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Carol
8 years ago
Hi,
I’m having all kinds of side effects from cipro including high b.p. spikes, anxiety and depression. Now, I’m having hypoglycemia during the evening and again between 2:00am and 4:00am. It is waking me up, then insomnia. Have to go on short term disability. Has anyone else suffered from hypoglycemia? It is ruining my body, mind and life. Please anyone respond as I am feeling pretty lost and ruined right now. Thank you…
Nicole Reedy
8 years ago
Yes Linda I had a lovely double dose of Cipro & Avelox in hospital! Unfortunately I did not have a nurse who gave a darn so nothing that happened to me was caught until 2 days later when I got to a larger trama hospital in our area. Was still on Avelox for 10 days but no Cipro. I have had GI issues since the first Cipro C-diff problem 9 years ago in the form of IBS but funny that is better. Could be because I take so many probotics since my only fear was getting C-diff again. These drugs have no black box warnings in Canada & none of the side affects are even mentioned. Every druggist I have told about what has happened to me has said they have never heard of a side affect. Yet when I have talked to even strangers at the blood clinic or anywhere I may be I hear all kinds of stories about them or someone they know. Was sitting next to a man when I was telling a friend & he said I know all about it because I lost a kidney on it!
So why are these drs. & druggist so stupid, they have to know! My GP was so nasty about it I got a new Dr. & believe or not he was well informed but knew he could not help except for the liver tests I will have to have for a year.
He spent 45 minutes going through all my supplements & even though he had never hear of PQQ he looked up on the computer & said well it’s working in mice, go for it. What a joy to find him. My NP had not heard of it as well but my chemist had it & is very informed & will compound what we can’t get.
Funny I was put on a satin ( another wonderful drug) 2 years ago and had unbelieve leg spasms for days before I was told to stop it. Was told all would go away after stopping. I had funny feelings, zaps & numb feeling in lower leg & toes. Still have it!!!
Since I have only had 5 IV’s I guess I need to hang in here and keep fighting.
I am happy to hear you are getting back to yourself & hope you find a little job you can enjoy. Being on the steroids really hurt things but in your case you had no choice. I was on a steroid cream but of course did not know that was a problem. Sad we really have to be our own Dr here!
Wishing you more great healing! ????????
Nicole Reedy
8 years ago
Hello Frank B
Yes i use the oil & salt bathes. My stomach has always had a hard time with supplements so I am amazed at the fact I am taking so many with this now! I do take a lot of probotics.
I am fighting a stomach virus I caught from my grandson right now & will not take anything for fear of it making things worse. The IV supplements do not bother me. I would just give anything to get my life back & not be spending everyday just taking supplements, putting on oils, creams, going to NP and praying every moment. I know it takes time but just feeling so tired!
Lucas
8 years ago
I have read everyone’s story on here and it has given me hope.
– Does anyone get (flutters in their legs all day long) ? I don’t know how else to describe it really sorry…
– Also I feel like I have lost tissue around all my joints, is that something Cipro can do?
Thank you for any help and responses
Lucas
8 years ago
Angie / Linda – Thank you for the response ( its a weird sensation like someone has a small vibrator on both my legs I also fell like my legs are weaker than before or ( heavy ).
Lisa – Thank you for all the information, I am not sure if I have been Floxed to be honest. I do know that all these symptoms started when I was taking ( Bactrim ) for a UTI and then a week later I got switched to ( Cipro ) because the Bactrim gave me a rash and then everything went down hill from there. I have seen 5 doctors and all kinds of specialist (found noting ) for vision issues at one point (now gone) thank goodness, GI issues loss of appetite which has not changed ( but all test came back normal ). If this is the cause I plan to share my story for sure and help others, as this site has help me keep my sanity since from the outside to everyone I seem mostly fine, but they do not understand all the pins and needles sensations and burning sensations and all sorts of stuff going on inside.
PS: I have a neurologist appointment scheduled for 5/16/16 have been dealing with this since Feb 12 of 2016. I have fears that it can be something else its driving me crazy, but I am keeping as calm as I can.
indigoraito2
8 years ago
My hands and arms are always hot at the touch. Flu-like. But my body temperature is normal. I can also sweat normally. Sometimes they ache, but I can deal with it, it’s mild. Why? Then, my left arm, for some reason, is hotter than the right one…
Sharon Hutchinson
8 years ago
The story of this promising young man and his mental deterioration has both touched me and angered me as well. I too came up against that brick wall, where people in the medical industry refuse to think outside the box. It may not be just the fluoroquinolones either.
Absolutely no one would believe me that on the 7th day of a 10 day Amoxicillin prescription for an infected tooth, my mental state went ballistic. I should explain that I already had (and have) bi-polar depression. But this was over the top. I woke up in a haze one morning to a voice telling me to run into the kitchen, grab a knife and stab myself in the stomach. Thankfully, I became fully awake and stopped in time. My paranoia went over the top. None of my medications seemed to be having any effect. It took more than a month to return to what was normal for me and my mental conditions where the medications were thankfully again effective.
I know Amoxicillin is not in the same family as Levaquin. Nevertheless, there was nothing else to explain the huge exaggeration of my symptoms. When I reported this to the pharmacist and the prescribing doctor, they insisted it was not the antibiotic as this wasn’t one of the side effects listed. It was frustrating beyond belief. I could have followed through and stabbed myself, possibly fatally.
The one who believed me was my psychiatrist. He posited that because antibiotics effect the digestive system (even though I had been eating yogurt etc. in order to minimize this well know attribute of all antibiotics), they interfere with the amount of serotonin being produced in the gut. A study from CalTech has shown that 90% of the body’s serotonin comes from the digestive tract (CalTech publication NOW, April 9, 2015). What other antibiotics may be having this effect? Only upon doing research after my horrible experiences did I find other people on forums in various places on the internet complaining about having psychiatric problems after taking Amoxicillin. Some were very severe, and suicidal ideation was not uncommon. One woman reported trying to cut her wrists using her own fingernails. And the majority had never experienced these severe mental symptoms before.
Doctors leap to prescribe them even before a need has been established. After a sinus procedure which caused some unusual bleeding, the doctor packed the area with gauze padding and then was about to write a prescription for an antibiotic because, as he put it, he wanted to prevent an infection from starting. He got a resounding NO from me-and I never did develop an infection. So far I am refusing any and all antibiotics. I understand they can be lifesavers and if the situation arises again, I don’t know what I will do if there is serious infection present.
Thank you for this information, sad as it is. I feel it has exonerated me regarding my terrible reaction to this drug. For those like myself who are already suffering from mental issues, much thought must be given before prescribing these body altering drugs, and caution should be used in all cases before doctors reach for that prescription pad.
Frank B
8 years ago
Hi all.I’m seriously thinking about getting a Glutathione push.There is a company
called the I.V. Doc that makes house calls.I was wondering if any of you have
an opinion on Glutathione.Any positive or negative experiences? Also I’ve been
taking the Colostrum now for four days and I’m starting to feel really energetic,
plus I’m getting some relief from some other symptoms like nerve and muscle pain.
Frank B
8 years ago
Thanks for the replies.They don’t let you choose just Gluta on it’s own,it has to come extra with one of the other IV treatments they provide.I’m going with Saline drip.$275 total.
I’m going to get ripped off, aren’t I…?
I have no choice I guess,I can only find two natural paths nearby that offer this treatment
and of course insurance doesn’t cover it,it only covers the poison.
There is a guy on YouTube who orders it,and does the treament on himself…hmm…
Nicole Reedy
8 years ago
Hi Frank, I do get my push at NP ( of course out of pocket as well ) & my invoice says my push is $70, but I also pay $80 for the visit then $100 for a Bowen treatment. Not much different but I am having more done. She also gives me 30 mins of talking about how I am doing & feeling! Now a IV costs more that a push because of the time. A push only takes 10 minutes & IV 45.
Just a quick not about something I’ve been noticing in myself more and more lately.
This is going to sound weird, but found I am not very good at identifying the nature of sensations and feelings. I also think this may happen to other people.
Here’s an example.
The other day in the kitchen I got a sharp pain in my heel, just at the same spot that my tendon used to hurt from Cipro (where it connects to the heel). Immediately I thought, damn it don’t tell me it’s back again, and then I realized I had stepped on a tiny grain of rice on the hard floor.
Let me be clear it felt exactly the same as the Cipro damage used to feel. Not sort of like, exactly the same!
I’ve studied a bit of psychology, and they taught us that there are two streams in the brain that become active when interpreting a sensation: bottom up processes, and top down processes.
When a sensory nerve registers a sensation, it send it to the brain and it enters via the bottom up process. Until now it is just a raw sensation, not yet a perception.
The brain’s job is to assign the sensation a meaning. Basically (a sensation + a meaning = a perception).
While the raw sense data is coming up into the mind via the bottom up channel, the “higher” centres of the brain, that have access to all our memories starts a process called the “top down” process that attempts to assign a meaning to the sense data. To do this it relies on our memories, and also our “state” (how we are feeling right now, our mood, which emotions are in play at the moment, etc…).
The two processes meet in the middle so to speak and finally assign a meaning to the sense data.
This wonderful machine can get it wrong sometimes, sort of like you perceptions can be tricked by an optical illusion.
Now in this example case, the cause was easy to identify, a grain of rice. But in other cases, it’s not as clear.
Just wanted to point out that not all sensations of ‘damage’ indicate actual damage. Also note that our mood and our expectations can strongly affect how we perceive sense data. After struggling with FQ damage, we can become hypervigilant to sensations in the affected body parts, also our mood can be affected, and we become fearful and start to expect the worst.
I’ve learned to look out for these kind of ‘perceptual illusions’ in my recovery.
Sometimes it’s best not to over-interpret every little (or even big) ache or pain that we get. Especially later in our recovery.
A big clue that you may be experiencing this, is if your mood state causes dramatic changes in you pain levels.
Also, a good way to get better at sorting out your sense data is to meditate.
Thx for the reply, Nicole. It sounds like we were both floxed about the same time. I am also 3 mos. out. Was just wondering what ur initial symptoms were and how fast they appeared. I had a hand tendon that swelled up while I was on the drug but didn’t connect the dots. I also developed aching teeth at the same time. My teeth are somewhat better but still ache a little and are VERY sensitive. I’m almost afraid to chew because there has been tooth loss with some. Several wks. after the first symptoms, my legs became very stiff and I developed plantar fasciitis in both feet. Since the plantar fascia is a tendon, I’m sure it’s from the drug. I sure hope it doesn’t get worse. I hope the problem with my legs is tendonitis and it will improve in time. As you know, the mental stress is bad too and I’m sure that stress is not helping us recover. It seems like a lot of people have at least some recovery at a year out. That seems like an eternity when you’re scared. I’m going to check out the PQQ. I am taking Coq 10 which was recommended. Would love to stay in touch since our timeline is the same.
This might be a good question for Lisa. I’m sure we all know people that have taken these nasty drugs (some even more than once or twice) and yet they have no obvious side effects. I know the addition of steroids and NSAIDS seem to exacerbate the effects but many of us didn’t even take steroids and still have adverse effects. Does anyone have any ideas as to why some people are so sensitive to them and others are not? Also wonder if everyone that takes them has the mitochondrial damage. Any thoughts?
Can anyone recommend a brand of PQQ? Also, how much should you take?
Nicole Reedy
8 years ago
Hi Debbie, I had so much upper right stomach/back pain after 1st cipro I passed out & my husband called a ambulance. I laid in the hospital hall for 5 hours before anyone saw me & the dr. did not even look at my pain report & just said the cipro must have just upset my stomach and gave me Avelox because it is a one a day pill. Made me take one on top of the 12 hour cipro I had only 5 hours before and filled me with morphine. I woke up the middle of the next day I was so drugged. My eyes were yellow and I was very sick. I could not get anyone to understand something was wrong so was another before my friend got me to a larger hospital who ran blood work and said my liver enzines were off the charts. I guess I was so nuts I could not make them understand they were fine in the first hospital 3 days before. I was told to stay on avelox but have my blood tested every 3 days to make sure it was not making it any higher. It did not so finished the 10 days on a liver that had acute hepatitis brought on by 1 cipro! Big mistake. I knew my liver was a mess and had a ultrasound of it. Will probably be a year to get it back to normal. Thought that was the worst of it but week 5 my teeth were killing me. changed tooth paste but still did not clue in. The next week it went to my right arm tendon, then left, then feet tendons, now back pain and just about every tendon, bone & muscle has hurt. Some days are better than others. It seems to jump from place to place with the pain being worse on the right side of my body for some reason. How much I do & stress seems to play a big part in it as well as far as pain goes. My teeth do not seem to hurt anymore except maybe a moment of pain that goes right away.
It is true that it seems to take everyone around a year to feel themselves but I think most are getting better around the 6 month period. I know it takes a lot longer to get over the fear than anything because of setbacks. But they usually pass pretty quick compared to the beginning. We are on the same floxed time, 3 months. The fear is awful and I seem to go in & out of it so hang in there! We will beat it! By the way I have had Cipro before and it did give me a C-Diff infection but I was not aware of anything like this!!!
Have faith, I just know you are going to be fine!
My PQQ is from innovitehealth. (:
livingtobehealthy
8 years ago
Please can I share my story? I took Levofloxacin and fast forward 3 years and I just had my 7th nerve surgery on my foot 3 weeks ago, not including the MULTITUDE of central nervous system issues. I was very fit and active now all I think about is suicide. It gets so bad having suicidal thoughts that I find myself abruptly doing things that would make another person say “this person needs to be committed “. In my eyes my life is basically over. The depression becomes so overwhelming that I even (on a whim in one of my depressive states) put a belt around my neck and stopped only because of my only child. I don’t want to be selfish but I also don’t want to have to suffer in pain and CNS issues.
If I am allowed to share my story I would be grateful and will state in more detail what this antibiotic has done to me.
Lastly, I would love to bring to people’s attention the fact that if you took a generic versus name brand antibiotics (actually any generic drug) YOU HAVE NO RECOURSE AT ALL. You are left to suffer. I had an ongoing lawsuit and the moment they were able to determine it was a GENERIC they had to drop my case.
As you can see I have been damaged as well as my family and I now have no recourse for what these monsters have done to me.
livingtobehealthy
8 years ago
I apologize for my post I just posted above. I thought I had to get approval first from the author of this blog before my story could be told (posted) so it was sort of summarized.
L
8 years ago
Hi there livingtobe… First, so sorry for what you have been through. Many of us have had nerve damage. If you want to try something different, IVs of phosphatydilcholine can help with some nerve damage (not usually covered by insurance. I got my from a naturopath.)
As for the generic / no suit, that is based on a supreme court decision from a few years back, but some attorneys are now taking on this beast. So, I don’t know what state you live in, but one firm that is tackling this is TorHoerman. I would contact them, and even if you are in a state that they do not cover, perhaps they could guide you elsewhere. http://www.torhoermanlaw.com/
Yes, the mental nightmare is so so difficult to deal with. I wanted to die for months, and though about suicide everyday for at least 6-10 weeks. But, your life is not over. If you read back over many of these posts you will find things that have helped others. I went from bedridden, underweight, looking 20 years older and needing help to walk, to where I am today, 13 months later—still having some side effects, but out and about and getting back into life. What I might suggest is seeking out either an intergrative doctor or an ND. They will look at more natural options.
Hi,
I’m having all kinds of side effects from cipro including high b.p. spikes, anxiety and depression. Now, I’m having hypoglycemia during the evening and again between 2:00am and 4:00am. It is waking me up, then insomnia. Have to go on short term disability. Has anyone else suffered from hypoglycemia? It is ruining my body, mind and life. Please anyone respond as I am feeling pretty lost and ruined right now. Thank you…
Yes Linda I had a lovely double dose of Cipro & Avelox in hospital! Unfortunately I did not have a nurse who gave a darn so nothing that happened to me was caught until 2 days later when I got to a larger trama hospital in our area. Was still on Avelox for 10 days but no Cipro. I have had GI issues since the first Cipro C-diff problem 9 years ago in the form of IBS but funny that is better. Could be because I take so many probotics since my only fear was getting C-diff again. These drugs have no black box warnings in Canada & none of the side affects are even mentioned. Every druggist I have told about what has happened to me has said they have never heard of a side affect. Yet when I have talked to even strangers at the blood clinic or anywhere I may be I hear all kinds of stories about them or someone they know. Was sitting next to a man when I was telling a friend & he said I know all about it because I lost a kidney on it!
So why are these drs. & druggist so stupid, they have to know! My GP was so nasty about it I got a new Dr. & believe or not he was well informed but knew he could not help except for the liver tests I will have to have for a year.
He spent 45 minutes going through all my supplements & even though he had never hear of PQQ he looked up on the computer & said well it’s working in mice, go for it. What a joy to find him. My NP had not heard of it as well but my chemist had it & is very informed & will compound what we can’t get.
Funny I was put on a satin ( another wonderful drug) 2 years ago and had unbelieve leg spasms for days before I was told to stop it. Was told all would go away after stopping. I had funny feelings, zaps & numb feeling in lower leg & toes. Still have it!!!
Since I have only had 5 IV’s I guess I need to hang in here and keep fighting.
I am happy to hear you are getting back to yourself & hope you find a little job you can enjoy. Being on the steroids really hurt things but in your case you had no choice. I was on a steroid cream but of course did not know that was a problem. Sad we really have to be our own Dr here!
Wishing you more great healing! ????????
Hello Frank B
Yes i use the oil & salt bathes. My stomach has always had a hard time with supplements so I am amazed at the fact I am taking so many with this now! I do take a lot of probotics.
I am fighting a stomach virus I caught from my grandson right now & will not take anything for fear of it making things worse. The IV supplements do not bother me. I would just give anything to get my life back & not be spending everyday just taking supplements, putting on oils, creams, going to NP and praying every moment. I know it takes time but just feeling so tired!
I have read everyone’s story on here and it has given me hope.
– Does anyone get (flutters in their legs all day long) ? I don’t know how else to describe it really sorry…
– Also I feel like I have lost tissue around all my joints, is that something Cipro can do?
Thank you for any help and responses
Angie / Linda – Thank you for the response ( its a weird sensation like someone has a small vibrator on both my legs I also fell like my legs are weaker than before or ( heavy ).
Lisa – Thank you for all the information, I am not sure if I have been Floxed to be honest. I do know that all these symptoms started when I was taking ( Bactrim ) for a UTI and then a week later I got switched to ( Cipro ) because the Bactrim gave me a rash and then everything went down hill from there. I have seen 5 doctors and all kinds of specialist (found noting ) for vision issues at one point (now gone) thank goodness, GI issues loss of appetite which has not changed ( but all test came back normal ). If this is the cause I plan to share my story for sure and help others, as this site has help me keep my sanity since from the outside to everyone I seem mostly fine, but they do not understand all the pins and needles sensations and burning sensations and all sorts of stuff going on inside.
PS: I have a neurologist appointment scheduled for 5/16/16 have been dealing with this since Feb 12 of 2016. I have fears that it can be something else its driving me crazy, but I am keeping as calm as I can.
My hands and arms are always hot at the touch. Flu-like. But my body temperature is normal. I can also sweat normally. Sometimes they ache, but I can deal with it, it’s mild. Why? Then, my left arm, for some reason, is hotter than the right one…
The story of this promising young man and his mental deterioration has both touched me and angered me as well. I too came up against that brick wall, where people in the medical industry refuse to think outside the box. It may not be just the fluoroquinolones either.
Absolutely no one would believe me that on the 7th day of a 10 day Amoxicillin prescription for an infected tooth, my mental state went ballistic. I should explain that I already had (and have) bi-polar depression. But this was over the top. I woke up in a haze one morning to a voice telling me to run into the kitchen, grab a knife and stab myself in the stomach. Thankfully, I became fully awake and stopped in time. My paranoia went over the top. None of my medications seemed to be having any effect. It took more than a month to return to what was normal for me and my mental conditions where the medications were thankfully again effective.
I know Amoxicillin is not in the same family as Levaquin. Nevertheless, there was nothing else to explain the huge exaggeration of my symptoms. When I reported this to the pharmacist and the prescribing doctor, they insisted it was not the antibiotic as this wasn’t one of the side effects listed. It was frustrating beyond belief. I could have followed through and stabbed myself, possibly fatally.
The one who believed me was my psychiatrist. He posited that because antibiotics effect the digestive system (even though I had been eating yogurt etc. in order to minimize this well know attribute of all antibiotics), they interfere with the amount of serotonin being produced in the gut. A study from CalTech has shown that 90% of the body’s serotonin comes from the digestive tract (CalTech publication NOW, April 9, 2015). What other antibiotics may be having this effect? Only upon doing research after my horrible experiences did I find other people on forums in various places on the internet complaining about having psychiatric problems after taking Amoxicillin. Some were very severe, and suicidal ideation was not uncommon. One woman reported trying to cut her wrists using her own fingernails. And the majority had never experienced these severe mental symptoms before.
Doctors leap to prescribe them even before a need has been established. After a sinus procedure which caused some unusual bleeding, the doctor packed the area with gauze padding and then was about to write a prescription for an antibiotic because, as he put it, he wanted to prevent an infection from starting. He got a resounding NO from me-and I never did develop an infection. So far I am refusing any and all antibiotics. I understand they can be lifesavers and if the situation arises again, I don’t know what I will do if there is serious infection present.
Thank you for this information, sad as it is. I feel it has exonerated me regarding my terrible reaction to this drug. For those like myself who are already suffering from mental issues, much thought must be given before prescribing these body altering drugs, and caution should be used in all cases before doctors reach for that prescription pad.
Hi all.I’m seriously thinking about getting a Glutathione push.There is a company
called the I.V. Doc that makes house calls.I was wondering if any of you have
an opinion on Glutathione.Any positive or negative experiences? Also I’ve been
taking the Colostrum now for four days and I’m starting to feel really energetic,
plus I’m getting some relief from some other symptoms like nerve and muscle pain.
Thanks for the replies.They don’t let you choose just Gluta on it’s own,it has to come extra with one of the other IV treatments they provide.I’m going with Saline drip.$275 total.
I’m going to get ripped off, aren’t I…?
I have no choice I guess,I can only find two natural paths nearby that offer this treatment
and of course insurance doesn’t cover it,it only covers the poison.
There is a guy on YouTube who orders it,and does the treament on himself…hmm…
Hi Frank, I do get my push at NP ( of course out of pocket as well ) & my invoice says my push is $70, but I also pay $80 for the visit then $100 for a Bowen treatment. Not much different but I am having more done. She also gives me 30 mins of talking about how I am doing & feeling! Now a IV costs more that a push because of the time. A push only takes 10 minutes & IV 45.
Just came across this—alternatives to commonly prescribed drugs. Worth a look. http://www.realfarmacy.com/the-7-most-prescribed-drugs-in-the-world-and-their-natural-counterparts/
Hey guys,
Just a quick not about something I’ve been noticing in myself more and more lately.
This is going to sound weird, but found I am not very good at identifying the nature of sensations and feelings. I also think this may happen to other people.
Here’s an example.
The other day in the kitchen I got a sharp pain in my heel, just at the same spot that my tendon used to hurt from Cipro (where it connects to the heel). Immediately I thought, damn it don’t tell me it’s back again, and then I realized I had stepped on a tiny grain of rice on the hard floor.
Let me be clear it felt exactly the same as the Cipro damage used to feel. Not sort of like, exactly the same!
I’ve studied a bit of psychology, and they taught us that there are two streams in the brain that become active when interpreting a sensation: bottom up processes, and top down processes.
When a sensory nerve registers a sensation, it send it to the brain and it enters via the bottom up process. Until now it is just a raw sensation, not yet a perception.
The brain’s job is to assign the sensation a meaning. Basically (a sensation + a meaning = a perception).
While the raw sense data is coming up into the mind via the bottom up channel, the “higher” centres of the brain, that have access to all our memories starts a process called the “top down” process that attempts to assign a meaning to the sense data. To do this it relies on our memories, and also our “state” (how we are feeling right now, our mood, which emotions are in play at the moment, etc…).
The two processes meet in the middle so to speak and finally assign a meaning to the sense data.
This wonderful machine can get it wrong sometimes, sort of like you perceptions can be tricked by an optical illusion.
Now in this example case, the cause was easy to identify, a grain of rice. But in other cases, it’s not as clear.
Just wanted to point out that not all sensations of ‘damage’ indicate actual damage. Also note that our mood and our expectations can strongly affect how we perceive sense data. After struggling with FQ damage, we can become hypervigilant to sensations in the affected body parts, also our mood can be affected, and we become fearful and start to expect the worst.
I’ve learned to look out for these kind of ‘perceptual illusions’ in my recovery.
Sometimes it’s best not to over-interpret every little (or even big) ache or pain that we get. Especially later in our recovery.
A big clue that you may be experiencing this, is if your mood state causes dramatic changes in you pain levels.
Also, a good way to get better at sorting out your sense data is to meditate.
Nicole Ready-was just wondering what the PQQ you mentioned is? Also, do you think the IV therapy is the best way to go for supplements?
Thx for the reply, Nicole. It sounds like we were both floxed about the same time. I am also 3 mos. out. Was just wondering what ur initial symptoms were and how fast they appeared. I had a hand tendon that swelled up while I was on the drug but didn’t connect the dots. I also developed aching teeth at the same time. My teeth are somewhat better but still ache a little and are VERY sensitive. I’m almost afraid to chew because there has been tooth loss with some. Several wks. after the first symptoms, my legs became very stiff and I developed plantar fasciitis in both feet. Since the plantar fascia is a tendon, I’m sure it’s from the drug. I sure hope it doesn’t get worse. I hope the problem with my legs is tendonitis and it will improve in time. As you know, the mental stress is bad too and I’m sure that stress is not helping us recover. It seems like a lot of people have at least some recovery at a year out. That seems like an eternity when you’re scared. I’m going to check out the PQQ. I am taking Coq 10 which was recommended. Would love to stay in touch since our timeline is the same.
This might be a good question for Lisa. I’m sure we all know people that have taken these nasty drugs (some even more than once or twice) and yet they have no obvious side effects. I know the addition of steroids and NSAIDS seem to exacerbate the effects but many of us didn’t even take steroids and still have adverse effects. Does anyone have any ideas as to why some people are so sensitive to them and others are not? Also wonder if everyone that takes them has the mitochondrial damage. Any thoughts?
Can anyone recommend a brand of PQQ? Also, how much should you take?
Hi Debbie, I had so much upper right stomach/back pain after 1st cipro I passed out & my husband called a ambulance. I laid in the hospital hall for 5 hours before anyone saw me & the dr. did not even look at my pain report & just said the cipro must have just upset my stomach and gave me Avelox because it is a one a day pill. Made me take one on top of the 12 hour cipro I had only 5 hours before and filled me with morphine. I woke up the middle of the next day I was so drugged. My eyes were yellow and I was very sick. I could not get anyone to understand something was wrong so was another before my friend got me to a larger hospital who ran blood work and said my liver enzines were off the charts. I guess I was so nuts I could not make them understand they were fine in the first hospital 3 days before. I was told to stay on avelox but have my blood tested every 3 days to make sure it was not making it any higher. It did not so finished the 10 days on a liver that had acute hepatitis brought on by 1 cipro! Big mistake. I knew my liver was a mess and had a ultrasound of it. Will probably be a year to get it back to normal. Thought that was the worst of it but week 5 my teeth were killing me. changed tooth paste but still did not clue in. The next week it went to my right arm tendon, then left, then feet tendons, now back pain and just about every tendon, bone & muscle has hurt. Some days are better than others. It seems to jump from place to place with the pain being worse on the right side of my body for some reason. How much I do & stress seems to play a big part in it as well as far as pain goes. My teeth do not seem to hurt anymore except maybe a moment of pain that goes right away.
It is true that it seems to take everyone around a year to feel themselves but I think most are getting better around the 6 month period. I know it takes a lot longer to get over the fear than anything because of setbacks. But they usually pass pretty quick compared to the beginning. We are on the same floxed time, 3 months. The fear is awful and I seem to go in & out of it so hang in there! We will beat it! By the way I have had Cipro before and it did give me a C-Diff infection but I was not aware of anything like this!!!
Have faith, I just know you are going to be fine!
My PQQ is from innovitehealth. (:
Please can I share my story? I took Levofloxacin and fast forward 3 years and I just had my 7th nerve surgery on my foot 3 weeks ago, not including the MULTITUDE of central nervous system issues. I was very fit and active now all I think about is suicide. It gets so bad having suicidal thoughts that I find myself abruptly doing things that would make another person say “this person needs to be committed “. In my eyes my life is basically over. The depression becomes so overwhelming that I even (on a whim in one of my depressive states) put a belt around my neck and stopped only because of my only child. I don’t want to be selfish but I also don’t want to have to suffer in pain and CNS issues.
If I am allowed to share my story I would be grateful and will state in more detail what this antibiotic has done to me.
Lastly, I would love to bring to people’s attention the fact that if you took a generic versus name brand antibiotics (actually any generic drug) YOU HAVE NO RECOURSE AT ALL. You are left to suffer. I had an ongoing lawsuit and the moment they were able to determine it was a GENERIC they had to drop my case.
As you can see I have been damaged as well as my family and I now have no recourse for what these monsters have done to me.
I apologize for my post I just posted above. I thought I had to get approval first from the author of this blog before my story could be told (posted) so it was sort of summarized.
Hi there livingtobe… First, so sorry for what you have been through. Many of us have had nerve damage. If you want to try something different, IVs of phosphatydilcholine can help with some nerve damage (not usually covered by insurance. I got my from a naturopath.)
As for the generic / no suit, that is based on a supreme court decision from a few years back, but some attorneys are now taking on this beast. So, I don’t know what state you live in, but one firm that is tackling this is TorHoerman. I would contact them, and even if you are in a state that they do not cover, perhaps they could guide you elsewhere. http://www.torhoermanlaw.com/
Yes, the mental nightmare is so so difficult to deal with. I wanted to die for months, and though about suicide everyday for at least 6-10 weeks. But, your life is not over. If you read back over many of these posts you will find things that have helped others. I went from bedridden, underweight, looking 20 years older and needing help to walk, to where I am today, 13 months later—still having some side effects, but out and about and getting back into life. What I might suggest is seeking out either an intergrative doctor or an ND. They will look at more natural options.