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John
8 years ago
Has anyone else become extremely introspective since becoming floxxed? I find myself re-hashing every mistake I made in life and stressing about them. Before cipro, I had gotten over everything and rarely thought about it. Now I think about them all day. Anyone else have this?
FloxFromCipropol
8 years ago
We all one terrible irreversible mistake had done – fq poison!
I want time machine.
I think a lot about this moment when googled cipropol
pl language and nothing disturbing found.
this moment will be with me till i die.
this poison has too many trade names: cipronex, cipropol,
ciphin, levoxa, tavanic etc…
I trusted doctors, now I hate doctors.
I hate big pharma testing drugs on people directly.
30 years of all world floxing I think few milion
floxed people on Earth since 1986 (including
200000 soldiers with gulf war syndrome),
maybe 10% are aware what happened – fq poisoning,
90% are sick, are not aware reason.
Jane
8 years ago
So since I’m still having hair loss after the Levaquin, it was suggested to take Biotin Forte. I am just now deciding on a probiotic and vitamin c, etc. I’m worried about adding all these things and triggering flare ups. Any ideas on this? Better to start with one thing at a time?
Andy P
8 years ago
Some updates on where I am 7 weeks out,this last week my joint and hip pain have gotten worse as I’ve become more mobile.At night the hip pain was a 10 and I’ve developed bad insomnia not sure it’s from the pain or just insomnia
Anyhow I had a glutathione IV yesterday and my pain was very very bad last night and I was going back to work the next day.I told my wife it is impossible to work in this much pain but eventually fell asleep around 2am then woke at 4 to scared to even move for the pain.I got up at 6 and went downstairs to get ready but something was different no pain.I thought it couldn’t be true so went to work and waited for the pain to come on all day.I was up and down the stairs and walking as normal,some pain there but more of an annoyance than anything else.I hope this continues as it gives me some hope I can one day recover
A question I upped my mag to 500mg per day three days ago but it’s given me terrible heartburn and stomach acid what’s the lowest amount that would help.
Any tips on insomnia I’m not going the sleeping tablet route it took me three years to get off them a while,ago
L
8 years ago
There are many different forms of magnesium. You might want to try mag taurate or orotate. I was taking up to 600 a day, and only recently, after a year, dropped down to around 300. You could probably go to 200 if you are getting it from other sources like nuts and green leafy vegetables. As for the sleep, I had to go the pill route since I was getting 0-1 hours for weeks, but then weaned myself off after a few months. There have been herbal and suppement suggestions, but I am afraid none of them helped me.
Frank B
8 years ago
“Let me tell you something you already know. The world ain’t all sunshine and rainbows. It’s a very mean and nasty place and I don’t care how tough you are it will beat you to your knees and keep you there permanently if you let it. You, me, or nobody is gonna hit as hard as life. But it ain’t about how hard ya hit. It’s about how hard you can get hit and keep moving forward. How much you can take and keep moving forward. That’s how winning is done!”
― Sylvester Stallone, Rocky Balboa
Yes,I did a Rocky Marathon today…
Reading some recent gloomy posts…
Seven years out from my first floxing,working a back breaking job through it all,
but I’m still here.
I’m still here.How am I still here?
Hope you all find your “inner Rocky.”
Cipro disrupts the collagen matrix. I suspect it heavily depletes us of essential minerals such as manganese, copper, and zinc. All crucial for healthy collagen formation. Copper is needed for the synthesis of mature elastin and collagen, as well as helping them cross link. A prolonged treatment using these minerals along with vitamin C and E, and I believe you can fix your weakened tendons.
Jane
8 years ago
Hi Angie,
My current rheumatologist actually seems perplexed, but he’s definitely not trying to push a random diagnosis so far, thank god. Have they done bloodwork on you for that? The tests that look for inflammation, etc.- did yours come back elevated? Mine were ok. My joints aren’t too bad, it’s the flu like symptoms and whole body aches that are awful. I get them every month like clockwork and that’s what baffles them the most. Even went to gyno to see if it’s related to my hormones/cycle- definitely brushed off in that department. I did hear the rheum say it’s been too far out since my meds for it to be the cause- but I don’t agree. He is definitely trying to help which is encouraging. Also, my hair is still falling out from the Levaquin and I did finally get the doc to acknowledge it can cause hair loss. Have they referred you to any other specialists?
Angie
8 years ago
Hi Jane thanks for your response! When I was first flowed I had a sed rate of 44 which was high the range on the report was 20. The RA factor was normal as well as the CRP. I remember soaking to another floxie back then that was told she had RA but after retesting her was told she didn’t. I know my body and I know I didn’t have these types of pains until after I took 2 cipro pills. Also each month that my cycle comes I get more achy until my cycle leaves so I know that it’s something with the hormones.
Angie
8 years ago
Jane,
I haven’t spoken with my gyno about it yet but I plan to do so. I’ve been trying to wait and see if the pain was consistent every month and for the past couple of months it has been. So I’m definitely going to bring it up when I see her again. It just amazes me how the doctors will overlook everything you see as it relates to these antibiotics.
Carrie
8 years ago
Hi all, I have a question. Can anyone tell me why coffee/caffeine is not good for floxies? I have really appreciated all the posts. I have learned many things from this website. I was floxed almost 2 yrs ago and have tried many different treatment plans. None successful yet. I am now seeing an Osteopath and am trying homeopathic meds.
How an Everyday Secret Can End Joint Pain ?
If, like me, and most of us who… aren’t as young or as active as we used to be… you either suffer from joint pain or hope to be one of the very few people who avoids joint pain. And you probably have friends and loved ones who feel the same way… or are suffering themselves.
Unfortunately, we’ve been taught that joint pain is a fundamental part of aging. And that dealing with joint pain is limited to treatments:
• drugs with nasty side effects
• painful and expensive surgery that may make your joint pain worse
• blocking out large chunks of time (and co-pays) for courses of physical therapy
And all of which never seem to really address the cause of the pain. Well, I’ve found part of the solution to my joint pain.
This article by retired NBA player and joint pain relief expert, Jonathan Bender. This secret doesn’t take long, but it is kinda boring. It’s practically painless, but it is kinda boring.
It is completely, absolutely safe, but it is kinda boring. It’s free…and you know what I’m going to say, so I won’t. And it may sound like magic, but it’s based on a great athlete’s intuitive, instinctive understanding of how your body really works.
And every day I use this slightly boring secret, my pain levels have dropped and my comfort increased. I don’t just feel better, my life is better. Click here to read “Why Joint Pain Isn’t Inevitable…and How to End Yours. ”
Click here to read “Why Joint Pain Isn’t Inevitable…and How to End Yours
Well they didn’t check hormone levels or do more in depth testing during the actual flare- just basic panels so that says alot. The day before I was diagnosed with meningitis my labs were normal, but I was definitely feeling ill. My labs went crazy the next day when I was actually admitted- so it’s hard to believe tests at times. I was literally sitting there with a raging blood infection in the doc’s office and they didn’t know. That scared me pretty bad. So my monthly symptoms are always the flu aches/weakness, but newer is actual muscle soreness, as though I ran a marathon! I will say the vertigo & spacy feelings intensify and yes the anxiety of knowing it’s coming is more intense, too. I’m glad to have found this rheum. He seemed genuine in helping me…
John
8 years ago
anyone have cramping where there heart is? I had chest pains months ago but they went away. The past few days I have been feeling a dull, cramping feeling directly where my heart is. Very frightening. Not a serious pain just a dull, mildly painful feeling that has been coming and going the past 3 days…anyone else have this?
Andy P
8 years ago
I went for accupuncture today and told the lady about flox poisoning she was shocked and treated me for detox .I was there over two hours and she put over 30 needles in me ,no idea if it will work but its worth a try.My sleeps getting worse and its really knocking me about i feel terrible today.But ive had two of the best days ive had for two months this week so must concentrate on the positives
Richard G Berg
8 years ago
Hello Everybody!
Tried posting before but with no success!
One month out from my divine denting from Cipro and really really frightened as each week something else crops up!
First it was tinnitus which has all but disappeared and then it was neuropathic pains in the feet (which have also gently receded) and then muscle aches in the legs (now mainly confined to the left calf) and then that wall of insomnia which comes and goes and seems to be better if I take one formula, plus tart cherry juice and the multi-vitamin mix…
In recent days, the anxiety attacks have waxed and waned and yesterday I was diabolically constipated but that subsided this morning as well..
Symptom of the Day for today: nausea!
It looks as if my lot is rolling symptoms.
Good news is that everybody sooner or later makes a recovery (of sorts) from all the evidence that I have read – most who do recover never share their stories and we have to recall that there are millions of people out there dealing with some of the residual issues from FQT and the ones we know that endure are the tendon ruptures/neuropathy whereas the evidence suggests that most CNS issues eventually subside; the problem is tolerating that period between onset and eventually!
Anybody know of fellow sufferers in London that I could be put in touch with as I feel very isolated with this sh***y predicament?!
Feel free to leave me a post here or send me an email:
Has anyone else become extremely introspective since becoming floxxed? I find myself re-hashing every mistake I made in life and stressing about them. Before cipro, I had gotten over everything and rarely thought about it. Now I think about them all day. Anyone else have this?
We all one terrible irreversible mistake had done – fq poison!
I want time machine.
I think a lot about this moment when googled cipropol
pl language and nothing disturbing found.
this moment will be with me till i die.
this poison has too many trade names: cipronex, cipropol,
ciphin, levoxa, tavanic etc…
I trusted doctors, now I hate doctors.
I hate big pharma testing drugs on people directly.
30 years of all world floxing I think few milion
floxed people on Earth since 1986 (including
200000 soldiers with gulf war syndrome),
maybe 10% are aware what happened – fq poisoning,
90% are sick, are not aware reason.
So since I’m still having hair loss after the Levaquin, it was suggested to take Biotin Forte. I am just now deciding on a probiotic and vitamin c, etc. I’m worried about adding all these things and triggering flare ups. Any ideas on this? Better to start with one thing at a time?
Some updates on where I am 7 weeks out,this last week my joint and hip pain have gotten worse as I’ve become more mobile.At night the hip pain was a 10 and I’ve developed bad insomnia not sure it’s from the pain or just insomnia
Anyhow I had a glutathione IV yesterday and my pain was very very bad last night and I was going back to work the next day.I told my wife it is impossible to work in this much pain but eventually fell asleep around 2am then woke at 4 to scared to even move for the pain.I got up at 6 and went downstairs to get ready but something was different no pain.I thought it couldn’t be true so went to work and waited for the pain to come on all day.I was up and down the stairs and walking as normal,some pain there but more of an annoyance than anything else.I hope this continues as it gives me some hope I can one day recover
A question I upped my mag to 500mg per day three days ago but it’s given me terrible heartburn and stomach acid what’s the lowest amount that would help.
Any tips on insomnia I’m not going the sleeping tablet route it took me three years to get off them a while,ago
There are many different forms of magnesium. You might want to try mag taurate or orotate. I was taking up to 600 a day, and only recently, after a year, dropped down to around 300. You could probably go to 200 if you are getting it from other sources like nuts and green leafy vegetables. As for the sleep, I had to go the pill route since I was getting 0-1 hours for weeks, but then weaned myself off after a few months. There have been herbal and suppement suggestions, but I am afraid none of them helped me.
“Let me tell you something you already know. The world ain’t all sunshine and rainbows. It’s a very mean and nasty place and I don’t care how tough you are it will beat you to your knees and keep you there permanently if you let it. You, me, or nobody is gonna hit as hard as life. But it ain’t about how hard ya hit. It’s about how hard you can get hit and keep moving forward. How much you can take and keep moving forward. That’s how winning is done!”
― Sylvester Stallone, Rocky Balboa
Yes,I did a Rocky Marathon today…
Reading some recent gloomy posts…
Seven years out from my first floxing,working a back breaking job through it all,
but I’m still here.
I’m still here.How am I still here?
Hope you all find your “inner Rocky.”
Peace,
Frank
well, just when I thought consumer reports was coming around, after publishing the dangers of FLQ they go and do this. They have joined the enemy, in large part thanks to their old-school, AMA-immersed, anti- natural treatment board doctor, Marvin Lipman. I am writing them yet another letter and hope you all do the same. http://articles.mercola.com/sites/articles/archive/2016/08/09/consumer-reports-attacks-supplements.aspx?utm_source=dnl&utm_medium=email&utm_content=art1&utm_campaign=20160809Z1&et_cid=DM113484&et_rid=1608794992
Cipro disrupts the collagen matrix. I suspect it heavily depletes us of essential minerals such as manganese, copper, and zinc. All crucial for healthy collagen formation. Copper is needed for the synthesis of mature elastin and collagen, as well as helping them cross link. A prolonged treatment using these minerals along with vitamin C and E, and I believe you can fix your weakened tendons.
Hi Angie,
My current rheumatologist actually seems perplexed, but he’s definitely not trying to push a random diagnosis so far, thank god. Have they done bloodwork on you for that? The tests that look for inflammation, etc.- did yours come back elevated? Mine were ok. My joints aren’t too bad, it’s the flu like symptoms and whole body aches that are awful. I get them every month like clockwork and that’s what baffles them the most. Even went to gyno to see if it’s related to my hormones/cycle- definitely brushed off in that department. I did hear the rheum say it’s been too far out since my meds for it to be the cause- but I don’t agree. He is definitely trying to help which is encouraging. Also, my hair is still falling out from the Levaquin and I did finally get the doc to acknowledge it can cause hair loss. Have they referred you to any other specialists?
Hi Jane thanks for your response! When I was first flowed I had a sed rate of 44 which was high the range on the report was 20. The RA factor was normal as well as the CRP. I remember soaking to another floxie back then that was told she had RA but after retesting her was told she didn’t. I know my body and I know I didn’t have these types of pains until after I took 2 cipro pills. Also each month that my cycle comes I get more achy until my cycle leaves so I know that it’s something with the hormones.
Jane,
I haven’t spoken with my gyno about it yet but I plan to do so. I’ve been trying to wait and see if the pain was consistent every month and for the past couple of months it has been. So I’m definitely going to bring it up when I see her again. It just amazes me how the doctors will overlook everything you see as it relates to these antibiotics.
Hi all, I have a question. Can anyone tell me why coffee/caffeine is not good for floxies? I have really appreciated all the posts. I have learned many things from this website. I was floxed almost 2 yrs ago and have tried many different treatment plans. None successful yet. I am now seeing an Osteopath and am trying homeopathic meds.
How an Everyday Secret Can End Joint Pain ?
If, like me, and most of us who… aren’t as young or as active as we used to be… you either suffer from joint pain or hope to be one of the very few people who avoids joint pain. And you probably have friends and loved ones who feel the same way… or are suffering themselves.
Unfortunately, we’ve been taught that joint pain is a fundamental part of aging. And that dealing with joint pain is limited to treatments:
• drugs with nasty side effects
• painful and expensive surgery that may make your joint pain worse
• blocking out large chunks of time (and co-pays) for courses of physical therapy
And all of which never seem to really address the cause of the pain. Well, I’ve found part of the solution to my joint pain.
This article by retired NBA player and joint pain relief expert, Jonathan Bender. This secret doesn’t take long, but it is kinda boring. It’s practically painless, but it is kinda boring.
It is completely, absolutely safe, but it is kinda boring. It’s free…and you know what I’m going to say, so I won’t. And it may sound like magic, but it’s based on a great athlete’s intuitive, instinctive understanding of how your body really works.
And every day I use this slightly boring secret, my pain levels have dropped and my comfort increased. I don’t just feel better, my life is better.
Click here to read “Why Joint Pain Isn’t Inevitable…and How to End Yours. ”
Click here to read “Why Joint Pain Isn’t Inevitable…and How to End Yours
Hello
What hormonal test should we do
Tank you
Bad news
http://www.myquinstory.info/six-new-quinolones-development/
Fda will NOT inform individual doctors about fq toxicity
http://www.myquinstory.info/fda-fails-go-distance-yet/
… so people will be poisoned … still.
Anna,
Well they didn’t check hormone levels or do more in depth testing during the actual flare- just basic panels so that says alot. The day before I was diagnosed with meningitis my labs were normal, but I was definitely feeling ill. My labs went crazy the next day when I was actually admitted- so it’s hard to believe tests at times. I was literally sitting there with a raging blood infection in the doc’s office and they didn’t know. That scared me pretty bad. So my monthly symptoms are always the flu aches/weakness, but newer is actual muscle soreness, as though I ran a marathon! I will say the vertigo & spacy feelings intensify and yes the anxiety of knowing it’s coming is more intense, too. I’m glad to have found this rheum. He seemed genuine in helping me…
anyone have cramping where there heart is? I had chest pains months ago but they went away. The past few days I have been feeling a dull, cramping feeling directly where my heart is. Very frightening. Not a serious pain just a dull, mildly painful feeling that has been coming and going the past 3 days…anyone else have this?
I went for accupuncture today and told the lady about flox poisoning she was shocked and treated me for detox .I was there over two hours and she put over 30 needles in me ,no idea if it will work but its worth a try.My sleeps getting worse and its really knocking me about i feel terrible today.But ive had two of the best days ive had for two months this week so must concentrate on the positives
Hello Everybody!
Tried posting before but with no success!
One month out from my divine denting from Cipro and really really frightened as each week something else crops up!
First it was tinnitus which has all but disappeared and then it was neuropathic pains in the feet (which have also gently receded) and then muscle aches in the legs (now mainly confined to the left calf) and then that wall of insomnia which comes and goes and seems to be better if I take one formula, plus tart cherry juice and the multi-vitamin mix…
In recent days, the anxiety attacks have waxed and waned and yesterday I was diabolically constipated but that subsided this morning as well..
Symptom of the Day for today: nausea!
It looks as if my lot is rolling symptoms.
Good news is that everybody sooner or later makes a recovery (of sorts) from all the evidence that I have read – most who do recover never share their stories and we have to recall that there are millions of people out there dealing with some of the residual issues from FQT and the ones we know that endure are the tendon ruptures/neuropathy whereas the evidence suggests that most CNS issues eventually subside; the problem is tolerating that period between onset and eventually!
Anybody know of fellow sufferers in London that I could be put in touch with as I feel very isolated with this sh***y predicament?!
Feel free to leave me a post here or send me an email:
rglassberg@tiscali.co.uk
Love to all…
Dickie