    I read all.the comments and my heart is breaking because how many people have been terribly affected and those poison drugs are still on market!!!! Why? Why they keep poisoning us? We turn to doctors sometimes pay our last money..to get relief not not became disable for life…we trust the doctors..for what..for them to kill.us…
    I totally lost my trust in doctors after this prescription he handed me with a smile…i wonder if he realized that he handed me poison..which then been dispense by my pharmacist without any warning or caution..

  42. Amy October 25, 2016 at 6:57 pm Reply

    My primary doc referred me to a functional or integrative doc/specialist. She is finally believing that there truly is something happening with my body. From how she described these docs- it gave me a little hope for some help or new ideas. Has anyone seen these type of doctors?

    • Laila October 25, 2016 at 7:14 pm Reply

      Amy hopefully she will able to solve all of health issues. All the best to you!

  43. Laila October 25, 2016 at 7:06 pm Reply

    Thank you for your reply to my comment Lisa.
    I just read the warning its so scary.
    When i came to the doctor i was on my 3rd day of Zpack which never gives me sude effects but not that strong…i do have tonsillitis and strep throat occasionally and this time i got sick on the weekend as usual so i started my Zpack. The doctor didn’ t like rhat i started a Zpack but i had no choice i had 102 fever and pain my tonsils were all white from pus.anyway he said he can’t check me for strep now because i been on Zpack. My condition was very much improved but not 100% he checked my throat in special equipment and said its not bad at all…but he will switch me to something BETTER i like that! To spead up my recovery and since i already had a strep throat 2 years ego ( nothinh unusual when you have kids in school) That when i got Levaquin….
    I want to thank you very much for all of your efforts because today you literally saved my life!
    And i want to wish all of you quick and easy recovery. I will keep you in my prayers!!!!

  44. Michael Teeter October 26, 2016 at 11:40 am Reply

    Hello everyone,
    I wanted to share a recent experience of a fellow work mate of my fathers. She came over from the UK to CA USA for a business meeting. While she was here in the states she experienced a reaction her face swelled up and broke out she looked like someone beat her with a club. I think she had a hard time breathing. They rushed her in for medical treatment. They thought she was having anaphylactic shock from sea food in a soup she ate. Nope. Guess what the doctors found out? She ate Chicken here in the US and she had an adverse reaction to antibiotics in the meat! So they treated her and she is doing fine.

  45. Catherine P October 27, 2016 at 3:27 am Reply

    Has anyone else experienced extreme vertigo and lightheadedness? Since my flare up earlier this month, these symptoms have been so bad that I cannot lift my head off the pillow.?has anyone else had this, or found anything that helps. I don’t understand why it has suddenly got so bad, and am scared it will never go off.

    • Ahmdi October 27, 2016 at 6:16 am Reply

      I not have severe reaction but i recommended you to use valerian root tablets because increase GABA receptors end really help you that he help me.

      • Bob October 27, 2016 at 10:35 am Reply

        Has anyone tried CBD oil (hemp)

  46. JohnO October 27, 2016 at 1:39 pm Reply

    Hi everyone I was floxed on August, 25 pills ciprohcl ,you guys are really helping me out recoving kind off hopefully 🙂 here’s a list of supplements I’ve been taking may be some suggestions 2 magnesium glucinate 800mg morning 600 at night helps me sleep,Multivitamins 1 a day, vitc 1000mg,vita8000iu and if I get anxious or depressed I have Ltheanine 200mg if anybody likes junk food like me here’s what I can eat with out flare ups hot Cheetos,tacobell beef not chicken trust me,handmade lemonade not alot of sugar,bbq lays I hope all of us recover fully 🙂

  47. Ahmdi October 29, 2016 at 11:57 am Reply

    Hi all,

    Today i eat some meat (sausage and organ meats) and my symptoms made worsened, i don’t know there meat are organic but my question is:

    For floxed people is it healthy to eat red meats organic(non-organic meat is bad for everyone)?
    For floxed people is it healthy to eat organ meats organic?

    • veteran floxie October 29, 2016 at 12:06 pm Reply

      Meats are a heavy food, fish is easier to digest.

  48. veteran floxie October 29, 2016 at 12:02 pm Reply

    Hi folks, I need your help, i have relapsed into sleep myoclonis due to a herpes infection i got three months ago, i have controlled the virus with rectal ozone, I am five years post floxed and my sleep had been soso until now, but not well, i had insomnia but the myoclonic jerks were not that bad.

    Last night the jerks kept waking me up all night long so that i could not get any sleep beyond an hour, so i just rest in bed and try to add up hours of intermittent sleep, i go to sleep at 9 p.m. and i get up at 9 a.m. this morning i got up at 10, i feel more tired than usual, after getting floxed the fatigue remained permantly but i try to manage it and live with it.

    I have been taking magnesium and melatonin to try and get at least 4 to 5 hours of sleep without waking up, the melatoni had been helping with the jerks, i was taking 1.5 mg if i take more i get nightmares. last night i took 5mg and it did not work.

    Before the herpes infection i had managed to eat regular food without too many problems, i try to not eat sugar or gluten, yesterday i had two bananas and some milk, and at lunch i had some chicken (it was salty) i try to stay on a low salt diet, and in the afternoon i ate two popsicles (sugar), it was a hot day and i had been sweating a bit.

    I think all these things added up to the imbalance of electrolytes in my body and made the myoclonic jerks flare up,

    My question is, does anyone have any ideas, theories, thoughts, advice on how to heal the myoclonic jerks,

    I took magnesium last night, but i still could not stop the jerks, and the melatonin whihc had worked before suddenly did not help much, i am thinking of seeing a homeopathic doctor and see if there is something for myoclonus,

    Today i am going back on a veggie and fruit diet with some electrolytes to alkalinize my system hoping this will help, it is what i had been doing since i got the herpes infection but i strayed and the myoclonic jerks came on with a vengeance.

    Any thoughts or advice would be grealy appreciated,

    On a side note i want to add that what jason is warning about glutathione is correct, i am in an ozone group and they explained it also, it moves mercury around and it will create nothing but problems in the long run, why do doctors use it? because they have not studied the data on it very well.

    Thank you all for your kindness, and if there is anything i can do to help let me know, we are in this battle alone, we only have each other.

    • joanneg October 29, 2016 at 10:05 pm Reply

      Hi Veteran Floxie,

      If you are flared up because of the herpes virus,I just wanted you to know that I used Olive Leaf Extract to heal the shingles(which is a form of the herpes virus) I got I think in the first year of my floxing. I used 20% Oleuropein by Herbal Actives 2 250mg pills every 4 hours. I have used Olive Leaf Extract for 4 infections since being floxed and it’s worked every time.

      Also if you have room to up your magnesium I would or maybe switch to a more absorbable form. I take around 750mgs a day and around 900mgs when I’m flared up.

      I pray you get some relief.

  49. joanneg October 29, 2016 at 12:31 pm Reply

    Hi Everyone,

    Just an update on the FMT.

    Well I only did 2, both times it was almost immediate relief of (80-90%) of all symptoms, and it lasted about 12 hrs each time, but then all symptoms came back.

    With it being such quick relief (within an hour) and not sustainable, it makes me wonder that it’s probably not the bacteria, but maybe the nutrients in it that were helping me?? I don’t know. But with that thought I was wondering if anybody here has tried the Transdermal Patches by http://www.patchmd.com/ ??

    I just ordered the Multi Vitamin Plus, and I will post if they help with any of my symptoms.

    Also, I stopped doing the FMT’s (for now) for a few reasons one was because of a fellow floxie who blogged and posted his 5 year journey and the number of things he has tried to overcome this hell, and he’s still battling according to his last post. He mentions FMT in his site, but I haven’t found if he actually did it, and I don’t want to do them just for relief I’m looking for a cure. So in the meantime, I’ll still be searching for a floxie that may have been cured by it.

    But I’m so glad I found his site because many of the things he has tried are things I was going to try. Lufenuron being one which is a veterinarian product that some people have used to try and kill candida, and also the probiotic retention enemas was
    another thing. I thought maybe it can be used in place of the FMT ?? Still I just don’t know.
    But this guy reminds me of myself in regards to what I research and what I want to try to get some healing.

    Anyhow here’s his site http://ghn.thegraychannel.com/uncategorized/lufenuron-healing-pots-anxiety-introversion/. It’s very interesting to follow all the things he has tried.

    For now, I’m going to stick with the supplements (magnesium, colostrum, and probiotics) that helped me sooo much, before quitting them and getting myself in this horrible relapse. But I’ll also add the transdermal vitamin patch and let everyone know if they help.

    • Ryan L October 29, 2016 at 4:19 pm Reply

      Thanks Joanne for keeping us up to date with your journey. The fact that you experienced an 80-90% improvement within an hour of administering a FMT is certainly something that should not be ignored. I agree with your assessment of the nutritional benefit, but I think that it may be more than just that. Healthy gut bacteria aids us in digesting and absorbing the things we eat, so an influx of healthy bacteria through a FMT (Even some bacteria that may have been wiped out of your system) could certainly be part of the improved health you experienced. The unfortunate thing is that many people who’ve had great success with FMT’s for other issues seemed to state that they had to do it for a while for the improvements to stick. So maybe there’s an issue with the actual reseeding process of certain types of healthy bacteria that could possibly be even greater in floxies than others (like leaky gut or some other type of tissue damage). If you decide to try a probiotic enema, please let us know if you experience the same type of results as with the FMT.

      I’ve recently completed an order for the probiotic Oxalo that is being shipped to the states from India (Ordered through IndiaMART…should arrive in 4-6 days). If it arrives cold (required for some of the bacterial strains), I’ll be able to see if I can reintroduce/increase the amount of the bacteria O Formigenes into my system. I plan on doing the Ubiome gut time lapse test to see where my gut bacteria is at before and after taking that probiotic treatment for a period of time. I figured that could be helpful information for the floxie community. For those wondering about O Formigenes, Lisa has written on it in the past and you can read her article through the link below. Please note that I can’t recommend Oxalo just yet, as I think I may be the first on this site to try it. If it does something good, I’ll be sure to report back.


      • Susan October 29, 2016 at 7:22 pm Reply

        Ryan thanks for doing this!

      • joanneg October 29, 2016 at 9:37 pm Reply

        Hi Ryan L,

        Yea, when I decided to do the FMT’s I did read a lot of testimonies that said a series of enemas may be needed and even some scientific research on mice that took a series of 14 until their stomachs were healed. I think I just got so discouraged when i got such good relief and then the effects wore off, and I felt sorry for myself that this poison has made me have to stoop so low. But in reality if a series of them would heal me, it would actually be such a simple, free, blessing compared to the thousands I’ve spent on useless supplements. So, I haven’t ruled them out just yet.

        And congratulations on your successful hunt for O Formigenes probiotics!! I will definitely be waiting to see if they help you.

        Finally, you are right, all our successes and failures are helpful information for the floxie community, so I’ll make sure I post with any new info.

        Praying God helps us all 🙂

    • Bruce Brannan October 30, 2016 at 9:16 am Reply

      Hey Joanneg,
      Keep us posted on Transdermal Patches. My gut is my main problem but I have stayed mainly with probiotics. I started using a product called Restore 30 days ago that seems to be working well. It is one of the few supplements that I can actually say worked. I am going to try it for another 30 days and will update my progress.

      • joanneg October 31, 2016 at 10:00 am Reply

        Hi Bruce,

        I definitely will give an update after I try the vitamin patches.
        And good luck with the Restore 🙂

  50. Ahmdi October 30, 2016 at 6:49 am Reply

    Most say cut gluten cut wheat cut bread,
    But really i can’t live without bread.
    Today i eat much bread and my body really it feels so much energetic, much happy.
    I love my bread till i die ∞ 🙂

    • Ryan L October 30, 2016 at 12:09 pm Reply


      I’m like you when it comes to bread. A few months ago I discovered the brand Katz (Gluten Free) bread products. At first I thought I was going to be extremely dissapointed with something that was gluten free, but it’s actually really good. I’ve only tried their white bread and oat bread, but I’m a fan of both. Might be worth looking into while you are fighting symptoms. Here’s a link.


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