Floxie Hope

Floxie.Hope.1800.72.dpi

This site is to give HOPE to those who are suffering from Fluoroquinolone Toxicity Syndrome as a result of being poisoned by fluoroquinolone antibiotics – Cipro, Levaquin, Avelox, Floxin, etc.  It contains stories of healing.

Cipro, Levaquin, Avelox and all other fluoroquinolones are dangerous drugs that can have devastating effects that cumulatively I’ll refer to as Fluoroquinolone Toxicity Syndrome or Floxing.  Fluoroquinolone Toxicity Syndrome/Floxing includes damage to connective tissue (tendons, ligaments, cartilage, fascia, etc.) throughout the body, damage to the nervous systems (central, peripheral and autonomic), and more. The damage done by fluoroquinolone antibiotics can destroy a person’s quality of life or even kill them. Certainly, there is a time and a place for drugs with dangerous side effects. If you find yourself in a septic shock induced coma, fluoroquinolones may save your life. Unfortunately, these drugs are not being reserved for life or death situations. People are being prescribed them for urinary tract infections, suspected prostate infections, upper respiratory infections, as a prophylactic for travelers’ diarrhea, ear infections, pink eye, etc. Thousands of people have suffered needlessly from the devastating effects of fluoroquinolone antibiotics, when another, safer antibiotic could have, and should have, been used.

The damage done by fluoroquinolones is largely unacknowledged by the medical establishment and an accurate diagnosis, compensation and relief are difficult to come by. There is no known cure for Fluoroquinolone Toxicity Syndrome/Floxing.  However, many people continue to LIVE after being poisoned by fluroquinolones.  They find healing, recovery, perseverance, compassion and hope.  These are their stories.

This site is meant to give hope for healing to those who are adversely effected by fluoroquinolones.  It is no way meant to disregard the pain of those who are chronically suffering from the horrifying effects of Cipro, Levaquin, Avelox or the other fluoroquinolones.  There are people who don’t recover.  Their stories are real and they matter.  There are also people who are able to recover and I share their stories with the hope that they inspire others, or at least give hope that recovery is possible.

Here is a New York Times article about the dangers of fluoroquinolone antibiotics – http://well.blogs.nytimes.com/2012/09/10/popular-antibiotics-may-carry-serious-side-effects/?_r=0 – more news stories, research papers and other resources can be found on the “Links and Resources” page.

Here is a Facebook group that is a great resource for those going through Fluoroquinolone Toxicity – https://www.facebook.com/groups/floxies/

Featured post – I’m floxed. Now what?

The Fluoroquinolone Toxicity Solution Ebook has helped many Floxies to recover, including DanielCindy and Ruth.  As a bonus, you will also receive The Floxie Food Guide – a book of diet guidelines to help you through fluoroquinolone toxicity:

flu tox get help you need banner click lisa

 

 

 

16,988 thoughts on “Floxie Hope

  1. Joanneg November 26, 2017 at 9:13 am Reply

    Hi Everyone,
    I just wanted to say since watching the video I posted a few days back about what fq’s do to you and how to heal from it, I added Dr Carolyn Deans Remyte Solution which is a multimineral solution to my regimen and it was a total game changer. It’s keeping all my symptoms at about 95% better especially my dizzy soupy brain!
    So for those who might be interested, I take 400mgs of magnesium 2 colostrum pills 2 4life transfer tri-factors kefir and a 1/2teaspoon of Remyte Solution 3x’s a day and it’s keeping me at a very good and very steady 95% better. If my vision wasn’t still blurry I wouldn’t even know I was floxed, but even that seems to be a little better.
    I just pray it continues.

    • Deb November 28, 2017 at 4:47 pm Reply

      Hi Joanne,
      Do you take much calcium? Deb

    • Barbara Arnold November 29, 2017 at 11:32 pm Reply

      Hi Joanneg, I have just read a lot on Dr. Carolyn Deans websight. It makes perfect sense, so although it’s expensive I have just sent for the remag and remyte solution. I will let you know how I get on. Glad it’s working for you. Xx

    • Andrea December 3, 2017 at 6:46 am Reply

      Very interesting, Joanne. I’ve never been very lucky with supplementing magnesium, but I’ve checked this Remyte Solution, and since it’s a complete multimineral, with not too execissive doses of each mineral, and it’s also liquid, I think I’ll give it a try, maybe not right now, but soon. Let’s se… As always, thank you.

    • Andrea December 3, 2017 at 7:02 am Reply

      Hi, after Joanneg suggestion,I was just checking this Remyte solution , and on the website (not the original dr dean website) they were suggesting to also take some pure sulfur crystals (msm). It should have detoxifing proprieties and they say it’s great for joint pain. Anyone tried it?

      • Deb December 4, 2017 at 6:02 pm Reply

        Hi Andrea,

        I took MSM before floxing, but not since floxing. I would think it has detoxifying properties since it is a sulfur, but I don’t know for sure. When I took it before it totally took away arthritis pain. I hope to try it soon in a very small dose.

  2. Harriet November 29, 2017 at 4:36 pm Reply

    Need vitamin D as well.

  3. Ni November 29, 2017 at 7:44 pm Reply

    Is an AHA like glycolic acid safe for use on skin after being floxed? As far as I know its not a steroid but im still wondering

    • Paula December 31, 2017 at 6:59 am Reply

      I use it daily without issues.

  4. Michael Teeter December 1, 2017 at 12:38 pm Reply

    Hello everyone,
    It is going on 6 years since I was Floxed and it has been one heck of a ride. I want to thank everyone who has helped me on my road to recovery. I must say I miss running. Although I can walk again I feel my leg muscles are just not right anymore and I can not run. Maybe I’ll get there and Maybe I won’t I took my wife to the Club to work out the other day and I miss working out too! Don’t get me wrong I love being alive and that I am not in a wheelchair or hospital bed anymore. I am now 175 lbs which is much better than 114 lbs. I don’t even have to use a walker anymore just a cane. I do have the occasional fall from time to time.
    Now that I developed a rare auto immune disease and have to be on immune suppressants because they really are afraid my immune system will kill me. It is like after floxing my system went into super kill mode and they can’t get it to stop. It caused Adult Auto Immune Enteropathy which sucks. But it could be worse. Any suggestions on how to get back to running again?
    I hope everyone else is doing OK.
    Remember Never Give up! Never Surrender!
    Michael Out.

  5. Barbara Arnold December 2, 2017 at 2:53 am Reply

    Hi Michael,
    If running is difficult, why not try treading water in a pool if you have access to one. You get a whole body workout without the pressure. I met a guy in his 70’s who was recovering from cancer and started doing this. He could only manage 5 minutes to start now he can do hours at a time. His body has a six pack and he’s really fit. Just a thought xxx

    • Michael Teeter December 4, 2017 at 9:12 am Reply

      I have done water therapy before and felt stronger. So thanks maybe I’ll do that again.

  6. Joanneg December 3, 2017 at 2:28 pm Reply

    Just wanted everyone to know since I’m out of my flare and doing good, I’m now gonna be stopping all supplements except magnesium, kefir and occasionaly some Remyte.
    I do this because i’m pretty much afraid of all supplements, so when I start feeling better I want to stop them asap, but like I said before I never was able to stop magnesium without getting really bad, so I’ll continue taking that daily.
    Also, whenever I take a natural antibacterial, antivantiviral, antifungal supplement, which colostrum is, they make me feel great for a while like 10-20 days then I start to get worse. So I think they are good when needed but not long term. I think of them as antibiotics, it’s just that they’re natural.
    Anyhow just wanted you all to know.
    Wish me luck😊
    And I hope everyone’s at least better❤

    • Andrea December 4, 2017 at 8:42 am Reply

      Good luck Joanne. I hope you keep feeling good. Just one thing, I think magnesium does to you what vitamin D3 does to me. I sometimes give up almost all the supplements, but when I give up vitamin D3 all the pains inside my bones come back…magnesium never really helped me btw.

      • Joanneg December 4, 2017 at 10:34 am Reply

        Thanks Andrea, its crazy how we were all pretty much injured the same way, but we’re all different in what helps. Ive tried D3 many times without any help, and if i remember, i think it made me feel worse, but now you’re making me want to try it again. But I’ll wait till the next flare I don’t want to rock the boat 😊
        Good luck in your healing❤

    • Michael Teeter December 4, 2017 at 9:13 am Reply

      That is great news. I hope it all works out for you.

      • Joanneg December 4, 2017 at 12:12 pm Reply

        Thank you Michael, and good luck to you😊

    • Deb December 4, 2017 at 4:09 pm Reply

      Congratulations Joanne. It’s good to hear you are better!!

      • Joanneg December 4, 2017 at 4:18 pm Reply

        😊❤

  7. Harriet December 3, 2017 at 6:59 pm Reply

    oood luck. How did your flare last for if you do not mind my asking?

    Thanks

    • Joanneg December 3, 2017 at 9:29 pm Reply

      I had been in a flare for 2 months.
      After drinking 5 drinks at my son’s wedding, I went straight into a flare, and my usual supplements weren’t helping, so i tried a new one called 4life tri factor which pulled me straight out of it.

      • Harriet December 5, 2017 at 2:55 pm Reply

        Thanks for your reply. I ate just one strawberry one grape , a meringue and cream and have been in agony for three days. I also have cystitis and it is getting on top of me.
        I cannot believe that these foodstuffs are responsible but I am sure they are because of their acidity and also because I do not eat any fruit usually except avocados and bananas any more as I wish to abstain from acidic foods .
        Sorry but just feel too down and ill to write sensibly. Having the neuropathy is bad enough to deal without anything extra added on. Sorry to be so miserable.

        • Andrea December 5, 2017 at 4:51 pm

          Hi Harriet. Don’t apologize for anything. I understand, like everyone on this website, how miserable these symptoms are, expecially neuropathy. Anyway, I think food it’s defently something we floxies should consider as an healing weapon, but we should also understand it better. I’ve noticed that eating in a certain way helps me a lot, but eating other stuff triggers all my symptoms. That’s so frustrating. Stay strong.

  8. Debs December 6, 2017 at 2:39 am Reply

    Consuming too much sugar is one of the biggest enemies I personally have re pain Harriet, It sends my own pain levels, particularly the neuropathic pain I experience off the charts.
    i have to avoid sugar in my diet as much as I can possibly do so, as If I slip up, & for me this applies even just a little bit, which still can happen on occasion being human, I will subsequently pay for it each time, & also big time, with a very noticeable increase in my pain levels, & for many days afterwards, Christmas should be fun methinks.
    This link between the consumption of sugar & the worsening of pain experienced, particularly neuropathic pain is recognised.
    Although of course consuming too much sugar in various forms is not the only culprit here re potential worsening of symptoms, & various things can set of my flares, it is I feel, particularly having seen this mentioned so often, a major culprit for so many of us Imho when it comes to increase in our pain levels.

    https://www.weightandwellness.com/resources/articles-and-videos/neuropathy-sugar-connection/

    • Andrea December 6, 2017 at 3:14 am Reply

      Hi Debs. When you say sugar, do you also mean fruits? Refined sugar, junk food etc. it’s definitely detrimental for me, but fruits doesn’t really bother me, actually I think it’s beneficial.

  9. Jason December 6, 2017 at 10:23 am Reply

    Hi all — has anyone had surgery post-floxing? This is what I’m facing now and I’m terrified.

    Quick summary: Floxed in 2009 (tendon issues, nervous system issues), experienced some recovery but have had major set-backs due to corticosteroid use and I’ve even felt that some supplements have made me worse. I’m now off all medications and supplements, and have been on a strict paleo diet for a year.

    I still don’t feel well, but I’ve had some good moments lately and thought things may potentially be looking up — but I now have a hernia that needs operating on. It is not an emergency, but a doctor I trust has told me that it could very easily become an emergency situation and strongly recommended that I have surgery to repair it (he is not a surgeon himself, but he recommended I see one).

    This is a situation I have been dreading for years. I feel that I am HIGHLY sensitive to all drugs and am especially afraid of the general anesthesia that is apparently fluorinated. I think having these powerful drugs would throw a wrench in any recovery I may have had and make me much worse. With all the brain fog and cognitive issues I currently have, I cant even see myself coming out of surgery as the same person. I’m worried I’ll become practically brain-dead. Or worse.

    Please, has anyone had surgery since being floxed? With general anesthesia? I’m trying to at least find a surgeon that may do it with local or twilight, but I’m not sure if that will be an option. And even if it is, I’m still worried those drugs could also make me worse.

    This is just awful. I have an appointment with a surgeon, am I’m guessing he will be pushing for surgery with general anesthesia. I don’t know what to do. I can put it off and ignore this (I’m not in any pain from the hernia), but then I risk being in an emergency situation which may be harder on my body and where I may not have a choice about the kind of anesthesia.

    Any advice or insight would be greatly appreciated.

    • Bob December 6, 2017 at 1:40 pm Reply

      Can’t you wear some sort of brace or “truss” Surgery would likely be very rough.

      • harriet Kay January 1, 2018 at 7:56 am Reply

        BOB Sorry I have to state the following.
        TRUSS.
        The answer is no. A hernia can get strangulated leading to major problems and the possibility of a colostomy or ileostomy therefore if a surgeon recommends surgery then it is best to have it done. Hope that helps.

    • Sarah December 27, 2017 at 12:45 pm Reply

      Hello Jason,

      I have been “floxed” since 2002. My Dr’s continued to give me Levaquin, yearly, sometimes twice yearly, up until 2012, even though I had central nervous system damage, pheripheral neuropathy, and other problems, as they had no idea that this drug was associated with the problems they were trying to figure out. I have had 4 operations from 2003 through 2008, all with general anesthesia and came out of the process fine. I did have a Levaquin IV drip, in the hospital after one operation, which messed me up badly, and I was bed ridden for 5 mos. Of course, no one knew it was the Levaquin, and I myself just figured it was from the operation, but now we know it was the liquid Levaquin. I have been on all the vitamin supplements that they speak of, being compromised in our cells, due to the fluoroquinalones, Copper, Magnesium, Zinc, Iron, Maganese and others. Here is a report by Dr’s, on Damage Due to fluoroquinalones, that was published in August 2017: https://www.hindawi.com/journals/omcl/2017/8023935/ click on the link for the full text PDF to download the report. You can also read in there they speak about ozone therapy. I hope this helps you some.

    • patricia helt December 28, 2017 at 5:07 pm Reply

      Hi Jason

      I was floxed a little more than 3 years ago and although i suffered short term and very long, delayed symptoms i have made a complete recovery that i am so grateful for everyday.
      Last year i did undergo a minor surgery that was not flox related in anyway whatsoever. They put me completely under followed by a 2 week course of doxy. I was fine and it did not affect me, but i was very scared of old or new symptoms returning .
      Hope this helps!

      Take care,
      Tricia

  10. Michael Teeter December 7, 2017 at 9:46 am Reply
    • Andrea December 10, 2017 at 7:48 am Reply

      Hi Michael. I’ve tryied cbd oil capsules before. Actually even before being floxed. But it never did much to me. After reading your comment, I looked into my, by now too full (LOL) supplement drawer, and I’ve found some cbd pills I’ve had left. So I’ve tried them again, but didn’t noticed much. It’s been two days. But since it’s something that has always interested me, I think I’m going to buy some cbd crystals to vape or try the cbd drops. I’ll let you guys know…

      • Barbara Arnold December 10, 2017 at 8:38 am Reply

        Andrea, CBD oil and tincture is best. Plenty of information out there. You have to start slow and build. Really helped me with pain and sleep issues

        • Andrea December 10, 2017 at 10:55 am

          Hi Barbara.
          I’ve read on the endoca website (that’s where I bought the capsules) that vaping CBD is the most powerfoul way to get the benefits and also gives you the best absortion, also because crystals are 99% CBD, but the effect only stays in your system for about 2 hours, so they also suggests cbd chewing gums (with 15% CBD each one) or the oil. Do you think that 15 % CBD is good enough tough?
          PS I’ve noticed that CBD is so expensive, do you know any reliable website where they sell some cheaper CBD? Thank you.

        • Harriet December 18, 2017 at 4:11 pm

          Hi Barbara Are you in the USA ?
          Please can you tell me where you got the cbd oil and tincture from?
          Many thanks

      • Barbara Arnold December 11, 2017 at 3:06 am Reply

        Andrea,
        I honestly don’t know enough about CBD vaping etc. If you look on CBD facebook there are lots of people there who can advise you about vaping, strength etc than I can. I take Sacred Kana 10% oil and tincture, it works for me, but on facebook lots of people say it’s not the strength it purports to be. It’s a bit confusing so I suggest you thoroughly research before you try it. Some people said you have to be careful with vaping especially if you don’t smoke, but you really need to investigate this for yourself. That’s what I do, and I make up my own mind. So if it works for me I don’t take any notice of anyone who say’s it’s rubbish. As far as price is concerned, CBD user’s facebook will help you there. Sorry I can’t help you further but CBD oil is new to me as well. Good luck xx

        • Andrea December 11, 2017 at 4:33 am

          Thanks a lot, Barbara.

  11. Ann B December 7, 2017 at 11:01 am Reply

    Hi everyone,
    I just stumbled onto this website today. I finished a course of cipro for UTI and tues I started experiencing bi-lateral groin pain that has me barely able to walk and with extreme pain. I went back to ED and all tests came back negative and they said “sorry don’t know the cause” and sent me home with narcotics which I refuse to take. I have been scouring the internet and came across a correlation between my complaints and cipro injection which lead me to this site. My mind is reeling, I am terrified
    and angry and don’t know what to do first. But pain is the worse issue right now so any suggestions where to start??? AnnB

    • Michael Teeter December 11, 2017 at 11:21 am Reply

      If it was me and being hindsight is 20/20. Quit the Cipro and I would Immediately take high doses of Magnesium. Coupled with IV treatments of Meyer’s Cocktail and Vitamin C & maybe even some Glutothion. Seek out a Natural Path asap. If you are experiences adverse reaction to the Ciprofloxin report it to the FDA also report it to the Doctor that prescribed it.
      If you want to go to the regular medical people I received the best help from Rhuematologost coupled with my natural doctor and my acupuncturist and chiropractors.
      Depending if it was a generic or name brand drug you were given and what state you are in you may be able to take legal action for restitution. You may want to get the ball rolling for disability depending how bad you were hurt by this medication /poison.
      I wish all the best for you and I am sorry you have to go through this.
      Michael Out.

    • jat92517 December 31, 2017 at 7:39 pm Reply

      Ann B,

      Start by getting the Cipro out of your body by soaking your feet in a saturated solution of Epsom salt. Saturated means is salt crystals on the bottom. Save this solution for later use. The Cipro Is Adsorbed on the surface of your brain cells. You will get 60 to 70 percent what was taken. Since you mentioned ED, test your blood sugar. You sound like you have glucose transport issues. Read the posts on this site and ask questions of clarification .

      • L December 31, 2017 at 7:53 pm Reply

        Unfortunately getting the Cipro out is not as simple as doing Epsom salts. If it were, most of us would not be permanent damaged, or have suffered months/years of horrific side effects.

        • jat92517 December 31, 2017 at 9:33 pm

          The only form of magnesium that nwill remove Cipro is a SATURATED SALT soak.

        • L December 31, 2017 at 9:53 pm

          While it may have some usefulness—sorry, it does NOT remove Cipro. Cipro damages at the cellular level. Even Dr Jay Cohen, in his book “How We Can Halt the Cipro and Levaquin Catastrophe: The Worst Medication Disaster in US History” gives a number of useful strategies in helping to COPE with the devastation, but admits there is no known treatment that will remove it.

        • John Taylor January 3, 2018 at 9:41 pm

          L,

          You are right many forms of magnesium will not remove Cipro from your body.

          My credentials are I am an organic chemist with a background in surface chemistry, organic chemistry and several other fields of chemistry . I also have my own chem lab and a degree in chemical engineering. I have spent my career doing research.

          The Cipro is attached to the surface of your brain cells. It has a strong attraction wherematching Chemical signature to the structure of the Cipro. I took 5 1/2 g of Cipro and then removed 3 1/2 g to get to Cipro out of my body 12 weeks later. It is a question of creating a stronger chemical Bond than the Cipro has for the surface of your brain. Fortunately the Cipro leaves one site and goes to another. If you have a very high concentration of magnesium in the blood stream when the Cipro is free and I can find a magnesium ion quickly it will form a solid. It actually will combine with two Cipro molecules and one magnesium ion. The solid passes out as a powder in your urine.

          For magnesium concentration must be very high for this reaction to occur. Fortunately high magnesium concentrations have no side effects on the human body. The excess magnesium also passes out with urine and in fact really is only using one percent of the magnesium to chelate Cipro into a solid The Cipro you want to remove.

          If you Google the web you can find all this information on the web including the solubility Constants and so forth.

          To make a saturated solution there must be some solid salt on the bottom of the tub you are soaking your foot in. If you do this for four days all the Cipro will have left your body. I measured the amount every day that was leaving and after four days powder went to a constant number of about 1/2 a gram. I could also feel Flexie feeling leaving when I was doing this and I could feel the recovery process starting which demands a lot of magnesium potassium and calcium to replace with the Cipro has depleted from your body. Everybody holds much more of these chemicals in your body than they bloodstream thing. Any given time so you find yourself behind in one of these.

          I hope this helps you to understand why this is a must. Good luck wth your recovery,

          John Taylor

      • Tara January 8, 2018 at 7:34 am Reply

        Can you give specific directions for the saturated salt bath technique that you use? Any particular brand of salt to use? I do think your explanation for the Cipro staying in the body makes sense, as my symptoms cycle, which is one reason, of many, why this is so maddening! Thank you!

    • L December 31, 2017 at 7:59 pm Reply

      I agree with Barbara…extremely important to get LOTS of magnesium in you. Also take a progbiotic because while it may not seem to make sense as regards your side effects, the gut is linked to every system in the body.

      I also agree with MIchael—my IVs helped me more than anything.

      Like you, I experienced horrible pelvic area pain (I believe Lisa, who operates floxie hope, did as well.) At times, it was so bad that I felt like I had crushed glass inside me. I am not sure if any of the IVs helped in that particular regard, but one thing that did help me is acupuncture and Chinese herbs. (I was fortunate enough to find a great acupuncturist who also did the Chinese herbs AND would spend time researching on my behalf.) I did that on several occasions. As bad as it got, it has mostly gone away. I am 2 years and 9 months out and I have only had mild pressure maybe a couple times in the last year. So please don’t think it is a forever thing.

      • Bob December 31, 2017 at 9:02 pm Reply

        What kind of Chinese herbs did you take?

        • L December 31, 2017 at 9:24 pm

          Sorry, I can’t tell you the name. It was a mixture my acupuncturist put together based on my symptoms.

  12. Barbara Arnold December 8, 2017 at 12:19 am Reply

    Ann B. The first thing is get some magnesium in you. Dr. Carolyn Deans website will give you lots of info on mag and cipro. I use her Remag and Remyte which is a bunch of balanced minerals. All very absorbable. Or you can get it in tablet form, malate is good not oxide as thats not very absorbable. Cipro leeches magnedium from the cells. Kerri knox’s book will also give you lots of information about suppliments. Take the mag up to 1000mg or until you get loose stools, then you can back off a little. Tap on resources at the top of this page, tons of help there. Act quickly and you may be okay. xxx

  13. Barbara Arnold December 8, 2017 at 5:48 am Reply

    Ann B……As soon as you can go on a gluten and sugar free diet as both cause inflammation.
    What sort of pain do you have ?

    • Ann B December 8, 2017 at 1:15 pm Reply

      Barbara,
      Thank you for the tips. Yesterday I soaked in Epsom salt as I read in one of the posts. First my feet in a saturated bath for about 40 min then later on fully in a tub, although for that I used about 4 cups in the tub – wasn’t saturated. I also got fresh turmeric and ginger and ate that raw. Also, don’t know if it helps or not CoQ-10 and super B complex. My daughter is a bodybuilder and suggested BCCAs which I did also. I do feel better but still have pain. My pain is mainly bi-lateral groin area that is so painful when I walk. The pain shoots down my leg and across my pubic bone. The most difficult part is lifting up my foot to walk. This is clearly near-muscular-skeletal which I never had before. I am very active and healthy. No meds just supplements and my diet is pretty healthy. I don’t eat sugar fried processed or fast foods. I was rushed to ER with extreme abdominal pain where I was diagnosed with sever UTI was given 2 doses of IV antibiotics and discharged home on 500mg Cipr 2x day. Honestly can’t remember the last time I took a prescribed medication. Finished up meds on Sunday and Monday this all started. when my walking became unbearable which was this past wed I went back to ER. every test they ran was perfect! They pretty much said we don’t know sorry here are narcotics!!! I refuse to take them so I am scared depressed and so very angry. 2 weeks ago I was fine looking forward to holidays. Now Im hobbling around worse than my 86 yo father!

  14. Barbara Arnold December 9, 2017 at 12:03 am Reply

    Oh Ann B so sorry this has happened to you. The medical profession do this to you then don’t have any answers, you have to find the way to heal yourself. The reason the tests come back perfect is, this is damage at the cellular level and also they don’t look in the right place. This is another reason they don’t believe you when they can’t find anything wrong. You are doing the right things at the moment, but get lots of magnesium inside you as well. Coq10 is good, but make sure it’s Ubiquinol. Don’t know anything about BCCA’s sorry. Vit D3 Also. I can only tell you that after 3 years I am almost recovered and I did not know what happened to me for 7 months, so I never took anything untill then, so you have a heads up. Don’t expect to feel better overnight, it’s a marathon, not a sprint. Keep researching and take it easy. CBD oil is good for pain, just make sure you research it thoroughly first and start slow. Good luck xxx

  15. Andrea December 13, 2017 at 10:02 am Reply

    Hi Joanneg.
    After following your suggestion, today I’ve tried the Remyte Solution, I’ve only had 1/2 teaspoon so far, but I’ll let you know if I’m gonna find it helpful.

  16. Matt December 14, 2017 at 12:08 pm Reply

    What are the safest alternatives for bacterial pneumonia treatment? I’ve read in severe cases antibiotic treatment is almost always needed.

  17. Tyreese December 15, 2017 at 1:03 pm Reply

    Hi everyone here, I stumbled on this site while trying to search information about the horrible condition I’m feeling right now. its been a week since i was floxed with Ciprobay. The doctor suspected UTI only to find out later that a small stone along the ureter is the culprit. it’s been 4 days since my last cipro tablet (500mg -twice-5 days). i felt betrayed and depressed right now and to make it worst i’ve been having severe anxiety. I’m not able to sleep. My heartbeat races. My stomach produces a lot of acid, I developed gastric symptom, Blurred vision, burning pain on the back of my shoulder and limbs. It hurts, I lost my appetite and interest on whatever i used to do. I feel like I’m dying. Nobody understand how i feel because to them an antibiotic is only antibiotic, it gets its job done and that’s it. Someone please help me, what do I do to calm this anxiety? will it ever go away? can i still take the magnesium pill as suggested by some of the postings above?.

    • L December 15, 2017 at 4:02 pm Reply

      So sorry Tyreese. Unfortunately everything you are experiencing is normal with these toxins. How long it will take to go away is really individual. Could be weeks, months, years. Good thing is you stopped early and found this site.

      Make sure you are getting a LOT of magnesium Try orotate, taurate…there are others. If you avoid the citrate you may experience less diaharea problems. (been writing that word for three years and still can’t spell it.)

      also critical—believe it or not your gut is connected to everything…all your systems and really helps regulate your health. Start on (and stay on) a good quality probiotic with billions of units and several different strains. Eat clean…avoid gmos, pesticides, and any meats that could have antibiotics. You may want to start on Betaine HCL which helps you digest proteins, and/or digestive enzymes. Avoid fluoride and do not ever take NSAIDs, or any steroids. My blurred vision lasted months and my vision in general is worse in one eye since the Cipro. The anxiety can be horrific and I dealt with that for most of the first year. Avoid caffeine for now, and try different herbal supplements like valerian. You can do a search of what has helped others. My insomnia lasted about 6 months, but again everyone is different.

      I also had a horrible deep-in-the-bone pain in my midback. It went away after I started nutrient IVs (high dose C, Myer, glutathione, phosphatidylcholine). I was severely floxed. Dropped a third of my body weight, had olfactory nerve damage, horrific breathing problems, and about 30 side effects. I was helped greatly by a naturopath and the IVs. They are expensive and I went into debt getting the, but for me I felt there was no other choice. you might want to find a good ND or integrative doctor to help you through this.

      On another note, I am furious that doctors are STILL giving this crap out, esp for suspected UTI in spite of the warning last year that they should NOT be. I was not litigious before but now I encourage EVERYONE to go after the offending doctor and/or pharmacy (depending on the laws in your state) because that appear to be the ONLY thing they pay attention to. Start documenting everything with dates, side effects, doctor visits, etc. Make sure you do not let your state’s statute of limitations pass. (It varies by state, and may start from the day of injury OR the day you became aware that your side effects were a result of the drug.)

      Hang in there.

      • Sarah December 27, 2017 at 12:54 pm Reply

        Hi L,

        This is just FYI and to all thinking about trying to get a lawyer on this for your problems. The company that manufactured this first and had the patent is Johnson and Johnson. They had the hold on it until 2010 or shortly there after. Thus, if you have taken the generic brands of the medicine like “Levofloxacin”, you cannot go after anyone, ie; the drug companies, Dr’s or pharmacies etc. You must of had problems associated with taking the “Brand” drug Levaquin and then been in the reporting of it, within 7 years, which is by NOW. As of next year, the 7 year statute of limitations against Johnson and Johnson, will end, if you haven’t reported problems you had by 2011. Anyone taking the generic forms is SOL. Now they are all free to produce these drugs and give them to people, as they have black boxed them, with all the side effects, and it is up to the people to read the side effects and determine if you want to take it or not. You can still check with attorneys but I am sorry to say, its almost past the 7 year mark for Johnson and Johnson to be off the hook. The generic companies are not responsible for the problems, only J&J.

        • L December 27, 2017 at 1:09 pm

          I am aware that you cannot go after the mfr if you took a generic (although there was at least one law firm trying to bridge that gap…Toerman) That is why I urge people to get an attorney and go after the doctor and/or pharmacy depending on the state you live in. This all adds up. I spent over $30,000 on treatments and it is ongoing… and many drs are still prescribing for treatments that now have an fda warning. I filed the suit myself but it was incredibly difficult and I have s law background. That is why I encourage people who have been injured and were not warned, especially those given it for say a simple UTI or sinus infection, to pursue legal action. IT seems to be the ONLY language that doctors and pharmacies seem to pay attention to.

        • Bob December 27, 2017 at 2:58 pm

          I agree 100%. Especially since the latest warnings. If someone is successful with a claim against a doctor then ALL doctors will start to pay attention and stop prescribing this poison.

    • Andrea December 15, 2017 at 4:13 pm Reply

      Hi Tyreese. I’m Andrea. I’m from Italy and I was floxed a year ago. I’m sorry to read what’s happening to you. In my case, the doctor who floxed me, was sure that there was no UTI infection, but he prescribed the FQ to me anyway, “just in case”.
      Anyway, back to you, I undesrstand your frustration and fear. You feel alone, but you’re not. I can’t give you advices, I’m not in the position, but I’ll tell you what I did/do. I completely ignore most doctors. They’re so ignorant about this issue, that I only get more frustrated when I see them. I avoid NSAID’s and any kind of Corticosteroid. They can make symptoms WAY worse. I also try to stay away from any kind of Pharmaceutical drug. They’re nasty, and after being floxed I became so sensitive to them. I try to follow a clean diet. The cleaner the better. Lots of fruits and veggies, some eggs. Whole grains, beans. But this is just me. Many floxies become sensitive to some foods, others don’t. I find dairy very inflammatory most of the times. Same for meat/chicken/pork that is not 100% organic. I try to avoid sugar. Does the same thing to me as dairy. Maybe even worse, expecially for the sugar crashes. I completly avoid coffee (sigh), I used to love coffee, but like many other floxies, I became extrimely sensitive to caffeine. In my case, diet is very important.
      As far as supplements, during this year, I’ve tried many of them and most of them were just a waste of money. But once again, this is just me, other floxies find supplements very important and beneficial. For me, what works, it’s defenitly Vitamin D3 (with k2), for the pain in my bones. I also take a supplement called Transfer Factor Tri-Factor Formula from 4life. It was suggested to me by a fellow member of this website. I’ve noticed that it keeps my energy level a little more stable. I also take, from time to time, some gelatinized maca powder and some panax ginseng, but I wouldn’t consider them as a part of my supplement stack. Just something for overall health. Magnesium, wich most floxies find extremely helpful, never did anything to me, actually I think it makes my symptoms worse. For example, just a couple of days ago I’ve tried a liquid multiminerals, that only gave headaches and dizzyness ( another member of this website, find it very beneficial for her). So, in conclusion, the only thing I can tell you, is, go back to school, read as much as you can about fluoroquinolones side effects, what helps and what to avoid, become an active member of this website, share your opinions, Ask questions. I know it sounds crazy, because right now, you’re in a lot of pain, but try to understand your body. Try to stay physically and menatally active as much as you can. Don’t let you go completely. I was floxed in Dec. 2016 and this summer was the worst moment of my life. I thought about dying everyday. But at the end, after doing the things I wrote above, I felt much better. Stay strong !

      • harriet Kay January 1, 2018 at 8:28 am Reply

        Andrea
        Have you been checked for gluten, wheat, soy, amaranth, dairy, aspartame intolerances? These are contained in many medications including supplements.

    • Bob December 15, 2017 at 5:20 pm Reply

      Your symptoms are unfortunately common reactions to this terrible poison. When I was first floxed I got a glutathione IV that brought my anxiety way down for awhile. I agree that your best bet is with the nutritional IV’s. GABA 500 mg taken at night should help with anxiety. Calcium binds with fq’s if you have any left in your system. Look for a functional medicine or integrative medicine doctor. Regular MD’s are less than useless. There are several law firms pursuing lawsuits now if you did not take a generic. Also I would go after the doctor. Based on the most recent info prescribing an fq for a simple uti is potentially a criminal act. Also do foot baths with mucho Epson salts. There is a homeopathic cipro could be of great value if used soon. If you can find homeopathic doctor ask them about it. If you can’t find it repost and I Wil try to locate it.

      • harriet Kay December 31, 2017 at 6:34 pm Reply

        Bob I do not understand what you mean.

        • Bob December 31, 2017 at 9:07 pm

          Can you be more specific about what you don’t understand?

    • Bob December 16, 2017 at 2:16 pm Reply

      Tyreese how are you getting along?

    • Tyreese December 19, 2017 at 12:16 am Reply

      Thank you Bob and Andrea for the tips and advice given. i’m from Malaysia, there’s not much of the things you mentioned is available. i’ve ordered the GABA 500mg online but have to wait for like 21 days for delivery. i’ve been dealing with a lot of pain over the last week. The burning pain, the anxiety had taken away my sleep. i haven’t sleep at all for the past 5 days. i feel tired but couldn’t fall asleep. i just lay on my bed and wandering around the house. my leave is almost over.. i don’t know how am i going to go to work with my condition.. The anxiety is killing me

      • Andrea December 19, 2017 at 5:43 am Reply

        So sorry for you Tyreese. I can understand your pain and desperation. I know it sounds stupid right know, but try to stay positive. Do you have a family? If so, explain to them your problems and let them know you need help and support.

      • Bob December 19, 2017 at 8:59 am Reply

        I would encourage you to contact Homeopathic Associates in CA. They can treat you remotely and send you medicine. I have a strong feeling about the homeopathic cipro. IF you call they will give a free 15 min consultation. They are not cheap but no one is. You could possibly have a quick recovery instead of suffering for years. Please call them 619-741-5795. I read a story yesterday that the FDA is “cracking down” on homeopathic medicines because they have become so popular. They are afraid of competition with big pharma. They have no problem with cipro poisoning thousands of people but they want “protect” us from homeopathics which are harmless. This makes me so mad I could explode.

      • Tyreese December 19, 2017 at 11:58 am Reply

        I’m planning to go to see a psychiatrist to ask for anti depressants., to calm down the anxiety. Do you think it would help?

        • Bob December 19, 2017 at 2:16 pm

          I would be very careful with that but I have no idea if it would help. Some other people on here I am sure would know more about that. Have you tried GABA yet. That helped me wth anxiety. I used to take 500 mg GABA with melatonin to be able to sleep.

        • Virginia December 19, 2017 at 5:07 pm

          Everyone reacts differently to antidepressants. For me, SSRIs were very helpful for about 15 years. I had to go off them due to their bone-thinning effect for post-menopausal women, and notice I am weepier and more irritable without them. I had no bad side effects while on them.

        • L December 19, 2017 at 4:29 pm

          I would avoid that. I was on antidepressants for years and I finally wanted off of them. I ended up weaning off while taking 1000 mg of turmeric (The recommended dosage for supplements is 300-400mg 2-3 times a day for standardized 95% curcumin extract.) It was working fine until I was floxed. In spite of horrific anxiety,depression and near constant suicidal thoughts I did not go back to the antidepressants. It just was not worth it for me. And there actually is no proof that they really work and they have their own side effects. Please do not go that route.

  18. ava December 16, 2017 at 2:52 pm Reply

    hi
    six months since taking cipro and neuropathy has been acting up a lot recently .. didnt get neuropathy right away but like two months later. .. but neuropathy has been bothering alot. any advice, suggestions?
    thanks

    • Bob December 16, 2017 at 3:17 pm Reply

      I was floxed 4 1/2 years ago and my neuropathy started at about 6 months and got progressively worse. If I were you I would contact a homeopathic doctor who uses homeopathic cipro. When I was floxed I was trying to find one but couldn’t. Call Dr. Mueller at Homeopathic Associates. You don’t have to go there for treatment. He gives you 15 min consultation free. 619-741-5795. IF you know a good homeopathic doctor local they can get homeopathic cipro at Hahnemann Labs 415-451-6978. He says if you catch it early it can be reversed rather quickly. Too late for me but maybe not for you.

      • Andrea December 18, 2017 at 9:58 am Reply

        Hi bob, what do you mean by Hompeopatic Cipro?

        • Bob December 18, 2017 at 9:17 pm

          It’s a energetic remedy made from cipro. That is how homeopathy works. It’s like creating a vibrational frequency that cancels out another.

      • Andrea December 20, 2017 at 5:39 am Reply

        Hi Bob, can’t find the reply marker on your last post, anyway can you explain a little more in detail what do you mean by “energetic remedy made from cipro”? I’m reading a lot about homeopaty, after reading your post, but I didn’t get this one.

        • Theresa Warren December 20, 2017 at 7:01 am

          Did you research how they make homeopathic remedies? They can be made out of anything. I imagine they take some Cipro, dissolve it, shake it, highly dilute it, shake it some more, presto, you have a homeopathic remedy.

        • Bob December 20, 2017 at 5:20 pm

          Yes, It’s diluted until you can’t chemically detect the original substance. The more it is diluted the stronger the remedy.

  19. Barbara Arnold December 18, 2017 at 11:53 pm Reply

    Harriet, sorry there was no reply marker on your post, so I hope you get this. I live in Spain, but I get my CBD oil from the UK. Many of the CBD sellers deliver worldwide, but I know you can get it in the US as I have seen it on facebook. It is legal in most states, so I would go on CBD face book where you will get lots of good advice and information. You have to be careful and make sure whoever you buy from is genuine and not selling snake oil . Many people on facebook can tell you or head you in the right direction. Hope this helps xxxx

    • Harriet December 19, 2017 at 7:43 pm Reply

      Thanks you Barbara for your reply.

      I am in the UK but as you get supplies in the UK I assume it is legal to buy online.
      l’ll look around on FB as you have suggested.
      I am in a lot of pain from peripheral neuropathy and getting to the end of my tether.

      Thanks again for your help it is much appreciated.

      xxxxx

      • Barbara Arnold December 20, 2017 at 11:53 pm Reply

        Your welcome Harriet.
        There are many CBD sellers in the UK, but you have to be careful that you are buying the genuine stuff, so facebook can help you there.
        The game changer for me (As like you I had PN in my lower legs and feet,) was Hyperbaric Oxygen Therapy,and at the same time I took the CBD oil. I am 98% better and I was ready to write a recovery story, but I had a fall and compressed my spine, which I am now recovering from. Sods Law grrrrrr. However I do believe that in some parts of the Country ie Birmingham you can get the HOT as they use it for MS patients. I have a floxie friend who had it there and he just gave a small donation every time he used it. Here in Spain I had to pay 80 euros for every session. I had 20 sessions, one every day. You have to stick at it as it’s cummulative, but it certainly worked for me. I only have two very slight numb toe’s and very little PN in my feet now. I would have had a few more sessions but for the fall. Very expensive but so worth it for me because the pain was really bad and I wasn’t sleeping. I am sleeping so much better now and the CBD oil and tincture really helps with that. For others CBD oil helps a lot for anxiety. I hope this helps and I hope you feel better soon xxxx

        • Madge hirsch December 22, 2017 at 3:44 am

          Hi Barbara – really sorry to hear about your fall and hope you are recovering enough to enjoy the festive season. Was it a pure accident or do you think it was in some way FQ related? I am struggling with an “accident” too. I pulled someting (not sure if a muscle or tendon) behind my left knee getting off a motor bike. Though much better I still cannot manage steps without a stick. My other tendonitis are also playing up. I sometimes wonder if my tendons will ever recover.

        • Barbara Arnold December 22, 2017 at 4:28 am

          Hi Madge,
          No it was a pure accident, I didn’t see a step and charged into a palm tree in Vietnam, spent the last 5 days of my vacation in bed, and had to have special assistance all the way home. After 4 days at home something (dont know what) happened on my way to the loo and I fainted with the pain. Been in bed for three weeks but am a lot better now. Been out a few times, but being very very careful. I’m wearing a back brace. Just when I was feeling really strong for the first time in 3 years grrrrrrrrr. However in the words of Arnie..”I’ll be back” Hoping to write a recovery story sometime in the new year. When I’m recovered from this last poxy accident, I am going for about ten more sessions of hyperbaric oxygen therapy, to see if I can clear up the last remaing PN and two numb big toes in my feet. Hot really took away the burning in my legs but it was expensive.
          Hang in there Madge, because this all started with my achilles tendons, couldn’t walk, but they have recovered now. I focused most of my healing on the mitochondria, but the ozone and the hypo oxygen therapy, for me seened to make the most difference. All the suppliments I took I really couldn’t feel the difference, but I’m sure they, along with gluten free, sugar free all contributed in some way. Sounds like you would benefit from collegen as well. I never thought I would come this far, but I have after just over 3 years, so don’t give up, just keep going until you get there. xxx

        • Bob December 22, 2017 at 7:19 am

          Barbara, what do you mean by “hot really took away the burning in my legs”

        • Kurt December 22, 2017 at 11:11 am

          I think she means… HOT: Hyberberic Oxygen Therapy

  20. A.Coleman December 22, 2017 at 8:21 am Reply

    Hey floxies – in need of a pep talk and not getting support from my family. My situation is a little odd in that the only symptoms I still suffer from are poor sleep and digestive issues. The tendon problems and neuropathy are in the past. Digestive problems have always been my biggest issue as a floxie. I am about 27 months out from my floxing event.

    Currently, I suffer from very mild GERD and a generalized sense of pain/nausea in my stomach. I feel if I could just beat this I would be well, but I have been struggling with my current set of stomach symptoms for over a year now. During that time neuropathy finally went away and I had beat the tendon problems even earlier.

    I have tried both increasing stomach PH using Betaine HCL and PH reduction using first H2 inhibitors (I refused PPIs) just for two weeks and then lowest possible dose of antacids. I am now down to one 500mg antacid once or twice a week, but the nausea and stomach pain are actually getting worse. Gastroenterologist does believe I was floxed, but offers nothing in way of treatment other than saying it will get better but take time, though I am now more than 2X past his anticipated healing time.

    My main problem is the sense of desperation about getting well that I deal with. Passing the two year mark as a floxie was VERY hard. I have gotten depressed and feel that I get no joy out of life. I had my 50th birthday as a floxie and am starting to wonder if I will ever enjoy life like I used to again.

    I go to work every day and even engage in social situations, but must force myself to go and am in pain most days. Yesterday was my birthday and we are supposed to go to dinner tonight, but all I want to do is go home and crawl in bed. I do experience a few days every now and then that are essentially normal – maybe 1 or 2 days a month for the last three or four months and know that compared to many of you this is fantastic. Even had a whole week of these essentially normal days about 10 days ago and thought maybe I was finally well only to have another relapse. I am certain that part of my problem is the anxiety and stress of my situation that results in a negative reinforcement loop. The days of feeling essentially normal actually increase the stress when I relapse and get frustrated.

    Planing to go see a therapist after the holidays and may even go back on an SSRI more for it’s ability to work on stomach neruons than as antidepressant. (I had been on SSRI for nearly 10 years before stopping about 1 year before getting floxed. I took them again for about 4 months shortly after my floxing, but wanted to get off and successfully did for a second time.)

    Your thoughts and shared experiences are greatly appreciated.

    • Bob December 22, 2017 at 9:22 am Reply

      I have the same problem as one of my systems. I think antacids are making you worse. If it gets too bad take 1/4 tsp of baking soda in water. Are you taking any probiotics. Are you eating any fermented foods. That would help. All your gut flora was killed and most of your immune system is in your gut. The best treatment is fecal transplant ,yes it’s gross, but you can only get that in the US if you have a diagnosis of cdiff thanks to the FDA (Federal Death Association) In WWII German soldiers with severe gastro problems ate cattle dung and got cured. I already had gut problems ,celiac, when I took cipro and all hell broke loose. It’s like going into a garden with Roundup. Nothing survives and noxious weeds take over.

      • A.Coleman December 22, 2017 at 12:24 pm Reply

        Bob, thanks, I have been on a rotating series of three different combinations of probiotics for last two years including some earth strains every third time. Eat fermented foods including kimchi and yogurt as primary examples, but also use a product called GutShot from time to time too as well as the odd home made kombucha. I know that my gut flora was seriously messed up by the Cipro because before I figured out the culprit was Cipro the docs decided I had an ulcer and put me on a PPI which combined with the Cipro sent me to gastroparesis early in my days as a floxie. I finally cleared up from all that and was pretty healthy digestion wise with neuropathy as my primary symptom until October of 2016 when I had my only serious relapse and most of my old digestive problems returned along with some new ones – recovery this time has been much slower, just thankful I didn’t start so far down.

        • Bob December 22, 2017 at 12:40 pm

          I also am in a bad relapse for over a year. It gets old.

    • Sarah December 28, 2017 at 5:39 pm Reply

      Hello A. Coleman, Ask your Dr. about a prescription for Amitriptyline HCL 50mg. You should be able to try this for a month to see if it helps with your overall sense of depression mood. Also try CBD oil, which should help with the nausea and stomach problems. I would like to add that there are Dr.’s out there that will do a “Fecal Transplant” to get your own personal bacteria back into your GI system, but you have to have it done with one of your own biological siblings that would have the same bacteria. People do not know that these fluoroquinolone drugs kill off your own, natural colonies of bacteria that are vital to our digestive systems and everything in our bodies. You do not get these colonies back by taking probiotics and such. Once they are gone, they are gone, but you can develop new ones. The only way to get them back is by a fecal transplant with one of your biological siblings that got the same bacteria by your parents. You can also perform the treatment yourself and information can be found on the internet. Call your Dr. right away for an appointment to discuss the Amitriptyline so you can get help while going through this.

      • L December 28, 2017 at 6:38 pm Reply

        I would not advise ANY pharmaceuticals at this point. I would suggest finding a good integrative md or nd. For stomach issues, probiotics, and look into Betaine HCL and digestive enzymes

      • Bob December 28, 2017 at 6:38 pm Reply

        IN the US you have to have Cdiff or the FDA won’t allow fecal transplant.

        • Sarah December 28, 2017 at 7:02 pm

          They use “fecal transplants” for many other problems as everyone needs your natural bacteria you were born with. You can read on it on the internet and also read on doing it at home yourself. It is not done just for floxies or CDIFF.

        • Bob December 28, 2017 at 10:06 pm

          ,I know what it is for and I have read all about it. I have also looked up the company that processes it. All the info I have read says the FDA has only approved it for CDIFF. If you know a doctor that does otherwise I would like to know as my daughter would like to get it done.

        • Sarah December 28, 2017 at 10:57 pm

          Hi Bob, I don’t know where you live. You will have to check in your area or get information from other Dr’s. FDA only recognizes certain things for approved procedures etc. Just like the Hyperbaric Oxygen Chambers. FDA only recognizes a few things for this treatment, thus your insurance won’t pay for treatment if you don’t fall in the problems FDA approved it for.

      • harriet Kay December 29, 2017 at 11:22 am Reply

        Amiltriptyline causes cardiac issues etc

    • jat92517 December 28, 2017 at 6:10 pm Reply

      Hey A. Coleman,

      I have two suggestions. The first is to soak. Your feet in a SAITURATED solution of Epsom salts . This will cleanse your body of the Floxi tocin by making a magnesium flex a Salt that is insoluble and goes out in your urine. Do this for four days. The second is to eat raw coconut oil. Any oil do. Rocco current oriole is the best. It’s gentle on your stomach it’s an alternate fuel echoes into both your brain and muscle cells . They should make you feel better in short order. Good luck and happy new year John Taylor

  21. Barbara Arnold December 22, 2017 at 10:57 am Reply

    Bob, Hot is Hyperbaric Oxygen Therapy. I Had burning, stinging, like a thousand bee’s in my lower legs. Very painful. Most days between 7 to 10 on a scale of 10 being the worst. Hyperbaric really took most of it away.

    • Bob December 22, 2017 at 11:14 am Reply

      My feet are killing me. I’ve done some occasional hyperbaric. How many did you do. Were you doing hydrogen peroxide IV’s also. My doctor said 1 hydrogen peroxide IV was worth many hyperbaric sessions.

      • Barbara Arnold December 22, 2017 at 10:48 pm Reply

        Bob, I had 20 sessions, 0ne every day for about an hour. You have to stick at it because it’s cumulative. If I hadn’t had my fall, I would have had about 10 more. I didn’t have the IV’s can’t find anyone who does them here, but for me the hyperbaric worked really well. Will probably have some more when I’m recovered.

        • Bob December 23, 2017 at 11:41 am

          How many did you do before you started to see a difference? My nerve problems have have gotten progressively worse from my feet to my head. I spend most of my time in bed now. I started going downhill rapidly after dental work last year. I’m trying to figure the best course of treatment as I can’t afford to do everything.

      • Barbara Arnold December 24, 2017 at 12:10 am Reply

        Bob, to be honest I can’t really remember but about half way I did think, “is this going to work” A floxie friend told me to stick at it as it’s cumulative. You really have to have about 20 at least. Really sorry to hear how your suffering. The Doctor there showed me a dead leaf with lots of veins on it and said the veins make new connections, as a way of describing how nerves make new connections. Bob, I live in Spain and my Spanish is not great, so it was difficult to have a full comprehensive conversation with the Doc, so before you consider having it, make sure you understand the whole process with the Doctor. I managed to explain to the Doc I had peripheral neuropathy so he was happy to go ahead with me. He really knew nothing about being floxed, but excepted that my problem was side effects of cipro.
        I hope this helps Bob, and I truly hope things will improve for you next year. xx

      • Barbara Arnold December 24, 2017 at 12:15 am Reply

        Bob, check out my last post at the bottom of this page. I don’t know if you can get it in the states but I have read a lot about it and it sounds really hopeful

    • Madge hirsch December 22, 2017 at 5:57 pm Reply

      My tendon problems have been mainly in my upper legs – adductors and hips. I do get some stiffness in the Achilles but nothing like the pain in the thighs. I will be 29 months out at the end of Dec but seem to be getting worse rather than better. This year has been quite stressful for various reasons and obviously that is not helping. I was never badly floxed to begin with unlike many here but this year have had fewer spells when I thought I was starting to heal than last year. It can get demoralising . You start to wonder if you will be one of those who never get better! Part of the problem is looking back and being convinced I was floxed in England. I did recover but it took years and I was much younger then. I have started taking Acerola juice to try and stimulate collagen. I can tell just looking in the mirror that I have lost collagen in my skin. Your accident sounds bad- 3 weeks in bed would drive me mad. It’s great that you are considering a recovery story. Joyeuses Fêtes!

    • SM January 4, 2018 at 11:10 am Reply

      Barbara- I’m curious if you know of other floxies who have done HOT or not. It’s not something I’ve heard of people using, but maybe that’s a cost thing. I’m looking into it. Been fighting this in a variety of ways for 4.5 years.

      • Bob January 4, 2018 at 2:39 pm Reply

        I Have done maybe 6 to 8 spread out over months but nothing like Barbara. So I have a related question for Barbara. How do you know it was the HBO that helped the most? Were you also doing a lot of IV’S at the same time? I also have terrible burning in the legs and feet.

        • Sarah January 4, 2018 at 2:47 pm

          I’ve done 40 treatments (HBOT), it works. If you have CNS damage, it works also. The RED/Far RED/Infrared lights also work on the brain for CNS damage, nerve damage.

        • Bob January 4, 2018 at 2:51 pm

          I have a small infrared device, a quantum 10, that I use directly on my head. What kind of unit ha e you used.

        • Sarah January 4, 2018 at 3:08 pm

          i use a device with many interchangeable pads on it so you can move them to different areas of your body. its the inlight wellness system. its a bit pricey to get into but I knew about the lights and all the health problems you can use them for, as i have used them before in treatments for other pains and illnesses. The package i got was 5800.00 and it had the main 6 port controller and a 2 port controller for travel. i figured i would use this for the rest of my life and it will come in handy for other things. i signed up with the company to rep them as i have already had 4 friends that have purchased for knee and joint pain. it really really works and i would recommend it to anyone. If you have insurance, check with your insurance as with a Dr’s prescription for a light system, they will cover the cost or partial cost.

        • Barbara Arnold January 5, 2018 at 4:44 am

          Bob,
          It worked for me because I was not having any other treatment at the time, only taking basic suppliments. I had 20 straight sessions, I did not feel it was going to work but you have to stick at it as it’s cumulative. The terrible burning went, and I was feeling really good. I stopped at that point as I was going on vacation to Vietnam, but intended to have about 10 or so more when I returned, as I still had two numb big toes and some pn in my feet, but unfortunately I had an accident and compressed my spine, so I was laid up for 2 months. I have just started having them again as I think my fall caused a flare in my lower legs and feet, but not nearly as bad as it was originally. Initially you may experience a bit of a herx re action, but you have to keep going. I think it’s cost preventative to some floxies, or it’s not always available somewhere near. I travel 45 minutes every morning, but to me it’s worth it in the long term, if I can get back to where I was before my fall. I have researched it for pn and fibromyalgia and it’s supposed to help both. Hope this helps

        • Bob January 5, 2018 at 7:56 am

          Yes it does. I think the whole point is getting more oxygen. I am thinking of getting a ozone generator and doing rectal infusion of oxygen at home.

      • Barbara Arnold January 5, 2018 at 4:45 am Reply

        SM,
        See my reply to Bob

  22. Barbara Arnold December 22, 2017 at 11:08 am Reply

    For those of you in Europe, check out 10 pass ozone. Aparently it’s the lastest healing thing. Look up the centre in Cyprus, they do a complete healing package with the gut and the 10 pass ozone. I have a floxie friend who’s going there for treatment. Watch this space.

  23. Barbara Arnold December 22, 2017 at 11:15 pm Reply

    Madge,
    Sorry about your tendon problems and yes you do start to think you won’t get better because you sometimes get worse before you get better. It’s really weird as 2 years in I was coping quite well, my symptoms were, really heavy legs, like they had lead weights attached to them. They just wouldn’t do what I needed them to do, but strangely no pain. They would swell up to twice their size after walking. I also had terrible insomnia. Some nights I wouldn’t sleep at all, but again strangely I didn’t feel tired. It was like my brain was wide awake. Before being floxed I could sleep 8 hours on a washing line, no problem.When I first got floxed, I did have chronic fatique. Looking back on all this my symptoms kept changing. Then from heavy legs to really bad Peripheral Neuropathy. Burning, stinging, electric type shocks, pain, pain, I would wake up crying it was so bad. From there I tried quite a few things including acupunture and kept a daily log, pain levels were anything from 5 to 10 with 10 being the worst. So then I had 20 sessions of hyperbaric oxygen therapy, at first I was a bit skeptic but I was getting desperate. Anyway for me it worked. At the same time I took CBD oil and tincture, that really helped with sleep issues. I’m getting up to 6 hours a night now, and at times maybe more. I also took Magnesium, Coq10 ubiquinol, Vit C, Vit D3 .
    So I guess what I’m trying to say is, yes for some of us things can seem to get worse, but that does not mean they won’t get better. You just have to find whats right for you and NEVER give up.
    Feliz Navidad Madge and to you all. Who knows what next year will bring, so take even those little moments to be hopeful. xxx

    • Madge hirsch December 25, 2017 at 5:02 pm Reply

      Hi Barbara- how far out were you before the neuropathy started? I have had fleeting bouts but recently it’s got worse . It manifests as mild burning sensations – not really painful- and itching. Some pins and needles . Hives too. The itching wakes me at night sometimes. I have a pemf mat and the days I use it I generally sleep better. I have poor sleep patterns due to reading late at night and rarely fall asleep before 2am. Though I can nap in the afternoon. Well here’s hoping 2018 brings healing or at least brings it closer!

      • Barbara Arnold December 26, 2017 at 12:16 am Reply

        Madge, I was about nearly two years out I think. It started after I had a nerve induction test, where they said my nerves were fine. They sure wern’t afterwards. I had really bad burning, hot stinging, like I was being stung by a thousand bees. which was very painful, generally at night. It could come at random, if I was in a restaurant etc. I was getting no sleep and I was getting really down, which isn’t like me. At that point I was loosing hope, that’s when I had the hyperbarice oxygen therapy about 8 months later and it really did help. At the same time I took CBD oil and that also helped with the sleep issues. I think you have to de programme your sleep habits and try to slowly get your hours back to normal. I used to be able to sleep like a log, now I can get 6 or 7 hrs with a trip to the bathroom inbetween. I’m getting back slowly to sleeping the way I did before being floxed, which was 8 hrs.
        I didn’t have any itching or hives, just ruddy pain.
        Whats a pemf mat ?
        Hope next year is better for all of us. xx

        • Madge hirsch December 28, 2017 at 4:58 pm

          Pulsed electro magnetic field therapy. These devices are used a lot in Germany by physios. They have been shown to speed up bone fracture healing. I have a mat that you plug in and lie on and also a small device that can be used on specific areas. The only problem is that the booklet that came with the mat is in German.

        • Bob December 28, 2017 at 5:33 pm

          I got a treatment on a high powered mat that made me worse. What mat do you use and do you think it helps.

        • harriet Kay December 31, 2017 at 6:43 pm

          Bob et al
          https://en.wikipedia.org/wiki/ Pulsed_electromagnetic_field_therapy

  24. Barbara Arnold December 22, 2017 at 11:18 pm Reply

    Madge forgot to say I am 38 months out, so time is a big factor to xxx

  25. Virginia December 23, 2017 at 7:13 pm Reply

    I have been reading Anthony William’s “Medical Medium” book about chronic/mystery illnesses, and hope it might help us heal. I’ve had a really terrible year with 3 broken bones, and a laundry list of other problems. No idea if it’s all Lyme and Cipro or something else too. I would love to get answers, and he claims to often be able to diagnose mystery illness. I have not yet implemented his dietary and supplement suggestions, but some of his ideas are very different and intriguing. I may pay for a reading with him some day, though it’s $500 and the wait can be long. Anyone here heard of him or tried his healing protocols?

  26. Harriet December 25, 2017 at 6:56 pm Reply

    I stumbled across an alleged surgical cure for neuropathy. It is a private hospital so probably quite expensive.

    The surgeon specialises in surgical procedures for this condition and is based at a private hospital in London .The results look promising.

    • Bob December 26, 2017 at 1:38 pm Reply

      Does anyone know a good place to get kratom? I have been trying to get it from kratomworks but I just can’t get the website to work.

  27. Andrea December 27, 2017 at 6:23 am Reply

    Hi guys, a little update on my symptomps, hoping that sharing my experience will help someone.
    I’m really demotivated and depressed these days, thinking how naive I’ve been, to trust that doctor a year ago. Been eating really unhealthy lately, something that, in the past, had made my symptoms fleared up. But strangely enough, right now my symptoms are quite in the ” good range” expect for the depression, of course. The only thing I’ve added to my stack (wich is only vitamin D3 with K2) is a 10% CBD oil. It’s a swiss brand. I’m sure in the US there are way stronger options to choose. But anyway, it’s probably giving me some help, expecially regarding the joint/muscle/tendeon pain. I’ve been taking it for 5-6 days now. The downside is that it’s very expensive. 75 euros (more or less 75 US dollars) for just 1000 ml. Anyway, my verditc is that, it’is quite reliable, as a more natural painkiller.

    • Sarah December 27, 2017 at 1:10 pm Reply

      Hi Andrea,

      I am glad people are suggesting the CBD oil. I found that it worked really well. I found out how well it worked, after I ran out, and went back into the very bad pain symptoms, I had prior to taking it. As soon as I was back on it for 4 days, I was better. The price your paying for 1000 mg is great. I figure about 10 dollars per 100mgs is about the average. When I see a brand that is 200 dollars for 1000mgs, thats about double the price. I take only 15mg in the morning and 15mg at night. I suggest to everyone to try it as I found it really helps and helps with many other problems also. Read up on it everyone!

      • Bob December 27, 2017 at 2:51 pm Reply

        Where do you get your CBD oil?

      • Andrea December 27, 2017 at 3:43 pm Reply

        Hi Sarah. Yeah, I’m starting to think CBD it’s a great option for people who suffer from chronic pain/illness. I’m reading a lot about it. I’d like to try medical cannabis or cannbais oil as well, since I read that THC also contains healing properties, but unfortunately, here in Italy is very difficult to get it. It’s reserved only for certain diseases.

  28. Sarah December 27, 2017 at 3:29 pm Reply

    You can order it on the internet, just type in CBD oil. There are many companies in CO.

  29. Barbara Arnold December 28, 2017 at 12:20 am Reply

    Guys,
    If you are on facebook you can find out lots of info on CBD users facebook.UK, US, EUROPE

  30. Andrea December 28, 2017 at 7:43 am Reply

    Hi guys.
    I suspect that, after being floxed, I became sensitive to heat. I’ve read other floxies have this side effect. As a matter of fact, this summer, sympomts fleared up at full strenght. Any thoughts on that? I understand that’s probably my messed up nervous system, but why specifically heat? Thanks.

    • Sarah December 28, 2017 at 11:41 am Reply

      Andrea, sounds like you do have the side effects of Central Nervous System damage. Do you feel like you are having a “panic attack”, then heating up with sweating all over? Is the heat attack happening at different times, 24 hours a day, even through the night? Heaving sweating, panic attacks, and heat intolerance are signs of the CNS damage. I would suggest you find a Hyperbaric Oxygen treatment facility and start going through a program with them to see if that can help you. HBOT are good for people with brain damage also, strokes, healing after trauma or operations, burn victims and many other. Also get some CBD, and THC if you can. If you just took the meds within the last year, you may have a year or more of trouble before things start to get better, but check out the HBOT and see what you can do.

      • Andrea December 29, 2017 at 7:28 am Reply

        Hi Sarah, the only thing I’ve noticed in this regard, is that I can’t stand hot temperatures anymore. I feel very weak and dizzy when the weather it’s hot, like this summer.
        I’ve checked HBOT. Eeems interesting. Thank you.

  31. Ryan L December 28, 2017 at 6:21 pm Reply

    Can someone take Pepto Bismo after having Cipro. About two years out and I got the stomach bug. Any suggested would be greatly appreciated.

  32. Lane December 29, 2017 at 4:27 am Reply

    Hello everyone,

    It’s been awhile since I posted anything on FloxieHope, but I have some information that may prove useful to the community. About 5 years ago, shortly after a final round of CIPRO, I developed the symptoms of fluoroquinolone toxicity syndrome (FQTS). As I’ve learned over the years (and as many of you know), many of the symptoms of FQTS closely overlap with the symptoms of fibromyalgia. I recently had the EpicGenetics FM/a test done, which is essentially a blood test for fibromyalgia. You can learn more about it at https://fmtest.com/ I received the results of my test a few weeks ago with a score of 86 which is in the “Strongly Confirmable” range. There are 4 ranges, 0-50 is “Not Confirmable” for fibromyalgia, 50-80 is “Confirmable”, 80-90 is “Strongly Confirmable” and 90-100 is “Extremely Confirmable”. There is an excellent article at http://www.prohealth.com/library/showarticle.cfm?libid=30470 that gives a bit more background and science behind the test.

    Since I didn’t have symptoms of fibromyalgia before CIPRO and definitely have them after CIPRO, I believe CIPRO caused some sort of gene expression that is responsible for the fibromyalgia (just my own personal theory).

    The interesting thing about Epic Genetics is that if you are “Confirmable” for fibromyalgia, they will enroll you in a free genetics study called “Campaign 250” to look for possible genetic clues as to the orgin of condition. You will also be eligible to participate in a vaccine study scheduled to begin in February 2018. I plan to participate in both.

    I hope this is beneficial to everyone and I encourage you to review the links above; for me this was the first blood test I’ve had since the CIPRO that was clearly abnormal and may actually mean something in terms of recovery.

    All the best to everyone for a hopefilled 2018.

    Lane

    • Andrea December 29, 2017 at 3:19 pm Reply

      Thanks a lot Lane. I’d love to take the blood test, but I live in Europe. I don’t know what to do…

      • Lane December 30, 2017 at 1:10 am Reply

        Hi Andrea,

        I live in the UK so I understand your situation. My rheumatologist at Cambridge completed the physician order/authorization form and I scanned it to EpicGenetics. They mailed me the test kit which contains 2 sample tubes and I took them to a phlebotomist for the blood draw and them mailed them to California myself. You can mail the vials back via FedEx International First from most countries in Europe (the samples must arrive within 24hrs of the blood draw and must arrive to EpicGenetics on a weekday for receiving).

        I hope this helps Andrea, the staff at EpicGenetics are really helpful and should be able to help you through the process from outside the USA. You can use the contact us page on their website to start a conversation with their staff via email for any assistance.

        Best Wishes,
        Lane

        • Andrea December 31, 2017 at 5:49 am

          Thanks Lane. I’ll see what to do. Can I ask you, if you don’t mind sharing, how much did you spend ?

        • Lane December 31, 2017 at 6:36 am

          Hi Andrea,
          The test is almost 1000 USD; however, most insurance plans cover it.

        • Madge hirsch December 31, 2017 at 6:21 pm

          Given that the rise in fibromyalgia has run in parallel with the increasing prescriptions of Fluoroquinolones it is entirely possible that fibromyalgia is actually fluoroquinolone toxicity and not a separate condition.

        • L December 31, 2017 at 7:12 pm

          Boy, I’m with you on that Madge. I think so many “diseases” can be linked back to these toxins.

        • Lane January 1, 2018 at 3:53 am

          Hi Madge, L

          This is also my thought, although there are some (albeit small) differences between symptoms of FQTS and Fibromyalgia, most notably the nerve issues (e.g., fasciculations, cramps, paresthesias) that don’t seem as prevalent in fibromyalgia from what I’ve read. The working theory that EpicGenetics is operating under is based on immune system dysfunction. This makes sense to me considering a lot of the symptoms of FQTS and fibromyalgia “look” like immune system disorders – in fact, most of the tests I’ve received multiple times (which were always normal btw) from rheumatologists and neurologists have been looking at things like CRP, ANA and ESR which are tests used to look for inflammatory and autoimmune disorders.

          The FM/A test revealed that my immune system cannot produce normal quantities of protective proteins called chemokines and cytokines. The second and third order effects of this dysfunction are largely unknown, but they are common markers (and now diagnostic) in people with fibromyalgia. This dysfunction could also account for many of the FQTS symptoms that we cannot find a cause for via conventional testing – but this is my own speculation.

          A couple of references for you:

          https://www.ncbi.nlm.nih.gov/pubmed/?term=Unique+immunologic+patterns+in+fibromyalgia

          https://www.ncbi.nlm.nih.gov/pubmed/?term=Cytokine+and+chemokine+profiles+in+fibromyalgia%2C+rheumatoid+arthritis+and+systemic+lupus+erythematosus%3A+a+potentially+useful+tool+in+differential+diagnosis

          Happy 2018!!

        • Andrea January 1, 2018 at 8:16 am

          All right. Thanks a lot, Lane. I’ll let you know if I’ll do it.

  33. Jeremy December 29, 2017 at 7:51 am Reply

    Dear Community,

    Please advice regarding soft-tissues/nerves-irritation regeneration after Floxing.

    I need hope because this pain drives me crazy and I don’t want to live anymore.

    I did regenerate from other symptoms: overal weakness, candinda, pain in legs.

    One painful problem left:

    What happend?

    Right after a Levoxacinum taking for 28 days (December 2015) I was at the unfortunate Thai massage. Lady asked me if I have a problem somewhere, I said that I have the snapping (“clicking”) tendom in the left arm. This snapping started right after Levoxacinum. She pushed lot of force into massaging this whole left arm. That how the big issue with arm pain started.

    The pain symptoms are partialy like Ulnar nerve neuropathy, pain in the upper part of arm. Partialy the pain is under the arm pit, more on the back side.

    I’m pain free when I sleep. Typically it getting worste during a day. I have a strenght in the arm.. but after lifting, pain can appear in 15-30 min after.

    MRI shows nothing. Ortophedic doctor who recognisez FQT called it “functional problem”.

    What could be the cause?

    One of the tendoms (supraspinatus tendon, subscapularis tendon) is irritating the nerve. Or other not properly regenerated tissue is irritating the nerve. All function in arms are correct, I can hear only snapping tendon when rotating arm up and backwards. But this snapping is not strictly correlated with pain.

    What I am asking this community?

    Please advice. You know how body can regenerate after Flox poisoning. Some tissue is distrubed and damaged as an effect of FQ and thai massaage.

    Can I have a hope? Can I stay optimistic? Even if it take some time (years), can cells replicate correctly (dna/mitochondria) and heal the tissue ? Or I need to live with this to the end of my life?

    Maybe someone had/have similar problem? That tissue was causing problems and it was gone after some years?

    I read many times here that body regenerate, but sometimes takes even 10 years.

    My problem is already 2 years old. In May ’17 I have wrote that it’s gone (https://floxiehope.com/comment-page-71/#comment-51087) but it came back after 3 months. But i was 3 months pain free from that arm!!

    I do supplements, I tried physiotheraphy with moderated outcome > learned better posture. I can’t train this arm, because pain always aggregate.

    Can I have hope?

    Thank you everyone for attention and wish you a good year 2018! We shall improve with our health!

    Jeremy

    • Jeremy December 29, 2017 at 8:02 am Reply

      + German ortophedic doctor described it as Skalenus Syndrom, which I’m assumig is the same as Thoracic outlet syndrome (TOS). Here probably: Neurogenic thoracic outlet syndrome.

      • harriet Kay January 1, 2018 at 8:52 am Reply

        Neck problems can cause shoulder and arm pain. You say the pain worsens after lifting. In the UK the dr would do an ultra sound scan. I would strongly suggest getting your vitamin D and B12 levels checked. a low vit D can cause shoulder and/or rib problems . You can google this . You may have a disc problem in the neck which can be treated conservatively. There is always hope.

    • jat92517 December 30, 2017 at 10:23 am Reply

      Jeremy’

      Oh yes you can have hope. It will take three or four stages. The first is to soak your feet in a saturated solution of Epsom salts. Saturated mean there is some solid salt on the bottom of your pan. You should also know your vitamin D level. Go to a doctor to get it tested if you don’t know. You want a little of 30.

      • Tim January 9, 2018 at 4:29 pm Reply

        Hi i am going to try the Epsom salt soak , i have done some before but never saturated as you mentioned,and how many would I have to do to see results? and do you think it’s too late for me to get rid of it, I still have many cipro symptoms after 5 years, is it possible to still have this drug in my system? my feet are killing me lately ,hard to walk down the stairs my tendons are so stiff ,I’ve had really good days and forgot about it but it’s back and I want to take care of it, hope to hear from you. Thanks

    • L December 31, 2017 at 7:19 pm Reply

      Jeremy, one thing that could really help (if the pain in not related to nerve damage) is prolozone injections. They are a combination of ozone and procaine. After Cipro, one of my many side effects was torn meniscus. The pain was so bad in one knee I was using a cane. I didn’t want surgery and no way would I do any kind of steroids. The prolozone injections actually help your body to heal itself (it takes several months post injection.) I got mine from my naturopath, but many sports medicine doctors now offer it. (This is not to be confused with prolotherapy, which is supposed to work the same way, but I don’t know enough about that to recommend it, not do the ingredients sound as theratpeutic.)

      • Andy January 3, 2018 at 4:43 am Reply

        I am having procaine bicarbonate infusions soon L

        • L January 3, 2018 at 11:27 am

          What you are having I believe is the prolotherapy. I will be curious to see how that goes. I think what is most helpful about the prolozone is the “ozone” part in so far as natural healing. I know the prolotherapy does not include ozone. Good luck with that and let us know how it goes. (I imagine, like prolozone, it will be a few months to know how it worked.)

        • andy January 4, 2018 at 2:03 am

          what I have been told it opens up and relaxes the capillaries prior to ozone and disinfects the blood is a big anti inflammatory and pain killer
          The Doctor I am going to uses it before any ozone therapy

    • Jeremy January 1, 2018 at 9:19 am Reply

      Thank you everyone for the motivation!

      To jat92517 Re: Magnesium itake, i ‘m taking high dosage for a long time now. I will get back to take more via feet soaking in Epsom salts.

      To L Re: Prolozone Injectons: this sound really good and I remember i was reading about it some time ago. It’s not so easy to obtain this here in Berlin, Germany. I have a question: this Prolozone injections are injections directly in the tissue, right?

      That being said, I’m assuming I would need to have more precise diagnosis what is causing Thoraic Outlet Syndrome symptoms, right? Maybe a muscle is compressing the nerve, or the rib. There are 3 different areas (as far as i know) that can cause the pressure.

      I will try to get to the best doctor in Berlin to get more precise diagnosis, hope it’s possible.

      But i don’t want surgery. I have this feeling that FQT is stopping the proper healing.

      To harriet Kay: re B12: thanks, I had a good result of B12 when testing from blood, but I know that this test is not the best. Anyway, I will reintroduce B12 supplementation.

      Thanks everyone, I’m pretty desparate and depressed after prologned pain in the arm.. it’s difficult to leave like that, you all know that.

  34. harriet Kay December 31, 2017 at 6:28 pm Reply

    Jeremy Please keep hoping. Nothing is impossible. Have u been tested for vitamin B12 deficiency or anaemia. These can cause your signs and symptoms as well as neuropathy from the dreaded deadly flq. You can easily buy sub lingual B12 or self inject if non absorbed via the gut .
    You need to have a Vitamin B12 test done prior to taking B12.

    There is plenty of advice on this and the results of blood tests on the Pernicious Anaemia Society website.I would urge you to google this as there is a massive amount of scenarios and really good advice there.

    Take care

  35. Harriet January 1, 2018 at 12:46 pm Reply

    https://pernicious-anaemia-society.org/
    Hi again sorry another link bu to the Pernicious Anaemia Society/ Low vit B12 can cause peripheral neuropathy and tendonitis as well as fluoroquinolones.

    • Andrea January 2, 2018 at 7:14 am Reply

      HI harriet. Now that you’ve mentioned B12 I want to share my experience about it.
      Prior to being floxed I was diagnosed with Benign Prostatic Hyperplasia. It never bothered me much. And I used to drink coffee, and for about 3 months I took some CDP choline (wich is something that can mess with your bladder contraction) together with some B complex, but for me was just beautiful. I was happy and motivated. Also my libido went up, sorry to go into details, LOL. But after being floxed,I developed symptoms of Overactive Bladder. I tryed CDP Choline and B vitamins again, and they totally mess me up now. I already go to the bathroom way too many times, but if I try B complex and/or CDP it’s just awful. To me, this is just another proof, of how my Nervous System isn’t just working right. Something that prior to take that drug was pleasent, now It’s detrimental for me.

  36. Harriet January 2, 2018 at 8:34 am Reply

    Andrea
    I am the same. After being floxed with cipro the B vitamins mess me up gut wise .
    I can self inject without the nasty side effects you mentioned.
    Big pharma have a lot to answer for.

  37. Andy January 2, 2018 at 1:11 pm Reply

    You need to try the methyl b vits they are easier to absorb,organic cbd oil helps heal the cns and reduce inflmation in the spleen
    Vit b6 for some floxies makes you far worse as it’s excitory and can become toxic and hard to remove

    • Harriet January 3, 2018 at 4:58 am Reply

      Andy Re B6 I did not know that it is toxic. How long does it stay in the body? Is it in food as well?
      Thanks

      • andy January 4, 2018 at 2:06 am Reply

        its not toxic but can be at larger doses ,many floxies with bad neuropathy cant handle it even in tiny amounts.I cant take it at all it makes me burn all over
        I cant take any B vits unless they are meythl as I have mthfr mutations

        • Harriet January 4, 2018 at 8:16 am

          Andy How did you find out about the mthfr mutations?
          Did your GP order some tests?

          Thanks

  38. Harriet January 3, 2018 at 5:25 pm Reply

    To everyone Sorry to be so miserable but I am having a really bad time with all this . I feel like throwing in the towel as life is so painful. Can someone just reply to support me please? Thanks

    • Andrea January 4, 2018 at 12:18 pm Reply

      Harriet, you don’t need to be sorry at all, don’t even think about that. Everyone here understand your pain and misery. More or less, we’re all suffering from the nasty side effects of these drugs. You have all the rights to let out your frustration. As stupid as it may sound, I’m with you. Stay strong.

    • Andy January 4, 2018 at 1:47 pm Reply

      23me tests are you in the UK harriet

      • Harriet January 7, 2018 at 12:27 pm Reply

        Andy Yes I am in the UK. .

    • Bob January 4, 2018 at 2:47 pm Reply

      Just remember there are other people on this site going thru hell every day that understand. No one who hasn’t gone thru this could understand. I feel like throwing in the towel every day it I keep believing one day my pain will be gone.

    • L January 4, 2018 at 6:53 pm Reply

      Maybe this will give you hope. I was SEVERLY floxed. I literally gasping for breath every day for months. I had olfactory nerve damage where everything in the world asphyxiated me. It was beyond terrifying…like constantly being surrounded by open vats of bleach. I have had eye damage, peripheral neuropathy, excruciating pain, hair loss, lost 1/3 my body weight and dozens more side effects. MOST of it is behind me. I am still dealing with issues (fluid around my heart, PN, phantom scents and some breathing issues and pelvic pressure.) BUT I went from barely able to take a step without help, to going back to most of my former activities. I have even added back in things like coffee, and some foods I had stopped eating. We all understand your depression with this. It will get better though.

  39. Harriet January 4, 2018 at 12:56 pm Reply

    Thanks Andrea.

    x

    • Andrea January 4, 2018 at 1:32 pm Reply

      You’re welcome Harriet. I understand, when you say you feel like throwing in the towel , but keep working on your healing, if you can…

  40. Harriet January 4, 2018 at 1:51 pm Reply

    Andrea
    Thanks for your support it is much appreciated .
    Each night I go to bed scared stiff that things will be worse the following day.
    Life is just horrible and I feel so angry re Big Pharma . I find that any antibiotic now causes or triggers off a toxic reaction. I dread becoming ill with an infection, this worries me a lot.

    Like other floxies I now have food and drug intolerances such as gluten, soy, wheat, amaranth , dairy.
    Christmas was a night mare in terms of food etc.
    H x

    • L January 4, 2018 at 6:48 pm Reply

      Yes Harriet, we ALL hate big pharma. Don’t panic about getting sick though. If you get a cold or flu or sinus infection, get a bottle of oil of oregano (buy one that already comes in it’s own carrier oil, like natural factors) place three drops under the tongue. Hold for about ten seconds. Add water and swirl around and swallow. (IT takes kind of gross but I am so used to it—and doing it this way as opposed to capsules is quicker and more effective.) Do this for 7 days. Other good ones to have on hand for infections are colloidal silver and olive leaf extract.

      • Harriet January 5, 2018 at 6:41 pm Reply

        Thanks to you once again I will definitely try the oil of oregano .

        Thank you. xx

    • Andrea January 5, 2018 at 9:55 am Reply

      Yeah..I know what you mean (food and drug intolerance). I sometimes use an alpha blocker, because I suffer from BPH. According to the doctor who prescribed it to me, it has NO side effects, he was pretty sure about it. LOL, these doctors and their precious medicines…
      Any time I take it, only when my BPH symptoms are unbearable, all my FQ symtoms flare up. Alpha blockers lower blood pressure,so when i take it, I feel very dizzy and weak.
      Not to mention how, now, many foods trigger my symptoms. Dairy and sugar are the worst.
      I am too very scared that another relapse will hit me, like this summer. As I mentioned in another post, I think I become sensitive to heat. This summer was horrible for me.

  41. Melissa Rodewald January 4, 2018 at 3:28 pm Reply

    Hello, I am a first time visitor here. A friend of mine is a floxie, going on a year now, with no relief in sight. She’s unable to do much web surfing, so I am trying to find a link to doctors in Arizona who have specific experience with this. Can you point me in the right direction? Thanks!

  42. Lin Stevs January 4, 2018 at 4:05 pm Reply

    Went back in archives. Dr. jay Cohen’s site popped up. Suggest people preserve his legacy by copying and passing this link out where ever possible, https://web.archive.org/web/20150207003734/http://medicationsense.com/index.php

  43. Melissa Rodewald January 4, 2018 at 6:03 pm Reply

    Thank you. I am looking for currently practicing physicians that are in Arizona.

  44. Toby January 5, 2018 at 9:14 am Reply

    I read on this site that many floxies use magnesium. My magnesium levels are 0.9 mmol/l. Normal range is 0.7-1.05 mmol/l.
    Do I need to take more magnesium?
    Question for magnesium users: Are yours magnesium levels low?

    • andy January 5, 2018 at 11:11 am Reply

      its red cell magnesium that matters

    • SM January 5, 2018 at 11:43 am Reply

      RBC magnesium through request a test works.

      • Toby January 6, 2018 at 1:23 am Reply

        Nobody in my country work RBC magnesium test. What you think can I take more magnesium?
        Which vitamins and minerals can help with anxiety?

        • Bob January 6, 2018 at 2:59 am

          GABA 500 mg

        • Barbara Arnold January 6, 2018 at 3:14 am

          Toby,
          You can read everything you want to know about magnesium levels from Dr. Carolyn Dean’s website, just google it. Also kerri Knox’s protocol of vitamins and minerals in her book ‘The Levaquin Toxicity Solution’ will also give you the information you need. There is a link on this site at the top of the page. Hope this helps. If you also look on facebook CBD oil , you will find a host of information to help with your anxiety. You may need your Vit D level checked also.

        • Toby January 6, 2018 at 5:56 am

          I just read Dr. Carolyn Dean website. She wrote that serum test usually turns up normal.
          Do many floxies have magnesium deficiency? I am floxed with metronidazole.
          I will check vitamin D. Which else vitamin I need to check?

        • Toby January 6, 2018 at 5:59 am

          I am thinking to try magnesium chloride 400mg/day. Is it safe?

        • Tara January 8, 2018 at 8:27 am

          Toby,
          I was given Metronidazole and Cipro at the same time for a week so you can imagine the predicament I have been in this past year… small improvements have happened over time, but I still have a lot of issues with my vision. Just curious since you had Metronidazole by itself, what are your current issues?

        • Toby January 9, 2018 at 12:14 pm

          Tara,
          I have very high anxiety. Also have some other issues, but I am not 100% sure that it is from metronidazole

  45. Harriet January 6, 2018 at 5:36 am Reply

    I am concerned about using cbd oil as it is illegal in the UK. Can someone please advise me ? Thanks

    • Barbara Arnold January 7, 2018 at 12:36 am Reply

      Toby, maybe B12. If you take vit D3 you may need K2-7 to help absorb it. We are not Doctors here so you must research yourself. Kerri
      Knox book can help, but is not a cure. And yes if you are floxed you will be short in magnesium as it’s leeched out of the cells.

    • Barbara Arnold January 7, 2018 at 12:38 am Reply

      Harriet, it’s legal in the UK

    • Andy January 7, 2018 at 2:04 am Reply

      Harriet it’s not legal if the thc is taken out, sakred kana and oil is the best, it’s organic and very cheap
      Contact me or Barbara if you want to know where to get it from

      • Barbara Arnold January 7, 2018 at 4:10 am Reply

        Hey Andy,…..or even, it IS legal if the thc is taken out lol

        • Andy January 7, 2018 at 4:21 am

          Sorry barb quin brain ,if taken out !

      • Harriet January 7, 2018 at 12:14 pm Reply

        Thanks Andy.Barbara
        So it is legal in the UK if no cannabis is contained in it?

        Please can you advise where to purchase it from.
        Many thanks .x

        • Andy January 7, 2018 at 2:51 pm

          Sacred kana

  46. Andrea January 6, 2018 at 11:01 am Reply
  47. Harriet January 6, 2018 at 5:24 pm Reply

    Hi Toby

    MAGNESIUM CHLORIDE,
    Here is a link to it. I do not know if it is safe for you or not.
    Hope this helps though.

    https://www.bing.com/search?q=magnesium+chloride&form=EDGEAR&qs=PF&cvid=9e3a7e7fcf08485d8158790cb7a0b1c8&cc=GB&setlang=en-US&PC=LCTS

  48. Harriet January 7, 2018 at 12:07 pm Reply

    https://www.amazon.co.uk/dp/B00FFYXZIK/ref=sspa_dk_detail_1?psc=1
    I stumbled across this to aid breathing and wondered if anyone had ever come across it. It is a drug free device that alleges to improve the entry of oxygen into the lungs and strengthen the muscles of respiration.

    • L January 7, 2018 at 3:06 pm Reply

      Interesting. I found this site that reviews it and gives cautions towards the bottom. https://doesitreallywork.org/aerosure-medic-review/ I am currently having undiagnosed breathing issues and suspect it may be the Cipro rearing its ugly head again, since that was one of the initial, and worst side effects early on. Just going through a lot of testing to rule things out. I am just so livid at the ongoing devastation these poisons do.

      • Harriet January 7, 2018 at 5:21 pm Reply

        L I know. Me too. Just keep hoping and praying for a cure.

        http://painmanagementphiladelphia.com/treatments/prp-therapy/

      • Madge hirsch January 7, 2018 at 5:53 pm Reply

        That’s a huge drag L. But it is typical that when you think you have got rid of a symptom because it hasn’t been around for a while then it comes back to thumb it’s nose at you. I’m getting hives and some neuropathy at the moment but fingers crossed my breathing has improved since November when it was really bad. At the end of this month I will be 30 months out and am really hoping that 2018 is going to see some definite improvement. I really hope your breathing improves soon and your tests are all negative. Bonne Année.

        • L January 7, 2018 at 7:33 pm

          Thanks. Curious what your breathing difficulties were like and were you felt it most. And Bonne Annee to you too. (and bonne sante!)

      • Madge hirsch January 8, 2018 at 6:24 pm Reply

        I think it was mainly a worsening of my asthma as using the preventative inhaler improved it though I did not wish to use it on a regular basis due to the steroids. I do get breathless with effort as well as I am too sedentary at the moment after pulling something behind my right knee over a month ago. It has improved now so I don’t need the walking stick anymore but I still can’t walk up and down stairs normally. I feel like an 80 year old at times!

        • L January 8, 2018 at 6:50 pm

          well, I went three years with no asthma meds and now I have been using the rescue inhaler every day for 7 weeks. It HELPS but it does not alleviate the problem. And it just feels different from asthma. Still trying to find out what the heck is going on.

  49. jérôme January 8, 2018 at 12:41 pm Reply

    Hi,does someone take CBD from CBD Brothers UK?

  50. Mah January 8, 2018 at 3:26 pm Reply

    Hi, new to the core after being floxed 3 weeks ago. I had a hysterectomy (medically necessary for CIN 3 dysplasia cells) and then developed an internal infection ehoch required IV antibiotic Zosyn and was sent home with Cipro and Clindymacin so the infection would resolve (which it didn’t, I had to have a subsequent surgery to clean and repair the damage the abscess did internally). Anyway, I took 2 pills, that was all, and woke up the next morning in agony in my back and thigh, was sent to the ER by my doctor because she thought I had Deep Vein Thrombosis (I didn’t). Was diagnosed with arthritis…ha ha ha, I told the doctor he was ridiculous. Came home and looked at my meds list and lo and behold found the cause of my issues. My biggest problem has been that I have had to be on pain medication for the 2 surgeries and had antibiotics and other other sorts of crap in my system so my doctor had told.me I am detoxing off of pain meds. It’s been more than a week since I had a pain med, and I told her there are more issues here than withdrawals a week out would cause. I am really scared, no one seems to want to help me here, I am visiting my GP tomorrow to see if she will listen. I haven’t worked since before Thanksgiving due to the first surgery and I need to get back to work, more so I need to feel better. There is so much good informati9n on here, but I have no idea where to start to help healing my body. Can somebody help me get started?

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