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L
8 years ago
that should read my brain WASN”T put the two images together. BTW if your blurriness is only in the morning and then goes away, that’s pretty good. Many people have that normally, from dried tears, allergies, the cornea swelling overnight, and some other reasons.
Frank B
8 years ago
Lisa please delete my post from May 20,that shows my email.
Is anyone else seeing this?
Nicole Reedy
8 years ago
I have a question for anyone. I am 15 weeks since Floxing and and 10 weeks since the tendon part started. Most of you know my story and I have been on the Fluoroquinolone Toxicity Solution and working with a Naturopath for 8 weeks. I do vit. C, B’s, mag. & a glutathione push weekly & a Bowen Treatment. From the beginning I would have a good day in the week then fall back then maybe 3 days the next time until the week before last and I had livable pain for a week & was so excited for my treatment. We had been going slow with the glutathione because of some of you saying it can make you feel worse for a while. I had assumed that was maybe flu like symtoms. We moved her up to 5cc’s last week and were going to do 7 and a half this week then hit the 10 next week. The problem is as good as that week had been this has been the worse ever. I do have body wide tendon, muscle & joint pain but kind of comes & goes in different areas. This week I am in crazy pain & every tendon in my feet are killing me. I did see my GP & he did not feel my feet are in need of any more testing at the moment but thinks my right rotator cuff may be torn & has sit up a ultrasound for that & my liver again. Now my Question is this. I have not done anything different do understand the ups & downs but can not figure out how I can go from the best week to the worst! Could it be upping my glutathione or is this just part of this craziness?!
Would just like to add my new Dr. is great and admits to all of our craziness but I was just reading my request paper for the ultrasound and his notes say, history of drug induced hepatitis from Cipro and R/O rotator cuff tear from cipro toxicity. Now if the medical field was not aware of this the ultrasound tecs would be saying, whats he talking about??!!!
Virginia
8 years ago
My Lyme doctor, who prescribed my Cipro, said the Cipro alone wasn’t to blame, but only exacerbated my already existing Ehlers-Danlos recessive gene he thinks I have. I said that I had never had any tendon problems before the Cipro, and had none of the classic EDS symptoms: joint hypermobility and skin elasticity. He replied that if I had just one copy of the gene mutation (my grandmother and a cousin had full-blown EDS) then I could be normally symptom free, but susceptible to tendon rupture, and the Cipro would push this over the brink. He said NONE of his other thousands of patients have had tendon ruptures with Cipro. When I said some only show up months or years later, he said he follows his patients for years and would have noticed. Could this be true, or is he lying to cover himself? My research shows EDS can tear tendons. So do all the thousands of Cipro tendon victims all have recessive EDS genes, or is he just trying to wiggle out of responsibility? I’d appreciate feedback, from Lisa too!
Bruce Brannan
8 years ago
Anyone have issues with Rosacea like symptoms around nose and eyebrows??? I have used Ketoconazole 2% cream and also Coconut oil but it keeps coming back. I picked up some Prosacea this morning and will give it a try.
Hey folks
I am very scared and still having plenty issues since my 2 pills of Levo 7 months ago.
I have burning muscle tension pains in my forearms, wrists and ankles.
I have horrible sound sensitivity with tensing ears and burning
I have bad insomnia where I feel I just can’t sleep sometimes.
Fear and anxiety in waves
Electrical hiss in my left ear.
I was on a low dose of Valium for 5 weeks shortly before the Levo and I was told that my side effects are as a result of the interaction.
Will this get better ?
I’m really scared
carol
8 years ago
Hello,
. Thank you to all who have responded to my initial post. I have been very under the weather and have not been online. ………I was floxed and am now suffering like others. My symptoms are dizziness, huge anxiety, depression, hypoglycemia, and now they have found a nodule on my liver stating most likely benign……..of course my monkey anxious mind is on overdrive. I take some ativan but refuse to go higher on the dose. Also on clonidine patch for high blood pressure. ….compliments of cipro…….can anyone advise me what natural supplement could help calm this horrible anxiety? Thank you so much……p.s…….very scared but keeping up hope. …….
Mark S
8 years ago
Hi Everyone,
It’s been a while since I’ve posted. Mainly because I’ve been so busy with living life and not thinking about being a Floxie. I can honestly say that things are getting so much better. I’m fully enjoying life again. My pain is slowly but surely going away. I can walk and stand for however long I want to. Left Achilles seems to be recovering nicely. Knees are still crunchy but I’m hopeful that will resolve in time. My stomach seems to be going back to normal. Tinnitus is pretty much gone. Honestly, I feel almost back to a state of baseline health and I am so thankful for that. I’m going out with friends, meeting new people, getting noticed at my job, just a complete turnaround from where I used to be. It gets better, it really does.
Hello, I have been reading recovery stories on this site for quiet some time now. I was 20 months out and feeling almost normal again, so I started working out and doing heavy lifting in the yard and I took a turn back in time. I started having some issues with tight feeling around the rib cage, difficultly breathing/eating and back/neck pain like when I was initially floxed in Aug 2014. I didn’t get all the the symptoms again but pain is pain so I’m feeling it now. I know there are people who relapsed after working out and I think that maybe common?
L, I’m happy to hear you are recovering. I think I survived the initial floxing thanks to the chiropractor/massage and acupuncture. That was all I did with a few supplements for months and thought I was better. I could always walk 1.5 miles even when I felt like my head was going to fall off of my shoulder. So beginning of April I increased my workout by 2 and felt breathing/swallowing issues. Then the end of April I dug a hole with a 16 lb sandbar and that’s what finally did it. After reading the recovery stories I now know people start really slowly and in small increments. My chiropractor now wants me to do several detox programs over the course of a few months however I’m a little wary because I hear it can cause another flare before it gets better.
Daniel L
8 years ago
If anyone feels like chatting today, I’m on skype (daniel.lavoie13).
I am now 7 months out and i am getting very bad insomnia where i am tired but when i start drifting off to sleep i get jolted awake. any tips on how to handle this and what helps? Its been a while and i cant get any sleep.
Like F,
I have a similar question about antibiotics. I recently had a uti that was resistant to amoxicillin, switched to cefdinir. While on cefdinir ,I seemed to develop another uti (don’t ask!) prbly of a different strain of e.coli now resistant to both penicillin and cephalasporins. So what are my options now?? Macrobid? Bactrim???
If FQ’s were my only option left, I’d have to choose death in this case….I honestly would. After 19 months,I feel like im 90% recovered. I can’t go through this again,,was bad enough the first time .
For the record, I’ve been trying every natural remedy I can think of for last 24 hours. Nothing works for this f*cking uti
Frank B
8 years ago
I didn’t know POSTAKE enlarged disease was deadly!! I guess they just call it benign
for the hell of it.I should let my uncle know,he’s had it for twenty two years.Thank God
there are such talented doctors coming from Nigeria.Plus all the generous Counts and Dukes.My friend inherited a diamond mine from one yesterday…
lmr51446
8 years ago
I was floxed in October of 2015. Every time I try any type of exercise, even if it is just walking my dog (slowly) the tendons in my aches tighten up terribly and well as the achilles tendon on my right side. Then that night I will get tingling in the arches of my feet and then hellacious foot cramps. Any input in dealing with this? Thanks
lmr51446
8 years ago
I meant arches
lmr51446
8 years ago
THANK YOU LISA
Stephanie
8 years ago
So I have been off of here for months because I’m getting worse no it’s not my thyroid. I still have no disability pay if not for my amazing boyfriend I would be homeless I can’t afford an advocate. I can’t get the one cellular neurologist in Washington state to talk to me. I am now to the point where I have paralysis of my muscles and lay and spasm yet I can’t get any disability pay my hair is falling out still. My boyfriend is working his ass off at work and then coming home to help me. I am scared I’m going to die when he is at work and no one can help me everyone is puzzled my body is swelling and every ct scan and MRI says I’m fine I can barely speak and I have choking fits. Please don’t bring up my thyroid I’ve had it tested countless times. I only came back on here because I truly believe I’m dying in 35 and I’m dying. It’s not fair it’s not right. I have cried on the phones to Drs and no one cares to the disability and social security no one cares. I am begging someone to please help me find an advocate before I die. I am begging anyone on this site to help me connect me to a good disability lawyer who won’t make me wait. I’m dying and these Drs don’t care. I have lost all hope. This isn’t fair I’m only 35.
Stephanie
Are you sure what you describe (minus the choking sensation) isn’t peripheal neurapothy? I have heard that can cause feelings of complete paralysis at times. I relapsed in January of this year and experienced tons of neurapothy symptoms….beginning w pain in my feet , muscle weakness, burning skin, itchy skin, abnormal temp sensations in legs, burning scalp, loss of coordination in limbs, numbness, and feeling paralyzed at night, finding it difficult just to turn on my side at night. Everything felt heavy. At the present moment, all of this is gone. I feel almost completely back to normal..no more pain or weird sensations whatsoever anymore. At least for now:)
I just want to leave this nightmare behind and move on w my life….focus on my daughter and my job. I feel like I’m at a point now where I can FINALLY do this.
I hope things get better for you Steph….
I was helped greatly by high doses of R-ala and L carnitine along w essential oils .
Hang in there Steph!!!
Rob
8 years ago
My beautiful Mother has died. After her last dose of antibiotics in November 2015 and through complications that the hospital refused to acknowledge, Mom was prescribed drugs which caused further problems. In Dec 2015 Mom was admitted to hospital for the final time, she was held against her and my will, I was stripped of my caregiver and decision maker rights, Mom was put into a dangerous,abusive atmosphere in the hospital, on the same drug that she had problems with plus an antipsychotic drug.after two months of anguish Mom was forced into a long term care facility far from home, once against her will although she was already too drugged and weak to fight, her voice was ignored as was mine. My beautiful Mother died of pneumonia.
I am leaving out many details, I did try to get help for her but the hospital fought back hard.
Good bye Mother I love you.
Rob
that should read my brain WASN”T put the two images together. BTW if your blurriness is only in the morning and then goes away, that’s pretty good. Many people have that normally, from dried tears, allergies, the cornea swelling overnight, and some other reasons.
Lisa please delete my post from May 20,that shows my email.
Is anyone else seeing this?
I have a question for anyone. I am 15 weeks since Floxing and and 10 weeks since the tendon part started. Most of you know my story and I have been on the Fluoroquinolone Toxicity Solution and working with a Naturopath for 8 weeks. I do vit. C, B’s, mag. & a glutathione push weekly & a Bowen Treatment. From the beginning I would have a good day in the week then fall back then maybe 3 days the next time until the week before last and I had livable pain for a week & was so excited for my treatment. We had been going slow with the glutathione because of some of you saying it can make you feel worse for a while. I had assumed that was maybe flu like symtoms. We moved her up to 5cc’s last week and were going to do 7 and a half this week then hit the 10 next week. The problem is as good as that week had been this has been the worse ever. I do have body wide tendon, muscle & joint pain but kind of comes & goes in different areas. This week I am in crazy pain & every tendon in my feet are killing me. I did see my GP & he did not feel my feet are in need of any more testing at the moment but thinks my right rotator cuff may be torn & has sit up a ultrasound for that & my liver again. Now my Question is this. I have not done anything different do understand the ups & downs but can not figure out how I can go from the best week to the worst! Could it be upping my glutathione or is this just part of this craziness?!
Would just like to add my new Dr. is great and admits to all of our craziness but I was just reading my request paper for the ultrasound and his notes say, history of drug induced hepatitis from Cipro and R/O rotator cuff tear from cipro toxicity. Now if the medical field was not aware of this the ultrasound tecs would be saying, whats he talking about??!!!
My Lyme doctor, who prescribed my Cipro, said the Cipro alone wasn’t to blame, but only exacerbated my already existing Ehlers-Danlos recessive gene he thinks I have. I said that I had never had any tendon problems before the Cipro, and had none of the classic EDS symptoms: joint hypermobility and skin elasticity. He replied that if I had just one copy of the gene mutation (my grandmother and a cousin had full-blown EDS) then I could be normally symptom free, but susceptible to tendon rupture, and the Cipro would push this over the brink. He said NONE of his other thousands of patients have had tendon ruptures with Cipro. When I said some only show up months or years later, he said he follows his patients for years and would have noticed. Could this be true, or is he lying to cover himself? My research shows EDS can tear tendons. So do all the thousands of Cipro tendon victims all have recessive EDS genes, or is he just trying to wiggle out of responsibility? I’d appreciate feedback, from Lisa too!
Anyone have issues with Rosacea like symptoms around nose and eyebrows??? I have used Ketoconazole 2% cream and also Coconut oil but it keeps coming back. I picked up some Prosacea this morning and will give it a try.
Hey folks
I am very scared and still having plenty issues since my 2 pills of Levo 7 months ago.
I have burning muscle tension pains in my forearms, wrists and ankles.
I have horrible sound sensitivity with tensing ears and burning
I have bad insomnia where I feel I just can’t sleep sometimes.
Fear and anxiety in waves
Electrical hiss in my left ear.
I was on a low dose of Valium for 5 weeks shortly before the Levo and I was told that my side effects are as a result of the interaction.
Will this get better ?
I’m really scared
Hello,
. Thank you to all who have responded to my initial post. I have been very under the weather and have not been online. ………I was floxed and am now suffering like others. My symptoms are dizziness, huge anxiety, depression, hypoglycemia, and now they have found a nodule on my liver stating most likely benign……..of course my monkey anxious mind is on overdrive. I take some ativan but refuse to go higher on the dose. Also on clonidine patch for high blood pressure. ….compliments of cipro…….can anyone advise me what natural supplement could help calm this horrible anxiety? Thank you so much……p.s…….very scared but keeping up hope. …….
Hi Everyone,
It’s been a while since I’ve posted. Mainly because I’ve been so busy with living life and not thinking about being a Floxie. I can honestly say that things are getting so much better. I’m fully enjoying life again. My pain is slowly but surely going away. I can walk and stand for however long I want to. Left Achilles seems to be recovering nicely. Knees are still crunchy but I’m hopeful that will resolve in time. My stomach seems to be going back to normal. Tinnitus is pretty much gone. Honestly, I feel almost back to a state of baseline health and I am so thankful for that. I’m going out with friends, meeting new people, getting noticed at my job, just a complete turnaround from where I used to be. It gets better, it really does.
Hello, I have been reading recovery stories on this site for quiet some time now. I was 20 months out and feeling almost normal again, so I started working out and doing heavy lifting in the yard and I took a turn back in time. I started having some issues with tight feeling around the rib cage, difficultly breathing/eating and back/neck pain like when I was initially floxed in Aug 2014. I didn’t get all the the symptoms again but pain is pain so I’m feeling it now. I know there are people who relapsed after working out and I think that maybe common?
L, I’m happy to hear you are recovering. I think I survived the initial floxing thanks to the chiropractor/massage and acupuncture. That was all I did with a few supplements for months and thought I was better. I could always walk 1.5 miles even when I felt like my head was going to fall off of my shoulder. So beginning of April I increased my workout by 2 and felt breathing/swallowing issues. Then the end of April I dug a hole with a 16 lb sandbar and that’s what finally did it. After reading the recovery stories I now know people start really slowly and in small increments. My chiropractor now wants me to do several detox programs over the course of a few months however I’m a little wary because I hear it can cause another flare before it gets better.
If anyone feels like chatting today, I’m on skype (daniel.lavoie13).
I’ll try and leave it on all day.
I am now 7 months out and i am getting very bad insomnia where i am tired but when i start drifting off to sleep i get jolted awake. any tips on how to handle this and what helps? Its been a while and i cant get any sleep.
Thanks
Like F,
I have a similar question about antibiotics. I recently had a uti that was resistant to amoxicillin, switched to cefdinir. While on cefdinir ,I seemed to develop another uti (don’t ask!) prbly of a different strain of e.coli now resistant to both penicillin and cephalasporins. So what are my options now?? Macrobid? Bactrim???
If FQ’s were my only option left, I’d have to choose death in this case….I honestly would. After 19 months,I feel like im 90% recovered. I can’t go through this again,,was bad enough the first time .
For the record, I’ve been trying every natural remedy I can think of for last 24 hours. Nothing works for this f*cking uti
I didn’t know POSTAKE enlarged disease was deadly!! I guess they just call it benign
for the hell of it.I should let my uncle know,he’s had it for twenty two years.Thank God
there are such talented doctors coming from Nigeria.Plus all the generous Counts and Dukes.My friend inherited a diamond mine from one yesterday…
I was floxed in October of 2015. Every time I try any type of exercise, even if it is just walking my dog (slowly) the tendons in my aches tighten up terribly and well as the achilles tendon on my right side. Then that night I will get tingling in the arches of my feet and then hellacious foot cramps. Any input in dealing with this? Thanks
I meant arches
THANK YOU LISA
So I have been off of here for months because I’m getting worse no it’s not my thyroid. I still have no disability pay if not for my amazing boyfriend I would be homeless I can’t afford an advocate. I can’t get the one cellular neurologist in Washington state to talk to me. I am now to the point where I have paralysis of my muscles and lay and spasm yet I can’t get any disability pay my hair is falling out still. My boyfriend is working his ass off at work and then coming home to help me. I am scared I’m going to die when he is at work and no one can help me everyone is puzzled my body is swelling and every ct scan and MRI says I’m fine I can barely speak and I have choking fits. Please don’t bring up my thyroid I’ve had it tested countless times. I only came back on here because I truly believe I’m dying in 35 and I’m dying. It’s not fair it’s not right. I have cried on the phones to Drs and no one cares to the disability and social security no one cares. I am begging someone to please help me find an advocate before I die. I am begging anyone on this site to help me connect me to a good disability lawyer who won’t make me wait. I’m dying and these Drs don’t care. I have lost all hope. This isn’t fair I’m only 35.
Stephanie
Are you sure what you describe (minus the choking sensation) isn’t peripheal neurapothy? I have heard that can cause feelings of complete paralysis at times. I relapsed in January of this year and experienced tons of neurapothy symptoms….beginning w pain in my feet , muscle weakness, burning skin, itchy skin, abnormal temp sensations in legs, burning scalp, loss of coordination in limbs, numbness, and feeling paralyzed at night, finding it difficult just to turn on my side at night. Everything felt heavy. At the present moment, all of this is gone. I feel almost completely back to normal..no more pain or weird sensations whatsoever anymore. At least for now:)
I just want to leave this nightmare behind and move on w my life….focus on my daughter and my job. I feel like I’m at a point now where I can FINALLY do this.
I hope things get better for you Steph….
I was helped greatly by high doses of R-ala and L carnitine along w essential oils .
Hang in there Steph!!!
My beautiful Mother has died. After her last dose of antibiotics in November 2015 and through complications that the hospital refused to acknowledge, Mom was prescribed drugs which caused further problems. In Dec 2015 Mom was admitted to hospital for the final time, she was held against her and my will, I was stripped of my caregiver and decision maker rights, Mom was put into a dangerous,abusive atmosphere in the hospital, on the same drug that she had problems with plus an antipsychotic drug.after two months of anguish Mom was forced into a long term care facility far from home, once against her will although she was already too drugged and weak to fight, her voice was ignored as was mine. My beautiful Mother died of pneumonia.
I am leaving out many details, I did try to get help for her but the hospital fought back hard.
Good bye Mother I love you.
Rob