Elisabeth’s Story – Recovery from Cipro Toxicity

I wanted to share my story of cipro poisoning & recovery.

As an athletic and healthy 22 year old mom of a toddler, I went to an urgent care with UTI symptoms mid July and was prescribed cipro. I stopped taking it after only 2 pills when I noticed all of my joints were extremely sore and my feet and hands were VERY swollen. I was then prescribed Macrobid. Over the next 8 weeks I suffered tremendously with a total of 5 trips to the ER where they did nothing for me And denied that cipro could be causing my issues. It was incredibly frustrating and scary. I was scared that I was never going to be able to care for my daughter again or return to my hobbies such as running and weight lifting. It was so bad in the beginning my mother had to help me shower.

After following a regimin that worked for me I have become 80 percent healed in the last few weeks and have been able to return to all of my normal activities except for weight lifting which I’m giving myself more time to recover.

My symptoms:
-constant dizziness for 6 weeks with no alleviation (gone)
-migraines (gone)
-tachycardia and arrythmia: 130 bpm at rest (sent me to the ER) gone
-Low blood pressure (gone)
-extreme fatigue (gone)
-brain fog/confusion (80 percent better)
-anxiety (gone)
-eyes: visual snow which is actually neurological, floaters, poor color vision,I now need glasses for being near sighted (I still have these)
-joint pain and tingling (gone except for in weather changes)

What helped me:
-multivitamin with iron daily
-megared triple strength omega 3 oil capsules daily
-probiotics daily
-ginger tea (ginger is anti inflammatory!)
-exercise
-positive attitude VERY IMPORTANT
-challenging my brain: reading even when difficult, lumosity brain games
-getting plenty of water & sleep

What did NOT help
-Motrin, Tylenol, dramamine, Claritin, Sudafed (WORSENED … I will never again take another NSAID or any other pharmaceutical unless absolutely necessary. I am in favor of natural remedies)

God bless and good luck to all those still healing. I know how difficult it is to feel like you have no control and that doctors can’t help you. It is so important to be positive and believe you will get better.

Cipro changed my life and I have become a much more grateful and positive person after realizing how important the little things are.

** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with Floxie Hope, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.

 

 

22 thoughts on “Elisabeth’s Story – Recovery from Cipro Toxicity

  1. Tara October 30, 2017 at 8:05 am Reply

    Elisabeth-
    Thank you for your story! I am sorry that you experienced this like the rest of us on here. How long ago was this for you? I, too, have a lot of visual issues from the fallout. I’m a year out. Can you tell me which eye issues you have and which resolved? I have the visual snow, floaters, poor color perception/blurry vision, etc. With the prism glasses, it’s like everything is in “high def” or like I’m in a 3D movie. I now have to wear prism glasses because my eyes do not work together. It’s the only way that I can function to work and take care of my children. I think you were fortunate to stop at 2 pills. I took a weeks worth along with Flagyl, which can be toxic as well… Even though I wanted to stop after having these scary symptoms, I trusted the doctors/pharmacists when they said to keep taking them, the side-effects will go away and that I would be OK since I was not over 65! I’m still holding out hope that they will all go away and that my vision will return to normal! I can’t believe how all these doctors across the work are naive to the dangers of these medications when all you have to do is google it! Best wishes for continued healing!

    • lizdipasquale October 30, 2017 at 11:22 am Reply

      Hi Tara!
      I’m almost 4 months out. My visual symptoms are the only thing that have not gone away 😦 I have poor color perception, visual snow, and I need to wear glasses for near sighted vision and astigmatism. I had nearly perfect vision before taking cipro. The visual snow is actually a brain problem so I know there’s a good chance it won’t go away. I hope it does though, its so annoying! The color vision will return I believe…mine was way worse at first but I still don’t see quite as vibrantly and have a hard time distinguishing black blue and green. My cousin has the same issue from Cipro & is 6 months out. I just try to ignore it as best as I can. Good luck!

      • Tara October 30, 2017 at 11:42 am Reply

        You’re still very early out, so I think there is hope that some of it will improve in time. I had LASIK and had perfect vision for 14 years and then it was all gone overnight… 😦 It’s the most maddening of all the side-effects for me because I deal with it every day, all day, because I’m on the computer a lot at work and everything is more pronounced. The only reprieve I have is in certain lighting conditions when I don’t see them and I can feel “normal” again for a little while. Plus, it’s a constant reminder of this experience and I’d like to put it behind me. If it weren’t for all the vision issues, I would consider myself to be further along in my healing process and I could live with the remaining issues that come and go. I’m way better than I was even a few months ago from a neurological standpoint, but the vision issues keep me from moving forward psychologically. I am still trying to wrap my toxic brain around how a couple of pills can do this much damage to someone! Your little girl is precious! 🙂 Some days, my three little ones are the only things that keep me going… Best wishes to you as you continue to heal.

  2. L October 30, 2017 at 10:24 am Reply

    You are lucky to have improved so much so quickly. And yes, do not EVER take NSAIDs (or steroids) again. Also, macrobid is very toxic as well. If you get another UTI find a female ND. There is a protocol for getting rid of it without pharmaceuticals. (and the floaters are from damage to the vitreous gel. cipro can destory any kind of connective tissue.)

  3. z4m0lx3 December 28, 2017 at 5:14 am Reply

    Hello Elisabeth. What a wonderful recovery!

    I too am struggling and although many symptoms subsided, the visual snow is still there.

    Any improvement on that?

    • Tara January 4, 2018 at 7:43 am Reply

      z4m0lx3,
      Can you describe your visual snow? I have floaters and blurry vision. It looks like I am looking out of a dirty windshield or through clear egg drop soup most days. I never have a good day with vision. Most other side effects are gone post 14 months, but the vision issues are by far the worst!

      • z4m0lx3 January 4, 2018 at 7:52 am Reply

        Floaters, Impaired Night Vision, Grainy Vision (especially during nighttime), Trailing, Halos, Shimmering effect . Yeah , by far they are the worst of the symptoms.

        The floaters are not bothering me that much anymore. I am using MSM eye drops with Vitamin C and made them very transparent.

        I was thinking I’m not healing the visual snow because I still have major problems with my digestion, suffering from huge dysbiosis. Have heard people have healed visual snow with healing their gut.

        • Tara January 4, 2018 at 7:47 pm

          This sums it up for me too. Makes sense about the gut dysbiosis because I ran out of my probiotic about two weeks ago and the vision issues ramped up for me. How far out are you?

        • Tara January 7, 2018 at 6:50 pm

          Just got the MSM drops. It doesn’t say they are eye drops. It says to use it in water. Do you use them directly in your eyes? I got them from amazon.com.

      • z4m0lx3 January 5, 2018 at 3:36 am Reply

        I am 8 months out, was feeling better until this last month when I had a relapse, and visual snow actually worsened a little

        I am waiting for some digestion tests and will try a gluten, sugar, dairy, grain FREE diet so I can try fixing the gut faster

        • Tara January 5, 2018 at 6:49 am

          I actually had to get prism glasses because of all the vision issues I had. My nervous system was hit hard. I was feeling really good before the holidays and overindulged in holiday treats with all the “bad stuff” in it because I was so excited to be able to eat stuff again that I couldn’t touch for many months. It was nice to feel “normal” again! I don’t notice GI issues in the gut itself, but my nervous system really took a hit with the Cipro/flagyl combo., so I have a whole host of other nervous system-related issues that ramp up secondary to GI issues. I noticed a downturn fairly quickly after the holidays. Thanks for the tip on the eye drops. I ordered some because they seemed to have a lot of good reviews re: floaters. I am hoping in time my vision restores itself. Having to live each day like this is what really gives me the most anxiety at this stage. I lived through a lot this year, but after going from perfect 20/20 vision to this sad state of affairs, I’m just devastated!

      • z4m0lx3 January 5, 2018 at 11:04 am Reply

        I would recommend a bioresonance scanning (or hair string test), don’t know the name in the US

        I’ve been to 3 different therapists using different scanners and they pretty much scanned what issues I had

        Right now I’m working with a homeopath to resolve them one by one

        I am very sure this will all go away Tara, just need to figure out what causes it (the answer might be as easy as a defficiency)

        • Tara January 5, 2018 at 12:08 pm

          I had used an Asyra machine early on in the process and had that scan done. It was before the eye issues emerged, though. I had a whole host of neurological issues and neuropathy in the hands and feet that have subsided for the most part. The remaining issues are really from the neck up. I can live with the remaining body issues if this is as bad as they get. Where do you live?

      • Grigoras Ion Andrei January 5, 2018 at 12:57 pm Reply

        well..short story : 8 pills of norfloxacine + 6 pills of levofloxacine and boom here I am 🙂

        I guess most symptoms resolved, although I do get flares sometimes … my joints still pop & snap and my achiles hurt from time to time

        like you, my CNS got the biggest hit…my brain fog was almost gone before holidays…but I got it back again and my VS got a bit worse

        I live in Romania, and I just started a new therapy (I was going to leave things to heal on their own…but I feel like I need to do something more intensive to help my CNS and body heal faster)

        right now I’m doing IV with high doses of Vitamin C, Vitamins B, Frequence Therapy and Cerebrum (it’s a homeopath IV treatment which is suppose to help regenerate the CNS and it even regenerates nerve myelin sheath) and will keep you updated with whatever I try and see results 🙂

        • Tara January 5, 2018 at 3:32 pm

          I did about 10 IVs of both glutathione and Meyers cocktail over the year as well and credit them to helping me get this far. I always had a very strong nervous system, so this is very hard for me to deal with day-to-day. It is the unreliable aspect of things that is equally challenging. I was almost back to my old self around the holidays- running up and down stairs, keeping long hours to do holiday things, cooking the entire dinner, eating what I wanted, etc.- things I struggled with for the past year. It was so nice, and now at the start of the New Year, I feel like I did at the beginning of being floxed in a lot of ways. I hope this is just a healing crisis that will resolve soon and I’ll be back on my way to regain myself 100%. Best of luck to you!

      • Grigoras Ion Andrei January 8, 2018 at 12:30 am Reply

        yeah, those are the drops, you can use them directly in the eyes

        I was using them 3 times per day before, but now just 1 time per day as it got better

        how is your brain fog? is it completely gone?

        • Tara January 8, 2018 at 6:46 am

          Yes, it is a lot better than what it was even a few months ago. It took about 12-13 months for the “fog” to lift substantially. It “hovered” for quite awhile between months 6-12. I was not very reliable in terms of memory, concentration, comprehension, doing simple math, word retrieval, etc. At the beginning, I felt like I had Alzheimers or Dementia. I literally forgot how to get home from work some days. It was odd because I was aware of it, but just couldn’t figure things out some days. I even forgot my kids’ names at times, or called them by our cat’s name because I was that mixed up! I’m also starting to get many aspects of my personality back. I felt “locked” for so long. This stuff is pure evil! Did you have a lot of floaters? Do you need to wear glasses at all?

      • z4m0lx3 January 8, 2018 at 7:02 am Reply

        I did have lots of floaters, but using the MSM drops really helped to make them more transparent. I have a shimmering effect when looking at straight lines which bugs me a lot and sometimes I can’t focus (especially in the dark) but I don’t know if there are glasses that would help with that.

        I was also doing very good before holidays and I guess I just hit a cycle. Brain fog came back, I sure didn’t miss that 🙂

        • Tara January 8, 2018 at 8:42 am

          I have the “wavy” vision thing which might be the same as the shimmering effect you speak of, too. I have a hard time focusing. Sometimes it’s the eyes, but most of all it’s like it is happening inside my brain, like the mechanisms are “stuck” or “fried” probably is more realistic! I feel like my eyes are loosely hanging on the tendons some days and are going every which way except where I need them to be looking. I have blurry vision, like I have a really bad astigmatism. I grew up with bad eye sight and then had LASIK surgery and enjoyed perfect vision for almost 15 years. I am just devastated by the vision issues. I ended up getting prism glasses about 6 months out and that helped me to at least be able to function. My nervous system was so badly hit that I couldn’t do anything without crashing. The prism glasses were like my “suspenders” for my nervous system. It is so interesting how this “reaction” works. I had a really good few weeks where I felt really close to being back to normal despite the vision issues right before December and I made it through the holidays just fine. I probably overindulged in sugar and other treats I was not able to have for most of the year. I also tried to stop most supplementation, including magnesium, so that could be a factor as well. I then had a rough week and completely fell apart yesterday. I felt like I was going blind and I had a panic attack at a family birthday party. It was like sensory overload when I had been doing so well. I went on a crying binge for hours and couldn’t stop. Today, I got up and I’ve been going without my glasses for the whole day so far and I can even use electronics. I usually shake when using electronics. I could not handle any type of electronic device for months afterward because it would cause me to shake and feel like my nervous system was electric! It was awful! The floaters are just so disruptive. I feel so “broken” with all these chunks of material floating around my eyes. Have you been to the eye doctor? Any issues show up on exam? I am hoping the drops really help with the floaters. This will be a miracle if it does!

    • z4m0lx3 January 8, 2018 at 9:10 am Reply

      Yeah, The eye thing is totally the worst thing that could happen. You need to keep your faith. It is not going to get any worse. I am sure that in time it will get better again. Each of our bodies has it’s own threshold when it comes to healing different parts.

      I had MRI for the head and eye and it shows up fine. Nothing wrong with the eye nerve, retina, macula or the vitreous. Doctors have no idea. Some neurologists pointed the occipital lobe (visual cortex).

      The thing is that there are so few substances that are able to breach the BBB (blood-brain barrier). Unfortunately the quinolones are so small that they get there easily.

      If the theory that they bind to the GABA-a receptors is correct, all you need is something to flush them out.

      Or maybe you have some sensitivities / intolerances / deficits after the acute reaction. For example my gut also got hit hard and I cannot properly absorb nutrients … and I am quite iron defficient now. I am going on a diet free of gluten, sugar or dairy.. see how that works.

      Tell me about the prism glasses. How do they help?

      Here is my e-mail: z4m0lx3@gmail.com

  4. harriet Kay December 29, 2017 at 11:29 am Reply

    Elizabeth Did you try magnesium?

  5. Chelsea July 13, 2018 at 7:28 am Reply

    May I ask what multivitamin you took?

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