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Michael
8 years ago
One additional note about PQQ. Mitochondria are essentially synergistic bacteria in your cells, each of which typically have 2 – 5000 of them (less as you age). Since PQQ can help protect the mitochondria from damage, it may also help protect the bad bacteria. So, don’t take PQQ with the levofloxacin but rather after you have finished with it.
Also of note, both CoQ10 and NAD+ (not the same as NAD) can assist in energy improvement. While, noticing the benefits of PQQ may take a while, CoQ10 and NAD+ both can have observable effects in a few days. Be sure to get the Ubiquinol form of CoQ10 – it is much more effective than the Ubiquinone form. You can even get PQQ and CoQ10 together.
Michael
8 years ago
Bob, I am not lost. I understand about the issues people are having and that people here are unlikely to take additional levofloxacin. But, I have also seen some posts where people are having problems, but go back on it anyway after a time. To anyone who has had a problem with a drug, the negative aspects far outweigh the positives. But, most people do not have serious problems. Even so, there is probably mitochondrial damage which can potentially be reversed or alleviated.
I was trying to be helpful. Perhaps PQQ hasn’t helped you, but it is definitely something to try, as are NAD+ and CoQ10 because all of these are critically involved in the mitochondrial energy cycle. There may be multiple types of damage involved in being floxed, but if mitochondrial damage is one of them these are some of the few things that can help.
Overall, I am very opposed to all antibiotics and haven’t taken any in more than a third of a century. Likewise for my wife. Sometimes, however, they are still the treatment of choice and my wife has multiple problems which are directly addressed by levofloxacin. Better the risk of side effects than death! There ARE no good drugs. Period. But, sometimes you need to use one.
Regina
8 years ago
amen to that Bob I have been suffering for 6 soon to be 7 Years! I totally agree with your comment.
Nancy Sampson
8 years ago
Thank you…I recently realized that my Dysautonomia and neuropathy has resulted from being treated multiple times with Cipro for a kidney problem. Just knowing why I’m falling apart both angers me and brings a certain peace. Peace to all of my fellow floxies.
erik
8 years ago
as of now, what are the most effective treatments for cipro toxicity? money is not an issue for me, I’ve heard of things like stem cells and IV lipid exchange/pk protocols that can help heal the membranes of cells/mitochondria. Im sick of reading about coq10 and magnesium supplements, what are more higher-end treatments that can bring healing? any ideas? 25 year old male who was floxed 3 times within 1 year by a ENT “doctor”
erik
8 years ago
oh and ive also heard of a therapy called IV NAD? which a place in san diego gives you an IV of NAD 6 days in a row which I read can actually cure cipro toxicity, not treat, but cure.. thoughts?
erik
8 years ago
just wanted to clarify the “cure” statement regarding IV NAD treatments, I should have said something like it can substantially reverse damage, i read someone say once it can reboot the mitochondria…
i only bring up IV NAD, stem cells, IV lipid exchange protocols becasuse i think diet and supplements can only take a floxie so far.. maybe we have some hope in these more exotic treatment modalities
Bruce
8 years ago
I was moderately floxed about 3 years ago. Since then I have had periods where I felt completely recovered (I was able to run 26 miles for instance), but every few months the floxed symptoms will flare up for a week or two. This usually consists of pain in multiple tendons, sore muscles, trouble focusing eyes, caffeine sensitivity, cold and/or tingling feet.
I haven’t been able to isolate any particular triggers for the flare-ups. I don’t know if they are caused by antibiotics in the meet or fish I ate or elevated levels of external stress, or physically exerting myself too hard, or just some internal cycle.
I’m interested to know what other people’s experience with flare-ups is and if there are any ways to avoid them.
Linda
8 years ago
Hi all. For those of you who have not already contacted TorHoerman Law re a possible law suit (class action I believe), here is a link with a Q and A to see if you might qualify. http://fqadlawsuit.com
Debs
8 years ago
Indeed Angie A, the vulnerable including our own precious pets, who of course cannot in any way shape or form say ‘ NO to Cipro.’ My precious cat Shadow was seriously injured for life by being prescribed BAYTRIL a fluoroquinolone. His sad story can be found here on floxiepets amongst others. in regards to cats for any other cat owners here Do not let your vet tell you that the visual damage can ONLY occur at a high dosage, this is NOT correct.
Please do not EVER let your vet prescribe a fluoroquinolone antibiotic to your precious pet unless, the same as with humans there is literally NO other choice . They too are very often completely unaware of the risks. The one difference is in the veterinary world, the studies on FQs having been so many of them done on animals, it means that those vets who ARE aware, they are VERY aware, they know & have known for a very long time EXACTLY how dangerous they are.
Jwinn,
I’m sorry for all that you are going through but hope you see much improvement soon! I am over a year out, recovered to nearly 90%, but had a bad flare in late December from non organic pork:( all new symptoms emerged , mostly PN in lower extremities that I thought was getting better but I don’t think it is:( in your experience did your PN improve over time or is it about the same?
If I’m walking or moving I have no pain, but when I sit down for a while it feels like my feet are being stabbed or have sun burn:(
Jwinn,
Thank you for sharing, and I’m so sorry that you have to endure so much. I truly hope you recover enough to go to italy! Traveling always makes me feel so much better for sure:)
PN just seems like a monster all on its own. Such a nasty side effect and I’m sooo worried about the progressiveness of this disease. I agree w Linda, we all need to be compensated whether it’s through a class action law suit or indivudual.
And I know what you mean about hiding your feelings….I have to try to keep everything together for my 6 year old but it’s not easy. My family also doesn’t want to hear about my ailments, therefore, it makes me numb to the rest of the world and almost unable to sympathize w anybody. When a friend or family member complains about a cold, allergies, a bruise….I can’t relate, because I feel no problems, no ailments, no fears, compares to those of a floxie.
Hope today is a better day:)
jwinn
8 years ago
AMEN LINDA!!!! It get so frustrated at work listening to all of the chronic complaining about such ‘minute’ issues….the computer, the kids not doing homework, someone interrupting their class, THINGS THAT REALLYL DON”T MATTER! Last week, I had a friend with a crick in her neck and you would have thought she was dying….I politely explained to her that completely understood, and I have had that kind of pain for the past 6 years and it never goes away. However, I did help her put a muscle patch on her shoulder (that I keep in my drawer), as they do tend to help me with my neck and shoulder pain. I also gave her some ‘traumeel’ homeopathic cream for her pain. Her pain was gone the next day: MINE WAS NOT. Sometimes, I have to work really hard to try to smiling and just keep going with my day.
Tricia W.
8 years ago
Hi Lisa or anyone,
Did anyone experience sudden night blindness? If so did it improve over time? It just happened to me two nights ago and my eye doctor couldn’t see any abnormality.
Angie Magdy
8 years ago
Hi
My wedding was in the New Years of 2015, on Jan. 31st I was prescribed cipro for uti. 2×500 fm for 5 days. By the 3rd day I woke up to a very painful feeing in my hand and finger. I related nothing to it and continued the dosage. A week later I found all my toes and fingers on severe pins and needles. Two days later my hands tendons ache badly. This episode and I felt fatigued. Two weeks and I felt well. I had a late period for the first time in my life I had brufen many times for the pain a long with a stressful situation about my sister’s divorce. Two days again to have terrible pains allover my body, severe tendinitis and later I found my ear ringing badly sore throat, eye dryness, general fatigue, dry sinus, and kidney pain. I can’t sleep from my hands pain all night. Am taking many supplements omega3, multivitamin, vitamin E, D. I came to 3 panic attacks and insomnia. Will this come to an end! Am really depressed and I need help!
Paul
8 years ago
does anyone know of a good company that makes organic bone broth? Its difficult to get grass feed bones and boil them for 24-48 hours. I located a company called Kettle & Fire that claims to be all organic and will send to your house. Has anyone ever heard about them?
Leslie
8 years ago
Hi guys. 2 days before my floxiversary I got bitten by a tick. Either the tick had lyme or I am having a relapse due to anxiety. Day after tick bite got anxiety like cipro and a sore neck. Innsomnia and sore muscles and joint that migrate all over. I was almost healed from cipro at the time of bite. The lyme world says go on 4 weeks abx right now while acute. I worry I’ll be doing that when it could be a cipro set back. I feel awful and not improving a week since bite. Suggestions? Go on drugs or no? I’m in mexico celebrating a year since cipro and I am having a hard time. I haven’t had CNS symptoms like for 8 months.
Lorna Gemmell
8 years ago
Has anyone had a skin reaction? I have had general rashes on and off since being floxed – but I have a bumpy/red rash, mostly on my face, that is specifically activated by sunlight. Just becoming spring in the UK! I’m taking all the usual recommended supplements. Any tips welcome. Laura
joanneg
8 years ago
Hi Everyone,
I just wanted you all to know I just got out of surgery, and they removed a tumor about the size of a kidney bean on one of my parathyroid glands.
I’m still groggy from the anesthesia, but I can bend my knees and sit on one leg without any pulling or pain.
I will post back after a couple of days when I know more.
One additional note about PQQ. Mitochondria are essentially synergistic bacteria in your cells, each of which typically have 2 – 5000 of them (less as you age). Since PQQ can help protect the mitochondria from damage, it may also help protect the bad bacteria. So, don’t take PQQ with the levofloxacin but rather after you have finished with it.
Also of note, both CoQ10 and NAD+ (not the same as NAD) can assist in energy improvement. While, noticing the benefits of PQQ may take a while, CoQ10 and NAD+ both can have observable effects in a few days. Be sure to get the Ubiquinol form of CoQ10 – it is much more effective than the Ubiquinone form. You can even get PQQ and CoQ10 together.
Bob, I am not lost. I understand about the issues people are having and that people here are unlikely to take additional levofloxacin. But, I have also seen some posts where people are having problems, but go back on it anyway after a time. To anyone who has had a problem with a drug, the negative aspects far outweigh the positives. But, most people do not have serious problems. Even so, there is probably mitochondrial damage which can potentially be reversed or alleviated.
I was trying to be helpful. Perhaps PQQ hasn’t helped you, but it is definitely something to try, as are NAD+ and CoQ10 because all of these are critically involved in the mitochondrial energy cycle. There may be multiple types of damage involved in being floxed, but if mitochondrial damage is one of them these are some of the few things that can help.
Overall, I am very opposed to all antibiotics and haven’t taken any in more than a third of a century. Likewise for my wife. Sometimes, however, they are still the treatment of choice and my wife has multiple problems which are directly addressed by levofloxacin. Better the risk of side effects than death! There ARE no good drugs. Period. But, sometimes you need to use one.
amen to that Bob I have been suffering for 6 soon to be 7 Years! I totally agree with your comment.
Thank you…I recently realized that my Dysautonomia and neuropathy has resulted from being treated multiple times with Cipro for a kidney problem. Just knowing why I’m falling apart both angers me and brings a certain peace. Peace to all of my fellow floxies.
as of now, what are the most effective treatments for cipro toxicity? money is not an issue for me, I’ve heard of things like stem cells and IV lipid exchange/pk protocols that can help heal the membranes of cells/mitochondria. Im sick of reading about coq10 and magnesium supplements, what are more higher-end treatments that can bring healing? any ideas? 25 year old male who was floxed 3 times within 1 year by a ENT “doctor”
oh and ive also heard of a therapy called IV NAD? which a place in san diego gives you an IV of NAD 6 days in a row which I read can actually cure cipro toxicity, not treat, but cure.. thoughts?
just wanted to clarify the “cure” statement regarding IV NAD treatments, I should have said something like it can substantially reverse damage, i read someone say once it can reboot the mitochondria…
i only bring up IV NAD, stem cells, IV lipid exchange protocols becasuse i think diet and supplements can only take a floxie so far.. maybe we have some hope in these more exotic treatment modalities
I was moderately floxed about 3 years ago. Since then I have had periods where I felt completely recovered (I was able to run 26 miles for instance), but every few months the floxed symptoms will flare up for a week or two. This usually consists of pain in multiple tendons, sore muscles, trouble focusing eyes, caffeine sensitivity, cold and/or tingling feet.
I haven’t been able to isolate any particular triggers for the flare-ups. I don’t know if they are caused by antibiotics in the meet or fish I ate or elevated levels of external stress, or physically exerting myself too hard, or just some internal cycle.
I’m interested to know what other people’s experience with flare-ups is and if there are any ways to avoid them.
Hi all. For those of you who have not already contacted TorHoerman Law re a possible law suit (class action I believe), here is a link with a Q and A to see if you might qualify. http://fqadlawsuit.com
Indeed Angie A, the vulnerable including our own precious pets, who of course cannot in any way shape or form say ‘ NO to Cipro.’ My precious cat Shadow was seriously injured for life by being prescribed BAYTRIL a fluoroquinolone. His sad story can be found here on floxiepets amongst others. in regards to cats for any other cat owners here Do not let your vet tell you that the visual damage can ONLY occur at a high dosage, this is NOT correct.
Please do not EVER let your vet prescribe a fluoroquinolone antibiotic to your precious pet unless, the same as with humans there is literally NO other choice . They too are very often completely unaware of the risks. The one difference is in the veterinary world, the studies on FQs having been so many of them done on animals, it means that those vets who ARE aware, they are VERY aware, they know & have known for a very long time EXACTLY how dangerous they are.
http://www.floxiepets.com
Does anyone have any experience with MitoQ or any basic PQQ?
Jwinn,
I’m sorry for all that you are going through but hope you see much improvement soon! I am over a year out, recovered to nearly 90%, but had a bad flare in late December from non organic pork:( all new symptoms emerged , mostly PN in lower extremities that I thought was getting better but I don’t think it is:( in your experience did your PN improve over time or is it about the same?
If I’m walking or moving I have no pain, but when I sit down for a while it feels like my feet are being stabbed or have sun burn:(
Jwinn,
Thank you for sharing, and I’m so sorry that you have to endure so much. I truly hope you recover enough to go to italy! Traveling always makes me feel so much better for sure:)
PN just seems like a monster all on its own. Such a nasty side effect and I’m sooo worried about the progressiveness of this disease. I agree w Linda, we all need to be compensated whether it’s through a class action law suit or indivudual.
And I know what you mean about hiding your feelings….I have to try to keep everything together for my 6 year old but it’s not easy. My family also doesn’t want to hear about my ailments, therefore, it makes me numb to the rest of the world and almost unable to sympathize w anybody. When a friend or family member complains about a cold, allergies, a bruise….I can’t relate, because I feel no problems, no ailments, no fears, compares to those of a floxie.
Hope today is a better day:)
AMEN LINDA!!!! It get so frustrated at work listening to all of the chronic complaining about such ‘minute’ issues….the computer, the kids not doing homework, someone interrupting their class, THINGS THAT REALLYL DON”T MATTER! Last week, I had a friend with a crick in her neck and you would have thought she was dying….I politely explained to her that completely understood, and I have had that kind of pain for the past 6 years and it never goes away. However, I did help her put a muscle patch on her shoulder (that I keep in my drawer), as they do tend to help me with my neck and shoulder pain. I also gave her some ‘traumeel’ homeopathic cream for her pain. Her pain was gone the next day: MINE WAS NOT. Sometimes, I have to work really hard to try to smiling and just keep going with my day.
Hi Lisa or anyone,
Did anyone experience sudden night blindness? If so did it improve over time? It just happened to me two nights ago and my eye doctor couldn’t see any abnormality.
Hi
My wedding was in the New Years of 2015, on Jan. 31st I was prescribed cipro for uti. 2×500 fm for 5 days. By the 3rd day I woke up to a very painful feeing in my hand and finger. I related nothing to it and continued the dosage. A week later I found all my toes and fingers on severe pins and needles. Two days later my hands tendons ache badly. This episode and I felt fatigued. Two weeks and I felt well. I had a late period for the first time in my life I had brufen many times for the pain a long with a stressful situation about my sister’s divorce. Two days again to have terrible pains allover my body, severe tendinitis and later I found my ear ringing badly sore throat, eye dryness, general fatigue, dry sinus, and kidney pain. I can’t sleep from my hands pain all night. Am taking many supplements omega3, multivitamin, vitamin E, D. I came to 3 panic attacks and insomnia. Will this come to an end! Am really depressed and I need help!
does anyone know of a good company that makes organic bone broth? Its difficult to get grass feed bones and boil them for 24-48 hours. I located a company called Kettle & Fire that claims to be all organic and will send to your house. Has anyone ever heard about them?
Hi guys. 2 days before my floxiversary I got bitten by a tick. Either the tick had lyme or I am having a relapse due to anxiety. Day after tick bite got anxiety like cipro and a sore neck. Innsomnia and sore muscles and joint that migrate all over. I was almost healed from cipro at the time of bite. The lyme world says go on 4 weeks abx right now while acute. I worry I’ll be doing that when it could be a cipro set back. I feel awful and not improving a week since bite. Suggestions? Go on drugs or no? I’m in mexico celebrating a year since cipro and I am having a hard time. I haven’t had CNS symptoms like for 8 months.
Has anyone had a skin reaction? I have had general rashes on and off since being floxed – but I have a bumpy/red rash, mostly on my face, that is specifically activated by sunlight. Just becoming spring in the UK! I’m taking all the usual recommended supplements. Any tips welcome. Laura
Hi Everyone,
I just wanted you all to know I just got out of surgery, and they removed a tumor about the size of a kidney bean on one of my parathyroid glands.
I’m still groggy from the anesthesia, but I can bend my knees and sit on one leg without any pulling or pain.
I will post back after a couple of days when I know more.
Love you ALL and hope everyone is at least better