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Crystal
10 years ago
While reading about Pfizer, I found this ‘cleverly’ disguised article on Wikipedia
it’s about a fluoroquinolone that was tested on children with meningitis, without parental consent. The control group was given substantially lowered doses of the tried and true treatment in order to skew results.
B
10 years ago
Hi
Anything that can help reduce tendon/cartilage pain ?
Either some food, or juice, or herb, or supplement ..
Thanks
Diego
10 years ago
Can anybody recommend a vitamin D3 that is very pure and natural as possible. I’ve tried many but react to them. Thanks in advance. 🙂
Jocelyn
10 years ago
Thank you Lisa for this site and for all of you who take the time to write in even though you are doing better (I am sure many people want to just forget all this has happened once they recover). I am exactly four months post Flox (levaquin). It hit me neurologically and my first symptom was all over muscle twitching. The twitching has slowed down and is mainly in my legs and feet now. I am eating a healthy diet, taking various supplements and using homeopathic remedies. I am wondering if anyone who experienced the “twitching” or constant little muscle spasms would be able to let me know how long they lasted or if they will ever go away. They happen only when I am not using the muscles, but since I have so much pain in my legs it is hard to stand for too long and so I must sit or lie down but then I feel the twitching. My homeopath thinks the levaquin could have “woken up” the mercury in my system (has anyone heard of this?) and is starting me on chorella and eventually cilantro (I have to get a silver filling out first). Again, I would LOVE some encouragement that I will not twitch forever:) (Yes I am on LOTS of magnesium, but it hasn’t taken the twitching away).
Also, I have to have this silver filling out next week and the holistic dentist will not do it without novacaine. I am SO worried. Is it okay for a dental procedure or could it create new problems?
Thank you So much for any responses! I am keeping faith that each day means I am healing more and more. It seems like 6-7 months is a good first step for people in not getting any worse so I am hopeful!
Diego
10 years ago
R I have used arninca. It helps for inflammation. I also drink it in a form of a tea with honey.
Michael Teeter
10 years ago
I am pain free today I have had 2 treatments of vitiman c and meyers cocktail. My second treatment I also had an IV of glutathione today and I am pain free. My knee and foot are still inflamed but i whish I started this earlier. This is where I went. http://www.agemanagementmi.com/
nick
10 years ago
Today startex good then got bad and am depressed now. Was doing my physical therapy and back stretches. Ba k cracked quite a bit and got tight and painful just like initial pains. I hope this is just mild and doesnt completely flare up and spasm.
Phil
10 years ago
Can anybody tell me if these awful cracking and popping sounds I am experiencing lately will go away again? Its especially bad at my left hand joint, there its the worst (sounding like branches snapping). However I am also experiecing it in every other of my joints including my jar. It is definately the tendon sort of snapping over the joint, I can literally feel it happening when I lay my other hand on that joint while rotating it (I also believe that its quite a normal thing to happen, just not this loud and this often). Been like this for a few weeks now, took cipro about 5 months ago. The pain I have been experiencing wasnt too bad thus far, the worst it ever was would be a 5 on a scale to 10. Now it is a 2 at most so I can totally live with that.
Michael Teeter
10 years ago
The site works when I click it. They start you out with 10 grams of C and the meyers cocktail is basically a multi vitamin cocktail. After your first dose they see how the patient reacts to it. The next dose I got was 15 grams of C. then they gave me 1200 miligrams of glutathione and it is a light sensitive suppliment. They ask if you are allergic to C before you start. The meyers cocktail has magnesium in it so i think it helps detox the heavy metals of CIpro. But I don’t know. It takes 30 minutes for the C meyers cocktail and it takes 10 minutes for the glutathione. It is just so crazy not to have pain.
Michael Teeter
10 years ago
My tendons and joints continue to pop. I just think it will do that for awhile.
i didn’t take any NSAIDs. in fact, my whole life, i never take once.
i was floxed because it was meant to be. (pun intended)
like what my chinese doctor said :”it’s toxic overload. like a wild dog, it just leash out”
Jenny
10 years ago
Hello everyone again,
Has anyone pulled a muscle while being floxed and the intense pain lasted more than a week?
I pulled a muscle in my back and have a crick in my neck from sleeping wrong. It is lasting longer than usual and hurts pretty bad. Any suggestions?
B
10 years ago
@R
Which store did you get the “arnica” ?
Could you point me to it ? Say, London drugs? Safeway ?
Thanks a lot.
Bo
B
10 years ago
@Jarene
I am sorry if I may confused you on the use of supplements.
I really tried different combinations on myself and hoped to see apparent & long term difference , but just cannot get sound test results.
Anyway, we all will heal. Wish you have/had a nice weekend.
Cheers
Bo
remember some time back, i feedback i will ask my chinese doctor on her opinion on Glutathione IV.
yesterday i asked! her verdict: she wasn’t supportive and she don’t feel it’s needed at all. the result won’t be long term. of course nothing is as shitty as getting Floxed. she explained in some medical terms (err…didn’t quite catch that), in layman term, she simply means glutathione IV won’t penetrate into cells for long term, though temporarily you feel it works because this injection needs to keep coming in … for antioxidant to work, it must be digested by gut then distribute into bloods, cells.
my mood was slight dampened when i heard that because i plan to try glutathione really…except not the one made by BAYER!! (bayer made glutathione IV)
can’t bear to think the guy who kill us plans to save us hahaha
I just had some blood tests done this weekend. Creatine adds stress for kidneys (not much I believe – http://www.nlm.nih.gov/medlineplus/druginfo/natural/873.html), so when I get the results, as long as my kidney function is good I will start supplementing creatine. The good thing is creatine monohydrate is dirt cheap. I haven’t read anything about beta alanine yet, the athletic benefit is increased endurance, but I’m not sure if it has much use for our recovery though.
Alene
10 years ago
I feel so blessed to the people putting work into all of this information!! Thank you for being there, and thank you everyone for sharing. I am very new to figuring out that my physical issues relate to this poison, but can now link so many symptoms from my past 2.5 years together. I had been prescribed Levaquin for a UTI, which it did take care of. On the last of the 6 day prescription I clearly recall my lips getting tingly and feeling like my mouth was going raw. For the next two years my mouth was sensitive to all sorts of foods, and I’d blister. I also had rashes show up on other areas of my body, and though my lips continue to develop raw skin, I can now be seen in public without looking like a sick clown. About 6 months after taking the drug I noticed my stomach was getting bloated, and my weight was going up, which has never ever happened to me, especially as I am mostly vegan so I’m usually working to keep weight on. Then I noticed my hips felt like someone had taken a baseball bat to them, and at some point my elbows became killer painful to the point of effecting my sleep. I had to stop running because if I ran, I couldn’t walk later on. I still didn’t connect any of this with Levaquin, and it’s been all of this time, but I recently started trying to run again, very short and slow, and I WRECKED my achilles tendon two months ago–on a gentle 10 min jog. I’ve read that the tendons are still susceptible to injury even years after–has anyone else found this to be true? And now, over two years later, my stomach is constantly bloated and reactive to food, I still mysteriously gain weight, I sleep 9 hours a night and wish to sleep all day too, and I feel like my head is loaded with allergies. I wasn’t a high-energy person, but none of this mental/physical haze was me before the drug; I think it was my second time taking it, although I avoid most medicine when possible. Anyway, I just loaded up with Magnesium powder and topical oil, aloe to drink, am getting frozen wheat grass delivered, about to really start simplifying my diet even more and up my veggie juicing for a bit. I already have stopped all carbs, gluten, sugars, etc. And, having read other’s stories, I feel like I’ve gotten off easy with effects. I am wondering if anyone started way late (years after) in understanding the root of their issues, and if beginning a new approach at that time helped them noticably. And… I’ll keep reading what I can here. Thank you!
jb
10 years ago
hello everyone, this is my first time writing, though I check in here constantly for all the hopeful messages, stories, and just plain wonderful community that enjoys helping each other. I’m 11 months post flox and I was hit pretty hard. I took 10 days of levaquin for a “bacteria” that was really the result of a biking accident. When I developed other pains in my groin area, my doctor assured me i still had a bacteria and put me on 30 days of amoxicillin (i believe). Though I only took 7 days worth as I’d already lost faith in the dr and made an appt with a urologist and was waiting for the appt. The urologist told me I had tendon damage and never had a bacteria and took me off the antibiotic. Months later, the urologist would tell me himself that he had “ruined his shoulder” from levaquin and that it might be the cause of some serious problems I was having. About a month after finishing the levaquin, i was hit with the somewhat usual symptoms of brain fog, weakness, pain in my joints, popping and cracking of joints, difficulty urinating and a whole other laundry list. I have had improvement and then more problems..felt like I was almost normal, then a reaction disable me to the point i could barely get out of bed. I would walk a block and feel a tendon in my groin tear or nerve pain from inflammation from my bilateral tendions connecting my legs to my groin area. Not fun stuff as I suspect some of you can relate. And now I have a question for all of you kind folks…did any of you continue to get worse and/or begin to have problems with your hips and inflammation/pain after short walks, and then have this turn around or recover with time. I’m trying to figure out if this too will go away as some things have (my neuropathy has nearly disappeared in the 11 months which i attribute to lots of b-complex and b12). Also, have any of you had headaches that come an go throughout your floxing experience that have ultimately totally disappeared? by the way, i wanted to mention that i take boswellia for inflammation and it works amazingly for me. and also, i take “butterbur” for headaches which also works amazingly if any of you are having them. I just don’t want to have to be taking them every day.
N-acetyl cysteine: 600 mg one to three times daily
Green Tea extract; standardized to EGCG: 725 mg daily
Quercetin: 250 – 500 mg daily
B Vitamin Complex: Per label instructions
Magnesium: 300 – 600 mg daily
Broccoli extract; standardized to glucosinolates: 400 mg once or twice daily, with meals
I3C (Indole-3-carbinol): 80 – 160 mg daily
SAMe: 400 mg two to three times daily. Take with co-factors B12, B6 and folic acid.
Milk Thistle extract; standardized to silymarin and silibinins: 750 mg daily.
R-lipoic acid: 240 – 480 mg daily
Calcium-D-glucarate: 140 – 300 mg daily
Trans-Resveratrol: 250 mg daily
Curcumin: 400 mg daily, with meals
Chlorophyllin: 100 mg three times per day with food.
Artichoke extract: 500 mg daily
Probiotics: Per label instructions
medical team use NAC (N-acetyl cysteine) for acetaminophen toxicity yet no prescription for FQ toxicity, a highly talented poison
While reading about Pfizer, I found this ‘cleverly’ disguised article on Wikipedia
http://en.wikipedia.org/wiki/Abdullahi_v._Pfizer,_Inc.
it’s about a fluoroquinolone that was tested on children with meningitis, without parental consent. The control group was given substantially lowered doses of the tried and true treatment in order to skew results.
Hi
Anything that can help reduce tendon/cartilage pain ?
Either some food, or juice, or herb, or supplement ..
Thanks
Can anybody recommend a vitamin D3 that is very pure and natural as possible. I’ve tried many but react to them. Thanks in advance. 🙂
Thank you Lisa for this site and for all of you who take the time to write in even though you are doing better (I am sure many people want to just forget all this has happened once they recover). I am exactly four months post Flox (levaquin). It hit me neurologically and my first symptom was all over muscle twitching. The twitching has slowed down and is mainly in my legs and feet now. I am eating a healthy diet, taking various supplements and using homeopathic remedies. I am wondering if anyone who experienced the “twitching” or constant little muscle spasms would be able to let me know how long they lasted or if they will ever go away. They happen only when I am not using the muscles, but since I have so much pain in my legs it is hard to stand for too long and so I must sit or lie down but then I feel the twitching. My homeopath thinks the levaquin could have “woken up” the mercury in my system (has anyone heard of this?) and is starting me on chorella and eventually cilantro (I have to get a silver filling out first). Again, I would LOVE some encouragement that I will not twitch forever:) (Yes I am on LOTS of magnesium, but it hasn’t taken the twitching away).
Also, I have to have this silver filling out next week and the holistic dentist will not do it without novacaine. I am SO worried. Is it okay for a dental procedure or could it create new problems?
Thank you So much for any responses! I am keeping faith that each day means I am healing more and more. It seems like 6-7 months is a good first step for people in not getting any worse so I am hopeful!
R I have used arninca. It helps for inflammation. I also drink it in a form of a tea with honey.
I am pain free today I have had 2 treatments of vitiman c and meyers cocktail. My second treatment I also had an IV of glutathione today and I am pain free. My knee and foot are still inflamed but i whish I started this earlier. This is where I went. http://www.agemanagementmi.com/
Today startex good then got bad and am depressed now. Was doing my physical therapy and back stretches. Ba k cracked quite a bit and got tight and painful just like initial pains. I hope this is just mild and doesnt completely flare up and spasm.
Can anybody tell me if these awful cracking and popping sounds I am experiencing lately will go away again? Its especially bad at my left hand joint, there its the worst (sounding like branches snapping). However I am also experiecing it in every other of my joints including my jar. It is definately the tendon sort of snapping over the joint, I can literally feel it happening when I lay my other hand on that joint while rotating it (I also believe that its quite a normal thing to happen, just not this loud and this often). Been like this for a few weeks now, took cipro about 5 months ago. The pain I have been experiencing wasnt too bad thus far, the worst it ever was would be a 5 on a scale to 10. Now it is a 2 at most so I can totally live with that.
The site works when I click it. They start you out with 10 grams of C and the meyers cocktail is basically a multi vitamin cocktail. After your first dose they see how the patient reacts to it. The next dose I got was 15 grams of C. then they gave me 1200 miligrams of glutathione and it is a light sensitive suppliment. They ask if you are allergic to C before you start. The meyers cocktail has magnesium in it so i think it helps detox the heavy metals of CIpro. But I don’t know. It takes 30 minutes for the C meyers cocktail and it takes 10 minutes for the glutathione. It is just so crazy not to have pain.
My tendons and joints continue to pop. I just think it will do that for awhile.
Hi B,
i didn’t take any NSAIDs. in fact, my whole life, i never take once.
i was floxed because it was meant to be. (pun intended)
like what my chinese doctor said :”it’s toxic overload. like a wild dog, it just leash out”
Hello everyone again,
Has anyone pulled a muscle while being floxed and the intense pain lasted more than a week?
I pulled a muscle in my back and have a crick in my neck from sleeping wrong. It is lasting longer than usual and hurts pretty bad. Any suggestions?
@R
Which store did you get the “arnica” ?
Could you point me to it ? Say, London drugs? Safeway ?
Thanks a lot.
Bo
@Jarene
I am sorry if I may confused you on the use of supplements.
I really tried different combinations on myself and hoped to see apparent & long term difference , but just cannot get sound test results.
Anyway, we all will heal. Wish you have/had a nice weekend.
Cheers
Bo
remember some time back, i feedback i will ask my chinese doctor on her opinion on Glutathione IV.
yesterday i asked! her verdict: she wasn’t supportive and she don’t feel it’s needed at all. the result won’t be long term. of course nothing is as shitty as getting Floxed. she explained in some medical terms (err…didn’t quite catch that), in layman term, she simply means glutathione IV won’t penetrate into cells for long term, though temporarily you feel it works because this injection needs to keep coming in … for antioxidant to work, it must be digested by gut then distribute into bloods, cells.
my mood was slight dampened when i heard that because i plan to try glutathione really…except not the one made by BAYER!! (bayer made glutathione IV)
can’t bear to think the guy who kill us plans to save us hahaha
I read Mark’s recovery story a while ago and I noted that it said creatine and beta alanine (as well as leucine) helped him recover. They are all well known supplements for athletes. I have beta alanine and creatine at home, so I’m thinking about trying them. Creatine is related to mitochondria function – http://warddeanmd.com/mitochondrial-restoration-part-iii-d-ribose-and-creatine-increase-mitochondrial-energy-production/. Also creatine is supposed to help ischemia which is another possible way that fluoroquinolones do damage – http://onlinelibrary.wiley.com/doi/10.1002/med.20255/abstract.
I just had some blood tests done this weekend. Creatine adds stress for kidneys (not much I believe – http://www.nlm.nih.gov/medlineplus/druginfo/natural/873.html), so when I get the results, as long as my kidney function is good I will start supplementing creatine. The good thing is creatine monohydrate is dirt cheap. I haven’t read anything about beta alanine yet, the athletic benefit is increased endurance, but I’m not sure if it has much use for our recovery though.
I feel so blessed to the people putting work into all of this information!! Thank you for being there, and thank you everyone for sharing. I am very new to figuring out that my physical issues relate to this poison, but can now link so many symptoms from my past 2.5 years together. I had been prescribed Levaquin for a UTI, which it did take care of. On the last of the 6 day prescription I clearly recall my lips getting tingly and feeling like my mouth was going raw. For the next two years my mouth was sensitive to all sorts of foods, and I’d blister. I also had rashes show up on other areas of my body, and though my lips continue to develop raw skin, I can now be seen in public without looking like a sick clown. About 6 months after taking the drug I noticed my stomach was getting bloated, and my weight was going up, which has never ever happened to me, especially as I am mostly vegan so I’m usually working to keep weight on. Then I noticed my hips felt like someone had taken a baseball bat to them, and at some point my elbows became killer painful to the point of effecting my sleep. I had to stop running because if I ran, I couldn’t walk later on. I still didn’t connect any of this with Levaquin, and it’s been all of this time, but I recently started trying to run again, very short and slow, and I WRECKED my achilles tendon two months ago–on a gentle 10 min jog. I’ve read that the tendons are still susceptible to injury even years after–has anyone else found this to be true? And now, over two years later, my stomach is constantly bloated and reactive to food, I still mysteriously gain weight, I sleep 9 hours a night and wish to sleep all day too, and I feel like my head is loaded with allergies. I wasn’t a high-energy person, but none of this mental/physical haze was me before the drug; I think it was my second time taking it, although I avoid most medicine when possible. Anyway, I just loaded up with Magnesium powder and topical oil, aloe to drink, am getting frozen wheat grass delivered, about to really start simplifying my diet even more and up my veggie juicing for a bit. I already have stopped all carbs, gluten, sugars, etc. And, having read other’s stories, I feel like I’ve gotten off easy with effects. I am wondering if anyone started way late (years after) in understanding the root of their issues, and if beginning a new approach at that time helped them noticably. And… I’ll keep reading what I can here. Thank you!
hello everyone, this is my first time writing, though I check in here constantly for all the hopeful messages, stories, and just plain wonderful community that enjoys helping each other. I’m 11 months post flox and I was hit pretty hard. I took 10 days of levaquin for a “bacteria” that was really the result of a biking accident. When I developed other pains in my groin area, my doctor assured me i still had a bacteria and put me on 30 days of amoxicillin (i believe). Though I only took 7 days worth as I’d already lost faith in the dr and made an appt with a urologist and was waiting for the appt. The urologist told me I had tendon damage and never had a bacteria and took me off the antibiotic. Months later, the urologist would tell me himself that he had “ruined his shoulder” from levaquin and that it might be the cause of some serious problems I was having. About a month after finishing the levaquin, i was hit with the somewhat usual symptoms of brain fog, weakness, pain in my joints, popping and cracking of joints, difficulty urinating and a whole other laundry list. I have had improvement and then more problems..felt like I was almost normal, then a reaction disable me to the point i could barely get out of bed. I would walk a block and feel a tendon in my groin tear or nerve pain from inflammation from my bilateral tendions connecting my legs to my groin area. Not fun stuff as I suspect some of you can relate. And now I have a question for all of you kind folks…did any of you continue to get worse and/or begin to have problems with your hips and inflammation/pain after short walks, and then have this turn around or recover with time. I’m trying to figure out if this too will go away as some things have (my neuropathy has nearly disappeared in the 11 months which i attribute to lots of b-complex and b12). Also, have any of you had headaches that come an go throughout your floxing experience that have ultimately totally disappeared? by the way, i wanted to mention that i take boswellia for inflammation and it works amazingly for me. and also, i take “butterbur” for headaches which also works amazingly if any of you are having them. I just don’t want to have to be taking them every day.
metabolic detoxification – enzymes, toxins, liver
http://www.lef.org/protocols/metabolic_health/metabolic_detoxification_01.htm
Life Extension Suggestions
N-acetyl cysteine: 600 mg one to three times daily
Green Tea extract; standardized to EGCG: 725 mg daily
Quercetin: 250 – 500 mg daily
B Vitamin Complex: Per label instructions
Magnesium: 300 – 600 mg daily
Broccoli extract; standardized to glucosinolates: 400 mg once or twice daily, with meals
I3C (Indole-3-carbinol): 80 – 160 mg daily
SAMe: 400 mg two to three times daily. Take with co-factors B12, B6 and folic acid.
Milk Thistle extract; standardized to silymarin and silibinins: 750 mg daily.
R-lipoic acid: 240 – 480 mg daily
Calcium-D-glucarate: 140 – 300 mg daily
Trans-Resveratrol: 250 mg daily
Curcumin: 400 mg daily, with meals
Chlorophyllin: 100 mg three times per day with food.
Artichoke extract: 500 mg daily
Probiotics: Per label instructions
medical team use NAC (N-acetyl cysteine) for acetaminophen toxicity yet no prescription for FQ toxicity, a highly talented poison
thanks nick and michael!