For over a decade this page has been dedicated to enabling the conversation for floxies to talk with one another. Sign up and subscribe to get all the latest comments.
When you login first time using a Social Login button, we collect your account public profile information shared by Social Login provider, based on your privacy settings. We also get your email address to automatically create an account for you in our website. Once your account is created, you'll be logged-in to this account.
DisagreeAgree
I allow to create an account
When you login first time using a Social Login button, we collect your account public profile information shared by Social Login provider, based on your privacy settings. We also get your email address to automatically create an account for you in our website. Once your account is created, you'll be logged-in to this account.
DisagreeAgree
26.5K Comments
Inline Feedbacks
View all comments
Debs
8 years ago
LOL i am so floxiefog brained, I remember now it was Flagyl that you said.
Have you thought of getting hold of your records at all ? I still think it would be worth your while to do so. It is very easy to forget the drugs you are prescribed & often FQs can be prescribed prophylactically before operations & sometimes this can be just one dose & you would not know a thing thing about that it is usually done whilst you are under.
The reason I say this is because the mechanism of damage due to FQs is completely unique & also because records can tell you an awful lot & clear a up a lot of mysteries, they are also handy re any proof you need & I have noticed having been around a while that people are mentioning more & more that parts of their records are missing when they get hold of them. As word is getting out more & more.
Drs are beginning to cover their behinds, & parts of records are going ‘ walkabout ‘ if you know what I mean. It is something I would advise doing sooner rather than later if you were considering it I also found so many mistakes in mine & I also found out I had 3 misdiagnosed conditions.
On MRI I had hypertensive lesions many floxed people have these, often indicative of neurodegenerative conditions , but we generally don’t actually have them
I have just been diagnosed with glaucoma & since my most damaging floxing I have also had one pair of glasses after another I think I keep the visual aid industry afloat lol .
Yes I had the dreaded head / eye pressure & now I have more floaters than eye &
I have still even though floxed 7 times improved immensely from where I was originally I am just grateful to still be here to be honest. .
Lee
8 years ago
I know this is kinda TMI, but did anyone exprience white stuff in your urine and having to go alot as a side effect to FQs. Ive been check for UTi but negtive.
Lee
8 years ago
Thanks guys, Im a newly Floxed, so I freak out everytime something new shows up. Ive had so many things happen. I been praying for God to help through this because it horrible and I have two sweet little girls to care for.
Fellow Floxies … first of all, I am so grateful to have found this site, since it took me more than a year to realize what had happened to me, and it was indeed very scary. Now that I know we have been poisoned, I have direction to go toward healing.
Someone mentioned the benefits of being out in nature, and it reminded me of a process recommended by Dr. Mercola in one of his columns: Grounding or Earthing. Essentially, he says we are disconnected from the healing energies of the earth because we cut off the electrical flow from the ground with rubber-soled shoes and non-conductive walking surfaces. He has written several columns on the subject, but here are links to a couple of them:
articles.mercola.com/…/why-does-walking-barefoot-on-the-earth-make-you- feel-better.aspx
articles.mercola.com/sites/articles/archive/…/grounding-earthing.aspx
If the links don’t work, go to his website and put “grounding” in Search. http://www.mercola.com/
Lee
8 years ago
I am 4 mouths out and I missed so much with my girls. Im curretly still having increased heart rate, shaking, feels like im rocking. twiching all kinds of body pain.
Stephanie
8 years ago
Does anyone know if drinking water with grape fruit cucumber and lemon is helpful. I drink it and I can’t tell if it’s hurting me or not.
Agata
8 years ago
Hey everyone
Does anybody know if cigarets also have fluor?
Ann
8 years ago
Im so mad and angry and Hurt. I have been seeing so many doctors this last months. I know antibiotics is neurotoxic to The brain, but all The doctors say this is all in my head. Today when i talked to The doctor in the telephone, she screamed at me and said that this is just mentally, nothing else, and that she is going to give me antidepressants . Im so sad they dont belive me 🙁 i was healthy before this. I really hate doctors now, and im never going to trust one Again, thats for sure.
Bruce Brannan
8 years ago
I am going to talk to doctor about a hernia repair which is supposed to be out-patient surgery. I am 6 months out from levaquin flox. I am allergic to penicillin. What are my options for antibiotics and any suggestions I might go over with the doctor about surgery.
Ann
8 years ago
The same with me I.V levaquin last march along with 40 mg. Prednisone for wk sent home, a wk later. I collapsed on step rhe day i came home, when my leg snapped and buckled. Was on pills of lev. for another wk and the prednisone for 4 more mths. 6 specialists passing me from one to the other.
Deborah
8 years ago
Lisa, do you know are cephalosporins & zpacks safe for UTI’s?
Thx,
Deb
joanneg
8 years ago
Hi everybody, I now know for sure my stomach is what’s causing all my brain issues. I will get some relief when I do the things to heal Leaky Gut, but it’s always right there under the surface. And the diet and supplements to heal leaky gut are too restrictive for me, so I always fail. Anyhow I read a promising article on healing Leaky Gut with Colostrum http://www.icnr.org/index.html I started it 2 days ago and I definitely feel it’s helping, but only time will tell. I’ll update in a week.
Jason if you or anybody has knowledge of Colostrum healing Leaky Gut I would love to hear what you know.
Ann, my heart goes out to you (and all of us) you sound exactly how I was 20 months ago when this all started. I did try Valuim for the crippling mental part of this, and it helped for about 2 months, then turned toxic on me I think it’s called Paradoxical Effect – It did the opposite of what its supposed to do. I was racing out of my mind, so I had to stop, but the withdrawal process was horrific. I truly don’t know how I survived. So I would not advise you to try them.
But I do advise you to do everything you can to heal your Gut whether you think it’s bad or not. Because I didn’t think mine was bad in the beginning so I never heeded this advise and ate what I wanted ect. Now its the most crippling part of my sickness. It effects my sleep with insomnia and nightmares, racing brain, shaking, feeling like I’m dying every day absolutely unbearable. Please heal your gut and keep it healed is my best advice to you. Good luck, I will be praying for you 🙂
Linda
8 years ago
For those of you dealing with pain issues, there is a free webinar tomorrow that I saw posted on facebook (how to deal with pain naturally). To sign up here is the link http://app.webinarjam.net/register/19106/74a1630768
Ddborah
8 years ago
Thanks to everyone for your post/messages! Really am grateful to share experiences to try and help each other. I’m having sporadic heel (Achilles tendon) pain. Since it comes and goes, not sure if this is how it starts. Trying to not let it consume me. Wondered if any others have experienced, and is this how it starts. Really afraid of this!! When your walking/mobility is threatened it’s serious! The PN is bad enough….
Thx,
Deb
joanneg
8 years ago
Hi again Deb, i just realized I didn’t answer your question. My adverse reactions started with my brain and central nervous system issues, then stomach, and months later the joints. I was really afraid in the beginning and refused to believe that this was really happening to me, so I didn’t take magnesium or do any of the other things people suggested. I just thought surely it will eventually go away like any other sickness. But unfortunately it didn’t. And now in hindsight I wish I would of started magnesium and probiotics as soon as my symptoms started. I waited months, until my joints went.
Anyhow, are you doing magnesium, probiotics or anything to help ?
joanneg
8 years ago
Hi EVERYONE, I just had to post today because I feel the best I’ve felt since this whole nightmare started! Today is my 3rd day on the Colostrum, I noticed help on the first and second day, though very minimal, but today is just amazing !!!! My brain isn’t jittery, racing, and on the verge of breaking down. Also, my stomach isn’t wrenching, and even my joints are sooo much better. Not only that, my mind feels bright and happy. It took that ugly depression and doom and gloom away. And I know it’s the Colostrum because I stopped everything else. If this continues, I BELIEVE I’VE FOUND MY CURE!!!
I also know it’s waaay to soon to know because I’ve found other things that helped me tremendously for a few days then stopped working or even made me worse. But I just get so excited if I find something-anything that helps this ridiculous torture. At 20 months out, if you told me cat turds would help I would gladly chow down on them! Yea that’s disgusting, but i’s also the truth of how desperate you get for something to help.
I will keep everyone posted.
dan
8 years ago
joanneg, what brand of colostrom are you using? dan.
joanneg
8 years ago
Ann, PLEASE read my posts above this on Colostrum, and there’s a post with a link to the site. Please read it, watch the video, and order some it is helping me TREMENDOUSLY!
And no I haven’t had much improvement since it all started. I do get a lot of relief in my joints with magnesium oil spray.But my brain has been in a state of psychosis, manic, racing, shaking, jittering, can’t think, follow good in conversations, fog Just very minimal relief with magnesium which I was always grateful for, but I’ve been hanging on a thread this whole time just waiting for wave after wave of totally unbearable brain and stomach symptoms. I truly don’t know how I survived. I’ve prayed through this entire time for God to heal me or lead me to my help, and I believe that this Colostrum is my help. I have never gotten this much better the entire time I’ve been sick. So, please go back and read through my posts just above this. My God help us ALL find our healing from this terrible affliction.
Mark S
8 years ago
Has anyone experienced cracking/grinding of your knees and have seen improvement?
LOL i am so floxiefog brained, I remember now it was Flagyl that you said.
Have you thought of getting hold of your records at all ? I still think it would be worth your while to do so. It is very easy to forget the drugs you are prescribed & often FQs can be prescribed prophylactically before operations & sometimes this can be just one dose & you would not know a thing thing about that it is usually done whilst you are under.
The reason I say this is because the mechanism of damage due to FQs is completely unique & also because records can tell you an awful lot & clear a up a lot of mysteries, they are also handy re any proof you need & I have noticed having been around a while that people are mentioning more & more that parts of their records are missing when they get hold of them. As word is getting out more & more.
Drs are beginning to cover their behinds, & parts of records are going ‘ walkabout ‘ if you know what I mean. It is something I would advise doing sooner rather than later if you were considering it I also found so many mistakes in mine & I also found out I had 3 misdiagnosed conditions.
On MRI I had hypertensive lesions many floxed people have these, often indicative of neurodegenerative conditions , but we generally don’t actually have them
I have just been diagnosed with glaucoma & since my most damaging floxing I have also had one pair of glasses after another I think I keep the visual aid industry afloat lol .
Yes I had the dreaded head / eye pressure & now I have more floaters than eye &
I have still even though floxed 7 times improved immensely from where I was originally I am just grateful to still be here to be honest. .
I know this is kinda TMI, but did anyone exprience white stuff in your urine and having to go alot as a side effect to FQs. Ive been check for UTi but negtive.
Thanks guys, Im a newly Floxed, so I freak out everytime something new shows up. Ive had so many things happen. I been praying for God to help through this because it horrible and I have two sweet little girls to care for.
Fellow Floxies … first of all, I am so grateful to have found this site, since it took me more than a year to realize what had happened to me, and it was indeed very scary. Now that I know we have been poisoned, I have direction to go toward healing.
Someone mentioned the benefits of being out in nature, and it reminded me of a process recommended by Dr. Mercola in one of his columns: Grounding or Earthing. Essentially, he says we are disconnected from the healing energies of the earth because we cut off the electrical flow from the ground with rubber-soled shoes and non-conductive walking surfaces. He has written several columns on the subject, but here are links to a couple of them:
articles.mercola.com/…/why-does-walking-barefoot-on-the-earth-make-you- feel-better.aspx
articles.mercola.com/sites/articles/archive/…/grounding-earthing.aspx
If the links don’t work, go to his website and put “grounding” in Search.
http://www.mercola.com/
I am 4 mouths out and I missed so much with my girls. Im curretly still having increased heart rate, shaking, feels like im rocking. twiching all kinds of body pain.
Does anyone know if drinking water with grape fruit cucumber and lemon is helpful. I drink it and I can’t tell if it’s hurting me or not.
Hey everyone
Does anybody know if cigarets also have fluor?
Im so mad and angry and Hurt. I have been seeing so many doctors this last months. I know antibiotics is neurotoxic to The brain, but all The doctors say this is all in my head. Today when i talked to The doctor in the telephone, she screamed at me and said that this is just mentally, nothing else, and that she is going to give me antidepressants . Im so sad they dont belive me 🙁 i was healthy before this. I really hate doctors now, and im never going to trust one Again, thats for sure.
I am going to talk to doctor about a hernia repair which is supposed to be out-patient surgery. I am 6 months out from levaquin flox. I am allergic to penicillin. What are my options for antibiotics and any suggestions I might go over with the doctor about surgery.
The same with me I.V levaquin last march along with 40 mg. Prednisone for wk sent home, a wk later. I collapsed on step rhe day i came home, when my leg snapped and buckled. Was on pills of lev. for another wk and the prednisone for 4 more mths. 6 specialists passing me from one to the other.
Lisa, do you know are cephalosporins & zpacks safe for UTI’s?
Thx,
Deb
Hi everybody, I now know for sure my stomach is what’s causing all my brain issues. I will get some relief when I do the things to heal Leaky Gut, but it’s always right there under the surface. And the diet and supplements to heal leaky gut are too restrictive for me, so I always fail. Anyhow I read a promising article on healing Leaky Gut with Colostrum http://www.icnr.org/index.html I started it 2 days ago and I definitely feel it’s helping, but only time will tell. I’ll update in a week.
Jason if you or anybody has knowledge of Colostrum healing Leaky Gut I would love to hear what you know.
Ann, my heart goes out to you (and all of us) you sound exactly how I was 20 months ago when this all started. I did try Valuim for the crippling mental part of this, and it helped for about 2 months, then turned toxic on me I think it’s called Paradoxical Effect – It did the opposite of what its supposed to do. I was racing out of my mind, so I had to stop, but the withdrawal process was horrific. I truly don’t know how I survived. So I would not advise you to try them.
But I do advise you to do everything you can to heal your Gut whether you think it’s bad or not. Because I didn’t think mine was bad in the beginning so I never heeded this advise and ate what I wanted ect. Now its the most crippling part of my sickness. It effects my sleep with insomnia and nightmares, racing brain, shaking, feeling like I’m dying every day absolutely unbearable. Please heal your gut and keep it healed is my best advice to you. Good luck, I will be praying for you 🙂
For those of you dealing with pain issues, there is a free webinar tomorrow that I saw posted on facebook (how to deal with pain naturally). To sign up here is the link http://app.webinarjam.net/register/19106/74a1630768
Thanks to everyone for your post/messages! Really am grateful to share experiences to try and help each other. I’m having sporadic heel (Achilles tendon) pain. Since it comes and goes, not sure if this is how it starts. Trying to not let it consume me. Wondered if any others have experienced, and is this how it starts. Really afraid of this!! When your walking/mobility is threatened it’s serious! The PN is bad enough….
Thx,
Deb
Hi again Deb, i just realized I didn’t answer your question. My adverse reactions started with my brain and central nervous system issues, then stomach, and months later the joints. I was really afraid in the beginning and refused to believe that this was really happening to me, so I didn’t take magnesium or do any of the other things people suggested. I just thought surely it will eventually go away like any other sickness. But unfortunately it didn’t. And now in hindsight I wish I would of started magnesium and probiotics as soon as my symptoms started. I waited months, until my joints went.
Anyhow, are you doing magnesium, probiotics or anything to help ?
Hi EVERYONE, I just had to post today because I feel the best I’ve felt since this whole nightmare started! Today is my 3rd day on the Colostrum, I noticed help on the first and second day, though very minimal, but today is just amazing !!!! My brain isn’t jittery, racing, and on the verge of breaking down. Also, my stomach isn’t wrenching, and even my joints are sooo much better. Not only that, my mind feels bright and happy. It took that ugly depression and doom and gloom away. And I know it’s the Colostrum because I stopped everything else. If this continues, I BELIEVE I’VE FOUND MY CURE!!!
I also know it’s waaay to soon to know because I’ve found other things that helped me tremendously for a few days then stopped working or even made me worse. But I just get so excited if I find something-anything that helps this ridiculous torture. At 20 months out, if you told me cat turds would help I would gladly chow down on them! Yea that’s disgusting, but i’s also the truth of how desperate you get for something to help.
I will keep everyone posted.
joanneg, what brand of colostrom are you using? dan.
Ann, PLEASE read my posts above this on Colostrum, and there’s a post with a link to the site. Please read it, watch the video, and order some it is helping me TREMENDOUSLY!
And no I haven’t had much improvement since it all started. I do get a lot of relief in my joints with magnesium oil spray.But my brain has been in a state of psychosis, manic, racing, shaking, jittering, can’t think, follow good in conversations, fog Just very minimal relief with magnesium which I was always grateful for, but I’ve been hanging on a thread this whole time just waiting for wave after wave of totally unbearable brain and stomach symptoms. I truly don’t know how I survived. I’ve prayed through this entire time for God to heal me or lead me to my help, and I believe that this Colostrum is my help. I have never gotten this much better the entire time I’ve been sick. So, please go back and read through my posts just above this. My God help us ALL find our healing from this terrible affliction.
Has anyone experienced cracking/grinding of your knees and have seen improvement?
joanegg, thank you!!