Floxie Hope

Floxie.Hope.1800.72.dpi

This site is to give HOPE to those who are suffering from Fluoroquinolone Toxicity Syndrome as a result of being poisoned by fluoroquinolone antibiotics – Cipro, Levaquin, Avelox, Floxin, etc.  It contains stories of healing.

Cipro, Levaquin, Avelox and all other fluoroquinolones are dangerous drugs that can have devastating effects that cumulatively I’ll refer to as Fluoroquinolone Toxicity Syndrome or Floxing.  Fluoroquinolone Toxicity Syndrome/Floxing includes damage to connective tissue (tendons, ligaments, cartilage, fascia, etc.) throughout the body, damage to the nervous systems (central, peripheral and autonomic), and more. The damage done by fluoroquinolone antibiotics can destroy a person’s quality of life or even kill them. Certainly, there is a time and a place for drugs with dangerous side effects. If you find yourself in a septic shock induced coma, fluoroquinolones may save your life. Unfortunately, these drugs are not being reserved for life or death situations. People are being prescribed them for urinary tract infections, suspected prostate infections, upper respiratory infections, as a prophylactic for travelers’ diarrhea, ear infections, pink eye, etc. Thousands of people have suffered needlessly from the devastating effects of fluoroquinolone antibiotics, when another, safer antibiotic could have, and should have, been used.

The damage done by fluoroquinolones is largely unacknowledged by the medical establishment and an accurate diagnosis, compensation and relief are difficult to come by. There is no known cure for Fluoroquinolone Toxicity Syndrome/Floxing.  However, many people continue to LIVE after being poisoned by fluroquinolones.  They find healing, recovery, perseverance, compassion and hope.  These are their stories.

This site is meant to give hope for healing to those who are adversely effected by fluoroquinolones.  It is no way meant to disregard the pain of those who are chronically suffering from the horrifying effects of Cipro, Levaquin, Avelox or the other fluoroquinolones.  There are people who don’t recover.  Their stories are real and they matter.  There are also people who are able to recover and I share their stories with the hope that they inspire others, or at least give hope that recovery is possible.

Here is a New York Times article about the dangers of fluoroquinolone antibiotics – http://well.blogs.nytimes.com/2012/09/10/popular-antibiotics-may-carry-serious-side-effects/?_r=0 – more news stories, research papers and other resources can be found on the “Links and Resources” page.

Here is a Facebook group that is a great resource for those going through Fluoroquinolone Toxicity – https://www.facebook.com/groups/floxies/

Featured post – I’m floxed. Now what?

The Fluoroquinolone Toxicity Solution Ebook has helped many Floxies to recover, including DanielCindy and Ruth.  As a bonus, you will also receive The Floxie Food Guide – a book of diet guidelines to help you through fluoroquinolone toxicity:

flu tox get help you need banner click lisa

 

 

 

15,974 thoughts on “Floxie Hope

  1. ptnbrm April 17, 2017 at 10:02 am Reply

    I have read a lot about Boran and how it helps flush out fluoride. The fluoroquinolones (Poison) contains this fluoride. I understand that drinking 1/4- 1/8 teaspoon of Boran mixed in 1 litre of pure water is the recommended dose.

    I need to ask people here who have tried this and did it benefit them in anyway. I’m having bad joint pain especially in my shoulder blades. From having the mix how much of that 1 litre do you consume on a daily basis?

    • Michael Teeter April 18, 2017 at 8:45 am Reply

      I tried Boran but I don’t know how much it helped me. I used it in tincture form so what ever it said on the bottle. I do think it may have helped with the mental problems I was experiencing. I think if you go to a homeopathic or natural path they will help you with your shoulders.

      • ptnbrm April 18, 2017 at 10:10 am Reply

        Can i ask. Did it do anything for your joints or muscles. I have purchased the powder. I will mix 1/4-1/8 of the mixture into a litre of water. Any information would be helpfu.

      • Jane April 20, 2017 at 5:11 pm Reply

        Is this the same as Boron?

        • Michael Teeter May 1, 2017 at 1:31 pm

          I am sure that is what we meant and yes. I think it did help me.

    • Pam U. April 30, 2017 at 1:21 pm Reply

      The boron helped a lot with the anxiety I experienced, especially after having a tea or restaurant meal made with fluoridated water. I’m now trying to take it after every meal out so I don’t start the anxiety/depression cycle. By the way, I did both borax and boron and they both worked. Best wishes!

      • jwinn May 10, 2017 at 9:37 am Reply

        Pam U., how did you use/consume your borax?

        • Pam U. May 25, 2017 at 7:54 am

          Yikes! I just saw your question, so here you go. I went ahead and purchased Ionic Boron from Trace Minerals, which I use when I have not had access to non-fluoride water to drink. I take a dropper as soon as I get home, and then for a few days after, to help with the anxiety that seems to come after drinking fluoride, or eating it in a soup, rice, etc. after eating out. I also take it when anxiety starts drifting in again. When I did the borax powder, I did stir 1/8 into a liter of water which I drank throughout the day. I did that about 5 different times.

          The thing that helped most with the joint pain seems to be the magnesium, which I put on my skin, followed by coconut oil and lotion, after my shower. I’ve also done a lot of liposomal vitamin C, which I make at home so it’s a lot less expensive.

          I hope it helps you!

  2. David pollard April 18, 2017 at 6:42 pm Reply

    Just to sum up. Avoid all steroids . Steroids leach the magnesium out of you at the cellular level. Nothing causes tendon rupture faster than having been on steroids. Magnesium deficiency is the root cause of ALL the symptoms referred to in chats before this one.

    You need two parts calcium to one part magnesium to avoid sitting on a toilet all day.
    Everything. Neuropathy, heart issues, memory , tendonitits , seizures, twitches, are all magnesium related. If you do nothing else, take at least 900 mg a day of magnesium and calcium combo. I took Cipro for three months to control a prostate infection. I’ve had it all. Magnesium management got me out of a wheelchair and back to work after four months of suffering. I’ve seen extremely competent physicians who quickly identified the toxicity and supported me through the ordeal with , and I will say it again. MAGNESIUM I’m almost 100 percent recovered. David in Toronto.

    • L April 18, 2017 at 7:35 pm Reply

      Magnesium is certainly important, but I don’t think it is responsible for ALL the possible side effects. Also, many in the natural community recommend cal:mag 1:1 Also, the TYPE of mag you use effects toilet issues. Citrate should be avoided for this reason

    • Kurt April 18, 2017 at 8:07 pm Reply

      I’ve got Life Extension Neuro-Mag Threonate that I have been taking. The bottle says take 3 pills a day. Is that enough or should I be taking more?

    • Doug April 19, 2017 at 6:41 am Reply

      David, what type of magnesium and calcium are you taking? and the amounts?

      • Lisa M June 10, 2017 at 4:51 am Reply

        There are so many types I use Chelated & switch to Malate I have the opposite toilet issues So my primary told Me to take as much as I think I need and add more & more until I have toilet issues, going to much, then lower the dose down to wear I feel is sufficient. We are all different and, we all need more or less or mostly everything. I was extremely Deficient of mag, due to taking Nexium it actually Depletes the mag in our Bodies. I am 10 years out & was hit hard, between taking Levequin 750mg 6 separate times within a 2/12 yr period along with Prednisone and Nexium ….This is a never ending Learning/ Healing experience trials and tribulations, everyone here is sharing what’s helped them, Magnesium is a Definite, not sure if you have Neuropathy yet, or praying you wont get it in any form, but I found taking Biotin in Coconut capsules has relieved my Leg burning pain immensely , to the point where I actually cant feel it, I still have severe Ankle pain caused by Tibial Tendon damage but getting relief from Neuropathy pain is amazing 🙂

    • Walter Derzko May 3, 2017 at 8:08 pm Reply

      David, Are you by any chance the David Pollard that worked at DX . Walter Derzko

    • Kate Honan May 6, 2017 at 4:23 pm Reply

      Hi David Pollard,

      Thanks for the reminder of what worked. I am having (5 years out/22 years out) some resurfaced tendon pain in my upper body and some new pain (in one foot) that may be tendons or arthritis(?). I refused an RA specialist visit, as I knew I would not be putting any meds in my body. Still ok light jogging/stationary biking. I did heavy baths with magnesium and healed quickly the second round; had no clue what to do the first round, but made it through the horrible paresthesia that had me wheelchair bound when teaching (due to painful feet). The first time I had 500mg advil given to me at ER when hamstring pain hit, but knew better the second go-round. I am pushing 47 now, and looking to get a better food/supplement regimen to help with these. Have you had any signs of arthritis? My neck/upper back are a little arthritic according to an xray.

      • L May 6, 2017 at 5:12 pm Reply

        Look into prolozone injections

        • Lisa M June 10, 2017 at 5:01 am

          L I wanted to know if you were able to try the Biotin in Coconut capsules yet ? I am absolutely amazed after 8 weeks ? I still have absolutely No pain from the Neuropathy & mine was excruciatingly painful & progressive, I do get totally numb from my shoulder down if I sleep all night on one side but that was before the Biotin, along with that Burning Fire pain. I have been looking for a Dr who does the Prolozone injections, no luck yet. I have an appointment Monday with my Endo, she’s great hoping she has any suggestions. I found a report of a Full Body Scan I had 6 moths before taking this poison, showed my Knee damage and back issues, absolutely NOTHING with my Ankles Shoulders or anything else in my Body… I can absolutely SHOW PROFF of this being the Cause of all of these Injuries. I had horrible anxiety about getting cancer, because I was losing my sister in 2009, just as this was hitting me hard, my Doctor ordered this Test to ensure me that I didn’t have any type of cancer, thinking back the Anxiety was probably caused by Levequin and I knew I was going to lose my Sister, this Test Record is absolute Proof of everything. Wish me luck L, Please try the biotin in Coconut oil it contains mag and Silica also, I explained that b4 Hugs & Healing to you .

  3. David pollard April 19, 2017 at 1:41 pm Reply

    Hi Doug. I’m taking a Calcium Magnesium supplement available at GNC health stores in Ontario. Calcium 333 mg. magnesium 137 mg. Recommended by a Doctor of Pharmacology, health practitioner, doctor, integrative medicine specialist, all familiar with Cipro toxicity. I was disabled for several months and had to stop working.
    I take five caplets a day. Citrate is one very small component of this supplement.
    Please do some research on magnesium deficiency. Severe Magnesium deficiency is characterized by neuropathy, severe tendonitis, muscle spasms, cramps, anxiety, sleep issues, depression, heart issues, tremors ( twitching) I had all these symptoms and am now 90 percent recovered. I took Cipro for months.
    I’m not saying other supplements like Vitamin B complex, vitamin c, glucosamine chondroitine won’t help repair the damage to connective tissue already done. But the root cause is magnesuim depletion by Cipro at the mitochondrial level.

    • Pam U. April 30, 2017 at 1:33 pm Reply

      David, If you’re taking 900 mg of magnesium at the ratio you gave above, does that mean you’re taking over 2,000 mg calcium a day? If so, was your doctor concerned about plaque in your arteries? I’ve been nervous about maintaining any recommended calcium/magnesium level, while maintaining lots of magnesium since whacked out hormone levels also cause plaque to stick.
      Thanks for any information you can give on this!

    • Pam U. May 25, 2017 at 8:03 am Reply

      Hi David, I know I didn’t realize someone had asked me a question until another reply came up, so I thought I’d be redundant and ask you about the calcium amount you’re taking, and if doctors were concerned about plaque in your arteries. Thanks!

      • Lisa M June 10, 2017 at 5:14 am Reply

        Taking a sublingual Vitamin K helps to get the calcium where its needed in our Bones & Teeth and supposed to help get it out of our Blood stream where its not supposed to be, I am not a Dr & have no medical training, I am ten years out & learning all the time, sharing what I learn trying to help others, please Research Vitamin K it helps the D & calcium do its job, K is another vitamin that helps many things Health to you. I take as many Sublingual’s as possible being they are able to enter your Blood stream immediately through your inside cheek in your mouth, bypassing the Gut and allowing much more absorption, we are ALL different & need Different amounts of Different Vitamins & Minerals, I suggest you try a lower dosage 7 work you way up to a level that you feel is helping you , wishing you much heal. I am Ten years Out and Still researching and learning everyday. My greatest suggestion to anyone is getting a TOTAL Blood Work Screening done for ALL vitamins and Minerals including Thyroid levels TSH T3 & T 4 as these Drugs mess with all of our Bodies Systems, catching something Early and trying to fix it just may be the Best Course of action you can take. I am heartbroken each time I come here and see more people who have been harmed by these Horrible Drugs. Over Forty Years + Maiming young Healthy people and not caring, especially when THEY KNEW WHAT WAS GOING TO HAPPEN.. I read my ” Potential Side Effects Ten years ago on 3/19/2007 it said ” may cause Drowsiness, dizziness, diarrhea or constipation ” FOUR LISTED SIDE EFFECTS, It MAY CAUSE, they actually left out over 179 Pages of Side Effects that it WAS GOING TO CAUSE, I am So very Sorry this happened to you.

  4. D Snyder April 19, 2017 at 2:40 pm Reply

    Was just wondering how many people can use NSAIDS after being “floxed”. I have taken aspirin for a couple of days and my symptoms have worsened . I only took a total of 3 or 4. I am about 14 mos. into my recovery. Is it ever safe to take them again? Tylenol doesn’t work for me at all so what alternatives do I have for things like headaches or backaches?

    • L April 19, 2017 at 2:46 pm Reply

      Sadly, never a good idea. (I have fluid around my heart since the cipro, and the recommended treatment is steroids or NSAIDs. I won’t take either, and still have the fluid two years later.) I would recommend acupuncture or see an ND. THey often have none pharma suggestions.

      • D Snyder April 20, 2017 at 9:56 am Reply

        Thanks, L. I think I will try Tylenol again.

    • Michael Teeter April 20, 2017 at 8:28 am Reply

      It can be really dangerous. I guess it all depends on the individual. With me it caused a perforation of my small and large intestines and it has been shown to cause tendons to rupture. I use natural pain management.

      • D Snyder April 20, 2017 at 9:55 am Reply

        thanks for the response, sounds scary. Guess I’m lucky it only increased my foot pain and leg issues. Have you taken Tylenol?

    • Jane May 10, 2017 at 3:04 am Reply

      I would keep off NSAIDS , they are linked to strokes, heart disease, kidney damage, cause bronchospasms.

  5. Daniela April 19, 2017 at 6:02 pm Reply

    Good news for floxies worried about dental anesthesia! Septocaine destroyed my life and I have gone for several years with three broken teeth. Finally found a dentist willing to work without anesthesia. Relative to floxing, the “pain” was a big NOTHING!

    The best part was, when everything was finished, no injection site pain, no accidentally biting oneself. I just got up and walked away as if I had never been there in the first place. Plus the dentist who works this way was very cheap!

    Here is an excerpt from the ncbi nlm nih gov article on dental anesthesia Septocaine :

    “A patient with no history of atopy had two anesthetic injections, one of 2% lignocaine with 1:80,000 adrenaline for a root canal procedure and another of articaine chlorhydrate (marketed as Septanest® in France and as Septocaine® in the US) for a tooth extraction. On the first occasion, a few seconds after the injection, the patient experienced abdominal pain, tachycardia, burning paresthesia on the feet, hands and face, hypertension, hyperpnea, tachypnea, and severe anxiety.

    The same anesthetic (lignocaine) had been given a few days before without any adverse effect. Thus, the cumulative dose of local anesthetic could have led to systemic toxicity. As Lemay and et al13 reported “… a medication can be tolerated for a significant period of time before causing an accident”. For example, in a different case, a patient had been given the same amount of the same preparation as Ultracain D-Suprarenin® 2 and 10 months earlier without any adverse effects.6

    The second event (with Septocaine) occurred 9 months later. Septanest was administered without noradrenaline, following the recommendation of a cardiologist. However, the patient experienced the same symptoms and some additional symptoms including muscle pain, a sensation of heat, especially on the face, partial paralysis of feet, hands and throat, headache, dizziness, a loss of spatial orientation, and dysphonia. Tachycardia was less intense, but still present. The patient required admission to the emergency ward.”

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3417971/

    • L April 19, 2017 at 9:11 pm Reply

      yikes—cannot imagine dental work without anesthesia. I was severely floxed and did ok with septocaine

    • Daniela April 20, 2017 at 2:12 pm Reply

      the article describes how the effect is cumulative. Like fluoroquinolones

  6. Michael Teeter April 20, 2017 at 8:29 am Reply

    Hello everyone! I just got back from my new doctor he is great and pretty much on the same page as me. The docs at age management help floxies.

    • Valeria May 12, 2017 at 9:20 am Reply

      Michael have you recovered from Reactive Arthritis? How are you treating it? And how are you dealing with being floxed? Thank you

  7. Heather April 20, 2017 at 12:14 pm Reply

    Hi everyone, I was floxed 4 and a half years ago. Have been on and off this site. I had a lot of improvement since the beginning but I still have a lot of pain. I believe it is both neurological( receptors damaged) and connective tissue damage. I gave birth a year ago and between labor and carrying around the baby my pain level is killing me. I take some supplements and Epsom salt baths, heat and ice packs. Benadryl and Xanax can both help with the pain some but I’m sleepy as it is with a baby. Just a few questions…. Did anyone have any tests showing connective tissue damage? Not necessarily tendons but tissue that gets less blood flow? It feel like I’m full of cracking scar tissue. Second any pain management recommendations? If I didn’t have to carry a heavy child around it wouldn’t be as bad but there’s no alternative there. Lastly I have a new primary Dr. What is the best thing to print out to give him? He said fibromyalgia etc etc but I don’t think he really is aware of the fluiroquinolone damage that can be done and it’s hard to explain when you don’t know exactly what the damage is( neurological, musculoskeletal etc) Any suggestions greatly appreciated. Also Daniela I can’t use lidocaine’s/mepivacaine either, I had to give birth without an epidural and have dental work without anything. You would think there would be alternatives.

    • Daniela April 20, 2017 at 2:11 pm Reply

      Hi Heather, I had to go through this with a baby as well. It’s been years and years, and I have learned a lot of things during this time.

      You are so perceptive to focus on blood flow and circulation, and that is also the gist of Indian yoga and Chinese acupuncture.

      The acupuncturist can tape tiny balls to your earlobes for dental work pain.

      To show doctors, I printed the recent US govt FQ warning and the septocaine article I linked above.

    • L April 20, 2017 at 2:16 pm Reply

      You can print out one or both of the dear doctor letters. Personally, I would find another doctor. Many floxies get misdiagnosed with fibromyalgia, among other things. Do a search for intergrative MDs in your area.

      I just started curcumin IVs which I am taking for inflammation but they are supposed to help with pain, if you can find an integrative doc or ND that does IVS.

      https://floxiehope.com/2016/05/25/dear-colleague-letters-information-about-fluoroquinolone-toxicity-from-doctors-to-doctors/

      • Daniela April 21, 2017 at 10:34 am Reply

        I forgot about turmeric (curcuma is the main component)! A bit of the powder will relieve a sprained ankle. At my worst I covered myself in the stuff and it really helped. Now I make turmeric tea every morning. Sprinkle some into some coconut oil with other spices like ginger, boiling water, honey and lemon to taste. They’re selling the real root in a lot of grocery stores now, too, but the powdered form is available everywhere in the spice section.

        It stains orange so watch out for that. But it works so well topically that I didn’t care #OITNB lol! Turmeric/curcuma is actually used as an orange dye so if you tie your tshirt, socks etc, you can actually get some nice effects

        L, try this before you risk the IV, please! Someone just died from a curcumin IV in SoCal 😦

        http://www.10news.com/news/team-10/encinitas-woman-dead-after-i-v-infusion-of-turmeric

        • L April 21, 2017 at 10:47 am

          I am aware of the news report. This clinic was not using a compounded pharmacy curcumin. What gets me about this is that ONE person dies from an IV (from a questionable source) and it is all over the news. Millions die each year from big pharma drugs and we hear nothing. I already had one IV and getting another next week. You could not orally take the amounts given in an IV, and even if you could, going through the digestive destroys much of what is valuable.

        • stephanie April 21, 2017 at 11:18 am

          OMG I hate that story about the tumeric so much so many people say oh you see that……. I say exactly same thing you say to them. I love my IVs I would be so much worse off without them. Big pharma kills so many and one bad experiances opens the flood gates to discount all the good they do. I wish people were so quick to do the same to all pharmacutial drugs. If they were none of us would be in this spot. UGH UGH UGH okay nap time LOL

        • L April 21, 2017 at 11:59 am

          I would trust my ND (and this btw is from from nurse with an integrative INTERNIST—an MD) over 99% of the MDs out there. But a story like this gets pushed by trolls for ama and big pharma. Not saying it is awful that it happened. But also, if this patient was having a reaction they should have had benedryl or something to counteract it right away.

        • Michael Teeter May 1, 2017 at 1:34 pm

          How many Floxies have died from Cipro and other fluoroquinolones?

        • L May 1, 2017 at 2:31 pm

          Dr Charles Bennett, a medical researcher at U of South Carolina, estimates 300,000 have died, (extrapolating from the FDA’s own numbers) I would guess that it is even higher. The estimates are based on the reports and then they figure in what percentage of doctors/family members actually DO report, which is low. But I wonder if that also takes into account other countries. I have seen people post from Europe, the middle east and elsewhere. Then there are all those others who die and the death is attributed to something else, when it was actually the FLQs that were the cause.

    • Jane April 22, 2017 at 11:48 am Reply

      Has anyone tried deep muscle massage in conjunction with the treatments suggested on here?

      In the UK the speciality is called deep remedial massage . I understand the idea is to have deep muscle massage to break down the adhesions and for the muscle to start to rebuild again minus the fibrosis and adhesions. sorry if explanation is a bit unscientific. It is painful at the time and for 3 to 4 days afterwards but it encourages movement and helps with co ordination and balance.

      I have been told that if it does not hurt then there is no point having this done.

      • Heather April 29, 2017 at 6:28 am Reply

        I get a deep tissue massage once a week. I wouldn’t be able to function without it. When my neuropathy was at it’s worst the first two years I couldn’t handle the massages. But now it helps,I feel amazing for a day Lol(wish it was longer). It helps me for a few days and gets me through the week.

      • Susan April 29, 2017 at 11:58 am Reply

        I get deep tissue massage weekly. It is expensive but worth it. It hurts every time I get it done. Nothing relaxing about this massage. I think back almost two years ago when I started and how horrible the pain was everywhere. Now there are areas of pain that I get treated weekly. Overall I wouldn’t say it has eliminated anything but helps to keep the pain tolerable. The day of the massage is the best and within 3 days I am not feeling the best again.

        • Jane April 29, 2017 at 3:52 pm

          Susan well at last you are getting some relief which is good. I understand that you can self massage, stuff online for free.xxx

    • Lisa M June 10, 2017 at 5:31 am Reply

      Heather , I am Ten Years out and still trying to heal. I didn’t have anything to help back then. I have Progressive Neuropathy along with connective tissue damage, I posted several times about accidentally helping get rid of my neuropathy pain with Biotin in coconut oil, it also contains magnesium and Silica…..I will be 56 next week & have always thought Silica was poison, those little packets in everything warning us not to eat it ( Its a gel & it could pose a chocking hazard if it became wet when eaten ) Thus not a poison and our bodies actually have Silica in them naturally. I ate two capsules and then a few more & more & more and the next thing I knew the bottle of 120 capsules was almost Empty ? My body obviously has a depletion of Silica and Biotin as I supplement the magnesium daily, I have been taking at least 30 capsules daily for about 8 weeks and My Neuropathy Pain is Gone ? Silica actually helps to repair our Connective Tissue and the Nervous system. I want to scream it off the Roof Tops so people stop taking that Gabapentin Neurologists Push on them, I refused it. I have been suffering with this Burning pain for several years and just dealt with it, up all night in tears, I really hope you try this Biotin in Coconut Oil. I know if it helped me at age 56 and a long time sufferer it should certainly help you, I am not a Doctor and I am sharing what has helped me, please Share if it helps you as well .Best of Healing to you and Congratulations on your New baby 🙂

  8. Daniela April 21, 2017 at 12:34 pm Reply

    Well said!

    • Daniela April 21, 2017 at 12:36 pm Reply

      A completely natural approach is so much more effective as well!

    • L April 21, 2017 at 1:10 pm Reply

      but I do really appreciate your concern! thanks

  9. Kurt April 25, 2017 at 5:10 pm Reply

    Has anyone tried Metanx for Neuropathy? It’s a prescription medical food.

    • Barbara Arnold April 27, 2017 at 10:26 pm Reply

      Hi Kurt,
      I looked Metanx up, sounds interesting so I asked my pharmacist and he said he did not think it was on the FDA list here in Spain, but will investigate to see if it is. I will ask my ND Doctor who is also a medical Doc. I dont think he will have heard of it but it sounds good enough to give it a try. Let us know if you find out anything more. Thanks

  10. Stephanie April 29, 2017 at 1:11 pm Reply

    I was poisoned by Cipro 3 weeks ago. I will not go into my whole story. My symptoms are Achilles tendon pain/tightness, on and off pain in shoulders/wrists, burning, coldness, swelling in ankles and feet, muscle twitches (but this has gotten better). In my quest to find out what is going on, I came back positive for Rheumatoid Arthritis. I am having a hard time finding a doctor/specialist who knows anything about Cipro toxicity. My doctors feel like I am crazy. I read that steroids can make this worse after my doctor put me on one. It did make the muscle twitches and sensations worse. Right now the only thing that helps with the pain is Meloxicam. But, I have read on this site that you should not take anything in the NSAID family. I have a few questions.

    1. if Meloxicam is helping the pain, should I still not take it?

    2. What type of doctor should I see? (I have an appointment in a month with a rheumatologist and have had an ultra sound on my tendons which I was told they look fine)

    3. An EMG was recommended for my burning/cold in my feet. But, I feel my nerves are over
    sensitive and this test will be very painful. Has anyone found this test helpful?

    4. I heard of several types of Magnesium recommended. Which is best?

    5. I have not driven since this happened due to pain but also nervous I will hurt my Achilles tendon. Does anyone find driving made their tendon worse?

    • Bob April 29, 2017 at 1:46 pm Reply

      I would not go near that EMG test. Your nerves are too sensitive. Besides it is only to confirm what you already know. The burning pain my left foot is so bad I can barely walk. I am giving get to try ozone infusion. Did you ever try that Blue Room in Olympia. It is supposed to be good for pain. I wish I was close to one to try it out.

      • Jane April 29, 2017 at 4:00 pm Reply

        Bob have u tried deep remedial massage? You can self massage there are videos online etc.

        For the feet try exercises recommended for plantar faciitis. For example putting a, tennis ball under the foot and moving it about to loosen the tendons and muscles.

        Also try stretching exercises. Again free online videos to save you spending money .
        Wear supportive shies with arch supports.
        Applying magnesium oil topically is good.

        Take care x

        • Bob April 29, 2017 at 4:53 pm

          Yes I did that and now it’s much worse. I actually belive though that the increase in pain in my left foot is due to a molar I had pulled a few months ago. They are on the same meridian. I also think the seprocaine messed me up.

      • Jane April 29, 2017 at 4:16 pm Reply

        Why are u against the emg test?

        • Bob May 1, 2017 at 5:25 pm

          After cipro I can’t even tolegate a tens machine.

    • Bob April 29, 2017 at 4:02 pm Reply

      I’m sorry I confused you with another Stephenie. When I was floxed I tried to find homeopathic cipro. I could not find it or anyone that knew of it. About 2 weeks ago I talked to Homeopathic Associates in CA. They have worked with a lot of floxies and they use homeopathic cipro. They told me if you start treatment in the first several weeKS it is very effective. They take cases over the ,phone. There no is 619 741 5795. Allopathic doctors won’t do you much good. I take magnesium bicarbonate from Pristine Hydro. If you have a ND or functional medicine doctor near you might try ozone therapy and nutritional IV s.

      • Jane April 30, 2017 at 11:55 am Reply

        There wasn’t a reply next to your name of your posting to me. I was wondering what exercise had made things worse for you. Was it the plantar faciitis pain or something else.

        If it was the pl faciitis pain I understand from physio friends that this is to be expected but will improve in time. The pain is caused by stretching tendons and muscles that have become shortened due to lack of movement/exercise due to pain and stiffness but that fortunately will resolve.
        One can also get a flare up of pl faciitis type signs and symptoms.

        Have u read about the damage that a Vit B12 deficiency does to the dna?

        • Bob May 1, 2017 at 5:32 pm

          I was rolling get my feet on those balls you throw in the dryer. That was several months out and my feet were very stiff. My PN started after that. Several months ago I was massaging my feet every day. Now my left foot feels like it’s on fire. It could be from a reaction to septocai from dental work.

        • Bob May 1, 2017 at 5:35 pm

          I am taking B 12 and benfotamine. Has anone had negative experience with steroids.

        • Stephanie May 2, 2017 at 8:16 am

          Bob–I was given a low dose steroid to reduce inflammation and swelling. It did not do anything to help and ended up making the burning in my feet worse. Once you start a steroid you have to finish it because you can have a stroke and other bad side effects. It stops your adrenal glands from working so you have to give them time to kick back in. They gradual reduce your dose.

        • Jane May 2, 2017 at 12:01 pm

          BOB I am really sorry to hear that. I hate those balls they are so noisy. I never use them but my father in law does,

          Did they have chemical traces on them such as fabric conditioner, washing powder or liquid?
          Perhaps the plastic component may have irritated the nerves etc.

          Had you already had the septocal at the dentists when you experienced problems or was it afterwards?

          Did you have any nitrous oxide as this can deactivate B12?

        • Bob May 2, 2017 at 6:40 pm

          The dryer balls were 5 months out. My dental episode was 5 more the ago, over 3 years after getting floxed. I am seeing a dentist tomorrow who uses ozone.

      • Jane May 2, 2017 at 12:08 pm Reply

        https://www.google.co.uk/search?q=septocol&ie=&oe=#q=septocoll&spf=186

        It may have been due to septocol.It contains gentamycin that causes neuropathy!!!!!

        • Bob May 2, 2017 at 6:43 pm

          I know. It has gotten much worse.

      • Jane May 10, 2017 at 7:44 am Reply

        The importance of folate to enable thyroid to function and aid absorption f thyroid hormones to prevent adrenal stress etc.

        Also need correct level of folate in our body to absorb b12.

    • L April 29, 2017 at 5:21 pm Reply

      So sorry Stephanie. Personally, if it were me, I would not take an NSAID. In face, I have fluid around me heart (ever since the Cipro over two years ago.) They recommend steroids and NSADS which I refuse to take. I have tried other anti-inflammatories, that have not worked. BUt now I am getting a curcumin IV in hopes that will help. I just don’t know.

      I would try to find an integrative doctor. I went through almost a dozen doctors, most telling me it couldn’t possible be the Cipro (and bear in mind I was SEVERELY floxed…from my vision, to PN to horrific breathing problems, large weight loss, major GI issues and on and on. I only started turning things around when I saw a naturopath. I now also have an integrative MD. At the very least, make sure to take a copy of the dear doctor letters, which are written by doctors for doctors. https://floxiehope.com/tag/dear-doctor-letter/

      AS for the emg I was told there would be some “discomfort.” YIKES! I thought it was painful. I would NOT do it had I known. Also, that measures the large nerves and chances are pretty good that it will show nothing. I have read that most of the damage is I the smaller nerves, which requires a biopsy, but usually they wont do that til they first do the other.
      And THAT might not show anything either, because as dr todd plumb says, the damage is functional, not structural.

      You want to avoid mag citrate mostly for elimination reasons (diarrhea) I like orotate or taurate (which is also good for the heart). or L-threonate. The most poorly absorbed is oxide, so avoid that.

      Yes, best to baby the tendon for at least 6 months (although honestly it an go out at anytime.) Something you might want to look into to strengthen the tissue is prolozone injections. They help you heal naturally.

      • Stephanie April 29, 2017 at 6:24 pm Reply

        Thanks L. I unfortunately did not read about not taking steroids until it was too late. My doctor had told me this would wipe out the inflammation and swelling. I believed her. I am not sure what to do about the Meloxicam because it is relieving the pain enough that I can work. Hopefully once I increase my magnesium, I will be able to get off of it.

        I am going to ask my doctor for a blood test to see how low my magnesium levels are. I just found a functional doctor that looked interesting online in my area that I will check out.

        I am also wondering about going to a podiatrist to see if they can give me recommendations for protecting my tendon. I was seeing a PT prior to my Cipro issues for back problems and now he is also working on my tendons. But, he does not seem to get how it is different from normal tendonitis. I have had ultrasounds done of my A, tendons and am told they are fine.

        Any suggestions on how to reduce swelling in feet and ankles? I am wearing compression socks. Sometimes my feet feel so heavy. Not sure if this is the swelling or the nerves?

        • L April 29, 2017 at 7:09 pm

          Not surprised the ultrasound came back normal…again mostly functional and not structural damage. Whatever kind of physician you see I urge you to find an integrative one if at all possible. Good your one doctor is functional medicine. You might want to find either a sports doctor, or a naturopath, who uses prolozone therapy. It could help with the tendons. I don’t want to scare you re the NSAIDS but I know a few people on this site who had gotten much better had relapses after taking nsaids. If you want to post what city you are near, there may be someone on this site who has a good integrative dr or ND that they could recommend. (If the podiatrist is unfamiliar with FLQ toxicity, and I am guessing he/she is, you will get the standard recommendations that likely will include more pharmaceuticals.)

        • Stephanie April 30, 2017 at 7:47 am

          Thanks L. I live in Rochester NY. There are only 3 functional medicine Drs in the area and based on my online search no one does prolozone therapy in the area.

      • Vee April 29, 2017 at 10:19 pm Reply

        L, please be careful about that IV. A young woman just passed away from one I saw on the news.

        • L April 30, 2017 at 9:14 am

          As I wrote in an earlier post, while I appreciate the concern, this was a one-off incident. The person giving the IV did not use a properly compounded source. My MD has been using this for years. And again, I want to say DAMN!!!!! ONE person dies from an IV, improperly given and it makes the news. MILLIONS have died from big pharma drugs…and nothing. Please don’t rush to judgement on a protocol until you have all the information. This is the type of thing that helps fuel the movement (paid for by big pharma) to kill all supplements and to give naturopathy a bad name.

      • Jane April 30, 2017 at 11:57 am Reply

        L You can also buy turmeric capsules online.

  11. Stephanie April 29, 2017 at 4:05 pm Reply

    Thanks Bob. Going with question 4 above. Had anyone tried Magnesium flakes. I have intestinal reactions to magnesium and thought this might be a option?

    • Bob April 29, 2017 at 4:14 pm Reply

      You can avoid that problem with any topical magnesium as well as Remag.

      • Jane May 2, 2017 at 5:24 am Reply

        Bob Remag. Pls can u send the details of suppliers. I am in the UK. Thanks

    • Pam U. April 30, 2017 at 1:51 pm Reply

      I took a bath with the mag. flakes and also made oil with them. They really help with the joint pain!

  12. Jane April 29, 2017 at 4:19 pm Reply

    Dr Carolyn Dean sells all sorts of magnesium and adrenal support supplements.

  13. Stephanie April 30, 2017 at 12:55 pm Reply

    Throwing out this question again…
    I tried driving today with my tendonitis wearing an ACE ankle brace. It still hurt quite a bit. I am a teacher and am able to work (although I am exhausted and have swollen feet by the end of the day). My job is a 30 minute drive away and I am putting a lot of stress on my family to have to drive me everywhere. My question is…

    Has anyone with tendonitis pain found a way to drive? Is there a brace you would recommend?

    • Angie April 30, 2017 at 3:54 pm Reply

      Hello Stephanie. I noticed that you mentioned that you tested positive for RA since taking the cipro. Do you honestly believe that you have RA? I ask because I took cipro 3 tablets to be exact around the latter part of 2013. I was tested for a lot of things because I didn’t know what was going on with my body. The doctors that I was going to did not want to say that cipro had done something to me. I as you were was tested for RA and the factor was negative however my inflammation markets were so high. I never had pain/aches prior to cipro. A couple of rhuemys said it was RA and one said that no it’s not RA so it’s all confusing to me. I hope that you feel better really soon.

      • Stephanie April 30, 2017 at 4:28 pm Reply

        Hi Angie.

        I came back negative for inflammation which is surprising because I was so inflamed and swollen in my ankles and feet. But, I was on an anti-inflammatory at the time of the test (not sure if this impacts results).

        I have chronic back problems and about 5 years ago they did the same testing and I came back positive for inflammation but not RA. I saw a rheumatologist and was told I did not have RA. I was worried because one of my aunts has RA.

        To answer your question. No, I do not really think I have RA. But since I have had pain in my ankles, wrists, hands, and shoulders over the past 3 weeks, it will be good to rule it out. It is hard to know what pain is tendons vs joint. One of my doctors was adamant that I see a rheumatologist. I agree that they are trying to avoid blaming this on Cipro which is sickening!

        Did you have a lot of swelling? I am wearing compression socks which helps. I know it is a side effect of Cipro, but just don’t understand why. How long does the swelling last?

        • Angie April 30, 2017 at 5:14 pm

          Stephanie that’s so good to hear. I also agree because it is hard to tell if it’s my tendons and joints as well. Surprisingly I don’t have any redness or swelling. I just have pain so to speak. Like I’m my knees and my hands. But it’s weird because some days are better than others. I still work and drive as well. The pain is annoying but again I still manage to work through it though. It’s always good to speak with someone that has some of the same experiences as me. So thanks so much for responding back to me. It’s so frustrating to have doctors say oh it’s this and then others saying oh no it’s not that.however I know what it is and it’s the cipro.

        • L April 30, 2017 at 5:19 pm

          I know NOTHING about this treatment, but I have been reading recently about red light therapy for pain. You might want to do a little investigating. Here is one site I found https://paindoctor.com/red-light-therapy-for-pain/

        • Stephanie April 30, 2017 at 6:01 pm

          Thanks L. I think I actually had a chiropractor use this on my back in the past or something like it. I did not feel it did anything. But, maybe it would help my tendons? I will keep it in mind.

        • L April 30, 2017 at 7:14 pm

          and I can’t remember if I mentioned it before, but definitely look into prolozone injections if it is your tendons.

    • Jane May 2, 2017 at 5:27 am Reply

      Stephanie

      We had to buy a car with the right distance from floor to seat. This was an X trail. This stopped the leg swelling.

    • Lani May 4, 2017 at 1:26 am Reply

      Hi Stephanie. I have PM and drop foot which was caused from this. I don’t know if you want something this permanent or not but my right foot is useless because of this so I had to get a handicapped left foot accelerator so I could drive. I had to have it installed by a licensed handicap dealer. But it can be snapped off quickly and easily for normal driving also. My husband also drives this car. Hope this is some help to you.

  14. Jane May 1, 2017 at 2:12 pm Reply

    Vit B12 injections are helping the peripheral neuropathy also Vit D3 and BCo.

    D3 on its own increases neuropathy as it uses up any stored Vit B12 in the liver.

  15. Jane May 2, 2017 at 12:11 pm Reply

    I am self injecting with hyroxocobalamin and it is helping the neuropathic pain.

    • SM May 4, 2017 at 8:22 pm Reply

      Jane- May I ask how you got the injections? Was it through a doctor or done on your own? I’m very interested in doing this myself.
      Thanks.

      • Jane May 6, 2017 at 5:29 am Reply

        Hi SM
        No problem. I had been taking sub lingual B12 for ages but felt tired and also had pn.
        GP said levels were okay when they were not! However taking B12 skews B12 results anyway!!
        I joined HU Pernicious anaemia society and got lots of info off them.

        I bought the B12 injections online. German Company plus needles, syringes from medsave.com. Miserable stingy GP refused despite B12 being low and my having neuro signs and symptoms. I si with hydroxocobalamin .

        Usual story been floxed plus on statins, ppis, antibiotics eetc that cause PN anyway. P…… off with life.

        There are videos etc online showing how to inject. You can inject sub cutaneously or intramuscularly.

  16. Jane May 2, 2017 at 1:27 pm Reply

    URGENT.

    Has anyone had any allergy tests at a hospital , if so what is involved? I am scared of having any done and the appointment is for tomorrow.

    • L May 2, 2017 at 4:34 pm Reply

      They usually do a “scratch” test, where they make little incisions and then drop in the essence of whatever they are testing for…plants, animals, etc. On the other hand, I believe food allergies are done with a blood test. What are they testing you for?

      • Jane May 4, 2017 at 2:54 pm Reply

        Hi L everything but I was too ill to go!

        • L May 4, 2017 at 4:26 pm

          well you know, post-floxing people tend to be ultrasensitive to things they were not sensitive to before, so not sure how that would play into it. My fear would be that if this is not done by say a naturopath or integrative doctor, is that they would then want to recommend some kind of pharmaceuticals.

  17. Ned May 2, 2017 at 1:43 pm Reply

    I am almost 22 months out fro a cipro floxing and still wake up with anxiety attacks. My main concern now is how much I do not want to reach out to others or do very much. L said quite a while ago that she felt that way for 15-17 months after her floxing. I am 68 so mine may be worse. Is anyone else experiencing this anti social anxiety or something like it? Would appreciate any feedback. Ned

    • Ned May 2, 2017 at 1:59 pm Reply

      …also the suicidal ideation won’t let up. Has anyone tried black seed oil? I’m looking for boron. Thanks!

    • L May 2, 2017 at 4:36 pm Reply

      sorry you are still dealing with this. One thing you might try are adaptogens, which can help with the anxiety. Here a an article that describes what they are. I think ashwaganda is a good choice. https://www.bewell.com/blog/adaptogens-natures-miracle-anti-stress-and-fatigue-fighters/

    • Heather May 2, 2017 at 5:32 pm Reply

      Hi Ned, I am 4.5 years out and I use to wake up with severe panic attacks in the first couple years. A few times I called the ambulance. I would have electric shock up my spine at the same time it was horrible. I did take Xanax in the beginning. I would try to just distract myself playing mindless solitaire until it passed. Now it’s pretty rare that it happens but for me it lasted over two years then that third year it was less and less. So I think it’s a different time frame for everyone.

      • Jane May 21, 2017 at 4:45 pm Reply

        heather are u in the US ? What kind of a reaction did you receive from the emergency services or er ? Did they do any Ecgs/EKGs?.

    • Bob May 2, 2017 at 6:55 pm Reply

      Yes, I want to avoid people because the horror of it is I possible to explain.

    • Madge hirsch May 3, 2017 at 10:31 am Reply

      I think curcumin capsules have been helpful for anxiety.

      • jwinn May 3, 2017 at 11:39 am Reply

        My anxiety debilitating. My hormones also bottomed out. I have found that Melissa Lemon Balm Leaf helps with my anxiety and my insomnia. I got mine from Amazon. It’s worth a try.

        • Madge hirsch May 4, 2017 at 7:08 am

          I still have problems with insomnia. I will try the lemon balm in a tea . It grows in my garden.

  18. Jane May 2, 2017 at 4:08 pm Reply

    Ned It is horrible but will lessen. I was ringing up the Samaritans, Crisis Lines etc, No support from the dr of course. CBT, Mindfullness, yoga, meditation, breathing exercises are very useful as they re set the brain.
    Good sleep hyjiene etc.

  19. Ned May 3, 2017 at 12:14 pm Reply

    Thank you all for your kind replies. I will try the lemon balm, curcumin and ashwaganda and look into mindfulness meditation

  20. Kurt May 3, 2017 at 5:37 pm Reply

    Hi all,
    I’m 2 years out, and am experiencing some weirdness with my hands. I already have numbness in my toes/feet for the past couple years, but in the last month my hands & fingers have started tingling. Also in the last month the skin on my hands feels different. Softer? smoother, hard to describe. The tingling has calmed down somewhat, but my hands still feel weird. I’m really getting scared!! Has anyone else experience anything like this? Any feedback would be greatly appreciated. Thanks!

    • L May 3, 2017 at 5:46 pm Reply

      well, I wish my skin would get softer! Feels like emory board since the floxing. Anyhow, I too have PN in hands and feet. All of my toes are numb and a few fingers on one hand no longer function properly. At my worst they were spasming wildly out of control…on their own. I could not stop it. Now I cannot MAKE them do it. I suspect what you are experiencing will pass. Something I am doing (have done in the past and started up again) are Phosphatidylcholine IVs. They are supposed to help with PN. Sadly, they are expensive and not covered by insurance…and it is recommended you get 30-40 of them.

      • Kurt May 4, 2017 at 3:36 am Reply

        Thanks L. I’m just worried that my hands will start getting numb too! I will look into those Phosphatidylcholine IVs. My new primary doctor suggested a naturopathic doc that he knows that could do these. It might be time. I will be praying for more healing for you…

    • Jane May 6, 2017 at 4:37 am Reply

      L and Kurt

      Have you tried vitamin B12 injections? They treat the neurological signs and symptoms .

      • L May 6, 2017 at 8:13 am Reply

        actually was going to mention that to my doctor next week!

        • Jane May 10, 2017 at 2:52 am

          L Don’t be surprised if he says NO . BTW did u know that taking B12 skews the blood results?

          I buy my own B12 injections and self inject as dr refuses to prescribe B12 injections as he alleges the values are okay when they are not.

    • Kate Honan May 6, 2017 at 4:36 pm Reply

      I had such a fingers/toes tingling warning on Acetazolamide last month (used for altitude sickness – high mountains). My fingers were so weird, and I stopped the drug immediately. When I bumped my fingers or brushed them across something, it really intensified. Took 2 days to go away. Wondered if cipro damage continues with challenges from another drug…

  21. L May 4, 2017 at 7:57 pm Reply

    HI guys….just read something while I was at my doctor’s, getting IVs today. It is called BioPhoton Therapy. It is supposed to help with pain reduction and soft tissue injury. I know nothing personally about it, but you may want to check it out. Here is a website I found that explains it a bit more. http://www.balesphotonics.com

    • Kurt May 5, 2017 at 5:11 pm Reply

      Thanks for the info! My wife has been researching this treatment for a few months. I will hopefully try it soon.

      • L May 5, 2017 at 5:29 pm Reply

        yeah, I’m gonna as my integrative MD if he thinks it will help with numbness. Keep us posted

        • Kurt May 6, 2017 at 9:39 am

          L…..If you try it, please let us know how it goes. Very curious to hear. I will do the same. Best of luck!

  22. Walter Derzko May 5, 2017 at 8:47 am Reply

    Just joined this group today……remember getting Cipro in the past and likely when I was in ICU with sepsis induced coma. Requested pharma hospital records today from previous hospital. Have all the classic symptoms, especially peripheral nerve damage. Can’t walk I’m in Rehab.

    What’s helped is shiatsu massage, or deep tissue massage, but the classic Greco-Roman European shiatsu not the North American version which they teach in Toronto.2x per week since Thanksgiving for 3-4 hours per session. Ankle was totally limp or drop foot. Dr saying I would be paralyzed in wheelchair and called it ICU syndrome. Now I can flex r ankle up and down. Working on exercise bike 3x per week in Rehab. But still can’t stand. No strength yet. Shiatsu also cleared my sciatic nerve pain after pneumonia in 2015. Only took two sessions, 3 and 4 hours.

    Carbon 60 hydrated fullerenes from Ukraine also helping with excess free radical damage from mitochondrial stress. In hospital for 14. Months now. Since March 2016! Anyone experience this after pneumonia?

    • Debs May 5, 2017 at 3:11 pm Reply

      Hi walter,

      I do know what you are on about .

      I am a sepsis survivor myself, & also a very long term floxie & have been mentioning this for a long time in our various FQ groups, the suspicion that many cases of what you have been told is ICU syndrome ( also known as post sepsis syndrome ) are then made much more severe & complicated by Floxing.
      Rather muddy waters so to speak.
      Although post sepsis syndrome can arise in cases of Sepsis to varying degrees, & of course not all cases of this are linked to FQ use, other antibiotics having being prescribed at the time, this situation is all too often then complicated & enhanced in those who ARE prescribed FQs, & then develop it, by them subsequently being floxed on top.

      I was very lucky, I was myself prescribed another antibiotic for my own sepsis. It did however cause neurotoxicity, & also a delayed ADR related to my joints which I still have to this day, on top of my various floxing related issues.

      http://sepsistrust.org/support/post-sepsis-syndrome/

      • Debs May 5, 2017 at 3:44 pm Reply

        Drs do i think tend to distinguish a slight difference between the two labels mentioned, in relation to the delirium i believe, but personally i think the edges are rather blurred, it is much of a muchness as they say. Do you have cognitive issues ?
        I have had a triple cognitive whammy, hit from the sepsis side of things, various floxings, & also from other very damaging drugs, all of which trashed my cognitive function & although i improved over time cognitively, it has left me with specific problems in that area.

  23. Walter D May 6, 2017 at 5:43 pm Reply

    I recall getting Cipro some time earlier, but this time post pneumonia and while in a sepsis induced coma and several UTIs I did get three antibiotics: ertapenem, flagyl, and nitrofurantoin inhospital in 2016.ALL three could cause peripheral neuropathy and leg ankle swelling like Cipro. All counter indications with Tylenol! 14 months in hospital. Can’t walk.

    • L May 6, 2017 at 5:58 pm Reply

      yes others have posted about terrible side effects from flagyl as well

  24. Debs May 7, 2017 at 1:40 am Reply

    Various dodgy antibiotics there Walter, including Nitrofurantoin/ macrobid which I personally call the FQs chemical friend, due to the fact it carries many ADRs very familiar to us floxies & so much else in the severe ADR dept & including the fact that the symptoms of ADRs with this one just like with FQs can be delayed.
    We have quite a few people who have had run ins with the FQs nasty chemical friend macrobid either taken alone or as part of the floxing picture, which have not ended well in our various groups.
    Nitrofurantoin /Macrobid is just below the FQs re potential risk on my own do not touch with a bargepole list , one of quite a few I intend to avoid like the plague if it is humanely possible.

    Yet another very frequently prescribed antibiotic our miseducated Drs tend to think is quite benign is BACTRIM, despite the fact it has caused countless people to have their lives trashed worldwide over time, & where I live its dangers were realised many years ago, its use being severely restricted here at the time & now being invariably no longer used. We learned our lesson with that dodgy one here in the UK, & nowadays tend to use trimethoprim alone.
    Sadly however this very important news it seems has STILL not got out to the rest of the world at large, & peoples lives are still put on hold / ruined every single day by these very dodgy drugs when others could have been prescribed instead which carry more benign toxic profiles & as a result tend to be not so risky.

    At times of course we just have to cross everything & hope for the best when we run out of other options, however in SO many cases other more benign option are available & even more heartbreaking, natural treatments potentially when used as a first option for the less serious stuff in particular might have fixed the problem, without having to ever resort to using to Big Pharmas poisonous options in the first place .

    Having been brainwashed since the moment we can first understand language that our Drs follow a sacred oath to NEVER hurt us, & that Big Pharma is on our side & fighting hard for cures every day, those of us unaware of Big Pharmas true modus operandi are sitting ducks. So many times people reach straight for the allopathic drugs when feeling unwell as a first choice automatically, without even stopping to think, without even considering the fact that their might just be another way to potentially treat the problem they have, via the natural world, the place where Big Pharma sources their ingredients, & then they corrupt them .

    The ‘ side effects’ of the allopathic drugs being of course not their by accident but instead by design, & created to cause / mimic & to be mistaken for various diseases / syndromes, this reaching every time for those toxic drugs scenario is the most frequent way that people end up trapped in the allopathic system for life.

    True healing will never be found in the bottom of a bottle of big pharma poison.
    We unfortunately cannot be fixed by the same system that broke us, they do not have the word cure as part of their vocabulary .

      • Jason May 11, 2017 at 7:16 pm Reply

        Debs did you finally get fed up with the drug pushers in the FQ FB group? I see you are not an admin, nor a member anymore?

        Can’t say I blame you, they are brainwashed there especially Chana, who I suspect you had it out with

    • L May 7, 2017 at 9:40 am Reply

      I so agree Debs. And sometimes if I post a warning on facebook re certain pharma drugs, I get the equivalent of “beaten up” by rabid pro-pharma people who have indeed been so brainwashed to believe that big pharma has our best interests at heart, and we’d all be dead without their “cures.”

      • Jane May 10, 2017 at 2:55 am Reply

        L Have u heard the latest, Big Pharma pushing Statins now as a treatment for MS.

  25. Jason K. May 7, 2017 at 6:43 am Reply

    Hi all,

    I am a near ten year veteran of FQ toxicity. I want to first say that I *have* seen recovery over the years, but do still have some symptoms that I manage.

    To my surprise a new side effect showed up last night and I am curious to get some input. I’ve never had the peripheral neuropathy before, but suddenly before bed last night both of my hands and both of my feet started to tingle. It lasted all night and I barely slept. This morning it seems to only be in my feet, but I am worried it will once again come back to my hands.

    I have consumed the same diet and the same supplements for years. There were only a few differences over the last several days:

    -Two days prior, I had a glutathione push and IV of magnesium, vitamin C, selenium, some amino acids
    – I consumed caffeine in green tea two days in a row
    – I had kombucha two days in a row

    All three of these things are things I have done often, just not on a regular basis.

    I doubt the kombucha is to blame, just noting it because it is unique to the past couple of days.

    I usually have about 1-2 cups of green tea a week, but had a little more on this occasion, so perhaps it played a role? Caffeine can sometimes make my existing side effects feel worse, but I can’t imagine it bringing on entirely new side effects?

    The obvious answer is probably the glutathione and/or the IV, but I have had about 10 pushes/IVs over the course of the past year and nothing like this has ever happened before. Also, would a new side effect show up two days after receiving the treatment? I had always thought I tolerated them well, but maybe I have just done one too many now…?

    Sort of afraid here and unsure if I should keep my next push/IV appointment. Hoping this is a temporary appearance..

    I would appreciate any insight anyone has. Thank you.
    -J

    • L May 7, 2017 at 9:35 am Reply

      Sorry to hear this happening after 10 years. I have PN…tingling and numbness, but it was one of the very first side effects I had. I am now about 2 1/2 years out. I really doubt it is the glutathione. or the IV (sounds like you had Myers?) I have now had over 70 IVs, and last year every IV I got (with the exception of the H2O2) was given with a push of glutathione. My side effects only improved with the IVs and pushes. That’s not to say that different people don’t react to different things, but I think it is extremely unlikely those were what caused this. And the fact you experienced it two days later makes it all the more improbable. I was just speaking with the nurse regarding IV side effects. She said normally they would occur right away, which makes sense since it is going directly into the bloodstream.

      That is what is so frustrating about these damn FLQs. No one knows exactly how they cause all the damage (which is why no one can figure out a “cure.”) I know for me, sometimes if I have been overly stressed about something, it will exacerbate existing side effects—not sure if that could cause new ones. Since it has been ten years since you were floxed, perhaps it is something else. There are other things that can cause PN like diabetes. You might want to have your doctor do a full blood panel to see if anything else is going on.

      • Jason May 11, 2017 at 7:13 pm Reply

        Nurse, like the Doctors, are clueless.

        I know how they cause the damage, I have Floxing at least 90% figured out, which is more than anyone else anywhere at any time

    • Kurt May 7, 2017 at 2:04 pm Reply

      I don’t know much about IVs, but the tingling in my fingers started over 2 years since I was off the FQs. It seems anything is possible with these horrible drugs…

    • Virginia May 9, 2017 at 2:07 pm Reply

      I have read on some FQ sites that glutathione can have a negative effect on people. I’ve never tried it myself, and it sounds promising, but we’re all unique and respond differently,

  26. Jason K. May 7, 2017 at 10:29 am Reply

    L – thank you so much for your reply. I am just so confused….I thought I had found a safe lifestyle/routine to manage this condition and have lived it for such a long time without issue, and then this happens.

    I guess my theory is that the Glut or the IV caused deep detoxification and the resulting free roaming toxins were not properly excreted from my system, thus causing more damage? And maybe the damage took 48 hours to actually surface as a physical result? Do you, or anyone else, think there is any validity to that?

    I guess ultimately I want to know if it would be a good idea to keep up with the Glut pushes and the IVs. I would like to, but obviously won’t if they suddenly seem to be making me worse. Thanks again.

    • L May 7, 2017 at 10:39 am Reply

      Well, that theory sounds as good as any! IF you believe that to be the case then you might want to add something to get rid of the newly released toxins. Maybe infra red sauna? Add chlorella? IS there an ND or integrative MD where you got the IV/push that you could discuss this with? I would think that person could say fairly conclusively “yeah, it could have,” or “no, that is highly unlikely.” Keep us posted.

    • Jason May 11, 2017 at 7:05 pm Reply

      Jason, your instincts are DEAD ON. Bad reactions to Glutathione IV’s are VERY common, I see one just about every other week, I actually came here just to post another one, I have posted at least 10 so far. DO NOT GET ANOTHER ONE, and do not take any ALA, or chlorella either. Sorry you are yet another victim, neuropathy is a VERY common side effect from it, maybe the most common but there are piles more things that happen. Not everyone has a bad reaction but like I said many do, and the Doctors have NO CLUE what they are doing with this stuff sadly.

      Here is the one I came to post today.

      “I have stage IV cancer. I slowly got my tumors markers into normal range with cannabis and lifestyle and nutrition changes. Two months ago, I was given glutathione, vitamin c and ala IV’s. I have been on a downhill spiral ever since. The week after the treatment I had 2 anaphylactic “episodes”. I am exhausted and having a hard time regulating my temperature. I was feeling good before the IV’s. My tumor markers are up a few points, The Dr’s that prescribed them have no answers. I am so frustrated”

      • L May 11, 2017 at 7:37 pm Reply

        Sorry, but I believe her reactions are from something else. Could someone have a bad reaction to glutathione? Sure. People can react to anything. But I will tell you that after getting IVs from two different naturopaths and an integrative MD (very well respected internist and pulmonologist) many, many patients routinely get glutathione and not only do not have a bad reaction, but are helped immeasurably. Ditto ALA. I think your reaction is alarmist. I personally have now gotten more than FIFTY pushes of glutathione, and I was severely floxed.

        • Steph OG May 11, 2017 at 9:10 pm

          I agree I am still severely damaged have been for almost 2.5 years I can tell you that my naturopath who focuses on neurological issues gives it to me with no problem and started out with a very very low dose and over time it has increased if I could afford to get them daily instead of monthly I would. I think anyone can have a bad reaction to anything. I think that it’s super hard when you mix different things in an IV to what is messing that person up also from talking to my naturopath he said it’s hard to tell what is “negative reaction” and you body getting toxins out. I had to stop my minitored detoxing of my liver using caster oil wraps because it was too hard on my body. I can’t even touch Epsom salt. I never tell anyone not to use Epsom salt just because it literally causes me spasms or now they think they are seizures whatever the heck they are I can’t even touch it. I think to say no one should do it ever it’s going to damage everyone is way too much. That and my magnesium help me monthly to not lose hope that I might one day get better. I have tried so many different things and those two things are the only things to take away pain for 4 hours and they are glorious. Jason I’m just trying to give a different perspective as it’s been amazing for me.
          BTW as stephanie is a popular name this is the one that’s been on here for almost 2.5 years now and I will just go by steph og cause it makes me laugh 😂😂😂😂😂😂😂😜

        • L May 11, 2017 at 9:49 pm

          well that’s good, cause I have been calling you steph all this time anyway!!! xoxo

        • Jason May 11, 2017 at 10:25 pm

          You are, of course, free to believe what you want, stay in denial and to ignore the obvious, ignore all the damaged people’s stories I keep posting, and keep recommending something that is KNOWN to harm people, more than MANY MANY other things, that is up to you, it is your conscience not mine. This is not just some bad reaction to a supplement or food either, like the FQ’s, these reactions can ruins people’s lives, and do, so the risk here is VERY high. Do you think Doctor’s are going to tell you this? Get a grip, they don’t even realize what they are doing, or they wouldn’t do it.

          I lead people to water, not everyone is going to drink. Your neuropathy might still be there because of Glut, maybe not. Maybe you are lucky and one of the ones that can tolerate Glut, not everyone can and the price to find out is just too large to play around with. In short, it is dangerous for SICK people to have a Glutathione IV, and there is no reason to take that risk when as I have said numerous times people can promote it IN THE CELLS where it is needed anyway.

          Reaction alarmist, LOL, paaalease

        • L May 11, 2017 at 11:55 pm

          Jason, I really respected your opinion in the past…so much so, that when you first posted your concerns re the glutathione IVs that I asked my doctor at my next appointment. This is a man I respect and trust immeasurably. He is an internist and pulmonologist as well as a Lyme specialist. His reply? He shook his head and said “Anyone who says that, clearly does not have an understanding of the mechanisms by which the glutathione IVs work.”

          And I find it offensive that you suggest my neuropathy is still there because of the glut. That just reinforces that you don’t know what you are talking about! If anything, neuropathy is marked by a DEPLETION of glutathione.

          I am done with this conversation. You are not qualified to make these kinds of statements and I you are scaring people away from a valuable treatment that could help them.

        • Jason May 11, 2017 at 10:36 pm

          Stephanie great to see you are doing okay!

          Yeah Epsom Salts can be troublesome for some people, they won’t however do potential permanent damage like a Glut IV can 99.9% of the time. The prudent thing to do is warn someone when recommending Epsoms, that some people can not tolerate them, and it can knock you on your butt for some time. In the case of Debs above, it knocked her way the hell out, and caused a horrible refloxing of sorts that took a year or more to recover from IIRC.

          You guys need to remember I have been studying these things and been in the “trenches” with all kinds of different sick people for 10 years, I know more than many of the Doctors do at this point. I have seen more sick people and their stories and reactions good and bad than I ever wanted too that’s for sure.

        • steph og May 11, 2017 at 11:00 pm

          Hi Jason-

          I am not okay. I have progressively gotten worse. The worst part was when I wasn’t having IVs at all for months after losing my insurance and having no money. I might have seizures no one knows, I have more and more moments where I have no control over my heart beat and I have been told that my muscles in my chest are spasming impacting my breathing and that it finally got confirmed that I also do have choking issues. I am waiting to get an eeg because I am on cheap crap insurance now and have to go 8 hours if the only hospital in this state will help me. I might very well be unique I have no clue. I don’t get benifit from anything but IVs everything makes me worse and I have tired so much and I can’t waste money on pills anymore because they all seem to make me worse. I am actually partically in a wheel chair now. I am far from good. But the only time where I have no pain if the 4 hours after my IVs. Maybe I am the odd one wouldn’t be the first time since I now might have a rare form of seizure. LOL

          I just wanted to share my experiance. I have no clue what other experiance nor am I saying certain things don’t cause issues for others. All I know is that I

        • Jason May 11, 2017 at 11:19 pm

          Oh Steph sorry to hear this. I have seen you on FB also and just hoped that your activity meant you were doing better. 😦 I am REALLY sorry to hear this 😦

          A common reaction to these IV’s is to feel good initially, it can be for hours or even a day or two maybe, and then it hits the fan, for some that just means a lot of fatigue and flaring up of symptoms, for others things get much worse, and the more they do the worse it gets. Some get lucky and these things can abate somewhat, many are not so lucky and suffer for weeks or months, or sometimes permanently

          Myer’s IV can be helpful and are fairly benign, Vit C, some of the IV’s are good, but of course people can react to these too, it again just is nothing like what happens with Glut.

          Steph I will pray for you, big hugs from me to you.

          PS – keep an eye on your electrolytes like Mag and Potassium especially for heart, very important and often behind heart issues like those you mention

        • Jason May 12, 2017 at 6:52 am

          I’m sorry L that you want to keep blindly believing these well-meaning Doctors, and ignoring story after story after story of damage and the disabling of people.

          Now we have tarkonis below reporting that he and another Floxie both suffered damage, one of who is COMPLETELY DISABLED. 2 more new people.

          What will it take? Do you think it is all in these people’s heads? Do you think “people react to anything” so the risk is okay? By that logic we should recommend Cipro to people, too. By that logic, we would be no better than regular MD’s giving people Cipro.

          I am more knowledgeable than the Doctors on MANY many topics, especially on Glutathione. The Functional Doctors and Naturopaths are GREAT Doctors, they really are, but they have absolutely NO CLUE WHAT THEY ARE DOING WITH GLUTATHIONE, ALA, CLORELLA OR CILANTRO. They have been misled by FLAWED studies, poorly designed and full of holes.

          Once someone does the PROPER research on this topic, the logic is undeniable and the “Blinders” come off. I used to think Glutathione was a good idea too, I drank all the koolaid and even recommended it to a past client, want to guess what happened? Yeah, another damaged Floxie, luckily only minor for him. Only I am not brainwashed enough to ignore what happened like the Docs are, my eyes were opened, I stopped blindly believing studies and the “experts” and did more research on the subject and found other studies. I know, the information on the Internet like a LOT of misinformation on the Internet is very convincing, it really is, and then you have the Doctors who are also convinced. They are wrong, really that simple.

          If you are a Floxie, DO NOT take any of the above products unless you are willing to risk becoming disabled. ALA unlike the other CAN be helpful but the Doctors do not understand how it should be used, and thus harm people with it.

          ps – I am the World’s expert on Neuropathy, I have that 90% figured out as well. I have studied what ALL the experts have had to say on this, and all the studies, the Functional Docs, the Naturopaths, everything. I also have it myself, and have been able to trial different things unlike most of the “experts”. There are bits and pieces of wisdom everywhere, but no one has the complete picture, in my estimation I am the closest to that now, just like with Floxing. I would not say this if I did not think it was true, and accurate, and I am not a person who “Brags”, I actually hate people that brag.

        • marsellatom May 12, 2017 at 12:27 pm

          Jason, are there oral dosages you suggest for ALA and GLUTATHIONE?

          Sent from my Verizon 4G LTE smartphone

        • Bob May 24, 2017 at 4:28 pm

          Jason,, you are the “world’s expert” on PN but you don’t like to brag. How do you define bragging? You must have a lot of successful cases to make that statement. ALA IVs ‘ are used by some doctors to treat PN and of course liver problems. My thinking is that the ALA gets the liver to detox but then the toxins get reabsorbed into the blood through the intestines before they can be expelled. If you could bind the toxins in the gut with something like bentonite with fiber that might safely hold them until they are expelled. If ALA helps a non floxies with PN it should work for floxies with special precautions. I have been sent back to square one after some dental work and my PN is at pain level 10 for the last 6 months. I think ALA may be my best hope.

    • Jason May 11, 2017 at 7:08 pm Reply

      And I have said it more than once before, it may not be the first IV, 2nd one, or 3rd one, but it is BIG game of Russian Roulette for ANYONE who chooses to put the gun to their head

      • Jason May 11, 2017 at 10:43 pm Reply

        Like I said, these are not just any ole’ adverse reaction, they are VERY serious and can do permanent damage, here is another story to ignore:

        I had one Glutathione IV and 2 days later I couldn’t feel my feet, 4 months later I could barely walk upstairs. Even worse, 4 months later took ALA in large doses and further scrambled my brain.

        • Jason May 11, 2017 at 10:52 pm

          Oh, and I will remind others, the first time I came here to warn people and posted a couple of stories, very shortly after 3 different Floxies came here looking for help after they too tried Glut IV and got DAMAGED and became more victims. Now we have another one above, Jason K. I have not been here for quite some time and can imagine how many more I missed. At some point people need to open their eyes here good grief

        • Jason May 11, 2017 at 11:35 pm

          Here is someone from the Cipro FB group who was taking oral Liposomal Glut, and reporting his experience, this was the first result in a search:

          “Glutathione worked fine for me for a long time, post flox and post Lyme. Now that macrodantin effed me up, glutathione makes me MUCH worse”

          Some people “seem” to do okay on it, and it even “seems” to help some (possibly and probably with costs they don’t realize), and then there are those poor souls it damages, just not worth the risk there are so many other interventions including just promoting Glutathione, not supplementing it or having it put in high doses right in your veins

        • tarkonis May 11, 2017 at 11:46 pm

          Chiming in to agree with Jason. Glut IV’s made me much worse. Moved shit around that I didn’t want moving and into my brain. Also another floxie in my area is completely disabled due to glut IV.

    • Jane May 13, 2017 at 7:30 am Reply

      Jason Sorry to hear about the PN. I read that Vitamin D supplements can exacerbate burning etc in the limbs UNLSS taken with Vitamin B12 because D3 depletes the B12 which is stored in the liver.
      B12 injections are recommended in case there is an absorption problem.

      B12 results can be skewed if already taking B12 in any form , drs ugh are supposed to access the patient’s signs and symptoms instead of going off lab reports.

      The pernicious anaemia society founded by Martyn Hooper ,Thyroid uk, TPAUK. com have absolutely masses of info on thyroid disorders and pernicious anaemia and peripheral neuropathy. Vitamin and mineral deficiencies.

  27. mydentalcareguide.com May 8, 2017 at 6:19 am Reply

    ___123___Floxie Hope | A site to give hope for healing to those adversely affected by fluoroquinolone antibiotics – Cipro, Levaquin, Avelox and Floxin___123___

  28. Ann May 9, 2017 at 1:30 am Reply

    Hi Everybody! Is there ANYTHING too do about myopathy. Ive done a EMG test ,that showed signs of myopathy. Im not suprised, because i have severe muscle loss in my whole body, but my arms are worst, they look scary now. I guess, thats why i have so much trouble with my heart too. Can it be reversed in any way? Have any had/have myopathy? And got better? I take supplements and eat very healthy, no gluten , organic foods and so on.

    • Kurt May 12, 2017 at 4:58 am Reply

      Hi Ann….can’t answer the question about myopathy, but I’ll be praying for some recovery for you soon.

      • Ann May 12, 2017 at 5:45 am Reply

        Thanks Kurt. I hope that too, but for me it seems too be progressive

  29. Valeria May 12, 2017 at 9:21 am Reply

    Hi all… Anyone floxed and dealing with reactive arthritis? I would need to exchange opinions and info on how to overcome so much suffering. Thank you.

    • Stephanie May 12, 2017 at 3:04 pm Reply

      After taking Cipro I had Achilles tendon and calf pain. I also had burning and the feeling of cold feet. I had some pain and swelling in my joints, but I have no idea what is tendons vs. joints. My doctor did several blood tests and I came back positive for rheumatoid arthritis. I have an appointment with a rheumatologist in 2weeks. I think the Cipro has caused the positive results for RA. I do not think this is permanent. Or at least I hope not. My doctor had me take steroids which did not help. I am now taking Meloxicam and that does help. I know other floxies can’t take can’t NSAID without relapses. It is starting to bother my intestines so I am going to go of of it for awhile to see what happens.

      • Jane May 14, 2017 at 8:02 am Reply

        Stephanie
        Have you read the latest reports about the dangers of NSAIDs.Thisincludes naproxyn.

        If you are having problems with your intestines you should not be taking NSAID I am sorry if I come over as pushy but if you have a bad reaction to an NSAID it should never be prescribed for you or anyone else ever again.
        An NSAID is not the sort of drug that one can get used to, if someone has a bad reaction then they are sensitised for evermore and as stated previously should not take it again.

        Take care

        xx

        • L May 14, 2017 at 12:46 pm

          Totally agree, Jane. FLoxies must avoid NSAIDS! as well as prednisone and other steroids

  30. Richard May 15, 2017 at 5:03 am Reply

    I’ve taken 10,000 cipro meds in 25 years. Now I’m 47 and feel superhuman and super confused and moody.

    • Barbara Arnold May 15, 2017 at 6:23 am Reply

      Richard, can you elaborate please, dont really understand what you mean.

  31. Jeremy May 15, 2017 at 5:41 am Reply

    Dear All,

    I thought I should share my positive experience, to give you all more hope regarding body regeneration.

    I had an Ulnar Neuropathy in my left artm induced by taking levoxacinum (minor poisioning) and unfortunate thai massage. Pain was really annoying.

    Pain lasted for approx. 15 months. Now it’s totally gone! 🙂 Nerve have regenerated. Normally it should take 3-6 months, as i was floxed it took 15 months.

    There were waves of getting better and worst, longer and longer waves until it did not come back.

    I was using herbs, magnesium, other supplements mentioned here. Phisiotherapy did not help at all – I would not recommend phisiotherapy for issues like that.

    Best!

    • ursula May 18, 2017 at 2:47 am Reply

      Is it the Thai massage that made the difference

      • Jeremy May 18, 2017 at 3:09 am Reply

        Thai massage made this long lasting injury.
        Bottom line: no thai massage for floxies

        • Barbara Arnold May 18, 2017 at 3:25 am

          Jeremy,
          I wanted to say I have had deep tissue massage on my legs and feet and it really helped me. What works for one may not work for another and visa versa. There is NO SET WAY to curing ourselves. We are all our own experiments. We cannot say this is good or bad for floxies, because each of us is different with different issues. The one thing that I can say with some degree of certainty is this is a marathon not a sprint, progress does happen over time, but these insidious poisonous drugs also fool you into thinking your cured and then hits you with something else. You just have to keep going never give up until you get there. And while your doing that focus on your progress and don’t forget how far you’ve come.

        • Jeremy May 18, 2017 at 3:28 am

          Barbara, thansk for your comment. You’re right! I shouldn’t be so certain regarding opinion what can help and what’s forbidden. Appreciate.

  32. Joanneg May 15, 2017 at 2:14 pm Reply

    Hi Everyone,
    I wanted to tell you all that i am sooo much better!!! Almost a 100% !!!

    I started treating myself as if it were yeast, bacteria, or viral problems, first i did LDN for about 4 days and it started making me worse, so then i started taking heaping tablespoons of coconut oil 4-5 times a day and i read if it makes your symptoms worse you definitely got candida, and you should continue maybe at a lower dose so i did. I took 3-4 heaping tablespoons a day and after about 4 days every symptom got extremely better. Its been a little less than a month (about 26 days) and i absolutely cant believe it, but i have been almost completely NORMAL!!
    This past week i added a couple other natural antifungals just because they say it can adapt if you do just one. So i still take coconut oil 4 times a day plus garlic pills, apple cider vinegar pills, or olive leaf extract. I also still take colostrum and probiotics sometimes just keifer if i dont have the pills.

    But, this is working! I will post again in about a month to let you’s know if it’s continuing to help, but as for now, i dont feel like i was ever sick with anything -amazing!!!

    • Jason May 15, 2017 at 2:39 pm Reply

      Great news Joanne. This should not surprise anyone, including yourself, this is now the 2nd time you have “cured” yourself with something that address’s Candida. As it is the 2nd time, this is both good news and not so good, for you, potentially.

      People would do well to read/review the page I dedicated to Gut, which can be found in the comments UNDER this article where there are MANY other comments under it with more links to things people should read: “https://floxiehope.com/2015/10/12/im-floxed-now-what/

      From the Gut page, a comment I made back in November 2015 (I have learned a TON more since then from full-time studies and consulting):

      “I will also repeat what I have said before here too, in my estimation MANY Floxies are suffering from Candida, and some undoubtedly have a Leaky Gut with it. These things alone WILL be a HUGE reason why some people take a long time to heal and suffer a lot, and why some people don’t seem to heal at all.”

      • joanneg May 15, 2017 at 3:13 pm Reply

        Hi Jason,

        Good to see you posting again. If you’re still helping floxies, I would highly recommend you have them try the 4-5 tbsp of coconut oil. It worked extremely fast. It did make my ears ring and my crazy brain symptoms worse for about 3-4 days, but after that, it started making my head really clear and helping my other symptoms tremendously quick!

        And, your right about the things that helped me, like colostrum, were all natural antifungals, antibacterials, and antivirals, even magnesium helps clear toxins from candida!

        Anyhow, Hope you made your goal of 100% healing? 🙂

        • Jason May 15, 2017 at 6:05 pm

          Hi Joanne. Well I only have time to come here and warn people of serious potential dangers these days, I will have my own website up at some point a lot of work though.

          I started using Coco Oil about 5 years ago, when I killed my own Candida for the first time, it is one tool in a very big box, and one I do recommend to all clients.

          From floxing I was at 80% at 10 weeks, and 95% at 5 months. Good news is I have maintained that 95% from then to now, 2 years later. The bad is the last 5% won’t come until I get rid of enough Mercury from my body, which started at birth and built up over the 50 years of my life, mine is a very long story of not feeling well for 30 years, 40+ Doctors, 10 Specialists, 5 Naturopaths, none of which helped me had to become my own Doctor like many others before me, 10 years total studies for this uggg. Then I got floxed in the final couple of years of getting worse, needed that like another hole in the head… lol Also on the good news front, I have made a LOT of improvements now in my overall health, things that were issues for 10+ years, now gone or almost gone, it does take time though. Cheers and good healing to you thanks for asking. Jason

        • jwinn May 16, 2017 at 11:20 am

          Glad to hear you are doing well, Jason! Keep healing! 🙂

        • joanneg May 15, 2017 at 6:38 pm

          Glad to hear you’re doing so well and that you’re your own doctor! What I’ve found throughout this whole ordeal is how clueless most “doctors” are.
          Good luck with your remaining issues 🙂

        • Jason May 16, 2017 at 12:30 pm

          Thanks you two!

          Dear Jwinn how are you doing these days? I pray better, and hope that you not being on here much means that this is the case!!!

    • L May 15, 2017 at 3:22 pm Reply

      That’s great! So happy for you. You know early on my ND told me to put two tablespoons of coconut oil in my smoothie everyday. The stuff is remarkable—and so many uses. Anyhow, good news!!

      • joanneg May 15, 2017 at 4:31 pm Reply

        Thanks L
        Hope you doing good and listening to your ND about the coconut oil 🙂

    • jwinn May 16, 2017 at 6:00 am Reply

      So HAPPY to hear that you are feeling better Joanneg!!!!!!!!!!!

      • joanneg May 16, 2017 at 2:44 pm Reply

        Thanks jwinn,
        Hope you’re doing better too 🙂

    • ursula May 17, 2017 at 1:40 am Reply

      interesting, if i take coconut oil I feel worse, if I take colostrum same story, ACV also makes me like a anxious Zombie. This must be candida. I still have my mercury fillings (30 years), so extremely scared to remove them, if I eat Coriander I get dizzy and little black outs eg 2 leaves one black out for 2 seconds after 10 minutes, weird hey, does it move metals?, I’ve heard you cant really chelate with the mercury still in the mouth, according to the andy cutler protocol. Jason and others, your input please.

      • Jane May 17, 2017 at 3:39 pm Reply

        Ursula
        Coconut oil.

        I tried some and it made me ill as well. My hubby is taking it, he can eat anything. Cast iron stomach. He has never taken any crap such as antibiotics etc so he is ok.

        • ursula May 18, 2017 at 12:20 am

          I think if one read up on coconut oil it can kill candida and the die off is may be the problem, or if not then my body just dont like coconut oil, will we ever know

    • Barbara Arnold May 18, 2017 at 3:26 am Reply

      Really happy for you Joanneg. It’s great to hear, xxxx

    • Faisal May 18, 2017 at 5:46 am Reply

      Hello all,

      It’s ok if I take calcium and mag and d for 16 months every day with vitamins C 1000 ?

      >

  33. Jim W. May 15, 2017 at 2:46 pm Reply

    Hi Everyone,
    I’m seeking a bit of help here. I took Cipro a month and a half ago (as a prophylactic against infection following a medical procedure) and have had range of symptoms ever since — burning feet, tingling hands, joints all popping and cracking, muscles twitching, heart palpitations….My question is — is there someone good in Washington, DC area that can help people work through these challenges. Dr? Acupuncturist? Other? Thanks for any thoughts.

    Jim

    • Bob May 15, 2017 at 4:36 pm Reply

      I can’t tell you of anyone specific in DC but would suggest looking for a Functional Medicine doctor. Make sure to take magnesium and keep all your records in case you sue. Another suggestion is to contact Homeopathic Associates in CA. They can take cases over the phone. They have homeopathic cipro. They told me if I had contacted them in the first several weeKS after exposure they could have taken care of most of the symptoms.

  34. joanneg May 15, 2017 at 2:53 pm Reply

    Here is a site that describes the 5 stages of a Candida overgrowth https://healdove.com/disease-illness/The-5-Stages-Of-Candida-Overgrowth

    • Jason May 15, 2017 at 6:10 pm Reply

      Becareful what you read, tons of misinformation on the net about Candida, it does not fit into those categories “neatly” like that at all, but it can get progressively worse absolutely.

      • joanneg May 16, 2017 at 8:05 am Reply

        Yea, I’m just learning as I go through it.

      • Jane May 17, 2017 at 3:43 pm Reply

        Hello Jason
        How are you doing? I see that you have the answers to the unfloxing of us all. Please Jason I am begging you please, please can you possibly consider drawing up a protocol for us all. I wish I had answers I would publish them everywhere to help others. This condition is cruel it is like being tortured every day mentally and physically.

        Please help us to get our lives back.

        Take care

        xxx

  35. Stephanie May 16, 2017 at 6:27 am Reply

    I am a 6 week floxie and am getting a cold. I know I have to be careful now of what medicine I take. I used to take Advil Cold and Sinus or Mucinex. I know Advil is out, anyone know about Mucinex? Any other suggestions?

    • Madge hirsch May 17, 2017 at 2:20 pm Reply

      There is no need to take medicine for a cold. It will get better as the immune system deals with it. Honey and lemon drinks will give some relief and NAC will help loosen any mucus leading to a cough.

  36. Ryan L May 17, 2017 at 12:20 pm Reply

    Is there any reason why someone should avoid treating toenails with laser light therapy? I had an issue with one nail before my quinolone experience, and one of my side effects has been toenails that aren’t growing or are growing slowly. I believe I’m eating right, and I’ve exhausted numerous natural topical treatments over the last year and a half to no avail. Thus, I want to make sure the fungus is dead, even if the nail is not yet growing at a normal rate, and laser light treatments seems to be safe and effective to achieve this goal. If you have any insight for or against this treatment, please chime in.

  37. Jane May 17, 2017 at 4:22 pm Reply

    I cannot think of any problems with laser treatment for fungal infected toe nails. It has tobe better than using antifungal creams.

  38. Jason May 19, 2017 at 10:58 am Reply

    Hi Jane and others. I have mentioned this many times but it is worth mentioning again.

    There is no ONE protocol that can help everyone, there are many things that can help most Floxies, like Magnesium, Gut healing and many others, and there are some high risk things that people should not take risks with (there is one post pending I think Lisa is on vacation), but each person is unique in some ways, and as in any illness there are things that make each person’s journey a little different from others, so each has their own unique puzzle to solve, and unfortunately with Floxing it can be fairly complicated for the average person.

    Having said that, good accurate focused information is helpful to everyone, there is some scattered here and there and everywhere and it is tricky to figure out what is accurate, what is not, and very importantly, which accurate info actually APPLIES directly to YOU. This is something I help people with one on one, it is very unfortunate there are virtually NO experts on FQ toxicity to help others, some of my clients came to me after seeing some of the ones who are thought to be, and I seen their advice, so so at best and very incomplete no wonder the person was still looking for more, and not worth the $250/hr or more they charge. Naturopaths and Functional Docs can definitely help here some, however heed my warnings further up the page and don’t ignore the MANY people who have been damaged by these things they sometimes recommend, research all recommendations they make thoroughly do not blindly trust them even though they mean well.

    The Fluoroquinolone Toxicity Solution Ebook is one focused source of some decent general info, but is missing tons of info, TONS, and makes two VERY bad recommendations which I have already warned about many times including further up the page and past pages. I think Lisa is right, I really need to write my own book, there is just so much to share and this is truly the only way I can help the most people possible in one shot, there are actually 2 books I am now thinking of writing and this is one of them. I also really have to write some articles and get a website up, all of these are a lot of work, and I am in a precarious position right now in my own life so that has delayed any of these efforts due to time needed elsewhere unfortunately.

    I wish I had better more productive news, maybe my next time here I will. I do want to remind everyone again that everyone CAN HEAL!!! I have seen many many miraculous stories of healing, so never ever lose hope no matter how bad things can get, the body is a marvel of design, and amazing at healing itself, especially when given the right tools. Good healing to everyone. Jason

  39. Jane May 19, 2017 at 5:58 pm Reply

    Jason Hi again

    How much do you charge to help floxies?

    xx

  40. Walter D May 20, 2017 at 7:44 am Reply

    Has anyone had any experience with this for peripheral neuropathy.?

    PUBLIC RELEASE: 17-JAN-2017
    Blocking neuron signaling pathway could lead to new treatments for peripheral neuropathy

    Researchers at University of California San Diego School of Medicine, with colleagues at the National Institute of Diabetes and Digestive and Kidney Diseases, the University of Manitoba and St. Boniface Hospital Albrechtsen Research Centre in Canada, have identified a molecular signaling pathway that, when blocked, promotes sensory neuron growth and prevents or reverses peripheral neuropathy in cell and rodent models of type 1 and 2 diabetes, chemotherapy-induced neuropathy and HIV.

    The findings are published in the January 17, 2017 issue of the Journal of Clinical Investigation.

    Peripheral neuropathy (PR) is a condition resulting from damage to the peripheral nervous system — the vast communications network that transmits information between the central nervous system (brain and spinal cord) and the rest of the body. Symptoms range from numbness, tingling and muscle weakness to severe pain, paralysis and organ dysfunction. An estimated 20 million Americans have some form of PR, which can be a symptom of many diseases, including diabetes and HIV, or a side effect of some chemotherapies.

    “Peripheral neuropathy is a major and largely untreated cause of human suffering,” said first author Nigel Calcutt, PhD, professor of pathology at UC San Diego School of Medicine. “It has huge associated health care costs.”

    Previous research has described at least some of the fundamental processes involved in healthy, on-going peripheral nerve growth regeneration, including the critical role of mitochondria — cellular organelles that produce adenosine triphosphate (ATP), the energy-carrying molecule found in all cells that is vital to driving nerve recovery after injury.

    In their JCI paper, the researchers looked for key molecules and mechanisms used in sensory neuron growth and regrowth. In particular, they noted that the outgrowth of neurites — projections from a neuronal cell body that connect it to other neurons — was constrained by activation of muscarinic acetylcholine receptors. This was surprising, they said, because acetylocholine is a neurotransmitter usually associated with activation of cells.

    With identification of this signaling pathway, the scientists suggest it is now possible to investigate the utility of anti-muscarinic drugs already approved for use in other conditions as a new treatment for peripheral neuropathy.

    “This is encouraging because the safety profile of anti-muscarinic drugs is well-characterized, with more than 20 years of clinical application for a variety of indications in Europe,” said senior study author Paul Fernyhough, PhD, professor in the departments of pharmacology and therapeutics and physiology at the University of Manitoba in Canada. “The novel therapeutic application of anti-muscarinic antagonists suggested by our studies could potentially translate relatively rapidly to clinical use.”

    ###

    Co-authors include: Katie Frizzi, Teresa Mixcoatl-Zecuatl, Nabeel Muttalib, Joseline Ochoa, Allison Gopaul, and Corinne G. Jolivalt, UC San Diego; Darrell R. Smith, Mohammad Golam Sabbir, Kubir K. Roy Chowdhury, Ali Saleh, Randy Van der Ploeg, and Lori Tessler, St Boniface Hospital Research Centre, Winnipeg, Canada; and Jürgen Wess, NIDDK/National Institutes of Health.

    Disclosure: Fernyhough, Calcutt and Lakshmi Kotra of the University of Toronto are founders and shareholders in WinSanTor, Inc., a San Diego-based biotech that has licensed intellectual property from UC San Diego and the University of Manitoba to develop treatments for neuropathy.

    Disclaimer: AAAS and EurekAlert! are not responsible for the accuracy of news releases posted to EurekAlert! by contributing institutions or for the use of any information through the EurekAlert system.
    SHARE PRINT E-MAIL
    Media Contact

    Scott LaFee
    slafee@ucsd.edu
    858-249-0456

    @UCSanDiego

    http://www.ucsd.edu

    More on this News Release

    Blocking neuron signaling pathway could lead to new treatments for peripheral neuropathy
    UNIVERSITY OF CALIFORNIA – SAN DIEGO
    JOURNAL
    Journal of Clinical Investigation
    FUNDER
    JDRF, Canadian Institutes of Health Research, National Institutes of Health with support from the St. Boniface Hospital Foundation
    KEYWORDS

    • L May 20, 2017 at 11:11 am Reply

      This is interesting, since it also names PN caused by cancer drugs, which is basically the same here (and btw U of san diego conducted studies on FLQs); however I would be leery to use any pharmaceutical treatment at this point. I supposed it depends on how severe your PN is. These are possible side effects of this family of drugs: Side effects
      Medical Mnemonics
      “Know the ABCD’S of anticholinergic side effects”:
      Anorexia
      Blurry vision
      Constipation/ Confusion
      Dry Mouth
      Sedation/ Stasis of urine

      Overdose:
      central nervous system:  hallucinations, confusion
      cardiovascular system:  tachycardia
      sweat glands:  hot, dry skin

      • Bob May 24, 2017 at 3:48 pm Reply

        Has anyone tried kratom or Gabapentine for PN. I had septocain for dental work 6 months ago and the pain in my feet is unbearable.

        • Kurt May 25, 2017 at 4:40 pm

          Hey Bob….I am on a small dose of Gabapentin right now. Just started it a few weeks ago. I am seeing if it helps with the numbness in my feet. Not sure if it’s working yet. I would give it a try. You can always stop if you don’t like it, but it’s suppose to help nerve pain.

        • Bob May 25, 2017 at 5:37 pm

          What is the dose? The listed side effects are pretty scary. Do you have any?

        • Kurt May 25, 2017 at 5:57 pm

          I started at 300mg a day, and now I my doc just upped it to 600mg. We’ll see what that does. The very first pill made me kinda tired briefly. No side effects that I can feel now. Good luck!

        • Bob May 25, 2017 at 6:40 pm

          And you are not yet noticing any benefit

        • Lisa M May 26, 2017 at 12:03 am

          I am Ten Years out and would never take gabapentin, even though the Neuropathy pain is sometimes unbearable, I posted earlier about accidentally stopping my Neuropathy pain, I started to take Biotin in Coconut oil, I ate two capsules being its also great for your teeth and couldn’t stop eating the capsules, realizing my burning pain was subsiding and has been gone for Three weeks, These capsules also contain Silica helps with connective tissue and nervous system, something already in our bodies. I would suggest you try it chewing the capsules so it can get right into your blood steam through your mouth tissue. Biotin is a B vitamin , coconut oil is a good thing and I now know Silica is anther Vitamin we all need, taking away Progressive Neuropathy pain for Three weeks so far is absolutely amazing to me. All good stuff, hoping it helps all who try. Best of Healing to everyone.

        • Bob May 26, 2017 at 1:53 pm

          Thanks, I will definitely give that a try.

    • Barbara Arnold May 21, 2017 at 6:31 am Reply

      Thanks for the info Walter, very interesting

  41. JANICE May 20, 2017 at 10:12 pm Reply

    I found this website after reading about Cipro side effects in a book. My Opthamologist prescribed Ciprofloxacin eye drops for me to use 3 days before cataract surgery I had on May 15th, and until gone. As of today, I have taken these eye drops 4X a day for nine days, and found out today they can cause retinal detachment, and joint problems. So I will not take any more, but fear I may have already damaged my eyes and joints. Does anyone know what effect Cipro eye drops can have on the brain and joints and eyes and possible remedies? So far, I don’t have any unusual symptoms, but know they can appear weeks or months from now.

  42. JANICE May 21, 2017 at 6:49 am Reply

    Thank You. I read most of those which don’t address the problems described by others who have taken Cipro orally. I will have to wait and see if I took enough in my eye to cause damage.

  43. Jane May 21, 2017 at 4:19 pm Reply

    Janice Thank you for your reply.

    May I just say that you have to be careful of flourescein as it contains fluoride as well.

    There are eye drops contain beta blockers which can affect your chest. Just be cautious. I do not mean to alarm you but believe that to be forewarned is to be forearmed.

    Take care

    Jane xx

  44. Faisal May 21, 2017 at 5:30 pm Reply

    Hello all ,

    Its ok if i take calcum and mag and D3 for 1 years and have ?

    • L May 21, 2017 at 6:00 pm Reply

      Hi Faisal, First, you may not need calcium. See how much you are getting from all dietary sources. As for magnesium, I have taken it for years and continue to take it. I was on 800 mg and now take around 400. Vitamin D is so important and many are deficient. I thought I was ok because I got a bit of unprotected sun every day and I took a supplement (1,000.) The doctor put me on 10,000 a day! for 4 months! and I am only just now in the normal range. You should really do a blood test for it. But even without one, I believe up to 2,000 IU…but you also want to make sure you are getting K2 with it. You can find supplements that combine both.

  45. joanneg May 25, 2017 at 11:19 am Reply

    UPDATE ON THE COCONUT OIL,
    Shortly after I added the other natural antibacterials, I started getting some of my symptoms back, so I stopped them and continued with just coconut oil hoping I would go back to being amazingly better! But that didn’t happen. I continued getting more symptoms and some sore spots in my intestines. I think I killed too much good bacteria(??) just like antibiotics would do. So, I stopped the coconut too. Now I’m just doing probiotics, magnesium and colostrum to try and heal.
    I really don’t know what made me worse?? It started after adding the other things, but it could of been both. I don’t know??
    But the coconut oil did an amazing job at clearing up my brain issues, which are still good! Thank God!! I will definitely keep it in my tool box, but I won’t use it in extended high doses.

    • L May 25, 2017 at 12:24 pm Reply

      That is what is so frustrating about this whole damn thing. Some side effect comes back and you have NO idea why. I have had things come back after seemingly doing NOTHING differently. Cipro—the gift that keeps on giving.

      • Madge hirsch May 25, 2017 at 2:45 pm Reply

        Absolutely ! I had an attack of irregular heartbeat last night. It came out of the blue after an extended period of no chest pain or pulse issues. Also the pain in the spleen area reared it’s head after months of absence.

      • joanneg May 25, 2017 at 2:49 pm Reply

        Yea, I hear you!! On one hand it is totally frustrating, but on the other, since I found a couple of things that make me feel almost 100%, It definitely gives me a lot of hope that we can overcome this nightmare. It’s just how to get it right with no help. My problem is I keep adding new stuff to something that’s already working. I really need to stop doing that! Anyhow, I still believe the answer is in the gut.

        • Lisa M May 25, 2017 at 10:57 pm

          joanneg , Hoping your doing better ? I haven’t been on here in such a long time, I have problems with my wrists so typing is painful but I had to write about Biotin in Coconut oil , It has taking my Neuropathy Pain away for Three Weeks thus far, I would Not go on any type of medication for it, so I was having horrible burning pain 24/7. I chewed two capsules of the Biotin & couldn’t Stop ? I guess my body KNEW I needed that a lot, I literally ate a half of a bottle 60 capsules within a 24 hour period, and noticed that Burning pain was dull and then gone. It hasn’t come back and I pray that it wont. I still take the Colostrum LD that helped my Knees a lot, still trying to heal THE GUT. Biotin in Coconut oil, contains Silica, something I always thought was poisonous to the human body, turns out it rebuilds Connective Tissue and helps to heal the nervous system, its already in our Bodies. Ten years later & still trying to get better, I am about 75% and I am happy with that, I know its because I was sick almost Six Years b4 I knew I was poisoned and what to do about it, Floxie Hope really helped me a lot. I wish you as much healing as possible. Biotin in Coconut oil, its water soluble cant take too much, B vitamin great for hair skin and nails as well 🙂 Hugs & healing to you always.

        • Jane June 11, 2017 at 9:52 am

          joanneg

          Do you know if one can get VitB12 and iron transdermal patches? Do you know the name of the coconut oil, biotin and silica capsules please. thanks

  46. Jason K May 25, 2017 at 1:28 pm Reply

    Hi all,

    I wrote a couple weeks ago about getting worse suddenly (developing peripheral neuropathy) after nearly ten years of mostly linear healing. As mentioned in my first post, I follow a very routine diet and lifestyle that has worked for me. The only differences were the following:

    -Two days prior to start of PN I had a glutathione push and IV of magnesium, vitamin C, selenium, some amino acids (something I have done off and on since November)
    – I consumed caffeine in green tea two days in a row (a new weekly addition to my diet over the past few weeks)
    – I had kombucha two days in a row (a new every-other-day addition to my diet over the past few weeks)

    I had asked everyone what they thought could have caused me to get worse suddenly. I am now 100 percent convinced it was a combination of the green tea and the kombucha. I’ve done a lot of research and have learned that all tea is very high in fluoride (of course I knew it had some, but I always assumed it was trace amounts…I honestly didn’t know that the levels are quite significant…) I’m sure I don’t need to explain to anyone the connection between the Quins and fluoride.

    I am certain this is it. The PN hit WHILE I was drinking the Kombucha (!), after a day of drinking green tea. In fact, in retrospect, drinking these things always made me feel “funny”…I always just sort of ignored it and passed it off as caffeine thing. I assume it had just built up over the weeks.

    To the other Jason who said it was likely the Glutathione: I do not dispute that as an alternative by any means and I always appreciate your insight (I’ve read a lot of your other posts). I do believe what you have said about it having adverse effects. The “tea” explanation just feels much more correct in my specific case. At any rate, I have taken what you said to heart and I am going to stop the Glutathione, just to be safe.

    So, I wonder what I am in store for. My PN has not resolved and I am worried that some old symptoms will start to return. Is this considered a cycle? Or a brand new exposure? Is there even a difference? I have to think the “cycles” are often triggered by something?

    I just hope it won’t be as bad as an “actual floxing”….

    -J

    • L May 25, 2017 at 1:52 pm Reply

      I would go with the tea as well, but not necessarily because of the caffeine. Green tea is high in fluoride. And most commercial Kombuchas are as well. Again, I have had only positive experiences with glutathione, and PN was one of my first and worst side effects.

      • Jason K May 25, 2017 at 2:09 pm Reply

        Thanks L. Totally agree it was the fluoride and not the caffeine. I always felt funny after the Kombucha but I, stupidly, ignored that feeling for weeks. I really just didn’t think twice about a drink that purports to have so many health benefits. I thought I was doing something good for my body.

        I’m relived to know that it wasn’t the caffeine and that I, maybe, can still handle the rare cup of coffee (I hope?!?)

        How is your PN today? Have you had success in treating it?

        • L May 25, 2017 at 4:30 pm

          I really missed coffee for more than a year. I have now, after two years, added back in one cup in the morning (organic) and seem to be doing fine with it. (I even “cheat” and have a second cup some days. shhhh.)

          I have had success in treating some of the pn. I still have numbness in some of my toes and a couple wonky fingers. I am not really aware of them being weird until I try to clasp something, or catch something. They don’t seem to respond immediately like the other fingers. These same “wayward” fingers, when I was at my worst, would violently spasm, uncontrolled. No more of that. I also get a numbness and/or pressing sensation around my neck, but again not as bad as it had been, where I felt like I was being strangled. I have been told different things by different health care providers—so it’s a toss up as to whether this is more nerve damage or whether it is mitochondrial damage. PN isn’t always just only in the hands/arms, legs/feet. It can really occur anywhere. I also had had horrible (what I assume was nerve damage) in the pelvic area, where I went between pain and pressure. That seems to be gone as well. So, all things considered, I am ok with the numbness. The lingering issues for me are vision, which is a tough one, and fluid around my heart/inflammation.

          I think the IVs really helped me with everything. The one that is supposed to be especially helpful for nerve damage is phosphatidylcholine. IT is recommended to get 40 of these, which is a lot. I have had almost thirty now.

        • Lisa M May 25, 2017 at 10:46 pm

          I am Ten Years Out this past March 19. I am extremely angry, not because this happened to me but because it’s happened to So very many of you after. That first Levequin Pill I took on March 19,2007 ruined my life as I knew it, the thing that really upsets me is that THEY KNEW THAT I WOULD GET PROGRESSIVE NEUROPATHY , they KNEW we all would, I had no information, absolutely nothing online back then, I literally thought I was going to die. I am still here and alive 🙂 tendon Tears Progressive Neuropathy are the main effects that remain. I accidently found So much relief about three weeks ago, I ordered some Biotin in Coconut oil Capsules 10,000 mcg,s I chewed two and could not Stop eating them, I probably ate about Sixty capsules throughout the day and night. I was having Severe Burning in my legs for several days and Absolutely nothing was helping. I suddenly realized the Pain was very dull, and I have continued taking the Biotin in coconut oil 10,000. I read it contained Silica of which I always thought to be poison, turns out it is actually in our Bodies and promotes Connective Tissue repair And Nerve damage , who would of thought 🙂 So I am stopping by to wish you all of the Best on your journey back to your Healthiest selves. I have absolutely no training as a Doctor or Nurse, nothing but What I have found helpful to me these Past Ten Years. Floxie Hope gave me so much information…..Thank you Lisa, Linda, joanne G I hope your all still on the mend, I started healing faster after taking Colostrum LD 15 Months ago, I was taking a bit too much, causing my lymph nodes to swell up, they couldn’t handle the rapid kill off, So I still take a maintence dose everyday about a tablespoon …. I was severely deficient in almost every Vitamin and mineral in our Bodies, never being hungry never eating. I learned about Leaky Gut on here and am still healing from that. I am positive if I had found Floxie Hope Sooner I wouldn’t of gotten as sick as I had, bed ridden for almost three years. I feel truly Blessed for everyone who helped me understand exactly what had happened to me. I am Still here as you All are, sadly The group Nobody Wants To Join, But we can and Do learn from each other. Wrists are finished for the night, Best of Healing to you all. Please try Biotin for the Neuropathy, its water Soluble So you cant over dose on it I have ingested 120 capsules within Three days and lowered it down, Still No Nerve Pain ? However my Tendon pain is excruciating once again but that is tolerable and Fixable. Health to ALL +

        • L May 25, 2017 at 11:33 pm

          Hey Lisa M, thanks for the biotin tip..will check it out. Something else you might want to look into, is if anyone near you offers prolozone injections…it’s basically ozone and procaine and helps with damaged tendons, and other connective tissue, and pain. I had both knees done and so far so good (and it is pretty inexpensive compared to other treatments.)

        • Lisa M May 25, 2017 at 11:49 pm

          Thanks L Glad to know you did well with the knee surgery. I am petrified….. I have endocrine issues as well as the ” normal ” Floxie problems. I am actually amazed at how well it has helped with the neuropathy pain. I am actually calling the company to see if I can buy it in Bulk, I believe its all the ingredients together that make the difference. Biotin Coconut oil Silica and magnesium. I haven’t had any side effects at all and I have taken a lot, tapering down to where I still have relief. Hoping it helps you and anyone else who try’s it. Such a great accidental find 🙂

        • L May 26, 2017 at 8:35 am

          Actually this wasn’t surgery. I didn’t want surgery. It’s an injection. Very uncomfortable but only lasts about a minute.

        • Bob May 26, 2017 at 2:14 pm

          I got 2 prolozone injections about 2 weeks ago. So far it hasn’t helped.

        • L May 26, 2017 at 2:36 pm

          Bob. You need to wait six months for it to work

        • Bob May 26, 2017 at 2:56 pm

          I have 3 more injections scheduled in about 3 weeks and another one in July. I am hopeful as the pain in my feet is a 10.

        • L May 26, 2017 at 4:42 pm

          well, mine was for torn meniscus. It is to help your body heal itself, which takes some time. A friend’s father has both knees and both hips done and she said he was thrilled with the results. Not sure why you are getting so many…are they in different areas? I only got one in each knee. Also, there is prolotherapy and prolozone (which I had). We may be talking about two different things. http://prolotherapyphoenix.com/Prolotherapy-vs-Prolozone.aspx

        • Bob May 26, 2017 at 5:02 pm

          When I got floxed my legs were severely affected from my knees to my feet, especially my left leg. I have had to wear an ice pack on my left leg below my knee for 4 years. I had a severe reaction to a dental pain killer in Oct and my left leg down to my foot and right foot are on fire. I got 1 injection in the knee and the other in the ankle. They are prolozone. They are actually felt worse after the shots but that may be a good sign.

        • L May 26, 2017 at 7:32 pm

          wow, that’s awful. Which dental RX? I sure hope this helps you. For me, I had to be careful just walking of my knees would buckle under me. It has now been a little over 6 months, and I am actually able to squat down, and do things I couldn’t do before.

        • Bob May 27, 2017 at 7:03 pm

          Septocain

        • L May 27, 2017 at 7:41 pm

          hmmm, I may have had that, Goes to show how differently we all react. I also had a different one, but I have read that there is not a huge amount of difference between the anesthetics that holistic dds and regular dds use. One thing I know (that of course makes it more expensive) is some get a high dose vitamin c iv during the dental treatment, which helps your body to fight off the stress of it. (Vitamin C is one of the IVs that does require a blood test first.)

        • Bob May 27, 2017 at 9:12 pm

          Why does the vit c need a blood test?

        • Bob May 26, 2017 at 4:32 pm

          CAN you tell me the brand of biotin and where you got it?

        • Lisa M May 25, 2017 at 11:04 pm

          I am Ten years out and have horrible Progressive Neuropathy, I accidently found something healthy that really took away that Burning cant sleep or do anything pain, BIOTIN IN COCONUT OIL, it also has Silica & magnesium in it, always thinking Silica is Toxic because of those little pouches in shoes or powdered foods ( Only because it is a gel and you can choke if eaten ) Silica is actually in our bodies already, it helps to Rebuild Connective Tissues and Repair the NERVOUS SYSTEM. I haven’t had any excruciating Pain in over Three weeks the First Time Ever since developing the Neuropathy. I have absolutely No Medical training, I only know what I have tried and pass it on when it helps, hoping this helps all who try it wont hurt being a water Soluble B vitamin actually called H vitamin in the B,s Best of Health and Healing to All 🙂

  47. Joanneg May 27, 2017 at 8:58 am Reply

    Lisa M, I’m really happy to hear you found something that helps you so much! 😊 Keep us posted on how it goes.

  48. L May 27, 2017 at 11:11 pm Reply

    Bob. The reason for the blood test is a genetic thing. There is a small part of the population that is deficient in a certain necesssty enzyme. Called the g6pd test

  49. Jason K May 29, 2017 at 6:29 pm Reply

    Can anyone give any insight into ozone therapy? I am trying to do my own research online but I find myself constantly coming upon two extremes: either it is a miracle treatment or it is a completely bogus and potentially unsafe. As always, I assume the truth is somewhere in between. Are there any personal accounts of floxies having real and lasting benefit from it? I’ve seen one or two stories, but I imagine, if it did really work, that there would be more than the two or three that come up on a google search? Is it not working or are very few trying it?

    I’d like to try it and I am comfortable with it not working and ultimately being a waste of money (I’m used to it…)….but I am afraid that it could make me worse or could cause other adverse effects. If the floxie personal accounts are rare, does anyone know where I can find authentic, unbiased information or accounts surrounding Ozone?

    • L May 29, 2017 at 6:52 pm Reply

      I didn’t have it only because I was getting h2o2 ivs and there is much overlap. I can tell you though that many of my nds patients, mostly cancer patients and Lyme routinely got it and it seemed to be very effective. He also used it on former floxies I would say it skews more toward miracle. One thing I would be careful of though are those ozone therapy saunas. The are like little tents you sit in with your head sticking out. Problem is you don’t want to do inhale ozone and its almost impossible not to that way. Also as I mentioned before I had prolozone injections in my knees which is include ozone and so far do good!

      • Bob May 29, 2017 at 7:56 pm Reply

        L what do you think about the hydrogen peroxide IV’s. They seem much more common than ozone.

        • L May 29, 2017 at 9:41 pm

          Actually I think the ozone is far more common—at least around here. In fact, I know a half dozen places that do IVs and only one does the hydrogen peroxide but all the others do ozone. (They all do high dose vitamin c though which increases h2o2 in the bloodstream) The H2O2 was great for me. I had horrific suffocating breathing from the Cipro (likely mitochondrial damage or damage to nervous system) I was quite literally gasping for each breath. Unfortunately I was also on preventive inhalers for asthma. I was in a very difficult position, because the inhalers contain both steroids and fluoride, which of course exacerbate the fluoroquinolones. SO–here I was adding more poisons to the mix but also afraid to stop, because I was already struggling to breathe. I thought “what if I get an asthma attack on top of it?” IT was unimaginable. I was getting so little air as it was.

          Well, my ND was the first medical person who gave me any hope at all, and quite frankly at that point, I would have tried anything, figuring if I died it would at least put me out of my misery. (win / win!) Anyhow after a half dozen H2O2 IVs, I started to wean off the inhalers, and then a couple weeks later stopped completely. That was almost two years ago, and I have had no asthma drugs and no asthma! (I did do a couple “maintenance” IVs in that time.) It has actually been used on people with emphysema, cancer, and more. IT can fight off virus, bacteria, even fungi.

          I don’t know what your situation is, but I just did a little online search and I do see they both seem to be used for many of the same things. I would think either would be beneficial.

    • Barbara Arnold May 29, 2017 at 10:54 pm Reply

      Jason,
      I had about 15 sessions of ozone autohemotherapy, and the occasional “top up”. When the blood is extracted it is very dark in colour and when the ozone is injected into the bag of blood the colour goes a lot lighter and then it is slowly dripped back into your body by IV. My experience was it helped me a great deal, at one point I had three days where I thought I was “cured” I felt completely normal. Sadly it came back, so for me it was not a complete “cure” but it did make me feel a lot better. It helped with pain and loss of energy. At the moment I am having accupuncture or I would definately go for more “top ups”. Initially you can get some “herx effects” but these eventually wear off. My ozone Doctor has had twenty years experience, he is also a MD and does ozone operations on people who have problems with their backs. As long as you go with someone who is experienced and knows what their doing, it is completely harmless with no side effects. It is widely used in Germany, Cuba, the UK, Spain, Brazil, Canada and other countries that I can’t quite remember at the moment . I also have an ozone water filter which I got from amazon. In some countries like the UK it is very expensive for ozone therapy, but here in Spain it is about 70£ a session. Not cheap but a lot cheaper than other places. For me personally it was well worth it, but each of us is different and can only give our own experiences. So would I recommend it ? Yes.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s