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Dean
10 years ago
Does anyone experience mild flank pain? Like in the kidney region or below the ribcage?
Dean
jb
10 years ago
hi dean, i had this for a while, but noticed it had to do with me taking a supplement called curcumen 94 from jarrow. so i felt it had to do with the turmeric and switched to boswelia and it went away. i had it in both the kidney region and below the ribcage, but again, the switch did it for me. could be many things i suppose but that was the culprit for me…
Dean
10 years ago
Just had a huge setback. Was feeling great until last night when I was experiencing flank pain and dizziness. I woke up this morning and my achilies were painful along with my knees. I am devastated. I tool pyranol pamaote to treat my anal itching and im guessing the cipro has reacted to it. Im 3 months post being floxed and had been improving day by day to the point I almost felt back to normal. Has anyone else had setbacks like this?
Dean
10 years ago
Cheers Cd! Yeah so gutting! I know time will eventually heal me but im young and want to live my life! Yeah Im going to cut back on the supplements! Does anyone know if its safe to use hydrocortisone cream?
Dean
10 years ago
Ah right I bet thats tough! I just have myself to worry about and thats tough! Like a constant ache like standing on a marble. The knees are sore occasionally but not a severe pain. Hoping it doesnt last long and I begin to heal as I hope you heal soon too
Dean
10 years ago
I dont really get headaches but I suffer from severe anxiety attacks where I think I am dying from an ilness I believe I have. It has turned me into a hypochondriac 🙁
Has anyone experienced transfer of pain/numbness from one side to another side? Say, you are feeling pain at right arm in morning but turning night, the pain went to left ?
Jb
10 years ago
Re hydrocortisone . I have used a cream called traumeel which made the pain in Achilles and groin go away completely while I use it. I’m now using it for a skin rash that just showed up. For those asking about reactions–I’m 11 months post flox and my journey has been two steps forward and 3 steps back the whole way. It get better for a couple months, think I’m almost recovered, then something happens and I can barely walk again. At 8 months I considered myself 85% recovered and then bam! I decide to do upper body exercises, a little yoga, and then at night sudden weakness, massive pain in my groin tendons, a trip to ucla emergency room, next day knee and Achilles pain, then 2 months later, my hips have fluid on them and ny knees and Achilles better but hips feel like I was hit by a truck and can barely walk around my house. Pretty sad to think 1 year ago I was biking miles around Paris France daily and now can’t leave my house and have to sit most of the day. But I do believe ill fully recover and that we all will too. As lisa says, meditation is very helpful. Recently I felt another reaction coming on, sudden terrible weakness in the morning, and I just meditated right through it and got a ton of nutrition in my body right away and it seemed to subside and I feel like I beat it I think that’s the key. No stress, meditation, nutrition. Rest.
Alex
10 years ago
A week after taking cipro, I am having burn sensations in my arms, legs, hands and neck.
Went to the doctors, told me I have tendonitis and that it should resolve within 3-6 weeks. Any hope to that statement? I took cipro in the past back in 2011 and Jan of 2014 with no side effects.
Upon researching online, I am now on:
Magnesium,
Fish oil
Probiotic
multi-vitamin.
Also, I have been having trouble sleeping the past 2 nights. Any ideas for a remedy in addition to meditation. Valerian root?
Thanks
Alex
jb
10 years ago
Has anyone developed skin rashes that resemble lyme? they seem to be 3 or 4 cm in diameter and at the center is a circle of dried skin. I developed 2 on different parts of my body in the past week. i saw my dr for them and he said they resemble eczema and were probably caused by stress (ie fluoroquinolones, to those doc nonbelievers) And if so, did they eventually go away?
Paris
10 years ago
I mean old age increases the risk of internal problems.
jb
10 years ago
i hope you all won’t mind if i chime in here since there are newly floxed or possibly floxed. right after my 10 day round of levaquin i began having what felt like “leaky gut” or that my gut was badly damaged by the fq’s. i went to a naturapath and of course, this was the case. It took me a few months before i saw her, but she told me to take l-glutamine right away as that works on a cellular level to repair gut tissue (maybe muscle tissue, i don’t know). Though I’ve had a difficult journey with my fq poisoning, as i know many of us have, but i do this this helped me tremendously and i felt the “leaky gut” disappear in just a couple weeks. then i was better able to absorb nutrition and vitamins. Alex and Paris, only time will tell, but I do think nutrition plays a key part in healing (my own opinion) and the quicker you deal with any possible gut damage from fq’s and get on a regimen of good nutrition and possibly vitamins, from my many conversations with other floxies (and yes, some people believe vitamins were not helpful and they fully recovered, but it seems the majority of those who recover stick to a good program of high quality nutrition. and also, don’t over do things like walking and exercise in the beginning if you believe you have been impacted by these drugs.
Alex
10 years ago
Hi Everyone… thanks for all the warm support!… I truly appreciate it and all the advice… hopefully I am able to get some sleep tonight. I am still pretty anxious though :/ … hoping for the best! 🙂
CD and anyone else who wants to hear my thoughts about supplements – I feel a huge amount of ambivalence about supplements. I still feel a lot of how I felt when I wrote this post about supplementing after FQ toxicity – https://floxiehope.com/2013/07/22/taking-supplements-after-fluoroquinolone-toxicity/ I still take quite a few supplements. The ones I currently take that I think help me are magnesium, iron, brewer’s yeast, a vitamin E mix, lecithin, cod liver oil and raw crushed garlic. I take some others that I’m not sure whether or not they help me. I recommend the food ones – garlic, brewer’s yeast and cod liver oil almost without reservation, but even though I like the others enough to spend money on them, I certainly can see both the point of view that it’s just another pill that is hard for your liver and kidneys to break down, and I can also see the point of view that our bodies are depleted of vitamins and minerals and that supplementation is necessary for a return to health. I also like the thought that there are supplements that our mitochondria can use as tools to help them repair themselves, but I can also see the perspective that the reactions in our mitochondria are too complex to “fix” with antioxidant supplements and that the evidence behind their efficacy is not the most solid. I try to ween myself off of my supplements every once in a while then I freak out when I feel even a tiny bit off and start taking them again. Ahhh… ambivalence… it’s tons of fun. 🙂
I know that there are people who have had a huge amount of healing while taking supplements and there are people who have had a huge amount of healing without taking supplements. All routes are valid.
B
10 years ago
@Jarene
My pain was moving from one side to another symmetrically in my first 2 months of worst reactions.
I think this is normal. Do not panic 🙂
Catherine
10 years ago
My GP has given me sublingual cyanocobalamin B12 spray. I think I read somewhere that floxies should not use this – it’s the wrong kind of B12 – but I can’t find the reference now. Can anyone advise whether this is ok for me to take? Thanks
Hi Bo, thanks so much for your interesting
I just rubbed the new arnica gel over my 80 years old shoulder and
Thankfully with your hope again, i can now sleep with better peace 🙂
Will type more when hands turn 20 years again
Xoxo
Jarene
Anter 16 years that I took Cirpo, when I was about 30 years old, today I suffer the work impacts. Inititally I suffered from Feet, Knee, and Hip joints. Now hands and shoulders for the past 3 months. I cant lift my hands competely. I cant throw anything. I used to be very atheletic and play volleyball. This poison destroyes all you tendons and make your joints, muscles, entire sceletion very loose, as if it is falling apart. The destruction and impacts are felts decades after and first parts to get impact are the ones that take most stress- feet, then knees, then hips, then hands, wrists and then shoulders, etc….. CIPRO IS A PRESCRIPTION FOR LIFE SENTENSE. AND YOU ARE CONDEMED FOR LIFE. (YJJ)
Does anyone experience mild flank pain? Like in the kidney region or below the ribcage?
Dean
hi dean, i had this for a while, but noticed it had to do with me taking a supplement called curcumen 94 from jarrow. so i felt it had to do with the turmeric and switched to boswelia and it went away. i had it in both the kidney region and below the ribcage, but again, the switch did it for me. could be many things i suppose but that was the culprit for me…
Just had a huge setback. Was feeling great until last night when I was experiencing flank pain and dizziness. I woke up this morning and my achilies were painful along with my knees. I am devastated. I tool pyranol pamaote to treat my anal itching and im guessing the cipro has reacted to it. Im 3 months post being floxed and had been improving day by day to the point I almost felt back to normal. Has anyone else had setbacks like this?
Cheers Cd! Yeah so gutting! I know time will eventually heal me but im young and want to live my life! Yeah Im going to cut back on the supplements! Does anyone know if its safe to use hydrocortisone cream?
Ah right I bet thats tough! I just have myself to worry about and thats tough! Like a constant ache like standing on a marble. The knees are sore occasionally but not a severe pain. Hoping it doesnt last long and I begin to heal as I hope you heal soon too
I dont really get headaches but I suffer from severe anxiety attacks where I think I am dying from an ilness I believe I have. It has turned me into a hypochondriac 🙁
Hi Cd
Im trying to see if dosage is related to severity of floxed. Its too complex to even find a corelation.
I hv read people get bed bound for just a few pills and yet some are moderately floxed with 100 pills.
Some take rounds of FQ and never get hit too.
I concluded one ability to heal on top of “seeking help” has to be Luck and gods will
Has anyone experienced transfer of pain/numbness from one side to another side? Say, you are feeling pain at right arm in morning but turning night, the pain went to left ?
Re hydrocortisone . I have used a cream called traumeel which made the pain in Achilles and groin go away completely while I use it. I’m now using it for a skin rash that just showed up. For those asking about reactions–I’m 11 months post flox and my journey has been two steps forward and 3 steps back the whole way. It get better for a couple months, think I’m almost recovered, then something happens and I can barely walk again. At 8 months I considered myself 85% recovered and then bam! I decide to do upper body exercises, a little yoga, and then at night sudden weakness, massive pain in my groin tendons, a trip to ucla emergency room, next day knee and Achilles pain, then 2 months later, my hips have fluid on them and ny knees and Achilles better but hips feel like I was hit by a truck and can barely walk around my house. Pretty sad to think 1 year ago I was biking miles around Paris France daily and now can’t leave my house and have to sit most of the day. But I do believe ill fully recover and that we all will too. As lisa says, meditation is very helpful. Recently I felt another reaction coming on, sudden terrible weakness in the morning, and I just meditated right through it and got a ton of nutrition in my body right away and it seemed to subside and I feel like I beat it I think that’s the key. No stress, meditation, nutrition. Rest.
A week after taking cipro, I am having burn sensations in my arms, legs, hands and neck.
Went to the doctors, told me I have tendonitis and that it should resolve within 3-6 weeks. Any hope to that statement? I took cipro in the past back in 2011 and Jan of 2014 with no side effects.
Upon researching online, I am now on:
Magnesium,
Fish oil
Probiotic
multi-vitamin.
Also, I have been having trouble sleeping the past 2 nights. Any ideas for a remedy in addition to meditation. Valerian root?
Thanks
Alex
Has anyone developed skin rashes that resemble lyme? they seem to be 3 or 4 cm in diameter and at the center is a circle of dried skin. I developed 2 on different parts of my body in the past week. i saw my dr for them and he said they resemble eczema and were probably caused by stress (ie fluoroquinolones, to those doc nonbelievers) And if so, did they eventually go away?
I mean old age increases the risk of internal problems.
i hope you all won’t mind if i chime in here since there are newly floxed or possibly floxed. right after my 10 day round of levaquin i began having what felt like “leaky gut” or that my gut was badly damaged by the fq’s. i went to a naturapath and of course, this was the case. It took me a few months before i saw her, but she told me to take l-glutamine right away as that works on a cellular level to repair gut tissue (maybe muscle tissue, i don’t know). Though I’ve had a difficult journey with my fq poisoning, as i know many of us have, but i do this this helped me tremendously and i felt the “leaky gut” disappear in just a couple weeks. then i was better able to absorb nutrition and vitamins. Alex and Paris, only time will tell, but I do think nutrition plays a key part in healing (my own opinion) and the quicker you deal with any possible gut damage from fq’s and get on a regimen of good nutrition and possibly vitamins, from my many conversations with other floxies (and yes, some people believe vitamins were not helpful and they fully recovered, but it seems the majority of those who recover stick to a good program of high quality nutrition. and also, don’t over do things like walking and exercise in the beginning if you believe you have been impacted by these drugs.
Hi Everyone… thanks for all the warm support!… I truly appreciate it and all the advice… hopefully I am able to get some sleep tonight. I am still pretty anxious though :/ … hoping for the best! 🙂
CD and anyone else who wants to hear my thoughts about supplements – I feel a huge amount of ambivalence about supplements. I still feel a lot of how I felt when I wrote this post about supplementing after FQ toxicity – https://floxiehope.com/2013/07/22/taking-supplements-after-fluoroquinolone-toxicity/ I still take quite a few supplements. The ones I currently take that I think help me are magnesium, iron, brewer’s yeast, a vitamin E mix, lecithin, cod liver oil and raw crushed garlic. I take some others that I’m not sure whether or not they help me. I recommend the food ones – garlic, brewer’s yeast and cod liver oil almost without reservation, but even though I like the others enough to spend money on them, I certainly can see both the point of view that it’s just another pill that is hard for your liver and kidneys to break down, and I can also see the point of view that our bodies are depleted of vitamins and minerals and that supplementation is necessary for a return to health. I also like the thought that there are supplements that our mitochondria can use as tools to help them repair themselves, but I can also see the perspective that the reactions in our mitochondria are too complex to “fix” with antioxidant supplements and that the evidence behind their efficacy is not the most solid. I try to ween myself off of my supplements every once in a while then I freak out when I feel even a tiny bit off and start taking them again. Ahhh… ambivalence… it’s tons of fun. 🙂
I know that there are people who have had a huge amount of healing while taking supplements and there are people who have had a huge amount of healing without taking supplements. All routes are valid.
@Jarene
My pain was moving from one side to another symmetrically in my first 2 months of worst reactions.
I think this is normal. Do not panic 🙂
My GP has given me sublingual cyanocobalamin B12 spray. I think I read somewhere that floxies should not use this – it’s the wrong kind of B12 – but I can’t find the reference now. Can anyone advise whether this is ok for me to take? Thanks
Hi Bo, thanks so much for your interesting
I just rubbed the new arnica gel over my 80 years old shoulder and
Thankfully with your hope again, i can now sleep with better peace 🙂
Will type more when hands turn 20 years again
Xoxo
Jarene
Typo – interesting insight
Anter 16 years that I took Cirpo, when I was about 30 years old, today I suffer the work impacts. Inititally I suffered from Feet, Knee, and Hip joints. Now hands and shoulders for the past 3 months. I cant lift my hands competely. I cant throw anything. I used to be very atheletic and play volleyball. This poison destroyes all you tendons and make your joints, muscles, entire sceletion very loose, as if it is falling apart. The destruction and impacts are felts decades after and first parts to get impact are the ones that take most stress- feet, then knees, then hips, then hands, wrists and then shoulders, etc….. CIPRO IS A PRESCRIPTION FOR LIFE SENTENSE. AND YOU ARE CONDEMED FOR LIFE. (YJJ)