Here we are 11 weeks from me taking cipro …
In November 2018 I was given cipro to treat a UTI by my gynecologist. Me being neither a doctor nor a pharmacist had no idea how dangerous this drug was. The only thing the pharmacist told me was to make sure to take it right away and with food and probiotic or yogurt to treat the “potential infection.” (Yes the doctor did do a test in office to see if I even had an infection but I found out later they never did a culture)The first day I was very tired but I brushed that off that I was just tired from having a night out with friends the night before. I had zero other symptoms except the next night when I lay in bed to a strange pain in my leg. I remembered reading that Cipro can affect tendons on the leaflet but as I didn’t see myself in the primary risk factor group I thought I was fine (many of my family and friends have taken cipro with no issue too) but when I felt that pain I immediately panicked.
I immediately googled and found Floxie hope and plenty of other stories that horrified me so I didn’t sleep that night (not sure it was cipro or my panicking at that point) I read through the posts and stories here to try to figure out what to do. I forgot to mention after the symptoms I went to my general doctor who agreed yes this is from cipro and did tests all that came back normal. My sypmtoms included twitches, weakness, brain fog like I was in a dream, anxiety and depression, popping joint, stomach issues, rash and pins and needles. I was kicking myself for not going to him first but I wanted to get the infection taken care of ASAP since a long holiday weekend was coming up. I ate a very strict diet if only vegetables fruit and antibiotic free meats at first and took magnesium, a multivitamin, extra vitamin c and epson salt baths at first. I quickly found an acupuncturist and Integrative health clinic and booked an appointment. To my surprise, everyone at this practice was very familiar with cipro and see this all the time to the point they know what to recommend and do! I started the most conservative herbal treatment and saw improvements quickly so I was excited!! I eventually met with the in house nutritionist who gave me top of the line probiotics to take every night and explained what to eat and what water to drink. After acupuncture for two months and Chinese herbal tea along with my regiment I was feeling much better. after two weeks I could sweat again (not just in the sauna) and my personality was returning to the delight of myself and all my friends and family who were sick of hearing me talk about this by now lol. I went from unable to stand when cooking to easily walking up and down stairs and walking several miles a day. Progress wasn’t linear or quick and I surely got frustrated. About two months or so in I has a great day and decided to go to the gym since exercise is very important to heal, well let’s just say I pushed myself s little too hard and was sore. I learned to listen to my body, be patient, open minded to alternative treatments and celebrate victories. I’m impatient by nature and just wanted it to go back to how it was but that wasn’t possible. As a 24 year old active person I hated having to celebrate being able to walk a mile but this was a lesson In patience . Sure I had bad days really really bad days where I was depressed and anxious (I had anxiety way before cipro was in the picture and suffered from panic attacks so at first it was hard for me to see Emily anxiety from cipro anxiety but I quickly saw the difference as cipro anxiety felt more out of control and doom and way more intense than anything I’ve ever felt
Am I recovered 100%? No not yet (I still have some tightness and weakness but super functional and well on my way to being back to my old self) but I felt enough progress I wanted to give others hope. I think I’m about 85%-90% at this point. Advice: don’t identify with this or stay angry it only makes you a victim, stay positive (I know it’s SO HARD I have trouble with this every day) but it is important your life isn’t over this is just a hardship and you will be ok, don’t overdo it on treatments or supplements , be open about it with friends and family ( I was very open as to educate others and try to explain what I’m feeling )
I expect I will keep getting better on my protocol and want to give hope to everyone suffering it gets better! I thought my life was over and was sad about everything I cant do anymore but I can.
*****The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with Floxie Hope, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, affect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.
What’s your protocol? I am three months out mid December it looked like I was getting better but the month of January has been tough and my hips and knees are now getting really bad I have been really functional til now. Any advice would be great!
Honestly just following what my acupuncturist and nutritionist say and recommend since they’re familiar w this
What were there recommendations
It depends on the person since everyone has different Symtoms and everyone is different
Most definitely…. but what helped you could help others….
It was Chinese herbs which are custom prescribed by person, multivitamin and probiotic
My acupuncturist gave me The herbal formulation is called Shen Tong Zhu Yu Tang. I have been scared to try it..
I had that one too! If you’re scared to take it you can always discuss other options with your doctor
That pill was too strong for me so I’ve been doing raw herbal tea since it isn’t as strong for me
He did a muscle test for me and it showed my body wanted that herb.. it’s in powder form not pills.. in so much pain I think I should maybe try a small amount
As always discuss w your doctor and if you want to do something not as strong first def let them know. My tea is basically the same herbs just not as concentrated
So the herbs helped with the pain?
I had no pain I had weakness mostly
Oh ok!! Yeah mine is mostly tendon /joint pain
Yeah just discuss with your doctor
Mine did conservative herbs and treatments first so if you want to do that make sure to let them know and make sure to ask any questions
Most definitely
Emily did the brain fog and dream like state fully leave ?
Yup! It left like a week into my treatment
Most symptoms were completely gone within a month
can someone send me the books’The Fluoroquinolone Toxicity Solution and “The Floxie Food Guid”‘ .in our country we dont have the permission to use credit card to buy on internet and i dont have money .please help me this my email
elmouelhimohamed@gmail.com
Emily, congrats on your recovery! I wish you continued healing and improvement!! I am 19 months out and probably about 85% recovered from multiple symptoms. It has been a long road!! I am still dealing with some GI issues and trying various probiotics which is a maze!!! What brand of probiotics did your nutrtionist have you take? You mentioned they were “top of the line” probiotics?? What do you take?? And did they help?? Again, so happy to hear of your very “speedy” recovery!!! You are so extremely lucky to have healed so quickly!!
Hey Dee did you have tendon issues?
It was probulin
Hi Dee, I’m so happy you have found healing. I am 9 months out, I am doing a lot better than I was in the early months. Right now my biggest issues are chronic pain in my hips and a severely restricted right shoulder. I haven’t had any imaging. Did you experience any of these symptoms. Did you have a tear? Thanks for sharing your journey.
Emily and Tammy, thank you Emily for the name of your Probiotic. Did it help your stomach issues? Tammy, I had very achy/sore stiff joints and muscled for several months. It “slowly” got better over time. When I push myself now i.e. walking up hills, I will have sore legs and ankles and knees will be more achy and sore but it usually subsides in a day or two. I’m sure if I would challenge myself more I would build up my strength more?? You are still early in your recovery but don’t give up or get discouraged. I think “most” floxies improve, heal and recover mostly over time!!
Yes it helped but I never really had stomach issues honestly. Just a little at first but I have seen a difference
Already back to yoga and living my life
I use dr formulated 50 billion mold+ probiotics
Dear Emily, Please consider your story to CBS 60 Minutes. 60m@cbs.news.com
Our stories need to be heard
No thanks
I feel recovered
I can run and go out with friends and eat what I want! I still take a multi and a probiotic (got another minor infection I successfully treated w immune support.diet and colloidal silver so my doctor wanted to prevent any future ones)
Hope healing to all of you! I recently told my friend who was in med school and he was furious this is being given out so much
I feel recovered
I can run and go out with friends and eat what I want! I still take a multi and a probiotic (got another minor infection I successfully treated w immune support.diet and colloidal silver so my doctor wanted to prevent any future ones)
Hope healing to all of you! I recently told my friend who was in med school and he was furious this is being given out so much
Hi Emily how are you doing now? What’s left ? I have severe body weakness and brain fog that dreamy thing you were talking about . I’m a year out and I’m still like this . Can you please assist in a young mom.
Hello I posted an update above 🙂
Hi Emily can you please give me some advice . I have severe severe body weakness. I’m scared it will never leave I’m 13 months out. Was your weakness this horrid? I also have food allergies, brain fog . 13 months passed and I don’t remember any of it sadly can’t recogbize myself in the mirror . Did those fully resolve? I’m a bit discouraged I’m 13 months out and still sick like this. Please tell me these things left. What should I do ?
I don’t think mine was as severe. I’m so sorry and I really hope you get better. I recommend diet and Chinese medicine that is what helped me most