Floxie Hope


This site is to give HOPE to those who are suffering from Fluoroquinolone Toxicity Syndrome as a result of being poisoned by fluoroquinolone antibiotics – Cipro, Levaquin, Avelox, Floxin, etc.  It contains stories of healing.

Cipro, Levaquin, Avelox and all other fluoroquinolones are dangerous drugs that can have devastating effects that cumulatively I’ll refer to as Fluoroquinolone Toxicity Syndrome or Floxing.  Fluoroquinolone Toxicity Syndrome/Floxing includes damage to connective tissue (tendons, ligaments, cartilage, fascia, etc.) throughout the body, damage to the nervous systems (central, peripheral and autonomic), and more. The damage done by fluoroquinolone antibiotics can destroy a person’s quality of life or even kill them. Certainly, there is a time and a place for drugs with dangerous side effects. If you find yourself in a septic shock induced coma, fluoroquinolones may save your life. Unfortunately, these drugs are not being reserved for life or death situations. People are being prescribed them for urinary tract infections, suspected prostate infections, upper respiratory infections, as a prophylactic for travelers’ diarrhea, ear infections, pink eye, etc. Thousands of people have suffered needlessly from the devastating effects of fluoroquinolone antibiotics, when another, safer antibiotic could have, and should have, been used.

The damage done by fluoroquinolones is largely unacknowledged by the medical establishment and an accurate diagnosis, compensation and relief are difficult to come by. There is no known cure for Fluoroquinolone Toxicity Syndrome/Floxing.  However, many people continue to LIVE after being poisoned by fluroquinolones.  They find healing, recovery, perseverance, compassion and hope.  These are their stories.

This site is meant to give hope for healing to those who are adversely effected by fluoroquinolones.  It is no way meant to disregard the pain of those who are chronically suffering from the horrifying effects of Cipro, Levaquin, Avelox or the other fluoroquinolones.  There are people who don’t recover.  Their stories are real and they matter.  There are also people who are able to recover and I share their stories with the hope that they inspire others, or at least give hope that recovery is possible.

Here is a New York Times article about the dangers of fluoroquinolone antibiotics – http://well.blogs.nytimes.com/2012/09/10/popular-antibiotics-may-carry-serious-side-effects/?_r=0 – more news stories, research papers and other resources can be found on the “Links and Resources” page.

Here is a Facebook group that is a great resource for those going through Fluoroquinolone Toxicity – https://www.facebook.com/groups/floxies/

Featured post – I’m floxed. Now what?

The Fluoroquinolone Toxicity Solution Ebook has helped many Floxies to recover, including DanielCindy and Ruth.  As a bonus, you will also receive The Floxie Food Guide – a book of diet guidelines to help you through fluoroquinolone toxicity:

flu tox get help you need banner click lisa




19,546 thoughts on “Floxie Hope

  1. Dan November 6, 2017 at 1:00 am Reply

    hello everyone again,
    I want to share my symptoms again and Please if someone of you experienced the same please share your experiences.
    For now my main issues are ballance loss, when i stand up i am like in a boat and if i walk straight and turn my head while walking to right or left i even loose my balance worst.
    my hearing sensitiviness dissapierd at a some level but have a good tinitus
    i heave a weird pressure on the side of my head and inseade my mouth right obove my tounge like somebody is pulling my brain and apliyng pressure on it..very weird sensations.
    the ffeling off balance and tremors by the end of the day are increasing a lot a lot,and that pressue too.
    please will thiese go away sometimes..
    i have wight loss and soft stool most of the time.
    i have a weakness of my hole body and sometimes feel a light numbness just in the tips of my right hand fingers..
    please advise what to do?
    can the floxieng mimic the MS symptoms..
    none of my doctors believe in the floxing.
    i did a big research on russian and ukranian and romanian sites and it is so weird that nobody has these kind of reactions or side effects as i found on these site?
    it can be that people dont get it in here or anre not informed?

    • Ken ward November 6, 2017 at 1:40 am Reply

      You are floxed..my friend and you will have the Dr’s quit ignoring you very soon it’s being banned as we speak, and I’m sorry but I’m going to tell you the truth no its permenent nerve damage in your brain and other parts of your body, I just saw my Dr yestetday and he informed me the fda sent him a letter blacklisting this drug and the Bayer company that makes it admitted finally that it does all kinds of horrible permenent damage, and they new it for 20 years

      • CAWS November 7, 2017 at 8:21 pm Reply

        If you r in WA check out http://www.mthfr.net. Dr Ben Lynch is in WA. Might be able to help you. CAWS.

        • Ken ward November 7, 2017 at 8:42 pm

          Do you know if andrea saw my response I can’t find it?

        • Ken ward November 7, 2017 at 8:48 pm

          Thank you

        • Ken ward November 7, 2017 at 8:58 pm

          Can someone help me please I’ve lost andrea?

        • Ken ward November 7, 2017 at 9:05 pm

          This dr ben lynch that is under claws doesn’t say he’s a dn as you called it? Andrea?I looked online it didn’t say dn, and I don’t want to waste anymore time or money, going to the wrong dr. So I must know FROM ANDREA WHY IT DOESN’T SAY HE’S A DN LIKE YOU SUGGESTED? THANKS KEN

        • Ken ward November 7, 2017 at 9:16 pm

          I got it, so sorry brain is messing with me bad I just saw it dr ben lynch dn. Thankd

        • Ken ward November 7, 2017 at 9:27 pm

          Do these drs take insurance?

      • CAWS November 8, 2017 at 1:59 pm Reply

        I did some research for you & found two practitioners in Olympia, WA that may be able to help you. Functional medicine Dr Evan Hirsch MD tel 360-464-9965 or Cheryl Plaza LHc ND tel 360-754-7775. I am on east coast but got the references thru Dr Ben Lynch in Olympia who no longer sees patients just writes,& lectures other Drs. Hope one of them can help you.

        • Ken ward November 8, 2017 at 2:09 pm


        • Ken ward November 8, 2017 at 3:37 pm

          Called to make appt. With Dr Hirsch they don’t take insurance and it’s 7300.00 dollars just to start not counting supplements etc. Or they said I could apply for care credit card, but would still be close to 400 dollars a month for 2 years to pay off, little diffuclt, when you went from working law enforcement for wa. State house of Representatives for many years making good money, to disability pension. Thank you for suggestion you called it I talked to Dr myself he definently treats cipro poioning, just don’t have the cash

        • CAWS November 11, 2017 at 4:25 pm

          Yeah I asked them on the phone about Cipro treatment before hand but that price is crazy especial since what most of them do is experimental anyway. I had hoped for a winner for you.
          This is why I have given up on doctors unless I need surgery or a script. They all complain about everybody being hooked on Oxy because they are in so much pain. A couple of them are now telling their patients about Kratom since they have seen me become more mobile again.
          My home office now looks like a mad scientist’s with several computers running Rife & research papers everywhere. I have asked for a blacklight microscope for Christmas so I can learn LIVE CELL analysis to better chart my progress & experiments. I also order any lab tests I need that are not insurance covered or dr refuses by myself from http://www.directlabs.com.

    • Ken ward November 6, 2017 at 1:57 am Reply

      Dan I want to make sure you know I was talking to you, I have every symptom you do and more, from cipro, my wife happens to have ms you do not have ms if you were given cipro or one of its cousins you have peripheral neuropathy permenent damaged nerves in your brain and elsewhere and it reads having on your body soul and mind good luck to you dan

    • Ken ward November 6, 2017 at 2:22 am Reply

      Dan just wanted to mention I was put on 500 MG twice a day for thirty days, went in for 2 week follow up and told dr the cipro was hurting me, he said no its the cipro fighting the infection that’s giving you bad anxiety and I was told to go home tough it out and finish it, on the 26th night I woke up at 4am screaming in agony the tendons down the inside of my thighs noted and I could not straighten them for an hour of screaming in pain I discontinued it immediately went to dr told him of all horrible symptoms, his response was And you kept taking it I said you told me 2, he went into complete cover his ass mode, he was just recently informed by govt. And said he was sorry, I said little late now, anyway I just wanted to say just because there’s no doubt in my mind that I’m dying, doesn’t meen you are I was on an extremely high dose for 26 days good luck 2 you

    • CAWS November 7, 2017 at 9:25 am Reply

      As someone who has been severely floxed & fighting this for going on 28 years I can tell you that I will NEVER give up even at 65. I was an equestrian triathelete for a living; no smoking, drinking,drugs, organic diet & very physically fit. While I am no longer able to work; & have had 20 surgeries , lost many teeth, & suffer from CFS/FM/MCS, peripheral neuropathy, severe insomnia, I have found several things that r helping me to now walk two miles a day & do daily chores, drive 2-3 hrs etc. This in spite of the fact that I am now dealing with Lyme ,Babesia & Bartonella. Treating these infections along with the coinfections of 3 kinds of fungus & parasites, viruses has made a huge difference. NOT using any antibiotics either.
      I know for sure that the hit my immune system took from 4 rounds of Cipro, 2 rounds of Levaquin[one IV] and finally Factive 7 [gemifloxin which turned me PURPLE from head to toe for 30 days] have done permanent damage but there are many workarounds & always hope for reversal.
      With the new FDA mandate last August & the “Doctor’s Letter” document from 30+ professionals that had their lives ruined by FQs, I finally got my MD to understand that this was a POISONING not an allergic reaction. There are currently scientists studying how to REVERSE topoisomerase I & II inhibition after chemotherapy.[which is what flouorquinolones are] because it not only alters the replication of bacterial DNA but ours as well. Topoisomerase protein enzymes are needed to cleave the helix of the DNA for replication or the cell dies. Also analyzing the raw data on my 23andme spit test showed so many breaks that are very significant. Wish I had tested before & after FQs to see how much damage they actually did. Live blood cell analysis has also been amazingly helpful.
      That said not only are there big things in the works scientifically; but it is important to look for the hidden opportunistic infections that can be increasing symptoms & preventing improvement. Amy Yasko [ Genetic Bypass] is a great resource & has targeted remedies including RNA repair supplements. I have kept my PN & plantar fasciitis under control with her unique Get B-12 [adenosol/hydroxy not methyl or cyanocobalamin] because my methylization pathway & gut problems won’t absorb otherwise. Again the difference between being on the couch crying for 3 years & walking two miles daily with my Jack Russel.
      Another godsend foe me has been finding Kratom for pain. Despite what the DEA is trying to do to take it away & the false claims they make about deaths & addiction; this is because Big Pharma has isolated the active ingredients in a centuries old remedy & want to market it as an expensive brand name drug with FLUORIDE ADDED !!! I can tell you I have used this plant for two years for one dollar a day with incredible results; no cravings, increasing dosage, euphoria or any side effects except my pain melts away for 4-6 hours. Remember I have MCS and too many allergies to count. Actually since I began treating the Lyme with herbal protocol & Rife I have been able to CUT the amount of Kratom !
      Here are some of my most helpful websites:
      http://www.slweb.org [lists 300+ OTHER drugs laced with fluorine to avoid]
      http://www.holisticheal.com [Amy Yasko store]
      http://www.noamalgam.com Dr Andy Cutler’s safe,effective, cheap way to detox metals that hinder recovery.
      http://www.directlabs.com for inexpensive monitoring & quantification of results no doctors orders needed.
      Never give up hope; keep fighting!

      • Andrea November 7, 2017 at 4:18 pm Reply

        Jesus, 28 years…the more I read your stories the more I feel angry and sad…and also ashemed.Ashemed for being such a pussy.I mean, while it’s true that I suffer physically and emotionally from the situation I’m in, I also see that it’s nothing compared to some of your stories, but I’m still here crying and complaining…anyway CAWS, since you’re a veteran in this thread, I want to ask you something. Since no doctor seems to understand what it’s going on with me, and since I can’t decide by my self what test to do, to try to make things clear, I wanted to know from you what would be the first thing to do as far as blood, dna or neurological test. Thank you. And pardon my broken english.

        • Ken ward November 7, 2017 at 5:47 pm

          That’s been quite a problem, I went in for my 2 week follow up and told my Dr the cipro was hurting me, he didn’t believe me, But by my next appt. I had stopped it on day 26 day and went in that day he saw I had a violent tremor in both arms and I was anxiety ridden and agitated I couldn’t stop crying, so he still didn’t want to acnolage it, and started sending me to neroulogist at Swedish medical center in seattle, I told them cipro was cause they gave me a look like ok? And a false diagnosis then urologist another I’ve never heard of cipro doing something like that, another false diagnosis of interstatial… cystitis anyway 6 so called specialist and 6 looks like I was nuts, 6 false diagnosis all the while I’m wasting away getting worse, I tried everything they suggested and finaly figured out, it was a waste of time, I litteraly screamed out to every specialist every er dr. Cipro did this! NOT 1 DR WOULD EVEN CONSIDER THAT CIPRO DID IT, AND FINALY ABOUT 6 MONTHS AGO IT BECAME VERY APPARENT THAT I WAS NOT GOING TO GET ANY HELP, MY DR. EVEN BRUSHED IT UNDER THE RUG, SO I QUIT WASTING TIME AND MONEY AND GAVE UP, BY THIS TIME I’M SO SICK, IT IS VERY OBVIOUS TO ME THAT I AM DYING, SO I MADE PEACE WITH GOD AND ACCEPTED IT, AND I’M EXPECTING IT WILL HAPPEN BEFORE LONG, LOSING USE OF RIGHT ARM NOW, MY LEFT ONE IS ALLREADY DEAD, IT JUST HANGS THERE, I KNOW THAT DOESN’T ANSWER YOUR QUESTION, I’VE RESEARCHED ON PHONE AND TRIED SOME SUPPLEMENTS THAT DID NOTHING TO EASE MY MISERY, I JUST WANT TO FIND SOMETHING TO HELP THE SUFFERRING UNTIL IT HAPPENS, I’M SORRY I COULDN’T BE MORE HELPFUL, BUT I CAN’T GET ONE DR IN WA STATE TO EVEN CONSIDER IT MUCH LESS HELP ME, NOW IT’S TO LATE, I’M GETTING NEW SYMPTOMS AND ALL SYMPTOMS HAVE PROGRESSED TO THE POINT OF NO RETURN, GOD BLESS YOU I HOPE YOU FIND THE HELP YOU NEED, AND THAT IS TRULY FROM THE HEART, I FEEL SO BAD FOR EVERYONE WHO HAS BEEN HURT BY THIS EVIL, SO CALLED MEDICINE!

        • Bob November 7, 2017 at 6:01 pm

          KEN, pleas try the Blu room before you give up. It might start a turn around

        • Ken ward November 7, 2017 at 6:09 pm


        • Ken ward November 7, 2017 at 6:02 pm

          Oh andrea, they did do a nerve conduction test on my left arm and found broken signals in every nerve in my left arm, so what do they do, send me for a neck mri, and a hand and arm specialist, these idiots still haven’t made the conection, I went from 6 foot 4 265 pounds I’m currently 190 and losing daily now, and it’s all muscle, I played football, when I was younger, and kept myself in good shape till 49 when this happened I was a strong rock of a man, now I’m a pathetic she’ll of myself, went to see Dr last week you know what he told me, boy ken your lookin good! OMG! THIS IS A REAL LIFE NIGHTMARE

        • L November 7, 2017 at 7:35 pm

          Ken, where are you located? I am just wondering if someone else on this site who lives in the general area as you, has an ND or integrative doctor that has helped them recover, whom they could recommend. It breaks my heart. Again, I was SEVERELY damaged, head to toe, but luckily I ended up with an ND who had treated other floxies, and I am to a point I never imagined I could ever be again.

        • Ken ward November 7, 2017 at 8:30 pm

          Andrea I hope you see this my memory is bad, I can’t remember, how to respond to you. I live in olymia/lacey area wa. State

        • Ken ward November 7, 2017 at 8:55 pm


        • CAWS November 7, 2017 at 7:23 pm

          Andrea ,
          see my reply below. Caws

      • Bob November 7, 2017 at 5:31 pm Reply

        Caws, You have been at this awhile and I would like to pick your brain a bit. I have been thinking of trying Kratom for months as I have terrible Neuropathy in my feet as well as pain in my head. What strain of Kratom would you recommend? Also could you tell me what herbs you use for Lyme. My wife and daughter have suffering from Lyme for years. As for the 23 and me test. Have the results of the test been useful. I also have been thinking of getting that test but don’t really know what to do with the info. What’s special about Amy Yahoo’s Get b 12. I have the methylation issue and take methyl folate. I have doing a slow detox with the liposomal Quicksilver Scientific products as I have some metals but I can’t tolerate much. A long walk to me is to the mailbox and I need to get out of a 1 year relapse. Any info would be appreciated. I am 66.

        • CAWS November 7, 2017 at 7:21 pm

          Andrea & Bob,
          For pain the kratomworks.com website has best quality & prices I have found so far. Much like medical marijuana it comes in many “flavors” but without the memory loss & euphoria . I have tried several types of kratom & not seen much difference though I have stayed away from the genetically modified stuff. The best rated for pain is “Premium Green Bali” which you can buy in bulk. Get a “Caps-It-Quik” tool & buy the 00 gel caps to make your own pills. 4-5 pills =1teaspoon which is average dose for 125-150lb person. It dos not dissolve well in anything & tastes like crap so It is worth the $25 for the machine. I also use it for bulk herbs & vitamin C powder for savings.
          This works for 4-6 hrs for joint & fibro pain. Neuropathy is another beast. The Get B-12 sublingual spray stops my hands & feet from burning & if the plantar fasciitis kicks in I give it an extra dose in morning/eve. Checking blood viscosity is also important . Those of us with MTHFR and die off from pathogens have trouble with circulation getting to extremities. I really like Nattokinase for this especially since Lyme will breed in biofolms & plaque & hide from immune system. My first live red cell analysis had no biofilm or plaque & I switched to Serrapeptase &next time I was crawling with critters. I am also back on the full bore Stephen Beuhner herbal tincture protocol . Books available on Amazon. Master herbalist curing Lyme for decades. Cost around $300 per month with none of the side effects of antibiotics. MY inspiration is the lady from therealfoodrebel.com site. She had Lyme for DECADES & was dying and used this protocol along with intensive deworming, metal chelation & diet. At age 56 she is now backpacking across SPAIN and looks ten years younger.
          23andme can by law give you very little info as the FDA cracked down on them because God forbid we could find out if we had the breast cancer genes or the Alzheimer genes. That said you still get your ancestry stuff AND YOUR RAW DATA. 950,000 SNPs of info that can be interpreted thru Prometheus, Genetic genie or my favorite Sterling Hill at http://www.MTHFRsupport.com. Easy to read relevant & color coded for practical applications. Another hero of mine. She was homeless & dying with miriad of ailments & surgeries and saved herself. Recently figured out she was floxxed and is now running seminars for doctors to educate them.
          My other go to is http://www.spooky2.com which is the most advanced Rife machine ever invented that is affordable for the average person.[$400 instead of the usual $4000-8000] I use this not only to kill pathogens, but can make colloidal silver for pennies & many other applications.
          I want to address brain fog which for me is the worst die off symptom. This is often caused by ammonia from the excrement of pathogens be they viral,bacterial,fungal or parasites. The most effective& fastest thing when it starts is I immediately take activated charcoal to mop it up. If it constipates then coffee enemas will get you going!
          As far as testing goes most Lyme tests suck. A GOOD biologist doing live cell analysis is way better. Mine looks at FRESH blood ,spit,urine, vaginal stuff & semen. You would not believe what you can see moving around at 2000x magnification! Igenix labs are considered gold standard for LYME & coinfections but VERY expensive. http://www.mdlab.com has same tests for fraction of price especially if you are “self pay”. This is good because repetition is important after treatment starts as titers often go UP. I am also a fan of Doctors Data 24 hr Urine test for metals & essential elements. I use this to track what metals I am removing [or not] and if my mineral levels are deranged. Get this test at http://www.directlabs.com.
          Hope this helps. I am in SC if anyone needs referrals nearby.

      • Harriet November 12, 2017 at 2:12 pm Reply

        Can you get kratom in the UK. I am desperate and just wish I was not here. I cannot stand the peripheral neuropathy any longer. Dr f……… useless.

        • Barbara Arnold November 13, 2017 at 1:37 am

          Harriet, you can get Kratom at Coastline Kratom on line. Also you can get Hemp Oil and tincture for pain from Sacred Kana on line. The latter helps me. I havn’t tried Kratom.

        • Theresa Warren November 13, 2017 at 10:50 am

          Kratom is illegal in the UK, sadly.

  2. Ken ward November 6, 2017 at 1:10 am Reply

    I wish the best for you folks, but me it’s over, I don’t believe in suicide, but it doesn’t matter I’m quite sure I’ll be gone soon, I can feel myself dying five years now, severe tendon and joint damage, brain danage, memory problems, numb penis no more sex, severe skin problems, severe anxiety and agitation never happy in fog constantly, ear pain and problems, severe vision problems, urinary problems bowel problems, I shake, can’t control emotions, loosing teeth, facial pain, brow pain, stomach problems, kidneys hurt massive muscle loss, unexplainable massive weight loss, I haven’t even mentioned all the problems cipro gave me and are getting worse, THERE IS NO DOUBT IN MY MIND I’M DYING A SLOW MISSERABLE..DEATH BUT I’M OK WITH IT I FOR ONE AM HOPING IT COMES SOON SO THIS WILL END oh did I mention the feeling of going crazy, good luck to you all I hope you get better but I’m clearly on my way out because of cipro, tried to get help from the start every dr I went to looked at me like I was nuts, talk about adding insult to injury damn!

  3. Ken ward November 6, 2017 at 1:28 am Reply

    .Good luck to you all, I’m litteraly dying from cipro, my syptoms are so severe I won’t even go into it except to say I’m even losing teeth and have massive muscle wasting, organ pain and malfunction 5 years ago when I was given it I was 6 foot 4 265 pounds now 190 and literally dropping daily, anyway it’s clear to me it’s just a matter of time and I’ll be gone but I’M AT PEACE WITH IT I’M READY FOR THIS TO END, THE BRAIN DAMAGE IS UNBEARABLE take care and good luck to you all!

    • L November 6, 2017 at 10:42 am Reply

      Ken, I don’t know if you saw my posts. I posted recently a recap of what I have been through. I was SEVERELY floxed. IT affected my vision, my mind, my olfactory nerves..I was in excruciating pain and lost 1/4 of my body weight in 6 weeks. I could not move without assistance for a period of time and was gasping for every single breath for months. I was hopeless, suicidal, paranoid, and riddled with anxiety. I have had a LOT of IVs (93 to be exact, but the turn around was really after about 20-30 of them.) Today, I still have some damage but I am back to doing most things I did before Cipro/prednisone. PLEASE PLEASE PLEASE…find someone who does IV therapy.

      • Bob November 6, 2017 at 1:50 pm Reply

        L, Over 4 years I’ve done maybe a dozen IV’s or so IV’s. I didn’t notice much benefit except the first one which was a glutathione. I started on relapse about a year ago after dental work and have been getting worse ever since. I am as bad now as when first floxed. It seems hopeless at this point. WHICH IV’s helped you the most? I also did several hyperbaric sessions. I really like those but the doctor said I would need many to make a difference

        • L November 6, 2017 at 2:32 pm

          Oh Bob, I am so sorry. The ones I did the most were phosphatidylcholine because they were supposed to help with nerve damage, and I had that from head to toe. The second most were high dose vitamin C (50,000) Both were followed by a push of glutathione. I was also getting H2o2 because I was struggling to breathe and terrified of an asthma attack on top of what was either mitochondrial damage to the heart muscle or autonomic nervous system damage. (I no longer take asthma meds after these IVs.) Other floxies however that he had treated also did ozone, but he didn’t give it to me because there was too much overlap with the H2O2. I wish I could say what helped the most. I got at least a dozen, maybe more before I started feeling any turn around. (I take that back, the excruciating back pain I had went away after the first 5 or 6) I alternated, so hard to say which was responsible. And I didn’t have significant improvement til probably 4o or 50 IVs later. It got very expensive and I could not work, so I just kept racking up the credit cards and borrowing me. I figured it was that or…? I was getting them twice a week for many months. I was also doing some PEMF as well.

          I am just grabbing a site here…I know nothing about it, but they give an explanation of PC’s benefits. https://kwikermedical.com/phosphatidylcholine-infusions/

          I now see an holistic DDS and he recently removed my remaining amalgam fillings. He told me to use liposomal vitamin C twice a day (comes in a little packet.) IT was called Lypo-Spheric Vitamin C. He also suggested infra red sauna, which I tried but I couldn’t handle the heat.

          My integrative MD also is very big on hyperbaric and yes, they do recommend many sessions. I couldn’t do it…too claustrophobic, but I have heard very good things about it.

          Do you think the relapse was from an anesthetic? Do you still see the person who gave you the IVs?

        • Bob November 6, 2017 at 5:45 pm

          You ought to try the hyperbaric. I was claustrophobic too but I said to tell with if and got in. I was so weak I almost could not lift myself up to get in. They give you a walkie talkie so if you freak out you can call someone to let you out. It is very relaxing and I fall asleep. I wish I had one at home. There are 2 doctors where I can get IV`s.

    • Christie Ward November 6, 2017 at 5:43 pm Reply

      Ken Ward, how strange, I have a Uncle named Kenneth Ward. Anyway I have everything you just described, I hurt over all my major organs and my mind has gone to HELL IN A HAND BASCKET! I also believe I am dying a slow painful death. But I had these antibiotics more times than I can count because I have an IGG DEFICIENCY, Which I did not get until after my first round of Cipro in 2000 and lucky for me I guess, I have had all three antibiotics name brand by IV. I was just diagnosed about a month ago with SEVERE SMALL FIBER NEUROPATHY done by a punch biopsy at UT SOUTHWESTERN DALLAS and I am suing these assholes face off!!!!! They truly have ruined my life!!! I had worked for American Airlines for 8 1/2 years until I could no longer do it and it was a dream career!! ALL 3 COMPANYS WILL PAY, TRUST ME!!!

      • Ken ward November 6, 2017 at 6:18 pm Reply

        Christie I’m so sorry, and fyi I was unfortunately given generic, PLEASE MAKE THESE HEARTLESS BASTARDS PAY!!!!!!!!

      • Ken ward November 6, 2017 at 6:26 pm Reply


      • L November 8, 2017 at 7:03 pm Reply

        Christie….If you got the generic version, you won’t be able to sue (although there is currently at least one law firm in the U.S that is trying to breach that hurdle…but it is a multi-state class action, and will probably go on for years, and the real winners will be the attorneys, not the plaintiffs.) If you took the brand name version, then go for it. It seems to be the only language they understand. (There is currently a lawsuit against Johnson and Johnson for Levaquin and named in the suit is Margaret Hamburg, who was the FDA commissioner who approved it, all while leaving out a lot of the warnings. Her husband was financially involved with J & J so she is charged with racketeering.

  4. Dan November 6, 2017 at 2:56 am Reply

    Dear Ken,
    My heart is tearingt appart from your story..
    So sorry for you and your wife..
    i am not a doctor..i dont know much about these evil drugs or meds but i am shure there is a way out somehow..
    please pplease keep fighting please belive please fight please fight!!
    for me it does not make sense tthat the drug is out of our system in couple of days..and you are feeling ok and then..al of a sudden all the evil brakes loose..it has somehow a diiferent way of action and those who made it i am shure know a lot that we are not alwed to know.
    Ken how old are you?
    Do you have balance issues?

    • Ken ward November 6, 2017 at 4:23 am Reply

      I’m 54 was poisoned at 49 yes severe balance issues

    • Ken ward November 6, 2017 at 4:30 am Reply

      Dan you don’t understand how very I’ll I am there is no way out, I’m telling you its like I have Lou gehrigrs disease I’m wasting away a day at a time litteraly lose weight daily, teeth break off at gum line I’m certain I am dying, it’s ok im ready thank you for carring

      • L November 6, 2017 at 10:47 am Reply

        Ken, perhaps if you posted where in the country you live (general area) people can post contact info for NDs or integrative doctors that have helped them. When I got to my ND, he had already treated several floxies. Ditto my acupuncturist. And again, I would urge you to find one that does IVs. Also hyperbaric might be a good choice. (I would have done it myself but I am claustrophobic.)

      • CAWS November 8, 2017 at 11:25 am Reply

        Ken ,
        I really think u should get tested for Lyme, Babesia,Mycoplasma, Bartonella, Rickettsia, Ehrlichia etc. Recent studies have shown 100% of ALS patients that were tested had Lyme and 80% had Mycoplasma. Many MS, Parkinsons & Alzheimers patients have tested positive as well though they usually don’t find it till post mortem. Most also have heavy metal overload. Both of these things will kill the nerves in your body if not killed or removed. I got all the tick pathogens tested at http://www.mdlab.com for under $300 or you could try to find a live cell analysis biologist. The Cowden or Beuhner herbal protocols are about $300 per month & have worked for me. Way cheaper, easier & safer than fighting with doctors & insurance companies to give you IV antibiotics which in the long run have not worked for my friends.
        As far as metals go following the Andy Cutler protocol EXACTLY has been safe effective & CHEAP [about $8 per round done at home]. I have proof that metals are coming out from the Doctors Data urinalysis I did during chelation. See above comments for many resources that have taken me 20 years to accumulate.

        • Ken ward November 8, 2017 at 12:05 pm


        • Bob November 8, 2017 at 1:51 pm

          KEN, I think Caws is just trying to make the point that co-infections can make healing very difficult for a person poisoned be cipro. For example I have celiac and some heavy metals and doctors have told “oh this is What’s wrong with you.” That does annoy me because I could function like a normal human being regardless of anything else before the cipro bomb. No one on this forum doubts what cipro did to you or anyone for that matter.

        • Ken ward November 8, 2017 at 2:06 pm

          No actually bob he suggested I had als..Lyme diseas..that’s what pissed me off I DO NOT HAVE EITHER I HAVE BEEN POISONED SEVERELY BY “CIPRO”

        • CAWS November 11, 2017 at 12:08 pm

          Ken ,
          My symptoms also began with Cipro but after years of a fading immune system I have been infected with several challenges along the way including pnuemonia twice, parasites,viruses,bacteria & fungus. Almost died four times/ 20 surgeries. Can’t fight back if you don’t know what you are fighting. Truly I get all the laundry list of problems caused by this drug. I have been dealing for 28 years & still not well but coping so to speak. What concerns me is the rapidly encroaching nerve damage in your arms. This is most often caused by a toxin or pathogen.Case in point was a woman I met who was parilyzed only in her arms from contaminated saline breast implants that had not been removed in time when they broke. The bacteria destroyed the nerves. If you can’t afford testing you could just get some Colliodal silver & take it for pathogens & some Ivermectin for parasites to cover your bases. This is just what I would do & have done with considerable success . I am not a doctor.

    • L November 6, 2017 at 10:45 am Reply

      Dr Jay Cohen, in his book says that doctors who assume that a drug can’t harm you once you stop it, have absolutely no understanding of pharmacology. That’s why there are warnings on all drugs…”may cause liver damage,” etc.

  5. Ken ward November 6, 2017 at 4:32 am Reply

    And I hope you get well

  6. Dan November 6, 2017 at 4:51 am Reply

    There is a way out and we all in here fight and look for it..
    Its way too early for you to think about death..please fight and find hope for your beloved ones..for YOU!And i wish i could shake your hand and say a good word.I hope your pain and trouble will end soon. Very sorry for your pain and all the trouble.

  7. Ken ward November 6, 2017 at 5:30 am Reply

    Dan don’t misunderstand I’m not going to kill myself, I did fight and try to stay positive, until I started losing use of my left arm, and now have the strength of a 10 year old all over body and everything else I told you and more, I then realized how very seriously I’ll this crap made me, and litteraly had an awakening and realized that I am dying, this is about acceptance, and everything and everyone have a time, mine just is just getting cut short, I’m ok I’ve accepted it, the only thing that bothers me is the way it is happenning, all I’ve lived thru, only to be taken out by an anti biotic unbelievable

    • Bob November 6, 2017 at 8:38 am Reply

      I can relate Ken I also feel that way. I don’t post much because I don’t want to discourage others who were not affected as much. I still work from home to give me a reason to get up but that is now very hard. It’s just so stupid to be taken out by an antibiotic that the doctors still claim is harmless and you are not even allowed to sue if you took a generic. This is legal assault sanctioned by the government. I wish more people would sue their doctors. If a few of them lost big they would be afraid to prescribe this poison. As for the FDA they can go to hell.

      • Ken ward November 6, 2017 at 1:42 pm Reply


        • Bob November 6, 2017 at 2:38 pm

          KEN, I understand where your at and I respect that as there is only so much suffering a person can take. Can you tell me though have you tried any light therapy?

        • Ken ward November 6, 2017 at 3:20 pm

          Light therapy my eyes can’t tolerate the light at all after cipro?

        • Bob November 6, 2017 at 5:32 pm

          I am not talking about light in your eyes but on your skin. Such as infrared or ultraviolet.

        • Ken ward November 6, 2017 at 5:36 pm

          Oh, did this ease your symptoms in ANY WAY?

        • Bob November 6, 2017 at 6:22 pm

          Yes, I tried an infrared pod, like a tanning bed for 10 minutes and I went home and told my wife my pain was gone. They wanted you to do it 3 times per week but that was 2 much for me. I have this problem where something helps me and then I do to much of it and I get worse. I did that with acupuncture and PEMF. I used to love a tens machine but now can’t tolerate it. The cipro really fried my nerves. I have been doing some work with a medical intuitive and I am pretty sure the cipro gave me brain damage. I have a small hand held infrared device that I use on my head and spine. This latest relapse was brought on by septocaine from the dentist. The dental assistant gave me a shot and said “I gave you the good stuff,” I knew I was screwed. I want you to look up Dr. Leanne Venier on YouTube. She is probably THE go to person for infrared therapy. She has state of the art devices you can buy that I believe are better and cheaper than other units. I would like to know where you live because there are ultraviolet treatments available in certain locals. That is what I am going to do next. I know you have thought about suicide and so have I because it is a logical way out of suffering. I am not going to do it either but I also am at peace with the idea of death because it would bring relief. That brings a certain type of freedom in a way. If I am not afraid to die then I am also not afraid to try to heal and live.

        • Ken ward November 6, 2017 at 6:41 pm


        • Bob November 6, 2017 at 7:18 pm

          KEN, There is a place in Olympia called The Blu Room WHICH is very sophisticated technology using ultraviolet light to heal. I have been wanting to try this but have recently been too sick to travel. This could literally reboot your system. When they have a baby with a undeveloped liver they put it under ultraviolet and the liver heals. HOW DOES THAT WORK? Light carries frequencies WHICH carry information. There is more to this than you will see on their website. There are claims you cannot make thanks to the FDA (Federal Death Association). I would really like a floxie to try this. DO you live close to Olympia?

        • Ken ward November 6, 2017 at 7:26 pm

          I live in olympia

        • Bob November 6, 2017 at 7:39 pm

          PLEASE TRY THE BLU ROOM. IF IT WORKS A LOT OF FLOXIES COULD BE HELPED. They have one near St Louis and the person that runs it said it really helps with PTSD. That is a neurological condition which I think all FLOXIES have. Please give it a try. I would love to hear that it helped.

        • Ken ward November 6, 2017 at 8:47 pm

          Do you know how expensive it is, or if insurance covers it, I have really good insurance, extra cash after being forced to retire, not so much?

        • Bob November 7, 2017 at 10:57 am

          I believe it is $60 per treatment and you would need a series of them. I have heard of people getting improvement right away. Insurance will not pay for it. You are lucky it is so close there are only a few in the whole world. If I lived there I would go immediately.

        • Ken ward November 7, 2017 at 12:06 pm

          Thanks Bob I’m going to do exactly that, I’ve been up for 3 days feel insane, must find something to at least ease some sufferring, tendons knotting up all over extreme pain everywhere. God I hope this helps!!!

        • Bob November 7, 2017 at 4:27 pm

          SO do I. Please let us know how it works. One thing I know is your thoughts during the treatment are important. Expect it to help. That would be true for any treatment but especially for this.

        • Ken ward November 7, 2017 at 6:11 pm

          I will go for one session if for nothing else to tell you folks if it helped

        • Bob November 7, 2017 at 6:19 pm

          I understand I spent a lot of money without much to show for it. Almost anything you do to help will not be covered by insurance. I hope you can do several sessions. Most things take several sessions but maybe you’ll see some results with the first.

        • Ken ward November 7, 2017 at 6:21 pm

          Do you think I could give you guys an answer in 2 sessions?

        • Ken ward November 6, 2017 at 4:58 pm


      • CAWS November 8, 2017 at 11:38 am Reply

        Bob & Ken,
        One of the reasons infrared light works is it penetrates deeply & releases toxins. You might see many ads for FAR infrared saunas [very pricey though safer than going to a spa with steam sauna full of chloramines & fluoride!]. However if you have someone handy that can help you there is a cheap & easy way to make your own NEAR infrared sauna for 1 tenth the price. Buy three chicken brooder lights [250watts each ] & fix them to a post with a base attached or hang them from the bar in the closet , plug it in & climb into an empty closet with a chair, a thermometer, watch & plenty of water & towel. 15-30 minutes will activate your largest eliminative organ & you will sweat like a pig. Rinse off with cool water in shower [no soap] & toxins go down the drain. Industrial workers exposed to mercury released 500X more metals in their sweat than their urine, spit or blood in testing. Some minerals will also sweat out so be sure to supplement.

        • Bob November 8, 2017 at 1:19 pm

          Funny you should bring that up. I saw a set up similar to that on the internet. I have a small infrared device, quantum 10, I have been using but I would like a sauna. I have an old portable infrared sauna that didn’t work long where your head sticks out the top. I could set that up and put the lights in there. I have been researching infrared as well as ultraviolet. Ultraviolet is also very powerful for health..

        • Nicole November 8, 2017 at 5:50 pm

          Please Ken do not let the vultures like Caws get to you!!!!
          We real people are here for you and know everything you are going through! I stay off here most of the time because of the crazy users.
          You can trust L, Bob and Andrea.
          The stress these nuts cause us is unbearable and I will tell you I know for sure that stress and fear makes us so much worse.
          I am 67 & like L was severely floxed. I have also done a lot of IV’s and am hanging in after 2 years with some relapses and one major one 5 months ago that I am still fighting but getting better. You must believe you can get better and let go of the negative people and try the treatments that are helping us real Floxies.
          Barbara knows a lot about hyperbaric oxygen treatments. They are very helpful as well. There are so many things that do help but negative stress does not!!!!
          You do NOT need to be tested for everything on earth. It just causes more stress and we know what happened to us!
          Please believe you can get a lot better if not the person you were before. And as L will confirm that is okay!!!!

        • Ken ward November 8, 2017 at 6:41 pm


      • CAWS November 11, 2017 at 12:23 pm Reply

        Nicole ,
        In what way am I a vulture or negative? I am not selling anything and I am trying to offer inexpensive effective solutions that have helped me & might help others which is why we are all here. I would love to try hyperbaric but can’t afford the $100 a pop. I have spent every penny the last 28 years fighting to stay alive against all odds and been reading all the medical science papers I can get my hands on & studying toxicicolgy for same amount of time. Having one ailment does not exclude you from picking up more problems along the way especially when you are compromised. No one is attacking you . What is your problem?

  8. Ken ward November 6, 2017 at 5:39 am Reply

    I’m sorry my original intent was to answer your question and let you know what was going on with you , not to bring anybody down or anything ✌Ken

    • Barbara Arnold November 6, 2017 at 6:43 pm Reply

      Ken Ward, I am so sorry for the shit you are going through. I have had 20 sessions of hyperbaric oxygen therapy and intend to have more as it turned things around for me. I have seen others come back from the brink with stories like yours. Whatever you do, think , or feel, you are not alone, and if you have made peace with death, maybe you could try some of the things people are suggesting here. There is always hope.

    • Madge hirsch November 7, 2017 at 3:18 pm Reply

      Hi Ken-I know when there is something wrong with my husband. Men often think they are hiding their pain but often we can tell there is something wrong and we worry anyway. I personally would rather my husband shared his pain with me so I can try to help and comfort him but I am sure that like most men he does not want to complain or worry me. This is just a Mars / Venus thing!
      I cried when I read your post about accepting that you are dying. You are too young and I really hope that you can find something that will help you.
      Cipro did give me heart rhythm problems but they seem to have settled. Apart from going to see the doctor- that puts up both my heart rate and blood pressure! You are absolutely right about avoiding stress or negative thoughts . Perhaps the worsening of pain is due to the body releasing more cortisol.

      • Ken ward November 7, 2017 at 3:58 pm Reply

        Thank you madge, I’m having a hard time seeing thru my glasses, because your kind words brought me to tears, I am terrified and I don’t want my wife to know how awful this really is, because I really do feel death around me, which I have come to peace with, but I know it will destroy her, we’re that couple that are very blessed with each other and deeply in love after 23 years of marriage, it breaks my heart to think of HER LOSING ME and the pain she will endure, so I try my best to keep it to myself, thank you for the love madge!

        • Madge hirsch November 8, 2017 at 4:05 am

          I understand how you feel. On my worst days I try not to let my husband see how down I feel. But I am lucky – although my first floxing was probably in 1989 I have never been severely affected like you and many others here. Though I can do a lot less now than I used to I still can cook and manage my home ( sort of- I am not very houseproud!) and even garden a couple of hours a day when the weather is good. But you have something that many never experience in their entire lives – a wonderful relationship that has lasted a long time . This is the greatest blessing .. I would never swap my wonderful husband for perfect health. You need to continue to fight if you possibly can but also to acknowledge that trying to shoulder all the burden yourself might be counterproductive and making you even worse.

        • Ken ward November 8, 2017 at 7:22 am

          Thanks madge, I know your right, I need to tell and talk to her about this.more Thanks Ken.

  9. Joanneg November 6, 2017 at 8:11 am Reply

    Ken and Dan,
    I have all the symptoms you’s are talking about, i’m 3 1/2 years out, PLEASE, PLEASE, PLEASE try this supplement https://www.amazon.com/Transfer-Factor-Tri-Factor-Formula-capsules/dp/B0086VSWUK
    It has worked almost miraculous for me for all the torturous symptoms you have!!!!

    • Ken ward November 8, 2017 at 4:38 pm Reply

      I just ordered what you suggested, if it will just ease the sufferring for now, that would be a GOD SEND! Anyway thanks for suggestion, I can’t remember how long you said until it helped your symptoms, can you remind me, it seems like you said it didn’t take long right? Ken

  10. Ken ward November 7, 2017 at 12:03 am Reply

    Anybody tried this supplement 4 life factor that Joanegg…is suggesting to me or is this a troll selling stuff?

    • Andrea November 7, 2017 at 3:39 am Reply

      Hi Ken. I’m so sorry to read of the pain and desperation you’re going through. Anyway to answer your question, I haven’t tried the 4life supplement yet, but after Joanneg suggestion, I’ve ordered it a few days ago. I’m still waiting for it, but as soon as I try it, I will share my opinions about it with you guys. Stay strong.

      • Ken ward November 7, 2017 at 5:17 am Reply


    • L November 7, 2017 at 10:29 am Reply

      Hi Ken, I have not tried it but JoanneG is not a troll. She’s a fellow floxie who found something that helped her and wants to let others know so they can try it. I know it can get confusing since recently there have been several people on here more concerned with making money than helping their fellow floxies. I think, judging from the ingredients, it is similar to the colostrum products that have helped many. My integrative cardiologist recommended IgG colostrum. They both help your immune system. I am not sure how they “fix” damage from these toxins but JoanneG seems to have had some very good results. I know how expensive it can be to keep trying different things, but it sounds like this might be worth a shot.

  11. Joanneg November 7, 2017 at 2:33 am Reply

    Hi Ken,
    I’m not a salesman or a troll. I’m a fellow sufferer!
    If you go back to the last few posts on the page before this, all that is discussed.
    I bought this supplement because one of the ingredients was from colostrum, which always helped me, and it wound up working so unbelievably good I had to post about it.
    Anyhow, please try it!! I seriously can’t believe how much it has helped me!!!
    P.s. if you don’t know how to go to the previous page there’s a link at the bottom of this page that says older comments.

    • Ken ward November 7, 2017 at 2:48 am Reply

      Thank you for the info, I will definently try it, and thanks for telling me how to look at older post ✌

      • Ken ward November 7, 2017 at 2:55 am Reply

        Joanegg I am sorry you were hurt by this drug as well, and I apologize for the suspension, you know how it is these days, can I ask how long until you noticed improvement?

        • Joanneg November 7, 2017 at 3:15 am

          I was in a bad flare for 2 months, so i was trying different supplements to get out the flare, but nothing was working, so i basically ordered this new supplement out of desperation and not really expecting much. Anyhow, the first pill pulled me right out of that severe flare, but i did still feel weird, but every day I just got better and better. I’ve only been on them for 11 days, and I feel the best ever since being floxed 3 1/2 years ago.

        • Ken ward November 7, 2017 at 3:31 am

          Thank you I will get some tommorrow, take care

  12. Joanneg November 7, 2017 at 3:33 am Reply

    Good luck I pray they help you

    • Ken ward November 7, 2017 at 3:58 am Reply

      Thank you I would appreciate any prayers, you said pray I assume your a believer, because I am, I will pray for you as well my friend, nobody deserves this!

    • Joanneg November 7, 2017 at 9:10 am Reply

      Sorry, it was late and i fell asleep, anyhow yes i am a christian and will be praying for you 😊

  13. Michael Teeter November 7, 2017 at 9:28 am Reply

    Greetings my fellow Pharma poison survivors! I hope and pray all is well for you.
    I just tweet Mr. Chuck Norris has anyone heard about his wife recently?
    She was hurt by Gadolinium. It jogged my memory after I was Floxed they were doing all sorts of tests including many MRI’s and CT’s and Bone Scans X rays etc.
    My Rhuematologist decided to test the metal levels in my blood and this was weeks later and my Gadolinium was off the charts! Any of you guys check this? I am curious because I think it was all a daisy chain with me. 1st I got an infection. 2nd Floxed with Cipro and Levaquin. 3rd exacerbated with high Steroid treatment. 4th made worse by NSAID’s for pain. 5th even worse by MRI’s and all the tests. Finally my body developed or brought out an autoimmune response. So now they say I now have Adult Autoimmune Enteropathy coupled with RA and Tendinitis/Tendinnosis.
    I was diagnosed with Fibromyalgia before this ever happened. Plus I have the MTFHR ++ gene.
    So I was wondering if it was all connected.
    I mean now I am dealing with side effects of meds plus my syndrome now.
    I really think the medical community is not trained to treat people as individuals.
    If they were we would not have all the problems with money making big pharmaceutical companies and Government organizations creating this environment for all this to happen.

    Well that is my my rant and thinking for the day.
    Michael Out!

    • Madge hirsch November 7, 2017 at 3:32 pm Reply

      One of the floxies on the French forum I post at had a really bad exacerbation of his symptoms after gadolinium contrast MRI particularly muscle wasting and fasiculations. He started to be convinced he had ALS despite the neurologist saying he didn’t.

  14. Andrea November 7, 2017 at 2:38 pm Reply

    Sorry Michael, but they gave you FQs even if you were diagnosed with fibromyalgia,or you were diagnosed after being floxed?

  15. Kurt November 7, 2017 at 4:31 pm Reply

    I was reading in another Floxie Hope story here about people that have no gag reflex after being poisoned by FQ. Crazy….mine seems very diminished as well and not like it use to be. Is this something that people have recovered from?

    • Ken ward November 7, 2017 at 6:16 pm Reply

      I haven’t noticed gag reflex but possibly because there is so much other stuff going on, however I do have a severe problem swallowing ANY KIND OF FOOD, IT’S LIKE THE SWALLOW REFLEX ONLY WORKS HALF WAY AND I CHOKE ON EVERY BITE OF FOOD

      • Joanneg November 7, 2017 at 8:18 pm Reply

        I had the choking on my food and even my drinks. It went away after about 2 years.
        I was wondering, if you don’t mind, what medications or supplements are you on, also if you drink pop, coffee or smoke cigarettes. My thoughts were maybe your doing something in your diet, supplements, meds, or habits that’s slowing or stopping you from healing. IDK ?

  16. Ken ward November 7, 2017 at 8:46 pm Reply


  17. canie November 8, 2017 at 7:11 am Reply

    is someone know how to have a long lasting immune booster when i get vegan straight for 2 year i forget my issue ..but when got back to old life like month ..really get problem again .. so i try to continue this again ..is there someone who has been 5 year long journey about it..can they share their experince is there any progress |?

  18. Ken ward November 8, 2017 at 12:06 pm Reply

    Caws don’t take this personal but your starting to sound like these drs trying to deny what’s wrong with me

  19. Ken ward November 8, 2017 at 12:08 pm Reply

    I think you should research the things that happen to people with severe cipro poioning, loss of limb use even wheelchair and death hapoen

  20. Ken ward November 8, 2017 at 12:19 pm Reply

    Peace, out Ken

  21. Ken ward November 8, 2017 at 1:32 pm Reply


    • Michael November 9, 2017 at 6:12 am Reply

      Ken – will you doctor share this letter with us? I think we would all be interested in reading it.

      • Ken ward November 9, 2017 at 11:51 am Reply

        My next appt. I will ask, but trust me the letters ARE GOING OUT! HE GOT IT ROUGHLY 15 DAYS AGO

        • Michael November 9, 2017 at 11:59 am

          Thanks Ken, maybe if you send it to Lisa she will post the letter so we can all read what new information and warnings the doctors are supposed to be receiving.

        • Ken ward November 9, 2017 at 5:38 pm


        • L November 9, 2017 at 6:31 pm

          Ken, I am curious where you got the information that the FDA requires drug companies to send letters to doctors? As far as I am aware, they are only required to include the warnings on the information leaflets that go with the drugs.. (and I agree, it is in ALL their interest to NOT warn people. IT would effect sales.) Just criminal. And these damn companies fight the warnings every step of the way.

        • Ken ward November 9, 2017 at 6:55 pm

          I got the info from a law firm, they also said a Bayer company whistle-blower proved with documents that the Bayer company new all of this in like 1992 something like that they said they new less than 3 years after they put it on the market!!!!!

        • L November 9, 2017 at 8:42 pm

          yes, it is well known that BOTH drug companies AND the FDA have known for decades. Truly obscene. I am not sure though that they are required to send letters to physicians. And sadly, physicians remain willfully ignorant.

        • Ken ward November 9, 2017 at 8:48 pm


        • L November 9, 2017 at 9:22 pm

          I’m not calling you a liar Ken. I am familiar with law and I am just saying I do not think that is a requirement. Perhaps you can enlighten us all by copying and pasting one of these letters

        • Ken ward November 9, 2017 at 8:58 pm


        • Ken ward November 9, 2017 at 9:23 pm

          L I want to make sure you understand this. The fda tells Bayer to send the letter, and then doesn’t follow thru and make BAYER like I said earlier do it for 9 Years now they are

        • L November 9, 2017 at 9:30 pm

          Ken, I think I have found what you are referring to, but it is not legally mandated. Please note on every page is says “Contains Nonbinding Recommendations ” I think that’s outrageous, but they all protect each other this way.


        • Ken ward November 9, 2017 at 9:40 pm

          That’s basically what I’m saying, what’s the point of the med watch systym and the fda telling them to send letter if they don’t enforce in my book that’s corruption and makes fda just as liable as Bayer drs. Etc

        • L November 9, 2017 at 9:59 pm

          You got that right. There is so much corruption, in most of our agencies sadly, where there is a revolving door between the political and the business world. Many current and former FDA commissioners came directly from the pharmaceutical industry. Here is an article from slate on fraud at the FDA. http://www.slate.com/articles/health_and_science/science/2015/02/fda_inspections_fraud_fabrication_and_scientific_misconduct_are_hidden_from.html

          I understand your fury. We all do. I lost so much, all for a UTI. I lost more than a year of my life, spent curled up in a ball on the sofa, gasping for breath, in pain, with major mental issues, blurred vision and thirty other side effects, some horrifying, praying for death. My anger damn near ate me alive. I still have the anger. I have written politicians, talk show hosts, newspapers, you name it. I still write, almost three years later. But for our health, we need to find a way past that anger. For our own sake. If you have a suit, an attorney, great. Let them funnel the anger for you. Unfortunately the stress of it only exacerbates all our side effects.

        • Ken ward November 9, 2017 at 10:12 pm

          You know what L I don’t have a LAWSUIT my symptoms are every minute of my life for five years, I don’t think you get it I am litteraly dying, worse every month month on my way out, I can’t control my anger my brain is so messed up, so peace to you all I’m out, the lady that told me this site would make me sicker was right! Later

        • Ken ward November 9, 2017 at 10:24 pm

          You know L, one last comment you might want to read one of my earlier post I am a cipro beznzo…combo messed up✌

        • Ken ward November 9, 2017 at 10:29 pm

          And thanks so much for all the help and hope

        • Ken ward November 9, 2017 at 9:53 pm

          When Bayer started getting sued then they decided to send letter to stop THERE bleeding!

        • Ken ward November 9, 2017 at 9:57 pm

          I could care less about legal mandate I am aware of that, BUT IF A GOVT. AGENCY THAT’S SUPPOSED REGULATE AND PROTECT US DOESNT, THERE AS GUILTY AS THE REST OF THE S.O.B.S.

        • Ken ward November 9, 2017 at 9:26 pm

          So the fda is responsible for the fact that these letters were not sent out by bayer!

        • Ken ward November 9, 2017 at 7:02 pm


        • Ken ward November 9, 2017 at 7:05 pm

          Which they did in 2008 but let Bayer slide till now

        • Ken ward November 9, 2017 at 7:09 pm

          Which is what the fda med watch I think it’s called is for so when people like us call them and they get enough of the same complaints there supposed to put a stop to it that’s the whole point of med watch. SO CORRUPT

        • Ken ward November 9, 2017 at 7:12 pm

          There called dear Dr letters

        • Ken ward November 9, 2017 at 7:15 pm

          I called med watch myself and filed a complaint still have proof on phone they sent me conformation email confirming they filed it

      • Ken ward November 9, 2017 at 11:58 am Reply


        • Bob November 9, 2017 at 12:59 pm

          Cipro has been hurting people for a long time. If he did his homework he never would have prescribed it.

        • Harriet November 12, 2017 at 2:38 pm

          Ken I agree with Lisa and caws. I have had a similar reaction to people when they have asked me for further information. It is so frustrating trying to explain to people what is obvious to ourselves.

          Are you able to locate the letter at all? I was just thinking if you ask outright for it the dr may not hand it over. Just wondered if you could ask for the last 12 months of records but do not tell him why. In the UK the rules may be different for getting medical records. Listen I/we all understand how you feel. If you are taking benzos they can feel you feel like s… as well.

          Can you google benzo buddies?
          The Ashton Manual?

          U may be a lot better off getting off the benzos but it has to be done very, very slowly.


    • CAWS November 11, 2017 at 12:33 pm Reply

      Nobody is denying what’s wrong with you. Ive been floxxed 8 times [ all before any black box warnings]& sick for 28 years. Nearly died four times. If you read my other post above ; it was only a suggestion; that because of the rapid changes in your nerves after 5 years , there MAY BE a secondary force at work here in addition to the original cause. Pathogens are opportunistic & fast working and I was concerned for you. Not trying to cause you more stress. Just know that sometimes there is more going on when the body is challenged. I have had to fight a lot of non FQ battles just to stay alive.

  22. Lisa November 8, 2017 at 8:31 pm Reply

    Ken, I’m pretty sure that CAWS was trying to be helpful when suggesting that you get tested for Lyme and coinfections, and didn’t mean to offend you by making the suggestion. CAWS wouldn’t be on this site if he or she didn’t believe in fluoroquinolone toxicity and the horrible devastation that fluoroquinolones can bring. Unfortunately, Lyme and fluoroquinolone toxicity are not mutually exclusive, and there are many people suffering from both. I’m not saying that is true for you, I’m just saying that it’s possible, and suggesting that it was not meant as an offensive or dismissive comment.

    Cipro has obviously devastated you and your family, and for that I am so sorry. I realize that it’s not worth much, but you have my sympathy and prayers. I hope that you find something that helps you, and that you are able to heal. It sounds like you are trying many things that people are suggesting, and I hope that they help you.


    • Ken ward November 8, 2017 at 8:36 pm Reply

      Thank you

    • CAWS November 11, 2017 at 1:16 pm Reply

      Lisa ,
      Thanks for your support. I have been coming to this site for years [ though don’t often comment] and have told many fellow sufferers that this is the best site for access to the latest science on FQ poisoning, suggestions for helping yourself & most hopeful for surviving & even for the lucky ones recovery. Actually I recovered after my first Cipro poisoning after a YEAR in bed, but I was a young fit triathlete that didn’t have any bad habits either. Unfortunately we had no idea back in 1989 what the culprit was; so I continued to take the FQs the doctor said for sinus,UTIs & even pneumonia getting worse & worse until I turned purple from head to toe & had hallucinations from third generation Factive 7 in 2005.
      Thanks for all you so.

    • Harriet November 12, 2017 at 3:18 pm Reply
  23. Dan November 9, 2017 at 7:12 am Reply

    hello everyone again,
    my symptoms are listed above just repeat them to make a full picture..
    I want to share my symptoms again and Please please please if someone of you experienced the same please share your experiences.
    For now my main issues are ballance loss, when i stand up i am like in a boat and if i walk straight and turn my head while walking to right or left i even loose my balance worst.
    my hearing sensitiviness dissapierd at a some level but have a good tinitus at night
    i heave a weird pressure on the side of my head and inseade my mouth right obove my tounge like somebody is pulling my brain and apliyng pressure on it..very weird sensations.
    the ffeling off balance and tremors by the end of the day are increasing a lot a lot,and that pressue too.
    from yesterday a weird sensation of warm in back where my spine is between shoulders and numbnes of skin on face where chin and cheeks are located.
    Ive been today to a new neuroligist..
    very weird i told him my problems then he had me laid down and did the test with his hammers and vibration feeling.then he put me to rise my leg put the heel on knee and trace it till down to feet didi these with both legs, he had me tot do this multiple times because he said my legs are kind of shaking.
    Asked him about floxing..had now idea no clue..
    looked into computer and then gave me a piece of paper with diagnosis:
    Sensorial ataxia..
    Tricortin 1000 I/M nr 10
    Ipigrix 1.5% I/M nr 10
    Keltikan 1caps *2 times dayly one in the morning one in the night
    Milgamma N1 1caps *2 times dayly one in the morning one in the night
    what is all these? can these help me at all?
    the previos doctor gave me alprazalom and aminitrilin wich i did not take..
    please tell me what is happening with me?
    i fineshed my 14 days 750 levofloxacin course by end of july and on 26 of july i started having vertigo then head presure then ear pressure then hering loss then tinitus then brain stupitidness then inability to concentrate and big loss of balance..
    what should i do?Share your healing stories?please share youyr real experiences..
    sorry english is not my native.
    I hope everyone will get cured vrom these.

    • Joanneg November 9, 2017 at 9:00 am Reply

      Dan I had and still struggle with all the symptoms you are trying to explain. I believe it is swelling in the brain. I never had it diagnosed because I quit going to the doctors, but one day i used an Omega 3 patch on the upper right side of the back of my neck, and I could feel it reducing the pressure which helped with the dizzy, off balance, brain fog, and feelings of getting retarded. Omega 3’s are anti inflamatories, so to me it confirmed that it was definitely inflammation in my brain, and that’s exactly what it felt like too.
      So I would try the Omega 3 patches or supplements, plus the transfer factors I posted about are supposed to be powerful anti inflammatories, maybe that’s why they help me so much, I don’t know, but i think you should try them. And I would be scared to death to take any pharmaceutical that your dr gave you.
      Also, COFFEE will make all my brain issues way worse!!! And it’s not an immediate reaction, I think it builds up, i don’t know, but i tested it so many times because I love coffee, but every time after about 2 days of drinking it my brain starts getting worse.

      • Andrea November 9, 2017 at 9:44 am Reply

        Hi Joanneg. I finally got my 4life trifactor supplement. I already took one pill, but it’s only been a few hours, so of course I can’t tell you anything, good or bad. Anyway I’d like to ask you some infos,if you don’t mind. Do you take it on an empty stomach or with food ? And also, do you take the 2 capsules togheter or in separeted doses ?

        • Joanneg November 9, 2017 at 10:06 am

          I read to take it on an empty stomach, so that’s what I do, and I take 1 in the morning and 1 about 4, and some times I take a 3rd one in the evening.
          Good luck! I pray it helps you too😊

      • Joanneg November 9, 2017 at 10:31 am Reply

        I also want to mention magnesium spray oil because it helps A LOT for my brain issues and all my other symptoms.

    • Ken WARD November 9, 2017 at 3:39 pm Reply


  24. Joanneg November 9, 2017 at 12:27 pm Reply

    It’s been 2 weeks since starting the 4life supplement, and it seems like I need to take more some days. BUT, i tried to drink coffee and got some of my symptoms back, and I switched to organic cigarettes cuz I thought they would be better cuz they don’t have all the added chemicals, but got even more symptoms back, i found out the have way more nicotine in them maybe that’s why idk.So I stopped the coffee and went back to my regular smokes, but i wasn’t getting as good as I was, so i used a glutathione spray that I had ordered and it took the remaining symptoms almost totally away. When i was flared up for those 2 months i was getting desperate so i ordered 3 things i have never tried and so far two of them are working great!!! The other one is the hyper immune egg supplement, but i havent tried it because its already in the 4life supplement. But anyways, here’s a link from where i bought the glutathione sprayhttps://www.amazon.com/gp/aw/d/B00TG2TRL6/ref=sxbs_sr_ss_b_2_a_it?ie=UTF8&qid=1509577397&sr=2
    The spray helped so much I think tomorrow I’m gonna only use it by itself to see how much it works on it’s own, but it might be the combination IDK?
    Anyhow I’ll let you’s know how that goes😊

    • Bob November 9, 2017 at 12:46 pm Reply

      I’m going to go out on a limb and say maybe you should quit smoking. Your just adding more toxins that you have to detox with the glutathione.

      • Joanneg November 9, 2017 at 12:58 pm Reply

        Yea Bob, I definitely should, because I think they make my symptoms worse, but i have been able to overcome them YET, hopefully some day soon I will.

  25. Joanneg November 9, 2017 at 12:37 pm Reply

    I don’t know why that link didn’t work, anyhow it’s called CCL Advanced Glutathione spray, and I bought it on Amazon, I think it’s 25$

    • Michael Teeter November 9, 2017 at 5:44 pm Reply

      I bought and used the stuff it is great. Doesn’t taste great but it an’t no IV.

  26. Michael Teeter November 9, 2017 at 5:43 pm Reply

    I hate to say this but welcome to the club brother. I would not get offended for testing for other things. I am floxed over beyond all recognition! But I also have AAE super rare autoimmune disease Adult Auto Immune Enteropathy. You could be floxed and have lymes.
    there is no law preventing us from having a number of things.
    I did the lymes tests what is interesting is that it has to be done from a tick from the region you were bitten for it to work.

    I wish you the best.
    Michael Out!

    • Ken ward November 9, 2017 at 6:28 pm Reply

      Actually I just put it all together, after reading about bezozs..on this site, my Dr had me on Valium for years as a muscle relaxant for old football injury, the govt started getting wierd about controlled substances he took me off them in 30 days, I was still going thru benzo…withdrawal 2 years later, and at that exact time he gave me the cipro, I then became deathly I’ll with all cipro symptoms, tried to tell him the cipro hurt me bad, he did nothing for 3 years. Finally when the symptoms were so bad it was like I had Parkinsons, and terrible anxiety and all the other symptoms he refused to aknolag HE TREATED THE ANXIETY WITH KLONOPIN WHICH HE STILL HAS ME ON, I’VE GOT A DOUBLE WHAMMY HERE CIPRO POISONING 100 FOLD DUE TO HIS LACK OF KNOWLEDGE ABOUT WHAT HE WAS PUTTING IN MY BODY, I’M SCREWED, AND I HOPE THE STATUTE OF LIMITATIONS HAS NOT RUN OUT, BECAUSE I’M SUING THE BASTARD BUT WITH MY LUCK IT HAS RUN OUT, JUST LIKE THE WAY I WAS GIVEN GENERIC CIPRO! THIS IS A REAL LIFE NIGHTMARE! I WOULD REALLY LIKE JUSTICE THIS HAS RUINED US FINANCIALLY AND I WOULD LIKE TO KNOW MY WONDERFUL WIFE IS FINANCIALLY TAKEN CARE OF WHEN I GO, WHICH I’M CERTAIN WILL BE SOON

  27. Michael Teeter November 9, 2017 at 5:49 pm Reply

    People the problem is that the medical system is all messed up! It is designed for making money. Drug companies push their product to Doctors. Doctors do not have enough training to treat you really. It is a shot gun effect and never gets to the problem. I always ask my Pharmacists on meds now they know a lot more about them and they are none biased they do not get kick backs for suggesting drugs!
    Doctors should people as individuals, treatments tailored to the person. But they can’t make billions that way I guess!
    I look forward when we won’t need doctors and drug companies anymore.

    • Ken ward November 9, 2017 at 6:46 pm Reply

      Western medicine is Russian roulette AND I FOUND THE CYLINDER WITH 2 BULLETS IN IT INSTEAD OF ONE OMG

    • Madge hirsch November 10, 2017 at 1:42 pm Reply

      Unfotunately it is not much better here in Europe where we do not have a totally private medical system. There is still the revolving door between our equivalents of the FDA and the drug companies. Here in France we have had 2 health ministers who were in pharma and there is enormous denial here about the dangers of FQs. Until totally unbiased drug research can be done on a non profit basis ( and this would have to be funded by tax money) for the benefit of patients and not shareholders things will not get better. It is interesting that genuine breakthroughs can be made where research into preventative ( and thus money saving) medicine is priveleged. The preventative effects of adequate vitamin d levels on breast cancer were known in the Soviet Union long before vit d research took off in western countries. It was noted that women who sunbathed topless had lower levels of breast cancer.
      The German government recently requested that the European Medicines Agency look into the permanent side effects of FQs . I believe they were supposed to report by now but zilch so far. Bayer’s influence ?

    • ursula November 11, 2017 at 12:04 am Reply

      Hi Michael
      I remember you had a lot of stomach related problems, did you have the acid relux, i think as soon as I went into peri menupause symptoms 6 months ago (IM 49 and fell all floxed over again anxiety depression), because I guess hormonal fluctuation. I developed severe silent reflux, it never goes away. At first thought I was dieing of a virus or had whooping cough. it causes thick sticky nasal drip, cough, breathing problems, sometimes spasm in throat, sometimes food stuck, and sometimes choking feeling, lump in throat, I swollowed camera awake (aweful) and nothing wrong, just a little gastritis, no H pylori also no HHernia. So havent started with PPI’s, please if you have advice tell me.im scared of ppi

      • L November 11, 2017 at 9:27 am Reply

        Ursula, please do NOT go on PPIs. They destroy the good gut microbiome you need for health, and most people have too LITTLE not too much stomach acid. (I suspect some of the thick stuff you are experiencing is bile.)

        The Cipro destroyed my gut. I dropped 36 lbs, was unable to eat anything but smoothies for months. My stool was WHITE. I started taking DGL licorice was helped a little, but thankfully, the ND I started seeing put me on HCL Betaine. It is tricky to know how much to use so it’s best to have an integrative MD or ND (maybe even an acupuncturist would know). I ended up having to take 5 with every protein meal. Gradually over the next year I got down to one, and now I rarely use them at all. I do have digestive enzymes which I take on occasion too. Please stay away for PPI. You are just asking for more pharmaceutical damage.

        • A.Coleman November 16, 2017 at 8:01 am

          Ursula, I too would strongly urge you to avoid the PPI. Shortly after I was floxed with the onset of severe digestive issues in addition to the other common flox- symptoms I was diagnosed with an ulcer. This was BEFORE I had put the puzzle pieces together and determined I had been floxed. In other words I still trusted doctors without questioning diligently. I took the PPI she prescribed and it took me from mild floxing to severe and I still haven’t recovered over 2 years later.

          I really think my reaction to the FQ would have been relatively mild except for a doc who told me to take NSAIDs with the cipro for the pain and the PPIs. Eventually I developed gastroparesis.

          I was getting a lot better around a year ago when I too started having reflux. Not silent but only when I burped. I burped all the time too and it was especially bad later in the day around 5 to midnight. I fought taking any medication for a long time – probably too long. I did try taking HCL and using bitters, but that didn’t seem to help. I used the ignore it time will heal me approach for nearly 6 months BTW.

          Finally, I took the lowest dose of an H2 inhibitor just to calm things down and give my throat a chance to heal. I took it for only a month and then tried to stop completely.
          That didn’t quite do the trick so I started taking a single daily dose of Tums (1000mg) – taking it shortly after dinner worked best. I took that dose for two months and am now down to taking a 500 mg Tums only at need – which equates to about once or twice a week. I am usually pretty good most days until around 5:00 then start having some issues on certain days.

          I too believe that I am actually a bit low in HCL. However by Gastro (who does believe I was floxed) – thinks that it is best to let my body slowly readjust rather than adding HCL. I do take one or two HCL with my lunch on days my digestion is off and sometimes 1 with dinner – at his suggestion, but on days when I am feeling better he suggested I not take anything. Not 100% sure I agree but he is the one who came up with the plan above that took me from very unhappy to mildly unhappy with my digestion.

          Don’t know if this will work for you, but I really would avoid the PPIs too. If nothing else try the H2 inhibitor first, it is quite a bit milder than a PPI, while being stronger than an antacid. Remember, the PPI will completely shut off your acid and will impact nutrient absorption which is a big issue for all floxies but especially those of who battle digestive issues thanks to the nerve damage of the FQ.

        • A.Coleman November 16, 2017 at 9:49 am

          Ursula, Forgot to mention that just like the supposed UTI I had that led to the initial floxing I didn’t have the ulcer either – after they did an endoscopy they got me off the PPIs but my then it was too late for my digestion.

          Love that two supposed ailments – neither of which was real and two years of my life sacrificed. But that is a common floxie experience, I know.

      • Michael Teeter November 13, 2017 at 1:34 pm Reply

        Yes that is what they thought anyway. Not I have been diagnosed with Adult Autoimmune Enteropathy. The PPIs made everything worse. Learn to test your acid level. I had low acid and so PPIs were a bad idea.
        As of right now I am on Entocort and a low dose of Tacrolimus for my disease.
        The acid or stomach pain has gone away.

      • Michael Teeter November 13, 2017 at 1:37 pm Reply

        Have you had your stomach acid levels tested? L is correct most people have low acid. If you have low acid you may want to talk to a Doc or ND about taking a supplement. Also a good probiotic helped me. Antibiotics in general destroy our microbioms so we have to educate ourselves to rebuild them.

  28. Ken ward November 9, 2017 at 9:32 pm Reply

    They didn’t enforce it, obvious broken corrupt systym, why do you think they would not enforce Bayer to send it FOR 9 YEARS, something dirty is going on here!

    • Barbara Arnold November 10, 2017 at 3:34 am Reply

      I am really sorry for what’s happened to you. Of course your angry, we all are. I just want to say with the greatest respect that lots of us have thought at some point we were dying, lots of us have had a multitude of symptoms like yours and recovered, or are in recovery. Everyone on this site has suffered. had their lives destroyed and devastated by this poison. We all understand what you are suffering, and everyone that chips in to your suffering does it with the best of intentions. No one is disagreeing with you, please try and understand that. L has suffered immensly and is a really gutsy lady who is shouting about this sheer injustice to anyone and everyone. Please Ken, if you think you are dying, and I have no idea if you are, because I have seen others like yourself recover, let all this shit go for now. Maybe you could consider what you could do to at this moment in time , to look for ways to make some time for you and yours moment by moment. All of us only have NOW . No one knows about tomorrow. I just know that the terrible stress you are going through does not help you in any way whatsoever. When and if you feel stronger in the future, you can go after the bastards that did this to you then. Maybe your insurance will cover you for Hyperbaric Oxygen Therapy ? It has helped me a lot, it helps heal the mitochondria, but they use it for MS patients, also diabetics and cancer patients. Again this is my chip in to you because I can feel your desperation. It’s just a suggestion as is everything I’ve posted here. Please take it in the spirit it is meant towards you. You are not alone, try to share with your wife, she can help you. My husband has really helped me get a perspective on this. If it was my husband I would want to go through this supporting him as much as I could. Hugs and love Barbara

      • Ken ward November 10, 2017 at 3:53 pm Reply

        Thank you Barbara, you guys don’t get it, I am both benzo and cipro poisoned 5 years now I never have an improvement, never and my Dr put me back on a benzo for the anxiety from the cipro poisoning I had no idea this was a horrible thing to I just wanted some kind of relief and now I’m sooooo bad having alzhiemers…sp? Symptoms loss of limb use, and even more loss of emotional control, I’m not going to list it all it would take an hour, I WANT TO DIE I’M READY, THIS MUST STOP! And please imagine what it feels like, when your a man who’s whole life was about patriotic service to my country, I PROTECTED THESE PEOPLE, both by serving in the military, as well as litteraly protecting the politicians in wa. State I litteraly would have taken a bullet, to save these people, but they don’t look after my safety, that really hurts and angers me, but anyway I appreciate your kind gentle words, I am at peace with dying I can’t wait I pray to my lord and savior everyday to take me home, and I don’t know if your a Christian or not really none of my buisiness but I’m telling you god is answering my prayers l feel angels around me everyday for weeks now, and undeniable things happenning, and I know why the angels have been around me, and making it so obvious, things like I’m listening to music it’s the only thing I can focus on, I LOVE MUSIC And the song will just change in the middle of what I’m listening 2, to another song with a direct message to Me, my lord has sent these angels to restore my faith and get me ready, and tell me you will be home soon, and I’m so glad he did because my faith was wavering a little after this, and the signs are so obvious my faith in God is stronger than its ever been! I understand not all people are christians, and are going to think I’m nuts, but I don’t care PRAISE GOD AND THANK YOU MY LORD I NOW UNDERSTAND, I would like to appolagize to anyone I went off on that’s not who I used to be before this, I was a very kind gentle man who was a protecter of people, I wish you all the best! I love you all, I mean that! And may God bless you all and restore your health!

        • Bob November 10, 2017 at 5:00 pm

          If you really want to die soon then you probably will. That will not be the end of your existence. I had a very wise teacher who said, “It is much more gruesome to be the living dead than to pass on.” That makes since to me as I believe we are spiritual beings having a physical experience and the spirit lives on. On the other hand a near miraculous recovery would be an awesome thing. The Blu Room is something no one on this forum has tried. You have nothing to lose by trying it. I didn’t want to mention this before but it is ljterally designed to put you in another dimension. All healing takes place on higher dimensions. They say it is very good for PTSD so it must relieve stress. Regardless of how long you have left on this plane maybe it could bring you some peace. GOD bless you and bring you peace.

        • Ken ward November 10, 2017 at 5:20 pm

          God bless you barbara

        • Ken ward November 10, 2017 at 5:21 pm

          God bless you bob

        • Barbara Arnold November 10, 2017 at 5:59 pm

          Ken, peace and love to you. You are in our thoughts.

        • Harriet November 12, 2017 at 3:02 pm

          Ken With respect you need to get off the s… benzos. here is a link to show you that it is possible. Perhaps a lot of your emotions are being triggered by the dratted benzos as well as the Cipro poisoning, but you can try to get off the benzos but SLOWLY.

          This will give you a goal to aim for. You know you can do it, you are a fighter.


      • Ken ward November 10, 2017 at 4:07 pm Reply

        Oh one final tought, I PRAY FOR THE UNITED STATES, it’s gone to hell in a handbasket, no longer the country I was raised in, and I pray for the world, all this craziness must stop this isn’t how human beings are supposed to treat one another, i.e. racial divides mass shootings, terrorist, etc my lord what has happened?

  29. L November 9, 2017 at 11:03 pm Reply

    Hey everyone. Just sorting through my very thick “health” file where I collect info on possible treatments. I came across a brochure I obviously picked up at my doctor’s office. Now I have not tried this and really know nothing about it, but thought I would throw it out there if anyone is interested in investigating it for themselves. IT is called BioPhoton Therapy. It uses light (no radiation) and it is supposed to help with pain and inflammation. It lists things like knee pain, arthritis, headache, and so on. Again, I know NOTHING about it. Just reading from a brochure.

  30. Dan November 10, 2017 at 3:34 am Reply

    new things..
    numbness of the right foot just skin?
    tremor of hands? epecialy when lifting fingers..hot sensation across back?

    • L November 10, 2017 at 9:16 am Reply

      Hi Dan, One of my first side effects was number fingers and toes. On my toes, it is not all around every toe, but different sides of each toe. The numbness moved into the ball of my foot and at one point up my calves. I am almost 3 years out and the number in the calves and ball of foot went away. The numbness around the toes is still there but much less.

      For a period of a few months, early on, a couple fingers on my left hand spasmed wildly out of control. (I cannot MAKE them do this if I tried…it was so bizarre.) The spasming went away long ago. The numbness also went away, although those two fingers seem a bit slow to react now, like if I am trying to catch something.

    • Joanneg November 10, 2017 at 9:40 am Reply

      I like most floxies got every thing you mention. You will probably get so many things you won’t be able to remember them all. They’re all very scary, but it helps knowing we had them, and we survived, and a lot of us are moving towards healing. Though it does take a very long time.
      If you don’t mind sharing, what are you doing or taking to help, also you have to look at what are you doing that might be making it worse. For example, what supplements are you taking, or medicines, are you a drinker-coffee or alcohol, are you a smoker ect.
      Here’s a list of things I know helped me in the beginning
      Magnesium- at least 150 mgs every 4 hrs and spray when needed for sore shoulders, back, ankles ect.
      Probiotics- i use VSL#3
      Colostrum- 1 tbsp in the am and 1 tbsp in the pm

      These are my new supplements that I think are better, so far, than the ones above, but they are very new.
      4life transfer factor- 1 in am 1in afternoon
      CCL Advanced Glutathione spray- 8-10 sprays 2x’s a day

      I think out of all of these the one that gave me the most and quickest improvement is the glutathione spray, but i would definitely take magnesium cause I always get worse without it, also remember a lot of times what helps me might not help you. But you have to try some of the things to help support your body.

      • Andrea November 10, 2017 at 11:01 am Reply

        Hi Joanne. I’ve been taking the 4life trifactor supplemnt for 2 days now. I didn’t notice anything yet. Actually I was doing quite good these last few days, so yesterday, I was out with a friend and I ate an ice cream. Today I wake up feeling good, physically and mentally. Ate a good breakfast : oatmeal, a banana and egg whites. After a couple of hours I started to feel all my symptoms coming back. Pain in my ankles, legs and shoulder, But expecially I felt weak, fatigued and dizzy. It was like having a sugar crash. It was like this summer, when all my symptoms fleared up. Right now I’m quite sure it was the ice cream. Like many of us, I became sensitive. Sensitive to any kind of stress. And in my opinion junk food, like ice cream, is somehow a form of stress. A stress that my body can’t handle anymore. So right now, I’d like to share with you guys what,in my opinion, helps me to feel better or at least hold back the FQ side effects and what really makes things worse.
        1 Diet.This is defenitly the first thing I’d say helps the most. Eating LOTS of fruits and veggies, whole grains, legumes, healty fats and some fish, organic eggs and poultry. But avoiding any kind of non organic animal products but expecially dairy.
        I think dairy and sugar, are the worse for me. Dairy seems to make all my joint/muscle aches flear up and sugar, well, I can’t handle it anymore. Just like caffeine it makes me feel weak and dizzy .
        IMO eating a 80% vegeterian/organic diet, full of antioxidants from natural sources and avoiding, as much as I can, nasty chemicals, antibiotics and hormones, helps me a lot with my aches and my energy issues as well. As a matter of fact I’d like to go vegan for a couple of weeks and see what happens.
        2 Physical activity. I know it could sound like mockery, when you have pain all over your body and feel like you’re going to faint 24/7, but doing any kind of physical activity, as much as I can, helps me. Physically and mentally.
        3 Now, for the supplements, I think that 99% of them don’t really help me at all. And I’ve tried quite a few. I think magnesium, wich many of us find beneficial, never really helped me. Actually it seems to make pain even worse sometimes. Glutathione, joint supplements, multivitamins, vitamin c, ALA and many others never did anything to me.
        The only supplement that seems to help a little is vitamin D, togheter with vitamin k. When I take it,my aches calm down a little bit. Like I wrote at the beginning, I’m currently taking this 4life supplement. It is supposed to help your immune system. I will report any change in my symptoms,if there will be.
        Please let me know if you find something interesting in what I wrote.
        Thank you so much,

      • Deb November 14, 2017 at 10:34 am Reply

        Hi Joanne,

        What kind of relief do you get from the glutathione spray and where do you spray it?

        You have probably done a lot of detox at this point and it doesn’t bother you. I am 4 months out and haven’t done much detox yet. Thanks.

    • Madge hirsch November 10, 2017 at 1:46 pm Reply

      I have the hot sensation across the top of my back from time to time. It is not painful just wierd.

  31. ursula November 11, 2017 at 12:20 am Reply

    My Vit D is 20ng/mL moderate deficiency, usually I cant handle supplements, what must I do? I also suddenly have severe silent reflux 6 months now. Ive entered I think perimenupause (age 49) so anxiety back with a force and crying spells, my throat and lungs are affected by the silent reflux, has a permanent thick sticky nasal drip and shortness of breath, but i feel the water in my ears also (reflux). Scared of permanent damage. endoscopy showns only a little gastritis, no i hear you must get a scope through nose to check silent reflux etc, must wait till next year as after a lot of blood tests, angiogram, ct scans on lungs and sinuses all clear, my medical aid is not paying anymore. Last question how does floxies do in perimenupause/menupause, I hear it can carry on 5 years. bloodtests useless as it doesnt show in blood necesseraly. nearly dies of 1 antidepress they tried on me cymbalta did not sleep i am nausious but that one made me so nausious for 24 hours, (sorry grammar Im Afrikaans speaking RSA)

    • CAWS November 11, 2017 at 12:59 pm Reply

      The silent reflux is HORRIBLE & my biggest nemesis at this time. Been in menopause for 20+ years & rarely have hot flashes anymore but hormones are in the toilet. Tried a “bioidentical” pharmacy & after 9 months & 2K they did not help any of my symptoms but managed to bring back my periods!!. Now I am using [way cheaper] over the counter natural Progesterone & Estrogen & DHEA creams. Seem to be helping some. Sleeping a little better ; just had blood work ;we’ll see. If nothing else it helps the dry skin!
      I have had four endoscopes dropped in last 16 years. EVERY one showed gastritis [I don’t drink] NONE showed any H-Pylori. My DNA workup showed a break in my methylation pathway [ gee ya think FQs?] and all the healthy dark green veggies & brassicas [like broccoli,cabbage etc] cause a sulfur nightmare burn. I finally caught on that my problem was ammonia [ extremely alkaline burn] from probable SIBO because of the mountains of antibiotics, die off from killing pathogens & excrement from all the fungus that persists despite my best efforts. It also gives me very scary brain fog. Acid reflux meds make it way worse but Activated Charcoal stops it cold. It sure beats waking up in the morning with eyes,ears, throat & mouth burned & having to deal with the sinus & other infections that result.

    • Madge hirsch November 12, 2017 at 11:53 am Reply

      Ursula – that is seriously low vit d especially for a floxie. I would try supplementing with the aim of getting it up to 50ng. Before I was floxed here in 2014 I was diagnosed in 2007 with a vit d deficiency of 13 ng /l after visiting the doc with a severe tendonitis in my left thigh. After a loading dose of 600,000 iu it was better within a week. A higher level of vit d could help with many of the problems you have especially the depression and anxiety.

      • ursula November 14, 2017 at 7:28 am Reply

        thanks Madge, did you use 600 000 IU over how many weeks, I mean the amount p day? one cant overdose on D?

        • Madge hirsch November 14, 2017 at 4:29 pm

          The 600 000iu was given in one dose. Here in France it is on prescription only. It comes in a tiny glass phial dissolved in alcohol. It has the effect of puttting up the level quickly. I now take drops every day. The problem with low vit d is that some people (and floxies can be among them) do not absorb the supplements very well and can take ages to get their levels up. The only way to know is to retest to see how much the level has gone up. Before I went on the drops which are a vit d analogue( ie what results after the liver has done the first process) I was taking 3000 iu a day of d3 from a health food shop and could not keep my levels in the desirable range. My husband was taking the same dose and his levels were way above mine. That was I think because my liver was not doing the necessary. With a level of 20ng and winter on the way many vit d researchers would recommend between 5000 and 10,000 iu a day for a couple of months and then test to see how levels are.

        • Debs November 15, 2017 at 11:42 am

          Hi Ursula please be aware of the necessity of also taking Vitamin K2 whilst supplementing with D3 , ( keeping in mind the blood clotting issue / anticoagulant caveat mentioned ) . Very important, as is regular monitoring of D levels & adjusting dose as necessary to keep D levels within the optimum range., our levels can fluctuate quite widely depending on ability to absorb this / time of year etc.


    • CAWS November 13, 2017 at 1:52 pm Reply

      Beware of Drs who want to give you a vitamin D shot. It is synthetic D2 NOT D3 which is the one you need. Also most of the shots are suspended in peanut oil. They gave this to my brother [his tested level was 9!] and he is allergic to peanuts! I buy the inexpensive drops from http://www.vitacost.com & take 3-4 drops a day [6-8000 iu] for optimum test levels of 50-80ng. took a coupe of months to bring levels up.

      • ursula November 14, 2017 at 6:00 am Reply

        Thanks for info CAWS, hope i dont feel weird taking D3, as i suppose it will not help to lie in the sun like 20 minutes per day, may be too slow to get it up (although in South Africa the sun is very potent now), I see on internet Dr Mercola’s D level is 70!. I have this silent reflux (not tested yet but i know it is it and i feel the GERD also (got it as from 6 months ago non stop. One guy said to strengthen muscle guess what – Vit D. and my throat has this thick nasal drip, even my breathing is difficult

        • Madge hirsch November 14, 2017 at 4:39 pm

          If you do not have photosensitivity from the floxing then you certainly should lie in the sun ( no sun cream) as this will help to get it up though older people make less in their skin than young people.20 minutes of midday sun can produce about 10,000 iu! Mercola advises to get as much vit d possible from sensible sun exposure- this is what nature designed. Also there are other benefits from sun bathing not related to vit d. Just don’t burn. The torso makes the most followed by legs so on with the bikini!

        • A.Coleman November 16, 2017 at 10:07 am

          Ursula, Hi haven’t been on here in a few weeks, but see my post to your earlier one about your silent GERD.

          I have more traditional GERD and like many floxies very low vitamin D. At the worst it was down to 16ng/ul. Today it hovers around 35 ng/ul but even with supplementation of 7500 IU / day of D3 I can’t get it up. I had elevated it to around 50 ng/ul while supplementing 5000 IU / day. I tapered off a bit to try to maintain there. This was about 3 months after the reflux hit. Next time I got tested I was down into the mid 20s. So I upped it to 5000 IU again but it didn’t go up this time like it did last time. Likely due to the stomach problems my absorption is crap even with the 7500 IU / day supplementation. I do take both K2 and Mg which are important co-factors for vitamin D, but suspect I am very low in Vit D intrinsic factor which stops absorption.

          Having said that lying in the sun still works – so if you are in the Southern Hemisphere and can get in the sun I would strongly encourage you to do so. As Madge noted if you don’t have the phtosensitivity some floxies have this is the best thing to do. I live in the US and with the onset of winter here I know my Vitamin D levels may not stay up. Hoping my improving digestion will help me absorb more – but know for sure that Vitamin D is one of the key supplements that has aided my slow, slow, slow recovery.

  32. ursula November 11, 2017 at 12:42 am Reply

    What is Ondamed treatment

  33. jérôme November 11, 2017 at 5:24 am Reply

    Hi,who tried wobenzymes for pain

    • Barbara Arnold November 13, 2017 at 1:41 am Reply

      ‘I’ve had it in the past, didn’t work for me

  34. Tim November 12, 2017 at 3:11 pm Reply

    Hey guys I’m posting here to hear from the community regarding their healing,journey and talk about different treatments, I have been a long time follower and read a lot of the stories and it’s time to add my input and share with others some tricks that helped me .
    I was floxed in dec 2012 took cipro to clear up a suspected prostate infection,I don’t remember too many issues when taking the pills but weeks after treatment I have severe Achilles’ tendon tightening and burning ,weak legs , could barely stand up for 10 mins or walk to the corner store or down the stairs at night, I took many supplements and tried many things , I feel like I have healed greatly from the tendon issues through the years I still have flare ups and tendon tightening once in a while but I have been able to get back to walking miles and running thank god!,
    problems I have that haven’t healed are yet – double vision , I seen a nuero right when it happened about 8 months after taking he pills ,he didn’t find anything ,ophthalmologist told me it was “astigmatism” almost believed him until realizing it’s not something you just get ,and reading countless other floxy stories ,
    -Burning in my legs ,comes and goes
    – balance issues , other cns related things like anxiety, hearing sensitivity in the ams.

    Things that I have tried and I think helped big time are
    – Floatation tanks , really good for anxiety and calming the nerves and relaxing tendons
    – LLT , laser light therapy on my Achilles’ tendon really helped it is worth a try if you have tendon problems , my PT even showed me in her laser booklet thing that they do treat ‘cipro induced tendonitis ‘ which gave me a lot of hope
    – massage therapy ,lots of it
    – Epsom salt baths ,
    – Glutathione IVs with Vit C pushes and Myers Cocktails , I felt a good difference ,had 7 sessions but will be doing more when I can afford too .
    – supplements Mito Q (read about it here) , PQQ, I feel really gave me energy and helped the first time I took them , lifted the fatigue ,brain fog and was running /cycling more than ever.
    I’ve taking many other supplements and things that probably helped the healing along with time but those are the ones that felt right away ,

    things I’d like to try in the future are Stem cells , is there anyone here that has gotten stem cell treatments if so what kind and how was it, I feel like that will be the game changer for me but it Is just a money issue as it cost thousands to get .PRP sounds good to me too or regenex treatments for tendon issues if you can afford it, but right now I am dealing with CNS flare ups and get really dizzy and balance is been off for weeks with headaches , feel like I’m rocking in a boat standing up , any input on how to deal with that stuff would be appreciated,
    Also has anyone got their doctor to acknowledge that cipro can cause these problems? , I will be brining in the FDA warning label in his office and read it with him so he can realize what is going on and stop brushing my symptons off as anxiety or some other bs,my blood work and tests always come back good and he thinks I’m a hypochondriac,but I know I was healthy 25 year old male prior to taken cipro and had no tendonitis problems, neuropathy or nerve damage or blurry vision ,ugh good luck to all of you fighting the battle of this poising, thanks for reading, hope to hear from some of you

    • L November 12, 2017 at 3:32 pm Reply

      Hey Tim, glad to hear you are doing so much better. Running! Wow. I won’t regurgitate everything here…was severely floxed with over 30 side effects, some terrifying (gasping for breath, asphyxiated by everything) I too had major vision issues. Blurred vision, greatly diminished visual acuity, enormous, unrelenting floaters that made it like looking through gauze. I also for a time had a weird thing where my brain did not put the two separate images together from each eye. It wasn’t double vision, but two separate pictures. Very disconcerting. I did NAC eyedrops 4x day for a year and the floaters are much improved (still there a bit.) I still have light sensitivity and it almost looks like a shade pulls down over the more damaged eye, when I am in bright sunlight or under fluorescent lights. The separate images thing luckily resolved. I don’t know if it did so on its own, or because of the IVS. I have now had 90-some IVs in almost 3 years. (Yea, put me in debt.) But most of the healing came within the first 30-40 IVs (high dose C, phosphytidylcholine (which I did more than any other), myers, and H2O2. All but the last were with a push of glutathione.) I think your double vision could be nerve damage or maybe something else. A friend of mine go double vision after a skiing accident. She went to an opthamologist who has her do eye exercises, and when she does them, the double vision goes away!

      I think stem cells are a terrific idea. You could only get them before from bone marrow or adipose tissue but now some labs do them just from blood. I would opt to do that, using my own blood. (I have been told that the stem cells are free from the other damage you may have gotten from the Cipro, like the mitochondrial dna damage.) I would also give PRP a try although not sure how effective it would be against this beast. Something that helped me tremendously for post-Cipro torn meniscus was prolozone therapy. I had both knees injected with this —a combination of ozone and procaine.) They also use it for arthritis sufferers, and in connective tissue where there is damage—like my meniscus, or say tendon damage, it helps the body repair itself, after a few months. Compared to surgery, which I would not do, it was pretty cheap. MY ND did it but you can find sports med doctors who do this now. (not to be confused with prolotherapy which is supposed work the same way but different ingredients and I cannot personally vouch for that.

      As for your doctor, do a search of fluoroqunolone associated disability via the FDA. It explains the multi-system damage of these toxins. You might also point him towards Dr Jay Cohens book: ‘How We CAn Halt the Cipro and Levaquin Catastrophe: The worst Medication Disaster in U.S. History.” As for me, I am done with doctors that need convincing. Find yourself an integrative/holistic MD.

    • Deb November 14, 2017 at 6:46 am Reply

      Hi Tim,
      Did you have any side effects from the MitoQ or the PQQ? I was floxed in July. Glad you are recovering!!

      • Tim November 15, 2017 at 6:00 pm Reply

        Hi Deb no side effects at all for me, I only noticed good things like my cells awakening again haha , mito q is expensive and I only used it twice , would like some more in the future ,pqq gave me a nice boost of energy when I first took it, hope That helps

    • A.Coleman November 16, 2017 at 10:20 am Reply

      Tim, Hi sorry to hear about your CNS symptoms. I too would consider myself close to 100% healed from tendon and muscle issues brought on by FQ. I too have started running again – slowly. However, I still have peripheral neuropathy issues and digestive issues.

      Recently I started taking Alpha Lipoic Acid (ALA) for the neuropathy and have seen a marked imporvement. I had tried ALA before about 6 months after being floxed and not noticed an improvement. Probably because I had such severe symptoms I couldn’t note any benefit. This time it really seems to have helped. Not cured by a long shot, but if I wear comfortable shoes to work I only have PN late in the day on some days and if I run, then it is triggered. I have also gotten well enough that I combine ProImunne – Glutahione precursors in a powder form – 3 days a week with the ALA – daily. I can’t do thei ProImmune every day – still some Herx reactions if I do that, but have found I can tolerate it M-W-F and it helps boost the effects of the ALA. Both are involved in the same pathway at different places. Boosting one without the other leaves the body without the needed elements for both to act cohesively.

      FYI – I get high quality ALA (expensive) directly from Cleveland Clinics and part of the reason the ProImmune is only used three times a week is due to its cost too. I get that directly from the manufacturer.

      Give this combination a try for a month or so and see if it helps you.

      • Bob November 16, 2017 at 6:37 pm Reply

        Are you going to the Functioal Medicine Clinic at Cleveland Clinic.?

        • A.Coleman November 17, 2017 at 6:45 am

          Bob, no I order the ALA through them using the internet.

      • Madge hirsch November 19, 2017 at 3:32 pm Reply

        I had similar problems in absorbing vit d supplements . My GP put me on calcifediol drops. This is what cholecalciferol turns into after the first modification by the liver. If your liver is not working very well ( and floxing is supposed to damage it) it probably does not process the ordinary supplements as it should. Since going on these drops I have maintained a level of between 70 and 75 ng/l with just 3 drops a day. This is only 600iu !!! I take magnesium and K2 as well . I sunbathe a bit but doubt my 65 year old skin makes that much vit d and I eat oily fish but then I did that before . I do not know if these drops are prescribed where you live. Here in France they go under the brand name of Dédrogyl.

  35. L November 13, 2017 at 3:53 pm Reply

    Well, F*CK.

    • A.Coleman November 16, 2017 at 10:21 am Reply


      L – thanks for sharing but this is supposed to be Floxie Hope.

      This move by Trump doesn’t show a lot of hope for floxies. – LOL

      • L November 16, 2017 at 1:20 pm Reply

        Or ANYONE! (no, I take that back. IT’s GREAT for big pharma.)

  36. Kurt November 15, 2017 at 7:10 am Reply

    Anyone here have hand tremors? Most noticeably when I’m holding something like a glass of water or piece of paper I can tell I’m shaking. FYI: I’m 2.5 years out and this is a fairly new symptom.

    • Tim November 16, 2017 at 1:48 pm Reply

      I haven’t noticed hand tremors but I get episodes of crazy anxiety that I never had pre flox where my hearing is super sensitive in the am and normal sounds that would never bother me make me jump and hurt my ears,its been going on for over a month wish I knew how to get rid of this, any one else ?

      • L November 16, 2017 at 2:08 pm Reply

        Hi Tim, pretty much everyone experiences the heightened anxiety. Lisa explained in an older post that there is damage to the gaba receptors which help modulate the sympathetic (fight-or-flight) and para sympathetic (where you want to be when not being chased by a bear.) Everyone differs in how long they have to deal with this. Mine went for over a year…but I was SEVERLY floxe, with over 30 side effects. For now avoid coffee, non-herbal teas—all caffeine. Some things that help are meditation (I know it’s difficult to try to relax enough to do that); going for walks; adding adaptogens like ashwaganda into your diet. I put a tablespoon of the powder in my smoothie every day. AS stressful as it is, it will subside. One of my memorable “moments” during this took place at Trader Joes. I was finally able to drive myself places, although it was tricky. IF someone so much as honked at me I would freak out. So anyway, this one day I am slowly wheeling my cart through the store and another woman accidentally hit my cart with hers. It was just a TAP…really, nothing. BUT, I stood there, like a deer stuck in the headlights and could not move. She kept apologizing, but I couldn’t even speak. I was just frozen, and tears started rolling down my cheeks. (I did something similar during an earthquake. not good in emergencies, apparently.) Anyhow, I probably scared this poor woman. She finally walked away. It was a good couple minutes before I was able to move again.

        As for the hearing. My hearing has worsened and I now have tinnitus…a constant hum/buzz sound. BUT for most the first year loud noises made me jump out of my skin. I was in a hospital waiting room and a big metal door slammed shut. I screamed. IT was SO loud to me. That is much improved, although even today, 2 years and 9 months out, most loud noises, like baby crying in a store, are amplified. But the really scary hearing went away. I can’t say if it went away on its own, or because of the IVs I was getting. I got a LOT of them.

      • A.Coleman November 16, 2017 at 5:20 pm Reply

        Tim, can’t offer any advice for the hearing thing. I don’t have tinnitus but my hearing is super sensitive too. The one thing that got “better” as a result of floxing. I work in a big office with lots of cubicles. I can listen to details of a co-worker’s conversation three rows over if I concentrate. At night the ticking of the clock sounds like a time bomb to me. I hear everything and it makes sleeping very hard for me. I have “dealt” with this by isolating myself using devices like ear plugs, ear buds playing music, and when it was at its worst noise canceling headphones designed for autistic children (my wife is a teacher at an autistic school).

        This is one thing that hasn’t gotten better more I have learned how to adapt.

  37. Tim November 15, 2017 at 6:30 pm Reply

    Hey guys I’ve found some good studies and hope researching about stem cells, here’s a little bit of it, basically you need to fast for a minimum of 72 hours to get the regeneration of cells and Regenerated immune system ,a lot of videos and info on the net backed by studies ,,search 3 day fast ,I always knew our bodies were capable of healing ourselves but maybe this is the key to unlocking and get the healing faster , I plan on trying this as soon as i can get the free time , can’t afford the stem cell ivs right now and I came across this , this seems like a real good alternative, I haven’t read any story on here yet about it , so I figured I’d share it and have high hopes ,

    A number of ancient health practices are proving to be effective in multiple ways. We recently posted an article about meditation, and how neuroscience can now explain what happens to the brain when we meditate. Now, scientists have discovered the first evidence of a natural intervention triggering stem cell-based regeneration of an organ or system. The study was published in the June 5 issue of Cell Stem Cell by researchers from the University of Southern California. The research shows that cycles of prolonged fasting protect against immune system damage and induce immune system regeneration. They concluded that fasting shifts stem cells from a dormant state to a state of self-renewal. (1)

    Human clinical trials were conducted using patients who were receiving chemotherapy. For long periods of time, patients did not eat which significantly lowered their white blood cell counts. In mice, fasting cycles “flipped a regenerative switch, changing the signalling pathways for hematopoietic stem cells, which are responsible for the generation of blood and immune systems.” (1)

    “We could not predict that prolonged fasting would have such a remarkable effect in promoting stem cell-based regeneration of the heatopoietic system. When you starve, the system tries to save energy, and one of the things it can do to save energy is to recycle a lot of the immune cells that are not needed, especially those that may be damaged. What we started noticing in both our human work and animal work is that the white blood cell count goes down with prolonged fasting. Then when you re-feed, the blood cells come back. ” – Valter Longo, corresponding author. (1)

    • Andrea November 17, 2017 at 9:51 am Reply

      Hi Tim, I was always interested in trying fasting/ intermittent fasting, as I always knew that giving your digestive system a break, from time to time, it’s just good for you. But I didn’t know about all these studies and possible benefits for your immune system and cellular regenaration. So today, after reading your post, I started my 3 days fast. I hope I will be able to complete it. Right now I’m on my 6th hour, I already feel the hunger…LOL. Anyway I will share my experience, if I’m able to finish it. Oh and of course I will take a break from all the supplements I’m taking right now.

      • Tim November 17, 2017 at 1:59 pm Reply

        Hey Andrea I’m glad to hear that , yes i didn’t realize the potential of fasting until recently and been eager to try it out for the cell regeneration and good stuff , I’m just waiting for some time off work ,I don’t think I could work with out eating lol, I hope it works for you and more , let me know how your going through the fast

        • Andrea November 18, 2017 at 5:35 am

          Hi Tim. It’s been 25 hrs since I started my 3 days fast. I feel weak of course, but not bad. A little dizzy, but it’s still manageable. Anyway, I’m not working this weekend, so I think you did the right thing to wait until the moment is right for you. Remeber anyway, that fasting, brings some significant health risks. I suggest you to inform youreself carefully before trying it. Anyway, like I wrote before, after reading your comment I started to google any scientfic study about fasting I could find, and I’m blown away to find out, that one the main expert and promoter of this approach is an Italian (like myself) cell biologist. Is name is Valter Longo.He works for the University of Southern California Look him up,but I think you already did it . He promotes, among other things, a fast mimicking diet, wich is less risky, according to him, than a water fast. Of course, I’m not promoting anything, I’ve just find out about him yesterday and thanks to your post 🙂

  38. Tom West November 17, 2017 at 5:50 am Reply

    Hi guys and girls, just thought I’d add what I can to help anyone out there.
    Just a basic outline on me: I am a 20-year-old male, very sporty, athletic, been training for 5 years consistently (weights and cardio) I have boxed for the past three years and have a fight coming up.

    About a week ago I took three tablets (500mg) I am normally very skeptical of synthetic chemicals so did some research. As soon as I found out what sort of damage this drug does i instantly discontinued these drugs, of which I was prescribed a four-week course (56 tablets)

    I have recently been experiencing some side effects (pain in the back of the eyes, joint pain in the arms and a noticeable lack of strength) luckily these are minor.

    I am currently at university and am close friends with two medical students and one bio-med student. We have all discussed fluoroquinolones and their effects in great detail. I myself have an interest in biology and the body and although I do not have any medical experience i would like to offer some advice in the hope of helping anyone out there. I have gained this experience over the years of training and tuning into my body as well as through my friends who study medicine.

    1.) One of the most important things, in my opinion, is diet. In the case of fluoroquinolone intoxication, a high protein diet is essential. I see that a lot of you are already young athletes and as such may already be on a high protein diet. I encourage you to increase protein intake further. This is because the body is being compromised and needs further nutritional support (protein- for growth and repair). Great sources of protein include red meats such as steak which includes creatine to help muscle synthesis (creatine can also be taken as a supplement). The most important source of protein with this diet I feel includes oily fish.
    Oily fish such as mackerel, Salomon, trout etc all include omega 3 fatty acids and most importantly DHA, which is one of the last molecules to be broken down in the body. I encourage you to do your own research on DHA and the multitude of benefits surrounding it.
    These omega 3 fatty acids are responsible for skin health and reproduction, hair health and more importantly collagen production which as we already know, fluoroquinolones are known to penetrate and weaken. Supplementation of these omega 3’s can be taken if the cost of fish is too much, however, bare in mind that real food is ALWAYS the best option.

    2.) Let us not get lost in all of the horrible side effects and damage this drug is capable of and forget what sort of drug this actually is. An antibiotic. The key is the name, Antibiotics don’t just kill the bad bacteria, they also kill the good bacteria too (microbiota, found in large quantities in the gut.) I, therefore, feel it will do no harm to include a probiotic drink into your diet once or twice a day. I personally have started to take ‘Yakult’ once in the morning and once before I got to bed.

    3.) Again another dietary point (apologies but it is very important). Do not be scared to consume internal organs as strange as this sounds. Prior to mass manufacturing of processed foods, chemicals, colors, preservatives etc, our great ancestors would have eaten things like heart, kidney, liver etc. Things such as lamb or pig liver, heart, kidney etc are can be found in most supermarkets, usually in a very small section and at a very cheap price due to the unpopularity.
    I encourage those of you reading this to do some research on the works of Dr. Weston A Price and his study of sub-Saharan tribes and their incredible healthy lives. Please read this fascinating article here: https://www.westonaprice.org/health-topics/traditional-diets/out-of-africa-what-dr-price-dr-burkitt-discovered-in-their-studies-of-sub-saharan-tribes/

    4.) Another very important point to focus on is stretching. Myself as a boxer with upcoming fights, it is crucially important to stay on the balls on the feet, anyone in the fight game will know what I mean. As such, i cannot afford to have any mishaps, namely tendon ruptures/injuries. I stretch in the morning and at night before I go to bed. Foam rolling is also a great way of stretching out the facia and massively decreasing the chances of injury.

    5.) Listen to your body when it comes to exercise. If you can participate in contact sports and fast-paced sports such as squash then great! But know when your body is trying to tell you something. Swimming is a great way of getting good cardio work in whilst maintaining and strengthening joints and collagen. If like me, you like to go to the gym, wear sleeves whenever possible e,g, knee sleeves when squatting, elbow sleeves when bench pressing etc.

    6.) The sixth and final point I would like to make is regarding lifestyle choice and mentality. It is important to critically evaluate your own lifestyle. What do you do a job? does this impact on your health? how much exercise do you get? what sort of exercise do you get? Are you under any undue stress? These factors all congregate to make a massive difference in your overall recovery. Listen to your body and stay positive, look for things in your life which bring you happiness and fulfillment and your body will reward you in more ways than you can think imaginable. One of my favorite sayings is: Your mind is your body, and your body is your mind.

    I wish all of you a speedy recovery and remember the body is a natural healer so give it all the best possible benefits (diet, exercise, lifestyle choice) it can use to get you to recover.

    • L November 17, 2017 at 8:57 am Reply

      Some good point Tom (and good luck on your upcoming sports competitions.) I would add a few things. First, those poisoned by these failed chemo drugs need to be cautious if they eat meat or other organs, that that come from organic sources. If they have antibiotics in them, they can risk further damage. As for probiotics, they are not just a good idea, they are essential, since the fluoroquinolones destroy healthy gut microbiome. Getting probiotics from foods like kefir or kim chi is good, or a good high quality probiotic supplement. Lastly, regarding the exercise, I would be very very careful of anything that can stress tendons and connective tissues like squats. Tenon rupture is a very common side effect, and it may not occur right away. (I ended up with torn meniscus…the flqs eat through any kind of connective tissue) and while I did experience a kind of crackling, popping in the knees early on, they did not actually “blow out” until a year down the road.

      • Madge hirsch November 17, 2017 at 4:34 pm Reply

        At the moment I have terrible tendonitis in my left hip and thigh tendons. Getting in and out of bed or the car is extremely painful though I can walk without too much pain in those tendons. That is not helped by the plantar fascitis in the right foot. I have been following what this young man advocates for several years with little real improvement in my condition and I’m afraid his “advice ” made me a bit cross. I hope he recovers from his reaction and it does not get worse but maybe he should consider that what might work for a young person who has only taken a minimal dose and appears to have escaped relatively unscathed might not be that effective for oldies who have been hit harder. At the moment just carrying out daily tasks is an ordeal – excercise 0out of the question.

        • L November 17, 2017 at 5:14 pm

          I hear you Madge. At my worst I was bedridden, and then for months it was difficult to even make the few feet from my bed to the bathroom. Because these toxins can cause so much damage to all connective tissue, I think if any one has any issues related to these (and even those that don’t) really need to avoid stressing the muscles, tendons, etc.

          If it is available to you where you live, and if you think you have done ok with anesthetics, I would seriously look into prolozone injections (it’s a combination of ozone and procaine. ) They use it for damaged tendons (in my case torn meniscus), arthritic conditions. It takes months to notice improvement, because it helps the body heal itself, but I have had much improvement with my knees. Mine was done by my naturopath, but many sports doctors now offer it.

        • Bob November 17, 2017 at 10:24 pm

          Well saic.

      • tom west November 18, 2017 at 2:18 pm Reply

        Apologies some of the points i have made in my post. I realize i should have been more attentive on information regarding age. I am very sorry to hear about your adverse side effects to this drug ‘Madge’ and ‘L’.

        Perhaps the points i made are more appropriate for younger athletes. Although i do not regard this information as entirely useless for the older generation with the exception of the points on exercise. I have, however worked with physiotherapists and sports scientists before and all of which have stressed the importance of stretching the muscles regardless of age.

        Apologies again for the ignorance and i wish you all the very best with your recovery.

        • Madge hirsch November 18, 2017 at 7:19 pm

          Thank you for your wishes and apologies Tom. There is nothing wrong with the points in your post. The point is that the stuff about exercise is mostly irrelevent when you are in terrible pain . Stretching is not much good either when your muscles and tendons are likely to tear. For 24 years I studied and taught Indian dance – the classical sort not Bollywood. This is as demanding as many sports. My husband plays squash and reckons that my performances were far more demanding physically than squash. I am also a passionate gardener so I like being active. Now I can tear muscles and tendons in my back just picking up a watering can that I have filled a bit too much.
          Most physios are clueless when it comes to treating FQ caused injury because it is not the same as that caused by overuse or trauma which most sports injuries involve. Often their protocols just make things worse. Scientists still do not know exactly how the damage is done to muscle and tendon by FQs . There are several hypotheses-some or all could be correct.
          What I must emphasise to you is that even if you do appear to have escaped mildly at the moment you must never take an FQ again ( make sure to aquaint yourself with all the names of the drugs in this class) and you must be VERY vigilant from now on for any twinges in your tendons as delayed damage months from now could show up even after 3 pills. I believe I was floxed years ago when I was dancing as I suffered from many of the symptoms I have now after my latest floxings though nowhere nearly as badly. I did not know as my reaction was delayed and there was no internet then. I am very lucky I did not rupture my Achilles tendons given the dance was all done in the demi plié position . If you do have delayed tendonitis try to go to a physiotherapist who knows about treating FQ damage and do not take any steroids.

  39. Joanneg November 18, 2017 at 10:24 am Reply

    Hi Everyone,
    I just wanted to give an update on the transfer factor 4life supplement. Today is day 22 and it has continued to keep me feeling about 85% normal. I just have some very low level symptoms. Also, I tried the glutathione spray by itself and it didn’t work as good, so i think combined with the transfer factors made it work so good idk.
    Anyhow, i hope whoever tried it they will post their experience.

    • Andrea November 18, 2017 at 11:06 am Reply

      Hi Joanne, like a wrote in a previous post, I’m in the middle of a 3 day fast right now, trying to “regenerate” my immune system. I don’t know if it’ll work, let’s see what happens. Anyway, since I’m fasting, I’m not eating anything, nor taking supplements. So I stopped the trifactor suplement as well. But I was taking it, 2 pills x day, for a week or so,until yesteray. To be honest with you, I don’t know if it helped me or not. I didn’t have an immediate positive reaction like the one you described. Anyway the last few days, lets say 5 or 6 days, I was doing quite good. Less fatigued and a little more energy. So it could have been the supplement, but who knows?

      • Joanneg November 18, 2017 at 11:18 am Reply

        Hi Andrea,
        Well I hope that’s what was helping you, just so we have something to control these terrible symptoms, but if not, it’s still great news that you were feeling better. Please keep me posted😊

        • Andrea November 18, 2017 at 2:12 pm

          Thanks Joanne, don’t worry I will. I’m planning to restart with the supplements after two or three days from the end of the fast. But first, I want to see how I feel…you know, let my body re-adapt to food and normal eating and pay attention to how my body will respond.

      • L November 18, 2017 at 11:18 am Reply

        If you find that all out fasting is too much for you, it seems you can reap the same benefits by intermittent fasting. http://www.mercola.com/infographics/intermittent-fasting.htm

        • Andrea November 18, 2017 at 2:24 pm

          Thanks L, I was already considering intermittent fasting, but as a new way to eat, an everyday habit. This 3 day fast it’s just one experiment, that was suggested by another member of this website. You can see our previous discussion in a few post above. Here’s a link of an interesting study :http://undergroundhealthreporter.com/fact-or-myth-fasting-regenerates-the-immune-system/ also google Prof. Valter Longo

  40. Joanneg November 19, 2017 at 12:00 am Reply

    This is a video by a naturopathic dr. explaining what fluoroquinolones do to our bodies and what you can do to heal.

    • L November 19, 2017 at 9:57 am Reply

      I agree with her re how dangerous the fluoride is, and that EVERYONE reacts (whether they know it or not) and that these pills should NOT be on the market. However my iodine levels were not low and I was severely injured. I also do not agree that just time and diet will heal all. That may be true for the connective tissue problems, but for myself with a LOT of mitochondrial and nerve damage, to all the senses. I didn’t start turning around until nutrient IVs, things that you could never get enough of from diet alone. My gut was also so ravaged I lost 36 lbs, and again, diet alone would not have helped. I had to use enzymes and hcl betaine, etc.

      Interesting she said antibiotics are LIKE chemo. Apparently she is not aware that flq ARE chemo (or were)

      Didn’t see a name anywhere…who is this?

      • Joanneg November 19, 2017 at 3:13 pm Reply

        Hi L,
        Yea, I agree she doesn’t seem to know the full scope of damage from fq’s, but i just started watching some of her videos, and I like a lot of the advice she gives because it’s always a natural approach.
        Anyhow I think her link is montrealhealthygirl, and I know she was chronically sick for years and eventually healed herself naturally and went on to be a naturopathic dr. BUT, as I watched her videos, i always thought she was floxed, and now for the first time i hear her in this video her talking about how much cipro she had taken, and I wonder if she ever realized that maybe all her problems were from fq’ s.
        But I do have to admit, I’m always thinking everyone chronically sick was probably given a fq ! 😊

        • L November 19, 2017 at 5:25 pm

          Me too! Fibromyalgia? Bet you were floxed. Chronic fatigue? Bet you were floxed. I mean seriously, how many of these “diseases” even existed decades ago???

      • Madge hirsch November 19, 2017 at 3:51 pm Reply

        I feel it is simplistic to concentrate just on the fluoride element of FQs. It is the core ring which is toxic . The fluorine just allows greater penetration of this poison into the body’s tissues.

  41. Michael Teeter November 20, 2017 at 8:02 am Reply

    Just recently had Styes removed from my eyes! I tel you what it is a procedure that is not very pleasant at all. They numb your eye area with shots and drops basically turn your eyes inside out flipping the eye lids inside out clamp down and start cutting and draining! Bright lights shining in your eyes the whole time.

  42. Andrea November 20, 2017 at 8:31 am Reply

    Hi guys. I’ve been water fasting for the last 3 days, and this morning at noon, I’ve started to refeed.So I thought to share with you my experience.
    First of all, I wanted to do it, because, as I mentioned in some previous post, I’ve read that it could be very beneficial for the immune system. Actualy it could “reset it” or at least regenerate it, according to some studies. I’m not encouraging anyone to try it, as it can be a dangerous practice,if not supervised by a specialist. Anyway here’s my experience : First 24 hrs, hungry, a little dizzy, but nothing uncontrollable. Second day, less hungry, at least for very long periods of time, but way more dizzy, at moments I thought I was gonna faint, but it never happened, and I was still able to do some light activity in my house (cleaning etc.). Third day : I was feeling weak, very weak.. Lots of headaches, of mild to moderate intensity. I didn’t feel like to do anything, besides a very short walk outside. This morning I woke up even more weak and with a stronger headache. I went to the groery store, to buy some vegetables and some fruits. As soon as I started to eat (just some steamed broccoli and a zucchini) I started to feel better. After about an hour, I ate an apple and a banana. And after another hour ad a half, i ate another steamed zucchini, half of a sweet potato and a small serving of beans. Right now, I defenitly feel better overall, but I’ve noticed, since yesterday actually, that the aches in my ankles and shins, are stronger than before I started the fast. Did the abstinence from food cause that? I don’t know. What did I do differently, besides not eating? I stopped with the supplements, tha’s one, and I didn’t do any physical activity at all, besides that short walk. I think this is the right time to slowly reintroduce the supplements I was taking, expecially the vitamin D3, and see if it starts to mitigate the pain.

    • Madge hirsch November 20, 2017 at 9:38 am Reply

      Could be lack of magnesium. I have had a surge in my tendonitis recently. I had switched to another brand of magnesim recently and after about 10 days just happened to look on the back label. Lo and behold in very small print it said that 2 pills were necessary to get the dose given on the front label. Since my previous brand had had a similar dose in just one pill I had assumed this new one would be the same. I was actually taking just over half the dose. Since I have upped the dose I have seen a small improvement and hope this continues. It was probably not wise to drop all supplements.

  43. Andrea November 20, 2017 at 11:32 am Reply

    Thanks Magde. The pain is increasing right now. But magnesium never did anything to me. Actually, sometimes I had the feelings that it was making my symptoms even worse. I don’t know…This FQ’s side effects are really nasty, but more than that they’re unpredictable. One day I think I’m doing good and on the path of healing, the next one I feel as bad as it gets.

    • Deb November 20, 2017 at 1:53 pm Reply

      Hi Andrea,
      How far along are you in your recovery. I feel that sometimes I’m doing better and the next day I feel bad too. I’m about 4 months out.

    • Barbara Arnold November 29, 2017 at 4:05 am Reply

      Andrea, if you feel worse taking mag this usually means you really need it. Try half the dose and see how you do. Later you can gradually increase the dose. Google Dr. Carolyn Dean who has a multitude of information about mag and also minerals. Very interesting and solid information. xx

  44. Andrea November 21, 2017 at 7:11 am Reply

    Hi Deb,I was floxed almost a year ago,It was Christmas time, 2016

  45. Andrea November 21, 2017 at 7:47 am Reply

    Hi everyone. Little update on my symptoms and supplements, hoping it could help someone. As I mendtioned before, I was doing “quite good” a few weeks ago. Then, the last weekend, I decided to go on a 3 days fast, to try to help my immune system to regenerate. Didn’t do much. Actually my symptoms, expecially the pain in my shins and ankles came back. So I started to take supplments back. First, yesterday, I took vitamin D3 ( i use vitamin D3 1000 iu and k from pure encapsulation) and the pain in my shins eased quite a bit, after a couple of hours or so. So this morning, I took another capsule, but I was feeling really weak. Basically all my symptoms were coming back again. So I took another new supplement I was taking before the fast, the 4life trifactor supplement, thanks Joanneg 🙂 , and I started to feel a little better overall. I’m talking about fatigue, dizziness etc.
    So basically,all I’m taking right now is :

    Vitamin D3 1000 iu, 1xday for bone/joint pain (quite sure this one helps me)
    4life Transfer Factor Trifactor Formula 2xday, for the energy issues (still not totally sure it helps, too new to say it, but it’s promising )

    Anyway, as I mentioned,this crappy symptoms are very unpredictable, so I’ll see what happens in the next few days. I will keep you updated.

    PS I also take some panax ginseng and some maca powder, but I don’t consider them supplements for my FQ’s issues, just something to take for overall health. I’ve never noticed any effects on energy, aches, etc while I take ’em.
    Thanks everyone.

    • A.Coleman November 22, 2017 at 8:24 am Reply

      Andrea, up and down on the healing journey is extremely common as you likely know by now. Another thing that many floxies report are larger cycles that seem to be tied either to a season or amount of time since your original floxing. I see from an earlier post that you are nearly to your one year floxie-versary. It is possible that you are cycling and combined with your fast you may experience a relapse. Not saying it WILL happen just hoping to make you more aware of the broader long lasting process, so you don’t get discouraged.

      I am a little past my two year floxing anniversary and note that I tend to have negative cycles every 6 months with even stronger relapses around the anniversary of my floxing. Maybe this is the time since my floxing or just the beginning of fall, not really sure. I keep detailed records of how various symptoms trend on a daily basis and can chart all this out in Excel. It shows that I have relapses in October and April every year, with more severe relapses in October. Only good thing is that these get less severe with every anniversary and I am somewhat hopeful I may not have an April relapse next year.

      My most severe relapse was right around my one year anniversary in October last year and that coincided with an effort on my part to improve my digestion by doing a Whole 30 diet. I finished the diet, but don’t think it really helped – actually hurt and was probably too severe dietary restrictions. I think my body wasn’t able to get needed nutrients when I made it work so hard for them.

      Just thoughts as you work through your recovery since every floxie is both similar and different.

      • Andrea November 23, 2017 at 7:19 am Reply

        Thank A. Coleman, you gave me some precious infos. I was suspecting that, during this year my symptoms had cycled. In fact, I’m scared of the next summer. This one was the worst time for me, also because I’m quite sure I became sensitive to heat.

  46. Dan November 23, 2017 at 4:24 am Reply

    Hello Everyone,
    My later synptoms are severe ataxia, loss of balane presure in ears and in head, lack of coordonation and now i lookfor something to hold on if i stay upright…my vison gives me trouble too sometomes blurry sometimes clear and objects moving a little…witch is stressful..
    very weak overall and weak muscles, tremors in the morning..PLEASE DID SOMEBODY EXPERIENCED THE ATAXIA SYMPROMS? how did you fight this what did u do?
    JoanneG i take now a vitamin complex for men,
    Magnesium dayly,
    and Chorella..
    Want to start the cure with Tricortin ipigrix betaserc and keltikan?
    What you guys think?
    Please i will be very thankful for your answers..
    I pray for all of us..

    • Joanneg November 23, 2017 at 8:07 am Reply

      Hi Dan,
      Please try colostrum a tablespoon on an empty stomach in the morning and before bed and drink a lot of kefir and/or vsl#3 probiotics also at least 400mgs of magnesium These are the supplements that helped me with all the same symptoms you’re dealing with.
      And more recently, I added the 4life transfer tri-factor supplement which is made from colostrum and eggs and Remyte liquid trace minerals.
      All of these helped me with that soupy, dizzy, vertigo, totally stoned, feeling like I’m in another world or walking under water feeling.
      I hope these can help you find some relief.
      Good luck, I’ll be praying for you😊
      P.s. watch the video I posted a few comments above this, it’s about how to heal from fq toxicity, which she stresses to heal your gut and replace minerals, and that is what all the supplements i suggested actually do maybe thats why they help me so much.

  47. Garrett November 23, 2017 at 8:58 pm Reply

    Hello all,

    Well, I’ve joined this club that id rather not be a part of. I’ve read all there is I think, and am still confused and very much scares. My story:

    I’m 32 years old, married to my great wife and have two awesome boys, ages 8 and 5. Four and a half weeks ago I was in Mexico and had travellers diarrhea and was given Cipro, 500mg. I took 2 and noticed tingling and electric pulse in my toe, and everything seemed really sensitive – in that a slight breeze tickled my leg hairs. The next day I noticed my Achilles heal was right and burning.

    There were a ton of stairs at our resort so i carefully hobbled around till i got home.

    Since then, I’ve really kept an easy and limited my walking around. However, my calf is still very tight and it doesn’t take much to aggravate either leg. Also concerning is that my arms are experiencing the same thing. If I don’t use them, they are fine. But if I do very basic tasks that require repetive motion (like holding up an Xbox controller) then I feel it – like my sides of arms got punched.

    There has been burning pains throughout my body – neck, shoulder, arms, legs. The tingling isn’t so bad that seems to have cleared. But the tendon / muscle pain is driving me nuts.

    I’ve gone to a rhumentologist who thinks it’s reactive arthritis, which I don’t believe and am going to another for a second opinion. My GP thinks it’s definitely Cipro related. I’ve also gone to a naturalpath and got an IV of magnesium and some other stuff, and not sure that did anything. Going again next week. I’ve also been taking supplements, but only 200mg or so.

    A few things:

    1) I’ve had horrible insomnia where I wake up at 3 and toss and turn for rest of the night. Anxiety / stress related? Not sure. I had a cold and still have a pretty bad cough, NyQuil is the only thing that has knocked me out, but I’m groggy half the next day which historically for me is not normal. What can help?

    2) is it normal for muscle pain to come when I do something basic? Ripping tape as an example, where my forearms ache or burn for a bit after. Does this clear up? It’s been almost 5 weeks now.

    3) not sure if I’m getting better or not as I’ve really minimized my walking around or doing anything. Excluding walking around the house to eat or go room to room, or doctor appointment, or driving….I’ve been on a couch. Do I test a bit to see if I can handle it? Calf is still tight and I can feel it in my Achilles heal and planter facsitis, but it’s minimal. Not sure how much it can take tho.

    4) doc is pushing ibuprofen or the next step up that starts with an N, can’t remember. Have not taken it cause of what I’ve read.

    This stuff sucks. Ive been in short term disability from work but need to go back in 2 weeks. Been so tired due to insomnia and not sure I can sit at a computer all day, haven’t tried that either.

    • Garrett November 23, 2017 at 9:06 pm Reply

      Sorry for typos – sent from phone.

      Anxiety / depression also real, but thinking it’s from all the awful stories I read.

      • L November 23, 2017 at 9:26 pm Reply

        Hey Garrett…sorry you joined our club. None of us want to be here. But it’s good you found it.

        First NO IBUPROFIN!!!! No NSAIDS of ANY KIND (naproxen? no! advil? no!) or steroids of any kind. Your doctor is obviously uniformed on the damage they can add.

        I am surprised your GP related to the Cipro, and not surprised the others didn’t. I suspect your second visit to another rheumatologist will also be unhelpful. I had a dozen doctors of all kinds pretty much throw me under the bus…say it was arthritis (the pain) and all my other body wide side effects (breathing and vision difficulties, insomnia, anxiety, weight loss, et) were some mystery disease. AS for the anxiety and depression…yeah, it’s depressing to read the stories, but again, I would blame it more on the Cipro. Very common side effects.

        Yes, I am afraid the insomnia too is very normal with this. Taking your magnesium at night (say 400 mg) can help. Mine was so bad (ZERO sleep) I actually had to take sleeping bills, but mine was made worse by gasping for breath. I wouldn’t recommend any pharmaceuticals, but it did help me and then I weaned off after a few months.

        Best things to do now, in addition to the magnesium (and I did 800 mg for months) is avoid fluoride, take probiotics (believe it or not the gut is connected to EVERYTHING.) Try to eat organice non-gmo. Vitamin e may be helpful.

        Sadly, for some it is also normal to have pain on doing small things. There are just so many possible side effects to these toxins, that if you are experiencing something new, chances are very good it’s from the Cipro. From my own personal experience I would ditch the MDs and stick with the naturopath. I was severely floxed, head to toe and the IVs saved me. High dose vitamin C would be good (it’s the only one you have to be tested for) because it helps with connective tissue. Myers is a good start too—lots of mag, B vitamins, C and some others. (Perhaps that is what you already got) IT allows you to get the supplements in an amount you could never do orally, and it goes right into the bloodstream. EG when I get the high dose C IV, mine has 50,000 mg in it! I’d stick with the IVs every week for a while. I know it can get expensive, but I feel it’s most helpful.

        The good news (yes, there’s good news!) you found this site and became aware early on of the link between the Cipro and your side effects. BTW, if you want to say what part of the country you are in (in the US?) there may be able to get referrals from others for docs/NDs that have helped them. I found mine on this site, and it was a life saver for me.

        • Garrett November 23, 2017 at 9:41 pm

          Thanks for your quick reply! How are you doing in your recovery? I’ve read four years worth of posts here, all 76 pages – can’t recall, sorry 🙂

          I’ll do the MD ring-a-round for now as that is what is allowing me to be on medical leave from work, but will likely listen to my naturopath. I’ll get more details next week on what my IV is, and will report back, and share these suggestions with her as well. Anything else in IV form that would be helpful?

          I am taking a few other supplements as well:

          k-pax mitonutients (mitochondrial support formula) – recommended from naturopath doc. This has a whole crap ton of stuff, including 100mg Magnesium citrate. I take this twice a day, so this gives me 200 total. Should I up it?

          I’ve had loose stool and the occassional bouts of diarrhea ever since I was in Mexico. Starting with the intial illness, and my guess now, is a side effect of this stupid antibiotic.

          For sleeping, my GP has given me trazadone. I took it for a few days, and I think it worked, but I started having nausea, which could have been related to the cold i had as well. I can pick that up again I suppose, but would rather stay far away from any drug as I’ve lost my trust in them.

          I am in Washington State, Redmond area.

          Lastly, I’ve lost weight unexpectedly. Not that it is a horrible thing, i needed to diet, but it is concerning when it’s happening on its own.

        • L November 23, 2017 at 11:09 pm

          All things considered, I am not doing too badly. Again, I was severely floxed. I lost a bout a year of my life just curled in a ball on my couch. I dropped 1/3 of my weight and needed help walking. I had terrifying breathing problems and olfactory nerve damage that was just horrific, where everything asphyxiated me. I had about 30 side effects total, including torn meniscus and vision damage, so I don’t think I was typical. After going from MD to MD, I finally ended up at a naturopath’s (never been to one before, but at that point I was struggling to breathe and really didn’t care if I lived or died, so I thought “what the hell?!” And he was the one who started turning things around for me. I had a number of hydrogen peroxide IVs which you don’t really need, but it was a way to get me off of inhale steroid asthma drugs. Had I not had that, he likely would have given me Ozone, but there was too much overlap.

          I had a lot of high dose C IV, some Myers, and a lot of something called phosphatidylcholine, which was supposed to help with body wide nerve damage and to remove toxins. I think it also helps with mitochondria, and I had a lot of mito damage as well. I got a push of glutathione with most IVs (except the H2O2)

          It has been 2 years and 9 months and I am 90-some percent back to where I was pre-‘Cipro. I got prolozone injections in both knees (which helps your body repair itself).

          All your supplements sound great! Perhaps if you switch to a different form of magnesium you won’t have the same stool problem. You might want to try taurate or orotate. (I continue to take 400-600 mag daily, and in the beginning I took 800 for most of the first year. Cipro really just obliterates your magnesium levels.) Not sure which formula of kpax you are taking ,but they do have a mitochondrial formula (but I think you have to take a number of them daily.)

          I know Redmond! I live In CA but I did live in Seattle for a while and actually have an old friend in Redmond. (And I worked at Eddie Bauer catalogue dept for a while in Bellevue.)

      • L November 24, 2017 at 11:05 am Reply

        Hi Garrett. I have a name for you, Dr. Marco Vesapigiani at Seattle Integrative in the U district. Your doctor might be fine, but this doctor has now already seen and worked with someone who was floxed (and he may have more IVs available to him.) Anyhow, you might want to at least pay him a visit. He comes highly recommended.

  48. Dan November 24, 2017 at 5:07 am Reply

    Hello Everyone,
    My later synptoms are severe ataxia, loss of balane presure in ears and in head, lack of coordonation and now i lookfor something to hold on if i stay upright…my vison gives me trouble too sometomes blurry sometimes clear and objects moving a little…witch is stressful..
    very weak overall and weak muscles, tremors in the morning..PLEASE DID SOMEBODY EXPERIENCED THE ATAXIA SYMPROMS? how did you fight this what did u do?

    please guys answer my questions because i am so afraid of MS or something else?

    • L November 24, 2017 at 10:33 am Reply

      HI Dan…first, re the vision issues, I and others have experienced blurred vision, decreased vision, huge floaters to where it’s like looking through gauze, extreme light sensitivity in bright light or under fluorescent light. The floaters and little black bits you might see are likely from the vitreous gel be attacked by the flq, just as it attacks any/all connective tissue. I took an NAC eye drop 4x day for a year and my floaters are almost gone. (Others have had them at least reduce without anything.) The light sensitivity is much improved but still there a bit and the blurred vision is gone.

      I have not had ataxia (had 30 other side effects) but I suspect it is may related to either nerve damage or mitochondrial damage. The mitochondria supply energy to all your cells for all your functions and flqs can damage the mito. While it may mimic MS, please don’t believe that that is what you have. I would urge you to get on a good mito supplement. (KPAX mades one.) I would also urge you to see an ND or integrative doctor that does nutrient IVs.

      Make sure your diet is clean…mostly fresh fruit and veges, (organic) take probiotics, vitamin D, magnesium (perhaps up to 800 mg).

    • Tim November 25, 2017 at 12:49 pm Reply

      Hi Dan I too suffer from those symptoms, loss of balance and all that you mentioned I’ve had it for 2 ,months so far it comes and goes but hasn’t left yet feels strange when I walk and hard to explain ,prior to this balance problem I was running and working out everyday. I suspect it is from cipro since having a bad reaction to it and having damaged my Achilles and other tendons in 2012. not sure what to do about it either, if I could afford glutathione IV and other ones I would get on it Immediately, let me know if you figure anything out, I’ve been taking ashwaganda for anxiety but still having balance issues, it is by far one of the worst symptoms I’ve had to endure ,very hard to make it into work everyday ,

  49. Stella Evans November 24, 2017 at 5:10 am Reply

    I have been using Kratom since last two years for Chronic pain. And this magical herb has worked great for me. I did not experience any severe side effects.

  50. Thomas Sealy November 26, 2017 at 6:49 am Reply

    Aloha Lisa,

    It has been 4 months since I finished a 10 day dosage of Cipro (500mg). I have been taking the following supplements per Kerri Knox. Multivitamin, Probiotic & Vitamin D3-5000. I am also taking Dr. Carolyn Deans Remag along with a Organic Diet. I live in Hawaii and walk 5 miles a day in the sunshine. My problem is I have this off & on burning sensation in my left ankle when I am resting. I also use Ancient Minerals Magnesium Gel as needed. I am 65 years old. How long will I experience this sensation? Sorry for the long drawn out story. Mahalo, Thomas

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