*The following is an individual’s story of surviving fluoroquinolone toxicity. It is not medical advice. Please see the disclaimer at the bottom of the story. Thank you, and please be cautious with all treatments.
Hi, my name is Daniel, this is my experience with fluoroquinolones. After 18 months being intoxicated by this very dangerous drug, most of symptoms are gone I believe, so there’s hope for everybody!
I got an urinary tract infection in January 2013 and got prescribed a long course of Oflaxocin (I took 1 pill a day -can’t remember quantity – for 4 weeks!). The infection went but my life was ruined by the side effects of the drug. Some of them came immediately, some after a while. I wasn’t myself anymore. Here’s a list of the effects of the drug on my body:
– numbness and lack of energy, tiredness, fatigue, happened immediately, I went into a state of total numbness, I barely managed to continue working. Had problems standing in the tube, in particular in the evening. Coffee/tea and alcohol made this much worse;
– muscular strength gone, immediately. I used to go to the gym twice a week. It become impossible. I felt fatigues just doing the stairs, hearth rate going up like crazy
– strong anxiety, immediately, for every small thing I went into mad anxiety
– pain in the tendons of the feet
– peripheral neuropathy symptoms, started one month after ending drug, tingling, pins and needles in the hands and feet, worse in the evening and when tired, after doing any manual work
– worsening of vision, immediately. I looked at the sky and appeared as small granules moving
– big eye floaters, started 2 months after stopping therapy, abruptly they come one morning all together (oculist said caused by detachment of the vitreous).
I don’t have to tell you how much pain and discomfort all this caused to my life and to my relatives, though I always tried to minimize it for them.
I talked with several doctors trying to find a solution, and I need to tell you all of them denied the symptoms were caused by the fluoroquinolone, including the one that prescribed them to me.
Eventually one private GP I went 5 months after being floxed said that he had other patients with same symptoms and that they are caused by the drug. He suggested just to rest and wait for the symptoms to go..
I feel very irritated by how the effects of this drug is minimized. In reality if you experience that, you realize it’s like a life changing illness.
Here is what I’ve done to try to survive the intoxication, most of things I read on blogs like this, they seemed to help, not sure for the placebo effect or real.
My experience is of phases of bad symptoms followed by feeling better. In general it’s like I’m 5 years older now, but gradually I see after 18 months the symptoms are almost all gone.
– avoid any contact with any antibiotics, cortisone and fluorides. This means eat only organic food, plenty of vegetables, fluoride free toothpaste;
– allowed lot of time for rest, don’t push too much your body, I stopped gym ( I went once after 1 week finished the drug, exercised ok, but then had a down for 5 days). I started swimming moderately, and I manage to go back into previous gym load only after 15 months
– no coffee and alcohol, as they made my symptoms worse
– vitamins C, 1 gram a day, plus a complex of vitamins B
– tried to get sun, for vitamin D and good for metabolism in general
– complex of carotenoids for eyes
– iodium complex, for mood
My mood was severally affected, I was normally an happy person, after taking that drug I felt always miserable. This took more than one year to go, I think also because of lack of sun exposure in this country. Laying in the sun made me feel better, that is what was happening also before, but much more after being floxed.
So now after 18 months, I’m almost ok.
Level of energy is like before. I can do all activities I did before. I can run for 45 minutes and exercise as before. Anxiety is gone, neural symptoms also.
Only thing remaining seems to be the floaters, but they’re better (a friend of mine had them and said they take very long to go, like 10 years). Some days are better almost gone, some days they come back but in general are something less visible.
After one year being intoxicated I had 2 episodes of the disease coming back. Once, lasted days, after eating a lot of some Sainsbury non organic pork meat. Tiredness and pins and needles in hands and feet come back. Maybe it’s a coincidence, but I don’t believe in coincidences. I think the meat contained some antibiotic.
Once after a very stressful event happening.
So guys my message is that THERE IS HOPE. Your body is intoxicated, you need to give it time and help him to heal. HEALING IS POSSIBLE, just take a lot of time.
My wife helped me a lot. Religion helped me, and listening to music I like, trying not to think that the previous life would not come back. Reading all possible material I could find on internet on this disease and get very scared and anxious. Try avoid that.
Trust me, all this is true. I felt I had to share my experience as I know when you’re into that, every word of comfort helps.
** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with Floxie Hope, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.
Thanks so much, Daniel, for taking the time to give us hope. I would love it, and I’m sure others would as well, if you’d pop in to update us on your status. It seems that people continue to improve as time goes on. I bet you’ll be feeling even better at 24 months! We’d love to hear from you.
Id like to know how to tell Drs about the eye thing especially i have hair flolicals floating around then light flahes on sides and klediscopes going on ,yes tendones,spasms, tired and more but my drs actually dont speak shrugg their shoulders shake heads,then say well ive never heard of this being a sypmtom of the CIDP,i would say forget the lable tell me what the heck it is? Dry eyes im afraid to try anything alerrgy nose spray still in box,meds,on top of refrigerator,the DRS admitted to me I was medically posioned and dropped it never took me off of any meds nor did they tell me what to espect even though I asked.all they want to do is say IM SORRY.
same as you caroline I have the same but had a few floaters for years before that… I think most people have them floxed or not….you eventually get used to not seeing them unless looking at something white or the sky….. I also have been having the light flashes in my eyes when closed like yellow disco lights….also abit of pressure and at one point eye pain and buzzing in one eye….. seems better now… just give yourself time
try getting away from non-kosher foods too. There’s a reason that our Heavenly Father gave the “bride diet” to the Israelites when He made covenant with them at Mt. Sinai. The foods that are non-kosher are not good for your body. Try going kosher…
Your symptoms are very similar to mine. Glad to hear they went away. I was hoping you would say the floaters did too. I have a gigantic one on the right eye that makes it like looking through gauze. In addition to taking an eye supplement I read that goji berries were supposed to help. Been eating those for a couple months with no discernable difference. Also read hemp oil is supposed to help so just started doing that a few days ago.
And the first opthamolgist I saw, who is supposed to be one of the best in the country was very dismissive of the connection to Cipro, even though I went armed with studies and told him it affects the vitreous like it does collagen. then I went to the “dollars for docs” site and wouldn’t you know—he took $25000 from the pharmaceutical industry last year. I called for my records and won’t go back. I don’t care how damn great he is supposed to be.
Hi Daniel, thats great to know you have gone through this terrible bumpy road to recovery, i just wanted to ask you a few things, it would be really helpful for me if you can guide me accordingly. I have awful head pressure and tinitus (ringing in ears), nausea, and worse vision (small granules moving when looking up to the sky) and i cant ear much the way i used to, i eat very less and feel v bad after eating sometimes. These things are giving me a feeling of being constant, they are not going away. Can you please guide on head pressure, vision, and eating patterns please.
Immediately after 4 tablets of ciproxin hextreme headsches, numbness in the left side of the body and naisea shaking vinrations panic attacks all started. I am 27 and people say you are a young man and bla bla but only i know how am i dealing with this, i cant go anywhere cant go to work (on and off skip the work). I dont know if this will ever be the way it used to be. I am on seroxat 10mg for help but that too is not helping me much.
I will be very grateful if you van guide.
Thanks and best wishes
Postscript: i am 10 months out, i took ciproxin for a stomach infection.
Daniel, how long were your tendons and muscles impacted? Has that improved or gone away?
Dear Daniel, I am Dan Jervis, the last one on the long list. Would you please consider sharing your story to CBS 60 Minutes? 60m@cbs.news.com
WE NEED OUR STORIES HEARD, Dan
I hope that you will share your story on CBS Daniel, this needs to get out. I was floxed 5 yrs. ago Feb. 1st. I still have permanent side effects, but at least I can walk now, I couldn’t for 2 yrs.
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