Floxie Hope


This site is to give HOPE to those who are suffering from Fluoroquinolone Toxicity Syndrome as a result of being poisoned by fluoroquinolone antibiotics – Cipro, Levaquin, Avelox, Floxin, etc.  It contains stories of healing.

Cipro, Levaquin, Avelox and all other fluoroquinolones are dangerous drugs that can have devastating effects that cumulatively I’ll refer to as Fluoroquinolone Toxicity Syndrome or Floxing.  Fluoroquinolone Toxicity Syndrome/Floxing includes damage to connective tissue (tendons, ligaments, cartilage, fascia, etc.) throughout the body, damage to the nervous systems (central, peripheral and autonomic), and more. The damage done by fluoroquinolone antibiotics can destroy a person’s quality of life or even kill them. Certainly, there is a time and a place for drugs with dangerous side effects. If you find yourself in a septic shock induced coma, fluoroquinolones may save your life. Unfortunately, these drugs are not being reserved for life or death situations. People are being prescribed them for urinary tract infections, suspected prostate infections, upper respiratory infections, as a prophylactic for travelers’ diarrhea, ear infections, pink eye, etc. Thousands of people have suffered needlessly from the devastating effects of fluoroquinolone antibiotics, when another, safer antibiotic could have, and should have, been used.

The damage done by fluoroquinolones is largely unacknowledged by the medical establishment and an accurate diagnosis, compensation and relief are difficult to come by. There is no known cure for Fluoroquinolone Toxicity Syndrome/Floxing.  However, many people continue to LIVE after being poisoned by fluroquinolones.  They find healing, recovery, perseverance, compassion and hope.  These are their stories.

This site is meant to give hope for healing to those who are adversely effected by fluoroquinolones.  It is no way meant to disregard the pain of those who are chronically suffering from the horrifying effects of Cipro, Levaquin, Avelox or the other fluoroquinolones.  There are people who don’t recover.  Their stories are real and they matter.  There are also people who are able to recover and I share their stories with the hope that they inspire others, or at least give hope that recovery is possible.

Here is a New York Times article about the dangers of fluoroquinolone antibiotics – http://well.blogs.nytimes.com/2012/09/10/popular-antibiotics-may-carry-serious-side-effects/?_r=0 – more news stories, research papers and other resources can be found on the “Links and Resources” page.

Here is a Facebook group that is a great resource for those going through Fluoroquinolone Toxicity – https://www.facebook.com/groups/floxies/

Featured post – I’m floxed. Now what?

The Fluoroquinolone Toxicity Solution Ebook has helped many Floxies to recover, including DanielCindy and Ruth.  As a bonus, you will also receive The Floxie Food Guide – a book of diet guidelines to help you through fluoroquinolone toxicity:

flu tox get help you need banner click lisa




21,538 thoughts on “Floxie Hope

  1. Henk Noordhuizen June 16, 2018 at 2:16 am Reply

    Here another article from Dr. Mercola,on fluoride. It has some good links to other usefull sources:


  2. Henk Noordhuizen June 16, 2018 at 2:37 am Reply

    A list of medicines containing fluoride and the dangers:


    I’ve only one medicine at the moment,flecainide (is on that list). Have to take that because of long term effect of Omeprazole/Losec,used for about 15 years.Never asked for the Losec;my doctor pushed it on me.

  3. Barbara Arnold June 16, 2018 at 3:38 am Reply

    Also I have emailed British TV please will all of you do this as well even if it’s only a few lines as I want as many floxies as possible to be heard and I want to get as much publicity as possible to stop this outrage against us and future victims. Email addresses are gmb@itv.com and thismorning@itv.com
    I have asked everyone on facebook and The Fluorquinolone Toxicity Solution website as this is a world wide outrage, to do this as well. I can’t do this on my own and I think the time is right.

  4. Barbara Arnold June 17, 2018 at 1:49 am Reply

    Here are some other emails I have sent to the British Media gmb@itv.com
    thismorning@itv.com jo_waters15@hotmail.com
    I have asked EVERYONE on social media to email no matter where they are from.
    I want them to be inundated on Monday morning, because I think this could influence the outcome of the FDA hearing if we get enough publicity. I have told them that in spite of the FDA giving a black box warning this poison is still being prescribed. It has got TO STOP. It’s MADNESS. We all have another chance now to get this out there. So please, please, EVERYONE send your story or even just a few lines on the danger’s of fluroquinolones. We have to do this together, they won’t listen to lone voices. Thanks everyone

  5. S June 17, 2018 at 4:35 am Reply

    Hi all, Just a quick question – has any one had to have local anaesthetic? Was lidocaine used and were there any side effects? Also has any one had to have general and what was used? I will possibly need to have a local soon – I’ve thought about not having any anaesthetic but I’m not sure if the doc will allow it. But also in the future if I have general, a lot if not all contain fluoride…?

    • L June 17, 2018 at 9:25 am Reply

      Hi S, all of us react differently, so not sure this will help, but I have had procaine and septocaine with no issues. As for a general, I would just tell them you cannot take fluoride and ask them for one that does not have it. (Hopefully there is one.)

      • s June 18, 2018 at 9:25 am Reply

        Hi L, thanks for letting me know about your experience, still not sure what to do as yet!

        • s June 18, 2018 at 10:46 am

          Don’t seem to be able to reply to your below comment! I can’t have it frozen off unfortunately as it’s really deep underneath the skin I will have to have it cut out :/ lol!

        • L June 18, 2018 at 10:48 am

          damn. Guess just ask for the most benign. (I used to date a flute player who was always concerned about his mouth, so he would get dental work with no anesthetic. I could never do that but then I have a very low pain threshold.)

      • s June 18, 2018 at 10:46 am Reply

        Don’t seem to be able to reply to your below comment! I can’t have it frozen off unfortunately as it’s really deep underneath the skin I will have to have it cut out :/ lol!

      • s June 18, 2018 at 10:48 am Reply

        Also it’s on the NHS so I won’t be paying for it, one good thing about it lol

    • Daniela June 17, 2018 at 4:45 pm Reply

      refloxed from septocaine (articaine+epinephrine) leading to permanent disability

      • L June 17, 2018 at 5:05 pm Reply

        ugh. sorry. I was fine with it. we are all so different. it’s so much of a crap shoot. ditto glutathione. I felt the IVs helped me immensely. Others say they were injured by them. you just have to kind of request something without fluoride or flqs and hope for the best

        • Daniela June 17, 2018 at 5:52 pm

          L, More than one person here has written that they have been hurt by septocaine on Floxie Hope, and myquinstory dot com documents septocaine specifically as being harmful. Forewarned is forearmed.

        • L June 17, 2018 at 6:11 pm

          Again…I was SEVERELY floxed and did fine with it. one size does not fit all

        • Daniela June 17, 2018 at 8:23 pm

          L, At the time you wrote me that you had used mepivicaine, not septocaine/articaine. Septocaine/articaine is much stronger and longer lasting than the other anesthetics; there are many patient complaints.

        • L June 17, 2018 at 9:12 pm

          you must be thinking of someone else. I have never heard of mepivicaine

      • Andrea June 18, 2018 at 2:39 pm Reply

        Sorry Daniela, but let me understand it correclty. You took a shot of septocaine, and you suffer a relapse that led to permanentdisability? Is it correct?

    • Daniela June 17, 2018 at 5:56 pm Reply

      S, I had great results with dental work without anesthesia. It really was LESS painful for a more serious operation! And the dentist said it was much easier to work without it.

      One time I had acupuncture points put on my ears, and one time I didn’t have anything!

      • MHD June 17, 2018 at 10:58 pm Reply

        What ?

      • s June 18, 2018 at 9:28 am Reply

        Hi Daniela, thanks for letting me know – I’m still not sure what to do but I am debating asking for no anaesthetic, it is a mole I am having removed on my arm, not that there is a problem with it at the moment but just to be safe. I’m guessing it will be quite painful without it but I’d rather have an hour of pain than have to go through it all again!

        • L June 18, 2018 at 9:49 am

          since this is for a mole, is there a chance they can freeze it off? That generally requires no anesthetic, or at least a topical one….

        • Don M June 18, 2018 at 10:43 am

          I know I sound cynical but………. freezing is a cheap way to go and most doctors like to do surgery because they can charge more for it. More and complicated procedures make more $$$$ in their pockets.
          Freezing does sound like it could be a good option though.
          I get the freeze treatment every 4 months from a dermatologist. I often wonder if it is for the money or for my better health.

  6. Barbara Arnold June 17, 2018 at 6:56 am Reply

    A couple more email addresses news.desk@express.co.uk and science@theguardian I am sick to death of hearing about new victims EVERY DAY. I am OUTRAGED that this is still happening to people and destroying their lives. Please help stop this and email the media. We have had no publicity in Europe on this. Thanks

  7. Barbara Arnold June 17, 2018 at 7:04 am Reply

    Sorry missed the .com off science@theguardian.com I’m tired been at this all weekend

    • Madge hirsch June 17, 2018 at 11:09 am Reply

      Hi Barbara- have emailed the Guardian as I reckon doctors are more likely to read it than any other paper.

      • Barbara Arnold June 17, 2018 at 10:41 pm Reply

        Thanks Madge I hope that helps. I had in mind if we all sent emails to the same addresses it would make them sit up and think. I wanted them to be flooded this morning as in my opinion loan voices don’t work. Also the EMA hearing is current and we could use that in our emails. I have had lots of good feedback from facebook as I spent the whole weekend posting. Bit dissapointed on here. We have to ALL have do something, even if we are very sick, a few lines can be managed. This continuation of prescribing this POISON is OUTRAGEOUS and the only way to get it stopped is to constantly get it out there at every opportunity. So hopefully those on this site who haven’t already done so, I’m asking again, please just send something even if its only a few lines, THANKS.

        • L June 18, 2018 at 8:45 am

          I put the EMA hearings in the subject line of the email, so it hopefully would get more attention. I know how bombarded papers can be with correspondence. And I am with you 100 percent. We all need to keep pushing and be part of the solution. No one should ever have to endure what we have been through. I can’t even count how many letters/ emails I sent in the US…most seem to have fallen on deaf ears. But my feeling is that it is now on their radar, and the next time they hear about it maybe they will actually take notice and do something.

  8. Barbara Arnold June 17, 2018 at 11:03 am Reply

    Anyone ?

    • L June 17, 2018 at 11:38 am Reply

      just sent something to Slate. will send to others as well

      • L June 17, 2018 at 11:39 am Reply

        ooops I meant the Guardian (had a slate article on my mind re fraud at the FDA)

        • Barbara Arnold June 17, 2018 at 10:42 pm

          Thanks L

  9. Barbara Arnold June 18, 2018 at 4:31 am Reply

    I’ve had one answer so far from the Health journalist Jo Waters Daily Mail who says she will write an artical soon. So anyone who wants to send her your story please do.

  10. Andrea June 18, 2018 at 8:07 am Reply

    Hey guys, I want to send an e mail too, But I don’t really know what to write. Any suggestion on what should I write and how? Like : I’m one of the victim of this powerful drug, I was at the EMA hearing etc…

    • Don M June 18, 2018 at 8:51 am Reply

      The only thing that I can think of it to let them know that you took the time to appear at the hearing and hoped that it was not a waste of your time and energy. That something “WILL” be done to correct the problem.

      My opinion. …… I think that trying to get the Fluoroquinolone antibiotics removed from the market is futile. They have been around too long and they make too much money for the suppliers. It would surely be a HUGE black eye for the drug companies and the complicit doctors and hospitals to admit that it has been all wrong after all these years.
      The only hope is that everyone is educated on what these insidious drugs can do to a person and the doctors and hospitals will act with caution about when to give a Fluoroquinolone antibiotic.
      In my last case up on entering the ER and finding a (suspected) urinary tract infection the very first thing I received was an IV of Levaquin. From there I went home and took a 10 day course of Cipro. It cleared up the problem all right but NO ONE. Not one of the hospital personnel even mentioned the insidiousness of after effects that I could encounter.

      After it was all over I went to the Internet and there I found the truth about Fluoroquinolones.
      As the saying goes “MY BAD”! I should have known better by researching myself.
      Had I been better informed I would have refused that IV bag with Levaquin in it.

    • Barbara Arnold June 18, 2018 at 9:31 am Reply

      Just tell them you were at the hearing and why. Whatever you feel like saying Andrea. I told them the about the hearing and about the victims of these poisonous drugs, and a bit about what happened to me and others worldwide. Also how the FDA black box warning meant nothing as they are still prescribing this poison. I told them it was MADNESS that this is devastating to families, young and old. Tell them you are a pharmacist and you had no idea that these drugs were so poisonous.
      Hope that helps.
      Don’t worry about anything you say, because it’s the TRUTH

      • L June 18, 2018 at 9:51 am Reply

        Since I was not at the hearing (or even in the country!) I just put the hearing in the subject line, and then the entire email was about my hideous experience, noting how many (millions) have been injured and died (300,000). I told them how long the drug companies have been aware of the hideous side effects and how they have not only done nothing to try to help figure out how to fix us, they have fought warnings every step of the way. I called it a crime against humanity.

        • Andrea June 18, 2018 at 3:05 pm

          Thank everyone for the tips.
          But L, I need to tell you something, but please don’t get mad at me, I really don’t want to argue with you, trust me. Your infos have always been so precious to me and to many others on this website. YOU have been so precious for me. So belive me, I’m not trying to argue with you, I can only imagine how much you suffered/are still suffering. I undertand your frustration. Your anger, your desperation. But, I think that sending messages like “crime against humanity” is a little too much. Not because, it couldn’t be true, but because I think it could be counterproductive. We have to be taken seriously by them. For someone (a journalist) who completely ignore these side effects, reading something like that can be misinterpreted. We have to take one step at the time. As Don M pointed out, it’s very unlikely that they remove this s**t from the market. It would be still a huge step, if doctors would start to understand how dangerous these drugs are and most importantly, stop prescribing them for simple infection or in “just in case” scenario, like they did to me. A huge warning on the box, would be already something. Expecially because the only thing that many doctors understand, is a lawsuit. So, if they’ll keep prescribing them, even with all the warnings and the rescrting laws, you can at least sue the f**k out of them. But, like I wrote above, senidng messages that sound too desperate or dramatic, even if you have every right to do so, it could be counterproductive. Just my opinion of course.

        • Don M June 18, 2018 at 5:14 pm

          Very well said Andrea. I agree that everyone (no matter how angry) should stick to the facts. And the world only knows that there are plenty of them.

        • Barbara Arnold June 19, 2018 at 2:44 am

          L come and see my response

  11. Andrea June 18, 2018 at 8:07 am Reply

    OH as always, thanks

  12. L June 18, 2018 at 6:47 pm Reply

    Andrea had you experienced what I did I think you would feel the same. You have no idea what it is like to be asphyxiated by everything in the world. To no be able to breathe without feeling like you are inhaling vats of bleach each time. What it is like to struggle for every breath and feel like you are being suffocated for months. To suddenly lose most people f your vision to sherri you can’t see more that a couple feet and everything is covered with hundreds of little black dots and huge opaque floaters that are like looking through gauze. To lose a fourth of your body weight and need help walking. To be covered in rashes. To have anxiety to where you are frozen, unable to move over and over fir more than a year. To pray for death for most of a year. Yeah. I DO think these are a crime against humanity esp since they have KNOWN for decades and done nothing I cannnot imagine going through anything more terrifying, more hideous. So sorry but yeah. This is a f*ucking crime against humanity. And now I think I need a break from this site. Thanks for the support.

    • Madge hirsch June 20, 2018 at 9:54 am Reply

      It is the global activity of big Pharma that is a crime against humanity. They do not exist for the good of mankind but to make money and they don’t care how they make it. Fluoroquinolones are just one example of their evil. Statins are another. Useless psych drugs that do more harm than good. Epilepsy drugs that are doled out to pregnant women that damage the foetus etc etc. Please do not go away L . Your contributions are much valued.

      • Don M June 20, 2018 at 10:01 am Reply

        Your short post hit the nail squarely on the head!!! It is more about money than it is the good of the world. They have done a great job (propaganda) of convincing most everyone that is for the good of the world and not money.

      • Barbara Arnold June 20, 2018 at 10:26 pm Reply

        Right on Madge

  13. Barbara Arnold June 18, 2018 at 10:00 pm Reply

    Not taking any sides, but sometimes the FACTS are not listened to with the sofly lets all be pleasant approach. Sometimes it has to be said like it really is, and yes in my opinion it is a crime against humanity and they have gotten away with it for to long and are still getting away with it. I think both approaches are valid and we are all entitled to say it like it is in our own way. A measured response is great and some of us are very good at that, others react in a more passionate way, I include myself in this. L has suffered what no human being should have suffered and it’s completely understandable for her to feel so strongly. She has every right to say it like she feels. It’s also good that Bettan and others can balance out our feelings in a different way. They also have the right to say it their way. We are not here to please the EMA, journalists or anyone else. We honestly don’t know what will get us publicity,
    Sensational headline’s ie..A crime against humanity, or Fluroquinolones are poison, or A bad reaction to fluroquinolone antibiocticts etc
    We are all doing the best we can, so lets stick together on this and support each other along the way.
    Come on back L missing you already xx

    • Barbara June 19, 2018 at 12:20 am Reply

      Sorry Andrea not Bettan both are Spanish. I got mixed up in my post

      • Barbara June 19, 2018 at 12:25 am Reply

        Don,. L always sticks to facts.

  14. Barbara Arnold June 19, 2018 at 2:43 am Reply

    Jane Allen who was at the hearing has just described it as ‘ It’s a crime against humanity,’ on facebook, on fluroquinolone toxicity in Europe. Our system here is different than the US but our suffering is not. It is still being prescribed in the US despite TWO black box warnings, so obviously it’s not working. We have to be different. The EMA as I understand it makes recommendation to the governing bodie’s in each European Country. Ours in the UK is N.I.C.E No drug gets approved without them.

  15. Barbara Arnold June 19, 2018 at 2:50 am Reply

    Correction…(floxy brain) I have just been told it’s the MHRA that the EMA gives their recommendations to not N.I.C.E Each Country has their own, it’s on the EMA website.

    • Madge hirsch June 20, 2018 at 10:01 am Reply

      One of the interesting things to come out of the hearing was that the UK has cut back on FQ prescribing because they realised they were contributing to an increase in c. dfficile infection in the elderly and they just do not have the hospital beds to cope. But that does not mean they are not still dishing them out to young people and ruing their lives.

      • Daniela June 20, 2018 at 1:57 pm Reply

        That’s not very patient-centred!

      • Pauline July 15, 2018 at 2:40 pm Reply

        Madge Hirsch All antibiotics cause problems in the gut as well as elsewhere of course.

    • Pauline June 28, 2018 at 6:51 am Reply

      A lot of drugs are DEFINITELY a Crime against Humanity, keep going Barbara.xx

  16. Andrea June 19, 2018 at 4:41 am Reply

    I’d like to respond to you, but I feel like everything I’d say right now, would be just misinterpreted. Anyway, trust me, I didn’t want to offend you or underestimate your struggle. Just understand that I wrote what I wrote, because I think that was the best way to act if we want to see some changes in the near future. Maybe I’m wrong. But this is just my opinion. Please, keep posting on this website. Nobody is antagonizing you.

    • Don M June 19, 2018 at 6:31 am Reply

      Andrea……….. Stick with your opinion. Everyone has an opinion. Is their opinion 100% right? According to others…. NO! But that does not mean that your opinion is not valid.
      I agree that Fluoroquinolones are an “assault on humanity” but they are here and have been for many years. Good or bad they will most likely continue to be available. My opinion is that assaulting the drug or the drug companies with negative remarks will get us all no where. No amount of persecution of the drug companies will be beneficial. The effects that these drugs can produce are devastatingly insidious. That is an indisputable fact! Were the drug companies wrong for making the drugs? Are they wrong for continuing to produce the drugs? Maybe. Ridicule and negative remarks tend to fall on deaf ears and be ignored when there is too much of it. Facts. That is where the concentrated effort should be. Personal stories are undisputed facts.
      The direction we need to be pursuing is education. Educating the doctors, the hospitals and anyone else who administers Fluoroquinolones about what they “could” be about to do to a person if they use this antibiotic. Above all the people who will be prescribed the Fluoroquinolone antibiotics need to be fully informed. It ultimately rests on the person being “FULLY”informed and making the yes or no decision and being firm about it.
      What I see as the take away from this is that you can not trust the doctor or the medical establishment any more. Sad….but it appears to be true. The world must know the truth about these and many other drugs. The controlling agencies of the world must step forward and do more than “put a black box warning” on the packaging. It is amazing to me to see the amount of clueless, uninformed ambivalence about this antibiotic prevalent in the medical world. Shameful!

      • Barbara Arnold June 19, 2018 at 7:27 am Reply

        Don M what was being talked about here was emails to the British media, not the drug or the drug companies. So the statement “Crime against Humanity” to me is a great headline for a journalist, as you probably know they love sensationalism. I personally have contacted Bayer Spain in a very measured manner and got absolutely nowhere, except to be told SIX TIMES to go back to my Doctor even though I told them SIX TIMES, my Doctor had no knowledge of the side effects and no idea what to do about them. So like you said we all have our own opinions and like I said they are all valid, but I really don’t think criticisng other floxies for the way they express themselve’s is helpful. I personally am very grateful to L for taking the time to contact the British media, and however she felt like doing that was fine with me, because they would probably receive a multitude of varying opinions, all valid. L has contributed to this site many times in a very helpful way and I for one would not criticise the way she expresses herself even if I may not always agree with her or others on here.
        This is my opinion.

  17. Daniela June 19, 2018 at 8:42 pm Reply

    Andrea, You asked me about septocaine. Thank you for recognising me!

    Yes, it was an immediate severe reaction upon injection that hasn’t gone away for many, many years. It really resembles brain damage, in addition to all the terrible floxing symptoms I already had. I didn’t know it could get that much worse!

    I thought it was because I was heavily overdosed with both cipro and septocaine by doctors who were racist and aggressive. But so many people wrote me on this forum and elsewhere that they also had bad relapses from septocaine.

    My theory is it’s not a good idea to “cross the blood brain barrier.”

    • Andrea June 20, 2018 at 3:49 am Reply

      Thanks a lot Daniela. It’s scary, isn’t it? To be afraid that everything, even a simple shot of anesthetic could give us so many bad reactions. I really don’t know what to think. What if, I have to go undergo surgery. What am I supposed to do? Tell them “ehy, I was floxed a year ago, can I safely take this drug?” we already know these doctors know nothing and can’t help us…

      • s June 20, 2018 at 7:18 am Reply

        This is my dilemma right now, I don’t know who to go to? GP won’t be able to advise more than likely, I guess I could ask for a very low/child dose of lidocaine which is reportedly ok? That’s local but for general that’s another issue, I’ve looked at the myquinstory website but at the end of the day everyone’s different :/

        • Daniela June 20, 2018 at 7:50 am

          They can rub the the lidocaine on the skin. The real problem is getting them to agree to do that because they have to work faster.

      • Daniela June 20, 2018 at 7:48 am Reply

        I read septocaine is not a simple shot but a mandibular block and they used a huge syringe on me. I don’t know if that helps.

        Maybe the safe alternatives are already there. Maybe we need to go back to our grandparents and great grandparents and take another path. Like diplomacy instead of A bomb-Hbomb-nuclear bomb.

        I hate that the leaflet says, Stop taking if you notice any side effects. I say, I had the side effects, so what is the alternative? Or, I don’t want the side effects, let’s go straight to the alternative. But the only response is denying that I had the side effects. Angrily!

        Andrea, you have a source in your family. Can you investigate the alternatives with them? They would support you in refusing fq’s. Can you work with them to plan a course of action and a list of possible treatments for common infections to avoid antibiotics? And please tell us what they say, for example:

        simple bacterial ear infection
        etc etc

        Excuse me for putting so many different thoughts in one message!

        • Andrea June 20, 2018 at 9:09 am

          Daniela, sorry but I don’t think I completely understood the last part of your post. Can you please put it in a more understandable way. Sorry, but my english is still improving.

        • Andrea June 20, 2018 at 9:17 am

          “Andrea, you have a source in your family”. If you mean my parents, as you probably already know by now, I think they don’t know much about alternative treaments. They’re doctors, and even if they’re old school doctors (I mean they are both very careful while prescribing medicines) they mostly know offcial treatments eg : antibiotics, paracetamol, NSAIDs and so on. But I can still try to ask them at least their opinion. But I can’t guarantee anything.

    • Dee June 20, 2018 at 8:57 am Reply

      Andrea. What kind of reaction did you actually have to the septocaine that stayed permanent? What kind of dental procedure were you getting to give you that much anesthesia? How long after you were floxed did you get the procedure done?? That is just so scary!! I’m sorry that happened to you…

      • Andrea June 20, 2018 at 9:06 am Reply

        I think you meant Daniela

        • Dee June 20, 2018 at 9:44 am

          Yes you are right!! Sorry!

          Daniela!! See message above to Andrea
          My bad on mixing you up!

  18. Daniela June 20, 2018 at 1:37 pm Reply

    Dee, So many people wrote me with similar experiences. So it’s all over the place.

    No anaesthesia was much easier and less painful for me. Much less painful than shoulder tearing, knees, hips, fingers etc etc etc etccccc

    • Deb July 1, 2018 at 12:28 pm Reply

      How did you find a dentist that would do a dental procedure without anesthesia. My dentist won’t do it. After reading your and other posts, I’m concerned about using dental anesthesia. My dentist doesn’t use septocaine. He said he could use an anesthesia without epinephrine. He thought that might help

      I have looked on the internet for my area and I don’t see any dentist that doesn’t use anesthesia. Any suggestions?? Thanks!


  19. Daniela June 20, 2018 at 1:55 pm Reply

    Andrea, yes, you were able to understand me perfectly. In the 1920s when penicillin was discovered, medicine changed dramatically.

    But would you ask them about an otitis externa?

    I am desperately seeking assistance and advice as I cannot bring myself to administer ofloxacin into a little one’s ear. This is such a horrible situation! What if I make the wrong choice? I cannot give a dangerous medication, but I also cannot let it get worse.

    For myself I would use garlic oil, etc, but I am at a loss for someone else.

    • Henk Noordhuizen June 20, 2018 at 2:09 pm Reply

      What is wrong with the little one’s ear,Daniela? If it is an ear infection, (strong) camomile tea works fine and is very safe.Very important: keep the ears dry while bathing the kid,and NEVER use cotton swabs!

    • Henk Noordhuizen June 20, 2018 at 2:15 pm Reply

      Sorry;forgot to tell you how to administer the tea. Put it in the ear with a dropper and ley it stay in there for 10-15 minutes. Then put the child on thge side of the problem to let the tea come out,and,when done,put a cotton ball into the ear to get the remaining moisture out.Repeat this 1 or 2 times (3 x per day). Colloidal or Ionic silverwater will do great as well.

    • Henk Noordhuizen June 20, 2018 at 2:18 pm Reply

      And never put anything,cotton swab,cotton ball (to keep the ear dry),or anything else,deeper in an ear then you can reach with your little finger;the inner lining of the ear is very sensitive.

      • Daniela June 20, 2018 at 2:46 pm Reply

        Thank you so much, Henk! The infection was cultured, it is bacterial not yeast or anything else. I think it is also called swimmer’s ear. And it is definitely outer ear, not deep in the ear. But still painful.

        Please keep remembering these remedies, everyone.

        My sister said the vet gave her pets (cat and very small dog) ofloxacin as well. Would this remedy work for them as well?

        • Don M June 20, 2018 at 4:31 pm

          My 2 cents. Ofloxacin is a Fluoroquinolone. I……. personally would never subject my pet to the potentials of a Fluoroquinolone. Their life could be as miserable as people are saying and you wonder why they are acting as they do. Vets love Fluoroquinolones just like human doctors do and most are as clueless as human doctors are about the bad effects. NO Fluoroquinolones “for ANYONE” ever!

        • Don M June 20, 2018 at 4:43 pm

          I have given my cats Colloidal Silver both internally and topically and it has appeared to work as well as the antibiotics. I put an ounce or two in their water jar at every fill and never see a speck of algae. Colloidal Silver has never been known to kill or cripple anyone when used in moderation. As modern’s we don’t hear about how Colloidal Silver was a “go to” before antibiotics came along. Colloidal Silver is under rated and ridiculed by the drug companies because it is a “natural” and can not be patented for big profits. Again…. My 2 cents.

        • Don M June 20, 2018 at 4:49 pm

          Modern science has been looking into Colloidal Silver and finding that when used concomitantly with other antibiotics it enhances their effectiveness and actually rejuvenated some that have become ineffective against pathogens. Google it.
          There is a lot of information on the subject. Again…. My 2 cents.

        • Daniela June 20, 2018 at 5:00 pm

          Thank you Don, that’s more than two cents!!!!! I saved your recipe from earlier. Thank you so much!!!!

        • Henk Noordhuizen June 21, 2018 at 3:28 am

          The ear infection of dogs is often caused by an ear mite infection,so you have to get rid of the mites first. This might be done,first,clean the ears very well,and than rubbing some tea tree oil,evt. mixed with an other oil like almond oil, in the ear (mites hate tea tree oil).After the mites have gone the infection,most of the time,clear up without any help.If not,try the camomila tea,and/or Ionic Silver water. The Ionic Silver works better for topic use than the Colloidal form,according to recent research.

          The dog won’t like the sensation of the TT-oil;and better first try if it’s not allergic,by putting just a tiny drop on his skin and wait for 1 hour to see if the skin ihas not become red and swollen.Same goes for humans because some people,too,are allergic to tea tree oil.

        • Daniela June 21, 2018 at 8:09 am

          Thanks Henk! She tried olive oil with garlic infused in it for the pet, and it got better! I think it must be a similar action. We’re looking into the silver solutions, too.

    • Andrea June 20, 2018 at 2:52 pm Reply

      Ok Daniela. Tomorrow I’ll ask my mother what does she thinks about it. Anyway, I can tell you that, as far as I know, at least here in Italy, prescribing fluoroquinolones to people under age 18 is AGAINST THE LAW. Me personally I wouldn’t even remotely consider it. Who prescribe it to the little guy? Where do you live? Anyway, if you don’t know what to do, your safest bet, is to go to your doctor, explain to him/her that you don’t want to use a FQ and see what he/she can do about it.

      • Daniela June 20, 2018 at 4:57 pm Reply

        Definitely not illegal for babies in the U.S. I see the recommendation now is for 6 months of age or older, but we definitely got it before that. And the doctors here do not like to be questioned!

        So this is a simple question then for a paediatrician or doctor in Italy. Yes, please ask your mother because obviously the whole country of Italy is successfully treating children with outer ear infections. Thank you so much!!!

      • Daniela June 21, 2018 at 7:54 am Reply

        Hey, Andrea, Forgive me, I think they would not be allowed to diagnose over the internet! I can see magazine articles from Italy. If you want to write some general tips, that’s fine.
        But obviously fq’s are not the only solution if they are not given to babies, who have the most ear infections.

  20. Andrea June 21, 2018 at 9:31 am Reply

    Hey Daniela, of course I can’t give you any prescription. I can’t and I don’t want to. But if you’re asking me to tell you a general advice, I think I can do that. Anyway, I don’t know if it’s completely true or not, but I remember reading an article that said in the UK the only cases you can treat a toddler with a FQ are Anthrax infecion and plague. Not sure of the source anyway, but if it’s true you can judge by yourself…But let me understand it better, did your child already took a fq?
    PS my mother is a pediatrician.

  21. Andrea June 21, 2018 at 9:32 am Reply

    Sorry not prescription, I meant cure, diagnosis or anything else. I can just ask my mother what she would do. then you can spoke to your doctor about it.

  22. Andrea June 21, 2018 at 10:09 am Reply

    All right Daniela.
    This is NOT a prescription, nor a cure I’m giving you or anything like that. I’m just reporting to you the opinion of a pediatrician who didn’t visit the child.
    Anyway, she says that, in case of an outer infection, which, if not treated correclty, could degenerate in something more serious, the first treatment most pediatricians (at least here in Italy) reccomend is Amoxicillin/clavulanic acid. Here in Italy the commercial name is Augmentin. I repeat. I’M NOT TELLING YOU WHAT TO DO. I’m just reporting some opinion/facts. I suggest you to talk to your doctor about it, anyway. And, whatever your decision is, READ everything you can about what you’re going to give to your child.
    PS I asked about natural treatment. She knew nothing about it.
    Please keep me updated.

  23. Andrea June 21, 2018 at 10:10 am Reply

    PPS To Lisa, I hope I diddn’t break any rules or rule of condcut in my previous post. Please let me know. Thank you.

    • Daniela June 21, 2018 at 10:27 am Reply

      Mille grazie! I am very grateful.

      • Andrea June 21, 2018 at 2:11 pm Reply

        You’re welcome. But please as I said before keep me updated ok?

  24. Jim June 21, 2018 at 6:03 pm Reply

    Has anyone taken painkillers since floxing? I have a tooth extraction coming that I’ll need to take something for.

    • Daniela June 22, 2018 at 8:10 am Reply

      See the extensive discussion above.

      It’s very disturbing not to have straight answers from the professionals about these questions.

      • Andrea June 22, 2018 at 8:24 am Reply

        Daniela, there’re no straight answers, because our pathology is pretty much unknown by most of them. At the hearing, Dr Neal Millar really pointed out this topic.

        • Daniela June 25, 2018 at 10:35 am

          I meant no offence. It’s upsetting from the point of view of the patient not to be able to get answers.

        • Andrea June 25, 2018 at 2:55 pm

          I wasn’t offende at all 🙂 , I apologize if I sounded like that

        • Daniela June 25, 2018 at 3:26 pm

          I just want to thank your family and the many people who are working so hard to help us 🙂

    • Andrea June 22, 2018 at 8:34 am Reply

      Hey Jim.
      On this websites there’re plenty of articles you can read, that will answer your question. As a general rule for floxies, it’s better to avoid every kind of NSAIDs. They can make your symptoms flear up. But,who knows…everyone is different. Me personally, I’ve taken aspirin ( yeah, I know it’s an nsaid ) and paracetamol, without noticeable side effects. But as I wrote above, everyone it’s different. Something that is harmless to someone could be very dangerous for someone else. I will suggest you to read about natural remedies for pain. They might be not as effective as pills, but maybe they’ll still do their job.

    • Henk Noordhuizen June 22, 2018 at 10:51 am Reply

      I’ve used paracetamol without any problem.As far as I know/remember it’s also the only painkiller which doesn’t work as a blood thinner.

  25. Lisa June 25, 2018 at 8:54 am Reply

    Just wondering if anyone has tried a Bemer? Has it helped with symptoms?

  26. toby June 25, 2018 at 12:31 pm Reply

    Does anybody know which supplement could help for mercury toxicity, and be safe to use while amalgam fillings are still present in the mouth?

    • Ag June 26, 2018 at 7:55 am Reply

      I’ve heard of one product from Microbe Formulas.com that can be used while still having amalgams but they usually recommend to first get amalgams out before detoxing, I don’t remember which product it was from their site, maybe you could contact the company

  27. Andrea June 28, 2018 at 4:50 am Reply

    Hey guys, just a little update on my supplements experience.
    1. A few weeks ago, maybe more, I don’t remember, someone on this website, I can’t remember if it was Don, Bob or someone else, asked about MSM. I told him I’ve used it before, but without any success. Anyway long story short, it came out I was using too little of it. So after reading a lot about it (it should be pretty safe and good for joint pain and to boost glutathione production) I started “megadosing it”. Since the suggested dosage should be 5 gr a day, I started to taking this amount in 2 separeted doses. Then I moved up to 6, then 7, until I got to 10/12 gr a day. I’m also taking it with camu camu powder (it is supposed to be the fruit with the highest vitamic c content) and MSM is better absorbed with vitamin c. The only side effect I’ve noticed, only the first week, was a boring headache, immediately after drinking it. But it went away pretty soon. I’m not sure if it’s really helping, but I’ve noticed that, if a take it after a long walk or a small workout, the aches in the ankles and in the joints, kinda decrease.

    2 It’s been 3 months since I started taking Palmitoylethanolamide (PEA) 600 mg, 2 tablets a day. “PEA is an endogenous fatty acid amide, belonging to the class of nuclear factor agonists. PEA has been demonstrated to bind to a receptor in the cell-nucleus (a nuclear receptor) and exerts a great variety of biological functions related to chronic pain and inflammation” according to Wikipedia. It was discovered by an italian Noble Prize winner scientist. It’s also used by multiple sclerosis patients.My opinion on this, it’s that REALLY helps with pain. I’m not saying that now that I’m taking it my aches and pains are gone, they’re still there, but I’d say they decreased by a godd 50 sometimes 60%. I’ve noticed it, because after the third month ended, I give it up, and all the pain in lower legs, started to flear up, and my sleep, started to getting worse (like if it was already nice). Of course it was very disappointing to understand that, I was doing quite good because of some tablets instead of a natural healing process. I now understand that I’m just doing the right things to restrain the damage. Oh wel…
    Hope this help.
    Bye guys.

    • Don M June 28, 2018 at 6:36 am Reply

      Thank you. Every little bit of information helps. I think that most all of us floxies realize that we will never be completely rid of the problem but have to figure out how to best live with it.

      • Daniela June 28, 2018 at 9:23 am Reply

        For me it’s important to remember it may not always be in the form of a pill. Gentle yoga and diet change helps me so much, as well as mind and focus exercises and acupuncture.

        • Andrea June 28, 2018 at 9:44 am

          Hey Daniela how’s the ear infection going?

  28. Don M June 28, 2018 at 6:31 am Reply

    Just passing on something that came across my computer screen.
    Obviously it is an ad to sell their product but they claim to have “the best” for treatment of neuropathy. Doesn’t everybody have “the best”? The ingredient list looks pretty impressive.
    I have not tried it so have no comment about it.
    Won’t try to bore you with more chatter but if you are interested look into this.

    • Daniela June 28, 2018 at 9:24 am Reply

      I am so sick of advertising!

  29. Da niela June 29, 2018 at 10:28 am Reply

    Hey Andrea, Thanks for asking, child is ok 🙂

    Don, They are still struggling with the pet. I think it might be an allergic reaction because it got diarrhea as well, although that is resolving. The vets want to give a flox/steroid/antifungal mix! Also “update their shots” even though it literally says on the vaccine label “for use only in healthy animals”, the pet is indoor only and previously vaccinated.

    I understand why they made the mix because the cortisone stops itching, the flox kills everything and the anti-yeast is for the side effect of the antibiotic. When the scratching stops, you think your pet is cured. And when they have “arthritis” later, oh well….

    I got them a bottle of silver biotics to put in the water bowl. I haven’t gotten the nerve to make it myself yet.

    For the Americans, do you notice all the doctors and vets like to say “bring out the big guns”.

    • Da niela June 29, 2018 at 10:30 am Reply

      NO offense! I used to think that was a comfort before.

      • Don M June 29, 2018 at 11:19 am Reply

        flox/steroid/antifungal mix ??????? Vets claim that animals react different to Fluoros than humans. Give me a break!!! I call it willful ignorance on their part. By now we should all know that one does not mix steroids with Fluoroquinolones!!! Do I sound cynical. You bet!!! That pet can’t tell you if it has been screwed up by a Fluoroquinolone antibiotic. In my opinion it is abuse, pure and simple abuse to give these poisonous antibiotics to a pet!!!

        • Daniela June 29, 2018 at 12:42 pm

          Don, It’s absurd. They test drugs on animals! I think they are now dumping the stuff that hurts humans back on the animals.

    • Don M June 29, 2018 at 11:12 am Reply

      I have used Colloidal Silver ….internally…. for over 5 years and I am not blue or have I ever had any bad effects from it. If my gut gets upset and I am concerned about bad food I take an ounce of it and an hour later another ounce. 99% of the time within 3 hours the gut problem is over. It is up to everyone individually to decide if they want to use Colloidal Silver. Just remember one thing. Before antibiotics and drug companies working hard to sweep it under the rug it was the “go to” of choice of the medical world for killing infections many years ago. There has never been a “known” case of Colloidal silver killing or crippling anyone.

      • Daniela June 30, 2018 at 6:27 pm Reply

        Hi Don, do you put a drop in your cats’ ears for a bacterial infection?

        • Don M June 30, 2018 at 7:38 pm

          Hello Daniela. I have never used CS in my cat’s ears. I have used it in my own though. I see no reason why it could not be used in their ears. With my cats I always put 2 ounces in their one gallon waterer. When I give it to them as an antibiotic I try to scale it to resemble the dose that humans normally take. It is about 1 or 2 droppers full on their food at each feeding. I did say droppers full. That’s a 1 ml dropper as full as one can get it.

          I won’t go into the method of “kill” that Colloidal Silver uses but if you Google it you can find many articles. A good place to start is https://thesilveredge.com/ Just do not be mislead by some of the clueless ones making negative statements. They are opinionating and only know some of what they are talking about.

          Let’s go back to the beginning and see that CS was used by the doctors as an antibiotic before antibiotics were discovered. Until they figured out how to make the “nano” silver and ionic Colloidal Silver by using 2 100% pure silver electrodes (wires) suspended in distilled water and passing an electric current between them, the doctors would grind silver into as fine a powder as they could and then mix it with water to give to the patient.
          Bottom line is that silver is a germ killer and has been around for a long time. It works. It is not lightning quick like some antibiotics are but is does work and because of the way it works over 630 pathogens are susceptible to it with NO resistances developing.

          Because fresh vegetables in salads can sometimes be contaminated if I eat a tossed salad I usually follow it up with a one ounce dose of CS when I get home. CS is a bad dude when it comes to wiping out food poisoning.

        • Daniela July 1, 2018 at 10:58 am

          “It’s not lightning quick”
          Thanks for answering, Don. The cat seems very happy, but still shaking its head and scratching occasionally. But we’ve become accustomed to seeing immediate results, so it’s hard to go forward when the med establishment is pressuring you not to.

        • Henk Noordhuizen July 1, 2018 at 11:23 am

          That the cat shakes his/her head can be caused by ear mites.When they scratch their ears because of the irritation it might get infected.You might try a drop of tea tree oil,optionally mixed with another oil (almomd oil,or something like that).

        • Daniela July 1, 2018 at 12:33 pm

          The vet said there were no ear mites, but it is both ears equally. Still working on it.

        • Daniela July 2, 2018 at 12:39 pm

          Hi Henk, On second thought, I don’t think the vet really cared what was happening. They just wanted to prescribe a very strong mix, and ended up making the cat very sick with a virus through what I assume was lack of cleanliness.

          So the infection usually starts from mites. Starting with garlic infused oil which eliminates the mites, cleaning with a mix of alcohol and apple cider vinegar, and ending with a drop of colloidal silver twice a day seems to have worked 🙂

        • Henk Noordhuizen July 2, 2018 at 2:34 pm

          Hi Daniele, I’m happy to hear that the natural way helped the cat get better. Most illnesses of cats and dogs are caused by mites,flees and worms. Didn’t know that garlic,too,takes care of mite infections.

          A great herb I’d like to mention here is Plantago.It takes away the irritation of mosquito bites,flee bites and nettle stings in 10-15 minutes,with the working lasting for 12-24 hours.It is one of the first vitamine-rich plants in spring,and although I don’t like the taste I use a few leaves when making vegetable juice.A tea,made of the dried leaf works mireacles on sticky slime in the lungs. Wounds that won’t heal can be treated with succes with the juice (crusshed leaves) as well.

          I have 2 variations in my small garden;the broad leafed,and the narrow leafed,which I brought in from seeds I collected in nature.To me (with my mosquito sensitivaty),those are kind of holy plants :-)) They’ve helped me,and in the passed my cat and dog,very often.Last week I told my eldest neighbour girl (8 years old,from Poland)about the excellent working against mosquito bites,and 1 minutes later she’d made a bouquet of plantago leaves in a cup of water for having an indoor supply :-))

          Time after time the medication doctors subscribed me made me (very!) ill,and time after time natural medicines helped me to,as far as possible,gaine back my health.Same thing happened to so many other people. Makes one wonder how much longer it will take society to understand that those synthetic copies don’t work! 50-75 % of modern “medicines” are just synthetic/chemical copies of (óne ingredient of) plants,and the only reason we are forced to use these inferiour copies is the fact that those are patentable and therefore very profitable.

        • Henk Noordhuizen July 2, 2018 at 2:39 pm

          Sorry,typo;it took my neighbour girl 10 minutes to collect the Plantago leaves;she isn’t thät fast :-)) And the broad leafed Plantago grew around my house when I came here,the narrow leafed is the variety I myself started here with seeds.

  30. Pauline June 29, 2018 at 4:52 pm Reply

    did anyone get muscular spasms following floxing. Thanks.

    • Danela June 30, 2018 at 11:36 am Reply

      When does it happen, what were you trying to do?

    • Don M June 30, 2018 at 7:58 pm Reply

      I do get muscle spasms. Is it related to being floxed? Possibly/probably. Because Fluoroquinolones drastically deplete the magnesium in your system. Magnesium is a muscle relaxant. Muscle spasms is one indicator of insufficient magnesium in your system.

      How do I treat muscle cramps? I use magnesium oil topically. Spray it on and rub it around and let the skin absorb it. If is tends to burn or sting add 25% Alo Vera to it. My go to is 50% magnesium oil, 25% Alo Vera liquid, 25% DMSO of the medical grade. They are all water soluble so they mix well.
      Another one that works for leg cramps is “apple cider vinegar”. Soak a paper towel with it and rub it on. It works. The apple cider vinegar idea comes from this leg cramp remedy sold by http://www.stopslegcramps.com/ An Amish formula.

      Another thing that I do is take an empty deodorant roll on bottle and make a hole on the side.
      Fill it with the oil concoction, put a piece of tape over the hole and it makes a very handy (not messy) cramp relieving roll on.

  31. Pauline July 1, 2018 at 8:44 am Reply

    good ideas Don as usual, thanks.

  32. Andrea July 2, 2018 at 3:36 am Reply

    Hey guys,
    I wanted to share with you another disappointing experience that got me furious. Expecially because I’m getting into a terrible relapse, just like last summer, so I’m expeecting to suffer for the next 2 months at least.
    Anyway, a couple of days ago, a friend of mine, we used to train together, so he knew all the struggle I’m experiencing after being poisoned by that s**t and saw how bad it messed me up, told me he was suffering a UTI, and his doctor prescribed him Cipro for 10 days. Of course, he listened to me, and told his doc to prescribe him something else. so he prescribed him Bactrim. I told him that even Bactrim is still dangerous, and if I was him I would insted take amoxicilline, wich, in my opinion is one of the most well tollerated antibiotic out there. But he said that he used A. without any success another time, so he’s now taking Bactrim for 10 days. Hope he’ll do good. Anyway, it amaze me, how these dumb f***s, are still prescribing these bombs just like that. I mean, at the hearing, those doctors repeated many times that in Europe, FQs should be never prescribed as first approach, and used only when other therapies fails and all that good stuff…are these motherf****s just lying to us or they even belive their own bulls**t?
    Excuse my outburst but I’m just furious. And in so much pain.

    • Don M July 2, 2018 at 5:00 am Reply

      You are not wrong. If more people were to voice their disgust louder about the Fluoroquinolone family of antibiotics maybe something might change a bit.

      Just to recap my history. Now I am 84. At 27 I acquired a UTI. Now I see how stupidly the urologist treated it and made it chronic. Over the next 26 years I was given every antibiotic applicable to my problem and many that were “just hail Marys” by the 7 different Urologists I was shuttled among. I was given Bactrim (Septra) daily for 18 months. Finally when Cipro was in the clinical trials I acquired it. That was 31 years ago. Cipro did kill the infection so I have used it every time I had a flare up. (several dozen times) I wondered over that 31 years why things changed and I just didn’t feel right. Last October I was given an IV of Leviquin and followed it up with 10 days of Cipro. I have killed off the infection again but do feel generally worse. Now I realize that the Leviquin IV pushed me over the edge. I went to the Internet and have learned what no doctor ever told me. I AM FLOXED! Now that I understand why I have felt just a bit off for so many years, I must try to learn how to live with the problem. I have learned to use D-Mannose as a preventive against a UTI.

      >>>>>D-MANNOSE<<<< People! Investigate D-Mannose for a UTI!!! D-Mannose is not an antibiotic. What is D-Mannose is a supplement that works for a UTI?
      D-Mannose is by far the most effective supplement for both treatment and prevention of UTIs. … D-mannose is effective because it attaches to E. coli bacteria, causing them to stick to each other and preventing them from sticking to the walls of the urinary tract.Sep 22, 2016
      READ THIS:

      I rest my case…………….

      • Daniela July 2, 2018 at 9:48 am Reply

        Don, We saw that the silver solution we got did not say “colloidal” and changed for one that does (more expensive in a smaller bottle lol) and 2 drops twice a day for one day seemed to cure the cat’s ear infection! I have to make some soon!!!

        • Don M July 2, 2018 at 10:36 am

          The silver solution that is the most popular is called “Ionic Colloidal Silver”. The basic explanation of the silvers. Ionic silver is not the same as metallic silver, silver particles or colloidal silver. The Difference Between Colloidal Silver and Ionic Silver. Colloidal silver is made up of tiny nanoparticles of metallic silver. To make the story short ionic silver is these tiny nanoparticles of metallic silver in distilled water. The smaller the silver particles the more effective they are in the body. By passing and electrical current between 2 silver rods suspended in the distilled water it causes the silver in one rod to leave and pick up and electric charge that keeps it suspended in the water.
          There are people who add salts and other things during the process to speed it up but they are actually what one might call contaminants.
          Google has a wealth of information about silvers.
          I make Ionic Colloidal Silver by the quart at a cost of less than $1.00 per quart. After the initial investment in the equipment to do it.

        • Don M July 2, 2018 at 1:01 pm

          Anyone wanting to read about the history of silver products read this.
          Silver has been around for a long, long time and currently is used for many things, but since it can not be patented the drug companies do their best to keep it’s benefits hidden under the table.

        • Pauline July 2, 2018 at 1:08 pm

          Keep us ill means more profits for Big Pharma .

    • Pauline July 2, 2018 at 5:57 am Reply

      Understandable. The battle continues to try to talk sense into these drs.

      • Daniela July 2, 2018 at 9:51 am Reply

        I am so furious that I was not allowed to question the treatment of my child. I was so destroyed by cipro having never been exposed to these drugs as a child. I hope I pass on the information I am learning and relearning so there is no reexposure in the future

        I am assembling my own medicine cabinet, and it’s not including too many packaged things. My go-to “antibiotic” is raw garlic, then boiled down oregano. I use epsom salt/ magnesium. Turmeric. Boric acid powder for a yeast infection (caused by cipro) cured it in 2 days, although it was an odyssey to find medicinal grade and the docs were very against it. Someone just told me that he cured his own ear infection with drops of apple cider vinegar in his ear for two days. ( I heard that it should be unpasteurized, organic, with mother, etc)

        Something that disturbs me is how angry people get if you try to make a natural suggestion when they complain about a health problem. But what is far worse is when the doctors get angry and threatening.

        Did everyone die before 1989, before fq’s? No!

        • Don M July 2, 2018 at 10:12 am

          I like your spirit. Everything you have said is true. It all boils down to “MONEY”. The drug companies and the MD doctors would be hurt “financially” if they were to admit the truth about alternate ways to treat problems. Actually admitting the truth now (after all the years of misinformation) would most likely drive their credibility into the tank. The young doctors coming into practice have never been taught anything about the old ways. They don’t know any better. I liken it to a German Shepard pup. This dog can be trained to be a junk yard guard that hates everyone, a police K9, a military K9, a seeing eye dog, a personal assist dog and many other things too. Each dog thinks he is right and that is the only way to go, because that is the way he has been taught.
          You make the comment about people. I consider it IGNORANCE when they will not listen to alternative medicine. Sure do have a lot of them drifting around.

    • Henk Noordhuizen July 2, 2018 at 2:51 pm Reply

      Andrea,amoxicilline is,in fact,very dangerous. Here we have a website where people can write down their experiences with medicines (mijn medicijn.nl),and there I found a message from a husband who found his wife on the floor,hardly breating,after a few doses of amox.She spent a fwe weeks in IC.

      A fater found his daughter laying on the floor in the bathroom.No breath,no heartbeat. He reanimated her untill the ambulance arrived and in the end she survived,partly because the quick response of her father.

      Amoxi robbes a lot of magnesium from the body,but that might not even be the only or the most serious cause of the severe adverse reactions people experience after taking Amoxy;after all it is an Anti Bio,meaning: Against Life.Many cells in our body have the same structure as bacteria,one of the reasons the damage in floxies is widespread throughout the whole body.

      • Andrea July 2, 2018 at 3:53 pm Reply

        I agree with you Henk, no antibiotic is completely “safe”. Actually, by definition, no medicine could be called a medicine, if it doesn’t have some form of side effects. That’s how they work. Antiflammatories, pain killers, antibiotics, sleeping pills, antidepressants. They all have side effects. But, some of them, changed our lives for the better. The problem today, is that we’re abusing of these drugs. Docotrs lost they’re knowledge and rely too much on prescription pills. But,if I have a nasty infection, what am I supposed to do? I still have some form of trust in officlal medicine.
        Of course, with FQs and other types of drugs, the story is a little different. We’re talking about powerful chemotherapy drugs, used to treat common infection or even as prevention. That’s just crazy and out of control. But I still think that, if I’m ill, I need to be cured. People die from aspirin too. Do I think aspirin should be illegal? Of course not.
        You read about amoxicilline, but how frequent are those cases? I don’t think that calling amoxicilline “very dangerous” is appropriate. Saying something like “taking amoxicilline could be dangerous, because, yes is well tollerated, but it’s still an antibiotic” would be more correct. Just my opinion of course.

        • Don M July 2, 2018 at 5:27 pm

          I must replay. I have already given a sketch of my medical encounter with Cipro, but I also have an extensive history with Amoxicillin. I found through some really good lab work by a friend that I had a compound infection. I had both eColi and Enterococus. The Cipro would kill off the eColi but did nothing for the Enterococus. The doctor would then move me over to Amoxicillin. Then the eColi would come back. After dinking around with doctors and getting no where I decided to take both Cipro and Amoxicillin together. They never would give their approval so I just did it. That has been my “go to” when needed combination for about 20 years. I corrected my infections this way. After 57 years and dozens of antibiotics I tend to be amazed that I am no worse off than I am today.
          Now that I realize that I am floxed and better understand floxing and Fluoroquinolones am trying to prevent any re-occurrences by using D-Mannose a couple times a week.

  33. Andrea July 2, 2018 at 2:14 pm Reply

    Don, what benefits does colloidal silver give you anyway? I’m curious but so scared about argyria. Thanks

    • Don M July 2, 2018 at 5:06 pm Reply

      Andrea. Silver is a germ killer. You might call it the original antibiotic. Scientists at Brigham Young University in Utah USA found that silver was effective against over 600 different pathogens. These included bacteria, viruses and fungus’s. Science is also finding that silver’s concomitant use with some of today’s antibiotics that have become useless is rejuvenating them to where that are effective again. The simple explanation of how silver kills is that it interferes with the oxygen uptake of the bacteria. More to it but that is the basic reason no germ can become resistant to it.

      Go here and read the history of silver and it’s uses today.
      This is a pretty good run down of the history and uses of silver today

      Silver was used before the birth of Christ. Silver has been around for a long, long time.
      Silver is used in many places today but we just don’t hear a lot about it.
      It was the go to germ killer before antibiotics squeezed it out and the drug companies tried to discredit it.
      Argryia???????? In the past it happened because the way it was administered orally was to grind the silver into powder, mix it with water and have the patient drink it. It can happen (rarely) now days if people try to add salts to the mix to make it faster and much, much stronger. This happens when the salts and the “hurry up making process” end up making the silver particles very large. Argyria happens when the silver that is of large particles is either unmetabolized or uneliminated. The rogue silver migrates to just under the skin and “tarnishes” when exposed to light. The same thing that pure silver will do.
      Silver is actually a mineral as well as a metal. Magnesium, Copper, Zinc and several others are also minerals as well as metals.

      I have been using Ionic Colloidal Silver that I make to from 5 to 20 PPM. I have been using it when I felt it was necessary for about 7 years. And I ain’t blue yet.
      Read the article I reference above and Google Colloidal Silver. There is tons of information (both pro and con) on the Internet.
      The use if silver has a lot more pluses to it than negatives. The is no one on record that it has ever killed. Can you say that about antibiotics?

      Men and Ladies be sure you read my previous post about the use of D-Mannose for a UTI. Don’t allow yourself to get FLOXED when D-Mannose (not an antibiotic) might do the trick.

      • Andrea July 3, 2018 at 2:47 am Reply

        Thank s a lot Don. Anyeway I’ve already used D mannose. When I had to do a bladder exam, the doctor wanted me to take an antibiotic “as prevention”. I instead used D mannose for the whole week prior the exam, the day of the exam, and 2 or 3 days later. I didn’t get an infection. I don’t know if it was thanks of the D mannose or not, but I’d like to think this way :-).
        Anyway, I also read that D mannose is good as prevention, but it can’t cure the actual infection.

        • Henk Noordhuizen July 3, 2018 at 4:55 am

          Hi Andrea,I had a bladder infection in 2010,and while using my magnetic pulser,I went to the doctor,just to be shure. She inscribed me an antibiotic,but after returning home with that medicine I noticed that the fever feelings went down.After an hour I measured my temperature and it was comming down,so I didn’t take the AB but jused the pulser,drank a lot to flush my bladder and after a few days the infection was gone.

          A few weeks ago I found back the box of pills she then gave me and discovered it was…Cipro.The same poison she gave me in 2016 and got me floxed;must be her favorite! She also tried to put me on an anti-depressant for “falling asleep a bit easier,several times! I don’t trust her anymore,especialy after she got angry to me (for the second time) for not having finished the course (the first time for not even starting the course).What reason does she have to push that poison on me?

          D-Mannose should not only prevent a bladder infection but also help to cure it (I prefer the whole Cranberry because there is more in it than just tje Mannose).Also,drinking a lot,and taking high dose of Vitamine C can help cure it (the vitC that your body doesn’t use is flushed out through the urine system).

          The only reason I took that Cipro in 2016 was the fact that I also had a doubble bleeding in my guts,and in the hospital they “specialist” that I never saw (was too busy to even show me his face) presumed that,because of my high temperature,one of the bleedings might be an infected divertical. I think he didn’t even know that I had,at that same moment,a bladder infection which caused the fever.

          Most medicines of today’s medic care are synthetic copies of ONE substance of a plant that menkind used for ages to cure people.Those plants are our original medicines but cannot be patented. That’s why farmaceutic companies replicate “the working substance” frome that plant,patent it and earn a lot of money.But a plant is NOT ONE SUBSTANCE;it is a complex mix of substances.

          That’s the main reason the natural form works more efficient,and safe,with a dose of “the working substance” being much lower than those patented miracle pills.That’s also the reason why their pills are called “the hard way” while the original plants/herbs are called “the soft way”;the curing process may take a bit more time but it is much safer. Because,to really work,they have to put a way higher dose of “the working substance” in their pills;it might even work a bit faster but it often brings a lot of adverse reactions,sometimes even being lethal.

          That’s the reason more and more people turn their back to those crazy alchemists and go for the all natural way.You wrote <> Well,some of those medicines did,indeed,but remember that those medicines were there long before they were syntheticly copied. So,don’t be gratefull to the farmaceutic companies but to nature,who gave us those medicines in the first place.Making synthetic copies to create a patents (money,power) while using political power to force us to use their (patent) system and forget all the medicines nature gave us is EVIL!

        • Don M July 3, 2018 at 6:51 am

          “I also read that D Mannose is good as prevention, but it can’t cure the actual infection”. Right. Lets not use the word “cure”. Lets use the word “eliminate”. The D-Mannose hinders the ability of the bacteria to stick to the walls of the UT and it is washed away. How ever you figure it the bacteria and the infection are ……GONE!
          The sad thing is that since a prescription is so easy and profitable there is virtually NO doctor that will say “go buy a bottle of D-Mannose and take one every 4 hours”. Just think of how many people would not be floxed if this were done!!!
          Just a note……….. I told my doctor (been with him for over 20 years) what I was doing with D-Mannose. He looked puzzled and wrote it down.

      • Henk Noordhuizen July 3, 2018 at 7:45 am Reply

        Reaction from Jane Stilwell, former girlfriend of Bob Beck,the inventor of the low voltage electrolyse way of making Ionic Silver: “SMURFTIME” :-)) By the way;Ionic Silver is demonized by the Colloidal Silver makers as being inferiour,but here the same story of money and greed plays it’s role.

        New research shows that silver ions are very effective in killing breastcancer cells: in vitro they kill those malicious cells within 48 hours,while healthy cells are not damaged. And there are only very few reports of people who got blue by Ionic Silver,despite the fact that so many used,and still use it daily,orally.Just don’t add salt to speed things up!

        I used Ionic Silver for several years orally,on a daily base,and didn’t turn blue.Also used,and still use it topiccaly on little wounds and,if neccesary,on Athlete’s foot.

        • Daniela July 3, 2018 at 12:18 pm

          Colloidal silver vs ionic silver? Do you use them the same way?

        • Henk Noordhuizen July 3, 2018 at 1:37 pm

          Daniela,I use only Ionic Silver made with the Sota Silver Pulser (which is,at this moment,on my wrist and pulsing my blood :-)) This will be 10-20 % Colloids and the rest is Ions.It’s some years ago that I stopped using it orally on a daily base because it will also kill the good bacteria in your gut. So,I only use it when strictly neccesary.I also have a distiller and make destilled water myself.

          As far as I know those “Doomsday Seed banks” (there is one in Norway,one in England and there are some national seedbanks as well),and all are “public”. Monsanto and Bayer not involved. I read those conspiracy articles but those are not true,as far as I know. In fact,those banks are there in case all plants get infected by cross-polationing from GM plants,just to garantee we will,in the future,still have “clean” seeds.

          By the way: the Silver Pulser has two functions: making Ionic Silver, and Pulsing your blood (which kills bacteria,virusses,fungi and amoebas).You can only use one function at a time.

        • Daniela July 3, 2018 at 2:42 pm

          Henk, The companies that make gmo’s brag about their involvement in press releases all the time. It just depends if you trust duPont, syngenta, monsanto and the rockefeller corporation.

        • Henk Noordhuizen July 3, 2018 at 2:50 pm

          I haven’t read about those companies being involved in those seedbanks for years. Do you have links to recent articles about this? Then please post some links.

        • Daniel a July 3, 2018 at 5:36 pm


          Let’s not go off on a tangent, this is the floxie forum!

        • Daniel a July 3, 2018 at 6:19 pm

          From the agreement “The samples remain at all times the property of the depositors, the only proviso being that the originals must be freely available to researchers and breeders”

          It works like a bank. You deposit, but they can and do use it.

        • Daniela July 3, 2018 at 6:28 pm

          Syngenta gives $1m to Global Crop Diversity Trust https://www.cabi.org/agbiotechnet/news/3655

          Can’t put more than one link in each reply.

        • Henk Noordhuizen July 4, 2018 at 3:30 am

          Daniela,$1M is peanuts for Syngenta,and they don’t get a “share” in those banks.Of course they,too,hope to profit from that big collection of seed genes;they are breeders and need those for creating new varieties. The main goal of these banks is saving all those genes for future use,if needed:

          I’m more worried about what the FDA is doing;helping farmaceutical companies to get a monopoly right for selling herb tinctures,made of natural and not patentable herbs,like CBD oil in America.And the change they made in the reglement: when companies show interest in one or more medically used plants;they can forbid free selling of these plants and medications made from it.

          They tried this tactic in India but,under presure of the public India,untill now,refused to give Monsanto patents on excisting and traditionally used medical herbs.But this might change in the future,and companies like Monsanto/Bayer might get enough power to forbid people like you and me to grow the medical herbs we used for centuries.You’d have to pay a fine when growing dandelion,camomilla and other usefull plants (let’s not forget cannabis;which IS forbidden,due to it’s usefullness).

          They might even send you to prison for growing your own medicines,like your parents and grandparents did.And it’s not just the FDA;government,not only in America,is rotten and corrupt from bottom to top and serves the multinationals,NOT the people.It’s time for the people to wake up and not ask,but command changes.Political power has to be given back to the people,and one of the first changes would be the freedom to decide what kind of medicines you use.

      • Henk Noordhuizen July 3, 2018 at 7:59 am Reply

        Here an excelent article from the Rice university on the importance of the silver ions (and why silver particles,depending on size and circumstances,don’t work well:


        • Daniela July 3, 2018 at 11:35 am

          Don, are you using that simple method in the Youtube video you posted earlier, with the beaker of distilled water, clamps and three batteries?

        • Don M July 3, 2018 at 1:10 pm

          I’ll run through what I have for making Colloidal Silver.
          I use distilled water (a must)
          I make it a quart at a time. I use a quart Mason or Ball jar.
          Always make and store CS in GLASS.
          I have a plastic lid with 2 holes drilled in it to hold the silver wires.
          I have 2 leads with alligator clamps in them.
          Simple so far. Right?
          Here is where in my opinion the “secret” to good Colloidal Silver lies.
          Colloidal Silver MUST be in as small a particle as possible. The smaller the more effective it can be.
          The leads…………………….
          The positive lead is as you can buy it from the store. The negative lead MUST have a current limiter in it.
          Lets return to this “negative lead” in a minute.

          For the power supply. One source is 4 of the 9 volt batteries clipped together. Another source is a “DC” (direct current) transformer that will produce about 36 volts. Like the ones you plug into the wall. I use an old printer transformer that can be bought off eBay pretty cheap. Another power source that I made up uses 3 solar cells that put out 12 volts each. I have them hooked together to make 36 volts and have mounted all this in a 3 ring note book. Open the note book and lay it on the table and connect the leads to it and the jar with the silver wires in it and it makes CS from the light.
          What ever your power source…… connect the positive lead to the + and the negative lead to the – side of the source.

          Now back to that negative lead………. Power straight from the batteries or any other source is at too high a current. High current tends to blow the silver off the wire in larger particles. Not good…… you want the silver to be in “nanoparticles”. The current should be limited to less than one milliamp. This is done by splicing a current limiter (small electronic gadget) into the negative wire.
          Connect all the pieces together, fill the jar with distilled water and let it work.
          With the limited current is takes mine about 3 days to get to about 15 PPM.
          15 PPM is my target. About once daily I wipe any residue off the silver wires.

          How do you know you have reached 15 PPM? With a TDS (total dissolved solids) meter.
          Meters are available on Amazon or eBay. Usually for less than $20.
          Distilled water is -0- PPM of dissolved solids. Clean glass does not deposit any dissolved solids and the only other thing in the water is the silver wires. Hence when you measure TDS it is ionic silver in the water.
          Store the completed CS away from any light because light cause it to deteriorate. That is why you always buy it in colored bottles.
          Information and instructions on how to make your own CS generator are on the Internet in several places.
          This setup can be made for around $50. If you don’t want to mess with the time and trouble there are ready made units for from $100 to $300

          If there were more ladies who knew about CS and D-Mannose for a UTI there would be an exponentially less number of ladies “floxed”.

          This may be a dangerous thing to offer but anyone who is serious about making their own CS, get Lisa to give you my email address and I can reply direct. I am no “pro” but I have made my own for about 8 years. And I always must add. I ain’t blue yet!

          We”ll see if this passes review and will be posted.

        • Daniela July 3, 2018 at 2:08 pm

          Thank you Don! I remember a child who was severely burned in another country and they used silver nitrate on the wounds. I’m sure there has been extensive research in the past.

      • Henk Noordhuizen July 3, 2018 at 8:49 am Reply
        • Don M July 3, 2018 at 10:06 am

          All the articles you have made reference to are very interesting. The work in the silver field is going on but there seems to be a concerted effort by the drug companies to keep the information from the general the population of the world. They appear to be searching for something that they can patent.
          Here in the US I have heard that the drug companies have tried to get the FDA to classify Silvers so that they are not legal to use unless by some sort of medical approval. Money first and people’s health second.
          I became aware of Colloidal Silver and how to make it about 8 years ago. Been making it and using it ever since. And I ain’t blue yet.
          As you said and is a fact. Don’t try to make the silver solution super strong and quick by adding salts. That’s what the “Blue Man” did.

        • Henk Noordhuizen July 3, 2018 at 10:54 am

          You’re so right in that,Don! That’s excactly what thet did to CBD oil: several months ago the forbid CBD oil to be sold because a farmaceutical company had shown interest in it. Today the result of that was presented in the media:


          At the moment the FDA forbade the selling of regular CBD oil,under the argument I wrote above,they also mentioned they’d changed the rules: when a company will show interest in manifacturing medicines/supplements of unpatentable natural remedies they will forbid free commerce for those as well and the company will get the exclusive right on distribution.

          That’s the way things go,nowadays. And that’s how the FDA “works”.

        • Daniela July 3, 2018 at 11:45 am

          Henks, I agree about favoring the natural source (cranberries are better than d-mannose if you can get them). You don’t know what may have happened when making the supplement and which is helpful might also be a little more complex than d-mannose. But it seems like d-mannose is working so that’s great.

          Monsanto and the UN FAO are collecting all the world’s seeds and experimenting on them. (doomsday vault) They say it’s for our benefit, but the FAO guy has become a millionaire somehow (?)

          How about stop bombing and polluting everywhere and let people grow their cranberries and herbs in peace? Instead of grabbing their seeds, just listen to people who have remedies and respect them.

        • Daniela July 3, 2018 at 2:43 pm

          Henk (sorry about adding an “s” to your name)

        • Henk Noordhuizen July 3, 2018 at 2:47 pm

          It didn’t hurt ;-))

    • Henk Noordhuizen July 3, 2018 at 8:02 am Reply
  34. Joanne. July 3, 2018 at 9:03 pm Reply

    Hi Everyone,
    I haven’t posted in a while, but I’ve been taking a supplement that is helping me sooo much I wanted to tell everyone to read up on it and please give it a try. It helps every one of my leftover symptoms! It’s been absolutely amazing for me so far.
    Here’s a link to some info on it
    Seanol and Ecklonia Cava – A New Powerful Healing Seaweed | Relax Into Success
    I buy Ecklonia Extract 99% pure by Ortho Nutrition, Inc. On Amazon it’s 30$ for a month’s supply.

  35. Henk Noordhuizen July 4, 2018 at 8:13 am Reply

    Lisa,could you,please,remove the spam from xcodeforwindows? And to others on this blog: don’t click that link;that website looks risky!

  36. Ronna July 5, 2018 at 6:15 am Reply

    Has anyone gone on Pallaitive care for symptom relief and improved quality of life?

  37. Don M July 5, 2018 at 6:46 am Reply

    I am going to post a web site on a pain reliever that I found advertised on the Internet.
    It is said to be a “non narcotic” pain relief patch.
    It is available for purchase direct, on Amazon and I suppose other places too.
    I have never used it and in no way advocate it but figured that maybe some might want to investigate it. When it comes to reducing or eliminating pain everything is worth a look.

  38. Ag July 5, 2018 at 4:12 pm Reply

    Has anyone found something that helps with histamine intolerance/mast cell activation syndrome apart from following a low histamine diet?

    Also, has anyone tried an amino acid supplement for neurological symptoms?

  39. Nunez July 5, 2018 at 10:33 pm Reply

    Hi guys i had a question, is someone took cipro and was affected by it and needed to have dental work done that was necessary, are they at risk if the dentist uses Anastasia on a tooth that will undergo alot of work? What if the individual detoxes?

    • Daniela July 6, 2018 at 8:36 am Reply

      Todos mis sintomas se convirtieron de inmediato en algo muy mal por causa de la anestesia dental, no le sugiero usarla. Lo bueno es que no fue tan horrible sin anestesia. Suerte

    • Bob July 6, 2018 at 9:39 pm Reply

      Yes you are at risk, I am in a major relapse from septocain.

      • Dee July 7, 2018 at 9:31 am Reply

        Bob. I have read the home page of and on over the past year. I was floxed a year ago and have made pretty good improvement although I have a few lingering issues still left that keep hanging on. I was curious about a couple of things. I remember reading that you started homeopathic treatment with Mr Mueller a little while back. You were the first floxie I read about on floxie hope that did the treatment. I actually started his treatment a year ago in mid July right after being floxed. I was wondering how you are responding to his treatment? Any improvements? I don’t know your story. When did you get floxed and how much FQ did you take? I just read that you had a relapse to septocaine. What was your reaction you had to that and is it getting any better? I get so scared about getting a relapse but all we can do is carry on and hope for the best!! I have been on 5-6 remedies including the homeopathic Cipro for the past year. I also take quite a few supplements. It is hard to say what has contributed to my improvement or weather it is just plain time??? I will probably really never know the true answer to that?? Do you feel mostly recovered or do you think you need a lot more time to get there? I hope you are mostly recovered and I hope homeopathic treatment is helping you too!!

        • Bob July 7, 2018 at 7:19 pm

          I am not doing very well right now. How well did the treatment work for you. I Was in pretty bad shape when I started the treatment. Dr. MUELLER thinks wireless and cellphone exposure has slowed down my recovery. My nerve damage is pretty bad.

        • Don M July 7, 2018 at 7:41 pm

          Bob. Or anyone else who might be interested. Check out this web site dedicated to EMF exposure. https://www.electricsense.com/
          EMF exposure to WiFi, cell phones and other electronic sources is a problem for some. And it is real.

        • Andrea July 8, 2018 at 8:30 am

          Always noticed, even before beign floxed, that exposure to wifi is very bad for me. Whenever I turn on the router I start to get headache in about 10 minutes. It doesn’t matter if I’m in the same room or in another one.

        • Don M July 8, 2018 at 9:15 am

          On my router I turned off the WiFi and have everything connected by “hard wire”. The default setting on all new routers is “ON”. The WiFi broadcast can be turned off. One just has to find the place in the set up to do it.
          The word is that cordless phones are as bad a cell phones when it comes to EMF radiation.
          I also replaced all my cordless phones with “hard wired” on my land line phones.

  40. Dee July 8, 2018 at 10:53 am Reply

    Bob, it is really hard to say if Mueller’s treatment has helped me?? I got floxed a year ago in the beginning of July. I started his treatment 2/3 weeks later. I also added supplements over the next few months as I became more informed. Now a year later I would consider myself 85-90%healed?? I’m not sure weather to attribute it to homeopathy, supplements, time or all of the above!!?? I still have some lingering symptoms including tinnitus, mild anxiety, mild brain fog, waking up early in morning although for months i had pretty severe insomnia and I didn’t sleep well at all. I have leaky gut with some GI issues and on occasion I get stiff/achy ankles and knees. I don’t feel recovered but I feel much improved. How long ago did you get floxed before starting his treatments? How many FQ pills did you take and were your symptoms severe? You mentioned you also had a relapse to septocaine. Was that after starting with Muller and do you feel it took you right back to day 1 of being floxed or had you felt somewhat recovered before that? I am thinking if you felt somewhat on your way to recovery that the septocaine set you back a lot. I sure pray that your relapse will settle down soon and you can be back on your way to recovery. I am not a youngster either. I am 62 so have always felt that most likely it will take me longer to recover!

    • Daniela July 8, 2018 at 11:14 am Reply

      Dee, You’re at 85-90% in just a year! That’s great in floxie terms.

      It sounds like the old floxie anxiety is getting to you, so I would concentrate on that if I were you. Chamomile, flowers, old movies, meditation…. Wishing you the best!

    • Bob July 8, 2018 at 4:54 pm Reply

      IT’S a good thing you started treatment early. I am over 5 years out. My neuropathy kept getting worse and then when I had septocaine it got unbearable. Can hardly walk at this point. Debating whether to quit homeopathics. If your getting better you have hope but I have been getting worse for 18 months, seems hopeless.

      • Dee July 8, 2018 at 6:09 pm Reply

        Bob I’m so sorry you have been getting worse over five years. Were you starting to get better at all before you took the septocaine? I was just wondering how much the septocaine set you back and thinking if it did really stop you you in your tracks that maybe with more homeopathic care you could start to reverse your symptoms? How long have you taken the homeopathic remedies? I know it is easier said then done but I hate to see you give up hope and I hope with more treatment you will see more progress? Have you tried any IV treatment like ozone therapy? Some floxies have had luck with that especially with neuropathy symptoms. Did you get tendon and ligament tearing or is is pain from neuropathy you are battling? If I may ask how much Cipro or levaquin did you take to initially get floxed? I really hope you can find some hope and begin to get some relief and improvement. I remember you mentioning before that you thought the homeopathic treatment was starting to help you? Sending you healing thoughts for some relief to come for you.

  41. Dee July 8, 2018 at 11:37 am Reply

    Daniela, thanks! It is always hard to determine what percentage one has improved but all I know is that I was in really bad shape a year ago. I am a retired PE teacher and could not go back to finish my last semester of teaching last fall. I was a wreak. Horrible brain fog and spacey like being in the 5th dimension. Dry achy eyes which became blurry off and on. Dry mouth and ears. Neuropathy mostly in my legs, achy/stiff joints, major fatigue, rash on back, lost 50 lbs/no appetite, GI issues, Headaches, depression, depersonalization. Horrible insomnia and anxiety for months. Horrible loud throbbing/buzzing tinnitus. It has all improved greatly and some things are gone or almost gone. My biggest challenge is mental! I worry about getting all the way better, what I can eat or drink, meds I can take in future, getting or triggering a relapse. It is just so scary and of course unpredictable! I try to have faith that I will fully receiver as I have improved in leaps and bounds. I try to stay calm and positive and believe my body is continuing to heal! I pray for a complete recovery and for all floxies to improve, heal, recover and continue on a path to recovery!! No one should have to suffer through this!! I have read that it typically can take about 2 yesrs(on the average) to recover so I am really hoping that the next few months will bring me complete healing!🙏🏻 I hope you are doing a lot better day by day too!!!

  42. Ursula July 8, 2018 at 10:04 pm Reply

    I just want to ask about dental work, do we take local anesthesia. I am so scared. Also want to remove 6 amalgam fillings at a biological trained dentist, anesthesia problem again.

    • Daniela July 9, 2018 at 7:31 am Reply

      I would put off work not immediately necessary.

      • Dee July 9, 2018 at 8:02 am Reply

        Daniela, what was your reaction to septocaine??

        • Daniela July 9, 2018 at 3:24 pm

          I’m going to have to leave that question alone for now. It really hurts to relive that experience.

        • Dee July 9, 2018 at 3:58 pm

          Daniela, no problem. I totally understand. Sometimes it is hard to go back and don’t want to go back!! I just hope week by week you are improving, healing and recovering more and more!! Sending you healing thoughts. 💝D

  43. Ronna July 10, 2018 at 4:31 am Reply

    Dee, how long did you have the GI issues, I don’t see any improvement in mine no matter what I try. What exactly was your GI issues so I have something to compare to. I’m becoming exhausted trying.

  44. Dee July 10, 2018 at 7:26 am Reply

    Ronna, how far out are you in your recovery? Before I was floxed I was already dealing with leaky gut and IBS so getting floxed added another log onto the fire!! I mainly deal with diarrhea/loose stools in the morning. Let’s just say I need to be close to a bathroom for the first hour after waking up and sometimes even later in the day. I have gone gluten free and mostly dairy free. I do have 2-3 slices of raw cheese each day which may or may not help things but other then that I don’t do dairy. I recently did a gut cleanse and liver cleanse which did help me some. I haven’t gotten better to the point of feeling normal in the mornings but have improved from the first few months. When I was first floxed I had no appetite and lost 50 lbs. My bowels were all over the place. I have my appetite back and am pretty regular other then being really loose every morning. More detail probably then one would like to read!! What are your issues and what have you done so far? I started a couple of products to help your stomach heal. So will see where that goes? I have considered using Restore and colostrum but as of yet haven’t tried? I do take a daily probiotic. What is going on with you?

    • Don M July 10, 2018 at 8:42 am Reply

      Have you considered fermented foods. Not store bought but home made. They are supposed to have more beneficial probiotics in them than store bought pills.

      • Don M July 10, 2018 at 8:43 am Reply

        Looks like it didn’t post properly. Oh well.

        • Henk Noordhuizen July 10, 2018 at 10:55 am

          The link is correct,Don. If the rest,following the link,was your PC inlog-code,then you were perfectly safe for hackiers. Untill now,of course :-))

        • Don M July 10, 2018 at 12:20 pm

          For anyone interested in looking into fermented foods and their benefits here is a site with instructions on “easy” to make sauerkraut. With kraut cabbage is the base because it is so easy to make, but many other vegetables and seasonings can be added to the recipe.
          It is a natural thing and loaded with probiotics. Mercola says that there are more probiotics in a serving of fermented foods than in a whole jar of store bought “probiotics”.

        • Dee July 10, 2018 at 12:48 pm

          Don. Super! Thanks for the info on fermented food. I will look into making some and give it a try!!!

      • Daniela July 10, 2018 at 12:24 pm Reply

        Antibiotics damage your digestion by killing the good bacteria along with the bad. Another example of the wrongheadedness of modern medicine.

        FQ’s are so much stronger so it’s so much worse. I try to let me body reestablish itself. I make sauerkraut. I didn’t get any help from store-bought lactobacillus, saccharadys, etc.

        The SCD diet is based on eliminating foods that are rough on the system so the body can heal itself. There’s a legal/illegal list to start off from. It’s really true that I can’t have any form of chickpea, such as hummus, since cipro.

        Doctors only regard clostridium difficile due to antibiotics to be true if you have more than three watery stool a day, but if you have two, does that mean you were not affected? Or one a day for several years? Or just frequently? Then again, their remedy is more antibiotics for c diff anyhow unless you find someone doing fecal transplants.

  45. Don M July 13, 2018 at 6:15 am Reply
    • Henk Noordhuizen July 13, 2018 at 10:30 am Reply

      Hi Don,and everybody else:I think this is too good to be true.<>.Well;where are those studies? About 20 are listed at the end of this commercial (notice they don’t even know how you spell scientific ;-)) and the first one concluded nothing but the fact that more research is needed.And indeed;vitamine D is extremely important (Farmafia even tries to get vitD supps to be forbidden and only availible from ….patented sources. Well: the sun is the best source,and it’s free and not patentable :-))

      Vitamine D,vit. K2,calcium and magnesium interact;you need all of them together,to be efficient but this supp only contains VitD;strange! The rest of the ingredients seem to be just grabbed together. I’ve looked at a few scources. Pushing the links doesn’t work;you have to copy/paste them in your browser.Another misser,and quite amateuristic! Don;you did an excellent job on that extremely long link.Please.explain those guy’s ho to do the job,will you? Thanks!

      Well;I can go on explaining what’s wrong with that advertisement but I think that it might be enough to say that,to me,it’s a shure thing that getting this whole packet ($50/month;at least 3 month) can be obtained much cheaper by sun and food (better uptake,too,and you have to eat anyway;why not eat healthy,then?).Oh;did I mention fish-oil? Must have come to my mind because of the fishy smell of this commercial ;-)) And it’s great for your nerves!

      I wish you all a good weekend!

      • Daniela July 13, 2018 at 11:10 am Reply

        One thing that’s good about researching these products is you can look at what they are using and then just use the same ingredients yourself.

        As Henk said, you can get fish oil just opening a can of sardines.

        Once someone was bragging to us how an expensive hand softener only used salt and lemon juice. Well, if you put salt and lemon juice on your hand, rub it a bit and rinse it off, your hands are really soft for a while after.

        • Henk Noordhuizen July 13, 2018 at 11:40 am

          Daniela,the oil in the can is not fish oil; it is oil of sunflower seeds (if you’re lucky), or rapeseed/canola oil (the worst;a recent study shows it promotes Alzheimer). Only the sardines itself contain fish oil. Mercola writes that krill oil is the best but I like sardines,preferrably fresh,and baked in olive oil.

          Forgot to mention this: I have quite anoying skin problems,thanx to Cipro. Had it after the Metronidazole/Amoxicilline combi in 2004 as well,and it took years for it to get less severe and tolerable. Sometimes had the feeling my whole face was falling apart. Itching like hell! Thanks to Cipro now I’ve got this skin problem back,again.

          During the last 2 month I was using quite a lot of camomilla tea to treat the itching of my eyes (hayfever),and a few eeks ago,after writing about this wonderfull tea I descided to give it a try on my skin. And now I regret not having tried this before; it works miracles! Almost no itching,nor dander anymore. Silver water did help,but not as well,and there’s always that fear of waking up one day and seeing that blue face in the mirror.

          The protocol is simple: make a mug of strong camomilla tea,put some of it apart and drink what’s left. Rub it on your skin and let it dry. For hayfever: wash your eyes one or more times a day with the tea and let it dry. This works against the eye irritation quite well!

          Don’t under-estimate the drinking part of this “protocol”: camomilla tea isn’t just delicious (you can add some honey,if you’d like to) but it is nerve calming and makes you sleep better as well. Mercola recently wrote an article on camomilla.

        • Daniela July 13, 2018 at 12:44 pm

          Yes, Henk, I didn’t mean to say the packing oil is fish oil. I meant eating the sardines!

  46. Ronna July 13, 2018 at 12:21 pm Reply

    Dee, it’s been 19 months for me, still no appetite. Taking 7.5 of remeron at night just to hold the weight I have. Stool is loose every morning like you and urgent. It is always yellow, gall bladder checks out ok. Getting some blurry vision now and getting scared, I eat very well, have tried every diet without improvement, now back to eating as before being floxed. I feel like giving up. Bad ear ringing and pressure in my head. It goes on and on. It’s relentless.

    • Daniela July 13, 2018 at 12:43 pm Reply

      Appetite got better for me without any antidepressants but it takes time (years) . Once you start taking it, it’s hard to say if remeron is making things worse.

      At least the US govt is recognizing the psychological toll.

    • Dee July 15, 2018 at 11:10 pm Reply

      Ronna, I’m sorry you are still having bad GI issues. I started gaining weight back about 10 months out. As I said before my stools are still loose and urgent in the morning. Some days are better then others. I too had horrible tinnuitis and head pressure. My tinnitus is the pulsating kind which means it throbs and pulsates more like a heartbeat. It is there all the time but I think it has gotten quieter month by month. It still really bothers me though and I just keep praying for continued improvement. My ears feel plugged/clogged up at times also. My head pressure has improved quite a bit over time. I hope with more time your ear symptoms and head pressure will slowly get better! Mine got better but very slowly and of course is not gone yet but I will take improvement!! Do you have the “ringing” tinnitus in your ears? Has it improved at all?? May I ask how much FQs you took to get floxed?? As you know we are all different and symptoms seem to heal at their own pace. I just hope you have at least seen improvement even if it has been baby steps!!

  47. Ronna July 13, 2018 at 12:53 pm Reply

    I know the Remeron can make things worse, but it has helped my weight. I lost 26 pounds and was only 116#to start. Went down to 88#, now 104, but I have to eat tons of food just to stay there. I’m 5’2”. This is my biggest challenge and the head pressure is relentless. I have been crying daily and can’t stop.19 months, not sure how much more I can take. I need to see some improvement soon. Looking for answers and tips.

  48. Toby July 13, 2018 at 2:38 pm Reply

    Is it safe to have ozone therapy(without glutathione) if you are mercury toxic and still have amalgams in the mouth?

  49. toby July 14, 2018 at 1:53 am Reply

    Also, does anybody use beta glucan for immune boost?

  50. Ronna July 14, 2018 at 4:00 am Reply

    Thanks Daniela, when did you get your appetite back, how many months. Did it come back slowly or suddenly. Daily I wait for some sort of sign. Thanks for the advice. I do eat these things, but I will increase them.

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