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Lee Pfeiffer R.N.B.S.
8 years ago
I do no do social media, I have been floxed over and over since 1990 and it continues because every time I undergo general anesthesia, the anesthetic synthesizes to Fluoride which is the culprit in the Fluoroquinolones. I need research papers that prove the damage done by Fluorides. I believe the only way I can convince my new pain doctor that the damage is real and the pain it causes is real. I would appreciate any leads you may have.
faisal alkhaldi
8 years ago
Hi all,
I had floxied befor 7 month tell now i have fast heart any one can help me please i go to hospital many time the said no problem in your body just take xanax till now i have fast heart i take mag and vitamin C , D calcium d3 , A
Just i take one pill (Avelox) 500 before 7 month
Any help
Angie A.
8 years ago
So, I’m about 4 months into this flox crap. My muscles and tendons are finally showing signs of healing, I have really good days and then bad days where I feel I’ve lost so much progress. I have been reacting very poorly to many different foods, from McDonalds (duh) to certain vegetables, etc. The reaction being, racing heartbeat, elevated pulse (100+ bpm) for hours afterward. I did a lot of research and the common element may be foods with high glutamate levels, well, that and foods that dampen the system that breaks down glutamate naturally. But either way, I see progress on that front as well.
But now, for about a month or so, I’ve had loss of smell and taste to a great degree, as well as a burning sensation on the front/tip portion of my tongue. I’ve read about that in particular and it’s common in menopause and pre-menopause (which I am) but funny how it started a month or so into being floxed.
I’m just curious if anyone else has had any of these strange residual symptoms?
Jane
8 years ago
Has anyone experienced hair loss from Levaquin? I hear yes and no and hoping somebody has had this! I read that these drugs can deplete the body of specific vitamins and cause hair loss? It seems too much of a cooincidence that it started a month after my last round of it. I had hair loss due to a blood infection & once diagnosed and given IV meds and oral Levaquin 8 months ago the hair loss increased which I knew had to be the mixture of infection plus meds. My hair finally settled in January, since I was finally recovered. BUT in April was feeling crappy still without reason (now I’m convinced it’s after effecst of illness or meds) doc gave me 10 more days of Levaquin and I’m kicking myself because I don’t believe I truly needed it. It was just given for no good reason. One month later- hair loss again. I feel like it has to be connected to the med. Any thoughts or insight would be great??!!!!
Ryan L
8 years ago
Here’s a link to another water pitcher brand that removes flouride. The brand is Zero Water, and their products are sold in stores like Walmart. The statement from the company is, “ZeroWater filters are not certified for the reduction of fluoride, however, fluoride is an inorganic compound. The TDS meter is designed to detect inorganic compounds. Fluoride levels in water are usually around 2 to 4 ppm, which will show up on the meter as 002 to 004. So when filtered water reads 000, it is not likely that fluoride is present in water.” So even though the product wasn’t specifically certified to remove flouride, water testing shows that it does. I hope this helps someone.
I have had a friend in town for the last couple days, and, as many of you saw on FB, I was also busy celebrating my upcoming nuptials. I’m about to go on vacation all of next week too. So, basically, I’ve been occupied and will continue to be occupied for a bit longer. If you’re waiting for me to answer a question that you posted in the comments on this site, can you please email the question to me through the Contact link on Floxie Hope? I’ll be able to get to it through my email better than I can through keeping up with the comments. I apologize for the neglect and I appreciate everyone who helps and supports everyone else and helps me with answering questions! 🙂
xoxo
Lisa
Cindy Jones
8 years ago
Is there a test for Lyme Disease I wonder? Ask Blue Horizon.
Anyone here see any connections with their floxing and water-damaged buildings and/or mold?
Ned
8 years ago
Hi all. Coming up to my 1 year mark post floxing with cipro 1 week of 500mg 2x a day. Constant PN in both feet but more clarity of thinking, though I am still highly anxious. I have little desire to see anyone, be social. I am going to 12 step meetings so I’m not totally isolated… but does anyone else experience lack of social interest? Thanks!
floxed from poland
8 years ago
Happy wedding 😀
Bob
8 years ago
I don’t believe we would get any help from either one. Trump is not mentally or emotionally stable enough to run anything except his big mouth. Hillary is simply a crook. We are on our on.
floxed from poland
8 years ago
Bob but there is a chance and worth to try.
If in USA this FQ problem will be resolved all world do the same.
There was small victory in FDA (meeting with 100 or sth floxies)
so this is small step to victory.
Trump or Hillary – FQ toxicity is American people problem and president, government, senators should take this case. They represents you,
you voted.
AMyers
8 years ago
I need to have a tooth extraction. Has anyone taken Percocet after floxing, and if so, any problems? Or what pain medicine works best for floxies after extraction? My dentist is a holistic dentist, but he will prescribe me pain med just in case I need it. He has a clove oil paste his patients use, but said sometimes pain med is necessary.
Deanne
8 years ago
Fatigue is just so debilitating. Has this been a common symptom for floxies in general?
Any tips that worked to get the energy back?
John
8 years ago
Hello Floxie family,
I am a 31 year old male and 4 months into this nightmare. I was not floxed as hard as many others but am still dealing with this. My symptoms are/were as follows:
– CNS issues: Depression, anxiety, brain fog, panic attacks
– Rapid heart beat
– Nerve damage & possible tendon damage in my left hamstring
– Body-wide myoclonic jerks
– Some other tendon issues that appeared 3 months in
The CNS issues have mostly cleared up, heart beat is normal again, the myocolonic jerks have died down, and the tendon issues were never severe. They came at 3 months in but only lasted 2 weeks and have cleared up (for now). My main issue is that I still have this darn cramping in my left leg that refuses to let up. It is not painful, just uncomfortable. A dull, numb, cramping feeling in my hamstring and buttocks. And lucky me, I have a desk job that aggravates it. The symptoms do not align with the definition of PN. No tingling, no pins and needles, no pain in feet…just a weird dull/cramping/numbness in my hamstring area. Some days it is barely there, other days it is throbbing. It has gotten a bit better since early on but at this point I am convinced I have permanent nerve damage in my leg. I gave gotten a few Glutathione IV’s which offered some relief but not for long I can still walk just fine, even run (though I choose not to), bike ride, lift weights…pretty much anything but there is just that extremely ANNOYING and depressing feeling in my hamstring/buttocks that refuses to let up.
I too am pretty anti-social but mainly because of the feeling in my leg. How can I enjoy a night out when my leg is aching? I work full time and am in the last month of my masters degree and was looking forward to my future and now I look forward to nothing except the day when my leg feels normal again. I have no interest in seeing a doctor because I know there is nothing they can do. I refuse to take any sort of medication so what can they really do? Nothing. Although now, at four months out, I am considering seeing a neurologist or getting an MRI possibly. I consider myself a strong person but I cry just about every night with the fear that I may have permanent nerve damage in my leg. My questions to Lisa & everyone are the following:
– Has anyone else experienced this feeling?
– Does this sound like neuropathy to anyone?
– How likely do you think that this is permanent?
– Lisa mentioned Phosphatidylcholine IV’s earlier…was wondering if anyone else had these and how much did they help?
– Also heard things about a live chat for Floxies…does this exist anywhere?
Thank you all and a special thanks to Lisa for providing us with so much support. As far as I’m concerned, we are all a family.
Tia
8 years ago
omg I’m so glad I found this website before using ciprodex (or neomycin for that matter. I’m notorious for researching everything cuz I’m a health freak. So naturally, I freaked out when I read that neomycin can cause permanent hearing loss so I had my doc switch the prescription and it was for ciprodex. Well, I’m glad I did my research on that too. I was seriously considering taking them tonight cuz most of what I had read made it seem like it wasn’t as bad as neomycin. Until I read about floxing. I already have several debilitating health problems and it really gets unbearable at times. I know exactly what it feels like to deal with a health problem that is either permanent or has the potential to become permanent…OCD, Anxiety, Tinnitus & Morgellons to name a few. And just this past week I got an ear infection and sciatica which could be piriformis syndrome or a herniated disk in my back. And last month I experienced a brief episode of essential hand tremor. It’s when your hand shakes uncontrollably in certain positions. It only happened once so I dunno what caused it. But usually when I go through anxiety, body shaking & trembling is the most prevalent symptom. So I’m guessing the physical effects of constant anxiety are having some kind of long term effect. So yeah, shit just keeps piling up and it’s really frustrating).
Anyway, speaking of my ear infection, I’ve been searching the internet desperately for alternative medicine. So far, olive oil & garlic or white vinegar/apple cider vinegar & rubbing alcohol are the most popular recommendations. Has anyone on this website tried these remedies for ear infection? Do they really work? They can’t be worse than those awful prescription drugs. I’m kinda afraid to try anything though for fear of making it worse (specifically my tinnitus…I sometimes have to sleep with a fan in order to ignore the ringing in my ears…I really don’t wanna provoke it and make it louder. That’s the whole reason why I got my ears cleaned by a doctor, cuz I thought ear wax was contributing to it, and that’s why I got an ear infection. So yeah, I made it worse anyway. Go me -.- But seriously, I feel like I should do something. Doing nothing worries me too. I’ve read that most ear infections go away on their own but at the same time I don’t just wanna sit around and wait for it to spontaneously disappear. It could get worse and then what? So if anybody has any advice it would be much appreciated!).
Cam
8 years ago
Hello everyone,
Here is my story. I was a healthy, 40 year old husband and a father. I am also a very successful professional. I awoke in mid February one night in severe groin pain. I was seen by a GP and told i had uti/prostatitis and put on cipro for 20 days. In the meantime, all tests including prostatic fluid, urine, blood and ultrasound were all normal, they even tested for STDs without merit and they were all clean of course. Anyway, my pain began to subside on its own but i finished the whole course. Fast forward to mid March, one night after intercourse my penis was in severe pain. I had burning pain throughout the genital area, severe burning and tingling. It was unbearable and it hurt to touch. I have seen multiple urologists and doctors. I have noticed a physical change in my manhood. The shaft has gotten thinner and it seems detached at the base and hangs very loose and lifeless. Its as if the tissue has degenerated on the shaft. And i think there’s nerve damage in the area as well because even five months later, its very sensitive to touch. My question are: has anyone experienced anything similar? Secondly, am i way off base thinking its Cipro? Thank you so much for reading and i hope uou find relief.
Jane
8 years ago
Hi,
I’ve probably mentioned hair loss in here in a few different posts. Sorry if I’m being redundant, I’m just upset with my hair loss and frustrated with docs looking at me like I have 3 heads when I ask if it’s connected to the meds. So I keep forgetting to ask people who did have hair loss from Levaquin or other floxie med- was it temporary? Did your hair go back to normal after a certain amount of time?? I’m eating very well & getting lots of vitamins, but wonder how long it might last. Thanks for any feedback
Hi All,
I am new to this feed. So glad to have found it. I was floxed just 4 days ago…….So scary and unbelievable. Has anyone felt ashamed? I trusted my medical doctor for a UTI.
I do no do social media, I have been floxed over and over since 1990 and it continues because every time I undergo general anesthesia, the anesthetic synthesizes to Fluoride which is the culprit in the Fluoroquinolones. I need research papers that prove the damage done by Fluorides. I believe the only way I can convince my new pain doctor that the damage is real and the pain it causes is real. I would appreciate any leads you may have.
Hi all,
I had floxied befor 7 month tell now i have fast heart any one can help me please i go to hospital many time the said no problem in your body just take xanax till now i have fast heart i take mag and vitamin C , D calcium d3 , A
Just i take one pill (Avelox) 500 before 7 month
Any help
So, I’m about 4 months into this flox crap. My muscles and tendons are finally showing signs of healing, I have really good days and then bad days where I feel I’ve lost so much progress. I have been reacting very poorly to many different foods, from McDonalds (duh) to certain vegetables, etc. The reaction being, racing heartbeat, elevated pulse (100+ bpm) for hours afterward. I did a lot of research and the common element may be foods with high glutamate levels, well, that and foods that dampen the system that breaks down glutamate naturally. But either way, I see progress on that front as well.
But now, for about a month or so, I’ve had loss of smell and taste to a great degree, as well as a burning sensation on the front/tip portion of my tongue. I’ve read about that in particular and it’s common in menopause and pre-menopause (which I am) but funny how it started a month or so into being floxed.
I’m just curious if anyone else has had any of these strange residual symptoms?
Has anyone experienced hair loss from Levaquin? I hear yes and no and hoping somebody has had this! I read that these drugs can deplete the body of specific vitamins and cause hair loss? It seems too much of a cooincidence that it started a month after my last round of it. I had hair loss due to a blood infection & once diagnosed and given IV meds and oral Levaquin 8 months ago the hair loss increased which I knew had to be the mixture of infection plus meds. My hair finally settled in January, since I was finally recovered. BUT in April was feeling crappy still without reason (now I’m convinced it’s after effecst of illness or meds) doc gave me 10 more days of Levaquin and I’m kicking myself because I don’t believe I truly needed it. It was just given for no good reason. One month later- hair loss again. I feel like it has to be connected to the med. Any thoughts or insight would be great??!!!!
Here’s a link to another water pitcher brand that removes flouride. The brand is Zero Water, and their products are sold in stores like Walmart. The statement from the company is, “ZeroWater filters are not certified for the reduction of fluoride, however, fluoride is an inorganic compound. The TDS meter is designed to detect inorganic compounds. Fluoride levels in water are usually around 2 to 4 ppm, which will show up on the meter as 002 to 004. So when filtered water reads 000, it is not likely that fluoride is present in water.” So even though the product wasn’t specifically certified to remove flouride, water testing shows that it does. I hope this helps someone.
https://www.zerowater.com/zerowater-products
Cindy
I now have a multi modular goiter too. What can we do about it?
Nicole
How much l glutamine do you use and which brand?
Hi friends,
I have had a friend in town for the last couple days, and, as many of you saw on FB, I was also busy celebrating my upcoming nuptials. I’m about to go on vacation all of next week too. So, basically, I’ve been occupied and will continue to be occupied for a bit longer. If you’re waiting for me to answer a question that you posted in the comments on this site, can you please email the question to me through the Contact link on Floxie Hope? I’ll be able to get to it through my email better than I can through keeping up with the comments. I apologize for the neglect and I appreciate everyone who helps and supports everyone else and helps me with answering questions! 🙂
xoxo
Lisa
Is there a test for Lyme Disease I wonder? Ask Blue Horizon.
Anyone here see any connections with their floxing and water-damaged buildings and/or mold?
Hi all. Coming up to my 1 year mark post floxing with cipro 1 week of 500mg 2x a day. Constant PN in both feet but more clarity of thinking, though I am still highly anxious. I have little desire to see anyone, be social. I am going to 12 step meetings so I’m not totally isolated… but does anyone else experience lack of social interest? Thanks!
Happy wedding 😀
I don’t believe we would get any help from either one. Trump is not mentally or emotionally stable enough to run anything except his big mouth. Hillary is simply a crook. We are on our on.
Bob but there is a chance and worth to try.
If in USA this FQ problem will be resolved all world do the same.
There was small victory in FDA (meeting with 100 or sth floxies)
so this is small step to victory.
Trump or Hillary – FQ toxicity is American people problem and president, government, senators should take this case. They represents you,
you voted.
I need to have a tooth extraction. Has anyone taken Percocet after floxing, and if so, any problems? Or what pain medicine works best for floxies after extraction? My dentist is a holistic dentist, but he will prescribe me pain med just in case I need it. He has a clove oil paste his patients use, but said sometimes pain med is necessary.
Fatigue is just so debilitating. Has this been a common symptom for floxies in general?
Any tips that worked to get the energy back?
Hello Floxie family,
I am a 31 year old male and 4 months into this nightmare. I was not floxed as hard as many others but am still dealing with this. My symptoms are/were as follows:
– CNS issues: Depression, anxiety, brain fog, panic attacks
– Rapid heart beat
– Nerve damage & possible tendon damage in my left hamstring
– Body-wide myoclonic jerks
– Some other tendon issues that appeared 3 months in
The CNS issues have mostly cleared up, heart beat is normal again, the myocolonic jerks have died down, and the tendon issues were never severe. They came at 3 months in but only lasted 2 weeks and have cleared up (for now). My main issue is that I still have this darn cramping in my left leg that refuses to let up. It is not painful, just uncomfortable. A dull, numb, cramping feeling in my hamstring and buttocks. And lucky me, I have a desk job that aggravates it. The symptoms do not align with the definition of PN. No tingling, no pins and needles, no pain in feet…just a weird dull/cramping/numbness in my hamstring area. Some days it is barely there, other days it is throbbing. It has gotten a bit better since early on but at this point I am convinced I have permanent nerve damage in my leg. I gave gotten a few Glutathione IV’s which offered some relief but not for long I can still walk just fine, even run (though I choose not to), bike ride, lift weights…pretty much anything but there is just that extremely ANNOYING and depressing feeling in my hamstring/buttocks that refuses to let up.
I too am pretty anti-social but mainly because of the feeling in my leg. How can I enjoy a night out when my leg is aching? I work full time and am in the last month of my masters degree and was looking forward to my future and now I look forward to nothing except the day when my leg feels normal again. I have no interest in seeing a doctor because I know there is nothing they can do. I refuse to take any sort of medication so what can they really do? Nothing. Although now, at four months out, I am considering seeing a neurologist or getting an MRI possibly. I consider myself a strong person but I cry just about every night with the fear that I may have permanent nerve damage in my leg. My questions to Lisa & everyone are the following:
– Has anyone else experienced this feeling?
– Does this sound like neuropathy to anyone?
– How likely do you think that this is permanent?
– Lisa mentioned Phosphatidylcholine IV’s earlier…was wondering if anyone else had these and how much did they help?
– Also heard things about a live chat for Floxies…does this exist anywhere?
Thank you all and a special thanks to Lisa for providing us with so much support. As far as I’m concerned, we are all a family.
omg I’m so glad I found this website before using ciprodex (or neomycin for that matter. I’m notorious for researching everything cuz I’m a health freak. So naturally, I freaked out when I read that neomycin can cause permanent hearing loss so I had my doc switch the prescription and it was for ciprodex. Well, I’m glad I did my research on that too. I was seriously considering taking them tonight cuz most of what I had read made it seem like it wasn’t as bad as neomycin. Until I read about floxing. I already have several debilitating health problems and it really gets unbearable at times. I know exactly what it feels like to deal with a health problem that is either permanent or has the potential to become permanent…OCD, Anxiety, Tinnitus & Morgellons to name a few. And just this past week I got an ear infection and sciatica which could be piriformis syndrome or a herniated disk in my back. And last month I experienced a brief episode of essential hand tremor. It’s when your hand shakes uncontrollably in certain positions. It only happened once so I dunno what caused it. But usually when I go through anxiety, body shaking & trembling is the most prevalent symptom. So I’m guessing the physical effects of constant anxiety are having some kind of long term effect. So yeah, shit just keeps piling up and it’s really frustrating).
Anyway, speaking of my ear infection, I’ve been searching the internet desperately for alternative medicine. So far, olive oil & garlic or white vinegar/apple cider vinegar & rubbing alcohol are the most popular recommendations. Has anyone on this website tried these remedies for ear infection? Do they really work? They can’t be worse than those awful prescription drugs. I’m kinda afraid to try anything though for fear of making it worse (specifically my tinnitus…I sometimes have to sleep with a fan in order to ignore the ringing in my ears…I really don’t wanna provoke it and make it louder. That’s the whole reason why I got my ears cleaned by a doctor, cuz I thought ear wax was contributing to it, and that’s why I got an ear infection. So yeah, I made it worse anyway. Go me -.- But seriously, I feel like I should do something. Doing nothing worries me too. I’ve read that most ear infections go away on their own but at the same time I don’t just wanna sit around and wait for it to spontaneously disappear. It could get worse and then what? So if anybody has any advice it would be much appreciated!).
Hello everyone,
Here is my story. I was a healthy, 40 year old husband and a father. I am also a very successful professional. I awoke in mid February one night in severe groin pain. I was seen by a GP and told i had uti/prostatitis and put on cipro for 20 days. In the meantime, all tests including prostatic fluid, urine, blood and ultrasound were all normal, they even tested for STDs without merit and they were all clean of course. Anyway, my pain began to subside on its own but i finished the whole course. Fast forward to mid March, one night after intercourse my penis was in severe pain. I had burning pain throughout the genital area, severe burning and tingling. It was unbearable and it hurt to touch. I have seen multiple urologists and doctors. I have noticed a physical change in my manhood. The shaft has gotten thinner and it seems detached at the base and hangs very loose and lifeless. Its as if the tissue has degenerated on the shaft. And i think there’s nerve damage in the area as well because even five months later, its very sensitive to touch. My question are: has anyone experienced anything similar? Secondly, am i way off base thinking its Cipro? Thank you so much for reading and i hope uou find relief.
Hi,
I’ve probably mentioned hair loss in here in a few different posts. Sorry if I’m being redundant, I’m just upset with my hair loss and frustrated with docs looking at me like I have 3 heads when I ask if it’s connected to the meds. So I keep forgetting to ask people who did have hair loss from Levaquin or other floxie med- was it temporary? Did your hair go back to normal after a certain amount of time?? I’m eating very well & getting lots of vitamins, but wonder how long it might last. Thanks for any feedback
Hi All,
I am new to this feed. So glad to have found it. I was floxed just 4 days ago…….So scary and unbelievable. Has anyone felt ashamed? I trusted my medical doctor for a UTI.