Floxie Hope

Floxie.Hope.1800.72.dpi

This site is to give HOPE to those who are suffering from Fluoroquinolone Toxicity Syndrome as a result of being poisoned by fluoroquinolone antibiotics – Cipro, Levaquin, Avelox, Floxin, etc.  It contains stories of healing.

Cipro, Levaquin, Avelox and all other fluoroquinolones are dangerous drugs that can have devastating effects that cumulatively I’ll refer to as Fluoroquinolone Toxicity Syndrome or Floxing.  Fluoroquinolone Toxicity Syndrome/Floxing includes damage to connective tissue (tendons, ligaments, cartilage, fascia, etc.) throughout the body, damage to the nervous systems (central, peripheral and autonomic), and more. The damage done by fluoroquinolone antibiotics can destroy a person’s quality of life or even kill them. Certainly, there is a time and a place for drugs with dangerous side effects. If you find yourself in a septic shock induced coma, fluoroquinolones may save your life. Unfortunately, these drugs are not being reserved for life or death situations. People are being prescribed them for urinary tract infections, suspected prostate infections, upper respiratory infections, as a prophylactic for travelers’ diarrhea, ear infections, pink eye, etc. Thousands of people have suffered needlessly from the devastating effects of fluoroquinolone antibiotics, when another, safer antibiotic could have, and should have, been used.

The damage done by fluoroquinolones is largely unacknowledged by the medical establishment and an accurate diagnosis, compensation and relief are difficult to come by. There is no known cure for Fluoroquinolone Toxicity Syndrome/Floxing.  However, many people continue to LIVE after being poisoned by fluroquinolones.  They find healing, recovery, perseverance, compassion and hope.  These are their stories.

This site is meant to give hope for healing to those who are adversely effected by fluoroquinolones.  It is no way meant to disregard the pain of those who are chronically suffering from the horrifying effects of Cipro, Levaquin, Avelox or the other fluoroquinolones.  There are people who don’t recover.  Their stories are real and they matter.  There are also people who are able to recover and I share their stories with the hope that they inspire others, or at least give hope that recovery is possible.

Here is a New York Times article about the dangers of fluoroquinolone antibiotics – http://well.blogs.nytimes.com/2012/09/10/popular-antibiotics-may-carry-serious-side-effects/?_r=0 – more news stories, research papers and other resources can be found on the “Links and Resources” page.

Here is a Facebook group that is a great resource for those going through Fluoroquinolone Toxicity – https://www.facebook.com/groups/floxies/

Featured post – I’m floxed. Now what?

The Fluoroquinolone Toxicity Solution Ebook has helped many Floxies to recover, including DanielCindy and Ruth.  As a bonus, you will also receive The Floxie Food Guide – a book of diet guidelines to help you through fluoroquinolone toxicity:

flu tox get help you need banner click lisa

 

 

 

16,677 thoughts on “Floxie Hope

  1. Alex September 25, 2017 at 1:41 pm Reply

    Thanks, the pain is light but i guess I should wait before training again?

  2. Jamie September 27, 2017 at 5:21 pm Reply

    I’ve not been able to find any reference to being someone taking this medication for an extended amount of time due to dr incompetence. This is what has happened to my 80 hr old dad. Symptoms are severe all of a sudden. Help with direction please

    • L September 27, 2017 at 5:37 pm Reply

      There is so much information on this site. You need to scroll back through and read posts. Unfortunately the amount given really has no consistency. Some are able to tolerate large amounts and for others it is just one pill. The results are varying degrees of the same. I would find a new integrative doctor asap and /or a naturopath. He needs to be taking up to 600-800 mg of magnesium early on. Avoid citrate because of diaahrea. Make sure he is give NO steroids or NSAIDS. He needs to take good quality probiotics, multi-strained and with billions of units. Most regular MDs are CLUELESS and they will blame side effects on disease, age and anything OTHER than these toxins. If you post the general area where you live, perhaps someone on this site can offer a referral to whom to see.

    • L September 27, 2017 at 5:38 pm Reply

      and btw…what was he given it for? They are contraindicated for anyone over 65—there is a black box warning. I would also find a lawyer and go after the doctor and the pharmacy. This will NEVER end until they are hurt where it counts.

      • Jamie September 28, 2017 at 8:05 am Reply

        Thank you so much. We are close to Tulsa ok.
        We were just informed of this 4 days ago and needed to know where to start.

        • Jamie September 28, 2017 at 8:05 am

          He was given it for possible UTIs

        • L September 28, 2017 at 10:24 am

          OK, this makes me so angry. Last July the FDA came out with (another) warning that these drugs should NOT be used for simple infections, including urinary tract infections. These are used for things like anthrax. This is a lazy doctor using a machine gun to kill an ant. I strongly encourage you to contact an attorney. Both the doctor and perhaps the pharmacy (if your state has a duty to warn statute) have been negligent. Please be aware of a statute of limitations, beyond which date you lose the ability to file suit (I believe in your state it is two years from the date of incident.) I also suggest you find a new integrative or functional doctor or naturopath.

  3. Jamie September 28, 2017 at 8:58 am Reply

    Wanted to check the boxes below to be emailed

    • Jamie September 28, 2017 at 4:29 pm Reply

      Thank you for your input and encouragement. His PCP has actually agreed that this is what has happened to daddy and has referred him to a neurologist. Is this at all the direction to take. I understand the issue of negligence but right now my main concern is what can make him well. I’m monitoring all drs visits and if at anytime I hear one word that it might not be the cipro I will immediately change our direction. I am also continuing to research the issue. We’re doing everything to help him improve. I also have made sure that all of us including daddy and his PCP are on the same page. Thank you again and I welcome all your input. Bless you

      • L September 28, 2017 at 5:09 pm Reply

        Well, sadly, most neurologists, like most allopathic doctors can be totally clueless when it comes to flq toxicity. (I was thrown under the bus by a dozen doctors, and hands down the WORST, least informed was the neurologist.) That is not to say you won’t get a good one, but I am just saying the odds are slim. I am guessing he/she will want to do some testing, and I am also guessing the tests will come back negative. A doctor who was himself floxed explained that the reason so many tests come back negative is that the damage is functional and not structural. When you go, I would go armed with a couple letters written by doctors FOR doctors so they at least have a base from where they are working from. You can find them here, and I would print out the one from drs todd plumb and Miriam de jonge. https://floxiehope.com/tag/dear-doctor-letter/

        I don’t recall if I mentioned this or not but there is a book called “How We Can Halt the Cipro and Levaquin Catastrophe: The Worst Medication Disaster in U.S. History” by Dr Jay Cohen. It is available online and will give a lot of good information, along with suggestions for things that he thought (he died sadly) might help.

        You can also find the FDA’s fluoroquinolone associated disability information online. It explains how this stuff damages multiple body systems all at once.

  4. Dan October 2, 2017 at 3:20 am Reply

    Hi again everyone!
    Thank You L, Nicole, Jane!
    I did the stool analis and it came ok. no blood or anything else bad.
    But is still loose.
    I am From Moldova. Near Romania.
    As i understand these evil drugs in here are very popular. So baaad.So bad for people and for everybody.
    I am still with my problems.
    Thank you all for your experience share..i thought that these symptoms are from somethong else because as i understood this toxicity mimics a lot of weird and rare diseases.
    I hope i will get better soon and all of you in here!
    We must fight and find solutions.
    Thank you.

    • L October 2, 2017 at 9:08 am Reply

      you will. remember the probiotics and/or fermented foods. These poisons destroy all the good gut bacteria…and you need to them back again.

  5. Andrea October 2, 2017 at 1:14 pm Reply

    From an article I’ve read on this website :

    “NSAIDs – Non-steroidal anti-inflammatory drugs (but not acetyl salicylic acid) in combination of very high doses of quinolones have been shown to provoke convulsions in pre-clinical studies.”

    So, in your experience, is Aspirin safe to take?
    I’m suffering from a noninfectious urethritis, and taking acetaminophen, wich I’ve read here, is safer, would be useless in my case. Any suggestion ?
    Thanks.

  6. L October 2, 2017 at 7:06 pm Reply

    The horrible event in Las Vegas got me thinking about something. I used to donate blood, but I don’t feel right since the Cipro. I don’t know if I am being overly cautious, or prudent. Has this somehow damaged my blood? Any thoughts?

  7. Dan October 3, 2017 at 11:43 pm Reply

    Hello everyone.Regarding L’s post from above.I think did not, the blood is not damaged. the damage it did is allready done, i think the blood worked just like transport but a research should be done
    Today i ve been in the morning at my neorolyst, i saw him quite often post Leflox, i told him i heave pressure in my head, feeling off balance, preasure in jaw and ears, hard to concentrete, bad sleep so hi gave mi Xanax and another type of these anti depresive drug wich there is NO WAY i am going to take after i read all the side effects..he thinks i have mood problems..When i ask him about antibiotic and my feeling he said ther is no way i can feel like this, he said yes it can be a body disbalance in systems but nothing like i experince…any thoughts? As far for me now i have good days and better days but presure is with me all the time. went to gym the other day nothing really happened after. taking probiotics now.i really dont thinck that any suppliments can do much of a thing, i thing our only option is time, even from the stories posetd here..time is the best healing med…too bad

    • Andrea October 4, 2017 at 3:42 am Reply

      Hi Dan,
      In my humble opinion and experience, 95% of doctors, are completely clueless and ignorant about FQ damage. I ignore them. As you can see, most of the times, the only thing they can do, is prescribing even more drugs to you and sometimes even deny the evidence, as it happened to you. Not because they’re bad or corrupt. They’re just ignorant, lazy and so indoctrinated by the pharmaceutical companies. I think you’re doing the right thing, by not willing to take any other drugs, expecially antidepressants !
      One time, I went to see a neurologist and I explained to him I was suffering from being poisoned by a FQ, He already knew what FQ can do, but anyway, “he doubted” that that was the cause of my problems, and he told me I was probably becoming hypochondriac.

      • Cyndi Stephenson October 19, 2017 at 12:07 pm Reply

        Please, everyone…get a Lyme disease test….I was on this site forever trying to help my own husband after taking Cipro and developing horrific peripheral neuropathy….talked to clinics all over the world…guess what…he has very late stage lyme disease and confections in his brain….The cipro awakened the lyme….he only took a five day course…not long enough to even touch the lyme…but enough to cause a herxheimer reaction. The confections are the worst part because they are in the brain.

        • jwinn October 19, 2017 at 2:17 pm

          Cyndi Stephenson, that is exactly what happened to me. I had Rocky Mountain Spotted Fever instead of Lyme. The Cipro compounded the problem. It almost killed me. It has left me with permanent damage to nerves, muscles and joints….and a lot of other unpleasant life-changing problems.

        • L October 19, 2017 at 2:20 pm

          Interestingly when I was getting my IVs, half of my NDs patients were being treated for lyme and many of the treatments were the same as those for FLQ toxicity.

        • jwinn October 19, 2017 at 2:37 pm

          L, that is interesting. I am also glad that someone else, besides myself, has made that connection. Thank you for sharing that information with me. The actor, Chris Kristofferson, was diagnosed with severe stages of Alzheimers and written off to die. He was digressing for 5 years and became totally unresponsive.. A new doctor dug deeper and ran an extensive blood work panel to find that he had Lymes. He was treated aggressively, and is now back in the studio recording music. He has his life back because ONE doctor did not treat him as if was just another NUMBER. Getting tested for Lymes and Spotted Fever may not be the answer, but it certainly cannot hurt. It’s worth having it done, if only to rule it out. I wish just ONE of my doctors had tested me before I had permanent damage. The Cipro just made it worse, and sealed the deal for me.

        • L October 19, 2017 at 3:14 pm

          Actually a friend of mine is a friend of Chris K. (He impersonates him.) That is wonderful to hear. I know I was surprised to hear that he was doing a concert because I had been told how bad off he was. Good news! Thanks for sharing.

    • L October 4, 2017 at 9:06 am Reply

      I think you need to find another doctor. If it is something they have not seen before or it is not within their narrow view of training they automatically say “can’t be that.” I would find an integrative MD or an ND. As for the probiotics, they are good to stay on anyway because gut damage is linked to so many diseases and damaged body systems

      • Cyndi Stephenson October 19, 2017 at 12:09 pm Reply

        Where do you live…I am working with a great integrative Dr. In D.C. if you want his name

  8. Dan October 5, 2017 at 12:29 am Reply

    what about head pressure? feeling off balance and hard to concentrate? i have a feeling like i did not sleep for a whole week..this is how i can describe closly my feeling but way more agravated..pressure in ears, jaws, teeth and head all over? how guys solved these? any ideas what shoul i do?
    Should i go to gym? should i avoid alchool?
    I cant stop working because i have family..
    but i feel like i work at 20 % of my potential…barelly making throgh the day in office..
    please help me..does anybody has any free books to share?
    thank you.
    Regards,
    Dan

    • Andrea October 6, 2017 at 3:14 am Reply

      Here’s what I did : I completely cleaned up my diet : no sugar, no refined carbs, no prepackaged snacks, no junk food in general. Try to eat as clean as possible. Try to eat REAL food, expecially lots of frutis and veggies, full of antioxidants, try to avoid any meat-chiken etc. that has been raised with the use of antibiotics. This really helped me with my energy issues, that I still have, but not in the degree they used to be. You probably wouldn’t see results immediatly, but it still so good for you. As far as alchool, I don’t know, since I don’t drink at all, but after reading many stories, most floxies seems to do better with little to no alchool. It seems that alchool can trigger the symptoms of FQ, in some people. As far as using supplements, I dont’ know either. I used them at the beginning, but I can’t really tell if they helped me or not. I think you should do some experiments on yourself, and see if they help or not, but try don’t to go crazy with them.
      Anyway, I know it’s hard, but try to stay strong.

  9. Harriet October 5, 2017 at 3:54 pm Reply

    Hi I would try magnesium, calcium and Vitamin D3 for the tendonitis and/or spasms.
    Also vitamin B Co

  10. jat92517 October 6, 2017 at 7:48 am Reply

    I was a floxie for 10 weeks. Then I cleaned 3 grams from my body. I had taken 11 grams and realized it was still in me ADSORBED on the surface of my brain cells. I am a floxie no more but I think it will take another 8 weeks to heal the damage.

    Floxacins chemically bond to your brain and muscle cells and prevent glucose from entering. As glucose is your primary fuel, you get tired and weak.

    To remove this from the cell surface you need a high (maximum your body can stand) concentration of the magnesium ion. Magnesium combines with the floxacin and makes a solid so it is no longer in your blood stream. It leave through the kidneys as a fine white floc.

    To get enough magnesium into your blood you must let it enter through your skin. Soak your feet in water and Epsom Salts that have crystals on the bottom.

    I have been doing this for two weeks. I am still absorbing 250 grams of magnesium daily. That is 250 times what you can get from supplements through your digestive track.

    Put another way it took me 4 days to rid myself of Cipro. Suplliments would have taken 3 years. The excess salt on the bottom of your soak tub is the key.

    Good luck to everyone. You can send questions to through this blog or at jat92517@aol.com.
    I will respond through the blog so everyone can see.

    • Andrea October 6, 2017 at 2:46 pm Reply

      Hi jat92517 and thank you for the info. I’ve got some questions :
      1 You wrote that you need to soak your feet. Wouldn’t be better to soak your entire body?
      2 What do you mean by Epsom Salts that have crystals on the bottom?
      3 When you write that you’re absorbing 250 gr of magnesium daily, do you mean your soaking 250 gr of Epsom Salt in water each time?
      4 What do you mean by “the excess salt on the bottom of your soak tub is the key”?
      Thanks.

    • Debs October 7, 2017 at 1:18 pm Reply

      Personally, I know of no kind of epsom salt myself that heals FQ induced DNA damage / mitochondrial toxicity / dysfunction. it can certainly help us, & it can help with our symptoms yes, some floxies do find it very helpful indeed, however, it is not a magic wand re healing, & it is also VERY important to keep in mind here the fact that not everyone can tolerate magnesium. Even MORE important is to keep in mind at ALL times the following : That when it comes to our particular situation, something that can really help one floxed person, or even many floxed people, this can also cause harm to others, sometimes this can be serious harm .

      Personally, I have only recently ( almost ) returned to my already debilitated baseline after a very bad reaction to an epsom salts bath, which then triggered for me a year long relapse, this seems now to also for some strange reason have triggered further deterioration of my connective tissues.
      Be very careful out there re trying new things, or even things you have used before floxing without any issues at all, as we can potentially react badly to so many things after floxing, I would advise starting any new treatment / protocol slowly, & also at a low dose at first to see how you tolerate it, as in our strange world this situation can be truly a minefield .

      Another thing to note here re magnesium, is that the FQs can do quite a number on the kidneys, affect them negatively in various ways, & If you DO have compromised kidney function resulting from taking that FQ, then adding magnesium into the equation, particularly if this is of the wrong sort, & high dose this can potentially result in further deterioration of their function. ( one reason imo every person who has taken a course of FQs should always have a general test relating to kidney function before supplementing magnesium )
      All floxies should really imo have regular monitoring in this particular area , as CKD ( Chronic kidney disease ) can potentially be one other unfortunate result from the the taking of FQs it seems, at least from my experience, it certainly tends to show up more than coincidence in the groups, & with CKD, this will take quite a while in fact to get to the stage where symptoms become literally noticeable / visible to the person, in fact the symptoms of CKD generally do not become noticeable until around 60% or more of their function has already been lost ) .

      I am very glad indeed that you state here you feel that epsom salts has worked for you, jat92517 I really am, I am always pleased to hear about improvement, however, I would strongly recommend to keep an open mind here, just to avoid being lulled into a false sense of security, as this situation may well not be all that it seems.
      I would at the very least recommend for you to to keep a weather eye out for those delayed symptoms so often linked to floxing , which may or may not pop up to say hi sometime later on, & this can potentially be very much later, many many months down that floxing road .

      Unfortunately, the bottom line here is that nobody gets out of taking a FQ completely unscathed at a cellular level a DNA/mitochondrial level, whether they are noticeably floxed, or not ( yet ) noticeably floxed ) the mechanism of action of the drug sees to that. the FQs effect on the mitochondrial DNA results in a ‘ no gas in the tank ‘ situation which shows as intolerance to exertion, weakness / debilitation/ fatigue etc & more .
      If it WERE that simple, & good old epsom salts was the only magic wand we need to wave here, right now, we would not have thousands upon thousands of us in our numerous support groups using magnesium of all kinds like it is going out of fashion, often at high dose, using it day after day, week after week month after month, year after year .. ongoing , instead we would all be healed, & we would be moving on with our lives .

      There is unfortunately NO magic pill , NO iv, NO supplement, NO ( insert anything else you like here ) NO known single or otherwise cure right now available for fluoroquinolone toxicity / FQAD ( fluoroquinolone associated disability.)

      I have personally found that the the passing of time, & following an organic as possible diet, basically avoiding as many of those toxins in our poor poisoned world as humanely possible from ALL sources, whether these be ingested, applied, or environmentally acquired, these measures are very important, & In fact these measures pop up time & time again in the support groups as the most useful things we can do, with the passing of time being the biggest factor in noticing a difference in symptoms, in relation to us heading in the right direction, & this is a timeline which is unique to the person, it varies for everyone.

      Personally, jat92517, speaking here as a long term floxie who is unfortunately ‘part of the furniture’ so to speak, having myself been around more than a little while, I would highly recommend to do just a little more research into this subject in depth .

      A good place to start is here, & also click on ‘ links & resources’ above .

      http://www.myquinstory.info/fq-faq/

  11. jat92517 October 8, 2017 at 5:35 am Reply

    Thanks Deb for your comments. Our bodies are indeed complex.

    There are many details your comments call forth. Sticking to the most important ones first. I’ll start to respond.

    My introduction on how the body functions chemically is based on my recovery from food intolerances that ruined my intetestines to the point when I was severely deficient in the micronutrients. My intentional capacity was about 20% of the normal surface area plus it would not pass the larger molecules like vitamins. This reverses slowly when you avoid these foods. It takes about two years to fully reverse but improvements are felt in a weeks,or two. The reversal process in not smooth as correcting one deficiency creates another. So I learned what a number of decificncies felt like.

    My introduction was further expanded when this process pushed my into being a treatable diabetic. The drug treatments for diabetes only made me sleepy and try as I would to use them, I could not. Even spending full time at this and not able to work for three months would not lower my blood glucose level.

    As a Chemical Engineer I started using process control tools to examine the glucose process in our bodies. The main tool is a control chart. You plot the resting glucose levels over time. Metformin, the most widely prescribed, makes your glucose levels highly variable. Random numbers in my case from 150 to 200. Stop taking Metformin and the level stabilized at 145 to150. All the chemistry that lowered the REsting Glucose Level were glucose transports specific to brain cells.

    Control charts are not used by medical research rather they rely one-thing-at-a-time scientific experiments. Control charts force one to deal with variation and compare effect to each other and this variation. That is very important.

    Ok, with that as introduction here is what I have learned.
    1- Our general health depends on two pillars. Getting glucose (our main fuel) into our cells so they can function well and repair themselves is one. The other is having enough of the repair chemistry available…so cells can fix themselves. If you don’t do these two everything else has a small effect.
    2- Vitamin D is the most important repair chemical. If you levels are below 30, everything else in compromised. To raise your Vitamin D level you need Vitamin K2. K2 is available from pork fat. Vitamin D is a precursor to thousands of the repair chemicals. Below 30 and our bones take all of it. Other repairs? Go fish.
    3- The stored glucose inside your brain cells (this is unknown to the medical community and therefor controversial) controls your blood glucose level. 100 is the goal. Bertween 100 and 150 there is a direct agreement between stored brain glucose and blood glocuse levels. Your brain can store 4 days. If you stop glucose from entering your brain, you die in four days. Cipro got me down to 1/2 a day before I started recovering. When you have three days you will be awake and alert from 6AM until Midnight without caffeine. You can store 10% of your body mass as glucose in your muscles. When you do your are noctiably stronger, and reverse ED and incotenance.
    6- I know of 6 brain glucose transmitters plus the mitochondria. GLut1, the most powerful, is dissolved by caffeine and the floxacins. The floxacins also disrupt the circadian rhythm by blocking the sites in the brain cells that allow the sleep chemistry to work.
    7- Glut1 is made by our livers.
    8- The liver’s capacity to make repair chemistry including Glut1 is imparted by alcohol, converting fructose to glucose, fat digestion, and have more than 5 pounds of visceral fat. When you go below five pounds of visceral fat, the liver production increases dramatically and make all the undiscovered chemicals to reverse diabetes, heart disease etc. and I would guess finally reverse the toxic effects of the floxacins.

    9- Specifically is your case are bodies are composed of the following chemicals – highest percentage first.
    – water
    – carbon
    – oxygen
    – hydrogen ? Because it is so light
    – Calcium
    – phosphate
    – Sulphate
    – MAGNESIUM

    Most of us are deficient I’m sulphate and Magnesium,- modern food supply.
    Since you are intolerant of magnesium, that in itself is a big deal. you need Magnesium to build bones, avoid muscle cramps and Vitamin D available for making repairs. I suspect without Magnesium, you body will not be able to,get unfloxed. I don’t know about this subject but if I needed to work on it, I would consider a toxicologist. I really can’t help you here. All of the other above, I can help.

    I absolutely agree overcoming the effects of being floxed is not one thing. There will not be a simple treatment – go to a doctor and take this. It is going to be a multi-step process. unfortunately unless a doctor specializes in this and has multiple diagnostic tools we are left to suffer and do what we can figure it out on our own. Thank you Bayer for being such a fine corporate citizen and offer so much support. My kidney Doctor could care less. NO help. NO direction. He knows as much about this as he knows how it feels to be poor.

    Knowing how important brain glucose levels is to losing weight and not being tired, I have helped 19 for19 people. Losing the first of 50 pounds is easy, many things will help. Losing the first of 6 pounds is not easy and requires many things.

    In the next two weeks, my control chart should tell me if I am getting past the Cipro effect on brain glucose. If so it will take at least two months to get where I need to be.

    Your comments on the mitocondria are helpful. Thank you.

    • Andrea October 8, 2017 at 3:19 pm Reply

      Hi, could you be a little more specific about your Epsom Salt baths, how long do you soak your feet, how much do you use, the water/salts ratio. Thanks

    • Theresa Warren October 9, 2017 at 9:09 am Reply

      Regarding your thoughts on glucose and the brain, how do ketogenic diets allow one to greatly reduce glucose levels and burn ketones for fuel? People say their thinking is sharper and energy is better on a ketogenic diet; after the body stores of glucose are burned up. Seems like they should be dead in 4 days, but ketogenic diets were originally used to treat seizures and epilepsy (brain disorders).

      • jat92517 October 10, 2017 at 9:06 pm Reply

        Theresa,

        Excellent question. Shows you are a thinker and know something about this subject.

        The answer is complex. It is all about what your liver is doing for you and how you fuel your brain cells. It also about burning or storing fat…and if you have more than 5 pounds of visceral fat. With lots more details to follow.

        So we’ll start with someone who has more than 5 pounds of visceral fat. Cipro forced me to gain 20 pounds just so I could function in the first month. My brain’s stored glucose was so low that my blood glucose level needed to be above 180 just to stay alive. Your brain will make you eat until it gets some minimal level of glucose no matter how you try to diet. It will drive your blood sugar to 300 if it must. So it is safe bet most floxies have more than these 5 pounds and the liver’s capacity is tied up due to too much visceral fat and processing too much carbs – read that fructose into glucose. In this condition the excess non-glucose carbs are stored as fat.

        The floxacins dissolve the Glut1 protein that is the main glucose transporter to get glucose inside the brain cells. with less glucose you feel sleepy (tired can be different where you muscles want to replace the glucose from exercise.) Sleepy can be you cannot stay awake – time to shut down and let the glucose catch-up.

        While the floxacin dissolve the Glut1 protein, there are other chemicals that help glucose enter brain cells – Omega3 fish oil (the floxacins don’t effect this), Vitamin B12, and the Vitamin D-MSM complex. We also have the brain’s backup fuel OIL. If this were not the case I suspect there would be no floxies alive.

        Many authors confuse oil, fat, and fatty acids. They are three different chemical classes and do different things. Fatty acids were named that by the old German chemists because they feel greasy due to their long carbon chains. short chain organic acids do not feel greasy like vinegar. Fat is made by animals and contains oil, non-glucose carbs, and protein. Oils come from plants – coconut oil, olive oil, etc. Different parts of the body prefer differ fuels. Brain and nerve cells run on oil and glucose. The heart runs on fatty acids. Muscles can burn protein, glucose or oil. And our bodies have a way to ration who gets what when things are in short supply.

        The floxacins also remove Magnesium and Calcium. How they do so in the quantities they do, I can’t tell you yet. So now you have sore achy muscles (low,calcium) and stiff crampy muscles (low Magnesium), feel,sleepy and tired…and just to wack you again, the floxacin reduce the glucose going into your muscles (weak, etc).Sounds like the Floxie experience to me – just lousy.

        So the Ketogenic diet is one path out of this wrecked body you are now living in.

        Finally I get to the question of how does the Ketogenic diet help.

        Well, to go ketogenic you go low carbs. Now the liver isn’t working on converting fructose, dextrose, maltose, all the starches etc into glucose…so it can make what the body needs most now — Glut1 protein. With a high level,of protein available the reaction is further pushed to make the Glut1.

        When you go low carb and your blood glucose level drops, if your liver has capacity, your liver starts burning fat. This releases oil, more protein, AND now the liver will turn stored carbs into glucose. While you are not eating carbs. You are getting glucose from your stored fat. Loosing two pounds of fat a week gives 8000 calories or enough carbs for 4 days of eating. So,your brain is getting its glucose anyway. Well I should say the glucose is available in the blood. If you brain/blood barrier is porous enough your brain gets its glucose.

        We have all heard that you can’t stay on a Ketogenic diet for a long time…for two reasons. Ketones are toxic. You eventually run out of carbs from fat.

        However you modify the Ketogenic diet with high glucose carbs, still lose fat, and avoid making ketones. HIgh glucose carbs that contain minerals, antioxidants, and vitamins would be best — dark berries. A bowl,or two a day is all the carbs you need.

        Now I want to add some comments on the Mitochondria as another blogger asked me include this subject. The floxacins damage the mitochondria. As the mitochondria contain a lot of our magnesium, it is good guess this is where the huge amounts of magnesium is being depleted.

        The mitochondria are on the surface of our cells and they convert the stored glucose inside the cell into energy. So you lack of energy to do things can be from a restriction anywhere in the process of getting food in to your stomach to the mitrchondria actually using the fuel to,make the cells function and releasing CO2 and water. Checking your fasting glucose level is good way to check if you have problems getting glucose into your cells. Here is a scale of the glucose penetration function.
        100 optimal health
        125 have energy all day 6AM to midnight without caffeine.
        145 need caffeine or a nap in the afternoon. This is also the point where diabetes is treated with western medicine.
        180 and higher – constantly sleepy, lethargic

        If you have better numbers than you feel, the mitochondria are suspect.

        I need to vet the various suggestions on how two improve mitochondria function. I look,forward to,advice on this blog concerning effective changes.

        Hope this helps.
        John Taylor

        • L October 10, 2017 at 9:43 pm

          Weight wise the opposite happened with me, and I was severely floxed. I lost around 1/4 of my body weight and struggled for a year to gain it back (a problem I never had before.)

  12. jat92517 October 8, 2017 at 8:43 pm Reply

    Andrea,

    I put 3 inches of water in a 5 gallon pail. I pour in the salt and swish it around with my foot. I start with about two pounds. If all the salt dissolves, I add more. You want solid salt left so the salt solution is at its maximum concentration. I leave my foot in this bucket for about 10 minutes. I dry my foot with a towel and then wash off any dry salt.

    The salt absorbs through your skin and brings your blood up to a maximum concentration.

    I don’t use a bath because it takes much more water and salt. It is wasteful.

    I save the solution and use it again. You will notice the solid salt disappear with time. Add more salt.

    I used to cut back on this soak when the Charlie horses stopped. Now I am waiting for my muscles to loosen up and I can get out of a chair quickly, Stand straight, And walk without waiting for my muscles to ‘warm up.”

    I have been doing this for 14 days. Now I am noticing my dreams are no longer weird and intense. Cipro gave me a clostrophobic like feeling that I couldn’t stand. That is going away too.

    Good luck and let us know how you do.

  13. jat92517 October 8, 2017 at 8:58 pm Reply

    Andrea,

    yes the salt is disappearing at a rate of about 250 grams a day. That is way more the amount it takes to remove the Cipro from solution. That amount is a gram or less a day. So this Magnesium is going into my bones and muscles.

    • Andrea October 14, 2017 at 11:59 am Reply

      Thanks jat92517,
      I will try your suggestion, and see if it works. Even if, to me, magnesium has always been very disappointing, to say the least. I mostly had magnesium supplements, which turned out to be useless, and when I’ve tried mag. bath or spray, it almost seemed to made my symptoms worse…anyway thank you for the info…

  14. A.Coleman October 11, 2017 at 7:58 am Reply

    Hello Fellow Floxies,

    I haven’t posted in a while, but am posting to seek some reassurance/guidance. I am just past my two year floxing anniversary (yea – not). In the past 9 months I had been mostly healed except from digestive issues centered around excessive belching that was producing acid reflux and GERD. I had a little peripheral neuropathy left on some days, but it was less than once a week.

    I fought the western medicine approach to treating the heartburn for over 6 months instead trying to supplement with HCL and eating no gluten and little sugar. It didn’t work and I kept feeling worse and worse. Finally, I gave in and took an H2 inhibitor. I took the lowest dose, once a day. Did that for 1 month then cut that pill in half for another 2 weeks then stopped. My heartburn was far better, but I wasn’t well and still burped a ton.

    My gastroenterologist, who does believe I was floxed btw, suggested a single 500 mg antacid tablet at bed time. I have been doing that just over a month and am nearly well. No more issues with reflux and burping is nearly normal, and I have even started weaning off that bed time dose, by cutting it in half.

    One odd note, Magnesium has never had any clear positive impact on my health though I had been taking 200-400 mg daily. I stopped this about 2 months ago and it seemed to help my heartburn.

    My issue is that in the last week two of my old floxie symptoms returned with some force. I started getting tendon pain in my left leg behind my knee and thigh, which is the location where I suffered the most previously. My neuropathy also started getting worse, not a lot worse but it is now noticeable most of the day. It’s been about a week now with these old symptoms affecting me.

    My question for the peanut gallery? Am I just cycling? Have I now reduced my stomach acid too much and need to start supplementing with HCL again during the day even while taking a very low dose of Calcium carbonate at bedtime?? I am leaning toward this approach. I see my gastro in two weeks BTW.

    On a side note, as I started feeling better I tried adding back in the Magnesium about the same time the symptoms returned. I stopped Mg and the tendon pain went away. I took an epsom salt bath last night (bad back unrelated to floxing) and noticed the tendon pain again today. Weired!

    Thoughts from everyone would be appreciated as I struggle through the wonderful world of a floxie. Regardless I am now back to 95% or so of my old self – part of what makes this hard as I see light from the end of the tunnel.

    • Nicole Reedy October 11, 2017 at 9:44 am Reply

      I also have had a bad relapse starting 4 months ago at a 18 months when the tendon pain and neuropathy pain was about the same as yours. I have had pain worse than the beginning with this relapse which I blamed it on a Alcaine eye drop.
      I noticed someone posted a few posts back about a epsom bath caused her a bad relapse.
      Like you I had pretty much stopped my Mag. but started getting leg spasms and back pain so at the same time I had the eye drops I started the epsom baths and started taking my mag. again so I have now wondered if that started my relapse and not the eye drops.
      The thing is we really don’t have any answers to why or what makes us react.
      If it is the mag. I don’t thing it is because it is bad for us but because maybe we do need it and the damage that circles in us just releases with any kind of detox and we end up suffering for a while again.
      Hopefully a day comes that is heals enough that we can live with it.
      I so understand the intestinal issues and gerd from this!!!!
      Would like to hear more thoughts from our peeps?!

      • A.Coleman October 11, 2017 at 2:38 pm Reply

        Nicole, thanks for your thoughts.

        I agree that the Mg may have just triggered detox that is something to be determined with time. Are the Alcaine drops in any way steroid containing?

        Would appreciate hearing more about the digestive issues you experienced with floxing. That was the biggest issue for me overall, though neuropathy would be a close second (it was far worse during its major impacts, but it mitigated faster than digestive issues). For me stomach issues are what I experienced not intestinal.

  15. Michael Teeter October 16, 2017 at 1:24 pm Reply

    Hello again everyone,
    I just wanted to give an update. It is almost 6 years now since I was Floxed. I would like to some day share my recovery story but since I don’t consider myself recovered I do not want to depress anyone.
    My family and I just got back from North Carolina and it was great. Before I left My GI specialist stepped me of of Prednisone and I am so happy to be off of that stuff. After my floxing I was put in a wheel chair for almost a year and then it attacked my intestines causing me to develope Adult Autoimmune Enteropathy so they put me on Prednisone to prevent my gut perforations.
    Now that I am off of Prednisone my eyes and skin issues started, Good news though I am up to 174 lbs!
    I wish everyone the best.

    Catch you later.
    Mike out

    • L October 16, 2017 at 1:33 pm Reply

      Mike I am SO glad you are off the prednisone. I am convinced the reason I was so devastated by the Cipro is that I was given prednisone at the same time. (There is a reason for a black box warning between the two!) I will NEVER take prednisone or any steroids ever again. Interestingly, in spite of the breathing/vision/olfactory nerve dame/ peripheral neuropathy and all the other myriad damage I had, there was ONE good thing to come out of all this. Since steroids are so bad for us floxies, I was in a very difficult situation. On the one hand, I was having horrific, constant, gasping for every breath issues. It was beyond terrifying and it was constant. I don’t know how I made it through 10 minutes let alone several months. (It was either autonomic nervous system damage or mitochondrial damage to the heart muscle.) BUT I was on daily inhaled steroids for my asthma. I was so torn. I knew I couldn’t get better staying on the inhalers (which also have fluoride!) yet I kept thinking “what if I get an asthma attack on top of this other breathing issue?” IT was just inconceivable. Well, the naturopath, who I credit with saving my life, suggested hydrogen peroxide IVs. OF course a doctor I mentioned this too said “oh, that’s dangerous.” well, at that point I really didn’t care if I lived or died—so it was a win/win! I took his advise, and after a half dozen IvS I started to wean off my inhalers. I ended up getting another 1/2 dozen H2O2 IVs. Well, that was almost two years ago. No asthma and no inhalers! So, there are alternatives out there!

      • Michael Teeter October 17, 2017 at 9:43 am Reply

        Thanks L,
        I am glad for you and wish you good health. I was on Prednsione ever since I had my intestinal issues about 4 or 5 years ago. My natural Path has helped me so much but when the stuff moved to my guts and my perforation happened. Medical professionals just didn’t know how to keep the inflammation down via vi steroids.
        I am on Entocort still and Tacrolimus now. I do have some of my health back.
        Just not like it used to be.

        • L October 17, 2017 at 10:25 am

          Are you on massive amounts of probiotics?

        • Michael Teeter October 19, 2017 at 10:17 am

          I am a few different kinds besides doing the whole gut diet thing. I was on a bunch more before.

  16. D Snyder October 16, 2017 at 2:06 pm Reply

    Was just wondering how many of your got plantar fasciitis from a fluoroquinolone? I still have it at a little over a year and a half. It has improved a little but is still very uncomfortable. If you’ve had it and it has resolved, how long did it take?

    • L October 16, 2017 at 2:25 pm Reply

      Didn’t get that but got either Metatarsalgia or mortons neuroma or something else where it feels like I am walking on pebbles (under the ball of my foot.) It comes and goes. Just when I think it’s gone—boom—it’s back again. Actually one of the lesser of my issues but annoying nonetheless.

      you might want to visit a sports medicine doctor and see what they suggest. (Hopefully it won’t be steroids.)

    • Madge hirsch October 17, 2017 at 3:25 am Reply

      I have this in my right foot. I am on my second bout since last being floxed (27months out) but I also had it after a previous floxing years ago.

  17. Andrea October 16, 2017 at 3:41 pm Reply

    Hi everyone. I’ve got a question, but first let me explain my issue. When I’ve got floxed, about10 months ago, it was because I’ve had/still have some problems with my urinary tract/prostate. The funny thing is, the symptoms for what the FQ was prescribed to me, just got worse after I took it. Now, another doctor prescribed me an alpha blocker, for my urianry retention, and he also prescribed me an anticholinergic drug, for my overactive bladder symptoms. What should I do? Do you think these kind of drugs would mess me up even worse? Any suggestion would be appreciated Thanks.

    • L October 16, 2017 at 6:06 pm Reply

      Unfortunately both men and women end up with urinary / pelvic area problems, like interstitial cysistis. I kept thinking I MUST have another UTI because I had constant pressure and felt like I “had to go” twenty-thirty times a day. What finally helped me was acupuncture, Chinese herbal medicine and time. (It still ocassionally comes back.) I am very anti-pharmaceutical at this point, unless it is truly the only alternative. Too many side effects. If were you I would find an integrative doctor or naturopath.

      • Andrea October 17, 2017 at 3:11 pm Reply

        Thank L. I will listen to your suggestion, and find a good acupuncturist, unfortunately, where I live, it’s not an easy task 🙂

      • Andrea October 17, 2017 at 3:35 pm Reply

        Just another thing, could you please tell me how much acupuncture really helped you? Like, from 1 to 10, what whould be your rate? Sorry if I’m bothering you, but I’m really interested in triyng acupuncture.

      • dezorz October 19, 2017 at 3:36 am Reply

        do you remember the herbs you took for OAB? (do you think it accupunture and herbs really helped ot it was just time? )

        • Pam November 5, 2017 at 10:24 pm

          I found information about using probiotics to prevent bladder infections (both enteric-coated for swallowing, and non-coated for inserting…if you’re a woman.) I’ve also been taking a lot of Vit. C, and my OAB is resolving itself!!! A third thing I’ve done to try to prevent another bladder infection is use Vit E to thicken the tissues. So far, so good! I never want to have to take antibiotics again, or risk the UTI going to my kidneys again. I hope this can help someone else, too! Best wishes!

    • Lisa October 16, 2017 at 7:38 pm Reply

      Hi Andrea,

      I am working with an acupuncturist/Chinese medicine doctor to help with my interstitial cystitis and pelvic floor issues. I’m hopeful that he will be able to assist. My issues aren’t too bad right now, but I wanted to get help before they got worse. Obviously, I think that acupuncture and Chinese medicine are the way to approach these issues – or, at least that they should be tried first.

      Anti-cholinergic drugs have been linked to Alzheimers and dementia. I would avoid them for those reasons alone – regardless of the flox interactions.

      When I was having some acute pelvic pain a few years ago both kava and kratom helped. Dramatic stress reduction – from going on a vacation – also helped.

      Both interstitial cystitis and pelvic floor issues can be miserable. I understand your pain. Trying alternative health methods first is certainly how I would approach it.

      Regards,
      Lisa

      • Andrea October 17, 2017 at 3:14 pm Reply

        Thanks a lot, Lisa.

      • Andrea October 17, 2017 at 3:29 pm Reply

        Unfortunately, yesterday I was so frustrated and tired of my OAB symptoms, that I took the drugs the doctor prescribed me, and while my symptoms are already getting a little better (I felt a relief in the urgency just in a few hours) I’m also experiencing some of the most common side effects these drugs can give : dizziness,low blood pressure, fatigue. I’ll check acupuncture, also because I’ve just read some promising studies about it. Thanks again.

    • Michael Teeter October 17, 2017 at 9:46 am Reply

      It is funny you mention that. I have not had any of those problems. I did contend with Kindney stones. But my acupuncturist and my Natural Doctor both started treating me ahead of time for those issues you have mentioned. Chinese herds and supplements

    • dezorz October 19, 2017 at 3:31 am Reply

      well, similar problem here. i am 3 years after having been floxed, 1,5 years relatively sympthom free. just OAB got stronger. i got alpha blockers, started to use them 2 months ago and now i am in the middle of my relapse. it would be easy to blame it on alpha blocker, it seems floxies do not have problem with it. probably it is a relepase on its own. i stopped using alôpha blocker now, just in case. OAB is worse, but since FQ toxicity is playing on my nerves as if it was a piano, cannot not be sure it OAB getting worse is not just another symptomps of the relapse regardles of using or not using the alpha blocker. i too should take anticholinergic drug now with combination of alpha blocker but i am waiting until the relapse past.

    • lymedefeaterpassionate October 22, 2017 at 8:41 am Reply

      Please get a reliable lyme test….we found , in hindsight that CIPRO AWAKENED a late stage Lyme disease and the associated confections in my husband.

      • Debs October 22, 2017 at 3:32 pm Reply

        The Lymeflox waters are actually very muddy indeed. We have a specific FB group for those who are floxed who also have lyme disease if you are not aware .. Unfortunately for us, way too many lyme literate Drs are sadly floxing illiterate.

        https://www.facebook.com/groups/260014967510484/

        • Virginia October 23, 2017 at 12:47 pm

          Yes, listen to everyone above who says to test for Lyme. dezorz, you can test for Lyme using the IGeneX lab. Call or email them and they’ll give you all the details. You can also read about Lyme on lymedisease.org and ilads.org. Regular tests miss half the cases. Lyme and FQ symptoms can look exactly alike. Debs is right that many Lyme literate drs. are terribly ignorant about FQs. I got floxed due to a stupid LLMD who gave it to me for moderate Lyme. There were alternatives, but he gave me Cipro first: criminal. Later, he denied that Cipro had torn 2 of my tendons, though there was no other possible cause. The Cipro ended up causing me as much or more bad health than the original Lyme.

        • L October 23, 2017 at 12:49 pm

          There are also some physicians now who have become “lyme specialists” (esp integrative ones) and the IVs they used to treat both have much overlap

  18. Salim October 17, 2017 at 7:09 am Reply

    Hello,

    First of all, I apologize for my bad english, I’m French and english is not my native language.

    My story is very similar to what I’ve read here.
    I have been prescripted 2 antibiotics for a 10 days course (ofloxacine 200mg twice a day and flagyl) after a gallblader infection.

    After the second pill of ofloxacine (ie day 2) I started having medium pain in my left knee.
    I called my doctor who told me to immediatly stop ofloxacine.
    I’m really thankful to this doctor, I don’t know what would have happened if he told me to continue..

    Then my nightmare started.
    Within 2 days I got a lot of symptoms which include:
    – Severe pain in both my Achilles’ tendons
    – Pain in my joints
    – Weird feelings on my skin
    – Severe panic attacks

    Within 2 days I became crippled (unable to move) and panicked as I have never been.

    I had the feeling I will die in the next 10 minutes and after a week of this symptoms without any improvements I started thinking commiting suicide.
    I learnt later this was also a symptom of ofloxcacine poisoning.

    My doctor told me that this was indeed a fluoroquinolone side effect and reported my case to the pharmacology state agency but unfortunatly he has no cure for me, just time….

    I thus decided between 2 panic attacks to search for help on Internet as doctors were helpless.

    Thanks God, I found your site, I read allmost all recovery stories and it gave me hope.
    This was the only hope I found and I think that without it, I may not be here today.
    I also read the very sad stories and this increased my panic attacks, I thus stopped reading them and focused and recovery stories.

    I decided to try to heal by myself and I did the following after reading all your stories.

    – Stop eating any kind of meat
    – Eat only organic vegetables,fruits and cereals.
    – Take chelated magnesium 600mg/day
    – Take vitamins complements (B,E)
    – Take a lot of C vitamin
    – Take MitoQ supplement
    – Take harpagophytum plant (good for joins and tendons)

    Within 10 days I started to feel better:
    – my panic attacks switched to anxiety
    – my weird skin feelings stopped
    – my tendons and joins pain lowered enough to be bearable and I could start to walk slowly

    Within 20 days:
    – Anxiety disapeared
    – my tendons and joins pain are still here but at 50% of what they were at the beginning.

    Within 20 days:
    – my tendons and joins pain are still here but at 25% of what they were at the beginning.
    – I could walk (max 15 mins), drive and go to work.

    I’m now at 40 days post poisoning:
    – I still have joins and tendons pain but I can walk 30 mins (not too fast), work,drive
    – No more anxiety nor panic attacks
    – I lost 20lbs of weight (mainly I guess due to my diet)

    I won’t say I’m healed and I know symptoms can come back.
    But I can live almost like everybody (don’t ask me to run or stand for a hour).
    I feel lucky as my symptoms seems light compared to some stories I’ve read.

    I wanted to share this with you, to let you know there is hope.
    Even if you think that this is hopeless, keep in mind this is a symptom not a fact.
    Nothing is permanent in life, keep hope (I know how this is difficult), heal yourself with what works for you and give it time.
    There is hope, you’ll heal at your speed but you’ll recover.

    Salim

    • L October 19, 2017 at 9:33 am Reply

      Votre Englais est tres tres bon!

      You were very lucky to have a doctor that understood. I went to a dozen who did not. When I told the one who prescribed it to me that I wanted to switch, he kept insisting I stay on it and finally gave me another one when I refused.

      You are one of the luckier ones to have turned around so quickly. Not sure if you have it where you live, but if you should end up having issues like tears with the joints, you might want to look into prolozone injections—they help the body repair itself naturally.

      • L October 19, 2017 at 9:34 am Reply

        I meant tendons (or any connective tissue) not joints

        • Salim October 19, 2017 at 9:46 am

          Thanks L for the advice, I will look in prolozone is available in my area.
          Right now I don’t think I need it as my pain is low, but it’s always good to know this if symptoms increase as I’ve read this is sometime the case.

          I have been indeed very lucky with my fast recovery and my doctor understanding the problem.

          Regards,

          Salim

    • Madge hirsch October 20, 2017 at 12:40 pm Reply

      Bonsoir Salim- there is a forum here in France for floxies at atoute.org. I post there as l’anglaise. I am sure your story would give hope to your compatriots there who don’t read English or visit Floxiehope. Good to see such a quick recovery but you should still keep an eye out for delayed tendon issues. Perhaps with only taking 2 pills you will have escaped relatively unscathed. Your English is excellent. My médecin traitant understands that I have been floxed and I think has opened his mind to FQ damage after reading some of the scientific studies in English that I have taken for him. The ANSM is very slowly waking up to the problem but I fear it is too corrupted by the labos to do much. Best wishes and may your recovery continue.

  19. Dan October 18, 2017 at 11:57 pm Reply

    PLease guys did somenbody of you experienced:
    Loss of balance constant?..like slightly drunk..
    loss of balance if turning the head fast in another direction?
    Ears problems..like you hear bad like fullnes the you hear everything to loua and it disturbing..low base sond very disturbing?
    Prsure in head, in sides near ears and in jaws..?
    Fear?
    Numbness in head?
    Is there a way to get my good balance and hearing back..?
    in the night i hear a high tone whistle..but not all the time..insomnia is better noe..just 2-3 wake ups in the night and then abrupt wake up at 6.
    I fell i runined my life with this medicine..

    • L October 19, 2017 at 9:27 am Reply

      So sorry Dan. Yes I experienced most of that. The sounds you are hearing are tinnitus. Sadly, there is no treatment for that. I have tried a number of different things, including a very expensive IV protocol—that did not work. I hear what is like a buzz/ hum/ static sound. Sometimes it is high pitched, sometimes low. I always that tinnitus was just a ringing sound and that particular sound does come and go for me. But the other hummng/buzzing sound is constant. Sometimes it is loud and other times it is very light. I recall over a year ago reading someone’s post where they said they could hear the electricity in the walls. At the time I didn’t think that was strange, because I had horrific olfactory nerve damage and I could smell things that no one else smelled. It was truly nightmarish. Even something like a baked potato was painful for me to smell because it was so strong. Looking back now, however, I think what the person was really experiencing was tinnitus. I suspect, at least for me, that it is nerve damage, since I had SO much nerve damage body-wide.

      As for the loss of balance, I had that as well, but that corrected as I got better, and it is one of the side effects that never came back.

      I also had a very hard time with loud noises. While my regular hearing has gotten worse, loud noises are amplified. I remember sitting in a hospital waiting room and a large metal door slammed shut. It was so loud and jarring to me I thought I would jump out of my skin. While I still have a bit of that (I notice if I am in a store and a baby starts crying or a child screams it is much more heightened than it used to be) that too has improved.

      And fear. Yes. Absolutely. Fear, terror, paranoia. You name it, I had it. I was afraid 24/7 and depressed and suicidal. It took a long time…over a year or more, but that is behind me as well for the most part. Anxiety is still higher than pre-Cipro. Hang it there. IT gets better.

    • ursula October 19, 2017 at 9:17 pm Reply

      Dan, I had the balance issues, I still have brain fog but better. The balance problems healed. Took months and months. Remember I could never tolerate supplements post mefloquine. Im not a FQ case, Im the one that took the one anti malarial pill from hell, same poison as Cipro. not even magnesium I could tolorate till this day. Tinitis took me 2.5 years to diminish to 99%. i still have slight pressure in ears/fullness but it doesnt bother. 4 years from my poison, last 2 years were good (exept that im on my way to menupause now and it brought most symptoms back – 6 months now), there are people that get about bedridden just of peri menupause/ menupause, believe it or not, so i believe its that. So , i lived life again, weaker but had my energy back. Then peri started. I hope I will get out the other side after menupause that the hormones will settle down and you get back to pre menu. L can you tell me if it gets better after menup and how long did you take hrt? i dont get the flushes really, maby it will come around 51 or so.

      The load sounds and too much movement took a few months to get better remember i took ativan it helped the first 7 months, it took off the edge, but for months i could not look at the TV. The doom gloom feeling took 2.5 years to get better, but each year it got better.

    • Joanneg October 20, 2017 at 8:48 am Reply

      Hi Dan, I just wanted to tell you that drinking coffee would always make my soupy, dizzy, drunk feeling way worse!

      • L October 20, 2017 at 9:09 am Reply

        That’s weird because coffee always made me even more anxious and stressed out. Had to give it up for over a year. Happy to say I was able to add it back in with no bad effects. In fact, having a cup now! 🙂

  20. ursula October 19, 2017 at 6:19 am Reply

    can someone tell me who went through perimenupause and finally menupause. I was damaged 4 years ago with 1 pill of mefloquine, the sister medication of FQ’s. 3 years to get to 80% recovery, were on ativan and sleeping tab the first 7 months, so the last 2 years were good, life was good again although only till 80% recovered. i was following more or less terry wahls protocol the middle plan for more than a year. then overnight all hell broke loose and back to severe anxiety depression weakness till ive realised it can be peri as i am 49 and periods sometimes further appart (sorry guys for this detail) but maybe someone can tell me it will get better and how many years for this menupause as their support groups has many of these symptoms, so here i am on ativan again!! nothing else works without ativan i loose my mind im so weak and on top nausea. went through all tests all 100%. totally unfunctional without ativan and suicidal. it seems as i already had a weaker nervous system it overwhelms me. sorry grammar. i am trying ozone iv treatment, a little medical cannabis drops but cant tolarate more drops to get a positive effect, they also dont want to give bio identical hormones now as every hormone still test okey, but in peri ive heard you cant see it in the blood maybe later on. it can carry on for years

    • L October 19, 2017 at 9:45 am Reply

      Hi Ursula. I went through menopause BEFORE the Cipro and at the time I did hormone replacement with a natural estriol (the weakest and safest). I had had horrible nightweats, hotflashes all day, brain fog, etc. so it really helped me. Now, post floxing, I am not sure what I would do. I will say though, that years ago a study came out that really put a scare into women about taking estrogen replacement. As it turns out, the study was flawed, since all the women in the study were in their 60s and 70s, had already gone through menopause, and were already at a higher risk for cancer.

      I think the ozone is excellent, and will help you. The atavin I think is a problem though. If you were only taking it on occasion it might not be, but taking it all the time, I believe will not help you recover from the flq toxicity. (The Wahls diet too is very good.)

      I think it would be a good idea to get a LOT of blood tests including things like vitamin D level, DHEA, Cortisol… If you can, I would find a female naturopath or integrative doctor.

  21. John M. October 20, 2017 at 10:12 pm Reply

    Hello, I am new to this issue. In Aug. I was prescribed Cipro 500 every 12 hours for 7 days.For a UTI caused by kidney stones. I went to doctor yesterday for followup and since had another stone and he gave me more Cipro. Luckily a friend told me I shouldn’t take Cipro I should get Bactrim and to read the web about Cipro. I took all 14 pills in August. Should I be doing anything to help myself. Besides throwing out the new script.

    • Barbara Arnold October 20, 2017 at 10:19 pm Reply

      Just dont take it EVER AGAIN John or ANY FLUROQUINOLONE. It can be accumulative, I had had it about 2 or 3 times before the bomb went off for bronchitis. It sounds like you have had a lucky escape.

      • Madge hirsch October 25, 2017 at 3:10 am Reply

        Hi Barbara- I am not too bad. I have had a flare up of my diverticulitis but so far managed to avoid the doctor. Autumn always brings back my asthma with a vengeance as I am allergic to mold spores and the wet summer has made it worse this year.. I am going to ask my GP to change my preventative spray to one without fluorine when I go for my prescription renewal appointment in a months time. I don’t need to use it most of the year . Apart from the usual mild tendon pains and some muscle spasms I seem to be on a plateau. I am having acupuncture every week so hope that will do some good. Glad to hear you are improving. We live in the back of beyond here so I am not at all sure the treatments you describe exist without travelling miles .

        • Barbara Arnold October 25, 2017 at 4:31 am

          Hi again Madge,
          Sorry about your diverticulitis, it’s a bummer. I have managed to wean myself off my inhaler that I had for asthma/bronchitis whatever it is as I don’t really know. I only use it if my breathing starts to get really bad, so far this year I have only used it once, so fingers crossed. I live in the Campo and I went to Alicante, half an hour away for the hyperbaric therapy, it was in a private hospital. They use it for diabetic’s wound healing, so it’s pretty common. It seems to have made a big difference to me, and although I’m not there yet, I feel a few more will improve my situation even more, which I intend to have when I return from vacation. I was getting desperate as the PN pain was really bad, but the HOT alongside the CBD hemp oil took the pain kevel right down to a point that I can hack now. It’s also allowed me to get more sleep, not like I used to (8 hours) now it’s about 5 hours, but I’m grateful for that. I got the CBD oil and tincture from Sacredkana in the UK, they deliver worldwide and have a website.
          Hope the acupunture helps you.

    • L October 20, 2017 at 10:44 pm Reply

      well, Bactrim has its own set of problems, but yes. I would load up on magnesium…I would go up to 800 mg in divided doses, and if you avoid the citrate there will be less chance of diarrhea. (good ones are taurate, orotate, threonate..there are others.) (If your antibiotic says to avoid mag, just take it at least 4 hours away from it.) Also you might add vitamin e. definitely get on a good multi-strain probiotic (refrigerated kind). Believe it or not the gut is connected to most illnesses. Avoid fluoridated water. (or fluoridated anything.) Do no take any NSAIDS or steroids. Glad you got the word before round two.

    • Lisa October 21, 2017 at 7:31 am Reply

      Hi John,

      Here is a post with some supplements noted that have been shown to mitigate some of the damage done by FQs (at least, they mitigate the damage to cells in petri dishes, but sometimes that’s all we have to go on) – https://floxiehope.com/2016/02/25/mitigating-fluoroquinolone-damage/.

      Here are other tips – https://floxiehope.com/2015/10/12/im-floxed-now-what/.

      L summed it up nicely too. Know that there is support, and we’re happy to help if we are able.

      Regards,
      Lisa

    • Cyndi Stephenson October 21, 2017 at 5:35 pm Reply

      PLEASE, PLEASE GET A LYME TEST…. IGENEX AND A COINFECTIONS TEST FOR BORRELIA ASAP…THE CIPRO AWAKENED THE LYME IN ALL LIKELIHOOD. I SPENT MONTHS THINKINGING IT WAS CIPRO TOXICITY FOR MY HUSBAND….IT’S BORRELIA IN THE BRAIN.

  22. John M. October 20, 2017 at 11:08 pm Reply

    Wow, Thanks for the response. Truthfully I am scared. I’m also mad at the doctor . He had other options for a UTI. If I can learn this in one night of online research he should know what he prescribing too. This info and website is a huge eye opener . Thank You very much.

    • L October 20, 2017 at 11:42 pm Reply

      well, last July, thanks to groups like Public Citizen and public outcry, and a hearing with an FDA safety subcommittee (Lisa who runs this site attended and read my statement and others) the FDA came out with a warning that fluoroquinolones should NOT be used for certain simple infections like UTIs) . (I think they should not be used for ANYTHING since they destroy at a cellular level, including destroying mitochondrial DNA.)

      The problem is, the FDA does not NOTIFY doctors of these warnings, and doctors don’t take the time to inform themselves. They are clueless. That is why I urge anyone who develops side effects to file suit against the doctor, (the pharmacy if they live in a duty to warn state and there was no consult) because the side effects can become very expensive to treat since natural treatments are not covered by insurance…and because that seems to be the only way to get their attention. And sadly, if you were given a generic, like most of us were, you cannot sue the manufacturer. There are some law firms trying to work on that aspect of it but those are class actions suits that can go on for years and mostly just benefit the attorneys.

  23. John M. October 21, 2017 at 12:12 am Reply

    When you say consult do you mean a actual human warning me or just a note on the bag.
    I was never told but did get the side effects note. Somebody should have noticed Cipro isn’t the safest option for UTI. They do this everyday and call themselves PROS and get paid well too. FDA stands for Forever Delay Action.

    • L October 21, 2017 at 12:27 am Reply

      or funeral directors of America. no , I mean an actual consult. Like in the state of CA on any new prescription, or one that has changed in dosage, strength or direction, the pharmacist is required to do a consult. It can’t be offered by staff. It can’t be signed away with that little electronic box. IT has to come from the pharmacist. Many pharmacies don’t follow this law because they are more concerned with speed. You need to find out what the law is in your state.

  24. John M. October 21, 2017 at 12:44 am Reply

    Ok , thanks. I’m in Tn. Both times at two different pharmacies nobody said a word about side effects.

    • L October 21, 2017 at 10:15 am Reply

      You may not have the same law there. You would need to contact an attorney (although so many attorneys AND judges in California are not aware of our law.) You might also contact the State Board of Pharmacy. But the physician was negligent since a warning came out in I believe July of last year saying these should not be use for simple UTIs. There are also black box warnings if you were given them with a steroid or over age (I think) 65

  25. John M. October 21, 2017 at 1:33 am Reply

    Now I’m wondering. Ive never had night sweats. but now for a week ive had them. and joint soreness. I assumed the UTI was causing it. Do you think its the 14Pills I took back in August? Any advice or opinions ? Thanks

    • L October 21, 2017 at 10:21 am Reply

      oh yeah. I had only 4 pills (but later discovered I had taken both Cipro and Levaquin before, years ago—and it is though side effects are cumulative.) My side effects started “unfolding” within a day, and I continued to get new ones for 6 months after. Here is a partial list: numbness,; spasming fingers; enormous eye floaters, dozens of little black dots and decreased visual acuity; hair loss and dried out skin; strangling sensation outside neck; horrific midback pain; destroyed gut and 35 lb weight loss in 6 weeks; olfactory nerve damage making everything in the world asphyxiate me; gasping for each breath for months; torn meniscus; pericardial effusion (fluid around the heart); hives; extreme anxiety; complete insomnia; paranoia; suicidal ideation; rapid heart beat and palpitations; feeling deathly ill—worse than double pneumonia; pelvic area pain and pressure; and more.

      so yes, my answer is yes it definitely can be and likely is.

  26. John M. October 21, 2017 at 4:40 pm Reply

    Wow, That’s so crazy. By the way they didn’t even have the culture results when I first got the prescription. I was halfway done with Cipro when the results came back. I still have kidney stones. Hopefully when I pass them I don’t get another UTI. If I do get another UTI id like to be prepared with the best info for treatment. Is there natural remedies or what is the safest antibiotics? I had taken 1 Bactrim yesterday but after finding this website I quit taking them too. For whatever reason may be a coincidence but just one Bactrim pill did more then all the Cipro in August. I’m feeling pretty good.
    Just want to be prepared and have more knowledge in case this keeps occurring.

    • L October 21, 2017 at 6:04 pm Reply

      There is actually a protocol that I got a couple years ago from a female ND that cured my UTI. I don’t have the instructions and some dosages vary day to day, but the items used were high doses (and tapering) of vitamin A, Vitamin C, D Mannose and something called urinary system support by Herb Pharm. See if you can find an ND in your area– even if they don’t know the formula offhand they should be able to find it.

      Also, Lisa posted a while back about which antibiotics seem to be more benign than others. You can find that blog here: https://floxiehope.com/2014/08/08/antibiotics-after-fluoroquinolone-toxicity/

      • lymedefeaterpassionate October 21, 2017 at 9:46 pm Reply

        It’s important to go back and read how many people say, oh my gosh, I got floxed and now I have Lyme disease…. I can see it in hindsight now…my husband took ciprofloxacin for one week in 2014… 6 months later developed a horrific peripheral neuropathy that didn’t show up on an emg…6 months later, took a course of CIPRO again, and developed a horrific anxiety, almost psychotic state and has been bedridden in a fetal position since April 2017… now he has HPV TONGUE AND NECK CANCER….which they say is treatable and curable. We have been to hll and are not quite back…but they are saying the CIPRO caused a herxheimer reaction and awakened the late stage Lyme disease. Look for my next post, where I retrieve a video that explains this, better than I can do so.

  27. John M. October 21, 2017 at 10:31 pm Reply

    I’m still shocked that in America this can continue to happen. What do we need Cipro for?
    Why not pull it off market or make it illegal to give unless life threatening sickness with no other options. Or is the FDA just afraid to say its to dangerous and eat 30 years of crow and prove incompetence. I feel lucky at this point. Maybe I will not develop any symptoms. I’m fighting mad that something isn’t being done. This website saves life’s. If my friend did not mention the dangers of Cipro id be on my second weeks dosage right now. This website should be on the Cipro side effects. People don’t take the side effects very serious, I know i didn’t but if they spent a hour here they would. I know it changed my thinking.

    • Barbara Arnold October 22, 2017 at 1:07 am Reply

      Your right John, but it’s not just America, it’s worldwide. At least America has a ‘black box warning’ now, even if they don’t inform Doctors. Here in Spain when I told a Rheumatologist about the ‘back box warning’ in America, her arrogant reply was “This is Spain not America” Most Doctors don’t know either because they have not been informed by the reps selling the stuff to them. They know Doctors don’t have the time or inclination to know the side effects of every drug. I was given cipro for bronchitis, I was 71 years, I was also given cortizone injections at the same time. BOTH are contraindicated. Doc’s should know that. Bayer abdicates ALL responsibility even though they KNOW it’s poison. I have written to them a dozen times asking for answers and all they do is refer me back to my Doctor. It’s slowly getting out, but I will be long gone before any justice is seen.

      • Madge hirsch October 22, 2017 at 4:26 am Reply

        Hi Barbara – how are you doing? I had an email from Miriam Knight who runs the quintoxsupport.co.uk and who submitted a report for the EMA enquiry into FQs. She thinks ths enquiry might have been put on the back burner – well that would not be a surprise.

        • Barbara Arnold October 22, 2017 at 8:12 am

          Hi Madge,
          I am doing okay, thanks for asking. The hyperbaric and CBD oil and tincture has really helped me. I had 20 sessions but need more when I come back from vacation in a few weeks. Here in Spain it’s 80 euros a session unless you have private health care which I don’t. It’s been worth it though, I am lucky I can pay, a lot of people can’t. I will investigate the quintoxsupport as I don’t know about it. Thanks for letting me know. How are you ? So nice to hear from you. xx

        • lymedefeaterpassionate October 22, 2017 at 8:34 am

          Please check to see if you have Lyme disease and the associated coinfections…in my husband the ciprofloxacin, in hindsight awakened his late stage Lyme disease.

  28. dezorz October 22, 2017 at 10:33 pm Reply

    lymedefeaterpassionate, how do you know your husband has lyme? in the beggining, when i didn know i was being cripled byu quinolones doctors thought it could be lyme so i was given more cipro in long term atb treatments. then, finally, cipro side effects were so strong that i realized. my doctors not. my lyme literate doctor thought it was herxhaimer reaction, cipro side effects.

  29. stephanie October 23, 2017 at 12:57 pm Reply

    So with all this lyme talk I have to say something. Yes some people have it. But Dr.s are also super pushy when you flox that you actually have lyme. I had argument after argument about it and finally got a freaking apology about it. Not every place in the world has lyme so everyone should always check the rates before flipping out that they have it. I AM NOT DISCOUNTING ANYONE WHO ACTUALLY HAS LYME. I just get annoyed because the cost for getting tested all where negative to a point where I tell Drs now if you want to test me you pay for it. I live in an area where less than 1% of population have even had lyme. Just saying the other side that not everysingle person who flax have lyme. You can also show positive for lyme if you stomach all messed up. I have known people who have it happened and the dr had to re do her test because the food caused the flase positive.

    • L October 23, 2017 at 1:01 pm Reply

      totally agree!!!!

    • Virginia October 23, 2017 at 1:06 pm Reply

      Stephanie, that is really sad if doctors who floxed you are saying you have Lyme instead. If you really don’t have Lyme, then it’s clear that they are just trying to squirm out of their responsibility for floxing you. If you were tested by the regular tests, however, they are too insensitive to trust. Half of those with Lyme get false negatives with these. False positives are extremely rare, and I have never heard of food causing a false positive test. I’ve studied Lyme and run a support group for 6 years and never heard this theory. Those who want a definitive answer must test with IGeneX. In my experience, any positive result of a Lyme test is positive, even if done by the regular test.

  30. David October 24, 2017 at 6:30 pm Reply

    It’s magnesium deficiency. Plain and simple. Cipro leaches magnesium out of you at the mitochondrial level. Magnesium got me out of the wheelchair.
    Jat92517. Scroll back. See what this guy says. He’s well informed.
    Integrative medicine specialists will confirm the magnesium connection.

    • L October 24, 2017 at 7:15 pm Reply

      magnesium is ONE piece of the puzzle. IT is not everything

    • Debs October 25, 2017 at 1:05 am Reply

      The magnesium connection is just one piece of this horrendously complicated multifactorial fluoroquinolone toxicity puzzle. The Quinoline ring, the pharmacophore is in itself inherently defective for one.
      I have been in this world for almost as long as the FQs have, & am still researching this subject, & still learning new things every day about the fluoroquinolone chameleon.
      personally I believe we do not even know all the questions we need to to ask yet on tis subject, let alone have the answer/s to this, If magnesium deficiency was the only issue which needed to be addressed here, then we would not have thousands upon thousands of people in our numerous groups, many taking magnesium often at high dose like it was going out of fashion, instead we would all be healed, & moving on with our lives.
      Important to note here in respect to that magnesium connection, that I personally cannot tolerate ANY form of supplemental magnesium, & yet I still eventually reached what I FELT was full healing after my original very serious floxing, & also FELT I reached around 80% healed after another, & I managed to reach this stage simply via the passing of time, without changing a dammed thing, neither diet, supplement, or otherwise, as I did NOT know then what had really happened to me, & I am certainly not the only one.
      Many do not realise, if they realise it at all, until many years later, often after being floxed again, & this time joining up those FQ dots, (& this is often discovered via obtaining medical records ), that they unfortunately have been floxed in the past, & they eventually FELT fully recovered, or they eventually substantially improved from those previous unrecognised as such previous floxings/s, & also that they actually did this without changing anything at all, not knowing at that time what had really happened to them.

      http://www.myquinstory.info/fq-faq/

      • Barbara Arnold October 25, 2017 at 5:09 am Reply

        Debs, I totally agree with nearly everything you say, and because there is no research that’s been done in depth on this subject, we are all on our own path to looking for solutions. The only thing I would say is that ‘older’ people that were floxed really needed to suppliment with mag as the older you are the less mag you have. I honestly don’t know how I would be without the suppliments I have taken, but I do know I am probably ‘healthier’ now than I was before I was floxed which is ironic, as I radically changed my diet, to totally gluten free, which helped me lose the 22lbs I gained after cipro. Also gluten is very inflammatory, so being gluten free has got to help with that. It was around 8 months before I was diagnosed with side effects of cipro, and I can tell you I was a mess, so I did everything I could to improve my situation with research and study. That included suppliments, which again I have no idea whether they helped or not, but I was not going to take a chance. It’s been three years now for me and I can honestly say the only thing I ‘FELT’ made a difference was ozone therapy, hyperbaric oxygen therapy, and gluten free and like you say TIME. As you know the human body is very complicated and we are all different, so what works for one may not work for others. It does seem to be cyclic, so I have found myself thinking at times, I was almost ‘healed’ only to find, it came back again. Up until a couple of months ago, I was in a great deal of PN pain, but after the hyperbaric oxygen therapy it really dampened down, so I am really hoping that this time I might just get fully healed, but I could even ‘live with what I feel now’ I honestly don’t think there is any one thing that will heal us, even if that is just ‘time’ I think like you said we all began from a different place, and different ages. But there is evidence out there as far as mag, is concerned, and certain suppliments like Coq10, so if you can, why not give yourself the best chance possible.

        • A.Coleman October 25, 2017 at 11:46 am

          Barbara, I am in the midst of what I seem to be bi-annual relapses. I am just past my two year anniversary and in the midst of another relapse. I keep meticulous records of my health and can see spikes in October and again in April every year. The October relapses, which coincide with my initial floxing seem to be worse.

          The last two Octobers I have been thinking I am getting close to well only to relapse. I had a few days in early October this year where I felt entirely normal only to have my world come crashing down. The life of a floxie! The good news is that this relapse seems to be milder than the one last October, though worse than the those that occur in April. My general time line:

          September 2015 – Initial floxing (10% well)
          March 2016 – 50% well, with relapse to 45% in April 2016
          September 2016 – 85% well, with a relapse to 60% well in October 2016
          March 2017 – 80% well, with a relapse to 75% well in April 2017
          September 2017 – 95% well, with a relapse to 85% well in October 2017

          If I follow my current trajectory I might be truly well by April of next year, but after 2 years and the most recent relapse I am also starting to loose hope of being completely normal ever again. Do I have to start hoping to reach a new normal and be happy with that?

          I am curious to know more about Ozone therapy as one of the few treatments that truly made a difference for you. I have read about it on the blogs here, but had actually been thinking of looking for someone to do Glutathione IV treatment as I read more positives about that on this site. I do have an integrative medicine doc I see, but she doesn’t do Glutathione IVs or Ozone therapy. I will have to start going to an integrative naturopath to get these treatments and given that I was getting close to well prior to this relapse had been putting off getting an appointment.

          Anyone else reading this post who wants to weigh in on the different benefits of Glutathhione IV or Ozone therapy please let me know. Also what are the questions I need to ask about Ozone therapy. The potential risk with adding ozone to my blood does scare me a bit.

          Thanks to all

        • Robert L Clark October 25, 2017 at 7:04 pm

          You may want to get tested for heavy metals before doing glutathione inside as it could mobilize the metals. You should also get the tests for your detox pathways of your liver. Glutathione will make your liver dump into your intestines and you need to bind and excrete it fast. Check out the detox products from Quicksilver Scientific.

        • L October 25, 2017 at 7:27 pm

          Again, we are all different, but my ND had me on glutathione by the second IV with no tests.

        • Debs October 25, 2017 at 1:41 pm

          I think you misunderstood me here just a little Barbara lol. I was certainly not suggesting a person should not use magnesium / supplement etc, just pointing out here that magnesium is NOT the single magic answer to our very complicated situation, & the fact that their is NO magic answer to our situation, also that some of us have improved, & even felt they have reached full healing*, without following any strict protocol or even any protocol, without us changing anything at all, so magnesium deficiency alone cannot be the magic answer lol .
          in regards to anyone reaching full healing as this is usually understood, we may FEEL fully healed yes, however imho, nobody who takes a FQ, simply due to the mechanism of action of the drug will actually get out of taking that FQ completely unscathed at a DNA/ mitochondrial level *, whether they are visibly / noticeably floxed, or not.

          Having myself been originally floxed in the 1980s, our world of course was rather less toxic in those long ago days. If I had been recently floxed, & I could actually tolerate magnesium, believe me I would be using it right now, whether I was floxed or not, as cellular magnesium levels are depleted in almost everyone & it is SO very important of course, for so many functions in the human body.

          The world is far more toxic now than it used to be, & this is in so many different ways, many of them ‘ under the radar’ hidden ways, & as a knock on effect, I think many of us are far more poisoned than we realise. As humanity we carry around with us far more toxins we used to, take many more drugs these days than we used to unfortunately, which also affect us insofar as vitamin / mineral, nutrient depletion etc. I feel most if not all of us worldwide, we are not where we should be in many areas, & I think we need all the help we can get, this applies whether we are floxed or not.
          This is something however which should ALWAYS be individual to the person, & I personally feel strongly that people should not supplement with anything willy nilly, or before getting baseline levels taken via reliable testing when this is appropriate beforehand, as just because it is natural does not make it safe for everyone, let alone our personal biology, dosage or various vitamins etc various things from the natural world can potentially interact negatively with other things, those such as with heavy metals i.e. mercury burden, fluoride etc, can also react with various allopathic drugs, & so on, & of course vice versa.

          The only reason I do not use magnesium myself, is that we just do not get along. If we did so, I would definitely be using it because of the above, also the fact I am by now 30 years later no spring chicken either, & also given my suboptimal kidney function, though due to this particular issue, limits the form of magnesium I would personally take .

      • Madge hirsch October 25, 2017 at 7:36 am Reply

        Well said.I believe I was floxed in 89/ 90 after moving to Birmingham . I was given several courses of antibiotics to treat sinusitis ( useless as it kept returning – the only thing that put an end to it was acupuncture.) I spent most of the following decade wondering what was the matter with me as there was always something healthwise. I was told by doctors I was in early menopause though they never bothered to test my hormone levels! In 1999 I believe I was floxed again and this time I started to suffer from what is one of my most troublesome recurring symptoms – rib pain due to cartilage degeneration. My GP was totally mystified by this as at 47 I was not the age that this usually happens. Blood tests showed mild hypothyroidism . I started treatment and moved to France in 2001. I believe part of my recovery was getting treated for the hypo but also no longer drinking the fluoridated Brum tapwater. But I still had recurrent rib pain just less and less frequently. My French floxings happened too late for me to consult my UK health records as after 10 years out of the country they are destroyed. But the recurrence of all sorts of symptoms I had before convinces me that I was floxed. Like you because I did not know about floxing I did not take specific supplements to try and help.
        It is unhelpful for people to be simplistic about floxing. Every floxie is different and what helps one might harm another. Part of my problem in recovering this time is that I had episodes of afib after my two French floxings and was hospitalised the second time. They reduced my thyroid treatment and stopped the T3 . I feel the floxing has sensitised me to the T3 but I just don’t do that well on T4 only. It is a real catch 22. Oh well c’est la vie!

    • Kurt October 25, 2017 at 9:59 am Reply

      Magnesium might work for some people, but it has done nothing for the damaged nerves in my feet and my other side effects. And yes… I’ve tried pills and epsom soaks for quite a while.

      • Barbara Arnold October 26, 2017 at 9:39 am Reply

        Kurt, how do you know your nerves are damaged ?

        • Kurt October 27, 2017 at 5:37 am

          An EMG test confirmed this fact.

  31. Andrea October 25, 2017 at 11:26 am Reply

    Hi guys, as I wrote before, I’m suffering from BPH and hyperactive bladder symptoms. Some of you suggested to try acupuncutre. So I followed your suggestion and right now I’m trying auricular acupuncture. I wanted to try traditional or electric acupuncture, but this doctor I went to, doesn’t practice it anymore. Anyway, he put 4 mini needles in each ear and I’m going to keep ’em for two weeks. After this time, I’m going to see him gain. It has been 3 days now. No changes in symptoms for now.

    • L October 25, 2017 at 11:57 am Reply

      My acupuncturist also did Chinese herbal medicine and I think that helped me a lot. If it’s any consolation, mine FINALLY almost went away. It does come back on occasion but only seems to last a few days and then it is gone again.

  32. Andrea October 25, 2017 at 11:50 am Reply

    Oh, and another thing, do any of you have any info about Pseudoephedrine and Triprolidine? Is there any contraindication about these drugs for a floxie?

    • L October 25, 2017 at 12:00 pm Reply

      I haven’t taken them mostly because I don’t need the added anxiety…but my allergies have been AWFUL. 24/ 7 12 months of the year. Most nights I have trouble sleeping because I can’t breathe through my nose. I have tried so many different supplements, like quercitin and doesn’t seem to cut it. There is one that has helped a bit but gets expensive. Called breathe-x which included quercitin but a few other things too. I try to just save it for before bed and take a couple and it helps a bit. If you find anything let me know!

      • Madge hirsch October 26, 2017 at 9:35 am Reply

        Do you think the worsening allergies are a result of the floxing? I have noticed this this year. Last year I was very breathless and wheezy in October and November and this year it started in September. Cleaning the house is a pain with sneezing and a runny nose and then it gets blocked. The wheeziness gets worse at nights. Using the preventative inhaler works but I am reluctant to use it too much . I intend to ask for a change to one that has no fluorine but there is still the steroid component.

        • L October 26, 2017 at 10:05 am

          I totally think the increased allergies are from the Cipro. I know it can increase histamine. You know I had been on prophylactic inhaled steroids (Qvar) when the Cipro knocked me out. I was in a real dilemna. I was quite literally gasping for every breath ( NOT from asthma…was suggested it was likely mitochondrial damage to the heart muscle.) So, here I was taking a steroid/fluoride worsening the Cipro toxicity—yet if I went OFF of them, the thought of an asthma attack on TOP of already feeling like I was suffocating to death, was just terrifying. Well, at this point, as I have posted elsewhere, my entire body was just ravaged—my vision was screwed up, I was asphyxiated by every single thing in the world because of olfactory nerve damage, I was in excruciating pain—and I just wanted out.

          Well, my naturopath that I had just started seeing suggested H2O2 IVs. Now, one of the few MDs that (maybe the ONLY one) that was at all understanding about the Cipro side effects had said “oh, I think that’s dangerous.” Well, at this point, I just didn’t care. I figured it was a win/win. Either it would help get me off the inhaled steroids or I would die. Either way I was good with that. Well, after about 6 of the H2O2 IVs I started weaning off the Qvar. Went from two puffs twice a day to 1 puff twice a day. A couple weeks later I went to just one puff. Finally I went off altogher.

          It has now been two years….no asthma meds and no asthma! I had gotten about a dozen of the H2O2 IVs initially and since then got a couple “maintenance ones.” BUt I think for maintenance just high dose vitamin C would suffice now. It is hard to find someone who does the H2O2 IVs. That doctor is the only one here locally that I know does them. And it turns out that some hospitals are now using this therapy on lung cancer patients. This stuff clears everything out…virus, fungi, bacteria. I don’t know this particular doctor in the following link, but he goes into more description of what it actually does. http://www.medical-library.net/hydrogen_peroxide_therapy.html

  33. Andrea October 25, 2017 at 12:20 pm Reply

    Thanks L. If this auricular acupuncture doesn’t work, I’ll find another acupuncturist that does traditional AP. I’m so tired of these symptoms, I want to try anything that could help. Thank you again

    • L October 25, 2017 at 1:38 pm Reply

      yeah I hear you! actually when he did the acupuncture for that, the needles were more different areas of the legs as I recall. If you find another acupuncturist it is helpful to find one that also does the Chinese herbal medicine.

  34. Barbara Arnold October 25, 2017 at 10:44 pm Reply

    A. Coleman,
    I suggest you thoroughly research ozone therapy, by google. There is tons of information out there much more than I can tell you here. Also ozone therapy is on U Tube. It is very safe in my opinion which you will understand after reading all the info. The only thing I would say is you get an experienced Doctor to administer it. My Doctor had 20 years experience. It is not a cure, and my symptoms came back, but while I was having it I felt much better. I don’t know what caused the relapse, but I believe it was a nerve conduction test I had, as at that time I was feeling very well with no pain. After the test all hell let loose, and I suffered a lot up until I had the hyperbaric oxygen therapy alongside CBD oil. I can’t believe how much better I am now, and intend to have more when I return from vacation. These are my experiences and like I said before, as have others, we are all different.
    As for the glutathione, I would be cautious, as it releases heavy metals. I did have a heavy metals test from my hair sample, which showed high and low heavy metals. I only had 3 glutathione IV’s as I had to travel a long way to get it administered. I also had IV’s of a myers cocktail 3 also. I can’t say the glute helped me, but it has helped others, also there is a lot of info on this site warning against glutathione as well as praising it. At the end of the day we all have to make up our own minds.

    • A.Coleman October 27, 2017 at 7:01 am Reply

      Barbara,
      Thanks for your comments. I did read diligently about ozone therapy and hyperbaric oxygen therapy. I will not be doing the ozone therapy as my research made me more nervous and less convinced of its effectiveness than I was before – know it worked for you.

      I will keep the hyperbaric oxygen therapy in mind. Without a doctor’s prescribing it for me the cost here in the states is very steep. Especially considering the number of treatments needed. If I could do 4 or 5 treatments and walk away I would consider it, but sounds like one would need 20 to 30 or more and at a cost of $400, which was what I found in my area without insurance that would be cost prohibitive.

      Wasn’t aware of the heavy metal impact of glutathione IV therapy – so thanks for that warning. That approach along with the myers cocktail remain what I am most likely to try.

      Like many floxies there is not much medically wrong with me from a western approach other than low Vitamin D – despite supplementing 5000 IU per day and taking both K2 and Mg to make sure needed cofactors are present. And low iron – but due to my digestive issues I don’t supplement for that. So, maybe the myers cocktails would be a better choice.

      • Barbara Arnold October 27, 2017 at 7:23 am Reply

        Yes your right the cost is really high unless you can get it with private health insurance. In the UK you can get it by simply giving a donation as they use it for MS patients. It’s cost me a fortune here in Spain 80 euros a session. I have had 20 and intend to have more when I return from vacation, as the benefit to me has been really good. I think of the cost without it, the PN pain was begining to be unbearable, causing the other problem of insomnia. Both have really improved, but I know I need more. Once you start you just have to keep going, at first you think there is no difference, but then you start slowly to improve. It’s a pain because you have to go EVERY DAY. I drove to the hospital half an hour there and back, and an hour in the chamber, that’s the morning over and done with.
        I would up your Vit D Level depending on where you live to 10,000 iu . I live in Spain, but in the winter I take from 5 to 10000 iu.

      • Barbara Arnold October 27, 2017 at 7:25 am Reply

        You can always get your levels checked later, but remember levels from the medical communities are always a lot lower than they should be. Be good if you had a good ND

  35. Barbara Arnold October 25, 2017 at 10:50 pm Reply

    Hey Debs,
    Totally agree with everything you say. I think I did understand what you were saying I just wanted to clarify it. I am also not a spring chicken lol, so perhaps together we can help each other along the way with our experiences of this crap we have been dealt with. Xx

  36. Andrea October 28, 2017 at 10:29 am Reply

    Hi guys. Has anyone ever noticed, after being exposed to FQs , some changes in the way your skin appears? Mine defenetly looks “older”, expecially on my hands. I don’t know if it’s just a coincidence, but a few months ago I noticed I have way more wrinkles on my hands than before. Not only that. My skin in general is more floppy and less elastic. Any thoughts about that?

    • L October 28, 2017 at 10:44 am Reply

      My skin is horrible since I was floxed. I also lost 1/4 of my weight in 6 weeks so the sudden drop didn’t help, but the skin on my arms and legs is terrible now…very crepey. I believe it is because the flqs destroy collagen. I am older so I don’t think there is any hope of it getting better at this point. Makes me furious since it looked so good before. I also recall a period during the first year when it was so dry, it was like cardboard. felt just really awful

      • lymedefeaterpassionate October 28, 2017 at 4:00 pm Reply

        please please please get an Igenex test for Lyme disease. My husband lost one third of his body weight in 4 months….we thought it was Cipro toxicity but actually the Cipro awakened the late stage lyme and coinfections in his brain.

        • L October 28, 2017 at 4:36 pm

          don’t have lyme. and a big weight loss is also common with flqs….it destroys your gut. (my current integrative doc happens to be a lyme specialist)

          my former ND always used to say “everyone with lyme thinks everyone else has lyme and everyone who was floxed, thinks everyone else has flq toxicity.” There is a great deal of overlap.

        • lymedefeaterpassionate October 28, 2017 at 4:45 pm

          i wholeheartedly agree

    • Michael Teeter October 30, 2017 at 12:11 pm Reply

      Ever since I was Floxed my Skin an’t right! Although they try to connect the issues with my autoimmune enteropathy I am sure that it has a Cipro and Prednisone connection.

      • L October 30, 2017 at 12:16 pm Reply

        My skin is horrible since the floxing….very crepey. IT destroys collagen.

    • Kurt October 30, 2017 at 5:13 pm Reply

      My skin is the same way. My hands are the worst. Lost of wrinkles and VERY loose skin on the back of the hands. FYI: My skin symptoms were a very delayed reaction.

      • L October 30, 2017 at 5:29 pm Reply

        my leg and arms 😦 embarrassing

        • Nicole Reedy October 30, 2017 at 6:09 pm

          On the skin issue this is very normal even with young people after floxing. I took a very good collagen we have in Canada and my legs, arms and hands were looking a lot better after a year. I got lazy and stopped it and then had a bad relapse a little over four months ago and my skin creakiness & wrinkles came back big time with a lot of other side affects. I went back on the collagen power and after four months my skin is getting better. I am 67 so like L I do not think I will ever be the same but know I need the collagen now.
          I have never heard of 4life transfer factor but sounds promising Joanneg!

        • L October 30, 2017 at 6:12 pm

          I have been using collagen (great lakes) almost every day for over a year…nothing

        • Nicole Reedy October 30, 2017 at 6:19 pm

          L this is called Tru Marine Collagen from within us. I have heard nothing but good things from everyone who has used it. I know Bronwen uses this one and floxie friends I have in the states have ordered it and are very happy with it. It is from fish scales and of course not cheap.
          Anyone else on here who uses this collagen please chime in.

        • L October 30, 2017 at 7:14 pm

          okay, thanks. I think I am beyond hope at this point, at 2 yrs 8 months out, but maybe I will try that.

        • Andrea October 31, 2017 at 2:46 pm

          Nicole, for a couple of months I’ve tried a collagen supplement, that coincidentally it’s also a canadian product, it’s called Genacol. It’s a bovine collagen extract. Didn’t really noticed anything from it, neither for the skin or the joints issues. And I’m sure it’s a good quality product.

  37. Joanneg October 30, 2017 at 2:49 pm Reply

    Hi Everyone,

    I wanted to give an update, also I have a question

    First, I was coming along good in my recovery. I was about 80%, but still couldn’t quit my magnesium supplements without going into a severe flare. I was always testing to see if I could quit them, but it would always make me worse. So my only steady supplement was magnesium and I was so grateful to be living my life again. Then, my son got married this Sept 1st and I drank 5 tequila sunrises and woke with a terrible hangover, then went into a flare that was so bad my magnesium didnt help me, so i took my other go to supplements colostrum and vsl probiotics. I only got minimal relief
    Well long story short, I bought 4life transfer factor I thought it might help because one of the ingredients is from colostrum,which always helped me.
    Anyhow, the first pill took me straight out the flare that I’ve been trying to get out of for almost 2 months! I’m only on my 4th day of taking it and I feel better than before the flare. It has helped with my tendon and joint issues, but more than that it has helped my soupy, dizzy, vertigo brain stuff really good.
    My question is, has anyone here tried this supplement? And if so, what was your experience?
    This is the best I’ve felt since I was floxed. I just pray it continues!

    • Joanneg October 30, 2017 at 9:56 pm Reply

      Here is a link to a short write-up on transfactors
      http://immunityguru.blogspot.com/2010/?m=1

      • Joanneg October 30, 2017 at 9:58 pm Reply

        That should say transfer factors

    • Joanneg October 30, 2017 at 10:42 pm Reply

      If you read the link above that I posted it talks about I26 hyper immune egg supplement, well I know the 4life transfer factor has an egg supplement in it I wasn’t sure if it was the i26 hyper immune egg so i ordered some of that too. I didn’t try it yet, I just received it in the mail today.
      Anyhow, listen to this short video of a news channel that did a clip on it https://youtu.be/fcHDLmcX9So

      • Joanneg October 30, 2017 at 10:49 pm Reply

        You might have to grit your teeth or plug your ears when he talks about Cipro!

      • L October 30, 2017 at 11:06 pm Reply

        wow—that’s interesting since they mention the guy had gulf war syndrome, which has been linked to flq toxicity! Gonna ask my integrative doc about this. Thanks for the post

        • Joanneg October 31, 2017 at 1:37 pm

          Hey L,
          I was reading a different site on the hyper immune egg and it said it helps with wringly, crepey skin. I’ll paste it if I can find it😊

        • L October 31, 2017 at 1:55 pm

          thanks

    • Tom October 31, 2017 at 9:26 am Reply

      Joanneg: Spell out the name of the :4 life transfer supplement and dosage please.

    • Andrea October 31, 2017 at 2:37 pm Reply

      Hi Joanneg, and thanks for sharing.
      I’m really interested in trying this 4life supplement, also because I’ve seen they sold it here in Italy. The problem is, I’ve noticed that eliminating milk and any kind of dairy from my diet it’s only beneficial for me. Actually I was trying a vegan/vegeterian diet for some time and it did helped. But, hey, since it was so beneficial for you, I might give it a try. Can I ask you what was was your reaction to milk/dairy after being floxed? You wrote colostrum always helped you, was it the same with milk and cheese? Have you noticed if some food gives you relapses?

      P.S. Just yesterday, after 2 months of eating only organic and 80% vegeterian (no dairy at all, just some fish and organic eggs) I let my self go and ate a pizza, some fries and a piece of cheescake. Today it was terrible. Pain in my ankles and shins fleared up and I felt very weak for a few hours.

      • Joanneg October 31, 2017 at 3:41 pm Reply

        Hi Andrea,
        I never had a reaction to milk or cheese since being floxed. Foods that do bother after this are coffee pepsi ( not always), some outdoor foods like pork at Mexican resteraunts, buffalo wild wings, and chicken nuggets. The pork and the pop mess with my stomach in different ways, and the chicken especially buffalo wild wings would give me throbbing pains in my leg bones.
        As far as the colostrum in this product bothering you I wouldn’t know, but on my colostrum site it says even people with milk allergies can take it. Idk

        • Andrea October 31, 2017 at 4:43 pm

          Thanks Joanneg.
          I too had bad reactions to meat/poultry that are not guaranteed organic or at least raised without the use of antibiotics. I too give up coffee. I became very sensitive to caffeine and it messes me up in so many ways. Regarding the Colostrum/egg supplement, I’ve already read many good reviews.Do you think it helped you with low energy-fatigue issues?Anyway, I think I will give it a try…what do I have to lose at this point…thanks again

        • Joanneg October 31, 2017 at 5:25 pm

          Yea, it definitely have me more energy, also you just want to do more when you feel good

        • Andrea November 1, 2017 at 3:33 am

          “also you just want to do more when you feel good” soo true

  38. Canie October 30, 2017 at 9:30 pm Reply

    I might say that thing that really help me was being a vegan I stop all those nasty chemicals from head to toe I stop from. Hair care I even go under a caveman regimen because seriously I get acne from eating protein …after I got floxed my skin was so bad and I’m crazy thinking what to do seems like I got complication everywhere from leaky gut to headache and I look old like my normal age so I focus on healing and stop thinking about flox for three year vegan I look young 5yr I still struggle from pain because sometimes my diet was not perfect but still focus in healthy food as possible but it get better I just choose carefully those foods not has no much chemical … Even vegans can catch up chemicals I try as much being raw ..my hair growth beautiful again and skin ..and I try to get back eating protein again and I start rash again ,..I think I had problem in protein intake so I try again to be much balance this time , my lifestyle keep me busy and hope again to the point my mind was not thinking about my issue of being flox i.e. And also it gives me hope to look new and better again .. My immune was so bad every time I present new things on it no matter how good it is , it got a bad reaction ,.. So my conclusion in it was I had a weak immune due of this shit … So I try to boost it with exercise ,hope ,and healthy food especially faith if the body was weaken due to poison then you must help the immune too ,. And also acceptance is important I already accept that it happen to me maybe it will take forever but I dont know the important was I take care myself now and this is my own fight ..

  39. Joanneg November 1, 2017 at 11:53 am Reply

    If anybody tries or has tried the 4life transfer factors please post your experience. Thank you😊

  40. Michael Teeter November 1, 2017 at 12:38 pm Reply

    Hello Ladies and Gentlemen of the Floxiehope community. I just need to share an experience with you my friends. The other day my UPS man was dropping off a package and as he was leaving he turned back to me and said that his friend’s 20 something old son was given Cipro and he was getting very sick, throwing up and his knees and ankles were hurting and his body hurts. His mom and the UPS guy started talking and he said there is a Guy on my route who was hurt by that stuff. The lady’s son was reluctant to quit taking his meds because his doctor told him to take it. Then they found this good site and starting reading and long story short his mom went down to his room downstairs and throw our the Cipro. Hopefully now he is getting better because they caught it early.

    So keep up the good work everyone!
    I swear everywhere I go people know of my Story and they tell hey my doctor tried to give me that stuff that made you sick but I remembered what happened to you and I made them give something else. Thanks!
    I say well you are very welcome. Then they say I am sorry you are so sick and I say I doing great compared to 5 years ago! You should have seen me then I was so skinny and in a wheel chair. I thank God everyday for my life with my beautiful wife. Everyday is a good day.
    I want to thank everyone here who helped me and continues to help me.
    Much Love to you all!
    Michael Teeter

    • L November 1, 2017 at 12:44 pm Reply

      That’s great Michael. I too tell everyone I know, and quite often someone will say that they know someone who has been hurt by these. I also have had friends email and say their doctor tried to give them Cipro but they refused and asked for something else. I love to hear they asked for something else. I HATE that doctors are still handing this stuff out like candy.

  41. Joanneg November 1, 2017 at 8:55 pm Reply

    I posted this link because in the blog it talks about how transfer factors can boost your glutathione levels by a 150% which I know a lot of people on here were interested in supplementing glutathione. Anyhow it’s an interesting read. http://international4life.blogspot.com/p/your-immune-system-priority-system.html?m=1

  42. Wyatt jayce November 1, 2017 at 10:09 pm Reply

    Jayce Wyatt
    My chronic bronchitis started out with post-nasal drip and a cough and I felt tired and turned in early. The next day the cough got worse and I felt lousy, so I called in sick. I felt steadily worse for another day, then on day three the fever started, and I couldn’t sleep for more than an hour or so at a time for a whole week. When I went to the doctor I was given a Z-Pak, albuterol inhaler (the only thing that did me any good), oral steroids, cough pearls which didn’t do any good, and was told to take Mucinex. In all, the fever lasted six days. I coughed so much I hurt my back and ended up in the emergency room because my back went into such spasms I couldn’t move without extreme pain. They shot me full of morphine and prescribed valium and naproxen. I missed two weeks of work,my friend at work purchased a chronic bronchitis herbal remedy online from Dr George,I used the herbal remedy for 2 weeks,my chronic bronchitis disappeared. am back to work,living chronic bronchitis free all thanks to my friend and Dr George .contact Dr George for your cure (drgeorge @ goodhealthherbshome .com )…. www .goodhealthherbshome .com

  43. Theresa Warren November 2, 2017 at 5:48 am Reply

    Seems like these comments have turned into nothing but ads for miracle cures.

    • L November 2, 2017 at 8:45 am Reply

      I think that’s an exaggeration. I do see a few now and then. It is pretty obvious from the links attached. Just ignore them and they will go away.

  44. Andrea November 2, 2017 at 9:19 am Reply

    Hi everyone, like I wrote in a previous post, for a couple of months I was doing a little better. I was eating an 80% vegan/vegeterian diet with lots of fruits,veggies and whole grains, cutting out every junk food-sugary drink-coffee and so on, and avoiding meat-poultry-fish-eggs that wasn’t guaranteed organic. But expecially, I completely cut out dairy.
    First because it was somehting that always gave me oily skin,pimples and increased mucus production, and also because I have read that dairy promotes inflamamtion.
    I was doing quite good, until recently I let myself go, and I binged a little. A few nights ago, I had a pizza, some fries and a cheescake. The outcome was that all my symptoms fleared up. I again have pain in my muscles and joints, expecially in my ankles and shins, and I feel fatigued.
    Do any of you experience the same things with milk/dairy after being floxed?
    I started taking magnesium again, which I wasn’t taking for the last 2 months, and it seems is only doing more harm.
    Does any of you have bad reactions to magnesium?

    P.S. after reading Joanneg experience with the 4life supplement, I ordered a bottle of it, but, since it contains colostrum, I’m scared it could be only detrimental for me.
    Any thoughts about it? It’s colostrum in a supplement the same as eating dairy?
    I will report my experience as soon as I try it, anyway.

    As always, Thanks Lisa, and thanks everyone. Even if I’m becoming more and more convinced that I’ll never be the same again, at least interacting with you guys and sharing experiences and knowledge is giving me a little…Hope 🙂

    • L November 2, 2017 at 10:24 am Reply

      Andrea, in the past, even before the Cipro, I avoided dairy because of congestion. BUT I have discovered that if I buy goat’s milk cheese, or goat’s milk kefir, I don’t have the same reaction.

      • Andrea November 2, 2017 at 2:14 pm Reply

        Thanks L.

  45. Andrea November 2, 2017 at 9:22 am Reply

    * A few nights ago, I had a pizza, some fries and a cheescake

    Sorry, it wasn’t a whole cheescake, just a slice 🙂 🙂

  46. Joanneg November 5, 2017 at 10:42 am Reply

    Update,
    It’s been 10 days since starting the 4life transfer factors, and I just keep getting better!! My joints and tendons arent pulling and hurting, my brain isn’t dizzy and vertigo feeling, my eyes are better but still not like prefloxed, but i don’t get overwelmed in the stores from the lights and all the stuff on the shelves, my brain fog is lifting so good my head almost feels clear!!! I don’t know if this will continue, but this is the best I’ve been since being floxed.
    I will continue to update.
    Andrea, I know you said you ordered some, so please post back with your experience.

    • Andrea November 5, 2017 at 11:35 am Reply

      Don’t worry, I wil.,,
      Anyaway, I know this will sound a little inappropiate , but, are you sure you’re not connected to the supplement company by any chance? I don’t want to sound rude, but I’m getting a little suspicious at this point. I hope you’re so enthusiastic about this supplement, because you finally found something that is helping you, and not because you’re trying to promote something. Like I said, don’t wanna sound rude, but try to understand…

      • L November 5, 2017 at 11:56 am Reply

        Andrea….I know just what you mean. There have been a few people on this site lately trying to sell something….either their supplements or their time. I think I can safely say that Joanneg is NOT one of them though. She has been a regular poster on here for a while and I believe just wants to try to help others. If I weren’t already so supplemented out I would try it.

        • Andrea November 5, 2017 at 1:26 pm

          Thanks L to clarify this situation for me. I appreciate that you are always so helpful and active on this website. Anyway, like I mentioned before, I’m going to report my experience with this new supplement as soon as I try it. You’re going to read it soon.

        • Joanneg November 5, 2017 at 2:08 pm

          Thank you L for speaking up for me, because with all the sales people on these kinds of sites even if you’re a sincere sufferer just trying to help people you’re gonna be suspected of being a salesman, which I understand, so it means a lot that you spoke up on my behalf. 😊

        • L November 5, 2017 at 2:21 pm

          Youre welcome! 🙂

  47. Joanneg November 5, 2017 at 12:02 pm Reply

    Andrea that’s not rude at all, there are sales people on every one of these chronic illness sites! But I am not selling or affiliated with this company in any way. I bought mine on the amazon site I posted, and as far as I know amazon isn’t like promoting a person or business. Buy idk.
    Also, you can follow my posts on here. I was floxed 3 and half years ago and stared posting on floxie hope at about18 months out, and I posted many things I have tried, but i try not to post anything unless I get a very significant amount of help. Also, you can read my recovering story on this site.
    I know how bad a floxie suffers, so i will FOREVER post anything that helps me just in case it can help someone else to stop the ongoing torture that these drugs have done to us.
    I pray that it helps you at least as much as it’s helped me.😊

    • Andrea November 5, 2017 at 1:16 pm Reply

      Ok Joanneg. Thanks for your replay. I appreciate the fact that your’e not offended by my previous post. It might have sounded like a speculation, but you understood my point and I’m grateful for that. You know, scams are around the corner. Thanks again for your time.

    • Andrea November 6, 2017 at 7:33 am Reply

      Hey Joanne, I just read your story, and I wanted to apologize for being suspicious of you. I’m relatively knew to this website, and I didn’t know that you are an active member, unfortunately, for quite a while. I really appreciate your efforts. I really hope you’ll get better soon. Stay strong.

  48. Lisa November 5, 2017 at 7:52 pm Reply

    If any of my European floxie friends have doctors who do IV treatments, will you please let me know either by commenting here or through emailing me? A friend is looking for doctors in Europe who will do IVs. Recommendations will be appreciated!

    Thanks,
    Lisa

    • Barbara Arnold November 5, 2017 at 8:24 pm Reply

      Hi Lisa,
      I think you need to be more specific, Europe is a huge place. So ie…UK, France, Germany, Spain, Italy ? to name but a few. xx

      • Lisa November 5, 2017 at 8:36 pm Reply

        He said that anywhere in Europe would be fine. He named all Western European countries when he listed all of them that he said would be okay, so, let’s just say Western Europe. 🙂 Do you know of any good docs that administer IVs in Spain?

        • Barbara Arnold November 6, 2017 at 3:35 am

          Lisa I sent you some links for iv’s in Spain and the UK, I sent it to your email as I can’t seem to send them on this site from my tab. Hope they help. Long Life Clinic is where I got mine, he is an MD and Intergrated Doc. He’s expensive but treats the whole body, only I had to educate him about fluroquinolones as guess what ? Never heard about them. He does do the IV’s though.

  49. Ken ward November 6, 2017 at 12:53 am Reply

    I did but you didn’t post it

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s