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Nick
10 years ago
hello everyone on here. How is everyone doing? I just wanted to tell everyone here suffering and worrying about their future, dealing with pain and mental anguish and fear that you are not alone. Do not be afraid you do not walk alone.
Jenny
10 years ago
Lisa:
Thank you so much. And that story you recommended helped a lot!
Bo:
My right foot X-Ray had some abnormalities, not sure where yet (tendons, bone etc). They said “bone abnormalities” Now I have an appointment for that. Do you know what that means? Blood and Neuro tests haven’t came back yet.
My sleeping schedule is way off so I stay up half the night in pain, If I get up to use the bathroom I feel like I had a day of athletic activities. When I wake up I feel great. Throughout the day I have minor pins and needle feelings in my legs and feet. Then when it’s really late my whole body acts up again. Does this happen to many people? Or is this considerd mild. The pins and needle thing is not diminishing and is worse at night.
I have been drinking Caffine throughout this last week and eating a lot of candy which makes me wonder. I’m buying supplements and healthy food tomorrow.
Again I’m floxed one month in. Many advice?
Jenny
10 years ago
Also, For two weeks I was using muscle rub at night for the muscle aches. It helped me fall asleep and felt better for the night, but then I read on what it could do if I use too much and I was drenching myself In it so I stopped. Can I continue rubbing it on?
Jenny
10 years ago
Lillybet:
I feel your pain. I’m in my prime 20s feeling robbed of my body once healthy body. I keep worrying I’m going to snap a tendon because of all the muscle spasms and burning in my joints. And then there’s worrying about my future. I’m planing on doing light excersises, Epsom baths twice a week for 20 minutes, taking magniseum citrate(only the 250 knowing females can tolerate 350 a day) vitamin b12 and D, buying all of the food I need for a detox diet, drinking water all day long, getting some sun (vitamin C), wearing comfortable shoes, drinking a glass of cranberry juice and milk daily, sleeping everyday at the same time, resting when you have to (although it’s been one year for you you need to take it easy). I’ve done all the researching I can about fluorine poisoning, even reading about how it affected the test lab rats and how long it took for the rats with the adverse reaction to recover. And this site is helping me tons from what I read we should recover.
I’m really sorry I haven’t been able to reply to the fifteen messgaes towhich i want to and/or should reply. The answers are all written in my head, but I just can’t use the omputer at the moment. (It’s a laptop and no separate scren.) Also, I really need glasses, but in the whole four-an-a-half years since FQ, I’ve never managed to make and keep the appointments to have proper glasses, and have been hurting my eyes with those plastic 2€ drugstore ones – even worse now I’ve sat on them! So, as soon as I put on the glasses or look at the computer, let alone both at once, my eyes and head hurt again an I feel sick and dizzy. I’ll find a way to reply hwne I can.
jd
10 years ago
I’ve noticed my skin becoming much thinner, looser and less elastic (and dryer). does anyone know whether this reverses over time? of course as we age this is going to happen, but I think this is different.
jeremy
10 years ago
7 months today and counting, I have seen some improvement and am off crutches around the house and office. Pain is still really high but getting better slowly. Hopeful for the future but being an athlete I have a fair amount of depression. Neuropathy pain is lower. Swimming helps.
Paris
10 years ago
Does the adverse reaction effect your immune system? If someone’s sick in my house is it easier to catch it due to this problem ?
Just a cup of slightly more red wine on a Saturday family dinner brought back my already-healed-Knee pain, how nice!!
Pain for 3 days already. when i place my hand over my knee, it felt like it’s having fever?! perhaps it’s the heat pad i placed over the day before making it more inflamed.
seems like our body is never the same after FQ. prone to re-injury easier. i wish my knee pain resolve soon. that feeling of it “coming back” while i have forgotten the pain send shiver.
Diego
10 years ago
I have had the observation in my body in regards to not getting sick. I rarely got sick from a cold or flu bofre being floxed. I too believe the body goes back to normal. I could not tolerate any cereal in the morning the first two years after being floxed and now this past year, I can eat cereal again with almond milk. Also, some dessert sometimes!!! Hang in there, it will get better.
Nick
10 years ago
I know I read this a while ago. My heels are crappy. Every step is achy not the Achilles but off to the side and a bit lower. Padded sneakers feel better though. You guys had this. I remember destruida talking about it
Angela
10 years ago
Hello everyone, I was hoping someone could help me. I’m thankfully physically better enough that I agreed to go on a 4day trek to Machu Picchu. We’ll arrive in Cusco to acclimate for three days before hand. My biggest worry is how my body will acclimate post floxing. I’ve been recommended to take Diamox before the trip to speed up the process but I’m still very hesitant to take any form of medication since I’ve had a history of relapses. Has anyone had any problems 1) acclimating at high elevations or 2) having really bad side effects to Diamox post floxing?? Any thoughts would be helpful!!
Hi
I am pretty sure I am suffering adverse effects from taking a fluoroquinolone antibiotic. I took Ciprofloxacin 500mg twice daily for two weeks in November 2013 for a bad bout of tonsillitis/pharyngitis and was given diclofenac and some kind of steroid nasal spray (can’t remember the name) at the same time. Towards the end of the second week, I started to get really bad pain in my neck and shoulders but when I went back to the doctor to check if the infection had gone I mentioned this and she said it was ‘probably just stress’. Since then, the pain has kept getting worse and now I also have muscle weakness in my arms and legs, random twitches and spasms all over my body, strange feelings of something crawling on my skin, ‘electric shock’ type pains up the side of my face, pins and needles in my feet (which also ‘fall asleep’ very easily), constant fatigue, and a general feeling of not being ‘connected’ properly to my body. I also feel like I am on the verge of tears a lot of the time and would burst out crying it someone just looked at me the wrong way. Despite all this, I have been telling myself that it is not due to the Cipro because I am not experiencing any problems with my Achilles tendon and my symptoms are not nearly as bad as those described on this and other forums. Do you think I have been floxed?
Amy
10 years ago
How long did some of your digestion issues last? Anything I eat I have diarrhea. I don’t know if it’s anxiety or a side effect. This happened once before when I was really anxious a few years ago. Any suggestions on how to help this??
Amy
10 years ago
Thanks Michael! Did you go through this? How long did it take your anxiety to calm down?
I’m feeling a little mushy at the moment. I want to thank all of you for your kind, thoughtful, insightful, inspirational comments. You are all very much appreciated! The fact that you are willing to take the time to answer the questions of fellow Floxies, to reassure them, to help them and to let them know the lessons that you have learned – is amazing. It’s truly wonderful and it’s beautiful and I really appreciate you all! Thank you!
Jenny
10 years ago
Lisa:
I am thankful too for this site it has helped me so much through these last two months. It’s like part of my recovery process. I cried a lot. Depression and cronic fatigue – gone. I’ve been finding myself happier when I awake and find myself with more energy. It makes me so happy. Now just waiting for nightly muscle cramps/nerve burning/dry eye to leave.
Hello again. I hope everyone is making some progress. As for me physically, my lower body is significantly better, but my upper body is slightly worse. I’ve been on a mental/emotional roller coaster though. One minute, hope and optimism and the next, despair. Seems like I have some anxiety now and I’m having trouble sleeping too. I may try some valerian and melatonin. 2 things that I look forward to are epsom salt baths and foam rolling (also playing with my cat at my parents’ place – vets give animals fluoroquinolones too, so don’t let them do it to your pets!). Foam rolling really makes my muscles feel good and a lot looser.
I wonder if my symptoms could have been triggered by a single advil I took a few days before I went running. Unfortunately after I hurt my knee I took a ton of advil and my symptoms spread from there.
I’m not as high on PRP as I was before because I want my body to recover to a certain extent on its own first. Once I resume physical activity I will consider PRP if I run into joint or tendon problems.
B
10 years ago
Hi
awkward question: How to treat menstrual pain without taking NSAIDs ?
I know some girl who has ” pain + muscle twitching” probably related to FQ & NSAIDs, while she has to find a way to deal with menstrual pain.
thanks
Bo
Crystal
10 years ago
Did anyone else notice that they had problems with facial recognition just after being floxed? I still run into this problem, but much less. Every stranger looked like someone I knew, yet I had more trouble recognizing people I actually DID know.
hello everyone on here. How is everyone doing? I just wanted to tell everyone here suffering and worrying about their future, dealing with pain and mental anguish and fear that you are not alone. Do not be afraid you do not walk alone.
Lisa:
Thank you so much. And that story you recommended helped a lot!
Bo:
My right foot X-Ray had some abnormalities, not sure where yet (tendons, bone etc). They said “bone abnormalities” Now I have an appointment for that. Do you know what that means? Blood and Neuro tests haven’t came back yet.
My sleeping schedule is way off so I stay up half the night in pain, If I get up to use the bathroom I feel like I had a day of athletic activities. When I wake up I feel great. Throughout the day I have minor pins and needle feelings in my legs and feet. Then when it’s really late my whole body acts up again. Does this happen to many people? Or is this considerd mild. The pins and needle thing is not diminishing and is worse at night.
I have been drinking Caffine throughout this last week and eating a lot of candy which makes me wonder. I’m buying supplements and healthy food tomorrow.
Again I’m floxed one month in. Many advice?
Also, For two weeks I was using muscle rub at night for the muscle aches. It helped me fall asleep and felt better for the night, but then I read on what it could do if I use too much and I was drenching myself In it so I stopped. Can I continue rubbing it on?
Lillybet:
I feel your pain. I’m in my prime 20s feeling robbed of my body once healthy body. I keep worrying I’m going to snap a tendon because of all the muscle spasms and burning in my joints. And then there’s worrying about my future. I’m planing on doing light excersises, Epsom baths twice a week for 20 minutes, taking magniseum citrate(only the 250 knowing females can tolerate 350 a day) vitamin b12 and D, buying all of the food I need for a detox diet, drinking water all day long, getting some sun (vitamin C), wearing comfortable shoes, drinking a glass of cranberry juice and milk daily, sleeping everyday at the same time, resting when you have to (although it’s been one year for you you need to take it easy). I’ve done all the researching I can about fluorine poisoning, even reading about how it affected the test lab rats and how long it took for the rats with the adverse reaction to recover. And this site is helping me tons from what I read we should recover.
I’m really sorry I haven’t been able to reply to the fifteen messgaes towhich i want to and/or should reply. The answers are all written in my head, but I just can’t use the omputer at the moment. (It’s a laptop and no separate scren.) Also, I really need glasses, but in the whole four-an-a-half years since FQ, I’ve never managed to make and keep the appointments to have proper glasses, and have been hurting my eyes with those plastic 2€ drugstore ones – even worse now I’ve sat on them! So, as soon as I put on the glasses or look at the computer, let alone both at once, my eyes and head hurt again an I feel sick and dizzy. I’ll find a way to reply hwne I can.
I’ve noticed my skin becoming much thinner, looser and less elastic (and dryer). does anyone know whether this reverses over time? of course as we age this is going to happen, but I think this is different.
7 months today and counting, I have seen some improvement and am off crutches around the house and office. Pain is still really high but getting better slowly. Hopeful for the future but being an athlete I have a fair amount of depression. Neuropathy pain is lower. Swimming helps.
Does the adverse reaction effect your immune system? If someone’s sick in my house is it easier to catch it due to this problem ?
the root of all evil, FQ
Just a cup of slightly more red wine on a Saturday family dinner brought back my already-healed-Knee pain, how nice!!
Pain for 3 days already. when i place my hand over my knee, it felt like it’s having fever?! perhaps it’s the heat pad i placed over the day before making it more inflamed.
seems like our body is never the same after FQ. prone to re-injury easier. i wish my knee pain resolve soon. that feeling of it “coming back” while i have forgotten the pain send shiver.
I have had the observation in my body in regards to not getting sick. I rarely got sick from a cold or flu bofre being floxed. I too believe the body goes back to normal. I could not tolerate any cereal in the morning the first two years after being floxed and now this past year, I can eat cereal again with almond milk. Also, some dessert sometimes!!! Hang in there, it will get better.
I know I read this a while ago. My heels are crappy. Every step is achy not the Achilles but off to the side and a bit lower. Padded sneakers feel better though. You guys had this. I remember destruida talking about it
Hello everyone, I was hoping someone could help me. I’m thankfully physically better enough that I agreed to go on a 4day trek to Machu Picchu. We’ll arrive in Cusco to acclimate for three days before hand. My biggest worry is how my body will acclimate post floxing. I’ve been recommended to take Diamox before the trip to speed up the process but I’m still very hesitant to take any form of medication since I’ve had a history of relapses. Has anyone had any problems 1) acclimating at high elevations or 2) having really bad side effects to Diamox post floxing?? Any thoughts would be helpful!!
Hi
I am pretty sure I am suffering adverse effects from taking a fluoroquinolone antibiotic. I took Ciprofloxacin 500mg twice daily for two weeks in November 2013 for a bad bout of tonsillitis/pharyngitis and was given diclofenac and some kind of steroid nasal spray (can’t remember the name) at the same time. Towards the end of the second week, I started to get really bad pain in my neck and shoulders but when I went back to the doctor to check if the infection had gone I mentioned this and she said it was ‘probably just stress’. Since then, the pain has kept getting worse and now I also have muscle weakness in my arms and legs, random twitches and spasms all over my body, strange feelings of something crawling on my skin, ‘electric shock’ type pains up the side of my face, pins and needles in my feet (which also ‘fall asleep’ very easily), constant fatigue, and a general feeling of not being ‘connected’ properly to my body. I also feel like I am on the verge of tears a lot of the time and would burst out crying it someone just looked at me the wrong way. Despite all this, I have been telling myself that it is not due to the Cipro because I am not experiencing any problems with my Achilles tendon and my symptoms are not nearly as bad as those described on this and other forums. Do you think I have been floxed?
How long did some of your digestion issues last? Anything I eat I have diarrhea. I don’t know if it’s anxiety or a side effect. This happened once before when I was really anxious a few years ago. Any suggestions on how to help this??
Thanks Michael! Did you go through this? How long did it take your anxiety to calm down?
I’m feeling a little mushy at the moment. I want to thank all of you for your kind, thoughtful, insightful, inspirational comments. You are all very much appreciated! The fact that you are willing to take the time to answer the questions of fellow Floxies, to reassure them, to help them and to let them know the lessons that you have learned – is amazing. It’s truly wonderful and it’s beautiful and I really appreciate you all! Thank you!
Lisa:
I am thankful too for this site it has helped me so much through these last two months. It’s like part of my recovery process. I cried a lot. Depression and cronic fatigue – gone. I’ve been finding myself happier when I awake and find myself with more energy. It makes me so happy. Now just waiting for nightly muscle cramps/nerve burning/dry eye to leave.
Hello again. I hope everyone is making some progress. As for me physically, my lower body is significantly better, but my upper body is slightly worse. I’ve been on a mental/emotional roller coaster though. One minute, hope and optimism and the next, despair. Seems like I have some anxiety now and I’m having trouble sleeping too. I may try some valerian and melatonin. 2 things that I look forward to are epsom salt baths and foam rolling (also playing with my cat at my parents’ place – vets give animals fluoroquinolones too, so don’t let them do it to your pets!). Foam rolling really makes my muscles feel good and a lot looser.
I wonder if my symptoms could have been triggered by a single advil I took a few days before I went running. Unfortunately after I hurt my knee I took a ton of advil and my symptoms spread from there.
I will post one more link about PRP because this one relates directly to fluoroquinolones. http://orthodoc.aaos.org/WilliamFBennettMD/PRP%20Protects%20Tenocytes%20from%20Adverse%20Side%20Effects.pdf
I’m not as high on PRP as I was before because I want my body to recover to a certain extent on its own first. Once I resume physical activity I will consider PRP if I run into joint or tendon problems.
Hi
awkward question: How to treat menstrual pain without taking NSAIDs ?
I know some girl who has ” pain + muscle twitching” probably related to FQ & NSAIDs, while she has to find a way to deal with menstrual pain.
thanks
Bo
Did anyone else notice that they had problems with facial recognition just after being floxed? I still run into this problem, but much less. Every stranger looked like someone I knew, yet I had more trouble recognizing people I actually DID know.