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Debs
8 years ago
Beyond Meds is a very good site for seekiing alternative treatment, there are many useful tips / information here on various subjects anxiety panic trauma insomnia etc. click on the links at the top of the page . I find this site very useful indeed myself .
Thank you so much for your reply. Are there any medical tests I should have done? My mother thinks acupuncture might help. May I hear your story?
Debs
8 years ago
I my experience it is time passing that will in the majority of people help a great deal with the insomnia issue , you are I see, very early indeed into your reaction Richard.
Debs
8 years ago
My story is a very long one more like war & peace lol .
I have been floxed 7 times myself with various FQs. acquired along the way 3 misdiagnoses & a lot of malpractice etc badly treated by allopathic medicine. I have done a lot of research into many things as a result over a long time. Floxing is extremely complicated, there are many things that can be tried, various approaches for the various symptoms which might help & I am sure others will chime in here with some tips for you.
there are many helpful comments on here if you look back through them, & also in the information on the right of the page, along with inspiring stories of people who feel they have recovered from this.
Although I have been around for a very long time I would never consider myself an expert on floxing, absolutely not it is very complicated
Having been around a while however I do have the benefit of being able to see the bigger picture in regards to our various symptoms & see patterns .
The majority of people who have been floxed in my experience & opinion, eventually do recover to the point where they are able to move on with their lives where this situation does not consume every waking moment & thought. Some will reach a point where they eventually feel completely recovered ( this I experienced after my first floxing after many years , & I also reached a point in a subsequent floxing where I felt around 80% recovered ). The biggest majority of recovered floxies I feel in my opinion & experience are those who eventually are again able to move on as above where this becomes just another bad life experience which can be consigned to memory, albeit with perhaps some lingering issues, perhaps a certain amount of exercise intolerance to various degrees , aches pains they did not have before , . that sort of thing.
This is not a short term situation for the majority unfortunately, where we are so used to becoming unwell then quickly recovering, say as with the flu, it can be very hard to get our heads around thinking in a different way , but if possible to do this can be very helpful to try to adjust thinking patterns to think of healing over a longer timeframe.
It can be helpful to see a neurologist, I personally feel, but one thing to always keep in mind when going down the testing route of any kind is that floxing mimics many other things, often CFS/ME Fibromyalgia etc & Drs are trained to match symptoms with known conditions.
FQ toxicity can even cause the markers for various autoimmune conditions to show up in the various tests used for diagnoses of these. what often happens in this case is that the markers will then be no longer detectable further out if the person is retested . Many of us are misdiagnosed with various conditions we do NOT actually have, so please just be a bit careful if you do go down the testing route, especially so whilst so early into your reaction.
It can be overwhelming as there is such a lot to learn , please do not panic about trying to find it all out at once, & if you start feeling overwhelmed with all the information it can help to take a break now & again, in fact I still do this myself .
I hope this is of some help .
jwinn
8 years ago
Has anyone heard from Joanne g? I know she was scheduled for surgery. Was hoping for an update by now. Sending prayers your way, Joanne g! HUGS!
Richard Pyne
8 years ago
Hi everyone, did anyone get bad leg pain a month or so after stopping their medication . My buttocks, hamstrings, calves are all really hurting. I am spasming /twitching when I try to go to sleep. I am so distressed I am sorry, I don’t know what to do. Can I take painkillers and or sleeping tablets. Did not sleep a wink last night after 6 hours the night before.
Richard Pyne
8 years ago
Possibly about to go into hospital for distress. What should I say to staff?
Stephanie
8 years ago
So I just got denied my long term disability thank goodness for my hr because they are collecting all the information to fight it. I have to apply for social security disability and feel hopeless like giving up. They ignored everything my ND said and found out the first neurologist lied and said I was okay. He saw me once gave me medication said it was the original medication. I don’t know how I am going to live I have cancelled my doctors appointments except for the new neurologist to hope that he can be the voice of reason. I feel so lost so hopeless. I keep getting doors slammed in my face when non of this was my fault. I keep just falling I’m scared I’m going to lose my boyfriend and be homeless. I don’t know what I’m going to do. I have somethings I can sell and I feel like giving up. This is too much I told my case worker what am I supposed to do till the appeal? I told her I can’t work she said she knows but that’s what the counsel concluded. I told her I won’t be able to live or go to the dr that they have signed a death warrant for me. She just listened. I said I know this is being recorded and that prudential just killed me. You killed me. I had to fight the pain to fill out the social security forms I just feel like going some where with a sign that says that prudential and big pharma killed me. I have tried to stay positive but this is too much for me I’ve worked since I was 15. I told my case worker I’m not lazy I have worked my whole life. I don’t know what’s going to happen to me. I don’t understand this. My friend said he was denied when he had cancer. These pacs are evil. They are bent on killing people. Forcing people to become homeless I have enough money to pay my half of rent and eat chili from trader joes for a month. Beyond that, I’m up shits creek.
Has anyone tested high for vitamin b12? I’m not supplementing, yet my b12 levels were super elevated, and it’s not good. I googled it and causes for elevated levels of b12 without supplementation is liver /kidney failure, or leukemia. I’m freaking out so bad:(
It’s a lot to read, but you can go half way down the page to the case study, which is pretty interesting.
Let this ease your mind, and it also makes sense for floxies.
Linda
8 years ago
Can you all hear me screaming from where you are???? More insult to injury. I went to get another copy of the office visit from the neurologist to possibly use in a law suit. Now, this was the nitwit who, in his notes, referred to me as “hysterical” and “delusional” (3 times) –only at the time I got them, around a year ago, I was so out of it, I don’t know what I did with them (it is possible I tore them up in a rage.) Anyhow, I went back to get another copy and I was handed the pages with all the statistical stuff, but no notes. I said I needed the notes. I was refused. I went home. I called the next day and said I had a right to my medical records. They kept saying “you already got a copy.” I offered to pay .25 a page, which I think is the rate in CA. Finally, after several calls, they said it had to be in writing and with a picture ID (interestingly they never asked for the ID when they handed me the other pages). I went BACK to the office, showed my ID, handed them a letter and SASE and said I would file a complaint if I didn’t receive within 15 days (again CA law.) Today I received a certified letter. I thought it was my records. Nope, it was two pages of lies about me harassing office staff, and threatening me with law enforcement, if I called or came by again, and telling me if I wanted the records to mail a request and a check for $35!!! Then he added at the end that my condition had nothing to do with Cipro, and a lawsuit would be frivilous!!!! Well, thank you for your legal opinion, jerk. Just as valuable as your medical one. GRRRRRR. I filed a complaint with the CA medical board.
Mark S
8 years ago
Everyone here should be on a candida protocol and completely eliminated fruits, wheat, and dairy. Kill the candida, seal your gut, and things will come about in order. That’s what I am doing right now. I cheated this weekend and drank alcohol/ate dairy. You know what? It flared up my cipro symptoms full force. Knee joints started cracking like crazy, achilles heal flare, etc. I’m convinced that we are all suffering an overgrowth of yeast and the faster we can get that under control, the healthier we will be.
Terry
Do you think your b12 levels were really high because you were deficient? I read that this can happen, especially if glutathione is low, your body cannot absorb b12 efficiently so basically it causes those levels to sky rocket. That’s why it makes sense to me why those levels went down after you supplemented. I have all the symptoms b12 deficiency:( am starting injections tmrw.
Richard Pyne
8 years ago
Is anyone in the UK on this site?
Richard Pyne
8 years ago
Thank you
Mark S
8 years ago
To further my point on Candida, I believe this is a HUGE reason why Floxies are magnesium deficient and STAY THAT WAY until we get rid of it. Candida yeast interferes with the way that magnesium is taken up in your intestine, which causes a bevy of physical problems many of us experience. Freakin fungus, man -__-
Beyond Meds is a very good site for seekiing alternative treatment, there are many useful tips / information here on various subjects anxiety panic trauma insomnia etc. click on the links at the top of the page . I find this site very useful indeed myself .
http://beyondmeds.com/2013/02/05/help-for-insomnia/
Thank you so much for your reply. Are there any medical tests I should have done? My mother thinks acupuncture might help. May I hear your story?
I my experience it is time passing that will in the majority of people help a great deal with the insomnia issue , you are I see, very early indeed into your reaction Richard.
My story is a very long one more like war & peace lol .
I have been floxed 7 times myself with various FQs. acquired along the way 3 misdiagnoses & a lot of malpractice etc badly treated by allopathic medicine. I have done a lot of research into many things as a result over a long time. Floxing is extremely complicated, there are many things that can be tried, various approaches for the various symptoms which might help & I am sure others will chime in here with some tips for you.
there are many helpful comments on here if you look back through them, & also in the information on the right of the page, along with inspiring stories of people who feel they have recovered from this.
Although I have been around for a very long time I would never consider myself an expert on floxing, absolutely not it is very complicated
Having been around a while however I do have the benefit of being able to see the bigger picture in regards to our various symptoms & see patterns .
The majority of people who have been floxed in my experience & opinion, eventually do recover to the point where they are able to move on with their lives where this situation does not consume every waking moment & thought. Some will reach a point where they eventually feel completely recovered ( this I experienced after my first floxing after many years , & I also reached a point in a subsequent floxing where I felt around 80% recovered ). The biggest majority of recovered floxies I feel in my opinion & experience are those who eventually are again able to move on as above where this becomes just another bad life experience which can be consigned to memory, albeit with perhaps some lingering issues, perhaps a certain amount of exercise intolerance to various degrees , aches pains they did not have before , . that sort of thing.
This is not a short term situation for the majority unfortunately, where we are so used to becoming unwell then quickly recovering, say as with the flu, it can be very hard to get our heads around thinking in a different way , but if possible to do this can be very helpful to try to adjust thinking patterns to think of healing over a longer timeframe.
It can be helpful to see a neurologist, I personally feel, but one thing to always keep in mind when going down the testing route of any kind is that floxing mimics many other things, often CFS/ME Fibromyalgia etc & Drs are trained to match symptoms with known conditions.
FQ toxicity can even cause the markers for various autoimmune conditions to show up in the various tests used for diagnoses of these. what often happens in this case is that the markers will then be no longer detectable further out if the person is retested . Many of us are misdiagnosed with various conditions we do NOT actually have, so please just be a bit careful if you do go down the testing route, especially so whilst so early into your reaction.
It can be overwhelming as there is such a lot to learn , please do not panic about trying to find it all out at once, & if you start feeling overwhelmed with all the information it can help to take a break now & again, in fact I still do this myself .
I hope this is of some help .
Has anyone heard from Joanne g? I know she was scheduled for surgery. Was hoping for an update by now. Sending prayers your way, Joanne g! HUGS!
Hi everyone, did anyone get bad leg pain a month or so after stopping their medication . My buttocks, hamstrings, calves are all really hurting. I am spasming /twitching when I try to go to sleep. I am so distressed I am sorry, I don’t know what to do. Can I take painkillers and or sleeping tablets. Did not sleep a wink last night after 6 hours the night before.
Possibly about to go into hospital for distress. What should I say to staff?
So I just got denied my long term disability thank goodness for my hr because they are collecting all the information to fight it. I have to apply for social security disability and feel hopeless like giving up. They ignored everything my ND said and found out the first neurologist lied and said I was okay. He saw me once gave me medication said it was the original medication. I don’t know how I am going to live I have cancelled my doctors appointments except for the new neurologist to hope that he can be the voice of reason. I feel so lost so hopeless. I keep getting doors slammed in my face when non of this was my fault. I keep just falling I’m scared I’m going to lose my boyfriend and be homeless. I don’t know what I’m going to do. I have somethings I can sell and I feel like giving up. This is too much I told my case worker what am I supposed to do till the appeal? I told her I can’t work she said she knows but that’s what the counsel concluded. I told her I won’t be able to live or go to the dr that they have signed a death warrant for me. She just listened. I said I know this is being recorded and that prudential just killed me. You killed me. I had to fight the pain to fill out the social security forms I just feel like going some where with a sign that says that prudential and big pharma killed me. I have tried to stay positive but this is too much for me I’ve worked since I was 15. I told my case worker I’m not lazy I have worked my whole life. I don’t know what’s going to happen to me. I don’t understand this. My friend said he was denied when he had cancer. These pacs are evil. They are bent on killing people. Forcing people to become homeless I have enough money to pay my half of rent and eat chili from trader joes for a month. Beyond that, I’m up shits creek.
Sorry. Damn it. Not sooty
Has anyone tested high for vitamin b12? I’m not supplementing, yet my b12 levels were super elevated, and it’s not good. I googled it and causes for elevated levels of b12 without supplementation is liver /kidney failure, or leukemia. I’m freaking out so bad:(
Thanks Terry
How far out are you ? I’m 15 or 16 months
Hi Terry,
I’m 21 months out and my b12 is high, it’s 998, and i don’t supplement with it??
Terry and joanneg,
I googled more into it and if glutathione levels are low, it can definitely elevate b12.
Where is Jason? He knows all about this stuff 🙂
Terry,
I found this site http://www.yourhealthbase.com/B12overload.htm which talks about stomach issues causing high b12 levels. And FQ’s do mess up our stomachs.
It’s a lot to read, but you can go half way down the page to the case study, which is pretty interesting.
Let this ease your mind, and it also makes sense for floxies.
Can you all hear me screaming from where you are???? More insult to injury. I went to get another copy of the office visit from the neurologist to possibly use in a law suit. Now, this was the nitwit who, in his notes, referred to me as “hysterical” and “delusional” (3 times) –only at the time I got them, around a year ago, I was so out of it, I don’t know what I did with them (it is possible I tore them up in a rage.) Anyhow, I went back to get another copy and I was handed the pages with all the statistical stuff, but no notes. I said I needed the notes. I was refused. I went home. I called the next day and said I had a right to my medical records. They kept saying “you already got a copy.” I offered to pay .25 a page, which I think is the rate in CA. Finally, after several calls, they said it had to be in writing and with a picture ID (interestingly they never asked for the ID when they handed me the other pages). I went BACK to the office, showed my ID, handed them a letter and SASE and said I would file a complaint if I didn’t receive within 15 days (again CA law.) Today I received a certified letter. I thought it was my records. Nope, it was two pages of lies about me harassing office staff, and threatening me with law enforcement, if I called or came by again, and telling me if I wanted the records to mail a request and a check for $35!!! Then he added at the end that my condition had nothing to do with Cipro, and a lawsuit would be frivilous!!!! Well, thank you for your legal opinion, jerk. Just as valuable as your medical one. GRRRRRR. I filed a complaint with the CA medical board.
Everyone here should be on a candida protocol and completely eliminated fruits, wheat, and dairy. Kill the candida, seal your gut, and things will come about in order. That’s what I am doing right now. I cheated this weekend and drank alcohol/ate dairy. You know what? It flared up my cipro symptoms full force. Knee joints started cracking like crazy, achilles heal flare, etc. I’m convinced that we are all suffering an overgrowth of yeast and the faster we can get that under control, the healthier we will be.
Terry
Do you think your b12 levels were really high because you were deficient? I read that this can happen, especially if glutathione is low, your body cannot absorb b12 efficiently so basically it causes those levels to sky rocket. That’s why it makes sense to me why those levels went down after you supplemented. I have all the symptoms b12 deficiency:( am starting injections tmrw.
Is anyone in the UK on this site?
Thank you
To further my point on Candida, I believe this is a HUGE reason why Floxies are magnesium deficient and STAY THAT WAY until we get rid of it. Candida yeast interferes with the way that magnesium is taken up in your intestine, which causes a bevy of physical problems many of us experience. Freakin fungus, man -__-